Podcasts about hypermobile

Dr. Linda Bluestein is a board-certified anesthesiologist, integrative pain medicine physician and former ballet dancer who specialises in coaching and educating dancers and other athletes and individuals at increased risk of hypermobility disorders.Dr Linda's own experience with h-EDS eventually led her down a career path change that has seen her help countless others to live well with hypermobility and avoid chronic pain development. She is widely published, considered an expert on hypermobility disorders, and has lectured internationally.In this episode, Dr Linda and I sit down to discuss the link between Hypermobility spectrum disorders, hypermobile-Ehler's Danlos syndrome, mast cell activation syndrome and endometriosis.Here's what we cover:What we mean by generalised hypermobility, hypermobility spectrum disorders and hypermobility-EDS, and how they differ.What are the signs and symptoms of these conditions. The link between h-EDS and menstrual disorders, bladder dysfunction and pelvic pain and Dr Linda's approach to addressing these problems.What mast cell activation syndrome is, how it is associated with hypermobility and EDS, and how it may be a driver behind EDS and endometriosis.The link between SIBO and h-EDS and connective tissue disorders.Dr. Linda's key strategies for managing symptomatic hypermobility and h-EDS.Show NotesDr Linda's websiteBendy Bodies podcastDr Linda's InstagramNeed more help or want to learn how to work with me?Free resources:This podcast! Endometriosis Net ColumnEndometriosis News ColumnNewsletterInstagramWays to work with me:This EndoLife, It Starts with Breakfast digital cookbookMasterclasses in endo nutrition, surgery prep and recovery and pain reliefLive and Thrive with Endo: The Foundations DIY courseOne to one coaching info and applicationThis episode is sponsored by BeYou Cramp Relief Patches. Soothe period cramps the natural way with these 100% natural and discreet menthol and eucalyptus oil stick on patches. Click here to find out more and to shop: https://beyouonline.co.uk/pages/how-it-worksProduced by Chris Robson

How can dance teachers and studio owners truly support their most flexible students? In this essential episode host Loren Dermody welcomes back Dr. Linda Bluestein, renowned physician, former dancer, and expert in hypermobility, for her sixth appearance during Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders Awareness Month. Dr. Bluestein reveals why early recognition of connective tissue disorders is critical in dance, sharing practical signs teachers can spot, from difficulty building muscle to recurring injuries and even digestive issues. She explains why standard screening tools like the Beighton score often fall short for dancers, and offers actionable advice on what really works in the studio. Learn how to recognize the subtle signs of hypermobility, prevent common injuries, and empower your dancers to thrive. Whether you're a studio owner or passionate teacher, this episode will give you the knowledge to make a real difference in your dancers' lives. Don't miss this insightful conversation with Dr. Linda Bluestein, exclusively on The Acrobatic Arts Podcast! Important Links Bending Boundaries: The Role of Joint Hypermobility in Dance About Dr. Linda Bluestein In addition to her private medical practice, Hypermobility MD, Dr. Bluestein is the founder and co-host of the podcast, Bendy Bodies with the Hypermobility MD, and former co-host of “Hypermobility Happy Hour.” Dr. Bluestein is the Director of Education for the nonprofit, EDS Wellness, Inc. and founder and executive director of Bendy Bodies, an organization dedicated to empowering hypermobile performing artists. She has published a number of original research papers; presents work at national and international conferences, and is a contributing author for the book, Disjointed - Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders. Dr. Bluestein is a member of the Board of Directors for the Bridge Dance Project, the Allergy and Immunology Working Group for the International Consortium on EDS and HSD, the Advisory Board for Doctors for Dancers, and the Resources Committee for the Dance Healthy Alliance of Canada. More information about Dr. Bluestein can be found on her website, www.hypermobilitymd.com. Links: Hypermobility MD Hypermodbility MD Podcast Bendy Bodies If you'd like more amazing content more tips and ideas check out our Acrobatic Arts Channel on YouTube. Subscribe Now! Connect with Acrobatic Arts on your favourite social media platform: Instagram: https://www.instagram.com/acrobaticarts/ Facebook: https://www.facebook.com/Acroarts Twitter: https://twitter.com/acrobatic_arts/ Learn more and register for our programs at AcrobaticArts.com

20% of the population is on the hypermobile spectrum and can struggle with chronic pain because of it. At the more extreme end of the spectrum is Ehlers-Danlos Syndrome (EDS), a genetic disorder that affects not not muscles and joints but the whole body in ongoing feedback loops. Perhaps most significantly, 80% of people with EDS have generalized anxiety. Most doctors or practitioners seeing people with vague symptoms from chronic pain, allergies, SIBO, IBS, brain fog, POTS, autoimmunity, anxiety, and more are often unaware that EDS can be the cause. Even less know about holistic ways to intervene in the cycle of dysregulation. So I spoke with a specialist in EDS, Dr. Derik Andersen to get some answers.In this episode we discuss:what is Ehlers-Danlos Syndrome?the mast cell activation and EDS cyclewhat are the symptoms and how can someone test themselves?why are anxiety and nervous system issues associated with it?research on the Autonomic Nervous System and HRVneurodivergence and EDSholistic treatment approachesfocused shockwave therapynutritional interventionsbreathwork for the nervous sustemwhat practitioners should knowBioDerik S. Anderson, DC, CPT, CSN is the Clinic Director of the Muscle and Joint Clinic in Northern California. He helps his patients be healthier by utilizing his education and personal and professional backgrounds. Dr. Anderson grew up wanting to help people and initially planned to go to business school to work in energy conservation. But, after a good friend's life was positively changed by chiropractic care, he had a change of heart. His friend spent two years with horrific intestinal problems and saw over a dozen providers, but no one could help her – until she saw a chiropractor. The chiropractor knew that the vertebra and muscles around them affected the nerves that controlled the intestines. After treatment, she was no longer bed-ridden and went back to teaching, traveling and leading an active life. Dr. Anderson realized that health care was his calling and his passion for helping people was channeled into chiropractic.Education:Life Chiropractic College West, Doctor of ChiropracticUniversity of California, Santa Barbara, Bachelor of Arts, EconomicsCompleted more than 1,000 hours of post-doctoral educationSports Nutritionist, CertifiedPersonal Fitness Trainer, CertifiedActive Release Technique, Certified 2011FAKTR, CertifiedMyofascial Decompression, CertifiedIronman® Healthcare ProviderThe Clinic: https://musclejointclinic.com/Resources:Dr. Jessica Eccles https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspxhttps://tmsforacure.org/ Links: Find videos and bonus episodes: ⁠DEPTHWORK.SUBSTACK.COM⁠Get the book: ⁠⁠Mad Studies Reader: Interdisciplinary Innovations in Mental Health⁠Become a member: ⁠The Institute for the Development of Human Arts⁠Train with us: ⁠Transformative Mental Health Core CurriculumSessions & Information about the host: ⁠⁠JazmineRussell.com⁠⁠Disclaimer: The DEPTH Work Podcast is for educational and entertainment purposes only. Any information on this podcast in no way to be construed or substituted as psychological counseling, psychotherapy, mental health counseling, or any other type of therapy or medical advice.

Did you know that hypermobility can impact vocal technique, breath control, and even performance anxiety? In this episode, voice coach and viral blogger Sarah Algoet discusses the surprising ways hypermobility affects singers—both as a gift and a challenge. Tune in to discover insights, practical approaches, and how teachers can better support hypermobile singers!WHAT'S IN THIS PODCAST?2:10 What is hypermobility?10:21 Using the Beighton Score16:00 Who is more likely to have it?17:00 Possible benefits and challenges 35:52 A polyvagal drill exercise42:25 How can voice training help?53:06 What teachers need to consider59:28 Resources & Sarah's libraryAbout the presenter click HERERELEVANT MENTIONS & LINKS Ehlers-Danlos Support UKImogen RouxEDS Webinar: Voice, Breath and Ehlers-Danlos SyndromePolyvagal Theory by Stephen PorgesCelest PereiraConnected SingingSarah's Blog: Hypermobile SingersBeighton ScoreSST Eps.155 & 156 Building Neurodiversity-Inclusive Voice StudiosThe Fibro GuyFocus On Event: Hypermobility and the VoiceTracy JefferyJournal of SingingI Have Had to Stop Singing Because I Can't Take the PainBjorn Poels & Z-HealthSTT Ep.144 Exploring the Benefits of Sound HealingJessica LuffeyEmily KirkcaldySST Ep.138 Exploring the Benefits of The Alexander TechniqueSTT Ep.63 Developing a Singer's Self Awareness and Clarifying IntentionABOUT THE GUEST Sarah Algoet is a voice teacher with over 20 years of experience, blending fun, engaging learning with science-backed techniques for lasting results. Her personalised approach draws from various methods to suit each singer, whether beginners discovering their voice or professionals refining their artistry.She takes a holistic view, recognising the mind-body connection in singing. Like an elite athlete's coach, she helps singers build strength, flexibility, and endurance for peak performance. For Sarah, vocal coaching is about more than technique—it's about storytelling, self-expression, and confidence, ensuring every singer's voice is heard.singsing.be/onlinecoursesBAST Training helps singers gain the confidence, knowledge, skills & understanding required to be a successful singing teacher. "The course was everything I hoped it would be and so much more. It's an investment with so much return. I would recommend this course to any teacher wanting to up-skill, refresh or start up." Kelly Taylor, NZ ...morebasttraining.com | Subscribe | Email Us | FB Group

Most people believe hypermobility is being super flexible, but it's more complicated than that. Daniel Spears from Brisbane Chiropractic joined Gary Hardgrave on 4BC Drive to test Gary's hypermobility. See omnystudio.com/listener for privacy information.

Are you finally ready to overcome your chronic pain? Save 15% on any Whealth Program using code KELSIESTONE at checkoutKelsie Stone, Whealth Hypermobility Program member writes:"I have a painful connective tissue disease called Hypermobile Ehlers-Danlos Syndrome.Doctors called me a “moderate-to-severe” case. Chronic pain changed the physical structure of my brain – I was diagnosed with medically-induced c-PTSD.The pain was so constant that I broke my spine in three places and DIDN'T NOTICE. Doctors found it by accident after it already healed. hEDS and this pain made me think:Doctors told me: "You'll never have kids, never get married. You're too much of a burden. You'll suffer your whole life."Doctors didn't say much different than these thoughts. They offered narcotics. Injections. Surgeries. Treating symptoms, not the source. Then I noticed this strength-training program called Whealth on my timeline.Week after week, I saw free educational content on IG – and I started to wonder.Doctors commanded me not to work out, but this program claimed to be created by hypermobile people – people like me – specifically FOR us, and I had to know if it was real. So I took the plunge. I could always get a refund, right?Three 30-minute home workouts a week later… and my life has changed more than I ever knew it could. I'm strong now. I'm proud of my body. It seems unbelievable, but I feel like I blinked and got stronger.I do the things I love just like I used to, but the difference is I don't pay the price anymore.

