Podcasts about myalgic encephalomyelitis

CW: This episode contains discussions of mental ill-health, chronic illness, and suicidality. If this raises any issues for you help is available 24/7 via Lifeline at https://www.lifeline.org.au/ or by calling 13 11 14, as well as Beyond Blue at 1300 224 636 or https://www.beyondblue.org.au.At just 16 years old Lily Schubert got sick, eventually receiving a diagnosis of Myalgic Encephalomyelitis. She was forced to drop out of school and was bedbound for six years. Her condition worsened to the point that even small exposures to light, sound, or touch would cause severe crashes. As her symptoms started to improve, she started documenting her life on TikTok, with videos of her 'firsts' reaching millions of people around the world. Lily sits down with Abbie to talk about the reality of living with ME, what helped her get through her darkest days, and why she doesn't subscribe to the 'gratitude' narrative.LINKSFollow Lily on TikTok @lilygschubertFollow Lily on Instagram @lilygschubertLily's website http://lilyschubert.com/Read Lily's Substack https://substack.com/@lilyschubertSee Abbie on tour https://linktr.ee/abbiechatfieldlovesmenSend us your thoughts, topic suggestions, NMFs and more: https://forms.gle/S5Pf327SmVnnC8CE9Check out @itsalotpod on IG at https://bit.ly/itsalot-instagram.Review the podcast on Apple Podcasts https://bit.ly/ial-reviewCREDITSHost: Abbie Chatfield @abbiechatfieldGuest: Lily Schubert @lilygschubertExecutive Producer and Editor: Amy Kimball @amy.kimballIt's A Lot Social Media Manager: Julia ToomeySocial Media and Marketing Strategist: Elizabeth Baxter Hosted on Acast. See acast.com/privacy for more information.

Broadcast from KSQD, Santa Cruz on 6-25-2026: Dr. Dawn devotes the show's opening to ivermectin for COVID. She walks through critical thinking principles—considering the source, cross-verification, and recognizing self-interested claims—before reviewing the evidence. The most-cited 2021 Bulgarian study of 300 people showing 77% reduction lacked accessible methods, and larger trials capable of detecting even small benefits failed to confirm efficacy. On safety, the standard 12mg parasitic dose every few weeks is well-tolerated due to the blood-brain barrier and efflux pumps that keep ivermectin out of the brain, but daily long-term dosing has caused encephalopathy, liver and kidney damage, and birth defects. Critical drug interactions—macrolide antibiotics, verapamil, proton pump inhibitors, and beta blockers—disable the efflux mechanism, and high-fat meals increase absorption 2.5-fold. Dr. Dawn shares two inflammation formulas calculable from any CBC. The Systemic Inflammatory Index (neutrophils × platelets ÷ lymphocytes) flags runaway inflammation: 200-500 is good, above 900 warrants investigation and correlates with worse stroke outcomes and rising tumor burden. The SIRI (neutrophils x monocytes ÷ lymphocytes) detects chronic tissue inflammation and early innate immune activation: below 500 is good, above 1500 indicates trouble and correlates with cardiovascular mortality and arterial plaque from M1 macrophage activity. Dr. Dawn shares two takeaways from the Institute for Functional Medicine annual conference: in patients at high cardiovascular risk by cholesterol, each gram daily of combined EPA/DHA produces a 9% risk reduction, with bruising as the dose-limit signal. Additionally, a 15-minute walk within 30 minutes of a meal nearly eliminates postprandial inflammation. An emailer asks whether an endocrinologist's claim that vitamin D leaches calcium from bones is true. Dr. Dawn confirms that very high vitamin D (above 150 nanograms, with concern starting above 90) elevates 1,25-vitamin D, which stimulates osteoclast formation and increases C-telopeptide markers of bone breakdown. A crowdsourced question asks how histamines work in women. Dr. Dawn explains histamine functions as a CNS neurotransmitter promoting alertness, wakefulness, and pain perception (deficient in narcolepsy), and as a GI signal driving acid secretion, motility, and visceral sensation. Gut bacteria can convert histidine to histamine, and fish left to spoil can trigger anaphylactic-like reactions from accumulated bacterial histamine. She notes stomach acid treatments Tagamet and Zantac are H2 blockers rather than the more familiar H1 antihistamines, and confirms histamine correlates with hormones but not particularly with minerals. A crowdsourced question on B vitamins for women in their mid-twenties prompts Dr. Dawn to recommend prenatal vitamins for those who might become pregnant, and B100 complex with calcium taken with a little apple cider vinegar for those on restricted diets or eating mostly fast food. Another question asks about chest versus belly breathing. Dr. Dawn explains babies demonstrate proper diaphragmatic breathing (belly protrudes on inhalation) while accessory muscle use signals fight-or-flight—or pneumonia in a non-crying infant. Chest breathing raises adrenaline; belly breathing calms it in adults. How do I stop compulsive scratching? Dr. Dawn explains neurodermatitis has its own ICD-10 code alongside compulsive nail-biting and hair-pulling, and it is diagnosed by sparing of unreachable areas like the mid-back between shoulder blades. Treatment includes nail clipping, lubricants, covering scabbed areas, and Prozac—which uniquely among antidepressants has a secondary indication for neurodermatitis. Zurich researchers combined immature human nerve cells with magnetic nanoparticles to create 6-micrometer NPC bots that can be magnetically positioned at spinal cord injury sites and then triggered by pulsatile magnetic stimulation to mature into nerve tissue. Mice with severed spinal cords regained movement and brain-muscle electrical signals by day 34 after daily 30-minute treatments. A study of 15,000 people with myalgic encephalomyelitis/chronic fatigue syndrome identified eight genetic regions distinguishing them from controls. Two relate to immune response to infection—consistent with the post-infectious onset many sufferers describe, including roughly half of long COVID patients—and others link to the nervous system and chronic pain. Dr. Dawn frames ME-CFS as an immune system stuck in the "on" position, unable to brake against an enemy that is long gone. An emailer asks about prostate biopsy approaches. Dr. Dawn explains the new transperineal biopsy (through skin between scrotum and anus) reduces post-biopsy infection from 1.5% to near zero and eliminates prophylactic antibiotics, though it requires more anesthesia and time. Cancer detection rates match the transrectal approach when both use MRI targeting, and she expects the transperineal approach to become standard.

Welcome to Season 4, Episode 11 of A Friend for the Long Haul - A Long Covid Podcast! For Week 3 of Camp Long Haul, we're exploring The Great Accessible Outdoors and this conversation changed the way I look at the plants growing outside my front door. In this episode, I got connected with April Thompson, who has had ME(/CFS - I'm adding it because a lot of people search for it when looking for help) for most of her adult life, an urban forager, artist, and founder of the Chronic Market, where you can buy "beautiful, one-of-a-kind items and unique services offered by artists, artisansand entrepeneurs around the world suffering from ME/CFS, a debilitating chronic illness.Living with ME/CFS for over 20 years, April has found a way to stay connected to nature, curiosity, and creativity by being curious what's growing around her. After a series of technology mishaps (including a waterlogged phone and a last-minute change of plans), April gives us an impromptu tour of the edible and medicinal plants she can find just steps from her home in Washington, DC. This was a really sweet introduction to urban foraging.We talk about:Urban foraging for beginnersAccessible ways to connect with nature while living with chronic illnessME, pacing, and finding meaningful hobbies within your spoonsDandelions, plantain, lamb's quarters, mugwort, wood sorrel, amaranth, mallow, and moreThe nutritional benefits of wild foodsAbout Camp Long Haul:Camp Long Haul is a low-key virtual summer camp experience for people living with Long COVID, ME/CFS, dysautonomia, chronic illness, disability, neurodivergence, and anyone whose life doesn't fit the traditional summer adventure story. Every activity is optional, asynchronous-friendly, and designed with pacing in mind.Connect with April:Instagram: @chronicmarketplaceInstagram: @prillyteehttps://aprilwrites.com/ Connect with Beth on Instagram @afriendforthelonghaulpodcastGet Camp Long Haul Merch on my Bonfire shop: https://www.bonfire.com/store/a-friend-for-the-long-haul/ Support this podcast by sharing, liking, and subscribing! If you're so inclined, I also have a summer wishlist on Amazon for our super queer, neurodivergent family. #LongCOVID #MECFS #ChronicIllness #DisabilityCommunity #UrbanForaging #Foraging #AccessibleOutdoors #NatureConnection #Pacing #Dysautonomia #MCAS #ChronicIllnessLife #DisabilityAwareness #CampLongHaul #AFriendForTheLongHaul #SpoonieLife #Gardening #CommunityCare #AccessibleAdventure #ChronicMarket

