Podcasts about reflex sympathetic dystrophy rsd

You are not alone. In this episode, host Cheryl Crow and Rheum to THRIVE Graduate Katie Searfross discuss how to find a realistic sense of hope when coping with multiple fluctuating, complex chronic illnesses that are sometimes out of our control. Katie shares how she copes and finds ways to hold on to moments of joy even when her symptoms of Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome), Migraine and Rheumatoid Arthritis remain. Katie and Cheryl share how they've learned to be gentle with themselves and patient in those tough moments when you do “everything right” and your symptoms remain.  They also discuss the complexity of moments where you have to decide whether to push past your pain and when to slow down and listen to your body. Katie and Cheryl also discuss the value of group support and a sense of community, which Katie found in Rheum to THRIVE.  Katie also shares lessons she learned as a children's pastor specializing in grief, which can apply to people with chronic illness as well.Episode at a glance:Diagnosis story: Prior to her rheumatoid arthritis (RA) diagnosis, Katie knew she had other diagnoses including Reflex Sympathetic Dystrophy (RSD or complex regional pain syndrome) and Migraine. As a result, it was difficult for her to recognize “normal” symptoms for RSD compared to out of the ordinary symptoms which pointed to a new diagnosis of rheumatoid arthritis.Pain and dissociating: Katie shares how she found herself dissociating from pain / distracting herself from pain, and needing to learn to reconnect with her body.Katie's coping toolbox: At first, adjusting to RA diagnosis felt like losing everything. It's frustrating to have days when you do everything right and still have pain. Katie shares how in Rheum to THRIVE, being provided with evidence-based tools to manage pain and fatigue while having acknowledgement of the reality that sometimes your symptoms will remain despite doing everything right was empowering. It's a reminder that we can still focus on ways to find joy and thrive. Katie found freedom in knowing her diagnosis is not her fault, and learned to be gentle with herself.Social support: Katie shares how important it was for her to find a sense of authenticity, understanding, valid information and connection and how she found that in Rheum to THRIVE. Having expert guidance and an ability to ask questions helps to make sense of diagnosis, experiences, and lifestyle considerations.Lessons learned from Katie's work in grief: Katie shares lessons she has learned in her work as children's pastor with adults and children who are grieving; many of these lessons can also help people with chronic illness, including learning to be gentle with yourself.Katie's best advice for newly diagnosed: Find a safe community - don't try to do this as an island, because it's too much for one person to hold all on their own. All suffering is valid, it's never helpful to say it could be worse.What it means to Katie to thrive with rheumatic disease: Using the “and” - this is hard and I want to laugh and make memories. It is embracing that and not putting life on hold. I remind myself that I'm doing my best.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Episode details & Transcript:Go to to the episode page on the Arthritis Life website for full episode details including a transcript and video!

How Peripheral Nerve Stimulation Controls Chronic Pain, With Dr Tim Feldheim On today's episode, Dr. Danko and Dr. Feldheim discuss the rapidly growing and emerging therapy in chronic pain, peripheral nerve stimulation. Dr. Felheim completed his training at The University of Florida and a fellowship at Case Western University. At The Premier Pain Institute they have had positive experiences with peripheral nerve stimulation that they are sharing with the listeners. Tune in for the details! Episode Highlights: Dr. Feldheim explains who peripheral nerve stimulation is good for. They most commonly see peripheral neuropathy characterized by inflammation of the nerves in the lower extremities but can affect the upper; it is usually accompanied by intense burning, numbness, tingling like feeling. What is Reflex Sympathetic Dystrophy (RSD)? Lumbar radiculitis is an extremely common cause of a diseased nerve pain state, a lot of people know this as sciatica. Dr. Feldheim reviews the list of other conditions that cause peripheral nerve pain and damage. Neuropathic pain can be caused by crushing of nerves, lacerations due to trauma or injury, surgical insults, stress injury, small fiber neuropathy and phantom limb pain post  amputation. What are the current treatments for peripheral nerve stimulation? Dr. Feldheim reviews the medications that are commonly prescribed as well as topical treatments and therapeutic modalities that may help. What is peripheral nerve stimulation? It does not include FieldSTEM. At PPT, one of their most common is the shoulder, they target the suprascapular nerve.  Peripheral nerve stimulation is a very safe and effective option. If you are very active,  need routine MRI, or for those who have not had success with spinal cord stimulation, this can have great benefits. Dr. Danko explains how there is a trial with peripheral nerve stimulation and why that is both exciting and important. Multiple imaging modalities can be used to target the nerves. Dr. Danko explains the setup of the devices and how they work.  A team of specialists work with the STIMwave technologies on insurance and things of that nature. Dr. Danko asks Dr. Feldheim to share other conditions that he has seen in regards to peripheral nerve stimulation. Are these procedures done in the office or the operating room? How long does the trial last?  Dr. Feldheim explains which patients would be best served with spinal cord stimulation and peripheral nerve stimulation. What about knee replacement issues?  Needing a battery versus not needing a battery: what are the pros and cons? Dr. Danko explains. How does stimulation compare to the TENS unit?  How long does the procedure take and what is the recovery period? 3 Key Points: There are many conditions that can cause issues in peripheral nerves. Dr. Danko and Dr. Feldheim are explaining the common causes and current treatments for this type of pain. The wearable device used for peripheral nerve stimulation is very durable and effective offering freedom to do daily activities and have better quality of life. What is the difference between spinal cord stimulation and peripheral nerve stimulation and what are indicators for one treatment over the other?    Resources Mentioned: https://premierpaintreatment.com/ https://www.facebook.com/PremierPainTreatment/ 513-454-7246 

