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On this morning's show... Johnny Luby will join us in a few moments for his take on the week that was... Should Ireland adopt a secular school system?... Independent Presidential Candidate Donnacha McGabhann joins us to discuss his campaign... Functional Neurological Disorder, it affects nine thousand people in this country, we ‘ll speak to one Tipperary person affected. And our Friday Panel will unpack the hot topics of the week...
Send us a text if you want to be on the Podcast & explain why!Become a QUALIFIED Certified personal trainer with www.showupfitness.comQualifying yourself as a professional personal trainer means going beyond basic certifications when working with clients who have complex conditions like Functional Neurological Disorder (FND). This episode breaks down exactly how to establish yourself as a trusted fitness professional within the medical community while designing effective programs for clients with neurological challenges.When working with clients who have medical conditions, your first move should always be reaching out directly to their healthcare providers. We walk you through exactly how to approach doctors and therapists, what to say, and how to present yourself as a qualified professional who stands apart from the Instagram fitness crowd. This simple step not only improves your programming but positions you for valuable referral relationships.For the long-distance runner with FND who experiences symptoms while descending stairs, we detail a comprehensive programming approach focusing on unilateral strength, frontal plane stability, and neurological control. You'll learn specific exercise selections—from explosive step-downs to airplane poses—that directly address the functional limitations while building overall performance. Most importantly, we explain why consistent progression of these movements creates better results than constantly changing exercises.The difference between average trainers and elite coaches isn't just exercise selection—it's creating comprehensive systems and networks. By learning to work collaboratively with medical professionals and focusing on evidence-based programming rather than entertainment, you'll not only help clients overcome conditions like FND, but you'll establish yourself as an indispensable part of their healthcare team. Ready to elevate your professional status and help clients who truly need your expertise?Want to ask us a question? Email email info@showupfitness.com with the subject line PODCAST QUESTION to get your question answered live on the show! Our Instagram: https://www.instagram.com/showupfitnessinternship/?hl=enTikTok: https://www.tiktok.com/@showupfitnessinternshipWebsite: https://www.showupfitness.com/Become a Personal Trainer Book (Amazon): https://www.amazon.com/How-Become-Personal-Trainer-Successful/dp/B08WS992F8Show Up Fitness Internship & CPT: https://online.showupfitness.com/pages/online-show-up?utm_term=show%20up%20fitnessNASM study guide: ...
On today's show: 9am-10am No properties available to rent within HAP limits in Galway city last month Travel disruption is expected across Europe over the Easter break We hear about those living with Functional Neurological Disorder for FND Awareness Month
Elise from the United States, shared her experiences with mast cell activation syndrome (MCAS), functional neurological disorder (FND), and various health issues. She described dealing with symptoms since childhood, such as severe fatigue, unpredictable energy levels, infections, severe allergic reactions, and bowel issues. Elise also mentioned the psychological impact of her conditions and how she coped with chemical sensitivities, such as avoiding strong smells and educating others about the impact of scented products. She expressed that recently her chemical sensitivity has been improving, and she shared specific memories of how certain perfumes triggered her health issues.For information on LDN, go to https://linktr.ee/ldnrtOur webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-coursesWe have a list of LDN Q&As on our website https://ldnresearchtrust.org/questions-and-answersVisit our website, which is packed with information on Low Dose Naltrexone (LDN) for Autoimmune Conditions, Cancers, Chronic Pain, Women's Health and more.https://www.ldnresearchtrust.orgWe have a very active FB Closed Grouphttps://www.facebook.com/groups/LDNRT/
We’re super excited to bring you this week’s episode with Senior Clinical Neuropsychologist, Simone Mangelsdorf-Collett (she/her). We chat with Simone about Functional Neurological Disorder (FND) – or, as Simone puts it “the most common disorder you’ve never heard of”. Simone specialises in FND, neurodegenerative syndromes, and movement disorders, and practices out of Yarra City Psychology in Richmond, Melbourne. She is experienced in both ends of patient care, including assessment and diagnosis and rehabilitation and intervention. If you’ve been wondering about FND, this episode is for you! We cover: What is Functional Neurological Disorder (FND), and how does FND differ from other neurological disorders (like epilepsy, stroke, Parkinson’s etc.) What does the term ‘functional’ mean, in this context? The historical context of FND and how our understanding of this condition has evolved over time. Some of the currently known mechanisms behind FND, including predictive coding theory. Some common vulnerabilities and triggers for FND. The overlap between FND, neurodivergence, and gender. Simone takes us through treatment options for FND and who would be involved in the treatment team. How Simone came to specialise in FND and her work in FND advocacy and education. Things mentioned: FND Australia Support Functional Neurological Disorder in Australia Functional Neurological Disorder Society (FNDS), for professionals. Here are some studies on the link between FND and Autism – Tamilson et al., 2024, Gonzalez-Herrero et al., 2024, Pun et al., 2020, Link between gender and FND – McLoughlin et al., 2023. Got questions for us?? Come along to our LIVE Q&A event! Held online on 27th June (with replay available to all ticket holders). Grab a ticket here and submit your question! Enjoyed the episode and want to support us further? Join our Patreon community! Patreon subscribers receive ad-free episodes, basic episode transcripts from Season 4 onwards, access to a monthly live zoom hang out, 50% off our episode articles, plus bonus monthly content (depending on subscription tier). Check out our Patreon page to support us, as we aim to make quality mental health care information accessible to everyone: www.patreon.com/ndwomanpod. Want polished copies of our episodes in beautiful and readable pdf article format? Grab them here. Contact us at ndwomanpod@gmail.com, or visit our website: www.ndwomanpod.comSee omnystudio.com/listener for privacy information.
Welcome to "It's Me, It's Me, It's F&D," a podcast dedicated to navigating the complexities of living with Functional Neurological Disorder (FND). Host shares personal experiences and insights, reflecting on a four-year journey of self-discovery and resilience. As he grapples with the challenges of maintaining control amidst the unpredictable nature of FND, he offers support and understanding to those on a similar path. This episode delves into the struggle of adapting to a new normal while empowering listeners to find strength and community in shared experiences. Tune in for genuine reflections on the impact of FND, the importance of self-care, and the power of kindness in our daily lives.
