Podcasts about mmrf

I met Dr. Nina Shah on an MMRF trek through Iceland with myeloma patients, caregivers, doctors, and researchers. She shortly after became my doctor while I did an experimental CarT trial and through the process became a friend. She is currently Global Head of Multiple Myeloma Clinical Development and Strategy at Astrazeneca where she seeks better treatments and ultimately a cure for myeloma patients like me. I hope you enjoy this conversation about innovation and leadership.

Kathy Giusti, founder of the Multiple Myeloma Research Foundation (MMRF) and a two-time cancer survivor, opens up about her first diagnosis and the life-changing conversation with her primary care doctor. She reflects on the overwhelming "age of information," which often leads patients to more questions than answers, and shares her strategies for dealing with the loss of control that comes with a cancer diagnosis. Kathy also talks about the importance of identifying what truly matters, placing personal priorities in plain sight as daily reminders. She delves into the potential next breakthrough in multiple myeloma research, her success in engaging patients in MMRF's direction, and offers heartfelt advice for families on when and how to tell children about a cancer diagnosis, as well as other important points through the cancer journey, drawing from her own deeply personal experiences. Read more about the Kathy Giusti story. https://www.statnews.com/2024/09/03/multiple-myeloma-kathy-guisti-fatal-to-fearless-patient-advocate-research-fundraiser/ Find out more about Kathy's book “Fatal to Fearless.” https://www.kathygiusti.com/book Check out Chadi's website for all Healthcare Unfiltered episodes and other content. www.chadinabhan.com/ Watch all Healthcare Unfiltered episodes on YouTube. www.youtube.com/channel/UCjiJPTpIJdIiukcq0UaMFsA

Do you wish there was a cancer handbook? Do you ever sit and try to find a community or wonder why your cancer didn't come with an operator's manual? If you feel like you are all alone and utterly unequipped for your cancer journey, this episode is for you!My guest today is Bill C. Potts, who is a five-time cancer survivor, six-time cancer thriver, IRONMAN triathlete, and motivational speaker. His book, "Up for the Fight, How to Advocate for Yourself as You Battle Cancer from a Five-Time Survivor" is like "What to Expect When You're Expecting" - but for cancer. The book is supported by MD Anderson, Mayo Clinic, The LLS, and the MMRF. The book will improve the journey of cancer patients and their families. In this episode, Bill and I dissect his 20-year journey with cancer and how he is using his experience to help others have more hope and more understanding in their journey. This episode is full of powerful insight, so be sure to listen!Together we unpack:The start of Bill's cancer story (3:23)Chornobyl level iodine radiation (4:58)Being escorted out of the doctor's office (6:27)Becoming an early adopter of immunotherapy (7:45)Advocating for yourself and Up for the Fight (9:36)Bill's perspective on his incurable lymphoma (12:14)Bill's reason to fight (14:00)Diving into Bill's legacy and the view of his family (16:09)Having a buddy and support system on your side (19:23)Bill's most significant takeaway from his 20-year cancer journey (21:52)The impact of being an Iron Man (23:30)Are you up for the fight? This episode with Bill was so impactful; we hope it left you feeling more hope as well! Say hello on Insta and let me know how this conversation with Bill impacted you on your Grateful Warrior journey. Let's connect more! Connect with Bill C. Potts:Book - Up for the FightWebsite Connect with Holly: REGISTER FOR THE *FREE* PRIVATE PODCAST SERIESFollow Holly Bertone on Instagram On the web - Fortitude.Academy If today's episode resonated with you, be sure to hit the follow button where you are listening and also tap those 5 stars ⭐⭐⭐⭐⭐ and leave a great review because it would mean so much to me to hang out with you every week and because it will also help to get this podcast and our wonderful message out to more listeners! Thanks for tuning in to this episode and I'll see you next week!

Despite significant advances in molecular profiling and treatments for multiple myeloma, patients with high-risk and ultra high-risk disease still have... The post MMRF-CoMMpass: the genomic basis of myeloma subtypes appeared first on VJHemOnc.

Despite significant advances in molecular profiling and treatments for multiple myeloma, patients with high-risk and ultra high-risk disease still have... The post MMRF-CoMMpass: the genomic basis of myeloma subtypes appeared first on VJHemOnc.

Daniel Auclair, MD, Chief Scientific Officer of the Multiple Myeloma Research Foundation (MMRF), discusses the foundation's history and what they are currently doing to progress multiple myeloma research.

Anne Quinn Young, MPH, Brand President of the MMRF discusses CureCloud, their latest platform designed to provide myeloma patents with their own genomic profile while building a database that combines genomic insights with clinical data to identify trends and support further developments. The CureCloud mission is to find and develop cures for all myeloma patients based on the fact that all patients can contribute to cures and each patient can benefit from the masses. Anne Quinn Young, MPH, is the Brand President at the MMRF and is responsible for overseeing the strategy and execution of the organization's marketing, communications, patient engagement, and fundraising efforts in support of the organization's mission to accelerate precision medicine and a cure for every patient. Anne has been named to the PharmaVoice 100, and represents the MMRF on a number of working groups and committees including the Direct-to-Patient (DTP) solutions team at the Harvard Business School (HBS) Kraft Precision Medicine Accelerator and the Cancer Support Community Frankly Speaking About Cancer: Multiple Myeloma National Advisory Board. She has co-authored a number of peer-reviewed abstracts and publications on the MMRF Precision Medicine Model and identifying knowledge gaps and opportunities to improve patient empowerment and engagement in optimizing their own outcomes. Prior to joining the MMRF in 2002, she was a consultant in the Healthcare Practice of Datamonitor, a global market research and business intelligence company. She previously worked in healthcare public relations at Burson-Marsteller and the Chandler Chicco Agency, following a postgraduate internship at the Department of Justice, Antitrust Division. Anne has a Masters of Public Health from the Mailman School of Public Health of Columbia University and graduated cum laude from Dartmouth College with a Bachelor of Arts in Government. #MultipleMyeloma #MMRF #CureCloud

Anne Quinn Young, MPH, is the Brand President at the MMRF and is responsible for overseeing the strategy and execution of the organization's marketing, communications, patient engagement, and fundraising efforts in support of the organization's mission to accelerate precision medicine and a cure for every patient. Anne has been named to the PharmaVoice 100, and represents the MMRF on a number of working groups and committees including the Direct-to-Patient (DTP) solutions team at the Harvard Business School (HBS) Kraft Precision Medicine Accelerator and the Cancer Support Community Frankly Speaking About Cancer: Multiple Myeloma National Advisory Board. She has co-authored a number of peer-reviewed abstracts and publications on the MMRF Precision Medicine Model and identifying knowledge gaps and opportunities to improve patient empowerment and engagement in optimizing their own outcomes. Prior to joining the MMRF in 2002, she was a consultant in the Healthcare Practice of Datamonitor, a global market research and business intelligence company. She previously worked in healthcare public relations at Burson-Marsteller and the Chandler Chicco Agency, following a postgraduate internship at the Department of Justice, Antitrust Division. Anne has a Masters of Public Health from the Mailman School of Public Health of Columbia University and graduated cum laude from Dartmouth College with a Bachelor of Arts in Government. Support the show: https://theanswersandiego.com/radioshow/8349 See omnystudio.com/listener for privacy information.

Host of FOX Business Network's The Claman Countdown, Liz Claman is joined by Kathy Giusti, the founder of The Multiple Myeloma Research Foundation (MMRF) and Faculty Co-Chair of The Harvard Business School Kraft Precision Medicine Accelerator. Giusti shares how her background in pharmaceuticals and her own cancer diagnosis inspired the creation of her foundation. Kathy also discusses how the MMRF and Harvard Business School are leading innovation in disease research, and the importance of strong data and partnership as the healthcare industry races to find a Coronavirus solution. 

Each year, the Multiple Myeloma Research Foundation (MMRF) hosts its Laugh for Life event, which aims to educate, empower and inspire individuals to raise awareness and funds for multiple myeloma research.   Ahead of its even, CURE spoke with Tina Rettig, a caregiver for her husband,d who was diagnosed with multiple myeloma in 2010. Tina serves as a co-chair for the event, which will be held on May 6, help to fund groundbreaking research initiatives like the MMRF’s most recent Direct to Patient Registry, a cornerstone of its CureCloud (https://themmrf.org/2019/10/multiple-myeloma-research-foundation-mmrf-launches-groundbreaking-direct-to-patient-registry/) .   “One of the big takeaways from (Laugh for Life) is the information that we put out there…(It raises) money, and money leads to research, and research leads to testing new treatments that can be approved,” Rettig said. “And there's no one treatment that fits everybody. So it's important that we have different levels of treatment, and that you can (live with) this disease.”   In addition, we spoke with Andrew Marcelle, and his father, Peter, who was diagnosed with multiple myeloma in 2016. Marcell will be receiving the “Spirit of Hope” award at this year’s event for his work in fundraising for the MMRF.   “It's such a big organization and there's so many people involved with it…(receiving this award) is very humbling and I'm excited for the event,” Marcelle said.   For more information, visit themmrf.org (https://themmrf.org/) .

After helplessly watching his friend, Anita, pass away from Multiple Myeloma (a form of blood cancer), Eric Gelber decided to do something about it. He has raised more than $1.3 million for the Multiple Myeloma Research Foundation by running numerous ultra-marathons around the country. In 2016 Eric completed his most epic adventure by running 200 miles around NYC’s Central Park. Eric and I discuss his relationship with the MMRF, the “200 Mile” documentary, and how he finds the strength to keep moving forward. Special thanks to Allison Goldstein Become a Podcast Patron Check out Personal Record on Twitter, Instagram, Facebook and our website.  Email us with any questions, comments or concerns. Support the show with your very own Custom Personal Record T-shirt.

Booking and press contact: [djostara@gmail.com](mailto:djostara@gmail.com) Life is a journey marked with memorable moments. Ostara believes music matters and plays into all facets of life. She has worked as a DJ in the greater Oklahoma City area since 2000. Ostara believes in giving back to the community she calls home and has been active within artistic and charitable foundations throughout the city. She has provided DJ services and/OR coordinating events for RAINN, MMRF, Rampage Artists, Biting the Apple, Girlie Show and many more.      Ostara's passion for music with soul gives her a multitude of influences to draw from, making her a versatile and engaging entertainer. As an EDM DJ, Ostara brings a love for break beats and house into her mixes. She constantly challenges herself to grow and is known for crossing lines during sets and including electro, trance, and other subgenre variations. From Old School to breaking new beats, Ostara brings an energy that is tangible. Her good nature and professional demeanor have allowed her to play at multiple venues all over OKC, Tulsa, and surrounding areas. She has played in festivals and events in New Mexico, Texas and California. She is also known to provide excellent backdrops for corporate events, private parties, and art openings. Breaks Central Podcast is hosted by [Just10@just10audio.com](mailto:Just10@just10audio.com)

Life is a journey marked with memorable moments. Ostara believes music matters and plays into all facets of life. She has worked as a DJ in the greater Oklahoma City area since 2000. Ostara believes in giving back to the community she calls home and has been active within artistic and charitable foundations throughout the city. She has provided DJ services and/OR coordinating events for RAINN, MMRF, Rampage Artists, Biting the Apple, Girlie Show and many more.  Ostara's passion for music with soul gives her a multitude of influences to draw from, making her a versatile and engaging entertainer. As an EDM DJ, Ostara brings a love for break beats and house into her mixes. She constantly challenges herself to grow and is known for crossing lines during sets and including electro, trance, and other subgenre variations. From Old School to breaking new beats, Ostara brings an energy that is tangible. Her good nature and professional demeanor have allowed her to play at multiple venues all over OKC, Tulsa, and surrounding areas. She has played in festivals and events in New Mexico, Texas and California. She is also known to provide excellent backdrops for corporate events, private parties, and art openings. **[www.djostara.com](www.djostara.com)** [**Twitter:** @djostara](Twitter: @djostara) [**Insta:** djostara](Insta: djostara) [**mixcloud**: mixcloud.com/Ostaradj](mixcloud: mixcloud.com/Ostaradj) [**Facebook**.com/djostara](Facebook.com/djostara) [**Soundcloud**.com/djostara](Soundcloud.com/djostara) Booking and press contact: **[djostara@gmail.com](www.djostara@gmail.com)** Hosted By:[Just10@just10audio.com](Just10@just10audio.com)

In 1996, Kathy Giusti was a business executive with a one-year-old daughter at the peak of her career when she was given a death sentence. She was diagnosed with multiple myeloma, a rare and fatal cancer, and told she had three years to live. Determined to live long enough so her daughter would remember her, Giusti quit her job and founded the Multiple Myeloma Research Foundation (MMRF) with her identical twin sister. More than 20 years later, Giusti is in remission and under her leadership, the MMRF has driven 10 new approved therapies, tripling patient lifespans. And thanks to Giusti, there has been more progress in multiple myeloma than any other cancer in recent history. Giusti also serves as the co-chair of the Harvard Business School Kraft Precision Medicine Accelerator where she is fighting all cancers and changing the world of medicine. Learn more about the MMRF: https://www.themmrf.org/ Follow Kathy on Twitter: @KathyGiusti Follow MMRF on Twitter: @theMMRF Resources Kathy mentioned in 'No Limits' episode: National Institute of Health: Comprehensive Cancer Information: https://www.cancer.gov/ American Society of Clinical Oncology: https://www.asco.org/ American Society of Hematology: http://www.hematology.org/ No Limits Entrepreneur of the week: Daniella Pierson, Founder/CEO The Newsette Learn more about The Newsette: http://thenewsette.com/ Like what we're doing? Leave a review! ----> http://bit.ly/2ks4f90

Special Ironman Lake Tahoe cancellation edition! Hear first-hand accounts of what happened in the days leading up to the race and reactions to the cancellation and consolation prizes. Also, learn more about wildfires, the hazards of exercising in poor air quality, and how the right travel insurance could help you recoup your costs. So sorry, IMLT racers! Resources: Official race cancellation announcement from Ironman: http://www.ironman.com/triathlon/news/articles/2014/09/tahoe-cancellation.aspx#axzz3EAf7OLsp Travel insurance help for destination races: http://www.globalbri.com or email James Smith at jdsmith@globalbri.com Oakland Triathlon Club: http://www.o-towntriclub.com San Francisco Triathlon Club: http://www.sftriclub.org Age grouper Kendra Goffredo’s blog: http://chitoandkgo.com Multiple Myeloma Research Foundation: http://themmrf.org Age grouper Andrew Valko’s blog: http://ironw00t.com LA Times article on arrest of arson suspect and impacts of King Fire: http://www.latimes.com/local/lanow/la-me-ln-arson-arrest-king-fire-northern-california-20140918-story.html SFGate article on causes of California wildfires: http://www.sfgate.com/bayarea/article/What-causes-California-s-most-devastating-5767256.php Current air quality in Bay Area and related resources: http://sparetheair.org Ben Greenfield’s article on exercise and air pollution: http://www.huffingtonpost.com/ben-greenfield/air-pollution-health_b_3277086.html UPI article on Univ. of Edinburgh study on blood clot risk of short-term exposure to air pollution: http://www.upi.com/Science_News/2005/02/21/Study-Air-pollution-thickens-blood/UPI-49751109022547 Mayo Clinic article on exercise and air pollution: http://www.mayoclinic.org/healthy-living/fitness/expert-answers/air-pollution-and-exercise/faq-20058563 Vineman triathlon: http://www.vineman.com Challenge Family long-course races: http://www.challenge-family.com Challenge Rancho Cordova (half), near Sacramento, Oct. 5: http://challenge-ranchocordova.com