Podcasts about Scleroderma

Today's guest is Dr. Kathryn Torok, a pediatric rheumatologist at the University of Pittsburgh and UPMC Children's Hospital of Pittsburgh, where she directs the Pediatric Craniofacial Scleroderma Clinic. Scleroderma in children is rare, about five in 100,000 develop localized disease, and only about one in a million develop systemic disease. It's crucial to treat to target as early as possible. I learned so much from Dr. Torok about how scleroderma affects children and the best approaches to care.

“I'm part gargoyle is what I tell people. Because I'm turning to stone. I literally am.” Shutes was living the dream—college basketball national champion, Player of the Year, in the best shape of her life—when strange symptoms started appearing. Numbness in her hands. A sore that wouldn't heal. She was initially misdiagnosed with lupus before a doctor recognized the signs and finally told her the truth: she has scleroderma, a rare and incurable autoimmune disease. Scleroderma causes the body to produce too much collagen, creating a kind of fibrosis that hardens the body from the inside out. As Shutes says with what you'll learn is her incredible sense of humor—“I'm part gargoyle!” But of course, beneath that humor is the difficult reality of watching your hands curl into permanent contractures, your jaw dissolve, your lungs stiffen to 56% capacity, and food getting stuck in an esophagus that can no longer move it along. In this deeply honest conversation with Cody, Shutes explains the daily and long-term realities of living with this rare and rarely discussed disease, as well as the isolation that persists even when you have community, the relationships that end because people can't handle your new reality, the exhaustion of coordinating every basic need, and the choice between living safely or living fully. She also opens up about navigating eating disorder recovery while her disease makes swallowing nearly impossible and feeding tubes loom on the horizon. She talks about losing the athlete's body she once had, the grief of not being able to play basketball with her son, and the intentional choice she makes every day to go hard, crash, and get back up again. Because for her, it's the living that's most important. Consequences be damned...or at least accepted. Follow Shutes on social media @SheShutes This episode is dedicated to Javeeda, who put us in touch with Shutes. Javeeda was a beloved guest of Season 2 and a dear friend of the podcast. She died This episode is dedicated to Javeeda, a beloved guest of Season 2 and dear friend of the podcast who connected Shutes with us. Javeeda died last week after living with her own rare cancer for many years. 

Today's guest is Dave Hanson, who shares his journey from his first confusing symptoms to finally receiving a diagnosis. It all began in the fall of 2019, when Dave started experiencing unusual symptoms — painful cramps and a vague but unsettling feeling that something wasn't right. By early 2020, just before the pandemic, he noticed swelling in his hands and went to the ER. With no signs of Raynaud's, doctors initially diagnosed him with psoriatic arthritis.It would take another year before he received the correct diagnosis: diffuse cutaneous scleroderma.

When Nana Daniels returned from a trip to Ghana in 2016, she experienced a severe lupus flare-up that left her skin severely burned. What happened next changed her life forever.After seven hours in the emergency room with no real solution, Nana turned to her Ghanaian roots and created her own remedy using raw shea butter, vitamin E, and essential oils. The results were so remarkable that friends started asking for their own supply—and Honam Naturals was born.In this inspiring episode, Nana shares:Her 25-year journey living with lupus and sclerodermaHow a medical crisis became an unexpected business opportunityThe cultural wisdom behind shea butter and African black soapSelling out her first product batch in one hour and making $1,000Winning a mentorship with Dragons' Den's Manjit MinhasLanding products in Winners, Walmart (US and Canada), and Amazon—all while battling imposter syndromeThe challenges of scaling from kitchen countertop to big box retailWhy she chose aluminum containers and eco-friendly packagingHer vision for getting into more natural health stores across CanadaFrom Ajax, Ontario, Nana has built a thriving skincare and haircare brand that honors traditional African ingredients while meeting modern clean beauty standards. Her story proves that sometimes the best solutions come from going back to basics—and that a little bit of courage can turn adversity into opportunity.Products discussed: Body butters, African black soap, hair care for tight curls and chemically-treated hair, home fragrances, and men's groomingConnect with Honam Naturals: http://honamnaturals.com/collectionsThank you to Field Agent Canada for sponsoring the podcast: https://www.fieldagentcanada.com/

In this conversation, Dr. Ilana Gurevich discusses a complex case involving a patient with scleroderma who experienced chronic diarrhea. The discussion covers the patient's journey, the challenges of treatment, and the surprising outcomes related to fertility and pregnancy. Dr. Sand emphasizes the role of nitazoxanide in managing the patient's symptoms and the considerations for treatment during pregnancy.The patient had chronic diarrhea due to scleroderma.Nitazoxanide was used as a treatment for Giardia.Standard treatments like metronidazole had failed for the patient.The patient unexpectedly became pregnant after treatment.Managing diarrhea during pregnancy poses unique challenges.Functional medicine approaches can provide alternative solutions.Probiotics and dietary changes were attempted but were ineffective.Nitazoxanide is considered safe during pregnancy.The patient's symptoms improved significantly with treatment.The case highlights the importance of individualized patient care.

Today's guest, Scleroderma Warrior Dr. Joseph Washington, is the definition of resilience and perseverance. His journey began with Raynaud's symptoms in junior high, but it wasn't until pharmacy school that he was diagnosed with diffuse systemic sclerosis. So much has happened in just four years since then, and I can't wait for you to hear his inspiring story. 

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In this episode, our guests Dr. Sabrina Hoa and Dr. Marie Hudson explore new insights into late-onset interstitial lung disease (ILD) in scleroderma. Using data from the Canadian Scleroderma Research Group, they discuss how ILD can still develop years after diagnosis, challenging traditional screening timelines. They cover key findings, clinical implications, treatment patterns, and the need for more inclusive trials. The conversation also touches on mentorship and what's next in scleroderma research. 

Today's guest is another incredible scleroderma warrior, Natalie Puccio. As many of you know, no two scleroderma journeys look exactly alike. Natalie and I discovered we had so much in common—both personally and in our symptoms—which made our conversation especially meaningful. One big difference, though, is that Natalie was diagnosed at just 24 years old and went on to have three children while living with scleroderma. She's an amazing resource for anyone navigating questions or concerns about pregnancy and parenting with this condition. If that's something you'd like support with, let me know and I'll be happy to connect you with her. 

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In this episode of Better Edge, a multidisciplinary team gets into the intricacies of diagnosing and managing scleroderma. Join Pulmonologist Anthony Esposito, MD, Rheumatologist Carrie Richardson, MD, and Domenico Farina, MD a gastroenterology specialist with a focus on scleroderma-related esophageal diseases. Together, they share how they collaborate to provide comprehensive care for patients.

Is it possible to reverse autoimmune disease—permanently? In this episode of Brave New Us, Dr. Richard Burt, pioneering stem cell physician and author of Everyday Miracles, joins host Samantha Stephenson to unpack his revolutionary treatment for autoimmune disorders. Hailed by Scientific American as one of the top 10 medical advances of the decade, Dr. Burt's non-myeloablative stem cell therapy has changed—and saved—lives.Dr. Burt opens up about his early skepticism, the medical establishment's resistance, and the patients who inspired him to push forward. Together, we explore the promise and pitfalls of regenerative medicine and what it takes to bring groundbreaking science to the clinic without losing our humanity.If you've ever wondered:Can stem cells actually reverse disease, not just slow progression?What does "immune system reset" mean—and is it safe?Why is the medical establishment slow to adopt new therapies?What ethical questions come with cutting-edge biotechnology? This episode will challenge what you thought was possible.Topics Covered:How Dr. Burt's stem cell therapy reversed multiple sclerosis, scleroderma, Crohn's, and moreThe difference between myeloablative and non-myeloablative stem cell treatmentsWhy Big Pharma and some doctors resisted the treatment—even after successWhat “immune system reboot” really means and how it worksThe role of patient advocacy and storytelling in transforming medicineWhy humility, ethics, and hope must guide the future of biotechHow Everyday Miracles bridges hard science with human dignityMentioned in the EpisodeDr. Burt's books: Everyday Miracles: Curing Multiple Sclerosis, Scleroderma, and Autoimmune DiseasesKill Switch: The History of How Viruses Shaped Humanity and Led to COVID-19Genani BiotechHow can I get HSCT for myself or my loved one?https://astemcelljourney.com/about/drrichardburt/Leave a Review + Share the Show If this conversation opened your eyes to what stem cell therapy can do, please:Rate and review Brave New Us on Apple Podcasts or SpotifyShare this episode with a friend, patient group, or doctorKeep the conversation going at bravenewus.substack.com

Today's guest is another incredible scleroderma warrior. Kristina Hamilton was diagnosed in 2022 at just 32 years old, while raising three young children. Like so many women, she was initially told her symptoms were simply due to stress. Not long after, she found herself hospitalized, her weight dropping from 120 to 68 pounds. Her life changed almost overnight. Yet Christina's story is one of resilience, rising above her diagnosis to share her journey and inspire others. Join us as we hear how she faced her toughest battles, found her voice, and even landed in the pages of People magazine.

Cheryl and Melissa discuss her experiences in the healthcare system, driven by frustration to become a self-advocate. This led Melissa to write the book Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease, aiming to provide validation and resources for others facing similar struggles. Cheryl and Melissa also touch on the challenges of advocating for oneself, misconceptions in the medical field, the impact of invisible illnesses, and the importance of finding purpose and joy while living with chronic conditions.Episode at a glance:Melissa's Journey: Cheryl and Melissa discuss Melissa's long diagnosis journey.Navigating the Healthcare System: Melissa shares what it was like to navigate the healthcare system as a nurse turned patient.Self-Advocacy: Cheryl and Melissa discuss the importance of self advocacy. Melissa's Book: Melissa shares her journey of writing her new book, Invisible: a Nurse Turned Patient's Resource to Living Well with Autoimmune Disease.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! 