How Peripheral Nerve Stimulation Controls Chronic Pain, With Dr Tim Feldheim On today's episode, Dr. Danko and Dr. Feldheim discuss the rapidly growing and emerging therapy in chronic pain, peripheral nerve stimulation. Dr. Felheim completed his training at The University of Florida and a fellowship at Case Western University. At The Premier Pain Institute they have had positive experiences with peripheral nerve stimulation that they are sharing with the listeners. Tune in for the details!   Episode Highlights: Dr. Feldheim explains who peripheral nerve stimulation is good for. They most commonly see peripheral neuropathy characterized by inflammation of the nerves in the lower extremities but can affect the upper; it is usually accompanied by intense burning, numbness, tingling like feeling. What is Reflex Sympathetic Dystrophy (RSD)? Lumbar radiculitis is an extremely common cause of a diseased nerve pain state, a lot of people know this as sciatica. Dr. Feldheim reviews the list of other conditions that cause peripheral nerve pain and damage. Neuropathic pain can be caused by crushing of nerves, lacerations due to trauma or injury, surgical insults, stress injury, small fiber neuropathy and phantom limb pain post  amputation. What are the current treatments for peripheral nerve stimulation? Dr. Feldheim reviews the medications that are commonly prescribed as well as topical treatments and therapeutic modalities that may help. What is peripheral nerve stimulation? It does not include FieldSTEM. At PPT, one of their most common is the shoulder, they target the suprascapular nerve.  Peripheral nerve stimulation is a very safe and effective option. If you are very active,  need routine MRI, or for those who have not had success with spinal cord stimulation, this can have great benefits. Dr. Danko explains how there is a trial with peripheral nerve stimulation and why that is both exciting and important. Multiple imaging modalities can be used to target the nerves. Dr. Danko explains the setup of the devices and how they work.  A team of specialists work with the STIMwave technologies on insurance and things of that nature. Dr. Danko asks Dr. Feldheim to share other conditions that he has seen in regards to peripheral nerve stimulation. Are these procedures done in the office or the operating room? How long does the trial last?  Dr. Feldheim explains which patients would be best served with spinal cord stimulation and peripheral nerve stimulation. What about knee replacement issues?  Needing a battery versus not needing a battery: what are the pros and cons? Dr. Danko explains. How does stimulation compare to the TENS unit?  How long does the procedure take and what is the recovery period?   3 Key Points: There are many conditions that can cause issues in peripheral nerves. Dr. Danko and Dr. Feldheim are explaining the common causes and current treatments for this type of pain. The wearable device used for peripheral nerve stimulation is very durable and effective offering freedom to do daily activities and have better quality of life. What is the difference between spinal cord stimulation and peripheral nerve stimulation and what are indicators for one treatment over the other?    Resources Mentioned: https://premierpaintreatment.com/ https://www.facebook.com/PremierPainTreatment/ 513-454-7246 

Lauren shares her resiliency story of being diagnosed with a rare, chronic illness known as Reflex Sympathetic Dystrophy (RSD). 