In this episode of The Dr. Alex Show, Dr. Alex Nelson returns to shed light on Functional Neurological Disorder (FND), a condition at the crossroads of neurology and psychology. Drawing from his recent presentations and hands-on experience, Dr. Alex explores the predisposing factors, triggering events, and common misconceptions surrounding FND — especially in the wake of COVID-19. He emphasizes the importance of a multidisciplinary approach, involving neurologists, psychologists, and physical therapists, to provide effective care. Join us as we dive into this often-misunderstood disorder and the hope for better recognition and treatment. Additional resources and links from Dr. Alex: https://www.fndsociety.org/ https://neurosymptoms.org/en/ https://fndhope.org/ https://fndaction.org.uk https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorder https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/functional-neurological-disorder/ - Scotland https://rarediseases.org/rare-diseases/fnd/
Functional neurological disorder (FND) results in fluctuating control of voluntary activities. Victor Mark, M.D., explains why FND has only recently begun to be acknowledged as a neurological rather than purely psychological disorder. He discusses conditions related to FND and effective rehabilitation coordinated between neurologists, psychologists, physical therapists, and others to moderate symptoms. Learn more about the persistent misunderstandings regarding FND within the medical community, which have often created a stigma for those living with it.
Functional Neurological Disorder or FND explained, including common symptoms, risk factors and diagnostic criteria. Also includes FND treatment as well as distinguishing features from other conditions. Consider subscribing on YouTube (if you found any of the info useful!): https://www.youtube.com/channel/UCRks8wB6vgz0E7buP0L_5RQ?sub_confirmation=1Patreon: https://www.patreon.com/rhesusmedicineBuy Us A Coffee!: https://www.buymeacoffee.com/rhesusmedicineTimestamps:0:00 What is Functional Neurological Disorder? 0:40 Functional Neurological Disorder Symptoms1:52 Functional Neurological Disorder Causes and Risk Factors 3:00 Functional Neurological Disorder Diagnosis 4:43 Functional Neurological Disorder DSM V Criteria5:20 Functional Neurological Disorder Treatment Links to FND Resources:https://fndhope.org/https://neurosymptoms.org/en/ReferencesBMJ Best Practice (2024) - “Functional neurological and somatic symptom disorders”. Available at https://bestpractice.bmj.com/topics/en-gb/989Prof. J. Stone - Neurosymptoms (2021) - Available at https://neurosymptoms.org/en/S. C. Lidstone, R. Araújo, J. Stone, B. R. Bloem (2020) - “Ten myths about functional neurological disorder”. Available at https://onlinelibrary.wiley.com/doi/epdf/10.1111/ene.14310Selma Aybek, David L Perez, **(2022) - “Diagnosis and management of functional neurological disorder”. Available at https://www.bmj.com/content/376/bmj.o64National Institution of Neurological Disorders and Stroke (2024) - “Functional Neurologic Disorder”. Available at https://www.ninds.nih.gov/health-information/disorders/functional-neurologic-disorderPlease remember this podcast and all content from Rhesus Medicine is meant for educational purposes only and should not be used as a guide to diagnose or to treat. Please consult a healthcare professional for medical advice.
Gabrielle Hine shares her life-altering journey with Functional Neurological Disorder (FND) and fibromyalgia. Gabby experiences symptoms such as paralysis, non-epileptic seizures and blindness daily. Gabby paints a vivid picture of how these misfired signals within her nervous system have reshaped her life, leading to a cascade of challenges like anxiety and not being able to work.We talk about the societal misconceptions that often accompany non-visible disabilities. From the frustration of slurred speech to the heartbreak of having to step away from a career, our conversation delves into the complexities of living with FND and fibromyalgia. We also touch on the unique ways these conditions manifest in individuals, emphasising the importance of personalising support and understanding.If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.For supportFND Hope UKFND Hope InternationalFibromyalgia UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website
DISCLAMER >>>>>> The Ditch Lab Coat podcast serves solely for general informational purposes and does not serve as a substitute for professional medical services such as medicine or nursing. It does not establish a doctor/patient relationship, and the use of information from the podcast or linked materials is at the user's own risk. The content does not aim to replace professional medical advice, diagnosis, or treatment, and users should promptly seek guidance from healthcare professionals for any medical conditions. >>>>>> The expressed opinions belong solely to the hosts and guests, and they do not necessarily reflect the views or opinions of the Hospitals, Clinics, Universities, or any other organization associated with the host or guests. Disclosures: Ditch The Lab Coat podcast is produced by (Podkind.co) and is independent of Dr. Bonta's teaching and research roles at McMaster University, Temerty Faculty of Medicine and Queens University. Welcome to another enlightening episode of "Ditch the Lab Coat," where we delve into the complexities of healthcare with a sharp, science-based skepticism. I'm your host, Dr. Mark Bonta, and today we're joined by the brilliant movement disorders neurologist, Sarah Lidstone.In this episode, we explore the intricacies of Functional Neurological Disorders (FND), a condition where the brain's function fails despite appearing normal on tests. We'll unpack the pivotal role of interdisciplinary care in treating FND, the significance of recognizing symptoms and triggers, and the essentiality of patient acknowledgment for effective therapy.Sarah shares her expertise on the communication breakdowns in brain networks that lead to functional symptoms, and how historical misconceptions have shaped the treatment of such disorders. We critique the healthcare system's often dismissive attitude and discuss strategies to improve provider skills and patient outcomes.Listen as we discuss real-world examples, like dissociative seizures versus epileptic seizures, and the nuanced clinical examinations that differentiate them. We'll also dive into therapy misconceptions and the importance of supporting patient agency in the recovery process.Whether you're a healthcare professional or simply intrigued by the mind-body connection, this episode promises to be an engaging and insightful journey into the world of FND. So, grab your headphones, and let's ditch the lab coat for an hour and uncover the fascinating science behind these complex disorders. Tune in now!07:33 – FND highlights healthcare system's shortcomings and improvements.12:38 – Testing rules out comorbid neurological conditions, non-lesional deficits.20:07 – Societal attitudes challenge understanding of functional disorders.22:08 – FND misdiagnosis: historical misunderstanding, lacking clinical home.30:04 – Emotional challenges diagnosing psychogenic, non-epileptiform seizures.36:45 – Distinguishing seizures can be challenging and nuanced.38:26 – CBT helps control seizures, reducing emergency visits.47:34 – Support patients' agency and structure healthcare systems.51:57 – Recognizing symptom changes enables better treatment understanding.56:11 – Functional neurological disorders often face systemic dismissal.59:37 – Body worked fine despite previous dysfunction experience.
Functional Neurological Disorder, or FND, is the most common disorder you've probably never heard of. Some say it might be as common as MS or Parkinson's and yet it's not well known even by many medical professionals. It can cause seizures, paralysis, convulsions and changes in sensation, as well as pain, fatigue and memory difficulties.It's caused by a problem with the system in the brain that connects us consciously into our bodies, leaving sufferers unable to access their bodies properly. Because it doesn't show up on scans and tests it is often not diagnosed effectively, and patients can face difficulties accessing the help they need or even being believed that their symptoms are real.Claudia Hammond sits in on a consultation at the Maudsley Hospital between Emma, a new patient who is having exactly those problems, and Mark Edwards, Professor of Neurology and Interface Disorders at King's College London. She also meets Callum Alexander, a recovered patient who now volunteers for the charity FND Hope. He was referred by Mark for specialist neurophysiotherapy with Glenn Nielsen at St George's University Hospital, which had immediate results. Glenn tells us that FND can cause the brain to become excessively focused on actions are normally automatic, such as walking, and that redirecting the brain's attention can be one way of alleviating it.Meanwhile, Emma is relieved she finally has a name to put to her condition and Mark is pushing for more positive diagnoses of FND.Back in the studio, Claudia is joined by Kavita Vedhara, Professor of Health Psychology at Cardiff University. With increasing polarisation in the US in the run up to the forthcoming presidential election, she presents a study that sheds light on how we might view people who are more nuanced in their approach to controversial topics.You might expect people who are able to express both sides of an argument to thrive in social situations. However, this new research suggests that people with nuanced views are seen as less likeable than those with polarised views, even by those who agree with that person's ultimate position. How does that impact our chances of being able to have reasoned political debates?The 2025 All in the Mind Awards are now open for nominations. You can nominate individuals, professionals and groups who have helped you in your hardest times.Claudia catches up with ZeZe Sohawon who nominated her psychiatrist Dr Claire Purcell for an award in 2021. Since then ZeZe has set up a youth autism and mental health charity, Emotion Dysregulation and Autism, helping autistic young people who struggle with their emotions leading to mental health problems. The charity is about to start delivering a peer support programme in Birmingham hospitals, and she's done all of this while studying for a Neuroscience degree. This year she's a judge for the All in the Mind Awards and tells Claudia why she thinks people should take part.You can find out more about the awards in the programme or by going to bbc.co.uk/radio4/allinthemind where you'll also find full terms. Entries close 8th January 2025 at 1pm.Presenter: Claudia Hammond Producer: Ben Motley Studio Manager: Emma Harth Production Coordinator: Siobhan Maguire
Aimee Campbell lives with a severe form of Functional Neurological Disorder, which has seen her become totally dependent on assistance to get through each day and she really wants the "old Aimee back", something only specialised treatment in London can make happen. Barbara Scully hopes the late Nell McCafferty understood how much she did to improve the lives of Irish women. Blake Boland and Sean Keenan told us how they swam the English Channel as part of a four-man team. While visually impaired David Ryan explained how he runs the gauntlet of dog faeces and illegal pavement parking. Hosted on Acast. See acast.com/privacy for more information.
"FND is one of the most common disorders that you've never heard about" Dr Damon Ashworth, Clinical Psychologist, interviews Dr Harvey Jones, Clinical Neuropsychologist on one of his specialised interests - functional neurological disorder (FND). Harvey is at the forefront of the healthcare system in helping people with FND better understand what is going on for them with their brain and physical health, and what they can do about it. FND is one of the most misunderstood conditions out there. A diagnosis of FND does not mean that "it is all in your head". Psychology is involved, but this does not mean that people with FND are feigning or making it up in any way. If someone was really making things up, they wouldn't be out there searching for answers and solutions. Please listen to part one of our series on FND to learn more. If it sounds like anyone that you know may benefit from learning about FND too, please share it with them!
Pippa speaks to Audrey Bart-Sher, about a rare medical condition called FND or Functional Neurological Disorder. Bart-Sher is a board member of FND What Now?, a non-profit that supports people living with this condition, and their families.See omnystudio.com/listener for privacy information.
Jamie is a trans woman who was diagnosed with BPD in her 50's after years of misdiagnoses. She also lives with functional neurological disorder, ADHD, severe anxiety and CPTSD that stemmed in part from church based abuseSend us a Text Message.Stories Lived. Stories Told. Learn what it means to embody a communication perspective to create better social worlds.Listen on: Apple Podcasts SpotifySupport the Show.You can find Laurie and Sara on Instagram to follow their day to day lives even further @laurieanned and @saraswellnessway. You can also find the podcast on IG @boldbeautifulborderline Leave us a voicemail about your thoughts on the show at boldbeautifulborderline.comRegister for our free peer support group at https://www.eventbrite.ca/e/the-super-feelers-club-tickets-145605434775Register for our low-barrier drop-in DBT group at https://www.thewellnesswayllc.comPurchase the Exploring Your Borderline Strengths Journal at https://www.amazon.com/Exploring-Your-Borderline-Strengths-Amundson/dp/B0C522Y7QT/ref=sr_1_1?crid=IGQBWJRE3CFX&keywords=exploring+your+borderline+strengths&qid=1685383771&sprefix=exploring+your+bor%2Caps%2C164&sr=8-1 If you like the show we would love if you could rate, subscribe and support us on Patreon. Patreon info here: https://www.patreon.com/boldbeautifulborderline?fan_landing=true ...
Functional neurological disorder (FND) has been called a “silent epidemic,” a “crisis” in neurology, and psychiatry's “blind spot.”And, I have to admit it has been a huge personal blind spot for me. Luckily, others in the OT community have been hard at work standardizing care for these patients. Multidisciplinary treatment, including referral to OT is a best practice for these patients. And, today we will look at expert recommendations for OT assessment and treatment. After we review the OT recommendations for FND, we will welcome Naoya Ogura, OTD, OTR/L, he is the West Los Angeles Clinic Director at re-active and specializes in neurological conditions like POTS, EDS, MCAS, and FND. Learn more about our guest: https://otpotential.com/occupational-therapy-directory/naoya-oguraYou can find more details on this course here:https://otpotential.com/ceu-podcast-courses/ot-and-functional-neurological-disorderHere's the primary research we are discussing:Occupational therapy consensus recommendations for functional neurological disorder.Support the Show.
Sydney Anne Bennett lives with functional neurological disorder (FND), which is a condition where the brain doesn't communicate properly with the nervous system. Sydney's symptoms include chronic pain, hallucinations, loss of taste, trouble sleeping, hand paralysis, seizures, ataxia, muscle spasms, fatigue, and difficulty using her legs. Consequently, after a year […]
How can Functional Neurological Disorder effect your sight? Heather told Amelia how it impacted her running, why she took up long cane training and her 25 km fundraising walk for Southampton Sight. Learn more about Southampton Sight on their website southamptonsight.org.uk/ Sponsor the walk by visiting Heather's GoFundMe Page https://www.justgiving.com/page/jurassiccoastultrachallenge?newPage=true Image shows RNIB Connect Radio logo. RNIB is written in bold black capital letters and underlined with a bold pink line. Underneath, 'Connect Radio' written in smaller black letters.
Clinical Neurologist Matthew Phillips provides an update on Functional Neurological Disorder (FND) which is a disorder that arises from abnormal nervous system functioning where there is no identifiable organic disease.
Jonny interviews Craig Gingrich-Philbrook about his upcoming show, "Ways To Say Goodbye" in the Marion Kleinau Theatre. This is queer autobiographical performance art exploring some of the root causes of Craig's struggle with Functional Neurological Disorder.
Today's interview features one of my business coaching clients and dear friend, Zachary Grin. Zach is the owner and operator or Rethink Physical Therapy providing physical therapy services to patients with functional neurological disorders (FND) in New York and New Jersey. Zach shares his journey that led him to where he is today, providing PT services to a population he witnessed receive poor quality care during his time in the hospital clinical setting. Discover how Zach overcame challenges, embraced a "learner's mindset," and is operating a thriving practice providing high quality care to a population he is passionate about helping. -- Follow me on Instagram: @drmorganmeese | Join my Facebook Group: DPT to CEO | Ready to start your own cash based practice? Let's talk! morganmeese.com/bookacall | MUSIC: We Are The Best Team! by WinnieTheMoog Link: https://filmmusic.io/song/6235-we-are-the-best-team- License: http://creativecommons.org/licenses/by/4.0/ Like our content? Buy us a coffee! https://www.buymeacoffee.com/buymorgancoffee --- Support this podcast: https://podcasters.spotify.com/pod/show/dpt-to-ceo/support
Uniting for change, making a difference and building a support network for FND patients, Founder and CEO of FND Dimensions, Steve Webster, knows that strength is found within a peer-led community. Having worked in the charity sector all his life, his focus had been on community and youth development. However after a long period of ill health between 2006 and 2012, Steve's career in the environmental sector came to an end. Steve's purpose is now to focus on providing people with FND with personal connections. KEY TAKEAWAY “If people feel like they've got ownership over something and they have a say in the way it's run, then their commitment to it is stronger as well.” ABOUT STEVE Steve is the Founder and CEO of FND Dimensions, a registered charity that supports people diagnosed with Functional Neurological Disorder (FND). Working almost purely as a volunteer for over 10 years, Steve and his colleagues, offer peer support and a range of projects and activities to support the FND community which has built up to over 60 groups across the UK and continues to grow. CONNECT WITH STEVE https://twitter.com/ConnectFnd steve@fnddimensions.org https://fnddimensions.org www.linkedin.com/in/steven-webster-14a793178 https://www.facebook.com/fnddimensions ABOUT THE HOST - AMY ROWLINSON Amy is a Life Purpose Coach, Podcast Strategist, Top 1% Global Podcaster, Speaker and Mastermind Host. Amy works with individuals to improve productivity, engagement and fulfilment, to banish overwhelm, underwhelm and frustration and to welcome clarity, achievement and purpose. WORK WITH AMY Amy inspires and empowers entrepreneurial clients to discover the life they dream of by assisting them to focus on their WHY with clarity uniting their passion and purpose with a plan to create the life they truly desire. If you would to focus on your WHY or launch a purposeful podcast, then please book a free 20 min call via www.calendly.com/amyrowlinson/enquirycall KEEP IN TOUCH WITH AMY Sign up for the weekly Friday Focus - https://www.amyrowlinson.com/subscribe-to-weekly-newsletter CONNECT WITH AMY https://linktr.ee/AmyRowlinson HOSTED BY: Amy Rowlinson DISCLAIMER The views, thoughts and opinions expressed in this podcast belong solely to the host and guest speakers. Please conduct your own due diligence.