Today's guest is Shubhda Chaube. Shubhda is a scleroderma warrior who was diagnosed just a year ago on her 47th birthday, no less. Despite being early in her journey, she's jumped in with both feet: attending multiple support groups, including one based in India, and starting a thoughtful blog called Calm Core Cozy Layer. She's also working on a powerful project called From Patient to Pattern Seeker. Let's learn more about her journey and the projects she is working on.Shubhda's blog, Calm, Core & Cozy Layers

Join us on this episode of "Braving Business" as we dive into the world of global entrepreneurship and personal resilience with Saville Kellner, CEO of Lake Industries. From his beginnings in Cape Town, South Africa, to building a multinational manufacturing and distribution empire, Saville shares the strategies and mindset shifts that propelled his ventures to success over the past four decades.Key topics include the growth of Lake Industries into a global powerhouse, the intricacies of running diverse companies like JLS Financial and Revenue Media Group, and the importance of adaptability in business. Saville opens up about his personal journey with Scleroderma, a condition he discovered through a friend, and how it has fueled his philanthropic efforts, including collaborations with The Johns Hopkins Hospital and organizing annual fundraising events.Listeners will gain valuable insights into balancing business leadership with meaningful philanthropy, understanding the significance of resilience in the face of personal and professional challenges, and the power of leveraging networks for global impact.Actionable Takeaways:Discover the principles of building a sustainable and globally recognized business.Learn how personal experiences can shape leadership styles and inspire philanthropic missions.Understand the importance of resilience and adaptability in navigating both business and personal trials.Gain practical advice on expanding your business network and influence across borders.Tune in to hear Saville Kellner's inspiring story and learn how to turn challenges into opportunities for growth and impact. Whether you're an entrepreneur, executive, or creative professional, this episode offers strategies to help you thrive in the face of adversity.Learn more about Saville at www.lakeindustries.com and www.revenuemediagroup.com

[Part 2] Healing Autoimmune Disease With Supermarket Foods (Encore) In the second half of this article, learn what foods to eliminate in order to heal autoimmune disease or any inflammatory illness.  I knew about step 1, but learned so much more about "why", and steps 2 & 3 are on my radar now, again! (they used to be before, but I've been slipping, plus I better understand the importance of them now too).

[Part 1] Healing Autoimmune Disease With Supermarket Foods (Encore) This is AMAZING information! Learn how to heal autoimmune disease, or any inflammatory illness, with supermarket foods. By @drgoldner at @nutritionstudies. #vegan #plantbased #veganpodcast #plantbasedpodcast #plantbasedbriefing #lupus #healinglupus #autoimmunedisease #inflammation #inflammatorydisease #hypernourishing #scleroderma #sjogren's #arthritis #goodbyelupus ======================== Original post: https://nutritionstudies.org/healing-autoimmune-disease-with-supermarket-foods/    Dr Goldner's Video Webinar: https://www.goodbyelupus.com/6-steps-to-reversing-disease-with-supermarket-foods-webinar/  ========================== Related Episodes: Related Episodes: use search feature at https://www.plantbasedbriefing.com/episodes-search      ========================= The T. Colin Campbell Center for Nutrition Studies was established to extend the impact of Dr. Campbell's life changing research findings. For decades, T. Colin Campbell, PhD, has been at the forefront of nutrition education and research. He is the coauthor of the bestselling book, The China Study, and his legacy, the China Project, is one of the most comprehensive studies of health and nutrition ever conducted. Their mission is to promote optimal nutrition through science-based education, advocacy, and research. By empowering individuals and health professionals, we aim to improve personal, public, and environmental health. ====================== FOLLOW THE SHOW ON: YouTube: https://www.youtube.com/@plantbasedbriefing     Spotify: https://open.spotify.com/show/2GONW0q2EDJMzqhuwuxdCF?si=2a20c247461d4ad7 Apple Podcasts: https://podcasts.apple.com/us/podcast/plant-based-briefing/id1562925866 Your podcast app of choice: https://pod.link/1562925866 Facebook: https://www.facebook.com/PlantBasedBriefing   LinkedIn: https://www.linkedin.com/company/plant-based-briefing/   Instagram: https://www.instagram.com/plantbasedbriefing/   

Today, we have an inspiring story of resilience, purpose, and advocacy. Our guest is Perry Bray, he was diagnosed in 2018 with diffuse systemic sclerosis, Perry faced life-altering changes, including stepping away from his beloved football and ministry work. But rather than let the diagnosis define him, Perry chose to redefine what it means to live with this rare disease. He became a powerful voice in the scleroderma community, joining the Renew Program and the Peer Mentor Program through the University of Michigan. He also shares his experiences and insights through his personal blog, creating a space of hope and connection for others. Perry's journey is one of courage, adaptation, and impact and today, we get to hear it in his own words.

Eric Ruderman, MD, leads a Northwestern Medicine panel discussion with Irene Blanco, MD, Anisha Dua, MD, and Carrie Richardson, MD. Together, they dive into the latest advances in clinical trials and treatment strategies for scleroderma, vasculitis and lupus.The panel discusses the goals and complexities of contemporary clinical trials, recent breakthroughs in therapies and the innovative potential of CAR-T therapy for managing autoimmune diseases. They emphasize the significance of personalized medicine and the collaboration needed among clinicians, industry collaborators and patient advocacy groups to drive research forward.

Good Vibe Tribe: Stepping Out For Scleroderma full 285 Thu, 19 Jun 2025 11:31:45 +0000 xz5IDe1gnEz2aefnG1uqkycF1jvJctDM latest,wwbx,society & culture Karson & Kennedy latest,wwbx,society & culture Good Vibe Tribe: Stepping Out For Scleroderma Karson & Kennedy are honest and open about the most intimate details of their personal lives. The show is fast paced and will have you laughing until it hurts one minute and then wiping tears away from your eyes the next. Some of K&K’s most popular features are Can’t Beat Kennedy, What Did Barrett Say, and The Dirty on the 30! 2024 © 2021 Audacy, Inc. Society & Culture False https://player.amperwavepodcasting.com?feed-lin

Carolyn McMakin, MA, DC - contact @ frequencyspecific.com Kim Pittis, LCSP, (PHYS), MT - info @ fsmsports365.com 00:24 Kim's Business Insight 02:42 Patient Case Study: Kidney Transplant and PTSD 05:41 Vestibular Injury Diagnosis and Treatment 09:34 Managing Chronic Conditions and Patient Care 15:07 Vestibular Symptoms and Treatment Protocols 20:36 Addressing Dizziness and Balance Issues 24:09 Core Training and Course Adjustments 26:14 Addressing Wegener's Granulomatosis 29:26 Class Materials and Preparation 30:46 Conference Presentation Highlights 35:19 Treating Jaw Pain and TMJ Issues 44:21 Scleroderma Paper and Teaching Insights 45:42 Managing Stagnant Blood Flow and Hypertension 51:28 Upcoming Courses and Practicum Weekends Leveraging Energy in Medical Decisions Every medical decision, much like a business choice, should either enhance or deplete your energy. Practitioners often find rejuvenation in exploring new techniques or revisiting familiar practices in a new light. Utilizing FSM, medical practitioners have noted a renewed sense of purpose, especially when faced with chaotic and stressful situations. Clinical Observations and Case Studies Understanding Vestibular Injuries Vestibular injuries, often undiagnosed by conventional means, can profoundly impact patients' lives. A notable case highlighted the importance of a thorough history and vestibular screening for patients with anxiety and reading comprehension issues. Uncovering such connections can dramatically shift a patient's trajectory, improving their self-esteem and functional capabilities. Practical Steps: - Utilize a tuning fork for auditory assessments. - Perform comprehensive examinations to identify vestibular injuries. - Consider peripheral issues, such as reading comprehension and head trauma, that might suggest vestibular involvement. Integration into Treatment Protocols FSM's strengths lie in its adaptability across various conditions and symptoms. Common issues such as dizziness and balance problems, often resulting from exposure to substances or injuries, can be mitigated by targeting specific frequencies. Adjusting these for midbrain and cerebellum support can aid in patient recovery. Key Frequencies: - Use 40 and 44 Hz to relax neck muscles and alleviate anxiety. - Apply concussion protocols in combination with vestibular injury screens. Managing Chronic Conditions Some chronic conditions, like Raynaud's phenomenon and granulomatous diseases, may pose treatment challenges. FSM can aid by addressing both sympathetic and parasympathetic nervous system imbalances, targeting arterial function, and reducing inflammation. Strategies for Practitioners: - For Raynaud's phenomenon, focus on enhancing arterial vitality while minimizing sympathetic stimulation. - Address the complexities of conditions like Wegener's granulomatosis by understanding the interplay between vascular inflammation and organ systems. Enhancing Practitioner Skills To optimize the benefits of FSM, practitioners are encouraged to deepen their understanding through continuous education. Hands-on workshops and patient practicums can significantly enhance skills, allowing medical professionals to implement advanced protocols confidently. Integrating FSM into medical practice not only expands treatment possibilities but also transforms patient outcomes. By embracing new methodologies and maintaining a patient-centric approach, practitioners can offer hope and healing where traditional methods have fallen short. Stay informed, remain curious, and continue to explore the transformative power of frequency-specific microcurrent in patient care.