Book an Energy Uplevel Session to learn if the Pain to Power community is right for you! https://www.drandreamoore.com/schedule/ Follow me: www.instagram.com/drandreamoore Follow Julia: https://www.movementbyjulia.com https://www.instagram.com/movementbyjulia https://www.youtube.com/@UCSMkxCfe_TK8qGEImzAP9sA Welcome to another fascinating episode of the Unweaving Chronic Pain podcast. In this episode, we share an incredible journey of Julia who turned her chronic pain into a powerful story of resilience. Born with a significant birth injury, Julia experienced ineffective traditional treatments for years until fascia release therapy revolutionized her life. Tune in to hear about her inspiring transformation. Throughout this episode, we delve deep into the concept of fascia the interconnected biological fabric that plays a crucial role in our physical well-being. Uncover how its manipulation can lead to significant pain relief and understand its impact on chronic pain and healing. Listen in as we explore dynamic, whole-body movement and the blend of physical therapy with mind-body techniques for achieving lasting healing. Our discussion also covers the importance of diverse movement practices in fitness and pain management. We discuss innovative techniques such as roller remedies and the importance of collaboration between specialists for maintaining the fluidity and resilience of fascia.Whether you're battling chronic pain or seeking to enhance your overall well-being, this episode is packed with practical insights and a hopeful perspective on achieving a balanced, pain-free life.Key points covered in this episode: Julia's inspiring journey of overcoming a significant birth injury with fascia release therapy. The crucial role of fascia in our physical well-being. The importance of understanding and addressing fascial issues for effective pain management. Exploring the interplay between body awareness and pain management. The connection between the mind and body in relation to chronic pain and fascia. Building resilience and empowering boundaries through bodywork. The benefits of fascial release techniques for individuals experiencing chronic pain and hypermobility. The importance of diverse exercise routines for both body and mind. The benefits of roller remedy for pain relief. Tune in to the episode for an enriching conversation about transforming pain, the power of resilience, and the wonders of fascia release therapy. Fascia, Chronic Pain, Healing, Fascia Release Therapy, Physical Well-being, Alternative Healing Methods, Movement Practices, Pain Management, Physical Therapy, Mind-Body Techniques, Fitness, Pain Relief, Resilience, Collaboration, Hypermobile, Strength Training, Dynamic Movement, Fascia Health, Roller Remedy

Learn more about Pelvic Health Trauma Health CertificationGet certified in pelvic health from the OT lens hereLearn more about OT Pioneers here!____________________________________________________________________________________________Pelvic OTPs United -- Lindsey's off-line interactive community for $39 a month! Inside Pelvic OTPs United you'll find:​ Weekly group mentoring calls with Lindsey. She's doing this exclusively inside this community. These aren't your boring old Zoom calls where she is a talking head. We interact, we coach, we learn from each other. The power of these community calls is staggering. Plus, she's got a lineup of experts coming in you don't to miss (see the P.S.).​ Highly curated forums. The worst is when you post a question on FB just to have it drowned out with 10 other questions that follow it. So, she's got dedicated forums on different populations, different diagnosis, different topics (including business). Hop it, post your specific question, and get the expert advice you need.​ Private podcast. Miss a group coaching call? Not a problem, the audio is uploaded to a private podcast so you can listen on the go. Turn your commute into a transformativeMore info here. Lindsey would love support you in this quiet corner off social media! ...

In this episode of the Braun Performance & Rehab Podcast, Dan is joined by Taylor Goldberg to discuss concepts relating to hypermobility. Taylor is a Chiropractor-turned Virtual Hypermobility Coach who helps people struggling with hypermobility (and related conditions) navigate the newness and unknowns of HSD/hEDS, enabling them to understand their body's unique needs and regain a fulfilling life. In addition to assisting clients with hypermobility, she recently launched a course aimed at helping clinicians better understand how to assist their hypermobile patients. Taylor possesses a unique perspective rooted in her education and personal experiences with hypermobility, which has driven her to initiate changes not only within the hypermobility community but also within the chiropractic field. She recently introduced a mentorship program called 'Clinical Concepts,' where they delve into the drawbacks of one-size-fits-all chiropractic practices and underscore the significance of an evidence-based approach to treatment and self-care. For more on Taylor be sure to check out these links: 1:1 Coaching: https://calendly.com/d/d6j-7hz-qpn Clinician course:  https://thehypermobilechiro.com/clinicians/  Resource page:  https://thehypermobilechiro.com/resources/  Clinical Concepts IG: https://www.instagram.com/clinical_concepts/ *SEASON 5 of the Braun Performance & Rehab Podcast is brought to you by Isophit. For more on Isophit, please check out isophit.com and @isophit -BE SURE to use coupon code BraunPR25% to save 25% on your Isophit order! **Season 5 of the Braun Performance & Rehab Podcast is also brought to you by Oro Muscles. For more on Oro, please check out www.oromuscles.com Episode Affiliates: MoboBoard: BRAWNBODY10 saves 10% at checkout!AliRx: DBraunRx = 20% off at checkout! https://alirx.health/MedBridge: https://www.medbridgeeducation.com/brawn-body-training or Coupon Code "BRAWN" for 40% off your annual subscription! CTM Band: https://ctm.band/collections/ctm-band coupon code "BRAWN10" = 10% off! Ice shaker affiliate link: https://www.iceshaker.com?sca_ref=1520881.zOJLysQzKeMake sure you SHARE this episode with a friend who could benefit from the information we shared! Check out everything Dan is up to by clicking here: https://linktr.ee/braun_prLiked this episode? Leave a 5-star review on your favorite podcast platform --- Support this podcast: https://podcasters.spotify.com/pod/show/daniel-braun/support

In this episode, Erica discusses the why behind shoulder problems, comparing the unique challenges faced by tennis players and non-tennis players alike. She explains why traditional shoulder treatment often fails these types of patients. A significant relationship between the shoulder and another region of the body is often missed. Erica also tells the story of one of her patients who does play tennis and the reason why he can do a full pushup but can't lift his arm over his head. For our physio listeners, oftentimes you can progress patients through a full range of CKC exercises but the OKC piece does not progress as quickly.   A glance at this episode: [0:01] Erica's Summer Vacation and Introduction to the Episode [2:30] Clinical Pearls for Tennis Players [6:15] Assessing Upper Thorax and Glenohumeral Joint Compression [12:53] Treatment Approach for Upper Thorax and Glenohumeral Joint Issues [15:54] Progressing Patients with Glenohumeral Issues [16:14] Clinical Pearls for Closed Chain Exercises [20:37] Conclusion and Encouragement for Practitioners Related links: Tough To Treat Website Erica's Course: Decoding the Complex Patient Susan's Pelvic Health Education Subscription Access the Transcript  

What is the cause of bilateral calf pain in this young fencer? From start to finish, it shows the power of a thorough evaluation, a specific exercise progression, and a return to the sport she loves. When it comes to exercise progression in persistent pain, think about context. How can you improve optimal movement patterning by changing the context? Think about this one. You can intervene via the visual system, eyes open, eyes closed. How about changing their base of support? Wide to narrow. And why not have them do their exercises to their favorite music? These are just some examples. Look at your patients through a different lens and then see positive change.   A glance at this episode: [0:01] Introduction and Case Overview [7:46] Initial Assessment and Clinical Reasoning  [10:27] Hypermobility and Initial Treatment [20:14] Progression and Additional Techniques [32:40] Advanced Techniques and Future Plans  [52:04] Conclusion and Reflection   Related links: Tough To Treat Website Erica's Course: Decoding the Complex Patient Susan's Pelvic Health Education Subscription Access the Transcript  

What is the cause of bilateral calf pain in this young fencer? From start to finish, it shows the power of a thorough evaluation, a specific exercise progression, and a return to the sport she loves. When it comes to exercise progression in persistent pain, think about context. How can you improve optimal movement patterning by changing the context? Think about this one. You can intervene via the visual system, eyes open, eyes closed. How about changing their base of support? Wide to narrow. And why not have them do their exercises to their favorite music? These are just some examples. Look at your patients through a different lens and then you'll see positive change.   A glance at this episode: [0:01] Diaphragm function, GI dysfunction, and postural control [7:51] GI dysfunction and its impact on abdominal wall muscles and posture [13:39] Abdominal dysfunction and diaphragm movement in relation to chronic low back pain [20:36] Treating chronic low back pain through abdominal wall retraining [25:09] Abdominal wall deficit and diaphragm dysfunction in chronic low back pain patients [32:07] Treating gas and bloating through diaphragm therapy 36:32] Treating GI dysfunction through breathwork and positioning Related links: Tough To Treat Website Erica's Course: Decoding the Complex Patient Susan's Pelvic Health Education Subscription Access the Transcript  

Welcome to Season 5 and Episode 75 of the Movement Logic podcast! In this episode, Laurel and Sarah are joined by Nikki Naab-Levy, strength coach and hypermobility specialist.You will learn: What is hypermobility and how does it differ from flexibility What are the Ehlers-Danlos Syndromes and how do they differ from Hypermobility Spectrum Disorder Who can and can't diagnose hypermobility Whether hypermobile people should never lock out their joints What are the most important considerations when working with hypermobile clients The negative consequences of catastrophizing positions as safe or unsafe Why social media focuses on the wrong issues for hypermobile people Strategies for hypermobile people to sense what level of activity they should undertake on any given daySign up here to get on the waitlist for our next Bone Density Course in October 2024!Reference links:Nikki Naab-Levy on InstagramNikki Naab-Levy's website

Just because your body CAN do something doesn't mean that it should! Were you one of those kids who was always crazy flexible? Do you go to the chiropractor because you're afraid of getting worse, not because you're actually seeing any improvement? Taylor Goldberg, a chiropractor and hypermobility coach who has dedicated her career to supporting people with hypermobility, EDS and dysautonomia, honestly answers the controversial question, “Is chiropractics a pseudoscience?” In this episode, she breaks down the four types of hypermobility, diving deep into each one and identifying common symptoms. She shares her wealth of knowledge in the field, citing tangible day-to-day tips for folks with symptomatic hypermobility, HEDS, and EDS. Taylor truly understands the profound struggle behind these conditions and will leave you feeling armed with the information to fit the puzzle pieces of your own story together.   HERE'S THE JUICE:  Why Europe's medical practice should serve as a model for the US The importance of combining BOTH Western and functional medicine to create more patient-centered care If there are actual benefits to getting adjusted at a chiropractor or if it's placebo  The 4 types of hypermobility and why hypermobility isn't the same as flexibility Why asymptomatic hypermobility could become symptomatic post COVID or pregnancy The big signs that you may have HEDS/EDS, like blood flow issues  Why strength training can be so incredibly beneficial to folks with HEDS/EDS Exact triggers for HEDS/EDS flares and how to manage them   Connect with Taylor Goldberg: Taylor's IG Taylor's TikTok   Connect with Olivia: Organic Olivia's IG Olivia's personal IG Organic Olivia's TikTok Read Olivia's blog posts   Shop my full line of herbalist-formulated medicinal blends: HERE   LINKS MENTIONED: thehypermobilechiro.com

Natalie from the US shares her Eds (hypermobile syndrome), pots, monoclonal mast disease experience with us.

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5!Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

Welcome back, every Bendy Body! In this special episode, I wrap up season four and share exciting plans for season five. Join me as I reflect on our journey, from focusing on high-risk populations like dancers and gymnasts to diving deep into medical topics. Listen in for gratitude-filled shoutouts from our wonderful listeners as I read their heartwarming reviews! See you soon for Season 5!Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS.  They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body.TakeawaysChronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy.Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response.The brain's priority is survival, which can lead to maladaptive responses and chronic illness.The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day.An independent audit looked at 16 different conditions for three months.  They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivitiesClinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems.The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels.Some individuals may experience temporary worsening during the program, but with support and a balanced approach, positive results can be achieved.Healing and recovery are possible, and the brain's neuroplasticity allows for rewiring and improvement in various chronic conditions.Making friends with your body and accepting hypermobility as an attribute can shift your perspective and contribute to healing.The Gupta Program offers a free 28-day trial and a one-year money-back guarantee, making it accessible and low-risk for individuals seeking relief from chronic illnesses.Chapters ➡00:00 Introduction and Background01:43 The Impact of Chronic Conditions04:05 Understanding Brain Retraining05:21 The Brain's Priority: Survival09:40 The Vicious Cycle of Symptoms12:46 The Gupta Program16:28 Neuroimmune Conditioned Syndromes30:33 Time commitment for results33:07 Somatic retraining and brain structures34:23 Recommending brain retraining to patients36:06 Addressing the software issues37:58 Effectiveness of medications with brain retraining39:08 Duration of the program41:50 Potential worsening during the program43:15 Final thoughts and hope for healing45:28 Neuroplasticity and changing the brain51:22 Hypermobility hack: Make friends with your body52:30 Where to find more information about the program58:18 Duration and cost of the program59:25 Accessibility and money-back guaranteeConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS.  They discuss the impact of chronic conditions, the brain's priority of survival, and the vicious cycle of symptoms. Ashok explains the Gupta Program, which aims to make patients aware of subtle danger signals in the brain and retrain the brain's response. They also explore the concept of neuroimmune conditioned syndromes and address common myths about brain retraining. With a focus on hypermobility, they discuss the time commitment required to see results, different ways to engage with the program, the importance of somatic retraining and its impact on brain structures, and how clinicians can recommend brain retraining to their patients without sounding like gaslighting. They also explore the duration of the program, potential worsening during the program, and the accessibility and cost of the program. The conversation ends with a discussion on the power of neuroplasticity and a hypermobility hack to make friends with your body.TakeawaysChronic conditions often accompany joint hypermobility and can have a significant impact on individuals and the global economy.Brain retraining involves making patients aware of subtle danger signals in the brain and retraining the brain's response.The brain's priority is survival, which can lead to maladaptive responses and chronic illness.The Gupta program has shown promising results in improving symptoms and overall health in various conditions. Brain retraining requires a time commitment of at least 20 to 30 minutes a day, along with short exercises throughout the day.An independent audit looked at 16 different conditions for three months.  They found improvement of 84% with Long COVID, 116% with Lyme disease, 67% with mold illness, and 85% with chemical sensitivitiesClinicians can recommend brain retraining by emphasizing that it is not in the mind but in the brain, and that the brain is triggering the immune and nervous systems.The program is a minimum six-month commitment, but some people may continue for longer to maintain their progress and manage stress levels.Some individuals may experience temporary worsening during the program, but with support and a balanced approach, positive results can be achieved.Healing and recovery are possible, and the brain's neuroplasticity allows for rewiring and improvement in various chronic conditions.Making friends with your body and accepting hypermobility as an attribute can shift your perspective and contribute to healing.The Gupta Program offers a free 28-day trial and a one-year money-back guarantee, making it accessible and low-risk for individuals seeking relief from chronic illnesses.Chapters ➡00:00 Introduction and Background01:43 The Impact of Chronic Conditions04:05 Understanding Brain Retraining05:21 The Brain's Priority: Survival09:40 The Vicious Cycle of Symptoms12:46 The Gupta Program16:28 Neuroimmune Conditioned Syndromes30:33 Time commitment for results33:07 Somatic retraining and brain structures34:23 Recommending brain retraining to patients36:06 Addressing the software issues37:58 Effectiveness of medications with brain retraining39:08 Duration of the program41:50 Potential worsening during the program43:15 Final thoughts and hope for healing45:28 Neuroplasticity and changing the brain51:22 Hypermobility hack: Make friends with your body52:30 Where to find more information about the program58:18 Duration and cost of the program59:25 Accessibility and money-back guaranteeConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients.  Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.TakeawaysHealthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms. Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.Treatment approaches for EDS are discussed. Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.Chapters ➡00:00 Introduction and Celebration of 100 Episodes25:52 Understanding and Empathizing with Patients' Struggles36:40 The Top Three Concerns Among EDS Patients41:20 The Most Effective Treatment Approaches for EDS44:23 The Role of Mast Cell Activation Syndrome (MCAS)52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness1:05:21 Improving Quality of Care for Everyone01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your BodyConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the need for healthcare professionals to understand and empathize with the struggles of patients with hypermobility conditions. Dr. Bluestein discusses the symptom burden experienced by individuals with EDS and the challenges they face in getting their symptoms understood and validated by healthcare professionals. She shares her approach to treatment as well as the top three concerns among EDS patients.  Dr. Linda Bluestein and guest host Kate Colbert discuss the importance of effective communication between doctors and patients, and the need for healthcare professionals to understand the patient's perspective. Dr. Bluestein shares her goals for the Bendy Bodies podcast and they end with a hypermobility hack for traveling with EDS.TakeawaysHealthcare professionals should strive to understand and empathize with the struggles of patients with hypermobility conditions and recognize their heroic efforts in managing their symptoms. Offering the correct dose of hope is difficult, as it is important to be responsible and not oversimplify the complexities of hypermobility conditions.Individuals with EDS often experience a high symptom burden, including pain, fatigue, and gastrointestinal symptoms.Getting symptoms understood and validated by healthcare professionals can be challenging for EDS patients.Empathy and understanding from both patients and doctors are crucial in managing EDS symptoms.Treatment approaches for EDS are discussed. Effective communication between doctors and patients is essential for better care. Patients can learn how to communicate better and doctors can understand how patients think.The Bendy Bodies podcast aims to improve care for people with symptomatic joint hypermobility, educate healthcare professionals, and support nonprofit organizations.Patients, caregivers, advocates, and medical professionals can contribute to the EDS community by representing it well, sharing their stories, and spreading awareness about the podcast.Chapters ➡00:00 Introduction and Celebration of 100 Episodes25:52 Understanding and Empathizing with Patients' Struggles36:40 The Top Three Concerns Among EDS Patients41:20 The Most Effective Treatment Approaches for EDS44:23 The Role of Mast Cell Activation Syndrome (MCAS)52:12 How an EDS Doctor can Facilitate a Patient's Healthcare Team01:03:16 The Future and Goals of the Bendy Bodies Podcast: Improving Care and Spreading Awareness1:05:21 Improving Quality of Care for Everyone01:14:05 Hypermobility Hack: Packing Heavy and Lightening the Burden on Your BodyConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey.  She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome).  #dysautonomia #ChronicIllness #POTSAwareness TakeawaysGetting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis.Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding.Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace.Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need.Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities.Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life.Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment.Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure.It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts.The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident.Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack. Chapters ➡00:00 Introduction and Background08:01 Supportive Coworkers and Accommodations16:01 Benefits of Remote Work32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure49:39 The Role of Technology in a Car Accident56:11 The Support System: Family, Friends, and Coworkers01:06:31 Valuing Oneself and Advocating in the WorkplaceConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey.  She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome) and EDS (Ehlers-Danlos Syndrome).  #dysautonomia #ChronicIllness #POTSAwareness TakeawaysGetting a POTS diagnosis can be challenging, and it often takes multiple visits to different doctors before receiving a proper diagnosis.Awareness about POTS among doctors has improved over the years, but there is still a need for more education and understanding.Finding supportive coworkers and a job that accommodates your symptoms is crucial for managing a chronic illness in the workplace.Open and honest communication is key when asking for accommodations, and providing informed reasoning behind the request can help employers understand the need.Remote work has opened up opportunities for individuals with chronic illnesses, allowing them to work in a way that suits their symptoms and abilities.Managing the unpredictability of POTS requires self-compassion and finding strategies that work for you, even if it may not always feel graceful. Know your limits and make decisions based on your boundaries to remain reliable in work and personal life.Accepting a lifelong condition can be challenging, but it allows for a more realistic approach to treatment.Genetic research and advancements in technology provide hope for future awareness, treatment, and potentially a cure.It's important to be honest and transparent about the realities of chronic illnesses to better prepare patients for their journey. Technology played a crucial role in Summer's car accident, with her Apple Watch automatically calling 911 and alerting her emergency contacts.The support and care from family, friends, and coworkers were instrumental in helping Summer through the aftermath of the accident.Summer's experience highlights the importance of valuing oneself and advocating for accommodations in the workplace and she shares her favorite hypermobility hack. Chapters ➡00:00 Introduction and Background08:01 Supportive Coworkers and Accommodations16:01 Benefits of Remote Work32:09 The Impact of Ehlers-Danlos Syndrome on Treatment Approach42:25 Hope for the Future: Advances in Awareness, Treatment, and Cure49:39 The Role of Technology in a Car Accident56:11 The Support System: Family, Friends, and Coworkers01:06:31 Valuing Oneself and Advocating in the WorkplaceConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them..

SummaryDr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease.  TakeawaysInfections can trigger mast cell reactions and people with MCAS may react differently than those without.Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS. Immunotherapy for allergies and asthma may impact MCAS symptoms. Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.  Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms.Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish.Testing mercury levels can help identify potential toxicity and guide treatment.Antihistamines can be beneficial for managing MCAS symptoms and should not be feared.Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs.Finding healthcare providers who understand and can effectively treat MCAS is crucial.Chapters ➡00:00 Introduction to MCAS and Dr. Tanya Dempsey02:28 Infections and MCAS14:31 Immune Deficiency and Infections28:37 Environmental Triggers37:00 Air Purification and Food Quality42:01 Quality of Meat vs. Pesticide-Free Vegetables43:11 Fish as an Alternative to Meat44:32 Toxins in Fish and Mercury Levels46:02 Detoxing Mercury and Sushi Concerns47:08 Reactions to Sushi and Scombroid Food Poisoning48:43 Sensitivity to Scents and Environmental Triggers49:30 Long-Term Antihistamine Use and Dementia52:21 Reactions to Laundry and Facial Products56:23 Treatment Options after Failing Xolair57:12 Food Dyes and MCAS58:18 EMFs and MCAS59:22 Why Some Doctors Fail to Believe in MCAS01:03:41 Immunotherapy for Allergies and MCAS01:04:56 Managing Heat, Sun, and Exercise Triggers01:09:54 Diagnosing MCAS and Lab Testing Challenges01:11:20 Final Thoughts and Finding AnswersConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

SummaryDr. Tania Dempsey discusses mast cell activation syndrome (MCAS) with a focus on environmental triggers of mast cell disease.  TakeawaysInfections can trigger mast cell reactions and people with MCAS may react differently than those without.Identifying and addressing environmental triggers, such as mold and plastics, is important in managing MCAS. Immunotherapy for allergies and asthma may impact MCAS symptoms. Treatment options like Xolair (Omalizumab), ketotifen, cromolyn, and low dose naltrexone (LDN) are discussed.  Nutrition, particularly protein intake, supports overall health and affects MCAS symptoms.Fish can be a good source of protein, but it is important to be aware of mercury levels and choose smaller fish.Testing mercury levels can help identify potential toxicity and guide treatment.Antihistamines can be beneficial for managing MCAS symptoms and should not be feared.Individuals with MCAS may have sensitivities to scents, environmental triggers, and EMFs.Finding healthcare providers who understand and can effectively treat MCAS is crucial.Chapters ➡00:00 Introduction to MCAS and Dr. Tanya Dempsey02:28 Infections and MCAS14:31 Immune Deficiency and Infections28:37 Environmental Triggers37:00 Air Purification and Food Quality42:01 Quality of Meat vs. Pesticide-Free Vegetables43:11 Fish as an Alternative to Meat44:32 Toxins in Fish and Mercury Levels46:02 Detoxing Mercury and Sushi Concerns47:08 Reactions to Sushi and Scombroid Food Poisoning48:43 Sensitivity to Scents and Environmental Triggers49:30 Long-Term Antihistamine Use and Dementia52:21 Reactions to Laundry and Facial Products56:23 Treatment Options after Failing Xolair57:12 Food Dyes and MCAS58:18 EMFs and MCAS59:22 Why Some Doctors Fail to Believe in MCAS01:03:41 Immunotherapy for Allergies and MCAS01:04:56 Managing Heat, Sun, and Exercise Triggers01:09:54 Diagnosing MCAS and Lab Testing Challenges01:11:20 Final Thoughts and Finding AnswersConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

In this episode of the Pilates Lounge, host Katie Crane sits down with international advocate and movement therapist Jeannie Di Bon to discuss Ehlers-Danlos Syndrome (EDS) and hypermobility. Jeannie shares her journey of receiving an EDS diagnosis later in life after years of unexplained symptoms. She explains what EDS is, the different types, and how it can affect the entire body through the connective tissue.   Jeannie discusses common EDS presentations in the muscular-skeletal system and varying degrees of severity from mild to severe. She also addresses important myths and misconceptions surrounding EDS.    You will learn how EDS can impact Pilates clients and gain insight into modifying exercises. This episode provides valuable information for movement professionals on understanding and working with those with EDS and hypermobility. Takeaways   EDS is a connective tissue disorder that impacts collagen formation throughout the body, leading to issues in multiple systems like digestive, cardiac, and autonomic. This wide-ranging impact is what makes EDS so complex.    Symptoms of EDS can remain dormant for years and suddenly emerge during times of stress, hormonal changes, or illness. This unpredictable nature of EDS makes diagnosis challenging.   Hypermobile joints don't always mean flexibility - the tightness many EDS clients feel is a result of overworked muscles trying to compensate for unstable joints. This tightness-hypermobility paradox must be addressed.   Pilates can help EDS clients gain proprioception and find stability within their muscles rather than relying on end-range joint positions. Small modifications allow safe strengthening.   EDS awareness is still growing, and many clients face years of dismissal before diagnosis. Movement professionals can help empower clients by validating experiences and addressing common misconceptions. If you work with clients, be on the lookout for signs of hypermobility or EDS. While EDS presents differently for everyone, increased awareness can help more people find appropriate support.    Consider exploring Jeannie's resources to deepen your understanding of EDS and hypermobility. Her books, videos, and online programs provide valuable education that can enhance your ability to empower clients by addressing their specific needs and debunking common myths.   Make the effort to continually learn about conditions you may encounter in your practice. An open and inclusive approach is key to making Pilates welcoming and beneficial for all.   For you to connect with Jeannie Website: www.jeanniedibon.com  Instagram:  jeannie_di Instagram Twitter: @jdibon Twitter YouTube: Jeannie Di Bon Hypermobility Channel  Don't forget to check out my website thepilatesprofessional.com.au for workshops and my six-month reformer teacher training mentor program. I believe that reformer training is a crucial missing link in our industry, and I'm here to provide comprehensive and recognized training for aspiring reformer instructors. Thank you for joining me in The Pilates Lounge. I'm Katie Crane, your Pilates professional, and I'll see you in the next episode! Take advantage of your gift! Claim it now here: https://www.thepilatesprofessional.com.au/free-gift   Subscribe to our biweekly Pilates Muse newsletter for exclusive updates. https://www.thepilatesprofessional.com.au/the-pilates-muse-publication

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs ofEhlers-Danlos Syndromes.Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need.  She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes. They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members. Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.TakeawaysEDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children. Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.Early intervention and appropriate treatment are crucial for better patient outcomes. Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.Chapters ➡00:00 Introduction and EDS Awareness Month09:30 Identifying Hypermobility Conditions in Children31:06 Early Intervention and Appropriate Treatment42:04 Supporting Individuals with EDS in the Workplace54:59 The Importance of Awareness and Empathy for EDS and Related ConditionsConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast, founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs ofEhlers-Danlos Syndromes.Dr. Bluestein emphasizes the importance of EDS awareness, as many people are still not getting the evaluations and care they need.  She also debunks several myths about EDS, including the misconception that EDS does not cause pain and that only geneticists can diagnose it. She emphasizes the importance of early intervention and appropriate treatment for better patient outcomes. They cover the importance of understanding Mast Cell Activation Syndrome (MCAS), the challenges faced by individuals with EDS in their relationships, and how to communicate with romantic partners and family members. Colbert and Dr. Bluestein also discuss the impact of EDS in the workplace and provide tips for employers and coworkers to support individuals with EDS. The conversation emphasizes the need for awareness, empathy, and support for individuals with EDS and other poorly recognized conditions.TakeawaysEDS Awareness Month is an opportunity to educate and spread awareness about Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and associated conditions.Healthcare professionals should listen to their patients and believe them, even if a clear diagnosis is not yet established.Teachers, daycare providers, and nannies can play a crucial role in identifying hypermobility conditions in children. Coaches and athletic instructors should be aware of the signs of EDS in athletes and dancers and provide resources for further evaluation and support.Several myths about EDS, such as the misconception that EDS does not cause pain and that only geneticists can diagnose it, should be debunked.Early intervention and appropriate treatment are crucial for better patient outcomes. Mast Cell Activation Syndrome (MCAS) is an important condition to consider in individuals with environmental sensitivities, even if their tryptase levels are not elevated.Understanding and empathy are crucial in relationships where a partner has EDS or HSD, as the condition can cause dynamic disability and varying needs.Communication is key in relationships, and using mirroring techniques and talking boundaries can help improve understanding and compassion.Employers and coworkers should show support and offer accommodations to individuals with EDS, such as checking in with them, providing grace, and making the workplace more accessible.Increasing awareness about EDS and related conditions is essential to foster empathy, support, and better partnerships in healthcare, workplaces, and society.Chapters ➡00:00 Introduction and EDS Awareness Month09:30 Identifying Hypermobility Conditions in Children31:06 Early Intervention and Appropriate Treatment42:04 Supporting Individuals with EDS in the Workplace54:59 The Importance of Awareness and Empathy for EDS and Related ConditionsConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.TakeawaysThe way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms.Shifting the mindset from seeing an injury as a disaster to viewing it as a challenge can help dancers overcome the emotional and psychological challenges of injury.Social support plays a crucial role in the recovery process for dancers.Dancers should define success in ways that are within their control, rather than relying solely on external validation.Transitions between different forms of dance or giving up dancing altogether can be challenging, and it's important for dancers to have a strong sense of identity beyond being a dancer. Consider your values and what truly matters to you in life when transitioning out of dance.Reflect on who you admire and what you admire about them to identify your own values.Acknowledge and process the grief and loss that comes with leaving a dance career.The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete.Developing mental skills and self-awareness is crucial for dancers and beneficial for everyone.Chapters ➡00:00 Introduction00:54 Introducing Dr. Chelsea Pierotti01:13 Coping with Injuries03:38 Coping Mechanisms06:34 The Influence of Childhood Experiences08:29 Developing Resilience09:48 Transitioning from Dance12:11 The Role of Pain13:09 Challenges Faced by Hypermobile Dancers13:23 Supporting Dancers through Challenges17:49 The Importance of Social Support18:43 Grief and Loss of a Dance Career20:34 Developing Resilience and Coping Strategies24:57 The Importance of Values27:52 Shifting the Dance Culture29:25 Coping with Career Shifts33:22 Positive Coaching Approach35:55 Developing Mental Skills36:51 Applying Mental Skills to Life37:24 The Importance of Self-Awareness in Dance38:25 Mindset: Controlling the ControllablesConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.TakeawaysThe way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms.Shifting the mindset from seeing an injury as a disaster to viewing it as a challenge can help dancers overcome the emotional and psychological challenges of injury.Social support plays a crucial role in the recovery process for dancers.Dancers should define success in ways that are within their control, rather than relying solely on external validation.Transitions between different forms of dance or giving up dancing altogether can be challenging, and it's important for dancers to have a strong sense of identity beyond being a dancer. Consider your values and what truly matters to you in life when transitioning out of dance.Reflect on who you admire and what you admire about them to identify your own values.Acknowledge and process the grief and loss that comes with leaving a dance career.The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete.Developing mental skills and self-awareness is crucial for dancers and beneficial for everyone.Chapters ➡00:00 Introduction00:54 Introducing Dr. Chelsea Pierotti01:13 Coping with Injuries03:38 Coping Mechanisms06:34 The Influence of Childhood Experiences08:29 Developing Resilience09:48 Transitioning from Dance12:11 The Role of Pain13:09 Challenges Faced by Hypermobile Dancers13:23 Supporting Dancers through Challenges17:49 The Importance of Social Support18:43 Grief and Loss of a Dance Career20:34 Developing Resilience and Coping Strategies24:57 The Importance of Values27:52 Shifting the Dance Culture29:25 Coping with Career Shifts33:22 Positive Coaching Approach35:55 Developing Mental Skills36:51 Applying Mental Skills to Life37:24 The Importance of Self-Awareness in Dance38:25 Mindset: Controlling the ControllablesConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.TakeawaysIntegrative medicine takes a holistic approach to health, focusing on achieving overall well-being rather than just managing symptoms.Pain management should involve a comprehensive care plan that includes movement, education, nutrition, sleep, psychosocial support, modalities, medications, and supplements.Understanding pain neuroscience can help patients reframe their perception of pain and explore non-pharmacological strategies for pain relief.Nutrition plays a crucial role in reducing chronic pain and inflammation, and a whole-food, plant-based diet is recommended.Modalities such as acupuncture and manual therapies can provide effective pain relief and should be considered as part of a comprehensive pain management plan. Developing healthy movement habits is crucial for optimal movement.Heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi can provide pain relief.Managing diet and reducing mast cell activation can help alleviate stress response.Laser therapy, ozone injections, and shockwave therapy may be effective for pain management.Caution is needed when considering the use of medications and supplements.Interventional pain management should be approached with strict criteria and careful consideration.Regenerative medicine shows promise but requires further research and careful selection of providers.Chapters ➡00:00 Introduction to Dr. Heather Tick02:05 Understanding Integrative Medicine07:41 Redefining Pain Management10:31 The Importance of Education in Pain Care12:58 The Role of Nutrition in Pain Relief21:53 Exploring Different Modalities for Pain Relief53:56 Impact of Habits on Movement55:11 Benefits of Tai Chi56:34 Connective Tissue and Movement57:37 Role of Mast Cells in Stress Response58:10 Effectiveness of Laser Therapy01:00:35 Usefulness of Ozone Injections01:02:03 Effectiveness of Shockwave Therapy01:03:13 Overprescribed and Underutilized Medications01:03:44 Importance of Stopping Medications01:04:32 Impact of Proton Pump Inhibitors01:05:37 Role of Gut in Producing Neurotransmitters01:06:34 Importance of B Vitamins and Coenzyme Q1001:17:26 Evaluation of Interventional Pain Management01:19:16 Risks of Steroid Injections01:21:26 Appropriate Use of Regenerative Medicine01:25:30 Determining the Expertise of Medical Professionals01:31:28 Differentiating Flares from New Problems01:33:48 Challenges of IV Infusions and Regenerative MedicineConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints.  She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility.  Watching this episode on YouTube is recommended since there are some graphics used.  TakeawaysProper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.Chapters ➡00:00 Introduction01:22 Background and Interest in Hypermobility11:56 Neurological Interest and Stroke Recovery16:23 Traditional Physical Therapy Approaches25:24 Importance of Bracing and Supports39:18 Feet and Ankle Support40:28 Pelvis Support43:32 Neck Braces51:46 Dispensing DME and Bracing56:56 Carrying Products in the Clinic01:02:59 Final Thoughts and ResourcesConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. TakeawaysThe book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.Chapters ➡00:00 Introduction and Background01:58 Motivation for Writing the Book03:28 Challenges in Managing EDS and HSD06:08 Different Types of Hypermobility and Connective Tissue Disorders07:35 Approaching Physical Therapy for EDS and HSD09:21 Primary Treatment Approach and Identifying Key Issues21:04 Approaching Physical Therapy with Overlapping Problems22:48 Non-Linear Path of Physical Therapy31:01 Modifying Movement for Gentle Exercise31:21 Addressing Deconditioning and Weakness35:13 Neural Rehabilitation and Muscle Firing36:09 Steps to Successful Strengthening40:18 Expanding the Toolkit for Physical Therapy43:13 Approaching Stabilization and Alignment56:32 Hypermobility HacksConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.TakeawaysPhysical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.Open communication with the physical therapist and realistic expectations are essential for success.Chapters ➡00:00 Introduction to Dr. Lillian Holm01:15 What can physical therapy do for people with symptomatic joint hypermobility?04:19 Reasons why physical therapy may not lead to expected outcomes09:09 How to find the best possible physical therapist for EDS and HSD11:58 Misconceptions about physical therapy for joint hypermobility21:25 Approach for people who don't like to exercise25:41 Resetting the boom and bust cycle35:23 Metrics for measuring success in physical therapy50:18 Progress and Setbacks52:47 Balancing Stretching with Strengthening56:22 Starting to Walk Again58:12 Physical Therapy for Scoliosis01:01:04 Resources and Information01:02:23 Hypermobility HacksConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more. TakeawaysHand pain, weakness, and injuries are common in individuals with joint hypermobility.Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.Ring splints can provide support and stability for hypermobile joints in the hands.Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Chapters00:00 Introduction and Overview01:38 Difference between Occupational and Physical Therapy04:44 Common Reasons for Hand Pain in Connective Tissue Disorders09:53 Approach to Hypermobility in Hands12:46 Strengthening Hands with TheraPutty20:55 Strengthening Hands without Overdoing It21:27 Reasons Traditional Therapies May Not Work for Hand Pain24:08 Low Profile Hand Support Options28:23 Ring Splints and Insurance Coverage38:34 Ring Splints and Plastic Splints40:33 Hand Exercises for Different Age Groups42:33 Avoiding Strain and Hyperextension45:21 Tips for Traveling with Hand Problems47:51 Challenges of the Medical System for Chronic Pain51:22 Hand Pain with Writing53:52 Hand Pain and Numbness in Sleep56:16 Thumb Pain and De Quervain's Tendonitis59:17 Cubital Tunnel Syndrome01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)01:06:14 Decuervain's Tendonitis01:09:17 TFCC Tear01:13:32 Trigger Finger01:17:31 Differentiating Trigger Finger from Subluxation01:18:38 Pulley Injuries in Rock Climbers01:19:25 Hypermobility Misdiagnosis01:20:46 Hypermobility HacksConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about causes of brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute to cognitive dysfunction and the importance of identifying underlying causes. Dr. Ruhoy emphasizes the need for a comprehensive evaluation and individualized treatment approach for patients experiencing brain fog.  They delve into the role of nutrition in cognitive function, emphasizing the impact of food choices on inflammation. They highlight the importance of avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors.  Dr. Ruhoy shares surprising findings on the MRI of mast cell activation syndrome (MCAS) patients. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysBrain fog is characterized by cognitive difficulties such as slow thinking, difficulty learning and recalling information, and trouble focusing and paying attention.Conditions such as mast cell activation syndrome (MCAS), craniocervical instability (CCI), dysautonomia, Ehlers-Danlos Syndromes, and CSF leaks can contribute to cognitive dysfunction and brain fog.Intracranial hypertension (high pressure), hypotension (low pressure), and Tarlov cysts can also contribute to brain fog. Identifying the underlying causes of brain fog is crucial for developing an effective treatment plan.A comprehensive evaluation, including medical history, imaging studies, and laboratory tests, can help determine the contributing factors and guide treatment decisions. Applying knowledge gained from podcasts and research in clinical practice can help healthcare professionals provide better care to their patients.Making a meaningful difference in patients' lives is a rewarding aspect of being a healthcare professional.Nutrition plays a crucial role in cognitive function, and food choices can either be anti-inflammatory or pro-inflammatory.Avoiding processed foods and sugar, increasing vegetable consumption, and improving lifestyle factors can positively impact cognitive function.Chapters00:00 Introduction of Dr. Ilene Ruhoy01:57 Defining Brain Fog04:14 Risk Factors for Brain Fog09:42 Identifying Contributing Factors11:52 Cognitive Dysfunction and Mast Cell Activation Syndrome14:09 Cognitive Dysfunction and Craniocervical Instability18:18 Cognitive Dysfunction and CSF Leak22:59 Cognitive Dysfunction and Dysautonomia25:25 Cognitive Dysfunction and Upper Cervical Instability30:12 Cognitive Dysfunction and CSF Leak38:11 Applying Knowledge in Clinical Practice39:04 The Importance of Making a Meaningful Difference40:31 The Role of Nutrition in Cognitive Function42:38 The Impact of Food Choices on Inflammation43:44 Avoiding Processed Foods and Sugar44:38 The Role of Complex Carbohydrates and Dairy45:28 Increasing Vegetable Consumption46:44 Improving Lifestyle Factors47:09 Where to Find Dr. Ilene Ruhoy OnlineConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

What are hypermobile joints? Who can they affect? What are the functional implications?We dive into these questions, the research, and some information that will be helpful if your child or your clients have hypermobile joints. We also talk about some of the challenges that can be associated with hypermobility.Things like strength training, swimming, nutrition, and finding the right footwear are just a few of the strategies we talk about. Make sure to check out all of our links below!We'd love to answer your questions on the podcast! Fill out this form -> https://harkla.typeform.com/to/ItWxQNP3 Brought To You By HarklaThis podcast is brought to you by Harkla.  Our mission at Harkla is to help those with special needs live happy and healthy lives. We accomplish this through high-quality sensory products,  & child development courses.Podcast listeners get 10% off their first order at Harkla with the discount code "sensory". Head to Harkla.co/sensory to start shopping now.LinksAll Things Sensory Podcast Instagram Harkla YouTube ChannelHarkla Website - Shop Sensory Products!Harkla InstagramMuscle Tone vs. Muscle StrengthAbout Joint HypermobilityPrevalence of Joint Hypermobility in ChildrenDCD and Joint Hypermobility Mind Pump FitnessHyperVibe

How important are past events to present movement patterns and restrictions? What about past events of herniated lateral discs or hypermobility on the current presentation of the movement system? Clients can heal with faulty movement systems that can show up as new and different presentations in the future. This podcast is from a presentation that links the neuromuscular systems together and provides insight for evaluation and interventions.   A glance at this episode: [0:01] Lumbopelvic pain causes and treatment [5:02] Hip extension and lumbar spine rotation for efficient walking [8:48] Back pain and nerve root impingement [12:17] Hypermobile spine and neural patterning [16:20] Lumbar spine mobility and exercises for pain relief   Related links: Tough To Treat Website Erica's Course: Decoding the Complex Patient Susan's Pelvic Health Education Subscription Access the Transcript  

In this episode, Dr. Linda Bluestein interviews Dr. Roger Seheult about the importance of sleep for people with chronic illness, chronic pain, and joint hypermobility.  Dr Seheult, a quadruple board-certified physician with expertise in sleep medicine, discusses various topics related to sleep, including the circadian rhythm, the impact of light on sleep, the effect of blue light on sleep, ideal bedtime, the impact of electronics on sleep, the role of melatonin, and the timing of eating and its effect on sleep.  Other topics include challenges of working from home, sleep schedules and chronic illness, shifting sleep patterns, sleep apnea and its relationship with chronic illness, sleep medications, sleep watches and monitoring devices, sleep positions and joint instability, and the importance of sleep education in medical training. Dr. Seheult provides valuable insights and recommendations for improving sleep quality and managing sleep-related issues.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways:Sleep is crucial for people with chronic illness, chronic pain, and joint hypermobility.Understanding the circadian rhythm is important for optimizing sleep.Light, especially blue light, can significantly impact sleep quality.The suprachiasmatic nucleus plays a key role in regulating the sleep-wake cycle.Morning light exposure is important for setting the body's internal clock.The timing of eating can affect sleep quality.Establishing a consistent sleep schedule and avoiding late-night eating can improve sleep quality.Shifting sleep patterns can be challenging, especially for individuals with chronic illness.Sleep apnea is common in individuals with chronic illness and connective tissue disorders like Ehlers-Danlos Syndromes.Home sleep studies can be effective in detecting sleep apnea, but in-lab studies may be necessary for individuals at higher risk of central apnea.Sleep medications should be used cautiously due to potential side effects and dependency issues.Sleep watches and monitoring devices can provide valuable insights into sleep patterns and quality.Proper sleep positions, pillows, and mattresses can help alleviate joint instability and pain during sleep.Education on sleep disorders and their relationship with chronic illness should be improved in medical training.Patient advocacy and sharing information through podcasts can help raise awareness and improve access to sleep education.Chapters00:00 Introduction of Dr. Roger Seheult03:22 Understanding the Circadian Rhythm07:02 Impact of Light on Sleep09:20 The Suprachiasmatic Nucleus and its Role in Sleep09:49 The Importance of Light for People with Chronic Illness13:35 The Effect of Blue Light on Sleep15:28 Ideal Bedtime for Optimal Sleep17:25 The Impact of Electronics on Sleep19:26 The Role of Melatonin in Sleep20:05 The Importance of Morning Light23:29 The Timing of Eating and its Effect on Sleep24:00 Challenges of Working from Home and Small Meals25:20 Sleep Schedule and Chronic Illness28:57 Falling Asleep While Watching TV31:49 Sleep Apnea and Chronic Illness39:05 Sleep Apnea and Temporomandibular Dysfunction44:09 EDS and Central Sleep Apnea44:30 Elevating the Head of the Bed45:23 Alignment Problems and Breathing47:37 Sleep Medications and Side Effects1:00:15 Supplements for Sleep1:02:01 Sleep Watches and Monitoring Devices1:03:01 Sleep Positions and Joint Instability1:04:46 Paresthesias and Numbness in Sleep1:05:11 Pillow Recommendations for Cervical Instability1:07:35 Waking Up in Pain1:09:58 Sympathetic Nervous System Activation1:12:23 Safety of Melatonin1:14:49 Improving Education on EDS and HSDConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

In this episode, Professor Tiffany Lee is interviewed about service dogs and disability rights and accommodations. They discuss the Americans with Disabilities Act, the definition of disability, and disability benefits. They also explore reasonable accommodations in the workplace and education settings, as well as the challenges and advocacy involved. The conversation covers topics such as disclosing disabilities to employers and universities, getting a service dog, dealing with unresponsive disability lawyers, appealing denied disability benefits, and correcting inaccuracies in medical records. The episode provides valuable insights and guidance for individuals with disabilities navigating legal and practical aspects of their rights and accommodations. Professor Lee wanted to clarify the following points from the discussion of Social Security disability. SSI places limits on assets ($2000 for an individual) and income. SSDI does not have an asset limit but requires the recipient not be able to engage in “substantial gainful activity,” which generally acts as an income limit. There is a “Ticket to Work” program called “Choose Work” available that provides some options similar to those in the earlier “Ticket to Work” program mentioned in this episode.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key points discussed: **Americans with Disabilities Act (ADA):** The conversation explores the ADA, a crucial piece of legislation that prohibits discrimination against individuals with disabilities and mandates reasonable accommodations.**Disability Benefits:** The episode delves into disability benefits, including the process of applying, appealing denied benefits, and addressing inaccuracies in medical records.**Workplace and Education Accommodations:** Reasonable accommodations in both workplace and education settings are explored, shedding light on the challenges and advocacy involved.**Disclosure to Employers and Universities:** Professor Tiffany Lee provides insights into the considerations and potential challenges of disclosing disabilities to employers and universities.**Service Dogs:** The episode discusses obtaining a service dog and the associated considerations.**Dealing with Disability Lawyers:** Challenges related to unresponsive disability lawyers are addressed, offering guidance on how to navigate such situations.**Financial Impact of Disability:** The limitations and financial impact of applying for disability, including asset limits and restrictions on work and income, are discussed.**Flaws in the Disability System:** Issues within the disability system, such as the poverty threshold and its impact on marriage, are highlighted.**Emergency Response Accessibility:** Making disaster and emergency response accessible to people with disabilities is discussed.Overall, the episode provides an exploration of the legal, practical, and personal aspects of disability rights and accommodations, offering valuable insights and guidance for individuals with disabilities.Chapters00:00 Introduction and Overview01:14 Americans with Disabilities Act03:28 Reasonable Accommodations in the Workplace04:38 Determining Reasonable Accommodations09:07 Accommodations in High School and College11:22 Challenges with Disability Services in Education13:59 Advocating for Accommodations in Education16:36 Disclosing Disabilities to Employers and Universities19:03 Determining Job Compatibility with Accommodations21:03 Getting a Service Dog23:37 Regulations and Considerations for Service Dog Training36:33 Dealing with Unresponsive Disability Lawyers38:07 Appealing Denied Disability Benefits40:03 Legal Recourse for Undertreatment of Pain43:07 Accommodations for Productivity Standards43:45 Correcting Inaccuracies in Medical Records47:46 Knowing When to Get an Accommodation or Apply for Disability48:36 Considerations for Applying for Disability50:23 Assets and Poverty Threshold for Disability58:58 Making Disaster and Emergency Response Accessible01:02:44 Hypermobility Hack: Walking DeskConnect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

In this episode, psychologist Josh Spell discusses disordered eating in dance. Josh shares insights into the coping mechanisms behind eating disorders and offers advice for directors, teachers, and friends who suspect someone may be struggling with an eating disorder. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.YOUR guest co-host is Jennifer Milner, former professional ballet and Broadway dancer and founder of Bodies In:Motion.  TakeawaysDancers, especially those with hypermobility, are at a higher risk for developing eating disorders due to the pressure to achieve a certain body image and the overlap with other mental health issues.Eating disorders are often coping mechanisms that provide a sense of control or avoidance of difficult emotions and stressors.The dance world's emphasis on perfectionism and sacrifice can contribute to the development of eating disorders.It is important for dance studios and companies to have protocols in place for addressing eating disorders and to provide support and resources for dancers.If you suspect someone may be struggling with an eating disorder, reach out to a trusted adult or professional for guidance and support.Chapters00:00 Introduction and Welcome00:30 Introducing Josh Spell01:36 Prevalence of Eating Disorders in Dancers03:09 The Relationship Between Hypermobility and Eating Disorders05:08 Understanding Eating Disorders as Coping Mechanisms08:00 The Intersection of Eating Disorders and Other Mental Health Issues10:35 The Impact of Social Media and Diet Culture on Eating Disorders13:25 Self-Image and Body Standards in the Dance World16:19 The Influence of Social Media and Zoom on Body Image20:25 Balancing Sacrifice and Suffering in the Dance World23:00 The Role of Dance Studios and Companies in Supporting Dancers' Mental Health27:13 Steps for Directors and Teachers to Take When Suspecting an Eating Disorder32:47 Steps for Friends and Loved Ones to Take When Suspecting an Eating Disorder36:31 Steps to Take If You Suspect You Have an Eating Disorder42:18 Hypermobility Hack: Giving the Eating Disorder a Persona45:12 Where to Find Josh Spell OnlineThis important conversation with Josh Spell about disordered eating in dance will leave you feeling more knowledgeable and better equipped to handle difficult situations.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!

In this episode, psychologist Dr. Amanda Cassil discusses the unfair EDS journey (Ehlers-Danlos Syndromes) and provides strategies for effectively communicating with healthcare providers.  Dr. Cassil provides valuable insights and tools for navigating the healthcare system and improving the quality of life for individuals with chronic illnesses. In this conversation, Dr. Amanda Cassil and Linda Bluestein, MD discuss the challenges faced by patients with hypermobility disorders (like Ehlers-Danlos Syndromes) and chronic illnesses.YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysApproach advocacy from a place of compassion and understandingRegulate your nervous system and slow down to make more intentional and strategic decisionsAcknowledge and process grief as a natural part of living with chronic illnessConsult with trusted individuals and healthcare providers for guidance and support.Collaboration between patients and healthcare providers can be challenging due to the merging of different knowledge and experiences.Patients can advocate for themselves by asking doctors how to prioritize and address multiple symptoms and issues.Dialectical behavioral therapy (DBT) is an effective tool for nervous system and emotional regulation.Patients should remember that their medical journey is often unfair, but there are healthcare providers working to make systemic changes.Chapters00:00 Introduction01:04 Motivation for Giving the Talk at the EDS Society Global Conference04:14 Advocacy and the Challenges of the Healthcare System07:16 Approaching Advocacy without Blame10:27 Grief and Acceptance in Chronic Illness13:34 Key Takeaways from the Talk18:04 The Role of the Prefrontal Cortex in Chronic Illness19:12 Neurodiversity and Advocacy20:12 Presenting Research to Doctors23:02 Dealing with Suboptimal Experiences with Clinicians26:09 Processing Traumatic Experiences29:16 The Role of Grief in Chronic Illness36:09 Coping with Traumatic Experiences40:36 Presenting Research to Doctors (Continued)46:27 Navigating the Challenges of Collaboration48:07 Addressing Multiple Symptoms and Issues53:42 Dialectical Behavioral Therapy (DBT) for Nervous System and Emotional Regulation59:41 Finding Your Way Through an Unfair JourneyThis important conversation with Dr. Amanda Cassil about the unfair EDS journey will leave you feeling better equipped to handle difficult medical encounters.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.   Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Resources mentioned during the episode:https://www.STEMpsychology.comhttps://www.instagram.com/stempsychology/https://www.linkedin.com/in/drcassilhttps://drgabormate.com/book/the-myth-of-normal/https://www.resmaa.com/merchhttps://www.besselvanderkolk.com/#HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #MedicalGaslighting #BendyBuddy #HypermobilityMD  #BendyBodies #HealthAdvocacy #SupportPatients #PatientEmpowerment #HealthcareStruggles #WomenInStem #DisabledInStem 

In this Bendy Bodies with the Hypermobility MD podcast episode, making a MCAS documentary is discussed.  Distinguished participants in this collaborative effort include Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, alongside dedicated patient advocate Jill Brook.   YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Key Highlights:1. The initiative incorporates both a documentary and an online educational library strategically designed to elevate awareness surrounding MCAS, Dysautonomia, and Hypermobility Spectrum Disorders.2. Renowned healthcare professionals, namely Dr. Leonard Weinstock, Dr. Larry Afrin, Dr. Tania Dempsey, Dr. Laurence Kinsella, and Dr. Linda Bluestein, in conjunction with patient advocate Jill Brook, are pivotal contributors to this initiative.3. The documentary aspires to elucidate the myriad challenges confronted by individuals navigating the complexities inherent in the triad of syndromes, emphasizing the imperative of heightened awareness among healthcare providers to facilitate more efficacious treatment modalities.4. Dr. Afrin underscores the prevalence of MCAS and advocates for its consideration in the differential diagnosis for patients with complex medical presentations.5. The term "dystrophism" is introduced within the discourse, signifying aberrations in growth and development propelled by dysfunctional mast cells.6. Participants candidly share their experiences during the documentary's filming process, underscoring the inherent difficulty of condensing intricate information into concise soundbites.7. The timely recognition of MCAS is underscored as a critical determinant for effective treatment interventions and an enhanced quality of life.8. The team is dedicated to elucidating the nuances of MCAS, POTS, and EDS through the medium of a documentary, with the aim of providing comprehensive knowledge about these medical conditions.9. Emphasis is placed on the significance of joint hypermobility. Should it give rise to complications, it may serve as a potential indicator for dysautonomia or MCAS.10. Dysautonomia serves as an encompassing term, inclusive of conditions such as POTS and Inappropriate Sinus Tachycardia. 11. Identifying growing pains (quite literally!) associated with these conditions can be a challenging endeavor. The gradual development poses a considerable challenge for all involved.12. A fervent commitment is made towards establishing an educational repository, replete with in-depth explorations by experts, delving into the intricacies of these subjects.13. The team candidly discloses the necessity for financial support to conclude their documentary project. Their overarching objective is to disseminate awareness about MCAS, POTS, and EDS.14. The documentary, at its core, is designed to render this information easily accessible, ensuring that individuals – be they patients, families, or clinicians – can acquire a comprehensive understanding of coping with these conditions.Chapters00:00 Introduction00:37 Creating Awareness and Increasing Treatment Options03:09 The Birth of the Documentary Project05:20 Filming in New York07:19 Filming in St. Louis10:32 The Motivation to Work with Complex Patients15:49 The Journey of Recognizing MCAS17:34 The Impact of MCAS Treatment21:00 Personal Experiences and Incorporating MCAS Treatment22:42 The Need for an Educational Library25:29 The Challenge of Condensing Information26:21 Describing MCAS in Sound Bites31:10 The Importance of Raising Awareness34:42 Growth and Development Abnormalities in MCAS40:03 Main Points about Hypermobility Syndromes and Dysautonomia44:48 Partnership with LDN Research Trust51:47 Final Words and Call for Support54:26 Recognition and Treatment of Unrecognized Patients55:44 Importance of Learning and Trying56:13 Gratitude for Dedicated Doctors56:47 Closing Remarks and ResourcesConnect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://www.mcasfund.org/https://aimcenterpm.com/https://www.gidoctor.net/leonard-weinstock-mdhttps://www.ssmhealth.com/find-a-doctor/doctor-details/laurence-j-kinsella-mdhttps://www.hypermobilitymd.com/https://www.standinguptopots.org/#MCAS #film #documentary #HealthJourney #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #POTS #Dysautonomia #BendyBuddy #HypermobilityMD  #BendyBodies #UnexplainedHealthIssues #POTSsyndrome #MastCells #PainManagement  #PatientAdvocacy

In this episode, join thoracic surgeon and chest wall reconstruction expert Adam Hansen, MD, to learn about slipping rib surgery in EDS.  Well known for his innovative surgeries for slipping rib syndrome (SRS), Dr Hansen has treated close to 1000 SRS patients.  Many of his patients are challenged with Ehlers-Danlos Syndrome and other skeletal hypermobility disorders.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysSlipping rib syndrome and other chest wall disorders are often related to skeletal hypermobility.Evaluation and diagnosis of chest wall problems require a thorough physical exam and imaging, such as CT scans.Symptoms of chest wall compression syndromes include pain, breathing difficulties, and organ dysfunction.Emerging areas of discovery include posterior joint disorders and bridging cartilage separation.Self-help strategies, such as improving posture and specific exercises, can help manage chest wall problems and potentially avoid surgery. Maintaining good posture and performing exercises that strengthen the back can help alleviate slipping rib syndrome.Taping strategies and lifestyle changes, such as using lumbar pillows and sit-to-stand desks, can provide relief and improve posture.Avoid high velocity manipulation, as it can exacerbate slipping rib syndrome.Candidates for surgery should have a strong core, realistic expectations, and should reduce or eliminate the use of pain medications before the procedure.The Hansen 3.0 technique is the preferred surgical procedure for slipping rib syndrome, offering better outcomes compared to previous techniques.The surgery has a low rate of complications, with the most common being collapsed lungs, hematomas, and wound infections.There is no significant difference in outcomes between patients with hypermobility spectrum disorder and those with Ehlers-Danlos syndrome.The likelihood of recurrence or additional slipped ribs after repair is low when the surgery is performed correctly.Physicians should be aware of slipping rib syndrome and other chest wall problems and stay updated on the latest techniques and treatments. Dr. Adam Hansen teaches other surgeons how to address slipping ribs and complex chest wall reconstruction.He has built a network of surgeons around the world to provide local treatment options for patients.There is a correlation between cervical instability and slipping ribs, and both are part of the broader issue of hypermobility and skeletal disorders.Focusing on key areas for stability, such as the core, can have a significant impact on overall care and muscle strength.Chapters00:00 Introduction and Warm-up01:03 Background and Expertise of Dr. Adam Hansen03:14 Understanding Slipping Rib Syndrome and Other Chest Wall Disorders09:32 Relationship Between Chest Wall Disorders and Skeletal Hypermobility14:01 Evaluation and Diagnosis of Chest Wall Problems21:16 Symptoms and Impact of Chest Wall Compression Syndromes24:49 Emerging Areas of Discovery in Slipping Rib Syndrome28:47 Evaluation of Chest Wall Problems: Physical Exam and Imaging36:37 Abdominal Compression Syndromes and Chest Wall Disorders41:19 Self-Help Strategies and Avoiding Surgery43:48 Posture and Exercise45:09 Taping Strategies and Lifestyle Changes46:23 Avoiding High Velocity Manipulation48:08 Qualifications for Surgery51:18 Preparing for Surgery53:21 Surgical Procedures58:08 The Hansen 3.0 Technique01:01:18 Outcomes and Complications01:20:06 Hypermobility Spectrum Disorder and EDS01:21:09 Male-Female Differences01:22:11 Recurrence and Additional Slipped Ribs01:23:49 Physician Awareness and Education01:24:58 Teaching Other Surgeons01:26:05 Building a Network of Surgeons01:26:50 Correlation Between Cervical Instability and Slipping Ribs01:28:38 Hypermobility and Skeletal Disorders01:29:59 Key Areas for Stability01:30:17 Hypermobility Hacks01:31:00 Finding Dr. Adam Hansen Online01:33:33 Closing RemarksThis important conversation with Dr. Adam Hansen about surgery for slipping rib syndrome and other chest wall problems will leave you feeling more knowledgeable and with a better understanding of the key factors to consider when contemplating surgery for these painful conditions.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:http://www.youtube.com/@adamhansen6524Slipping Rib Syndrome Physical Examination   SD 480p:https://www.youtube.com/watch?v=Na69xXUZGhg

Resources mentioned in the episode:Hypermobile people have poorer digestive motility and more digestive problems hereHypermobile people have lower blood pressure and faint more often hereHypermobile people have much higher rates of anxiety, panic disorder and agoraphobia hereHypermobility is characterized by generalized increased pain sensitivity herePain in hypermobility is likely caused by central nervous system sensitization hereMaybe that's why excessive focus on body sensations contributes to pain and disability in hypermobile people hereExercise is safe and feasible for people with hypermobility hereNo evidence that any specific kind of exercise is better here and hereGeneralized exercise works just as well as targeted exercise hereHeavy strength training appears to be safe and beneficial hereExercise into the hypermobile range and exercise in neutral are equally beneficial hereConnect with Natalie Wilson on Instagram Connect with Raph on Instagram Learn more here. This podcast uses the following third-party services for analysis: Chartable - https://chartable.com/privacyAdBarker - https://adbarker.com/privacy

Alexandra Parker is a senior student at Sarah Lawrence College. Alex describes her journey to a diagnosis of Hypermobile Ehlers-Danlos Syndrome and the skepticism that she faced from medical professionals. She had to adjust emotionally and physically following her diagnosis with respect to sports. Self-advocacy has become an important part of Alex's day to day. She discusses the importance of “being believed” in a medical setting and encourages others to seek out different medical professional expertise when needed. Alex was interviewed by guest host Kelsey Crocker, a second year genetic counseling student. Links and Resources The Ehlers-Danlos Society Check out other Patient Stories podcast episodes. Read other Patient Stories on the Grey Genetics Patient Stories Page. Interested in digging deeper into the professional issues raised in the podcast? Consider joining the Patient Stories Club! Do you want to support Patient Stories? You can make a donation online! Are you looking for genetic counseling? Patient Stories is sponsored by Grey Genetics, an independent telehealth genetic counseling and consulting company. Book an appointment with a genetic counselor specialized in your area of concern. All genetic counseling appointments take place over secure, HIPAA-compliant video-conferencing or by phone. Looking for a place to collect your family history and share with relatives? Check out the FamGenix app. Grey Genetics is no longer active on social media. To receive occasional email updates, sign up for our mailing list.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/patient-stories-with-grey-genetics/message

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.'  Jill has 30 years of corrective movement expertise that forges links between the worlds of yoga, massage, athletics, and pain management. Her signature self-care fitness programs, Yoga Tune Up® and The Roll Model® are found at gyms, yoga studios, hospitals, athletic training facilities and corporations worldwide. Jill is the former anatomy columnist for Yoga Journal, has been featured in New York Times, Wall Street Journal, Shape, Women's Health, O, the Today Show, and is a contributing expert on the Oprah Winfrey Network. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.TakeawaysJill Miller's book 'Body by Breath' is a comprehensive guide to physical and emotional resilience.Bendy bodies should care about fascia because it is the organizing tissue of the entire body and affects mobility and stability.Self-mobilization and self-myofascial release are important for bendy bodies to address tension and enhance proprioception.The five P's of the parasympathetic nervous system (perspective, place, position, pace of breath, and palpation) can help induce relaxation and enhance body awareness.The low back decompression exercise using therapy balls can provide relief and improve proprioception for bendy bodies. Improving core strength and breathing is essential for hypermobile bodies.Understanding zone one, zone two, and zone three breathing can help manage pain, movement, and emotional states.Self-fascial treatments, such as deep gut and rib massage, can improve breathing and alleviate hypertonicity.Extracorporeal shockwave therapy is a non-invasive treatment that can reduce inflammation and alleviate pain.Community support and engagement are crucial for managing hypermobility.High-intensity interval training can improve aerobic capacity and overall well-being for hypermobile individuals.  It is highly recommended to have individual guidance for this.Chapters00:00 Introduction and Background03:01 Inspiration for Writing the Book09:11 Organization of the Book13:30 Why Bendy Bodies Should Care About Fascia15:40 Starting with Limited Budget19:02 Helpful Exercises for Bendy Bodies23:27 Addressing Mixed Picture of Bendiness and Stiffness28:07 The Five P's of the Parasympathetic Nervous System36:14 Low Back Decompression Exercise46:07 Improving Core Strength and Breathing51:41 Understanding Zone One, Zone Two, and Zone Three Breathing57:29 Self-Fascial Treatments for Better Breathing01:00:10 Managing Hypermobility Symptoms01:03:35 Extracorporeal Shockwave Therapy for Acute Pain01:09:10 The Power of Community and High-Intensity Interval TrainingThis important conversation with Jill Miller about using the breath to reduce pain will leave you feeling more knowledgeable and with a better understanding of the contributing factors to suboptimal pain control.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:www.tuneupfitness.comhttps://thereadystate.com/https://thereadystate.com/product/becoming-a-supple-leopard-2nd-edition/https://fasciaguide.com/experts/carla-stecco/https://jen.health/https://www.tuneupfitness.com/shop/online-course/roll-into-hiithttps://patternpt.com/https://www.youtube.com/@TuneUpFitnesshttps://www.amazon.com/Yoga-Bendy-People-Optimizing-Hypermobility/dp/B0B2TSN3W3/ref

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is Colin Halverson, PhD.  He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes. The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis. The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care. Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals. Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences. Chapters00:00 Introduction00:29 Dr. Halverson's Background and Research Interest03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome07:02 Antagonistic Relationship with Healthcare Professionals08:29 Impact of Antagonistic Relationship on Patients09:47 Triggers for Transition into Unbearable Symptoms12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome13:44 Importance of Panoply of Symptoms in Diagnosis15:22 Challenges in Describing Multi-Systemic Symptoms16:26 Numeric Pain Scales and the Complexity of Chronic Pain19:40 Research on Hypermobile Ehlers-Danlos Syndrome20:39 Research on Other Forms of Ehlers-Danlos Syndrome23:56 Failure of Empathy in Patient-Provider Relationships27:24 Worse Health Outcomes and Trust Issues28:06 Impact of Failure of Empathy on Patients30:33 Dealing with Antagonistic Relationships31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome36:12 Clinician-Associated Traumatization and its Differences from Other Constructs39:21 Surprising Aspects of the Research42:01 Recommendations for Patients with Clinician-Associated Traumatization45:01 Future Directions of Research49:04 Closing RemarksThis important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority!Products, organizations, articles, and services mentioned in this episode:https://bioethics.iu.edu/people/colin-halverson.htmlhttps://pubmed.ncbi.nlm.nih.gov/34524722/https://doi.org/10.1016/j.ssmqr.2023.100237Dr. Halverson can be reached at chalver@iu.edu.#InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, bendy bodies, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing.  Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO. YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.Takeaways Posture and alignment play a crucial role in foot pain in people with joint hypermobility. Orthotics can be an effective intervention for managing foot pain in hypermobile patients. Assessing and addressing foot pain early in children can prevent the development of other pain problems. Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition. Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture. Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment. Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain. Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility. Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain. Proper lacing techniques can help alleviate foot pain and discomfort. Lisa Ralston provides valuable insights and tips for managing foot problems. Chapters00:00 Introduction and Guest Introduction02:05 Causes of Foot Pain in People with Joint Hypermobility06:12 Approach to Hypermobility Patients08:18 Common Causes of Foot Pain10:10 Pain Begets Pain11:36 Approach to Hypermobile Patients14:59 Orthotics for Children17:02 Different Approach for Hypermobile Patients19:06 Assessment and Treatment of Foot and Ankle21:00 Shoe Selection and Tying Techniques23:19 Different Foot Types and Shoe Recommendations26:31 Importance of Firm Heel Counter in Shoes27:45 Tying Shoes Properly31:40 Recommended Shoe Brands34:53 Orthotics and Failed PT39:51 Addressing Failed PT47:51 Orthotics and Failed Orthotics53:48 Over-the-Counter Orthotics56:06 Self-Mobilization of Feet01:08:46 Hypermobility in Ice Skaters01:09:16 Hypermobility Hacks01:09:26 Foot Problems and Solutions01:10:21 Lacing Techniques for Foot Comfort01:10:54 Finding More Information OnlineThis important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:https://lisaralstonpt.janeapp.com/https://www.bauerfeind.com/b2c/https://www.oofos.com/https://www.abeofootwear.com/https://www.humanlocomotion.com/https://www.brooksrunning.com/en_uhttps://www.hoka.com/en/us/https://www.aetrex.com/homehttps://yoursole.com/ushttps://www.vasylimedical.com/https://www.birkenstock.com/ushttps://www.nike.com/https://www.saucony.com/en/homehttps://naot.com/https://www.keenfootwear.com/https://www.merrell.com/US/en/homehttps://www.chacos.com/US/en/homehttps://www.mephisto.com/us/https://www.theballetblog.com/about-us/lisa-howell/https://nyulangone.org/locations/harkness-center-for-dance-injurieshttps://www.vasylimedical.com/products/easyfithttps://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/

It's YOUR time to access information that #BendyBodies need, crave, and deserve. Medical insights, science-based information, inspiring stories, empathy and support, hypermobility hacks, and news you can use. In this episode, YOUR guest is Dacre Knight, MD.  Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.  YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD. Explored in this episode:·  What specialty evaluations are most important for patients with hypermobility syndromes·  What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD·  How they determine when to perform genetic testing and the findings in this group of patients·  How his approach has evolved since the clinic's inception in 2019·  The research that he has conducted and relevant findings·  The role of autoimmunity in EDS and HSD· Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)·  The role of the immune system in symptomatic joint hypermobility·  The relationship with fibromyalgia·  What percentage of patients are diagnosed with hEDS vs HSD·  What he says to people who assume that HSD is a less serious conditionThis important conversation about Dr. Knight's approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.  Connect with YOUR Bendy Specialist, Linda Bluestein, MD! Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at www.BendyBodiesPodcast.com. YOUR bendy body is our highest priority!Products, organizations, and services mentioned in this episode:Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic ConnectEhlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinichttps://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206https://x.com/knidac?s=21https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/fullhttps://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdfhttps://pubmed.ncbi.nlm.nih.gov/35687402/https://www.ehlers-danlos.com/https://www.ehlers-danlos.com/healthcare-professionals-directory/#BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax#SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration#InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility