Podcasts about sickle cell disease association

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/EEY865. CME/AAPA credit will be available until November 24, 2025.A New Script for SCD Care: Guidance on Patient-Centric Treatment Decisions With Innovative Therapeutics In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by independent educational grants from Agios Pharmaceuticals, Inc., and Novo Nordisk Inc.Disclosure information is available at the beginning of the video presentation.

Leah Wiggins is committed to helping people overcome obstacles and win in life. She is owner of Leah Wiggins Agency of Farmers Insurance, an award-winning scratch business she started in 2009. She is a Registered Representative holding both Series 6 & 63 licenses. She and her agency team have assisted thousands of individuals, families, and business owners protect their assets and build wealth. Leah is the author of two children's books under her company, eVision, LLC. The company has published more than a dozen authors' work as well. Leah is a member of the National Association of Insurance and Financial Advisors (NAIFA) and has the Life Underwriter Training Council Fellow (LUTCF®) and the Financial Services Certified Professional (FSCP®) professional designations from The American College of Financial Services. She is a graduate of UAB's Collat School of Business and The University of Farmers® for insurance professionals. Leah was recognized as a NAIFA Alabama Top Advisor for 2022. She is a back-to-back winner of the Best Insurance Agent award given by readers of Birmingham Magazine. Leah has qualified for both the Farmers Insurance® Championship and its Topper Club two times each. In 2018, she was the only woman and only black owner to represent the state of Alabama. Her community service is centered around her passions for philanthropy, mentorship, and total life prosperity. She is a Life Member of Alpha Kappa Alpha Sorority, Inc.® (AKA) and the South Eastern Region Representative to the International Connection & Social Action Committee of AKA. She is the 36th President of AKA Omicron Omega Chapter where she led chapter operations, programming, and served on the executive leadership for the construction of its CEAF Pearl Center, a million- dollar community center during the global pandemic. Leah co-founded the CEAF Financial Empowerment Conference, which has impacted hundreds of Birmingham area citizens since 2013. The annual conference provides youth and adults with resources and education on how to build wealth, buy a home, and start a business. Leah is God's Heritage Fellowship Ministry Director at Calvary Resurrection Christian Church; President of Grace Browning Unit Parliamentarians; Board President for the Sickle Cell Disease Association of America - Central Alabama Chapter, and Board Director for the Birmingham Urban League, Huffman High School Alumni Legacy Board, and Children's Aid Society. She is an appointed Commissioner to the Alabama Sickle Cell Oversight and Regulatory Commission. Her awards include The Links, Incorporated, Tri-County (AL) Chapter, Model Citizen Honoree for National Trends & Services; AKA South Eastern Region Entrepreneur of the Year; and Omicron Omega Chapter Humanitarian of the Year, and Member of the Year. Leah attributes her success and ability to lead and serve others to God, her supportive family, and empowering mentors. Her proudest assignments are wife, mother, and grandmother.

Sickle cell disease (SCD) can affect many areas, including daily life, and some of the effects can be lifelong. More so, SCD impacts the quality of life for many patients in the form of depression, anxiety, executive function, and more. In partnership with The Sickle Cell Disease Association of America, Matthew Zachary Worldwide presents “The Sickle,” a three-part limited series for patients and caregivers. In each episode, you'll hear from the people living with SCD and experts who work every day to improve their lives. We'll learn about the lifelong care, interpersonal relationships, and medical disparities people with SCD live with and what we can do to improve them.EPISODE THREESickle cell disease (SCD) is the most common blood disorder worldwide. About 7 million people have been diagnosed with SCD, and about 100 million people have sickle cell trait. Around 300,000 babies are born with SCD each year. For a rare disease, SCD is quite common, yet patients with SCD are still facing discrimination from funders, researchers, and medical professionals. Still, today, medical professionals are not thoroughly educated on how painful living with SCD can be. In this episode, Joel Helle, vice president of physician services at CVS Health, explains how medical professionals are still behind on SCD awareness. Ahmar Zaidi, SCD advocate and medical director at Agios Pharmaceuticals, talks about his experience as a medical professional working with SCD patients. Our previous guests, Dr. Lewis Hsu, Justina Williams, Dr. Carolyn Rowley, and Andre Harris, talk about the discrimination SCD patients face and how we can help end it.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Sickle cell disease (SCD) can affect many areas, including daily life, and some of the effects can be lifelong. More so, SCD impacts the quality of life for many patients in the form of depression, anxiety, executive function, and more. In partnership with The Sickle Cell Disease Association of America, Matthew Zachary Worldwide presents “The Sickle,” a three-part limited series for patients and caregivers. In each episode, you'll hear from the people living with SCD and experts who work every day to improve their lives. We'll learn about the lifelong care, interpersonal relationships, and medical disparities people with SCD live with and what we can do to improve them.EPISODE TWOSickle Cell Disease (SCD) is often called an invisible illness; people can't see the excruciating pain. When living with SCD, advocacy becomes crucial as patients inform teachers, employers, medical doctors, and friends of their condition. A pain crisis can put an SCD patient out of work or school or land them in the hospital, where medical professionals are unaware of the severity of their pain. Moving through the world with an invisible illness is a trying task for an already exhausted patient. This is why having a solid support system, either with family or through an organization, is crucial. In this episode, we meet Justina Williams, Patient Engagement Coordinator with Piedmont Health Services and Sickle Cell Agency. She shares her story about how living with SCD has led her to her current role. We also meet Dr. Carolyn Rowley, executive director and founder of Cayenne Wellness Center and Children's Foundation. Cayenne Wellness is a non-profit organization that allocates resources to SCD patients in California. Patients can receive housing and transportation and even have an advocate for them when going to emergency rooms. Dr. Rowley tells the story of her early life with SCD in the 60's and what led her to found the non-profit.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Sickle cell disease (SCD) can affect many areas, including daily life, and some of the effects can be lifelong. More so, SCD impacts the quality of life for many patients in the form of depression, anxiety, executive function, and more. In partnership with The Sickle Cell Disease Association of America, Matthew Zachary Worldwide presents “The Sickle,” a three-part limited series for patients and caregivers. In each episode, you'll hear from the people living with SCD and experts who work every day to improve their lives. We'll learn about the lifelong care, interpersonal relationships, and medical disparities people with SCD live with and what we can do to improve them.EPISODE ONEAndre Harris is a 32-year-old Ph.D. student residing in Houston, Texas. He's currently working on a doctorate in social work. Andre is the first graduate student in his family to make this academic achievement, but his road to higher education was not a smooth one. Andre has lived with chronic pain since he was a child. From strokes to pain crises, he has lived with a disease that can interrupt the flow of life. These symptoms are due to sickle cell disease (SCD), a group of genetic blood conditions that affect about 100,000 people in the U.S. In this episode, Andre talks about his earliest memories of living with SCD and the needs of the most vulnerable SCD patients. Dr. Lewis Hsu, a pediatric hematologist at the University Of Illinois Chicago and the Sickle Cell Disease Association of America, explains what SCD is and how it works. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

This content has been developed for healthcare professionals only. Patients who seek health information should consult with their physician or relevant patient advocacy groups.For the full presentation, downloadable Practice Aids, slides, and complete CME/AAPA information, and to apply for credit, please visit us at PeerView.com/QHE865. CME/AAPA credit will be available until February 21, 2025.Activating Better Care in SCD: Guidance on Novel PKR Agents, Other Innovative Therapies, and Modern Care Transitions In support of improving patient care, this activity has been planned and implemented by PVI, PeerView Institute for Medical Education, and Sickle Cell Disease Association of America, Inc. PVI, PeerView Institute for Medical Education, is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.SupportThis activity is supported by an educational grant from Novo Nordisk Inc.Disclosure PolicyAll relevant conflicts of interest have been mitigated prior to the commencement of the activity.Faculty/Planner DisclosuresChair/PlannerSantosh L. Saraf, MD, has a financial interest/relationship or affiliation in the form of:Consultant and/or Advisor for Agios Pharmacueticals, Inc.; Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; Novo Nordisk, Inc.; and Pfizer.Grant/Research Support from Global Blood Therapeutics, Inc.; Novartis Pharmaceuticals Corporation; and Pfizer.Planning Committee and Reviewer DisclosuresPlanners, independent reviewers, and staff of PVI, PeerView Institute for Medical Education, do not have any relevant financial relationships related to this CE activity unless listed below.

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA).  SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.   TRANSPARENCY STATEMENT  Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.  

Are you ready to unravel the mysteries of sickle cell disease and its treatments? Join us as we unravel this complex world with Professor Lewis Hsu MD, PhD, and Chief Medical Officer of the Sickle Cell Disease Association of America. Together, we traverse through the intricate process of bone marrow, stem cell, and peripheral blood stem cell transplants, their success rates, and the nuances of finding the right donor. As we delve into this journey, Professor Hsu  enlightens us with his comprehensive knowledge about the life expectancy of sickle cell patients in different countries, highlighting the challenges they encounter.Taking a culinary detour, we dish out some interesting tidbits about the unique spiciness of Nigerian cuisine. Stay tuned as we also spotlight the commendable efforts of CVS drugstores in raising global awareness about sickle cell disease. Through broadcasting public service announcements in their stores, CVS is playing a key role in educating the public about this disease. So, gear up for a compelling conversation that not only deepens your understanding of sickle cell disease treatments but also dishes out delightful chatter about Nigerian food. Tune in, learn, and enjoy!Support the show

Prepare to be captivated as we have an enlightening exchange with Professor Hsu, the Chief Medical Officer of the Sickle Cell Disease Association of America. Brace yourself to attain a deeper understanding of the heightened risks during pregnancy for individuals grappling with sickle cell disease. We probe into the significant strain pregnancy imposes on organs such as the lungs and kidneys, and the potential necessity to cease specific medications throughout this period. Furthermore, we unmask the critical part structural racism plays in influencing pregnancy outcomes for those with sickle cell disease.In our exploration of sickle cell disease, Professor Hsu eloquently describes the disparities between normal red blood cells and sickle cells and the challenges these differences can trigger. She accentuates the need to equip adolescents with sickle cell disease for their transition into adulthood, given the potential amplification of risks connected to typical adolescent behavior. We wrap up this thought-provoking episode by discussing the sickle cell genotype, how randomness influences the likelihood of a child inheriting the disease, and why gaining an understanding of one's genotype is paramount. Buckle up to uncover the complexities of this condition and its interaction with factors like pregnancy, age, and genetics.Support the show

What if we told you that women with sickle cell disease face astonishingly high risks during pregnancy, and that race, bias, and access disparities play a huge role in their maternal health? Join us as we uncover these alarming statistics with the help of our esteemed guest, Professor Lewis L HSu, MD, PhD, Professor at the University of Illinois at Chicago, and the Chief Medical Officer of the Sickle Cell Disease Association of America. We'll discuss the urgent need for improved transition practices for adolescents and young adults with sickle cell disease, and the crucial role of community health workers in spreading vital information.Not only will we investigate the impacts of sickle cell disease on maternal health, but we'll also delve into the significance of genetic diagnosis and raising awareness for this debilitating condition. Discover the intricacies of pre-implantation genetic diagnosis, the annual Global Sickle Cell Awareness Day, and the spicy world of Nigerian cuisine. Learn from Professor Sue's expertise as we navigate the challenges faced by healthcare providers in keeping up with advancements in sickle cell disease treatment, and explore how trust and information can improve the lives of those living with this genetic condition. Don't miss this insightful conversation that could help change the future of maternal health outcomes for individuals with sickle cell disease.Support the show

James Rawlings, president/CEO of the Sickle Cell Disease Association of America, Connecticut, gives an update on funding and what's being done to help the 45,000 people carrying the Sickle Cell Trait in Connecticut.

Diagnosed at a young age, Antoinette has dealt with Sickle Cell all her life. It's not until she's older that she realizes her Sickle Cell is unlike any case her doctor has seen before. With deliberating symptoms and multiple crises, Antoinette turns to her doctor for a life changing diagnosis.   *  *  *  *  *  * ****** SPOILER ALERT BELOW ****** To find out more information on Sickle Cell disease visit the Sickle Cell Disease Association of America at sicklecelldisease.org.See omnystudio.com/listener for privacy information.

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada. They also discuss the care of her son Ismaël who was diagnosed with the rare disease.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell. Hosted by Ahmar U. Zaidi, MD (Dr. Z) & Michael U Callaghan, MD (Dr. Mike). Listen to past episodes of Cheat Codes wherever you get your podcasts!   TRANSPARENCY STATEMENT Cheat Codes: A Sickle Cell Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Host and guests featured in this episode have been compensated for their time.

Regina Hartfield is CEO and president of the Sickle Cell Disease Association of America. Hartfield served on the association's board of directors for three years, including as chair of the fundraising committee. Previously, she managed federal, state and commercial contracts for CVP, an information technology consulting firm in Virginia and Maryland. Hartfield was a community affairs professional in the nonprofit arena in New York for more than 25 years where she gained experience as a leader in nonprofit organizations. She graduated with honors from Lehman College of the City University of New York with a Bachelor of Arts in community outreach. Servio Astacio was born in the Dominican Republic with sickle cell anemia and experienced symptoms from an early age. His condition prevented him from pursuing his dream of military service, but he remains driven to growing in other areas of his life. Now 25 years old, Astacio lives in Miami, owns a business and pursues interests in finance and technology. He advocates for sickle cell awareness and research and has spoken at conferences, symposia and roundtables.

Today's guest is Regina Hartfield, CEO and President of The Sickle Cell Disease Association. She joins Host Ramses Ja to discuss Sickle Cell in the Black community during Sickle Cell awareness month.See omnystudio.com/listener for privacy information.

Joe Madison interviews House Majority Leader Steny Hoyer about the January 6 investigation and what Congress is doing to bring costs down and deal with rampant inflation. He then speaks with Regina Hartfield, CEO and President of the Sickle Cell Disease Association of America, about the upcoming World Sickle Cell Awareness Day.

In this episode, we continue our Health Policy series with guests Alpha Abebe and Rhonda C. George. Alpha and Rhonda's research foregrounds Black community experiences and insights related to health policy engagement. We're featuring their work over two back-to-back episodes. This episode focuses on the engagement work of Black communities. Our guests want to "flip the script," shifting away from a deficit model of understanding Black community engagement. The follow up episode features Alpha and Rhonda's research on Black community engagement during COVID, and includes discussion on why they think it's valuable for Black researchers to be doing this kind of work. Alpha and Rhonda are members of the Public Engagement in Health Policy team based at McMaster University, which aims to strengthen health policymaking in Canada by providing a platform for interdisciplinary scholarship, education and leadership in public engagement.  This series is supported by the Public Engagement in Health Policy project, which promotes research, critical reflection and dialogue about engagement issues that have a health and health policy focus. Learn more about this Future of Canada project at engagementinhealthpolicy.ca [download transcript] Guest links: Alpha Abebe Profile on twitter Rhonda C. George Publications on twitter Related links: Unpacking the ‘Public' in Public Engagement: In Search of Black Communities Failure to include Black communities in health policy public engagement perpetuates health disparities Mentioned in this episode: Interview Extra: Advocacy and Health Equity, feat. Biba Tinga of the Sickle Cell Disease Association of Canada  Equity, Diversity, and Patient Engagement – with Dr. Nav Persaud Public Engagement in Health Policy Project  The Future of Canada Project

Our guest, Biba Tinga, is President and Executive Director of the Sickle Cell Disease Association of Canada. We initially spoke with Biba to ask for her reflections on the Equity and Diversity episode with Nav Persaud. But once we started talking, we realized that Biba's experience as an advocate was almost a perfect case study of what we've been talking about - the importance of focusing on health equity, as opposed to comparatively simple notions of diversity. So even though this episode is an extension of the Patient Partner Reflections segment in the previous episode, it also gets into some of the realities of advocating for policy change to support the health needs of a racialized group - one that is disproportionately affected by a rare disease, and is not well supported by our Canadian health care system. Sickle cell disease is an inherited blood disorder. And according to Health Canada, it can shorten the life of affected individuals by more than 30 years. It's caused by abnormally shaped red blood cells that can impair blood flow, causing strokes, lung disease and organ damage. In Canada, around 5000 people live with sickle cell disease, and it most commonly affects people of African descent, as well as Caribbean, Latin or South American, Middle Eastern and South Asian descent. [download transcript] Guests: Biba Tinga on twitter Sickle Cell Disease Association of Canada on Facebook Sickle Cell Disease Association of Canada on twitter Mentioned in this episode: Interview with Biba Tinga

In this episode, you will hear from Dr. Michele Lloyd-Puryear talk about the diagnosis process and current intervention for Duchenne Muscular Dystrophy also known as DMD. We will learn how parent lay advocacy group plays a role in NBS and NBS research. Whether you're a parent, health professional, researcher, or advocate, there are many ways to get involved with NBS research Michele Lloyd-Puryear, MD, PhD, is a pediatrician and geneticist and has held academic appointments and has worked in pediatric clinics at the local and international levels. She is a Fellow of the American Academy of Pediatrics and an Emeritus Member of the American College of Medical Genetics and Genomics. Over her 40-year commitment to infants, children, and mothers, she has made numerous contributions internationally and nationally to programs that have improved and expanded the quality, services, and scope of the NBS and the care for children identified through NBS. Recognition for her work in maternal and child health, genetics services and NBS include awards from HHS, the Association of Public Health Laboratories; the March of Dimes; the Genetic Alliance and the Sickle Cell Disease Association of America. Interview Questions: What is Duchenne Muscular Dystrophy (also known as DMD)?     How about babies diagnosed for DMD and what are the current interventions?      You have an MD and a Ph.D. and are trained as a pediatrician and geneticist. How did you get involved with newborn screening research?  What role do parent lay advocacy groups play in newborn screening and NBS research?   How can parents, health professionals, and researchers get involved in NBS research for DMD?  You have played a variety of roles in NBSTRN. What areas do you see NBSTRN can play a role in NBS research?  What does NBS research mean to you?  To learn how to get involved in newborn screening research, visit www.nbstrn.org . 

