Podcasts about tssf

This special Salt Talks gives you a quick peek into how PapaGod showed up for the Sholly Smile Factory in Q1 2023!! Please listen and be encouraged! You see this my PapaGod? He's your Daddy too!! And he's ready and willing to fill your mouth with plenty “Hallelujahs” too!

John uses the Lambeth Call on Environment and Sustainable Development to introduce this year's Season of Creation. He explores the burning bush logo and introduce some thoughts around living simply. What is it we are invited to listen to at this time?To help with listening to the earth, here is a link to the Earth examen https://seasonofcreation.org/wp-content/uploads/2021/05/2021-SOC-Earth-Examen.pdfAnd I used this video made by TSSF made last year https://www.youtube.com/watch?v=PmxnP-kL7cs&authuser=0 You can listen to this sermon here https://colourfuldreamer.blogspot.com/2022/09/living-simply-for-creation.html

There are hundreds of mentions of righteousness in the Bible. Righteousness - the right relationship w/ God and one's neighbors and environment is central to Judeo-Christian theology and ethics. Jesus himself, when speaking of his baptism in Matthew's Gospel directs us to understand that his baptism indoctrinates righteousness into his own ministry. The Rev. Russ Bohner, TSSF enlightens us about righteousness in this podcast. He shares his own faith journey to include belonging to the Tertiary Order of St. Francis to place righteousness at the core of the Christian Gospel. This is a wise and deep wellstream of conversation about what some might say is the most important theme in The Beatitudes.

Francis understood at a deep level God's deep desire that all creation might thrive. He also understood that for that to happen relationships between people, and people and creation needed to be restored. This is the deep longing in scripture. It is what the covenants longed for. It is what Jesus came to complete. It is what he taught and lived. We see that in the story today – Deuteronomy allows divorce when woman displeases the husband. The central theme of this years Season of creation remind us that we are all interconnected Because relationships broken too often women, children, and other people, creation simply seen commodity to be traded and discarded. That is what Jesus was talking about. The result is climate change and biodiversity loss. The burden of which is falling mostly on people living in poverty – especially women and children.  The recent Save Children fund report on consequences makes that clear.Finish by talking about COP 26 – and inviting people to get informed, pray for and advocate for COP 26 Conclude with his TSSF video https://www.youtube.com/watch?v=PmxnP-kL7cs&authuser=1 The notes can be found here

Welcome to the fourteenth episode of Off the Beaten Clef! In this episode we dive into Misfits's 1999 album, Famous Monsters. Opening Thoughts (00:41) 1. Kong at the Gate (8:56) 2. Forbidden Zone (10:08) 3. Lost in Space (12:30) 4. Dust to Dust (14:45) 5. The Crawling Eye (16:49) 6. Witch Hunt (19:47) 7. Scream (21:59) 8. Saturday Night (25:27) 9. Pumpkinhead (30:06) 10. Scarecrow Man (32:15) 11. Die Monster Die (35:46) 12. Living Hell (36:58) 13. Descending Angel (39:00) 14. Them (41:41) 15. Fiend Club (43:02) 16. Hunting Humans (45:09) 17. Helena (47:34) 18. Kong Unleashed (52:03) Closing Thoughts: (53:20) To listen to Misfits - Famous Monster on Spotify: https://open.spotify.com/album/4CKrRK52g4mNzbpGIMVbtE?si=2EujgBqkQ7ePJ-ERr-gtUg To listen to next week's episode (originally said to be TSSF's Under Soil and Dirt, has since been changed to The Story So Far's Proper Dose): https://open.spotify.com/album/2go3nVQ6oxBB5UERsGUUz0?si=TqPbACLbSkaxLuauCz_iYw Thanks for listening!

In this special bonus episode of the podcast we talk about another pop punk records. WHO WOULD HAVE GUESSED! all jokes aside as great EP check it out.

In this one the guys talk about same side by same side. and in a shocking turn of events talk about the album and not about the fact that the guy that wrote it is in The Story So Far. Who would have thought. Also the ep is only 5 songs so the music on the rest of the episode is elder brothers first album. Enjoy you fucking losers.

Sermon for 03/01/2020 from the Reverend Dominic George, TSSF. Musical selections: 'A Tree There Grew' (Fedak) 'Softly and Tenderly Jesus is Calling' (Cherwien) 'Prelude in D Minor, BWV 851' (Bach) Dale Richard- musical director Jason Jia- organ and harpsichord Ellen Kerrigan- soprano

Sermon 02/09/2020 from the Reverend Dominic George, TSSF. Musical selections: 'Bring Us Your Light' (Mollicone) 'Blest Feast of Love Divine' (Freeman) Dale Richard- music director Jason Jia- piano and organ

Commentary and reflection on this week's Gospel, Luke 2: 22-40 by the Reverend Dominic George, TSSF. Musical selections: 'Offertory' (John Ness Beck) 'Walk Humbly with God' (Daniel Gawthrop) Dale Richard- musical director Jason Jia- organ

Sermon for 01/12/20 from the Reverend Dominic George, TSSF. Musical selections: 'Down Galilee's Slow Roadways' (Burkhardt) 'May this Water Keep Us Aware' (Uehlein) Dale Richards- musical director Jason Jia- organist

Sermon for 12/01/2019 from the Reverend Dominic George, TSSF.

I went to go see TSSF. Netflix is making me sad.

Sermon for 10/20/2019 from the Reverend Dominic George, TSSF.

A few minutes after Episode 8 was recorded, a new batch of friends showed up at Jimbo's Paradise and an unplanned episode was thrown together.  In this one we've got Kyle Buck (Something You're Not/Character Assassin/Pulled Under), Austin Cook (Truth/Survival Method), and Trey Pemberton (Creeping Death) and we're chatting about the movie Midsommar (spoiler free), recent music obsessions, and Kyle lays down one of the funniest spontaneous bits to ever happen on Jimbo's Paradise with "KB's Morning & Afternoon Announcements."

Sermon for 06/30/19 from the Reverend Dominic George, TSSF.

Sermon for 05/05/19 from the Reverend Dominic George, TSSF. Musical selections from the St. Francis' Choir Dale Richard- musical director Jason Jia- organ

Sermon for 04/07/19 from the Reverend Dominic George, TSSF. Musical selections: 'I Been in De Storm So Long' (arr. Jewel Taylor Thompson) 'Jesus, the Very Thought of Thee' (arr. Arlen Clarke) Dale Richard- musical director Jason Jia- piano and organ Ellen Kerrigan- soprano

Sermon for 03/24/2019 from the Reverend Dominic George, TSSF. Musical selections: 'Lord, I Want to Be a Christian' (arr. Taylor-Thompson) 'Christ, the Vine' (Powell) Dale Richard- musical director Jason Jia- piano and organ Baker Peeples - tenor

Sermon for March 03, 2019 from the Reverend Dominic George, TSSF. Musical selections: 'Jesus on the Mountain Peak' (Michael Burkhardt) 'Bread of the World' (John Abdenour)

Sermon for 01/13/19 from the Reverend Dominic George, TSSF and musical selections from the St. Francis Choir.

In this special episode, Sam Pura, the owner and chief engineer at The Panda Studios, and long-time producer of The Story So Far’s records joins Tom for a really interesting conversation about all that went in to the making of their latest album, Proper Dose. The conversation covered a lot of ground, from the struggles that went into making the record, some really amazing and out-of-the-box recording techniques, the unfortunate crime that is audio engineering school, and maybe a Beatles joke or two.   Proper Dose is available now!      Links: The Story So Far’s new album Proper Dose (available now) TSSF episode on Best Friends with Sam Pura Tom Lord-Alge Eric Valentine Nail the Mix Taylor Larson thirtyeight.life   The Story So Far http://thestorysofarca.com/ IG: @thestorysofarca FB: @thestorysofarca Twitter: @thestorysofarca   Sam Pura https://www.thepandastudios.com IG: @sampura / @thepandastudios FB: facebook.com/thepandastudios Twitter: @sampura / @thepandastudios   All Inquiries Please Email: Sam@thepandastudios.com     Follow us on Twitter at @_ReminscentFM and Instagram!

Sermon for 9/9/18 from the Reverend Dominic George, TSSF. Featuring the return of the St. Francis' Choir. Musical selections: 'Where Once There Lay Dragons' (Coe) 'Simple Gifts' (arr. Lehman)

Sermon for 8/5/18 from The Reverend Dominic George, TSSF.

Mark 6:14-29 is such a yuk story if we read it on its own. This story has echoes with previous stories and reminds us of the ongoing stories, including the stories in Tauranga Moana over the last week. They remind us of the story of St. George and the battles that happened here and Te Ranga in 1864. They remind me of the experiences I had with the rainbow members of TSSF in Australia and here in Aotearoa. But this is not a story on its own. It immediately contrasts with the stories of the feeding of the 5000+ and 4000+, stories of ridiculous generosity and hospitality, of deep compassion and welcome. Stories that lie at the heart of Eucharist.

Sermon for 6/3/18 from the Reverend Dominic George, TSSF

Sermon for 2/25/18 from the Reverend Dominic George, TSSF. With musical selections from Musical Director Dale Richard and Organist Jason Jia.

Sermon for 1/7/18 from the Reverend Dominic George, TSSF. Featuring selection from the St. Francis Choir, including 'Psalm 72' and an arrangement of the Puerto Rican carol, 'Song of the Wise Men'

Sermon for 12/17/17 from the Reverend Dominic George, TSSF. Featuring a selection from the St. Francis Choir including 'Psalm 126' 'This is the Record of John' and 'Comfort, Comfort Ye My People'

Best Friends with Sam Pura - Episode 2 - Will Levy (The Story So Far) In this episode: I interview Will Levy, guitarist for the band The Story So Far. Will shares his experiences of being a touring musician, the early days of TSSF, almost getting arrested abroad and being one of my best friends. I also introduce the "Hot or Shot" segment where I talk about Lady Gaga and share a personal experience with poor planning. Thanks for being my Best Friend! I hope you enjoy. Cheers!   You can download, subscribe, and donate to my podcast here: Spotify, iTunes, PodBean Podcast Artwork by Tyler Way // Contact: Tylerway21@gmail.com Connect with The Story So Far, Sam Pura & The Panda Studios:https://www.thestorysofarca.comIG: @thestorysofarcaTwitter: @thestorysofarcahttps://www.thepandastudios.comIG: @sampura / @thepandastudiosFB: facebook.com/thepandastudiosTwitter: @sampura / @thepandastudiosAll Inquiries Please Email: Sam@thepandastudios.com Episode 2 Theme Song Hot or Shot Theme Song Sam Pura - Episode 2 - Spotify Playlist The Story So Far Wikipedia

Host: Hilary StundaIn this episode, Hilary Stunda speaks with Dawn Prall, the creator of MyMacDLife Podcast and the founder of The SupportSight Foundation. The majority of Dawn's work has been in the health care and social services industries. In the last decade, she has become a champion of low vision patient education, raising awareness to fund MacD research. In this episode, she shares her story.Dawn Prall began working in the field of macular degeneration twelve years ago when she received an unexpected job offer from the founder of the Macular Vision Research Foundation, now known as The SupportSight Foundation. Initially, she knew little about macular degeneration; however, in the first year, she immersed fully in the role. Dawn says she had the benefit and privilege to learn from, and “geek out with” scientists and researchers at the foundation.Hilary asks Dawn about the inspiration for the structure of The SupportSight Foundation.Dawn traces her inspiration back to her first year, “geeking out” with the scientists and learning what an impact finding new treatments would have for millions of people. The SupportSight Foundation's national footprint allowed Dawn to travel around the country and meet with patients, and the families of patients who had lost their vision because of macular degeneration.As a disease specific charity, The SupportSight Foundation is solely focused on MacD. The work they do advances potential breakthroughs in medicine. Dawn explains the importance of the work she does for bettering people's everyday lives. While doctors do well to take care of a patient's eye health, TSSF and MMDL fill the gap of information that addresses things like going to work, family life, reading, and the normalcy of everyday hobbies. She acknowledges, when people lose their sight because of macular degeneration doing the things they love can be a challenge.MacD is not as widely discussed as something like diabetes, for example, despite it being a major disease impacting so many people. Dawn explains that it's about public health and the public's awareness. The public is beginning to know more now than they did before because research on MacD has progressed in the past 40 years. It was important for scientist to first understand the cellular makeup of macular degeneration before they could diagnose people.Next, Dawn explains MacD is a retina disease with two types, known as “Wet” and “Dry”. There are treatments currently available for “wet” MacD, called anti-VEGF injections. “Dry” macular degeneration is an area where more funding for research is needed because there are currently no treatment other than vitamins. She emphasizes, the foundation's aim is to help people learn about how to cope with MacD, and help people understand the research. All donations to The SupportSight Foundation goes towards the search for a cure.Following up on the topic of research and funding, Dawn shares how TSSF funds research projects by top scientists all over the world. She says, “Research is iterative, research makes medicine” and is not separated.Next, Dawn dives deeper into the science behind MacD. Because MacD is a retina disease, scientists and researchers explore how the retina functions within the macula of the eye to understand what causes the macular degeneration. Dawn goes on to explain, the disease gets its name from the process with which the cells in the macula of retina die, hence the name macular degeneration. Current research being done involves cellular regeneration.The macula is in the retina. The retina connects to the optic nerve and the optic nerve to the brain. And the retina's job is basically a camera. “So, you don't really see with your eyes you see with your brain.” Dawn acknowledges, for people listening, whether or not they understand that part, what matters to them is there is no cure; what matters to them is what to do in the meantime, which is what TSSF and MyMacDLife do.When asked if research for MacD has evolved over the years, Dawn responds saying, “Of course, the research is not static. A scientist's job is discovery. Their job is understanding how that retina works and why those cells are dying. The researchers and scientists need financial support to do that”. At The SupportSight Foundation, her staff and team of researchers, lead the way. Overall, TSSF has been successful in raising close to $30 million to fuel research and public education so everybody knows the disease.Hilary asks Dawn about her hope for a cure. Dawn expresses emphatically, she is not only hopeful, but optimistic. It's just a matter of time, or else I wouldn't be doing the work she does. She admits, she would love to work herself out of a job, because that means they have accomplished their goal. And at this moment, she adds, they are a lot closer than they've ever been. “Every time somebody discovers something, that moves that needle.”Dawn connects her passion for this cause to her values. In her upbringing, as a “sales brat” Dawn was accustomed to moving around often. Always the new girl in school, she learned the importance of building relationships and being approachable. That helps to create funding. She cites her Midwestern values as intrinsic and entrenched in who she is.“You have to believe in something and stand for something and my family values were more about making sure that there is a passion, there is something meaningful in your life. And then you just build your life around that.”Dawn expresses what an honor and a privilege it is to make a difference in people's lives. MyMacDLife Podcast has given The SupportSight Foundation a microphone, to bring people together, tell their stories, and create a community. It enables the foundation to do more in a powerful way.Hilary agrees, saying she finds the MMDL podcast gets rid of despair. She says, with the abundance of resources available, “patients can hope, at the end of the day, they're not as lost as they think they might be." Dawn says the podcast aligns with the personality and value of the foundation: intimate, relationships-centric, and warm-big.Dawn emphasizes that patient advocacy is key to her work. The power of advocacy comes from knowledge of the disease and sharing the experiences people go through losing their vision. First, sharing with their friends, family, and caregivers. Then, sharing it with the rest of the world.Dawn acknowledges, “This world is not set up for low vision.” She reflects on making brownies, the directions were printed was brown on brown. Initially, advocacy focused on awareness of MacD. Now, it's expanded to advocate for everyday accessibility on computers and assistive technology. There's a force behind advocacy when MyMacDLife gets everybody who's listening and everybody who's affected by it to join together.Dawn invites listeners to learn more at mymacdlife.org, donate to The SupportSight Foundation, share their story, and help build community.In the last segment, Dawn speaks with Mike Wood from Vispero. Mike shares information about the RUBY Family products by Freedom Scientific, a line of Assistive Technology. The RUBYs are a series of portable video magnifiers that come in multiple sizes that use a camera lens to enlarge and sharpen the image of any page of text. For example, when checking a price tag, or reading a menu. To learn more about the RUBY Family, go online to www.vispero.com or call their toll-free number, 1-800-444-4443. Mike lets listeners know you can go to freedomscientific.com to listen to an online webinar about how to use your Ruby video magnifiers.Dawn ends the episode emphasizing that MyMacDLife is a resource above all, dedicated to supporting patient education.  Recommended Resources- http://www.supportsight.org/- http://www.mymacdlife.org/- https://www.vispero.com/- https://www.freedomscientific.com/- https://www.freedomscientific.com/products/lowvision/rubyproductfamily/- https://www.enhancedvision.com/- https://us.optelec.com/- https://www.healthyvisionassociation.com/- https://www.novartis.com/- https://www.hinklestein.com/- https://www.maculardegeneration.net/- https://www.mymacularjournal.com/- https://www.facebook.com/groups/mymacularjournal/- https://www.health-union.com/Support this podcast at — https://redcircle.com/mymacdlife-macular-degeneration-podcast/donations

In this episode, Marcela Salmon speaks with Cassidy about growing up with a father, uncle and aunt with macular degeneration. Cassidy has lived around MacD for her entire life. She became aware of her father's condition during a trip to Colorado when she realized her father couldn't read things easily and she would help. Her father first worked for Vispero, then for LVI, a company based in Sweden that sells products to help legally blind people. When LVI expanded to the United States, her father became the chief marketing sales director for the United States division. Her father never viewed himself as having a handicap. In fact, his disability made him even more successful in life and opened the door to helping others find success as well. One of the inspiring things Cassidy's father did was write a book called Tripping Into The Light about his journey growing up with Stargardt's juvenile macular degeneration and how he has been successful in life. As the story goes, Cassidy's grandmother took her father and his three siblings to a hospital in Massachusetts to get tested for their eyesight. The doctor proclaimed their eyesight would get progressively worse and proceeded to write a list of all the things they could and could not do in life, including skiing and snowboarding. Leaving the office, his grandmother threw the notes in the trash and the rest is history - Cassidy's uncle became a ski instructor in Colorado and her father became an entrepreneurial success. Her grandmother made sure the disease would not hold her children back from pursuing whatever they wanted in life. Cassidy explains that her father uses a CCTV that reads to him or magnifies things for him as he only has peripheral vision. Cassidy tells Marcela that her father has learned how to train his eyes to look straight at you when he's talking rather than peering from the side of his eye. Cassidy explains that this adaptability and entrepreneurial spirit is one of the driving factors to his father's success, and an inspiration to her. Marcela As a caregiver Cassidy says learned when to step in and help and when to back off, and that she thinks patience is the key to aiding people with MacD. She stresses how important this is for independent people like her father, who get easily frustrated when they want to do things on their own, but can't. They also don't like to be approached by strangers and assisted without first knowing what is going on. Cassidy references an example of the time two people lifted up Cassidy's father to help him cross a street. This episode focuses on what it's like to be a caregiver and how you tend to notice everyday things differently, like restaurant lighting, going to the movies; even the monotone colors of carpeted stairs, which can be tricky to navigate for a person with macular degeneration. Luckily Cassidy's father is very open and even lighthearted about having MacD. He has accepted his eye disease and often speaks out, making suggestions that would improve his surroundings. He can laugh about his shortcomings and puts his energy into reading “how to” informational and nutritional books for self-actualization. Cassidy's father now runs a nonprofit called “The Thriving Blind Academy,” where he teaches the principles of success. Bill Kilroy of Vispero shares information on the Freedom Scientific Topaz line of desktop video magnifiers. These devices sit on a desk with a video magnification system that includes a camera monitor and an X Y table. The monitor sizes range from 20, 22 or 24 inches. It's versatile, with the ability to swing left or right, raise or lower depending on your height. It allows for someone with notes to be able to move those notes around and be able to magnify what they need. Because these devices have a bigger monitor, they can magnify more information on a page at a time. There's less mental processing to put the characters into words, the words into sentences, the sentences into paragraphs, and you can use these devices for longer periods of time than a handheld magnifier. It also allows the user who might want to pause on reading a chapter to start scanning pages so that they can sit back and listen to what's being read. The Topaz OCR is a great choice to have and goes above and beyond the OCR capability. To learn more about The Topaz or The Merlin or The Optelec, there are two ways to get in touch. Go online and type in www.vispero.com or call our toll free number at 1-800-444-4443 and speak to one of our customer service representatives. You can tell them what you're interested in, they can guide you through some of the products and can connect you with a local resource that can help you in your home or schedule an appointment to potentially come to their showroom and learn more about these products and test drive one for yourself. Full Disclosure: Cassidy Collins is the eldest daughter and a caregiver to her father Charlie Collins. Charlie Collins is a member of The SupportSight Foundation board of directors. In compliance with TSSF governance policies, members of his immediate family (daughter) did not receive any direct financial benefit for her guest appearance on this podcast. Recommended Resources https://amdcentral.org https://www.evokekyne.com https://www.brightfocus.org http://www.mdsupport.org https://preventblindness.org https://www.macular.org/ http://www.supportsight.org http://www.mymacdlife.org https://vispero.com/mds https://www.thrivingblindacademy.org https://lviamerica.com https://charliecollinsonline.com/product/tripping-into-the-light Support this podcast at — https://redcircle.com/mymacdlife-macular-degeneration-podcast/donations

On This Episode Hosts Dawn Prall and Shawn Doyle begin the episode with a conversation about the right diet and foods to eat with MacD. They not only discuss how diet and healthy eating are critical to living with macular degeneration but also share a number of resources and tips on foods that are eye healthy.  Dawn explains why heart healthy living is eye healthy, including lifestyle choices, “eating the rainbow,” and taking in the right types of omegas and fish oil as examples. She elaborates on the importance of choosing a healthy lifestyle and diet—especially for the 80-85% of people with dry macular degeneration—since it is the only available treatment.  In the next segment, Shawn interviews none other than his co-host Dawn Prall as the episode's featured special guest. Dawn relates the story of how an unexpected phone call over a decade ago sparked a lifelong passion of supporting, educating and inspiring people with MacD and their families. She explains how she received the call from food magnate, philanthropist and Macula Vision Research Foundation founder, the late Herb Lottman, who asked her to serve as executive director of his foundation. After taking the job, she shares how it was a top priority for her to learn facts and the science behind macular degeneration from scientists, researchers and other MacD experts. She adds how the most profound and life-changing moment occurred once she started to meet people all over the country who lived with macular degeneration.  She goes on to tell how she founded The SupportSight Foundation as a non-profit organization singularly focus on macular degeneration, with a solid track record of effectively serving the MacD community—one that includes those who either have macular degeneration; have a loved one with it; or are in some way connected to the disease. Dawn concludes her interview by offering listeners hope with news about gene therapy-based research for future MacD treatments funded by the foundation. Actress, singer, voiceover artist and SiriusXM radio show host Christine Pedi stops by in the next segment from New York City to share inspired adventures, as she navigates life through diminished vision and transitions into the world of visual challenges. In this episode, Christine offers relatable anecdotes about how she discovered her visual impairment during an on-stage performance of Noises Off, as well as a subsequent detached retina surgery at age 28. She closes the segment with details of her medical visits surrounding Strabismus surgery for her eye turn years later, interjecting humor as she relates her story.  The podcast moves on to the regular featured segment from Vispero's Bill Kilroy, Senior Sales Director for the Northeast, and Mike Woods, Strategic Accounts Manager for Education. Vispero is the world's largest Assistive Technology for the visually impaired serving people who are blind or low vision. Throughout the podcast, they highlight Vispero products that can enhance people's lives. In this episode, Bill and Mike introduce the RUBY® Family handheld video magnifier line of products. The Vispero duo provide detailed overviews for each of the four individual portable rechargeable magnifiers. They also highlight key features, such as a range of magnification and contrast settings, designed to make simple tasks not so cumbersome. The show continues with a new guest interview segment featuring The SupportSight Foundation (TSSF) board members sharing their unique and inspiring stories about vision loss and impairment. In this episode, Dawn interviews TSSF board member John McInerney, who imparts his powerful firsthand story. He recounts how he was diagnosed at age 6 at the Massachusetts Eye and Ear Institute in the 1950s, elaborating how his condition called retinitis pigmentosa is very similar to macular degeneration, in terms of the way it progresses and is also an inherited disease. He shares his experiences from playing sports in high school; to receiving funding from the Massachusetts Commission for the Blind to attend Notre Dame; to his first time out of New England on a plane to South Bend, Indiana at 17, knowing no one and being legally blind.  John shares uplifting milestones from undergraduate, to completing his masters, to his first job as an engineer designing material-handling systems working for the government in Ohio. Dawn then follows his career journey as a manager for Westinghouse Electric Company where John shares his on-the-job challenges with accessibility and how he navigated the workplace—until he couldn't. In a poignant moment, he also shares how he contacted the state's Office of Vocational Rehabilitation to enter an accelerated rehab program at the Greater Pittsburgh Guild for the Blind while he concurrently worked.  After finishing up his Westinghouse career as vice president, John went on to working in the blindness field, including a stint as interim CEO of the Pennsylvania Association for the Blind and serving as board member of BVRS in Pittsburgh and The SupportSight Foundation. John and Dawn wrap up the interview exchanging encouraging words and advice for anyone suffering from vision impairment or loss. Other episode highlights include short soundbite segments where Dawn and Shawn have fun sharing trivia, as well as offer additional tips for low and impaired vision on the more serious side. The co-hosts close out the episode with information on additional resources.   What We Discuss in this Episode This third episode covers the following featured topics: ◦ “I think people will get a lot out of your interview, talking about your story, how you founded The SupportSight Foundation.” (2:04) ◦ “Diet and healthy eating is really critical to living with macular degeneration—there are all kinds of foods that are eye healthy.” (3:08) ◦ “What are some things people should have more in their nutritional plan for eye health?” (3:27) ◦ “A question that I would immediately have is where do people go to find out about right kind of diet to follow for healthy vision?” (5:30) ◦ “Today I have the privilege, the pleasure, to interview my co-host, Dawn Prall, who is also the executive director and the founder of The SupportSight Foundation. ” (6:48) ◦ “And so we created a program, the SupportSight Patient Education Advocacy Program, which was already there when I took the job, but we changed the model.” (14:40) ◦ “We often talk on this program, MyMacDLife about hope—what kind of research are you currently involved with that might give people reason to have hope for either a treatment or a cure for MacD?” (17:22) ◦ “The latest project that The SupportSight Foundation funded—and we just announced and are really psyched about—is a genetic study… We're also looking at funding some low-vision research.” (17:55) ◦ “I do have some stories from my previous experiences with visual challenges, specifically some of the surgeries I've had.” (23:50) ◦ “Today, the assistive technology folks at Vispero are going to be talking about the RUBY® Family. ” (32:34)  ◦ “The RUBY® is a group of four different handheld video magnifiers.... that when it debuted, it was by far and away an industry changer.” (34:52) ◦ “Here's another practical tip for living with macular degeneration: decrease glare.” (39:53) ◦ “We'd like you to learn more about the people who really are dedicated and committed to the mission of the foundation.” (40:47) ◦ “It would be a good thing for folks who are listening to get to know your story. So powerful a story, and it's best told to others by you. So where I think would be great for you to start is explain to the listeners, you're visually impaired, and how your life has dramatically changed when you and your family got the news that you were diagnosed with retinitis pigmentosa.” (42:13) Quotables “I started to meet people all over the country who live with macular degeneration. And that was profound.” – Dawn Prall “We have a constituency. By and large, the majority of them either have macular degeneration; have a loved one who had macular degeneration; or are in some way connected to the disease, because it is 1-in-4 people over the age of 65 have some degree of or some stage of macular degeneration. So it's that huge. And it's that real.” – Dawn Prall “There's a lot of buzz about gene replacement therapy, and also stem cell therapy.” – Dawn Prall  “I just hope that… we can move that needle. Because if we stay focused on it, like we are and we will, I know we can make a difference.” – Dawn Prall  “We're going to talk about all sorts of silly things, important things, emotional things, angry things, you name it. I'm feeling them all, as I transition into a life filled with many more visual challenges.” – Christine Pedi “The best thing I did was go to the rehab program and take advantage of the services that were available. And that helped me maintain my independence. It was, to be honest, really a mental thing to get over as much as a physical thing.” – John McInerney “You just put your head down and just did it. You didn't let your vision issues, no matter what age, get in your way. And I think that's really an important message that the audience—and people listening—needs to understand.” – Dawn Prall “It's important to advocate for yourself, so that you can maintain independence. And it's also important psychologically, to cross that boundary that says, ‘Okay, I have a visual impairment, I need to deal with it.' That was one of the most difficult mental boundaries that I had to cross. Once I crossed that line, then it was okay. ‘Watch out, don't get in my way, there's all kinds of technology out there, there's all kinds of opportunities, and the sky's the limit.'” – John McInerney “That's the one piece of advice I want to say to everyone that is, you know, make the decision and go for it because if you don't, you're going to end up sitting in a corner, probably for the rest of your life.” – John McInerney “And I think with the technology that's out there today, and organizations like The SupportSight Foundation, it's in everyone's best interest to maximize what they can do with their vision impairment in order to maintain independence, and to maintain a quality of life that that they use. There's just so many opportunities and so much technology out there today.” – John McInerney Recommended Resources - http://www.supportsight.org/ - https://www.nei.nih.gov/ - https://www.mvrf.org/ - http://www.mymacdlife.org/ - https://vispero.com/ - https://www.freedomscientific.com/ - https://www.freedomscientific.com/products/lowvision/ruby/ - https://www.enhancedvision.com/ - https://us.optelec.com/ - https://www.masseyeandear.org/ - https://www.mass.gov/orgs/massachusetts-commission-for-the-blind - https://www.evas.com/pdflinks/PVC.pdf.. - https://www.evas.com/cgi-bin/htmlos.exe/Main.htm - https://www.bvrspittsburgh.org/ - https://www.pablind.org/ Support this podcast at — https://redcircle.com/mymacdlife-macular-degeneration-podcast/donations