Peter interviews the Scottish sculptor-poet Alec Finlay, whose work explores how language shapes and intensifies our experience of place. In addition to his creative practice, Finlay is the author of numerous books including Gathering: A Place Aware Guide to the Cairngorms (Hauser & Wirth, 2018) and Not Sealions but Lions by the Sea (Broken Sleep Books, 2025). Beginning with Finlay's upbringing in rural Scotland and the legacy of his father, the concrete poet Ian Hamilton Finlay, the conversation follows the early experiences and influences that shaped his distinctive approach to art and poetry. Throughout, Finlay considers how the naming, voicing and hearing of place can expand our understanding of landscape beyond what is immediately visible, drawing on Scottish poetic traditions and broader philosophical questions about the role of the poet. Reflecting on his path into artistic life, Finlay discusses the evolution of his poetry across sculpture and site-specific practice. He shares how living with Myalgic Encephalomyelitis (otherwise known as Chronic Fatigue Syndrome) has profoundly influenced both his creative process and his thinking around land access. From hutopianism and ecological thinking to questions of illness and care, this conversation reflects on poetry as a mode of dwelling and a way of restoring connection to self, to others and to place.

The legendary surfer has grieved the deaths of her adoptive mother, stepmother and birth mother. Only later in life did she realise her drive to win came from a place of loss, and Layne needed to look inward to find her place off the podium.Layne is a legendary surfer who is the first person ever to win six consecutive world titles.Since her childhood spent on Sydney's Northern Beaches, Layne has loved being in the water but it wasn't until later in life that she realised her relentless drive to win came from a confusion about who she belonged with on land.Part of her drive to prove her worth and her place came from her experiences of loss.When Layne was 6 years old, her adopted mother Valerie died. Then, her step-mother Christina died after a long battle with breast cancer.Twenty years after Layne reconnected with her birth mother, Maggie, she flew to America to be by Maggie's side as she took her last breaths.Losing three mothers in one lifetime caused Layne to equate motherhood with loss and abandonment. But after retiring and learning to slow down, Layne turned inward and finally found herself along the way.Content warning: this episode of Conversations contains discussion of adoption and grief.Layne's memoir Beneath the Waves was written with Michael Gordon and published in 2009 by Penguin.Her latest book, Awake Academy, was written with Tess Brouwer and is published by Penguin.This episode of Conversations was produced by Meggie Morris. Executive Producer is Nicola Harrison.It explores grief, cancer, death, dying, surfing, pro surfers, Manly, Freshwater, Hawaii, Ken Bradshaw, Kelly Slater, Molly Picklum, Stephanie Gilmore, Kirk Pengilly, love, marriage, stepmother, motherhood, menopause, slowing down, fitness later in life, introspection, awake academy, meditation, beach, ovarian cancer, brain haemorrhage, fatherhood, Tess Brouwer, elite athletes, professional athletes.To binge even more great episodes of the Conversations podcast with Richard Fidler and Sarah Kanowski go the ABC listen app (Australia) or wherever you get your podcasts. There you'll find hundreds of the best thought-provoking interviews with authors, writers, artists, politicians, psychologists, musicians, and celebrities.

episode done at a hospital treatment. kind of a recording in the wild lol Links I mentioned Petition https://bit.ly/Marcia_petitionCanary opted December 19th 2025 https://www.thecanary.co/opinion/2025/12/19/me-void/Audit of UK Hospital Doctors' Knowledge and Experience of Myalgic Encephalomyelitis https://www.mdpi.com/1648-9144/57/9/885

Chronic Fatigue Syndrome, or Myalgic Encephalomyelitis, is a debilitating long term condition that affects around 1% of the population. We look at the signs and symptoms including diagnostic criteria, possible causes, risk factors for chronic fatigue syndrome as well as treatment of chronic fatigue syndrome. PDFs available here: https://rhesusmedicine.com/pages/neurologyConsider subscribing (if you found any of the info useful!): https://www.youtube.com/channel/UCRks8wB6vgz0E7buP0L_5RQ?sub_confirmation=1Buy Us A Coffee!: https://www.buymeacoffee.com/rhesusmedicineTimestamps:0:00 What is Chronic Fatigue Syndrome / Myalgic Encephalomyelitis 0:13 Chronic Fatigue Syndrome Symptoms1:47 Chronic Fatigue Syndrome Risk Factors2:40 Chronic Fatigue Syndrome Diagnosis3:43 Chronic Fatigue Syndrome TreatmentLINK TO SOCIAL MEDIA: https://www.instagram.com/rhesusmedicine/ReferencesYang, J., Keller, S., Lin, J.S., et al., 2022. Ginseng for the treatment of chronic fatigue syndrome: a systematic review of clinical studies. Global Advances in Health and Medicine, 11, pp.1–8. [online] Available at: https://doi.org/10.1177/2164957X221079790. SAGE JournalsTirelli, U., et al., 2021. Patients with myalgic encephalomyelitis/chronic fatigue syndrome treated with oxygen-ozone autohemotherapy. Journal of Clinical Medicine, 11(1), p.29. [online] Available at: https://www.mdpi.com/2077-0383/11/1/29. mdpi.comMerck Manuals Professional, 2025. Chronic fatigue syndrome (myalgic encephalomyelitis). [online] Available at: https://www.msdmanuals.com/professional/special-subjects/chronic-fatigue-syndrome/chronic-fatigue-syndrome. Reviewed/Revised Jul 2023; Modified Apr 2025Disclaimer: Please remember this podcast and all content from Rhesus Medicine is for educational and entertainment purposes only and is not a guide to diagnose or to treat any form of condition. The content is not to be used to guide clinical practice and is not medical advice. Please consult a healthcare professional for medical advice.

Send us a textDr. Julia Moore Vogel, PhD, MBA is Assistant Professor and Senior Program Director at The Scripps Research Institute ( https://www.scripps.edu/science-and-medicine/translational-institute/about/people/julia-moore-vogel/ ) where she is responsible for managing a broad portfolio of patient-centric health research studies, including The Long COVID Treatment Trial ( https://longcovid.scripps.edu/locitt-t/ ), a fully remote, randomized, placebo-controlled clinical trial targeting individuals with long COVID, testing whether the drug Tirzepatide can reduce or alleviate symptoms of long COVID. Prior to this current role, Dr. Vogel managed The Participant Center (TPC) for the NIH All of Us Research Program ( https://www.scripps.edu/science-and-medicine/translational-institute/translational-research/precision-medicine/index.html ) which was charged with recruiting and retaining 350,000 individuals that represent the diversity of the United States. TPC aims to make it possible for interested individuals anywhere in the US to become active participants, for example by collaborating with numerous outreach partners to raise awareness, collecting biosamples nationwide, returning participants' results and developing self-guided workflows that enable participants to join whenever is convenient for them. Prior to joining the Scripps Research Translational Institute, Dr. Vogel created, proposed, fundraised for, and implemented research and clinical genomics initiatives at the New York Genome Center and The Rockefeller University. She oversaw the proposal and execution of grants, including a $44M NIH Center for Common Disease Genomics in collaboration with over 20 scientific contributors across seven institutions. She also managed corporate partnerships, including one with IBM that assessed the relative value of several genomic assays for cancer patients. Dr. Vogel has a BS in Mathematics from Rensselaer Polytechnic Institute, a  PhD in Computational Biology and Medicine from Cornell and an MBA from Cornell. Important Episode Links - Nature Reviews Microbiology - Long COVID: major findings, mechanisms and recommendations -https://www.nature.com/articles/s41579-022-00846-2npj Digital Medicine - Long-term changes in wearable sensor data in people with and without Long Covid -https://www.nature.com/articles/s41746-024-01238-xMayo Clinic Proceedings: Innovations, Quality & Outcomes - A Randomized Trial of At-Home COVID-19 Tests, Telemedicine, and Rapid Prescription Delivery for Immunocompromised Individuals -https://www.sciencedirect.com/science/article/pii/S2542454825000384#JuliaMooreVogel #ScrippsResearchInstitute #EricTopol #LongCovidTreatmentTrial #AllOfUsResearchProgram #ComputationalBiology #NewYorkGenomeCenter #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ImmuneDysregulation #MicrovascularInjury #MetabolicDysfunction #Neuroinflammation #AutonomicDysfunction #Tirzepatide #Zepbound #RemoteClinicalTrial #Cornell #RockefellerUniversity#MemorialSloanKetteringCancerCenter #ProgressPotentialAndPossibilities #IraPastor #Podcast #Podcaster #Podcasting #ViralPodcast #STEM #Innovation #Science #Technology #ResearchSupport the show

Join Kirkus-praised poet Autumn Williams as she shares her inspiring journey of transforming chronic illness into powerful poetry. Discover how creative expression can turn personal challenges into universal stories of hope, beauty, and resilience through her bestselling collection "Clouds on the Ground".

fWotD Episode 2761: Myalgic encephalomyelitis/chronic fatigue syndrome Welcome to Featured Wiki of the Day, your daily dose of knowledge from Wikipedia’s finest articles.The featured article for Monday, 25 November 2024 is Myalgic encephalomyelitis/chronic fatigue syndrome.Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling chronic illness. People with ME/CFS experience profound fatigue that does not go away with rest, sleep issues, and problems with memory or concentration. Further common symptoms include dizziness, nausea and pain. The hallmark symptom is a worsening of the illness which starts hours to days after minor physical or mental activity. This "crash" can last from hours or days to several months.The cause of the disease is unknown. ME/CFS often starts after an infection, such as mononucleosis. It can run in families, but no genes that contribute to ME/CFS have been confirmed. ME/CFS is associated with changes in the nervous and immune systems, as well as in energy production. Diagnosis is based on symptoms and a differential diagnosis because no diagnostic test is available (diagnosis by exclusion).The illness can improve or worsen over time, but full recovery is uncommon. No therapies or medications are approved to treat the condition, and management is aimed at relieving symptoms.: 29  Pacing of activities can help avoid worsening symptoms, and counselling may help in coping with the illness. Before the COVID-19 pandemic, ME/CFS affected 2 to 9 out of every 1000 people, depending on the definition. However, many people fit ME/CFS diagnostic criteria after contracting long COVID. ME/CFS occurs more often in women than in men. It most commonly affects adults between ages 40 and 60 but can occur at other ages, including childhood.ME/CFS has a large social and economic impact, and the disease can be socially isolating. About a quarter of those affected are unable to leave their bed or home.: 3  People with ME/CFS often face stigma in healthcare settings, and care is complicated by controversies around the cause and treatments of the illness. Doctors may be unfamiliar with ME/CFS, as it is often not fully covered in medical school. Historically, research funding for ME/CFS has been far below that of diseases with comparable impact.This recording reflects the Wikipedia text as of 00:30 UTC on Monday, 25 November 2024.For the full current version of the article, see Myalgic encephalomyelitis/chronic fatigue syndrome on Wikipedia.This podcast uses content from Wikipedia under the Creative Commons Attribution-ShareAlike License.Visit our archives at wikioftheday.com and subscribe to stay updated on new episodes.Follow us on Mastodon at @wikioftheday@masto.ai.Also check out Curmudgeon's Corner, a current events podcast.Until next time, I'm neural Amy.

The Pillow Writers are an international ME/CFS writing group. They are a very friendly online group that meets to share thoughts and feelings on any topic, including, but not limited to, experience of chronic illness. They encourage a wide range of writing and have several different types of meeting each with a different emphasis. Meetings take place on Sundays, Mondays, Thursdays and Wednesdays. Click here for more details. Steven and Jaime sit down with Pillow Writers, Bobbi Ausubel, Ann Greenberger, and Laila Solaris to discuss the group's first anthology, Near-Life Experiences. This episode also includes readings by the guests, information on how to get involved with the group, their process as writers, and so much more. Pillow Writers Anthology 1: Near-Life Experiences is available now at Amazon in e-book, print, and audiobook formats. All proceeds from the sale of this book go to #MEAction. Free Giveaway!One lucky winner will receive a free paperback copy of the book (limited to US, UK, Germany, France, Japan, Canada, and Italy), and another winner will receive a free copy of the audiobook (limited to US & UK). To enter: Listen to the episode Email podcast@meaction.net by December 15th with "Pillow Writers Giveaway" as the subject heading. Please indicate whether you'd prefer the audiobook, paperback, or either version. Please include your name, and if your preference is for the paperback, please list your home address as well so we can have it delivered to the winner. The deadline for entries is December 15th. The winners will be selected the next day.

Professor Ric Arseneau MD is a clinical professor at the University of British Columbia in Vancouver, Canada, and a specialist in Internal Medicine with expertise in Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/ CFS), Fibromyalgia and Long COVID. Dr Funmi Okunola MD talks to Professor Arseneau MD about ME/CFS, Long COVID and the diagnosis and management of Postural Orthostatic Tachycardia Syndrome (POTS).REFERENCES:1.Definition of Dysautonomia2.Dr Ric Arseneau Homepage3.POTS - NASA Lean Test4 YouTube Video of Physiotherapy Management of Dysautonomia/POTS by Trineta Mohan Bhojwani

Professor Ric Arseneau MD is a clinical professor at the University of British Columbia in Vancouver, Canada, and a specialist in internal medicine with expertise in Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/ CFS), Fibromyalgia and Long COVID. He is interviewed today about ME/CFS by Dr Funmi Okunola MD.REFERENCES1. Walitt B, Singh K, LaMunion SR, Hallett M, Jacobson S, Chen K, Enose-Akahata Y, Apps R, Barb JJ, Bedard P, Brychta RJ. Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome. Nature Communications. 2024 Feb 21;15(1):907.2 Project ECHO at the University of New Mexico3 Dr Ric Arseneau Website4. ME TV 5 "Family & Friends" - ME TV Video6 2003 Canadian Consensus Criteria for ME/CFS7 2016 Definition for Fibromyalgia (FM)8 Vahratian A, Lin JM, Bertolli J, Unger ER. Myalgic encephalomyelitis/chronic fatigue syndrome in adults: United States, 2021–2022. US Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Health Statistics; 2023 Dec 1.9 "Chronic Fatigue Syndrome More Common than Previous Estimates" - Medical News Dec 202310 Hickie I, Davenport T, Wakefield D, Vollmer-Conna U, Cameron B, Vernon SD, Reeves WC, Lloyd A. Post-infective and chronic fatigue syndromes precipitated by viral and non-viral pathogens: prospective cohort study.Bmj. 2006 Sep 14;333(7568):575.

Linda Elsegood interviewing Andrea, a patient from the United States who has been taking low dose naltrexone (LDN) to manage her health concerns. Andrea has been struggling with various conditions, including postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), long Covid, fibromyalgia, and myalgic encephalomyelitis.Throughout the interview, Andrea delves into the details of her journey with LDN. She explains how her search for relief from long Covid ultimately led her to LDN, and how it has significantly improved her quality of life despite her many health concerns. Andrea expresses her gratitude for how LDN has been instrumental in helping her manage her symptoms and improve her overall health.Linda and Andrea are able to discuss the benefits of LDN in managing a wide range of health issues. Their conversation provides insight into the effectiveness of LDN as a treatment option, and the importance of finding the right approach to managing complex health conditions.

In part two of this two-part series, Dr. Jeff Ratliff talks with Dr. Avindra Nath about new research related to post-infectious myalgic encephalomyelitis/chronic fatigue syndrome. This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information.

Dr. Jeff Ratliff and Dr. Avindra Nath discuss clinical pearls and advice to better recognize and diagnose patients with post-infectious myalgic encephalomyelitis/chronic fatigue syndrome. This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information. 

Dr. Jeff Ratliff talks with Dr. Avindra Nath about new research related to post-infectious myalgic encephalomyelitis/chronic fatigue syndrome. This podcast is sponsored by argenx. Visit www.vyvgarthcp.com for more information. Disclosures can be found at Neurology.org.

Today, we're excited to bring you the first episode in a special Raise the Line series that Osmosis from Elsevier has created in partnership with the Cohen Center for Recovery from Complex Chronic Illnesses (CoRE) at the Icahn School of Medicine at Mount Sinai Hospital. PAIS: Root Causes, Drivers, and Actionable Solutions is a ten-part examination of a range of post-acute infection syndromes such as long COVID, tick-borne illness, chronic fatigue syndrome, and connective tissue disorders. Your host, Dr. Raven Baxter, a molecular biologist and Director of Science Communication at CoRE, will be joined by an impressive array of specialists in the field to explore causes, symptoms, diagnoses and treatments, as well as the devastating impact on patients who often struggle for many months or even years with a troubling span of symptoms affecting everything from muscle movement to mental health. As you'll learn in the series, diagnostic protocols are lacking for many of these conditions, leading to delayed treatment and prolonged suffering for patients. In this inaugural episode, Dr. Baxter is joined by microbiologist Dr. Amy Proal, CEO of the PolyBio Research Foundation; Yale University Professor of Immunobiology, Dr. Akiko Iwasaki; and Dr. Edward Breitschwerdt, Professor of Medicine and Infectious Diseases at North Carolina State University College of Veterinary Medicine who will discuss the Building Blocks of PAIS.Mentioned in this episode: Mount Sinai Health System Steven & Alexandra Cohen Foundation 

One year ago, we launched Universe Of Art. And to our surprise, a lot of listeners have written in since the start of the podcast, telling us about the science-inspired art they've made in their spare time. And today, we're featuring three of those listeners and their art.Our first artist is Todd Gilens, a visual artist and designer who collaborated with the city of Reno, Nevada, to create a mile-long poem, called “Confluence,” printed on the city's sidewalks bordering the Truckee River. He was interested in how water shapes landscapes, and how urban architecture can mirror those natural processes. He later found the Sierra Nevada Aquatic Research Laboratory, a University of California field station near Mammoth Lakes, and spent several field seasons with them to learn about stream ecology.Then, we'll meet Craig Colorusso, a punk rock guitarist-turned-sound artist who creates public sculptures and experiences that enhance visitors' connection to nature. Two of his projects, Sun Boxes and The Bridges At Coler, use solar panels to play reflective, calming music he composed. “You have this idea where you are in nature and you are listening to something that is powered by nature,” he said. “I think that's perfect.”And then we'll meet a listener who prefers to go by Chris, who was an engineer and avid artist who made mosaics and crocheted before developing Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome (ME/CFS). It's a debilitating condition characterized by extreme fatigue that can't be improved by rest, and can also include brain fog, pain, and dizziness. Chris' condition is considered severe, and caused her to lose the use of her hands, and thus her preferred art mediums. However, she could still use her left hand with a rollerball mouse and realized that she could use programs like Chaotica to create fractals that she adds to collages in Photoshop, resulting in the colorful and psychedelic images. “They're just beautiful and I'm doing art again and I'm so happy about it,” she said.Universe of Art is hosted and produced by D. Peterschmidt, who also wrote the music. Our show art was illustrated by Abelle Hayford. Support for Science Friday's science and arts coverage comes from the Alfred P. Sloan Foundation. Do you have science-inspired art you'd like to share with us for a future episode? Send us an email or a voice memo to universe@sciencefriday.com.

Every Saturday morning, the Weekend Breakfast Show focuses on an area of 'wellness' - health, relationships, mental health, career, home - it's all about practicing healthy habits to attain better physical and mental health outcomes. Sara-Jayne Makwala King speaks to Bettie Hough who's living with ME and Chair of ME and Long Covid Unite SA (formerly the ME CFS Foundation) as well as Professor Resia Pretorius, distinguished Professor at the Department of Physiological Sciences Stellenbosch University and an Honorary Professor at the University of Liverpool in the UK.See omnystudio.com/listener for privacy information.

The Ada Hayden Herbarium preserves hundreds of thousands of specimens, including some collected by George Washington Carver. And, as the “Universe of Art” podcast turns one, listeners discuss solar music boxes and what it's like making art with Chronic Fatigue Syndrome.Inside Iowa State's Herbarium With 700,000 Plant SpecimensHerbariums are plant libraries—they contain fragile specimens of plants collected from near and far, and they are meticulously described and cataloged so that someone can reference them in the future. At Iowa State University, the Ada Hayden Herbarium contains more than 700,000 specimens, about half of which are from Iowa.Ira talks with herbarium's director, Dr. Lynn Clark, and curator Deb Lewis about how plants are preserved, why herbariums are so important, and what it takes to manage a plant archive.Science-Inspired Art From Two ‘Universe of Art' ListenersLast week, we kicked off a first-anniversary celebration for Universe of Art, our science-meets-art spinoff podcast. A lot of listeners have written in since the start of the podcast, telling us about the science-inspired art they've made in their spare time.Last week, host D. Peterschmidt spoke with Todd Gilens, a visual designer who worked with the city of Reno, Nevada, to create a mile-long poem on the city's sidewalks about the connections between urbanism and stream ecology.This time, we'll meet two listeners. Craig Colorusso is a punk rock guitarist-turned-sound artist who creates public sculptures and experiences that enhance visitors' connection to nature. Two of his projects, Sun Boxes and The Bridges At Coler, use solar panels to play reflective, calming music he composed. “You have this idea where you are in nature and you are listening to something that is powered by nature,” he said. “I think that's perfect.”And we'll meet a listener who prefers to go by Chris, who was an engineer and avid artist who made mosaics and crocheted before developing Myalgic Encephalomyelitis, or Chronic Fatigue Syndrome (ME/CFS). It's a debilitating condition characterized by extreme fatigue that can't be improved by rest, and can also include brain fog, pain, and dizziness. It's similar to what many Long COVID patients experience. Chris' condition is considered severe, and caused her to lose the use of her hands, and thus her preferred art mediums.However, Chris could still use her left hand with a rollerball mouse and realized that she could use programs like Chaotica to create fractals that she adds to collages in Photoshop, resulting in colorful collages. “They're just beautiful and I'm doing art again and I'm so happy about it,” she said.Transcripts for each segment will be available after the show airs on sciencefriday.com. Subscribe to this podcast. Plus, to stay updated on all things science, sign up for Science Friday's newsletters.

This relaxation is a calm, low key way to reset and recover from a crash if you have post-exertional malaise (PEM) or myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). There are no background sounds in this version - just the spoken audio. This relaxation script can also be relevant for those who have long COVID, post-COVID, depression, stroke, endometriosis, fibromyalgia, multiple sclerosis, or other conditions that can cause fatigue, and for anyone who is experiencing fatigue or burnout. Because your body may be feeling uncomfortable or in pain, this ME/CFS relaxation script does not focus on the body. The script includes a long, slow-paced story about a peaceful park. The story can help with rest and relaxation if you're feeling tired even just lying there. This relaxation can help to calm your mind and rest your body when you are too fatigued to do anything. There is some calm breathing at the start of the relaxation, but otherwise this script does not focus on the body. This can be helpful if focusing on your body is not comfortable or if doing so is less relaxing than turning your focus elsewhere. If you prefer to do more body and muscle relaxation first, you may want to listen to a short physical relaxation exercise and then proceed with this one. You can listen to these and all of my other relaxation recordings on my website, https://relaxation-audio.com.   Find the Relaxation Audio with Candi podcast on Apple Podcasts, on Google Podcasts, on YouTube, at http://relaxation-audio.libsyn.com, or wherever you get podcasts. Remember to subscribe so you don't miss an episode!  Check out my book, Peaceful Relaxation Scripts: Group Facilitation Guide, at amazon.com/author/candi.   

Join me in this episode as I sit down with Dr. Jenny Tufenkian, a naturopathic physician who turned her personal battle with chronic fatigue, or what we also call Myalgic Encephalomyelitis, into a lifeline for others seeking healing and vitality. Dr. Tufenkian shares her intense journey through medical school, motherhood, and severe health crises that tested her limits. Her inspiring story is a testament to not just surviving but thriving and empowering others with her innovative approaches.In this episode, we explore the root causes of chronic fatigue and the deep connections between our physical, mental, and emotional health. Dr. Tufenkian discusses her holistic methods for regaining energy, merging functional medicine with emotional healing to foster lasting change. You'll find actionable tips to help you overcome health challenges and embrace a vibrant life.Don't miss this episode where we discuss:The five core root causes of chronic fatigue and strategies to address them.The interconnectedness of physical, mental, and emotional health in overcoming chronic health issues.Dr. Tufenkian's holistic approach to healing, which combines functional medicine with deep emotional work.Actionable tips from Dr. Tufenkian for regaining energy and embracing a vibrant life.Whether you're combating fatigue, looking to enhance your overall health, or interested in holistic wellness, this episode offers a wealth of practical advice.Connect with Jenny Tufenkian: Instagram: www.instagram.com/dr.jennytufenkianWebsite: www.enjoyfullhealth.comRead the blog: https://mandypatterson.com/blog/ Download Fertility & Hormone Success Guide: https://mandypatterson.com/optimize-your-fertility-and-hormones/ Learn more about the Positivity Fertility group coaching program led by myself and Dr. Jeanie Schafly and get on the waitlist. First cohort launching early spring 2024: https://positivityfertility.com/ Book a Discovery Consult: https://mandypatterson.com/fertility-application/ for fertility OR https://mandypatterson.com/wellness-application/ for wellnessEpisode Highlights:[00:01:30] Introduction to Dr. Jenny Tufenkian and her background.[00:04:50] Dr. Tufenkian's personal battle with chronic fatigue during her medical school and the lessons learned.[00:12:20] Discussion on the holistic methods for treating chronic fatigue and the integration of emotional healing.[00:25:40] Dr. Tufenkian explains the five core root causes of chronic fatigue.[00:33:15] Tips for listeners on how to start their journey towards recovery.[00:45:00] Dr. Tufenkian's advice for maintaining energy and health long-term.

Prolific Canadian writer Nora Gold is afflicted with a mysterious disease, Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome), about which she has written a novella, "In Sickness and in Health." Gold discusses how she is able to navigate her life and work through bouts of sickness with Host Llewellyn King.

Continuing our conversation with warrior, Aston Martinez. Diagnosed in adulthood with ADHD and Autism, Aston knows the challenges of managing neurodivergence and her many chronic conditions. Tune in to Part Two as Aston discusses how you can support your neurodivergent loved one and how she handles her anxiety and past trauma when going to the doctor. Aston is diagnosed with ADHD, Autism, Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy, Epilepsy, Chronic Activated Epstein Barr Virus, Myalgic Encephalomyelitis and Trigeminal Neuralgia. Aston continues to advocate as a proud member of the Rare Advocacy Movement and wishes to provide support and connection to the chronic illness community by developing a new app/website. To learn more about the Rare Advocacy Movement, go to https://www.rareadvocacymovement.com. To offer suggestions for Aston's new chronic illness app/website, email notmypain@heroescircle.org.

Reintroducing warrior from S2E9, Aston Martinez. Diagnosed in adulthood with ADHD and Autism, Aston knows the challenges of managing neurodivergence and her many chronic conditions. Listen to Part One as she shares her story and her struggles from multitasking her neurodivergence with doctors, medications, and all her symptoms and emotions. Aston is diagnosed with ADHD, Autism, Ehlers-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Narcolepsy, Epilepsy, Chronic Activated Epstein Barr Virus, Myalgic Encephalomyelitis and Trigeminal Neuralgia. Aston continues to advocate as a proud member of the Rare Advocacy Movement and wishes to provide support and connection to the chronic illness community by developing a new app/website. To learn more about the Rare Advocacy Movement, go to https://www.rareadvocacymovement.com. To offer suggestions for Aston's new chronic illness app/website, email notmypain@heroescircle.org.

The weekly research round-up includes all recent publications about ME/CFS and Long Covid, which includes the key terms: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Long Covid and Post Covid syndrome. The list is inclusive of all research published to keep our community informed, however, this does not necessarily mean we endorse the studies. We briefly highlight and analyse particularly studies which have caught our attention.

The weekly research round-up includes all recent publications about ME/CFS and Long Covid, which includes the key terms: Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, ME/CFS, Long Covid and Post Covid syndrome. The list is inclusive of all research published to keep our community informed, however, this does not necessarily mean we endorse the studies. We briefly highlight and analyse particularly studies which have caught our attention.

In this episode, host Haylie Pomroy and Dr. Lubov Nathanson dive into the complex and rapidly evolving world of epigenetics, the study of how your behaviors and environment can cause changes that affect the way your genes work. This field is key in understanding chronic diseases, how they develop, why some people are more predispositioned to get sick than others, and how they can be prevented with lifestyle and diet. They explain the static nature of genomics and contrast this with the dynamic nature of epigenetics. They also discuss the role of epigenetics in diseases like Myalgic Encephalomyelitis, chronic fatigue syndrome, and Gulf War Illness. This conversation provides a new perspective on chronic illnesses, highlighting how epigenetic changes, influenced by our environment and choices, can significantly alter our health destiny. Key points: 00:00 Introduction 03:23 Exploration of the significant epigenetic component in chronic diseases. 08:06 Research on Gulf War Illness and Epigenetics. 12:01 The role of lifestyle and nutrition in epigenetic changes. 16:55 All body systems are interconnected. 20:07 Dr. Nathanson's vision for the future of medicine and chronic illness treatment. 23:24 The importance of considering the whole body in health and disease. Join the 10-Day Cleanse Challenge this February 19, 2024.

About 20% of people who have recovered from COVID-19 experience circulatory impairment, abnormal ventilatory pattern, or Myalgic encephalomyelitis (ME/CFS) according to a 2021 study published in the Journal of the […] The post Living with Long COVID and Myalgic encephalomyelitis appeared first on WORT-FM 89.9.

In this episode, host Haylie Pomroy and Dr. Lubov Nathanson dive into the complex and rapidly evolving world of epigenetics, the study of how your behaviors and environment can cause changes that affect the way your genes work. This field is key in understanding chronic diseases, how they develop, why some people are more predispositioned to get sick than others, and how they can be prevented with lifestyle and diet. They explain the static nature of genomics and contrast this with the dynamic nature of epigenetics. They also discuss the role of epigenetics in diseases like Myalgic Encephalomyelitis, chronic fatigue syndrome, and Gulf War Illness. This conversation provides a new perspective on chronic illnesses, highlighting how epigenetic changes, influenced by our environment and choices, can significantly alter our health destiny. Key points: 00:00 Introduction 03:23 Exploration of the significant epigenetic component in chronic diseases. 08:06 Research on Gulf War Illness and Epigenetics. 12:01 The role of lifestyle and nutrition in epigenetic changes. 16:55 All body systems are interconnected. 20:07 Dr. Nathanson's vision for the future of medicine and chronic illness treatment. 23:24 The importance of considering the whole body in health and disease. Join the 10-Day Cleanse Challenge this February 19, 2024.

This week we will discuss severe Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).  Our guest is Galen Warden, the mom to six adult children, one being her son James Strazza.  Galen is now a full time caregiver to James due to the severity of his disease.  Here are her words:  "James was a healthy young man until he very slowly, because of medical ignorance and poor advice, became weaker and sicker following a severe case of the Epstein Barr Virus when he was just 19. After a few years, he slowly lost his ability to drive, to stand in his kitchen and prepare food for himself, then to walk more than a few steps, to use an electric wheelchair, and finally, to even sit up if carried onto a commode. He's been 100% bed bound for three years. What is this bizarre disease that so many medical doctors prefer to pass off as psychological, psychosomatic or self-inflicted? Myalgic Encephalomyelitis was, in the past, known only as Chronic Fatigue Syndrome. An unfortunate name because it's so easily dismissed as simple chronic fatigue, familiar to many with autoimmune diseases. ME/CFS is entirely different. It's a disease not known, not taught, but not rare. Just rarely acknowledged, and more rarely understood.... ME appears to be a post-viral disease. The onset can be caused by Epstein Barr, Dengue Fever, Covid 19, and other viral illnesses. Now, research is so urgent because Long Covid is impacting thousands who are unaware of the potential that they could end up like James. Post-viral Covid could easily continue to progress to Severe ME/CFS if patients are not aware of how to manage their overwhelming weakness and fatigue. They must rest and never push themselves. They need the early support of their families to pick up the burden of making meals, driving them, helping them rest as much as possible. Because, if they don't allow them to rest now, caring for them will become a very heavy burden. These patients, with their desperate families, their disbelieving caregivers and puzzled doctors, are why I'm compelled to add documenting our experience to my long list of weighty obligations."

This month Kelsey sits down with UK author, Jessica Taylor-Bearman to discuss her journey with Chronic Fatigue Syndrome aka myalgic encephalomyelitis, her first pregnancy, and motherhood. For more on Jessica's life and Journey make sure you read her books! Jessica is on Instagram @jayletay

Emily explains what post-exertional malaise is, and highlights the challenges associated with diagnosing and managing ME/CFS. Emily emphasizes the need for personalized care and the critical role of patients in advocating for their own health. This conversation underscores the significance of creating strong support networks for people living with ME/CFS, as well as the broader chronic illness community. They also highlight the value of sharing personal stories to raise awareness and bring about policy changes. Episode at a glance:Advocacy and awareness: Cheryl and Emily discuss the power of patient stories in driving advocacy efforts, and the importance of raising awareness of the complexities of living with chronic illness.Symptom management: Post-exertional malaise, fatigue, pain, and cognitive issues often require a dynamic approach to management. This conversation delves into the importance of tailoring treatment to the specific condition/individual needs, and strategies such as pacing activity.Coping strategies and mental health: Having self-compassion is a key part of coping with chronic illness. Additionally, emotional support aids well-being and therapy can be a useful resource.Importance of having a support network: Cheryl and Emily emphasize the value of connecting with others who have similar conditions to create a sense of community, as well as accepting support from friends, family, and healthcare professionals.Patient/healthcare provider relationship: Emily shares the challenges of obtaining accurate diagnoses and appropriate medical care for chronic illnesses, especially for lesser-known conditions like ME/CFS. Building collaborative, patient-centered relationships with healthcare providers who are willing to listen, learn, and explore treatment options can make a big difference in managing complex chronic illnesses.Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.Episode SponsorsRheum to THRIVE, an online course and support program Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. See all the details and join the program or waitlist now! Speaker Bios:Emily Taylor Vice President of Advocacy and Engagement at Solve ME, Emily brings to the organization over fifteen years of policy, organization, and advocacy experience in both the non-profit and government sectors. With five years' experience on Capitol Hill, Emily contributes a keen understanding of both state and federal policy processes while cultivating strong grassroots organization and patient representation. Prior to joining the Solve M.E., Emily served as the director of policy and advocacy for an award-winning autism organization. There she spearheaded major overhauls in disability, early intervention, and education policies. She is also a veteran of several successful electoral campaigns, where she trained others in effective social media and online organization. She received a B.A. with honors in politics and international relations from Scripps College in Claremont and earned her M.A. in American politics from Claremont Graduate University. Emily draws inspiration from her mother who has battled ME/CFS as well as chronic autoimmune and thyroid conditions since 1999.Cheryl CrowCheryl is an occupational therapist who has lived with rheumatoid arthritis for nineteen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.For full episode details including a detailed transcript and video:Coming soon on the Arthritis Life Website. 

Nick Garland is a proud and passionate speaker on trauma, mental health, including physical and mental resilience and overcoming challenges, both within the personal and business sphere. His unique near death experience, return to work and return to military operations is an inspirational snapshot of personal determination, leadership and a humble understanding of mental health. Nick's talks are inspirational, insightful and are based on real experiences. Following a life-threatening injury sustained on the battlefield in Afghanistan – which left him fighting for his life in a month long coma, Nick was determined to recover and return to work. On his road to recovery, he became aware of his trauma experiences and how they impacted many other people – as a result Nick understands intimately how actions impact people both in and out of the workplace. With strong mental resilience, Nick returned to combat operations in Afghanistan, where he once again led men and women through some of the toughest times of their lives.Following a medical discharge from the Armed Forces in 2018, Nick now reflects on his past, linking childhood adversity to the successes he has had both in and out of service life. He discusses growing up with dyslexia and the effects of the debilitating illness M.E. (Myalgic Encephalomyelitis). These experiences and those gained from his time in the British Army have given Nick a unique insight into achieving success by leading through adversity.Nick's Top Tips - say "yes!", more and have amazing experiences. Have far more empathy for others than you currently do. Hosted on Acast. See acast.com/privacy for more information.

Today I talk about grief, the definitions of and similarities between Long Covid and Myalgic Encephalomyelitis, and my Long Covid story. References:https://www.cdc.gov/me-cfs/pdfs/Could-You-Have-MECFS_508.pdfhttps://www.covid.gov/longcovid/definitionshttps://jheor.org/post/1746-economic-effects-of-long-covid-even-larger-than-we-thought

Happy Tuesday! When I was passing through London, UK in July I was able to sit down and chat with Miranda Allen about her diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) In this episode, Miranda looks back with hindsight and explains where it's possible her symptoms began, the years of not really knowing what was going on, how she got a diagnosis, what on earth ME even is, her day to day symptoms, how she manages them and her latest creative endeavours. Some of you might remember Miranda from a previous That's So episode (That's So: Unrest documentary) but we didn't get to chat too much about her story then, so I'm really excited to be able to bring you this episode with a lot more information today! Watch Miranda on Penn & Teller: youtube.com/watch?v=CfGGIQbsrrE EeZeeGo website: https://www.eezeego.co.uk Symptom tracking app Visible: www.makevisible.com And don't forget to connect over on IG and Tiktok, I'm @thatssochronic @thatssochronic | @jessssbrien | #thatssochronic Free monthly newsletter: thatssochronic.substack.com Application form to share your story: https://forms.gle/csebLkwfwAjiLApK9 Disclaimer: Here at That's So Chronic we are sharing personal stories and are not advocating any type of treatment, therapy, procedure or intervention. Everyone is unique so please seek professional medical advice before making any decisions for yourself or for others. Hosted on Acast. See acast.com/privacy for more information.

Fibromyalgia and Myofasciitis are often confused with one another, even by doctors. But, Dr. Prather explains that both are unique and must be treated very differently. In this episode, we talk about:—How Fibromyalgia is an inflammation of the Lymphatic tissue, while Myofasciitis is a dysfunction of the muscles and the fascia material.—Why "poking" 11 different Lymph areas and being able to produce pain is a sure sign of Fibromyalgia. And how Myofasciitis can be diagnosed through palpation and those areas feeling "like a rock".—How 85% of all adults will suffer from Myofasciitis at some point in their lives. And the Rapid Release Therapy Dr. Prather uses in his office that makes a difference for patients who have found no relief from other treatments.—The reason Fibromyalgia is found 85-90% of the time in women. And its association with Chronic Fatigue, Myalgic Encephalomyelitis, Rheumatoid Arthritis, and a shortened life-span.—Why "gentle" is the key word with any treatments for Fibromyalgia patients to get results and relief for them.—The importance of treatments like Chiropractic, Acupuncture, Rapid Release, and Physical Rehab for both Fibromyalgia and Myofasciitis, but the approach and techniques of those treatments have to be used in completely different ways.—Why Acupuncture provides "immediate relief" for both Fibromyalgia and Myofasciitis. But Fibromyalgia should use only one or two points at a time, with Laser and Powder Acupuncture techniques used more often by Dr. Prather than the needles. —The importance of Diathermy for Fibromyalgia patients to increase blood flow and lymphatic flow, while increasing detoxification and boosting the immune system. And why Dr. Prather calls it an "amazing" treatment for Fibromyalgia.—How Dr. Prather says "you are never going to get anywhere" with Fibromyalgia without proper supplementation, which is "a game-changer". And how Dr. Prather estimates about 50% of his Fibromyalgia patients actually have both Fibromyalgia and Myofasciitis.—Plus, hear the details about our upcoming Holistic Integration Open House on Lyme Disease and Tick-borne Diseases on Wednesday, September 27th at 6 p.m. And how you can receive 20% off of tick-borne diagnostics for attending.http://www.TheVoiceOfHealthRadio.com

Chris Armstrong, PhD was first introduced to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) through research into metabolomics at the University of Melbourne, Australia. As he delved deeper into his work, he discovered its connection to ME/CFS patients, and empathized so much with their plight – and the lack of resources, funding, and research available to both patients and clinicians – that he made it his mission to continue research in this field in the hope of finding a cure. Since publishing his first ME/CFS metabolomics study in 2015, he has continued research into the disease, spurred on by patients whose stories have moved him. As the Open Medicine Foundation's Science Liaison, Chris works on collaborative studies with their partner organizations and helps to translate scientific language for the public. He is also a Visiting Scholar at Stanford University.Key links mentioned in this episode:Open Medicine FoundationOMF on FacebookOMF on TwitterOMF on InstagramTune in as Chris shares...- how he got involved in ME/CFS research- his main area of expertise: metabolomics- that ME/CFS outbreaks can be traced back as far as the mid-19thC, with symptoms  commonly related to significant concerns with fatigue, sleep, pain, brain fog, and a 50% loss of general function- a description of PEM – post-exertional malaise – which is the main component of ME/CFS- that there are up to 50 symptoms associated with ME/CFS, but the main five are: PEM, fatigue, unrefreshing sleep, cognitive impairment, and pain- that ME/CFS is highly comorbid with fibromyalgia and other invisible illnesses- that ME/CFS was originally described as a flu- or polio-like illness; and was first properly explained by the Ramsay definition and given the moniker of “Myalgic Encephalomyelitis”- that patients need to have ME/CFS for 6+ months in order to receive a diagnosis- one of the major schools of thought with regard to ME/CFS: that it stems from a dysfunction of stress response in the body; it's possible, however, that bacteria and other pathogens may also play a role in onset- that 1 in 200-300 people has ME/CFS- that ME/CFS is NOT categorized as a rare disease; but it's treated by the medical community as such – creating stigma through lack of research and understanding- that ME/CFS has been commonly misdiagnosed as a form of hysteria – both in the past and in the present- that very few clinicians dig in deep enough with their patients in order to give them an ME/CFS diagnosis – but that burden is not just on doctors, as diagnostics and treatment guidelines need to be standardized in order to support their work- that the Open Medicine Foundation was built to provide effective treatments for ME/CFS patients- that meeting patients has inspired him in his work, even from the very beginning- the desperate need for funding for continued research into ME/CFS- the politics of funding medical research- that ME/CFS is often considered to be more a psychological than a physiological illness- that the National Institutes of Health (NIH) has been more receptive than some Aussie governing bodies when it comes to research into ME/CFS- the biggest bright spot in ME/CFS: the momentum of funding for research- OMF's collaborative research initiatives with Harvard, Stanford, and others- that ME/CFS could be a collection of several diseases, and not one disease in and of itself- the importance of specifics in diagnostics- why medicine needs to be patient-centered- the importance of pacing in order to avoid a crash related to PEM Get full access to Uninvisible Pod at uninvisiblepod.substack.com/subscribe

Actor and baker Cory Anderson talks about dealing with the effects of myalgic encephalomyelitis (ME), which she contracted as a result of getting COVID. It's had a dramatic effect on her life, not least because of the struggle just to get a diagnosis. It's also led to Cory becoming part of a growing community of...

I'm back today with my friend Whitney, who just like me, has ME/CFS. Today we talk about our fear of COVID, with the context that we're already ill. We chat about…→ Whitney's arrest story?!→ What happens when you get COVID plus ME/CFS?→ Going out in a COVID world when you have ME/CFS…→ and more! Follow Whitney on Instagram! Mentioned Instagram accounts... → Fran Haddock→ The Physics Girl Check out these organizations...→ #MEAction Maryland→ Solve M.E.→ The Bateman Horne Center Subscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

This week I have my friend Whitney Fox joining us! Just like me, Whitney has ME/CFS. That's right folks — we're continuing our discussion of Myalgic Encephalomyelitis in honor of ME/CFS Awareness month. We'll start with a quick nod to our beloved chronic illness Instagram community, and then you'll hear all about Whitney's diagnosis journey. We talk all about patient-led research, including the founding of the Maryland chapter for MEAction. We chat about... → Our beloved chronic illness Instagram community→ Whitney's diagnosis journey: just like me, she started with mild ME, and spent years undiagnosed! → Patient-led research, including the founding of the Maryland chapter for #MEActionMentioned Organizations→ #MEAction Maryland→ National Institute of Health (NIH)→ Solve M.E.→ The Bateman Horne Center Mentioned Persons → An Interview with Ron Davis, PhD: #MayMomentumTuesdays 2022→ Dr. Bateman on Biomarkers and Wild Socks, by Lucinda Bateman, MD | Jan 8, 2023→ Emily Taylor, Vice President of Advocacy and EngagementSubscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

NEW EPISODE!This week: Tell M.E. In Wrestling!*CW and TW at the beginning of the episode*In honour of M.E. Awareness week (9th-15th May), we talk about Phil's experience of living with the condition, featuring a miserable medical history, a poetry triple threat, Carl becomes a Quack and some (ha!) Wrestling about kayfabe and CM Punk Support the showhttps://www.buymeacoffee.com/tellmeinwr6 - Support the show for the price of a cup of coffee! https://www.youtube.com/channel/UCIQUQn556xUoBGw0_TIwqtQ - Tell Me In Wrestling on YouTube

In this episode, I'm sharing a bit more about my story, along with some information about this debilitating, devastating disease. May is ME/CFS awareness month, and we have a ways to go in raising awareness and working towards a cure!→ Revisiting when I went out on my leave from work and saw my first ME/CFS specialist→ Discussing Post Exertional Malaise (PEM)... what is it? And why is it such a big deal?! → A bunch of important things to know about ME/CFS→ Ways you can help! Mentioned in the episode→ CDC.gov PEM Definition→ Sammy | MECFS Advocacy→ Go Blue For ME/CFSDonation Recommendation→ Open Medicine FoundationSubscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Today's guest is Stacey Ballard, the author of The Fine Art of Waiting. Stacey had chronic illness for the majority of her life, dealing with multiple illnesses and an organ transplant. Stacey uses art and creativity to help her deal with stress, loss, and changes that we experience, teaching people to bring more compassion to their experiences and themselves. The most beautiful takeaway I have from our discussion, is how Stacey wants to demystify art, itself, and journaling, so that it is accessible for others, as expressing creativity helps calm your nervous system, and that helps calm chronic illness symptoms. We cover so many wonderful topics, some include... → How Stacey came up with the idea for The Fine Art of Waiting→ Demystifying Creativity... What fills your soul? → Some of Stacey's favorite exercises from her bookKey messages: 1) We are allowed to feel every emotion that comes along.2) Ways to journal without writing by hand! Don't turn away from journaling if you have physical limitations, there are lots of ways to journal and express creativity! You can follow Stacey at @fineartofwaiting on Instagram Mentioned:→ The Fine Art of Waiting → Chronicon→ Yellow Co→ Michael Singer (Audio Book Living from a Place of Surrender)Subscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Recently someone pulled an oracle card for me that said "Education." Her goal with this card was to inspire me to tell a story. But what story should I tell about Education? I pondered multiple possibilities, and settled on the story that led to my career, abruptly ending with my chronic illness. So was my Education...1) the start of my career2) my career development, itself, or 3) the transition from my career to my new life as a full time patient? And if my chronic illness is an education, what am I learning?! I'm not sure.  Listen and tell me what you think! Wonderful books and resources mentioned in this episode: → Poet Brianna Pastor and her book→ Illuminating Souls: Angel Readings, Soul Mentoring, and wonderful classes like the one I took! → Chronicon→ Path to Empowered AcceptanceSubscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Cynthia Adinig is a marketing specialist turned Long COVID advocate. She is the co-founder of BIPOC Equity Agency which is a diversity, equity, and inclusion agency with a focus on healthcare, policy, and research. She is a board member of SolveME, and a steering member of the Long COVID Alliance. She has testified on Capitol Hill on Long COVID and racism, and has been featured in TIME, The Washington Post, USA Today, and NBC News among others. Cynthia discusses her journey with Long COVID, her life in advocacy, and the work she's doing with BIPOC Equity Agency.

I developed these three easy tasks when I was in a horrible flare a couple months ago. They became My Three Things, which is now evolving into That Chronic Thing 3. This simple formula has greatly helped me end my day with reflection and positivity, as well as a look forward at things to come.Today's episode covers… → Discussing Gratitude→ Discussing "Something for you," plus some items from my cheat sheet! → Discussing ConnectionGet your own template for the Chronic Thing 3 at either of the below Instagram accounts! ꜜꜜꜜSubscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

Life Hacks…. specifically for hair! Why? Because mine is currently a rats nest! Eek! It's hard to take care of your care when you're sick. If you're sick, this may sound familiar to you. Today's episode covers… → My daily fix… the messy top knot.→ My monthly-ish fix… The salon! *Budgeted, Self-Care*→ Grief, still. Thinking about my former life.→ Tips & Tricks for taking care of your hair when you're chronically illFrom the Tips… (not affiliate links, just examples)→ Shower stool→ Scalp Scrub Brush→ Dryer/Diffuser CapSubscribe to the show to be notified of new episodes, and make sure to follow the show on Instagram @thatchronicthing. You can also stay in touch with Cathy directly on Instagram @indoorcathy. "Glitter Blast" Kevin MacLeod (incompetech.com) Licensed under Creative Commons: By Attribution 4.0 License http://creativecommons.org/licenses/by/4.0/

"ME/CFS is a complex multi-system illness that destroys lives (essentially killing the person yet leaving them alive).  It leaves patients with unimaginable fatigue, post-exertional malaise (meaning that minor exertion makes them feel worse), cognitive deficits, cardiovascular dysfunction, gastrointestinal malfunctions, unrefreshing sleep, pain, and much more. As a person who has lived with ME/CFS for 13 years, I urge everyone to avoid getting it at all costs.  I also want to protect people like myself from getting sick with COVID and having our illnesses worsen to even graver severities." Stephanie Marcovici is a patient advocate. She shares her story and discusses her KevinMD article, "The consequences of unmasking and ending quarantines." This episode is sponsored by the Stanford Physician Leadership Certificate Program. For the aspiring physician leader, leadership skills are one of the most important and influential traits that will elevate your overall success.    Leadership impacts nearly every aspect of your career in a complex and diverse health care system. Including how you effectively communicate and influence those around you, how you respond to conflict and make important key decisions, how you develop your team, and even how you navigate social dynamics in your workplace.    Stanford Medicine recognizes the need to foster physician leaders in health care. That is why they developed the physician leadership certificate program. This 6-month cohort-based program includes live virtual sessions, self-paced learning modules, professional coaching, a capstone project, and much more: Providing C-suite education for the non-C-suite physician leader.   They encourage all early career and aspiring physician leaders to apply. To find out more about the program or apply, visit physicianleadership.stanford.edu. Did you enjoy today's episode? Rate and review the show so more audiences can find The Podcast by KevinMD. Subscribe on your favorite podcast app to get notified when a new episode comes out. Click here to earn 1.0 AMA PRA Category 1 CME for this episode. Also available in Category 1 CME bundles. Powered by CMEfy - a seamless way for busy clinician learners to discover Internet Point-of-Care Learning opportunities that reward AMA PRA Category 1 Credit(s)™. Learn more at about.cmefy.com/cme-info