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Welcome to "Empowering the Ethics of Person-Centered Care through Practice." In this two-part podcast, we explore the fundamental principles and practical applications of person-centered care within the realm of healthcare ethics. Objectives: Listeners will gain a comprehensive understanding of the ethical principles and practical methodologies underpinning person-centered care within healthcare contexts. They will learn actionable strategies to implement person-centered practices, aiming to enhance patient experiences, uphold dignity, and promote positive outcomes in healthcare delivery.Guests: Jessa Roisen, PhD, SAU Philosophy and MPH ProfessorDoug Johnson, System Patient Experience Officer, Northshore Edward-Elmhurst Hospital Planetree Gold CertifiedDr. Roisen has more than 18 years in higher education regularly teaching Ethics, Applied Ethics, and Conflict Analysis for the Philosophy Department at St. Ambrose University. She chairs the Bioethics and Humanities Initiative and is a certified mediator and Health Care Ethics Consultant with over 10 years of experience. Dr. Roisen also trains community mediators and mediates regularly for the Davenport Civil Rights Commission and the Rock Island County Circuit Court.Doug Johnson is the Patient Experience Officer at North Shore Edward Elmhurst Health, a Planetree Gold Certified campus. He has worked across disciplines, including healthcare, the marketing industry, retail, and within professional baseball with the Chicago Cubs! References: Berwick DM. The Moral Determinants of Health. JAMA. Published online June 12, 2020. doi:10.1001/jama.2020.11129Ekman, I. (2022). Practicing the ethics of person-centred care balancing ethical conviction and moral obligations. Nursing Philosophy, 23, e12382. doi.org/10.1111/nup.12382Entwistle, V. A., & Watt, I. S. (2013). Treating Patients as Persons: A Capabilities Approach to Support Delivery of Person-Centered Care. The American Journal of Bioethics, 13(8), 29–39. doi.org/10.1080/15265161.2013.802060Harris, E. (2020, May) Person-Centered Care: Why it means everything & how to provide it? www.crisisprevention.com/Blog/Person-…orram-Manesh, A., Gray, L., Goniewicz, K., Cocco, A., Ranse, J., Phattharapornjaroen, P., Achour, N., Sørensen, J., Peyravi, M., Hertelendy, A.J., Kupietz, K., Bergholtz, J., &Carlström, E., (2024). Care in emergencies and disasters: Can it be person-centered?, Patient Education and Counseling, doi.org/10.1016/j.pec.2023.108046.Marmot M. The Health Gap: The Challenge of an Unequal World. Bloomsbury; 2015.Planetree International www.planetree.org/Santana MJ, Manalili K, Jolley RJ, Zelinsky S, Quan H, Lu M. (2018) How to practice person-centred care: A conceptual framework. Health Expect. 21(2):429-440. doi:10.1111/hex.12640Sprouts. (2019, November 29). Kohlberg's 6 stages of moral development [Video]. www.youtube.com/watch?v=bounwXLkme4Tomaselli G., Buttigieg S.C., Rosano A., Cassar M., Grima G. (2020) Person-Centered Care From a Relational Ethics Perspective for the Delivery of High Quality and Safe Healthcare: A Scoping Review. Front Public Health. 8:44 doi: 10.3389/fpubh.2020.00044.This podcast is CEU Accredited.
In this enlightening episode of Finding Frequency, we are honored to have Dr. Susan Frampton, President Emeritus of Planetree International, join us. Dr. Frampton is a renowned medical anthropologist and an influential advocate for person-centered care. She has significantly contributed to transforming healthcare environments by focusing on patients' holistic well-being and fostering compassionate care. Join us as we delve into Dr. Frampton's extensive experience and insights on the impact of healthcare environments on patient outcomes, her role in developing global health policies, and the stories behind successful and struggling care environments. Whether you're a healthcare professional, designer, or someone interested in creating spaces that enhance well-being, this episode offers valuable perspectives on the profound connection between our surroundings and health. In this episode, you will hear: Dr. Frampton's advocacy and her work with families dealing with sickle cell disease Overview of the Planetree model (human interactions, access to information, and social support in healthcare) The importance of physical environments in hospitals (ex., family-centered ICUs and healing gardens) Innovative design changes in healthcare settings to enhance patient comfort and emotional well-being The role of safety and quality of life in designing aging-in-place environments Resources from this Episode To learn more about Planetree: https://www.planetree.org/ Planetree's upcoming Person-Centered Care Forum: https://web.cvent.com/event/e32a1821-00a0-4bde-b05f-63deb3fa4d77/summary Reach out directly to Dr.Frampton at Sframpton@planetree.org Find out more about Frequency: https://frequencyspaces.com/ Subscribe to the Frequency Newsletter: https://frequencyspaces.com/subscribe Podcast Disclosure: https://frequencyspaces.com/podcast-disclosure Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast. Episode Credits If you like this podcast and are thinking of creating your own, consider talking to my producer, Emerald City Productions. They helped me grow and produce the podcast you are listening to right now. Find out more at https://emeraldcitypro.com Let them know we sent you.
In this 47:15 episode, Dr Suzi Baxter, PhD, RD, LD, FADA, FAND, and Alena Morales, RD, discuss the most important things healthcare professionals can to do help ensure people with disabilities have the best patient experience possible in the outpatient setting. See the full transcript on anhi.org.
Understanding Person-Centered Care for Older Adults in Six Developing Countries: East Jerusalem [Episode 3] Download the Transcript The impact of population aging is universally recognized and has been extensively studied in wealthier, developed nations. But we know much less about how aging is experienced in low- and middle-income countries and how developing countries are responding to the current challenges created by the aging of their populations. The rapid rate of population aging in many developing countries—fueled by falling fertility rates and a shift in the predominance of chronic diseases rather than acute and infectious illnesses—has left little time to anticipate and prepare for the consequences of aging populations. The GSA Interest Group on Common Data Elements for International Research in Residential Long-term Care has developed a limited podcast series to provide insights into how culture, competing population health priorities, political conflict, and resource limitations influence older adults, their families, and paid/formal caregivers in six nations along a trajectory of national development, including Brazil, China, East Jerusalem, Ethiopia, Ghana, and Thailand. Guest: Amal Abu Awad, PhD, RN, MSN Dr. Abu Awad serves as the Chief Nursing Officer at Augusta Victoria Hospital. She has an educational background that includes a baccalaureate degree in nursing from Al-Quds University in the West Bank, a master's degree in pediatric and neonatal nursing from the University of South Carolina, and a doctoral degree in nursing from the University of Wisconsin–Madison with a minor in educational leadership and policy analysis. Additionally, Dr. Abu Awad has a significant history in education, having previously worked as the Dean of Ibn Sina College for Health Sciences and as the Director General of Education in Health at the Ministry of Health of the Palestinian Territory. Host: Barbara Bowers, PhD, RN, FAAN, FGSA, Emerita Professor at the University of Wisconsin–Madison, School of Nursing; Founding Director of the UW–Madison School of Nursing's Center for Aging Research and Education Moderator: Jing Wang, PhD, RN, FAAN, Assistant Professor at the University of New Hampshire, College of Health and Human Services This podcast limited series is supported by the GSA Innovation Fund.
Understanding Person-Centered Care for Older Adults in Six Developing Countries: Ghana [Episode 5] Download the Transcript The impact of population aging is universally recognized and has been extensively studied in wealthier, developed nations. But we know much less about how aging is experienced in low- and middle-income countries and how developing countries are responding to the current challenges created by the aging of their populations. The rapid rate of population aging in many developing countries—fueled by falling fertility rates and a shift in the predominance of chronic diseases rather than acute and infectious illnesses—has left little time to anticipate and prepare for the consequences of aging populations. The GSA Interest Group on Common Data Elements for International Research in Residential Long-term Care has developed a limited podcast series to provide insights into how culture, competing population health priorities, political conflict, and resource limitations influence older adults, their families, and paid/formal caregivers in six nations along a trajectory of national development, including Brazil, China, East Jerusalem, Ethiopia, Ghana, and Thailand. Guest: Diana Abudu-Birresborn, PhD Dr. Abudu-Birresborn is a doctoral graduate of the Lawrence Bloomberg Faculty of Nursing, with a specialization in Health Systems Leadership and Administration and a collaborative specialization in ageing from the Institute of Life Course and Ageing, at the University of Toronto, Canada. Dr. Abudu-Birresborn has more than a decade of nursing experience in rural and urban communities of Ghana. Her doctoral work focused on the preparation of nursing students to care for older adults in Ghana. Specifically, she examined nursing students' self-efficacy in caring for older adults in acute care settings, using a mixed-method approach. Host: Barbara Bowers, PhD, RN, FAAN, FGSA, Emerita Professor at the University of Wisconsin–Madison, School of Nursing; Founding Director of the UW–Madison School of Nursing's Center for Aging Research and Education Moderator: Jing Wang, PhD, RN, FAAN, Assistant Professor at the University of New Hampshire, College of Health and Human Services This podcast limited series is supported by the GSA Innovation Fund.
Understanding Person-Centered Care for Older Adults in Six Developing Countries: Ethiopia [Episode 4] Download the Transcript The impact of population aging is universally recognized and has been extensively studied in wealthier, developed nations. But we know much less about how aging is experienced in low- and middle-income countries and how developing countries are responding to the current challenges created by the aging of their populations. The rapid rate of population aging in many developing countries—fueled by falling fertility rates and a shift in the predominance of chronic diseases rather than acute and infectious illnesses—has left little time to anticipate and prepare for the consequences of aging populations. The GSA Interest Group on Common Data Elements for International Research in Residential Long-term Care has developed a limited podcast series to provide insights into how culture, competing population health priorities, political conflict, and resource limitations influence older adults, their families, and paid/formal caregivers in six nations along a trajectory of national development, including Brazil, China, East Jerusalem, Ethiopia, Ghana, and Thailand. Guest: Nigussie Tadesse Sharew, MS Nigussie is a doctoral student at the University of Adelaide, Adelaide Medical School in Australia, where he is studying the pharmacogenomics of drugs used in the treatment of mental health disorders. He holds two master's degrees in clinical epidemiology from the University of Groningen in the Netherlands and adult health nursing from Addis Ababa University in Ethiopia. He was an Assistant Professor at Debre Berhan University in Ethiopia, where he has served as Dean of the College of Health Science for three years and as head of the nursing department for two years. Host: Barbara Bowers, PhD, RN, FAAN, FGSA, Emerita Professor at the University of Wisconsin–Madison, School of Nursing; Founding Director of the UW–Madison School of Nursing's Center for Aging Research and Education Moderator: Jing Wang, PhD, RN, FAAN, Assistant Professor at the University of New Hampshire, College of Health and Human Services This podcast limited series is supported by the GSA Innovation Fund.
Understanding Person-Centered Care for Older Adults in Six Developing Countries: Thailand [Episode 6] Download the Transcript The impact of population aging is universally recognized and has been extensively studied in wealthier, developed nations. But we know much less about how aging is experienced in low- and middle-income countries and how developing countries are responding to the current challenges created by the aging of their populations. The rapid rate of population aging in many developing countries—fueled by falling fertility rates and a shift in the predominance of chronic diseases rather than acute and infectious illnesses—has left little time to anticipate and prepare for the consequences of aging populations. The GSA Interest Group on Common Data Elements for International Research in Residential Long-term Care has developed a limited podcast series to provide insights into how culture, competing population health priorities, political conflict, and resource limitations influence older adults, their families, and paid/formal caregivers in six nations along a trajectory of national development, including Brazil, China, East Jerusalem, Ethiopia, Ghana, and Thailand. Guest: Siriphan Sasat, PhD, RN, CPG Dr. Sasat is Associate Professor in the Faculty of Nursing at Chulalongkorn University in Bangkok, Thailand. She is the Director of the Centre for Health and Well-being Promotion for Older People and the Chair of the Thai Long-Term Care Nurses Society. Dr. Sasat previously served as the Secretary-General for the International Association of Gerontology and Geriatrics, Asia/Oceania Region (IAGG-AOR), and as the Vice President of the Thai Society of Gerontology and Geriatric Medicine. She earned her doctoral and master's degrees in nursing with a focus on gerontology and the care of older people at the University of Hull in the United Kingdom. Additionally, she received a baccalaureate degree in nursing and midwifery from the McCormick Faculty of Nursing, Payap University in Thailand. Host: Barbara Bowers, PhD, RN, FAAN, FGSA, Emerita Professor at the University of Wisconsin–Madison, School of Nursing; Founding Director of the UW–Madison School of Nursing's Center for Aging Research and Education Moderator: Jing Wang, PhD, RN, FAAN, Assistant Professor at the University of New Hampshire, College of Health and Human Services This podcast limited series is supported by the GSA Innovation Fund.
Understanding Person-Centered Care for Older Adults in Six Developing Countries: China [Episode 2] Download the Transcript The impact of population aging is universally recognized and has been extensively studied in wealthier, developed nations. But we know much less about how aging is experienced in low- and middle-income countries and how developing countries are responding to the current challenges created by the aging of their populations. The rapid rate of population aging in many developing countries—fueled by falling fertility rates and a shift in the predominance of chronic diseases rather than acute and infectious illnesses—has left little time to anticipate and prepare for the consequences of aging populations. The GSA Interest Group on Common Data Elements for International Research in Residential Long-term Care has developed a limited podcast series to provide insights into how culture, competing population health priorities, political conflict, and resource limitations influence older adults, their families, and paid/formal caregivers in six nations along a trajectory of national development, including Brazil, China, East Jerusalem, Ethiopia, Ghana, and Thailand. Guest: Honglin Chen, PhD Dr. Chen is currently a professor of gerontological social work at the University of Eastern Finland. She has been doing research and teaching in aging policy and practice field as a Professor and Vice Chair in the Department of Social Work at Fudan University in Shanghai, China for 20 years. Her current research area focuses on welfare technology, smart elder care, social work education and serves as an editorial board member in the Journal of Social Work. Dr. Chen is also a Sino-America Fulbright Scholar at the Leonard Davis School of Gerontology at the University of Southern California. Host: Barbara Bowers, PhD, RN, FAAN, FGSA, Emerita Professor at the University of Wisconsin–Madison, School of Nursing; Founding Director of the UW–Madison School of Nursing's Center for Aging Research and Education Moderator: Jing Wang, PhD, RN, FAAN, Assistant Professor at the University of New Hampshire, College of Health and Human Services This podcast limited series is supported by the GSA Innovation Fund.
Understanding Person-Centered Care for Older Adults in Six Developing Countries: Brazil [Episode 1] Download the Transcript The impact of population aging is universally recognized and has been extensively studied in wealthier, developed nations. But we know much less about how aging is experienced in low- and middle-income countries and how developing countries are responding to the current challenges created by the aging of their populations. The rapid rate of population aging in many developing countries—fueled by falling fertility rates and a shift in the predominance of chronic diseases rather than acute and infectious illnesses—has left little time to anticipate and prepare for the consequences of aging populations. The GSA Interest Group on Common Data Elements for International Research in Residential Long-term Care has developed a limited podcast series to provide insights into how culture, competing population health priorities, political conflict, and resource limitations influence older adults, their families, and paid/formal caregivers in six nations along a trajectory of national development, including Brazil, China, East Jerusalem, Ethiopia, Ghana, and Thailand. Guest: Patrick Alexander Wachholz, PhD Dr. Wachholz is a geriatrician in Sao Paulo, Brazil, and Professor at the Botucatu Medical School at Sao Paulo State University. Dr. Wachholz is also a researcher at the Brazilian National Front for Strengthening Long-Term Care, a network promoting and supporting initiatives for long-term care and advocating for stronger public policies for older adults in this setting. Previously, as a consultant to the Pan American Health Organization for the long-term care sector in Latin America, he served as Director of the Department of Geriatric Medicine in a long-term care facility in Brazil. Dr. Wachholz is currently Editor-in-Chief of Geriatrics, Gerontology and Aging. Host: Barbara Bowers, PhD, RN, FAAN, FGSA, Emerita Professor at the University of Wisconsin–Madison, School of Nursing; Founding Director of the UW–Madison School of Nursing's Center for Aging Research and Education Moderator: Jing Wang, PhD, RN, FAAN, Assistant Professor at the University of New Hampshire, College of Health and Human Services This podcast limited series is supported by the GSA Innovation Fund.
The first episode of Enabling Health Value features Elizabeth Fowler, Ph.D., J.D., the Deputy Administrator and Director of the Center for Medicare and Medicaid Innovation (CMMI). As the one of ...
How do you address the complex behaviors associated with dementia without feeling stressed or burnt out? This complex journey requires patience, understanding, and the right strategies to manage effectively. This episode provides invaluable insights into coping with dementia-related behaviors, offering a fresh perspective on caregiving. Let's explore how to approach dementia care with a positive mindset and practical solutions. 0:02:15 Understanding Challenging Dementia Behaviors 0:04:12 Importance of Understanding Dementia Changes 0:04:31 Coping Strategies for Challenging Behaviors 0:04:42 Changing Mindsets in Dementia Caregiving 0:08:20 Framework for Coping with Challenging Behaviors 0:09:43 Invitation to Dementia Caregiving Workshop 0:12:29 Unpacking the Dementia Peace Framework 0:14:44 Person-Centered Care in Dementia 0:15:10 Impact of Environment on Dementia Behaviors 0:16:32 Engaging Activities for Dementia Care 0:20:52 Role of Care Companions in Dementia Care 0:25:19 Evaluating Dementia Care Approaches 0:25:53 Case Study: Application of Peace Framework 0:33:16 Applying Evidence-Based Solutions 0:34:33 Founding 54 Family Special Offer 0:38:17 Recap of Three-Part Series Dementia caregiving is undoubtedly challenging, but it's also an opportunity to deepen relationships and grow personally. By adopting a positive mindset, utilizing effective strategies, and seeking support, caregivers can navigate this journey with confidence and compassion. Remember, you're not alone, and there are resources available to help you provide the best care possible while maintaining your well-being. As we continue to explore the intricacies of dementia care, let's remember the importance of patience, understanding, and a supportive community. Together, we can make a difference in the lives of those we care for. Enjoy our podcast? Please take a moment to leave us a review on Apple Podcasts and Spotify —it really supports our show! https://podcasts.apple.com/us/podcast/dementia-caregiving-for-families/id1716187550 Caring for your loved one with dementia doesn't have to be stressful! Join our next free workshop. https://www.dementiacaregivingmadeeasy.com/wsl Join our Facebook Group at: https://www.facebook.com/groups/1301886810018410 Become a Founding Member of Our Exclusive Academy! Only 54 Founding Family Slots Available for Extraordinary Caregivers. https://www.dementiacaregivingmadeeasy.com/start
Evidence-based practice is more than just research! It incorporates your personal expertise and your clients' values. In this episode, host Adam McAtee discusses the nuance of an evidence-based practice to help you become a more informed instructor. Want to study with Adam? Click here to get your 2-Week Free Trial of the VIP Membership Episode Resources Click here to read about kinesiophobia & Pilates Click here for a systematic review on person centeredness Click here for the 11 common recommendations for musculoskeletal pain.
The well-known Golden Rule can fall short when applied in end-of-life situations. A research article makes the case for The Platinum Rule. The Platinum Rule: A New Standard for Person-Centered Care, by Harvey Max Chochinov, OC, PhD, MD, FRCPC : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9145569/ “The Platinum Rule, which would have us consider—doing unto patients as they would want done unto themselves—offers a standard that is more likely to result in treatment decisions that are consistent with patients' personal needs and objectives.”Those of us who are not medical professionals have our own opportunities here. First, tell your family what you want! Second, if we know that we are likely to be in the position to make decisions for someone, we can encourage them to help us know what they want and not leave us guessing, imagining, and assuming. That position invites pressure, conflict, and guilt. Third, if we do find ourselves in the position of making a decision for a loved one, we need to remember to go for the platinum, not the gold. And if we haven't done our own advance planning and communicating, let's get going asap.Do you have comments or suggestions about a topic or guest? An idea or question about conflict management or conflict resolution? Let me know at jb@dovetailresolutions.com! And you can learn more about me and my work as a mediator and a Certified CINERGY® Conflict Coach at www.dovetailresolutions.com and https://www.linkedin.com/in/janebeddall/.Enjoy the show for free on your favorite podcast app or on the podcast website: https://craftingsolutionstoconflict.com/ And you can follow us on Twitter @conflictsolving.
Person-centered care leads to good health outcomes. Dental pros who practice it recommend it, and patients appreciate caregivers who understand them. Winnie Furnari, MS, RDH, FAADH, FAAFS, FADE Link to Article: https://www.rdhmag.com/patient-care/article/14294663/patientcentered-to-personcentered-care-how-do-we-get-there
In this episode we explore person-entered care with occupational therapist and stroke survivor, Emma Gee. We discuss: Emma is an occupational therapist, a professional speaker and a person who survived a stroke when she was 24. In a moment, Emma's life changed from that of a professional health provider and long-distance runner to that of … 101 – Person-Centered Care & Surviving a Stroke ft Emma Gee Read More »
In this episode we explore person-entered care with occupational therapist and stroke survivor, Emma Gee. We discuss: Emma is an occupational therapist, a professional speaker and a person who survived a stroke when she was 24. In a moment, Emma's life changed from that of a professional health provider and long-distance runner to that of … 101 – Person-Centered Care & Surviving a Stroke ft Emma Gee Read More »
S2E27: Don't Just Speak Empathy, Do Empathy with Adrienne Boissy, MD, CMO at Qualtrics and host Dr. Nick. The vast majority of the medical professionals arrived at their career because they cared. They cared about people, understood others and their problems and suffering, and wanted to be part of helping. So what happened between the ideal and entry into the long track and marathon race that takes that dream and turns it into the reality of caring for patients? Look no further than the 2009 report in the journal of Academic Medicine: The Devil is in the Third Year: A Longitudinal Study of Erosion of Empathy in Medical School. The good news as you will hear Adrienne point out is that despite all the failings people still trust healthcare, but we need to deliver on that trust. Your better pill to swallow is to deliver on the promise of Person-Centered Care, a fully holistic approach to caring not just for the patients but the staff who are responsible for that by creating a holistic listening and monitoring infrastructure that is working all day every day to provide the insights and then acting and responding to that data from the top to bottom of your organization. To stream our Station live 24/7 visit www.HealthcareNOWRadio.com or ask your Smart Device to “….Play Healthcare NOW Radio.” Find all of our network podcasts on your favorite podcast platforms and be sure to subscribe and like us. Learn more at www.healthcarenowradio.com/listen
This three-part podcast series is a follow up to the June 2022 ASHP continuing education webinar, “Things Not Often Taught in School: Embracing Vulnerable Populations in Ambulatory Care”. Each podcast series will feature one webinar speaker with additional information about working with the medically underserved, refugees & immigrants, and sexual & gender minorities. The information presented during the podcast reflects solely the opinions of the presenter. The information and materials are not, and are not intended as, a comprehensive source of drug information on this topic. The contents of the podcast have not been reviewed by ASHP, and should neither be interpreted as the official policies of ASHP, nor an endorsement of any product(s), nor should they be considered as a substitute for the professional judgment of the pharmacist or physician.
This three-part podcast series is a follow-up to the June 2022 ASHP continuing education webinar, “Things Not Often Taught in School: Embracing Vulnerable Populations in Ambulatory Care.” Each podcast series will feature one webinar speaker with additional information about working with the medically underserved, refugees & immigrants, and sexual & gender minorities. The information presented during the podcast reflects solely the opinions of the presenter. The information and materials are not, and are not intended as, a comprehensive source of drug information on this topic. The contents of the podcast have not been reviewed by ASHP, and should neither be interpreted as the official policies of ASHP, nor an endorsement of any product(s), nor should they be considered as a substitute for the professional judgment of the pharmacist or physician.