Featured Guest: Reverend Zemoria Brandon is the administrator/social worker for the Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter (SCDAA/PDVC), a community-based organization, established in 1982 to provide supportive and referral services across the lifespan to meet the needs of children, adolescents, adults and families living with sickle cell disease and sickle cell trait. She was married for twenty-five years to the late Rev. Walter E. Brandon, Co-Founder, SCDAA/PDVC who passed away from complications of sickle cell disease in April, 1998 at the age of 59 years old. Rev. Brandon received a Bachelor in Social Work (BSW) degree from Temple University, School of Social Administration in 2001. In 2002, she was inducted into the Temple University, Alumni Gallery of Success and into the School of Social Administration's Gallery of Success in 2008. In 2011, she was ordained as an Interfaith Minister from the New Seminary for Interfaith Studies in New York. Since 2019, Rev. Brandon has served as Chair/Co-Chair of the “Shine the Light on Sickle Cell” initiative in recognition of World Sickle Cell Awareness Day on June 19, through SiNERGe (Sickle Cell improvement across the Northeast Region), a project under the umbrella of the Sickle Cell Treatment Demonstration Program (TDP). She is also a member of the Pennsylvania Sickle Cell Providers Network, (PASCPN) a statewide collaborative comprised of community- based organizations and sickle cell healthcare providers. In addition, she is a certified single gene Hemoglobinopathy Counselor/ Educator through the University of Southern Alabama and the Sickle Cell Disease Association of America Chapter in Mobile, Alabama. Rev. Brandon currently serves as Chair, Board of Directors and Co-Chair, Legal and Immigration Committee for AFRICOM- Philly, an organization providing supportive services to the African and Caribbean immigrant communities. In addition, she is a member of the City of Philadelphia, Mayor's Commission on African and Caribbean Immigrant Affairs and former Co-Chair, Legal and Immigration Committee. Because of Rev. Brandon's community involvement and long-term commitment to the African and Caribbean community, in 2011 she was enstooled as a Development Queen into the Asere` Royal Family of the Ga State which is located in Accra, Ghana. Nii Amarkai, lll, Kingmaker presided as officiant over the enstoolment ceremony. Rev. Brandon was assigned to the village of Adjenkotoku and received the name of Naa Dede Ota l, which means Mother Earth, one who nurtures and takes care of others. Ms. Brandon is a member of the First Unitarian Church of Philadelphia and a former trustee. She currently serves on the worship arts ministry team and with First Church Voices Intergenerational Choir. She is the proud mother of 2 children, ages 53 and 37 years old and 4 grandchildren, ages 19, 71/2, 7 and 4 years old. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/carol-penn/support

Dr. Z and Dr. C chop it up with Dr. Lewis Hsu, CMO of Sickle Cell Disease Association of America to get an update on COVID-19 and sickle cell disease!   Show Notes: Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitter BloodStream Media For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes) Subscribe to and rate Cheat Codes   Connect with BloodStream Media: Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream on Facebook BloodStream on Twitter

ONS member Ellen Olson, RN, MS, CPNP, BMTCN®, CPHON®, bone marrow transplant pediatric nurse practitioner at Children's Healthcare of Atlanta Aflac Cancer and the Blood Disorder Service in Emory University's Department of Pediatrics, both in Georgia, and member of the Metro Atlanta ONS Chapter, joins Stephanie Jardine, BSN, RN, oncology clinical specialist at ONS, to discuss stem cell transplantation as a treatment option for pediatric sickle cell disease.   Music Credit: "Fireflies and Stardust" by Kevin MacLeod  Licensed under Creative Commons by Attribution 3.0  Earn 0.75 contact hours of nursing continuing professional development (NCPD) by listening to the full recording and completing an evaluation at myoutcomes.ons.org by September 17, 2023. The planners and faculty for this episode have no relevant financial relationships with ineligible companies to disclose. ONS is accredited as a provider of NCPD by the American Nurses Credentialing Center's Commission on Accreditation.  Episode Notes  Complete this evaluation for free NCPD.  Additional Oncology Nursing Podcast episodes on pediatric patients with cancer  Additional Oncology Nursing Podcast episodes on transplantation  ONS Voice article: FDA Approves L-Glutamine Powder for the Treatment of Sickle Cell Disease  ONS Voice article: Tips for Managing Chronic Pain in High-Risk Patient Populations  Clinical Journal of Oncology Nursing article: Young Adults With Sickle Cell Disease: Challenges With Transition to Adult Health Care  Be the Match information on sickle cell disease  Centers for Disease Control and Prevention information on sickle cell disease  National Institutes of Health guidelines on sickle cell disease  Sickle Cell Disease Association of America  2010 study by Walters et al. on transplants for sickle cell disease  To discuss the information in this episode with other oncology nurses, visit the ONS Communities.  To provide feedback or otherwise reach ONS about the podcast, email pubONSVoice@ons.org. 

Welcome  to Difficult Conversations with Dr. Anthony Orsini. Today, we are going to have a conversation about sickle cell  and rare diseases with someone whom I believe is uniquely qualified to have this discussion. My special guest today is Dr. Marjorie Dejoie-Brewer, owner of M.A.D.F.I.T MD, a medical consultant, wellness, and health business. She is also a Medical Consultant for the Sickle Cell Disease Association of America, and more recently held the position of Patient Engagement Lead in rare disease sickle cell for Pfizer.  Dr. Dejoie-Brewer is a patient herself with Sickle Cell Disease, and a firm proponent and practitioner of comprehensive and preventative health and wellness planning. Dr. Dejoie-Brewer has combined her expertise as a physician, her work in multiple sector settings, her passion for wellness, and her experience as a sickle cell patient to address the inequalities of sickle cell patients so that they live healthier lives without distrust of medical providers.  As always, Dr. Orsini keeps his promise about two things, that you will feel inspired, and you will have learned valuable lessons to be a better and more compassionate communicator.Marjorie tells us  about her personal journey as an immigrant's daughter to medical school.  She talks about changing career paths when she found out she had Sickle Cell Disease and the support network she had participating in a program called “Bridging the Gaps” which gave her a viewpoint of what medicine could be in real time. She also tells us what attracted her to starting a wellness clinic and focus on rehabbing individuals. Marjorie shares with us her view of chronic and rare diseases and how it is a redefinition of what optimal is every time you get sick.  Marjorie explains how that delivery of information from the doctor is so vital, and how these conversations definitely need more compassion. Dr. Orsini shares how in his workshops he talks about imagine, plan, and adapt when going into that conversation. We learn more about  issues with lower socioeconomic teenagers and minorities with Sickle Cell crisis  and how they are often viewed as drug seekers. She shares advice on what she tells patients and  providers in a crisis situation.   We end with Marjorie telling us the most difficult conversation she's had in her life and how she navigated through that conversation. If you enjoyed this podcast, please hit follow, and download all the previous episodes to find out more about what we do and how we teach communication. Host: Dr. Anthony OrsiniGuest:Dr. Marjorie Dejoie-BrewerSponsor:The Finley ProjectFor More Information:The Orsini WayThe Orsini Way-FacebookThe Orsini Way-LinkedinThe Orsini Way-InstagramThe Orsini Way-TwitterIt's All In The Delivery: Improving Healthcare Starting With A Single Conversation by Dr. Anthony OrsiniResources Mentioned:Dr. Marjorie Dejoie Brewer LinkedinDr. Marjorie Dejoie-Brewer InstagramSickle Cell Disease Association of Americamadfitbody@gmail.com

This episode of the Health Analytic Insights Podcast is all about bringing awareness to Sickle Cell Disease in the the health, public and political space and the role technology can play in helping to educate others. I interviewed Mrs. Lanre Tunji-Ajayi M.S.M, who is the president/CEO of the Sickle Cell Awareness Group of Ontario (SCAGO) and the founding president/CEO of the Sickle Cell Disease Association of Canada (SCDAC). Under her leadership, Sickle Cell Disease (SCD) achieved a new level of visibility and recognition in Canada as her advocacy work resulted in improved patient access to life-saving and disease-modifying therapies. Resources Discussed: https://sicklecellanemia.ca/ Welcome to the Health Analytic Insights Podcast. This podcast is ALL about creating a community of like-minded individuals who are passionate about the field of health informatics. I hope to share information and advice in topics such as health analytics, digital health, biomedical engineering and data visualization in healthcare and in exchange I would love to hear from you DEAR listener about your experience and interest in this field, you can drop me a line at healthanalyticinsights@gmail.com. Sign up to the newsletter and get your FREE guide to starting your career in health informatics here. DISCLAIMER: The views expressed on this podcast are my own and do not reflect those of people, organizations or institutions that I might be associated with in a professional capacity, unless explicitly stated. The views expressed by the guests on this show are their own and may or may not reflect those of people, organizations or institutions that I might be associated with in a professional capacity, unless explicitly stated.

About 100,000 American have sickle cell disease (SCD), an inherited disorder marked by sickle-shaped blood cells that can lump together, causing blockages of blood vessels, strokes, anemia, and early death. As a group, people with sickle cell disease experience worse health outcomes compared to other diseases and have access to fewer health resources. Today, we join André Marcel Harris, sickle cell disease advocate to discuss the current standard of care for SCD, and some of the structural barriers that interfere with access and treatment.   Keep in Touch and Connect with André   Facebook: André Marcel Harris Twitter: @Andreharris89 Instagram: @AndreMarcelHarris LinkedIn: André Marcel Harris   Join Black Men in Social Work or Black Men in Public Health on Facebook.   To learn more about Sickle Cell Disease please visit Sickle Cell Disease Association of America website here.   Listen & Subscribe to Equity Matters Podcast: Apple Podcasts, Google Podcasts, Podbean, and Spotify  Follow us on Twitter & Instagram Like us on Facebook Subscribe to the Equity Matters E-Zine

David Treat, Senior Managing Director Global BlockchainMultiparty Systems Lead at Accenture.Dr. Sadiya Kahn discusses the leading cause of death for both men and women in the USheart disease,Ms.Gabrielle Rader an John Sellers, Bank of America Rewards Executive,discuss their top tips for: Celebrating holidays.Lakesha Dickerson woman with Sickle Cell Disease and Dr. Biree Andemariam the chief medical officer of the Sickle Cell Disease Association of America.Let's Just Talk Radio Show is broadcast live at 2pm ET Thursdays on W4CY Radio (www.w4cy.com) part of Talk 4 Radio (www.talk4radio.com) on the Talk 4 Media Network (www.talk4media.com). This podcast is also available on Talk 4 Podcasting (www.talk4podcasting.com).

Featured Guests: Rev. Zemoria Brandon is an interfaith ministers as well as Chair & Social Worker Administrator of Sickle Cell Disease Association of America Philadelphia/Delaware Valley Chapter. Terralon Cannon Knight, MD, is a board-certified family physician, speaker, and sought-after career coach. A native of Macon, Mississippi, she has a passion for the underserved, with much of her career spent serving communities in the District of Columbia, Maryland and Virginia. Dr. Terralon is the CEO of Knight Coaching, LLC, which helps physicians navigate the transition from clinical to nonclinical careers in medicine. Dr. L. Flowers was born in the Midwest and raised in the Bay Area of Northern California. She attended the University of California, Davis for college, then the University of Arkansas for Medical Sciences for medical school and completed her training in Family Medicine at John Peter Smith Hospital in Fort Worth, TX. She is experienced in primary, urgent, geriatric, hospice, and occupational care and has also worked in multiple healthcare settings including military units nationwide. Dr. Hope Watts is board certified in family Practice. She is a health coach and lifestyle expert. She has coached many patients into reaching their highest lifestyle goals. She uses small goals to achieve great success. With her compassionates approach to patients, she addresses specific situations that may hinder their progress . She often uses mindset approaches to help encourage patients to think in a more positive way. Dr. Kathy Farah is an Integrative and Holistic Family Physician with a special interest in Mind-Body Medicine and social determinants of health, including racism. She is a faculty member for the Center for Mind Body Medicine, and is the lead for their programs in Indigenous Communities, and the combined Whole Health Coaching model at the Veterans Administration in the Florida region. She provides consultation at Children's Minnesota in the Department of Pain, Palliative Care and Integrative Medicine in Minneapolis, MN, in addition to Western Wisconsin Health. Rebecca Schoenewolf is a licensed holistic mental health therapist and energy healer, practicing in Connecticut and New York states. She has been in the psychology field since 1990, and has been studying energy healing, quantum physics, neurobiology, and cardiobiology since 2002. Dr. Deitrick L. Gorman, in addition to being one of America's most respected Family Physicians, Dr. Deitrick L. Gorman is also recognized as a 3 times best-selling author. She is a speaker, consultant, blogger, podcaster, and entrepreneur. Dr. Deitrick is America's Relaxation Doctor. Dr. Lisa Herbert is a bestselling author, speaker and respected family physician who brings over 20 years' experience of providing primary care and serving as a healthcare leader. Dr. Herbert's leadership experience comes from her positions as Medical Director of a local and nation insurance company, large hospital system and a six-center family planning agency. As one of the nation's most acclaimed cardiovascular physicians and surgeons, Board- certified cardiologist Dr. Sanul Corrielus is also a nationally recognized, wellness speaker, consultant and media personality. Dr. Corrielus is the Founder and Chief Executive Officer of Corrielus cardiology and he shares his knowledge via his Facebook live show “Meducation.” With his credentials and superb “bedside manner,” it's no wonder that the doctor is on track to revolutionize community-based heart healthcare across America. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/carol-penn/support