Send us a textGut issues are incredibly common in scleroderma — but they also show up across many autoimmune diseases. In this episode, I'm diving deep into how scleroderma affects the gut, why gut motility and vagal tone matter so much, and what you can actually do to support digestion and resilience — whether or not you have a scleroderma diagnosis.If you're dealing with bloating, reflux, constipation, food sensitivities, SIBO, or nutrient deficiencies — this one is for you.I'll cover:How excess collagen and nervous system changes affect gut functionWhy so many people end up on PPIs — and what to do alongside themHow to safely support motility and nutrient absorptionMy go-to foods and supplements for gut repair and resilienceThe critical role of vagal tone — and simple ways to improve itPractical steps to address stubborn constipationPlus I'll share how I use Nurosym for vagus nerve support (discount code VH5 for 5% off here), and how our Gut Health Testing Package can help you get to the root of your gut symptoms. Learn more here. And don't miss our upcoming live Q&A on Foods to Eat for Autoimmune Disease inside The Autoimmune Forum — happening 18th June. Link in show notes.Your gut can heal — and this episode will give you the tools to start.Thanks for listening! You can join The Autoimmune Forum on Facebook or find me on Instagram @theautoimmunitynutritionist.

The boys are joined by two very special guests: Dyson Heppell and his best mate, Haych. Haych has been diagnosed with Scleroderma — a rare and challenging autoimmune condition. Hepp and Haych have been mates for years, steadily ticking off Haych's bucket list. One of those items? Appearing on a podcast - and he chose ours! Tune in for this very special episode of 200Plus. You can check out Haych's label here: https://haychthelabel.com/ Enjoy plums and remember to GET THE KNEES UP! We're giving it heaps this year thanks to the new Mazda BT-50 Ute! We're on Youtube! Full episodes now will drop Wednesday nights: ⁠⁠⁠⁠⁠https://www.youtube.com/@200PlusPodcast⁠⁠⁠⁠⁠ Send us your voice messages here: ⁠⁠⁠⁠⁠https://memo.fm/200pluspodcast/⁠⁠⁠⁠⁠ Produced by Josh Moffitt 200 PLUS Instagram: ⁠⁠⁠⁠⁠https://www.instagram.com/200pluspod/⁠⁠⁠⁠⁠ Sam Draper:⁠⁠⁠⁠⁠ www.instagram.com/drvper/⁠⁠⁠⁠⁠ Nick Butler: ⁠⁠⁠⁠⁠https://www.instagram.com/nick_butler10/⁠⁠⁠⁠⁠ Charlie Comben: ⁠⁠⁠⁠⁠https://www.instagram.com/charliecomben/⁠⁠⁠⁠⁠ Clubby Sports: ⁠⁠⁠⁠⁠https://www.instagram.com/ClubbySports⁠⁠⁠⁠⁠ Producey:⁠⁠⁠⁠⁠ https://producey.com/

What an incredible milestone! What began as a simple idea during the pandemic, something to keep me busy in retirement and a way to give back to the scleroderma community has grown into something truly meaningful. I've been deeply moved by how warmly this podcast has been received. In this special episode, I want to honor that spirit by reconnecting with the incredible scleroderma warriors who generously shared their stories. Let's check in and see how they're doing. Let's begin.

In the final part of this series, Joseph Parambil, MD, walks us through the approach of managing pulmonary hypertension, reviews the pathophysiology and digs into the mechanisms and the differences in the medications. Intro 0:12 In this episode 0:17 Interview with Joseph Parambil, MD 2:53 Reviewing and clarifying pathophysiology prior to initiating therapeutics 4:13 Evaluating patients in terms of their functional status and how does that play a role in initiating therapies 4:25 Vasoreactivity testing 10:21 The categories of medications 14:40 Endothelin receptor antagonists 37:07 TGF pathway 42:13 Scleroderma patient and treatment 50:19 Do patients get a repeat right-heart catheterization? 55:51 What about the TGF-beta? 56:55 Thank you, Dr. Parambil 58:34 Thanks for listening 59:17 We'd love to hear from you! Send your comments/questions to Dr. Brown at rheuminationspodcast@healio.com. Follow us on Twitter @HRheuminations @AdamJBrownMD @HealioRheum. Disclosures: Brown and Parambil report no relevant financial disclosures. Joseph Parambil, MD, is a staff member in the Respiratory Institute and the director of the HHT Center of Excellence and the Vascular Anomalies Center at the Cleveland Clinic. He is associate professor of medicine at Cleveland Clinic's Lerner College of Medicine. He is certified by the American Board of Internal Medicine with additional specialty certification in pulmonary medicine and critical care medicine.

In this episode, we dive into a fascinating and often overlooked aspect of rheumatology: complications from diabetes that can mimic rheumatic diseases. Dr. Schiopu kicks off the discussion by shedding light on Diabetic Myonecrosis, a painful muscle condition that can be easily mistaken for other rheumatic disorders. We then explore Scleroderma, a skin-thickening muscle disorder that resembles systemic sclerosis (SSC) but has distinct underlying mechanisms. Dr. Schiopu shares invaluable insights on how to approach complex rheumatology consults in the hospital, emphasizing the importance of thoughtful diagnostic reasoning. She also discusses why sometimes the best approach in medicine is to avoid unnecessary tests and treatments, prioritizing patient care and accuracy in diagnosis. 

Today's guest is Rashmi Bhasin, a true scleroderma warrior. Like many women seeking a proper diagnosis, she was repeatedly told her symptoms were due to hormones or stress. As a result, it took four years to finally get the correct diagnosis. But rather than letting that struggle define her, she turned it into a force for good. Today, she leads Scleroderma India, advocating for others facing similar challenges. Tune in to hear her inspiring journey firsthand!

Today's guest is scleroderma warrior Emily Radican. Over the years, Emily has been diagnosed with a range of autoimmune diseases, and five years ago, Limited Scleroderma became part of her journey. Many of her health challenges have revolved around her gut, which inspired her to pursue a degree in nutrition. Now, she's working toward her Ph.D. in Nutritional Science and Food Chemistry. Join us as we dive into her story, her autoimmune journey, and her exciting plans for the future after graduation!

Today's guest is Melissa Marquis, who shares her incredible journey of perseverance and advocacy. It took 10 years for Melissa to receive a diagnosis of undifferentiated connective tissue disease—a condition where the immune system attacks connective tissues, but the symptoms and lab results don't fully align with any specific connective tissue disease. Three years later, she was diagnosed with limited cutaneous systemic sclerosis. After years of uncertainty and navigating frustrating symptoms, Melissa turned her experiences into a resource for others. She authored the book Invisible: A Nurse-Turned-Patient's Resource to Living Well with Autoimmune Disease to support those facing similar challenges in their quest for answers.

Let's discuss the importance of recognizing and treating acute medical conditions such as cellulitis, using a recent personal experience of treating a 14-year-old hockey player. Dr. Carol and Kim Pittis highlight the swift and effective medical response from UCSF Children's Hospital, emphasizing the combination of frequency-specific microcurrent (FSM) therapy with traditional medicine. The discussion includes the impact of stress on health, the importance of patient advocacy, and the nuances of treating various conditions with FSM. Scenarios involving burns, cysts, and nodules are also examined.  00:14 Personal Story: Daughter's Health Scare 02:29 Urgent Care and Hospital Experience 05:33 Reflecting on Medical Knowledge and FSM 14:28 Historical Medical Literature and Communication 22:39 FSM in Practice and Integration 27:11 Memorable Moments with Dr. Nenshi and Dr. Burke 28:14 Addressing EMF Sensitivity Concerns 32:43 Treating Burn Scars with FSM 39:46 Insights on Scleroderma and Raynaud's 41:53 Understanding COVID's Impact on Vascular Health 46:32 Addressing Pancreatic Cysts and Nodules 50:45 Holiday Wishes and Final Thoughts   Starting Off: A Scare and Lessons Learned Kim Pittis had a health scare that involved her daughter and how a quick and determined response prevented a serious escalation. It highlights the importance of acting fast and relying on the expertise of healthcare professionals when things take an alarming turn. After tackling this ordeal, it was incredible to have the support of the community and to engage in discussions about the crucial role of modern medicine and shared knowledge in navigating health challenges. This experience reinforced the value of antibiotics and the essential partnership between various treatments.   Exploring Deeper Health Discussions We deep dive into several health-related topics, bringing out detailed discussions about treating scars, both atrophic and keloid, and how frequency specific microcurrent can make a significant difference. Burn scars and the complexities they bring were discussed, illustrating effective techniques for enhancing mobility and comfort. We touched on the importance of understanding different treatment modalities, emphasizing the collaborative nature of various approaches. There was a genuine appreciation for the blend of new and traditional knowledge, recognizing the timeless wisdom contained in historical medical texts.   Innovative Case Studies Here intriguing case studies, including treating cysts and the complexities of nodules. Through these discussions, the value of hypothesizing, asking the right questions, and exploring less obvious solutions became apparent. They reflected on fascinating insights into hormonal impacts, nutritional considerations, and the intriguing intersection of different treatment strategies. It's always about finding the right balance and combination that works best for each individual case.   A Community of Continuous Learning One of the podcast's core messages is about the endless growth and learning that occur within our community. Whether discussing personal experiences, expert advice, or audience questions, there's a shared commitment to expanding our understanding and improving outcomes. The discussions also touched on the importance of staying informed about the latest research, attending symposiums, and the role of case reports in advancing collective knowledge. It's about learning from one another, challenging current frameworks, and exploring innovative treatments.  

What an inspiring guest we have today! Allison Zhang's story is a testament to resilience and determination. Living 24 years with scleroderma is no small feat, and founding the first national scleroderma NGO in China shows her incredible dedication to helping others in similar situations.Through this conversation, we'll not only get a glimpse into her personal journey of managing scleroderma since childhood but also learn about her efforts to advocate for and empower the scleroderma community in China. Let's dive in and uncover how Allison has turned her challenges into a platform for change and hope!.

In this episode, we review the high-yield topic of⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Scleroderma⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the MSK section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets

Rachel Lando is a teacher of movement and anatomy, specializing in Pilates, restorative yoga, and self-myofascial release. She is also a writer and the founder of Patient Care Movement, a fitness company that provides accessible movement education for those living with debilitating chronic illnesses. Rachel pursued and received advanced certifications in yoga and Comprehensive Pilates. In this episode we discuss Rachel's journey into movement, her battle against Scleroderma and what has driven her to succeed so far. You can find out more about Rachel at https://www.patientcaremovement.org Enjoy!! #whatdrivesyou

Listen as Elizabeth Kircher, DNP, and R. Hal Scofield, MD, discuss best practice approaches for the treatment of Sjögren's syndrome and what's on the horizon for future therapeutic options.Topics include:Challenges in Sjogren's Syndrome Diagnosis and Patient Understanding: Difficulties in explaining Sjogren's syndrome diagnosis to patients unfamiliar with it and challenges in addressing the disease's varied symptomsPatient Education and Communication: Strategies to prevent overwhelming patients during early visits and effective ways to address misconceptionsDiagnostic Challenges and Misunderstandings: Differences between clinical and research criteria for diagnosis and the importance of understanding eachUse of Ultrasound and Biopsy in Diagnosis: Benefits and limitations of ultrasound and biopsies in diagnosing Sjogren's syndromeMultidisciplinary Care Barriers: Challenges in coordinating care among specialists such as ophthalmologists, dentists, and rheumatologistsSymptomatic vs Disease-Modifying Treatments: Strategies for managing symptoms vs addressing the underlying disease with medicationsLong-term Medication and Risks: Considerations when prescribing long-term medications and immunosuppressive therapiesResearch and Emerging Therapies: Developments in Sjogren's syndrome research, including promising medications in clinical trialsGuideline Development and Patient Reassurance: The role of professional guidelines in shaping care and providing patients with reassurancePolypharmacy and Medication Reconciliation: The importance of pharmacist involvement in managing complex medication regimens for older patients Faculty:Elizabeth Kircher, DNPR. Hal Scofield, MDMember/Professor, Arthritis & Clinical ImmunologyOklahoma Medical Research FoundationProfessor, Department of Medicine, College of MedicineUniversity of Oklahoma Health Sciences CenterAssociate Chief of Staff for ResearchOklahoma City US Department of Veterans Affairs Medical CenterOklahoma City, OklahomaLink to full program:https://bit.ly/3YKpsOE

 In the last episode, you heard Dr. Shah discuss autologous stem cell transplants. In today's episode, you'll meet Kim Rodning, the first non-trial recipient of an autologous stem cell transplant at Duke University. Like many scleroderma warriors, Kim remains positive and upbeat, even in the face of adversity. Her story is truly heartwarming.

Kerry discovered she wasn't well about 5 years ago and with many tests and doctors, she was diagnosed with an autoimmune disorder called scleroderma. She is positive about her prognosis and is doing everything she can to manage symptoms including massage therapy. She asked us to use our platform to spread awareness and help people to learn more about this condition. Listen to Kerry's story and what is and isn't helpful to those living with scleroderma. 2rmtsandamic.com

Maria Morias, a registered nurse from Canada, shares her journey of managing multiple autoimmune diseases, including her recent diagnosis of pulmonary arterial hypertension. Previously dealing with scleroderma, Raynaud's phenomenon, and a rare liver disease leading to a liver transplant, Maria's ongoing symptoms of shortness of breath were eventually linked to pulmonary hypertension. Her story reflects on the psychological impact of chronic illness and the empowerment gained from community support and self-advocacy. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware  Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com @phacanada

Today's guest is Dr. Ankoor Shah. He is the Director of the Duke Scleroderma Clinic. In our episode today, we discuss his clinic and what it has to offer to scleroderma patients. We then dive into the main topic of our talk, stem cell transplant. I learned so much about what stem cell transplant involves and how it has helped the scleroderma community. 