Welcome everyone to episode 30.Today's conversation is focused on the SSP for Kids. In my work supporting families with children who are experiencing challenges, whether that be neurodevelopmental or mental health-related; I have observed significant improvements following the SSP. I am also privileged to receive a lot of feedback from pediatric-focused therapists on the improvements they observe because of the SSP. So I wanted to help build awareness both for practitioners working with children or for any families listening who are experiencing challenges. As you will hear the SSP offers hope and evidence-based improvements across psychosocial-biophysiological systems.Today I am speaking with two senior-level clinicians, each with over 30 years of experience in pediatric therapy. I am honored to know them both as colleagues and good friends. Doreen Hunt, Occupational Therapist is the co-owner of Children's Therapy of Woodinville, Seattle USA. Irena Woodward, Occupational Therapist, is the owner of Family Connections in Sydney Australia. Both have extensive training beyond the Safe and Sound protocol and I will include their contact details at the end of the podcast. Some of the Key Points:Doreen discusses the case of an adolescent female who had significant mental health challenges- hospitalized for self-harm and had begun auditory hallucinations- after the first 30 min of SSP, her hallucinations stopped.- Listen in for more to this story.Irena discusses a young female with Functional Neurological Disorder and eating disorder- initially on nasogastric tube feedings- over SSP repeats was able to eat regular foods.SSP impacting the integrated social engagement system to see improved intake for feeding difficultiesSSP for infants - micro premi or failure to thriveSSP and vagus stimulation and resulting bowl and bladder awareness in a young childSSP to improve facial expressivity- connection to attachmentMore harmonious family life after SSPSSP and improved emotional intelligenceSSP and increased feelings of happiness in kidsSSP and improved vocal quality and inflectionSSP with improvements in gross and fine motor skillsWe discuss the neurobiology of SafetySSP with resulting improvements in family dynamicsImprovements in global developmentImportance for the family to nourish a sense of safetyI hope you enjoyed this episode and found the information helpful. It would be a great honor if you could share this episode with a colleague, friend, or family member. Knowledge is power and sharing this episode may help someone who is struggling. A big thank you to those who sent in questions. My apologies if I did not get to yours. We do plan to record a follow-up session in early 2024 targeted to specific questions around SSP implementation so if you have any questions or suggestions please email me joanne@integratedlistening.com.au or message me via the Safe and Sound Protocol Podcast FB group.Doreen, Irena, and I, support clients globally. I will list contact details in the show notes and our SSP FB page. But to contact Irena- contact Irena@familyconnections.com.au Doreen at- dhuntotr@comcast.net Myself- Joanne@integratedlistening.com.au My next guest is the esteemed Dr Sue Carter, founder of Oxytoxin, the Social bonding hormone and wife to Dr Stephen Porges. I look forward to sharing that with you. Sending you kindness and self-compassion until next time. Take care, Joanne.Support the showPlease support my work by sharing this episode with a friend or colleague:)
What if you could recover from trauma quickly and painlessly? Meet Kristin Rivas, a Hypnotist, RRT Facilitator, and Brain Health Coach. Her life was radically changed when she was diagnosed with Functional Neurological Disorder, and was told she had a slim 20% chance of recovery. But Kristin didn't take this lying down. Her search for alternative treatments led her to the powerful world of hypnotherapy and Rapid Resolution Therapy (RRT), not only bringing her back to sanity and health, but also setting the course for her life's work.We explore the valleys and peaks of Kristin's journey, as well as the broader landscape of grief, trauma, and healing. We take a deep look at how these experiences can impact us, and the crucial role the right kind of care can play in recovery. With Kristin's unique perspective, we unpack the power of the mind, the effectiveness of RRT for trauma recovery. This conversation is a heartening testament to the human ability to overcome adversity, and the power of hope, determination, and professional help.As we shift our focus to entrepreneurs, we reveal unique insights into the challenges they often face, including PTSD, trauma, and even fears around marketing. As a seasoned hypnotist and brain health coach, Kristin underscores the urgency of self-care and seeking professional help when necessary. With perseverance and motivation, she believes entrepreneurs can not only achieve success, but also thrive and enjoy the process. So, tune in and get ready to journey through a world of resilience, recovery, and the remarkable power of the mind.Watch her TedX Talk here. Learn more about her / book services here.Follow her on IG here. Support the showPurchase my best selling book (Manifestation Mastery) here. Apply for my 5D CFO Services here.Book a 1:1 Session with me here. Follow me on Instagram here: Angela Marie ChristianThe5DCFOFacebook: Angela Marie Christian Join my FB Group: Mindfulness & ManifestationJoin my newsletter here.
Dr Cath Gregory chats about the latest evidence in Functional Neurological Disorders and the speech-language pathologist's role when working with people with Functional Neurological Communication and Swallowing Disorders. Key Takeaway: (1-2 sentences of the main theme.) Functional neurological disorder (FND) is a problem with the ‘software' of the brain that can occur across the lifespan. No longer classed as ‘psychogenic', this disorder is now known to follow a biopsychosocial model of illness. It is essential that a positive diagnosis, rather than a diagnosis of exclusion, occurs. Clear education about the disorder and the use of distraction to help access more autonomic pathways is the current consensus treatment for communication and swallowing disorders. A multidisciplinary approach is always required for people with more complex needs. Check out the show notes on https://www.speechuncensored.com/podcastepisodes/163
You can follow Leonard Cheshire on Twitter or Instagram @LeonardCheshire. Find out more at leonardcheshire.orgGet in touch by emailing disabilitydownload@leonardcheshire.org Find Shehla at www.aboutme.groupWhat is Functional Neurological Disorder?
This week's interview is with Jess Clough, from Australia! She has Functional Neurological Disorder, which affects how the nervous system sends and receives messages. In this interview, we talk about the stigma that Freudian psychology has brought to FND, the importance of modern perspectives in medicine, and a term I have never heard before--medical gaslighting. Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!Follow me on Instagram- @neurologicaldisorderpodcastEmail me at- neurologicaldisorderpodcast@gmail.comFollow Jess on Instagram- @functionallyjessWebsite Jess mentioned for FND- https://neurosymptoms.org/en/
Follow Jake on his podcast! Check it out!!!!!Itsmeitsmeitsfnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0LCheck out Jake on his youtube channel: and as they say if you love what he does : like follow and subscribe! @punkchef41https://youtube.com/shorts/JVoLO3Vtt8s?feature=shareForeign Accent Syndrome:https://pubmed.ncbi.nlm.nih.gov/30826739/Kelly Clarkson show : on youtube @thekellyclarksonshowhttps://www.youtube.com/watch?v=X20Spi7EOQYKelly Clarkson and Pink sing on this youtube video and they are crazy amazing The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND: if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Sam Barsh Yellow LetterSam Bars Hope Springs InternalThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND: if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Winter at east darby by TAYMEEuropian Sunrise by Anthony CatacoliThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
On this episode we are proud to talk to Dr. Katherine Gill president and founder of FND Australia Support Services. For those newly diagnosed in Australia we describe what FND Australia Services does and provides and hearing about a new FND wellbeing course that is going to be available. We thankyou Katherine Gill for giving us the opportunity to talk to you again. Check out the website and the app. FND Australia Support Serviceshttps://fndaus.org.au/The FND AUS APPApplehttps://apps.apple.com/au/app/fnd-aus-app/id1635024300Andriod:https://play.google.com/store/apps/details?id=com.fndaustralia&pli=1 Walk and Wheel Awareness day tshirt/jumpers are available here: https://www.etsy.com/au/shop/KraftyDesignsByKateGo for a walk : raise awareness , raise funds and do it within their community. Expressions of interest for Kokoro Mollitia a 12 week FND wellbeing program link is below:https://www.surveymonkey.com/r/KokoroMollitiaThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/FND TOGETHER:https://fndtogether.com/en/This is a FND charity/ in Canada run by volunteers. "Our goal is to support individuals diagnosed with Functional Neurological Disorder (FND). FND Together provides a platform for individuals affected by FND to join together in support of one another as peers. We exist to help people living with FND experience better recognition and support, improved health and social services, and we strive to provide a strong common voice on behalf of people affected by FND. Our focus is to help patients with FND and to create a network of services with other organizations and institutions in Canada and beyond our borders.A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website. https://www.fndaction.org.uk/fnd-awareness-day-uk/The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book! Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flameGoodreads:https://www.goodreads.com/en/book/show/63062237Booktopia:https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.htmlForeign Accent syndromehttps://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.https://youtu.be/x18AQT6yKGgNDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndisThe NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community. Is it still relevant the BMI index: it's questionablehttps://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMIFood pyramid relevant still?https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/Introducing the myplate:https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.A previous episode of medical cannibis:https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibisThe game:Marrying Mr Darcyhttps://boardgamegeek.com/boardgame/145308/marrying-mr-darcyThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
On this episode of the Deb and Detty Show we are joined by a special guest Jess (as Deb said the famous author) I ask questions in relation FND 1. Why is it so important to raise awareness for FND 2.What difference would it have made if you received proper treatment from the very beginning? 3. What message would you give to those who are newly diagnosed? 4.how do you deal with new symptoms?Hypohydrosishttps://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram: @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/
Meet Madyson Lovett, a 4H and FFA member, livestock ambassador, and writer of the blog Diary of an Ag Kid. She is passionate about agriculture and sharing the importance of advocacy. Growing up around her family's cattle calf operation, her agriculture experience has always been apart of her life. Even while diagnosed with Functional Neurological Disorder and relearning how to walk and talk, Madyson's agriculture community was her foundation. She's hosted Women in Agriculture Conferences and highlights youth who are making a difference in the agriculture industry on her blog. Tune in to hear about Madyson's story, understanding your identity outside of what you do, and what youth in agriculture can do to support the industry! I hope you love this episode as much as I do. Like, Share, and Advocate for Agriculture! LET'S CONNECT! INSTA: @growwithgracepodcast MADYSON'S SOCIALS INSTA: @diary_of_an_ag_kid
Professor Jon Stone discusses the features of Functional Neurological Disorder that help with a current understanding of the mechanisms associated with Complex Regional Pain Syndrome. Including, the onset of the conditions, how they can best be diagnosed and most appropriate treatment approaches If you'd like to see the video version of this and many more 11 minute-sessions with world-leading pain experts on a huge range of pain-related topics then please go to www.lepubscientifique.com and sign up for free membership. If you'd like to get in touch with Le Pub here's how: Email: lepubscientifique@gmail.com Twitter: @lepubscientifiq Instagram: @lepubscientifique LinkedIn: @LePubScientifique Join the Le Pub Community on Facebook: Le Pub Scientifique
Having a voice is about so much more than talking, or even communicating. Finding your voice is about walking the difficult but rewarding path from being invisible, silenced and ashamed, to being heard, understood, and seen. When Amy started her bookkeeping business in 2015, she found clients difficult and at times abusive, which left her feeling isolated, stressed and questioning her own abilities. After connecting with other bookkeepers, Amy realised that many bookkeepers had the same struggles, experiences and often felt isolated in their business. Whether trying to communicate with a difficult client or set boundaries many felt undervalued and overwhelmed. When Amy started The Bookkeepers Voice Podcast, she wanted a way for colleagues in the Bookkeeping industry to feel less isolated, more connected and know they were not alone. Through sharing real experiences of what it's like running a small bookkeeping practice, and teaching of topics of interest, Amy makes you think, laugh and know you're not alone. In this episode, Amy tells her story of how she lost her Voice: literally. On 8 December 2022, she was heading to South Gippsland with her two sons and husband Will, to visit her dad for the weekend. But less than 30 mins into the trip, Amy felt unwell and became unable to speak normally (Aphasia). Will called an Ambulance and Amy was taken to hospital to be assessed for a stroke. Instead, she was Diagnosed with functional neurological disorder, a condition where there is a disruption between the brain and a function of the body. ironically, the disruption occurred between the one function that forms the basis in the foundation for the work Amy most loves to do - speaking, encouraging, telling stories, teaching and training, and giving Bookkeepers running businesses, a voice. Amy recorded this episode about a week after she came home from hospital, and although she had made a great deal of progress in recovering her voice, but the voice you will hear this episode isnot the one you are used to hearing. Since this episode was recorded, Amy's voice returned to normal, but has also had to further episodes causing a relapse of Aphasia. Amy is currently taking some time off work to recover, and to decide on a future direction that will take into consideration, her reduced work capacity. At this stage, the future of the Bookkeepers voice podcast, and The Savvy Bookkeeper is unknown. But we will post an update as soon as possible. Amy would like to express her gratitude to podcast listeners, and savvy members. You have given Amy a sense of purpose and joy in business. We ask that you would lift Amy and her young family up in prayer, and for healing and protection over Amy's voice, and for Savvy, a business Amy worked so hard to build. That it would not be wasted or destroyed.See omnystudio.com/listener for privacy information.
