Podcasts about dementia action alliance

How do caregivers find the strength to continue day after day, navigating the complexities of dementia?It's a journey that demands resilience, patience, and an often-overlooked capacity to find joy in the simplest moments. Our guest, Angela Lunde, M.A., has dedicated over 20 years to understanding the experiences of those living with dementia and their care partners. Her insights into the emotional landscape of caregiving are both profound and encouraging.       Angela is not just a researcher but a true advocate, working tirelessly to improve the quality of life for people impacted by dementia. She serves as an Associate in Neurology at the Mayo Clinic's Alzheimer's Disease Research Center and has contributed to numerous publications and books on topics ranging from mild cognitive impairment to innovative solutions for wellbeing. Angela believes in the power of community and the importance of reducing stigma, integrating persons with dementia into everyday life, and supporting those who care for them. Today, Angela sheds light on the ways caregivers find resilience, how new patterns of communication can transform relationships, and the role of acceptance in navigating the caregiving journey.       In this episode, we'll also discuss the Connect2Caregivers Study at Mayo Clinic, a research initiative aimed at providing peer-to-peer emotional support for dementia caregivers. We'll be joined by Joan Carp, a care partner for her husband living with Alzheimer's, who has personally experienced the benefits of a mindfulness-based dementia caring program. Together, we talk about the real-life challenges caregivers face, the surprising sources of strength they tap into, and the importance of creating supportive, connected communities. Whether you're a caregiver, a family member, or someone interested in the well-being of those impacted by dementia, this conversation promises to be heartfelt, insightful, and inspiring.   Resources mentioned: Mindfulness Based Dementia Care – Presence Care - https://presencecareproject.com/   Book: Day to Day – A guide for offering care and support - https://mcpress.mayoclinic.org/product/day-to-day-living-with-dementia/   Mayo Clinic Dementia Hub - https://connect.mayoclinic.org/blog/dementia-hub/   Connect2caregivers https://connect.mayoclinic.org/discussion/seeking-current-and-former-family-caregivers/   Dementia Action Alliance https://daanow.org/   Lorenzo's House https://lorenzoshouse.org/   Alzheimer's Association https://www.alz.org/   LBDA https://www.lbda.org/   AFTD https://www.theaftd.org/   We are not medical professionals and are not providing any medical advice. If you have any medical questions, we recommend that you talk with a medical professional of your choice. willGather has taken care in selecting its speakers but the opinions of our speakers are theirs alone. Thank you for your continued interest in our podcasts.   Please follow for updates, rate & review!     For more information about our guest, podcast & sponsorship opportunities, visit www.willgatherpodcast.com            *This episode is brought to you by Gigi Betty co., a boutique gift shop raising awareness and funds for caregivers and care partners. Show now at www.gigibettyco.com. Use the special code WILLGATHER20 for 20% off your order- Just for our podcast listeners!  

Dementia Matters Special Series: Voices of Research Participants What do you do when dementia symptoms begin to upend your entire life? For Brother John-Richard Pagan, the answer was to persist in finding a diagnosis and a supportive community that aligned with his values. In this episode of our Voices of Research Participants series with co-host Sarah Walter, MSc, Br John-Richard describes how he went from a PhD student to a dementia research participant and his journey getting diagnosed with Lewy body dementia (LBD). Br John-Richard also discusses how his background in clinical psychology influenced his participation in research and his advocacy for disabled, LGBTQ+ and other marginalized community members in medical research. Guest: Br John-Richard Pagan, MS, veteran, monastic, Episcopal Ecumenical Community, advocate, Lewy Body Dementia Association (LBDA) Co-host: Sarah Walter, MSc, program administrator, Alzheimer's Clinical Trials Consortium (ACTC) and Alzheimer's Therapeutic Research Institute (ATRI)   Show Notes Listen to the first episode of the Voices of Research Participants series, “From Caregiver to Research Participant: How One Woman's Experience as a Dementia Caregiver Drew Her to Alzheimer's Research,” and “Living with Lewy Body: A Neurologist's Journey Through Research and Dementia Care,” on our website and all podcast platforms. Learn more about AGREEDementia and the Participants' Bill of Rights, mentioned at 17:10 and 30:12, on their website. Learn more about the Dementia Action Alliance on their website. Find support and resources from the Lewy Body Dementia Association on their website. Learn more about Sarah Walter in her bio on the Alzheimer's Clinical Trials Consortium website. Learn more about how to get a dementia diagnosis on our website. Find resources for people with dementia and their care partners on our website.   Connect with Us Find transcripts and more at our website. Email Dementia Matters: dementiamatters@medicine.wisc.edu Follow us on Facebook and Twitter. Subscribe to the Wisconsin Alzheimer's Disease Research Center's e-newsletter. Enjoy Dementia Matters? Consider making a gift to the Dementia Matters fund through the UW Initiative to End Alzheimer's. All donations go toward outreach and production.

In this episode on the Living with Alzheimer's podcast, Christoph interviews Nicole Brackett, Director of Care Delivery and Quality for Homewatch CareGivers. They discuss the many services Homewatch CareGivers provides to families, especially those caring for a family member with dementia. Nicole describes the importance of personalized care plans, as well as the culture-shift her organization is embracing by focusing on the person and not their disability. Nicole and Christoph discuss examples of a person-centered approach to care partnerships.They go on to discuss how families can distinguish between care that can be provided in the individual's home, and when a care community may be the better fit. And Nicole outlines the Five Rs of Caregiving (Remain calm, Respond to feelings, Reassure, Remove yourself to gain composure, and Return fully when the person you're caring for has calmed) to help caregivers sustain quality care without burning out.The episode wraps up with conversation about a free resource for caregivers, called Pathways To Well-Being With Dementia from Dementia Action Alliance, as well as a caregiver certification program that Homewatch CareGivers is developing with Dr. Al Power.

This episode is dedicated to Tony Husband, who appeared on my show not once, but twice – which, in itself, is testament to the man's generosity of spirit and dedication to raising awareness of dementia. After Tony and I had recorded our first podcast, I said that, for me, Tony was all about creativity, humour and love, and I'd stand by that. “Life,” Tony once said, “is about laughing”. For the prolific cartoonist, that was absolutely true. He used his dark humour to investigate life's paradoxes and frustrations, making the complex business of living seem simple. Through a few carefully chosen lines, Tony summoned up the most profound human experiences, including what it means to live with dementia. And, when his own dad succumbed to vascular dementia in 2011, he brought his considerable skills to bear on this most cruel of diseases. One night, after his dad's death, Tony began to talk to him in his studio as if he were still there, asking Ron what it had been like to live with the condition. He recorded the conversation in cartoons on A4 paper which were later turned into his book, Take Care Son – the last words his dad ever spoke to him. Tony's was a phenomenal talent and he used it to its full and to the very end. He died on his way to a leaving lunch at Private Eye, the satirical magazine for which he drew his famous Yobs strip for 37 years. I think Tony would have enjoyed the irony in this and definitely made a cartoon out of it. With me to talk about Tony, his kindness, compassion, wisdom and wit, is dementia campaigner and founder of Exeter's Dementia Action Alliance, Gina Awad. Gina knew Tony far better than I did; she collaborated with him for many years on different dementia projects including the Shining a Light on Dementia calendars and the book, United: Caring for Our Loved Ones Living with Dementia. Tony's friend, the poet and broadcaster Ian McMillan has also contributed, as has Tony's son Paul, and I will leave the last word to Paul: "My dad made people who are struggling start smiling again, and I'm proud of him".Tony and Gina's book, United: Caring for Our Loved Ones Living with Dementia is available on Amazon. Hosted on Acast. See acast.com/privacy for more information.

Michael Belleville, who was diagnosed with Lewy Body Dementia, talks about his journey from when he first started realizing the change in himself to diagnosis and acceptance. He's learned a lot about himself, the various journeys people take in their diagnosis, and organizations that can help. Keeping engaged with the community has helped him connect with the amazing stories of people that have persevered and thrived together, as a community, in spite of their diagnosis. In spite of all of the stigma that comes with living with dementia. In spite of the internal battles that each of them may have. If you take anything away from this episode it's this: they're still here. Talk to the human that's still in front of you that may just understand the world and communicate differently now. We hope that you find this episode as enlightening as it has been for us, and that it can help inform decisions in your community. Learn more about the Dementia Action Alliance and the Alzheimer's Association. daanow.org alz.org

THIS EPISODE OF GROWING OLDER LIVING YOUNGER focuses on living a full life despite the diagnosis of dementia. Today's Featured Expert is Dr. Susan Wehry, Board Member of The Dementia Action Alliance, a non-profit advocacy and educational organization of people living with dementia, care partners, dementia specialists and other advocates, The Alliance has released a manual, “Pathways to Well-Being with Dementia” as a resource for those who are struggling with dementia or supporting someone in need of care . We discuss common myths and misconceptions about dementia, whether temperament  predicts  affect in dementia, the new manual, as well as 7 key areas to promote healthy aging. Episode Timeline:0:11 Introduction to this episode.4:02 Medical journey that inspired a career working with older adults10:15 Common myths and misconceptions about dementia.12:54 Personality, character and dementia.17:42 How did it start and where did it start?19:50 What does dementia have in common with disabilities?23:56 How to find the manual?28:33 The seven pillars of healthy aging. Speaker Bio:Susan Wehry, MD is the Director, AgingME, Maine's Geriatric Workforce Enhancement Program (GWEP) and Associate Clinical Professor, at the University of New England College of Osteopathic Medicine. She is a physician board certified in geriatric psychiatry, educator and passionate advocate for promoting healthy, meaningful aging, and  a member of the Dementia Action Alliance's Board of Directors. Learn more about the Dementia Action Alliance here:https://daanow.org/pathways-to-well-being-with-dementia/ To discover how to Reset Your Aging Blueprint or build your wellness, beauty and healthy aging business, schedule a free Discovery Call with me.  To get your copy of Growing Older Living Younger: The Science of Aging Gracefully and The Art of Retiring Comfortably click here   

Today I will be talking with representatives of Dementia Action Alliance, known as DAA, about their upcoming conference being held September 19-21, 2022, at the Crowne Plaza Hotel in Union Station in Downtown Indianapolis, Indiana. Laurie Scherrer was diagnosed with Early Onset Alzheimer's & FTD at the age of 55 and was able to continue a professional career so she turned her focus towards helping others through their dementia journey.  John-Richard Pagan is living with Lewy Bodies Dementia.  He no longer fears his dementia diagnosis, in large part due to Dementia Action Alliance. Cyndy Luzinski is an advanced practice nurse and the founder and executive director of Dementia Together, a nonprofit organization in Northern Colorado which cultivates joy while building stronger connections for those living with dementia, their care partners, and the community. Contact Dementia Action Alliance- DAA       Conference       Laurie Scherrer at Dementia Daze     Cyndy Luzinski at Dementia Together    Contact Lori La Beyat www.AlzheimersSpeaks.com Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

“Change your life with an Open University qualification” boasts the OU website. And this week's guest, author and dementia campaigner Gina Awad, did exactly that – though actually she changed not just her life but many hundreds, possibly thousands, of lives. For it was through a health and social care degree in 2011, at the age of 41, that she first became interested in dementia.Since then she's gone on to win one of only 12 of the highly competitive places on a training retreat in America for those who work or share their lives with people with dementia. She's trekked the Great Wall of China, raising £2,500 for Alzheimer's Research UK, been named Dementia Champion of the Year by the Alzheimer's Society, created a dementia friendly GP resource guide for Devon, introduced dementia-friendly cinema screenings, collaborated with award-winning cartoonist Tony Husband to produce two “Shining a Light on Dementia” calendars, been recognised as one of the one hundred most influential women in Exeter and, in 2018, received a British Empire Medal for voluntary services for people living with dementia in Devon. She also presents a radio show focussed on living better with dementia. But by far her biggest achievement, Gina says, is launching Exeter's Dementia Action Alliance. Later this year, in June, Gina's book, “United: Caring For Our Loved Ones Living With Dementia”, once again written in collaboration with the cartoonist Tony Husband, will be published. What is perhaps even more extraordinary is that Gina's passion and drive to improve life for those with dementia comes not from direct personal experience, but rather from childhood memories of her and sister visiting care homes with their grandmother, who encouraged residents to engage in the creative arts.“What really struck me then, over 40 years ago, was not the residents who were involved with the activities but those who weren't. I felt a myriad of emotions to which, at the time, I didn't connect. It wasn't until a few years ago that I realised the impact those residents had had on me. As a little girl I'd observed and identified with their sense of disconnectedness, fear and vulnerability – and their isolation and loneliness never left me”. Now, everything Gina does is about making a difference for those with dementia and their families. “I want people to feel included and understood, she says, and to be treated with compassion so that they can live a meaningful life”. See acast.com/privacy for privacy and opt-out information.

Simon Kitchen joined Purposely Podcast to share his story. Simon is the CEO of Bipolar UK having joined the organisation in 2018 during a difficult time for the charity when they lacked financial stability. Simon is driven to help transforming the lives of the most vulnerable in society through voluntary action. He has a track record of influencing public policy, strategic development, building alliances to achieve social change and using co-production to drive service improvements. His previous roles include leading one of the largest co-production initiatives in adult social care at Leonard Cheshire Disability and running the social action movement at the Dementia Action Alliance. He has also held a number of policy and research roles in Whitehall and in the regions. He is passionate about peer support and giving people with bipolar greater choice and control over their lives. You will hear that he has a family connection to bipolar and a passion for supporting people who have limited options. --- Send in a voice message: https://anchor.fm/mark-longbottom2/message

All Home Care Matters is honored to have the privilege to welcome Craig Fowler to the show. If you are caring for a loved one with dementia or Alzheimer's then this interview will be full of in-depth information on an exciting platform that Craig has developed to help families and their loved ones with dementia stay stimulated and engaged. Craig Fowler is the founder and CEO of Joygage, an engagement on-demand subscription service designed and developed to improve the quality of life of persons living with Alzheimer's and dementia and provide respite for their care partners. He was guided and inspired by his caregiving journey supporting his father who was the primary caregiver for his mother who lived with early onset dementia for more than ten years. He created Joygage to serve the Alzheimer's and dementia community by creating a service that focuses on improving quality of life, daily happiness, and dignity of persons living with Alzheimer's and dementia instead of trying to "cure" or “fix” them. Aside from Joygage, he's also currently serving as a board member of the Dementia Action Alliance.    Connect with Joygage: wecare@joygage.com https://www.joygage.com/  

This episode is a preview for our webinar, Living Well with Dementia, in which we explore resources and personal experiences to help discover and maintain joy with a dementia diagnosis. The discussion is facilitated by Jackie Pinkowitz, board chair of Dementia Action Alliance, and a national advocate to advance person-centered dementia care, services and supports. Hosted by Melissa Lee, our guest panel includes individuals who are purposeful in their decisions to live well with dementia, including:Doreen Monks, former nurse and current health educatorMike Belleville, retired telecommunications technician and DAA Advisory Board MemberPaulan Gordon, a speaker, writer and dementia mentorClick here to watch the full webinarSenior Living LIVE! is a series that is designed to answer YOUR questions about senior living, caregiving, health, and everything in between. Our goal is to give you the information you need to make informed decisions and ultimately live the life that you (or your loved one) want to live. Find more episodes and webinars at SeniorLivingLIVE.com!Follow The Arbor Company on Facebook

This #ActivitiesStrong Executive Edition discussion is led by Charles De Vilmorin and Karen Love, Executive Director at Dementia Action Alliance. We hear from two individuals living with dementia who describe their experiences and how COVID-19 especially impacts people living with dementia and how they are managing:• Experiencing early signs and symptoms• Getting a diagnosis and moving on to live proactively• Finding purpose and meaning in life• COVID-19 and learning how to manage this strange new world#ActivitiesStrong Program Library: https://programs.activitiesstrong.com/Shine Your Light: A Creative Care Celebration: https://activitiesstrong.com/shineyourlight/Powered by LinkedSenior.

In this recap, Marla and Mary discuss the 35th episode of Elevate Eldercare where Susan Ryan sits down with her good friend and colleague, Mike Belleville. After a career in telecommunications and as a member of the Rhode Island National Guard for over a decade, Mike was diagnosed with early onset dementia. While devastating, Mike has not let the diagnosis define him. He currently serves on the board of directors for Dementia Action Alliance and the Council on Aging.  Mike is adamant about using his voice to encourage and advocate for others and challenge beliefs and stigmas about people living with dementia. Marla and Mary take a deeper dive into Mike’s “Four Myths of Dementia.” He initially delivered that message at a Green House Annual Meeting in 2018 and recently updated it for a special presentation to Green House partners. Find out why a line from one of Mike’s favorite movies is his motto these days. And Mary talks about why a driving simulator created such a memorial moment for Mike and why you should never assume you know what might be meaningful to someone.   Mike’s “Four Myths of Dementia” presentation: https://youtu.be/YS8KKGPrh-o 

Susan Ryan sits down with her good friend and colleague, Mike Belleville. After a career in telecommunications and as a member of the Rhode Island National Guard for over a decade, Mike was diagnosed with early onset dementia. While devastating, Mike has not let the diagnosis define him. He currently serves on the board of directors for Dementia Action Alliance and the Council on Aging. He recently participated in a year-long dementia initiative hosted by The Green House Project, known as Best Life Impact, where he offered counsel and guidance to nursing home providers and care teams across the country to better equip them to support people living with dementia. Mike is adamant about using his voice to encourage and advocate for others and challenge beliefs and stigmas about people living with dementia. Mike, who is joined by his wife, Cheryl, in this episode, talks about the power of family and relationships in providing support, understanding, and acceptance. The couple describe the path they took to find hope and tangible solutions in their journey and the need for caregiver support and respite, as well as the impact of COVID-19 on routines, normalcy and vital human connections.   Connect with Mike on LinkedIn: https://www.linkedin.com/in/michael-r-belleville-584b1b40  Find out more about the work of the Dementia Action Alliance here: https://daanow.org/ 

Creative from the tip of his head to his northern roots – he was born in Blackpool – cartoonist Tony Husband shows no sign of letting up as he approaches his seventies. His spare, witty drawings have appeared in virtually all of our national newspapers and magazines, and following the death of his dad Ron in 2011 Tony has turned his considerable wit and skill to raising awareness of dementia. Ron lived with vascular dementia for his last few years and in this podcast Tony tells me what his dad’s experience has taught him about the power of creativity, humour and music to connect with others. Most of all, he says, it’s shown him that no matter what dementia stole from his dad, he always remained just that, his dad.Tony mentions his work with the Exeter branch of Dementia Action Alliance. The alliance has just moved from dementiaaction.org.uk (the website I gave) to nationaldementiaaction.org.uk, though all relevant information can still be found on the old website. You can buy Tony’s cartoon book Take Care, Son: The Story of my Dad and his Dementia from Amazon. And, as ever, for more help and support for anyone affected by dementia you can visit dementiauk.org and alzheimers.org.uk See acast.com/privacy for privacy and opt-out information.

Maggie and Thomas interviewed Jackie Pinkowitz, who discussed the ongoing work and mission of the Dementia Action Alliance. Ms Pinkowitz earned her Master's degree in Education from Rutgers University and holds advanced certification in special needs populations.  She was a primary family caregiver to her mother and father-in-law who both had dementia.  She is Board Chair of the Dementia Action Alliance and speaks at national, state and local conferences and forums to advance inclusion and "living fully with dementia".

https://www.youtube.com/watch?v=KKozm-dvm9s&feature=youtu.be   Host Brian Leblanc interviews Jackie Pinkowitz, DAA Board Chair and Karen Love, DAA Executive Director, as they discuss the mission of the Dementia Action Alliance.

Anthony Cirillo is a passionate advocate for these caregivers and seniors, helping them lead a quality life through a platform of educated aging – physically, emotionally and financially.  A Fellow of the American College of Healthcare Executives, Anthony consults with healthcare organizations globally. Anthony is the Verywell expert in senior care (formerly about.com), on the executive board of CCAL, the Consumer Consortium for Person-Centered Living, and a member and workgroup cochair of The Dementia Action Alliance. He knows the ins and outs of healthcare delivery. A member of the National Speaker’s Association, he has spoken to thousands of healthcare professionals and consumers at venues including the EPA, American College of Healthcare Executives, Leading Age, American Health Care Association, state assisted living organizations, the National Council on Aging, state nursing home organizations, caregiving associations and other major conferences. Anthony is a prolific writer, having written hundreds of blogs and articles. Anthony fell into a mission and advocacy for elders when he started performing in nursing homes. A gifted singer-performer, he has been to Nashville to record and has sung around the country. He uses his performing gifts in his keynote speeches and press engagements.   The Aging Experience The Caregiver Summit Caregiver Smile Cruise Sound Health Options

Antony Radley, from Dyneley House Surgery in #Skipton, and Marion Tweed-Rycroft, from #NorthYorkshire County Council, have been telling Stray FM about the Skipton and South Craven Dementia Action Alliance

C+D spoke to Phil Freeman, executive lead from the Dementia Action Alliance about dementia in the UK, Prime Minister's Challenge 2020 and the role of community pharmacy in caring for these patients.

Learn more today about what person centered care really is and why it is important to all of us! Our first guest will be Karen Love from CCAL - Advancing Person-Centered Living and the Dementia Action Alliance. She is a passionate person making huge strides to improve our dementia care culture. CCAL website   Our second half will have a variety of individual talking about the latest social support group for those dealing with dementia and their care partners - Memory Cafe's, Alzheimer's Cafe's and Dementia Cafe's.  We will talk with facilitators and well as those that attend. Learn more about Cafe's for those with dementia & Find a Cafe Mentor Enter your Cafe int Alzheimer's Speaks Resource DirectorySupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.