Cheat Codes: A Sickle Cell Podcast

On this episode of Cheat Codes, guest host Janie Davis, Director of Patient Advocacy at Agios Pharmaceuticals, is joined by sickle cell advocates Teonna Woolford, Cassandra Trimnell, and Rae Blaylark discuss the challenges and rewards of sickle cell advocacy. They delve into personal journeys, the nuances of advocacy, and the importance of self-care. The conversation highlights the power of community, the significance of setting boundaries, and the need for therapeutic support. The advocates also reflect on the impact of their work and offer advice for the next generation of sickle cell advocates.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.  

On this episode, Dr. Z and Dr. C. Callahan interview Dr. Isaac Odame, a leading figure in the field of sickle cell disease. Dr. Odame shares his life story, beginning in Ghana, his medical training in the UK, and his global contributions to sickle cell research, including involvement with the Global Sickle Cell Disease Network. The discussion covers his work in various countries, the challenges, and successes in treating sickle cell disease, and his family's influence on his career.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.   Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.  

Drs. Z and C welcome Dr. Wally Smith, a leading figure in sickle cell research from Virginia Commonwealth University, to discuss crucial issues affecting adults with sickle cell disease. They explore the neglect of adult patients, the need for dedicated centers, and the value of community health workers. Dr. Smith emphasizes the importance of holistic healthcare solutions, state-level policy initiatives, and community support to improve quality of life and outcomes for sickle cell patients.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.   Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.  

On this inspiring episode of Cheat Codes, Dr. Z and Dr. C talk with an extraordinary group of individuals who embarked on a monumental climb up Mount Kilimanjaro to raise awareness and funds for sickle cell disease. Led by Dr. Alan Anderson and featuring sickle cell warrior Jimi Olaghere the group of Patrick Hines, MD, PhD, Eva Gallagher, PhD, and Audra Boscoe, PhD shares personal stories of perseverance, determination, and the powerful symbolism of their climb. They discuss the challenges they faced, both mental and physical, and the life-changing impact of their journey. With over $2 million raised, the episode concludes with a hopeful message for the future of sickle cell diagnosis and treatment in Sub-Saharan Africa. Audra Boscoe and Eva Gallagher are employees of Agios Pharmaceuticals. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   Join an inclusive community and build connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram. TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

On this episode of Cheat Codes, Dr. Z and Dr. C are joined by Tabatha McGee, Executive Director of the Sickle Cell Foundation of Georgia. Tabatha shares her remarkable journey from systems engineer to leading the foundation, driven by a personal mission to enhance the lives of sickle cell warriors. The discussion delves into innovative programs like the Sickle Cell Sanctuary, holistic care initiatives, and the importance of community engagement and advocacy. An inspiring talk on leadership, resilience, and the transformative power of compassion in the fight against sickle cell disease.   To visit the Sickle Cell Foundation of Georgia, click here.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.  

On this episode, Dr. Z and Dr. C welcome Dr. Julia Xu, a rising star in the field of sickle cell disease. Dr. Xu shares her inspiring journey from Omaha, Nebraska, to her current role at the University of Pittsburgh. The discussion covers her extensive background in global health, her research on anemia in sickle cell disease, and the impactful mentors who have shaped her career.  SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

In this special “Lunch and Learn” session sponsored by the Agios Diversity Council, Dr. Simone Uwan shares her inspiring journey living with and advocating for sickle cell disease. Dr. Uwan discusses her background, achievements in medicine and advocacy, and her personal experiences with misdiagnosis and the challenges faced by sickle cell patients. Highlighting critical insights from her books, she emphasizes the importance of medical management, patient empowerment, and the need for diverse treatment options in fighting this disease. For more information, visit the Sickle Cell Medical Advocacy website. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guest featured in this episode have been compensated for their time.

Holly John, Agios' Senior Director of Patient Advocacy, has a partner working with her on sickle cell disease patient advocacy! On this episode of Cheat Codes: A Sickle Cell Podcast, Dr. Z and Dr. C Janie Davis. Janie is the Director of Patient Advocacy at Agios Pharmaceuticals and is excited to work with the sickle cell community.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.  

Join Dr. Z and Dr. C as they host a live panel from Florida with key figures from various community-based organizations (CBOs) dedicated to supporting those affected by sickle cell disease. Panelists share insights on the vital roles CBOs play, their unique challenges, successes, and the importance of collaborations with healthcare providers, pharmaceutical companies, and legislators. Panelists Include: Rae Blaylark (Sickle Cell Foundation of Minnesota) - Twitter/X - Facebook - LinkedIn - Instagram Howard Ffrench (SCDAA Miami) - Facebook TaLana Hughes (Sickle Cell Disease Association of Illinois) - LinkedIn - Facebook - Twitter/X Tabatha McGee (Sickle Cell Foundation of Georgia, Inc.) - LinkedIn - YouTube - TikTok - Twitter/X - Instagram  Dr. Wanda Whitten-Shurney (SCDAA Michigan Chapter) - Instagram - Facebook - LinkedIn DeMitrious Wyant - Website SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.  

On this episode of Cheat Codes: A Sickle Cell Podcast, we're coming to you again from Detroit, Michigan. Here, the docs sit down with Dr. Alex Glaros. Dr. Glaros is a Pediatric Hematologist-Oncologist at Children's Hospital of Michigan.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.   Voice Over: The following Agios Supported podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. The guests on today's show were paid to participate in this podcast.  

On this episode of Cheat Codes: A Sickle Cell Podcast, we're live in the Motor City: Detroit, Michigan. This live event featured Dr. Z and Dr. C interviewing a panel of esteemed guests including Davinna Christian, Dr. Alex Glaros and Clifton Kirkman, II discussing clinical trial awareness. We also hear from Dr. Wanda Whitten-Shurney at the end of the episode. Dr. Shurney was unable to attend the recording but made a special appearance. A must listen!   SHOW DESCRIPTION: Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Ayana Johnson. In addition to being a sickle cell warrior, Ayana is also Miss Teen Virginia ‘22, a teen ambassador of the SCDAA and founder of Ay's Hope Cells.  SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.  

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA).  SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.  

http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios' phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that they have, about participating in a clinical trial. On this panel the docs speak with Teonna Woolford, Dominique Friends, Blaze Eppinger, Golie-Lorenzo Green & Tristian Jones.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host featured in this episode have been compensated for their time.  

On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care.”    Learn more about Cayenne Wellness at https://cayennewellness.org   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

On this episode, Dr. Z and Dr. C talk to “The Avengers” of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.  

On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!   TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts Dr. Ahmar Zaidi, Dr. Mike Callaghanand guest Dr. Obiageli Nnodu have been compensated for their time.  

Dr. Z and Dr. C welcome “Sickle Cell Legend” Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts! TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts Dr. Ahmar Zaidi, Dr. Mike Callaghanand guest Dr. Obiageli Nnodu have been compensated for their time.  

We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire to find common ground with these communities and their treaters. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts! TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Ahmar Zaidi, Kevin Kuo, Laurice Levine, Mike Callaghan, Cassandra Trimnell, Teonna Woolford, NinaMaria Badalamenti, Clarisse Lobo, Jill Welle, Tamara Schryver, Rae Blaylark, Ralph Colasanti, Rucha Shah, Alejandra Watson, Biree Andemariam, Charles Jonassaint, Sujit Sheth, Nirmish Shah have been compensated for their time.  

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization. Originally aired September 6, 2022.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!   TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

On this episode, we're turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We'll get to know them a little better and learn about their journey into medicine and sickle cell disease.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!   TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!   TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker.   The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers.  Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advisors, and is unique in that every session, presentation, panel and workgroup was chosen directly by the patient community to educate, empower and encourage ourselves and each other.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. 

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson.   The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers.  Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advisors, and is unique in that every session, presentation, panel and workgroup was chosen directly by the patient community to educate, empower and encourage ourselves and each other.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. 

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: “The Momma Bears”. Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of the Sickle Cell Reproductive Health Organization.    SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!   TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts! TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.   Show Notes: Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios' phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that they have, about participating in a clinical trial. On this panel the docs speak with Teonna Woolford, Dominique Friends, Blaze Eppinger, Golie-Lorenzo Green & Tristian Jones.   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TRANSPARENCY STATEMENT Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host featured in this episode have been compensated for their time.

On this episode, Dr. Z and Dr. C debut a series about the “Legends of Sickle Cell”. They interview Dr. Michael DeBaun and patient legend Shamonica Wiggins. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts! TRANSPARENCY STATEMENT The following Agios-supported podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Podcast hosts are employees of Agios and the guests have been compensated for their time. Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. Show Notes: Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Cheat Codes is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more.

Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease. Show Notes: Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com

Dr. C and guest host Amy Board of BloodStream Media talk to Dr. Lydia Pecker about Reproductive Health in Sickle Cell. Hear Dr. Pecker's thoughts on menstrual cycles with sickle cell, fertility, contraception and more on this important, little discussed topic. A must listen! Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers. Dr. Lydia Pecker on Twitter Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter Guest Host Amy Board on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community and being “fueled by connections,” join us as guest host, with special guest host, and patient advocate Blaze Eppinger returns to the show for a discussion with Agios' and guest Sarah Gheuens, Chief Medical Officer, at Agios Pharmaceuticals.  Show Notes: Guest Host Blaze Eppinger on Instagram Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Cheat Codes welcomes Dr. Mark T. Gladwin to talk about Pulmonary hypertension in sickle cell disease with Dr. Z and Dr. C. Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers. Sickle Cell Disease (textbook) by Mark T. Gladwin, M.D. Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

On October 29th, 2021, Hertz Nazaire, a prominent sickle cell warrior and prolific artist, passed away at age 48. In honor of Hertz, we're re-airing Dr. Z's interview with him for Cheat Codes, originally published in December of 2020.  Show Notes: Homegoing Expenses for Hertz Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit Program Notes: Subscribe to Cheat Codes on Apple Podcasts Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media - Cheat Codes - Website For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community, join us as guest host, Blaze Eppinger speaks with Darrin Miles, the Chief Commercial Officer and Holly John, the Head of Patient Advocacy both of Agios Pharmaceuticals.  Show Notes: Guest Host Blaze Eppinger on Instagram Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Dr. Z and Dr. C chop it up with two of the foremost experts (Mitch and Vijay) on the science of gene therapy in sickle cell disease.   Show Notes:   Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.   Dr. Vijay Sankaran on Twitter Dr. Mitch Weiss Email at St.Judes   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Dr. Nirmish Shah, the Director of Duke University's sickle cell transition program, joins Cheat Codes to discuss the numerous challenges associated with helping patients with sickle cell disease successfully transition from pediatric to adult care.   Show Notes: Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Graham Serjeant, a British-born medical researcher best known for his multi-decade study of sickle cell disease in Jamaica, joins Cheat Codes to share stories and learnings from across his storied career.   Show Notes: Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.   Graham Roger Serjeant on Wikipedia: https://bit.ly/GRSwiki Link to Jamaican Cohort Study Article: https://bit.ly/38auoRO   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter   Subscribe to and rate Cheat Codes BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Dr. Z and Dr. C chop it up with Dr. Lewis Hsu, CMO of Sickle Cell Disease Association of America to get an update on COVID-19 and sickle cell disease!   Show Notes: Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Mapillar Dahn is a woman on a mission. Her organization, MTS, is not going to be stopped by anyone.  She is advocacy personified.  Dr. Z and Dr. C spend some time gleaning insight from this immense figure in sickle cell advocacy. Learn more about My Three Sicklers  Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Featuring Dr. Patrick Hines of Functional Fluidics.  Functional Fluidics Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Santonio Holmes, Super Bowl XLIII MVP and founder of the III & Long Foundation is joined by Martenzie Johnson, writer for ESPN's "The Undefeated", on this week's episode as they discuss the importance of Sickle Cell screening and advocacy within sports organizations, as well as their close and personal connections to Sickle Cell Disease and Trait.   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Drs. Z and C welcome back Dr. Lakiea Bailey of the Sickle Cell Consortium and a fantastic crew of doctors and warriors as they recap highlights from the recent Foundation for Sickle Cell Disease Research (#FSCDR21) symposia in another installment of the “Best of Sickle Cell Conferences” series.    Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Sickle Cell rockstars Mandy David and Maya Bloomberg join the show.   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

In this episode Dr. Z and Dr. C sit down with sickle cell difference makers at the Indiana Hemophilia Treatment Center.  Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Pain and health psychologist Dr. Rachel Zoffness joins to discuss a biopsychosocial approach to treating and managing pain. Book for kids is here Adult book is here Follow Dr. Zoffness on Twitter @drzoffness   Follow Dr. Zoffness on Instagram @TheRealDocZoff Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Dr. Z sits down with Dr. Wanda Shurney and Gary Gibson.   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Dr. Ingrid Sarnaik ran the Sickle Cell Center in Detroit for decades.  This is her legacy, and also ours.   Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

Dr. Z and Dr. C spend some time with Chief of Pediatric Infectious Disease at University of Florida, and nationally-recognized COVID-19 expert Dr. Mobeen Rathore to dispel some COVID-19 and vaccine myths. Sponsored by Agios Pharmaceuticals  Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes Subscribe to and rate The BloodStream Podcast Subscribe to and rate The Ask The Expert Podcast Subscribe to and rate BloodStream Journeys Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter