Podcasts about me cfs

Why are some people still sick long after COVID clears? Dr. Nancy Klimas, immunologist and Director of the Institute for Neuro-Immune Medicine, joins Haylie Pomroy to explain how persistent spike protein may be the missing link behind long COVID. They explore how this protein triggers immune dysfunction, brain fog, fatigue, and symptoms nearly identical to ME/CFS. Dr. Klimas shares what separates those who recover from those who don't, and the emerging clinical trials that may offer real answers. Learn more on the Hope and Help for Fatigue and Chronic Illness Podcast: What Spike Proteins Reveal About Long COVID and ME/CFS. Enjoy our show? Please leave us a 5-star review so we can bring hope and help to others. You can also catch this show on YouTube and other podcast platforms.   Watch “Exercise as Medicine: When It Helps and When It Hurts” with Jeffrey Cournoyer here: https://youtu.be/P9rQdtGxUBA   Sign up for the Monoclonal Antibody Study. Contact: 954-262-2286 or LongCOVID@nova.edu Registration Link: https://redcap.nova.edu/redcap/surveys/?s=RAYDFLKAR7HTWFXJ   Sign up for the COVID-UPP Study: https://redcap.nova.edu/redcap/surveys/?s=RMEDJ7LKCX&_gl=1*1h830h7*_gcl_au*MTM2NDA0MTQyOS4xNzE1MDA0ODAy   If you are interested in joining a Gulf War Illness (GWI) trial, please complete the Recruitment Registry Form. https://redcap.nova.edu/redcap/surveys/?s=Y9YF8JJWJRK8HEKL%20&_gl=1*1fipp18*_gcl_aw*R0NMLjE3MDc5MTgwMzIuRUFJYUlRb2JDaE1JeWNyUXVfcXFoQU1WU1pCYUJSM3AyQWRBRUFBWUFTQUFFZ0s1NWZEX0J3RQ..*_gcl_au*MTg2NjgwMDQ4Ni4xNzA3MTQwNzgx Nancy Klimas, M.D., is the Director of the Institute for Neuro-Immune Medicine where she directs a group of remarkable interdisciplinary scientists and clinicians. They collaborate to discover innovative strategies for treating and preventing chronic illnesses, while also focusing on training the next generation of clinicians and scientists. With 40 years of professional experience, Dr. Nancy Klimas is internationally recognized for her work in multi-symptom disorders, including ME/CFS, GWI, fibromyalgia, and Long COVID.   LinkedIn: https://www.linkedin.com/in/nancy-klimas-49255178/ Instagram: https://www.instagram.com/nancyklimas Twitter: https://www.twitter.com/ngklimas   Haylie Pomroy, Founder and CEO of The Haylie Pomroy Group, is a leading health strategist specializing in metabolism, weight loss, and integrative wellness. With over 25 years of experience, she has worked with top medical institutions and high-profile clients, developing targeted programs and supplements rooted in the "Food is Medicine" philosophy. Inspired by her own autoimmune journey, she combines expertise in nutrition, biochemistry, and patient advocacy to help others reclaim their health. She is a New York Times bestselling author of The Fast Metabolism Diet.   Learn more about Haylie Pomroy's approach to wellness through her website: https://hayliepomroy.com   Instagram: https://www.instagram.com/hayliepomroy Facebook: https://www.facebook.com/hayliepomroy YouTube: https://www.youtube.com/@hayliepomroy/videos  LinkedIn: https://www.linkedin.com/in/hayliepomroy/  X: https://x.com/hayliepomroy    Enjoy our show? Please leave us a 5-star review so we can bring hope and help to others.    Sign up today for our newsletter. https://nova.us4.list-manage.com/subscribe?u=419072c88a85f355f15ab1257&id=5e03a4de7d   This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here. Website: https://www.nova.edu/nim/ Facebook: https://www.facebook.com/InstituteForNeuroImmuneMedicine Instagram: https://www.instagram.com/NSU_INIM/ Twitter: https://www.twitter.com/NSU_INIM  

This episode was recorded on Instagram Live.Hollie Christian Brooks joined us to discuss her new play "Yawn: A Chronically Fatigued Play", which draws from her personal experience with ME/CFS to educate audiences about non-visible disabilities and create new connections with the community.We discuss everything, from symptoms and periods to self-discovery and the power of the Sunflower.  ME/CFS often develops following viral infections like glandular fever, with Hollie's diagnosis coming after years of recurring symptoms.The fatigue associated with ME/CFS differs from normal tiredness in that it cannot be alleviated by sleep and often includes flu-like symptoms, pain, and cognitive difficulties.Hollie created "Yawn" as both a personal healing journey and a way to connect with others who understand the isolation of chronic illness."Yawn" is designed to be accessible and inclusive, with concession tickets available for anyone who self-identifies as having a disability.  If you are experiencing any issues discussed in this podcast, please contact your healthcare practitioner.You can connect with Hollie on Instagram @yawn_play and find links to purchase tickets in her bio. Hosted by Chantal Boyle, Hidden Disabilities Sunflower. If you enjoyed this podcast, please leave a rating and review.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Broadcast from KSQD, Santa Cruz on 8-28-2025: Dr. Dawn opens with concerning research about PFAS (forever chemicals) found in feminine hygiene products. Chinese and American studies reveal significant concentrations in paper diapers, sanitary pads, and especially period underwear, with some products containing up to 77,000 parts per million. These compounds can absorb through skin and never break down in the environment, raising health concerns for products used in intimate contact. She shares research on vitamin K (MK7) for nocturnal leg cramps in older adults. A study of people 65 and older showed that 180 micrograms of menaquinone-7 reduced cramp episodes by half over two months while placebo group episodes doubled. This form of vitamin K also helps direct calcium to bones rather than arteries when taking calcium and vitamin D supplements. Dr. Dawn explains how gut bacteria are evolving to digest food thickeners like guar gum found in ketchup, salad dressing, and toothpaste. Previously considered non-digestible, these cellulose-based compounds are now being broken down by bacterial enzymes that develop when people eat high-fiber diets, potentially adding hidden calories to processed foods beyond what labels indicate. An emailer asks about Botox brain effects after reading a study in Advanced Science. Dr. Dawn critiques the research methodology, explaining that the organoid model using fetal cells doesn't replicate real-world conditions. She argues the cosmetic doses used are orders of magnitude smaller than the doses used in the study. The study concentrations are much higher than doses used in even the most aggressive therapeutic applications and concludes the study doesn't provide compelling evidence for brain toxicity concerns. Another emailer inquires about myalgia encephalomyelitis/chronic fatigue syndrome genome research. Dr. Dawn explains that while GWAS studies identifying eight genetic loci are scientifically interesting, they don't provide practical diagnostic tools or treatment insights. She notes the resemblance of ME/CFS to long COVID and describes the hallmark symptom of post-exertional malaise lasting days after activity. Dr. Dawn presents encouraging dementia prevention research showing Mediterranean diet benefits. The study found 13% reduced dementia risk overall, with 25% reduction for those improving adherence. Most significantly, people with the high-risk APOE4 gene variant showed the greatest protective effect from eating leafy vegetables, fish, whole grains, and limiting processed foods. She provides an extensive discussion of hormone therapy for mental health, criticizing the medical field's neglect of hormonal causes of depression and anxiety. Dr. Dawn explains how 35% of men over 45 are testosterone deficient and describes perimenopause effects on women's mental health, including 30% increased depression risk and 112% increased bipolar disorder risk during hormonal transitions. Dr. Dawn criticizes Gameday men's health clinics for exploitative practices, describing their "man cave" marketing approach and expensive injection protocols. She explains how normal testosterone production involves daily mini-spikes rather than weekly injections, and discusses clomiphene citrate as an alternative that can improve both testosterone levels and fertility without suppressing sperm production. She concludes with a cautionary tale about imaging studies, describing a patient whose X-ray showing arthritis led to activity restrictions that may have worsened her condition. Dr. Dawn emphasizes that movement and weight-bearing exercise are crucial for joint health, even when imaging shows degenerative changes. She warns against letting scans dictate treatment over clinical symptoms and urges a "physical therapy first" approach.

Scientists have found the first robust evidence that people's genes affect their chances of developing myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), a mysterious and debilitating illness that has been neglected and dismissed for decades by many in the medical community. To find out more, Madeleine Finlay speaks to science editor Ian Sample and to Nicky Proctor, who has ME and took part in the research. She also hears from Beth Pollack, a research scientist at the Massachusetts Institute of Technology who studies ME/CFS and related conditions, about how scientific understanding of the illness has improved and how scientists are transforming this knowledge into ideas about future treatments. Help support our independent journalism at theguardian.com/sciencepod

In this deeply moving episode of It Happened To Me, we sit down with Elizabeth Ansell, founder of #NotJustFatigue, a nonprofit initiative dedicated to raising awareness about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This is a condition that is vastly under diagnosed, possibly 90% which would mean it may affect up to 9 million people.    Elizabeth's life changed dramatically as a young adult when she developed ME/CFS—a complex, debilitating condition often triggered by infection. Since 2016, she has been bed-bound, living with severe fatigue, cognitive impairment, and post-exertional malaise. Yet, from her bed, she has become a powerful voice for change.   Through #NotJustFatigue, Elizabeth educates both the public and medical professionals about this misunderstood illness, challenging harmful myths and confronting the stigma that patients face. In this episode, she opens up about her own diagnostic odyssey, the emotional and physical toll of the disease, and the resilience it takes to advocate while living with severe limitations.    What You'll Learn in This Episode:   Elizabeth's journey to an ME/CFS diagnosis and how it changed her life The reality of living bed-bound for nearly a decade Why post-exertional malaise is a hallmark—and often misunderstood—symptom How #NotJustFatigue is changing public perception and medical understanding The connection between ME/CFS and Long COVID Strategies for supporting someone living with ME/CFS The role of storytelling in advocacy and awareness Myths and misconceptions that harm patients The emotional toll of medical gaslighting Hopes for the future of ME/CFS research and treatment More About Our Guest: Elizabeth Ansell, founder of #NotJustFatigue, is an advocate, storyteller, and changemaker for the ME/CFS community. A graduate of the University of Pennsylvania, she has a background in literature and TV production. Bed-bound since 2016, Elizabeth uses her lived experience and creative skills to educate others about ME/CFS, dismantle stigma, and build community for those navigating the same invisible illness.   Here is the visual historical timeline that Elizabeth mentioned during the episode. She also recommends watching #NotJustFatigue's 15 minute short film about the condition.    An update since we recorded with Elizabeth….   In a rare bipartisan move earlier this month (August 2025), the Senate Labor-HHS FY26 Appropriations Report delivered two major wins for the chronic illness community: Formally recognized ME/CFS within the RECOVER Initiative for Long COVID Directed NIH to implement the ME/CFS Research Roadmap within 180 days   This is a long-awaited breakthrough for millions of Americans with ME/CFS, a post-viral disease that has no FDA-approved treatment and receives just $13M in funding annually, despite being more common than Multiple Sclerosis. Advocates are calling this a major step forward in pushing NIH toward accountability and treatments.   Connect With Us:     Stay tuned for the next new episode of “It Happened To Me”! In the meantime, you can listen to our previous episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “It Happened To Me”.    “It Happened To Me” is created and hosted by Cathy Gildenhorn and Beth Glassman. DNA Today's Kira Dineen is our executive producer and marketing lead. Amanda Andreoli is our associate producer. Ashlyn Enokian is our graphic designer.   See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, ItHappenedToMePod.com. Questions/inquiries can be sent to ItHappenedToMePod@gmail.com. 

Dr. Charles Shepherd is the Honorary Medical Adviser to the ME Association, a patient charity in London, UK. Dr. Ken Friedman is a retired Associate Professor of Pharmacology and Physiology, New Jersey University of Medicine and Dentistry, Newark, New Jersey. Following up … More ... The post Dr. Charles Shepherd and Dr. Ken Friedman – UK and US Updates on ME/CFS and Long Covid appeared first on Paradigms Podcast.

New research has found ME/CFS is partly caused by genetics, related to the immune and nervous system.

Scientists find link between genes and ME/chronic fatigue syndrome, and a disturbance in gut bacteria . Early findings from the world's largest study into the genetics of the condition pinpointed eight regions of the human genome that were substantially different in people with an ME/CFS diagnosis compared to those without the illness. All to discuss with Luke O'Neill Professor of Biochemistry at the school of Immunology, Trinity College and host of Show Me The Science podcast.

In this episode, Evan H. Hirsch, MD speaks with Dr. Diana Driscoll about the surprising role of acetylcholine in restoring nervous system function and addressing conditions like POTS, ME/CFS, gastroparesis, and post-COVID symptoms.   Dr. Driscoll shares her inspiring journey from being a severely affected POTS patient to becoming one of the leading experts in autonomic nervous system dysfunction. Her experience navigating the medical system and years of self-funded research led her to discover new approaches that challenge traditional diagnostic labels and treatment protocols.   Dr. Diana Driscoll, Optometrist, FAAO, is a world-renowned expert on POTS and other “invisible” illnesses. As an author, speaker, inventor, and devoted researcher with four patents, she has helped shape a more accurate understanding of chronic conditions. Her personal battle with POTS fueled a decade of innovation, culminating in solutions that address not just symptoms, but the root causes. Today, her work focuses on POTS, idiopathic intracranial hypertension, long COVID, ME/CFS, vagus nerve dysfunction, gastroparesis, and brain health.   Here are a few of the key insights you'll take away from this episode:   -. Why restoring acetylcholine may be a missing link in chronic illness recovery -. How intracranial pressure and vagus nerve dysfunction affect hormones and digestion -. What inflammation really means for patients with POTS and ME/CFS -. How Dr. Driscoll's clinical approach supports healing without relying on steroids   If you're living with POTS, ME/CFS, or lingering symptoms after COVID, this episode offers science-based hope and new tools that can make a real difference.   Want to try ParaSym Plus or other vagus nerve support products?   Purchase at https://vagusnervesupport.com/?rfsn=8759546.3703a4d   .   We help you resolve your Long Covid and Chronic Fatigue (ME/CFS) by finding and fixing the REAL root causes that 95% of providers miss. Learn about these causes and how we help people like you, Click Here. Do you have fatigue, brain fog, shortness of breath, muscle pain, or other strange symptoms? You might have Long Covid. Take our free quiz to find out if Long Covid is behind the mystery symptoms you're experiencing, Click Here. For more information about Evan and his program, Click Here.   Prefer to watch on Youtube? Click Here.   Please note that any information in this episode is for educational purposes only and does not constitute medical advice.

In dieser Episode spreche ich mit Dr. med. Sven Dreyer – Facharzt für Anästhesiologie, Präsident der Ärztekammer Nordrhein und Leiter des Zentrums für hyperbare Sauerstofftherapie an der Uniklinik Düsseldorf.Was auf den ersten Blick wie ein Raumschiff aussieht, ist in der Klinik ein etabliertes Verfahren: Die hyperbare Sauerstofftherapie (HBOT) wird seit Jahren bei Tauchunfällen, Kohlenmonoxidvergiftungen oder chronischen Wunden eingesetzt. Gleichzeitig wird sie immer öfter als potenzielle Therapie bei Long-Covid, ME/CFS und sogar zur biologischen Verjüngung diskutiert.Wir sprechen über Nutzen, Risiken und die tatsächliche Studienlage – und darüber, für wen sich HBOT wirklich lohnt.In dieser Folge erfährst du:

You've done everything right — balanced hormones, optimized your diet, reduced stress, worked with the best fertility specialists — maybe even tried IVF… and still, no pregnancy. It's devastating, confusing, and exhausting. But what if the missing link is something you've never even considered: mold and mycotoxins?Many couples struggling with infertility have explored every conventional and integrative option—hormone balancing, dietary changes, lifestyle upgrades, even IVF—yet still find themselves without answers. In this eye-opening conversation, Dr. Nafysa Parpia reveals one of the most under-discussed factors that could be standing in the way: chronic mold and mycotoxin exposure.Dr. Parpia explains how mold-related toxins can trigger persistent inflammation, disrupt hormone regulation, impact egg and sperm quality, and even mimic estrogen in the body. She outlines the connection between mold, the microbiome, and fertility—both for women and men—and why symptoms can be surprisingly “random” and often overlooked.Dr Nafysa Parpia is the Director of Naturopathic Medicine at Gordon Medical and specializes in treating patients with complex chronic illness who have diagnoses such as autoimmunity, fibromyalgia, Long Haul COVID, ME/CFS, and Mast Cell Activation Syndrome. Often, these diagnoses are caused by a combination of tick-borne illness, environmental exposures, mold/mycotoxins, stress, and emotional history.In this deep-dive interview, we explore how toxic mold exposure can silently undermine reproductive health in both women and men, often leaving standard fertility tests looking “normal” while the body is trapped in a loop of inflammation and hormonal chaos.You'll discover:Why mold is a fertility disruptor — from hormone imbalance to egg/sperm quality changesThe “cell danger response” and how chronic inflammation keeps your body in defense mode, not conception modeEstrogen-mimicking mycotoxins and their role in estrogen overloadHow mold exposure affects the microbiome and in turn reproductive healthWhy chronic sinus infections & allergies can be a hidden reproductive health problemThe top at-home and clinical mold tests: ERMI, MicroGen DX, allergy testing, mycotoxin panelsThe exact steps an expert uses to assess mold impact — from home inspection to advanced lab diagnosticsHow mold issues often overlap with Lyme, chronic infections, and environmental toxinsWhy men's fertility is equally impacted — from low testosterone to erectile dysfunctionTakeaway: If you've been on the fertility journey and feel like you've hit a dead end, exploring mold and mycotoxins could be the breakthrough you've been missing.Resources & Mentions in This Episode:ERMI Test (Environmental Relative Moldiness Index)MicroGen DX sinus swab testingEnvironmental professionals like Michael SchrantzBindings agents, antifungal herbs, detox support strategiesChapters: 0:00 Intro 2:15 Why mold is rarely considered in fertility workups 7:42 How inflammation from mold derails hormones 15:10 Chronic sinus infections & hypothalamus connection 22:55 Mold testing: home & body diagnostics 30:48 Overlap with Lyme and other infections 39:12 Mold's effect on male fertility 48:20 Personalized treatment protocols for complex cases Follow Dr...

As usual, AI slop shownotes. They're all about 30 seconds off due to theme music. Enjoy! The Jacks start in Hong Kong's downpour before unpacking Tasmania's post‑election arithmetic and a machete “amnesty” with bins outside cop shops. They wade through protests, policing, and the far‑right's antics, then dig into the Gareth Ward case and the thorny politics of expulsion. There's a sharp turn into AI copyright fights, family life vs screens, and a listener letter on pilot mental health.Mid‑show is a deep dive on ME/CFS's genetic breakthrough, then a long, unsentimental look at Gaza, Hamas, ceasefires, and who could plausibly govern anything next. Stateside, Tulsi, Brennan, Mueller, and the Epstein files swirl together with youth‑vote and gerrymander chat. They close with sport: Wallabies' best fortnight in ages, a cracking England–India Test, Ashes nerves, AFL chaos at Melbourne, and a quick NRL/Swans CEO note—before ending on a Trader Joe's chicken funeral and a cheeky Ozempic joke.Chapters00:00:00 — Hong Kong's black rainTriple black rain signals; ~300mm in a day at Mid‑Levels.City empties as people stay home; flood photos doing the rounds.00:01:36 — Tasmania's numbers gamePremier commissioned without a majority; Greens won't move no‑confidence.Governor Barbara Baker's “test it on the floor” remark and what's in scope.Labor/Greens maths; low appetite for another poll, but conditions exist.00:05:49 — Bins for blades: the machete “amnesty”Drop‑off slots outside police stations; comparison to firearms amnesties.Media flurries vs actual incident data; last big cluster months ago.00:07:21 — Protests, policing, and the far‑rightSydney Bridge March crowd size; VIPs photographed with Khamenei backdrop.Nazis on Parliament steps in balaclavas; state‑by‑state policing contrasts.Flags, chants, and where police draw the line on intervention.00:14:18 — The Gareth Ward messConviction details; bail, incarceration, and expulsion difficulty.Kiama re‑election as an independent, salary while imprisoned.Appeals, precedent, and public disgust.00:20:20 — Farewells and AI fightsDavid Dale and Col Joy remembered.Productivity Commission's AI stance; artists vs scraping; Zuckerberg's book haul.Peter Garrett's industry savvy; JP Morgan's internal AI rollout.00:26:16 — Kids, screens, and breakfastThe great iPad panic; why we don't judge strangers' mornings.Family meals are good; mind your own business is better.00:28:23 — Mailbag: pilots and mental healthFAA caution vs counselling stigma; past “deliberate crash” cases.Policy that pushes people away from help is bad policy.00:31:10 — ME/CFS: genetics change the storyDecodeME links to immune and nervous system pathways.It's physiological, not psychosomatic; GET/CBT harm for PEM sufferers.RACGP guidance lag vs UK/US updates; a long‑overdue turn.00:37:10 — Gaza, Hamas, and the absence of good options2005 pull‑out, tunnels, aid skimming; ceasefire vs aid corridors.Who could govern Gaza; peacekeepers, UNRWA skepticism, and Hamas reality.Ehud Barak's Qatar funding allegations; elections, starvation, ethics.01:03:21 — US politics: Russiagate reruns and Epstein filesTulsi's evolution; Brennan on TV; Mueller was Trump‑era appointed.“Lock her up” vs AI Obama arrest video; the file‑release calculus.Youth‑vote shifts; Republicans' state‑house gerrymanders.01:21:42 — Media Watch vs SkyThe TikTok immigration clip Sky ran and then pulled.Why mainstream reporting beats cherry‑picked viral outrage.01:24:44 — Sport: a proper weekendWallabies find a game fans can love; Lions tour lifts the code.England–India: great chase, Siraj's spell, and pressure's toll.Ashes preview: Bazball mettle in Aus conditions; pace attack is the key.AFL: Simon Goodwin sacked, Melbourne chaos, Adelaide surging; NRL Panthers steady.Swans appoint Matthew Pavlich CEO.01:36:54 — Chicken funerals and closingA full black‑robed rite in a US supermarket.“Put Ozempic in the water” gag; letters and see‑you‑next‑week.Notable quotes00:00:25 — “We had three black rain signals… 300 mils in a day here at Mid‑Levels.”00:03:31 — “It's not for the governor to be deciding when numbers are tested.”00:06:01 — “Bins outside the police station so miscreants can slide the machete through the slot.”00:08:43 — “They stood on the steps of Parliament and zig‑hiled their way across that protest.”00:14:09 — “Personally, I think let people tell you who they are.”00:18:50 — “He's essentially been convicted of rape… he's going to get a holiday.”00:24:49 — “To boost productivity by 4%, it's decided you just let AI go.”00:33:59 — “It is neurological and immunological. It is not psychiatric.”00:47:42 — “There are no good choices at the moment.”01:25:26 — “The best fortnight for the Wallabies in a very, very long time.”Who and what gets mentionedPeople: Barbara Baker; Jacinta Allan; Bob Carr; Gareth Ward; Chris Minns; Meredith Burgmann; Bruce Learman; David Dale; Col Joy; Peter Garrett; Mark Zuckerberg; Jamie Dimon; Andy Devereaux‑Cook; Ghazi Hamad; Benjamin Netanyahu; Eyal Zamir; Ehud Barak; John Brennan; Tulsi Gabbard; Hillary Clinton; Bill Clinton; Pam Bondi; Prince Andrew; Michael Vaughan; Ricky Ponting; Dave Warner; Joffre Archer; Mark Wood; Simon Goodwin; Brad Green; Matthew Pavlich; Tom Harley; Abby Phillip; Scott Jennings; Van Jones.Places: Hong Kong; Tasmania; Melbourne; Sydney; North Shore; Central; Opera House; Kiama; Silverwater; Gaza; West Bank; Qatar; Egypt; Netherlands; Japan; Texas; California; Massachusetts; Illinois; New York; Maryland; Old Trafford; Perth; The Gabba; Adelaide; San Francisco.Organisations/teams: Greens; Labor; Liberal Party; National Socialist Alliance; IDF; Hezbollah; UNRWA; Palestinian Authority; Hamas; Mossad; BBC; Jerusalem Post; FAA; DecodeME; RACGP; Productivity Commission; Sky News; Media Watch; CIA; Wallabies; Penrith Panthers; Sydney Swans; AFL; NRL; JP Morgan.

Support the Institute today. https://www.nova.edu/give/index.html?area=Institute%20for%20Neuro-Immune%20Medicine&designation=INIM%20Grateful%20Patient%20Fund   When living with ME/CFS or Long COVID, even getting out of bed can feel like running a marathon.  In this episode, Haylie Pomroy sits down with Dr. David Systrom, a Harvard physician and Director of the Advanced Cardiopulmonary Exercise Lab at Brigham and Women's Hospital to talk about exercise intolerance for people with chronic illnesses and why so many patients are left without answers. Dr. Systrom shares findings from invasive cardiopulmonary exercise testing and explains why traditional tests often miss what patients are actually experiencing. They dig into post-viral illness, mitochondrial dysfunction, dysautonomia, and the promise of clinical trials that could lead to more compassionate and targeted care. Tune in to the Hope and Help for Fatigue and Chronic Illness Podcast - Advancements in ME/CFS and Long COVID Care. Dr. David Systrom, MD.  is the Director of the Advanced Cardiopulmonary Exercise Laboratory at Brigham and Women's Hospital and Assistant Professor at Harvard Medical School. His work focuses on uncovering the mechanisms of exercise intolerance and helping build more precise, effective treatments for patients with ME/CFS and Long COVID. Want to help advance research in ME/CFS and Long COVID? You may be eligible to join The LIFT Trial and the Mitochondrial Muscle Study.   Reach out to: Johanna Squires, Senior Clinical Trial Coordinator  Email: jsquires1@bwh.harvard.edu   Haylie Pomroy, Founder and CEO of The Haylie Pomroy Group, is a leading health strategist specializing in metabolism, weight loss, and integrative wellness. With over 25 years of experience, she has worked with top medical institutions and high-profile clients, developing targeted programs and supplements rooted in the "Food is Medicine" philosophy. Inspired by her own autoimmune journey, she combines expertise in nutrition, biochemistry, and patient advocacy to help others reclaim their health. She is a New York Times bestselling author of The Fast Metabolism Diet.   Learn more about Haylie Pomroy's approach to wellness through her website: https://hayliepomroy.com Instagram: https://www.instagram.com/hayliepomroy  Facebook: https://www.facebook.com/hayliepomroy YouTube: https://www.youtube.com/@hayliepomroy/videos  LinkedIn: https://www.linkedin.com/in/hayliepomroy/  X: https://x.com/hayliepomroy    Enjoy our show? Please leave us a 5-star review so we can bring hope and help to others. You can also catch this show on our YouTube channel. https://www.youtube.com/@NSU_INIM   Sign up today for our newsletter. https://nova.us4.list-manage.com/subscribe?u=419072c88a85f355f15ab1257&id=5e03a4de7d This podcast is brought to you by the Institute for Neuro-Immune Medicine. Learn more about us here. Website: https://www.nova.edu/nim/ Facebook: https://www.facebook.com/InstituteForNeuroImmuneMedicine Instagram: https://www.instagram.com/NSU_INIM/ Twitter: https://www.twitter.com/NSU_INIM

Chronische Erschöpfung, Ratlosigkeit bei Ärzten, Hoffnungslosigkeit – und dann ein Wendepunkt. Erfahre, wie Heidi durch gezieltes Brain Retraining ihre Energie zurückgewonnen hat. Stell dir vor, dein Körper macht komplett dicht. Keine Energie mehr. Nicht mal genug Kraft, um einen Duschkopf zu halten. Heidi Königs war genau an diesem Punkt und hat sich Stück für Stück zurück ins Leben gekämpft. In diesem bewegenden und persönlichen Interview erfährst du, wie sie ME/CFS überwunden hat, welche Rolle Gehirntraining und Lebensstil dabei gespielt haben – und was dir oder deinen Klienten helfen könnte, wenn chronische Müdigkeit, Long Covid oder ME/CFS zum Alltag geworden sind.   Was dich in dieser Folge erwartet: Heidis persönliche Geschichte: Vom energielosen Alltag bis zur vollständigen Genesung ME/CFS und Long Covid: Symptome, Herausforderungen und wie wenig die Schulmedizin oft helfen kann Der Wendepunkt: Wie ein YouTube-Video und das Gupta-Programm alles verändert haben Brain Retraining: Wie man das Gehirn neu programmiert, um Symptome zu reduzieren Die Rolle von Angst bei chronischen Erkrankungen und wie man sie überwinden kann Lebensstil, Achtsamkeit und Atemübungen als Schlüsselelemente der Heilun CO₂-Therapie als ergänzende Methode zur Unterstützung der Mikrozirkulation und Mitochondrien LINKS & RESSOURCEN Gupta-Programm(auch auf Deutsch verfügbar)  YouTube-Kanal von Raelan Agle Infos zur CO₂-Therapie oder http://bit.ly/3UbUE6w  Podcastinterview mit Andres Olsson zu CO₂-Therapie Empfohlene Atemübung von Marion Massafra Schneider   Du hast Fragen oder willst mit Heidi in Kontakt treten? Hinterlasse deinen Kommentar unter dem YouTube-Video oder schreibe uns direkt, wir leiten es gerne weiter! Die Folgenotizen und eine schriftliche Zusammenfassung zu dieser Episode findest du hier.  Als Podcasthörer:in bekommst du von uns einen Rabatt auf unsere Produkte. Und zwar 15% Rabatt auf deinen ersten Einkauf (1-mal anwendbar, nur auf nicht bereits rabattierte Produkte). Der Gutscheincode ist in beiden Arktis BioPharma Shops in der SCHWEIZ und in DEUTSCHLAND gültig.  Gib hierfür den Gutscheincode podcast15 ein, bevor du deine Bestellung abschliesst. https://shop.arktisbiopharma.ch https://arktisbiopharma.de/  Abonniere den Darmglück-Podcast in deiner Lieblings-Podcastapp (Apple Podcasts, Spotify, Deezer, Google Podcasts etc.), indem du “Darmglück” in die Suche eingibst.  

You treated the mold. You killed the Lyme. You cleaned up your diet. So why are you still sick? In this episode of Medical Disruptors, Dr. E talks with psychiatrist and researcher Dr. Eleanor Stein—who spent nearly three decades navigating ME/CFS, Lyme disease, and chemical sensitivities before uncovering the missing link: the brain. They dive into the Cell Danger Response, a survival mechanism where your mitochondria shut down when the body senses a threat, and don't restart until they feel safe again. It's not enough to remove the trigger. If your nervous system is still sounding the alarm, your symptoms will stay stuck. Dr. Stein explains how chronic pain, fatigue, brain fog, anxiety, and hypersensitivity get wired into the brain—and how neuroplasticity allows them to be unwired. This isn't mindset work. It's hard science. Brain-level healing based on decades of research—and her own lived experience. If you've been told your labs are “normal,” dismissed by specialists, or left wondering what you're missing, this conversation connects the dots. Healing is still possible. Not by doing more, but by helping your body feel safe enough to stop surviving and start healing. Learn more about your ad choices. Visit megaphone.fm/adchoices

Im zweiten Teil der Folge geht es um die Frage, was hinter dem Begriff Medical Gaslighting steckt. Ständig erschöpft, kaum Konzentration, das Gefühl, nie richtig zu regenerieren – und das über Monate oder Jahre? ME/CFS oder Chronisches Fatigue-Syndrom, ist eine schwere und oft unterschätzte Erkrankung. In dieser Folge spreche ich mit Prof. Dr. Carmen Scheibenbogen, Leiterin des Arbeitsbereichs Immundefekte und postinfektiöse Erkrankungen an der Charité Berlin, über Ursachen und aktuelle Forschungsansätze. Noch mehr "Aha!"- Folgen gibt es bei WELTplus und Apple Podcasts. Alle zwei Wochen am Montag eine neue Folge. Hier bei WELT hören: https://www.welt.de/podcasts/aha-zehn-minuten-alltags-wissen/plus246844328/Noch-mehr-Alltagswissen-Aha-Bonus-Folgen-fuer-Abonnenten-Podcast.html. Hier findet ihr mehr Infos zu ME/CFS: https://www.tk.de/techniker/krankheit-und-behandlungen/erkrankungen/behandlungen-und-medizin/neurologische-einschraenkungen/me-cfs-mehr-als-nur-erschoepfung-2016418 https://www.mecfs.de Und hier findet ihr weitere Infos zum Phänomen Medical Gaslighting: https://www.apotheken-umschau.de/gesund-bleiben/medical-gaslighting-was-tun-wenn-aerzte-beschwerden-herunterspielen-symptome-nicht-ernst-nehmen-1226907.html Israelische Studie: https://pubmed.ncbi.nlm.nih.gov/39102546/ Bericht des Nationalen Diskriminierungs- und Rassismusmonitors: https://www.dezim-institut.de/publikationen/publikation-detail/rassismus-und-seine-symptome/ "Aha! Zehn Minuten Alltags-Wissen" ist der Wissenschafts-Podcast von WELT. Wir freuen uns über Feedback an wissen@welt.de. Produktion: Serdar Deniz Redaktion: Christine van den Berg Impressum: https://www.welt.de/services/article7893735/Impressum.html Datenschutz: https://www.welt.de/services/article157550705/Datenschutzerklaerung-WELT-DIGITAL.html

In this episode, Anna speaks with Dr Evan Hirsch (the Energy MD), who has helped thousands recover from Long Covid and ME/CFS. The conversation raises some fascinating points: how Long Covid can be understood as ME/CFS with a different viral trigger; how the nervous system and mitochondria are not 'dysfunctional' but highly functional, intelligent and communicative. Evan covers the 5 main causes of complex fatigue conditions, and the conversation moves through the difference between nervous system retraining as a 'necessary' and 'sufficient' condition for healing; the difference between recovery and healing and the invitational nature of meeting discomfort with curiosity and openness.This is a rich, thoughtful conversation, full of wisdom and insight. We hope you enjoy it!Feel free to send a text! We can't respond via text unfortunately, but we can sometimes answer a question on a future podcast episode. We always appreciate feedback. Support the showPlease rate and review this show. It really does help to support it. Please share it.To find out about working with Anna, please visit www.hypnocatalyst.com Anna specialises in profound healing work. Her approach addresses all the layers of human well-being: body, mind, emotions and spirit. You can take her uniquely life-changing healing course 'Somatic Liberation: The Deep Intelligence Healing System' by going to her website. The course has been described as: 'This is some kind of magical'. 'It feels as if what came before was mere apprenticeship'. 'Highly engaging. Deeply immersive'. 'This is a course in a class of its own, offering transformation at a deep level'. 'I've never felt more in awe, more empowered and more intrigued'. There is nothing else like it out there for nervous system transformation, brainwork magic, partnering with your own unconscious mind and transforming your relationship with your body, forever.

At my sickest, I couldn't leave the house most days. Over 10 years later, I can have full days out without even thinking about it. This is a small part of my real, unfiltered story of living with chronic illness—the struggles with getting diagnosed, what finally started to help, and the hard truths about healing that no one talks about.In this video, I share:Why I stopped chasing diagnoses after being gaslit by doctorsThe role of pharmaceutical medication in my healing journeyWhat trauma work actually is (and isn't)The truth about neuroplastic pain and medical gaslightingHow I went from housebound to living a full lifeI talk honestly about low-dose naltrexone, ketotifen, functional medicine, and why healing isn't a one-size-fits-all journey. If you're struggling with chronic pain, ME/CFS, fibromyalgia, or just feeling lost in the medical system, this might resonate with you.Chronic Pain & Illness IntensivesIf you're ready to work on changing your relationship with chronic pain while still taking proper medical care of yourself, I offer 1:1 intensives over 2-3 days. Apply for an intensive here: https://forms.gle/3Xv6jFcTroX7fbpEA

Episode 198: Fatigue.  Future doctors Redden and Ibrahim discuss with Dr. Arreaza the different causes of fatigue, including physical and mental illnesses. Dr. Arreaza describes the steps to evaluate fatigue. Some common misconceptions are explained, such as vitamin D deficiency and “chronic Lyme disease”. Written by Michael Ibrahim, MSIV, and Jordan Redden, MSIV, Ross University School of Medicine. Edits and comments by Hector Arreaza, MDYou are listening to Rio Bravo qWeek Podcast, your weekly dose of knowledge brought to you by the Rio Bravo Family Medicine Residency Program from Bakersfield, California, a UCLA-affiliated program sponsored by Clinica Sierra Vista, Let Us Be Your Healthcare Home. This podcast was created for educational purposes only. Visit your primary care provider for additional medical advice.Dr. Arreaza: Today is a great day to talk about fatigue. It is one of the most common and most complex complaints we see in primary care. It involves physical, mental, and emotional health. So today, we're walking through a case, breaking down causes, red flags, and how to work it up without ordering the entire lab catalog.Michael:Case: This is a 34-year-old female who comes in saying, "I've been feeling drained for the past 3 months." She says she's been sleeping 8 hours a night but still wakes up tired. No recent illnesses, no weight loss, fever, or night sweats. She denies depression or anxiety but does report a lot of work stress and taking care of her two little ones at home. She drinks 2 cups of coffee a day, doesn't drink alcohol, and doesn't use drugs. No medications, just a multivitamin. Regular menstrual cycles—but she's noticed they've been heavier recently.Jordan:Fatigue is a persistent sense of exhaustion that isn't relieved by rest. It's different from sleepiness or muscle weakness.Classification based on timeline:    •   Acute fatigue: less than 1 month    •   Subacute: 1 to 6 months    •   Chronic: more than 6 monthsThis patient's case is subacute—going on 3 months now.Dr. Arreaza:And we can think about fatigue in types:    •   Physical fatigue: like muscle tiredness after activity    •   Mental fatigue: trouble concentrating or thinking clearly (physical + mental when you are a medical student or resident)    •    Pathological fatigue: which isn't proportional to effort and doesn't get better with restAnd of course, there's chronic fatigue syndrome, also called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which is a diagnosis of exclusion after 6 months of disabling fatigue with other symptoms.Michael:The differential is massive. So, we can also group it by systems.Jordan:Let's run through the big ones.Endocrine / Metabolic Causes    • Hypothyroidism: A classic cause of fatigue. Often associated with cold intolerance, weight gain, dry skin, and constipation. May be subtle and underdiagnosed, especially in women.    • Diabetes Mellitus: Both hyperglycemia and hypoglycemia can cause fatigue. Look for polyuria, polydipsia, weight loss, or blurry vision in undiagnosed diabetes.    • Adrenal Insufficiency: Think of this when fatigue is paired with hypotension, weight loss, salt craving, or hyperpigmentation. Can be primary (Addison's) or secondary (e.g., due to long-term steroid use).Michael: Hematologic Causes    • Anemia (especially iron deficiency): Very common, especially in menstruating women. Look for fatigue with pallor, shortness of breath on exertion, and sometimes pica (craving non-food items).     • Vitamin B12 or Folate Deficiency: B12 deficiency may present with fatigue plus neurologic symptoms like numbness, tingling, or gait issues. Folate deficiency tends to present with megaloblastic anemia and fatigue.    • Anemia of Chronic Disease: Seen in patients with chronic inflammatory conditions like RA, infections, or CKD. Typically mild, normocytic, and improves when the underlying disease is treated.Michael: Psychiatric Causes    • Depression: A major driver of fatigue, often underreported. May include anhedonia, sleep disturbance, appetite changes, or guilt. Sometimes presents with only somatic complaints.    • Anxiety Disorders: Mental fatigue, poor sleep quality, and hypervigilance can leave patients feeling constantly drained.    • Burnout Syndrome: Especially common in caregivers, healthcare workers, and educators. Emotional exhaustion, depersonalization, and reduced personal accomplishment are key features.Jordan: Infectious Causes    • Epstein-Barr Virus (EBV):Mononucleosis is a well-known cause of fatigue, sometimes lasting weeks. May also have sore throat, lymphadenopathy, and splenomegaly.    • HIV:Consider it in high-risk individuals. Fatigue can be an early sign, along with weight loss, recurrent infections, or night sweats.    • Hepatitis (B or C):Can present with chronic fatigue, especially if liver enzymes are elevated. Screen at-risk individuals.    • Post-viral Syndromes / Long COVID:Fatigue that lingers for weeks or months after viral infection. Often, it includes brain fog, muscle aches, and post-exertional malaise.Important: Chronic Lyme disease is a controversial term without a consistent clinical definition and is often used to describe patients with persistent, nonspecific symptoms not supported by objective evidence of Lyme infection. Leading medical organizations reject the term and instead recognize "post-treatment Lyme disease syndrome" (PTLDS) for persistent symptoms following confirmed, treated Lyme disease, emphasizing that prolonged antibiotic therapy is not effective. Research shows no benefit—and potential harm—from extended antibiotic use, and patients with unexplained chronic symptoms should be thoroughly evaluated for other possible diagnoses.Michael: Cardiopulmonary Causes    •   Congestive Heart Failure (CHF): Fatigue from poor perfusion and low cardiac output. Often comes with dyspnea on exertion, edema, and orthopnea.    •   Chronic Obstructive Pulmonary Disease (COPD): Look for a smoking history, chronic cough, and fatigue from hypoxia or the work of breathing.    •   Obstructive Sleep Apnea (OSA): Daytime fatigue despite adequate hours of sleep. Patients may snore, gasp, or report morning headaches. High suspicion in obese or hypertensive patients.Jordan:Autoimmune / Inflammatory Causes    •   Systemic Lupus Erythematosus (SLE): Fatigue is often an early symptom. May also see rash, arthritis, photosensitivity, or renal involvement.    •   Rheumatoid Arthritis (RA): Fatigue from systemic inflammation. Morning stiffness, joint pain, and elevated inflammatory markers point to RA.    •   Fibromyalgia: A chronic pain syndrome with widespread tenderness, fatigue, nonrestorative sleep, and sometimes cognitive complaints ("fibro fog").Cancer / Malignancy    •   Leukemia, lymphoma, or solid tumors: Fatigue can be the first symptom, often accompanied by weight loss, night sweats, or unexplained fevers. Consider when no other cause is evident.Michael:Medications:Common culprits include:    ◦   Beta-blockers: Can slow heart rate too much.    ◦   Antihistamines: Sedating H1 blockers like diphenhydramine.    ◦   Sedatives or sleep aids: Can cause grogginess and daytime sedation.    •   Substance Withdrawal: Fatigue can be seen in withdrawal from alcohol, opioids, or stimulants. Caffeine withdrawal, though mild, can also contribute.Dr. Arreaza:Whenever we evaluate fatigue, we need to keep an eye out for red flags. These should raise suspicion for something more serious:    •   Unintentional weight loss    •   Night sweats    •   Persistent fever    •   Neurologic symptoms    •   Lymphadenopathy    •   Jaundice    •   Palpitations or chest painThis patient doesn't have these—but that doesn't mean we stop here.Dr. Arreaza:Those are a lot of causes, we can evaluate fatigue following 7 steps:Characterize the fatigue.Look for organic illness.Evaluate medications and substances.Perform psychiatric screening.Ask questions about quantity and quality of sleep.Physical examination.Undertake investigations.So, students, do we send the whole lab panel?Michael:Not necessarily. Labs should be guided by history and physical. But here's a good initial panel:    •   CBC: To check for anemia or infection    • TSH: Screen for hypothyroidism    • CMP: Look at electrolytes, kidney, and liver function    • Ferritin and iron studies    • B12, folate    • ESR/CRP for inflammation (not specific)    • HbA1c if diabetes is on the radarJordan:And if needed, consider:    • HIV, EBV, hepatitis panel    • ANA, RF    • Cortisol or ACTH stimulation testImaging? Now that's rare—unless there are specific signs. Like chest X-ray for possible cancer or TB, or sleep study if you suspect OSA.Dr. Arreaza:Unaddressed fatigue isn't just inconvenient. It can impact on quality of life, affect job performance, lead to mood disorders, delay diagnosis of serious illness, increase risk of accidents—especially driving. So, don't ignore your patients with fatigue!Jordan:And some people—like women, caregivers, or shift workers—are especially at risk.Michael:The cornerstone of treatment is addressing the underlying cause.Jordan:If it's iron-deficiency anemia—treat it. If it's depression—get mental health involved. But there's also: Lifestyle Support: Better sleep hygiene, light physical activity, mindfulness or CBT for stress, balanced nutrition—especially iron and protein, limit caffeine and alcoholDr. Arreaza:Sometimes medications help—but rarely. And for chronic fatigue syndrome, the current best strategies are graded exercise therapy and CBT, along with managing specific symptoms. Beta-alanine has potential to modestly improve muscular endurance and reduce fatigue in older adults, but more high-quality research is needed.SSRI: fluoxetine and sertraline. Iron supplements: Even without anemia, but low ferritin [Anecdote about low ferritin patient]Jordan:This case reminds us to take fatigue seriously. In her case, it may be multifactorial—work stress, caregiving burden, and possibly iron-deficiency anemia. So, how would we wrap up this conversation, Michael?Michael:We don't need to order everything under the sun. A focused history and exam, targeted labs, and being alert to red flags can guide us.Jordan:And don't forget the basics—sleep, stress, and nutrition. These are just as powerful as any prescription.Dr. Arreaza:We hope today's episode on fatigue has given you a clear framework and some practical tips. If you enjoyed this episode, share it and subscribe for more evidence-based medicine!Jordan:Take care—and get some rest~___________________________Even without trying, every night you go to bed a little wiser. Thanks for listening to Rio Bravo qWeek Podcast. We want to hear from you, send us an email at RioBravoqWeek@clinicasierravista.org, or visit our website riobravofmrp.org/qweek. See you next week! _____________________References:DynaMed. (2023). Fatigue in adults. EBSCO Information Services. https://www.dynamed.com (Access requires subscription)Jason, L. A., Sunnquist, M., Brown, A., Newton, J. L., Strand, E. B., & Vernon, S. D. (2015). Chronic fatigue syndrome versus systemic exertion intolerance disease. Fatigue: Biomedicine, Health & Behavior, 3(3), 127–141. https://doi.org/10.1080/21641846.2015.1051291Kroenke, K., & Mangelsdorff, A. D. (1989). Common symptoms in ambulatory care: Incidence, evaluation, therapy, and outcome. The American Journal of Medicine, 86(3), 262–266. https://doi.org/10.1016/0002-9343(89)90293-3National Institute for Health and Care Excellence. (2021). Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: Diagnosis and management (NICE Guideline No. NG206). https://www.nice.org.uk/guidance/ng206UpToDate. (n.d.). Approach to the adult patient with fatigue. Wolters Kluwer. https://www.uptodate.com (Access requires subscription)Theme song, Works All The Time by Dominik Schwarzer, YouTube ID: CUBDNERZU8HXUHBS, purchased from https://www.premiumbeat.com/.

In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares how raising awareness, and furthering research really improves the everyday lives of people living with ME/CFS. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin discusses what's next in ME/CFS research and what the future could hold.   Additional Resources #NotJustFatigue How to Fight Fatigue Understanding the Impact of Invisible Illnesses on Daily Life How Families Are Leading the Charge in Rare Disease Advocacy   Other Brain & Life Podcast Episodes on Similar Topics Rare Thoughts on a Rarer Neurologic Condition Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org   Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Dr. Joseph J. Burrascano Jr., a pioneer in the field of Lyme, began his practice in East Hampton, NY, in 1981, where he identified and detailed the clinical aspects of Lyme in a high-prevalence area. Renowned for his groundbreaking diagnostic and treatment guidelines since 1984, he has advised the CDC, NIH, and U.S. Senate, authored extensive publications, and is a founding member of ILADS, continuing to educate globally.

Demo of Spooniverse Directory, a resource platform for  patients and caregivers dealing with complex chronic illnesses like Long Covid, ME/CFS, POTS/dysautonomia, EDS, MCAS, and more.Explore here: https://www.spooniverse.directory/Watch on YouTube: https://youtu.be/VtKA8YTdZMY Get full access to Evolving with Nita Jain at www.nitajain.com/subscribe

In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares her diagnosis journey and explains why education around ME/CFS is so vital. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin explains what ME/CFS is and how it differs from other conditions with similar symptoms, like long COVID. Make sure to tune in next week for part two to hear about what's next in ME/CFS research and the importance of care partners.   Additional Resources #NotJustFatigue How to Fight Fatigue Understanding the Impact of Invisible Illnesses on Daily Life How Families Are Leading the Charge in Rare Disease Advocacy   Other Brain & Life Podcast Episodes on Similar Topics Rare Thoughts on a Rarer Neurologic Condition Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org   Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

In this deeply personal episode, I share the spiritual journey behind the Release program and my CFS healing journey. From my encounters with truth and non-duality to the moment I was asked to create a recovery program, this is the story of how healing became more than just emotional. It became sacred.I talk about how I met Valentina, the role my angel played in guiding me to her, and the unseen forces that try to keep us from healing. This is not just about symptoms or techniques. It is about the spiritual battle between light and shadow that many of us feel but rarely speak about.If you've ever sensed that your healing journey is part of something bigger, this episode is for you.Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

In this episode, Anna Grear, LLB, joins Evan H. Hirsch, MD, to explore how somatic healing and hypnotherapy can unlock recovery from chronic fatigue and long COVID.   Drawing from her 32-year journey with ME/CFS and her background as a law professor turned hypno-healer, Anna Grear, LLB, shares a powerful mind-body approach to healing through self-awareness, nervous system balance, and unconscious transformation. Formerly Professor of Law and Theory at Cardiff University in the UK and currently Adjunct Professor of Law at the University of Waikato in New Zealand, Anna now helps people with long-term complex fatigue conditions and spiritual emergence. She combines a deep passion for the intelligence of the body with advanced tools in mind-shifting and hypnotic influence. Her work focuses on health optimization, radical human potential, and awakening the healing wisdom within.   What you'll learn in this episode: -. How somatics and hypnosis influence the body's healing capacity -. Why chronic fatigue is often a mismatch between ancient biology and modern stress -. Techniques to regulate the nervous system and access deep calm -. The role of perception, safety, and neuroplasticity in recovery   Learn more about Anna's work at: http://www.hypnocatalyst.com Listen to her audio gift here: https://www.buzzsprout.com/2113402/15218459   .   We help you resolve your Long Covid and Chronic Fatigue (ME/CFS) by finding and fixing the REAL root causes that 95% of providers miss. Learn about these causes and how we help people like you, Click Here. Do you have fatigue, brain fog, shortness of breath, muscle pain, or other strange symptoms? You might have Long Covid. Take our free quiz to find out if Long Covid is behind the mystery symptoms you're experiencing, Click Here.   For more information about Evan and his program, Click Here.   Prefer to watch on Youtube? Click Here.   Please note that any information in this episode is for educational purposes only and does not constitute medical advice.

Credits: 0.25 AMA PRA Category 1 Credit™   CME/CE Information and Claim Credit: https://www.pri-med.com/online-education/podcast/frankly-speaking-cme-440 Overview: Explore current and emerging treatments for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating condition with no known cause or cure. Learn how oxaloacetate may offer new hope for patients struggling with ME/CFS, and gain practical guidance to support informed, evidence-based conversations with your patients. Episode resource links: Cash A, Vernon SD, Rond C, Bateman L, et al. RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Front Neurol. 2024 Nov 27;15:1483876.  Cash A, Kaufman DL. Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial. J Transl Med. 2022 Jun 28;20(1):295.  CDC ME/CFS Basics Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Guest: Alan M. Ehrlich, MD, FAAFP   Music Credit: Matthew Bugos Thoughts? Suggestions? Email us at FranklySpeaking@pri-med.com  

Credits: 0.25 AMA PRA Category 1 Credit™   CME/CE Information and Claim Credit: https://www.pri-med.com/online-education/podcast/frankly-speaking-cme-440 Overview: Explore current and emerging treatments for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating condition with no known cause or cure. Learn how oxaloacetate may offer new hope for patients struggling with ME/CFS, and gain practical guidance to support informed, evidence-based conversations with your patients. Episode resource links: Cash A, Vernon SD, Rond C, Bateman L, et al. RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Front Neurol. 2024 Nov 27;15:1483876.  Cash A, Kaufman DL. Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial. J Transl Med. 2022 Jun 28;20(1):295.  CDC ME/CFS Basics Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Guest: Alan M. Ehrlich, MD, FAAFP   Music Credit: Matthew Bugos Thoughts? Suggestions? Email us at FranklySpeaking@pri-med.com  

Welcome back. It's finally becoming more accepted to talk about emotional healing in the context of chronic illness—but in this episode, we're going even deeper.In this podcast, I explore why authenticity is not just a nice idea—it's a crucial part of your healing journey. Whether you're navigating ME/CFS, Chronic Lyme, Fibromyalgia, Long COVID, or MCAS, this is your invitation to reconnect with your true self.One of the most powerful—and misunderstood—gateways to that self? Anger.By reintegrating anger, we don't just reclaim boundaries. We unlock creativity, humanness, real sexuality, and a deeper sense of aliveness. In a world where chronic illness is rising, AI is accelerating, and people are becoming more robotic, this kind of inner fire is more needed than ever.

Jack interviews Peter McCluskey - a full time carer and volunteer with EMERGE Australia, a support group for sufferers of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a complex, long-term illness characterised by severe fatigue that is not relieved by rest, joint pain, multiple food allergies, dizziness, sensitivity to light, touch and sound. Peter's wife, Jen, was first diagnosed with ME/CFS in 1993. Peter outlines the struggles his wife has had to manage over the last three decades. The condition is exacerbated by medical health professionals who often believe ME/CFS is a psychosomatic syndrome. Poor and out-dated advice from the Royal Australian College of General Practitioners continues to worsen the symptoms for sufferers of this debilitating illness. The advice remains in place in Australia despite changes to treatment in the UK and the US. Sufferers are often bed bound for much of their lives. They find it extremely difficult to access government support, including disability pensions and the NDIS. 

In this podcast, I explore the full arc of emotional suppression, chronic stress, and how they can manifest as real, persistent symptoms. We'll look at the freeze response, the science behind mind-body patterns, and how labels like “chronic illness” often describe symptoms without addressing their root cause. You'll learn: How emotional suppression begins and why it matters The role of the nervous system in chronic symptoms What the freeze response really is—and how to recognize it Why symptom management often misses the bigger picture How to begin releasing what's been held in the body for years Whether you're navigating chronic fatigue, pain, MCAS, Long COVID or unexplained symptoms, this video offers a new lens—one that's both grounded in research and deeply human. Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

In this insightful episode, Dr. Jill Carnahan sits down with Dr. Amy Proal as they delve into the emerging connections between Bartonella infections and Long Covid, revealing new research that may reshape our understanding of chronic illness. Discover how the MTOR pathway plays a pivotal role in pathogen survival and mitochondrial health, and how drugs like rapamycin could be game-changers in managing these infections. We also explore Mast Cell Activation Syndrome (MCAS) and its links to unresolved infections, offering hope for treatment beyond medication. Key Discussions ①  Bartonella and Long Covid:

Emily Lim Rogers and Rouzbeh Shadpey join the podcast to talk about the history of chronic fatigue under capitalism. We explore the way in which medical knowledge reflects and enacts the need for capitalist society to monitor, measure and discipline workers before situating conditions like ME/CFS within these dynamics.   Emily Lim Rogers is an Assistant Professor of Cultural Anthropology at Duke University, with secondary appointments in Asian American and Diaspora Studies and Gender, Sexuality, and Feminist Studies. She has a book forthcoming with Duke University Press called Sick Work: Exhaustion, Labor, and Invisible Illness Rouzbeh Shadpey is an artist, writer, and musician. Rouzbeh has exhibited and performed at TULCA (Ireland), documenta fifteen (Germany), The Mosaic Rooms (UK), Poetry Project (New York), MUTEK (Montréal), and more. His writing appears in artistic and academic journals, including Parapraxis, Decolonial Hacker, Weird Economies, Syllabus Project, and Momus. His musical practice, under the name GOLPESAR / گلپسر , combines avant-garde electronics, guitar, spoken word, and Iranian sonics. ANTI-SELF-HELPLINE SUBMISSIONS: https://forms.gle/8npHMJmsSXjEdc8s5 JULY 10th panel information: https://www.outsavvy.com/event/28215/thinking-together-for-consolation-and-towards-liberation   SUPPORT: www.buymeacoffee.com/redmedicineSoundtrack by Mark PilkingtonTwitter: @red_medicine__www.redmedicine.substack.com/

Meet Max. Once a research subject at Stanford's ME/CFS clinic - with no real answers. Exhausted. Anxious. Stuck in the push-crash cycle. Doctor after doctor, test after test… but nothing changed. Until he found a different approach. In this powerful episode, Max shares how he finally started getting better - by letting go of perfectionism, learning to slow down, and rebuilding his strength and life from the ground up. If you've been feeling frustrated, dismissed, or stuck in survival mode — Max's story will hit home. And it might just give you hope. Here are 4 ways we can help. 1. Join our free community to meet others, be inspired, and get more recovery info - https://www.facebook.com/groups/cfshealthrecoveryhub 2. Watch the newly released past members "Guest Panel" Workshop where they share their top 5 recovery secrets - https://www.cfshealth.com/guestpanelreplay 3. Get our free most popular recovery trainings:- Find your baseline - Stop pushing and crashing - https://www.cfshealth.com/baseline - The 3 stages of recovery and what to do in each one - https://www.cfshealth.com/the3stages - The "9 do's and don'ts" PDF - to decrease symptoms and improve energy - https://www.Cfshealth.com/pdf 4. Want to help professionally with a step-by-step recovery plan specific to you? Fill out the application form and the team will send you the details - https://www.cfshealth.com/form

Welcome to this gentle inner journey designed to help you reconnect with your body, explore stuck emotions, and tenderly meet the child within. In this guided meditation, you'll be invited to: Settle into a safe and soothing space Connect with your breath and body Explore physical sensations as doorways to emotion Tune into memories, colors, and images tied to your inner child Offer comfort, kindness, and deep presence Breathe through emotions for healing and release Whether you're new to inner child work or revisiting familiar emotional terrain, this practice supports you in grounding, softening, and holding space for the parts of you that may still be waiting to be seen. Alternatively you can follow this guided meditation at releasecfs.com/meditations Join the Release program to speed up your healing from ME/CFS, Chronic Fatigue Syndrome, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Can emotional healing really ease symptoms of chronic fatigue? In this conversation, Peter and I share what actually happens in our coaching sessions with people facing ME/CFS, Long COVID, and deep exhaustion. Many of our clients have spent years feeling dismissed or misunderstood—until something shifts. We talk about the emotional release moments that help clients feel lighter, calmer, clearer—sometimes even symptom-free—within minutes. It's not magic. It's the nervous system finally feeling safe. In this video we share: What coaching for fatigue really looks like ? Why emotions are often the missing piece? Real examples of clients feeling better—fast Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

In his weekly clinical update, Dr. Griffin and Vincent Racaniello discuss in shock how RFK is breaking his promise of not altering vaccine policies by appointing new members of the ACIP, next ACIP meeting on guidelines for the COVID and RSV vaccines, circulation of “human insect viruses” including West Nile virus, and an outbreak of mpox on a cruise ship, and the ongoing measles outbreak before Dr. Griffin reviews recent statistics on RSV, influenza and SARS-CoV-2 infections the Wasterwater Scan dashboard, how to reduce the use of antibiotics for RSV and influenza infections in children, approval of the moderna RSV mRNA vaccine, whether or not the NB.1.8.1 should be included in the fall 2025 vaccines, immunization recommendations for COVID-19 vaccines, where to find PEMGARDA, provides information for Columbia University Irving Medical Center's long COVID treatment center, where to go for answers to your long COVID questions, contacting your federal government representative to stop the assault on science and biomedical research, and a shout out for the special episode of TWiV with David Tuller on long COVID and ME/CFS. Subscribe (free): Apple Podcasts, RSS, email Become a patron of TWiV! Links for this episode RFK Jr. is sabotaging the vaccine program. Here's how to stop him (Washington Post) Innovaciones Alumbra (Alumbra Innovaciones) John T Walton (Wikiepedia) Walmart (Wikipedia) Sam Walton (Wikipedia) Condé Nast (Wikipedia) Christy Walton (Wikipedia) Vaccine Integrity Project ( CIDRAP) CIDRAP launches Vaccine Integrity Project (Twin Cities: University of Minnesota) Next ACIP meeting (CDC: ACIP) June meeting: MEETING OF THE ADVISORY COMMITTEE ON IMMUNIZATION PRACTICES (ACIP)(CDC: ACIP agenda) West Nile Virus and Other Nationally Notifiable Arboviral Diseases — United States, 2023 (CDC: MMWR) Clade II Mpox Infections Among Cruise Ship Passengers and Crew Members — United States, 2024 (CDC: MMWR) H5 bird flu: current situation (CDC: Avian Influenza) Wastewater for measles (WasterWater Scan) Measles cases and outbreaks (CDC Rubeola) Weekly measles and rubella monitoring (Government of Canada) Measles (WHO) Get the FACTS about measles (NY State Department of Health) Measles (CDC Measles (Rubeola)) Measles vaccine (CDC Measles (Rubeola)) Presumptive evidence of measles immunity (CDC) Contraindications and precautions to measles vaccination (CDC) Measles (CDC Measles (Rubeola) Measles vaccine recommendations from NYP (jpg) Adverse events associated with childhood vaccines: evidence bearing on causality (NLM) Measles Vaccination: Know the Facts (ISDA: Infectious Diseases Society of America) Deaths following vaccination: what does the evidence show (Vaccine) Influenza: Waste water scan for 11 pathogens (WastewaterSCan) US respiratory virus activity (CDC Respiratory Illnesses) Weekly surveillance report: clift notes (CDC FluView) Respiratory virus activity levels (CDC Respiratory Illnesses) Weekly surveillance report: clift notes (CDC FluView) Pediatric antibiotic use associated with respiratory syncytial virus and influenza in the United States, 2008-2018 (JID) FDA-CDC-DOD: 2025-2046 influenza vaccine composition (FDA) RSV: Waste water scan for 11 pathogens (WastewaterSCan) US respiratory virus activity (CDC Respiratory Illnesses) RSV-Network (CDC Respiratory Syncytial virus Infection) Novel Drug Approvals for 2025 (FDA) Effectiveness and impact of nirsevimab in Chile during the first season of a national immunisation strategy against RSV (NIRSE-CL) (LANCET: Infectious Diseases) Safety, Tolerability, and Immunogenicity ofmRNA-1345 in Adults at Increased Risk for RSV Disease Aged 18 to 59 Years (CID) Moderna Receives U.S. FDA Approval for RSV Vaccine, mRESVIA, in Adults Aged 18–59 at Increased Risk for RSV Disease (moderna) Waste water scan for 11 pathogens (WastewaterSCan) COVID-19 deaths (CDC) COVID-19 national and regional trends (CDC) Spatiotemporal Association of Coronavirus Disease 2019 Cases and Deaths With Exposure to Wildfire Particulate Matter in 2020 (OFID) COVID-19 variant tracker (CDC) SARS-CoV-2 genomes galore (Nextstrain) Next ACIP meeting (CDC: ACIP) Antigenic and Virological Characteristics of SARS-CoV-2 Variant BA.3.2, XFG, and NB.1.8.1 (biRxiV) Where to get pemgarda (Pemgarda) EUA for the pre-exposure prophylaxis of COVID-19 (INVIYD) Infusion center (Prime Fusions) CDC Quarantine guidelines (CDC) NIH COVID-19 treatment guidelines (NIH) Implementation of an online drug-drug interaction screener for the STRIVE ensitrelvir trial for COVID-19 (OFID) Drug interaction checker (University of Liverpool) Infectious Disease Society guidelines for treatment and management (ID Society) Molnupiravir safety and efficacy (JMV) Convalescent plasma recommendation for immunocompromised (ID Society) What to do when sick with a respiratory virus (CDC) Managing healthcare staffing shortages (CDC) Steroids,dexamethasone at the right time (OFID) Anticoagulation guidelines (hematology.org) Daniel Griffin's evidence based medical practices for long COVID (OFID) Long COVID hotline (Columbia : Columbia University Irving Medical Center) The answers: Long COVID Long COVID and ME/CFS with David Tuller (microbeTV) Reaching out to US house representative Letters read on TWiV 1228 Dr. Griffin's COVID treatment summary (pdf) Timestamps by Jolene Ramsey. Thanks! Intro music is by Ronald Jenkees Send your questions for Dr. Griffin to daniel@microbe.tv Content in this podcast should not be construed as medical advice.

In this very personal and insightful episode of The MindHealth360 Show, Ashok Gupta – internationally renowned health practitioner and creator of the Gupta Program – joins us to discuss how brain retraining can reverse chronic illness and heal the nervous system. Gupta shares the powerful story behind the creation of his program, which he developed after suffering from ME/CFS (Chronic Fatigue Syndrome) as a student at Cambridge University. Through his own neurological research and treatment plans, Gupta achieved full recovery and has since helped thousands of others do the same.  Kirkland Newman shares her own journey through mould toxicity, nervous system dysregulation, and severe neurological symptoms, and how the Gupta Program – recommended to her by Dr. Neil Nathan – was instrumental in her recovery. Together, they explore how chronic stress, trauma, and environmental triggers can lead to maladaptive brain responses that keep the body stuck in illness, and how brain retraining offers a path to healing.  In this compelling episode, Gupta explains the science behind his program, its origins, and how it helps people with conditions such as ME/CFS, CIRS, Multiple Chemical Sensitivity, Fibromyalgia, long COVID, mould illness, anxiety, and other neurological and mental health conditions. He also reflects on the broader implications of neuroplasticity and the mind-body connection in the treatment of chronic disease.  In this episode you will learn about:  How Ashok Gupta developed the Gupta Program after healing from chronic fatigue syndrome during his time at Cambridge University.  The role of brain retraining in reversing neurological and mental health symptoms caused by an inflammatory and immune response driven initially by toxins and pathogens, and leading to a dysregulated nervous system and chronic symptoms Why chronic illness is often rooted in a “trauma loop” within the brain's limbic system.  How the Gupta Program uses neuroplasticity to interrupt maladaptive patterns and rewire the brain toward healing.  Why environmental triggers like mould can activate a dysfunctional threat response in the brain.  How Ashok Gupta's recovery journey led to the creation of a structured, evidence-based program that has helped thousands of people globally.  A firsthand account from host Kirkland Newman on how the Gupta Program helped relieve her symptoms of tremors, anxiety, fasciculations, and more.  The importance of viewing chronic illness through the lens of the brain-body connection, and the role of hope and empowerment in recovery.   

David Tuller returns to TWiV to discuss RFK Jr. and the trashing of American public health, rituximab and ME/CFS, The Sick Times, the Cochrane Mess, a Norwegian Long Covid trial, effort preference and more. Host: Vincent Racaniello Guest: David Tuller Subscribe (free): Apple Podcasts, Google Podcasts, RSS, email Become a patron of TWiV! Links for this episode MicrobeTV Discord Server David Tuller writes at virology blog CFS, a long tangled tale (virology blog) The Sick Times Norwegian Long COVID trial (virology blog) Cochrane mess (virology blog) Timestamps by Jolene. Thanks! Intro music is by Ronald Jenkees Send your virology questions and comments to twiv@microbe.tv Content on TWiV should not be taken as medical advice.

Send us a textAn authority on the autonomic nervous system, Dr. Diana Driscoll, Optometrist, FAAO, is a world-renowned expert on POTS (Postural Orthostatic Tachycardia Syndrome), and other “invisible” illnesses.As an author, speaker, inventor and devoted researcher with five patents to date, she continues to pushforward with dramatic shifts in the evaluation and treatment of these conditions.Dr. Driscoll's personal battle with POTS inspired a decade of self-funded groundbreaking research andinnovative treatment. Now an authority on POTS, IIH, post-COVID Longhaulers, ME/CFS, the vagusnerve, dry eye disease, neurological gastroparesis, and brain health, she offers the compassion of aformer patient, as well as strong science.www.DrDianaDriscoll.comwww.VagusNerveSupport.comwww.POTSCare.comwww.POTSCarePackage.comwww.GeneticDZ.comwww.DryEyeRecovery.comhttps://NeuroTears.com/Use code FA FOR 40% OFF Athletic greens is a non-negotiable part of my daily routine. With 75 absorbable vitamins and minerals in just one scoop a day, I have increased my energy, improved my immune function and so much more. To get your own AG at 20% off go to www.athleticgreens.com/functionallyautoimmune Order now for a free vitamin D3/K2 supplement and 5 free travel packs!Support the show

Text Dr. Lenz any feedback or questions In this episode, we kick off a series on chronic fatigue syndrome (ME/CFS), often overlapping with fibromyalgia. The discussion features Dr. Avira Nath, a leading expert on neurologic infections and intramural clinical director at the NIH. Dr. Nath provides insights from his extensive research on ME/CFS, which includes a comprehensive study involving metabolic, neurologic, and cognitive tests. Delving into the relationships between post-viral syndromes, chronic fatigue, and fibromyalgia, Dr. Nath explains the intensive process of selecting pure patient samples for accurate study results and debunks common misconceptions. The episode also covers the criteria for diagnosing ME/CFS and fibromyalgia, highlighted by personal accounts from those living with these conditions, and explores the controversial topic of whether they represent the same or different illnesses.00:00 Introduction to Chronic Fatigue Syndrome and Fibromyalgia02:18 Meet Dr. Avira Nath: Journey into Chronic Fatigue Syndrome04:38 The NIH Study: Unveiling Chronic Fatigue Syndrome07:14 In-Depth Testing and Patient Selection09:44 Diagnostic Criteria: Chronic Fatigue Syndrome vs. Fibromyalgia13:24 Symptom Comparison and Overlaps25:34 Patient Experiences and Definitions of Fatigue29:00 Conclusion and Next Steps Joy LenzFibromyalgia 101. A list of fibromyalgia podcast episodes that are great if you are new and don't know where to start. Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That's why I created this space: to offer education, validation, and hope. If you've been told fibromyalgia “isn't real” or that it's “all in your head,” know this—I see you. I believe you. You're not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you'll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn't replace personal medical advice.* ...

In this episode, Evan H. Hirsch, MD, explains why many people remain exhausted after treating mold and reveals the missing pieces needed for full recovery from ME/CFS and long COVID. Millions of people with chronic fatigue syndrome, long COVID, and related conditions have addressed mold in their homes and bodies but still struggle with low energy. In this solo episode, Evan shares why mold is only part of the puzzle and why addressing the full Toxic Five is essential for achieving lasting recovery. Drawing on over a decade of clinical experience, Evan outlines how heavy metals, chemicals, molds, infections, and nervous system dysfunction work together to drive fatigue. He explains why testing often misses key root causes and how a comprehensive, step-by-step approach can help you finally heal. What you'll learn in this episode: -. Why many people stay sick even after treating mold -. The five hidden root causes that drive ME/CFS and long COVID -. Why testing alone is not enough to uncover these causes -. The four-step process Evan uses to help patients fully recover . We help you resolve your Long Covid and Chronic Fatigue (ME/CFS) by finding and fixing the REAL root causes that 95% of providers miss. Learn about these causes and how we help people like you, Click Here. Do you have fatigue, brain fog, shortness of breath, muscle pain, or other strange symptoms? You might have Long Covid. Take our free quiz to find out if Long Covid is behind the mystery symptoms you're experiencing, Click Here.   For more information about Evan and his program, Click Here.   Prefer to watch on Youtube? Click Here.   Please note that any information in this episode is for educational purposes only and does not constitute medical advice.

Alicia shares her powerful Long Covid recovery journey—from a highly active farm worker to being couch-bound for over a year, and ultimately back to health through finding safety in her body.• Previously worked 40-hour weeks in manual farm labour and enjoyed running, hiking and yoga before contracting Covid in 2020• Experienced extreme anxiety, heart palpitations, shortness of breath after first infection• Second COVID infection in 2021 led to complete debilitation with 15+ symptoms including severe fatigue and digestive issues• Consulted functional medicine doctors who provided multiple diagnoses and extensive supplement protocols without improvement• Discovered mind-body connection through practitioners like Dan Buglio and Dr. Sarno's work• Recovery involved somatic tracking meditation, self-Reiki, creating feelings of safety, and slowly reintroducing activities• Learned to set boundaries, let go of perfectionism, and practice self-compassion• Gradually reintroduced activities like short walks and yoga sessions, surrounding them with joy• One session with TMS coach Rob Ensor helped eliminate remaining symptoms• Now works as a mind-body coach and has returned part-time to farming• Maintains balance between activity and rest, continuing to practice boundaries and self-careIf you're struggling with Long Covid or ME/CFS, remember that wherever you are in this moment, you are completely lovable right now—your worth isn't tied to your productivity or ability to function.Links: Alisha's website Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

In this episode of the podcast, Anna speaks with her friend and colleague Jack Strömer. Jack has his own walk with chronic fatigue syndrome and a deep practice of Zen meditation. In this conversation, Anna and Jack explore the invitational nature of illness in relation to spiritual maturation. Themes of curiosity, openness, allowing and the intimacy of 'not knowing' all emerge at different points in this rich, thoughtful exploration.Feel free to send a text! We can't respond via text unfortunately, but we can sometimes answer a question on a future podcast episode. We always appreciate feedback. Support the showPlease rate and review this show. It really does help to support it. Please share it widely with those you know who are already struggling with or looking to prevent complex fatigue conditions or who are stressed and facing burnout.To find out about working with Anna 1-1 please visit www.hypnocatalyst.com Anna specialises in profound healing work. Her approach addresses all the layers of human well-being: body, mind, emotions and spirit. She works at all or any of these layers, depending on what her clients want and need. She has a longstanding personal knowledge of chronic fatigue, burnout and high stress environments and has overcome a very long history of MECFS. Having had a successful career as an academic lawyer, Anna retrained in a range of healing modalities, including hypnosis and energy psychology. She is a longstanding spiritual practitioner and increasingly works with people in spiritual awakening processes such as Kundalini. She is a passionate input junkie with a daily commitment to staying on top of the latest health optimisation research.

In this episode of the Fusionary Health Podcast, Dr. Shivani Gupta welcomes Ashok Gupta, an internationally recognized expert in neuroplasticity and brain retraining for chronic illness. Ashok shares his journey of overcoming Chronic Fatigue Syndrome (CFS) while studying at Cambridge University, which led him to develop the Gupta Program—a clinically validated method helping thousands recover from Long COVID, fibromyalgia, ME/CFS, and autoimmune conditions.They explore how chronic illness stems from a maladaptive brain response, why conventional medicine struggles with these conditions, and how brain retraining techniques can reset the nervous system for lasting recovery.What You'll Learn in This Episode:• The Root Cause of Chronic Illness – Why chronic conditions aren't just physical—but neurological.• The “Virus Legacy” Trap – How post-COVID and autoimmune struggles persist—and how to reverse them.• Rewiring Your Brain – The science of neuroplasticity and why brain retraining is the missing link.• The Gupta Empire Analogy – Understanding how your nervous system (army) & immune system (navy) work together—until they turn against you.• Why High Achievers Burn Out – Are you a perfectionist, overachiever, or people-pleaser? This could be why you're stuck in stress mode.• The 7-Step Brain Retraining Process – How to stop the chronic illness cycle and reclaim your health.• Daily Guptor-Size: A Game-Changer – How live, guided healing sessions are helping people recover faster.• The Power of Joy & Healing – Why music, movement, and laughter could be the missing piece in your recovery.Why You Can't Miss This Episode:If you've been searching for answers, this episode is the breakthrough you need. Whether you're struggling with chronic illness, post-viral fatigue, long COVID, fibromyalgia, or relentless stress, you'll walk away with real, actionable tools to rewire your brain and restore balance.

What if the clutter in your home is quietly draining the energy from your marriage?In this week's episode, I sit down with decluttering and mindset coach Kerryn Simmons to talk about how the spaces we live in impact how we feel in our relationships. We explore what “clutter capacity” means, how childhood messages about organizing shape us, and how couples can begin to talk—without blame—about what they want their home to feel like.We also talk about what to do if your spouse isn't ready to have that conversation (yet) and how powerful it can be to take the first steps yourself.Whether you're constantly cleaning up or you've been avoiding the piles altogether, this conversation will help you start creating a home that fuels your connection instead of hiding it.

Let's talk about all thing's food, particularly as it relates to the Pentad community.What kind of barriers exist for people, especially with me/CFS.Why do we often see resistance to changing our diets and eliminating certain foods.How might our nutritional needs be different from the general population.What kind of resources are available to us.How do we make it a sustainable endeavor.What are some emotional or psychological tools we can employ for success.What's the best way to do an Elimination Diet.Why should somebody look to their diet for improvementWhat types of illnesses respond best to dietary restrictions.BIO:Rachel Riggs is the author of an incredible new cookbook called "in Good health' which is California-style light & fresh cooking but the twist here is that she has been suffering with ME/CFS that started in 2003, had had what is an unfortunately typical course which was waxing & waning, requiring 12 years for diagnosis and then a big exacerbation and has now been house-bound x 12 years, in fact, mostly bed-bound. She is a former specialty food shop owner whose life was upended by ME & had to sell her shop. She has worked with Dr Robert Naviaux in San Diego as his study coordinator for the last 9 years so we'll dive into the Cell Danger Response some.Blog:https://www.rachriggs.com/cookbookhttps://rachelriggs.substack.com/https://tinyurl.com/5adxvt6uhttps://www.healthrising.org/blog/2025/01/29/rachel-riggs-allergen-aware-cookbook/

In this powerful episode, we sit down with a TSP alum, Shiloh Gray, who went from barely making it through the day to managing markets, getting married, and living in alignment with their body. Through the lens of their deeply personal story, they share what it's really like to live with a chronic illness—and how learning to pace, regulate their nervous system, and receive support changed everything.Whether you're currently navigating chronic fatigue, burnout, or invisible illness—or you support someone who is—this episode is filled with insights, inspiration, and hard-won wisdom about what true healing looks like.In this episode, we explore:What pacing actually looks like (and why it's misunderstood)The role of nervous system regulation in chronic illness recoveryHow small wins (like sitting upright or walking to the mailbox) become life-changingThe emotional reality of living with invisible illnessThe life milestones they never thought were possible—and how they made them happenWhy community and accountability are essential for long-term healingPerfect for listeners who are:Living with ME/CFS, long COVID, or chronic fatigueExperiencing burnout, adrenal issues, or nervous system dysregulationCurious about pacing, nervous system healing, or TSP (The Support Program)Looking for real, hopeful stories of transformation

Chapters00:00 Understanding ME-CFS: A Complex Illness05:09 The Journey to Diagnosis: Misunderstandings and Challenges10:03 The Role of Caregivers: Support and Understanding14:53 Creating Community and Advocacy from Bed19:53 The Emotional Landscape: Grief, Rage, and Resilience35:41 Creating a Resource for ME-CFS Awareness40:19 The Role of Technology and Social Media43:34 Coping with Severe Illness and Loneliness47:30 Finding Joy in Small Moments55:54 Advocacy and the Fight for Recognition01:00:02 Closing Thoughts and Future Aspirations:From coping with severe illness to finding joy in small victories, this episode is a raw, honest, and ultimately hopeful look at resilience, advocacy, and the urgent need for change. If you've ever felt unseen in your health journey—or want to better understand those who are—this is a conversation you don't want to miss.

What if your body's collapse wasn't burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn't—build their own science. You'll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you've ever wondered why your body feels like it's working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn't stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here. Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network

In this interview, Christie Uipi, LCSW, sits down with world-renowned mindbody physician Dr. Howard Schubiner to explore the limitations of the traditional medical model in treating conditions like POTS, Ehlers-Danlos syndrome, chronic Lyme disease, Epstein-Barr virus (EBV), mast cell activation syndrome (MCAS), ME/CFS, and Long COVID. Together, they discuss how a mindbody approach can bring clarity to these often confusing conditions - and offer a hopeful path forward for those seeking relief.