Podcasts about Cystic Fibrosis Trust

(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you)Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundations who are also doing great things.  Today we're going to tell you about the CF Trust in the United Kingdom.Belinda Cupid is the Senior Impact Adviser at Cystic Fibrosis Trust. For the past six years she has been a member of the research team at Cystic Fibrosis Trust, their work is making a big difference to people with CF and their loved onesBelinda works with colleagues to explain research grants, to bring to life progress made and put cystic fibrosis research news in context. Belinda does a lot. She collects, analyses, and interprets information on the impact of CF Trust-funded research. Her hard work helps Cystic Fibrosis Trust evaluate the outcomes of their funding and helps generate income to continue to fund cystic fibrosis research into the future. Belinda completed her PhD in biological chemistry, she has spent the last 20 years working in medical research charities, supporting, and communicating research into motor neuron disease and cystic fibrosis.She's doing some pretty amazing work as you'll hear.Contact Cystic Fibrosis Trust U.K. https://www.cysticfibrosis.org.ukPlease consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website: https://thebonnellfoundation.orgBonnell Foundation email: thebonnellfoundation@gmail.comThanks to our sponsors:Vertex:  https://www.vrtx.comViatris: https://www.viatris.com/en Please like, subscribe, and comment on our shows, wherever you get your podcasts.Please consider making a donation: https://thebonnellfoundation.org/donate/The Bonnell Foundation website:https://thebonnellfoundation.orgEmail us at: thebonnellfoundation@gmail.com Thanks to our sponsors:Vertex: https://www.vrtx.comViatris: https://www.viatris.com/en

As the second edition of the SBC Boxing Championship, in sponsorship with Oliver's Wish Foundation, quickly approaches, fighters are putting their final touches on their gameplay to out box and out manoeuvre their opponents. After an epic and emotional night last year, the second iteration of the industry's biggest fight night is ramping up, and looks set to be even bigger. With six fights on the card, including our first ever women's bout, SBC Boxing Championship 2023 is a can't-miss event.12 boxers from the industry, celebrity hosts and over 500 guests will be raising thousands of pounds for Oliver's Wish Foundation, Chestnut Tree House, Cystic Fibrosis Trust and SUDC UK, with plenty of entertainment and networking opportunities throughout the evening.Ahead of fight night, iGaming Daily's resident pugilist, Joe Streeter, sat down face-to-face with Simon Pilkington of SMPL Consulting, and YOLO Group's Mark Taffler, who will share the ring together in the opening bout, to discuss why they decided to compete in this year's Championship, how their camp has gone, share some stories from their boxing training, and how they plan on handling the incredible emotion in the room. To make a donation, click on the following link - https://www.justgiving.com/campaign/sbccharityboxing2023owfHost: Joe StreeterGuest: Simon Pilkington & Mark TafflerProducer: Anaya McDonaldEditor: James Ross

Joy is...The Unknown.Louis Hall is an actor, writer and founder of The Big Hoof charity. The Big Hoof promotes adventure and wellbeing through their long distance rides. Beginning in 2020, Louis rode down the length of the UK in memory of his friend Leo, raising over £38,00 for the Cystic Fibrosis Trust. Most recently, the charity organised a 2789km ride from Siena, Italy to Cape Finiterre, Spain, to raise money for refugees and their trauma. The pursuit of human connectivity, fundraising and adventure is at the core of everything The Big Hoof does. Louis, originally from Scotland, is now planning a ride across America. Louis is a gifted storyteller who thinks and feels deeply about the people and the land around him. Our conversation traverses the moving back story behind his first adventures; being an architect of your own reality; the necessity of action; old tales in a new language; the humanising nature of suffering; creative connection through movement; creating space for others; the humbling relationship between man and horse, and what it means to be a pilgrim.Following our conversation, I felt inspired and excited for the future of The Big Hoof and the platform that Louis is creating to discover the vulnerable spaces within ourselves from where true strength emerges.Follow: @thebighoofJoin: The Big Hoof Rides and EventsSupport: Donate to The Big HoofPhoto Credit: Kiki Ho Hosted on Acast. See acast.com/privacy for more information.