Featured Guests: Dr. Kadisha Rapp, is a board certified Emergency Medicine physician with over 20 years' experience, bestselling author of the book, “Help US Help YOU in the Emergency Room,” contributing author to the bestselling book, “The Making of Medical Mogul, Volume 3” and creator of The Mobile MD Kit, and The Mini Mobile MD Kit. She was born in Washington, DC, completed her undergraduate studies at The Johns Hopkins University, her medical training at the University of Maryland School of Medicine, her Emergency Medicine residency at Howard University Hospital, and she completed a Sports Medicine Fellowship at Allegheny General Hospital,in Pittsburgh,Pa., under the physicians for the Pittsburgh Pirates. Her mission is simple: Be safe. Be successful. Dr. Deitrick L. Gorman was born in a Midwestern city in Indiana. She graduated with Bachelor's degree from Purdue University, Master's degree at Indiana University and attended medical school in Stratford, New Jersey (Rowan University) where she earned her Doctorate. She went back to her hometown of Fort Wayne to complete her Family Medicine residency. In addition to being one of America's most respected Family Physicians, Dr. Deitrick L. Gorman is also recognized as a 3 times best-selling author. She is a speaker, consultant, blogger, podcaster, and entrepreneur. Dr. Deitrick is America's Relaxation Doctor. As one of the nation's most acclaimed cardiovascular physicians and surgeons, Board- certified cardiologist Dr. Sanul Corrielus is also a nationally recognized, wellness speaker, consultant and media personality. Dr. Corrielus is the Founder and Chief Executive Officer of Corrielus cardiology and he shares his knowledge via his Facebook live show “Meducation.” With his credentials and superb “bedside manner,” it's no wonder that the doctor is on track to revolutionize community-based heart healthcare across America. Dr. Ericka Goodwin is a Harvard trained, double board-certified psychiatrist, as well as a bestselling author, speaker, and integrative lifestyle coach. Her latest book is Fix Your Fairytale: A Woman's Guide to a Great Life, Love, and Legacy. She is passionate about improving mental wellness, making people feel loved, cared for, and seen. Dr. Ericka works as a traveling psychiatrist and has her own Adult Telepsychiatry Practice. Dr. Ericka also mentors and volunteers as faculty at Morehouse School of Medicine. Dr. Kathy Farah is an Integrative and Holistic Family Physician with a special interest in Mind-Body Medicine and social determinants of health, including racism. She is a faculty member for the Center for Mind Body Medicine, and is the lead for their programs in Indigenous Communities, and the combined Whole Health Coaching model at the Veterans Administration in the Florida region. She provides consultation at Children's Minnesota in the Department of Pain, Palliative Care and Integrative Medicine in Minneapolis, MN, in addition to Western Wisconsin Health. Rev. Zemoria Brandon is an interfaith ministers as well as Chair & Social Worker Administrator of Sickle Cell Disease Association of America Philadelphia/Delaware Valley Chapter. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/carol-penn/support

KC Morse, who grew up with sickle cell disease (SCD) and is now a school teacher shares her experience and encourages young adults as they transition from pediatric to adult care for SCD. She is joined by Dr. Wanda Whitten-Shurney, a pediatric hematologist/oncologist at Children's Hospital of Michigan and CEO of the Sickle Cell Disease Association of America (Michigan chapter), who discusses why it is so important for young adults with SCD to stay up to date with their medical care during times of transition and especially now being at increased risk for COVID-19.

Welcome to Episode 1 of Cheat Codes: A Sickle Cell Podcast, led by expert hosts Dr. Ahmar Zaidi and Dr. Mike Callaghan from the Comprehensive Sickle Cell Center at the Children's Hospital of Michigan!  Each episode of Cheat Codes brings you a series of segments packed with critical education and research information that patients and families need to know, as well as updates and clarifications from the social media "buzz" around sickle cell.  Cheat Codes also features interviews with leading experts, moments from major conferences, and contributions from people living with sickle cell, all while Dr. Z and Dr. Mike keep the show fresh, fun, and off-the-cuff! So sit back and enjoy the first-ever episode of Cheat Codes: A Sickle Cell Podcast, produced by Believe Limited, and don't forget to subscribe to Cheat Codes on your preferred podcast player!   Dr. Ahmar Zaidi (@ahmaruroojzaidi) on Twitter Dr. Mike Callaghan (@michaelucallag1) on Twitter BloodStream Media (@bloodstreaminfo) on Twitter Subscribe to Cheat Codes   Jimi Olaghere (@olagherej) on Twitter American Society of Hematology (ASH; @ASH_hematology) on Twitter  Sickle Cell Disease Association of America (SCDAA; @SCDAAorg) on Twitter   National Heart, Blood, and Lung Institute (NHBLI; @nih_nhlbi) on Twitter Gene Therapy for Sickle Cell on 60 Minutes Penicillin Prophylaxis in Children with Sickle Cell Disease

Tanya Gentry, is the president/CEO of the Sickle Cell Disease Association San Diego chapter. She describes her experience living with Sickle Cell Disease, the physical, social, and emotional impact of living in pain, and shares her personal healing and wellness practices. She also sheds light on racial and socio-economic barriers to treatment and research, and helping people with sickle cell through education, community building, advocacy, and love. Thank you Tanya (and mom) for being a guest on THOTM. September is National Sickle Cell Awareness Month.  Donate to Sickle Cell Disease Association of America, if you would like to help fund Sickle Cell research and supportive services to those affected. Visit www.sicklecelldisease.org You can also donate to Sickle Cell Disease Foundation of California to support summer camps for children and other programs for individuals and families impacted by Sickle Cell. Visit www.scdfc.org

Marcus Carey: Tribe of Hackers There are already hundreds of thousands of cybersecurity professionals and according to some sources, there is a shortage of several more hundreds of thousands. With his new book Tribe of Hackers, Marcus Carey wants to change that. Tribe of Hackers is a collection of industry, career, and personal insights from 70 cybersecurity luminaries. In this week’s episode of InSecurity, Matt Stephenson sits down with world renowned hacker Marcus Carey, CEO of Threatcare, to talk about talk about his new book, Tribe of Hackers as well as mentors from his past who have influenced him and, by extension, influenced the world of cybersecurity. About Tribe of Hackers These are the wisdom and perspectives of real-life hackers and cybersecurity practitioners, including David Kennedy, Wendy Nather, Lesley Carhart, and Bruce Potter. Threatcare will be giving away three copies per day (fifteen total) at the RSA Conference. Follow Threatcare on Twitter and Sign Up for the Risk Report to learn more about the details. All proceeds from the book will go towards Bunker Labs, Sickle Cell Disease Association of America, Rainforest Partnership, and Start-Up! Kid’s Club. About Marcus Carey Marcus Carey is renowned in the cybersecurity industry and has spent his more than 20-year career working in penetration testing, incident response, and digital forensics with federal agencies such as NSA, DC3, DIA, and DARPA. He started his career in cryptography in the U.S. Navy and holds a Master’s degree in Network Security from Capitol College. Marcus regularly speaks at security conferences across the country. Currently, working as founder and CEO of cybersecurity company Threatcare, Marcus is passionate about giving back to the community through things like mentorship, hackathons, and speaking engagements, and is a voracious reader in his spare time. Tribe of Hackers is his first published book, but will definitely not be his last. About Matt Stephenson Insecurity Podcast host Matt Stephenson (@packmatt73) leads the Security Technology team at Cylance, which puts him in front of crowds, cameras, and microphones all over the world. He is the regular host of the InSecurity podcast and host of CylanceTV Twenty years of work with the world’s largest security, storage, and recovery companies has introduced Stephenson to some of the most fascinating people in the industry. He wants to get those stories told so that others can learn from what has come Every week on the InSecurity Podcast, Matt interviews leading authorities in the security industry to gain an expert perspective on topics including risk management, security control friction, compliance issues, and building a culture of security. Each episode provides relevant insights for security practitioners and business leaders working to improve their organization’s security posture and bottom line. Can’t get enough of Insecurity? You can find us wherever you get your podcasts including Spotify, Stitcher, SoundCloud, I Heart Radio as well as ThreatVector InSecurity Podcasts: https://threatvector.cylance.com/en_us/category/podcasts.html iTunes/Apple Podcasts link: https://itunes.apple.com/us/podcast/insecurity/id1260714697?mt=2 GooglePlay Music link: https://play.google.com/music/listen#/ps/Ipudd6ommmgdsboen7rjd2lvste Make sure you Subscribe, Rate and Review!

Loraine Ballard Morrill speaks with Zemoria Brandon from the Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter about the upcoming 21st Annual Walter E. Brandon Sickle Cell 5K Walk/Run fundraiser on September 22nd.https://runsignup.com/Race/PA/Philadelphia/21stANNUALWALTEREBRANDONSICKLECELL5KWALKRUNWant a great evening out with delicious food cooked by some of Delaware's finest men? We'll tell you about Gentlemen's Cook-off with a Cause sponsored by the Delaware Chapter of the National Coalition of 100 Black Women. Loraine spoke with Nichelle McKelvey-Polston and Alexandra Coppadge from National Coalition of 100 Black Women.https://www.facebook.com/NCBWDE/Loraine spoke with two dynamic women who are featured artists at the upcoming Barnes Foundation “Artist Bash – Fierce Women” Friday September 21st from 8-11 pm. Musician and Artist Vessna Scheff spoken word/playwright Nikki Powerhouse joined Loraine for a lively and emotional interview about their artistic expression. https://www.barnesfoundation.org/artist-bash-fierce-women-sept

Loraine Ballard Morrill speaks with Zemoria Brandon from the Sickle Cell Disease Association of America, Philadelphia/Delaware Valley Chapter about the upcoming 21st Annual Walter E. Brandon Sickle Cell 5K Walk/Run fundraiser on September 22nd.https://runsignup.com/Race/PA/Philadelphia/21stANNUALWALTEREBRANDONSICKLECELL5KWALKRUN

Host Michelle Turner speaks with Jim Rawlings, Board Chair, Southern CT Branch, Sickle Cell Disease Association of America.

HBS 029 Interview with Sandi McCree | Actress  On BET - The New Edition Story, & HBO's The Wire (aka Delonda Brice)  Actress, youth advocate and educator, Sandi McCree, known for her edgy, street-tough performance as "Delonda Brice" on HBO's The Wire, has been on the front line of arts education and media literacy for over 21 years years. McCree began acting at age 4 growing up in Washington, D.C. where she gained love for storytelling. She went on to pursue a Bachelor of Arts degree in Radio, Film and Television from the University of Maryland and her Master's in acting from Case Western Reserve University. McCree furthered her dramatic studies at the National Shakespeare Conservatory in New York and the British American Drama Academy in Oxford, England. It was during her time at Case Western where McCree developed her approach of Multimedia Arts Focused Prevention Education through the formation of her organization The Thought Provoking Arts Company (TPAC). TPAC was commissioned by Case Western Reserve University to develop original arts-based programs aimed at providing prevention awareness activities for the student body with an emphasis on freshmen residents. TPAC's mission to provide comprehensive arts education and art focused prevention programming to children was fulfilled in McCree's work with multiple Ohio Public School Districts, Cuyahoga Community College, the Center for Families and Children in Cleveland Ohio and Pin Points Theatre, a national educational touring company in Washington, DC, where she served as Eastern Regional Director. Meanwhile, McCree's professional career took two mutually beneficial tracks as actress and arts educator. While performing across the country in stage productions such as The Exonerated, Fires in the Mirror and the one woman show The Gimmick, McCree was simultaneously writing and presenting on childhood education. She co-authored Artful Strategies for Prevention Education Group Work with Adolescent African-American Girls at the 23rd International Symposium on Social Work with Groups and in 1999 presented Using a Psychosocial Network to Empower Parents of Children with Sickle Cell Anemia to Maximize Life's Opportunities for the Sickle Cell Disease Association of America. McCree's work on stage and in education led to her serving as Media Liaison for the National Black Media Coalition. Her TV credits include The Closer Cold Case and Criminal Minds yet it is her work on HBO's The Wire that embodies the marriage of her passion for acting/storytelling with youth advocacy. Against type, McCree portrays "Delonda Brice," a villainous, misguided mother who would rather see her son selling drugs on the streets in order to support her ghetto fabulous lifestyle than attend and excel at school. Such a character couldn't be further from McCree's own and she's been able to use this deviant role as a platform for her dedication to the supportive development of young minds. McCree was a Producer of "BeBop to Hip-Hop" an educational performance at the Thelonious Monk Institute of Jazz were she holds the position of Special Projects Coordinator. She recently appeared in the award-winning documentary "Keep On Keepin On" produced by the legendary Quincy Jones. Sandi performs weekly with several improv troupes including Most Humble. She can be seen weekly at such venues as: The Groundlings Theater, Second City, iO West, The Clubhouse, Asylum Lab, Danger Room and Neon Venus. In November 2013, Most Humble is the 8-time defending champion of Second City Hollywood's Thunderdome Improv Cagematch show. In the Summer of 2015, Sandi McCree was invited to join the prestigious Sunday Company at The Groundlings. Sandi McCree is has taught and directed students at the San Diego School of Creative and Performing Arts and she teaches theatre arts at the Los Angeles County High School for the Arts   Links to Sandi McCree: Twitter @SandiMcCree  Instagram @sandimccree BET.com: The New Edition Story The Wire on HBO: The WIRE    Thank You for checking out Hollywood Breakthrough Show  | Follow us on Twitter @TheBreakThur This podcast main purpose is to serve up positive information. Join us at Hollywood Breakthrough Show, as we interview some of the most talented people in the business, which names you may, or may not know! But you have seen their work! Whether they're well- established veterans of the business, or current up and comers, these are the people who are making a living in Hollywood. Screenwriters, directors, producers and entertainment industry professionals share inside perspective on writing, filmmaking, breaking into Hollywood and navigating SHOW BUSINESS, along with stories of their journey to success! HELP SPREAD THE WORD PLEASE! SCREENWRITERS, DIRECTORS, AUTHORS, we would love to help spread the word about your Film, Book, Crowdfunding, etc., Contact us! (EMAIL: Info@hollywoodbreakthrough.com ) See Videos of all interviews at Hollywood Breakthrough Show Please subscribe in iTunes and write us a review! Follow us on: Social Media Sites | Twitter @TheBreakThur| Facebook: facebook.com/HollywoodBreakthroughPodcast Subscribe! Or, Please contact us for Interviews or Sponsorship of an episode! Hollywood Breakthrough Show Website (EMAIL: Info@hollywoodbreakthrough.com ) View Apps Sponsor: Press and hold links to visit the page: Hollywood Hero Agent Fenix Hill Pro Scottie The Baby Dino   SANDI MCCREE Images:   

Welcome to another edition of Po Politickin. In this episode, we politick with Houston native Brian Angel. Known as the lead singer for the supergroup Day 26, Brian is now developing his own label Ambassador Way Entertainment in conjunction with Dallas-based management company HULK Entertainment. Brian Angel discusses life after Day 26 and his new projects. Brian Angel is currently a spokesperson for the Sickle Cell Disease Association of America (SCDAA), and has activated a "Be Aware" campaign, where fans can text BREAK-ANGEL to 52000 to easily donate $10 to this cause. Follow Brian Angel on Twitter @MrAngel_Day26 and Like him at Facebook.com/BrianAngelOfficial

SPECIAL GUEST: Lanetta B. Jordan, MD, MPH, MSPH, Director of Sickle Cell Services at Memorial Healthcare System/South Broward Hospital District Hollywood, Florida serves as Chief Medical Officer for the Sickle Cell Disease Association of America, Inc. Dr. Jordan's academic credentials include a M.D. degree from the University of North Carolina School of Medicine and Masters of Public Health in Health Policy and Administration (University of North Carolina School of Public Health, Chapel Hill, NC). In 2004, Dr. Jordan created the Department of Sickle Cell Services at Memorial Healthcare System where she is responsible for daily operation of activities which include focus on adolescent and adult acute pain care, comprehensive follow-up care, research and grants, community outreach education, genetic counseling and screening, and an adolescent transition program. SPECIAL GUEST: Sonja Lynae Banksis the newly elected President and Chief Operating Officer of the Sickle Cell Disease Association of America, Inc. headquartered in Baltimore Maryland. In that position she is responsible for the administrative activities of the organization which serves sickle cell community based organizations through out the United States. Prior to her current position, Ms. Banks served the St. Vincent's Health System in Birmingham, Alabama for three years. While at St. Vincent's Health System, Ms. Bank served as Director of Community Services, Outreach and Adult Indigent Services. Ms. Banks' has a Master's Degree in Public Administration and Business from Jacksonville State University. http://www.sicklecelldisease.org/

On today's show we have an exclusive interview with Joseph C. Phillips, the original portray er of General Hospital's Justus Ward. We visit about his time on General Hospital including his favorite storyline, what it was like to portray a member of the Quartermaine family, and work with the wonderful Rosalind Cash. We discuss his role on the NBC hit comedy The Cosby Show, the two upcoming documentaries he is set to appear in, and weighs in on the As the World Turns Nuke controversy.He talks about his work with Sickle Cell Disease Association of America, his book "He Talk Like A White Boy", and how raising his sons is the most fulfilling roles of his life.