The LDN Radio Show About Low Dose Naltrexone

In this radio interview, pharmacist Dr. Megan Kilkeary shared insights about her extensive experience in compounding, particularly with low-dose naltrexone (LDN). With nearly 20 years of experience in pharmacy, Dr. Kilary emphasized the importance of high-quality compounding, noting that her pharmacy offers LDN in various forms, including tablets, liquids, topical creams, and sublingual options. The most popular dosage is 4.5 mg tablets, which are designed for easy titration. She also highlighted the pharmacy's commitment to potency testing, ensuring that patients receive consistent dosages.For patients interested in microdosing, especially those looking to taper off opioid therapy or manage addiction issues, a liquid form of LDN is available. Dr. Kilkeary mentioned the topical application of LDN, which shows promise for skin conditions like psoriasis and eczema but recommended oral forms for systemic effects. The conversation also touched upon the benefits of sublingual administration, which bypasses first-pass metabolism in the liver, potentially increasing medication availability. Overall, Dr. Kilkeary's focus is on providing patients with effective, high-quality compounded LDN to address various health conditions.Strive Pharmacy are flipping the script with personal medicine the human element is their crux and catalyst driving all that they do whether interacting with patients providers or practices they are more than a compounding pharmacy they're on a mission to positively disrupt health care as we know it.

Today, I'd like to welcome our guest, Yolanda, from the United States. She takes LDN for rheumatoid arthritis and Hashimoto. Thank you for having me. I had surgery on my foot, thinking it was tendinitis, but it turned out to be rheumatoid arthritis. Soon after, I was diagnosed with Hashimoto. I spent a year researching to find the root cause of my problem, as my mom also has RA. I didn't want to end up like her, unable to use my hands.I spent a year researching and found that LDN and changes in diet helped with my symptoms. While titrating up to 4.5, I experienced intense detox symptoms, including severe burning pain in my arms during a mission trip to Guatemala.After joining Facebook groups, I realized some people took higher doses. A year ago, my inflammation disappeared, and my rheumatologist was amazed. She eventually discharged me, acknowledging that LDN and a clean diet had helped me tremendously.I found LDN to be a game changer for me. It's helped with my rheumatoid arthritis and Hashimoto's. I'm now at 5.0 mg and feeling comfortable. My antibodies are at nine, which is considered in remission, but my doctor doesn't fully agree. I'm also focusing on getting my hypothyroidism into remission next.I convinced my older sister to go see my dad next week. I offered to pay for her initial visit because she's on disability. I also offered to help her get LDN, which I think she needs. She agreed, and I'm glad because all my siblings have rheumatoid arthritis, but none of them want to do anything about it.I always tell my daughters to get checked for autoimmune diseases at their doctor's appointments. My older daughter believes in the benefits of LDN, and my younger daughter is starting to see them too. Before LDN, I was in a lot of pain, especially in my hands, and I had brain fog and extreme fatigue. My hair was dry and thin, and I had gained a lot of weight. After starting LDN, my pain reduced, and I had more clarity of mind.I had some health issues with pain in my hands, but after some time, the inflammation went away and I no longer had to sleep with my hands under my body. I used to take medication to sleep, but I weaned myself off it and now sleep fine. However, I've been having trouble waking up in the middle of the night. Overall, I sleep well and have lost weight relatively easily.I just felt so alive, so different from what I had felt for a long time. I had a little bit of help initially to lose weight, but once the weight started coming off, it just flew off. Since my mom passed away and with the problems I've been having, I gained the weight back, but I know that's just temporary. LDN has been the best thing that has ever happened in my life. I can't imagine living without it. Thank you for having me.

Elise from the United States, shared her experiences with mast cell activation syndrome (MCAS), functional neurological disorder (FND), and various health issues. She described dealing with symptoms since childhood, such as severe fatigue, unpredictable energy levels, infections, severe allergic reactions, and bowel issues. Elise also mentioned the psychological impact of her conditions and how she coped with chemical sensitivities, such as avoiding strong smells and educating others about the impact of scented products. She expressed that recently her chemical sensitivity has been improving, and she shared specific memories of how certain perfumes triggered her health issues.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.https://www.ldnresearchtrust.orgWe have a very active FB Closed Grouphttps://www.facebook.com/groups/LDNRT/

Josie from the United States shared her experience of using LDN for Crohn's disease, asthma, and rheumatoid arthritis. She began using LDN after struggling with Crohn's disease for several years and undergoing multiple surgeries, as traditional medications were not effective in the long term. After researching alternative treatments, she found a specific carbohydrate diet and LDN. Surprisingly, LDN not only alleviated her Crohn's symptoms but also reduced joint pain and respiratory distress from asthma. She started taking LDN in 2007 and initially experienced euphoria and deep sleep as side effects. Before using LDN, Josie suffered from gastrointestinal pain, cramping, diarrhea, fatigue, and frequent secondary infections. She adopted a specific carbohydrate diet, which involved eliminating sugars and starches, and found it to be effective in conjunction with LDN. Although she still experiences some Crohn's symptoms, they are largely under control with the modified diet and LDN. Josie can now eat a wider variety of foods, although she still needs to be cautious with certain grains and sugars.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.https://www.ldnresearchtrust.orgWe have a very active FB Closed Grouphttps://www.facebook.com/groups/LDNRT/

I'd like to share the story of our guest, Mark from Australia, who will be talking to us about chronic pain and LDN. Mark's pain journey began about 10 years ago after a snowboarding accident which led to slipped discs. Over the past 2 and a half years, he has undergone multiple treatments including heavy medications and surgeries. However, about 6 months ago, he was introduced to LDN which has significantly improved his quality of life. Before LDN, Mark's pain levels were consistently high, impacting his daily activities and sleep. Now, thanks to LDN, his pain levels have decreased, and he's able to carry out everyday tasks without as much discomfort. LDN has truly been life-changing for Mark, allowing him to regain independence and mobility.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.https://www.ldnresearchtrust.orgWe have a very active FB Closed Grouphttps://www.facebook.com/groups/LDNRT/

Dermot from Ireland started experiencing chronic fatigue syndrome symptoms after undergoing cancer treatment in 2018. His health declined significantly after a potential COVID-19 infection in early 2020, leading to ongoing health challenges such as nausea, fatigue, and difficulty breathing. Despite undergoing various tests and consultations, the exact cause of their symptoms remained unclear. After experiencing a brief improvement in 2022, they identified chronic fatigue mixed with irritable bowel syndrome as potential causes of their ongoing health issues and are exploring treatment options including LDN which has helpped enormously.

I'm Kerry from the US, I developed symptoms of lupus and fibromyalgia when I was 15. I struggled with fatigue and missed a lot of school. I was initially diagnosed with rheumatoid arthritis, but it was later changed to lupus. The treatments I received included gold salts, aspirin therapy, and eventually steroids. The steroids helped, but I experienced severe side effects, such as significant weight gain and swelling. I've been taking ibuprofen and Plaquenil, but they have their own risks and side effects. I also experienced leg pains that seemed unrelated to lupus, leading to a fibromyalgia diagnosis. LDN id deffinately helping me.

Dr. Maria Torsiello, a pharmacist from Richmond, Virginia, was interviewed about her work at a compounding pharmacy. She discusses her journey to becoming a pharmacist and her passion for science and helping people. Dr. Torsiello also provides insights into the compounding pharmacy where she works, describing the nonsterile compounding services they offer. The conversation delves into the compounding of LDN (low-dose naltrexone) and its potential applications for various conditions, including in children and for sublingual administration. Additionally, there is mention of an upcoming conference where Dr. Torsiello's pharmacy could benefit from learning more about LDN and other pharmaceutical advancements. In the future, the pharmacy aims to continue educating providers about LDN and its potential uses, particularly in cancer treatment.

Today, Cheryl from Australia, shares her story of LDN for long Covid that resulted in fibromyalgia and chronic fatigue syndrome. I got COVID in August 2021, which resulted in a severe infection with double pneumonia and landed me in the hospital for a month. When I arrived home from the hospital a month later, that was exactly when long Covid began. However, back then, it was still relatively new, and nobody knew much about it. It is actually very common for long Covid to set in a month after having Covid. As you mentioned, I've since been diagnosed with chronic fatigue syndrome (CFS) and fibromyalgia, which are my worst symptoms.Would you like me to go through the treatment options?Yes, I would. I'd like to know when you were diagnosed, what treatment options you were given, and what has happened from then until now.I had to seek help from a long Covid clinic because no treatment options were offered, as the doctors simply didn't know what to do with my symptoms. I experienced severe pain throughout my upper body and in all of my joints, which I rated at 9 to 10 out of 10. They put me on a high dose of Gabapentin (2400 milligrams) as a treatment option, which helped alleviate the pain, but also caused drowsiness and fatigue. I eventually started researching and found out about low-dose naltrexone (LDN), which my doctor was willing to prescribe. As I gradually increased the LDN dosage, I was able to decrease the Gabapentin slowly as well. Over the years, my pain has decreased from 9-10 out of 10 to 1-2 out of 10, which has significantly improved my quality of life.I experienced a lot of drowsiness, which wasn't great since I was already dealing with fatigue. Those were my main side effects, although I also experienced extra fatigue. I always took it at night. I was on it for at least a year. When I was on Gabapentin, my pain levels were still at least 8 out of 10. They didn't reduce much, but they took the edge off the pain. The pain was very severe, and I had to take a high dose just to cope with it. It got me to a level where I could manage, but I couldn't do much. My fatigue was so bad that I could only go out once a week to shop for 18 months. The post-exertional malaise was so bad that for 48 hours after going out, I would sleep for 24 hours straight. I had to set an alarm to wake up and eat before going back to sleep.I have been taking Low Dose Naltrexone (LDN) for the past 18 months, and it has significantly reduced my fatigue. It took some time, but now I can actually get up and function. Before taking LDN, I was practically nonfunctional. Taking it when I wake up works best for me, giving me a bit of energy to cope with the day. It wasn't just about the duration of taking LDN, but also finding the right dosage for me. It's been a combination of factors that has allowed me to really improve. Between 8 and 12 months, I didn't experience much improvement, and I could only shower once a week. However, now I can go out every day, and my post-exertional malaise is almost non-existent. I always advise people to see LDN as a long-term solution and not to expect instant results. It took a while for me, but it has definitely been worth it. Some people may notice amazing results in the first month, but for others, like me, it takes time and patience. It's not easy to be patient when you're not feeling well, but sticking with it is well worth it. LDN has also significantly reduced my severe shortness of breath and swallowing issues. I used to struggle to swallow medications, but that hasn't happened in quite a few months. My nighttime throat spasms have also reduced in severity and frequency. Despite being diagnosed with paralyzed vocal cords and vocal cord dysfunction, a combination of LDN and exercises taught by a speech pathologist has helped me greatly. Additionally, the headaches with concurrent eye pain have stopped, which

Jenn from Canada shared her experience with mast cell activation syndrome (MCAS) and Ehlers-Danlos syndrome (EDS). She described experiencing symptoms of disautonomia and dislocations from a young age. Her health challenges worsened during her teen years with symptoms such as mold exposure, recurrent hospitalizations for mystery illnesses, and autoimmune-related issues. It wasn't until two years ago that she was diagnosed with MCAS after discovering hidden mold in her home. After consulting with an allergist and starting on a personalized treatment cocktail, including low-dose naltrexone (LDN), she noticed improvements in her chronic headaches, sleep, and other symptoms. The LDN helped alleviate her symptoms more than she expected and significantly improved her quality of life.

Sunita from the United States who takes LDN for fibromyalgia depression dry eye and dry mouth, her journey start end of 2013 living in a house with mold. She has Thyroid issues, Sjogrn's syndrome and LDN changed her life.

Dani from the US has undergone a gruelling and arduous health journey. Recently, she uncovered a tumor on her liver, prompting a series of tests that ultimately led to the diagnosis of mast cell activation syndrome (MCAS). Throughout her life, she has grappled with issues such as dislocating limbs, vertigo, gut problems, erratic sleep, rashes, and mental health challenges. By eliminating gluten and dairy from her diet, she has found some relief. It's evident that she has endured a great deal and has consulted numerous specialists before finally receiving her diagnosis.

ade shared her story on the LDN radio show, discussing her health struggles, including fatigue, gut issues, severe nausea, and neurological symptoms. She also mentioned being diagnosed with long COVID. Despite seeking help from various doctors and specialists, she continued to suffer. After nine months of struggling, a naturopath put her on LDN, which significantly improved her nausea. Although she started experiencing widespread pain and other symptoms later on, LDN proved to be a game changer for her. She expressed hope in figuring out her health issues with time.

Lindsay shared her health journey. She discussed her experience of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mast Cell Activation Syndrome (MCAS). She described first noticing symptoms in her early 30s, leading to her POTS diagnosis in 2017 after fainting during a tilt table test. Lindsay also shared her battle with breast cancer, undergoing treatment, and successfully overcoming the challenges. In 2022, she encountered a frightening episode of rapid heart rate, trembling, and other distressing symptoms, prompting her to seek help from a functional gastroenterologist. Lindsay explained her ongoing struggle with gut issues, constipation, a dairy allergy, and skin problems, and how she has found relief through dietary adjustments and medication.

Jade from South Africa talks about dealing with Hashimoto'sand her journey with Low Dose Naltrexone (LDN). Jade was diagnosed withHashimoto's in 2010, but she only discovered LDN in 2019 after stumbling uponit in a Hashimoto's Facebook group. She consulted with a functional doctor inSouth Africa who prescribed LDN for her.Before receiving her Hashimoto's diagnosis, Jade experiencedsevere hair loss, which prompted her to seek medical attention. Although shedidn't exhibit typical symptoms such as weight gain, she suffered from fatigue,which she later learned was related to Hashimoto's. Initially diagnosed with anunderactive thyroid, it took years before she was informed of her Hashimoto'scondition.After moving to Germany in 2016, Jade's symptoms worsened,leading her to research and seek out support groups to manage her conditionbetter. Despite making dietary changes, she found that her antibodies remainedhigh, which motivated her to explore LDN as a potential solution. Since then,she has seen significant improvement, with her antibodies dropping to remissionlevels.Obtaining LDN in Germany proved to be challenging, as manydoctors were unfamiliar with the medication. Ultimately, Jade continues tosource her LDN from her doctor in South Africa and relies on family members tobring it to her when they visit.Jade started LDN at a low dosage of 0.5mg, graduallyincreasing the dose each week until she reached 4.5mg. Initially, sheexperienced vivid dreams and fatigue for the first few weeks.Overall, Jade's journey with LDN and Hashimoto's highlightsthe challenges of accessing specialized treatments and the importance ofadvocating for oneself in managing chronic conditions.In addition to managing her Hashimoto's with LDN, Jadecontinued taking LDN throughout her pregnancy. Despite some doctors advising againstit during pregnancy, she did her own research and found a supportive community.She believed LDN potentially helped her from having a miscarriage and had apositive impact during her pregnancy. She had a healthy pregnancy and a smoothbirth, and her baby is now three months old and healthy. She values theimportance of doing her own research and seeking second opinions from doctorsand is grateful for the positive experience she had during her pregnancy.

Makiah from the US, shared her health journey, which began in childhood but became more noticeable after her second pregnancy. She experienced fatigue, gut issues, and abnormal postpartum recovery. After her third pregnancy, which was difficult and ended tragically with the loss of her son, she faced persistent health challenges, including bleeding, weight fluctuations, and fatigue. Seeking answers, she was diagnosed with endometriosis, adenomyosis, insulin-resistant PCOS, adrenal insufficiency, and gut dysbiosis. Despite following treatment protocols, she still experienced fatigue and food reactions, eventually discovering a potential link to Ehlers-Danlos syndrome (EDS) and mast cell activation syndrome.

This interview offers a detailed and introspective look into Mandi's journey with LDN, thoracic outlet syndrome, MCAS, POTS and EDS. Through her account, she delves into the intricacies of her diagnosis, the complexities of surgical interventions, and the impact of her children's medical challenges on her own health journey. Additionally, Mandi provides an in-depth exploration of how LDN has played a pivotal role in managing these intricate conditions, offering a comprehensive and informative perspective.

Veronique from Canada shared her experience of living with multiple health conditions, including MCAS, EDS, POTS, ADHD, and autism. She faced challenges with late diagnoses, frequent falls, injuries, dislocations, and gaslighting by medical professionals. Her typical day involved extreme fatigue, cognitive difficulties, chronic pain, digestive issues, and the struggle to function normally. She also experienced vertigo, fluctuating blood pressure, and difficulty eating. Veronique's story highlights the physical, emotional, and mental impact of her conditions and the challenges she faced in managing her daily life.

Cindy, a guest on the LDN radio show, shared her remarkable health journey. She described experiencing hypermobility from a very young age and enduring a multitude of health challenges, including menstrual issues, pots, and food allergies. Her difficult pregnancies and the revelation of her genetic predisposition to certain conditions shed light on the intricate genetic component of her health issues. Through her story, she emphasized the complexities of managing multiple health conditions and underscored the significance of comprehending the genetic factors at play in her health struggles.

Today, we had the opportunity to hear Debbie's Chronic Pain story, a patient from the United States who is using Low Dose Naltrexone (LDN) for chronic regional pain syndrome (CRPS). Debbie recounted going back to when she was seven years old and suffered a knee injury, leading to a series of medical interventions. Despite numerous surgical procedures, the chronic pain persisted, and she endured multiple operations without finding relief. Eventually, Debbie was diagnosed with CRPS, marking the beginning of her battle with persistent pain. In her treatment process, Debbie started LDN with an initial dose of 1 milligram, which later required adjustment due to stomach-related issues. After starting on a lower dose and gradually increasing, Debbie noted an improvement in her condition. It took approximately six months for her to fully appreciate the benefits of LDN, which has helped manage her pain levels, albeit not without fluctuations. Debbie's account emphasizes the potential efficacy of LDN in alleviating chronic pain, and her testimonial underscores the importance of individualized dosing and gradual titration to mitigate adverse effects. This insight highlights the significance of personalized treatment strategies in managing chronic pain. Overall, Debbie's experience serves as a valuable anecdote for healthcare professionals and patients alike, shedding light on the complexities of chronic pain management and the promising role of LDN.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more. www.ldnresearchtrust.orgWe have a very active FB Closed Group https://www.facebook.com/groups/LDNRT/

Sara, shared her experience dealing with various health issues, including hypermobility, MCAS, CCI, endometriosis, and tethered cord. She explained that CCI affects the alignment of her skull and spine, causing pain and affecting her cranial nerves. Tethered cord, a newer diagnosis, is scheduled for surgery to release the condition in July. Sara has experienced symptoms since childhood, including dizziness, hand discoloration, and migraines. Her daily life is unpredictable, with varying levels of pain and difficulty recovering from injuries. Additionally, she has had allergic reactions without a clear cause. Despite the challenges, she remains resilient, working as a special education teacher and managing her health as best as she can.

The LDN radio show, hosted by Linda Elsegood, featured guest speaker Sara from the US, who shared her experience of living with MCAS (Mast Cell Activation Syndrome) and POTS (Postural Orthostatic Tachycardia Syndrome). Sara discussed her diagnosis of MCAS and how her symptoms became severe at the age of 29, possibly triggered by exposure to pesticides. She also mentioned experiencing allergies, rashes, and sinus infections since childhood, indicating early signs of her condition. Sarah emphasized the importance of dietary changes and finding a supportive doctor who recommended supplements to help manage her condition.

Micaela from the US shared her journey of dealing with a complex health collapse. She experienced intense and painful symptoms affecting various body systems, leading to a mysterious and isolating experience. After several years of medical examinations, she was diagnosed with mold toxicity, chronic neurological Lyme disease, and Mast Cell Activation Syndrome (MCAS). Micaela's treatment involved addressing mold exposure, tickborne infections, and managing MCAS symptoms, such as severe histamine reactions and food sensitivities. She found relief through a histamine-conscious diet, regulating her autonomic nervous system, and taking low-dose naltrexone. By addressing the root causes and stabilizing her immune system, Micaela experienced significant improvement in her health. She also emphasized the role of the autonomic nervous system in modulating immune responses and overall health.

Mieke from Canada shares her personal experience with LDN in treating her health issues, including EDS, POTS, and MCAS. Mieke describes her symptoms, the impact on her daily life, and the positive effects of LDN in alleviating some of her symptoms, including chronic nightmares.

Judith, hailing from the United States, delved into the intricacies of navigating familial medical challenges associated with Ehlers-Danlos syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS). She candidly shared her personal journey of grappling with joint pain and instability stemming from EDS, while also shedding light on the diverse array of symptoms experienced by her children, including gastrointestinal issues, scoliosis, mast cell problems, and POTS. Of particular note were the severe manifestations experienced by Judith's middle child, encompassing convulsive syncope and migraines. Overcoming the hurdles of obtaining accurate diagnoses, Judith sought solace in the expertise of specialists, subsequently finding some respite through a combination of tailored medications and therapeutic interventions.

Dixie, shares her experiences living with multiple chronic conditions, including MCAS and EDS. She discusses her struggles with various symptoms, such as food sensitivities, skin rashes, environmental allergies, headaches, gut issues, and fatigue. Dixie also reflects on the challenges of getting accurate diagnoses and managing her complex symptoms. Overall, the interview provides valuable insights into the daily realities of living with overlapping chronic conditions and their impact on a person's life.

Today, I'd like to share the inspiring story of Shelby, a brave individual from the United States who has been dealing with multiple chronic illnesses for over a decade. Shelby's journey began 11 years ago when she started experiencing a mysterious illness that left her constantly sick and seeking answers from various medical professionals.Her health struggles led to the diagnosis of chronic active Epstein-Barr virus, which subsequently triggered a cascade of autoimmune issues and multiple chronic illnesses. Despite facing numerous hospital visits and consultations with different doctors, finding effective treatment and receiving a proper understanding of her condition proved to be a challenging and frustrating experience for Shelby.After years of uncertainty, Shelby was eventually diagnosed with mast cell activation syndrome (MCAS), a condition that was previously unknown to her and many healthcare providers she encountered. The lack of awareness and understanding of MCAS among medical professionals often left Shelby feeling isolated and misunderstood, with few options for appropriate care.Shelby's perseverance led her to seek out specialized medical professionals, including a functional medicine doctor and a gastroenterologist, who were instrumental in guiding her towards the right treatment. One of the key therapies that significantly improved Shelby's quality of life was low-dose naltrexone (LDN), which helped balance her immune system and manage the symptoms of MCAS and other autoimmune conditions.Before finding the right treatment and healthcare support, Shelby's daily life was severely impacted by her illnesses. As a high school junior, she was forced to discontinue her education due to the debilitating symptoms that left her bedridden and unable to carry out simple daily activities. From experiencing severe pain, muscle weakness, and constant nausea to enduring hospitalizations and drastic weight loss, Shelby's journey was filled with immense physical and emotional challenges.Despite the hardships she faced, Shelby's resilience and determination shone through as she sought to raise awareness about MCAS and other underrecognized chronic illnesses. By sharing her experiences and advocating for a greater understanding of these conditions, Shelby aims to create a more supportive and informed community for individuals struggling with similar health challenges.Shelby's story reminds us of the importance of empathy, awareness, and access to comprehensive care for individuals navigating complex chronic illnesses. Her journey reflects the ongoing need for increased education and recognition of conditions like MCAS, offering hope to those who often feel unseen and unheard within the healthcare system.In conclusion, Shelby's unwavering spirit and commitment to spreading awareness about multiple chronic illnesses exemplify the resilience and strength of individuals facing similar health battles. Her journey is a testament to the power of advocacy, community support, and the pursuit of specialized care in navigating the complexities of chronic health conditions. For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.https://www.ldnresearchtrust.orgWe have a very active FB Closed Grouphttps://www.facebook.com/groups/LDNRT/

An interview with Teresa, who has been dealing with multiple health issues,including mold and hormone problems. Teresa's symptoms were severe, and she hadbeen struggling with them for over two years. When she was at her sickest,Teresa had histamine intolerance, gut problems, and neuroinflammation. She alsoexperienced hot flushed red faces whenever she worked out, endometriosis-typesymptoms, diarrhea, increased heart rate, weakness, and jumbled thoughts. Teresa sought help from multiple doctorsbut found no relief. She had to go to functional medicine and naturopathicmedicine to get the help she needed. The doctors prescribed her supplements,herbs, and homeopathics, among other treatments, to improve her health.However, it took her some time to feel better despite adopting a healthylifestyle and following protocols. She learned about how to eat properly, takecare of her mitochondria, and improve her nervous system and relaxation throughmeditation. Teresa describes her typical day when shewas at her sickest, and it is a poignant story. She would wake up feeling eithernauseous or sweating and had to move her bowels frequently. Within two hours ofwaking up, her heart rate would increase, and she would feel weak, forcing herto sit down. Teresa had to work as an online therapist and tried to see clientsdespite feeling unwell. She couldn't be around intense smells, go outside, oreat without feeling sick or nauseous. Her life was limited, and she wasessentially homebound. It wasn't until Teresa started taking LDNthat things started to improve drastically. Her functional medicine doctorprescribed her LDN, which was initially a source of hesitation for her.However, as she saw her roommate getting better after taking LDN, Teresadecided to give it a try. LDN is a promising treatment option that has beenused for various health conditions, including autoimmune diseases, chronicpain, and cancer. It works by boosting the body's natural immune response,reducing inflammation and pain. Teresa's LDN treatment was a turning point,and she started to feel better. She felt less sensitive to smells and was ableto tolerate more foods. She started to gain weight, have more energy, andexercise again. It took her a while to feel better completely, but LDN was thekey that unlocked her health. It is a testament to the power of functionalmedicine and the importance of finding the right treatment for each person'sunique health condition.

In this interview, Linda has the pleasure of speaking withKelly, a guest from the United States who shares her journey of dealing withMCAS and POTS. Kelly discusses how she first noticed that something was wrongwith her body when she was a child due to severe GI symptoms, which led to herreceiving her first colonoscopy at the age of ten. However, despite years ofexperiencing worsening symptoms, Kelly did not receive a formal diagnosis until2019. She describes her frustration and the challenges she faced while seekinganswers from various specialists, highlighting the systemic factors within thehealthcare system that make it difficult for patients like herself to receiveproper care. As a social worker and a patient herself, Kelly provides uniqueinsights into how care for undiagnosed patients could be improved, emphasizingthe importance of physicians believing and trusting their patients, providingthem with resources, and access to care to help them find accurate diagnoses.Kelly also discusses the complexity of MCAS, a multi-system disorder that canaffect various organs and the skin, making it difficult to recognize anddiagnose. She shares her experience of how finding a physician who understandsthe condition was crucial to getting it under control. Overall, Kelly's storysheds light on the challenges of living with an undiagnosed condition and theimportance of improving healthcare systems to support these patients.Kelly is taking LDN, Low Dose Naltrexone.

Nicole, from the United States, speaks about the challenges she has faced due to several complex health conditions. Ehlers-Danlos syndrome (EDS) is a genetic condition affecting connective tissue, leading to hypermobility of joints and easy injury. Mast Cell Activation Syndrome (MCAS) is a condition in which mast cells, which are part of the immune system, are overactive and cause symptoms such as hives, swelling, and abdominal pain. Postural Orthostatic Tachycardia Syndrome (POTS) is a type of dysautonomia that affects blood circulation and can cause symptoms such as lightheadedness, fainting, and rapid heart rate upon standing. Endometriosis is a condition in which the tissue that normally lines the inside of the uterus grows outside of it, leading to pain and other symptoms. Finally, Lyme Disease is a bacterial infection transmitted by ticks that can cause a range of symptoms including fever, headache, and joint pain. Despite the difficulties she has faced, Nicole remains an inspiration to others who may be struggling with similar health challenges.

Kerriann, a person from Canada, shares her experience of living with multiple chronic illnesses. These conditions include Lyme disease, which is known to cause a range of symptoms from fatigue to joint pain, MCAS (Mast Cell Activation Syndrome), a rare condition that causes allergic-like reactions, EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects connective tissues, POTS (Postural Orthostatic Tachycardia Syndrome), a condition that affects blood flow, and Fibromyalgia, a chronic pain disorder. Despite facing these challenges, Kerriann has chosen to share her story in the hope of raising awareness and providing support to others in similar situations.

Tracy, from the United States, shares her personal experience with various medical conditions. These conditions include MCAS (Mast Cell Activation Syndrome), a condition where the mast cells in the body are triggered to release chemicals causing symptoms such as itching, flushing, and swelling; POTS (Postural Orthostatic Tachycardia Syndrome), a condition where changes in position cause an abnormally high increase in heart rate; RA (Rheumatoid Arthritis), a chronic autoimmune disease that causes inflammation and pain in joints and can lead to joint damage; Fibromyalgia, a condition characterized by widespread pain, fatigue, and tenderness in muscles and joints; and finally, a potential diagnosis of EDS (Ehlers-Danlos Syndrome), a genetic disorder that affects the connective tissues in the body and can cause joint hypermobility, skin that is easily bruised or stretched, and other symptoms.

Kris has generously shared her personal journey with LDN, a medication used to treat a variety of conditions including autoimmune diseases, and MCAS, a condition where mast cells release excessive amounts of histamine and other chemicals, causing an array of symptoms such as hives, itching, and digestive problems. In her story, Kris discusses her experiences, including the challenges she faced and the treatments that worked for her. Her story may provide valuable insights and support to others who are also dealing with similar conditions.

Linda Elsegood engages in a conversation with Amy, who shares her journey with multiple health conditions, including small fiber neuropathy, mold toxicity, MCAS (mast cell activation syndrome), EDS (Ehlers-Danlos syndrome), and POTS (postural orthostatic tachycardia syndrome).Amy recalls that she has been experiencing symptoms her whole life, such as hives, reactions to medication, and odd food reactions. She describes having weird physical quirks that were dismissed as "just an Amy thing." For instance, she would feel hot in her head after eating peanuts or feel dizzy. Despite undergoing allergy testing, her results were negative, and doctors attributed her symptoms to being "sensitive."However, after contracting mono and strep in college, Amy's symptoms became more debilitating. She felt extremely tired all the time, and nothing seemed to help. She experienced GI (gastrointestinal) problems, brain fog, and heat intolerance. Her symptoms continued to worsen, and she had episodes every few months where she felt like she was dying. She would have trouble eating, and it felt like a brick was in her stomach.Despite seeking help from countless doctors, none could diagnose her condition or connect all her symptoms. Her doctors would refer her to specialists, such as gastroenterologists, allergists, and pulmonologists, but it didn't help. They would attribute her symptoms to panic attacks, stress, or other unrelated conditions. They even removed her gallbladder, but it didn't alleviate her symptoms.Amy recalls that her body kept reacting to everything, and she could only eat rice for a while. After two back-to-back pregnancies, her body could no longer tolerate certain foods. She experienced anaphylaxis, which she knew was not a panic attack, and her face swelled up, and her tongue became tingly. Her body began reacting to everything, and she now only eats six foods.In conclusion, Amy's story highlights the challenges of living with multiple health conditions and the difficulties of finding a diagnosis and proper treatment. Her experiences could help others who may be going through the same struggles.#LDN #Low Dose Naltrexone

Linda Elsegood interviewing Andrea, a patient from the United States who has been taking low dose naltrexone (LDN) to manage her health concerns. Andrea has been struggling with various conditions, including postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), long Covid, fibromyalgia, and myalgic encephalomyelitis.Throughout the interview, Andrea delves into the details of her journey with LDN. She explains how her search for relief from long Covid ultimately led her to LDN, and how it has significantly improved her quality of life despite her many health concerns. Andrea expresses her gratitude for how LDN has been instrumental in helping her manage her symptoms and improve her overall health.Linda and Andrea are able to discuss the benefits of LDN in managing a wide range of health issues. Their conversation provides insight into the effectiveness of LDN as a treatment option, and the importance of finding the right approach to managing complex health conditions.

In this interview, Linda Elsegood delves into the life of Kaitlin, who shares her inspiring story of living with multiple chronic conditions, including MCAS, POTS, and EDS. Kaitlin describes how she experienced small dislocations and unusual pains as a child, which gradually escalated in her twenties and thirties, making it difficult for her to perform daily activities. She explains how she ignored these symptoms for a long time, thinking that they were normal and that everyone experienced them. However, as time went on, she realized that her experiences were unique and needed attention. Kaitlin also shares her journey of dealing with MCAS, a condition that caused her severe stomach pains after eating, leading to an eating disorder in her teens. She explains how MCAS made it challenging for her to find foods that would not trigger her stomach pains, causing her to miss school and social gatherings. Even after her recovery from the disorder, the pain persisted, and she only received a formal diagnosis in 2022 from the Mayo Clinic. Kaitlin talks about the challenges of treating MCAS and finding trigger foods, which can be a difficult and frustrating process. Additionally, Kaitlin shares her scary experience with POTS after blacking out and suffering catastrophic injuries. POTS caused her blood pressure to recoil, making it challenging for her to perform daily tasks. She talks about the difficulties of getting a diagnosis and seeking treatment for POTS, which can be a complex and confusing process. Through her story, Kaitlin hopes to inspire others not to give up on themselves and seek help. She emphasizes the importance of self-care, seeking medical attention, and connecting with others who may be going through similar experiences. She thanks Linda for providing a platform for people like her to share their stories and connect with others and believes that together, we can make a difference and support each other in our journeys towards better health.

Tierra from the United States shares her personal experience of MCAS, autoimmune progesterone dermatitis, POTS, celiac Tierra describes how she first noticed her problems after taking bee pollen for her outdoor allergies, which led to getting blister hives everywhere and heart palpitations. Despite being misdiagnosed by a walk-in clinic, Tierra took matters into her own hands and researched her symptoms, leading to a diagnosis of Mast Cell Activation Syndrome (MCAS) by herallergist. Tierra also discusses chocolate as a big trigger for her, giving her migraines. Linda and Tierra confidently discuss how MCAS is more common than people realize, affecting an estimated 17% of the population.

Pain specialist Dr Chris Kleronomos from Oregon us talks about how he used Ultra low dose naltrexone and LDN in his clinic.Dr. Chris Kleronomos, a renowned pain specialist based in Oregon, shares his valuable experience of utilizing Ultra Low Dose Naltrexone (ULDN) and Low Dose Naltrexone (LDN) in his clinic. He elaborates on the benefits of these powerful medications in the treatment of pain and their effectiveness in helping patients manage their condition. Dr. Kleronomos' insights are highly valued by his peers in the medical community, and his use of these innovative treatments is widely recognized as a significant contribution to the field of pain management.

Melanie, a resident of Canada, went through a challenging journey of coping with multiple health conditions such as MCAS, POTS, Sjogren's, Fibromyalgia, Asthma, and Hashimoto's. It's undoubtedly challenging to manage so many health issues simultaneously. However, Melanie found that once she was diagnosed with MCAS and learned how to control it, she observed an improvement in every other condition she had. It's admirable how she persevered through her struggles and learned to manage her health issues effectively.

Living with the chronic conditions of Mast Cell Activation Syndrome (MCAS), Postural Orthostatic Tachycardia Syndrome (POTS), hypermobile Ehlers-Danlos Syndrome (hEDS), Polycystic Ovary Syndrome (PCOS), and Sjogren's Syndrome can be extremely challenging. Lindsay, who lives with these conditions, must face numerous daily struggles and triumphs. Despite her difficulties, Lindsay's determination and resilience continue to inspire others. It is noteworthy that she is not only a patient but also a Registered Nurse (RN) and Licensed Professional Counselor (LPC). Her experience as a healthcare professional and a patient make her an excellent example of strength and courage.

Tracy from the United States, has bravely shared her personal experience dealing with three intricate medical conditions: Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and Hypermobile Ehlers-Danlos Syndrome (hEDS). Her story is an eye-opener for many as these conditions are often misunderstood and difficult to diagnose. Tracy's account provides important insights into the challenges faced by individuals living with these complex health issues.

In this poignant narrative, Doreena delves into the hidden connection between her struggles with Lyme disease and MCAS. She takes us through her emotional journey from childhood to the present day, recounting the trials and tribulations she faced. With a deep sense of empathy, she shares how she turned her experiences into a tool to unravel the mysteries of her condition, although she is still seeking answers for the treatment that would help her. Her story is both inspiring and informative, offering invaluable insights to those who are grappling with similar issues.

Brandi from the US shares her life with Ehlers-Danlos, MCAS, and Dysautonomia.

Natalie from the US shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience with us.

Katie from the US shares her LDN, MCAS, POTS and EDS (type 4 molecular diagnosis) Journey with us.

Anno, from the United States, has been dealing with health issues including mast cell activation syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS), and small intestinal bacterial overgrowth (SIBO).The journey with these health issues started after the birth of the guest's son in 2016, with severe digestive problems and classic indicators of methane dominant SIBO.Despite multiple treatments for SIBO, relapses were common, leading to a search for underlying causes. Eventually, a GI specialist diagnosed EDS and suspected POTS, leading to the turning point in the guest's health journey.As a child, symptoms such as constipation, temperature regulation issues, and a delayed onset to anaesthesia were noted, indicating early signs of the health conditions later diagnosed.Anno's mornings were challenging, with low energy levels and severe GI issues upon eating, making even showering in the morning difficult.

Caroline from Canada shares her struggles with MCAS, Dysautonomia, PTSD and LDN.

Anne from the US shares her unique LDN, MCAS and EDS story with us.

Dr. Cory Tichauer has 15 years experience and runs his naturopathic “Bear Creek Clinic” in Oregon. He majored in Neurobiology and also studied in Nepal. He has prescribed LDN for 10 years for 30 to 40 % of his patients because it controls the inflammation and pain so well. He also does lab work to check for viruses, infection, parasites, heavy metals, and the like. He avoids opiates and antibiotics as much as possible, and does a great job of combining conventional western medicine with Naturopathy.

Alissa from the US tells us about her journey with MCAS, POTS and LDN.

Michelle and her husband Matt from the US share with us her quest of many years to finally get an MCAS diagnosis and then to have the correct treatment to help her, which included LDN.