POPULARITY
Recorded 2026-07-17 22:05:12
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In this episode, Dr. Chuang discusses some of her research, which has focused on racial disparities in health care delivery. She shares her journey to this topic starting with her childhood experiences as a witness to structural racism and implicit bias. She discusses how bias and structural inequities are reproduced in many ways, all affecting health and healthcare outcomes. Her work includes several focuses including interpersonal bias in healthcare communication with patients with serious illness and their families, bias in public health practices and bias in Artificial Intelligence. The discussion concludes with the ways that biomedical research has contributed to bias in healthcare over time. The discussion also includes some ways that researchers can move forward even in a challenging funding environment.Chuang E, Hope AA, Allyn K, Szalkiewicz E, Gary B, Gong MN. Gaps in Provision of Primary and Specialty Palliative Care in the Acute Care Setting by Race and Ethnicity. J Pain Symptom Manage. 2017 Nov;54(5):645-653.e1.Chuang E, Yu S, Georgia A, Nymeyer J, Williams J. A Decade of Studying Drivers of Disparities in End-of-Life Care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead. J Pain Symptom Manage. 2022 Jul;64(1):e43-e52.Chuang E, Grand-Clement J, Chen JT, Chan CW, Goyal V, Gong MN. Quantifying Utilitarian Outcomes to Inform Triage Ethics: Simulated Performance of a Ventilator Triage Protocol under Sars-CoV-2 Pandemic Surge Conditions. AJOB Empir Bioeth. 2022 Jul-Sep;13(3):196-204.Binkley CE, Dellavalle NS, Chuang E. From Mitigation to Flourishing: We Must Harness Emerging Technologies to Improve Health of the Most Vulnerable. Am J Bioeth. 2026 Feb;26(2):127-129.Cited in this episode:Barnato AE, Berhane Z, Weissfeld LA, Chang CC, Linde-Zwirble WT, Angus DC; Robert Wood Johnson Foundation ICU End-of-Life Peer Group. Racial variation in end-of-life intensive care use: a race or hospital effect? Health Serv Res. 2006 Dec;41(6):2219-37.Johnson KS, Kuchibhatla M, Payne R, Tulsky JA. Race and residence: intercounty variation in black-white differences in hospice use. J Pain Symptom Manage. 2013 Nov;46(5):681-90. doi: 10.1016/j.jpainsymman.2012.12.006. Epub 2013 Mar 21.Ashana DC, Welsh W, Preiss D, Sperling J, You H, Tu K, Carson SS, Hough C, White DB, Kerlin M, Docherty S, Johnson KS, Cox CE. Racial Differences in Shared Decision-Making About Critical Illness. JAMA Intern Med. 2024 Apr 1;184(4):424-432.Dellavalle NS, Ellis JR, Moore AA, Akerson M, Andazola M, Campbell EG, DeCamp M. What patients want from healthcare chatbots: insights from a mixed-methods study. J Am Med Inform Assoc. 2025 Nov 1;32(11):1735-1745.
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Here is the proposed preamble to a new Constitution for Public Education, conceived by the visionary teacher and organizer Jay Gillen: “Every middle-schooler will have the expectation that when they are in high school they will have a good-paying job, sharing knowledge or skills with peers, younger children, or other people in their communities.” He offers this radical proposal in order to propel a conversation and an organizing focus toward building a broad national consensus about how children should be prepared to grow up with dignity and strength in all of our communities. When he recasts the language of the preamble slightly—“If we could pay teenagers to do things that benefit their communities, contribute to the education and culture of younger children, and incidentally advance their own educations, it would be a good thing”—Gillen argues that we already have enormous sympathy in principle. And so we move on to specific steps we might take and concrete principles we might adopt which are surprisingly practical—and within reach. We're joined by Jay Gillen, author of Educating for Insurgency and The Power in the Room, and Jamarria Hall, a student advocate and lead plaintiff in Gary B. v. Whitmer, the Right to Literacy case that argued the Detroit public schools were “functionally incapable of delivering access to literacy,” and resulted in a $94.4 million settlement in 2023.
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