Podcasts about ehlers danlos syndrome eds

To have your question featured in a future video, please email: questions@morses.tv Please include at least: Age, Weight and as much history as possible.

Dr. Fiona Lovely is a longevity, health and wellness expert with specialties in menopause medicine, functional neurology and functional medicine. She is speaking to the topics of women's health around perimenopause and menopause. In this week's episode, Dr. Lovely sits down with Katie Beecher—medical and emotional intuitive, licensed professional counselor, and author of Heal from Within—for a deeply personal and empowering conversation about healing, self-trust, and the intersection of intuition and women's health. Katie shares how a near-death experience as a teen led her to embrace her psychic gifts and begin a lifelong journey of intuitive healing. Drawing from over 30 years of experience, she explains what it means to be a medical intuitive and how she uncovers the root causes of physical and emotional challenges. She also opens up about living with Ehlers-Danlos Syndrome (EDS), the common overlap with neurodivergence and empathy, and why fibromyalgia is often a misdiagnosis for misunderstood women. From menopause as a spiritual awakening to the role of energetic boundaries in self-protection, Katie's insights offer a refreshing lens on aging, healing, and the power of listening to your body's wisdom. Her take on hormone therapy is bold, honest, and empowering—proclaiming, “You'll pry my estrogen patch from my cold, dead hands!” In This Episode – The Intuition Edition: What a medical intuitive actually does—and how Katie channels health insights with no prior info How intuitive art can reveal emotional blocks and healing paths The surprising connection between hypermobility, empathy, and neurodivergence Why many women with EDS are misdiagnosed with fibromyalgia How menopause is not an ending—but a powerful rebirth Her unique take on dementia as a spiritual and energetic transition How to protect your energy and honor your intuition in a chaotic world Katie's message is one of radical self-trust, fierce self-love, and owning your personal power—especially in midlife and beyond. You can find more about Katie Beecher here:

Send us a textCould there be a deeper connection between hypermobility, fatigue, and your autoimmune symptoms?In this episode, I unpack the lesser-known links between Ehlers-Danlos Syndrome (EDS) and autoimmune conditions—exploring why so many people with joint hypermobility also struggle with gut issues, immune reactivity, fatigue, and nervous system dysregulation.We dive into:Why connective tissue fragility can lead to leaky gut and immune activationThe role of mast cell activation, POTS, and vagal nerve dysfunctionHow your family history (think scoliosis, frequent injuries, clicky joints) may hold important cluesWhy gluten can be an issue, even without coeliac diseaseMy go-to food, supplement, and lifestyle strategies for supporting this overlapYou'll also hear practical tips on bone broth, slow-cooked meals, magnesium, vagus nerve support—and how to reframe your diagnosis as a doorway to deeper healing.Mentioned in this episode:Ossa Organics Bone Broth – use code VJ10 for 10% offNurosym vagus nerve stimulation – code VJ10 for 10% offBodyBio supplements – including magnesium and butyrate for gut + tissue support: Click here for UK / Click here for US (discount code VJ15)Join the conversation inside The Autoimmune Forum Whether you've been diagnosed with EDS, suspect hypermobility, or simply want to understand your autoimmune body more deeply—this one's for you.Thanks for listening! You can join The Autoimmune Forum on Facebook or find me on Instagram @theautoimmunitynutritionist.

Why do some patients struggle with anesthesia, requiring multiple cartridges just to get numb? Could your TMD patients have an underlying systemic condition that's been missed? Are you overlooking the signs of a connective tissue disorder? https://youtu.be/gaoJKPTV_Z0 Watch PDP222 on Youtube ”When you can't connect the issue, think connective tissue!” Dr. Audrey Kershaw joins Jaz for a fascinating deep dive into the world of connective tissue disorders and their hidden impact on dentistry. Together, they explore how hypermobility, unexplained joint issues, and even a history of spontaneous injuries could be key indicators of an underlying disorder. They also break down why dentists play a crucial role in screening and identifying these conditions, ensuring better patient outcomes and a more holistic approach to care. Because sometimes, when things don't seem connected… they actually are. Protrusive Dental Pearl: Don't just take a "relevant" medical history—take a comprehensive one! Encourage patients to share all health issues, even those they don't think relate to dentistry. You might uncover important clues about conditions like connective tissue disorders or sleep-disordered breathing, leading to better care and stronger patient trust. Key Take-aways Ehlers-Danlos Syndrome is often misunderstood and underdiagnosed. Patients with connective tissue disorders often face skepticism from healthcare providers. POTS is a common condition associated with EDS that affects blood pressure regulation. Many TMD patients may have undiagnosed connective tissue disorders. Awareness and education about EDS are crucial for better patient outcomes. The healthcare system can be challenging for patients seeking diagnoses. Research on local anesthetic effectiveness in EDS patients is lacking. Personal experiences can help in understanding and diagnosing connective tissue disorders. Collaboration between healthcare professionals is essential for patient care. Genetic testing is crucial for diagnosing rare types of Ehlers-Danlos. Dental professionals should be aware of the signs of connective tissue disorders. Diagnosis can empower patients to understand their health better. Holistic care is vital in managing symptoms associated with EDS and TMD. Medical histories should be seen as relevant in dental practice. Highlights of this episode: 02:17 Protrusive Dental Pearl 04:21  Dr. Audrey Kershaw's Journey and Insights 09:45 Personal Experiences and Professional Observations 11:55 Diagnosis and Management of Connective Tissue Disorders 13:31 POTS (Postural Orthostatic Tachycardia Syndrome) 15:30 Understanding Ehlers-Danlos Syndrome (EDS) 24:55 Hypermobile EDS and the Need for Awareness 27:53 International Consortium of EDS GP Checklist 28:34 Genetic Testing and Red Flags 31:44 The Role of Dentists in Identifying EDS 40:32 Journey to Diagnosis 43:47 The Value of a Diagnosis 48:43 Dental Implications of EDS 55:00 Final Thoughts and Resources "If you know one case of EDS, you only know one. Every case is different. Many are severely debilitated, unable to work or carry out daily tasks, often denying their struggles after years of being dismissed." - Dr. Audrey Kershaw Promised Resources Podcast Recommendation: Linda Blustein's Podcast (about POTS and connective tissue disorders) Specialists & Research: Dr. Alan Hakim – A specialist in Ehlers-Danlos Syndrome (EDS) research based in London. Norris Lab (U.S.) – Researching genetic markers for hEDS Local Anesthesia Information Resources for Screening & Diagnosis:  Diagnostic Criteria for Hypermobile Ehlers-Danlos SyndromeDownload 5-part-questionnaire-for-hypermobilityDownload Symptomatic Joint-Hypermobility GuideDownload Red Flag PatientsDownload Educational Conferences & Talks: Scottish Dental Show – Audrey is involved in raising awaren...

What if your dental history held the key to a complex diagnosis no one's caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who's uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can't numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can't numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might've revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here's what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf   GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf   GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf   Scottish Dental Magazine article EDS Article  Scottish_Dental_magazine_October_2023 p38-39[77].pdf   BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf   LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/   Link to pt EDS email EDS PATIENT EMAIL April 2025.docx   Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network

What if your dental history held the key to a complex diagnosis no one's caught? In this gripping episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Audrey Kershaw, a trailblazing oral surgeon who's uncovered hundreds of hidden Ehlers-Danlos Syndrome (EDS) cases—starting in the dental chair. From patients who “can't numb up,” to decades-long battles with halitosis, gum fragility, and jaw instability, Dr. Kershaw shares the subtle (and sometimes shocking) signs that suggest something far deeper is at play. Together, they explore what happens when TMD, failed anesthesia, slow healing, and even bad breath point to connective tissue disorders that most dentists never learn about. If your mouth has always felt... different—this episode might explain why. Find the episode transcript here. Takeaways: Some patients can't numb up… and the reason may change how you see your entire body. Your wisdom tooth extraction might've revealed more than just a dental issue. That persistent jaw pain? It may be pointing to something systemic. A 40-year case of bad breath led to an unexpected diagnosis—here's what happened. You might be able to spot a connective tissue disorder… before a dentist even says a word. Reference Links: GIRFT RCS TMD full document. https://www.rcseng.ac.uk/-/media/FDS/Comprehensive-guideline-Management-of-painful-Temporomandibular-disorder-in-adults-March-2024.pdf   GITFT RCS TMD patient summary document. https://www.rcseng.ac.uk/-/media/FDS/TMD-Patient-support-document-March-2024.pdf   GIRFT RCS TMD Clinician summary document https://www.rcseng.ac.uk/-/media/FDS/TMD-Clinician-summary-document-March-2024.pdf   Scottish Dental Magazine article EDS Article  Scottish_Dental_magazine_October_2023 p38-39[77].pdf   BISOM link to mouth ulcers https://bisom.org.uk/wp-content/uploads/2020/02/RAS-PIL-October-2019.pdf   LA paper 2019 https://pmc.ncbi.nlm.nih.gov/articles/PMC6834718/   Link to pt EDS email EDS PATIENT EMAIL April 2025.docx   Link to "Perioperative Management of Patients with Ehlers-Danlos Syndromes" by Drs. Chopra and Bluestein https://www.scirp.org/journal/paperinformation?paperid=97524 Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. YOUR bendy body is our highest priority! Learn about Dr. Audrey Kershaw: Website: https://www.oralsurgery.scot/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com Part of the Human Content Podcast Network

