Podcasts about chasing my cure a doctor's race

This episode was originally released on October 02, 2019.Dr. David Fajgenbaum is a medical doctor and University of Pennsylvania researcher who experimented on himself to save his own life. Dr. Fajgenbaum discovered he had Castleman disease, a rare disease that ravaged his body and nearly killed him. After experiencing several bouts of the disease, he set about researching his condition to determine what if anything could be done to "cure" it. He is now a 10 years in remission this month. Dr. Fajgenbaum chronicles his story in the book "Chasing My Cure: A Doctor's Race to Turn Hope into Action."During this podcast, Dr. Fajgenbaum details the near-death experiences he had while hospitalized, and recounts the process by which he researched his disease and ultimately discovered a cure. Dr. Fajgenbaum also talks about how he helps others with Castleman disease and how being in remission made it possible to marry the woman he loves, to be a father to their child, and to appreciate every day of his new life.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

The powerful memoir of a young doctor and former college athlete diagnosed with a rare disease who spearheaded the search for a cure—and became a champion for a new approach to medical research. Michael talks to David Fajgenbaum, author of "Chasing My Cure: A Doctor's Race to Turn Hope into Action; A Memoir."

Listen to this powerful interview with Dr. David Fajgenbaum who has an incredible new memoir, "Chasing My Cure: A Doctor's Race to Turn Hope into Action". David's story is truly unique; it's a tale of learning to live, while dying: a universally relatable story about getting up and fighting back after life knocks you down. A former Georgetown quarterback nicknamed "The Beast," David Fajgenbaum was also a force in medical school, where he was known for his unmatched mental stamina. But things changed dramatically when he began suffering from inexplicable fatigue. In a matter of weeks, his organs were failing and he was read his last rites. Doctors were baffled over a condition they had yet to even diagnose; floating in and out of consciousness, Fajgenbaum prayed for the equivalent of a game day overtime: a second chance. Miraculously, Fajgenbaum survived, but only to endure repeated near-death relapses from what would eventually be identified as a form of Castleman disease—an extremely deadly and rare condition that acts like a cross between cancer and an autoimmune disorder. When he relapsed on the only drug in development and realized that the medical community was unlikely to make progress in time to save his life, Fajgenbaum turned his desperate hope for a cure into concrete action: between hospitalizations he studied his own charts and tested his own blood samples, looking for clues that could unlock a new treatment. With the help of family, friends and mentors, he also reached out to other Castleman disease patients and physicians, and eventually came up with an ambitious plan to crowdsource the most promising research questions and recruit world- class researchers to tackle them; instead of waiting for the scientific stars to align, he proposed to align them himself. More than five years later and now married to his college sweetheart, his hard work has paid off: a treatment that he identified has induced a tentative remission and his novel approach to collaborative scientific inquiry has become a blueprint for advancing rare disease research. His incredible story demonstrates the potency of hope, and what can happen when forces of determination, love, family, faith and serendipity collide. David Fajgenbaum, MD, MBA, MSc is one of the youngest individuals to be appointed to the faculty at Penn Medicine. Co- founder and executive director of the Castleman Disease Collaborative Network (CDCN) and an NIH-funded physician- scientist, he has dedicated his life to discovering new treatments and cures for deadly disorders like Castleman disease, which he was diagnosed with during medical school. He is in the top 1 percent youngest grant awardees of an R01, one of the most competitive and sought-after grants in all of biomedical research. Dr. Fajgenbaum has been recognized on the Forbes 30 Under 30 healthcare list, as a top healthcare leader by Becker's Hospital Review, and one of the youngest people ever elected as a Fellow of the College of Physicians of Philadelphia, the nation's oldest medical society. He was one of three recipients – including Vice President Joe Biden – of a 2016 Atlas Award from the World Affairs Council of Philadelphia. Winner of the RARE Champion of Hope: Science award, Dr. Fajgenbaum has been profiled in a cover story by The New York Times as well as by Reader's Digest, Science, and the Today Show. Dr. Fajgenbaum earned a BS from Georgetown University magna cum laude with honors and distinction, MSc from the University of Oxford, MD from the University of Pennsylvania Medical School, and MBA from The Wharton School. He is a former Division I college quarterback, state-champion weight lifter, and co-founder of a national grief support network. Order "Chasing My Cure" at bookstores nationwide or at http://www.chasingmycure.com/

This month, we're thrilled to have Dr. David Fajgenbaum on our podcast. He is a clinician scientist, rare disease patient, author, and all-around incredible human being.  On this episode, he tells the riveting true story of his battle with Idiopathic Multicentric Castleman's Disease (IMCD), including his brush with death (a priest gave him last rites), and his subsequent journey to discovering his own cure. David later wrote a book about his journey called ‘Chasing My Cure: A Doctor's Race to Turn Hope Into Action” and co-founded ‘Every Cure,' a nonprofit organization aimed at unlocking the full potential of every approved medicine to treat every disease possible. He has been interviewed by the New York Times, CNN, The Today Show, The BBC… and now Around the Rheum!  Dr. Fajgenbaum is also an Assistant Professor of Medicine in translational medicine and human genetics at the University of Pennsylvania's Perelman Medical School.    Special Thanks: Around the Rheum is produced by the Canadian Rheumatology Associations Communications Committee. A special thank you to the podcast team, Dr. Dax G. Rumsey (CRA Communications Committee Chair), Dr. Daniel Ennis (Host), David McGuffin (Producer, Explore Podcast Productions), Erin Stewart (Marketing and Communications Director, CRA) for leading production. Our theme music was composed by Aaron Fontwell.  For more on the work of the Canadian Rheumatology Association, visit rheum.ca 

Dr. David Fajgenbaum nearly died five times from Castleman Disease before deciding to find a cure for the rare disorder himself. As the clock was ticking, he discovered that the inexpensive kidney transplant drug sirolimus could save his life. Nine healthy years later, Andy speaks with David about how that experience motivated him to save more lives by finding new uses for existing medicines. Keep up with Andy on Twitter and Post @ASlavitt. Follow David Fajgenbaum on Twitter @DavidFajgenbaum. Joining Lemonada Premium is a great way to support our show and get bonus content. Subscribe today at bit.ly/lemonadapremium.    Support the show by checking out our sponsors! Click this link for a list of current sponsors and discount codes for this show and all Lemonada shows: https://lemonadamedia.com/sponsors/    Check out these resources from today's episode:  Check out David's book, “Chasing My Cure: A Doctor's Race to Turn Hope into Action; A Memoir”: https://www.amazon.com/Chasing-My-Cure-Doctors-Action/dp/1524799637/ Learn more about Every Cure: https://everycure.org/ Find vaccines, masks, testing, treatments, and other resources in your community: https://www.covid.gov/ Order Andy's book, “Preventable: The Inside Story of How Leadership Failures, Politics, and Selfishness Doomed the U.S. Coronavirus Response”: https://us.macmillan.com/books/9781250770165  Stay up to date with us on Twitter, Facebook, and Instagram at @LemonadaMedia.  For additional resources, information, and a transcript of the episode, visit lemonadamedia.com/show/inthebubble.See omnystudio.com/listener for privacy information.

 Dr. David Fajgenbaum who has an incredible new memoir, "Chasing My Cure: A Doctor's Race to Turn Hope into Action". On this episode, he shares some power final thoughts from this amazing interview.

David Fajgenbaum, MD, MBA, MSc, is the co-founder and Executive Director of the Castleman Disease Collaborative Network (CDCN) and one of the youngest individuals to be appointed to the faculty at the University of Pennsylvania. An NIH-funded physician-scientist, he has dedicated his life to discovering new treatments and cures for deadly disorders like idiopathic multicentric Castleman disease (iMCD), which he was diagnosed with during medical school. After spending months hospitalized in critical condition, having his last rites read, and having four deadly relapses, he is now in his longest remission ever thanks to a treatment that he identified in the lab. He is in the top 1 percent youngest grant awardees of an NIH R01, one of the most competitive and sought-after grants in all of biomedical research. Fajgenbaum is also applying business-inspired solutions to drive forward iMCD research and working to turn this innovative model into a blueprint for accelerating rare disease research and drug repurposing. Fajgenbaum recently described his journey and lessons learned in his memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action, which became a New York Times bestseller.

Dr. David Fajgenbaum, MD, MBA, MSc is a physician-scientist at the University of Pennsylvania and national bestselling author of Chasing My Cure: A Doctor's Race to Turn Hope Into Action. After nearly dying five times of Castleman disease, Dr. Fajgenbaum discovered a treatment that is saving his life as well as others. Now he is advancing drug repurposing for COVID-19 and other diseases through the Corona Project at the Center for Cytokine Storm Treatment & Laboratory. In this episode, he talks about his near-death story, the importance of accessing both lifestyle medicine as well as emergency medical care when necessary, and the importance of effective disease research in the wake of COVID-19.

Meet the Doctor Using Hyperfocus to Find His Own Cure Dr. David Fajgenbaum was diagnosed with a deadly disorder called Castleman Disease when he was in medical school. But instead of giving up, he used his ADHD superpower of hyperfocus (and his own body) to seek out a cure for the rare and under-researched disease that he was battling. Now, a decade later, his breakthrough research has resulted in treatments that are keeping him and others alive. Dr. Fajgenbaum is still looking for a cure today, and joins Ned to talk about his new memoir, Chasing My Cure: A Doctor's Race to Turn Hope into Action. Learn more at Castleman Disease Collaborative Network: CDCN.org Distraction is created by Sounds Great Media. Our producer is Sarah Guertin (@sarahguertin) and our recording engineer/editor is Pat Keogh. This Episode is sponsored by Landmark College in Putney, Vermont. It's the college of choice for students who learn differently. Learn more at  http://www.lcdistraction.org   This classic Episode was first presented in January 2020

TODAY'S GUEST   Dr. David Fajgenbaum is a groundbreaking physician-scientist, disease hunter, speaker, and author of the national bestselling memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action, which has been translated into five languages and named one of the "Best Non-Fiction Books" by the Next Big Idea Club.   Best known as the 'doctor who cured himself', Fajgenbaum went from being a hyper-fit college quarterback to receiving his last rites while in medical school and nearly dying four more times battling Castleman disease. To try to save his own life, he spearheaded an innovative approach to research through the Castleman Disease Collaborative Network (CDCN) and discovered a treatment that is saving his life and others.   Now, he is spreading this approach to other diseases, including COVID19. His CDCN launched the CORONA Project in March 2020 to identify and track all treatments reported to be used for COVID-19 in an open-source data repository. The CORONA team has reviewed 29,353 papers and extracted 2,399 papers on 590 treatments administered to 437,936 patients with COVID-19, and in continuing to help researchers to prioritize treatments for clinical trials and inform patient care.   Beyond his medical work, he continues to share the lessons he learned about life, hope, and resilience.   I was inspired by David's unbounded optimism and focus on hope that leads to action. This conversation is one of dozens of conversations we have lined up for you with researchers, designers, makers, and thinkers who are re-imagining our world in all walks of life. If you don't want to miss them, please follow this show on your favorite podcast app.   And now, let's jump right in with Dr. David Fajgenbaum.   TIMESTAMP CHAPTERS [3:23] Life During Covid [5:44] Do Your Own Research [8:48] Early Childhood Driving Forces [10:02] Two Parallel Paths [13:08] From Doctor to Patient [17:00] From Alignment to Action [21:08] The Collaborative Network Approach [24:49] A Scientific Intuition [29:15] Open Innovation [33:55] Identifying a Pathway [39:10] The Power of Hope [41:46] A Long Tail of Rare Diseases [46:38] A Complex Relationship with Authority [49:49] A Mindset of Co-Creation [53:26] Wise Engagement [56:39] A Short Sermon   EPISODE LINKS David's Links

David Fajgenbaum is a physician, a healer, a speaker, a best-selling author, and the main reason he, himself is still alive today. After a devastating diagnosis of Castleman disease in 2010, David found himself on his deathbed a total of five times, told by doctors there was nothing more they could do. Determined not to sit and wait for death, David began to research his own disease, trying drugs designed for other purposes and ultimately finding one that saved his life.  This week our Summer reading giveaway features Chasing My Cure: A Doctor's Race to Turn Hope into Action. Enter to win this riveting story of hope, determination and life-saving action from our kind, funny, and super-smart friend, Dr. David Fajgenbaum! Happy Reading!   XO KS & MFB

Dr. David Fajgenbaum joins Gunnar on the podcast to talk about his New York Times Bestselling book, "Chasing My Cure: A Doctor's Race to Turn Hope Into Action" and his journey from division 1 college football quarterback and medical student to a rare disease patient up against the clock to find a treatment for his suddenly diagnosed Castleman Disease. Gunnar and Dr. Fajgenbaum talk about the hurdles that often stand in front of rare disease patient populations like decentralized patient organizations, a lack of a single scientific strategy and the absence of capital required for therapeutic development. Dr. Fajgenbaum has taken those challenges in stride and founded the Castleman Disease Collaborative Network hopes that he and his colleagues can centralize the needs of the patient community while working with all stakeholders from patients and physicians to family members and researchers. Gunnar and David also talk about the parallels between Castleman Disease and COVID-19, how patients who are not medical students or medical savvy can overcome the technical barrier between patients and providers, and how repurposing existing drug designed to target other conditions could be used to help people living with rare or ultra rare diseases. Learn more about your ad choices. Visit podcastchoices.com/adchoices

Dr. David Fajgenbaum joins host Dr. Bob Kaiser for a discussion about innovative solutions for accelerating disease research and discovering treatments for those diseases. Fajgenbaum, an immunologist and an assistant professor at the Perelman School of Medicine at the University of Pennsylvania, co-founded the Castleman Disease Collaborative Network while urgently searching for a cure to a disease from which he was dying. They also discuss Fajgenbaum's memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action (New York: Ballentine Books, 2019).

What would you do if your life took a turn and you were suddenly given more time to be alive?In this SUPERHUMAN story, Dr. David Fajgenbaum faces death five times as he struggles to overcome a rare life-threatening disease. Against all odds, he attempts to chase his own cure, proving that with perseverance we can alter the course of our lives… and maybe live in overtime.Listen, absorb, and explore how you see yourself in David's story.Then share.Trigger Warnings: rare disease, incurable disease, terminal illness, idiopathic multicentric Castleman's disease, suicidal ideation, depression, death, cancerEmotional Themes: grit, love, hope, loss, grief, frustration, hopelessness, despair, confidence, positivity, determination, persistence, resiliency, ambition, joy, uncertainty, coping, adapting, supportSUPERHUMANS is intended for mature audiences. Stories are raw and real. Do not consider this medical advice. Please consult with a health professional should you need medical attention.National Suicide Prevention Lifeline: 800-273-8255Help is available 24 hours a day.STORYTELLER BIO:David Fajgenbaum is a disease hunter, a groundbreaking physician-scientist, and a National Bestselling author. His memoir, "Chasing My Cure: A Doctor's Race to Turn Hope Into Action," details the haunting uncertainty of being diagnosed with a disease that offers more questions than it does answers. But what's wild—and one of the things that makes David SUPERHUMAN—is that he decided to hunt down the answers while fighting for his life. In doing so, he co-founded the Castleman Disease Collaborative Network (CDCN) and is also one of the youngest individuals to be appointed to the faculty at the University of Pennsylvania. We're thankful David is here. His story is medicine. SHOW NOTES:David Fajgenbaum: Facebook | Instagram | LinkedIn | TwitterRead his National Bestselling Book: Chasing My Cure: A Doctor's Race to Turn Hope Into ActionPerelman School of Medicine: David's ResearchNew York Times: His Doctors Were Stumped. Then He Took Over.Good Morning America: 1 Doctor's Remarkable Journey to Try to Cure His Rare DiseaseCONNECT WITH SUPERHUMANS:Dr. G and Pamela want to hear from you. SUPERHUMANS: Instagram | Newsletter | Website | Pitch Us Your StoryEmail: hello@wellplayed.healthGet involved with Well PlayedCONNECT WITH THE CREATORS:Dr. G (Gautam Gulati): Instagram | LinkedIn | Facebook | Twitter | Website | NewsletterPamela Rothenberg: Instagram | LinkedIn | Twitter | Website | NewsletterHOW CAN I SUPPORT SUPERHUMANS?Tell Your Friends & Share Online!Subscribe & Review: Apple Podcasts | Spotify | Stitcher | Google PodcastsBecome a Sponsor: hello@wellplayed.health SHOW CREDITS:Executive Producer & Show Co-Creator - Dr. Gautam GulatiSenior Producer & Show Co-Creator - Pamela RothenbergSound Design & Mixing - Rob SpeightAudio Engineer - Jay Wujun YowCommunity & Content Manager - Tara BhikhaOriginal Theme Music Composition - Daniel BrunelleStrategic Advisor - Mark BrandStrategic Advisor - Courtney HoltStrategic Advisor - Yarrow KranerStory Advisor - Cal FussmanHealth Advisor - Dr. Jordan ShlainAnd special thanks to our creative collaborators, HATCH. Learn more at hatchexperience.orgSee acast.com/privacy for privacy and opt-out information Our GDPR privacy policy was updated on August 8, 2022. Visit acast.com/privacy for more information.

David Fajgenbaum, MD, MBA, MSc, FCPP, is an Assistant Professor of Medicine in Translational Medicine & Human Genetics at the University of Pennsylvania, Director of the Penn Center for Cytokine Storm Treatment & Laboratory (CSTL), Executive Director of the Castleman Disease Collaborative Network (CDCN), and Associate Director, Patient Impact for the Penn Orphan Disease Center. David Fajgenbaum is a groundbreaking physician-scientist, disease hunter, speaker, and bestselling author of the acclaimed memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action. He went from being a beast-like college Quarterback to receiving his last rites while in medical school and nearly dying four more times battling Castleman disease. To try to save his own life, David spearheaded an innovative approach to research through the Castleman Disease Collaborative Network (CDCN) and discovered a treatment that is saving his life and others. Now, he is spreading this approach to other diseases such as COVID19. One of the youngest individuals ever appointed to the faculty at Penn Medicine and the top 1 percent youngest grant awardees of a leading NIH grant (R01), David Fajgenbaum has been recognized on the Forbes 30 Under 30 list, as a top healthcare leader by Becker's Hospital Review, the Global Genes RARE Champion of Hope: Science awardee, and one of three recipients--including Vice President Joe Biden--of a 2016 Atlas Award from the World Affairs Council of Philadelphia. He has published scientific papers in high-impact journals such as Blood, Lancet Hematology, and the Journal of Clinical Investigation, including a paper selected as one of the top innovations in science and medicine by STAT News in 2020. Before co-founding the CDCN, David co-founded and led the Actively Moving Forward Support Network, a non-profit organization dedicated to supporting grieving college students. David Fajgenbaum has been profiled in a cover story by The New York Times as well as by Good Morning America, CNN, and the Today Show, among others. David earned a BS from Georgetown University magna cum laude with honors and distinction, MSc from the University of Ox-ford, MD from the University of Pennsylvania Medical School, and MBA from The Wharton School.

David Fajgenbaum, MD, MBA, MSc is a groundbreaking physician-scientist, disease hunter, and bestselling author of the acclaimed memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action. Fajgenbaum went from being a beast-like college Quarterback to receiving his last rites while in medical school and nearly dying four more times battling Castleman disease. To try to save his own life, he spearheaded an innovative approach to research and discovered a possible treatment that has put him into an extended remission. Now, he is spreading this approach to advance cures for other diseases and sharing lessons he learned about living from nearly dying through Chasing My Cure.One of the youngest individuals ever appointed to the faculty at Penn Medicine and the top 1 percent youngest grant awardees of a leading NIH grant, Dr. Fajgenbaum is co-founder and executive director of the Castleman Disease Collaborative Network (CDCN) and Associate Director, Patient Impact, for the Penn Orphan Disease Center. He has been recognized on the Forbes 30 Under 30 list, as a top healthcare leader by Becker's Hospital Review, the Global Genes RARE Champion of Hope: Science awardee, and one of three recipients--including Vice President Joe Biden--of a 2016 Atlas Award from the World Affairs Council of Philadelphia. Before co-founding the CDCN, Dr. Fajgenbaum co-founded and led the Actively Moving Forward Support Network, a non-profit organization dedicated to supporting grieving college students. Dr. Fajgenbaum has been profiled in a cover story by The New York Times as well as by Good Morning America, CNN, and the Today Show, among others.Dr. Fajgenbaum earned a BS from Georgetown University magna cum laude with honors and distinction, MSc from the University of Oxford, MD from the University of Pennsylvania Medical School, and MBA from The Wharton School. He is a former Division I college quarterback, state-champion weight lifter, and co-founder of a national grief support network. See acast.com/privacy for privacy and opt-out information.

David Fajgenbaum is an assistant professor of medicine at the University of Pennsylvania and the associate director for the Orphan Disease Center.  He is also cofounder and executive director of the Castleman Disease Collaborative Network and the cofounder of the National Students of Ailing Mothers and Fathers Support Network. He has received numerous awards including the Forbes “30 Under 30” for healthcare and the RARE Champion of Hope Award for science.  His memoir is titled Chasing My Cure: A Doctor's Race to Turn Hope into Action.    Some interesting insights from this episode: David has a hyperfocus variant of ADHD which allows him to focus for hours upon hours on a topic which has enabled much of his success. The way he started living life with no regrets was through his new mantra: “Think it, do it”. If he thinks about doing something and it's really important, he doesn't over think it like he used to.  He just does it. He was able to see humor even in the most dire of circumstances. “I came to understand that in no situation other than facing death is a sense of humor more necessary. Humor made me look my suffering in the eye and laugh at it. Facing my horrible moments with laughter was just as fundamentally a rejection of Castleman's dominion over me as anything else I was doing.” We still have a long way to go. 95% of the 7,000 rare diseases that affect 30 million Americans don't have a single FDA approved therapy. Either you're hopeful and you wait for that thing you're hoping for to become reality or you're very action oriented and you take matters into your own hands. He has learned to turn hope into action.  Don't just sit back and wait for the silver linings to appear but what can you do to create the silver linings. It's up to you to make some positive out of something terrible. “I consider myself to be very fortunate. My experience has liberated me to follow my passions and has given me peace, knowing that I'm making the most of every day while my clock is ticking.” “Excellence is doing exactly what you feel driven to do to the absolute best of your ability.”   Show Notes: Book: Chasing My Cure Castleman Disease Collaborative Network University of Pennsylvania bio page

Dr. David Fajgenbaum, physician, scientist and author of the bestselling memoir, Chasing My Cure: A Doctor's Race to Turn Hope Into Action, on his approach to drug repurposing, how he and a team of volunteers have been applying this approach to Covid-19, and why this gives hope for all diseases with unmet need.

I'm just one of those people who tear up when I see or hear something really beautiful. That happened when I interviewed Shades of Yale – a talented multicultural acapella group that crammed into my tiny studio and performed a song will be forever on my playlist – I spoke to Noelle mercer Philadelphia tour Manager - Tashj Lakey biz Manager of Shades of Yale and I can't wait for you to hear them.https://www.shadesofyale.org/A quick video: https://youtu.be/db5Qseyd8s0Shades of Yale Go Fund Me: http://bit.ly/shadesphlFirst – have you ever met a person who received their last rites five times and lived to tell the tale? I re-air an interview I did with Dr. David Fajgenbaum about his riveting book Chasing My Cure: A Doctor's Race to Turn Hope Into Action which tells his own remarkable story of fighting a mysterious, nearly fatal multisystem disease, and of his brilliant deduction that a long-known drug may be the cure. https://www.amazon.com/Chasing-My-Cure-Doctors-Action/dp/1524799610/https://cdcn.org/

Have you ever met a person who received their last rites five times and lived to tell the tale? I re-air an interview I did with Dr. David Fajgenbaum about his riveting book Chasing My Cure: A Doctor's Race to Turn Hope Into Action which tells his own remarkable story of fighting a mysterious, nearly fatal multisystem disease, and of his brilliant deduction that a long-known drug may be the cure. https://www.amazon.com/Chasing-My-Cure-Doctors-Action/dp/1524799610/https://cdcn.org/

The Pennsylvania Conference for Women is one of the best events for personal and professional development. In addition to their powerhouse lineup of keynote speakers the conference just added director/producer Ava DuVernay.It's sold out but we'll let you know two great ways to still participate. Loraine Ballard Morrill speaks to Liz Murphy, PECO Sr. VP for Regulatory and External Affairs which is one of the sponsors. Murphy talks about ways people can still experience the conference through a live stream on October 2nd and the Workplace Summit taking place on October 1st.https://www.paconferenceforwomen.org/Loraine speaks to Dr. David Fajgenbaum about his riveting new book Chasing My Cure: A Doctor's Race to Turn Hope Into Action which tells his own remarkable story of fighting a mysterious, nearly fatal multisystem disease, and of his brilliant deduction that a long-known drug may be the cure. https://www.amazon.com/Chasing-My-Cure-Doctors-Action/dp/1524799610/https://cdcn.org/First Loraine speaks to Salma Khan, Executive Director of Great Philly Schools about their 2019 Philly High School Fair at the Pennsylvania Convention Center on September 20-21st where students and their families will have an opportunity to connect with more than 100 district, charter, private and Catholic high schools from across the city.http://phillyhighschoolfair.com https://www.greatphillyschools.org https://ApplyPhillyCharter.org

Loraine speaks to Dr. David Fajgenbaum about his riveting new book Chasing My Cure: A Doctor's Race to Turn Hope Into Action which tells his own remarkable story of fighting a mysterious, nearly fatal multisystem disease, and of his brilliant deduction that a long-known drug may be the cure. https://www.amazon.com/Chasing-My-Cure-Doctors-Action/dp/1524799610/https://cdcn.org/

When David Fajgenbaum was in medical school, he became stricken with a rare autoimmune disease that nearly killed him. Though he recovered, he would suffer recurring, life-threatening flares only to discover the poor state of research into condition. Fajgenbaum chronicles his rare disease journey and his efforts to drive research and find treatments in his new book “Chasing My Cure: A Doctor's Race to Turn Hope into Action.” Fajgenbaum, who is executive director of the Castleman Disease Collaborative Network, will be featured at this year's Global Genes Rare Patient Advocacy Summit, which begins in San Diego September 18. Ahead of the summit, we spoke to him about his experience as a rare disease patient, his efforts to find treatments for his conditions, and how his innovative approach to developing a patient-driven research agenda has provided a roadmap for other rare disease organization to follow suit.