PT, PTA, OT, OTA, SLP – this podcast may help you meet your continuing education requirements. Access Relias Academy to review course certificate information. Have you wondered what the Montessori philosophy is and how it applies to older adults with dementia? In this episode, we talk with Jennifer Brush, MA, CCC-SLP, the director of the only approved Association Montessori International training center for Montessori and dementia in the U.S., about how to apply the Montessori philosophy to person-centered interventions for people living with dementia. How are we doing? Click here to give us feedback (02:44) Key Learning Points (04:06) Montessori with Older Adults (07:16) Experience Implementing Montessori (08:50) Montessori for Aging and Dementia (11:41) Principle: The Prepared Environment (13:03) Principle: Freedom of Movement (14:36) Principle: Hands-on Activity (16:27) Principle: Intrinsic Motivation (18:30) Principle: Concentration (20:20) Principle: Independence (22:50) Principle: Mixed Abilities of Individuals (25:03) Principle: Individualized Engagement (26:28) Principle: Observation (28:09) Principle: Grace and Courtesy (29:36) Implementation in a Care Community (33:35) Engaging Care Community Staff (37:27) Independence Within the Community (39:03) Example of a Prepared Space (42:01) Visualizing a Community That Integrates Montessori (47:16) Supporting Individuals' Roles (51:42) Selecting and Organizing Supplies (53:52) Benefits for Older Adults (54:41) Person-Centered Care (55:59) Communication with Team Members (58:53) Example (01:00:38) Recommendations (01:02:14) Conclusion The content for this course was created by Jennifer Brush, MA/CCC-SLP. This course was reviewed by Relias staff writer Susan Almon-Matangos, MS/CCC-SLP. Here is how Relias can help you earn continuing education credits: Access your Relias Library offered by your employer to see course certificate information and exam; or Access the continuing education library for clinicians at Relias Academy. Review the course certificate information, and if eligible, you can purchase the course to access the course exam and receive your certificate. Learn more about Relias at www.relias.com. Legal Disclaimer: The content of Stretch: Relias Rehab Therapy Education is provided only for educational and training purposes for healthcare professionals. The educational material provided in this podcast should not be used as medical advice to treat any medical condition in either yourself or others. Resources Association Montessori Internationale: https://montessoridementia.org
This three-part podcast series is a follow up to the June 2022 ASHP continuing education webinar, “Things Not Often Taught in School: Embracing Vulnerable Populations in Ambulatory Care”. Each podcast series will feature one webinar speaker with additional information about working with the medically underserved, refugees & immigrants, and sexual & gender minorities. The information presented during the podcast reflects solely the opinions of the presenter. The information and materials are not, and are not intended as, a comprehensive source of drug information on this topic. The contents of the podcast have not been reviewed by ASHP, and should neither be interpreted as the official policies of ASHP, nor an endorsement of any product(s), nor should they be considered as a substitute for the professional judgment of the pharmacist or physician.
Today, Eilon Caspi cohosts with Lori La Bey as they interview Naomi Feil who developed the Validation Method.as a response to her dissatisfaction with traditional methods. Her daughter Vicki de Klerk-Rubin has taken on the role of Executive Director of the Validation Training Institute since 2014. Contact the Validation Method Website Purchase Training Videos YouTube Channel Newsletter Signup Facebook LinkedIn Twitter Vicki de KlerkLinkedIn Contact Eilon Caspi Check outt www.AlzheimersSpeaks.com contact Lori La Bey.
Dr. Chochinov returns to the show to dive into the patient dignity question, the platinum rule, and how biases in the healthcare system can impact both patients and providers. Hosts: Eyrn, Toshia Guests: Harvey Max Chochinov, MD, PhD, FRCPC, Yasmine Dakhama, MS4 References: Chochinov HM. The platinum rule: a new standard for person-centered care. J Palliat Med. 2022;25(6):854-856. doi:10.1089/jpm.2022.0075 Chochinov HM. The Platinum Rule: A New Standard for Person-Centered Care. J Palliat Med. 2022 Jun;25(6):854-856. doi: 10.1089/jpm.2022.0075. Epub 2022 Feb 25. PMID: 35230173; PMCID: PMC9145569. Chochinov HM, McClement S, Hack T, Thompson G, Dufault B, Harlos M. Eliciting Personhood Within Clinical Practice: Effects on Patients, Families, and Health Care Providers. J Pain Symptom Manage. 2015 Jun;49(6):974-80.e2. doi: 10.1016/j.jpainsymman.2014.11.291. Epub 2014 Dec 17. PMID: 25527441. Chochinov HM. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ. 2007 Jul 28;335(7612):184-7. doi: 10.1136/bmj.39244.650926.47. PMID: 17656543; PMCID: PMC1934489.
We explore Dr. Harvey Max Chochinov's work on dignity therapy, its application in practice, and ways we can enhance humanism in medicine. Dr. Chochinov is a psychiatrist and researcher in palliative and end-of-life care. Our discussion also touches on burnout and systemic challenges the field of medicine faces. Hosts: Eyrn, Toshia Guests: Harvey Max Chochinov, MD, PhD, FRCPC, Yasmine Dakhama, MS4 References: Website to learn more about online dignity therapy training workshops: https://dignityincare.ca/en/ Chochinov HM, Hack T, Hassard T, Kristjanson LJ, McClement S, Harlos M. Dignity therapy: a novel psychotherapeutic intervention for patients near the end of life. J Clin Oncol. 2005 Aug 20;23(24):5520-5. doi: 10.1200/JCO.2005.08.391. PMID: 16110012. Chochinov HM. The platinum rule: a new standard for person-centered care. J Palliat Med. 2022;25(6):854-856. doi:10.1089/jpm.2022.0075 Chochinov HM. The Platinum Rule: A New Standard for Person-Centered Care. J Palliat Med. 2022 Jun;25(6):854-856. doi: 10.1089/jpm.2022.0075. Epub 2022 Feb 25. PMID: 35230173; PMCID: PMC9145569. Chochinov HM, McClement S, Hack T, Thompson G, Dufault B, Harlos M. Eliciting Personhood Within Clinical Practice: Effects on Patients, Families, and Health Care Providers. J Pain Symptom Manage. 2015 Jun;49(6):974-80.e2. doi: 10.1016/j.jpainsymman.2014.11.291. Epub 2014 Dec 17. PMID: 25527441. Chochinov HM. Dignity and the essence of medicine: the A, B, C, and D of dignity conserving care. BMJ. 2007 Jul 28;335(7612):184-7. doi: 10.1136/bmj.39244.650926.47. PMID: 17656543; PMCID: PMC1934489.
I am joined by Andrea Nakayama, an internationally-known Functional Medicine Nutritionist, educator, and speaker who is leading a movement to transform the health industry into a system that WORKS, empowering patients and practitioners alike with the systems and tools of Functional Nutrition. Andrea is celebrated as a leader in the field of Functional Nutrition because of her unique ability to teach and inspire practitioners and patients alike. Andrea synthesizes art and science, empathy and physiology, intuition and problem solving, into a system that truly helps people get to the root cause of their illness, create a path towards wellness, and find their way back to life. Andrea joins us to discuss the power of purpose with passion throughout the life cycle. I started studying with functional nutritionist and lifestyle practitioner Andrea Nakayama in 2016, and I'm thrilled to have her on the show to share her framework and perspective on purpose. Andrea dives into ‘The 5 P's': passion, permission, purpose, persistence, and perseverance. She illustrates the interconnected nature of these five concepts and gives examples of how to implement them into your journey of feeling younger while growing older. When it comes to purpose, there's an effect called the positive psychological construct that has a profound effect on our mental health and cognition as we age. It can be challenging to look within and process the ebbs and flow of life. Andrea shares some helpful exercises that can support the practice of listening in without judgment and finding out what really lights you up. Part of that process involves appreciating your past and stepping into the love that you deserve. We're often taught to sacrifice our boundaries in order to please other people. We discuss examples of what that has looked like in our lives and how we choose to practice radical self-care instead. Listen in to hear more of Andrea's wisdom on purpose and graciously taking care of yourself as you age. If you are enjoying these conversations, please subscribe and spread the love by leaving a review and sharing it with your friends.Listen to the episode on Apple Podcasts, Spotify, Google Podcasts, Stitcher, TuneIn, or on your favorite podcast platform. Topics Covered:Why it's essential to allow yourself to sit in a place of witnessing Listening to what comes up with curiosity, not judgment Letting go of perfectionism and allowing yourself to be a beginner Resisting what puts us on the trajectory of seeking external validation and answers Creating and upholding beautiful boundaries Honoring yourself when your limits are being testing Connect with Andrea: InstagramFunctional Nutrition Alliance Website15-Minute Matrix PodcastGet in Touch: My WebsiteInstagramSpecial offers: Join me for the Magnesium 30-Day Foot Soak Ritual, starting November 1st! This promises to set you up for success during the holidays. Do you know magnesium levels are affected by stress? Likewise, healthy magnesium levels can help you manage stress. Email dana@danafrost.com to sign up. Use code VITALLYOU to get a discount on your order at livingthegoodlifenaturally.comDownload the Daily Vitality eBook at danafrost.com/daily-vitality/Credit:Podcast Production by the team at The Wave PodcastingMusic by Phoebe GreenlandPhotography by Amy Boyle PhotographyPodcast art by SimplyBe. Agency
Interviewer info Lyssa Rome is a speech-language pathologist in the San Francisco Bay Area. She is on staff at the Aphasia Center of California, where she facilitates groups. She owns an LPAA-focused private practice and specializes in working with people with aphasia, dysarthria, and other neurogenic communication impairments. She has worked in acute hospital, skilled nursing, and continuum of care settings. Prior to becoming an SLP, Lyssa was a public radio journalist, editor, and podcast producer. Guest bios Melinda Corwin is a university distinguished professor and clinical supervisor at the Texas Tech University Health Sciences Center (TTUHSC) Department of Speech, Language, and Hearing Sciences, where she has worked since 1994. Prior to her university position, she worked as a hospital speech-language pathologist. She directs the Stroke & Aphasia Recovery (STAR) Program, a community outreach program in Lubbock, Texas, for persons with aphasia and their families. Brooke Hallowell is professor and dean of health sciences at Springfield College. Brooke is a specialist in neurogenic communication disorders, and has been working clinically, teaching future clinicians, and engaging in research on aphasia for 25 years. She is known for transnational research collaboration, academic and clinical program development, and global health programming in underserved regions of the world. A pioneer in using eyetracking and pupillometry to study cognition and language in adults, she holds patents on associated technology. Professor Hallowell is the author of Aphasia and Other Acquired Neurogenic Language Disorders: A Guide for Clinical Excellence. Listener Take-aways In today's episode you will: Identify key differences between clinician-centered care and person-centered care. Understand gaps in current training regarding the Life Participation Approach. Learn about the Aphasia Access knowledge course. Edited show notes Lyssa Rome Welcome to the Aphasia Access Aphasia Conversations Podcast. I'm Lyssa Rome. I'm a speech language pathologist on staff at the Aphasia Center of California, and I see clients with aphasia and other neurogenic communication impairments in my LPAA focused private practice. Aphasia Access strives to provide members with information, inspiration and ideas that support their aphasia care through a variety of educational materials and resources. I'm pleased to be joining the podcast as today's host for an episode that will feature Melinda Corwin and Brooke Halliwell. We'll be discussing Aphasia Access's new online project, Person-Centered Care: The Life Participation Approach to Aphasia Knowledge Course, which debuts this month, I had the pleasure of playing a small role in this project as the narrator for the course. Melinda Corwin is a University Distinguished Professor and clinical supervisor at the Texas Tech University Health Sciences Center Department of Speech, Language and Hearing Sciences, where she has worked since 1994. Prior to her university position, she worked as a hospital speech language pathologist. She directs the Stroke and Aphasia Recovery, or STAR, program, a community outreach program in Lubbock, Texas, for persons with aphasia and their families. Brooke Hallowell is a professor and dean of health sciences at Springfield College. Brooke is a specialist in neurogenic communication disorders and has been working clinically, teaching future clinicians, and engaging in research on aphasia for 25 years. She is known for transnational research collaboration, academic and clinical program development, and global health programming in underserved regions of the world. A pioneer in using eye tracking and pupillometry to study cognition and language and adults, she holds patents on associated Technology. Professor Halliwell is the author of Aphasia and Other Acquired Neurogenic Language Disorders: A Guide for Clinical Excellence, Second Edition. Thank you for joining me. I wanted to start with an “aha moment,” anything that stands out for you in terms of the Life Participation Approach. Who would like to start? Melinda Corwin So, at our university, I got to meet a man who was in his 60s, he had survived a stroke two years prior, he was single and living in a long term care facility. He didn't have any family locally. He came to our university community outreach program for people with aphasia. And after about six months of being with us, he confided to his student clinician one day that he wondered if he could work out a payment plan to pay for throat surgery to fix his problems with speech and communication. And we realized that he did not understand the nature of aphasia. He actually thought there was a surgery available to fix or cure it, and that because he was low income, he didn't have the money to afford it. That was my aha moment, where I realized that we had failed him, our system had failed him. This man deserved to have access to his health information regarding his diagnosis, his condition, his prognosis, and he didn't get that as part of his ability to participate in his life and in his health care plan. And I knew we could do better. And so I found colleagues and friends through Aphasia Access, and I'm really hoping and working towards a systemic change for that reason. Lyssa Rome Thank you. Brooke, what about you? Brooke Hallowell Well, I continue to have aha moments. For for me, one that stands out relates to my role as an educator and a person who teaches courses in aphasia and author to support learning and future clinicians who will be working with people who have aphasia. It was hard for many of us who were raised with a focus on medical and impairment-based, deficit-focused models of aphasia, to integrate our appreciation for foci on life participation with how we were taught, and may have previously taught and mentored our students. It's as if, for many of us, the recognition of how essential it is for us to embrace life participation was there long before we had a good grasp on how to integrate life participation holistically into our educational content. We wanted to make sure our students knew about medical, neuroscientific, neuropsychological, psycholinguistic, etc., aspects of aphasia, and we wanted to make sure they knew about the theoretical underpinnings of aphasia-related content. So if you think about what we can cover in a course, in our limited time with future clinicians, we felt and still do just never have sufficient time to delve into some of the really critical life participation content. So for me it kind of aha moment. Although I gotta say it wasn't. So sudden as a flash at a single moment in time, maybe an aha phase. It relates to the importance of helping current and future clinicians embrace that we all need to be able to hold several conceptual frameworks about aphasia in our minds at the same time, and that by understanding and appreciating multiple perspectives, we didn't have to necessarily choose one over the other. We didn't have to argue about which models were better than others, or whether working on impairment level deficits was somehow not essential to life participation. Once that realization was clear within me, I found that it was easier to integrate life participation and the ICF framework through our all of our discussions and teaching about aphasia and other disorders as well. Many of us invested in life participation approaches have supported one another in that sort of integration of multiple frameworks in our thinking, and in our work. Aphasia Access has been a powerful force in that regard. The mutual support to hold life participation paramount, no matter what are other theoretical perspectives, and medical or non-medical orientations. Lyssa Rome Thank you. I think that leads really nicely, actually, into this topic of the knowledge course that that Aphasia Access has developed and that's debuting this month. So can you tell us a little bit more about the project and how it began? Melinda Corwin The project began with the plight of both people with aphasia and speech language pathologist. Of course, SLPs know that people with aphasia want to participate in life, which means their current life as a patient, or in their life when they go back home and their life years into the future. The plight for speech language pathologists is that they face enormous time limitations, insurance reimbursement constraints, they have increased workload across all the different healthcare systems and settings. And so providing true person-centered care, health equity, and personalized goals for each person that we serve can feel almost impossible. This challenge was so pervasive that it appeared in a comprehensive report written by Nina Simmons-Mackie in 2018, called Aphasia in North America, and it's available from Aphasia Access. In her report, she listed the gap areas and so we really wanted to focus on gap area number five, which is related to insufficient attention to life participation across the continuum of care. And also gap area number six, which is related to insufficient training and protocols or guidelines to aid speech language pathologists and other health care professionals in the implementation of this participation-oriented intervention across the continuum of care. So the year that her report came out a team of aphasia clinicians, researchers, and program providers mobilized to invent a product to concretely try to address these gap areas. We wanted to offer busy clinicians and healthcare professionals training that they wouldn't have to travel to, and something that was more than a webinar. We did a lot of research to produce the learning experience, and we tried to provide the most contemporary, interactive learning methods for adults. Our beta testers have said that they have found the course to be different and highly valuable. Lyssa Rome So I think obviously, there's this big need. And I'm wondering, Brooke, maybe if you could speak a little bit more to how this person-centered care approach can support the goals of increasing life participation, and maybe differentiate a little bit between clinician-centered care and person-centered care for people with aphasia? Brooke Hallowell Sure. In clinician-centered care, the clinician is really in charge of all aspects of intervention. The clinician is the boss. The clinician decides what will be assessed and how it will be assessed. The clinician interprets the assessment results. And from that, sets goals for the person with aphasia. And the clinician decides on the treatment methods that will be used to reach those goals. And that's very different from person-centered care, where the person and the clinician are collaborators from the start, they work together to determine priorities for what that person really wants to be able to do in life and how communication affects what a person wants to do. In person-centered care, the person's priorities are really the primary focus of assessment and goal setting and every aspect of intervention. And the person and the clinician set goals collaboratively, often including other people that are important in that person's life. And together, they collaborate in selecting what goals will get prioritized, and what the context is for working on those goals that's most relevant to the person. So the person's priorities are at the heart of our work in person-centered care. We clinicians collaborate with the person, and those people who are important to the person, at every stage of goal setting, assessment, treatment planning, etc. Lyssa Rome So thinking about person-centered care, I'm wondering if you can describe a little bit more about the goals of this knowledge course and how they relate to person-centered care. Brooke Hallowell Sure, the overarching goal is to provide learners with foundational, verifiable knowledge that's critical for providing person-centered care. Person-centered care is a universal and global need for people who have aphasia, and those who are important in their lives. The Life Participation Approach is fundamental to this wish that clinicians worldwide have for people with aphasia. That's increased participation in life regardless of race, ethnicity, gender, gender expression, national origin, geographic location, religious or other beliefs—regardless of any individual differences. This course is the first in a series. The knowledge course consists of eight online, self-paced interactive modules, each of which contains three specific learning objectives. The knowledge course is a standardized way that clinicians—from novices to experienced clinicians—can be formally recognized as a Life Participation Approach professional. When a person successfully completes the course, they earn an eBadge, a certificate, and an optional 2.5 continuing education credits for those who are members of the American Speech Language Hearing Association. Next year, Aphasia Access will release the second in the series: the practice course. That course will build on the fundamentals of the knowledge course, passing that course will lead to the award of a second badge focused on implementation strategies across care settings. Every course module is designed to provide practical suggestions, graphics, dynamic video clips, and interactive and reflective activities to help key concepts come alive. Lyssa Rome Tell us a little bit more about the content team. Who worked on this badge project? Melinda Corwin This is Melinda and it's been an honor to serve as the content team manager for the project. For the knowledge course we had eight members on our team. Our lead author is Nina Simmons-Mackie, who's a professor emeritus at Southeastern Louisiana University. Of course, Brooke Hallowell, who as you said, is professor and dean of health sciences at Springfield College. Brooke also secured a grant to help with funding portions of this project and we could not have done it without her. And our other team members include Katarina Haley, who is a professor at the University of North Carolina at Chapel Hill, and she directs the UNC Center for Aphasia and Related Disorders. Mary Hildebrand is a recently retired associate professor and program director of the occupational therapy department at Massachusetts General Hospital or MGH Institute of Health Professions. Jacqueline Laures-Gore is an associate professor of communication sciences and disorders at Georgia State University. We have Marjorie Nicholas, who's the chair of the communication sciences and disorders department at MGH Institute of Health Professions in Boston. And last but not least, our project manager Kathryn Shelley. She is co-founder and current grants director of the Aphasia Center of West Texas, and she's also a former president of Aphasia Access, and this course would not be possible without Kathryn's guidance. Lyssa Rome Tell us a little bit more about what the benefits are of having this eBadge or taking this course. Brooke Hallowell Sure, this is Brooke. The badge is going to convey to others that the participant has a firm foundation of person-centered care, which is, as we know, at the heart of the life participation approach. So benefits include delivering equitable, person-centered care through collaborative goal setting and intervention, improving success for people with aphasia, and those who care about them and helping specific care settings meet communication access mandates. When an eBadge is displayed in an email signature, or on social media, there'll be a clickable link. And that will help employers, or colleagues, or the people that we serve, even friends and family, link to a full description of what it means to have earned that eBadge. Lyssa Rome Great. Many of the professionals who are involved in Aphasia Access are experts in the life participation approach. So why would they want to take this course to document their knowledge? Melinda Corwin This is Melinda. Well, by devoting personal time, energy, and resources to earn an eBadge, it's an efficient way to let others know that we share a common goal to provide patient-centered care across the continuum of care. And regardless of what setting a particular professional is in, whether they're in an acute care hospital, inpatient rehabilitation, outpatient rehab, home health, or community-level aphasia program, or group, these eBadge holders will be able to identify each other. I'm a university professor and director of an aphasia community outreach program. I've been trying to teach and use the Life Participation Approach for several years, and I've wanted to spread the word with other speech language pathologists. So by adding this symbol to my email signature, I hope that colleagues will click on the eBadge and see what I've been up to. My decision to display the eBadge is my way to help make system change possible, I envision a day in which all healthcare providers will aspire to provide patient-centered care, essentially from the ambulance ride to the emergency center, all the way to the person's return to home and community. Lyssa Rome The benefits of this seem really clear. But will this eBadge or certificate be required for a clinician to to employ a person-centered or life participation approach to aphasia? Brooke? Brooke Hallowell Oh, no, definitely not. I have to chime in on that. We know that many clinicians are deeply engaged in this approach. And many have adhered to this approach for years and in ways that may not have been labeled expressly as life participation approach. Still, based on gaps that we know exists in our current healthcare and community settings, we hope that the eBadge will really help clinicians showcase their knowledge to employers and peers and the people they serve. Engaging in the course itself can provide support for students and clinicians who want to consider life participation constructs, perhaps more deeply or in new ways. And as Melinda was just intimating, it's also a means of confirming shared values about life participation amongst us. Lyssa Rome So when people have completed this course, how is that displayed as an eBadge? Melinda, maybe you can take that one? Melinda Corwin Yes. So it'll be in the person's email signature line, if they choose to place it there. And the eBadge is from a company called Credly, which enables anyone to click on the badge icon and be taken to a website that explains exactly what training the person completed to earn that eBadge. Brooke Hallowell Yeah, and it's so easy to register for the course, just go to the Aphasia Access website. That's www.aphasiaaccess.org. From there, you'll see the link to the knowledge course on the homepage. And that will take you to our new Aphasia Access Academy, which is the new home for all of our educational experiences. There is a cost. The cost for Aphasia Access members is $129. And for non-members, it's $179. And if you're not already an Aphasia Access member, your enrollment in the course includes a one year, first-time membership. So it's really a wonderful way to experience so many benefits of our Aphasia Access membership and network. We have our Brag and Steal events, the distinguished lecture series, shared free resources, there's a discount registration for the Leadership Summit, and there are also on-demand pre-recorded webinars. So all of that comes along with that membership. Lyssa Rome Well, I'm really excited about this course. And I appreciate your sharing more details about it. And I'm wondering if there are any last thoughts that you'd like to share with our listeners? Brooke Hallowell Yeah, this is Brooke, I would just I've been reflecting as we've had this conversation today about how amazing it was to work with this collaborative team in developing the course. You know, I think all of us who have been involved in this from the beginning felt like we were already expert in the life participation approach. There isn't that much more to learn. But in fact, there was a tremendous amount of dynamic discussion, argumentation, passionate discussion about the various aspects of the life participation and how to portray it, how to talk about it, and what terms to use and not use. So I feel like I grew tremendously from the process of the course development. And I think a lot of that, I certainly hope that a lot of that comes out to people who participate in the course. So even if you think you're already expert in it, I'd still recommend that you give it a try for all the reasons that we talked about, and including that there's always more for all of us to learn about this approach. Lyssa Rome So true. Brooke Hallowell and Melinda Corwin, thank you for being our guests on this podcast. For more information on Aphasia Access and to access our growing library of materials, go to www.aphasiaaccess.org. For a more user-friendly experience, members can sign up for the Aphasia Access Academy, which is free and provides resources searchable by topic or author. If you have an idea for a future podcast series topic, email us at info@aphasiaaccess.org. Thanks again for your ongoing support of Aphasia Access. References and Resources http://www.aphasiaaccessacademy.org/ www.AphasiaAccess.org/knowledgebadge/
Host: Karl Steinberg MD, HMDC, CMD Guests: Philip Sloane MD, MPH; Mallory Brown, MD Topics: Person-Centered Care, Trauma Informed Care, New Onset Seizures, and Transitions to Home Care References: Abbott et al. Applying Agile Methodology to Reengineer the Delivery of Person-Centered Care in a Nursing Home: A Case Study. Bender, et al. Concern About Past Trauma Among Nursing Home Admissions: Report From Screening 722 Admissions Leppik et al. New Onset (Incidence) of Epilepsy and Seizures in Nursing Home Residents Toles et al. Unique Care Needs of People with Dementia and Their Caregivers during Transitions from Skilled Nursing Facilities to Home and Assisted Living Recorded: September 28, 2022 Available Credit: The American Board of Post-Acute and Long-Term Care Medicine (ABPLM) issues CMD credits for AMDA On-The-Go and affiliate podcast episodes as follows: Claim CMD Credit
This week, host Kathleen Wallace sits down with Dr. Barbara Weinstein, Professor and Founding Executive Officer of the Health Sciences Doctoral Program at the CUNY Graduate Center. Dr. Weinstein is probably best know for her role in the development of the the Hearing Handicap Inventory for the Elderly (HHIE), a self-assessment tool containing 25 questions that are designed to assess the impact of hearing loss in the emotional and social-situational adjustments of elderly patients. In this episode, Dr. Weinstein discusses why using tools like the HHIE are so important in audiology, as well as the importance of collaborating with other health professionals as a key part of truly person-centered care. This special episode sponsored by Tuned: https://www.tunedcare.com/ Be sure to subscribe to our YouTube channel for the latest episodes each week, and follow This Week in Hearing on LinkedIn and Twitter: https://www.linkedin.com/company/this-week-in-hearing/ https://twitter.com/WeekinHearing
Person-Centered has been a more common term being thrown around on social media.Often it is proposed as an ideal mode of clinical practice?What is person-centered care?Hasn't it always be person-centered care?What are the barriers that exist to delivering person-centered care?Tune into this week's podcast and find outLinks:https://link.springer.com/book/10.1007/978-3-030-41239-5#about*********************************************************************