In this episode, Barby Ingle defined Reflex Sympathetic Dystrophy (RSD) and what it's like living with chronic pain.She discussed her mindset of losing everything she worked hard for. Barby informed us of the importance of understanding the use of Narcan and how it can be fatal if not properly used.God restored her life that is purposeful and meaningful when she put her faith in Him.

ENERGY IN ACTION - EPISODE 040 Silver Linings with Sarah Kate Sarah Kate Frey is a mitochondrial disease patient who is always looking on the bright side, seeking silver linings in the darkest experiences. She is the author of Alice Eloise’s Silver Linings: The Story of a Silly Service Dog and is in the process of writing a second book about her friend and service dog, a doodle named Alice Eloise. EPISODE HIGHLIGHTS How are you connected to the mito world? Like a lot of patients, my path to a mitochondrial disease diagnosis was not a straight line. At about 12 years old, I came home from horseback riding camp really sick with a high fever and a staph infection in my throat that had me sick for months. I landed in the ER numerous times in a year for extreme dehydration and high inflammation markers. The following year in dance class, I sprained my ankle. Within the week, I received a Reflex Sympathetic Dystrophy (RSD) and Complex Regional Pain Syndrome (CRPS) diagnosis. Not long after, I had extreme GI symptoms and saw a gastric motility doctor who did gastric emptying studies and further testing. I was diagnosed with Gastroparesis and then later with Hemophagocytic lymphohistiocytosis (HLH). What led to a mitochondrial disease diagnosis was tying everything together. Can you tell us about Alice Eloise and how you came to author children's books? I love dogs and wondered how a service dog could help me. My sweet doodle, Alice Eloise, and I are a self-trained service dog team. She's my silver lining through being sick, so silver linings has become a mission for me. I decided to write a book about a girl and her dog, about silver linings and looking on the bright side. When Alice Eloise came along and stole my heart, it was time to tell our story. And that's what we're doing. The first book is written through the puppy eyes of Alice Eloise and her perspective of becoming a service dog. The biggest lessons from the story are no matter what you're going through, look for silver linings, never give up and seek the beauty in the world. What will the second book be about? It's about a trip to the zoo with Alice Eloise, which started out as a scene in the first book. We ended the first book after her service dog test, so I decided to add to the story with another book. The premise of this book is about being someone else's silver lining, and knowing that some of the best silver linings in life are the people around us and our interactions with one another. RESOURCES MENTIONED Alice Eloise’s Silver Linings: The Story of a Silly Service Dog https://sarahkatessilverlinings.com/once-upon-a-silver-lining-store/ Sarah Kate's Silver Linings Blog https://sarahkatessilverlinings.com/blog/ CONNECT WITH MITOACTION Website https://www.mitoaction.org/

Meet Barby Ingles:I was living my dream. I trained and performed cheerleading, dance and gymnastics starting at age 4 through college. Straight out of college I started my own cheer/dance training company. A year later I was hired by Washington State University as the head spirit program coach. I have been battling chronic pain since 1997. First with Endometriosis which resulted in a full hysterectomy and left oophorectomy. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), is a progressive neuro-autoimmune condition that affects multiple system in the body and needs to be treated early so that disability does not take over and TMJ. I lost my physical abilities was bed bound for years. Using a wheelchair to get to get out of bed. It took 3 years to get a proper diagnosis and another 4 years to get the proper treatment. I know firsthand how hard it is to continue looking for relief, perfect answers, and then coming up against healthcare professionals who blow you off or do not believe what you are saying could actually be what you're experiencing. As I search for a cure, I have become my own best advocate and work sharing the information so that others do not have the same life struggles that I have. Even after seeing over 100 healthcare professionals, having major surgeries I didn't need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – I did not give up or give in! I advocate for all of us challenged with a chronic care condition involving chronic pain as well as their family, caregivers, healthcare professionals and public. One in three people (116 million)  in the United States are affected with a condition that causes pain, so it is bound to affect you or someone you know. But until you feel the pain it is difficult to understand all of the challenges it brings on. Whether physical or mental, pain can and will consume you if you allow it to and only the patient can begin the process of healing! My hope is that my speaking engagements and books will inspire your eventual transformation filled with HOPE and motivation.About Ipain:iPain Foundations objectives are reached through important educational events, support, resources, and enhancement projects that are funded through private donations and grants. The Power of Pain Foundation (dba: International Pain Foundation) demonstrates its commitment to the chronic pain community by promoting new knowledge in the cause and treatment of chronic pain conditions. The ultimate goal is to provide tools and life skills to chronic pain patients giving them the ability to perform their regular activities in the community and to bolster society's ability to provide full opportunities and appropriate supports. Supporting education for pain patients, family members, caregivers and medical professionals, we make an important contribution to the overall knowledge and treatment of chronic pain. This allows our foundation to affect the lives of millions of people with chronic pain worldwide. Whether you have pain or are a caregiver, family member or friend of someone diagnosed, we'll help you face the challenges and life changes of chronic pain, head on.Connect With Barby : https://ipa That's why the BC Schizophrenia Society has launched a brand new podcast, called Look Again, Mental Illness Re-examined. Host Faydra Aldridge talks to doctors, families, and people with lived experience about how to recognize mental illness, and the specific treatments that can help. Check it out. They'll really challenge you to“look again” at what you think you know about mental illness. Support the show (https://www.patron.com/findyourrare)

What do you do when it seems like everything is against you and you have to change your dreams? You keep fighting! You keep going and you step into a dream more than you knew was possible. In this episode, I speak with Barby Ingle. She was living out her dreams as a head cheerleading coach when everything changed and she developed Reflex Sympathetic Dystrophy (RSD). She lost her physical abilities and was bed bound and in a wheel chair for years before she received a proper diagnosis and proper treatment. Most people would find this discouraging, but Barby was able to speak up for herself and keep fighting to save her life.  Now, Barby is a Cheerleader of Hope. She is a best-selling author, reality personality, chronic pain educator, patient advocate and president of the International Pain Foundation. Barby has such an incredible story to tell and her energy is radiant!  With this episode, you will leave feeling like there is hope to keep going. You will learn to advocate for whatever is going on in your life. You will be reminded that this is your life and you need to fight for it. Connect with Barby: Website: http://barbyingle.com/ Instagram: @kenandbarbyshow Facebook: https://www.facebook.com/BarbyIngleOfficial/ International Pain Foundation: https://internationalpain.org/ Connect with me, Ariel Bredder: Instagram: @beyoutifulchick Website: beyoutifulchick.com Email me podcast@beyoutifulchick.com with your questions, comments and feedback! --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/beyoutiful/message Support this podcast: https://anchor.fm/beyoutiful/support

Barby Ingle is a best-selling author, reality personality, and lives with multiple rare and chronic diseases; reflex sympathetic dystrophy(RSD), migralepsy, PALB2-var, endometriosis, and other pain disorders. Barby is a chronic pain educator, patient advocate, and president of the International Pain Foundation. She is also a motivational speaker and best-selling author on pain topics. Barby knows grief from the loss of loved ones in her life as well, both her parents, and her grandparents have passed on.Barby was living her dream. She trained and performed cheerleading, dance, and gymnastics starting at age 4 through college. Straight out of college. Barby started a cheer/dance training company. A year later she was hired by Washington State University as the head spirit program coach. Barby has been battling chronic pain since 1997. First with Endometriosis which resulted in a full hysterectomy and left oophorectomy. Then in 2002, she developed Reflex Sympathetic Dystrophy (RSD), a progressive neuro-autoimmune condition that affects multiple systems in the body and needs to be treated early so that disability does not take over and TMJ. Barby lost her physical abilities was bedbound for years.  Barby used a wheelchair to get out of bed. It took 3 years to get a proper diagnosis and another 4 years to get the proper treatment. As she searches for a cure, she has become her own best advocate and work sharing the information so that others do not have the same life struggles that I have. Even after seeing over 100 healthcare professionals, having major surgeries she didn't need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – Barby did not give up or give in!In this interview, Barby teaches how we can also become our own best advocates.Her blog, reality shows, and media appearances are used as a platform to help her become an e-Patient advocate, and she presents at healthcare conferences, speaking publicly, sharing her story, educating and advocating for patients across the globe.ℹ️  https://www.barbyingle.comSupport the show (https://www.patreon.com/grief2growth)

This is in inaugural episode of the Healing Hub Podcast. A podcast dedicated to those living with CRPS.On this episode Dr. Traci Patterson will start discussing Complex Regional Pain Syndrome (CRPS) aka Reflex Sympathetic Dystrophy (RSD), and her personal journey with CRPS.For those that have been living with CRPS for some time this many be information you already know. For those newly diagnosed, a loved-one, spouse, partner, or caretaker - I hope you will be able to glean information that will help you in your journey towards healing.By bringing awareness to this diagnosis we can make a positive change.------Dr. Traci Patterson is a CRPS survivor, a CRPS expert, President of Holistic Centered Treatment, Creator of CRPS Hub app, and published author. She had dedicated her life to helping other CRPS patients regain function and regain their lives, and to bringing awareness and advocacy to the rare incurable diagnosis that she was able to overcome. She wants every CRPS patient to know there is hope and help.------#HealingHub #HolisticCenteredTreatment #CRPS #RSD #CRPStreatmentoptions #ComplexRegionalPainSyndrome #ReflexSympatheticDystrophy #CRPSawareness #CRPSadvocacy #CRPSfacts #CRPSexpert #CRPSwarrior #CRPSsurvivor #Spoonies #HCTbyTraciPatterson #CRPSpodcast #CRPSremission #CRPStreatment #CRPSRSD #HolisticTreatmentForCRPS #AlternativeTreatmentsForCRPS #TreatingTheWholePerson #EvidenceBasedTreatmentForCRPS #HealingHubPodcast #PodcastForCRPS #CRPSpodcast #Hope #DrTraciPattersonCRPSExpert

Barby Ingle was a born cheerleader, dancer, and full of enthusiasm, but an 8-second car accident changed her path forward. It took three years and many doctors, but she is diagnosed with Reflex Sympathetic Dystrophy (RSD) and continues to go in and out of remission. She shares her journey and helps advocates for others with rare diseases as a Cheerleader of HOPE.    Barby's Website: http://barbyingle.com  Barby's Foundation: https://internationalpain.org  Barby's Instagram: https://www.instagram.com/internationalpainfoundation/    Support the podcast: patreon.com/introducingmepodcast Have a question or want to guest host? Email: introducingmepodcast@gmail.com    Find all the podcast social media and more on the website: https://www.introducingmepodcast.com    Artwork: instagram.com/graphite.vmb Music/Editing: youtube.com/colemanrowlett

In this episode our guest is Barbie Ingle, she is a woman who had many hopes and dreams and she even succeeded in one by going to a really good college and becoming a cheerleader. She not only performed but she also trained others as well, But she was derailed with chronic illness and excruciating pain that forced her out of the dream that she loved so much. She has battled it since 1997 and along the way, she has had endometriosis which also caused a hysterectomy, next she was plagued with a Progressive Neuro autoimmune condition called Reflex Sympathetic Dystrophy (RSD). But then we talk about her diagnosis and how long it took her to get it, and how she overcame it by being her own doctor through Hope and determination. Facebook - www.facebook.com/BarbyIngleOfficial Instagram – www.instagram.com/kenandbarbyshow Twitter - www.twitter.com/BarbyIngle Website – www.barbyingle.com Website - www.internationalpain.org  

In this episode our guest is Barbie Ingle, she is a woman who had many hopes and dreams and she even succeeded in one by going to a really good college and becoming a cheerleader. She not only performed but she also trained others as well, But she was derailed with chronic illness and excruciating pain that forced her out of the dream that she loved so much. She has battled it since 1997 and along the way, she has had endometriosis which also caused a hysterectomy, next she was plagued with a Progressive Neuro autoimmune condition called Reflex Sympathetic Dystrophy (RSD). But then we talk about her diagnosis and how long it took her to get it, and how she overcame it by being her own doctor through Hope and determination. Facebook - www.facebook.com/BarbyIngleOfficial Instagram – www.instagram.com/kenandbarbyshow Twitter - www.twitter.com/BarbyIngle Website – www.barbyingle.com Website - www.internationalpain.org  

Barby Ingle was living her dream and in her words was taking life for granted.  She trained and performed cheerleading, dance, and gymnastics starting at age 4 through college. Straight out of college she started her own cheer/dance training company. A year later she was hired by Washington State University as the head spirit program coach. She's been battling chronic pain since 1997. First with Endometriosis which resulted in a full hysterectomy and left oophorectomy. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), which is a progressive neuro-autoimmune condition that affects multiple systems in the body and needs to be treated early so that disability does not take over and TMJ.  She lost her physical abilities was bed-bound for years. Using a wheelchair to get out of bed. It took 3 years to get a proper diagnosis and another 4 years to get the proper treatment. Barby knows firsthand how hard it is to continue looking for relief, perfect answers, and then coming up against healthcare professionals who blow you off or do not believe what you are saying could actually be what you're experiencing. Barby said, "As I search for a cure,  I became my own best advocate".  Barby works sharing the information so that others do not have the same life struggles that she has. Even after seeing over 100 healthcare professionals, having major surgeries, that she didn't need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – she did not give up or give in!  Barby was tested on her limits and realized they are past the boundaries she placed on herself.  She had to become the Chief of Staff of her Own Medical Team. Barby says, "If I can do it, anyone can."  We all just need support and HOPE! Barby is a best-selling author, reality personality, and lives with multiple rare and chronic diseases; reflex sympathetic dystrophy(RSD), migralepsy, PALB2-var, endometriosis, and other pain disorders. Barby is a chronic pain educator, patient advocate, and president of the International Pain Foundation. She is also a motivational speaker and best-selling author on pain topics. Her blog, reality shows, and media appearances are used as a platform to help her become an e-Patient advocate, and she presents at healthcare conferences, speaking publicly, sharing her story, educating and advocating for patients across the globe. She has received more than 20accommodations over the years for her advocacy work including; 2012 WEGO Health Ms. Congeniality, 2012 NAF You Are Our Hero Award, 2013 International Inspirational Luminary, 2015 IDA Impact Award, and 2016 WEGO Health Lifetime Achievement. In 2017, Barby was named a Health Information Technology Top 100Influencer by HealthScene and Top 20 Health Influencer by Insider Monkey Magazine. In 2018, Barby received the Reality All-Star Reunion Superstar award for her Social Media efforts and Top 50 Chronic Pain Advocates. In Feb. 2021 Barby is listed in the top 75 social media advocates for RareDiseases. In 2020, Barby is listed in the top 50 social media advocates for Rare Diseases and top10 Healthcare Influencers for All Marketers to Follow, 2020 PharmaVOICE100, 2020 HITMC Patient Advocate of the Year.Barby IngleThe Chosen

Barby Ingle was living her dream and in her words was taking life for granted.  She trained and performed cheerleading, dance, and gymnastics starting at age 4 through college. Straight out of college she started her own cheer/dance training company. A year later she was hired by Washington State University as the head spirit program coach. She's been battling chronic pain since 1997. First with Endometriosis which resulted in a full hysterectomy and left oophorectomy. Then in 2002, I developed Reflex Sympathetic Dystrophy (RSD), which is a progressive neuro-autoimmune condition that affects multiple systems in the body and needs to be treated early so that disability does not take over and TMJ.  She lost her physical abilities was bed-bound for years. Using a wheelchair to get out of bed. It took 3 years to get a proper diagnosis and another 4 years to get the proper treatment. Barby knows firsthand how hard it is to continue looking for relief, perfect answers, and then coming up against healthcare professionals who blow you off or do not believe what you are saying could actually be what you’re experiencing. Barby said, "As I search for a cure,  I became my own best advocate".  Barby works sharing the information so that others do not have the same life struggles that she has. Even after seeing over 100 healthcare professionals, having major surgeries, that she didn’t need, complications such as internal bleeding, medication interactions, kidney stones, tumors, severe constipation and so much more – she did not give up or give in!  Barby was tested on her limits and realized they are past the boundaries she placed on herself.  She had to become the Chief of Staff of her Own Medical Team. Barby says, "If I can do it, anyone can."  We all just need support and HOPE! Barby is a best-selling author, reality personality, and lives with multiple rare and chronic diseases; reflex sympathetic dystrophy(RSD), migralepsy, PALB2-var, endometriosis, and other pain disorders. Barby is a chronic pain educator, patient advocate, and president of the International Pain Foundation. She is also a motivational speaker and best-selling author on pain topics. Her blog, reality shows, and media appearances are used as a platform to help her become an e-Patient advocate, and she presents at healthcare conferences, speaking publicly, sharing her story, educating and advocating for patients across the globe. She has received more than 20accommodations over the years for her advocacy work including; 2012 WEGO Health Ms. Congeniality, 2012 NAF You Are Our Hero Award, 2013 International Inspirational Luminary, 2015 IDA Impact Award, and 2016 WEGO Health Lifetime Achievement. In 2017, Barby was named a Health Information Technology Top 100Influencer by HealthScene and Top 20 Health Influencer by Insider Monkey Magazine. In 2018, Barby received the Reality All-Star Reunion Superstar award for her Social Media efforts and Top 50 Chronic Pain Advocates. In Feb. 2021 Barby is listed in the top 75 social media advocates for RareDiseases. In 2020, Barby is listed in the top 50 social media advocates for Rare Diseases and top10 Healthcare Influencers for All Marketers to Follow, 2020 PharmaVOICE100, 2020 HITMC Patient Advocate of the Year.Barby IngleThe Chosen

Julie Mejia was only in her 20's when she was attacked by a cognitively impaired client at her place of employment. She was injured on her right side from her neck to her ankle. Days, weeks, and months went by and her body did not heal as it should. Even worse the pain began to spread along the entirety of the right side of her body. She was finally diagnosed by a worker's comp physician with Reflex Sympathetic Dystrophy (RSD) and was later told she would likely never walk or work again. After her diagnosis doctors prescribed Julie a cocktail of opioids & pain management drugs which left the pain relatively untouched but drugged her into a stupor. Desperate for relief she tried cannabis on a trip to Colorado, and the results were life changing. Now Julie helps other patients like herself by creating hemp based products & offering holistic health consulting. Full show notes can be found out www.cannabishealsme.com/116 --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app

Reflex Sympathetic Dystrophy - RSD - Re-examinedHector Rivera is a coach, filmmaker, and podcaster who suffers from Reflex Sympathetic Dystrophy. His website and podcast; Happy and Healthy Over 40 are committed to people over 40 who want to maintain a healthy mind in a powerful body. He's been involved in the entertainment business for over 20 years. He started his journey as an executive coach and men's work facilitator, due to a heavy piece of equipment that fell on top of him while working. The healing process went poorly. Hector was ultimately diagnosed with https://rsds.org/what-is-the-difference-between-peripheral-neuropathy-and-complex-regional-pain-syndrome/ (Reflex Sympathetic Dystrophy (RSD)), a rare disorder of the sympathetic nervous system that is characterized by chronic, severe pain. Hector was determined to get better. He followed the instructions of his doctors to the letter. He underwent multiple surgeries and saw many specialists such as orthopedic surgeons, podiatrists, and neurologists. Nothing worked. In fact, Hector was told at the outset, that medical science had no cure for this type of neuropathy. All the doctors could do was to try and reduce his level of pain. Listen up as we discuss options for this remarkably debilitating condition: https://en.wikipedia.org/wiki/Complex_regional_pain_syndrome (Reflex Sympathetic Dystrophy, Complex Regional Pain Syndrome.) Photo by https://unsplash.com/photos/Jv0TBnjzYNM?utm_source=unsplash&utm_medium=referral&utm_content=creditCopyText (Kev Seto) on https://unsplash.com/search/photos/broken?utm_source=unsplash&utm_medium=referral&utm_content=creditCopyText (Unsplash) ------------ Books and Additional ReferencesExercise: http://happyandhealthyover40.com/how-brazilian-jiu-jitsu-helped-black-belt-mike-radell-beat-a-heart-attack/ (How Brazilian Jiu-Jitsu Helped Black Belt Mike Radell Beat a Heart Attack) Mindset: http://happyandhealthyover40.com/domains-of-well-being-and-happiness/ (Domains of Well Being and Happiness) Healthy Nutrition: http://happyandhealthyover40.com/inflammation-pain-management-and-functional-nutrition/ (Inflammation, Pain Management, and Functional Nutrition) http://happyandhealthyover40.com/ (The Happy and Healthy Over 40 Website) https://itunes.apple.com/us/podcast/happy-and-healthy-over-40/id1251059519?mt=2 (iTunes Happy and Healthy Podcast) Previous Experts Report: Pain and RecoveryCBJ Veterans Page http://corebrainjournal.com/vets (http://corebrainjournal.com/vets ) ------------ Forward This Audio Message Link To a Friendhttp://corebrainjournal.com/238 (http://corebrainjournal.com/238) -----------ThanksThanks, Hector, for joining us here at CBJ to review your interesting overview of recovery from RSD. Recovery takes both a plan and vigorous determination. Have some feedback you'd like to share? Leave a note in the comment section below. If you enjoyed this episode, please share it using the social media buttons you see at the bottom of the post. Also, https://itunes.apple.com/us/podcast/corebrain-journal/id1102718140?mt=2 (please leave an honest review for the CoreBrain Journal Podcast on iTunes). Ratings and reviews are extremely helpful and much appreciated. Reviews do matter in the rankings of the show, and I read each one of them. Be counted. If this post with these several references is helpful, please take a moment to pass it on. QuestionsIn closing, if you have any questions, drop a comment on any posting here at CBJ, and I'll get back to you. This discerning show of world-class experts is here for you, your families, and your clients - to tighten our collective dialogue for more precise answers. SubscribeAnd finally, don't forget to subscribe to the show on http://corebrainjournal.com/itunes (iTunes )to get automatic updates, or if you're on an Android Device subscribe for timely updates...

How can two twice-divorced people – who failed as a couple three decades ago – reunite after 32 years [1 billion seconds] and create a committed, lasting marriage? It happened to Poppy and Geoff Spencer, authors of 1 Billion Seconds, a fictional memoir. Poppy and Geoff are now relationship experts who will share … The Secret of the 98% Success Rate, Even for a 2nd or 3rd Marriage … Two Necessary Words for Relationships to Flourish … 5 Ways the Emotional Clock® Will Guarantee a Communication Connection. Poppy and Geoff have also created and patented a relationship tool.  www.RelationalExperts.com One in three people (116 million) in the U.S. are affected with a condition that causes pain, probably including someone you know. But until you feel the pain it is difficult to understand all of the challenges. Meet Barby Ingle, a chronic pain educator, patient advocate, and president of the International Pain Foundation.  Barby was living her dream, performing cheerleading, dance and gymnastics from age 4 through college. She then started her own cheer/dance training company and was hired by Washington State University as head spirit program coach. But that all changed. She has battled chronic pain from Reflex Sympathetic Dystrophy (RSD) and endometriosis since 1997. After consulting 100+ healthcare professionals, major surgeries she didn’t need, and more – Barby had to become the Chief of Staff of her own medical team. www.internationalpain.org

Amplified pain syndrome (APS) is a condition in which the child’s perception of pain is increased due to the abnormal firing of nerves which sense pain and control vascular tone. Amplified Pain Syndrome (APS) can include: Juvenile Primary Fibromyalgia Syndrome, Complex Regional Pain Syndrome (CRPS) (formerly Reflex Sympathetic Dystrophy (RSD)), and other types of nerve-related pain. Treatment is as unique as the condition itself: intensive exercise, physical and occupational therapy; relaxation techniques; stress-management training; and music and therapeutic art. Cara Hoffart, DO is here to explain how the RAPS program (Rehabilitation for Amplified Pain Syndrome) at Children’s Mercy is one of only a few treatment programs in the country and has attracted patients from as far away as Lima, Peru.

Today’s broadcast is covering Reflex Sympathetic Dystrophy (RSD) or more specifically Complex Regional Pain Syndrome type 1 (CRPS-1). We will also discuss nerve related injuries classified as Complex Regional Pain Syndrome type 2 (CRPS-2) formerly known as causalgia.  Many patients with chronic unrelenting pain following trivial or significant trauma classified under these […]

Complex Regional Pain Syndrome - CRPS (formerly known as Reflex Sympathetic Dystrophy - RSD) is a form of severe chronic pain usually affecting the arm or leg, typically developing after an injury, surgery, stroke or heart attack. Our guest on this episode of the Pain Waves podcast is Dr. Brenda Lau, a Vancouver, BC-based anesthesiologist, focusing on post-surgical pain syndromes, neuropathic and axial spine pain.  Dr Lau briefly outline the symptoms, possible causes, and treatment options for CRPS and talks to listeners about their questions.

Hi friends, On this episode of Divine Intervention, we are joined by Ema McKinley. Ema grew up in a Christian home in Iowa, then moved to Minnesota. She had a heart to work with disabled people, and did so for many years until a tragic workplace accident in 1993 left her partially paralyzed and confined to a wheelchair. Ema suffered severe pain from a neurological disorder called Reflex Sympathetic Dystrophy (RSD) which left her neck and spine twisted. She suffered from this condition for over 18 years, all the while many doctors at the Mayo Clinic trying all types of...