Podcasts about progressive ms

Welcome to Living Well with MS - your go-to podcast for making informed choices to support your health and well-being with MS! In today's episode, we're thrilled to welcome a very special guest: comedian and MS advocate Rabiah Coon! Rabiah joins host Geoff to share her journey with MS, how she discovered Overcoming MS through a video shoot, and why she believes that laughter should be the 8th pillar of the program. Tune in as Rabiah blends humour with honesty, offering unique insights into life with MS while highlighting the power of positivity and community. You won't want to miss this conversation! Topics and Timestamps 01:29 Meet Rabiah and hear about her journey with MS. 02:31 Finding hope: how Rabiah discovered Overcoming MS through a video shoot. 05:13 Making lifestyle changes: Rabiah shares how she has approached change. 07:15 Transcendental meditation and mindfulness tips. 10:05 Retreat reflections: what it was like to attend an Overcoming MS retreat. 13:37 How Rabiah became a stand-up comedian. 17:17 Laughter as the 8th Pillar. 21:00 Rabiah's passion for volunteering and the importance of giving back. 26:44 Rabiah's top tips for the newly diagnosed.   Want to learn more about living a full and happy life with multiple sclerosis?  Sign up to our newsletter to hear our latest tips. More info and links: Watch the Hope Reborn music video Volunteer with Overcoming MS Learn more about Overcoming MS retreats Learn more about Transcendental Meditation Listen to mindfulness podcast episodes with Phil Startin S5E14 Webinar highlights: Mindfulness and Meditation with Phil Startin S5E19 Webinar highlights: Progressive MS with Phil Startin and Helen Rees Leahy S6E21 Webinar Highlights: Reducing Stress through meditation and mindfulness with Dr Phil Startin S7E04 Webinar highlights – Stress management and mental health Join MS-UK's 8-week mindfulness based stress reduction Check out Rabiah's Website: https://www.rabiahsaid.com Connect with Rabiah on social media https://linktr.ee/rabiahcomedy New to Overcoming MS? Visit our introductory page   Connect with others following Overcoming MS on the Live Well Hub  Visit the Overcoming MS website     Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS here. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org.   If you like Living Well with MS, please leave a 5-star review. Support us: If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here.

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39In this bonus episode, we share some people with MS journeys of coming to terms with a progressive MS diagnosis. Adam, who lives with secondary progressive MS, is joined by his wife and carer, Sharon. Together, they reflect on how they navigate the complexities of their shared experience, from the emotional challenges to the practical ways they've found balance and connection.  Yvonne, living with primary progressive MS, opens up about how she dealt with her diagnoses, the initial shock and anger, and how she gradually discovered ways to regain a sense of control.Episode notesmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions  - MS and your emotions  info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group instagram.com/meyouandmultiplesclerosis - Adam and Sharon's instagram account 

Send us a message about the podcast. For questions about MS please contact our helpline 0800 032 38 39Receiving the news that your MS is progressing can be a life-altering moment. In this podcast episode, we explore the emotional impact of this change and the journey towards acceptance and adjustment.Helena and Nick are joined by Dr Angeliki Bogosian, a health psychologist specialising in MS, who shares insights on coping strategies, the importance of psychological support, and how mindfulness can help with emotional adjustment.We also hear real-life stories from Adam and Sharon, as well as Yvonne, who open up about their experiences of living with progressive MS. From the initial shock and frustration to finding ways to regain control and maintain a fulfilling life, their stories are brimming with honesty and useful tips.Whether you're newly diagnosed, supporting a loved one, or navigating changes in your MS, this episode is here to remind you that you're not aloneListen now for expert information, real-life experiences, and practical ways to move forward with confidence.Episode notesmstrust.org.uk/a-z/secondary-progressive-ms - secondary progressive MS info from the MS Trustmstrust.org.uk/a-z/primary-progressive-ms - primary progressive MS info from the MS Trustmstrust.org.uk/information-support/wellbeing-ms/ms-and-your-emotions  - MS and your emotions  info from the MS Trustwww.facebook.com/groups/advancedmscareandsupport - MS Trust facebook group for people with advanced MS and their carers.www.facebook.com/groups/multiplesclerosistrust - MS Trust facebook group instagram.com/meyouandmultiplesclerosis - Adam and Sharon's instagram account 

Welcome to Living Well with MS, the podcast that empowers you to take control of your health and wellbeing. Today we're sharing the highlights from our webinar with the incredible Dr Phil Startin! Phil is an Overcoming MS facilitator who lives with progressive MS. He's an expert in meditation and mindfulness and teaches Mindfulness Based Stress Reduction courses for people with MS. Phil gave us some brilliant information and really useful tips on how to meditate – it's a fascinating listen whether you are a regular meditator or are just getting started with your practice. Let us know what you think! Watch this episode on YouTube here. Keep reading for the key episode takeaways.   Topics and Timestamps: 01:22 Phil's background in meditation and mindfulness 03:33 The fight or flight response 04:49 How stress dysregulates our immune system 08:47 Meditation is clinically proven to help people cope with stress 10:41 Mini meditations to try throughout the day 13:49 Guided meditation 20:06 A definition of mindfulness 23:50 The benefits of awareness, including increased resilience 28:02 Mental health tips for your daily routine   Want to learn more about living a full and happy life with multiple sclerosis?  Sign up to our newsletter to hear our latest tips. More info and links: Phil Startin has been on two other Living Well with MS episodes: S5E19 Webinar highlights: Progressive MS with Phil Startin and Helen Rees Leahy S5E14 Webinar highlights: Mindfulness and Meditation with Phil Startin Jon Kabat-Zinn's Mindfulness Based Stress Reduction Dr Walter Cannon's fight or flight response Meditation expert Ian Gawler Listen to meditation expert Craig Hassed S5E13 Meditation tips with Professor Craig Hassed S1E7 Building a daily meditation practice with Dr Craig Hassed Shannon Harvey's film My Year of Living Mindfully or listen to her podcast episode Hardwiring Happiness by Rick Hanson New to Overcoming MS? Visit our introductory page Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us:  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.

As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS.  Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional health and well-being in a good place when you're living with MS. We're also sharing the details about BEAT-MS, a clinical trial that will compare autologous hematopoietic stem cell transplantation (AHSCT) with high-efficacy disease-modifying therapies when it comes to reducing or eliminating MS relapse activity. And we'll let you know how to find out if you could be a potential participant in this important clinical trial.  We'll tell you about the FDA approval granted to Abata Therapeutics to conduct a Phase 1 clinical trial of ABA-101, their experimental therapy for progressive MS. We're sharing news about the Federal Trade Commission's newly released report on Pharmacy Benefit Managers. (And we'll tell you why this matters to every person in the United States who takes a prescription medication) And we'll tell you about Take Charge, a new virtual program from Can Do MS that you can participate in at no cost! We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The Unraveling  :22 BEAT-MS clinical trial compares AHSCT with high-efficacy DMTs  1:58 FDA clears ABA-101 for Phase 1 clinical trial  5:17 FTC is turning its focus to Pharmacy Benefit Managers  6:55 Can Do MS offers new Take Charge virtual program  11:47 Dr. Nara Michaelson discusses her award-winning essay, The Unraveling  13:23 Share this episode  29:15 Next week: Dr. Riley Bove discusses how digital technology has become a game-changer in diagnosing, treating, and managing MS  29:35 Have you downloaded the free RealTalk MS app?  29:55 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/359 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The Unraveling https://neurology.org/doi/10.1212/WNL.0000000000209492 BEAT-MS Clinical Trial https://beat-ms.org RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff https://realtalkms.com/205 FTC Report -- Pharmacy Benefit Managers: The Powerful Middlemen Inflating Drug Costs and Squeezing Main Street Pharmacies https://ftc.gov/system/files/ftc_gov/pdf/pharmacy-benefit-managers-staff-report.pdf REGISTER for Take Charge https://cando-ms.org/event/take-charge-young-and-newly-diagnosed Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 359 Guests: Dr. Nara Michaelson Privacy Policy  

When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life. Joining me to talk about the benefits of maintaining a healthy lifestyle and share some tips and strategies for living your best life when you're living with MS is Dr. Lisa Doggett, a family and lifestyle medicine physician at the MS and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin. Dr. Doggett was diagnosed with MS in 2009, and she's the author of the memoir, ‘Up the Down Escalator: Medicine, Motherhood, and Multiple Sclerosis'. We'll also tell you about a research team that's looking to improve the way that stem cells are transplanted -- and why that's a good thing for people with MS. We'll share the details behind the European Union's approval of a new Ocrevus formulation that makes the DMT much more patient-friendly. You'll hear about the blood test for measuring a biomarker that can predict future MS disease worsening that has just gained approval in the European Union. And we'll tell you where to find the video replay of Mobility Challenges in Progressive MS, the most recent webcast hosted by the International Progressive MS Alliance. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Lifestyle changes that will improve your quality of life  :22 Researchers receive a grant to develop a better way to transplant stem cells  1:30 Subcutaneous Ocrevus has been approved in the European Union  3:50 Blood test to measure a biomarker that can predict future MS disease worsening receives approval in the European Union 5:35 Catch the video replay of the latest Progressive MS Alliance webcast  7:13 Dr. Lisa Doggett offers strategies for making lifestyle choices that will make a difference in your quality of life  8:20 Share this episode  26:50 Next Week: Dr. Jaime Imitola introduces us to VISIBL-MS  27:10 Have you downloaded the free RealTalk MS app?  27:39 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/357 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com VIDEO REPLAY of the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://youtube.com/watch?v=YGA-2k9JCLg&t=14s Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 357 Guests: Dr. Lisa Doggett Privacy Policy  

Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home. My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry. We'll also tell you about the latest version of AlphaFold, a highly advanced artificial intelligence model designed to help scientists design new drugs and target disease more effectively. Evidence shows that the Epstein-Barr Virus (EBV) triggers MS. We're reviewing the results of a study that may help scientists better understand the relationship between EBV and MS.  The International Progressive MS Alliance upcoming webcast, Mobility Challenges in Progressive MS, takes place this Thursday, June 20th. Find out where you can register and why you won't want to miss this! And we're just 6 weeks away from Crush MS, a fundraising event in Napa Valley, California that raises money to support MS research. I'll be there, and I hope you can join me! We're sharing all the details. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: The NARCOMS Patient Registry  :22 The most advanced AI on earth is focused on discovering new medications  1:40 Researchers learn that Epstein-Barr Virus re-activates and drives inflammation during an MS relapse  4:00 The Progressive MS Alliance hosts a live global webcast this Thursday, June 20th!  7:17 Crush MS is just 6 weeks away  8:39 Dr. Robert Fox takes us on a deep dive into the NARCOMS patient registry  10:08 Share this episode  26:12 Next Week: A special conversation with National MS Society President and CEO, Cyndi Zagieboylo  26:33 Have you downloaded the free RealTalk MS app?  27:17 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/355 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com The NARCOMS Patient Registry https://www.narcoms.org STUDY: Multiple Sclerosis Patient-Derived Spontaneous B Cells Have Distinct EBV and Host Gene Expression Profiles In Active Disease https://nature.com/articles/s41564-024-01699-6 REGISTER for the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://msif.org/webcast-mobility Get Tickets for Crush MS https://www.crushms.org Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 355 Guests: Dr. Robert Fox Privacy Policy  

March 28th is Progressive MS Day, a day that offers an opportunity for people affected by MS, patient advocates, healthcare providers, governments, and industry to share stories online and show their support for people living with progressive forms of MS.  My wife, Jeanne, lived with progressive MS for 23 years, so this day holds a special significance for me. Joining me to talk about what Progressive MS Day is all about is my friend, Kevin Reid. Kevin was diagnosed with MS in 2002 and, for the past 10 years, he's been on a mission to crush MS. As MS Awareness Month draws to a close, we're sharing a series of short videos featuring conversations I had with MS experts at the ECTRIMS congress. What makes this video series unique is that iConquer MS invited people living with MS to watch these videos. Then, I interviewed them to get their perspective on the topics the experts were discussing. It's the first time you'll not only hear from the experts, but you'll also get the thoughts and reactions of people who are living with MS. We'll tell you about the neurostimulator that was just designated as a Breakthrough Device for promoting myelin repair. We'll share the details of a newly announced Phase 2 clinical trial for a T-cell therapy for MS. You'll hear about the study that identified a biomarker that reliably predicted the likelihood of future disease activity in people with MS. And we'll tell you where you can catch the video replay of the 2024 ACTRIMS Forum Patient-Centered Webinars. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: March 28th is Progressive MS Day  :22 Have you seen the series of short videos featuring my conversations with MS experts at ECTRIMS along with the thoughts and reactions from people living with MS?  1:00 Catch the video replay of the 2024 ACTRIMS Forum Patient-Centered Webinars  1:57 FDA designates neurostimulator as a breakthrough device for promoting myelin repair in people living with relapsing-remitting MS  2:46 Biotech company PolTREG announces Phase 2 clinical trials to test their Tregs treatment for MS  5:28 Study shows neurofilament light chain levels can reliably predict future disease activity  7:10 Kevin Reid discusses the importance of Progressive MS Day and gives us a preview of CRUSH MS  10:35 Share this episode  28:09 Have you downloaded the free RealTalk MS app?  28:29 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/343 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS https://youtu.be/eWoZLF4bZmo VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study https://www.youtube.com/watch?v=UtGtCnNkYOY VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions https://www.youtube.com/watch?v=J83jlqMbsZo VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience https://www.youtube.com/watch?v=_fRLW69Xc1A VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey https://www.youtube.com/watch?v=oZDdp8JumFg VIDEO: ACTRIMS Forum 2024 Webcast Replays https://actrims.memberclicks.net/forum-patient-centered-webinars STUDY: Prognostic Value of Serum Neurofilament Light Chain for Disease Activity and Worsening in Patients with Relapsing Remitting Multiple Sclerosis: Results from the Phase 3 ASCLEPIOS I and II Trials https://pubmed.ncbi.nlm.nih.gov/35432382 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 343 Guest: Kevin Reid Privacy Policy

Welcome to Living Well with MS, where we are pleased to welcome Dr Stefano Pluchino as our guest! Dr Pluchino is a Professor of Regenerative Neuroimmunology at Cambridge University and has been researching stem cell therapy for progressive MS. In this episode, Dr Pluchino speaks to Geoff about what advanced cell therapy is, the success of his phase one trial and what the future of DMTs looks like indicating what people with MS may experience. Watch this episode on YouTube here. Keep reading for the key episode takeaways. Topics and Timestamps: 01:31 Dr Pluchino's background and research into stem cell therapy for progressive MS. 02:52 The difference between types of MS. 05:09 Navigating DMT options for progressive MS. 08:40 Dr Pluchino's advanced cell therapy research trial: The success of phase one and plans for phase two. 21:05 How advanced cell therapy compares to HSCT or bone marrow transplants. 26:02 What it means for the future of DMTs. 33:39 How you can be part of groundbreaking MS research and trials. Selected Key Takeaways: There are nuances in types of MS beyond ‘relapsing' or ‘progressive'. 04:23 "It is becoming more complex between active and non-active types of primary and secondary progressive MS where activity is attributed to other episodes. Clinical episodes of disease or radiologically evident episodes of disease, which can be identified by the use of contrast agents at the time of the MRI. So, they are very complex very heterogenous types of disease, with or without activity, which inevitably undergo accumulation of neurological deficits.” The next generation of DMTs will target progression rather than relapses. 06:39 “What's becoming very interesting is that [over the last] few years, there is a general worldwide consensus that progressive MS is becoming and has become a clinical unmet need. The old MS world is concentrating on financing, funding and efforts towards stopping MS through the development of a new generation of DMDs which will eventually target progression rather than relapses.” The future of advanced cell therapy research will look at remyelination, reduction of inflammation and neuroprotection. 19:10 "There is space for assessing whether a proportion of the injected cells [can] differentiate in vivo into new myelin-forming cells. There is a space to assess whether some of the cells [can] increase the survival of neurons in the brain. There is space to assess whether the transplanted cells [can] reduce the type of inflammation which characterises progressive MS, which is what we call a smouldering inflammation. These highly diffuse homogeneous, low-level activations of microglia (immune cells of the central nervous system) and astrocytes (star-shaped cells that hold nerve cells in place) might be reduced by means of advanced cell therapy and the reason why I am specifically alluding to these three major biological mechanisms of disease, remyelination, reduction of inflammation and neuroprotection is because we have managed to identify each of these mechanisms in clinically relevant animal disease models in the last 25 years. So, there is [an] expectation that a clinical trial designed in a way that will allow us to establish the efficacy of the treatment will reveal what we have established already in one of these models.” Want to learn more about living a full and happy life with multiple sclerosis? Sign up to our newsletter to hear our latest tips. More info and links: Video on Early-stage stem cell therapy trial shows promise for treating progressive MS Dr Pluchino's website Dr Pluchino's bio If you have progressive MS you may be eligible for the Octopus trial Learn about HSCT from Professor Richard Burt in Season 5 Episode 25 Read about the Shinya Yamanaka  and John Gurdon'a Nobel Winning iPSC technology Find out more about the latest research in progressive MS from the International Progressive MS Alliance New to Overcoming MS? Visit our introductory page  Connect with others following Overcoming MS on the Live Well Hub Visit the Overcoming MS website Follow us on social media: Facebook Instagram YouTube Pinterest Don't miss out:  Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episodes here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. Support us:  If you enjoy this podcast and want to support the ongoing work of Overcoming MS, we would really appreciate it if you could leave a donation here. Every donation, however small, helps us to share the podcast with more people on how to live well with MS.

We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study. Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them. We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference.  It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS. And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar  :22 This Week: The patient perspective on participating in an MS research study  1:38 Live! From the Natinal MS Society's Public Policy Conference  2:28 People with MS weign in on the impact of several ECTRIMS presentations  10:17 Catch the video replay of the International Progressive MS Alliance webcast  11:35 Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study   12:11 Share this episode  27:18 Have you downloaded the free RealTalk MS app?  27:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/342 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com REGISTER: ACTRIMS Post-Forum Patient-Centered Webinar https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS https://youtu.be/eWoZLF4bZmo VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study https://www.youtube.com/watch?v=UtGtCnNkYOY VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions https://www.youtube.com/watch?v=J83jlqMbsZo VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience https://www.youtube.com/watch?v=_fRLW69Xc1A VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey https://www.youtube.com/watch?v=oZDdp8JumFg VIDEO: International Progressive MS Alliance Webcast Replay: Emerging Treatments for Progressive MS https://www.youtube.com/watch?v=W4hxtl38MBQ The TEAAMS Study https://projectteaams.ahs.uic.edu Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 342 Guests: Chiquita Shepard-Knight and Earl Sneed Privacy Policy

Host: Charles Turck, PharmD, BCPS, BCCCP Guest: Stefano Pluchino, MD, PhD An international collaborative phase 1 study has shown that the injection of a specific form of stem cells into the brains of patients with progressive multiple sclerosis is safe and effective in preventing further brain damage. However, a different type of clinical trial is needed to address whether an advanced cell therapy made of brain-specific stem cells is indeed leading to amelioration of disease features. Take a deeper look into the findings from this study as Dr. Charles Turck speaks with the author of the study, Dr. Stefano Pluchino, Professor of Regenerative Neuroimmunology and Honorary Consultant in Neurology in the Department of Clinical Neurosciences at Cambridge University.

Progressive MS Research Update - Episode 167 - Transcript - This episode of the Can Do MS Podcast welcomes guest Dr. Bruce Bebo who is the Executive Vice President of Research at the National MS Society. Bruce and host, Stephanie talk about what's on the forefront of Progressive MS Research. Learn about the projects, trials, and collaborations that are currently happening around the globe. The sheer amount of research that's being done is cause for optimism.

According to the CDC, 36 million falls are reported each year, resulting in 3 million adults being transported to the Emergency Room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and 30% fall multiple times. As falls at home are common, occupational therapist Tracy Carrasco joins me to share tips and strategies for making your home safe and accessible. We're also sharing a research roundup featuring results from a few different clinical trials that are focused on the impact of diet on MS. And that includes the Swank diet, the Wahls diet, the Mediterranean diet, and a simple low-fat diet. We'll tell you about a novel study that explored the economic impact of an Epstein-Barr Virus vaccine on the cost of MS care in Australia. If you're living with MS, we have your invitation to participate in the Patient Reported Outcomes for Multiple Sclerosis (PROMS) initiative survey. And we'll tell you how you can catch the video replay of the International Progressive MS Alliance global webcast on research and treatment for cognitive challenges in progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Some of the things I'm thankful for  :22 Research Roundup: The impact of diet on MS  2:40 Survey results show how an EBV vaccine could impact the cost of MS care in Australia  9:03 If you're living with MS, here's your invitation to participate in the PROMS initiative online survey  12:22 How to catch the video replay of the International Progressive MS Alliance global webcast about research and treatment for cognitive challenges in progressive MS 13:38 Tracy Carrasco shares tips for making your home safe and accessible 15:25 Share this episode  27:26 Have you downloaded the free RealTalk MS app?  27:46 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/325 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: A Low-Fat Diet Improves Fatigue in Multiple Sclerosis: Results from a Randomized Controlled Trial https://journals.sagepub.com/doi/10.1177/13524585231208330 STUDY: Diet-Induced Changes in Functional Disability are Mediated by Fatigue in Relapsing-Remitting Multiple Sclerosis: A Secondary Analysis of the WAVES Randomized Parallel-Arm Trial https://journals.sagepub.com/doi/full/10.1177/20552173231209147 STUDY: Exploring the Cost-Effectiveness of EBV Vaccination to Prevent Multiple Sclerosisin an Australian Setting https://jnnp.bmj.com/content/early/2023/11/02/jnnp-2023-332161 PARTICIPATE: The PROMS Initiative Survey https://proms-initiative.org/survey-proms VIDEO: Cognitive Challenges in Progressive MS https://youtube.com/watch?v=bN26GrRZMts Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 325 Guest: Tracy Carrasco Privacy Policy

More than 70,000 U.S. veterans are living with MS. That's why the only federal funding specifically earmarked for MS research comes from the U.S. Department of Defense. It's why the U.S. Department of Veterans Affairs has established the Multiple Sclerosis Centers of Excellence. And it's why, in 2019, the National MS Society established a strategic partnership with the U.S. Department of Veterans Affairs. This week, we're saluting the men and women of our armed services, and we're highlighting some of the resources available to U.S. veterans who are living with MS. Izzy Abbass, the Co-Chair of the Paralyzed Veterans of America MS Committee, joins me to discuss all the ways the PVA assists U.S. veterans in obtaining their VA benefits. We're also sharing the results of a study that compared the efficacy of being treated with autologous hematopoietic stem cell transplantation (aHSCT) and being treated with a high-efficacy disease-modifying therapy.  We'll tell you about the results of a study that may begin to explain why African Americans who are living with MS often experience a more severe disease course. We'll give you the details about where and how to register for this Thursday's International Progressive MS Alliance's global webcast that's focused on treatments and new research for cognitive challenges in progressive MS. And actress Jamie-Lynn Sigler is also joining me this week to talk about her MS journey and to share some news about a new project that she has developed for people living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Resources for U.S. Veterans living with MS  :22 My guest, Izzy Abbass, explains how the PVA assists U.S. Veterans with MS in receiving their VA benefits  2:41 A study compared the efficacy of autologous hematopoietic stem cell transplantation (aHSCT) with a high-efficacy disease-modifying therapy  11:21 Results of a study may begin to explain why African Americans who are living with MS often experience a higher level of disease activity and faster disability progression  14:36 This Thursday, the International Progressive MS Alliance is hosting a global webcast exploring treatments and research focused on cognitive challenges in progressive MS  17:31 Jamie-Lynn Sigler discusses her new guide for people living with MS  19:13 Share this episode  30:25 Have you downloaded the free RealTalk MS app?  30:45 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/323 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society: Resources for U.S. Veterans with Multiple Sclerosis https://nationalmssociety.org/Resources-Support/Find-Support/Veterans-with-Multiple-Sclerosis U.S. Department of Veteran Affairs: Multiple Sclerosis Centers of Excellence https://www.va.gov/ms Paralyzed Veterans of America: Multiple Sclerosis Resources https://pva.org/research-resources/multiple-sclerosis STUDY: Autologous Hematopoietic Stem Cell Transplantation is Superior to Alemtuzumab in Patients with Highly Active Relapsing Multiple Sclerosis and Severe Disability https://sciencedirect.com/science/article/pii/S2211034823005977 STUDY: African American Patients with Multiple Sclerosis (MS) Have Higher Proportions of CD19+ and CD20+ B-Cell Lineage Cells in Their Cerebrospinal Fluid than White MS Patients https://sciencedirect.com/science/article/abs/pii/S2211034823005485 REGISTER for Thursday's Global Webcast on Cognitive Challenges in Progressive MS https://msif.org/cognitive-webcast Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 323 Guests: Izzy Abbass and Jamie-Lynn Sigler Privacy Policy

Artist, Rebel, and Progressive MS Warrior - Episode 146 - Transcript - Meet street artist, rebel, and progressive MS warrior Lydia Emily. She shares her life with us including the story of her MS diagnosis, adaptations she made, and some stories and experiences from creating art. Lydia Emily's approach to her MS is real and refreshing. She sees strength in seeking out adaptations, asking for help, and making the adjustments needed to live a happy and easier life with MS. Keep your eye out for Lydia Emily's upcoming book The Art of Hope. You can learn more about Lydia Emily and her art via her website - https://lydiaemily.com/ and her Instagram @lydiaemily.  

Today, I have a very special guest with me. Her name is Susan! I have had the opportunity to work with Susan in my 1:1 Mentor Membership program, and now she has continued on with The MSing Link program. Susan has seen so much improvement in her goals of standing for longer periods of time, improving her walking, and more! She shares her journey to diagnosis, about having spinal cord lesions, and her overall experience with the programs. Tune in to be inspired! Watch a Behind the Scenes video on The MSing Link HERE OR check out the website, linked below. Apply for the 1:1 Mentor Membership Program HERE Additional Resources: https://www.doctorgretchenhawley.com/insider Reach out to Me: hello@doctorgretchenhawley.com Website: www.MSingLink.com Social: ★ Facebook: https://www.facebook.com/groups/mswellness ★ Instagram: https://www.instagram.com/doctor.gretchen ★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1 → Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse → Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram → The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

In this episode, we are sharing the highlights from our webinar ‘Living Well with Progressive MS' with Dr Phil Startin and Professor Helen Reese Leahy. Both Phil and Helen have progressive MS and follow the Overcoming MS Program. They discuss what progressive MS is and how the Overcoming MS Program can benefit people with progressive MS. This webinar was recorded in July 2021 as part of our Finding Hope with Overcoming MS webinar series. You can watch the whole webinar here or the podcast highlights on YouTube here. Keep reading for the key episode takeaways and bio information. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. And if you're new to Overcoming MS, visit our introductory page to find out more about how we support people with MS. Selected Key Takeaways Overcoming MS is for every type of MS Helen Rees Leahy: “Overcoming MS is really determined to be an inclusive space in which everybody's experience of MS is acknowledged and honoured. So, though we [people with progressive MS] may be small in number, our voice is growing, and we're very much being heard within the Overcoming MS conversation.” Exercise is still important with progressive MS but be gentle and kind with yourself Phil Startin: “Be kind to yourself, try not to judge [and] compare what you can do now to what you used to be able to do. I've certainly spoken to people who refuse to exercise saying exercising reminds them of what they now can't do and that's really upsetting. We still need goals but hold them more lightly [and] more gently.” Think of the Overcoming MS Program as a toolkit rather than a set of rules Helen Reese Leahy: “I started following the Overcoming MS Program in the 2000s. It's become a framework for my daily life. I've never been eligible for any disease-modifying therapy, so in a sense, Overcoming MS is my health care programme. I feel very empowered by following the Program. I am taking responsibility and managing my own health to the best of my ability. I always regard Overcoming MS not as a book of rules, but as a kind of toolkit and to be honest, I really enjoy following the Program.” More info and helpful links: Watch the original webinar here Try yoga with Overcoming MS facilitator Veronique Gauthier-Simmons here Read more about Progressive MS Join the Progressive MS Circle New to Overcoming MS? Visit our introductory page Visit the Overcoming MS website Follow us on social media: Facebook Instagram Twitter YouTube Pinterest Don't miss out: Subscribe to this podcast and never miss an episode. Listen to our archive of Living Well with MS episode here. If you like Living Well with MS, please leave a 5-star review. Feel free to share your comments and suggestions for future guests and episode topics by emailing podcast@overcomingms.org. Make sure you sign up to our newsletter to hear our latest tips and news about living a full and happy life with MS. If you enjoy this podcast and want to support the ongoing work of Overcoming MS, you can leave a donation here. Dr. Phil Startin's bio: Career and Overcoming MS: After a DPhil in Quantum Physics, Phil left his academic roots for a more peripatetic career in management consulting, initially with Price Waterhouse. After years of travelling around the world for both work and pleasure, including a two-year assignment in Geneva, he was diagnosed with Primary Progressive MS (PPMS) in 2007.   Phil discovered Overcoming MS in 2011, and coupled with his earlier discovery of mindfulness meditation, it awakened a whole new area in his life. With training and supervision from Bangor University, he now teaches an eight-week mindfulness-based stress reduction (MBSR) course to people with MS and to the general community on a pro-bono basis. He is also a trustee for MS-UK.   Personal life: Phil lives in Arrochar, Scotland with his American wife, Cristina, whom he met over a weekend at the Jazz Fest in New Orleans. Phil's completely convinced that the Overcoming MS Program and mindfulness have positively affected the trajectory of his condition Professor Helen Rees Leahy's bio: MS and Overcoming MS: Helen was diagnosed with Primary Progressive MS in 1997 when she was 37 years old. Being ineligible for any Disease Modifying Treatment (DMT) within the UK National Health Service, she began to explore holistic approaches to managing her condition. She discovered Overcoming MS in 2008 and has followed the Program ever since. She was previously a Trustee for Overcoming MS. Personal life and career: Helen lives in Conwy, a small, medieval town in North Wales. In 2017, she took medical retirement from the University of Manchester where she was a Professor in the Department of Art History and Cultural Practice. As an Emerita Professor, Helen continues to research and teach doctoral students. She also spends time hand-weaving and learning Welsh, the language of her ancestors.

The Wahls Protocol - How I Beat Progressive MS Using Paleo Principles and Functional Medicine #SANE with Dr. Terry Wahls & Jonathan Bailor

Dr. Matilde Inglese discusses her article, "Hematopoietic Stem Cell Transplantation in People With Active Secondary Progressive Multiple Sclerosis". Show References: https://n.neurology.org/content/early/2022/12/21/WNL.0000000000206750

Dr. Shuvro Roy talks with Dr. Matilde Inglese about comparing stem-cell transplants to DMTs in patients with Secondary Progressive MS. Read the related article in Neurology®.

Darrell Wordelmann has been the face of Rooney's Oceanfront Restaurant for the last 27 years, and he loves the mental and physical challenge that the restaurant business brings.  He grew up in a house where his mother had Progressive MS. Because of this, Darrell has been an advocate for Multiple Sclerosis for over 20 years, before receiving his own diagnosis in 2020.In the first part of a two-part interview, Darrell talks about growing up in a house where he and his brother had to care for his mother, his life running a busy restaurant, and his own diagnosis with Multiple Sclerosis.Make sure you come back tomorrow to hear about Darrell's own MS diagnosis and the amazing work he does with Single Parents with MS, a charity foundation that supports families whose primary caregiver has been diagnosed with MS.Single Parents with MS, a 501(c)(3) organization, helps single parents with MS who are experiencing financial hardships. Support may range from Christmas gifts, purchasing ADA equipment, widening a doorway within a home, or helping keep the lights on during a difficult time. Anything to alleviate some of the stress that comes with MS and being a single parent.DISCLAIMERThe information contained in this podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Connect with Darrell on LinkedInVisit Rooney's Oceanfront Restaurant If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Today on Biology of Trauma, we conclude our series with Dr. Arielle Schwartz on identifying trauma and addressing the freeze response. In this episode, we hear a story of hope from Laura Bautista, a 21-day journey graduate who recovered from MS by healing her trauma.    Laura was diagnosed with degenerative MS at age 21. Western medicine determined that she had a bleak future of pain, loss of function, and even death. Like all autoimmune diseases, many seemingly random symptoms were dismissed and normalized throughout her life. It wasn't until she discovered functional medicine that Laura learned to listen to her body. For seven years, Laura slowly detoxed and began tracking her nervous system leading to a full recovery from what was diagnosed as a progressive disease.   There was never an exterior event to pin Laura's traumatic response on. However, tracking built awareness that allowed her to remove barriers to her healing. The body is naturally designed to heal itself, but stress, unhealthy foods, and lifestyles burden your body. This capacity exists within every person, and somatic tools are resources along your journey to your natural state of wellness. Simply, learning to slow down saved Laura's life. Key Takeaways: [2:20] Laura's story from progressive MS to 10 years symptom-free [4:40] Auto-immune diseases progress over the years until it becomes extreme enough to diagnose [9:00] Shifting focus from the disease to restoring function to the body  [14:58] The body heals itself when it feels calm, not when you demand it to be calm [15:55] Removing barriers to healing because the body is designed to constantly heal [18:55] Presence heals trauma, not cathartic therapies that retraumatize the mind and body [20:38] How to access a safe place to stop the spiraling  [23:20] Tracking is a basic tool that allows you to build awareness and gain perspective [24:28] How the pace of life influences your health and differentiating stress from trauma [27:42] Integrating stillness and observation into life inhibits stress from progressing into trauma [33:00] Finding hope when life feels out of control  [35:10] Detoxing from what you are not so that you can come home to yourself   Find More From Dr. Arielle Schwartz: Center for Resilience Informed Therapy    How do you know if you have trauma? And if you do have trauma, what is the next step? The good news is, there is a step-by-step process for identifying and healing trauma. Download my step-by-step guide (with a quiz inside!) to see if you have trauma and to identify how to get started. Download your free roadmap here: Steps To Identify & Heal Trauma https://traumahealingaccelerated.mykajabi.com/steps-to-identify-and-heal-trauma-a-roadmap-for-healing     Disclaimer: By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or others. Consult your own physician for any medical issues that you may be having.  This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Trauma Healing Accelerated, any guests or contributors to The Biology of Trauma podcast, or any employees, associates, or affiliates of Trauma Healing Accelerated be responsible for damages arising from the use of the podcast.

Every episode of RealTalk MS features updates and reports about emerging science. And, as you listen, some of you may wonder, 'When will these scientific achievements benefit me? When will these breakthroughs and advancements make their way from the laboratory workbench to the clinic?'   That's exactly what the panel of MS experts who comprise the International Advisory Committee on Clinical Trials in MS are proposing in a new framework that leverages what scientists are continuing to learn and re-defines how we talk about MS, research MS, diagnose MS, and treat MS.  The new framework being recommended by the committee is broadly outlined in a paper that was published about 8 weeks ago. Joining me to discuss what this proposed framework is all about is the paper's lead author, Professor Tanja Kuhlmann. We're also talking about the new high-efficacy disease-modifying therapy that received its FDA approval last week. We're sharing the details behind the FDA's approval of a Phase 3 clinical trial for Masitinib, an investigational therapy for treating progressive MS. We'll tell you about Abata Therapeutics' first T-cell treatment candidate for treating progressive MS. And you'll hear about the results of a study that compared the outcome of treating people living with secondary progressive MS with autologous hematopoietic stem cell transplantation (aHSCT) versus treatment by disease-modifying therapies. We have a lot to talk about! Are you ready for RealTalk MS??! This Week: Experts recommend a new framework for researching, diagnosing, and treating MS  :22 FDA approves Ublituximab (Briumvi), an anti-cd20 disease-modifying therapy  1:12 FDA approves Phase 3 clinical trial for Masitinib as a treatment for progressive MS  4:35 Abata Therapeutics announces its first T-cell therapy candidate to treat progressive MS  7:20 Study shows aHSCT more effective than DMTs in treating secondary progressive MS  10:14 Professor Tanja Kuhlmann discusses a new framework for researching, diagnosing, and treating MS  13:51 Share this episode  26:37 Have you downloaded the free RealTalk MS app?  26:57 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/279 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com STUDY: Ublituximab versus Teriflunomide in Relapsing Multiple Sclerosis https://nejm.org/doi/full/10.1056/NEJMoa2201904 AB Science https://ab-science.com RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff https://realtalkms.com/205 STUDY: Hematopoietic Stem Cell Transplantation in People with Active Secondary Progressive MS https://n.neurology.org/content/early/2022/12/21/WNL.0000000000206750 Take the iConquer MS Caregiver Survey https://realtalkms.com/caregiver Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 279 Guest: Professor Tanja Kuhlmann Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news report on ATA188, a treatment targeting the Epstein-Barr virus which could be integral in treating progressive MS. He also reads a news article reporting on how ublituximab works better than Aubagio at easing disability in patients with relapsing MS. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article on how genetic variants in genes mostly active in the central nervous system are linked to MS severity. He also reads a report on how the investigational immunotherapy ATA188 continues to ease disability and prevent brain tissue shrinkage in people with progressive forms of multiple sclerosis. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article on how off-label high-efficacy DMTs for people with progressive forms of MS appear to be as effective as on-label, or approved, DMTs. He also reads the latest installment of our “Expert Voices” series, where Dr. Susan Payrovi, MD, answers questions about functional medicine care with MS. =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological conditions, they use their imaginations to fill in the blanks. That can very quickly take them down a rabbit-hole that's far scarier than the reality of living with MS. So, when do you talk to your kids about MS? And what do you say? Licensed social worker and behavioral specialist Erin Martin joins me to talk about talking to kids about your MS. If you're living with MS and you still smoke, we're sharing results of a study that you may want to carefully consider. We'll also share the results of two different studies that might help inform your COVID-19 strategy if you're on a b-cell depleting disease-modifying therapy. We'll let you know how you can catch the video replay of an excellent webinar presented by the International Progressive MS Alliance. We'll share the details about how a group of international experts discovered a method for measuring remyelinated MS lesions (And we'll tell you why that's become important right now) We'll also share some encouraging results of a study that looked at the impact of estriol and Copaxone on women living with MS. We have a lot to talk about! Are you ready for RealTalk MS??! Talking to kids about MS   :22 Smoking is shown to affect MS progression  1:29 COVID-19 vaccines, breakthrough infections, and Evusheld  3:44 Catch the video replay of the International Progressive MS Alliance Webinar  8:31 A team of international experts discover a way to measure myelin repair  9:08 Combination of Estriol plus Copaxone is shown to reduce neurofilament light chain levels  11:57 Behavioral specialist Erin Martin discusses talking about MS with your kids  14:27 Share this episode  29:03 Download the RealTalk MS app for your iOS or Android device   29:24 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/254 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance STUDY: The Effect of Smoking on Long-Term Grey Matter Atrophy and Clinical Disability in Patients with Relapsing-Remitting Multiple Sclerosis https://nn.neurology.org/content/9/5/e200008 STUDY: Tixagevimab and Cligavimab (Evusheld) Boost Antibody Levels to SARS-COV2 in Patients with Multiple Sclerosis on B-Cell Depleters https://sciencedirect.com/science/article/pii/S2211034822004163 VIDEO: Solving the Mystery of Progression: The Key to New Treatments for Progressive MS https://youtube.com/watch?v=U5sm54HSBpY STUDY: A New Advanced MRI Biomarker for Remyelinated Lesions in Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1002/ana.26441 STUDY: Decreased Neurofilament Light Chain Levels in Estriol-Treated Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1002/acn3.51622 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 254 Guest: Erin Martin Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Jon Strum's wife, Jeanne, was an avid biker, hiker, and writer when she was diagnosed with Progressive MS. Almost immediately, she became so severely disabled that Jon stopped working and became Jeanne's carer and advocate. He continued in this role until Jeanne passed in February 2020. Part of Jon's advocacy was (and continues to be) hosting the popular RealTalk MS podcast. As you'll hear, Jon started the podcast while sitting on a scientific committee as a member of the International Progressive MS Alliance, to bridge the gap between patients and caregivers and the scientific community. Since its launch in 2017 and over 200 episodes later it has been downloaded more than 1,000,000 times by listeners in over 100 countries around the world.Jon's devotion to his wife is moving and unquestionable. But so is his desire and commitment to advocating for all people living with Multiple Sclerosis.Listen in to my interview with this wonderful man and find out about all the ways that you can advocate for people with MS and affect change!Topics covered in this episode include:The story of Jeanne's diagnosis, and Jon's journey into caregiving and advocacyJon and Jeanne's experiences with health insurance, the impact on their finances, and the heartbreaking decision Jon had to make for Jeanne's care Why Jon feels that people with more progressive forms of MS can feel forgotten by the scientific community, and why he started the RealTalk MS PodcastJon's partnership with the National MS SocietyThings that are on the legislative horizon for people in the US with MS, and how you can get involved and put pressure on your representatives!Full show notes and resources at https://fumsnow.com/fums109/ See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, reads a news article about how people with progressive forms of multiple sclerosis, and those with greater MS-related disability, have a much higher risk of serious infections. He also reads “Hoping for Medical Debt Relief? This Nonprofit Just Might Help”, by Ed Tobias, from his column "The MS Wire.” =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

A decade ago, the International Progressive MS Alliance didn't exist. Today, it can be credited with changing the global conversation about progressive MS research, elevating the progressive MS research agenda and moving the work forward. A few weeks ago, the Alliance announced the details of an ambitious strategic plan that will guide their work over the next 3 years.  Joining me to talk about the new goals that were set by the Alliance, and what that means for people affected by progressive MS, is the Chair of the Alliance's Scientific Steering Committee, Dr. Robert Fox. The MS International Federation conducted a survey and we're wondering whether the responses have raised a larger question? We're also talking about a study that showed how an online mindfulness program significantly improved depression for people living with MS. We're sharing study results that show your nose knows when your DMT is working well for you. We'll also share the details about an exciting undertaking at the University of Colorado that may lead to treating people so that they completely avoid the symptoms of MS. And we'll tell you about a small trial that demonstrated the effectiveness of an experimental stem cell therapy as a potential treatment for progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! International Progressive MS Alliance unveils a new 3-year strategic plan  :22 Survey results raise a larger question -- How do we share MS research news with people affected by MS???  1:04 Online mindfulness provides significant improvement for managing depression among people with MS    16:14 Using your nose to determine the efficacy of your disease-modifying therapy  8:33 NeuroGenesis cell therapy shows promise as a potential treatment for progressive MS  14:14 Dr. Robert Fox discusses what's next for the International Progressive MS Alliance  17:28 Share this episode  28:07 Have you downloaded the RealTalk MS app?   28:27 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/239 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance International Progressive MS Alliance https://progressivemsalliance.org STUDY: A Randomized Controlled Trial of a Web-Based Mindfulness Programme for People With MS With and Without a History of Recurrent Depression https://journals.sagepub.com/doi/10.1177/13524585211068002 STUDY: Olfactory Threshold Predicts Treatment Response in Relapsing Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/1354285221079744 STUDY: Effects of Mesenchymal Stem Cell Transplantation on Cerebrospinal Fluid Biomarkers in Progressive MS https://academic.oup.com/stcltm/article/11/1/55/6528889 Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 239 Guests: Dr. Robert Fox Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

I'm delighted that my guests today are Tamara Kahn and Terry Hord, twin sisters who both have MS. Following their diagnosis, they have been navigating their lives with secondary Progressive MS and advocating through work for the National MS Society, their Twins Coast 2 Coast website, and on Instagram.In the first of a two-part interview, they talk about being diagnosed with the same chronic illness, married life, changes they've seen in Disease Modifying Therapies, and how their advocacy work is inspired by their mother's death from a rare form of cancer. The resilience she showed is a legacy that lives on, not only through Tamara and Terry but their own children. Links and resources:Visit Tamara and Terry at Twins Coast 2 CoastVisit the National MS Society and find out more about the Navigator Program You can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgymHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Multiple Sclerosis News Today's multimedia associate, Price Wooldridge, discusses how Immunic Therapeutics has enrolled a patient in the Phase 2 clinical trial CALLIPER, testing oral IMU-838 for progressive MS; and reads the column by Ed Tobias, MS Wire, “Sun-seeking Finds Support in New Study.” =================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

I've always believed that the holiday season is an ideal time for reflection. For looking back and looking ahead. And in that spirit, today we're re-visiting two of the most important conversations that we've had this year on RealTalk MS. When you consider the nearly one million people living with MS in the United States, you might conclude that MS doesn't discriminate – it impacts people of all ages, sexual orientations, and ethnic backgrounds. However, when you drill down a bit further and look at things like having access to quality MS care and even the course of the disease itself, it becomes apparent that MS is not an equal-opportunity disease. My conversation with Dr. Mitzi Joi Williams about racial and ethnic disparities in MS underscores some of the systemic inequities that can produce significant burdens for members of minority communities. Then, we'll switch gears and drop in on my conversation with Samantha Singer and Dr. Richard Ransohoff, the CEO and the Chief Medical Officer at Abata Therapeutics, a biotech startup that's working on a novel cell therapy for treating progressive MS. This therapy is designed to stop progression and it may, in fact, set the stage for remyelination to occur. Abata seems to check all the boxes when you think about taking the best & brightest and putting them to work on solving progressive MS. This is a company that may be creating the future when it comes to effectively treating progressive MS. We have a lot to talk about! Are you ready for RealTalk MS??! Happy Holidays!  :22 Racial and Ethnic Disparities in MS with Dr. Mitzi Joi Williams:   1:09 A Potentially Transformational Treatment for Progressive MS with Samantha Singer and Dr. Richard Ransohoff  18:33 Share this episode  29:52 Have you downloaded the free RealTalk MS app???  30:13 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/225 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 225 Guests: Dr. Mitzi Joi Williams, Dr. Richard Ransohoff, and Samantha Singer Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Before the availability of MRI technology in the 1980s, MS was frequently misdiagnosed or even missed completely. Today, an MRI exam is a valuable tool in diagnosing MS, following disease progression, and evaluating someone's response to their MS treatment. Recently, a team of international experts updated the MRI recommendations for people living with MS. Dr. Scott Newsome, a member of that expert panel, is joining me today to talk about some of those recommendations and to help us understand how the new recommendations will impact your next MRI exam. We're also talking about building a pediatric MS community with Emily Blosberg, the creator of Oscar the MS Monkey. We'll tell you how you can catch the replay of the International Progressive MS Alliance webcast about fatigue in progressive MS. (They're sharing some excellent tips and resources for managing fatigue!) And we'll tell you why the announcement of a study to identify the MS prodrome is very exciting news! We have a lot to talk about! Are you ready for RealTalk MS??! Progressive MS Alliance hosts a webcast about fatigue in progressive MS  2:03 About our show notes:  2:36 Meet Emily Blosberg and find out about her friend, Oscar the MS Monkey  4:18 Study of the prodromal phase of MS announced  13:59 Dr. Scott Newsome explains new MRI recommendations for MS   16:52 Share this episode  38:57 Have you checked out The MS Caregiver Conundrum?  39:18 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/220 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance National MS Society Third COVID-19 Vaccine Dose Guidance for People Living with MS https://www.nationalmssociety.org/About-the-Society/News/Additional-COVID-19-Vaccine-Dose-(Booster)-and-MS The MS Caregiver Conundrum Podcast https://mscaregiverconundrum.com International Progressive MS Alliance Webcast: Fatigue in Progressive MS https://www.youtube.com/watch?v=v99I56RCdAc Oscar the MS Monkeyhttp://www.mroscarmonkey.org/ Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 220 Guests: Emily Blosberg and Dr. Scott Newsome Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Just a few weeks ago, life sciences company Abata Therapeutics came out of stealth mode, unveiling a $95 million dollar investment in a novel cell therapy to treat progressive MS. Joining me to talk about this potentially transformational treatment for progressive MS are the President and CEO of Abata Therapeutics, Samantha Singer, and Dr. Richard Ransohoff, one of the company's co-founders as well as its Chief Medical Officer. We'll also give you a sneak peek at a study that measured the impact of COVID-19 on people with MS in New York City. We'll tell you about a study that examined the viability of at-home Tysabri infusions. We'll share the details of the Can Do MS virtual programs that are happening all month long. And we'll let you know how you can attend Dawnia Baynes's celebration for the entire MS community (did we mention that it's taking place in a very cool virtual world?!!!). We have a lot to talk about! Are you ready for RealTalk MS??! Abata Therapeutics unveils potentially transformational cell therapy for progressive MS  :22 Study measures effects of COVID-19 on people with MS in New York City   11:18 Study examines the viability of at-home Tysabri infusions   14:26 Can Do MS virtual programs for August  16:04 Award-winning MS activist and support group leader Dawnia Baynes is throwing a party -- and you're invited  17:51 Share this episode  30:44 Download the free RealTalk MS app for your iOS or Android device  31:12 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/205 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.com Phone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance Abata Therapeuticshttps://abatatx.com/ STUDY: Home Infusions of Natalizumab for People with Multiple Sclerosis: A Pilot Randomised Crossover Trialhttps://onlinelibrary.wiley.com/doi/10.1002/acn3.51410 Can Do MS August Program Info and Registration https://cando-ms.org/programs Dawnia's "15" Celebrationhttps://15presentedbybrightside365.eventbrite.com Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms Download the RealTalk MS App for iOS https://itunes.apple.com/us/app/realtalk-ms/id1436917200 Download the RealTalk MS App for Androidhttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk Give RealTalk MS a rating and review http://www.realtalkms.com/review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 205 Guest: Samantha Singer, Dr. Richard Ransohoff, Dawnia Baynes Tags: MS, MultipleSclerosis, MSResearch, MSSociety, AbataTherapeutics, RealTalkMS Privacy Policy

In this podcast, expert clinicians will discuss recent clinical evidence supporting optimal treatment selection for patients with progressive MS.

Join me as I have a candid conversation with my brother, Greg Dukes who has been living with progressive MS-multiple sclerosis for 13 years ..A disease of the central nervous system that disrupt the flow of information within the brain and body. The cause is still unknown! www.nationalmssociety.com 1-800-344-4867 Thank you for listening …this is purple mom, What does live in a juicy lifestyle look like for you? #lifelessonslearned #letgoletgod #ms #advocate #disease #brainhealth #guthealth #lifestyle #family #brother A Huge Thank You Can …Debbie Gregory Nicole my family support, love Greg

In this episode, Dr. Terry Wahls, an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa; tells us her story and how she has beat progressive MS.  In addition to conducting clinical

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses a phase 2 clinical trial in which NurOwn's cell therapy for progressive MS has been found safe and effective. Also, Multiple Sclerosis News Today's columnist, Jessie Ace reads Jenn Powell's column where she discusses how to manifest change with secondary progressive multiple sclerosis. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Dr Emma Gray Assistant Director of Research at the MS Society Development of the multi-arm, multi-stage trial ‘Octopus' for people with progressive MS www.mssociety.org.uk/stop-ms Transcript:https://docs.google.com/document/d/1kaoWeiRiZr7kZczP1omst2FvYWbwVun4VIN2MIzCHfU/edit?pli=1

After being diagnosed with Progressive Multiple Sclerosis, Terry Wahls depended on a tilt-recline wheelchair for four years. However, she realized that she could improve her health on a cellular level by focusing on lifestyle and diet. Her incredible story of recovery is really a story of creating health and vitality, instead of focusing on treating the symptoms of disease. On this episode of Health Theory with Tom Bilyeu, Dr. Terry Wahls explains how a focus on cellular health can lead to extraordinary outcomes, even for people struggling with severe chronic illness.   SHOW NOTES: [0:00] Fight for Your Life: Terry shares the story of how she responded to her diagnosis of Progressive MS. [7:49] Focus on Mitochondria: Terry describes the importance of mitochondria and talks about why she focused on them. [18:28] How to Create Health: Drugs treat symptoms but they do not create health. Terry shares stories of transformation due to diet and lifestyle changes. [23:41] Cytokines 101: Terry explains how wear and tear is repaired in cells, and why the process can become overactive, leading to inflammation. [27:48] Be Your Own Case Study: Why you should definitely pay attention to research, but you still have to figure out what works for you. [31:36] Eat These Foods: Terry defines a good diet, and talks about which foods to add to your diet and which to eliminate.   FOLLOW TERRY: WEBSITE: https://terrywahls.com INSTAGRAM: https://instagram.com/drterrywahls/ FACEBOOK: https://facebook.com/TerryWahls/ TWITTER: https://twitter.com/terrywahls

EP143 MS Deep Dives just talk about Multiple Sclerosis, Progressive MS, Gut Biom, Pressure Sores, etc. Chocolate Hummus recipe. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/kevin-kleinhans/message Support this podcast: https://anchor.fm/kevin-kleinhans/support

About 80% of the people with relapsing-remitting MS will eventually be diagnosed with secondary progressive MS. At that point, their remissions stop and their MS symptoms continue to worsen. And about 15% of the people diagnosed with MS are diagnosed from the beginning with primary progressive MS. So identifying ways to optimally treat progressive MS is a priority.    Joining me with updates on progressive MS research, treatment, and rehabilitation are Dr. Kathy Zackowski and Dr. Daniel Ontaneda. Dr. Ontaneda is an associate professor of Neurology at the Cleveland Clinic Lerner College of Medicine of Case Western Reserve University and a staff member at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis. And Dr. Zackowski is the Senior Director of Patient Management, Care and Rehabilitation Research at the National MS Society and a member of the International Progressive MS Alliance Scientific Steering Committee. We're sharing some startling details about MS care from the European MS Platform's MS Barometer 2020. We're talking about a study that shows that lifestyle choices like increasing physical activity and choosing not to smoke can have a positive impact on MS fatigue. And we'll tell you about a new program that empowers people affected by MS to pose the questions that will drive MS research. We have a lot to talk about! Are you ready for RealTalk MS??! Details from the European MS Platform's MS Barometer 2020  1:34 The International Progressive MS Alliance issues a call to action on progressive MS rehabilitation with Dr. Kathy Zackowski   4:35 Study shows that lifestyle changes can impact MS fatigue   18:00 Our Own Questions Have Power  19:20 Progressive MS treatment and Research with Dr. Daniel Ontaneda  21:03 Share this episode  38:17 Take the RealTalk MS Listener Survey and you could win a $100 Amazon Gift Card  38:38 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/187 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com RealTalk MS Listener Survey (You'll be entered to win a $100 Amazon Gift Card!) National MS Society COVID-19 Vaccine Guidance for People Living with MS MS Barometer 2020 Prioritizing Progressive MS Rehabilitation Research: A Call from the International Progressive MS Alliance STUDY: Associations Between Fatigue Impact and Lifestyle Factors in People with Multiple Sclerosis: The Danish MS  Hospitals Rehabilitation Study iConquer MS: Our Questions Have Power Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 187 Guests: Dr. Kathy Zackowski and Dr. Daniel Ontaneda Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  RealTalkMS Privacy Policy

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses how the Progressive MS Alliance wants changes to trials to better realize treatments. Multiple Sclerosis News Today's columnist, Jessie Ace reads Jennifer Powell's column about how she is coping going through life battling with sickness and sadness. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses the recipient of the 2020 Sobek prize given to a leading physician-scientist for work in the field multiple sclerosis. Plus, Multiple Sclerosis News Today's columnist Jessie Ace discusses a tip she discovered for lessening her fatigue by having a tech-free day. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. https://www.mayzent.com/?utm_source=changeinrms&utm_medium=vanityurl&utm_campaign=novartis_mayzent_2020&utm_content=soundcloud ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Fast Takes - Episode 11 View the transcript at https://kesslerfoundation.org/sites/default/files/2021-01/COVID-19%20Impact%20Survey%20Yields%20Unexpected%20Findings%20for%20Individuals%20with%20Progressive%20MS_0.pdf In this episode, Dr. Nancy Chiaravalloti, Director of Our Center for Neuropsychology and Neuroscience and Center for Traumatic Brain Injury Research to talks about her latest peer reviewed article “COVID-19 Impact Survey Yields Unexpected Findings for Individuals with Progressive MS" which was published online August 19, 2020 in Journal of Neurology at https://link.springer.com/article/10.1007/s00415-020-10160-7 and at Kessler Foundation at https://kesslerfoundation.org/press-release/covid-19-impact-survey-yields-unexpected-findings-individuals-progressive-ms. Funding sources for this study is the Multiple Sclerosis Society of Canada grant EGID3185. Co-authors: Maria Pia Amato, Giampaolo Brichetto, Jeremy Chataway, Ulrik Dalgas, John DeLuca, Cecilia Meza, Nancy B. Moore, Peter Feys, Massimo Filippi, Jennifer Freeman, Matilde Inglese, Rob Motl, Maria Assunta Rocca, Brian M. Sandroff, Amber Salter, Gary Cutter, Anthony Feinstein & on behalf of the CogEx Research Team Follow us on Facebook, Twitter, and Instagram. Listen to us on Apple Podcasts, Spotify, SoundCloud, or wherever you get your podcasts. This podcast was recorded on September 17, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

The approval of ocrelizumab for primary progressive multiple sclerosis (PPMS) was groundbreaking, and more recently the MS community bore witness to another major breakthrough in MS management when siponimod was approved for secondary progressive MS (SPMS). Additionally, new investigational agents such as MD1003 (high-dose biotin) and masitinib are also being evaluated for treatment of PPMS, […]

November 11 is Veterans Day in the United States, giving us an opportunity to honor the men and women who have served in America's armed forces. More than 70,000 U.S. veterans are living with MS, and joining me on the podcast is Karla Clay, an Air Force veteran, and a National Veterans Wheelchair Games multiple medal winner. We're talking about the life-changing turn that Karla's MS journey ended up taking.  As of today, the fate of the Affordable Care Act and the legal protections for people with pre-existing conditions are in the hands of the Supreme Court. So we're also talking about The 100 Days Agenda: A Patient-First Blueprint. This document is the result of a collaboration between the National MS Society and 33 other patient organizations and it provides specific steps that the President and other elected officials can take to protect access to adequate, affordable insurance coverage for people with pre-existing conditions.   We'll tell you about a study that identifies a potential new risk associated with disease-modifying therapies for people living with MS who are over the age of 45.   And the month of November is loaded with outstanding webinars and conferences featuring some of the leading MS experts in the world. The good news is that you can virtually attend all of these online events at no charge, from the comfort of your own home. We're sharing all the details and we'll tell you where to register for each one!   We have a lot to talk about! Are you ready for RealTalk MS??! As of today, the legal protections for people with pre-existing conditions is in the hands of the U.S. Supreme Court  :22 National MS Society and 33 other patient organizations publish The 100 Days Agenda: A Patient-First Blueprint  2:25 Study identifies a potential new DMT risk for people living with MS who are over the age of 45   3:34 November is loaded with outstanding webinars and conferences that you can attend virtually...for FREE!  5:04 International Progressive MS Alliance Global Webcast: Speeding Life-Changing Treatments for Progressive MS  5:25 National Alliance for Caregiving and the Rosalynn Carter Institute for Caregiving webinar: Flattening the Caregiver Crisis Curve  5:57 European MS Platform Annual Conference: Understanding Progressive MS  7:52 MS Society of Canada 2020 MS-CONNECT Conference  8:48 My Interview with Karla Clay, Capt USAF (Ret)  9:41 Share this episode  31:09 Donate to the National MS Society COVID-19 Response Fund  31:28 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/167 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) National Veterans Wheelchair Games Paralyzed Veterans Of America U.S. Department of Veterans Affairs Multiple Sclerosis Centers Of Excellence The 100 Days Agenda: A Patient-First Blueprint STUDY: Age-Related Adverse Events of Disease-Modifying Treatments for Multiple Sclerosis: A Meta-Regression Register for the International Progressive MS Alliance Global Webcast: Speeding Life-Changing Treatments for Progressive MS Register for Flattening the Caregiver Crisis Curve Register for the European MS Platform Annual Conference: Understanding Progressive Multiple Sclerosis Register for the MS Society of Canada's 2020 MS-CONNECT Conference National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 167 Guests: Karla Clay, Capt USAF (Ret) Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, VeteransDay, EMSPVirtual2020, MSConnect, Caregiving, RealTalkMS Privacy Policy

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses the pandemic's minimal emotional impact on people with progressive MS. Plus, Multiple Sclerosis News Today's columnist and forums moderator, Ed Tobias, considers the importance of a patient-doctor risk-benefit analysis before deciding on a treatment. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. http://ChangesInRMS.com ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

Of all the people living with MS, you might assume that people living with progressive MS have experienced the highest levels of anxiety and depression related to the threat of COVID-19. A research team found themselves at the right place at the right time -- conducting a different progressive MS study. They quickly pivoted to investigate the emotional impact of the COVID-19 pandemic on people living with progressive MS.     My guest is Dr. Anthony Feinstein, a professor of psychiatry at the University of Toronto and a neuropsychiatrist. He is also the principal investigator of the CogEx study, and he's sharing the newly published results of his team's work.   We're also talking about the importance of your vote in the upcoming U.S. election, and we'll help you check your voter registration and even register to vote.   The National MS Society's Ambassadors Ball is happening on September 30. This year it's virtual and it's free. We'll tell you how you can attend.   You'll hear the details of a study that revealed some sobering truths about the financial toxicity of MS. And we'll let you know how you can participate in the MS Society's survey of the economic impact of MS.   We'll also give you a heads-up about how the slowdown in U.S. mail delivery may impact the delivery of your MS disease-modifying therapies.   And we're talking about a study from Australia that demonstrates how engaging with credible health resources (Um...hello!) often leads to adopting a healthy lifestyle.   We have a lot to talk about! Are you ready for RealTalk MS??! Check out RealTalk MS on Amazon Music!  :22 MSVirtual2020 -- there's more to come  1:17 Advocacy begins by casting your vote    3:49 Join me at the National MS Society's Ambassadors Ball  6:34 Measuring the financial toxicity of MS  8:43 You can participate in the National MS Society's survey of the economic impact of MS  10:36 Mail delivery delays = disease-modifying therapy delays  12:01 Survey shows that people who engage with health resources adopt a healthy lifestyle  13:30 My Interview with Dr. Anthony Feinstein  16:03 Share this episode  22:21 Donate to the National MS Society COVID-19 Response Fund  22:42 SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/160 ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 And don't forget to join us in the RealTalk MS Facebook group! LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating and Review National MS Society's Ask An MS Expert Video Replay What You Need to Know About Coronavirus (COVID-19) The Emotional Impact of the COVID-19 Pandemic on Individuals with Progressive Multiple Sclerosis Vote.gov National MS Society's Ambassadors Ball STUDY: Patient-Reported Financial Toxicity in Multiple Sclerosis: Predictors and Association with Care Non-Adherence National MS Society Survey: The Economic Impact of MS I'm a Veteran Who Gets My Medicines Through the Mail STUDY: Greater Engagement with Health Information is Associated with Adoption and Maintenance of Healthy Lifestyle Behaviours in People with MS National MS Society COVID-19 Response Fund Join the RealTalk MS Facebook Group Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating and Review Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 160 Guests: Dr. Anthony Feinstein Tags: MS, MultipleSclerosis, MSResearch, MSSociety, AmbassadorsBall, Vote, RealTalkMS Privacy Policy

Multiple Sclerosis News Today's columnist, Jenn Powell, discusses how MRI changes can reflect function in progressive Multiple Sclerosis. Plus, Multiple Sclerosis News Today's columnist and forums moderator, Ed Tobias, discusses a new Amazon wearable device designed to help you stay healthy. ===================================== Treatment for Relapsing MS Progression | MAYZENT® (siponimod) Read about MAYZENT, a once daily pill that can significantly slow down disability progression in people with relapsing MS. See full prescribing & safety info. http://ChangesInRMS.com ===================================== Are you interested in learning more about multiple sclerosis? If so, please visit: https://multiplesclerosisnewstoday.com/ ===================================== To join in on conversations regarding multiple sclerosis, please visit: https://multiplesclerosisnewstoday.com/forums/

After being diagnosed with Progressive Multiple Sclerosis, Terry Wahls depended on a tilt-recline wheelchair for four years. However, she realized that she could improve her health on a cellular level by focusing on lifestyle and diet. Her incredible story of recovery is really a story of creating health and vitality, instead of focusing on treating the symptoms of disease. On this episode of Health Theory with Tom Bilyeu, Dr. Terry Wahls explains how a focus on cellular health can lead to extraordinary outcomes, even for people struggling with severe chronic illness. This episode is brought to you by: Butcher Box: Go to ButcherBox.com/IMPACT to reserve your spot on their waitlist. You’ll get an email when they’re ready to take your order.  Tresta: Start your free 30-day trial at tresta.com/impact SHOW NOTES:   [0:00] Fight for Your Life: Terry shares the story of how she responded to her diagnosis of Progressive MS. [7:49] Focus on Mitochondria: Terry describes the importance of mitochondria and talks about why she focused on them. [18:28] How to Create Health: Drugs treat symptoms but they do not create health. Terry shares stories of transformation due to diet and lifestyle changes. [23:41] Cytokines 101: Terry explains how wear and tear is repaired in cells, and why the process can become overactive, leading to inflammation. [27:48] Be Your Own Case Study: Why you should definitely pay attention to research, but you still have to figure out what works for you. [31:36] Eat These Foods: Terry defines a good diet, and talks about which foods to add to your diet and which to eliminate.   FOLLOW TERRY:   WEBSITE: terrywahls.com INSTAGRAM: instagram.com/drterrywahls/ FACEBOOK: facebook.com/TerryWahls/ TWITTER: twitter.com/terrywahls

In this episode, we have an intimate conversation with country star Jess Moskaluke. She lost her father to the disease when she was 16 years old.  Speaking so openly about the loss of a parent is not an easy thing to do and I’m so grateful she was able to be a guest on this podcast. Jess, thank you for using your platform to share information and help others in the MS community feel less alone in their journey with the disease.  Guest: Follow @jessmoskaluke on Instagram, Twitter and 'like' on Facebook Jess on MS: Tom and Ben Klick https://www.youtube.com/watch?v=28bTNDxkdok&t=1614s Jess on MS: Dr. Michael Levin https://www.youtube.com/watch?v=QKQ1aJn_HGs For more information on the MS Society of Canada @MSSocietyCanada Here is the link to the 1:1 Peer Support Program https://mssociety.ca/support-services/ms-peer-support-program Contact: Host Andrea Dunn @TeamDunner See omnystudio.com/listener for privacy information.

Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa. She conducts clinical trials that test the effect of nutrition and lifestyle interventions to treat MS and other progressive health problems.  In 2018 she was awarded the Institute for Functional Medicine’s Linus Pauling Award for her contributions in research, clinical care, and patient advocacy. In addition, Dr. Terry Wahls is a patient with secondary progressive multiple sclerosis.  This condition confined her to a tilt-recline wheelchair for four years. Amazingly, Dr. Wahls restored her health using a diet and lifestyle program she designed specifically for her brain.  She now pedals her bike to work each day.  Currently, with the creation of her Wahl Protocol, she teaches the public and medical community about the healing power of the Paleo diet.  She also explains what therapeutic lifestyle changes can restore health and vitality.  Dr. Wahls is the author of The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine, The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles (paperback), and the cookbook The Wahls Protocol Cooking for Life: The Revolutionary Modern Paleo Plan to Treat All Chronic Autoimmune Conditions.  As a FREE gift to our listeners, Dr. Wahls shares a one page summary of the diet that she uses in her clinics and clinical trials. This is great to hang on the refrigerator.  www.terrywahls.com/diet

We discuss the most aggressive form of MS known as PPMS or Primary-Progressive MS. Jamie was diagnosed with PPMS just two years ago. His Doctors are amazed he is still walking. His story is one of perseverance and he’s an inspiration to us all. Thanks Jamie for being so open about your day-to-day struggles with MS. Your story gives hope to those in their battle with the disease. Keep fighting the good fight! Guest: To contact Jamie email jshann902@gmail.com Contact: Host Andrea Dunn @TeamDunner For more information on the MS Society of Canada @MSSocietyCanada For more details on Ocrevus, speak to your healthcare provider and have them contact COMPASS™ for enrollment instructions by calling 1-888-334-5956. See omnystudio.com/listener for privacy information.

In just two weeks, the National MS Society is hosting its annual Public Policy Conference in Washington, D.C. The centerpiece of that conference is our Day On The Hill when 300 MS Activists meet with our Congressional Representatives and Senators to discuss the legislative issues that are most important to people affected by MS. My guest is Bari Talente, the Executive Vice President of Advocacy for the National MS Society and we're talking all about this year's Public Policy Conference and the value and importance of advocacy.     We'll also let you know how and where to sign up for Discovering Life-Changing Treatments for Progressive MS, the global webcast from the International Progressive MS Alliance. (You have to hurry! It's happening in 2 days!)    You'll hear about an encouraging study of the effectiveness of stem cell therapy for some people living with secondary progressive MS.  We're also talking about why you might want to support Jon in this year's Walk MS. And you'll learn about a non-invasive breakthrough technology that provides a detailed assessment of the status of MS progression and the effectiveness of disease-modifying therapy...in 10 seconds.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Sharing Some Crazy Statistics   :44 We're Just 2 Weeks Away From the Public Policy Conference  2:27 Register for the Global Webcast: Discovering Life-Changing Treatments for Progressive MS   3:39 You Can Support Jon in WALK MS  4:54 HSCT Shows Benefits in Some People with Secondary Progressive MS  6:23 New Eye-Tracking Tech Uses AI to Monitor MS  9:09 My Interview with Bari Talente  11:54 Share This Episode  26:03 Reminder...Please Donate to Walk MS  26:28 Download the RealTalk MS App  27:03 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email: https://realtalkms.com/129 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Jon's WALK MS Fundraising Page Register for the International Progressive MS Alliance Global Webcast: Discovering Life-Changing Treatments for Progressive MS Low-Intensity Lympho-Ablative Regimen Followed by Autologous Hematopoietic Stem Cell Transplantation in Severe Forms of Multiple Sclerosis: A MRI-Based Clinical Study BEAT-MS Clinical Trial C. Light Technologies Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 129 Hosted By: Jon Strum Guests: Bari Talente Tags: MS, MultipleSclerosis, MSResearch, MSActivist, MSSociety, RealTalkMS Privacy Policy

In this podcast, Patricia K. Coyle, MD, and Claire S. Riley, MD, discuss the use of monoclonals in patients with progressive MS.

My guest this week is Dr. Mary Bailey, a neurologist specializing in MS care at the Mandell Center for Multiple Sclerosis in Hartford, Connecticut, and we're talking about some of the changes that occur as relapsing-remitting MS transitions to secondary progressive MS.   Since about 80% of the people living with relapsing-remitting MS will experience that transition to secondary progressive MS, I think it's an important conversation to have.   Since yesterday was Veterans Day in the United States, we're talking about the connection between Veterans and MS and the innovative MS research being funded by the Department of Defense.   We've received some listener requests about this, so we're revisiting our conversation with Dr. Mitzi Joi Williams about minority participation in MS research. We'll also point you toward a replay of a webinar that Dr. Williams hosted about this important topic.   We'll give you the details about a First Descents ski trip to Crested Butte, Colorado that's been created specifically for young adults who are living with MS. And it's FREE! (And, of course, we'll tell you where and how to begin the registration process!)   You'll find out where to catch the video replay of Progress in MS Research Live Update 2019 that was live-streamed last week by MS Research Australia. The program features 4 outstanding MS experts and a LOT of great information!   November is National Family Caregivers Month, and we're talking about a very worthwhile short video that gives us what I think is a very authentic peek at some of the things that couples affected by MS go through every day. And it also provides some excellent tips on how both partners can best manage their relationship when one of them becomes the other's caregiver.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Greetings from the 4th Annual National Caregiving Conference  :40 Looking Ahead to the National MS Society Leadership Conference  1:09 MS & U.S. Military Veterans  2:43 Video Offers Care Partner Tips & Inspiration   4:40 First Descents is Offering a FREE ski trip to Colorado to Young Adults Living with MS  5:33 Catch the Progress in MS Research Update 2019 Video Replay   7:32 Minority Participation in MS Research with Dr. Mitzi Joi Williams   8:41 My Interview with Dr. Mary Bailey  18:23 How You Can Share This Episode of RealTalk MS   26:37 How to Subscribe to RealTalk MS, Download the RealTalk MS App, or Listen with Alexa  27:09 ___________ SHARE THIS EPISODE OF REALTALK MS Just copy this link & paste it into your text or email:  https://realtalkms.com/115 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review  U.S. Military Veterans & MS VIDEO:  MS and Care Partnership -- Tips & Inspiration First Descents Skiing at Crested Butte VIDEO REPLAY: Progress in MS Research Live Update 2019 VIDEO: Addressing Common Misconceptions About Research and Clinical Trials in Minority Groups   Give RealTalk MS a Rating & Review  Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 115 Hosted By: Jon Strum Guests: Dr. Mary Bailey Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS Privacy Policy

Five years ago, James Beard Award-winning chef Chris Shepherd decided to hold a barbecue event in his restaurant's parking lot, to raise money for the National MS Society. Today, the Southern Smoke Festival has grown into the largest 3rd party MS Society fundraising event in the United States, and with the 5th Annual Southern Smoke Festival just a few weeks away, we're talking with Chris about how this event got its start, and how it's grown to be one of the most noteworthy culinary events in the country.      We're also talking about the new vaccination guidelines (including flu shots!) that were just published by the American Academy of Neurology for people living with MS. We'll tell you about a study that gives you one more reason to start disease-modifying therapy early...and stay on it! We'll also tell you about a study that shows the cost of MS disease-modifying therapy has increased 7X over just 10 years for Medicare patients. And we've found one more study that demonstrates how people with more advanced progressive MS can still benefit from physical rehabilitation.   We have a lot to talk about! Are you ready for RealTalk MS??! ___________   Where You Can Find Me in September  :32 American Academy of Neurology Issues Vaccination Guidelines for People Living with MS   4:39 The Long-Term Effects of Disease-Modifying Therapy   6:15 DMT Costs Increase 7X for Medicare Patients  7:49 Upper-Limb Task-Oriented Rehab Shows Benefits for People Living with Progressive MS  11:56 My Interview with Chris Shepherd  15:01 Subscribe to RealTalk MS or Just Ask Alexa  27:13 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Give RealTalk MS a Rating & Review  Southern Smoke Festival Practice Guideline Update Summary: Vaccine-Preventable Infections and Immunization in Multiple Sclerosis -- Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology The Long-Term Effects of Disease-Modifying Therapies on Disability in People Living with Multiple Sclerosis: A Systematic Review and Meta-Analysis Trends in Prices, Market Share, and Spending on Self-Administered Disease-Modifying Therapies for Multiple Sclerosis in Medicare Part D Preserved Brain Functional Plasticity After Upper Limb Task-Oriented Rehabilitation in Progressive Multiple Sclerosis Give RealTalk MS a Rating & Review  Download the RealTalk MS App for iOS Download the RealTalk MS App for Android ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 105 Hosted By: Jon Strum Guest: Chris Shepherd Tags: MS, MultipleSclerosis, MSResearch, MSSociety, SouthernSmokeTX, RealTalkMS

Dr. Terry Wahls is a clinical professor at the University of Iowa where she conducts clinical trials testing the efficacy of therapeutic lifestyle to treat multiple sclerosis related symptoms. In addition, she is the author of “The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine” and the cookbook “The Wahls Protocol Cooking for Life: The Revolutionary Modern Paleo Plan to Treat All Chronic Autoimmune Conditions”.

My guest is Jenny Freeman, Professor of Physiotherapy and Rehabilitation at the University of Plymouth, in the United Kingdom. Professor Freeman's research has appeared in more than 150 journals and publications. And she's the co-author of Multiple Sclerosis Care -- A Practical Manual, the reference book for all aspects of MS care. We're going to be talking with Professor Freeman about the just-published results of a clinical trial that I think will add a very effective component to physical rehabilitation for people living with progressive MS.       And if you believe that losing thousands of dollars and gaining no benefit is the worst thing that can go wrong when it comes to unproven stem cell treatments for MS...well, you're not even close. We're talking about how bad it can really get. We'll also tell you about the new pilot research grants that the National MS Society just announced. You'll learn about a program that offers amazing outdoor adventure experiences to young adults who are living with MS. And did we also mention that these programs are free??? And you'll have an opportunity to participate in a really interesting clinical trial. We have a lot to talk about. Are you ready for RealTalk MS??! NEW! Download a transcript of this episode! ___________   Unproven Stem Cell Treatments for MS -- The Worst Thing That Can Happen is A Lot Worse Than You Think It Is!  1:44 National MS Society Funds 10 High-Risk Pilot Research Grants  10:20 First Descents Expands Outdoor Adventure Experiences for Young Adults Living with MS   12:50 Your Opportunity to Participate in a Really Interesting Clinical Trial (No Drugs Involved)  14:35 Study Results Reveal Physical Rehabilitation That Improves the Lives of People Living with Progressive MS  16:09 My Interview with Professor Jenny Freeman  17:19 RealTalk MS Episode 100 Is Just 1 Week Away! How To Leave Us a Rating & Review   28:27  ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jon@realtalkms.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Standing Up in Multiple Sclerosis (SUMS) STUDY: Assessment of a Home-Based Standing Frame Programme in People with Progressive MS (SUMS): A Pragmatic, Multi-Centre, Randomised, Controlled Trial and Cost-Effectiveness Analysis National MS Society Announces New Pilot Research Projects Beginning Summer 2019 First Descents Program Inquiry PARTICIPATE: Interventions to Improve Cognitive Functioning In Multiple Sclerosis Website: The Ohio State University Clinical Neuroscience Lab Phone: 614-292-9568 Email:  ra@clinicalneurosciencelab.com Give RealTalk MS a Rating & Review  Download the RealTalk MS App for iOS Download the RealTalk MS App for Android NEW! Download a Transcript of This Episode ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 99 Hosted By: Jon Strum Guest: Professor Jenny Freeman Tags: MS, MultipleSclerosis, mssociety, MSResearch, Stemcells, FirstDescents, RealTalkMS

Multiple sclerosis specialists Bob Fox, MD and Alex Rae-Grant, MD discuss the latest trials and emerging therapies in the treatment of progressive MS.

It's my first day at the American Academy of Neurology Annual Meeting, and we're talking about a great presentation on Progress in Progressive MS and some eye-opening news about the amount of money we're spending in the U.S. on prescription drugs to treat neurological conditions.

Jennifer and Dan Digmann, a married couple, discuss their life while both living with MS. Dan and Jennifer demonstrate two different faces of Multiple Sclerosis. Jennifer was diagnosed in 1997 and has Progressive MS; Dan was diagnosed in 2000 and has relapsing-remitting MS. The Michigan couple met at a National Multiple Sclerosis Society event in 2002, were married in 2005. Since their marriage, Dan and Jennifer have both earned graduate degrees in Humanities from Central Michigan University. They also write a nationally recognized MS blog called danandjenniferdigmann.com, host the online radio show “A Couple Takes on MS” for the MS and Me Radio Network, co-wrote the book, “Despite MS, to Spite MS,” and in 2015 were inducted into the National MS Society Volunteer Hall of Fame for Advocacy.

Dr. Terry Wahls Broken Brian series: http://click.brokenbrain.com/SHY Foursigmatic: http://www.Foursigmatic.com/peak Organifi: http://www.Organifi.com code “peakmind” Follow @michaeltrainer and @drterrywahls and share with us what you found most valuable 7:30 Progressive MS diagnosis 8:00 Wheelchair bound and degeneration 8:50 What are mitochondria? Cellular energy that drive the fuel fo the body and brain 9:34 Shrinking brain and spinal cord, role of mitochondria 10:00 Supplement cocktail, B complex, Creatine, CoQ10 11:43 Deeper understanding of what you can do to support your mitochondria 12:17 Tracking down nutrients to where they fall in the food supply 12:43 Highly structured Paleo Diet 13:03 When I reorganized my diet.. my energy was improving, my mental clarity was improving, within 3 months I was getting out of a wheelchair… at nine months I got on my bike and I biked around the block.” 13:55 Learning to take each day as it comes, one day at a time 14:59 That is the day I came back and I was changing the way I was practicing medicine 15:34 I am going to teach you on to eat to feed your brian 16:30 Could you replicate the miracle? 17:29 Decreasing fatigue and optimizing health 19:24 Going back to the way human living a very long time ago 21:48 Eliminate wheat and dairy to reduce inflammation 22:00 Essential building blocks 22:36 What my brain cells need- get rid of sugar, inflammatory triggers 23:00 Protocal: Green leafy vegetables, sulfur rich vegetables, cabbage and onions help us clean house - and support in intra-cellular glutiathione - and make neurotransmitters that are very calming, mushrooms - helps tone down infections 25:24 Mushrooms for bio-remediation and lions maine - produce BDNF that tell the brain to repair and rebuild itself 26:00 Colored foods, and benefits of blueberries - 9 cups of vegetables, 3 cups of leafy greens, 3 cups of sulfuric vegetables - three full dinner plates through the course of the day 28:46 Organ Meat and the virtue therein 31:23 Integrate these concepts and save money at the same time 33:45 Urban agriculture 34:33 Tricks at the end of farmers market - food for a deal 36:12 Plan to eliminate food waste 37:17 Indigenous communities and their zero-waste precedent 37:33 The Wahls Protocal 37:47 Integrating seaweed - raw, cooked, and fermented vegetables 38:50 Get rid of sugar, white flour, and increase the vegetables 39:55 The more vegetables you eat the greater the decrease in most disease 40:00 3 weeks to mitigate against the cheat. 100 days no cheating. 44:50 Pesticides and chemical agents - toxicity to mitochondria and brain - multitude of toxins 46:26 Boost the detoxification pathway 49:50 Your why - teaching kids to be emotionally and economically strong // resilient 50:00 The pleasant life, the good life 53:00 Purpose as the core of health - meaning is central 54:25 Death as a great clarifier in life 54:45 Virtue of proper stress, combining it with relaxation 56:16 Centrality of movement 58:00 Centrality of sleep // sleep too much could be depression or hormonal problems 1:01 Know how to cook 1:05 You can come back using diet and lifestyle -

March 28th is Progressive MS Day. While only about 15% of the people diagnosed with MS are initially given a diagnosis of Primary Progressive MS, about 65% of the people who are diagnosed with relapsing-remitting MS will eventually develop Secondary Progressive MS. And the difference between progressive MS and relapsing-remitting MS is that, usually, people diagnosed with Progressive MS don't experience any remission in their disease progression. Their MS just seems to worsen more steadily over time.   And while we have more than a dozen approved disease-modifying therapies for relapsing-remitting MS, we have just one approved disease-modifying therapy for progressive MS. So using Progressive MS Day to highlight the need for more research, more treatments, and more attention to be paid to this less popular but more devastating MS sub-type is important.     My guest on the podcast is Kevin Reid, who was diagnosed with relapsing-remitting MS in 2002, and is now living with progressive MS. We'll get Kevin's thoughts about Progressive MS Day and hear about his very successful efforts as an MS Warrior.   We're also talking about a stem cell clinical trial aimed at progressive MS (the National MS Society has invested $1 million in this clinical trial), why neurologists don't seem to be following the recommended guidelines for treating older people living with progressive MS, you'll hear about a couple of excellent MS Association of America webinars and podcasts that focus on the impact of MS on families, and a global webcast that's being hosted by the MS International Federation, featuring some of the top progressive MS experts in the world -- it's a webcast that you won't want to miss.   We have a lot to talk about! Are you ready for RealTalk MS?!   ___________ Progressive MS Day  1:45 MSAA Webinars & Podcasts Focus on Impact of MS on Families  4:31 Neurologists Aren't Following One Particular MS Treatment Guideline  6:10 National MS Society Funds New Clinical Trial Using Individuals' Own Stem Cells to Treat Progressive MS  9:31 In Global Webcast, Top Experts Will Discuss Solving Progressive MS: Progress Achieved and Hope for the Future 11:09 My Interview with Kevin Reid  14:06 Join the RealTalk MS Conversation  27:11 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email: jonstrum@RealTalkMS.comPhone: (310) 526-2283 ___________ LINKS If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Give RealTalk MS a Rating & Review Podcast: Exploring Relationships & MS with Miriam Franco, MSW, PsyD, MSCS Webinar: Intimacy & Family Planning with MS with Kimberly Castelo, LMFT, CST, CIIP Webinar: The Partnership of Care: Redefining Caregiver to Care Partner with Megan Weigel, DNP, ARNP-c, MSCN Podcast: Spotlighting Care Partner Needs with Lara Krawchuk, MSW, LCSW, MPH Use and Cost of Disease-Modifying Therapy Between 2008 and 2009: Are Neurologists Adhering to Treatment Guidelines?   National MS Society Funds New Clinical Trial of Individuals' Own Stem Cells to Treat Progressive MS   Solving Progressive MS Global Webcast Registration   Crush MS ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 83 Hosted By: Jon Strum Guest: Kevin Reid Tags: MS, MultipleSclerosis, MSResearch, mssociety, ProgressiveMS, MSAssociation, MSIF, CrushMS, Stemcells, RealTalkMS

Can you imagine waking up one day then being diagnosed with a condition that puts you into a wheelchair for the rest of your life? Although, Wikipedia lists Multiple Sclerosis as an incurable disease, today we're here with a remarkable woman who was sentenced to a life in a tilt-recline wheelchair with progressive MS... and went on to defy her diagnosis and reverse her condition with real food and lifestyle intervention. Today, Dr. Terry Wahls bikes to work, speaks all over the country, and teaches others how to heal conditions commonly considered to be untreatable with cutting-edge science and a healthy dollop of good old common sense. Also joining us for this interview is Caroleen Moise, the producer and director of Defying All Odds, a new documentary featuring the story of Dr Terry Wahls' astonishing recovery from Progressive MS. On this show you're going to learn about: The body's remarkable ability to heal itself and defy the odds Why more than a dozen new scientific studies are testing food as medicine The new documentary dedicated to Dr. Wahl's journey from rebel to visionary And tons more… Let's go hang out with Dr. Wahls. Read the full show notes: https://fatburningman.com/dr-terry-wahls-recovering-from-progressive-multiple-sclerosis-with-food-as-medicine/

Can you imagine waking up one day then being diagnosed with a condition that puts you into a wheelchair for the rest of your life? Although, Wikipedia lists Multiple Sclerosis as an incurable disease, today we're here with a remarkable woman who was sentenced to a life in a tilt-recline wheelchair with progressive MS... and went on to defy her diagnosis and reverse her condition with real food and lifestyle intervention. Today, Dr. Terry Wahls bikes to work, speaks all over the country, and teaches others how to heal conditions commonly considered to be untreatable with cutting-edge science and a healthy dollop of good old common sense. Also joining us for this interview is Caroleen Moise, the producer and director of Defying All Odds, a new documentary featuring the story of Dr Terry Wahls' astonishing recovery from Progressive MS. On this show you're going to learn about: The body's remarkable ability to heal itself and defy the odds Why more than a dozen new scientific studies are testing food as medicine The new documentary dedicated to Dr. Wahl's journey from rebel to visionary And tons more… Let's go hang out with Dr. Wahls. Read the full show notes: https://fatburningman.com/dr-terry-wahls-recovering-from-progressive-multiple-sclerosis-with-food-as-medicine/

No matter what sort of challenge a caregiver may be facing -- financial, emotional, or just trying to find the right resources at the right time, every caregiver challenge is made more difficult by that accompanying feeling of isolation that so many caregivers experience. My guest is Heidi Telschow, manager of Fairview Health Services' Caregiver Assurance program, a unique program designed to seamlessly connect caregivers to the resources they need.      We're also talking about the eye-popping increase in the prevalence of MS in the United States, now reaching nearly one million adults. We'll tell you about a study that shows how the early use of more intensive MS disease-modifying therapy may provide better outcomes for people living with MS, you'll hear about an Innovation Challenge that could reward your inner entrepreneur with $25,000 in cash, and we'll tell you why the FDA has been asked to fast-track a cannabis-based treatment for spasticity in progressive MS.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ STUDY: MS Prevalence In the United States Nears 1 Million  2:18 STUDY: Long-Term Benefit Seen in Early Use of More Intensive   Disease-Modifying Therapy  5:42 Lyfebulb-Celgene Innovation Challenge in MS  9:04 FDA Requested to Fast-Track Cannabis-Based Treatment for Spasticity in Progressive MS  10:43 My Interview with Heidi Telschow from Caregiver Assurance  12:36 ___________ ADD YOUR VOICE TO THE CONVERSATION I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts! Email:  jonstrum@RealTalkMS.comPhone: (310) 526-2283 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android A New Way to Estimate Neurologic Disease Prevalence in the United States Illustrated with Multiple Sclerosis Validation of an Algorithm for Identifying MS Cases in Administrative Health Claims Datasets The Prevalence of Multiple Sclerosis in the United States: A Population-Based Estimate Using Health Claims Data RealTalk MS Episode 74: Induction vs Escalation Therapy with Dr. Aaron Boster Clinical Outcomes of Escalation vs Early Intensive Disease-Modifying Therapy in Patients With Multiple Sclerosis Application for Lyfebulb-Celgene Innovation Challenge in MS Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 79 Hosted By: Jon Strum Guest: Heidi Telschow Tags: MS, MultipleSclerosis, MSResearch, TwiceAsMany, Lyfebulb, Caregiving, RealTalkMS

The holiday season seems to carry with it the message of hope, and of finding the best side of who we are. So one of the gifts that I'm going to unwrap with you is a replay of a conversation that I had earlier this year, with 2 people who epitomize hope, humanity, and love. To me, that's what the holiday is all about, and that's what Dan and Jennifer Digmann are all about.    Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005.   We'll get Dan and Jennifer's thoughts about what life is like when both partners in a marriage have been diagnosed with multiple sclerosis.      We'll also tell you about the research team that may have identified a biomarker for MS (and why that's a very good thing!). We'll share the results of the Phase III clinical trial data analysis that demonstrates that treatment with Ampyra improves walking ability for people living with MS, we'll tell you about the FDA approval of a Phase II clinical trial for a novel stem cell therapy, and you'll hear about the clinical trial that's about to begin for a new cannabinoid-enriched tablet that can help manage MS pain and spasticity.   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Possible Biomarker for MS Identified   1:51 STUDY: Treatment With Ampyra Improves Walking Ability  5:27 FDA Approves Phase 2 Clinical Trial for NurOwn Stem Cell Therapy  7:57 Clinical Trial Planned for Cannabinoid-Enriched Tablet  9:35   My Interview with Dan & Jennifer Digmann  11:02 ___________ LINKSIf your podcast app doesn’t allow you to click on these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android Possible Biomarker for Multiple Sclerosis Identified Assessment of Clinically Meaningful Improvements in Self-Reported Walking Ability in Particpants with Multiple Sclerosis: Results from the Randomized, Double-Blind, Phase III ENHANCE Trial of Prolonged-Release Fampridine OWC Pharmaceutical Research Corp. Reports the Successful Production of Cannabinoid-Enriched Sublingual Disintegrating Tablet Dan and Jennifer Digmann Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 70 Hosted By: Jon Strum Guest: Dan & Jennifer Digmann Tags: MS, MultipleSclerosis, RealTalkMS, Ampyra, Cannabis, MSResearch, DanandJenniferDigmann

We're 2 weeks away from an event that's going to have an impact on every person in the United States who's living with MS...or any other chronic illness. Because in 2 weeks time - on November 6th - an election's taking place, and healthcare is on the ballot. Maybe not directly...maybe not explicitly...but make no mistake, the choices that voters in America make on election day are going to have a huge affect on our access to healthcare, the cost of healthcare, and the protection that exists today for people living with pre-existing conditions.     That's why I'm launching the MS Congressional Report Card. It's an easy way for you to see whether your elected representatives in Congress have supported you and others affected by MS. Every member of Congress has received a letter grade based upon what they did -- or didn't do -- to support people affected by MS. You'll be able to see exactly how well your Representatives and Senators have supported the issues that directly affect you. And then, with that knowledge in hand, you'll be ready to cast your vote on November 6th.    We're also talking with my special guest, MS Activist Karen Jackson, about access issues when it comes to casting your vote. We'll tell you about a documentary film that features a new way of interpreting the many sides of living with MS, a possible predictor of brain atrophy in Progressive MS, a new framework for examining how exercise impacts neuroplasticity, and more!   We have a lot to talk about! Are you ready for RealTalk MS?! ___________ Introducing the RealTalk MS Congressional Report Card  1:50 A New Documentary -- "Seeing MS from the Inside Out"  5:29 Neurofilament Light Chain Level as a Predictor of Brain Atrophy in Progressive MS  8:38 Conceptual Framework Proposed to Examine Role of Exercise in MS  11:00   Interview with MS Activist Karen Jackson  13:15 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com Download the RealTalk MS App for iOS Download the RealTalk MS App for Android RealTalk MS Congressional Report Card Video: "Seeing MS from the Inside Out" Neurofilament Light Levels in the Blood of Patients with Secondary Progressive MS are Higher than in Primary Progressive MS and May Predict Brain Atrophy In Both MS Subtypes Integrative CNS Plasticity with Exercise in MS: The PRIMERS (Processing, Integration of Multisensory Exercise-Related Stimuli) Conceptual Framework   Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 61 Hosted By: Jon Strum Guest: Karen Jackson Tags: MS, MultipleSclerosis, MSActivist, MSInsideOut, KesslerFdn, RealTalkMS

MS Research Australia has published a report titled, Health Economic Impact of Multiple Sclerosis in Australia 2017. The report provides a detailed snapshot of the economics behind MS, looking at employment, quality of life issues, and even calculating the cost per person living with MS in Australia. The report concludes with some powerful recommendations for future steps.   My guest is Dr. Lisa Melton, Head of Research at MS Research Australia, and we're talking about what this report is telling us, what it's recommending, and how we transition those recommendations into actionable steps.   We're also talking about some good news for people living with progressive MS -- the extremely positive outcome of the Phase 2 clinical trial for Ibudilast. We'll tell you about a couple of upcoming educational webinars about Ocrevus and primary progressive MS, and Ocrevus and relapsing remitting MS. We'll update you on the latest news about Phase 2 clinical trials for cannabis-based medications to treat MS, you'll get a heads-up about a very sneaky (and very dangerous) piece of legislation that is potentially devastating to people living with MS in the U.S., and we'll tell you how you can catch an online video of last week's Progress in MS Research: Live Update 2018 presentation in Australia. We have a lot to talk about! Are you ready for RealTalk MS? ___________ Ibudilast Clinical Trial Shows Unprecedented Slowing in Brain Atrophy in Progressive MS  1:11 Upcoming Ocrevus Educational Webinars  3:17 MMJ Intl Asks FDA to Approve Cannabis-MS Study  4:22 Pre-Existing Conditions Bill is Healthcare Wolf in Sheep's Clothing  5:34 Progress in MS Research Lie Update 2018  11:33 Interview with Dr. Lisa Melton 12:30 ___________ LINKSIf your podcast app doesn’t show these links, you’ll find them in the show notes at www.RealTalkMS.com Phase 2 Trial of Ibudilast in Progressive Multiple Sclerosis Upcoming Ocrevus webinars Legal Brief Filed in U.S. District Court by the National MS Society, American Cancer Society, the American Diabetes Association, the American Heart Association, and the American Lung Association Ensuring Coverage for Patients with Pre-Existing Conditions Act Video: Progress in MS Research Live Update 2018 Report: Health Economic Impact of Multiple Sclerosis in Australia 2017 Give RealTalk MS a Rating & Review ___________ Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 51 Hosted By: Jon Strum Guest: Dr. Lisa Melton Tags: MS, MultipleSclerosis, MSResearch, MSResearchAustralia, Ibudilast, ClevelandClinic, CleClinicNews, Ocrevus, Cannabis, MMJInternational, PreExistingConditions, Prexxatstake, RealTalkMS

Progressive forms of MS are characterized by a sustained build-up of symptoms with an insidious increase in disability. With Primary Progressive MS (PPMS) in particular, disability accumulates twice as fast as in those with Relapsing MS (RMS). This means that people with PPMS experience more problems with walking, more difficulty remaining in the workforce, and require more assistance with everyday activities.Ben Thrower, MD and the medical director of the MS Institute at Shepherd Center, discusses maintaining a healthy lifestyle with progressive MS.

