Podcasts about pulmonary hypertension association

En este episodio, dedicado a las enfermedades vasculares pulmonares, tenemos el privilegio de contar con el Dr. Héctor Cajigas, un destacado médico mexicano certificado en cuidados intensivos y enfermedades pulmonares, con una amplia experiencia en el diagnóstico y tratamiento de estas afecciones. A lo largo de esta enriquecedora conversación, exploramos el mundo de la hipertensión pulmonar, la embolia pulmonar, la telangiectasia hemorrágica hereditaria y la insuficiencia cardíaca derecha, entre otras condiciones. Acompáñenos mientras descubrimos los avances más recientes en la investigación de enfermedades vasculares pulmonares y la vital importancia de la colaboración entre médicos y pacientes en la atención médica de casos complejos.    Más información:    Pulmonary Hypertension Association https://phassociation.org/ https://phassociation.org/recien-diagnosticados/ https://phassociation.org/wp-content/uploads/2020/06/pharbrochure_singlepgs_spanish.pdf   Información en español sobre la Hipertensión Pulmonar en el Mayo Clinic https://www.mayoclinic.org/es/diseases-conditions/pulmonary-hypertension/symptoms-causes/syc-20350697  

In this episode, Dr. Charles Burger, the medical director of the Pulmonary Vascular Center at Mayo Clinic in Jacksonville, Florida, discusses the importance of patient registries, specifically the Pulmonary Hypertension Association's PHA Registry (PHAR) for pulmonary hypertension. This registry collects clinical information and surveys from patients to understand their characteristics, treatment options, and outcomes. The PHAR registry also provides opportunities for research on topics like social determinants of health and newly diagnosed patients. @CharlesBurgerMD @MayoClinic @PHAssociation Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com #phawareMD 

Drs Michelle Kittleson and Ronald Oudiz dive into everything cardiologists need to know about the diagnosis and treatment of pulmonary hypertension. Relevant disclosures can be found with the episode show notes on Medscape (https://www.medscape.com/viewarticle/997320). The topics and discussions are planned, produced, and reviewed independently of advertisers. This podcast is intended only for US healthcare professionals. Resources Heart Failure https://emedicine.medscape.com/article/163062-overview Pulmonary Arterial Hypertension https://emedicine.medscape.com/article/303098-overview Cardiac Catheterization in Pulmonary Hypertension: Doing It Right, With a Catheter on the Left https://pubmed.ncbi.nlm.nih.gov/33224785/ How to Initiate and Uptitrate GDMT in Heart Failure: Practical Stepwise Approach to Optimization of GDMT https://pubmed.ncbi.nlm.nih.gov/36456074/ Phosphodiesterase Inhibitors https://www.ncbi.nlm.nih.gov/books/NBK559276/ Cardiovascular Biology of Prostanoids and Drug Discovery https://pubmed.ncbi.nlm.nih.gov/32295420/ Soluble Guanylate Cyclase as an Emerging Therapeutic Target in Cardiopulmonary Disease https://pubmed.ncbi.nlm.nih.gov/21606405/ Pulmonary Hypertension Association https://phassociation.org/

Show NotesNACE is excited to provide you with this podcast episode from our educational collaborator, The Association of Pulmonary Advanced Practice Providers (APAPP).  APAPP is the first  association of Advanced Practice Providers (APPs), both Nurse Practitioners and Physician Assistants, who work in the field of pulmonary medicine. APAPP's mission is to work together for the advancement of the profession and for the well-being of  patients with pulmonary diseases. To learn more about APAPP and to get involved, please visit https://www.pulmapp.com.GuestMartha Kingman, FNP-C, DNP Family Nurse Practitioner in the pulmonary hypertension clinic at the University of Texas Southwestern Medical Center at Dallas. She is presently serving as sub-investigator in numerous ongoing pulmonary hypertension clinical trials. She is a member of the speakers' bureaus for Actelion, United Therapeutics, and Gilead, and she gives her time and expertise to several nursing advisory boards. Martha is an active member of the PH Professional Network, having previously served on the national conference planning committee, and she has chaired the Research and Publications Committee of the Pulmonary Hypertension Association. She currently serves on the Editorial Board of Advances in Pulmonary Hypertension, the PHA's journal.Dr. Kingman earned a bachelor's degree from Tulsa University School of Nursing in Tulsa, following which she worked in emergency department settings as a staff nurse and then as director of the ED after which she obtained her Master of Science in Nursing degree from Texas Woman's University in Dallas. When she became board certified as a Family Nurse Practitioner, she accepted the job of nurse practitioner in the pulmonary department at UTSW Medical Center and remains in that role today.  The majority of her clinical work involves the follow-up outpatient care of a large group of pulmonary hypertension patients at UTSW Medical Center. In May 2011, Dr. Kingman obtained her Doctorate in Nursing Practice from Texas Christian University.Martha has published in the area of pulmonary hypertension and has spoken at local and national conferences.  Her main area of research interest involves the safety of intravenous prostacyclins in the hospital setting.HostCorinne R. Young, MSN, FNP-C, FCCPDirector of APP and Clinical Services, Colorado Springs Pulmonary ConsultantsPresident, APAPP, Colorado Springs, COCorinne Young is a Nurse Practitioner began working in the area of pulmonary disease in California in 2005. Since 2011, she has worked in a private pulmonary practice in Colorado Springs, Colorado. Involvement and the representation of advanced practice providers in the pulmonary world has been an important priority for Corinne.  To that end,  Corinne is the Founder and President of the Association of Pulmonary Advanced Practice Providers.In addition to her work with APAPP, Corinne is currently one of ten NPs nationwide to become a Fellow of the American College of Chest Physicians. She works closely with the American College of Chest Physicians CHEST programs, and serves on the Interprofessional Team Network, Clinical Research Network, and on the Executive Programing Committee. Additionally, Corinne serves on the American Board of Internal Medicine Pulmonary Disease Board.This Podcast episode does not offer CME/CE Credit.Please visit http://naceonline.com to engage in more live and on demand CME/CE content.

What a treat this Coexist meeting was! These meetings are part of the UnabridgedMD movement. Create a community of people interested in each other's zone(s) of genius(es). This particular meeting was special as Dr. Patricia George was the first guest on the UnabridgedMD podcast. Dr. George is not only the head of the Pulmonary Hypertension clinic, she also created and leads the metabolic clinic at National Jewish Health. During this Coexist meeting, she shared her experience and research on the ketogenic diet. What it is, why and how it can help patients reverse insulin resistance.If you want to learn more about this specific diet, take a listen.Dr. Patricia George is a pulmonologist and pulmonary hypertension program director and head of the Pulmonary Hypertension Section at National Jewish Health. In addition to helping build the pulmonary hypertension program to achieve national accreditation through the Pulmonary Hypertension Association, she also built a nonprofit, Team PHenomenal Hope, which partners endurance athletes with people who live with pulmonary hypertension to raise awareness about this disease, supports patients through an unmet needs program for financial assistance as well as educational programs and support groups, and funds an annual research award for young investigators in the field. Dr. George has a passion for building teams to take on complex problems, and her academic interests include the optimization of metabolic health in people with heart and lung disease to help people breathe better.________Our practice UnabridgedMD in Rheumatology is currently accepting new patients! If you are looking for a rheumatologist that cares and gets you in remission as fast as possible, and if you are living in Colorado, Wisconsin or Michigan, contact us at  www.UnabridgedMD.com or Email us at info@unabridgedMD.com to learn more.In health, Isabelle Amigues, MD, MS, RhMSUSCEO and Founder UnabridgedMD.comIf you live in Colorado and are looking for a rheumatologist to help you achieve disease remission, email or contact us at UnabridgedMD.com. We are the first direct care rheumatology in Colorado and can see you within a week!

In this episode Dr. Patty George brings her passion to UrabridgedMD and shares why there is so muuch hope for patients with Pulmonary Hypertension (and so much more!).Dr. Patricia George is a pulmonologist and pulmonary hypertension program director and head of the Pulmonary Hypertension Section at Niational JewishHealth. In addition to helping build the pulmonary hypertension program to achieve national accreditatio through the Pulmonary Hypertension Association, she also built a nonprofit, Team Phenomenal Hope, which partners endurance athletes with people who live with pulmonary hypertension to raise awareness about this disease, Supports patients through unmet needs program for financial assistance as well as educational programs and support groups, and funds an annual research award for young investigators in the field.Dr. George has a passion for building teams to take on complex problems, and her academic interests include the optimization of metabolic health in people with heart and lung disease to help people breathe better.Twitter: @PGeorgeMDTeam Phenomenal Hope websitehttps://www.teamphenomenalhope.org/« Please like, comment, subscribe and share this episode and podcast.« Send me questions and topics you would like to see included.With Gratitude,Dr. Isabelle AmiguesUnabridgedMD 

This week, reviewer, podcaster, and one of the Ladies of Horror Fiction, Tracy Robinson joins us to discuss body horror and her work on the forthcoming release of the Sci-Fi & Scary charity anthology, Twisted Anatomy: A Body Horror Anthology, benefitting the Pulmonary Hypertension Association and the National Domestic Violence Hotline.  We also talk about the Shudder exclusive film, May the Devil Take You Too, Matt gives a progress update on his reading of Laird Barron's Worse Angels, and Hallmark Christmas movies. (Recorded Nov. 29, 2020) The theme music, "Insidious," was created by Purple Planet Music and is used here under the terms of a Creative Commons Attribution License 3.0. Music: https://www.purple-planet.com Follow Staring Into The Abyss on Twitter: @intostaring 

In 2013, Chloé Temtchine, a YouTube sensation and award-winning singer/songwriter, had just finished an album with Smash Mouth’s Grammy-nominated Greg Camp. All set to go on a world tour with him, Chloé suffered severe shoulder & chest pain and was rushed to the ER; she was in congestive heart failure. She was told she had Pulmonary Arterial Hypertension (PAH), a rare and fatal lung condition, little time left to live, and that she would have to be on oxygen for the rest of her life. It’s an understatement to say that Chloé’s world was turned upside down in an instant. She had spent the previous five years dealing with a variety of physical symptoms (shortness of breath, chest pain, dry cough, racing heartbeat, fatigue, and water retention) that left many respected and acclaimed doctors at some of the most prestigious medical institutions perplexed. Chloé’s doesn’t want her story to be about the years of doctor-hopping, misdiagnoses, or landing in the Critical Care Unit. She wants it to be about what happened afterward and where she is today. Seven years after being released from the critical care unit and many, many, many days more than doctors thought possible, Chloé is writing music, performing, and using her talent to inspire and empower those affected with PAH and other chronic illnesses. In that time, she released three albums: Be Brave, Strangers, and Lead Me Home. Chloé wrote the song Be Brave shortly after she was released from the hospital's critical care unit. Chloé donates proceeds from sales to the Pulmonary Hypertension Association. The video for her single “Breathe” features several children with PAH & the overarching message that sometimes you have to lose your breath to breathe. She just completed her fourth album, titled You Save Me, set to be released in tandem with Chloé’s 2020 Smile Tour.

Tarya Laviolette is a pulmonary hypertension patient from Canada.  She is a former Community and Relations Coordinator for Pulmonary Hypertension Association of Canada. Tarya now serves as a Research/Health Policy Officer for the BC Nurses’ Union. She discusses how her nursing team is absolutely integral to her care. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #phaware

Joanne Sperando lives in North Babylon, NY and was the third person in her family to be diagnosed with Pulmonary Hypertension (PH). Joanne’s mother lost her 23-year-old sister Josephine to PH in 1963.  Joanne’s brother John was diagnosed in 1995 and passed in 2015 and she received her diagnosis in 1998. Joanne formed and currently co-leads a support group and she served two terms on the board of trustees of the Pulmonary Hypertension Association. Joanne has testified in Washington for PH causes and conducts local fund-raising events to generate funds for PH research. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube & linkedin @phaware #phaware 

Denneys Niemandt is a pulmonary hypertension patient and PH global leader from South Africa. Denneys was instrumental in establishing The Pulmonary Hypertension Association of South Africa.  At the time of his diagnosis he was only one of ten known cases of PH in South Africa.  He discusses why research and awareness is of the utmost importance in his country. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us on facebook, twitter, instagram, youtube & linkedin @phaware #phaware

Oksana Kulish is the founder of the Pulmonary Hypertension Association in Ukraine. (PHURDA). She discusses Ukraine’s limited access to therapies and why some PH patients in Ukraine are orphans. #WorldPHDay Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware 

When it comes to rare disease and chronic illness, early diagnosis is important for many reasons - but even more so when a person has a condition known as pulmonary hypertension (PH). Why? If left untreated, death is almost certain - and the average length of survival without treatment is three years. http://www.SmartPlanning101.com/28 **Doctors are commonly taught to look for horses, not zebras. But what if it really IS a zebra?** The good news is that there are more and more options for treatment of this rare condition, but like all rare diseases, getting to the proper diagnosis is key. Even if you don't have PH, however, this episode is important. My guest, Jessica Armstrong (see bio below), and I discuss many topics that are applicable to almost anyone dealing with an illness and the medical profession - how and why you need to take control of your own care! In This Episode, You Will Learn: The many reasons why rare diseases are misdiagnosed Ways to combat misdiagnosis and lack of proper treatment - how to take control What tools are available to assist you - and get a great tool for FREE Jessica's personal story and how it reflects that of many others The importance of community and reaching out Why living with "invisible illness" is particularly frustrating! What is Pulmonary Hypertension? Pulmonary hypertension is high blood pressure in the lungs, which impacts patients of a number of other chronic illnesses, including: 32-85% of patients with Pulmonary Fibrosis up to 40% of patients with left heart disease 15-20% of patients with HHT 8-12% of Scleroderma patients 3-5% of patients who have previously suffered a pulmonary embolism 0.5-9% of Lupus patients ...it is also applicable to many people that have my rare disease, lymphangioleiomyomatosis. About Early Diagnosis Campaign Manager Jessica Armstrong Jessica Armstrong is the Early Diagnosis Campaign Manager for the Pulmonary Hypertension Association In 2011, Jessica Armstrong was serving in Afghanistan when she suddenly became unable to breathe and collapsed. Four months later she was diagnosed with Chronic Thromboembolic Pulmonary Hypertension and told that, unless she underwent a dramatic 10-hour open-heart surgical procedure, she wouldn't live beyond the next five months. After she received that life-saving surgery, a cousin of Jessica's died of undiagnosed and untreated PH. This traumatic event caused Jessica to re-evaluate and dedicate her life to helping others with this deadly condition, to survive and thrive as she has. Today Jessica serves as manager of the Pulmonary Hypertension Association's Early Diagnosis Campaign and advocates for patients with pulmonary hypertension and other rare diseases. Read more about Jessica's Story here. Connect with the Pulmonary Hypertension Association: Click Here Instagram: Click Here for PH Association, Here for Jessica Connect with Jessica on LinkedIn: Click Here

When it comes to rare disease and chronic illness, early diagnosis is important for many reasons - but even more so when a person has a condition known as pulmonary hypertension (PH). Why? If left untreated, death is almost certain - and the average length of survival without treatment is three years. http://www.SmartPlanning101.com/28 **Doctors are commonly taught to look for horses, not zebras. But what if it really IS a zebra?** The good news is that there are more and more options for treatment of this rare condition, but like all rare diseases, getting to the proper diagnosis is key. Even if you don't have PH, however, this episode is important. My guest, Jessica Armstrong (see bio below) and I discuss many topics that are applicable to almost anyone dealing with an illness and the medical profession - how and why you need to take control of your own care! In This Episode, You Will Learn: The many reasons why rare diseases are misdiagnosed Ways to combat misdiagnosis and lack of proper treatment - how to take control What tools are available to assist you - and get a great tool for FREE Jessica's personal story and how it reflects that of many others The importance of community and reaching out Why living with "invisible illness" is particularly frustrating! What is Pulmonary Hypertension? Pulmonary hypertension is high blood pressure in the lungs, which impacts patients of a number of other chronic illnesses, including: 32-85% of patients with Pulmonary Fibrosis up to 40% of patients with left heart disease 15-20% of patients with HHT 8-12% of Scleroderma patients 3-5% of patients who have previously suffered a pulmonary embolism 0.5-9% of Lupus patients ...it is also applicable to many people that have my rare disease, lymphangioleiomyomatosis. About Early Diagnosis Campaign Manager Jessica Armstrong early diagnosis Jessica Armstrong is the Early Diagnosis Campaign Manager for the Pulmonary Hypertension Association In 2011, Jessica Armstrong was serving in Afghanistan when she suddenly became unable to breathe and collapsed. Four months later she was diagnosed with Chronic Thromboembolic Pulmonary Hypertension and told that, unless she underwent a dramatic 10 hour open heart surgical procedure, she wouldn’t live beyond the next five months. After she received that life-saving surgery, a cousin of Jessica's died of undiagnosed and untreated PH. This traumatic event caused Jessica to re-evaluate and dedicate her life to helping others with this deadly condition, to survive and thrive as she has. Today Jessica serves as manager of the Pulmonary Hypertension Association’s Early Diagnosis Campaign and advocates for patients of pulmonary hypertension and other rare diseases.

Gina Parziale of the Pulmonary Hypertension Association of New York City joins me to tell us more about Pulmonary Hypertension and the 1st Annual PHA O2 breathe Gala, Thursday, November 7 at The Lighthouse on Pier 61 in New York City to raise awareness, funds, and to honor some wonderful people! To learn more about this wonderful event go to O2breathe.org/nycgala and to learn more about Pulmonary Hypertension, go to PHAssociation.org! Follow Dennis on Twitter @DHAP24, listen to & subscribe on iTunes and check out DennisHasAPodcast.com and Facebook.com/DennisHasAPodcast! #phenomenal