Welcome to Unleash Your Creative Magic, the podcast that should hopefully inspire you to get writing. This week I have to apologise for a few minor hiccups with my new mic.I'm talking about what happens before a book is published and on the actual day that it's launched out into the big, wide world.If you'd like to buy a copy of the charity anthology Winter Tales from which all proceeds go to Breast Cancer Now. org, Cystic Fibrosis Trust and Teenage Cancer Trust.Winter Tales: Stories To Warm Your Heart eBook : The Write Romantics and Guests: Amazon.co.uk: Kindle StoreYou can find Tom Ashton's books here......Amazon.co.uk: Tom Ashton: Books, Biography, Blogs, Audiobooks, KindleAnd finally if you'd like to check out my credentials to see if I practice what I preach.....Amazon.co.uk: Helen Phifer: Books, Biography, Blogs, Audiobooks, KindleYou can get in touch via the Facebook page or Instagram.....Unleash Your Creative Magic | FacebookUnleash Your Creative Magic | Facebook

Welcome to Week 2!! Flo and Laura say a sad goodbye to our first eliminated couple (#robbed), discuss Couple's Choice IN DEPTH, and sing the praises of Dave Arch does Sean Paul.   Join us on the virtual sofa at... Twitter: @StrictlyOnSofa Insta: @StrictlyOnTheSofa Email: strictlyonthesofa@gmail.com   PLUS **BIG SHOUT OUT** to BFF of the podcast Jo, who ran the London Marathon yesterday in aid of the Cystic Fibrosis Trust - if you're a fan of the podcast, please consider donating even the smallest amount to this fantastic cause here.

Strictly here we gooooo! Join us on the sofa as we recap the first live episode of THE BEST SHOW IN THE WORLD - feat. Wa Wa Wasputin, *gasp* "Willoughby" (again) and "Hips for Days!!!"   Join us on the virtual sofa at... Twitter: @StrictlyOnSofa Insta: @StrictlyOnTheSofa Email: strictlyonthesofa@gmail.com   PLUS **BIG THANK YOU** to everyone who joined the first ever SOTS Fundraising Quiz last week, we had a blast! You can still donate to dear dear friend of the podcast Jo, who's running the London Marathon for the Cystic Fibrosis Trust, here.

It's Strictly a-go-go! Laura and Flo are BOUNCING back on to the sofa to give you the DOWNLOAD on all the newly announced contestants for Series 19.  Featuring discussions on what Tilly Ramsey will bring to the TABLE, imagining Sara (Sarah?) Davies at a salsa class and coining the term 'hun-oisseur'. Join us on the virtual sofa at... Twitter: @StrictlyOnSofa Insta: @StrictlyOnTheSofa Email: strictlyonthesofa@gmail.com ***PLUS*** We're hosting the first ever Strictly on the Sofa 2021 Zoom Quiz, raising money for the Cystic Fibrosis Trust, on 23 September! Get your tickets ***HERE*** Find us wherever you get your podcasts (and shout if we're not on your chosen platform, we'll fix that asap!). If you're enjoying our show, please rate and review us - it helps other people find us! #strictly #scd #strictlycomedancing #bbcone #ballroom #latin  

On this weeks podcast the Chairman of the Western League, John Pool, sets out what the FA’s restructuring plan will mean for our Clubs. Plymouth Parkway manager, Lee Hobbs, reflects on his sides win in the FA Vase and Luke Palmer, a player at Bristol Telephones, explains why he’s raising money for the Cystic Fibrosis Trust.

In the final episode of this series, we’ll hear from David Ramsden, Chief Executive of The Cystic Fibrosis Trust and former Chief Executive at BBC Children in Need; Emma Corbett, RTC Coach and Mental Health First Aid Trainer; Sheila Richards, trustee of the Confederation of Healing Organisations and former Interim Executive in the NHS; and Shobana Iyer, commercial barrister and arbitrator.

Summer is an 11 year old pupil at St Francis with a passion for art. She also happens to be living with cystic fibrosis (CF), a life shortening condition that affects the lungs and pancreas. In this episode, Summer shares her experience of living with CF and explores the condition with the help of University of Glasgow researcher Maria Jackson, radiographer Les Melvin and Nicola Holland from the Cystic Fibrosis Trust.

Ashley Arnold, who heads up Windsor Leadership’s Leadership Academy in conversation with Oli Lewington, Director of Marketing & Communications, Cystic Fibrosis Trust and Sarah Hobbs, Managing Director, Talent & Potential. Oli and Sarah shares their personally lived experiences around diversity and inclusion and how it's really important to be able to bring your whole selves to work and for the work place to accept the whole selves of the employees.

Graham Laycock with Veronica Lanzetta who has had a double lung transplant and talks about the Cystic Fibrosis Trust and the campaign for the general use of precision medicine Orkambi and the campaign song and video Breath With Me sung by Betsa.

On this Saturday’s Easter Weekend special episode of MotortradeRadio.com, Philip Nothard is joined by Jason Jeggo Director of Sales - Radar Video to discuss the latest headlines, including the latest from Cox Automotive, as they launch into the Dealer Management Systems (DMS) market in the UK with Incadea. In other news, Cox Automotive UK has launched a used car benchmarking data tool, the long-awaited competitor to Auto Trader’s i Control – presents dealers with a dashboard that highlights imagery, pricing, search volumes and days in stock. Whilst, Ford Motor Company has entered the UK consumer savings market with the launch of Ford Money. They also discuss the #DieselGate, as cap hpi release a white paper to support the knowledge across the network. As a mark of respect for a truly inspirational business leader and influential public figure, Sir Arnold Clark, founder of Arnold Clark Automobiles, who died aged 89 this week. Derek Blair reads out a tribute and MotoTradeRadio.com have a minute’s silence, out of respect. And finally, two shout-outs from Curtis, as he is running the London Marathon for the Cystic Fibrosis Trust to help fund research into treating and curing CF. Following requests from busy dealers, Motor Trader has extended the online entry deadline to the Motor Trader Awards until 27 April. #MTraderAwards, with over 20 categories celebrating best practice in the car retailing business.

In this episode Oli Lewington from the Cystic Fibrosis Trust shares his personal journey living with CF and what that means growing up, working and his daily routine, through to his life saving transplant and his reflections on surviving and for many, not surviving - and what lies ahead

David and Katie answer listener questions and share tips. In this episode we discuss thoughts on WWDC, OmniFocus tips, migrating to an SSD, managing storage space, IFTTT, Evernote, Milage tracking, and much more! Thanks to MPU listener Hay Oborn for assistance with the shownotes this week! Please consider supporting Hay as she raises money for the Cystic Fibrosis Trust.

At half past five in the morning, Phillip Stoneman draws attention to an article online (http://metro.co.uk/2014/02/04/candlelight-dinner-for-two-this-valentines-day-at-mcdonalds-4290985/) with some quite horrendous consequences. It's all part of our 100-hour broadcast in aid of the Cystic Fibrosis Trust. Head to http://radio.warwick.ac.uk/ to find out more – and more importantly, donate!

After a number of kind donations to the Cystic Fibrosis Trust, Head of Production Phillip Stoneman agreed to rap live on air! #Piazza100

The MaRaWthon Strikes Back is underway, and we're out on the Piazza for 100 hours raising money for the Cystic Fibrosis Trust. Will Dove interviews Martine, David and Rebecca from the charity about the work that they do. #Piazza100

Gene therapy - repairing malfunctioning cells by mending their DNA - offers an elegant solution to diseases, such as cystic fibrosis, caused by a single flawed gene. It's a very simple concept to describe - simply insert a 'normal' gene to do the job - but it's this process, the delivery of the gene, that's proving to be so difficult and time consuming. Since the first human study began in 1990 the field has struggled with various technical challenges and set-backs.But over a decade on, researchers are beginning to report successes in treating several devastating diseases. Geoff Watts finds out about some of the new techniques for gene therapy, and discovers how these are now being used in a trial of a new method of gene therapy for cystic fibrosis. Twelve years ago, a group of scientists from Imperial College in London, Oxford and Edinburgh formed the Cystic Fibrosis Gene Therapy Consortium. This year they started the world's biggest trial of gene therapy for cystic fibrosis.Funded by the Cystic Fibrosis Trust, the Medical Research Council and The National Institute for Health Research , the trial will treat 120 CF patients with either a placebo or a healthy copy of the gene that causes CF. The gene is wrapped up in a fat globule, or liposome and delivered in aerosol form directly to the lungs.(Image: Eric Alton)

Yes a little late this week as life got in the way. I played some beautiful tunes people! In no particular order ( I haven't got the time!) Clara Barker ~ Care of Princess, Broken Valves ~ What is Right?, Anja McCloskey ~ Stephanie, By The Rivers ~ Run Around, Vallis ~ Accident-Emergency, Matt Stevens ~ Burnt Out Car, Raquel Aurilia ~ There's Time, Big Block 454 ~ Blind Jack of Knaresborough, Indigo Earth ~ Land Of Dreams, Liz Longley ~ Unraveling and a little tune by good old me Nick Tann! Paul Lane and myself talked outside a pub in the wind and I nibbled my nuts! Paul talked about the Children of Mercy cd in aid of Cystic Fibrosis. Below is the press release CHILDREN OF MERCY BOOK AND COMPILATION BRING STORIES OF INDIE MUSIC TO LIGHT FOR A GOOD CAUSE Spokane, Wash. (April 1st, 2011) — A good cause is always worth supporting, so the fact that the Children of Mercy book and CD compilation help out two causes make this project a must-see. Children of Mercy: Tale and Teachings From The World of Independent Music is a collection of stories and essays by several elite members of the indie music world that will not only open the eyes of the outside world to the independent music scene but also raise money to fight Cystic Fibrosis. Along with the compilation CD, the book brings to light stories from the independent music scene while it raises money for the fight against Cystic Fibrosis, a disease that has affected the son of one the contributors, Swedish musician and writer Ola Nyberg. Ron Trembath, creator of the project, pursued funding for the book publishing on Kickstarter and obtained over $2900 in pledges to ensure that 100% of the profits and royalties from the book go to the Cystic Fibrosis Foundation in the US, as well as the Cystic Fibrosis Trust in the UK. Anna Lynne Williams of the indie folk legends Trespassers William, Anja McCloskey of Haunted Stereo& Sotones Records, Shawn Fogel of Golden Bloom, and Portland Mercury journalist Ryan Feigh, andPastime Records CEOAndy Botterill are just some of the artists, producers, label runners, promoters, writers, and listeners from the world of independent music that have contributed their essays on life in the independent music scene. A wide array of topics including, DIY, effects of the internet, performing, break ups, and indie history will be found in this treasure trove of indie music perspectives. The book seeks to open the eyes to the outside world on how tough it can be to be a solely independent musician as well as highlight why it might just be the only true way to be a real artist in the musical world. It also gives advice to those currently living the independent music "dream" or those that are interested in creating music without the fear of losing their soul to the media monster know as the mainstream. The compilation CD was released on The Beechfields Record Label on February 8th.  The book was released through Marquette Books LLC on April 1st.  Physical CDs include artwork by San Diego based pop artist Kathie Bayne.  The CD includes tracks by Moneytree, Menhirs Of Er Grah, Lotte Kestner (Anna-Lynne Williams' solo project), Robin Grey, Cleeman and The Pristines. The album is also currently available on CDBaby!  Tracks from the album have already been heard on WVVY in Martha's Vineyard MA, KYRS in Spokane WA, KZUU in Pullman WA, and KJHK in Lawrence KS.  As well as features in DrunkenWerewolf Magazine, Pacific Northwest Inlander, and Rolling Stone (Indonesia).  FOR PHYSICAL REVIEW COPY, E-MAIL RON AT CHILDRENOFMERCYBOOK@GMAIL.COM or SIMPLY REPLY HERE AND RECEIVE ONE ASAP! Additional Children of Mercy news can be found at: https://www.childrenofmercy.net or www.childrenofmercybook.blogspot.com Children of Mercy Bandcamp: https://childrenofmercy.bandcamp.com/album/children-of-mercy Also find Children of Mercy on Facebook and Myspace!