Podcasts about me cfs

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Best podcasts about me cfs

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Latest podcast episodes about me cfs

The Knew Method by Dr.E
Stuck in Survival Mode? How to Rewire a Brain That Won't Let You Heal

The Knew Method by Dr.E

Play Episode Listen Later Jul 29, 2025 65:02


You treated the mold. You killed the Lyme. You cleaned up your diet. So why are you still sick? In this episode of Medical Disruptors, Dr. E talks with psychiatrist and researcher Dr. Eleanor Stein—who spent nearly three decades navigating ME/CFS, Lyme disease, and chemical sensitivities before uncovering the missing link: the brain. They dive into the Cell Danger Response, a survival mechanism where your mitochondria shut down when the body senses a threat, and don't restart until they feel safe again. It's not enough to remove the trigger. If your nervous system is still sounding the alarm, your symptoms will stay stuck. Dr. Stein explains how chronic pain, fatigue, brain fog, anxiety, and hypersensitivity get wired into the brain—and how neuroplasticity allows them to be unwired. This isn't mindset work. It's hard science. Brain-level healing based on decades of research—and her own lived experience. If you've been told your labs are “normal,” dismissed by specialists, or left wondering what you're missing, this conversation connects the dots. Healing is still possible. Not by doing more, but by helping your body feel safe enough to stop surviving and start healing. Learn more about your ad choices. Visit megaphone.fm/adchoices

Aha! Zehn Minuten Alltags-Wissen
Chronisch erschöpft: Was steckt hinter ME/CFS?

Aha! Zehn Minuten Alltags-Wissen

Play Episode Listen Later Jul 22, 2025 13:48


Im zweiten Teil der Folge geht es um die Frage, was hinter dem Begriff Medical Gaslighting steckt. Ständig erschöpft, kaum Konzentration, das Gefühl, nie richtig zu regenerieren – und das über Monate oder Jahre? ME/CFS oder Chronisches Fatigue-Syndrom, ist eine schwere und oft unterschätzte Erkrankung. In dieser Folge spreche ich mit Prof. Dr. Carmen Scheibenbogen, Leiterin des Arbeitsbereichs Immundefekte und postinfektiöse Erkrankungen an der Charité Berlin, über Ursachen und aktuelle Forschungsansätze. Noch mehr "Aha!"- Folgen gibt es bei WELTplus und Apple Podcasts. Alle zwei Wochen am Montag eine neue Folge. Hier bei WELT hören: https://www.welt.de/podcasts/aha-zehn-minuten-alltags-wissen/plus246844328/Noch-mehr-Alltagswissen-Aha-Bonus-Folgen-fuer-Abonnenten-Podcast.html. Hier findet ihr mehr Infos zu ME/CFS: https://www.tk.de/techniker/krankheit-und-behandlungen/erkrankungen/behandlungen-und-medizin/neurologische-einschraenkungen/me-cfs-mehr-als-nur-erschoepfung-2016418 https://www.mecfs.de Und hier findet ihr weitere Infos zum Phänomen Medical Gaslighting: https://www.apotheken-umschau.de/gesund-bleiben/medical-gaslighting-was-tun-wenn-aerzte-beschwerden-herunterspielen-symptome-nicht-ernst-nehmen-1226907.html Israelische Studie: https://pubmed.ncbi.nlm.nih.gov/39102546/ Bericht des Nationalen Diskriminierungs- und Rassismusmonitors: https://www.dezim-institut.de/publikationen/publikation-detail/rassismus-und-seine-symptome/ "Aha! Zehn Minuten Alltags-Wissen" ist der Wissenschafts-Podcast von WELT. Wir freuen uns über Feedback an wissen@welt.de. Produktion: Serdar Deniz Redaktion: Christine van den Berg Impressum: https://www.welt.de/services/article7893735/Impressum.html Datenschutz: https://www.welt.de/services/article157550705/Datenschutzerklaerung-WELT-DIGITAL.html

The Fatigue Files
'Reframing Healing: Toxicities, the Nervous System, and Bringing Curiosity to Discomfort'—with Dr Evan Hirsch

The Fatigue Files

Play Episode Listen Later Jul 21, 2025 40:25


In this episode, Anna speaks with Dr Evan Hirsch (the Energy MD), who has helped thousands recover from Long Covid and ME/CFS. The conversation raises some fascinating points: how Long Covid can be understood as ME/CFS with a different viral trigger; how the nervous system and mitochondria are not 'dysfunctional' but highly functional, intelligent and communicative. Evan covers the 5 main causes of complex fatigue conditions, and the conversation moves through the difference between nervous system retraining as a 'necessary' and 'sufficient' condition for healing; the difference between recovery and healing and the invitational nature of meeting discomfort with curiosity and openness.This is a rich, thoughtful conversation, full of wisdom and insight. We hope you enjoy it!Feel free to send a text! We can't respond via text unfortunately, but we can sometimes answer a question on a future podcast episode. We always appreciate feedback. Support the showPlease rate and review this show. It really does help to support it. Please share it.To find out about working with Anna, please visit www.hypnocatalyst.com Anna specialises in profound healing work. Her approach addresses all the layers of human well-being: body, mind, emotions and spirit. You can take her uniquely life-changing healing course 'Somatic Liberation: The Deep Intelligence Healing System' by going to her website. The course has been described as: 'This is some kind of magical'. 'It feels as if what came before was mere apprenticeship'. 'Highly engaging. Deeply immersive'. 'This is a course in a class of its own, offering transformation at a deep level'. 'I've never felt more in awe, more empowered and more intrigued'. There is nothing else like it out there for nervous system transformation, brainwork magic, partnering with your own unconscious mind and transforming your relationship with your body, forever.

The Chronic Illness Therapist
Ep 94: At my sickest, I couldn't leave my house

The Chronic Illness Therapist

Play Episode Listen Later Jul 19, 2025 6:29


At my sickest, I couldn't leave the house most days. Over 10 years later, I can have full days out without even thinking about it. This is a small part of my real, unfiltered story of living with chronic illness—the struggles with getting diagnosed, what finally started to help, and the hard truths about healing that no one talks about.In this video, I share:Why I stopped chasing diagnoses after being gaslit by doctorsThe role of pharmaceutical medication in my healing journeyWhat trauma work actually is (and isn't)The truth about neuroplastic pain and medical gaslightingHow I went from housebound to living a full lifeI talk honestly about low-dose naltrexone, ketotifen, functional medicine, and why healing isn't a one-size-fits-all journey. If you're struggling with chronic pain, ME/CFS, fibromyalgia, or just feeling lost in the medical system, this might resonate with you.Chronic Pain & Illness IntensivesIf you're ready to work on changing your relationship with chronic pain while still taking proper medical care of yourself, I offer 1:1 intensives over 2-3 days. Apply for an intensive here: https://forms.gle/3Xv6jFcTroX7fbpEA

Rio Bravo qWeek
Episode 198: Fatigue

Rio Bravo qWeek

Play Episode Listen Later Jul 18, 2025 31:17


Episode 198: Fatigue.  Future doctors Redden and Ibrahim discuss with Dr. Arreaza the different causes of fatigue, including physical and mental illnesses. Dr. Arreaza describes the steps to evaluate fatigue. Some common misconceptions are explained, such as vitamin D deficiency and “chronic Lyme disease”. Written by Michael Ibrahim, MSIV, and Jordan Redden, MSIV, Ross University School of Medicine. Edits and comments by Hector Arreaza, MDYou are listening to Rio Bravo qWeek Podcast, your weekly dose of knowledge brought to you by the Rio Bravo Family Medicine Residency Program from Bakersfield, California, a UCLA-affiliated program sponsored by Clinica Sierra Vista, Let Us Be Your Healthcare Home. This podcast was created for educational purposes only. Visit your primary care provider for additional medical advice.Dr. Arreaza: Today is a great day to talk about fatigue. It is one of the most common and most complex complaints we see in primary care. It involves physical, mental, and emotional health. So today, we're walking through a case, breaking down causes, red flags, and how to work it up without ordering the entire lab catalog.Michael:Case: This is a 34-year-old female who comes in saying, "I've been feeling drained for the past 3 months." She says she's been sleeping 8 hours a night but still wakes up tired. No recent illnesses, no weight loss, fever, or night sweats. She denies depression or anxiety but does report a lot of work stress and taking care of her two little ones at home. She drinks 2 cups of coffee a day, doesn't drink alcohol, and doesn't use drugs. No medications, just a multivitamin. Regular menstrual cycles—but she's noticed they've been heavier recently.Jordan:Fatigue is a persistent sense of exhaustion that isn't relieved by rest. It's different from sleepiness or muscle weakness.Classification based on timeline:    •   Acute fatigue: less than 1 month    •   Subacute: 1 to 6 months    •   Chronic: more than 6 monthsThis patient's case is subacute—going on 3 months now.Dr. Arreaza:And we can think about fatigue in types:    •   Physical fatigue: like muscle tiredness after activity    •   Mental fatigue: trouble concentrating or thinking clearly (physical + mental when you are a medical student or resident)    •    Pathological fatigue: which isn't proportional to effort and doesn't get better with restAnd of course, there's chronic fatigue syndrome, also called myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which is a diagnosis of exclusion after 6 months of disabling fatigue with other symptoms.Michael:The differential is massive. So, we can also group it by systems.Jordan:Let's run through the big ones.Endocrine / Metabolic Causes    • Hypothyroidism: A classic cause of fatigue. Often associated with cold intolerance, weight gain, dry skin, and constipation. May be subtle and underdiagnosed, especially in women.    • Diabetes Mellitus: Both hyperglycemia and hypoglycemia can cause fatigue. Look for polyuria, polydipsia, weight loss, or blurry vision in undiagnosed diabetes.    • Adrenal Insufficiency: Think of this when fatigue is paired with hypotension, weight loss, salt craving, or hyperpigmentation. Can be primary (Addison's) or secondary (e.g., due to long-term steroid use).Michael: Hematologic Causes    • Anemia (especially iron deficiency): Very common, especially in menstruating women. Look for fatigue with pallor, shortness of breath on exertion, and sometimes pica (craving non-food items).     • Vitamin B12 or Folate Deficiency: B12 deficiency may present with fatigue plus neurologic symptoms like numbness, tingling, or gait issues. Folate deficiency tends to present with megaloblastic anemia and fatigue.    • Anemia of Chronic Disease: Seen in patients with chronic inflammatory conditions like RA, infections, or CKD. Typically mild, normocytic, and improves when the underlying disease is treated.Michael: Psychiatric Causes    • Depression: A major driver of fatigue, often underreported. May include anhedonia, sleep disturbance, appetite changes, or guilt. Sometimes presents with only somatic complaints.    • Anxiety Disorders: Mental fatigue, poor sleep quality, and hypervigilance can leave patients feeling constantly drained.    • Burnout Syndrome: Especially common in caregivers, healthcare workers, and educators. Emotional exhaustion, depersonalization, and reduced personal accomplishment are key features.Jordan: Infectious Causes    • Epstein-Barr Virus (EBV):Mononucleosis is a well-known cause of fatigue, sometimes lasting weeks. May also have sore throat, lymphadenopathy, and splenomegaly.    • HIV:Consider it in high-risk individuals. Fatigue can be an early sign, along with weight loss, recurrent infections, or night sweats.    • Hepatitis (B or C):Can present with chronic fatigue, especially if liver enzymes are elevated. Screen at-risk individuals.    • Post-viral Syndromes / Long COVID:Fatigue that lingers for weeks or months after viral infection. Often, it includes brain fog, muscle aches, and post-exertional malaise.Important: Chronic Lyme disease is a controversial term without a consistent clinical definition and is often used to describe patients with persistent, nonspecific symptoms not supported by objective evidence of Lyme infection. Leading medical organizations reject the term and instead recognize "post-treatment Lyme disease syndrome" (PTLDS) for persistent symptoms following confirmed, treated Lyme disease, emphasizing that prolonged antibiotic therapy is not effective. Research shows no benefit—and potential harm—from extended antibiotic use, and patients with unexplained chronic symptoms should be thoroughly evaluated for other possible diagnoses.Michael: Cardiopulmonary Causes    •   Congestive Heart Failure (CHF): Fatigue from poor perfusion and low cardiac output. Often comes with dyspnea on exertion, edema, and orthopnea.    •   Chronic Obstructive Pulmonary Disease (COPD): Look for a smoking history, chronic cough, and fatigue from hypoxia or the work of breathing.    •   Obstructive Sleep Apnea (OSA): Daytime fatigue despite adequate hours of sleep. Patients may snore, gasp, or report morning headaches. High suspicion in obese or hypertensive patients.Jordan:Autoimmune / Inflammatory Causes    •   Systemic Lupus Erythematosus (SLE): Fatigue is often an early symptom. May also see rash, arthritis, photosensitivity, or renal involvement.    •   Rheumatoid Arthritis (RA): Fatigue from systemic inflammation. Morning stiffness, joint pain, and elevated inflammatory markers point to RA.    •   Fibromyalgia: A chronic pain syndrome with widespread tenderness, fatigue, nonrestorative sleep, and sometimes cognitive complaints ("fibro fog").Cancer / Malignancy    •   Leukemia, lymphoma, or solid tumors: Fatigue can be the first symptom, often accompanied by weight loss, night sweats, or unexplained fevers. Consider when no other cause is evident.Michael:Medications:Common culprits include:    ◦   Beta-blockers: Can slow heart rate too much.    ◦   Antihistamines: Sedating H1 blockers like diphenhydramine.    ◦   Sedatives or sleep aids: Can cause grogginess and daytime sedation.    •   Substance Withdrawal: Fatigue can be seen in withdrawal from alcohol, opioids, or stimulants. Caffeine withdrawal, though mild, can also contribute.Dr. Arreaza:Whenever we evaluate fatigue, we need to keep an eye out for red flags. These should raise suspicion for something more serious:    •   Unintentional weight loss    •   Night sweats    •   Persistent fever    •   Neurologic symptoms    •   Lymphadenopathy    •   Jaundice    •   Palpitations or chest painThis patient doesn't have these—but that doesn't mean we stop here.Dr. Arreaza:Those are a lot of causes, we can evaluate fatigue following 7 steps:Characterize the fatigue.Look for organic illness.Evaluate medications and substances.Perform psychiatric screening.Ask questions about quantity and quality of sleep.Physical examination.Undertake investigations.So, students, do we send the whole lab panel?Michael:Not necessarily. Labs should be guided by history and physical. But here's a good initial panel:    •   CBC: To check for anemia or infection    • TSH: Screen for hypothyroidism    • CMP: Look at electrolytes, kidney, and liver function    • Ferritin and iron studies    • B12, folate    • ESR/CRP for inflammation (not specific)    • HbA1c if diabetes is on the radarJordan:And if needed, consider:    • HIV, EBV, hepatitis panel    • ANA, RF    • Cortisol or ACTH stimulation testImaging? Now that's rare—unless there are specific signs. Like chest X-ray for possible cancer or TB, or sleep study if you suspect OSA.Dr. Arreaza:Unaddressed fatigue isn't just inconvenient. It can impact on quality of life, affect job performance, lead to mood disorders, delay diagnosis of serious illness, increase risk of accidents—especially driving. So, don't ignore your patients with fatigue!Jordan:And some people—like women, caregivers, or shift workers—are especially at risk.Michael:The cornerstone of treatment is addressing the underlying cause.Jordan:If it's iron-deficiency anemia—treat it. If it's depression—get mental health involved. But there's also: Lifestyle Support: Better sleep hygiene, light physical activity, mindfulness or CBT for stress, balanced nutrition—especially iron and protein, limit caffeine and alcoholDr. Arreaza:Sometimes medications help—but rarely. And for chronic fatigue syndrome, the current best strategies are graded exercise therapy and CBT, along with managing specific symptoms. Beta-alanine has potential to modestly improve muscular endurance and reduce fatigue in older adults, but more high-quality research is needed.SSRI: fluoxetine and sertraline. Iron supplements: Even without anemia, but low ferritin [Anecdote about low ferritin patient]Jordan:This case reminds us to take fatigue seriously. In her case, it may be multifactorial—work stress, caregiving burden, and possibly iron-deficiency anemia. So, how would we wrap up this conversation, Michael?Michael:We don't need to order everything under the sun. A focused history and exam, targeted labs, and being alert to red flags can guide us.Jordan:And don't forget the basics—sleep, stress, and nutrition. These are just as powerful as any prescription.Dr. Arreaza:We hope today's episode on fatigue has given you a clear framework and some practical tips. If you enjoyed this episode, share it and subscribe for more evidence-based medicine!Jordan:Take care—and get some rest~___________________________Even without trying, every night you go to bed a little wiser. Thanks for listening to Rio Bravo qWeek Podcast. We want to hear from you, send us an email at RioBravoqWeek@clinicasierravista.org, or visit our website riobravofmrp.org/qweek. See you next week! _____________________References:DynaMed. (2023). Fatigue in adults. EBSCO Information Services. https://www.dynamed.com (Access requires subscription)Jason, L. A., Sunnquist, M., Brown, A., Newton, J. L., Strand, E. B., & Vernon, S. D. (2015). Chronic fatigue syndrome versus systemic exertion intolerance disease. Fatigue: Biomedicine, Health & Behavior, 3(3), 127–141. https://doi.org/10.1080/21641846.2015.1051291Kroenke, K., & Mangelsdorff, A. D. (1989). Common symptoms in ambulatory care: Incidence, evaluation, therapy, and outcome. The American Journal of Medicine, 86(3), 262–266. https://doi.org/10.1016/0002-9343(89)90293-3National Institute for Health and Care Excellence. (2021). Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: Diagnosis and management (NICE Guideline No. NG206). https://www.nice.org.uk/guidance/ng206UpToDate. (n.d.). Approach to the adult patient with fatigue. Wolters Kluwer. https://www.uptodate.com (Access requires subscription)Theme song, Works All The Time by Dominik Schwarzer, YouTube ID: CUBDNERZU8HXUHBS, purchased from https://www.premiumbeat.com/.

Brain & Life
Creating an Advocacy Movement with #NotJustFatigue's Elizabeth Ansell: Part Two

Brain & Life

Play Episode Listen Later Jul 17, 2025 31:30


In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares how raising awareness, and furthering research really improves the everyday lives of people living with ME/CFS. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin discusses what's next in ME/CFS research and what the future could hold.   Additional Resources #NotJustFatigue How to Fight Fatigue Understanding the Impact of Invisible Illnesses on Daily Life How Families Are Leading the Charge in Rare Disease Advocacy   Other Brain & Life Podcast Episodes on Similar Topics Rare Thoughts on a Rarer Neurologic Condition Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org   Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Ticktective
Dr. Joe Burrascano: A Masterclass on Tick-Borne Illness

Ticktective

Play Episode Listen Later Jul 16, 2025 73:56


Dr. Joseph J. Burrascano Jr., a pioneer in the field of Lyme, began his practice in East Hampton, NY, in 1981, where he identified and detailed the clinical aspects of Lyme in a high-prevalence area. Renowned for his groundbreaking diagnostic and treatment guidelines since 1984, he has advised the CDC, NIH, and U.S. Senate, authored extensive publications, and is a founding member of ILADS, continuing to educate globally.

Evolving with Nita Jain: Health | Science | Self-Improvement

Demo of Spooniverse Directory, a resource platform for  patients and caregivers dealing with complex chronic illnesses like Long Covid, ME/CFS, POTS/dysautonomia, EDS, MCAS, and more.Explore here: https://www.spooniverse.directory/Watch on YouTube: https://youtu.be/VtKA8YTdZMY Get full access to Evolving with Nita Jain at www.nitajain.com/subscribe

Brain & Life
Creating an Advocacy Movement with #NotJustFatigue's Elizabeth Ansell: Part One

Brain & Life

Play Episode Listen Later Jul 10, 2025 43:50


In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares her diagnosis journey and explains why education around ME/CFS is so vital. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin explains what ME/CFS is and how it differs from other conditions with similar symptoms, like long COVID. Make sure to tune in next week for part two to hear about what's next in ME/CFS research and the importance of care partners.   Additional Resources #NotJustFatigue How to Fight Fatigue Understanding the Impact of Invisible Illnesses on Daily Life How Families Are Leading the Charge in Rare Disease Advocacy   Other Brain & Life Podcast Episodes on Similar Topics Rare Thoughts on a Rarer Neurologic Condition Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation   We want to hear from you! Have a question or want to hear a topic featured on the Brain & Life Podcast? Record a voicemail at 612-928-6206 Email us at BLpodcast@brainandlife.org   Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Healing Differently
The Spiritual War Behind Chronic Illness: The Darkness Doesn't Want You To Heal - My Awakening

Healing Differently

Play Episode Listen Later Jul 10, 2025 38:08


In this deeply personal episode, I share the spiritual journey behind the Release program and my CFS healing journey. From my encounters with truth and non-duality to the moment I was asked to create a recovery program, this is the story of how healing became more than just emotional. It became sacred.I talk about how I met Valentina, the role my angel played in guiding me to her, and the unseen forces that try to keep us from healing. This is not just about symptoms or techniques. It is about the spiritual battle between light and shadow that many of us feel but rarely speak about.If you've ever sensed that your healing journey is part of something bigger, this episode is for you.Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Fix Your Fatigue
Hypnotherapy, Somatics, and True Healing in ME/CFS/LC with Anna Grear, LLB

Fix Your Fatigue

Play Episode Listen Later Jul 9, 2025 43:31


In this episode, Anna Grear, LLB, joins Evan H. Hirsch, MD, to explore how somatic healing and hypnotherapy can unlock recovery from chronic fatigue and long COVID.   Drawing from her 32-year journey with ME/CFS and her background as a law professor turned hypno-healer, Anna Grear, LLB, shares a powerful mind-body approach to healing through self-awareness, nervous system balance, and unconscious transformation. Formerly Professor of Law and Theory at Cardiff University in the UK and currently Adjunct Professor of Law at the University of Waikato in New Zealand, Anna now helps people with long-term complex fatigue conditions and spiritual emergence. She combines a deep passion for the intelligence of the body with advanced tools in mind-shifting and hypnotic influence. Her work focuses on health optimization, radical human potential, and awakening the healing wisdom within.   What you'll learn in this episode: -. How somatics and hypnosis influence the body's healing capacity -. Why chronic fatigue is often a mismatch between ancient biology and modern stress -. Techniques to regulate the nervous system and access deep calm -. The role of perception, safety, and neuroplasticity in recovery   Learn more about Anna's work at: http://www.hypnocatalyst.com Listen to her audio gift here: https://www.buzzsprout.com/2113402/15218459   .   We help you resolve your Long Covid and Chronic Fatigue (ME/CFS) by finding and fixing the REAL root causes that 95% of providers miss. Learn about these causes and how we help people like you, Click Here. Do you have fatigue, brain fog, shortness of breath, muscle pain, or other strange symptoms? You might have Long Covid. Take our free quiz to find out if Long Covid is behind the mystery symptoms you're experiencing, Click Here.   For more information about Evan and his program, Click Here.   Prefer to watch on Youtube? Click Here.   Please note that any information in this episode is for educational purposes only and does not constitute medical advice.

Frankly Speaking About Family Medicine
Finding Energy in the Path Forward: A New Lead in Chronic Fatigue Treatment - Frankly Speaking Ep 440

Frankly Speaking About Family Medicine

Play Episode Listen Later Jul 7, 2025 13:59


Credits: 0.25 AMA PRA Category 1 Credit™   CME/CE Information and Claim Credit: https://www.pri-med.com/online-education/podcast/frankly-speaking-cme-440 Overview: Explore current and emerging treatments for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating condition with no known cause or cure. Learn how oxaloacetate may offer new hope for patients struggling with ME/CFS, and gain practical guidance to support informed, evidence-based conversations with your patients. Episode resource links: Cash A, Vernon SD, Rond C, Bateman L, et al. RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Front Neurol. 2024 Nov 27;15:1483876.  Cash A, Kaufman DL. Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial. J Transl Med. 2022 Jun 28;20(1):295.  CDC ME/CFS Basics Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Guest: Alan M. Ehrlich, MD, FAAFP   Music Credit: Matthew Bugos Thoughts? Suggestions? Email us at FranklySpeaking@pri-med.com  

Pri-Med Podcasts
Finding Energy in the Path Forward: A New Lead in Chronic Fatigue Treatment - Frankly Speaking Ep 440

Pri-Med Podcasts

Play Episode Listen Later Jul 7, 2025 13:59


Credits: 0.25 AMA PRA Category 1 Credit™   CME/CE Information and Claim Credit: https://www.pri-med.com/online-education/podcast/frankly-speaking-cme-440 Overview: Explore current and emerging treatments for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a debilitating condition with no known cause or cure. Learn how oxaloacetate may offer new hope for patients struggling with ME/CFS, and gain practical guidance to support informed, evidence-based conversations with your patients. Episode resource links: Cash A, Vernon SD, Rond C, Bateman L, et al. RESTORE ME: a RCT of oxaloacetate for improving fatigue in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Front Neurol. 2024 Nov 27;15:1483876.  Cash A, Kaufman DL. Oxaloacetate Treatment For Mental And Physical Fatigue In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long-COVID fatigue patients: a non-randomized controlled clinical trial. J Transl Med. 2022 Jun 28;20(1):295.  CDC ME/CFS Basics Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Guest: Alan M. Ehrlich, MD, FAAFP   Music Credit: Matthew Bugos Thoughts? Suggestions? Email us at FranklySpeaking@pri-med.com  

Healing Differently
You Can't Be Authentic Without This Emotion - Reclaim Your Fire and Heal!

Healing Differently

Play Episode Listen Later Jul 7, 2025 26:55


Welcome back. It's finally becoming more accepted to talk about emotional healing in the context of chronic illness—but in this episode, we're going even deeper.In this podcast, I explore why authenticity is not just a nice idea—it's a crucial part of your healing journey. Whether you're navigating ME/CFS, Chronic Lyme, Fibromyalgia, Long COVID, or MCAS, this is your invitation to reconnect with your true self.One of the most powerful—and misunderstood—gateways to that self? Anger.By reintegrating anger, we don't just reclaim boundaries. We unlock creativity, humanness, real sexuality, and a deeper sense of aliveness. In a world where chronic illness is rising, AI is accelerating, and people are becoming more robotic, this kind of inner fire is more needed than ever.

The Conditional Release Program
Episode 187 - The Pain of ME/CFS

The Conditional Release Program

Play Episode Listen Later Jul 3, 2025 103:05


Jack interviews Peter McCluskey - a full time carer and volunteer with EMERGE Australia, a support group for sufferers of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a complex, long-term illness characterised by severe fatigue that is not relieved by rest, joint pain, multiple food allergies, dizziness, sensitivity to light, touch and sound. Peter's wife, Jen, was first diagnosed with ME/CFS in 1993. Peter outlines the struggles his wife has had to manage over the last three decades. The condition is exacerbated by medical health professionals who often believe ME/CFS is a psychosomatic syndrome. Poor and out-dated advice from the Royal Australian College of General Practitioners continues to worsen the symptoms for sufferers of this debilitating illness. The advice remains in place in Australia despite changes to treatment in the UK and the US. Sufferers are often bed bound for much of their lives. They find it extremely difficult to access government support, including disability pensions and the NDIS. 

Healing Differently
The Body Keeps the Score… But What If You Could Release It?

Healing Differently

Play Episode Listen Later Jul 3, 2025 18:23


In this podcast, I explore the full arc of emotional suppression, chronic stress, and how they can manifest as real, persistent symptoms. We'll look at the freeze response, the science behind mind-body patterns, and how labels like “chronic illness” often describe symptoms without addressing their root cause. You'll learn: How emotional suppression begins and why it matters The role of the nervous system in chronic symptoms What the freeze response really is—and how to recognize it Why symptom management often misses the bigger picture How to begin releasing what's been held in the body for years Whether you're navigating chronic fatigue, pain, MCAS, Long COVID or unexplained symptoms, this video offers a new lens—one that's both grounded in research and deeply human. Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Weiter gedacht - der Podcast der WZ
#84 ME/CFS: Wenn jeder Schritt einer zu viel ist

Weiter gedacht - der Podcast der WZ

Play Episode Listen Later Jul 3, 2025 30:54


Acht Jahre lang war Astrid Hainzl ständig krank, bis sie 2018 endlich eine Diagnose bekam: Die 34-Jährige leidet an ME/CFS (Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom). Die Ursache dafür ist meist ein Infekt – die  Auswirkungen sind vielfältig und reichen von Schlafstörungen über verschiedenste, oft diffuse Schmerzen und Husten bis hin zu kognitiven Beeinträchtigungen. Bis zu 200 Symptome treten in Folge von ME/CFS auf. Obwohl die WHO diese Krankheit bereits 1969 offiziell anerkannt hat, werden Betroffene immer noch von manchen Ärzt:innen nicht ernst genommen.

Resiliency Radio
265: Resiliency Radio with Dr. Jill: Pathogen Persistence & Immune Dysfunction in Long-COVID

Resiliency Radio

Play Episode Listen Later Jul 2, 2025 54:20


In this insightful episode, Dr. Jill Carnahan sits down with Dr. Amy Proal as they delve into the emerging connections between Bartonella infections and Long Covid, revealing new research that may reshape our understanding of chronic illness. Discover how the MTOR pathway plays a pivotal role in pathogen survival and mitochondrial health, and how drugs like rapamycin could be game-changers in managing these infections. We also explore Mast Cell Activation Syndrome (MCAS) and its links to unresolved infections, offering hope for treatment beyond medication. Key Discussions ①  Bartonella and Long Covid:

Red Medicine
Chronic Fatigue and the Politics of Diagnosis w/ Emily Lim Rogers and Rouzbeh Shadpey

Red Medicine

Play Episode Listen Later Jul 2, 2025 76:56


Emily Lim Rogers and Rouzbeh Shadpey join the podcast to talk about the history of chronic fatigue under capitalism. We explore the way in which medical knowledge reflects and enacts the need for capitalist society to monitor, measure and discipline workers before situating conditions like ME/CFS within these dynamics.   Emily Lim Rogers is an Assistant Professor of Cultural Anthropology at Duke University, with secondary appointments in Asian American and Diaspora Studies and Gender, Sexuality, and Feminist Studies. She has a book forthcoming with Duke University Press called Sick Work: Exhaustion, Labor, and Invisible Illness Rouzbeh Shadpey is an artist, writer, and musician. Rouzbeh has exhibited and performed at TULCA (Ireland), documenta fifteen (Germany), The Mosaic Rooms (UK), Poetry Project (New York), MUTEK (Montréal), and more. His writing appears in artistic and academic journals, including Parapraxis, Decolonial Hacker, Weird Economies, Syllabus Project, and Momus. His musical practice, under the name GOLPESAR / گلپسر , combines avant-garde electronics, guitar, spoken word, and Iranian sonics. ANTI-SELF-HELPLINE SUBMISSIONS: https://forms.gle/8npHMJmsSXjEdc8s5 JULY 10th panel information: https://www.outsavvy.com/event/28215/thinking-together-for-consolation-and-towards-liberation   SUPPORT: www.buymeacoffee.com/redmedicineSoundtrack by Mark PilkingtonTwitter: @red_medicine__www.redmedicine.substack.com/

The Chronic Illness Recovery Podcast
Episode 147 : My Doctor Said ‘Only 5% Recover'… I Proved Them Wrong: Max's CFS Recovery Story

The Chronic Illness Recovery Podcast

Play Episode Listen Later Jun 30, 2025 44:58


Meet Max. Once a research subject at Stanford's ME/CFS clinic - with no real answers. Exhausted. Anxious. Stuck in the push-crash cycle. Doctor after doctor, test after test… but nothing changed. Until he found a different approach. In this powerful episode, Max shares how he finally started getting better - by letting go of perfectionism, learning to slow down, and rebuilding his strength and life from the ground up. If you've been feeling frustrated, dismissed, or stuck in survival mode — Max's story will hit home. And it might just give you hope. Here are 4 ways we can help. 1. Join our free community to meet others, be inspired, and get more recovery info - https://www.facebook.com/groups/cfshealthrecoveryhub 2. Watch the newly released past members "Guest Panel" Workshop where they share their top 5 recovery secrets - https://www.cfshealth.com/guestpanelreplay 3. Get our free most popular recovery trainings:- Find your baseline - Stop pushing and crashing - https://www.cfshealth.com/baseline - The 3 stages of recovery and what to do in each one - https://www.cfshealth.com/the3stages - The "9 do's and don'ts" PDF - to decrease symptoms and improve energy - https://www.Cfshealth.com/pdf 4. Want to help professionally with a step-by-step recovery plan specific to you? Fill out the application form and the team will send you the details - https://www.cfshealth.com/form

Healing Differently
Healing The Inner Child: Emotional Release Meditation For Nervous System Regulation

Healing Differently

Play Episode Listen Later Jun 28, 2025 16:21


Welcome to this gentle inner journey designed to help you reconnect with your body, explore stuck emotions, and tenderly meet the child within. In this guided meditation, you'll be invited to: Settle into a safe and soothing space Connect with your breath and body Explore physical sensations as doorways to emotion Tune into memories, colors, and images tied to your inner child Offer comfort, kindness, and deep presence Breathe through emotions for healing and release Whether you're new to inner child work or revisiting familiar emotional terrain, this practice supports you in grounding, softening, and holding space for the parts of you that may still be waiting to be seen. Alternatively you can follow this guided meditation at releasecfs.com/meditations Join the Release program to speed up your healing from ME/CFS, Chronic Fatigue Syndrome, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Healing Differently
Coaching Can Help Your Chronic Fatigue Immediately W/ CFS Coach Peter

Healing Differently

Play Episode Listen Later Jun 26, 2025 33:44


Can emotional healing really ease symptoms of chronic fatigue? In this conversation, Peter and I share what actually happens in our coaching sessions with people facing ME/CFS, Long COVID, and deep exhaustion. Many of our clients have spent years feeling dismissed or misunderstood—until something shifts. We talk about the emotional release moments that help clients feel lighter, calmer, clearer—sometimes even symptom-free—within minutes. It's not magic. It's the nervous system finally feeling safe. In this video we share: What coaching for fatigue really looks like ? Why emotions are often the missing piece? Real examples of clients feeling better—fast Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

This Week in Virology
TWiV 1228: Clinical update with Dr. Daniel Griffin

This Week in Virology

Play Episode Listen Later Jun 21, 2025 44:57


In his weekly clinical update, Dr. Griffin and Vincent Racaniello discuss in shock how RFK is breaking his promise of not altering vaccine policies by appointing new members of the ACIP, next ACIP meeting on guidelines for the COVID and RSV vaccines, circulation of “human insect viruses” including West Nile virus, and an outbreak of mpox on a cruise ship, and the ongoing measles outbreak before Dr. Griffin reviews recent statistics on RSV, influenza and SARS-CoV-2 infections the Wasterwater Scan dashboard, how to reduce the use of antibiotics for RSV and influenza infections in children, approval of the moderna RSV mRNA vaccine, whether or not the NB.1.8.1 should be included in the fall 2025 vaccines, immunization recommendations for COVID-19 vaccines, where to find PEMGARDA, provides information for Columbia University Irving Medical Center's long COVID treatment center, where to go for answers to your long COVID questions, contacting your federal government representative to stop the assault on science and biomedical research, and a shout out for the special episode of TWiV with David Tuller on long COVID and ME/CFS. Subscribe (free): Apple Podcasts, RSS, email Become a patron of TWiV! Links for this episode RFK Jr. is sabotaging the vaccine program. Here's how to stop him (Washington Post) Innovaciones Alumbra (Alumbra Innovaciones) John T Walton (Wikiepedia) Walmart (Wikipedia) Sam Walton (Wikipedia) Condé Nast (Wikipedia) Christy Walton (Wikipedia) Vaccine Integrity Project ( CIDRAP) CIDRAP launches Vaccine Integrity Project (Twin Cities: University of Minnesota) Next ACIP meeting (CDC: ACIP) June meeting: MEETING OF THE ADVISORY COMMITTEE ON IMMUNIZATION PRACTICES (ACIP)(CDC: ACIP agenda) West Nile Virus and Other Nationally Notifiable Arboviral Diseases — United States, 2023 (CDC: MMWR) Clade II Mpox Infections Among Cruise Ship Passengers and Crew Members — United States, 2024 (CDC: MMWR) H5 bird flu: current situation (CDC: Avian Influenza) Wastewater for measles (WasterWater Scan) Measles cases and outbreaks (CDC Rubeola) Weekly measles and rubella monitoring (Government of Canada) Measles (WHO) Get the FACTS about measles (NY State Department of Health) Measles (CDC Measles (Rubeola)) Measles vaccine (CDC Measles (Rubeola)) Presumptive evidence of measles immunity (CDC) Contraindications and precautions to measles vaccination (CDC) Measles (CDC Measles (Rubeola) Measles vaccine recommendations from NYP (jpg) Adverse events associated with childhood vaccines: evidence bearing on causality (NLM) Measles Vaccination: Know the Facts (ISDA: Infectious Diseases Society of America) Deaths following vaccination: what does the evidence show (Vaccine) Influenza: Waste water scan for 11 pathogens (WastewaterSCan) US respiratory virus activity (CDC Respiratory Illnesses) Weekly surveillance report: clift notes (CDC FluView) Respiratory virus activity levels (CDC Respiratory Illnesses) Weekly surveillance report: clift notes (CDC FluView) Pediatric antibiotic use associated with respiratory syncytial virus and influenza in the United States, 2008-2018 (JID) FDA-CDC-DOD: 2025-2046 influenza vaccine composition (FDA) RSV: Waste water scan for 11 pathogens (WastewaterSCan) US respiratory virus activity (CDC Respiratory Illnesses) RSV-Network (CDC Respiratory Syncytial virus Infection) Novel Drug Approvals for 2025 (FDA) Effectiveness and impact of nirsevimab in Chile during the first season of a national immunisation strategy against RSV (NIRSE-CL) (LANCET: Infectious Diseases) Safety, Tolerability, and Immunogenicity ofmRNA-1345 in Adults at Increased Risk for RSV Disease Aged 18 to 59 Years (CID) Moderna Receives U.S. FDA Approval for RSV Vaccine, mRESVIA, in Adults Aged 18–59 at Increased Risk for RSV Disease (moderna) Waste water scan for 11 pathogens (WastewaterSCan) COVID-19 deaths (CDC) COVID-19 national and regional trends (CDC) Spatiotemporal Association of Coronavirus Disease 2019 Cases and Deaths With Exposure to Wildfire Particulate Matter in 2020 (OFID) COVID-19 variant tracker (CDC) SARS-CoV-2 genomes galore (Nextstrain) Next ACIP meeting (CDC: ACIP) Antigenic and Virological Characteristics of SARS-CoV-2 Variant BA.3.2, XFG, and NB.1.8.1 (biRxiV) Where to get pemgarda (Pemgarda) EUA for the pre-exposure prophylaxis of COVID-19 (INVIYD) Infusion center (Prime Fusions) CDC Quarantine guidelines (CDC) NIH COVID-19 treatment guidelines (NIH) Implementation of an online drug-drug interaction screener for the STRIVE ensitrelvir trial for COVID-19 (OFID) Drug interaction checker (University of Liverpool) Infectious Disease Society guidelines for treatment and management (ID Society) Molnupiravir safety and efficacy (JMV) Convalescent plasma recommendation for immunocompromised (ID Society) What to do when sick with a respiratory virus (CDC) Managing healthcare staffing shortages (CDC) Steroids,dexamethasone at the right time (OFID) Anticoagulation guidelines (hematology.org) Daniel Griffin's evidence based medical practices for long COVID (OFID) Long COVID hotline (Columbia : Columbia University Irving Medical Center) The answers: Long COVID Long COVID and ME/CFS with David Tuller (microbeTV) Reaching out to US house representative Letters read on TWiV 1228 Dr. Griffin's COVID treatment summary (pdf) Timestamps by Jolene Ramsey. Thanks! Intro music is by Ronald Jenkees Send your questions for Dr. Griffin to daniel@microbe.tv Content in this podcast should not be construed as medical advice.

Healing Differently
Daphne's Real Healing Journey Of Chronic Fatigue Syndrome

Healing Differently

Play Episode Listen Later Jun 20, 2025 36:36


In this heartfelt recovery interview, Daphne shares her powerful healing journey from ME/CFS (Chronic Fatigue Syndrome)—from being bedridden to reclaiming her life and reconnecting with her true self. Together, we dive into the emotional and practical aspects of recovery, touching on: • Navigating societal expectations while living with a chronic condition • The pitfalls and humor of brain retraining and pacing • How symptom management and emotional healing intersect • The transformative power of presence, authenticity, and self-connection We also reflect on Daphne's personal turning points—like the moment she joined the Release Program, her gentle but steady progress, and the trip to Thailand that reawakened her spirit. Her insights are raw, real, and deeply relatable for anyone walking their own healing path. Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

The MindHealth360 Show
78: Ashok Gupta: Retraining the Brain to improve Mental Health and Chronic Illness

The MindHealth360 Show

Play Episode Listen Later Jun 19, 2025 81:48


In this very personal and insightful episode of The MindHealth360 Show, Ashok Gupta – internationally renowned health practitioner and creator of the Gupta Program – joins us to discuss how brain retraining can reverse chronic illness and heal the nervous system. Gupta shares the powerful story behind the creation of his program, which he developed after suffering from ME/CFS (Chronic Fatigue Syndrome) as a student at Cambridge University. Through his own neurological research and treatment plans, Gupta achieved full recovery and has since helped thousands of others do the same.  Kirkland Newman shares her own journey through mould toxicity, nervous system dysregulation, and severe neurological symptoms, and how the Gupta Program – recommended to her by Dr. Neil Nathan – was instrumental in her recovery. Together, they explore how chronic stress, trauma, and environmental triggers can lead to maladaptive brain responses that keep the body stuck in illness, and how brain retraining offers a path to healing.  In this compelling episode, Gupta explains the science behind his program, its origins, and how it helps people with conditions such as ME/CFS, CIRS, Multiple Chemical Sensitivity, Fibromyalgia, long COVID, mould illness, anxiety, and other neurological and mental health conditions. He also reflects on the broader implications of neuroplasticity and the mind-body connection in the treatment of chronic disease.  In this episode you will learn about:  How Ashok Gupta developed the Gupta Program after healing from chronic fatigue syndrome during his time at Cambridge University.  The role of brain retraining in reversing neurological and mental health symptoms caused by an inflammatory and immune response driven initially by toxins and pathogens, and leading to a dysregulated nervous system and chronic symptoms Why chronic illness is often rooted in a “trauma loop” within the brain's limbic system.  How the Gupta Program uses neuroplasticity to interrupt maladaptive patterns and rewire the brain toward healing.  Why environmental triggers like mould can activate a dysfunctional threat response in the brain.  How Ashok Gupta's recovery journey led to the creation of a structured, evidence-based program that has helped thousands of people globally.  A firsthand account from host Kirkland Newman on how the Gupta Program helped relieve her symptoms of tremors, anxiety, fasciculations, and more.  The importance of viewing chronic illness through the lens of the brain-body connection, and the role of hope and empowerment in recovery.   

This Week in Virology
TWiV Special: Long COVID and ME/CFS with David Tuller

This Week in Virology

Play Episode Listen Later Jun 17, 2025 61:58


David Tuller returns to TWiV to discuss RFK Jr. and the trashing of American public health, rituximab and ME/CFS, The Sick Times, the Cochrane Mess, a Norwegian Long Covid trial, effort preference and more. Host: Vincent Racaniello Guest: David Tuller Subscribe (free): Apple Podcasts, Google Podcasts, RSS, email Become a patron of TWiV! Links for this episode MicrobeTV Discord Server David Tuller writes at virology blog CFS, a long tangled tale (virology blog) The Sick Times Norwegian Long COVID trial (virology blog) Cochrane mess (virology blog) Timestamps by Jolene. Thanks! Intro music is by Ronald Jenkees Send your virology questions and comments to twiv@microbe.tv Content on TWiV should not be taken as medical advice.

Healing Differently
What Is A Release And Allowing & Why Does It help You Heal?

Healing Differently

Play Episode Listen Later Jun 16, 2025 32:55


What is a release exactly? How to do it and what is the difference with other healing modalities such as allowing. Join me and ask your questions in this live Q&A. If you're ready to take control of your recovery, let's get started! Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Healing Differently
This Is How To Heal ME/CFS! A Complete 6-Step Guide

Healing Differently

Play Episode Listen Later Jun 14, 2025 14:48


Healing from Long COVID, Chronic Fatigue Syndrome (ME/CFS), and Similar Conditions – Recovery is possible, and I'm here to show you how. In this easy-to-follow 6-step healing guide, I take you through the entire process—from understanding your diagnosis of Long COVID, Chronic Fatigue Syndrome (ME/CFS), or similar conditions to overcoming setbacks and plateaus. What you'll learn in this video: ✅ How to navigate your diagnosis and emotions ✅ The right healing approach tailored for you ✅ How to deal with setbacks and plateaus along the way ✅ Common pitfalls to avoid in your recovery journey I know this may sound too good to be true, which is why I've included real client testimonials to show that healing from Long COVID and ME/CFS is within reach. If you're ready to take control of your recovery, let's get started! Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Functionally Autoimmune
Understanding The POTS Journey W/ Dr. Diana Driscoll

Functionally Autoimmune

Play Episode Listen Later Jun 13, 2025 29:19


Send us a textAn authority on the autonomic nervous system, Dr. Diana Driscoll, Optometrist, FAAO, is a world-renowned expert on POTS (Postural Orthostatic Tachycardia Syndrome), and other “invisible” illnesses.As an author, speaker, inventor and devoted researcher with five patents to date, she continues to pushforward with dramatic shifts in the evaluation and treatment of these conditions.Dr. Driscoll's personal battle with POTS inspired a decade of self-funded groundbreaking research andinnovative treatment. Now an authority on POTS, IIH, post-COVID Longhaulers, ME/CFS, the vagusnerve, dry eye disease, neurological gastroparesis, and brain health, she offers the compassion of aformer patient, as well as strong science.www.DrDianaDriscoll.comwww.VagusNerveSupport.comwww.POTSCare.comwww.POTSCarePackage.comwww.GeneticDZ.comwww.DryEyeRecovery.comhttps://NeuroTears.com/Use code FA FOR 40% OFF Athletic greens is a non-negotiable part of my daily routine. With 75 absorbable vitamins and minerals in just one scoop a day, I have increased my energy, improved my immune function and so much more. To get your own AG at 20% off go to www.athleticgreens.com/functionallyautoimmune Order now for a free vitamin D3/K2 supplement and 5 free travel packs!Support the show

Conquering Your Fibromyalgia Podcast
Ep 206 The Science behind Chronic Fatigue Syndrome with Dr Nath Part 1

Conquering Your Fibromyalgia Podcast

Play Episode Listen Later Jun 11, 2025 31:19


Text Dr. Lenz any feedback or questions In this episode, we kick off a series on chronic fatigue syndrome (ME/CFS), often overlapping with fibromyalgia. The discussion features Dr. Avira Nath, a leading expert on neurologic infections and intramural clinical director at the NIH. Dr. Nath provides insights from his extensive research on ME/CFS, which includes a comprehensive study involving metabolic, neurologic, and cognitive tests. Delving into the relationships between post-viral syndromes, chronic fatigue, and fibromyalgia, Dr. Nath explains the intensive process of selecting pure patient samples for accurate study results and debunks common misconceptions. The episode also covers the criteria for diagnosing ME/CFS and fibromyalgia, highlighted by personal accounts from those living with these conditions, and explores the controversial topic of whether they represent the same or different illnesses.00:00 Introduction to Chronic Fatigue Syndrome and Fibromyalgia02:18 Meet Dr. Avira Nath: Journey into Chronic Fatigue Syndrome04:38 The NIH Study: Unveiling Chronic Fatigue Syndrome07:14 In-Depth Testing and Patient Selection09:44 Diagnostic Criteria: Chronic Fatigue Syndrome vs. Fibromyalgia13:24 Symptom Comparison and Overlaps25:34 Patient Experiences and Definitions of Fatigue29:00 Conclusion and Next Steps Joy LenzFibromyalgia 101. A list of fibromyalgia podcast episodes that are great if you are new and don't know where to start. Support the showWhen I started this podcast—and the book that came before it—I had my patients in mind. Office visits are short, but understanding complex, often misunderstood conditions like fibromyalgia takes time. That's why I created this space: to offer education, validation, and hope. If you've been told fibromyalgia “isn't real” or that it's “all in your head,” know this—I see you. I believe you. You're not alone. This podcast aims to affirm your experience and explain the science behind it. Whether you live with fibromyalgia, care for someone who does, or are a healthcare professional looking to better support patients, you'll find trusted, evidence-based insights here, drawn from my 28+ years as an MD. Please remember to talk with your doctor about your symptoms and care. This content doesn't replace personal medical advice.* ...

Fix Your Fatigue
Mold Treated, Still Exhausted? The Missing Pieces for ME/CFS/LC Recovery with Evan H. Hirsch, MD

Fix Your Fatigue

Play Episode Listen Later Jun 11, 2025 14:25


In this episode, Evan H. Hirsch, MD, explains why many people remain exhausted after treating mold and reveals the missing pieces needed for full recovery from ME/CFS and long COVID. Millions of people with chronic fatigue syndrome, long COVID, and related conditions have addressed mold in their homes and bodies but still struggle with low energy. In this solo episode, Evan shares why mold is only part of the puzzle and why addressing the full Toxic Five is essential for achieving lasting recovery. Drawing on over a decade of clinical experience, Evan outlines how heavy metals, chemicals, molds, infections, and nervous system dysfunction work together to drive fatigue. He explains why testing often misses key root causes and how a comprehensive, step-by-step approach can help you finally heal. What you'll learn in this episode: -. Why many people stay sick even after treating mold -. The five hidden root causes that drive ME/CFS and long COVID -. Why testing alone is not enough to uncover these causes -. The four-step process Evan uses to help patients fully recover . We help you resolve your Long Covid and Chronic Fatigue (ME/CFS) by finding and fixing the REAL root causes that 95% of providers miss. Learn about these causes and how we help people like you, Click Here. Do you have fatigue, brain fog, shortness of breath, muscle pain, or other strange symptoms? You might have Long Covid. Take our free quiz to find out if Long Covid is behind the mystery symptoms you're experiencing, Click Here.   For more information about Evan and his program, Click Here.   Prefer to watch on Youtube? Click Here.   Please note that any information in this episode is for educational purposes only and does not constitute medical advice.

Long Covid Podcast
178 - Rebuilding Safety: from Couch to Mountains - Alisha's Recovery Story

Long Covid Podcast

Play Episode Listen Later Jun 11, 2025 46:24 Transcription Available


Alicia shares her powerful Long Covid recovery journey—from a highly active farm worker to being couch-bound for over a year, and ultimately back to health through finding safety in her body.• Previously worked 40-hour weeks in manual farm labour and enjoyed running, hiking and yoga before contracting Covid in 2020• Experienced extreme anxiety, heart palpitations, shortness of breath after first infection• Second COVID infection in 2021 led to complete debilitation with 15+ symptoms including severe fatigue and digestive issues• Consulted functional medicine doctors who provided multiple diagnoses and extensive supplement protocols without improvement• Discovered mind-body connection through practitioners like Dan Buglio and Dr. Sarno's work• Recovery involved somatic tracking meditation, self-Reiki, creating feelings of safety, and slowly reintroducing activities• Learned to set boundaries, let go of perfectionism, and practice self-compassion• Gradually reintroduced activities like short walks and yoga sessions, surrounding them with joy• One session with TMS coach Rob Ensor helped eliminate remaining symptoms• Now works as a mind-body coach and has returned part-time to farming• Maintains balance between activity and rest, continuing to practice boundaries and self-careIf you're struggling with Long Covid or ME/CFS, remember that wherever you are in this moment, you are completely lovable right now—your worth isn't tied to your productivity or ability to function.Links: Alisha's website Message the podcast! - questions will be answered on my youtube channel :) For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com (music credit - Brock Hewitt, Rule of Life) Support the show~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costsTranscripts available on individual episodes herePodcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram Twitter @LongCovidPodFacebook Creativity GroupSubscribe to mailing listPlease get in touch with feedback, suggestions or how you're doing - I love to hear from you, via socials or LongCovidPodcast@gmail.com**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Healing Differently
This Is What Severe ME/CFS Really Feels Like!

Healing Differently

Play Episode Listen Later Jun 10, 2025 11:23


This podcast dives into the often unseen, devastating impact of severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It's not just exhaustion—it's an overwhelming, all-consuming battle with symptoms that strip away the ability to function, leaving life in fragments. From navigating extreme fatigue and physical suffering to coping with the emotional toll of watching everything slip away, this is a window into the reality many face. Relationships change, uncertainty grows, and hope is tested. I will share the profound challenges of living with severe ME/CFS—the isolation, the fears, and the resilience it takes to endure. If you or someone you love is affected by ME/CFS, know that you're not alone. Raising awareness is crucial, and understanding is the first step toward change.Join the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

The Fatigue Files
'Curiosity, Openness and Allowing—A Path of Deep Healing'—with Jack Strömer

The Fatigue Files

Play Episode Listen Later Jun 9, 2025 39:21


In this episode of the podcast, Anna speaks with her friend and colleague Jack Strömer. Jack has his own walk with chronic fatigue syndrome and a deep practice of Zen meditation. In this conversation, Anna and Jack explore the invitational nature of illness in relation to spiritual maturation. Themes of curiosity, openness, allowing and the intimacy of 'not knowing' all emerge at different points in this rich, thoughtful exploration.Feel free to send a text! We can't respond via text unfortunately, but we can sometimes answer a question on a future podcast episode. We always appreciate feedback. Support the showPlease rate and review this show. It really does help to support it. Please share it widely with those you know who are already struggling with or looking to prevent complex fatigue conditions or who are stressed and facing burnout.To find out about working with Anna 1-1 please visit www.hypnocatalyst.com Anna specialises in profound healing work. Her approach addresses all the layers of human well-being: body, mind, emotions and spirit. She works at all or any of these layers, depending on what her clients want and need. She has a longstanding personal knowledge of chronic fatigue, burnout and high stress environments and has overcome a very long history of MECFS. Having had a successful career as an academic lawyer, Anna retrained in a range of healing modalities, including hypnosis and energy psychology. She is a longstanding spiritual practitioner and increasingly works with people in spiritual awakening processes such as Kundalini. She is a passionate input junkie with a daily commitment to staying on top of the latest health optimisation research.

Fusionary Health
Ep. 114 - Healing the 'Unhealable': Inside Ashok Gupta's Neuroplasticity Revolution

Fusionary Health

Play Episode Listen Later Jun 3, 2025 50:02


In this episode of the Fusionary Health Podcast, Dr. Shivani Gupta welcomes Ashok Gupta, an internationally recognized expert in neuroplasticity and brain retraining for chronic illness. Ashok shares his journey of overcoming Chronic Fatigue Syndrome (CFS) while studying at Cambridge University, which led him to develop the Gupta Program—a clinically validated method helping thousands recover from Long COVID, fibromyalgia, ME/CFS, and autoimmune conditions.They explore how chronic illness stems from a maladaptive brain response, why conventional medicine struggles with these conditions, and how brain retraining techniques can reset the nervous system for lasting recovery.What You'll Learn in This Episode:• The Root Cause of Chronic Illness – Why chronic conditions aren't just physical—but neurological.• The “Virus Legacy” Trap – How post-COVID and autoimmune struggles persist—and how to reverse them.• Rewiring Your Brain – The science of neuroplasticity and why brain retraining is the missing link.• The Gupta Empire Analogy – Understanding how your nervous system (army) & immune system (navy) work together—until they turn against you.• Why High Achievers Burn Out – Are you a perfectionist, overachiever, or people-pleaser? This could be why you're stuck in stress mode.• The 7-Step Brain Retraining Process – How to stop the chronic illness cycle and reclaim your health.• Daily Guptor-Size: A Game-Changer – How live, guided healing sessions are helping people recover faster.• The Power of Joy & Healing – Why music, movement, and laughter could be the missing piece in your recovery.Why You Can't Miss This Episode:If you've been searching for answers, this episode is the breakthrough you need. Whether you're struggling with chronic illness, post-viral fatigue, long COVID, fibromyalgia, or relentless stress, you'll walk away with real, actionable tools to rewire your brain and restore balance.

AwakenYou in your marriage
Decluttering Your Home and Marriage: Reclaiming Space for Yourself and Your Relationship with Kerryn Simmons

AwakenYou in your marriage

Play Episode Listen Later Jun 3, 2025 81:43


What if the clutter in your home is quietly draining the energy from your marriage?In this week's episode, I sit down with decluttering and mindset coach Kerryn Simmons to talk about how the spaces we live in impact how we feel in our relationships. We explore what “clutter capacity” means, how childhood messages about organizing shape us, and how couples can begin to talk—without blame—about what they want their home to feel like.We also talk about what to do if your spouse isn't ready to have that conversation (yet) and how powerful it can be to take the first steps yourself.Whether you're constantly cleaning up or you've been avoiding the piles altogether, this conversation will help you start creating a home that fuels your connection instead of hiding it.

Healing Differently
Nothing Worked—Until I Discovered THIS for Chronic Fatigue

Healing Differently

Play Episode Listen Later May 29, 2025 14:15


For years, I fought chronic fatigue, desperately trying to reclaim my life. At first, managing my stress levels helped me recover—but when I went back to living fully, I relapsed. The exhaustion came back, and nothing I tried could stop it.Then, I made a breakthrough. I discovered how to instantly switch off my symptoms by tapping into my emotions. It was unlike anything I had ever tried before. Not only did it free me from chronic fatigue, but it also worked for others—I started coaching clients and saw the same shocking results.After helping over 1,000 people experience an instant release, I realized I had finally cracked the code. The moment I understood what it really took to heal, I broke down in tears. This is the truth about recovery that no one is talking about.If you're struggling with chronic fatigue, searching for real answers, and wondering why nothing has worked, you NEED to see thisJoin the Release program to speed up your healing from ME/CFS, Chronic fatigue, fibromyalgia, MCAS, Post-Vac and other chronic illnesses.

Winning Isn't Easy: Long Term Disability ERISA Claims
Understanding CPET Examinations with Guest Dr. Betsy Keller

Winning Isn't Easy: Long Term Disability ERISA Claims

Play Episode Listen Later May 27, 2025 50:57 Transcription Available


Have a comment or question? Click this sentence to send us a message, and we might answer it in a future episode.Welcome to Season 5, Episode 19 of Winning Isn't Easy. In this episode, we'll dive into the complicated topic of "Understanding CPET Examinations with Guest Dr. Betsy Keller."What if one test could offer the hard proof patients with ME/CFS, Long COVID, and fibromyalgia have been waiting for? Join disability law expert Nancy L. Cavey as she dives into one of the most important – and misunderstood – tools in chronic illness advocacy today: Cardiopulmonary Exercise Testing, or CPET. Often overlooked or mischaracterized, CPET isn't just another stress test. It's a scientifically rigorous way to measure functional limitations that traditional tests often miss. In this episode, Nancy is joined by Dr. Betsy Keller, a nationally recognized leader in exercise science and a pioneer in using CPET to support patients in both medical and legal arenas. Together, they break down what CPET is, how it works, and why it's gaining traction in disability claims – especially for those whose conditions have long been doubted or dismissed. But CPET isn't without controversy. We'll explore how insurers evaluate these tests, what makes a CPET legally credible, and the ethical challenges of asking chronically ill patients to push their limits in pursuit of validation. This is more than a medical deep dive – it's a critical conversation about science, strategy, and the fight to have invisible illnesses taken seriously in the eyes of the law. Don't miss it.If you'd like to follow along with slides mentioned in this episode, follow this link: https://www.youtube.com/watch?v=NrZiDVo3W8QIn this episode, we'll cover the following topics:One - Introduction to and Foundations of CPETTwo - CPET in the Context of Long-Term DisabilityThree - Best Practices and AdviceWhether you're a claimant, or simply seeking valuable insights into the disability claims landscape, this episode provides essential guidance to help you succeed in your journey. Don't miss it.Listen to Our Sister Podcast:We have a sister podcast - Winning Isn't Easy: Navigating Your Social Security Disability Claim. Give it a listen: https://wiessdpodcast.buzzsprout.com/Resources Mentioned in This Episode:LINK TO ROBBED OF YOUR PEACE OF MIND: https://mailchi.mp/caveylaw/ltd-robbed-of-your-piece-of-mindLINK TO THE DISABILITY INSURANCE CLAIM SURVIVAL GUIDE FOR PROFESSIONALS: https://mailchi.mp/caveylaw/professionals-guide-to-ltd-benefitsFREE CONSULT LINK: https://caveylaw.com/contact-us/Need Help Today?:Need help with your Long-Term Disability or ERISA claim? Have questions? Please feel welcome to reach out to use for a FREE consultation. Just mention you listened to our podcast.Review, like, and give us a thumbs up wherever you are listening to Winning Isn't Easy. We love to see your feedback about our podcast, and it helps us grow and improve.Please remember that the content shared is for informational purposes only, and should not replace personalized legal advice or guidance from qualified professionals. 

The Clinician's Corner
#51: Dr. Ashok Gupta - How Brain Retraining Transforms Chronic Illness

The Clinician's Corner

Play Episode Listen Later May 20, 2025 71:49 Transcription Available


In this episode of the RWS Clinician's Corner, Margaret sits down with Ashok Gupta for a deep dive into the brain's pivotal role in chronic illness—exploring how conditions like Long Covid, chronic fatigue syndrome, fibromyalgia, mold toxicity, and persistent inflammation can often be rooted in neural and nervous system dysregulation. They discuss the distinction between hardware (the body) and software (the brain and nervous system), the science and process of limbic retraining, and practical ways clinicians can integrate these approaches into their practices.   In this interview, we discuss:       -Brain retraining vs. meditation/stress reduction      -The concept of creating and rewiring neural pathways      -Acute vs. chronic illness: transition due to overactive protective responses      -The role of genetic predispositions (e.g., detox ability, immune differences)      -The three “R”s of brain retraining: regulate, retrain, re-engage       -Practical considerations for implementation, maintenance, and long-term success      -Strategies for integrating these techniques/the Gupta program in clinical practice The Clinician's Corner is brought to you by Restorative Wellness Solutions.  Follow us: https://www.instagram.com/restorativewellnesssolutions/   Connect with Dr. Ashok Gupta: Website: http://www.guptaprogram.com Instagram: https://www.instagram.com/guptaprogram/?hl=en Facebook: https://www.facebook.com/guptaprogram/   Special Offer to RWS Listeners:  We offer all practicing clinicians free access to our brain retraining program for one year -  worth $499 - they can sign up/apply at: https://guptaprogram.com/health-professionals/ Timestamps:    00:00 Mind-Body Healing Hypothesis 09:27 "Integrating Brain-Gut Axis Approaches" 12:59 "Brain Retraining for Chronic Issues" 18:18 Chronic Illness: Break the Vicious Cycle 26:26 Reengage with Joy Program 32:23 "Commit to a Healing Journey" 36:17 Acute vs. Chronic Treatment Approaches 43:50 "Brain Retraining Effectiveness Factors" 49:53 Brain Retraining for Clinicians 52:55 Clinician Co-Branding Service Launch 56:10 Incorporating Nervous System in Health 01:06:22 "Neuroplasticity Healing Success Stories" 01:10:42 Clinician's Corner: Episode Recap Speaker bio: Ashok is an internationally renowned Speaker, Filmmaker & Health Practitioner who has dedicated his life to supporting people through chronic illness, and achieving their potential.   Ashok suffered from ME, or Chronic Fatigue Syndrome, around 25 years ago when he was studying at Cambridge University. Through neurological research that he conducted, he managed to get himself 100% better. He then set up a clinic to treat others, and then published the well-known neuroplasticity “limbic retraining” recovery program and app known as the Gupta Program in 2007.    He has published several medical papers including randomized controlled trials on Long Covid, ME/CFS & Fibromyalgia, showing that the treatment is effective, and he is continually researching these conditions.   Keywords:  brain retraining, limbic retraining, neuroplasticity, chronic illness, chronic fatigue syndrome, ME/CFS, long Covid, fibromyalgia, mold toxicity, autoimmunity, gut health, nervous system regulation, functional medicine, integrative health, immune system, inflammation, trauma healing, stress reduction, somatic techniques, meditation, breath work, Gupta Program, functional health practitioners, clinical studies, pain management, anxiety, depression, food sensitivities, neuroscience, recovery   Disclaimer: The views expressed in the RWS Clinician's Corner series are those of the individual speakers and interviewees, and do not necessarily reflect the views of Restorative Wellness Solutions, LLC. Restorative Wellness Solutions, LLC does not specifically endorse or approve of any of the information or opinions expressed in the RWS Clinician's Corner series. The information and opinions expressed in the RWS Clinician's Corner series are for educational purposes only and should not be construed as medical advice. If you have any medical concerns, please consult with a qualified healthcare professional. Restorative Wellness Solutions, LLC is not liable for any damages or injuries that may result from the use of the information or opinions expressed in the RWS Clinician's Corner series. By viewing or listening to this information, you agree to hold Restorative Wellness Solutions, LLC harmless from any and all claims, demands, and causes of action arising out of or in connection with your participation. Thank you for your understanding.  

Podcast for Healing Neurology
#87 Rachel Riggs talks about her new cookbook; In Good Health

Podcast for Healing Neurology

Play Episode Listen Later May 14, 2025 69:18


Let's talk about all thing's food, particularly as it relates to the Pentad community.What kind of barriers exist for people, especially with me/CFS.Why do we often see resistance to changing our diets and eliminating certain foods.How might our nutritional needs be different from the general population.What kind of resources are available to us.How do we make it a sustainable endeavor.What are some emotional or psychological tools we can employ for success.What's the best way to do an Elimination Diet.Why should somebody look to their diet for improvementWhat types of illnesses respond best to dietary restrictions.BIO:Rachel Riggs is the author of an incredible new cookbook called "in Good health' which is California-style light & fresh cooking but the twist here is that she has been suffering with ME/CFS that started in 2003, had had what is an unfortunately typical course which was waxing & waning, requiring 12 years for diagnosis and then a big exacerbation and has now been house-bound x 12 years, in fact, mostly bed-bound. She is a former specialty food shop owner whose life was upended by ME & had to sell her shop. She has worked with Dr Robert Naviaux in San Diego as his study coordinator for the last 9 years so we'll dive into the Cell Danger Response some.Blog:https://www.rachriggs.com/cookbookhttps://rachelriggs.substack.com/https://tinyurl.com/5adxvt6uhttps://www.healthrising.org/blog/2025/01/29/rachel-riggs-allergen-aware-cookbook/

The Spoonie Podcast
58. From Housebound to Managing 8-hour Market Days: A TSP Transformation Story

The Spoonie Podcast

Play Episode Listen Later May 14, 2025 62:07


In this powerful episode, we sit down with a TSP alum, Shiloh Gray, who went from barely making it through the day to managing markets, getting married, and living in alignment with their body. Through the lens of their deeply personal story, they share what it's really like to live with a chronic illness—and how learning to pace, regulate their nervous system, and receive support changed everything.Whether you're currently navigating chronic fatigue, burnout, or invisible illness—or you support someone who is—this episode is filled with insights, inspiration, and hard-won wisdom about what true healing looks like.In this episode, we explore:What pacing actually looks like (and why it's misunderstood)The role of nervous system regulation in chronic illness recoveryHow small wins (like sitting upright or walking to the mailbox) become life-changingThe emotional reality of living with invisible illnessThe life milestones they never thought were possible—and how they made them happenWhy community and accountability are essential for long-term healingPerfect for listeners who are:Living with ME/CFS, long COVID, or chronic fatigueExperiencing burnout, adrenal issues, or nervous system dysregulationCurious about pacing, nervous system healing, or TSP (The Support Program)Looking for real, hopeful stories of transformation

Invisible Not Broken A Chronic Illness Podcast
Founder of #NotJustFatigue: Activism from Bed Elizabeth Ansell

Invisible Not Broken A Chronic Illness Podcast

Play Episode Listen Later May 12, 2025 59:41


Chapters00:00 Understanding ME-CFS: A Complex Illness05:09 The Journey to Diagnosis: Misunderstandings and Challenges10:03 The Role of Caregivers: Support and Understanding14:53 Creating Community and Advocacy from Bed19:53 The Emotional Landscape: Grief, Rage, and Resilience35:41 Creating a Resource for ME-CFS Awareness40:19 The Role of Technology and Social Media43:34 Coping with Severe Illness and Loneliness47:30 Finding Joy in Small Moments55:54 Advocacy and the Fight for Recognition01:00:02 Closing Thoughts and Future Aspirations:From coping with severe illness to finding joy in small victories, this episode is a raw, honest, and ultimately hopeful look at resilience, advocacy, and the urgent need for change. If you've ever felt unseen in your health journey—or want to better understand those who are—this is a conversation you don't want to miss.

Long Covid MD
#49: The Impact of Cranio-Cervical Instability, w Dr Katie Brown

Long Covid MD

Play Episode Listen Later May 10, 2025 33:56 Transcription Available


Send us a textBuy Me A CoffeeSummaryIn this conversation, Dr Zeest Khan speaks with Dr. Katie Brown, who shares her journey as a family doctor and a patient with ME/CFS. She discusses the complexities of diagnosing and treating long COVID, particularly focusing on the role of cranio-cervical instability (CCI) and its impact on patients' health. Dr. Brown emphasizes the importance of understanding the symptoms, the challenges in accessing proper care, and the need for collaboration among healthcare providers to improve patient outcomes. She also offers insights into treatment options and encourages both patients and doctors to take ownership of their health and care.BioDr Katie Brown: Katie Brown, MD has dedicated her career to learning how to treat ME/CFS and related conditions, including Long COVID. Her interest stems from her own experience with the disease which she developed during her first year of medical school. She is very grateful to now be in remission and have the chance to use all she has learned, both as a doctor and a patient, to support others with ME/CFS. The clinical uncertainty around ME/CFS should not mean that patients don't get help. In order to educate and encourage other doctors to treat ME/CFS, she is writing a book outlining best practices for primary care doctors. You can sign up to her newsletter to be notified when the book is published. Sign up for Dr Brown's newsletter: https://www.katiebrownmd.com/newsletterDr Brown's CFS website: https://chronicfatiguedoctornearme.com/Dr Brown's notes on UCI, updated regularly: https://publish.obsidian.md/gsdpc/Publish/Patient+Resources/Cervical+Instability   Additional Resources:Project ECHORessek et al Presentation and physical therapy management of upper cervical instability The Sick Times article on craniocervical instabilitySupport the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Bendy Bodies with the Hypermobility MD
Unraveling Fatigue: Exploring ME/CFS, and Long COVID (Ep 144)

Bendy Bodies with the Hypermobility MD

Play Episode Listen Later May 8, 2025 71:07


What if your body's collapse wasn't burnout… but a system crash no test can catch? In this episode, Dr. Linda Bluestein welcomes Isabelle Ramirez Burnett, systems engineer, health coach, and founder of Renegade Research, to reveal the silent breakdowns behind ME/CFS, long COVID, and hypermobility-related illness. Diagnosed with ME/CFS at just 7 years old, Isabelle pulls back the curtain on decades of missed diagnoses, medical dismissal, and her discovery of a community willing to do what the healthcare system couldn't—build their own science. You'll hear about the remission that stunned researchers, the controversial meds that gave her life back, and the protocols patients are building from the ground up. If you've ever wondered why your body feels like it's working against you—or what recovery might actually look like—this episode may change everything. Takeaways: She couldn't stand in front of the fridge—until a “taboo” medication changed everything. The labs were normal. Her body was screaming. A grandmother, a diagnosis, and an unstoppable fight for answers. What if your symptoms don't show up on any scan… but still hold the truth? The protocol that sparked a remission—and a global movement. Find the episode transcript here. Reference Links: RemissionBiome w/Dr. Yellman https://pmc.ncbi.nlm.nih.gov/articles/PMC7831961/ Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Isabel Ramirez-Burnett : Twitter: https://x.com/isabelramirezrd?lang=en Renegade Research Twitter: https://x.com/renegaderes Youtube: https://www.youtube.com/remissionbiome LinkedIn: https://www.linkedin.com/isabelramirezrd BlueSky: https://isabelramirezrd.bsky.social Amazon: https://amzn.to/3EB7PcC Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network

Spectrum | Deutsche Welle
Be happier! (Play music!)

Spectrum | Deutsche Welle

Play Episode Listen Later May 8, 2025 30:00


Doesn't matter how old you are — learning a new instrument (or trying) has all sorts of side benefits. Also, it's about time we understand the 'most misunderstood serious illness.'

Long Covid MD
#48: Money, Disability and Asking For Help Without Shame, with Kira Stoops

Long Covid MD

Play Episode Listen Later May 3, 2025 19:49 Transcription Available


Send us a textBuy Me A CoffeeIn this episode of Long COVID MD, Dr. Zeest Khan discusses the financial challenges faced by individuals with long COVID and chronic illnesses. She interviews Kira Stoops, a writer and advocate, who shares her personal journey with chronic illness, the importance of asking for help, and the value of building community. They explore the realities of managing finances while living with a disability, the stigma around seeking assistance, and the tools that can aid in adapting to new life circumstances. Kira emphasizes the importance of self-compassion and the need to cut oneself some slack while navigating these challenges.Kira StoopsKira is a writer who is chronically ill. Despite having ME/CFS for nearly a decade, she's determined to live the good life: close connections, moments of sunshine, meaningful work, and snarky humor. Find more of her work at Flying Bicycle Creative, her (free!) Meatscon tool for sickies here, and her Substack about luxe sickie life here. Support the showSubscribe for more at LongCovidMD.substack.com, and follow Dr Khan on X @doctor_zeest

Functional Medicine Research with Dr. Nikolas Hedberg
Can Ginkgo Biloba Help Chronic Fatigue Syndrome?

Functional Medicine Research with Dr. Nikolas Hedberg

Play Episode Listen Later Apr 29, 2025 18:25


If you're struggling with chronic fatigue syndrome (ME/CFS) or debilitating tiredness that just won't go away, you're not alone—and you're not imagining things. Millions of people suffer from persistent fatigue that conventional medicine often fails to resolve. Fatigue and stress can make everyday tasks like working at a computer feel overwhelming, as seen in this image, which represents the experience of many with chronic fatigue syndrome (ME/CFS) At the Hedberg Institute, I'm always researching botanical compounds that support microcirculation, mitochondrial health, and immune regulation—all vital in restoring energy. That's why I formulated VascuSelect, a synergistic supplement that contains three powerful plant extracts: Ginkgo biloba, grape seed extract, and mango whole fruit powder. Let's dive into why Ginkgo biloba, in particular, stands out for those dealing with ME/CFS and how it works alongside other ingredients in VascuSelect to support your energy and vitality. An Important Study: Ginkgo Biloba for ME/CFS A recent paper published in Frontiers in Pharmacology (2022) titled “A Botanical Product Containing Cistanche and Ginkgo Extracts Potentially Improves Chronic Fatigue Syndrome Symptoms in Adults: A Randomized, Double-Blind, and Placebo-Controlled Study” sheds important light on Ginkgo's role in combating chronic fatigue. In this gold-standard clinical trial, 101 adults with ME/CFS received a botanical supplement combining Ginkgo biloba extract (120 mg/day) and Cistanche tubulosa extract (300 mg/day) or a placebo for 60 days. The results were impressive: Significant reductions in fatigue severity Improved physical performance and VO₂ max Enhanced antioxidant status and reduced oxidative stress markers Improved sleep quality and concentration Enhanced quality of life (QOL) and sexual life (SLQ) scores Decreased blood levels of lactic acid and ammonia (both fatigue biomarkers) What's particularly exciting is that Ginkgo biloba played a central role in this formulation. The authors noted that Ginkgo's flavonoids and terpenoids contribute to neuroprotection, vasodilation, and mitochondrial support, all of which are key areas of dysfunction in ME/CFS patients. This study confirms that Ginkgo biloba, known for enhancing blood flow and antioxidant activity, can play a central role in reducing the burdens of ME/CFS. How Ginkgo Biloba Helps Fight Fatigue Ginkgo biloba (standardized to 24% flavonol glycosides and 6% terpenes) is one of the most studied botanical extracts for circulatory and cognitive health. But its applications go far beyond brain support—especially for those with energy-depleting illnesses like ME/CFS. Ginkgo biloba is one of the oldest and most studied medicinal plants. It's been used for centuries in Traditional Chinese Medicine, but modern science is now validating its applications for conditions like ME/CFS, fibromyalgia, and Long COVID. 1. Improves Microcirculation Ginkgo biloba increases blood flow, especially in the small vessels of the brain and extremities. This is critical in ME/CFS, where impaired oxygen delivery to tissues can worsen fatigue. 2. Supports Mitochondrial Function Many people with ME/CFS experience dysfunctional mitochondria—the energy-producing engines of cells. Ginkgo has been shown to protect mitochondrial membranes and improve ATP production, helping the body generate more usable energy. 3. Reduces Oxidative Stress Oxidative stress is a hallmark of ME/CFS and contributes to inflammation, brain fog, and fatigue. Ginkgo's rich flavonoid profile helps neutralize free radicals and reduce oxidative damage. In the study mentioned above, participants taking Ginkgo and Cistanche showed significant increases in antioxidant enzymes like SOD and CAT. 4. Enhances Neurotransmitter Function Ginkgo biloba modulates neurotransmitters like dopamine, serotonin, and norepinephrine—chemicals that regulate mood,

Egg Meets Sperm
Toxins vs. Your Fertility: The Silent Battle You Didn't Know You Were Fighting

Egg Meets Sperm

Play Episode Listen Later Apr 28, 2025 36:38


Are you unknowingly sabotaging your fertility with everyday products and hidden environmental toxins?

Like Mind, Like Body
A New Way to Understand Long COVID, ME/CFS, POTS and More (Howard Schubiner, MD)

Like Mind, Like Body

Play Episode Listen Later Apr 25, 2025 69:10


In this interview, Christie Uipi, LCSW, sits down with world-renowned mindbody physician Dr. Howard Schubiner to explore the limitations of the traditional medical model in treating conditions like POTS, Ehlers-Danlos syndrome, chronic Lyme disease, Epstein-Barr virus (EBV), mast cell activation syndrome (MCAS), ME/CFS, and Long COVID. Together, they discuss how a mindbody approach can bring clarity to these often confusing conditions - and offer a hopeful path forward for those seeking relief.

Bendy Bodies with the Hypermobility MD
Why Are You So Exhausted? with Dr. Brayden P. Yellman (Ep 140)

Bendy Bodies with the Hypermobility MD

Play Episode Listen Later Apr 10, 2025 66:08


What if the fatigue you feel isn't just “tiredness”—but the result of an entirely different physiological state? In this riveting episode, Dr. Linda Bluestein sits down with Dr. Brayden P. Yellman of the Bateman Horne Center to explore ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)—a misunderstood condition that masquerades as general exhaustion but goes much deeper. Together, they unravel the hidden markers of post-exertional malaise, explain how upright posture can quietly sabotage your day, and discuss the mysterious collapse of energy systems that no blood test can catch. With no known biomarker, diagnosis is a clinical puzzle—and one too often dismissed. Dr. Yellman also explores emerging theories around brainstem tension, tethered cord syndrome, mast cell activation, and how some surgeries may reset the body in unexpected ways. If you've been chasing answers for fatigue, brain fog, or unexplained crashes, this episode may finally connect the dots you didn't know existed. Note: You may notice a few choppy moments in this video due to our guest's frame rate, but the conversation is so valuable, we knew we had to share it with you. Thanks for your understanding! Takeaways: Fatigue might not be what you think—and your body may be operating in a totally different mode. Your upright posture could be silently draining your energy every hour of the day. A “normal” MRI doesn't mean your nervous system is functioning normally. Could your symptoms be the result of your brainstem being pulled—literally? The most revealing test? It might be one you do at home... and it doesn't involve a lab. YouTube video mentioned in the episode: https://www.youtube.com/watch?v=00f6Yx9ab3I Find the episode transcript here. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Brayden P. Yellman Twitter: https://x.com/BatemanHorne Instagram: https://www.instagram.com/bateman_horne_center/ Facebook: https://www.facebook.com/batemanhornecenter LinkedIn: https://www.linkedin.com/company/the-bateman-horne-center-of-excellence/ BlueSky: https://bsky.app/profile/batemanhornecenter.bsky.social Website: https://batemanhornecenter.org/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices