Podcasts about lls

In this episode, we speak with Mary Wells, who was diagnosed with primary myelofibrosis in 2018, a rare blood cancer… The post Choosing the Path Forward: Shared Decisions in Myelofibrosis Care first appeared on The Bloodline with LLS.

Dash Miller may not be a CEO, but like many of the people we feature on this show, he is a true leader, he has a vision, and he's executing on his plan.Sometimes life forces you to grow up quickly, and that's exactly what happened to Dash. He lost his 16-year-old brother Callum after a five year battle with cancer. And out of that tragedy, dash started a unique corporate outreach campaign on LinkedIn making inspiring and grateful videos about companies that touched his family's life while Callum was in treatment.Dash joins us to discuss the inspirations behind the campaign and the incredible responses he's received from both individuals and companies.Highlights:Callum's Story (2:16)Dash' work at UCSF (2:58)Dash' work with LLS (4:08)Why LinkedIn? (5:23)Biggest Challenges (7:33)Nestlé (9:55)Hasbro (10:50)What's next? (12:19)Links:Dash Miller LinkedInFundraiser WebsiteICR LinkedInICR TwitterICR Website Feedback:If you have questions about the show, or have a topic in mind you'd like discussed in future episodes, email our producer, joe@lowerstreet.co

Primary Central Nervous System Lymphoma (PCNSL) is a rare form of non-Hodgkin lymphoma that affects the brain, spinal cord, or… The post Breaking Down Primary CNS Lymphoma: From Rare Diagnosis to Growing Progress first appeared on The Bloodline with LLS.

En este episodio, conocemos a Sara Grisales Jaramillo, trabajadora social, gerente de Insight y del Centro de Llamadas de CancerCare.… The post Atención Médica: Su Derecho de Abogar first appeared on The Bloodline with LLS.

Confused by all the Disney terms like ADRs, LLs, LLSPs, and Mobile Order? You're not alone! In this episode of Mom Street USA, we're breaking down the Disney Parks language—the key acronyms, abbreviations, and insider terms used at Walt Disney World and Disneyland.

In this conversation, Jeff interviews MK Holmes, the campaign development manager for the Light the Night campaign with the Leukemia & Lymphoma Society (LLS). They discuss MK's background, her journey to LLS, and the impactful work the organization does in the community, particularly through events like Light the Night and the Pickleball for a Purpose tournament. MK shares insights into LLS's mission to cure blood cancers, the support they provide to patients, and how the community can get involved through fundraising and volunteering.Leukemia and Lymphoma SocietyCLICK HERE to donate to Jamie's Light the Night FundraiserCLICK HERE to register for Charlotte Light The Night 2025Special thanks to:The Carolina Factory & The Vannelle Family---------------------------------------------------------------------------------------The Best of LKNhttps://thebestoflkn.com/Hosted by:Jeff HammReal Estate BrokerCharlotte & Lake Norman (NC)https://lknreal.com/Support the show

Confused by all the Disney terms like ADRs, LLs, LLSPs, and Mobile Order? You're not alone! In this episode of Mom Street USA, we're breaking down the Disney Parks language—the key acronyms, abbreviations, and insider terms used at Walt Disney World and Disneyland.

The LLS weekend gala raised over $770,000 for research! Way to go Adam and Jordana!

The LLS weekend gala raised over $770,000 for research! Way to go Adam and Jordana!

Curious about CAR T-cell therapy? We went straight to the source for answers. In this episode, the LLS Patient Education… The post CAR T-cell Therapy: Your Questions Answered first appeared on The Bloodline with LLS.

Terry Beck of Kooper's North shares his personal passion for beating leukemia and lymphoma and raising money for LLS through Burger Night and helping others like Nick Shultz from Heller Kowitz raise community funds for Visionary Of The Year to beat blood cancer. The post Terry Beck of Kooper's North shares personal passion for LLS, Burger Night and helping community raise funds to beat cancer first appeared on Baltimore Positive WNST.

Visionary of The Year hopeful Nick Schultz is joined by Mike DiGiacomo of the Better Business Bureau at Kooper's North in Mays Chapel on the Maryland Crab Cake Tour to give Nestor the business and fun of fundraising for Leukemia and Lymphoma Society's biggest soiree of the year and the events leading up to the big night in June. The post Visionary hopeful Nick Schultz and Mike DiGiacomo of BBB give Nestor the business of LLS fundraising and big events in May first appeared on Baltimore Positive WNST.

Louis The Child go all in for this episode of #PlaygroundRadio, featuring songs from AVAION, H.LLS. Swimming Paul, Hudson Mohawke, Devault, Disclosure, MizTheMC, ZULAN and more! 01. Devault - Blow Your Brain Cell 02. glittr - Push 03. Aminé - Arc de Triomphe 04. Swimming Paul & Beaux Neptune - Driving Fast 05. AVAION ft. Sofiya Nzau - Wacuka 06. H.LLS - HERE WE GO 07. ZULAN - Forever 08. KAYTRANADA - LITE SPOTS (camoufly Edit) 09. Nikki Nair ft. Hudson Mohawke - Set The Roof 10. BRLLNT - Swagga Like Us (BRLLNT Remix) 11. WizTheMc ft. bees & honey - Show Me Love 12. Pimp Chic! - Stick-Up 13. Hector Couto - Salimo 14. Sammy Virji - I Guess We're Not The Same 15. ATRIP - GUMMI 16. Disclosure - Don't Wanna Stop! 17. Daniel Allan ft. XIRA - Something More 18. Tate McRae - Revolving door (Louis The Child remix)

Acute myeloid leukemia (AML) is one of the most aggressive blood cancers—but science is making real progress. In this episode,… The post Understanding AML: The Challenges, The Progress, The Hope first appeared on The Bloodline with LLS.

There's a whole lot of gratitude, kindness, and community comin' your way in this episode...Tressa sits down with good friend - and fellow Jefferson Award recipient - Bradley Wilkins to chat about all he does in his community and why connecting with his neighbors is so important to him. They also talk about Bradley's current campaign as a candidate for the Leukemia and Lymphoma Society's Visionary of the Year. And Tressa and Don read (so many!) notes from the Kindness Crates that made a stop in the Carlynton School District. The notes were originally read as part of Carlynton's 3rd annual Women's Empowerment Summit, which Tressa emceed. Donate to Bradley's LLS campaign at Tressa's page: https://pages.lls.org/voy/wpa/pgh25/tgloverLeukemia and Lymphoma Society website: https://www.lls.org/https://www.yinzaregood.com/Want to learn more about the podcast, including all of the guests who've been featured thus far? Check out our website: https://www.yinzaregood.com/FOLLOW US on social media! Instagram: @yinzaregood Facebook: @YinzAreGoodHave a story of GENEROSITY or KINDNESS to share with us? Want a KINDNESS CRATE dropped off at your business or school? Email us at yinzaregood@gmail.com

Personalized therapeutic approaches for the treatment of chronic lymphocytic leukemia (CLL), guided by shared decision-making, can improve outcomes by aligning treatment with a patient's unique clinical profile, preferences and goals. The Association of Cancer Care Centers (ACCC) is dedicated to providing up-to-date information on CLL management and treatment strategies. In this episode, CANCER BUZZ speaks with Christopher Nelson, ACNP, MBA, certified oncology nurse practitioner at Avera Medical Group Oncology & Hematology, to explore the importance of shared decision-making and patient communication in CLL. Additionally, CANCER BUZZ speaks with Meghan McGrath, MSN, RN, AGACNP, clinical trial nurse navigator at The Leukemia and Lymphoma Society (LLS), who discusses ways to incorporate clinical trials in the shared decision-making process and LLS services that are available to support patients and providers.   “You do what the patient feels is best, you know, you look at what their values are and what's important to them, and then you try to find a therapy that fits those.” – Christopher Nelson, ACNP   “I think it's really important to try and make every patient aware of the fact that a clinical trial could be right for them at any stage in the game.” – Meghan McGrath, MSN, RN, AGACNP   Christopher Nelson, ACNP  Oncology Nurse Practitioner   Avera Medical Group Oncology & Hematology  Aberdeen, SD    Meghan McGrath, MSN, RN, AGACNP    Clinical Trial Nurse Navigator   The Leukemia and Lymphoma Society (LLS)      Resources:   ·      ACCC Treatment for Double-Exposed CLL - https://bit.ly/4iSmfV1 ·      ACCC CLL Resources - https://bit.ly/3E4QqZK ·      LLS Clinical Trial Support Center - https://bit.ly/42sqGQk ·      ACCC CLL Video Series - https://bit.ly/4la4li5

Join us as we speak with Ashlee and Michael Cramer, the mother-son duo behind the Michael and Mom Talk Cancer… The post Unbreakable: A Mother & Son's Fight Against Cancer first appeared on The Bloodline with LLS.

Denna Arias from Energy Domain, Cory Mcintire from Wilbanks Reserve Corporation, and Greg Cohen from the Leukemia and Lymphoma Society (LLS) join the Philanthropy Series to discuss their personal journey's battling blood cancer, the advancements that have been made over the years, and what LLS is doing to raise awareness in order to help fund ongoing research that will ultimately end blood cancer once and for all. A big thanks to our 4 Minerals & Royalties Podcast Sponsors:--Tracts: If you are interested in learning more about Tracts title related services and software, then please call 281-892-2096 or visit https://tracts.co/ to learn more.--Riverbend Energy Group: If you are interested in discussing the sale of your Minerals and/or NonOp interests w/ Riverbend, then please visit www.riverbendenergygroup.com for more information--Farmers National Company: For more information on Farmer's land management services, please visit www.fncenergy.com or email energy@farmersnational.com--Oseberg: For more information on the software & data analytics tools that Oseberg has to offer, please visit www.oseberg.io.

Join Nick Lamagna on a special BONUS episode of The A Game Podcast with our guests Jackson and Shaun Amiruddin, a father and son telling an inspiring story of how Jackson survived acute lymphoblastic leukemia at a very early age.  He is now getting the word out with a special fundraiser to bring a cure and awareness for this cause to stop families and children from suffering through Hope Chasers as he is looking for all of us to help.   There is a current campaign running for the Student Visionary of the year where Jackson is looking for donations.  We are proud to help promote a part of the Leukemia & Lymphoma Society's (LLS) Student Visionaries of the Year Campaign, working to raise as much as possible for LLS's mission as a global leader in the fight against blood cancer, LLS:  Help will go toward: Funds cutting-edge research leading to breakthroughs in immunotherapy, genomics and personalized medicine that are improving and saving the lives of patients Provides free education and support for blood cancer patients and families, including personalized, one-on-one support, assistance with identifying and enrolling in clinical trials, and more. Mobilizes thousands of advocates to drive policy changes that accelerate the development of new cancer treatments and break down barriers to care. Please consider joining this fight by making a donation. All donations are greatly appreciated and tax-deductible. Please visit my website often and tell friends who would also like to donate! Topics for this episode include: ✅ Amazing story of how a child beat Leukemia  ✅ Words of encouragement from a child to other kids suffering from illness today ✅ Advice for parents struggling with the stress and emotions of dealing with this situation ✅ Tips on how to pick the best doctor when emotions are on the line. ✅  How we can help save lives  + More See the show notes to connect with all things Hope Chasers! Connect with Hope Chasers: Hope Chasers Facebook Hope Chasers Instagram Student Visionary of The Year Fundraiser Follow Jackson Amiruddin on Instagram --- Connect with Nick Lamagna www.nicknicknick.com Text Nick (516)540-5733 Connect on ALL Social Media and Podcast Platforms Here FREE Checklist on how to bring more value to your buyers

When it comes to cancer and nutrition, there's a lot of misinformation out there. Can sugar fuel cancer? Should you… The post Cancer Nutrition: Myth Busters Edition first appeared on The Bloodline with LLS.

In this episode, we sit down with Dr. Cesar Rodriguez of Mount Sinai Hospital in New York, NY to discuss… The post Hope in Myeloma: The Road to Long-Term Survival first appeared on The Bloodline with LLS.

A Cutaneous T-cell Lymphoma (CTCL) diagnosis can raise many questions, from understanding symptoms to exploring treatment options.  In this episode,… The post Cutaneous T-Cell Lymphoma (CTCL): From Diagnosis to Innovation first appeared on The Bloodline with LLS.

In this episode, we sit down with Dr. Bilal Abid from University of Texas Health Science Center in Houston to… The post Impact of Disparity: Navigating Treatment Equality in Cancer Care first appeared on The Bloodline with LLS.

Our defending Accelerent champion and runner-up for The Leukemia and Lymphoma Society "Visionary Of The Year," Cate Paris joins Nestor to discuss networking the right way, raising money to beat cancer and a future career in improv comedy from State Fare on "A Cup Of Soup or Bowl Week" in Catonsville. The post Cate Paris of Accelerent joins Nestor to discuss LLS and Visionary locals raising money to beat cancer first appeared on Baltimore Positive WNST.

The games are on, the music is perfect and the food is terrific, which is why we keep coming back to Kooper's North in Mays Chapel. And, of course, the gumbo! On the final day of "A Cup Of Soup Or Bowl," we reconvened with our favorite two-time cancer survivor Terry Beck, who tells his journey and support of LLS and many other charities via the "Burger Of The Month" in Timonium and Fell's Point. The post Terry Beck of Kooper's North shares his cancer journey and monthly burger glory with Nestor first appeared on Baltimore Positive WNST.

A stem cell transplant for blood cancer is just the beginning – what may come next for the patient can… The post Beyond the Transplant: Navigating Graft-vs-Host Disease (GVHD) first appeared on The Bloodline with LLS.

In this episode, we sit down with Lisa Stewart, a nurse practitioner with more than 25 years of transplant nursing experience, currently working at the post-transplant BMT clinic at the Dana-Farber Brigham Cancer Center in Boston. Lisa provides invaluable insights into managing chronic and acute graft-versus-host disease (GVHD) and shares her expertise, stories, and advice for patients and caregivers navigating post-transplant life.Lisa describes her role in outpatient care, where the majority of her work focuses on managing chronic GVHD, a condition that is both a sign of a functioning immune system and a complex challenge. While mild GVHD can indicate that the transplant is effectively fighting diseases like leukemia or lymphoma, severe cases can lead to complications involving multiple organs. Lisa outlines the two major categories of GVHD: steroid-reactive and steroid-refractory, with the latter being particularly difficult to treat. Acute GVHD typically occurs within the first 100 days post-transplant and often impacts the skin, liver, or gut, whereas chronic GVHD can develop months or years later and affect a broader range of organs, including the eyes, mouth, lungs, and reproductive systems.Clinical trials have led to significant advancements in treatment, including drugs like Ruxolitinib and Rezurock, offering hope to patients who fail first-line steroid therapy. Lisa also highlights Axatilimab, a newer medication discussed at the 2023 ASH meeting, although its availability remains limited due to manufacturing challenges. Despite these breakthroughs, steroids remain the frontline treatment, though they often cause challenging side effects like hyperglycemia, insomnia, and weight gain.Lisa also emphasizes the critical role caregivers play in a patient's recovery, managing complex medication regimens and providing vital emotional and physical support. She notes that without strong support at home, a transplant may not be feasible, particularly in the crucial first six months post-transplant.The episode also touches on common post-transplant issues like oral GVHD, fatigue, and the importance of staying active. Lisa shares practical tips, such as using Dexamethasone rinses for oral GVHD and encouraging light activity to combat fatigue. She underscores the importance of early symptom reporting, especially for chronic GVHD, as prompt intervention can significantly improve outcomes.Lisa concludes with a heartfelt story of a young patient who faced severe complications, including acute respiratory failure and paralysis, but ultimately made a remarkable recovery, even regaining mobility and starting a family. Stories like his, Lisa says, are what keep healthcare providers inspired despite the challenges.We wrap up with a reminder about the resources available to patients and caregivers, encouraging early reporting of symptoms and proactive management. Lisa's wisdom and dedication shine through, offering hope and practical guidance for those navigating the complex world of post-transplant care.More:GVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In today's episode, we talk with Krista Wood, a registered nurse with the Cell Therapy and Transplant Program at Victoria General Hospital in Halifax, Nova Scotia (Canada). Krista shares her invaluable insights and experiences working with patients dealing with chronic graft-versus-host disease (GVHD), a common complication following stem cell transplants. Our discussion delves into the importance of communication, post-transplant care, and finding joy and purpose during survivorship.Krista emphasizes that early detection and treatment of GVHD are critical. She encourages patients to report any changes, no matter how minor they may seem, and reassures them that healthcare teams are there to help. This open communication is vital, as post-transplant life can be overwhelming with fears of relapse or complications. Ensuring patients have direct access to their care team can ease their anxieties and foster trust.Routine health checks, like blood work and pulmonary function tests, play a crucial role in monitoring potential complications. Krista explains the importance of tracking liver enzymes, bone density, and lung function to catch and address issues early. She underscores that post-transplant care goes beyond the transplant itself, extending to overall health maintenance, including routine screenings like mammograms, dental care, and colorectal exams.Reconnecting with life post-transplant is another important theme. Krista encourages patients to rediscover the activities they loved before their illness, whether it's returning to work, volunteering, or pursuing hobbies. Work and social engagement provide purpose and can aid emotional recovery. For those who can't return to work, finding alternative ways to contribute, such as volunteering with organizations like the Leukemia & Lymphoma Society or HealthTree, can offer fulfillment and connection. (Note: the National Bone Marrow Transplant Link (nbmtLINK) has a peer mentor program as well, email info@nbmtlink.org if you'd like to be a peer or need a peer mentor. )Preparing for transplant and understanding GVHD beforehand is crucial. While some patients prefer to know everything, others may only want the basics. Krista and her team provide consistent education in manageable increments to help patients absorb key information. She explains factors that increase the risk of GVHD, such as donor characteristics and patient preconditioning, and stresses the importance of entering the transplant process in the best possible physical shape.Krista also highlights the importance of addressing sensitive topics like sexual health, which many patients are reluctant to discuss. She brings up these issues proactively, ensuring patients feel supported and have access to necessary resources.Finally, Krista shares stories of hope, including patients who, despite long-term challenges, have regained a sense of normalcy and fulfillment. She reminds us that while every patient's journey is unique, resilience and adaptation are common threads in their recovery.This episode is a testament to the critical role nurses like Krista play in guiding patients through this complex medical journey, offering care, education, and encouragement every step of the way.More:Leukemia & Lymphoma Society: https://www.lls.orgHealthTree Foundation: https://www.healthtree.orgGVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we talk to Carly Cappozzo, a senior occupational therapist specializing in graft-versus-host disease (GVHD) rehabilitation at a major cancer hospital. Carly shares her unique approach to patient care, emphasizing the importance of holistic and personalized therapy that empowers patients to regain their independence and identity post-treatment.Carly explains her role as an occupational therapist, detailing how she helps patients achieve independence in everyday tasks and rediscover activities that give their lives meaning. Her methods include activity analysis, breaking down tasks to identify barriers, and creating strategies to overcome them. She highlights the need for patient-centered care, ensuring therapy aligns with each individual's goals and preferences.Carly discusses her work in GVHD rehabilitation, particularly focusing on the relationship between skin, fascia, muscle tightness, and the nervous system. She underscores the value of gentle, prolonged stretching and calming the nervous system to improve mobility and reduce stress. She also addresses cancer-related fatigue, comparing it to a depleted energy "bank account," and stresses the importance of prioritizing activities that bring joy while conserving energy for essential tasks.Practical solutions for ocular GVHD are explored, including leveraging technology's accessibility features like text magnification and screen readers. Carly advises tailoring daily routines to maximize engagement in meaningful activities and adapting tasks to accommodate physical limitations. She highlights the importance of movement over exercise, recommending gentle, natural activity to improve well-being.Carly emphasizes the critical role of caregivers in fostering patient independence. She advises caregivers to balance support with opportunities for patients to contribute to daily life, thus maintaining a sense of purpose. Carly also shares inspiring stories of patients overcoming significant physical and emotional challenges through therapy, demonstrating resilience and achieving a fulfilling quality of life.The conversation concludes with advice for survivors and caregivers to approach GVHD recovery as a marathon rather than a sprint, emphasizing patience, consistency, and a collaborative approach to health and wellness.More:Seeing AI App: https://www.microsoft.com/en-us/ai/seeing-aiGVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we meet up with Josh Conklin, a seasoned bone marrow transplant (BMT) nurse at the University of Michigan Hospital, to explore his experiences, insights, and tips for managing chronic graft-versus-host disease (GVHD). With 11 years of inpatient experience, Josh offers a comprehensive view of the challenges and triumphs in caring for patients undergoing BMT.Josh explains that his primary role involves guiding patients through the most critical stages of their transplant journey, from chemotherapy conditioning to the stem cell infusion and the vulnerable recovery period afterward. He emphasizes the delicate balance required in managing GVHD, a condition that plays a dual role: while some GvHD is beneficial in suppressing cancer recurrence (graft-versus-leukemia effect), too much can lead to severe complications.Long-term immunosuppression is a cornerstone of GVHD management. Josh highlights the reliance on drugs like tacrolimus and, when necessary, steroids. However, we note the adverse effects of prolonged steroid use, such as muscle wasting, infections, and physical deconditioning. Emerging monoclonal antibody therapies are offering new hope, aiming to reduce these side effects.The discussion also sheds light on the psychological toll of repeated hospitalizations and the role caregivers play in patient success. Josh describes caregivers as essential for monitoring symptoms, administering medications, and providing emotional support. However, he acknowledges the significant strain caregiving can impose, especially during the critical first 100 days post-transplant when patients are highly vulnerable.Josh shares stories of resilience and purpose among his patients, underscoring the importance of a positive outlook and having something meaningful to strive for. He reflects on the impact of a strong support system, whether it's family, friends, or peer mentorship programs, in helping patients navigate their “new normal.” Despite the challenges, Josh finds inspiration in his patients' ability to find joy and purpose, even in difficult circumstances.  He shares his experience with one woman in particular.This heartfelt conversation highlights the physical, emotional, and relational dynamics of BMT care, offering a glimpse into the profound impact of dedicated healthcare professionals like Josh.More:GVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we sit down with Sarah Bugen, a nurse at Memorial Sloan Kettering Cancer Center, who shares her expertise on managing life after a blood or bone marrow transplant, particularly in relation to chronic graft-versus-host disease (GVHD). The conversation centers on practical advice for patients and caregivers navigating recovery and maintaining quality of life.Regarding Oral GVHD, Sarah emphasizes the importance of oral health post-transplant, recommending soft toothbrushes, alcohol-free mouthwash, and avoiding irritants like spicy or acidic foods. She suggests soft, hydrating foods and stresses the need for regular dental checkups with oncologist approval. Hydration is vital for managing dry mouth, with a goal of 2-3 liters of fluids daily. Also, sugarless candy or gum can help stimulate saliva production.For nutrition, Sarah advises increasing caloric intake with protein powders, full-fat products, and small, frequent meals. She also highlights the value of bland diets and electrolyte packets for hydration. Avoiding triggers like dairy, caffeine, and greasy foods can minimize gastrointestinal discomfort (and even GVHD of the GI Tract), while clean cooking practices ensure safety during recovery.Skin care is another focus. Sarah recommends fragrance-free, gentle products like CeraVe and Cetaphil and suggests applying moisturizer after a shower to lock in hydration. Sunscreen, protective clothing, and sun hats are essential, even in winter, to protect sensitive post-transplant skin.Physical activity is vital for rebuilding strength and improving mental health. Sarah advises patients to start slow with light activities like walking or stretching and gradually increase as tolerated. Physical therapy exercises should be integrated into daily routines, and adequate rest is crucial after any activity.  Even though it may be counter-intuitive, continuous movement is key in the battle against fatigue.Caregivers also play a pivotal role. Sarah underscores the importance of open communication with the medical team and notes that caregivers can support medication management, track progress, and join support groups for additional resources. Caregivers are encouraged to celebrate small victories and take care of their own mental health, as they are an essential part of the recovery process.Finally, Sarah shares an incredible survivor story, and reflects on the resilience in her patients and the importance of celebrating milestones like “transplant birthdays.” She encourages patients to set realistic goals, maintain hope, and focus on incremental progress. Sarah leaves us with an inspiring reminder to be patient with ourselves, celebrate every achievement, and never stop fighting.Resources:Link to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionGVHD Alliance: https://www.gvhdalliance.orgThank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

In this episode, we welcome Jeannie Wiarda, LMSW, a Medical Social Worker at the Adult Blood and Bone Marrow Transplant Center at Corewell Health in Grand Rapids, Michigan. Jeannie has been a Medical Social Worker at Corewell Health for 20 years including 14 years in Hospice and Palliative Care Inpatient; time in the Emergency Room prior to that, and has currently spent three years in bone marrow transplant. Jeannie provides insight into her work with transplant patients, particularly those navigating chronic graft-versus-host disease (GVHD), offering a comprehensive view of her role and strategies for supporting survivors through their journeys.Jeannie explains that her role as a social worker encompasses the entire transplant process—from the pre-transplant evaluation to post-transplant care. She helps patients address barriers like financial challenges, housing, and psychological trauma, tailoring support to each individual's unique needs. Her involvement extends through the hospital stay and into recovery, offering continuity of care during this vulnerable time.A key theme is the interplay between stress, trauma, and the transplant experience. Jeannie highlights the impact of chronic stress on the brain, emphasizing the importance of caregivers who provide practical and emotional support. She underscores the necessity of self-care for caregivers, advocating for planned respite and support systems to sustain their well-being.Jeannie shares actionable strategies for patients and caregivers to find hope and purpose amid the challenges of GVHD. These include maintaining a healthy lifestyle, engaging in fulfilling activities, and staying connected with others. She stresses the value of education, encouraging patients to leverage resources like the nbmtLINK, BMT InfoNet, LLS, and the GVHD Alliance to empower themselves with knowledge and advocacy skills.Jeannie emphasizes finding ways to “live life” despite the limitations GVHD may impose. She recalls stories of patients adapting activities to their current abilities, referencing another podcast by the LINK where we talked to a survivor who switched to an e-bike for outdoor exploration. Jeannie also advocates for fostering connections through support groups and meaningful activities, such as volunteering, to regain a sense of purpose.Jeannie concludes with advice on processing grief and fear, embracing compassion, and accessing professional mental health resources, including cognitive behavioral therapy such as Eye Movement Desensitization and Reprocessing (EMDR), for addressing trauma. Her compassionate, holistic approach demonstrates the profound impact of social work in transforming survivorship into a journey of resilience and empowerment.More:GVHD Alliance: https://www.gvhdalliance.orgLink to LLS free Nutrition Consultations: https://www.lls.org/managing-your-cancer/food-and-nutritionBook: The Body Keeps the Score: https://www.amazon.com/Body-Keeps-Score-Healing-Trauma/dp/0143127748Thank you to our sponsors. This season is supported by a healthcare contribution from Sanofi  https://www.sanofi.com/ National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKFollow the nbmtLINK on Instagram! https://www.instagram.com/nbmtlink/The nbmtLINK YouTube Page can be found by clicking here.To participate in the GVHD Mosaic, click here: https://amp.livemosaics.com/gvhd

Research continues to accelerate for myelodysplastic syndromes (MDS), giving hope to patients and their loved ones. In this episode, Dr.… The post There's Always Hope: Myelodysplastic Syndromes (MDS) first appeared on The Bloodline with LLS.

En este episodio conocemos al Dr. Mateo Mejia Saldarriaga de Weill Cornell Medicine, hospital NewYork-Presbyterian. Únase para aprender cómo los… The post Nuevos Avances Para Mieloma Múltiple first appeared on The Bloodline with LLS.

Join us as we speak to Mousa Ghannam, who was diagnosed with chronic myeloid leukemia (CML) at the age of… The post Not Cashing In My Chips: Living with Cancer first appeared on The Bloodline with LLS.

Diffuse large B-cell lymphoma is the most common subtype of non-Hodgkin lymphoma. Tune in as we chat with Dr. Yasmin… The post Emerging Therapies and Hope: Diffuse Large B-cell Lymphoma first appeared on The Bloodline with LLS.

Firefighter, cancer survivor and advocate Nick Howe shares his experiences of surviving cancer with an experimental treatment, only a few years later to require a new heart during which time a spinal stroke left him paralyzed from the waist down. Howe talks about a desire to dedicate his life in service to others initially taking the form of being a firefighter, as well as a spouse and father, but which now has assumed a new shape and vitality of purpose.Nick and Rachel Howe met initially in 2005 and later married. Nick worked as firefighter and Rachel as a teacher. In 2016, the onset of severe health issues for Nick was diagnosed as Non-Hodgkin Lymphoma that chemotherapy, immunotherapy and an autologous stem-cell transplant failed to treat. To save his life, he underwent a highly experimental therapy called CAR T-cell therapy and he has been in remission since. After welcoming their two children, in the summer of 2022, Nick experienced more illness and received a heart transplant. A few weeks later, with his new heart failing, Nick was placed in a medically induced coma during which time he had a spinal stroke that has left him paralyzed from the waist down. Nick's dedication to supporting others now includes serving as the Nebraska State Director for the Firefighter Cancer Support Network and as an ambassador for LLS and Lymphoma Research Foundation. Nick, his wife Rachel, and their two kids live in Omaha, Nebraska.

Join us for a powerful message of hope and perseverance after a cancer diagnosis. In this episode, Rashad Hayes shares… The post Don't Burn Your CAKE: Embracing Life's Challenges first appeared on The Bloodline with LLS.

Navigating the maze of cancer care can be overwhelming. Join us as Sara Grisales Jaramillo, LMSW, of CancerCare® discusses the… The post Overcoming Barriers: Navigating Cancer Care first appeared on The Bloodline with LLS.

In episode 79 of the Summits Podcast, Vince Todd, Jr. is joined by Teresa Altemeyer, cancer survivor and patient advocate through cancer support groups and art therapy at the CompleteLife Program at IU Health and the IU Simon Cancer Center. Tune in as Teresa shares the incredibly important role that these groups and therapies play for patients, survivors and caregivers. The Heroes Foundation proudly provides funding to the CompleteLife Program to further our mission to provide meaningful support to cancer patients, education to promote cancer prevention and resources to advance research for a cure.

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. A… The post LIVE! At CancerCon: Ghosts, Growth and Guidance first appeared on The Bloodline with LLS.

On this episode: Welcome to episode 338! This week, Roderick & Cari talk new music from Gunna, Ab-Soul, Yeat, & Juice WRLD. In news, the guys discuss new albums on the way from Tyler, The Creator & Megan Thee Stallion, Gucci Mane clears out the 1017 roster, the 2024 Rock & Roll Hall of Fame inductees announced & more.   Intro: Dom Kennedy- Leanin   Roderick | Drake- Tried Our Best   Cari | H.LLS & Col3trane- CANT WAIT (feat. Tay Iwar)   Subscribe to Apple Music now to hear all of the new albums & tracks we discuss: https://apple.co/3NgdXW

There are new Medicare changes starting in January 2025 that will benefit cancer patients.   LLS Vice President of Federal… The post Medicare Updates: What You Need to Know for 2025 first appeared on The Bloodline with LLS.

There are new Medicare changes starting in January 2025 that will benefit cancer patients.   LLS Vice President of Federal… The post Medicare Updates: What You Need to Know for 2025 first appeared on The Bloodline with LLS.

Robin rambles about calamine lotion, door to door political polling, vice presidential debates, past life regression, the trouble with book shelves, and more. Montgomery County Light The Night is just 5 days away! Did you know that September is Blood Cancer Awareness Month (BCAM)?This BCAM, it's important to know that LLS is on a mission to cure blood cancers and improve quality of life for the nearly 1.7 million people in the U.S. living with or in remission from blood cancer.  LLS is all about people—an organization full of people who are united in the urgent effort to help every person impacted by blood cancer.Help Team Zavadowski reach our fundraising goal! Thank you for your generous donations:https://pages.lls.org/ltn/fdk/Montcomd24/rsmith--Become a supporter on Patreon: https://www.patreon.com/therobinsmithshowGet in touch: robinsmithshow@gmail.comCall the hotline: +1 (301) 458-0883Got a question? We'd love to hear from you!

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. Following… The post LIVE! At CancerCon: Transitioning to Primary Care first appeared on The Bloodline with LLS.

Please join us for this special episode live from CancerCon®, a young adult cancer conference presented by Stupid Cancer®. Following… The post LIVE! At CancerCon: Transitioning to Primary Care first appeared on The Bloodline with LLS.

Living with chronic lymphocytic leukemia (CLL) can be a challenging journey for both patients and caregivers.   However, there is a… The post Hope on the Horizon: Chronic Lymphocytic Leukemia first appeared on The Bloodline with LLS.

Lightning Lane Multi Pass Find us on Youtube - please like and subscribe!  Looking to plan a Disney World or Disneyland vacation? Let Joe do all the hard work for you, helping you get the best discount, at no cost to you as your travel agent. Get started by e-mailing josephcheung@travelmation.net today!  Episode Description Lightning Lane Multi Pass! Lightning Lane Single Pass! Walt Disney World has introduced a new paid line shortening product - a combination of the old Fastpass and Genie+. We break down everything you need to know about this new system - how to buy it, when to buy it, choosing attractions, and a whole lot more. We figured out how the system works and packaged it into this episode so you don't have to! Plus, a typical Disney Deciphered FAQ section. Have you tried Lightning Lane Multi Pass yet? Let us know by e-mailing disneydeciphered AT gmail DOT com, messaging us on Twitter, or leaving a comment on our Youtube page. You can also follow us on Instagram! Episode Notes (all timestamps are approximate) 3:46 - Lightning Lane Multi Pass at Disneyland (basically Genie+) 5:30 - Defining new Lightning Lane Multipass and Single Pass terminology 9:16 - Lightning Lane Multi Pass basics and rules 13:20 - Overlapping time windows 16:02 - Booking extra attractions 19:43 - How to buy Lightning Lane Multi Pass 23:35 - Attraction tiers 27:30 - FAQs 41:26 - Disney dos and don'ts FAQ List: What attractions are covered by LLMP?  How does LLMP work with park hopping? How long do you have to use your LL? Can you modify lightning lanes?  Can you book for a party? Can you have two LLs booked for the same time?  Do you have to buy LLMP to buy LLSP?  What happens if ride breaks?  If an attraction is sold out for the day, are you out of luck?  If we've helped you to plan your trip and you'd like to thank us we'd appreciate you considering a one time donation. Or if you'd like to receive bonus content, check out our Patreon page and our special subscriber only content! You can also support the show by buying tickets (if they're the best deal, of course) using our Undercover Tourist link or signing up for Mouse Dining through our link. If you like what you hear, please share and subscribe! Find us on iTunes, Stitcher, Spotify, TuneIn, PlayerFM, iHeartRadio, or Google Podcasts (please leave a positive review if you're enjoying the show), like our Facebook page, or follow us on Twitter and Instagram! Connect with Leslie @TripsWithTykes on social media and Joe @asthejoeflies.  

Randy Richardson just qualified for his first Loretta Lynn's and we call him up to talk about his Regional at Echeconnee. From riding a two stroke, how Matt Walker's track shaped up, why he has never gone to LLs, why everyone that has a story has a purpose, plus a lot of Randy-isms in this episode. If you plan on going to LLs or maybe just want to learn about an old dude's journey, this is a good one!