Episode SummarySheila Nevins, a prominent documentary filmmaker and best-selling author, discusses her experiences with her son's Tourette syndrome and speaks about the broader themes of aging, disability, and authenticity. Through personal stories and reflections, she sheds light on often misunderstood topics, emphasizing the importance of genuine representation over sensationalism. With humor and candor, Sheila shares her journey of seeking answers and navigating the complexities of life. Her commitment to storytelling is marked by a willingness to confront uncomfortable truths, making for a compelling and insightful conversation. Sheila shares a wealth of wisdom for us all.About Sheila NevinsSheila Nevins is an American television producer and former head of MTV Documentary Films division of MTV Entertainment Studios. Previously, Nevins was the President of HBO Documentary Films. She has produced over 1,000 documentary films for HBO and is one of the most influential people in documentary filmmaking. She has worked on productions that have been recognized with 35 News and Documentary Emmy Awards, 42 Peabody Awards, and 26 Academy Awards. Nevins has won 31 individual Primetime Emmy Awards, more than any other person. The film, I Have Tourette's but Tourette's Doen't Have Me, won an Emmy.Sheila's IMDB pageFrom This EpisodeTourette Association of AmericaWatch I Have Tourette's but Tourette's Doesn't Have MeYou Don't Look Your Age...and Other Fairy Tales (I recommend the audiobook!)National Institute of Mental HealthFive Things You May Not Know About Tourette Syndrome Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Subscribe to YouTube channelFollow and send a message on FacebookFollow and send a message on LinkedInFollow on InstagramFollow on TikTokFollow on ThreadsThe Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksCo-Producer and Marketing Coordinator: Kayla NelsonProduction Assistant: Becki Leigh

Today's podcast is with Ezra Halsted who was diagnosed with scleroderma at the age of 16. It was very interesting to hear the perspective of someone who was diagnosed young  and how that changed her youth. 

To have your question featured in a future video, please email: questions@drmdc.health

In this episode, we review the high-yield topic of ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Scleroderma⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠from the Rheumatology section. Follow ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Medbullets⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ on social media: Facebook: www.facebook.com/medbullets Instagram: www.instagram.com/medbulletsofficial Twitter: www.twitter.com/medbullets Linkedin: https://www.linkedin.com/company/medbullets

Murph caught up with more RAGBRAI LI riders to hear about their week biking across Iowa. This is the second episode in a series of great interviews with riders from all over the country. On this episode meet Randy, Sonya and Barb. Randy is from DC and called this year his Revenge Tour! Sonya is from Maxwell, IA who rode RAGBRAI for the 27th time!! This year her daughter joined her. And finally Barb from Des Moines is on to talk about her experience. Riders may have seen her and her team riding the route loaded down with tanks of oxygen. Barb uses oxygen due to the effects of Scleroderma and has an amazing story to share with us. https://ragbrai.com https://ragbrai.com/thegreatiowafallride/ Barb's YouTube Page: https://www.youtube.com/@sclerowhatadventures

Welcome back to Episode 25 and thank you to all our loyal listeners! Please share an episode with someone you know! Beth recently had the honor of speaking at the National Scleroderma Foundation Annual Conference, July 20-22 in Seattle, WA.  Using her background as a Pediatrician, parent and person living with Scleroderma, she spoke to PARENTS of kids with Scleroderma at the "Kids Get Scleroderma Too" portion of the conference.  She discussed the challenges navigating the healthcare system and how to advocate for your child and yourself when you have rare, complex, chronic disease. In this episode we use her experience as a springboard to discuss strategies applicable for ALL parents to apply to their own kids - think constipation, headaches, belly pain, etc. The healthcare system is complex, fragmented and confusing. It is important that parents feel empowered to share the responsibility of managing their child's care. 

Today's guest is Ilaria Galetti, a scleroderma warrior for over 27 years and currently awaiting a lung transplant. Like many scleroderma warriors she is an advocate for the disease. Ilaria is the Vice President of the Federation of European Scleroderma Associations FESCA. Listen to hear about her journey and her advocacy work.

Kathryn “Cassie” Torok, MD, director of the Pediatric Scleroderma Clinic at UPMC Children's Hospital of Pittsburgh, is one of the few doctors in the nation that is considered an expert on pediatric scleroderma and patients will travel from other cities to meet with her. Learn about this uncommon condition and the clinical work and research coming from the Pediatric Scleroderma Clinic.

Today's guest is Jim Stempel. Jim has been a scleroderma warrior for almost 2 decades. For him scleroderma attacked his lungs, resulting in a lung transplant in 2018. He then decided to retire which led him to volunteer. Jim is doing wonderful advocacy for the scleroderma community. Listen to hear his journey and how is giving back.

Today's guest is Dr. Beth Vukin. Beth is a Scleroderma warrior and a pediatric doctor. Beth was diagnosed recently but has had signs for 3 years. We discuss how, even as a doctor, it is hard to diagnose Scleroderma. 

To have your question featured in a future video, please email: questions@drmdc.health