This week Monique chats with Sienna Macalister (they/them), who listeners may know by their Instagram handle @sienna.stims, about being an Autistic person with high support needs. Sienna is a non-binary, ‘unreliably speaking’ Autistic advocate, diagnosed with Autism Level 3. They are multiply neurodivergent and have a number of co-occurring health conditions, including Ehlers Danlos Syndrome (EDS), Postural Orthostatic Tachycardia Syndrome (POTS), and Neurofibromatosis Type 1 (NF1). Sienna is passionate about creating a world where Autistic people are not just accepted but celebrated, with a deep affinity for exploring neurodivergence with nuance. Monique and Sienna cover: What does ‘unreliably speaking’ mean? What neurodivergence means to Sienna and the importance of understanding the term to mean more than just Autism and ADHD. Sienna’s experience of early diagnosis of Autism and the diagnostic overshadowing this led to, particularly around diagnosis of their health conditions. The evolution of Sienna’s neurodivergent identity. Sienna’s experience of using mobility, communication, and health and wellbeing supports. Support needs, disability, and therapeutic intervention as a valid part of the neurodivergent experience, and the difference between affirming and non-affirming therapies. The role of lateral violence and internalised ableism in excluding people with higher support needs from the cultural conversation on Autism. Sienna’s suggestions to increase inclusion and representation for Autistic people with higher support needs. Sienna’s current special interest – budgie breeding! Find Sienna on TikTok and Instagram @sienna.stims, on their professional Instagram @sienna.macalister_media, or on YouTube @sienna_stims. Sienna’s writing is features in the anthologies Someone Like Me, edited by Clem Bastow and Jo Case, and Hyperfocus, edited by Spectrum Writing. Got questions for us?? Come along to our LIVE Q&A event! Held online on 27th June (with replay available to all ticket holders). Grab a ticket here and submit your question! Enjoyed the episode and want to support us further? Join our Patreon community! Patreon subscribers receive ad-free episodes, basic episode transcripts from Season 4 onwards, access to a monthly live zoom hang out, 50% off our episode articles, plus bonus monthly content (depending on subscription tier). Check out our Patreon page to support us, as we aim to make quality mental health care information accessible to everyone: www.patreon.com/ndwomanpod. Want polished copies of our episodes in beautiful and readable pdf article format? Grab them here. Contact us at ndwomanpod@gmail.com, or visit our website: www.ndwomanpod.comSee omnystudio.com/listener for privacy information.

What happened in Dallas last night? The Stars completely fell apart, losing to the Vancouver Canucks 6-5 in overtime after giving up three goals with the Canucks' net empty in the final minute of regulation. Wow! This loss helps the Winnipeg Jets, who now head to Dallas on Wednesday for a Thursday matchup, leading the Central Division by four points over the Stars. In other news, the Jets announced Thursday that prospect Chaz Lucius is retiring after being diagnosed with Ehlers-Danlos Syndrome (EDS). The hereditary condition has plagued the development of the 2021 first-round pick, who has played just 54 games with the AHL's Manitoba Moose over the last two seasons. Moose broadcaster Daniel Fink joins us to discuss Lucius' character and how devastating this news is for the organization, and especially for Chaz. Plus, with a lot at stake in Wednesday night's NHL games, Cam & Jim break it down and also discuss the latest updates from Jets practice. All that and more on this edition of the Jets @ Noon Podcast. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, we focus on safely guiding hypermobile clients through yoga practices to prevent injury and support long-term well-being. We discuss key safety considerations, common misconceptions, and practical techniques for yoga practices tailored to clients with Ehlers-Danlos Syndrome (EDS) and hypermobility. Libby shares her journey with hypermobility, explores its impact on the nervous system and mental health, and provides actionable advice on effective queuing and creating empowering yoga experiences. MEET Libby HinsleyLibby Hinsley is a Doctor of Physical Therapy, yoga teacher trainer, and personal trainer specializing in treating hypermobility syndromes and chronic pain. Her book, Yoga for Bendy People: Optimizing the benefits of yoga for hypermobility, was published in 2022 and explores how people with joint hypermobility syndromes can use the tools of yoga to support their thriving. She has also developed a successful strength training program for people with hypermobility syndromes. As a person living with Hypermobile Ehlers-Danlos Syndrome and related health conditions, she is committed to raising awareness about hypermobility syndromes in the yoga and physical therapy communities and beyond. She also teaches anatomy for yoga teachers through her program called Anatomy Bites. Find out more at Libby Hinsley and connect with Libby on Instagram, and check out the Zebra Talks PodcastUnderstanding hypermobility and its challengesWhat are EDS and hypermobility?Symptoms and diagnosis of EDSYoga practices for hypermobilityQueuing techniques for hypermobilityUnderstanding proprioception and body awarenessImproving proprioception through mindful movementConnect With Me Instagram: @chris_mcdonald58Facebook: Yoga In The Therapy PodcastJoin the private Facebook Group: Bringing Yoga Into the Therapy RoomTikTok: @YogaChris58Rate, review, and subscribe to this podcast on Apple Podcasts, TuneIn, and SpotifyHow To Build Competence and Confidence in Integrating Yoga Into the Therapy RoomHolistic Mindful Check-Ins by Chris McDonald, LCMHCSSelf-Care for the Counselor: A Companion Workbook: An Easy to Use Workbook to Support you on Your Holistic Healing and Counselor

20% of the population is on the hypermobile spectrum and can struggle with chronic pain because of it. At the more extreme end of the spectrum is Ehlers-Danlos Syndrome (EDS), a genetic disorder that affects not not muscles and joints but the whole body in ongoing feedback loops. Perhaps most significantly, 80% of people with EDS have generalized anxiety. Most doctors or practitioners seeing people with vague symptoms from chronic pain, allergies, SIBO, IBS, brain fog, POTS, autoimmunity, anxiety, and more are often unaware that EDS can be the cause. Even less know about holistic ways to intervene in the cycle of dysregulation. So I spoke with a specialist in EDS, Dr. Derik Andersen to get some answers.In this episode we discuss:what is Ehlers-Danlos Syndrome?the mast cell activation and EDS cyclewhat are the symptoms and how can someone test themselves?why are anxiety and nervous system issues associated with it?research on the Autonomic Nervous System and HRVneurodivergence and EDSholistic treatment approachesfocused shockwave therapynutritional interventionsbreathwork for the nervous sustemwhat practitioners should knowBioDerik S. Anderson, DC, CPT, CSN is the Clinic Director of the Muscle and Joint Clinic in Northern California. He helps his patients be healthier by utilizing his education and personal and professional backgrounds. Dr. Anderson grew up wanting to help people and initially planned to go to business school to work in energy conservation. But, after a good friend's life was positively changed by chiropractic care, he had a change of heart. His friend spent two years with horrific intestinal problems and saw over a dozen providers, but no one could help her – until she saw a chiropractor. The chiropractor knew that the vertebra and muscles around them affected the nerves that controlled the intestines. After treatment, she was no longer bed-ridden and went back to teaching, traveling and leading an active life. Dr. Anderson realized that health care was his calling and his passion for helping people was channeled into chiropractic.Education:Life Chiropractic College West, Doctor of ChiropracticUniversity of California, Santa Barbara, Bachelor of Arts, EconomicsCompleted more than 1,000 hours of post-doctoral educationSports Nutritionist, CertifiedPersonal Fitness Trainer, CertifiedActive Release Technique, Certified 2011FAKTR, CertifiedMyofascial Decompression, CertifiedIronman® Healthcare ProviderThe Clinic: https://musclejointclinic.com/Resources:Dr. Jessica Eccles https://www.bsms.ac.uk/about/contact-us/staff/dr-jessica-eccles.aspxhttps://tmsforacure.org/ Links: Find videos and bonus episodes: ⁠DEPTHWORK.SUBSTACK.COM⁠Get the book: ⁠⁠Mad Studies Reader: Interdisciplinary Innovations in Mental Health⁠Become a member: ⁠The Institute for the Development of Human Arts⁠Train with us: ⁠Transformative Mental Health Core CurriculumSessions & Information about the host: ⁠⁠JazmineRussell.com⁠⁠Disclaimer: The DEPTH Work Podcast is for educational and entertainment purposes only. Any information on this podcast in no way to be construed or substituted as psychological counseling, psychotherapy, mental health counseling, or any other type of therapy or medical advice.

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about  Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein sits down with Dr. David Kaufman, a specialist in complex illnesses, to discuss how infections, immune dysfunction, and connective tissue disorders intersect. They explore why many chronic illnesses are often overlooked or misdiagnosed. This includes conditions like ME/CFS (myalgic encephalomyeltiis/chronic fatigue syndrome), Long COVID, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia, Dr. Kaufman shares insights on the role of Epstein-Barr Virus (EBV), Lyme Disease, small intestinal bacterial overgrowth (SIBO), and other infections in triggering chronic conditions. They also dive into peptides, plasmapheresis, exosomes, and mitochondrial health as potential treatment avenues. If you've struggled to get answers about complex illness, this episode is packed with groundbreaking insights and expert advice. Takeaways: Complex Illness Requires a Multi-System Approach – Chronic conditions like ME/CFS, EDS, MCAS, and dysautonomia are interconnected, requiring a holistic approach rather than isolated treatments. Infections Can Trigger or Worsen Chronic Illness – Epstein-Barr virus, Lyme disease, and other chronic infections often reactivate in immune-compromised individuals, leading to long-term symptoms. Peptides and Exosomes Show Promise – Treatments like thymosin alpha-1, BPC-157, and exosomes may help modulate immune function and promote healing. Pelvic Congestion & Blood Flow Issues Matter – Unrecognized vascular issues, like May-Thurner syndrome and pelvic congestion syndrome, can contribute to POTS and hemodynamic instability. Mitochondrial Health is Key to Recovery – Addressing mitochondrial dysfunction through targeted therapies can help reduce fatigue and improve overall health in complex illness patients. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Find this episode's transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about  Dr. David Kaufman Blue Sky: @kaufmanmd.bsky.social Website: https://www.centerforcomplexdiseases.com/ Podcast Link: https://www.youtube.com/channel/UCkJiyBgDrgE5xWi3_tFsXHg Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Alex Woodworth is a qualified health coach and histamine specialist with a background in Nutrition from NAU and has a personal healing journey that transformed her life. After battling histamine intolerance, sulfur intolerance, severe gut issues, hair loss, anxiety, depression, chronic fatigue, and joint pain, she found relief through diet, lifestyle changes, and ancestral nutrition. Now, Alex helps clients overcome histamine intolerance, gut disorders, hormone imbalances, and chronic symptoms using therapeutic ancestral diets like Carnivore and GAPS, mindset coaching, toxin reduction, and mindfulness. She believes that the body is meant to heal—it just needs the right fuel. Her clinical specialty includes histamine intolerance recovery, gut healing, low-histamine diets, Carnivore and GAPS for autoimmune support, toxin-free living and detox strategies, hormone and nervous system balance, and mindset and lifestyle coaching for long-term health. Sign up for our FREE newsletter: https://go.nutritionwithconfidence.com/nwc-newsletter-sign-up SUBSCRIBE: https://www.youtube.com/@HealingwithConfidencePodcast?sub_confirmation=1 Timestamps:  0:00:00 Intro  0:02:11 - Definition of histamine intolerance and the "histamine bucket" concept 0:03:48 - Alex's personal health struggles (chronic issues, Kawasaki syndrome, knee issues, surgeries)  0:07:16 - How histamine intolerance is diagnosed 0:10:35 - Alex's turning point in her healing journey 0:12:13 - Experience with the carnivore diet and working with Mary Ruddick 0:14:33 - Psychological challenges of following a carnivore diet 0:18:17 - Initial improvements after dietary changes 0:21:00 - Importance of borrowing hope from practitioners and surrendering to the healing process 0:21:58 - Dealing with perfectionism during healing 0:25:00 - Using curiosity as a mindset tool for healing 0:28:32 - Common symptoms of histamine intolerance beyond Alex's personal experience 0:32:15 - Root causes of histamine intolerance 0:35:49 - Reintroducing foods after healing the gut 0:38:04 - The importance of mindset in preventing histamine reactions 0:39:41 - Ehlers-Danlos Syndrome (EDS) and its connection to histamine issues  0:45:56 - Balancing dietary restrictions with nourishment 0:51:52 - Exercise considerations for people with histamine intolerance 0:56:11 - Connection between hormones and histamine (especially for women)  0:59:37 - Alex's experience with being diagnosed with Asperger's and sensory sensitivities 1:03:44 - Strategies for nervous system regulation and body scanning 1:08:38 - Alex's morning and evening routines during healing vs. now 1:13:01 - Books and reading as a form of enjoyment and escape Website: https://nutritionwithconfidence.com Follow Natalie on TWITTER (X): https://x.com/natalie_earle?mx=2 Follow Natalie on INSTAGRAM: https://www.instagram.com/nutritionwithconfidence/?hl=en  ***** Alex's Links: https://www.instagram.com/healingalixir/  #HistamineIntolerance #HistamineIntoleranceSymptoms #LowHistamineDiet

In this exciting episode of the podcast, Dr. Jennie Berkovich interviews Dr. Sarah Cohen, an expert in dysautonomia, to explore the complexities of this often misunderstood condition. Dr. Cohen shares insights into the types of patients she typically works with and how her journey led her to specialize in dysautonomia. They discuss common misconceptions physicians and medical professionals have about patients with dysautonomia and explore potential risk factors, including early signs that may predict the development of the condition. The conversation delves into the gap in Western medicine when it comes to treating dysautonomia and offers an explanation of Ehlers-Danlos Syndrome (EDS), its typical presentations, and the conditions associated with it. Dr. Cohen also reflects on how treatments for dysautonomia have evolved over the years, providing listeners with the latest updates in care. The episode further explores whether there are any preventive measures available for dysautonomic conditions or ways to slow their progression. This episode is a must-listen for anyone interested in dysautonomia, whether you're a healthcare professional or simply curious about the condition. Tune in for expert insights and a deeper understanding of this important health topic! Sarah Cohen Solomon, MD FAAP is the ABP Board Certified Pediatrician at PRISM Spine and Joint, where she specializes in caring for patients with hypermobile Ehlers Danlos Syndrome and related conditions, including Dysautonomia (POTS) and Mast Cell Activation Syndrome. This interest stems from her own lifelong experience with these conditions. After graduating from Sidney Kimmel Medical College of Thomas Jefferson University, Dr. Cohen Solomon remained at the affiliated Nemours Hospital for Children, where she was awarded the Pediatric Academic Excellence Award for Outstanding Research, Education, and/or Advocacy in General Pediatrics for her work expanding the Advocacy curriculum for their residency program. Dr. Cohen Solomon is passionate about breaking down barriers to healthcare and education, by providing children with appropriate accommodations so they can thrive at school among their peers and mentoring medical students with disabilities. _________________________________________________ Sponsor the JOWMA Podcast! Email digitalcontent@jowma.org Become a JOWMA Member! www.jowma.org Follow us on Instagram! www.instagram.com/JOWMA_org Follow us on Twitter! www.twitter.com/JOWMA_med Follow us on Facebook! https://www.facebook.com/JOWMAorg Stay up-to-date with JOWMA news! Sign up for the JOWMA newsletter! https://jowma.us6.list-manage.com/subscribe?u=9b4e9beb287874f9dc7f80289&id=ea3ef44644&mc_cid=dfb442d2a7&mc_eid=e9eee6e41e

Amanda joins me on the show this month to deep dive into the life of the zebra - AKA invisible illness. I have an official diagnosis for a connective tissue disorder called Ehlers Danlos Syndrome (EDS). Amanda shares the same disorder just minus the official diagnosis, so this show really dives deep into the similarities and uniqueness people with chronic illness share. We touch on all kinds of topics from being super bendy (but somehow also super stiff??), pushing through the pain and usually overdoing it, mental health and its connection to physical health, and the importance of clutter piles in our lives.1 in 20 people have a rare disease - EDS is one of them, affecting an estimated 1 in 5000. It is also one of the most misunderstood and under-diagnosed disorders and having real conversations about the reality of living with it is a great way to help change that. I also touch on my Everesting for EDS Fundraiser - I am raising $29,029 for EDS research this year while I prepare for the 29029 Everesting Event in Stratton Vermont this October (DONATE AND FOLLOW HERE!!).I hope you enjoy this episode - it is one of my personal favorites! Send us a text

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system's role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein welcomes Dr. Ilene Ruhoy, a board-certified neurologist and environmental toxicologist, for an in-depth discussion on brain fog, cognitive dysfunction, and chronic fatigue in conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and dysautonomia. Dr. Ruhoy shares insights on the immune system's role in neurological symptoms, the impact of mast cell activation, and the role of treatments like peptides, IVIG (intravenous gammaglobulin), plasmapheresis, and immune modulators. They also discuss the hidden effects of histamine on the brain, how sensory sensitivity contributes to fatigue, and the role of regenerative medicine in connective tissue healing. This episode is packed with cutting-edge research and practical solutions for improving cognitive function and energy levels. Takeaways: Brain Fog & Fatigue Are Linked to Immune Dysfunction: Cognitive dysfunction in conditions like EDS, MCAS, and POTS is often tied to inflammatory responses and immune dysregulation rather than just histamine alone. Plasmapheresis & IVIG Can Help Some Patients: For severe cases, plasmapheresis removes inflammatory mediators from the blood, and IVIG helps regulate immune function, leading to cognitive and fatigue improvements. Histamine Plays a Complex Role in Brain Function: While histamine can trigger symptoms in MCAS patients, it also has neuroprotective effects, making antihistamine overuse a potential issue for some. Sensory Sensitivity Increases Cognitive Load: Many people with EDS and related conditions experience hypersensitivity to light, noise, and smells, which can overwhelm the nervous system and worsen fatigue. Regenerative Medicine May Support Connective Tissue Repair: Peptides, stem cell therapy, and targeted immune modulation are promising areas of research to help strengthen connective tissue and reduce systemic inflammation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Ilene Ruhoy Instagram: @IleneRuhoyMDPhD TikTok: @IleneRuhoyMDPhD Podcast (YT): @Unraveledpod Twitter: @RuhoyMD Bluesky: @ruhoy.bsky.social Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. Takeaways: Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy. Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don't discuss it. Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help. Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated. Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. My favorite books: https://bit.ly/3WHFQhq Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Kelly Casperson Instagram: @kellycaspersonmd Facebook: @youarentbroken YouTube: @kellycaspersonmd Book: You Are Not Broken https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with Dr. Kelly Casperson, a urologist and sexual health expert, about hormones, libido, and sexual wellness—especially for those with hypermobility, Ehlers-Danlos Syndrome (EDS), and related conditions. They dive into testosterone in women, hormone myths, bladder health, vaginal estrogen, and why pelvic floor therapy is a must. Dr. Casperson debunks common hormone fears, explains the role of mast cells and bladder issues, and shares insights on navigating intimacy with chronic illness. This episode is packed with must-know information on aging, sexual health, and proactive care for those with complex medical conditions. Takeaways: Testosterone is Essential for Women: Women naturally produce more testosterone than estrogen, but it's often overlooked in hormone therapy. Vaginal Estrogen is a Game-Changer: It can reduce UTIs by 50%, improve bladder health, and prevent vaginal atrophy—yet many doctors don't discuss it. Pelvic Floor Therapy is a Must: A weak or overly tight pelvic floor can lead to pain, incontinence, and sexual dysfunction—physical therapy can help. Hormone Myths Need Busting: Misinformation from past studies has caused unnecessary fear of hormone replacement therapy (HRT)—many of those concerns are outdated. Bladder Pain is Often Misdiagnosed: Many people diagnosed with interstitial cystitis may actually have pelvic floor dysfunction, hormone imbalances, or mast cell issues. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. My favorite books: https://bit.ly/3WHFQhq Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Follow along with the episode transcript here. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Kelly Casperson Instagram: @kellycaspersonmd Facebook: @youarentbroken YouTube: @kellycaspersonmd Book: You Are Not Broken https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?ref_=aipsflist Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the LeggLife Podcast, we're diving into a deeply personal topic—Ehlers-Danlos Syndrome (EDS). Sherri first learned about EDS at just 16 years old, and today, she's sharing her journey of living with this complex connective tissue disorder. From early symptoms and diagnosis struggles to the daily challenges of chronic pain, joint instability, and fatigue, we'll discuss what it's really like to navigate life with EDS. New episodes are uploaded weekly on Saturday mornings at 7am Pacific / 10am Eastern Support us and the LeggLife Podcast by becoming a patron at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠  / legglife  ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Learn more about LeggLife by following us on: YouTube: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠http://www.youtube.com/legglifeak/?su...⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Instagram: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠  / legglifeak  ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ Facebook: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠  / legglife  ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ You can reach us via email at legglife@gmail.com

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. Takeaways: Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook. Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy. Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders. Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain. Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy. Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Irwin Goldstein & Sue Goldstein Facebook: @SDSexMed Youtube: @sdsexualmed Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein speaks with sexual health experts Dr. Irwin Goldstein & Sue Goldstein. This amazing husband and wife team share insights on common issues such as vestibulodynia, libido challenges, and treatment options ranging from physical therapy to hormone therapy. They explore the often-overlooked intersection of joint hypermobility conditions like Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Postural Orthostatic Tachycardia Syndrome (POTS) with sexual dysfunction. They discuss how connective tissue disorders impact sexual health, the role of the sacral nerve in arousal and pain, and how patients can advocate for better care. Whether you're struggling with pain during intimacy or looking for solutions, this episode offers practical advice and hope. Takeaways: Connective Tissue Impacts Sexual Health: Conditions like EDS can affect the sacral nerve, leading to pain, discomfort, and sexual dysfunction that many doctors overlook. Mast Cell Dysfunction Can Trigger Pain: MCAS can cause issues such as vestibulodynia, leading to painful penetration and impacting quality of life beyond intimacy. Pelvic Floor Therapy is Essential: Specialized pelvic floor physical therapy can significantly improve sexual function and reduce pain for individuals with hypermobility disorders. Hormone Therapy May Help: Addressing hormonal imbalances, particularly testosterone and estrogen levels, can improve symptoms of vaginal dryness and pain. Communication is Key: Open conversations with partners and healthcare providers about sexual health concerns are crucial for finding the right treatments and maintaining intimacy. PS. The vestibule refers to the vulva (female external genitalia) between the labia minora (two inner skin folds that surround the vaginal opening). PSS. Neuroproliferative vestibulodynia is where there are too many nerve endings in the vestibule tissue.   Check out Ep 116 with Dr Feigenbaum to learn more about Tarlov Cysts, which were discussed in this episode: https://youtu.be/Uq4OrVa6deM Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Find Bendy Bodies episode transcripts here. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Irwin Goldstein & Sue Goldstein Facebook: @SDSexMed Youtube: @sdsexualmed Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health. Takeaways: Mast Cells as the Root Driver: Dr. Carnahan explains how mast cells play a central role in triggering symptoms in EDS, POTS, and MCAS, often driven by infections, toxins, or trauma. Functional Medicine Seeks the Root Cause: A functional medicine approach looks beyond symptoms to uncover underlying triggers like mold, Lyme disease, or environmental toxins. Limbic System Reset is Critical: Addressing the limbic system through the DNRS or The Gupta Program can calm overactive mast cells and reduce overall symptom severity. Diet Plays a Vital Role: A low-histamine diet can be transformative for people with MCAS, reducing inflammation and improving gut health. Small Steps Lead to Big Changes: Healing requires incremental improvements, like reducing toxic exposure, supporting adrenal function, and improving sleep and nutrition. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Find the transcript here: https://www.bendybodiespodcast.com/mast-cells-a-hidden-trigger/#transcript Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Jill Carnahan, MD IG: @drjillcarnahan/ FB: @flatironfunctionalmedicine YT: @JillCarnahanMD Book: https://amzn.to/4gVvtib Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies Podcast, Dr. Linda Bluestein chats with functional medicine expert Dr. Jill Carnahan about tackling complex conditions like Mast Cell Activation Syndrome (MCAS), Ehlers-Danlos Syndrome (EDS), and POTS. A Breast Cancer and Crohn's disease survivor, Dr. Carnahan shares her unique approach to identifying root causes of chronic illness using functional medicine principles. They explore the triad of MCAS, EDS, and dysautonomia, and discuss tools like the limbic system, toxin reduction, and gut healing to improve patient outcomes. This episode is packed with practical insights for navigating chronic illness and optimizing your health. Takeaways: Mast Cells as the Root Driver: Dr. Carnahan explains how mast cells play a central role in triggering symptoms in EDS, POTS, and MCAS, often driven by infections, toxins, or trauma. Functional Medicine Seeks the Root Cause: A functional medicine approach looks beyond symptoms to uncover underlying triggers like mold, Lyme disease, or environmental toxins. Limbic System Reset is Critical: Addressing the limbic system through the DNRS or The Gupta Program can calm overactive mast cells and reduce overall symptom severity. Diet Plays a Vital Role: A low-histamine diet can be transformative for people with MCAS, reducing inflammation and improving gut health. Small Steps Lead to Big Changes: Healing requires incremental improvements, like reducing toxic exposure, supporting adrenal function, and improving sleep and nutrition. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Find the transcript here: https://www.bendybodiespodcast.com/mast-cells-a-hidden-trigger/#transcript Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Jill Carnahan, MD IG: @drjillcarnahan/ FB: @flatironfunctionalmedicine YT: @JillCarnahanMD Book: https://amzn.to/4gVvtib Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Lindsay shared her health journey. She discussed her experience of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), Ehlers-Danlos Syndrome (EDS), and Mast Cell Activation Syndrome (MCAS). She described first noticing symptoms in her early 30s, leading to her POTS diagnosis in 2017 after fainting during a tilt table test. Lindsay also shared her battle with breast cancer, undergoing treatment, and successfully overcoming the challenges. In 2022, she encountered a frightening episode of rapid heart rate, trembling, and other distressing symptoms, prompting her to seek help from a functional gastroenterologist. Lindsay explained her ongoing struggle with gut issues, constipation, a dairy allergy, and skin problems, and how she has found relief through dietary adjustments and medication.

In this conversation, Dr. Cameron Bearder interviews Dr. Meghan Mizrachi, a physical therapist, about her journey from professional dance to physical therapy, the differences in practice between physical therapy and chiropractic, and the complexities of treating hypermobility and Ehlers-Danlos Syndrome (EDS). They discuss patient expectations, the role of the brain in pain perception, and the intersection of healthcare and business. The conversation highlights the importance of movement efficiency and injury prevention, as well as the philosophical differences in treatment approaches between the two disciplines. In this conversation, Dr. Bearder discusses various aspects of physical therapy, including the importance of alignment in injury prevention, the role of imaging, and the differentiation between arthritis and other conditions. He emphasizes the significance of effective patient communication, understanding patient expectations, and the challenges of accessibility in healthcare. The discussion also touches on the value of wellness, patient investment, and the need for empowerment through education. Check out Keystone Upper Cervical Spine Clinic online here: https://www.keystonespineclinic.com/ Check out Dr. Meg at Congruency Physical Therapy online here: https://congruencypt.com/team Social: @drbearder @zenith_chiro @congruencypt Dr. Stenberg can be found online at: https://www.zenithchiroco.com/ Atlas of Chiropractic on YouTube: @AtlasofChiropractic

Ehlers-Danlos Syndrome (EDS) is a connective tissue disorder that presents differently in each individual. For Emily, it significantly affected her digestive system. During her first pregnancy, she struggled with severe hyperemesis, unable to keep any food down at all.  In this episode, Emily shares one of the most unique and challenging stories of pregnancy, birth, and postpartum I have ever encountered. Her journey is a powerful testament to the resilience of the mother-baby bond and her incredible strength.  Despite the hardships she faced, Emily has recovered and found joy in the small but profound moments of motherhood. She recalls the first time her baby smiled at her—a moment when her heart truly felt light for the first time.  Tune in to hear Emily's inspiring story of determination, love, and healing.  If you love the show, I would greatly appreciate a review on  Spotify or Apple Podcasts!  Follow me on Instagram @healingbirth Do you have a birth story you'd like to share on the podcast, or would like to otherwise connect? I love to hear from you! Send me a note at contactus@healingbirth.net Check out the website for lots of other birth related offerings, and personalized support: www.healingbirth.net Intro / Outro music: Dreams by Markvard

To have your question featured in a future video, please email: questions@drmdc.health Please include at least: Age, Weight and as much history as possible.

In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this solo episode of the Bendy Bodies Podcast, Dr. Linda Bluestein tackles your most pressing questions about preparing for surgery with conditions like Ehlers-Danlos Syndrome (EDS), POTS, and MCAS. Dr. Bluestein explains how the recent IV fluid shortage may affect you, which supplements to stop before surgery, and why hydration is key for successful outcomes. She also addresses the importance of communicating with your surgeon about your unique medical needs and provides practical pre- and post-surgery hacks to optimize recovery. Packed with valuable tips, this episode is a must-listen for anyone navigating surgery with chronic conditions. Takeaways: IV Fluid Shortages Can Impact Surgery: The recent IV fluid shortage in the U.S. means patients may receive less fluid during surgery, making pre-surgery hydration even more critical, especially for those with POTS. Stop Certain Supplements Before Surgery: Supplements like ginger, garlic, ginkgo, ginseng, fish oil, turmeric, and CBD oil can increase bleeding risk and should be stopped 1-2 weeks before surgery. Talk to Your Surgeon About Medications: People with POTS or MCAS may need to adjust medications before surgery. Discuss your supplements and medications with your surgical team to avoid complications. Hydration is Essential: Going into surgery well-hydrated can make IV insertion easier and help prevent complications, especially for those with chronic illnesses like POTS. Tailor Your Pain Management Plan: Discuss post-surgery pain management with your doctor ahead of time to ensure you have appropriate medications and tools to manage pain and prevent complications like constipation. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related issues. Takeaways: EDS Increases ENT Vulnerability: People with EDS are prone to ENT issues like tonsil stones, chronic sore throats, sinus infections, and vocal cord dysfunction due to their connective tissue laxity. Avoid Unnecessary ENT Surgeries: Surgery should be a last resort for EDS patients due to poor healing and higher complication risks. Alternatives like intracapsular tonsillectomy can minimize trauma when surgery is necessary. Antibiotic Treatment Requires Adjustment: EDS patients often need longer and earlier courses of antibiotics for sinus infections and other ENT issues to ensure full recovery. Hot Showers Are Healing: Heat and steam are beneficial for managing sinus issues, ear pain, and overall EDS symptoms, making hot showers a simple yet effective tool. Hot showers can be challenging for those with POTS and or MCAS, but for those who can tolerate them, they can be very helpful.    Steroids Can Do More Harm Than Good: Intranasal steroids like Flonase should be avoided in EDS patients, as they weaken already fragile connective tissues, potentially exacerbating problems. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Das Website: https://www.usasinus.org/meet-dr-das Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with being gaslit by medical professionals and the resilience it has taken to continue advocating for herself.Key Moments2:54Accessibility in spaces18:27 Living with EDS31:28 Experiencing medical gaslighting52:45 Advocating for inclusive training and supportConnect with  Annie SegarraLinkedIn:https://www.linkedin.com/in/anniesegarra Website:https://invisibleproject.org/annie-segarra/ 

In this enlightening episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with otolaryngologist Dr. Shu Das about the unique ENT challenges faced by people with Ehlers-Danlos Syndrome (EDS). Dr. Das shares his expertise on common issues like tonsil stones, chronic sore throats, and sinus infections, while diving deep into how EDS impacts vocal cords, nasal health, and even hearing. He offers practical tips for managing symptoms, from antibiotic courses to alternative surgical approaches. Packed with advice on avoiding unnecessary surgeries and improving overall quality of life, this episode is a must-listen for anyone navigating EDS and ENT-related issues. Takeaways: EDS Increases ENT Vulnerability: People with EDS are prone to ENT issues like tonsil stones, chronic sore throats, sinus infections, and vocal cord dysfunction due to their connective tissue laxity. Avoid Unnecessary ENT Surgeries: Surgery should be a last resort for EDS patients due to poor healing and higher complication risks. Alternatives like intracapsular tonsillectomy can minimize trauma when surgery is necessary. Antibiotic Treatment Requires Adjustment: EDS patients often need longer and earlier courses of antibiotics for sinus infections and other ENT issues to ensure full recovery. Hot Showers Are Healing: Heat and steam are beneficial for managing sinus issues, ear pain, and overall EDS symptoms, making hot showers a simple yet effective tool. Hot showers can be challenging for those with POTS and or MCAS, but for those who can tolerate them, they can be very helpful.    Steroids Can Do More Harm Than Good: Intranasal steroids like Flonase should be avoided in EDS patients, as they weaken already fragile connective tissues, potentially exacerbating problems. Connect with YOUR Hypermobility Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Dr. Das Website: https://www.usasinus.org/meet-dr-das Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

After working through most of the Teen Titans, author Kami Garcia and artist Gabriel Picolo have finally reached the Tamaranean superhero, Starfire. Their latest collaboration finds Kori struggling to find her place amongst her peers while her sister Kira thrives in the environment. Kori strives for the stars above, but feels trapped in her Summer job and her body, especially after her Ehlers Danlos Syndrome (EDS) diagnosis. On this week's podcast, we chat with bestselling author Kami Garcia about Teen Titans: Starfire, how she found herself in the character, and why that allowed her to embrace her past and present self. Famously, Garcia began her writing career as a dare from her students, picking up the pen and proving to them (and herself) that she could tell a darn good story. We discuss the details of that dare, how her teaching life factors into her writing life, and why young adult fiction often becomes necessary all-ages fiction. Teen Titans: Starfire is now available wherever good comics are sold. You should follow Kami Garcia on Instagram, Bluesky, and her website. However, before we dive into our Teen Titans conversations, we discuss the impending holiday season and the gift-giving stress that comes with it. We believe wholeheartedly that there is a comic for everyone in your life, and the trick is figuring out what that comic is. In an effort to help you and us, we've assembled our annual Comic Book Holiday Gift Guide. We discuss our philosophy around comic book gift-giving and a few of our favorite items from the list. Other Relevant Links: The CBCC TeePublic Page The CBCC Comic Book Holiday Gift Guide Final Round of Plugs (PHEW): Support the Podcast by Joining OUR PATREON COMMUNITY And, of course, follow Comic Book Couples Counseling on Facebook, on Instagram, and on Bluesky @CBCCPodcast, and you can follow hosts Brad Gullickson @MouthDork & Lisa Gullickson @sidewalksiren. Send us your Words of Affirmation by leaving us a 5-star Review on Apple Podcasts. Continue your conversation with CBCC by hopping over to our website, where we have reviews, essays, and numerous interviews with comic book creators. Podcast logo by Jesse Lonergan and Hassan Otsmane-Elhaou.

In this week's episode of Take a Pain Check, Kate Bourne shares her powerful journey with Ehlers-Danlos Syndrome (EDS), discussing the 12-year delay in her diagnosis and the profound impact it had on her confidence, mobility, and academic life. Kate reflects on the emotional toll of not having answers for so long, navigating school and daily life with unexplained symptoms. She also highlights her passion for research, focusing on anesthetic resistance in EDS patients and the relationship between EDS and POTS, with the goal of improving healthcare practices for those affected by these conditions. As a 2024 recipient of the STEM Without Limits scholarship, Kate shares how she plans to use the funds to further her academic and research endeavors, offering advice to young adults about finding their career paths. Apply to our scholarship today: https://www.takeapaincheck.com/scholarship Don't forget to like, comment, and subscribe for more episodes. Our socials: Website: ⁠https://www.takeapaincheck.com/⁠ Instagram: https://www.instagram.com/takeapaincheck_/ Tiktok: https://www.tiktok.com/@takeapaincheck?lang=en X: https://www.instagram.com/takeapaincheck_/ Likedin: https://www.linkedin.com/company/take-a-pain-check/ Kate's socials: Instagram and X: @katebournebsc Growing Pains, Copyright, 2018, Alessia Cara

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you're looking to build strength or simply move without pain, Wendy's expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies. Takeaways: Physical Therapy Requires Customization: Traditional PT often doesn't suit hypermobile patients, who benefit more from individualized programs that focus on stability and gradual strength-building. Start Low, Go Slow: Many patients with EDS need to begin with very small movements to avoid overloading their joints and worsening pain or instability. Building Confidence is Essential: Overcoming kinesiophobia (fear of movement) is key for hypermobile patients, often requiring exercises that first build trust in their bodies. Mindfulness and Body Awareness Matter: Breathing exercises, body awareness, and even posture adjustments can help patients avoid compensatory movements and pain. Collaboration is Key in PT: Finding a PT willing to learn and work collaboratively is crucial for hypermobile patients to safely navigate physical therapy. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Wendy Wagner Facebook: https://www.facebook.com/wendy4therapy Website: https://www.wendy4therapy.com/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Chicago-based physical therapist Wendy Wagner to discuss the unique challenges of physical therapy for hypermobility and Ehlers-Danlos Syndrome (EDS). Wendy, who personally manages EDS, postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS), shares her journey, insights on cervical instability, and tips for choosing the right physical therapist. They dive into the importance of “starting low and going slow” in exercise, strategies for avoiding flares, and how to tailor physical therapy to individual needs. Whether you're looking to build strength or simply move without pain, Wendy's expertise provides guidance and practical hacks to make physical therapy safer and more effective for hypermobile bodies. Takeaways: Physical Therapy Requires Customization: Traditional PT often doesn't suit hypermobile patients, who benefit more from individualized programs that focus on stability and gradual strength-building. Start Low, Go Slow: Many patients with EDS need to begin with very small movements to avoid overloading their joints and worsening pain or instability. Building Confidence is Essential: Overcoming kinesiophobia (fear of movement) is key for hypermobile patients, often requiring exercises that first build trust in their bodies. Mindfulness and Body Awareness Matter: Breathing exercises, body awareness, and even posture adjustments can help patients avoid compensatory movements and pain. Collaboration is Key in PT: Finding a PT willing to learn and work collaboratively is crucial for hypermobile patients to safely navigate physical therapy. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Learn about Wendy Wagner Facebook: https://www.facebook.com/wendy4therapy Website: https://www.wendy4therapy.com/ Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you're newly diagnosed or a long-time EDS warrior, you'll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

In this personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint pain, dislocations, and chronic illness, which led to her diagnosis of Ehlers-Danlos Syndrome (EDS). Along with her personal story, Dr. Bluestein reveals the hacks and strategies that have helped her regain function, manage pain, and improve her quality of life. From practical tips to movement strategies, this episode is packed with advice on navigating hypermobility and chronic pain. Whether you're newly diagnosed or a long-time EDS warrior, you'll find plenty of insights and hacks to apply to your own journey. Takeaways: Personal Struggles Led to Professional Focus: Dr. Bluestein's own experiences with chronic pain, multiple surgeries, and hypermobility drove her to shift from being an anesthesiologist to becoming a hypermobility expert and advocate. Hypermobility Affects Multiple Body Systems: Dr. Bluestein's journey highlights how hypermobility and Ehlers-Danlos Syndrome (EDS) can impact various systems in the body, including joints, gastrointestinal issues, and the nervous system. Tarlov Cyst Surgery Was a Turning Point: Dr. Bluestein's diagnosis of a Tarlov cyst and subsequent surgery gave her tremendous relief after years of pain, sparking her commitment to helping others with similar conditions. Movement is Critical for Recovery: Despite the fear of injury, Dr. Bluestein emphasizes the importance of movement for those with EDS, as it is essential for maintaining strength and preventing further dysfunction. Secrets to Living Better: Dr. Bluestein shares the approach she used to improve her own quality of life. This holistic method to help patients manage EDS and chronic pain includes movement, nutrition, psychosocial support, nutritional supplements, and medication.  Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/. Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/. Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority! Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Send us a textJoin us as we welcome Dr. Akilah Cadet, a trailblazer in the fight against white supremacy, who shares her compelling journey as a first-generation Haitian-American. Dr. Cadet challenges harmful stereotypes, such as the myth about Haitians eating pets, and unpacks the broader impact of white supremacy on marginalized groups. Her powerful storytelling sheds light on the discrimination faced by many in the post-9/11 era and during the COVID-19 pandemic. We explore intersectionality and the courage needed to drive social change, emphasizing how narratives can be tools for both oppression and transformation.Our conversation takes a deeply personal turn as Dr. Akilah Cadet opens up about living with Ehlers-Danlos Syndrome (EDS) and major depressive disorder. With honesty and humor, she describes the resilience required to navigate life with these chronic conditions, sharing an alarming emergency room experience where she had to advocate fiercely for her own care. Dr. Cadet illustrates the power of reframing challenges, embracing her dynamic disability, and finding strength in self-advocacy and humor as essential coping mechanisms.We also highlight the exciting ventures of the Oakland Roots and Oakland Soul soccer teams, celebrating their community-driven approach and historic move to the Oakland Coliseum. Reflecting on the vibrant sports history of Oakland, we discuss the significance of creating an inclusive, community-centered experience. From record-breaking community investment rounds to personal connections with Oakland's cultural legacy, this episode is a heartfelt tribute to resilience, community, and the ongoing fight for equity and inclusion. Thank you to our listeners for your support and for sharing in the positive energy of this journey.Support the show

In this episode of The Writing Glitch, Cheri Dotterer is joined by Lindsey Ball, an athletic trainer and biomechanics expert, to discuss her experience living with Ehlers-Danlos Syndrome (EDS), a connective tissue disorder. Lindsey shares her personal journey, the challenges EDS brings to everyday tasks like writing, and how she navigates athletic training and academic pursuits. Whether you're a parent, teacher, or someone interested in biomechanics and EDS, this episode offers invaluable insights into recognizing and managing connective tissue disorders, especially in children and athletes.***************************************************************************DisabilityLabs.com sponsors this video podcast. We are committed to IMPACT the journey of 200K teachers (3M students) by 2030 so they can reignite their passion for teaching.*****************************************************************************RESOURCES FROM THIS EPISODEhttps://www.ehlers-danlos.com/wp-content/uploads/2017/05/hEDS-Dx-Criteria-checklist-1.pdfhttps://www.ehlers-danlos.com/resource-category/printable-brochures-and-materials/https://www.ehlers-danlos.org/what-is-eds/https://www.ehlers-danlos.com/****************************************************************************TIMESTAMPS00:00 Introduction to Lindsey Ball and Ehlers-Danlos Syndrome (EDS)02:30 Overview of EDS: Diagnosis and Different Types05:00 How EDS Affects Writing and Everyday Tasks08:00 Writing Challenges and Hand Pain in EDS Patients11:00 Adaptations for Writing Tools and Techniques14:00 Keyboarding and Mousepad Adaptations17:30 Importance of Accommodations in Higher Education19:00 The Role of Assistive Technology in Writing and Studying20:00 Closing Thoughts and Lindsey's Future Research****************************************************************************BOOKSHandwriting Brain Body DISconnect Digital Version: https://disabilitylabs.com/courses/hwbbd On Amazon: https://www.amazon.com/Handwriting-Br...*****************************************************************************SUBSCRIBE and LISTEN to the Audio version of the podcast here on YouTube or your favorite podcast app.APPLE: https://podcasts.apple.com/us/podcast/the-writing-glitch/id1641728130?uo=4SPOTIFY: https://open.spotify.com/show/5rU9kLxjkqJE5GbyCycrHEAMAZON MUSIC/AUDIBLE: https://music.amazon.com/podcasts/894b3ab2-3b1c-4a97-af60-b1f2589d271fYOUTUBE: https://www.youtube.com/@TheWritingGlitchPodcast*****************************************************************************MISSIONDotterer Educational Consulting, a Therapy Services, LLC company: To provide professional development to improve writing skills through efficient lesson planning for regular education classrooms.************************************************************************WORK WITH US:Self Study Dysgraphia Course: Dotterer Dysgraphia Method: https://disabilitylabs.com/courses/dotterer-dysgraphia-method*************************************************************************Other ways to connect with Cheri Linked In: https://www.linkedin.com/in/cheridott...FB: https://www.facebook.com/groups/tier1...IG: https://www.instagram.com/cheridotterer/X: https://twitter.com/CheriDottererTikTok:

In this special on-site episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down face to face with Dr. John Pitts! Dr. Pitts, is an expert in regenerative medicine, about cutting-edge treatments for hypermobility and chronic pain. Dr. Pitts discusses prolotherapy, protein rich plasma (PRP), and "stem cell" therapies and explains how these treatments can heal tissues and improve function without surgery. He shares insights on treating conditions like Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorder (HSD), and joint instability, focusing on helping the body heal itself. Whether you're dealing with nagging pain or seeking alternatives to surgery, this episode offers hope and practical solutions. Takeaways: Regenerative Medicine: Prolotherapy, PRP, and "stem cells" can help heal tissues and reduce pain by stimulating the body's natural healing processes. Early Treatment: Early intervention in hypermobile joints can prevent long-term damage and the need for surgery. Safer Alternatives to Surgery: Injection-based treatments offer a less invasive and safer alternative to orthopedic surgery. PRP and Stem Cell Evidence: These treatments have been shown to improve outcomes for knee arthritis and other musculoskeletal issues. Tailored Approaches for EDS Patients: Patients with Ehlers-Danlos Syndrome may respond better to prolotherapy and require different treatment approaches compared to non-EDS patients. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. John Pitts: IG: @johnpittsmd & @centenoschultzclinic Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

On today's show I have the lovely Jess Chandler. Jess is an advocator and activist in the Neurodivergent and Disabled Community. Jess also spreads awareness about Ehlers Danlos Syndrome (EDS) and educates others on the impact that invisible illnesses can carry. Now you might know Jess from her fab instagram and TikTok accounts @thejesschandler (where she has almost 34,000 followers and @the.neurodivergent.witch which has almost 13,000 followers! So I'm very excited for this chat! Links to find Jess: Instagram: ⁠https://www.instagram.com/thejesschandler⁠ TikTok: ⁠https://www.tiktok.com/@thejesschandler⁠ YouTube:⁠https://www.youtube.com/@JessChandler⁠ ⁠the.neurodivergent.witch | Instagram, TikTok | Linktree⁠ My 21andsensory links:     @21andsensory on Instagram: ⁠⁠⁠⁠⁠ www.instagram.com/21andsensory⁠ @21andsensory on TikTok: ⁠⁠⁠⁠⁠www.tiktok.com/@21andsensory ⁠⁠⁠⁠⁠ 21andsensory on YouTube: ⁠⁠⁠⁠⁠www.youtube.com/c/21andsensory⁠⁠⁠⁠⁠ 21andsensory Blog: ⁠⁠⁠⁠⁠21andsensory.wordpress.com⁠⁠ @21andsensory on Twitter: ⁠⁠⁠⁠⁠twitter.com/21andsensory⁠

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains how fascial dysfunction contributes to myofascial pain, joint instability, and other challenges faced by individuals with hypermobility. Dr. Wang also discusses innovative diagnostic techniques and treatment approaches, including the use of ultrasound and manual therapy. This episode is a must-listen for anyone who wants to better understand their pain, or is interested in the cutting-edge research and clinical insights on fascia and connective tissue disorders. Takeaways: Fascia's Role in EDS: Fascia plays a crucial role in connective tissue disorders like EDS and HSD, impacting everything from joint stability to chronic pain. Myofascial Pain: Myofascial pain, often misunderstood, can be a significant source of discomfort in hypermobility conditions due to fascial dysfunction. Ultrasound for Diagnosis: Advanced ultrasound techniques are improving the ability to diagnose fascial changes and guide treatment in EDS patients. Manual Therapy Benefits: Proper manual therapy can help alleviate fascial dysfunction, but it must be approached cautiously, especially in hypermobile patients. Holistic Management: Managing hypermobility-related pain requires a holistic approach, including movement therapy, manual therapy, and collaboration with healthcare professionals. Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them. Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.   Learn more about Human Content at http://www.human-content.com Podcast Advertising/Business Inquiries: sales@human-content.com YOUR bendy body is our highest priority!  Learn about Dr. Tina Wang: Linkedin: @tupelopointe Tiktok: @tupelopointe Keep up to date with the HypermobilityMD: YouTube: youtube.com/@bendybodiespodcast Twitter: twitter.com/BluesteinLinda LinkedIn: linkedin.com/in/hypermobilitymd Facebook: facebook.com/BendyBodiesPodcast Blog: hypermobilitymd.com/blog Part of the Human Content Podcast Network Learn more about your ad choices. Visit megaphone.fm/adchoices

Ehlers-Danlos Syndrome (EDS) is a multifactorial condition that can affect people across ages and genders. It can be very difficult to diagnose as some types of EDS are very rare and symptoms can be vague or be confused with other diseases. Pelvic floor dysfunction (PFD) is also a condition that can be difficult to diagnose for so many reasons. Both EDS and PFD are not taught to the extent to which they should in healthcare schools and is usually something that care providers need to research on their own or obtain higher education on. For this reason, when people with EDS have PFD, there are not a lot of health care professionals who fully understand both conditions to be able to treat them effectively.For this reason, Leia Mitchell, a women's sexual health physician assistant in NYC took it upon herself to research the intersection between EDS and PFD. In the episode, we cover the basics of EDS and PFDs and why they can be correlated. If you have hypermobility and vaginal issues (or either one), listen up!Leia works at The Centers for Vulvuvaginal Disorders and has recently published and article called "Identifying a correlation between hypermobile ehlers-danlos syndrome and genito-pelvic pain in cisgender women" and has won the Erwin Goldstein “Best Abstract Award” at the International Society for for the Study of Women's Sexual Health (ISSWSH).Leia Mitchell is originally from Atlanta, GA but grew up in Chattanooga, TN. She graduated from Georgia Institute of Technology with a B.S. in Biochemistry. Ms. Mitchell obtained her Master in Biophysics and Physiology from Georgetown University and Masters of Medical Sciences from Mercer University where she graduated as Valedictorian. After working as a PA for several years, she is currently beginning school again to become a Doctor of Osteopathic Medicine.Connect with her:@the_womenshealth_pa

Hear this toxic mold success story about how Matt completely healed his family from mold - even when ALL doctors had failed them.---In 2018, Matt and his wife Amy were woken up in the middle of the night by their son writhing with abdominal pain. Western medicine said he was a healthy young man and had no answers. Matt eventually connected a moldy window in his sons room to his symptoms and started studying mold around the clock. On today's episode, I'm having special guest Matt Kelly, Functional Health Practitioner, onto the Better Belly Podcast to come and personally tell the story of his and his families journey through MCAS, Ehlers-Danlos Syndrome (EDS), mold, and Lyme disease, getting no answers from conventional medicine, finding mold was at the center of it all, and popping out on the other side with, dare I say it, a happy ending.I've personally had the honor to get to know Matt through a variety of connections. He's mentored me through some of my very first clients with Lyme disease, and I've gotten to absorb his wisdom and passion for healing clients from mold just by being in his amazing Toxic Mold Answers FB Group, which has EXPLODED in the number of people it serves over the last few years.I am SO excited to introduce you to Matt and his and his family's incredible story of struggle, defeat, and triumph. If you've been discouraged in your journey to heal your body from mold, Lyme, or if you don't even know what is making you sick, then it's time to dive into this story of hope about how one family escaped from mold and Lyme - and how you can, too. EPISODES MENTIONED:Ep. 220// 100 Signs of Toxic Mold Exposure: How Many Do You Have?Ep. 222// 5 Signs of Hidden Mold, with Brian Karr (YesWeInspect)Ep. 223// The 3-Step Mold Treatment PlanEp. 224// Mold & Emotions: 3 Tips for How to Balance Mold, Emotions, and HealingEp. 226// The Mold-Lyme Connection: How to Treat Mold Toxicity and Lyme Disease TogetherCONNECT WITH THE GUEST:Join Matt's FB Group, Toxic Mold AnswersTake the most extensive mold toxicity quiz on the internet! Find out if mold could be affecting you or your family.Get the "Mold Proof Your Home" Masterclass (use code: BBT to get 10% off!)Get the "Living in Mold" Course (release TBD but we'll be keeping these shownotes updated with the link as soon as it's available!)Sign up for notifications for the release of the Healthy Young Man documentary HEAL FROM MOLD TODAY!Get my A to Z plan to find + heal from mold! Watch this FREE training walking you through how to heal,...

What are the common misconceptions about Ehlers-Danlos Syndrome that lead to misdiagnosis?   How can physical therapy be tailored to effectively manage Ehlers-Danlos Syndrome, considering its complexity? Welcome to the Uncaged Clinician Podcast! I'm your host David Bayliff is joined by Jen Bambrough, a physical therapist from Chattanooga, Tennessee, who brings both professional expertise and personal experience to the discussion on Ehlers-Danlos Syndrome (EDS). They dive into the intricacies of EDS, exploring the challenges in diagnosis, the importance of personalized treatment, and the various symptoms associated with the syndrome. In this episode, we'll cover the following topics with you: Introduction of special guest, Jen Bambrough Basic understanding of Ehlers-Danlos Syndrome (EDS) Discussing the symptoms and complexities in diagnosing EDS Strategies for treatment and management of EDS The role of exercise and physical therapy in managing EDS Exploring the challenges and comorbidities associated with EDS If you found value in this episode, don't keep it to yourself! Share it with a friend and spread the inspiration. Tune in to future episodes for more conversations on UNCAGING YOUR Potential for Achieving Success.   Do you have questions about starting or even optimizing your current practice? We invite you to schedule a 30-minute growth strategy call with us Here! https://api.leadconnectorhq.com/widget/booking/FYWtsvC5j16lmvKbDg9H Additional Resources: When you are ready…Here are ways that we can help you to grow your practice:   If you are looking for guidance and accountability as you begin to grow your practice, or even if you are already established, we have a program that is right for you. To learn more about the ways we can help you, fill out our application.   PATHWAY  https://api.leadconnectorhq.com/widget/form/Y6ABODFCd53KLdo9SPfy   Join the UNCAGED Clinician Facebook community. YES, you have a community that you can immediately plug into where you can learn to grow a six-figure practice: https://facebook.com/groups/113576786080229

In this enlightening episode of the Tick Boot Camp Podcast, host Matt Sabatello and special guest co-host Candace Matthis from Two Alpha Gals sit down with Nick Perfumo, a 37-year-old from Greensboro, NC, who shares his challenging journey with Lyme disease, Alpha-gal syndrome, Mast Cell Activation Syndrome (MCAS), and Ehlers Danlos Syndrome (EDS). Nick discusses his life before and after the diagnosis, detailing his symptoms, the impact on his personal and professional life, and his ongoing battle to regain his health. Key Topics Discussed: Nick's active outdoor lifestyle before Lyme and how frequent tick exposure gradually took its toll. The onset of severe symptoms in his early 20s, leading to a significant impact on his quality of life. His experiences with various treatments, including the Desert Bio (DesBio) protocol, Low-Dose Naltrexone (LDN), Japanse Knotweed (Boba BB VII), testosterone hormone therapy, Methylene Blue, and the Cowden Protocol. Candace Matthis provides insights into living with Alpha-gal syndrome and co-hosts a deep dive into managing this complex condition alongside Lyme disease. Guest Bio: Nick Perfumo is an outdoor enthusiast and former air traffic controller whose life was drastically altered by Lyme disease and other tick-borne illnesses. Now managing a 911 dispatch center, Nick is a vocal advocate for proactive health management and tick disease awareness. Subscribe and Review: If you found value in this episode, please subscribe and leave us a review on Apple Podcasts, Spotify, or your podcast platform of choice, as it helps us reach and assist more people in managing and preventing tick-borne diseases.

In this podcast, Cayla Craft interviews Tracy Rodriguez, founder of Heal with Tracy, a hypermobility health coach and corrective exercise specialist. Tracy shares her journey of being bedridden due to Ehlers-Danlos Syndrome (EDS) and how she turned her personal struggles into a mission to help others with similar conditions. She explains the importance of advocating for oneself in the healthcare system, as many patients with complex, multi-systemic issues are often misunderstood or misdiagnosed. Tracy highlights the connection between neurodivergence, such as ADHD, and hypermobility, pointing out that many entrepreneurs may be unknowingly affected. She emphasizes the role of trauma in triggering health problems and the need for a holistic approach to healing. The conversation also touches on the shortcomings of the traditional medical system in addressing multi-systemic conditions and the necessity for changes in medical training and awareness.Get In Touch With Tracy Rodriguez:Program: Healwithtracy.comSocial Media:TikTok.com/thetracyrodriguezInstagram.com/thetracyrodriguezFacebook.com/tracyrodriguezcesKey Moments:00:02:26 - 00:02:52Tracy shares her personal story of being bedridden after a semi-truck accident, dealing with chronic pain, and being dismissed by doctors. She explains how this experience led her to start a company to help others in similar situations.00:10:50 - 00:11:16Tracy discusses the challenges of scaling her business too quickly and how it led her to pivot her approach. Instead of focusing on asking for money from her audience, she decided to give as much value as possible through social media.00:14:40 - 00:15:02Tracy emphasizes the importance of understanding the "why" behind personal struggles. She explains how learning about her ADHD and autism helped her realize that some of her challenges were not her fault, but rather due to the way her brain works.00:20:08 - 00:21:08The discussion turns to how autism presents in females, often leading to issues with social interactions and the need to mask their true personalities. Tracy also shares insights on how ADHD can manifest as overwhelm, messiness, and forgetfulness.00:31:29 - 00:33:00Tracy talks about homeschooling her children due to the overstimulation they experience in traditional school settings. She highlights the importance of adapting lifestyle choices to prioritize family wellness and the joy that comes from this approach.00:40:59 - 00:41:43In the closing segment, Tracy and Cayla discuss the significance of making small, new choices for a better life and business. Tracy shares where listeners can find her online and access her program for more support.00:41:02 - 00:41:20Tracy mentions the importance of finding the "why" behind one's actions and how it leads to making positive changes. She also thanks Cayla for making valuable information accessible and mentions her affordable subscription plan.Links + Resources:Join Game Changers Today - stan.store/caylacraftGet my framework for more abundance, meaning, and connection in my book - What Do You Really Want?Get executive coaching with Cayla Craft! - Submit Here!Join GameChangers:stan.store/caylacraft/p/gamechangersIncrease your INCOME, PORTFOLIO, and IMPACT!