During this episode, Dr. Katie Strong, Associate Professor in the Department of Communication Sciences and Disorders and Director of the Strong Story Lab at Central Michigan University talks with Dr. Jackie Hinckley from Nova Southeastern University about stakeholder engaged research and Project BRIDGE. Dr. Jackie Hinckley is Professor and Director of the Undergraduate Program at Nova Southeastern University. She is Board Certified in Neurogenic Communication Disorders by the Academy of Neurologic Communication Disorders and Sciences (ANCDS) and Fellow in Person-Centered Care. Dr. Hinckley is currently a Board Member of Aphasia Access and the National Aphasia Association. She is Executive Director Emeritus of Voices of Hope for Aphasia. She is Project Lead for Project BRIDGE, formerly funded by two PCORI Engagement Awards and now supported by NSU. She is the author of two books, Narrative-Based Practice in Speech-Language Pathology, and What Is It Like to Have a Communication Impairment? Simulations for Family, Friends, and Caregivers. She is an Editor for The Qualitative Report, and on the Editorial Board of Topics in Stroke Rehabilitation and Journal of Interactional Research in Communication Disorders. In this episode you will: Learn about the importance of including people with aphasia and clinicians in the research process to make the research better. Find out what stakeholder engaged research is and its importance in developing relevant evidence for clinical practice Hear how Project BRIDGE has enhanced stakeholder engagement in research related to aphasia. Be empowered to embrace your own expertise and the expertise of your clients and their family members. KS: Jackie, Welcome back to the Aphasia Access Conversations Podcast. I believe you were first interviewed on our podcast in 2016 – Episode #2! We now have over 86 episodes that are available! Who knew the series would have such staying power. It's really amazing! Thanks for joining me today. I'm really excited about this conversation with you and having our listeners hear about what you've been up to lately and how that is impacting our clinical practice and the people with aphasia that we work with. JH: Well, thank you, Katie, for the introduction, and thank you to you and Aphasia Access for the opportunity to be on this podcast. I'm really excited to talk about these issues and talk about them with you. KS: Well, let's dig in. So, today's topic is “everyone's an expert”. How does that relate to our clinical work and our research? JH: Well, you know, Carl Rogers, the famous psychologist said that we are the best experts on ourselves. And I think that we all have that thought in our minds, but it really hits at the core of person-centeredness. An expert is someone with authoritative knowledge. So that has two parts, the authority and the knowledge. And an expert comes about when people agree that an individual has high performance or high knowledge in an area. I think that the idea of person-centered care in our clinical work is that we acknowledge that our clients are the best experts on themselves. And I think most of us who are practicing speech pathologists would certainly acknowledge that and agree with that. But in reality, in a normal clinical process, it's actually kind of hard to do. Because the clinician is, by definition, an expert, and has a certain degree of authority in the clinical interaction. So, for example, clinicians need to do an assessment and a diagnosis. And the client really can't self-diagnose, so there's an issue of authority and knowledge from the point of view of the clinician. But now that authority tends to seep into other areas like goal setting, where really the client needs to bring forward their own expertise about themselves. When we continue to exercise authority over what the goal should be, and yet, evidence shows that collaborative goal setting like goal attainment scaling significantly improves not just the immediate outcomes of therapy, but also how active the client is after they are discharged home. So, there's a tension around expertise. It has to shift back and forth during the clinical process. And a lot of times, it starts with the clinician having a lot of authority, but we have to know how to give our client that authority about themselves. So, it's only in the last decade or so that the idea of who's an expert and person-centeredness really has been applied to research. For example, if we think about a traditional research process, the researcher reads the literature and identifies the knowledge gap comes up with the experiment or whatever study that can contribute to that gap. And the researcher determines the design, the method, the measurement, does the research, publishes it and gets it out in a way that the researcher basically is crossing their fingers is going to have the impact that they hoped for. The problem is that it this ignores who is going to be affected by the research. So, aphasia in, our specialty in our world here, is, is always existing in persons. It's not something that we can be that we can study in a petri dish. So anytime we do research that has to do with aphasia, we need to be acutely aware that we're creating knowledge that is going to actually affect somebody's life. And so maybe this knowledge is going to affect how the aphasia is assessed or treated, or what we do to support people with aphasia, but whatever it is, it's the lives of people with aphasia that are being affected by this research. So, you know, let's step back a minute. And let's say I invented some new kitchen gadget, or a shoe or something, right. So. I'm the researcher of this new gadget. If I want to be successful in selling the product and having the product being used, I would have incorporated the views of people who might use it by trying out the products way before I ever try manufacturing and selling it because I need that feedback. I need to know if there are potential customers out there and whether they're actually going to use it. And the same thing really applies to research. So, if I'm a researcher and I create a new research product (a.k.a = knowledge, or study to create knowledge). If I create some research product, but I'm not an expert user of that knowledge, in other words I'm a researcher who doesn't do assessments every day or treatment every day, then I run the very great risk that I'm creating a product that can't quite be used by the people was originally intended for. If we really embraced person-centeredness in research, then we would start by thinking about who are the people who are going to end up being affected by this research product or this research outcome. And we would incorporate people living with aphasia, and also clinicians into our research, and that would make the research better. KS: Powerful stuff! I remember the Disability Rights initiative using a slogan, “Nothing about us without us.” JH: Yes, that is a great slogan that has been around for a while. And that definitely reflects the idea of person-centeredness. And I think we need to remember that slogan and everything we do, whether it's our clinical practice, but also in our research. And that's a little bit of a new way of thinking about research. So, research is not just about the people with aphasia, sometimes it is, but a lot of times it's also about what are the best practices in clinical activities. So, we need to include both people with aphasia, their families, clinicians, maybe policymakers, other people who are really the stakeholders who are affected by the research products that we make, and they need to be involved in planning and doing the research and saying what kind of research would be most helpful. KS: I'm thinking a lot about researchers out there, Jackie, you and I included. We have clinical experience. So maybe they have a good idea of what clinicians need to know from research. JH: You know, I have heard this from some people saying, “Well, I've been a clinician, so I know.” And maybe that's true. I think that people like you and I, who have been spent a good amount of time being clinicians in our past, probably are ahead of the game. In a sense, we might have a better sense of what we don't know, right? Because we've been out there doing it. But I will, in my opinion, I think researchers who aren't actively out in clinical settings, and they mostly aren't, still aren't quite totally up to date with the current challenges that are being faced by people. Anthony Bourdain, the celebrity chef said, “Just because I like sushi doesn't mean I can make sushi.” So, I think we may think that…but if we're not right in the thick of it, we may not know as much as we think. And we need to bring in the experts who actually do know what it's like to do that daily clinical work. KS: Point well taken. This leads us to the idea of stakeholder-engaged research. What is it? JH: The term stakeholder engaged research is an umbrella term. It covers a lot of different approaches to the idea of bringing in individuals who are going to be affected by the research to actually help can plan, conduct, and disseminate the research. So, there are various ways that stakeholders can be involved in research. They could be consultants, or they could be co-researchers, and full collaborators. In the case of a co-researcher, they help come up with research questions, help design the research, pick the outcome measure, help with data analysis, or interpretation, and even contribute to dissemination of the research results. We have found that people, family members, clinicians, other stakeholders, and people with aphasia can participate it fully as collaborators in all of these things if they so choose. KS: Amazing. I know there are a few examples of this kind of research in Ireland. For example, Ruth McMenamin …. and also, in Denmark Jytte Isaksen is doing interesting work, and of course there is Ciara Shiggins in Australia….what about in the US? JH: Yeah, so in other places, like in Europe, as you say, in Australia, I, you know, I think they've been a little ahead of the United States in terms of understanding that they need to bring in the people who are affected by research into the actual conducting of research. And that also brings up the point that I said, stakeholder engaged research is an umbrella term. There are many different terms and in some other countries, they also use different terms for this. But I'm using stakeholder engaged research here, because as you point out, it really is the term that's coming to the forefront here in the United States. So, in the United States, and in our all of our ASHA journals, we unfortunately have very few examples of stakeholder engaged research, where clients and family members are fully engaged collaborators are involved. There's only a handful of studies. So, it hasn't been a widely used approach in our field yet, but I think it's growing quickly. KS: What makes you think it will grow quickly? JH: There are three broad reasons why I think this is changing fast. First, I think the idea that people who are being affected by something – whether it be a policy, regulation, legislation – is taking a broader hold in certain areas of our lives. For example, in academics where we have student-centered learning. Second, research funding agencies in the United States are starting to value, and therefore reward with funding, research projects in which stakeholders play an important role and make a substantial contribution to the research project. The most important landmark in terms of funding agencies in the United States is the creation of the Patient-Centered Outcomes Research Institute, called PCORI. It was created as part of the Affordable Care Act in 2010 and it was charged with funding comparative effectiveness research – in other words, research that would help patients and clinicians what is the best treatment for them. Their slogan is “Research Done Differently”, and I think that captures that the research they are producing is not at all the kind of traditional research that we mentioned earlier. PCORI is funding all kinds of health research across many disciplines in innovative ways. This is really changing the landscape of research and research funding, because other funding agencies are starting to follow their lead. The third reason why I think stakeholder-engaged research will grow quickly in our field is the experience we've had with Project BRIDGE. KS: I've been a Regional Coordinator and also a member of a few research teams for Project BRIDGE. Honestly, it's been a gamechanger for me in how I think about approaching research. Can you tell us about how Project BRIDGE got started? JH: Sure. So, 10 years ago, I was at a conference called the Clinical Aphasiology Conference. And for anyone who's not familiar with that conference, until the last couple of years, the only people who could attend the conference were people who submitted presentations. So, this means the conference in that sense rather exclusive, and that the audience, the people who are present at the conference, were really only researchers. So, 10 years ago, I was at this conference, listening to three days of presentations, all about aphasia treatment and I suddenly realized that we're all researchers talking to other researchers about aphasia treatment, but no one at the conference was either using the treatment as a clinician or receiving the treatment as a client. So, I said to some of the folks at the meeting, “There should be some people with aphasia at this conference. We're talking about their treatment.” And the response I got 10 years ago was, “Well, they don't really belong here.” The timing of that was one year after PCORI, became really active and started funding initiatives. Around the same time, we had done a project with the Sarasota Aphasia Community Group, which is a fabulous group, if anyone needs a referral in that area. They run themselves. The group is really great. We asked their members to come up with ideas about what research they think would be important. We talked to them about research, and we set them off. So, they were off on their own and we did not interfere with this. They had their own group meetings and came up with the research ideas. So, they came up with 22 ideas. Now most of their research, and by the way, these were really good questions. And most of them, you know, were formulated pretty close to how we would normally formulate research questions. I mean, they did a fabulous job with very little information about research. Most of their research questions were about the best treatment for different kinds of language issues. For example, “What's the best treatment for being able to produce sentences?” But then they came up with some really special questions that I don't think that you or I even despite all of our clinical experience, and our research experience, I'm not sure we would come up with these questions. For example, they wanted to know, “How can the speech pathologist engage the person with aphasia, not just do rote exercises, but rather connect with the aphasic as a personality, tailor the therapy to the individual needs?” KS: Wow, that's mind blowing. And that's 10 years ago, right? JH: Yeah, yeah, maybe even more than that. And by the way, I said aphasic. I'm reading what they wrote, so I just wanted to let everyone know that those are their words. Another question they came up with was, “What is the effect on the person with aphasia if they do not like their speech pathologist? or ‘The speech pathologist doesn't understand the patient's needs or doesn't customize the therapy towards them?'” Wow. I think as clinicians, we probably know, in our hearts that when we don't have a good match in terms the rapport between the clinician and client, it probably doesn't go that well. It's not the best outcome. We all know this. But we don't know very much about it from a research point of view. And then another question they came up with was “What makes a speech pathologist excellent?” These are from their point of view. It was just people with aphasia and family members coming up with these questions. KS: Wow, well I'm certain that I wouldn't be able to come up with those types of questions. They are so meaningful and important. They really get right down to what's important, don't they? JH: Yeah. I'm really pleased that we were able to publish that paper with the founders of the Sarasota Aphasia Community Group. They were co-authors. They were equal collaborators with us in the project. That was published in 2014. And then two years later, in 2016, we submitted a proposal to PCORI, when I was the Executive Director of Voices of Hope for Aphasia. And although that first proposal was not funded, we got great feedback. When I read the feedback, I thought, you know, if we make this actually a little bit bigger, maybe it's going to be successful, which is not always the way you go. But we partnered with the University of South Florida. So, it was Voices of Hope for Aphasia and University of South Florida. And that was funded, and that proposal created Project BRIDGE. The first two years of funding allowed us to create a working conference. The goal was to bring together people with aphasia, family members, clinicians, and researchers to form collaborative research teams. One challenge with this kind of work and you know, it's this is not just in the world of aphasia, this is any health domain that uses this kind of stakeholder engaged research. So, one challenge is that researchers know about how to do research but other people who aren't researchers don't know so much about research. On the other hand, researchers are not experts on daily clinical processes, nor are they experts on living with aphasia. So, we created some video trainings, and some of them were for people with aphasia and family members to learn more about the research process, and some were for researchers about communication supports role dynamics, and plain language. Because, you know, most researchers have never been trained in doing this kind of collaborative research. So that conference was held in October 2018. And after a two-day meeting, 11 research teams were formed. And you were there, Katie. KS: Yes! Project BRIDGE was a career changing experience for me. I had invited two of our Lansing Area Aphasia Support Group members, Chris and Ruby, to join me, and we flew down to Florida together. I think from that beginning of travelling together to a conference set a stage for something different. Actually, Chris's sister, who lived in Florida joined us at the conference too. None of us really knew what to expect, but from the very beginning, we all knew this was different. At the conference, I remember just having my mind blown that there were over 100 people attending the conference- many who had aphasia or were family members whose lives were impacted by aphasia. One of my favorite parts was when we were in our teams, I had a team about storytelling and aphasia, and everyone was brainstorming on research questions. The training, the collaboration, the energy, it was really impactful. I'd love for you to tell our listeners more about Project BRIDGE. JH: So, after that conference, we were very happy that these research teams were formed and there was so much energy. And I want to say that, you know, from the very beginning, before we even got funding, we had an advisory team that was made up of people with aphasia, families, clinicians, and researchers. And so, after the conference and a little bit of follow up with our teams. The whole advisory team was so excited, and we there was so much momentum, and we knew we wanted to keep Project BRIDGE going. So, we applied for a second round of funding from PCORI. And with the second round of funding, we created what we call a research incubator. And we were able to create four regional centers around the United States because we knew there are many people who wanted to participate, but who cannot travel across country to a conference. So, we started Project BRIDGE as a research incubator in January 2020. Our mission was to train 48 people with aphasia, family members, clinicians, and researchers on stakeholder engaged research and get them connected to a collaborative multistakeholder research team. Katie, you are one of the regional coordinators in Michigan yourself for the Midwest, so you know how busy we got! KS: Oh yes, busy is an understatement. Suma Devanga from Western Michigan University and I were the Midwest Bridge Regional Coordinators. We had so much interest we just kept meeting with various stakeholders, holding trainings, connecting people with research teams. Definitely Project BRIDGE was the place to be! JH: All the regional centers were very busy. At the end of two years, we had three times as many people sign up to participate than we planned, and we trained 25% more people than we planned. Many more stakeholder-engaged research teams have been formed, and they're studying topics like the effects of yoga on aphasia. The yoga team actually started in the original 2018 conference. And, you know, check it out, maybe we can share some links to a couple of their publications, because it's a very productive team. KS: Absolutely , we'll put we'll put the links to that and some of the other things you've mentioned in the show notes. JH: Great. Another team that has been influenced by Project BRIDGE is aphasia games for health. There's more than one team now working on mental health interventions for people with aphasia. We also have a couple of teams working on different aspects of friendship and aphasia. One team is a collaborative team working on how to run aphasia groups. I mean, isn't that great? Get the people with aphasia to run a study on the best way to run the aphasia groups, right? It makes total sense. We've got lots of teams working, and we've had several different presentations at various conferences. And, you know, please stay tuned in the coming months and, and years, because more and more the work will get to a point where it'll be out in different publications. When I look back at the work that we did with the Sarasota Aphasia Group, and the questions that they came up with, I'm so overjoyed that many more of them are now being addressed because people with aphasia, care partners, clinicians are being involved in not just coming up with the questions but planning and actually doing the research. KS: Powerful stuff! This is all very exciting. But there must be some challenges… JH: Definitely, there's definitely challenges. First of all, you know, most researchers who are active today have not been trained in this kind of research. They were not trained in their doctoral program, to sit down with people who have expertise in a completely different area. They may have been trained to collaborate with people who are more or less like them. But that is a very different game. So, one thing that I think we'd like to do in the future is help foster the incorporation of the skills needed to do this kind of research into doctoral training programs. When we talk to researchers who have gotten into this, like you. We find that this is a recommendation that many people come up with. Another challenge of this kind of work is that it takes more time. It is time consuming. It takes time to involve people who come from a different background. And it doesn't matter if they are people with aphasia, a community partner, whoever they are, when they have a different background, then an academic researcher, that's going to take more time, and it's really, truly an investment. That is an issue for this kind of work. Another challenge or risk is as there are more incentives for in involving stakeholders of different types into the research process, there's always a risk of tokenism. So, if that starts becoming rewarded in some way, like through funding, then there's a risk that, you know, stakeholders are up serving on advisory boards, so it looks like they're involved, but they're not really, truly collaborators or really involved. So that is a risk I think that we're going to run, especially in the future. But you know, honestly, I think that's a risk that we run in our clinical work, too. Sometimes we don't mean to be to be tokenistic. But I think when we ask our clients a general question, like, “What would you like to work on in therapy?” You know, our heart is there, we want to involve the client. But that's a question that the client is not really prepared to answer in that form. Most of our clients, probably, they never been in therapy, they don't know what therapy is in the first place. They don't even know how to start thinking about that question. If we don't take extra steps to seek out their perspective, and what's important to them, that that's a little bit tokenism too. You know, we don't mean it to be, but it really kind of is, I think. We need to ask specific questions; we need to use tools that we have. For example, Aphasia Access now has the Life Interests and Values cards, which is a fabulous way of getting the idea of clients' priorities for therapy, in an aphasia friendly way. I think the other thing for clinicians for our clinical work is when we do ask questions of our clients, and they give us the answer, I think we have to do a better job at taking them at their word. Because I think sometimes, if the answer is not quite what we think it should be, or we're a little surprised by the answer, we're very likely to attribute insight, problem solving issues, motivation, issues, whatever it is, into that client's response, when perhaps, that that is their answer for them. And you know, they are the experts on themselves. KS: Yes, that's such great perspective and food for thought. I think we really need to listen and embrace what our clients put forth with ideas for how to work on goal areas and be open to receiving the goals and the ideas that they that they have. Even if it takes us a little off road from where we typically go. How can we help them explore and develop and operationalize their ideas? And I think it is challenging, it's new territory for us as clinicians and research but I think once we're open to this, I mean, honestly, sky's the limit. And the cool thing is that we as researchers get to learn and grow alongside our clients as well. Jackie, this has been such a thoughtful and great conversation. The time has just flown by. But as we wrap up today, do you have any final thoughts? JH: Well, you know, a lot of times we hear people say, “I'm no expert”, and Project BRIDGE has really taught me and showed all of us involved I think that a few things. Clinicians might not feel like experts around researchers, but they are experts about what they do and the clinical process. People with aphasia and care partners probably don't feel they don't feel like experts around researchers or clinicians, but in point of fact they are experts about themselves and their own lives and, and what's important, and what we can best do to fit into those priorities. So, I think that we've learned from Project BRIDGE that a researcher or a clinician who exudes cultural humility. You know, we might not feel like experts in front of clinicians or people with aphasia and care partners. So, I think we need to acknowledge, we're all experts on ourselves and our little corner of the world, what we do all day, and other people are experts on other things. And hopefully, we don't impose that onto other people and that we can just collaborate with each other. When some kind of research is going on, that might potentially affect something that a clinician routinely does, or how a person with aphasia is living, or the kind of therapy they're going to get, etc. We need to be willing to step up and contribute to a collaborative team. You know, probably not every kind of research in the world is a perfect fit for this kind of stakeholder engaged research. But a lot of what we do in aphasia, I think, and especially things that are important to members of Aphasia Access, would be better, more effective and more efficiently done with a collaborative team. We need everyone's expertise to change things for the better. When we do this kind of collaborative research, it speeds up how fast the research gets used in practice settings. So, it benefits people faster, because it's more effective. So, we need people to be aware of this and get involved. Project BRIDGE, fortunately, is now supported by Nova Southeastern University. So, it's not going away just because the funding ended in this year. And we are continuing to help people, whether they be researchers, clinicians, people with communication disabilities, or family members to get going on stakeholder engaged research. We still have our video trainings, And, coming soon, we'll be offering customized research team trainings. I invite everyone to please check out our website, www.projectbridge.online You can sign up for our newsletter and we post various resources that are helpful tools. KS: Thanks, Jackie. I'll be sure to put all of your contact information and Project BRIDGE as well as some articles on stakeholder engaged research in the show notes. Thank you, Jackie. you've given us lots of food for thought and inspiration for action during the conversation. But I also just want to say, thank you for your forward thinking and helping us in the world of aphasia get on this stakeholder engaged research train. Project BRIDGE is a great conduit for who knows what's to come. JH: Well, thank you, Katie. And, and thanks again, for this opportunity to talk about this effort. You know, there's so many people around the United States who are participating in this, I could have spent the whole podcast just probably listing their names, but that might not be too engaging. KS: It's a big posse, Project BRIDGE! JH: It's very big. Broadly, I definitely want to acknowledge them, even though I can't acknowledge everyone by name. Everyone's doing such exciting work and people are finding their own paths through this, which is what we need. I didn't say it earlier, but the idea of incorporating people living with communication disabilities into the research really springs out of my own personal experience with disability and in life. And it's such a privilege for me to meld my personal experience into things that hopefully will help others too. So, thank you very much. On behalf of Aphasia Access, we thank you for listening to this episode of the Aphasia Access Conversations Podcast. For more information on Aphasia Access and to access our growing library of materials go to www.aphasiaaccess.org If you have an idea for a future podcast topic email us at info@aphasiaaccess.org. Thanks again for your ongoing support of Aphasia Access. Resources Referenced in Episode Project BRIDGE www.projectbridge.online Email: flaaphasia@gmail.com Twitter @ProjectBridge3 Facebook @bridgeresearch Instagram @projectbridge2 Dr. Jackie Hinckley - Jh988@nova.edu PCORI Engagement Resources: https://www.pcori.org/engagement/engagement-resources Project BRIDGE (and resources) on PCORI: https://www.pcori.org/research-results/2020/building-bigger-bridge-research-incubator-network-pcor-communication-disabilities Project BRIDGE Published Abstract: https://www.frontiersin.org/10.3389/conf.fnhum.2019.01.00030/event_abstract Examples of Stakeholder Engaged Research Project with Sarasota Aphasia Community Group: https://www.tandfonline.com/doi/full/10.3109/09638288.2013.829528 Team Yoga - 1: https://pubs.asha.org/doi/10.1044/2020_PERSP-20-00028 Team Yoga - 2: https://pubmed.ncbi.nlm.nih.gov/34797684/ Aphasia Games for Health: https://www.aphasiagamesforhealth.com/ Canadian Institutes of Health Research Patient Engagement in Research Resources https://cihr-irsc.gc.ca/e/51916.html Ethics in Patient Involvement: Hersh, Israel, & Shiggins 2021 https://www.tandfonline.com/doi/full/10.1080/02687038.2021.1896870 Goal Setting Resources for Aphasia Live Interests Values Cards (LIV! Cards) https://www.aphasiaaccess.org/livcards/
Dr Harvey Max Chochinov, Canadian psychiatrist and expert in issues around palliative care, chats with me about misperceptions, unconscious biases, and the effect on patient care. He notes, “These issues of bias aren't just about palliative care – they are relevant to *anyone* who becomes a patient at some point in their life!” I found Dr Chochinov's insights and research intriguing, and you can look him up at dignityincare.ca or read his work here https://liebertpub.com/doi/epdf/10.1089/jpm.2022.0075 For more information on Best Life Best Death please visit our website at www.bestlifebestdeath.com Follow us on our social channels to receive pertinent and helpful resources on death, grieving, and more at: Facebook: www.facebook.com/bestlifebestdeath Instagram: www.instagram.com/bestlifebestdeath
Pioneer Network: Changing the Culture of Aging, Care and Support
Kim Warchol, an occupational therapist and the President and Founder of Dementia Care Specialists at Crisis Prevention Institute (CPI) joins Penny Cook to discuss the power of person-centered care, especially for those who identify as LGBTQ+. CPI is a member of the Pioneer Partner Network. Kim and Penny talk about how to empower the broader team (families, clients/residents and staff working together) to work together to support our elders and those living with dementia and focus on their behavioral and emotional wellness.
------------------Support the channel------------ Patreon: https://www.patreon.com/thedissenter PayPal: paypal.me/thedissenter PayPal Subscription 1 Dollar: https://tinyurl.com/yb3acuuy PayPal Subscription 3 Dollars: https://tinyurl.com/ybn6bg9l PayPal Subscription 5 Dollars: https://tinyurl.com/ycmr9gpz PayPal Subscription 10 Dollars: https://tinyurl.com/y9r3fc9m PayPal Subscription 20 Dollars: https://tinyurl.com/y95uvkao ------------------Follow me on--------------------- Facebook: https://www.facebook.com/thedissenteryt/ Twitter: https://twitter.com/TheDissenterYT This show is sponsored by Enlites, Learning & Development done differently. Check the website here: http://enlites.com/ Dr. Lars Sandman is Professor of Healthcare Ethics at Linköping University, and Director at National Centre for Priorities in Health, in Sweden. His research area is organizational ethics in healthcare, focusing on priority setting and ethical analysis of healthcare methods. He is the author of A Good Death: On the Value of Death and Dying. In this episode, we talk about ethics in healthcare. We talk about organizational ethics in healthcare, and the questions it deals with. We discuss Person Centered Care and Personalized Medicine. We talk about healthcare priority settings, and the example of plastic surgery. We discuss patient involvement in health policy development and in medical decisions. We talk about how people think about withholding and withdrawing treatment for cost‐effectiveness reasons. Finally, we discuss end-of-life decisions, and ask if there is such a thing as a good life, and if people should be allowed to choose how and when they die. -- A HUGE THANK YOU TO MY PATRONS/SUPPORTERS: KARIN LIETZCKE, ANN BLANCHETTE, PER HELGE LARSEN, LAU GUERREIRO, JERRY MULLER, HANS FREDRIK SUNDE, BERNARDO SEIXAS, HERBERT GINTIS, RUTGER VOS, RICARDO VLADIMIRO, CRAIG HEALY, OLAF ALEX, PHILIP KURIAN, JONATHAN VISSER, JAKOB KLINKBY, ADAM KESSEL, MATTHEW WHITINGBIRD, ARNAUD WOLFF, TIM HOLLOSY, HENRIK AHLENIUS, JOHN CONNORS, PAULINA BARREN, FILIP FORS CONNOLLY, DAN DEMETRIOU, ROBERT WINDHAGER, RUI INACIO, ARTHUR KOH, ZOOP, MARCO NEVES, COLIN HOLBROOK, SUSAN PINKER, PABLO SANTURBANO, SIMON COLUMBUS, PHIL KAVANAGH, JORGE ESPINHA, CORY CLARK, MARK BLYTH, ROBERTO INGUANZO, MIKKEL STORMYR, ERIC NEURMANN, SAMUEL ANDREEFF, FRANCIS FORDE, TIAGO NUNES, BERNARD HUGUENEY, ALEXANDER DANNBAUER, FERGAL CUSSEN, YEVHEN BODRENKO, HAL HERZOG, NUNO MACHADO, DON ROSS, JONATHAN LEIBRANT, JOÃO LINHARES, OZLEM BULUT, NATHAN NGUYEN, STANTON T, SAMUEL CORREA, ERIK HAINES, MARK SMITH, J.W., JOÃO EIRA, TOM HUMMEL, SARDUS FRANCE, DAVID SLOAN WILSON, YACILA DEZA-ARAUJO, IDAN SOLON, ROMAIN ROCH, DMITRY GRIGORYEV, TOM ROTH, DIEGO LONDOÑO CORREA, YANICK PUNTER, ADANER USMANI, CHARLOTTE BLEASE, NICOLE BARBARO, ADAM HUNT, PAWEL OSTASZEWSKI, AL ORTIZ, NELLEKE BAK, KATHRINE AND PATRICK TOBIN, GUY MADISON, GARY G HELLMANN, SAIMA AFZAL, ADRIAN JAEGGI, NICK GOLDEN, PAULO TOLENTINO, JOÃO BARBOSA, JULIAN PRICE, EDWARD HALL, HEDIN BRØNNER, DOUGLAS P. FRY, FRANCA BORTOLOTTI, GABRIEL PONS CORTÈS, URSULA LITZCKE, DENISE COOK, SCOTT, ZACHARY FISH, TIM DUFFY, TRADERINNYC, AND MAX BEILBY! A SPECIAL THANKS TO MY PRODUCERS, YZAR WEHBE, JIM FRANK, ŁUKASZ STAFINIAK, IAN GILLIGAN, LUIS CAYETANO, TOM VANEGDOM, CURTIS DIXON, BENEDIKT MUELLER, VEGA GIDEY, THOMAS TRUMBLE, AND NUNO ELDER! AND TO MY EXECUTIVE PRODUCERS, MICHAL RUSIECKI, ROSEY, JAMES PRATT, MATTHEW LAVENDER, SERGIU CODREANU, AND BOGDAN KANIVETS!
At the core of person-centered care is the person. And despite all the limitations dementia can bring, caregivers must remember that the person is still in there. So how do we reach them? Don Wendorf is a psychologist of 40 years who retired to become a full-time caregiver. He's learned that focusing on a patient's competencies – what they can still do – helps them feel safe, loved, and useful, while helping caregivers feel less frustrated and better handle their emotions. It's a great lesson for those who are at wits' end, which can be a daily experience for many of us. Don't forget to subscribe, download, and review to share your thoughts about the show! To find out more about Bobbi and Mike or the inspiration behind this podcast, Rodger That, head over to rodgerthat.show. ***************************************** Rodger That is produced by Missing Link—a podcast media company that is dedicated to connecting people to intelligent, engaging and informative content. Also in the Missing Link line-up of podcasts, is The Designated Drinker Show —a high-spirited show featuring craft cocktails and lively banter with the people who create (and quaff) them. Now, if you are looking for a whole new way to enjoy the theatre, check out Between Acts—an immersive audio theatre podcast experience. Each episode takes you on a spellbinding journey through the works of newfound playwrights—from dramas to comedies and everything in between.
We find out that the hot topic of person-centered care is actually decades old. Alisa Tagg, the Association Director of the National Association of Activity Professionals, talks with us about how this conversation has changed over time and the new ways that we can address it. Alisa gives great insight into why residents gravitate towards certain issues in the community, and how you can leverage that to stand out to prospective residents.
SLP – this podcast may help you meet your continuing education requirements. Access Relias Academy to review course certificate information. Is neurodiversity considered a normal variation? How can you modify your interactions and the environment to accommodate the needs of neurodiverse people? What is your role in advocating for these individuals in a healthcare setting to promote optimal communication? In this episode, we talk with Dr. Pamela Smith, a professor of speech-language pathology at Bloomsburg University of Pennsylvania, about how the healthcare team can support the needs of neurodiverse older individuals. (00:30) Introduction (01:24) Neurodiversity: A Normal Variation (02:39) Description of Neurodiversity (05:30) Neurodiversity Acceptance (11:38) Neurotypical Privilege (14:19) Person First Language (18:09) Aging and Neurodiversity (23:40) Neurodiversity Diagnosis in Late Life (25:06) Screening (25:43) Person-Centered Care (28:08) SLP's Role with Neurodiverse Older Adults (32:37) Documentation (37:03) Communication Recommendations for Healthcare Facilities (46:09) Comparison to Approaches with Neurodiverse Children (48:22) Practice-Based Evidence (49:42) Conclusion The content for this course was created by Pamela A. Smith, Ph.D., CCC-SLP, ASHA Fellow, FNAP. The content for this course was created by Susan Almon-Matangos, MS/CCC-SLP Here is how Relias can help you earn continuing education credits: Access your Relias Library offered by your employer to see course certificate information and exam; or Access the continuing education library for clinicians at Relias Academy. Review the course certificate information, and if eligible, you can purchase the course to access the course exam and receive your certificate. Learn more about Relias at www.relias.com. Legal Disclaimer: The content of Stretch: Relias Rehab Therapy Education is provided only for educational and training purposes for healthcare professionals. The educational material provided in this podcast should not be used as medical advice to treat any medical condition in either yourself or others. Resources Blog by an individual diagnosed with autism later in life (“Old Lady with Autism”): https://oldladywithautism.blog/ Blog post on neurotypical privilege (Enright, 2021): https://medium.com/artfullyautistic/neurotypical-privilege-690f0e14d370 Downloadable tests from the University of Cambridge Autism Research Centre: https://www.autismresearchcentre.com/tests/ Healthcare toolkit from Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) to improve healthcare access and quality for adults on the autism spectrum: https://autismandhealth.org/ Thinking Person's Guide to Autism, useful resources that apply across the life span. http://www.thinkingautismguide.com/p/resources.html
ResourcesLearn more about the Value Toolkit: www.diabeteseducator.org/practice/value-toolkitRead the Value Toolkit Paper: https://doi.org/10.2337/cd21-0089
Our guest today is one of the world's leading experts in designing for a population that is too often overlooked and misunderstood.Jane Rohde believes in a global cultural shift toward de-institutionalized senior living communities. As Principal as JSR Associates, she is putting people at the center of her practice – For Jane, this means more than just the senior living residents, but also the staff and the community at large. Today, Jane Rohde shares a vision for how a more blended, empowering, and richer senior living and community experience could look. Click here to get your FREE copy of the Imagine a Place journal: Connect with Doug below: On Instagram: @Douglas_ShapiroOn LinkedIn: https://www.linkedin.com/in/doshapiro/ By Email: dshapiro@ofs.comEmail Imagine a Place: imagineaplace@ofs.com
Music plays an important role in the lives of people from all walks of life and from cultures around the globe. It connects us to memories, places, people, and situations. It's also a source of enjoyment and recreation: a distraction from trials ad tribulation, boosts mood and can help soothe feelings of loneliness.. Many of us, but especially older adults, experienced the feelings of isolation and loneliness during COVID. This was a particular tragedy for nursing home residents but also for those older adults living in assisted living residences or alone at home in the community. There is ample evidentiary research supporting the contention of the importance that music represents in counteracting these lonely feelings. Dan Cohen is unwavering in his commitment to personalized music. He believes strongly that, like any other prescribed treatment, it's essential for addressing the symptoms that result from loneliness, including depression, falls, cognitive decline and high blood pressure. There's no need to wait, it's integral to Planning by Choice, Not By Crisis. Beyond individuals, families, and policy makers, Dan Cohen advocates for healthcare educational programs teaching the importance that personalized music represents in a person's life, in their relationship to others, their responses to situations and especially for persons with dementia, which was the basis of his Sundance Film Festival Audience Choice Award winning documentary 'Alive Inside'.
Music plays an important role in the lives of people from all walks of life and from cultures around the globe. It connects us to memories, places, people, and situations. It's also a source of enjoyment and recreation: a distraction from trials ad tribulation, boosts mood and can help soothe feelings of loneliness.. Many of us, but especially older adults, experienced the feelings of isolation and loneliness during COVID. This was a particular tragedy for nursing home residents but also for those older adults living in assisted living residences or alone at home in the community. There is ample evidentiary research supporting the contention of the importance that music represents in counteracting these lonely feelings. Dan Cohen is unwavering in his commitment to personalized music. He believes strongly that, like any other prescribed treatment, it's essential for addressing the symptoms that result from loneliness, including depression, falls, cognitive decline and high blood pressure. There's no need to wait, it's integral to Planning by Choice, Not By Crisis. Beyond individuals, families, and policy makers, Dan Cohen advocates for healthcare educational programs teaching the importance that personalized music represents in a person's life, in their relationship to others, their responses to situations and especially for persons with dementia, which was the basis of his Sundance Film Festival Audience Choice Award winning documentary 'Alive Inside'.
This month, Occupational Therapist Stephanie Phares joins Ann Garton for a discussion about stress. A 2002 graduate of St. Ambrose, Phares worked for 15-years on a mental health unit. She helps listeners understand the different kinds of stressors and how to work through them.HOST: Ann Garton, DNP, RN, FPCC, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityABOUT: www.sau.edu/ann-gartonGUEST: Stephanie Phares, MOTABOUT: www.sau.edu/stephanie-pharesConnect with us! Let us know what topic YOU want us to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.
This month, Ann Garton introduces us to CASI, the Center for Active Seniors. She is joined by its president and CEO, Laura Kopp, for a discussion about the importance of our older adult population socializing and staying active. HOST: Ann Garton, DNP, RN, FPCC, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityABOUT: www.sau.edu/ann-gartonGUEST: Laura Kopp, President and CEO of CASI - The Center for Active Seniors, INC. Learn more about CASI. Connect with us! Let us know what topic YOU want us to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.
This month, Ann Garton explores how the approach to patient care is changing and what needs to be done to create more meaningful connections between providers and their patients.HOST: Ann Garton, DNP, RN, FPCC, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityABOUT: www.sau.edu/ann-gartonGUEST: Dr. Lorraine Dickey, MD, MBA, FAAP, Founder and CEO of The Narrative Initiative, LLCABOUT: www.thenarrativeinitiative.com/bio-lorraine-dickeyGUEST: Vivian Foulke, RN, BSN, IBCLC, Executive Director of The Narrative Initiative, LLCABOUT: www.thenarrativeinitiative.com/bio-vivian-foulkeLearn more about the Narrative Initiative.Connect with us! Let us know what topic YOU want us to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.
This month, meteorologist and climate communicator Eric Sorensen joins host Ann Garton for a discussion about how climate change is affecting our health.HOST: Ann Garton, DNP, RN, FPCC, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityABOUT: www.sau.edu/ann-gartonGUEST: Eric Sorensen, MeteorologistABOUT: Eric Sorensen is a Meteorologist and Climate Communicator whose work on local television has spanned 20 years. Originally from Rockford, Illinois he just completed a seven-year stint as the Senior Meteorologist at WQAD-TV in the Quad Cities.Eric is a fellow of the Society of Environmental Journalists and is three-ti
HOST: Ann Garton, MSN, RN, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityABOUT: www.sau.edu/ann-gartonGUEST: Angi Tracy, BA, Director of the Carol Center, Vera French Community Mental HealthABOUT: Angi is an alumna of St. Ambrose University with a degree focus on Criminal Justice and a minor in Psychology. Angi has provided care to those in our community with mental health needs for 30 years; 25 at Vera French. She began her journey as direct support staff at the previous Frontier program. Then, she moved into leadership roles such as case manager, case management supervisor, and the Carol Center Program manager. Most recently, this past year, she became the Carol Center Director. GUEST: Brandy, Member of the Carol Center, Vera French Community Mental HealthABOUT: As a member of the Carol Center, Brandy has reached many milestones towards wellness and is very active at the center. She has been able to successfully gain added responsibilities since joining the Carol Center which she enjoys stating, "they give me purpose." These important supporting roles include administrative duties, cleaning, being a greeter at the Carol Center, and supporting her peers. She also proudly represents her peers at the table of the Advisory Board for the Carol Center. About the Carol Center: Vera French Carol Center Outreach Program assists in reducing incarcerations, hospitalizations, homelessness and illicit drug and alcohol use by offering a safe and supportive place for the most vulnerable, chronically mentally ill people to seek supportive services. The Carol Center and its staff teach and assist clients with:-Coping skills-Health needs-Development of leisure and avocational interests-Socialization-Medication management-Community integration-Money management-Nutritional mealsThe Carol Center is located at: 808 N. Harrison StreetDavenport, Iowa 52803Phone: (563) 322-5276Connect with us! Let us know what topic YOU want us to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.
Paul Krauss MA LPC speaks with Peter Whitehouse, MD-PhD and Daniel George, PhD MSc about their new book "American Dementia: Brain Health in an Unhealthy Society." This is a conversation you are not going to want to miss. Dr. Whitehouse and Dr. George are two experts coming together to make a well-researched and passionate argument about rethinking brain health and the current healthcare system through an "eco-psychosocial lens." From examining Alzheimer's as NOT a single disease (such as Polio) but a complex, heterogenous condition based on multiple studies, to examining the pharmaceutical industry's role in shaping the narrative about the syndrome--Dr. Whitehouse and Dr. George flex their substantial knowledge base in critically examining the American view on Dementia from multiple medical, scientific, and social lenses. Further, Dr. Whitehouse and Dr. George discuss how the misunderstanding of Alzheimer's has mostly locked in efforts to treat it to a single pill, instead of reflecting on the research into the strides made in the healthcare industry with Person Centered Care, Life-Long education, Age-Friendly Communities, and basic preventative measures that communities may implement as ways to prevent and help those suffering from Alzheimer's. The conversation runs from the micro (the disease and what the research has demonstrated) to the macro (the broader implications of our current society and how it functions). Previously, the two contributed to the book: The Myth of Alzheimer's: What You Aren't Being Told About Today's Most Dreaded Diagnosis. Buy their new book here. (American Dementia) More information: www.americandementia.com Facebook: https://www.facebook.com/themythofalzheimers Twitter: @drgdanielgeorge / @WhitehousePJDoc Psychology Today Blog: https://www.psychologytoday.com/us/blog/american-dementia Daniel R. George, PhD, MSc, is a medical anthropologist and an associate professor in the Department of Humanities and the Department of Public Health Sciences at Penn State College of Medicine. Peter J. Whitehouse, MD, PhD, is a professor of neurology at Case Western Reserve University and a professor of medicine at University of Toronto. He is cofounder of Intergenerational Schools, a network of unique public, multi-age community schools in Cleveland, Ohio. Are you a parent of an adult that is having major difficulties? Is there conflict in your family about how much help to give your adult child? Preview the NEW On-Demand Online Video Course for the Parents of Young Adults by Paul Krauss MA LPC Want to get trained in EMDR Therapy? Looking for some great advanced EMDR therapy trainings? Check out EMDR Training Solutions and Register Today! Use the code INTENTIONAL at checkout, and get $100 Dollars OFF at Checkout! Remember, from my research, EMDR Training Solutions is the most affordable independent training on the market! EMDR Training Solutions: for all of your EMDR training needs! Paul Krauss MA LPC is the Clinical Director of Health for Life Counseling in Grand Rapids, home of The Trauma-Informed Counseling Center of Grand Rapids. Paul is also a Private Practice Psychotherapist, EMDRIA Consultant in Training (CIT), host of the Intentional Clinician podcast, Behavioral Health Consultant, Clinical Trainer, and Counseling Supervisor. Paul is now offering consulting for a few individuals and organizations. Paul is the creator of the National Violence Prevention Hotline (in progress) as well as the Intentional Clinician Training Program for Counselors. Questions? Call the office at 616-200-4433. If you are looking for EMDRIA consulting groups, Paul Krauss MA LPC is now hosting weekly online and in-person groups. For details, click here. For general behavioral and mental health consulting for you or your organization. Follow Health for Life Counseling: Instagram | Facebook | Youtube Original Music: ”Shades of Currency" [Instrumental] from Archetypes by PAWL (Spotify) "I Remember in the Time of Dangerous Groups" by ttypes (Spotify)
In this episode, Ann Garton welcomes Kit Evans-Ford for a discussion about supporting survivors healing from violence and other traumatic experiences.**TRIGGER WARNING**....This episode may be emotionally difficult for survivors of domestic abuse, sexual violence, or other traumatic experiences. Host: Ann Garton, MSN, RN, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityAbout: www.sau.edu/ann-gartonGuest: Kit Evans-Ford, DMin, Founder of Argrow's HouseAbout: https://argrowshouse.org/pages/founderLearn more about Argrow's House: https://argrowshouse.org/pages/our-storyConnect with us! Let us know what topic YOU want to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.
Pioneer Networks creates resources and advocates for policy change at the state and federal level to improve the quality of nursing homes, assisted living, and life plan communities. Learn how the non-profit provides resources for senior living communities to create cultures of care by changing the paradigm of aging. About Penny Penny is the President and CEO of Pioneer Network, a non-profit organization dedicated to changing the culture of aging and empowering a network of senior living and care communities by fostering person-directed practices and environments. For 30 years, Penny has provided education, training, and advocacy related to the care and support of older people. She worked with the Long-term Care Ombudsman Program in the Denver region, Telligen, the Quality Improvement Organization for Medicare beneficiaries in Colorado, and Colorado Access, a Colorado-based non-profit health plan. With Pioneer Network, she is working to fulfill her life-long goal of changing the culture of care and support for people as we all grow older. She is passionate about helping us value and respect our own aging as well as those that we serve. Key Takeaways To implement person-centered care, transformation needs to happen at an individual level along with organizational transformation—breaking down siloed departments and flattening the hierarchy so front-line staff are empowered. Ageism stems from fear of aging and plays out in senior living in a variety of ways. Pioneer network is working on a project with Virginia Commonwealth University, along with Leading Age and The Eden Alternative, to develop an ageism toolkit for senior living communities. Senior living communities should look at marketing materials to determine whether they might be ageist. Are you only showing people that are vibrant and able to walk without assistive devices? Are you not showing anybody in a wheelchair?
In this episode, Ann Garton welcomes Lauren and Sarah from The Project of the Quad Cities to discuss barriers to care and health equity in the LGBTQ+ community. Host: Ann Garton, MSN, RN, CNE, Director of the Institute for Person-Centered Care at St. Ambrose UniversityAbout: www.sau.edu/ann-gartonGuest: Sarah Stevens, Community Impact Officer at The Project of the Quad CitiesAbout: Sarah spent a decade in leadership within corporate healthcare and left in 2016 to pursue work that aligned with her passion and purpose. She comes to The Project after five years as a frontline leader in various capacities in the nonprofit sector. This is Sarah's second time on the IPCC Podcast. She was the guest host for episode three, "All Bodies are Good Bodies." Guest: Lauren Gil Hayes, LMSW, Director of Supportive Services at The Project of the Quad CitiesAbout: Lauren stewards resources, medical access, and holistic case management to people living with HIV in the Quad Cities area. Lauren has worked at the intersection of social services, care work, and radical imagination for just over a decade, and holds an MSW from the University of Chicago's School of Social Service Administration. Lauren also believes in the healing power of pastries and bakes whenever possible.Connect with us! Let us know what topics YOU want us to explore!Email: ipcc@sau.eduFacebook: facebook.com/SAUIPCC/Twitter: @sau_ipccWeb: www.sau.edu/institute-for-person-centered-careSt. Ambrose University is located in Davenport, Iowa, USA.
In this episode, Virginia Naeve and Steve O'Leary are joined by husband and wife team, Don Wendorf and Lynda Everman who discuss their journeys as caregivers for their loved-ones with dementia. They introduce the concept of Person-Centered Care and help us understand how empathy is critical to dementia care. What would like to hear about next? Email us at mwitbrac@uci.edu.
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