Welcome to Episode 24. I have the pleasure of speaking with Michael Romeo, Clinical Psychologist, about Functional Neurological Disorder (FND).Michael has been practicing as a Clinical Psychologist for over 20 years. He began his career as an Adolescent Psychologist. He worked in Bali treating ex-patriates experiencing PTSD following the Bali Bombing in 2002. He has worked as an educator and supervisor for most of his career. Michael lectured at Macquarie University for over ten years and was the International Student Counsellor at The University of Newcastle Counselling Service. Most of his career has focused on treating suicidal behaviours and complex trauma with EMDR, Schema Therapy, DBT and other strengths-based approaches. He currently works in private practice, where his primary clinical interest is treating Functional Neurological Disorders.This is such a rich discussion as not only is Michael an expert on FND but has lived experience. Listen in for a wealth of information pertinent to both the practitioner and the individual who may be experiencing unexplainable neurological symptoms.Some of the key points covered include:What is FND?Disconnection between the brain's hardware and the brain's softwareNeurological symptoms- brain stress responseWhy getting an accurate diagnosis is so importantThe diagnosis acceptance processImportance of engaging with therapy to reduce negative neuroplasticityNeed for a team approach for FND- OT, PT, Yoga, Psychology, .......Energy Systems Hypothesis for Functional SeizuresStress Model and FNDChildren and Adolescents and FNDMichael's personal journey with FNDVirtual Reality for FNDFND ResourcesManaging the boom and bust of FNDRole of distraction in recoveryDispelling negative expectations and recoverySSP for FND- Michael's experience with the SSP- improved mood, energy, less brain fog, and a sense of calm.Resources we spoke about include:https://www.neurosymptoms.org/en/https://fndhope.org/https://fndaus.org.au/SSP and FND Paper in Harvard Review of Psychiatry tells the story of MT, a 10-year-old girl with Functional Neurological Disorder (FND) (Rajabalee, et al. 2022). Neuromodulation Using Computer-Altered Music to Treat a Ten-Year-Old Child Unresponsive to Standard Interventions for Functional Neurological Disorder
EPISODE SUMMARYKathryn Paylor-Bent has a lot of wisdom to share and we cover a lot of ground in this conversation. We talk about her experiences as a disabled woman, wheelchair user, and the CEO of two successful businesses. She uses her disability as inspiration for her successful career as an adaptive fashion designer and as a consultant to other organizations.She shares her experiences with ableism, including medical and digital ableism like shadow banning on social media and examples from her personal life. In light of some of these negative experiences, she also shares solutions as an advocate and suggests how we can better understand the disability community. Another important part of Kathryn's story is being a mother to Tom, her son with autism and mental health challenges. She shares her vision for Tom's future as well as the future of other young people with disabilities through her business Seated Sewing. For the visually-minded who prefer to listen and read, watch the transcript video here: https://youtu.be/rpJslXjawTkFROM THIS EPISODE + RESOURCESKathryn describes ableism by saying, "Ableism is where people who are without disability assume they know what is right for us." She describes several examples, including digital ableism and medical ableism. Learn more about ableism here.Tommy Hilfiger AdaptiveDogs For GoodFunctional Neurological Disorder (FND)North East Autism Society: the charity behind the school Tom attendsNational Autistic SocietyOpen Style LabPointing Out Meaningful Representation for Children With Disabilities FIND AND FOLLOW KATHRYNSeated SewingConsult SeatedKathryn's LinkedInFind and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/
Meet warrior, Jen. Jen suffers from Functional Neurological Disorder causing severe dizziness, tiredness, migraines, and cognitive issues. Once a tax consultant, Jen is now disabled and feels the impact of her condition in all areas of her life. Listen as Jen explains how she adjusts her everyday life from cooking to running errands around her condition and her small town and how she finds humor where she can.
Ryleigh Jones was a happy, lively, normal 8-year-old girl until she was injured.March 23rd, 2022 Ryleigh lost feeling and ability to walk. With the diet change she has begun to walk again but the limbs have no sensation. Ryleigh no longer feels when she urinates. This is a tragedy to her Mom and Dad.Between the 15th of February and April 20, 2022 Ryleigh has been admitted to VCU Health system 11 times and they have been unable to diagnose her properly. They say that Ryleigh has a disorder called Functional Neurological Disorder. We do not believe this to be true as she is only 8 years old, and this diagnosis would be unheard of at this age.Ryleigh has undergone extensive medical procedures such as EEG, MRI, and a lumbar puncture, all of which have come back clear.We still have no diagnosis for our beautiful, loving girl. If you've known Ryleigh, you know she loved life, school, friends, baseball, and dance.Ryleigh has suffered significant memory loss to the extent some times she doesn't remember her dad and me or her family and beloved dog Buddy.Ryleigh was injured on January 6, 2022, and was diagnosed with COVID on January 12th. During COVID she had a straight 48-hour fever and lethargy.On March 24th, we took Ryleigh to Johns Hopkins Hospital, where we were quickly shut down because they pulled our record from VCU Health System, so they could not truly do an extensive workup on Ryleigh. JHH did not help us much other than running tests that suggest Ryleigh may have Porphyria and Celiac disease.As of 4/25/2022, Ryleigh has improved slightly because we changed her diet significantly. Gluten-Free foods and plant-based organic foods are all that Ryleigh can eat as of now. As you can imagine, for an 8-year-old, this has been significantly challenging.We have several upcoming outpatient appointments to determine further what damage has been done to our loving little girl.Ryleigh's blood work has not been explained to us, and there are no explanations for why her SED rate, CRP, and other tests are elevated.Please consider helping us figure out what is happening with our child. We have accumulated over $13,000 in medical bills, and her treatment is ongoing we may also have to have an attorney.Thank you, and hug your child tight because tomorrow may not be the same.https://givesendgo.com/ryleighFit, Healthy & Happy Podcast The Fit, Healthy and Happy Podcast is designed to help you become your best overall self.Listen on: Apple Podcasts SpotifySupport the show
In this week's episode, we learn the story of Sydney Bennett. Sydney is 23 years old and suffers from a condition known as Functional Neurological Disorder with symptoms of debilitating/chronic pain, numbness, paralysis and seizures. She discusses how she lives with and navigates her condition and how she deals with skepticism about her condition, i.e., it's all in your head. Sydney provides insight and advice that are transferrable to all of life's adversity and struggles. Follow Sydney on Instagram >>> @the.annegirl Key Takeaways From Sydney Bennett - For anyone diagnosed with Functional Neurological Disorder, it gets better. Don't give up. There is hope with grief. Accomplish what you can. Keep moving forward. - When things change in your life that are beyond your control, change your expectations/direction on how to reach your goals. - When you are having struggles mentally/emotionally, don't make decisions at night. Wait until the morning when things become clearer. - Find joy in the small things. Go over in your mind what you are thankful of. - Believe in the good things in life and your brain will look for ways to confirm them. - Find people to support you and talk to so you are not isolated. This episode is made possible by Empowered Family Law >>> ///// Buy Rod's Book "Get Back Up" >>> Buy Here Learn more about & contact Rod Cate:Rod Cate Website Twitter Facebook LinkedIn
This episode is a full circle moment for me being that I had the honor of hosting my former professor, Linda Buzogany. Linda is a psychotherapist who works with dreams and unconscious material. She discusses an unexpected turn in her career focus when she came to realize a psychosomatic phenomenon through one of her students. Linda tells us about what a psychological non-epileptic seizure is and how other unconscious psychological material manifests itself through the body. Through work with dreams, she has been able to facilitate great healing with clients and her community. At the end, Linda gives us amazing tools to work with our dreams and the initial steps which will help with this particular process of discovery. This episode holds meaningful stories, dream scapes, and powerful revelations, and reminiscence from our past together, while honoring our present and future. Please subscribe, following, share, and leave a review! I hope you enjoy this episode as much as I did, see you next time. To get in touch with Linda Buzogany:For therapy: https://www.psychologytoday.com/us/therapists/linda-buzogany-therapy-littleton-co/239181Her Book, "The Superman Years": https://www.amazon.com/Superman-Years-Emotional-Parent-Diabetes/dp/1469986809Email: Lindabuzogany@gmail.comTo get in touch with Chloe, please email: Chloe@downwithmydemons.comFollow Chloe on IG: https://www.instagram.com/chloelionheart/Resources:Dream Tending with Dr. Steven Aizenstat:https://dreamtending.com/To find out more about Functional Neurological Disorder:https://fndhope.orgBooks:"Dreambody: The Body's Role in Healing the Self" by Arnold Mindellhttps://www.amazon.com/Dreambody-Bodys-Role-Healing-Self/dp/1619710005/ref=asc_df_1619710005/?tag=hyprod-20&linkCode=df0&hvadid=312681615521&hvpos=&hvnetw=g&hvrand=2357755986531162341&hvpone=&hvptwo=&hvqmt=&hvdev=c&hvdvcmdl=&hvlocint=&hvlocphy=9028750&hvtargid=pla-571407815465&psc=1"The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma" by Peter Levine"Dreaming the Soul Back Home: Shamanic Dreaming for Healing and Becoming Whole" by Robert Moss"The Dream and the Underworld" by James Hillman "Conscious Dreaming: A Spiritual Path for Everyday Life" by Robert MossTerms: -psychological non-epileptic seizures-conversion disorders-functional neurological disorders (or phenomena).Tips for Remembering Your Dreams:1. Tell yourself you are going to remember your dream2. Before you open your eyes or move when you wake up, try to recall all that you can3. Write in your journal before doing anything else, even if it doesn't make sense. (draw, colors, senses, directions, feelings, etc.)4. Share a dream with a friend5. Look back at past entries to find patterns.Support the show
Meet warrior, Aly. Aly woke up from a nap one day and the right side of her body was paralyzed for hours. She began the two-year journey to find her correct diagnosis of Functional Neurological Disorder or FND- a complex and mysterious condition causing Aly temporary paralysis, seizures, migraines and more. Listen as she shares her experience navigating the symptoms and doctors to finally reach her diagnosis.
It's been a long time coming but The Athletic Pittsburgh's Rob Rossi joins Pat and Jesse. They talk about Rob's battle with Functional Neurological Disorder and the importance of mental health, the state of the Penguins going into the Stanley Cup Playoffs, and the future of the franchise. At the end, Rossi quizzes Pat & Jesse about the NHL's class of 1967.
When COVID hit, a lot of people were experiencing financial stressors, life changers, interpersonal problems, because they were all confined to the same home. Some people are losing their jobs, there are so many stressors in society, that the incidence and the prevalence increase. It is hard to understand what this is about, it is a complex disease, a disease that has been happening since before Christ. There are some reports when you look at the literature, it took us 100 years to figure out the name. This went from conversion disorder related to hysteria, to what nowadays is known as functional neurological disorder. Joining us today at Maximal Being Fitness, Nutrition and Gut Health, is Dr. Yadira Velazquez, a clinical neurophysiologist. TopicsFrom Hysteria to functional neurological disorderFunctional neurologic disorders symptomsDiagnosis and treatment for FNDDoc Mok an advanced GI doctor specializing in nutrition, gut health, and cancer. Joining him is the podcast's layman, Jacky P, smashing the broscience on this week's podcast. Their guest Dr. Yadira Velazquez, is board certified in Clinical Neurophysiology.If you enjoy the podcast, would you please consider leaving a short review on Apple Podcasts/iTunes? It takes less than 60 seconds, and it really makes a differenceReach out to us at team@maximalbeing.comOr https://www.maximalbeing.com/site/contactFREE STUFF3 NUTRITION HACKS (that Your Doctor Won't Tell You) FREE e-book: https://www.maximalbeing.com/3-nutrition-hacksThe Perfect Human Diet: A FREE 5 part training video: https://www.maximalbeing.com/the-perfect-human-dietWE CAN HELP YOUSign-up for our Kombucha Course: https://www.maximalbeing.com/kombuchaThe Meal Prep Bootcamp Course: https://www.maximalbeing.com/offers/oGLXwoof/checkoutNeed a Sustainable Nutrition Solution for Gut Health: https://www.maximalbeing.com/sustainable-nutrition-solutionOur sponsorsEmerson Ecologics (10% OFF All Supplements): https://wellevate.me/maximal-beingiHerb supplement BDB5528 and receive 10% off your orders: https://www.maximalbeing.com/iherbResourceshttps://www.maximalbeing.comSocialFacebook: https://www.facebook.com/maximalbeing/Twitter: https://twitter.com/maximalbeingInstagram: https://www.instagram.com/maximalbeings/Pinterest: https://www.pinterest.com/maximalbeing/Linked'in: https://www.linkedin.com/in/maximal-being-13a5051a1/YouTube: https://www.youtube.com/channel/UCi7KVUF8U-gfhOE1KSNAqIgSupport the show