March is MS Awareness Month, and tomorrow we'll be observing the first ever Progressive MS Day, which is being celebrated by several MS advocacy groups and state governments around the United States. My guests on the podcast are Dan and Jennifer Digmann.  Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005.  Together, Dan & Jennifer write an award-winning MS blog, they host the A Couple Takes On MS podcast on the MS & ME Radio Network, they've co-authored a book entitled, Despite MS, to Spite MS, and in 2015, they were inducted into the National MS Society Volunteer Hall of Fame for Advocacy.  We'll talk with Dan & Jennifer Digmann and get their thoughts about Progressive MS Day, and on what life is like when both partners in a marriage have been diagnosed with multiple sclerosis. ____________   1:42     Managing MS Pain Through Mindfulness   4:50     Improving Cognitive Processing By Walking On a Treadmill   6:11     The Importance of Sleep in MS Symptom Management   9:57     Progressive MS Day With Dan & Jennifer Digmann ____________   LINKS   If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com   Association Between Pain & Mindfulness in Multiple Sclerosis   Guided Mindfulness Meditation for Pain Relief by Jon Kabat-Zinn   Treadmill Walking & Brain Function in Multiple Sclerosis   Poor Sleep in Multiple Sclerosis   Importance of Sleep in Multiple Sclerosis   Dan & Jennifer Digmann   A Couple Takes On MS Podcast   Despite MS, To Spite MS ____________   For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.   RealTalk MS Episode 25 Guests: Dan & Jennifer Digmann Hosted By: Jon Strum   Tags: Progressive MS Day, MS, multiple sclerosis, Dan and Jennifer Digmann, MS pain, Mindfulness, MS and cognition, MS and sleep, MS podcast, RealTalk MS    

Luke 23:28 NLT But Jesus turned and said to them, “Daughters of Jerusalem, don’t weep for me, but weep for yourselves and for your children.” There is a great challenge in disentangling good advice from future proofing against disaster. As I entered the unstable world of Christian youth work after finishing at Oxford, my father was angry. He observed me throwing away my opportunity for a secure future, or one he defined as such. He wasn’t a Christian and the anxiety must have been overwhelming. It had a negative impact on our relationship which lasted for years. I have subsequently experienced similar emotions as my daughter has pursued her path into the entertainment industry, which offers little by way of secure, well-paid jobs. Like my father, I ponder how much she may regret my lack of a steer into a more stable lifestyle. Jesus makes his way towards crucifixion. Women who had faithfully followed him now wept at the sight of a brutalised Jesus. Yet, he reminds them in the starkest possible way that life offers no guarantees of either happiness or fulfilment. We are to learn to be wholly present in each moment and consult with God about what steps we are to take ahead of each tomorrow. One clear lesson from accompanying Katey with MS was that each day was to be enjoyed for what it offered. Our plans for our future had turned to ashes. Progressive MS had no trustworthy prognosis, so we lived in the moment. What was the purpose of setting anything aside for a tomorrow we might not enjoy together? This lesson challenged so many of my own deeply embedded insecurities. The only future proofing is the kind Jesus describes. We are to prepare our hearts by exploring how we can deepen our trust and confidence in Jesus. In this way we shall navigate our future, whether tomorrow brings sunshine, showers or a mighty storm. QUESTION: How much effort do you make in trying to make your life safe and secure? PRAYER: Lord, teach me how to be wise in my present but trusting you for my future.

Multiple Sclerosis, or MS, affects hundreds of thousands of people. It's a condition where the body's own immune system attacks a protective layer around nerve fibres called myelin. This prevents messages being conveyed quickly and faithfully through the brain producing symptoms that can include difficulty with vision, movement, speech, balance and sensation. In recent years scientists have begun to explore the use of stem cells to combat the progression of the disease. As author Stefano Pluchino, from Cambridge University, explained to Chris Smith. Like this podcast? Please help us by supporting the Naked Scientists

Multiple Sclerosis, or MS, affects hundreds of thousands of people. It's a condition where the body's own immune system attacks a protective layer around nerve fibres called myelin. This prevents messages being conveyed quickly and faithfully through the brain producing symptoms that can include difficulty with vision, movement, speech, balance and sensation. In recent years scientists have begun to explore the use of stem cells to combat the progression of the disease. As author Stefano Pluchino, from Cambridge University, explained to Chris Smith. Like this podcast? Please help us by supporting the Naked Scientists

While we're tracking the breakthroughs and discoveries that move us closer to solving the riddle of multiple sclerosis, it's also important to remember that people living with MS need help today. Some of them need help with even the most basic sorts of daily tasks. My guests on the podcast are Angela Lett and Alison Payne from Helping Hands, a non-profit organization that helps adults with MS and other mobility impairments live independent lives by providing them with a very special service animal -- a highly trained capuchin monkey -- to live in their home and assist them with the tasks of everyday living.   We're also talking about how 3D printing technology is paving the way for  important MS research.  And we're talking about the cutting-edge research by an award-winning neuroscientist who is investigating the effects of aging on mylenation. And Canadian researchers may have identified an anti-depressant that can be re-purposed to treat Progressive MS. We have a lot to talk about! So are you ready for RealTalk MS?

Sometimes, important breakthroughs can come from unexpected places. This week, our guest is Oded Ben Dov, an Israeli game developer who ended up creating life-changing technology designed to help people living with MS, ALS, and other disabilities. We're talking about some exciting news in Progressive MS research. We're also talking about a possible treatment for MS fatigue. Researchers in Australia have patented a molecule that's designed to protect the central nervous system and support myelin repair. And we'll tell you about a chewing gum that offers the controlled release of cannabinoids to treat MS pain and spasticity.  We have a lot to talk about! So are you ready for RealTalk MS?

Last week, more than 9,000 MS research scientists, physicians, and pharmaceutical industry experts attended ECTRIMS-ACTRIMS, the largest annual international MS research conference in the world. And we're devoting this week's podcast episode to talking about what they were talking about! Welcome to the RealTalk MS ECTRIMS Round-Up! You'll find out about how the "official" number of people with MS in the United States is now more than double what it was before last week. We'll talk about some of the sobering socio-economic effects of MS on women. We'll look at new data from studies on treating Progressive MS, and we'll discuss some of the cutting-edge research study results that were announced while we try to identify some of the most promising new information that was released at ECTRIMS.  We've got the news, views, interviews & breakthroughs that are important to you. So...are you ready for RealTalk MS?

This week, RealTalk MS is all about MS research. We often hear about some of the important outcomes of MS research. New drugs, like Ocrevus, are introduced. New information, like the connection between gut bacteria and MS, is published. But how and where does an MS research project get its start? How does it get funded? How much multiple sclerosis research is actively taking place today?    Jon's guest this week is Dr. Bruce Bebo, Executive Vice President of Research at the National Multiple Sclerosis Society. Since its inception, the National MS Society has invested more than $900 million dollars in MS research. Jon and Bruce discuss the key research priorities that the MS Society has identified, and then take you on a step-by-step "behind the scenes" look at exactly how the National MS Society evaluates and funds MS research.   We'll also be talking about a new law in California that represents a giant leap forward in creating transparency in prescription drug prices. Over the past decade, the cost of prescription drugs for treating MS has risen at a sharply  alarming rate. This new law may serve as a blueprint for other states to follow. And we'll give you a heads-up on an upcoming live webcast from ECTRIMS in Paris (the largest conference in the world dedicated to the understanding and treatment of  MS), where you'll be updated by a group of amazing researchers leading breakthrough Progressive MS research. We've got the news, views, interviews & breakthroughs that are important to you. So...are you ready for RealTalk MS?

This week's episode focuses on some of the cutting edge research being done in the Progressive MS arena. Jon's guest, Dr. Tim Coetzee, Chief Advocacy, Services & Research Officer at the National Multiple Sclerosis Society, takes us through the work of the International Progressive MS Alliance. Jon and Tim also talk about Ocrevus -- the very first drug to receive FDA approval for the treatment of Progressive MS, and what that means for future Progressive MS drug therapy. We'll also be talking about a new research study at Duke University that will be taking full advantage of your iPhone to capture your individualized data, and we'll be letting you know how you can register for that study. And last week, the FDA approved a higher dosage generic version of Copaxone. Generic Copaxone isn't really new...but the higher dosage is, and we'll be talking about why that might be good news for the thousands of people currently using Copaxone. We've got news, views, interviews & breakthroughs in the MS world. Are you ready for RealTalk MS?

Did you know that approximately 50 million Americans, 20 percent of the population or one in five people, suffer from autoimmune diseases?  And women are more likely than men to be affected; some estimates say that 75 percent of those affected–some 30 million people–are women. That's why on today's episode I have a special guest, Dr. Terry Wahls, author of the popular book The Wahls Protocol: How I Beat Progressive MS Using Paleo Principles and Functional Medicine.  She and I delve into her early childhood and the health issues that led to Terry's progressive illness, along with Terry's big "ah-ha!" moment that led to her creating the Wahls Protocol. There is just so much in this episode, I hope you have pen and paper ready. In today's episode, you'll learn... Why Dr. Wahls prefers ketones derived from medium chain triglycerides versus dairy products; The problems with cesarean birth, our gut microbiome, and ketosis; Terry's #1 tip for optimal health, and... Much, much more. Subscribe on  iTunes | Stitcher Radio | Google Play | SoundCloud Episode Breakdown Terry shares stories of her early childhood and the health issues that led to her progressive illness Why Terry says she stopped reading medical material for five years  How a simple supplement cocktail allowed Terry to get out of bed and go to work What the current teaching of progressive MS is and what you'd typically expect Terry's radical change to eating Paleo in 2002 Why Terry wanted to grow more muscle on her legs through electrical stimulation The struggles of taking a course on neuroprotection from the Institute for Functional Medicine Terry's big "ah-ha!" moment (10:38) How the University of Google helped Terry find a list of 20 foods that would then lead to what we now know as The Wahls Protocol How The Wahls Protocol is different than the typical paleo diet Why its important to shift our environment into a habitat that's more closely aligned to our hunter-gatherer kin Why Terry tells people to, "Think about where your ancestors came from." Terry reviews the history of life on our planet Why Dr. Wahls says our health declines as we lose the diversity of our gut microbiome Why Terry is more fond of the medium chain triglyceride (MCT) ketogenic diet rather than the dairy-based ketogenic diet Dr. Wahls favorite source for MCT Why Terry doesn't use red palm oil Why Terry says she only eats once a day, or, every other day Why those with ApoE4 gene expression do not want to use coconut oil or saturated fats (and what to use instead) Why Dr. Wahls prefers a diet that is higher in resistance starch and fiber Terry contrasts the diets of typical sugar burners versus that of a primal fat burner The therapeutic use of ketogenic diets in the early 1900's Why Dr. Wahls says you should consume ketone bodies from MCT rather than from dairy Why Terry says if you're wanting to become a mom or dad, why you may not want to be in ketosis What is "metabolic flexibility?" What might happen if Dr. Wahls were to eat even a small amount of bread or dairy Why Dr. Wahls practices cold thermogenesis and spends time in the sauna The types of movement Terry likes to engage with The differences between being born vaginally versus being born via c-section Issues with going low-carb high-fat Why Terry is confident that the MCT oil-based keto diet is less stressful than the dairy-based keto diet Why Terry adds seaweed to her diet but cautions against eating too much James gets the personal opinion of Dr. Wahls on his own eating strategy and what that exactly looks like Why Terry has a goal of eating 200 different plant species a year (and why you should, too) Shinrin-yoku or forest bathing Terry gives practical tips on how to begin healing yourself of chronic autoimmune disorders with the power of whole foods Why Terry says that as soon as you begin to think you have the corner on the truth, you are now completely wrong. The one piece of advice Terry says everyone, including myself, should be doing on a consistent basis for better health

Miracle Moment – Progressive MS “I’m looking down at my feet as I walk and thinking, “Wow, I’m picking up my feet. I’m not shuffling. It’s been ten years since I was able to walk like this.” Mary Munger has … Continue reading → The post “I Used to Crawl Upstairs,” Says Mary (Progressive MS) appeared first on BLIND FAITH LIVE ! Real People. Real Miracles..

For Beyond 50's "Natural Healing" talks, listen to an interview with Dr. Terry Wahls. She offers hope for those suffering from autoimmune diseases who have tried everything to no avail. Dr. Wahls will educate about her integrative approach to healing chronic autoimmune conditions by a doctor, researcher, and sufferer of progressive Multiple Sclerosis (MS) who reversed her own MS symptoms by following the Paleo Diet principles and Functional Medicine. Tune in to Beyond 50: America's Variety Talk Radio Show on the natural, holistic, green and sustainable lifestyle. Visit www.Beyond50Radio.com and sign up for our Exclusive Updates.

There has been dramatic progress in the understanding and treatment of relapsing remitting multiple sclerosis, a debilitating neurodegenerative disorder. But progressive MS, a more advanced form of the disease, has remained elusive. Now, a novel collaboration has brought an international group of MS societies together to fund research. We spoke to Bruce Bebo, executive vice president of research for the National MS Society and a member of the Progressive MS Alliance, about the intractability of progressive MS, how the unusual cooperation between MS groups came about, and whether the alliance will stand as a model for groups working in other disease areas looking to get the most out of their research investments.

Like many doctors, this weeks guest focused on treating her patients’ conditions with drugs or surgical procedures. However, this all changed after being diagnosed with multiple sclerosis in 2000 which turned out to be the catalyst for a huge shake up. We know that many of our listeners at home first discovered Paleo through experiencing Listen In The post TPS 68: Dr Terry Wahls – Beating Progressive MS Using Paleo Principles and Functional Medicine appeared first on The Wellness Couch.