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4 episodes with early onset dementia
4 episodes with early onset dementia
2 episodes with early onset dementia
2 episodes with early onset dementia
2 episodes with early onset dementia
3 episodes with early onset dementia
4 episodes with early onset dementia
2 episodes with early onset dementia
2 episodes with early onset dementia
Leah explores the potential connection between Alzheimer's disease and tinnitus in veterans, highlighting how both conditions—often overlooked as related—may actually share neurological links. Drawing from multiple scientific studies, Leah presents compelling evidence that tinnitus could be an early indicator or risk factor for cognitive decline and neurodegenerative diseases like Alzheimer's and Parkinson's, especially in veterans exposed to chronic stress and noise. She emphasizes the importance of discussing symptoms with medical providers and seeking support through accredited VA claims professionals, especially in complex disability cases.
Experts say reducing the amount we drink can reduce our risk of dementia. Today - one couple's inspiring story. Find out more about The Front podcast here. You can read about this story and more on The Australian's website or on The Australian's app. This episode of The Front is presented by Claire Harvey, produced by Kristen Amiet with assistance from Stephanie Coombes, and edited by Josh Burton. The multimedia editor is Lia Tsamoglou, and original music is composed by Jasper Leak. See omnystudio.com/listener for privacy information.
Charlie and Emma Cowell (The Island Love Song) discuss the Greek island of Hydra, reactions from readers in regards to IVF and polyamory plot threads, early onset dementia, and the Parthenon sculptures. A transcript is available on my site General references: Leonard Cohen's Bird On A Wire The photo of the lady in shadow that Emma took The Pirate Bar, Hydra Books mentioned by name or extensively: Emma Cowell: One Last Letter From Greece Emma Cowell: The House In The Olive Grove Emma Cowell: The Island Love Song Emma Cowell: Under The Lemon Tree Buy the books: UK || USA Release details: recorded 9th July 2024; published 25th November 2024 Where to find Emma online: Website || Twitter || Facebook || Instagram Where to find Charlie online: Website || Twitter || Instagram || TikTok Discussions 02:20 The inspiration - the Greek island of Hydra 04:10 The conflict in the book, siblings, and how being on an island makes it more dramatic 06:04 The island as a character 07:41 Why it was important to explore sisterhood and non-chosen family 13:40 Writing Georgia in all her chaos and character progression 18:24 Ella and having to live with your ex having wrote a song about you 20:18 Emma tells us about the songs in the book (they exist!) and her musical background 24:32 Leonard Cohen's influence in terms of Hydra, and Hydra's lack of technology 27:51 Emma's use of the island of Dokos and writing about researching Greek food at The Pirate Bar 34:29 Emma discusses IVF journeys, parenthood, and readers who contact her to thank her for the way she includes fertility and romantic issues. We then move on to a time in Greece where there were very problematic adoptions 40:00 The concept of twin flames 42:32 Emma's inclusion of early onset dementia 48:27 Why Emma set her 'present day' storyline in 2016 - student days and mobile phone usage 51:15 Emma's thoughts on returning the Elgin marbles/Parthenon sculptures 54:05 What's next - the book to be named Under The Lemon Tree. This morphs into a longer conversation about how Emma writes and plots 58:52 What Emma cut from The Island Love Song Disclosure: If you buy books linked to my site, I may earn a commission from Bookshop.org, whose fees support independent bookshops
Emma Stratton is the founder of Punchy and author of Make it Punchy. In this conversation, Emma shares her journey from being a creative writer to successful entrepreneur. She discusses the challenges she faced in finding her passion and starting her own business. How she overcame money mindset issues. And the significance of following your heart and finding your purpose in order to unlock true success.Emma opens up about:When she was in a job that she knew was 100% wrong for herThe panic attack revolving around money that she experienced when she quit her jobThe crippling self-doubt she experienced in the lead-up to running her first strategy sessions with an all-male leadership teamThings to listen for:(00:00) Intro(03:29) How coming from an immigrant family has influenced Emma(06:42) Emma ignored her parents' advice and joined the SaaS world(10:41) How Emma started her own gig(14:43) Working in a toxic job and how life coaching helped Emma move forward(25:11) Overcoming major life obstacles and making bold decisions(27:34) Emma's leap into solopreneurship and how she faced her fears when quitting her job(31:55) Discussing deep-seated money mindset issues and how Emma overcame them(49:05) How energy work helped Emma better understand herself and grow her businessResources:Connect with Emma:LinkedIn: https://www.linkedin.com/in/emma-stratton-punchy/ Punchy: https://punchy.co/ Make It Punchy Book: https://punchy.co/make-it-punchy-book/Connect with Andrew:LinkedIn: https://www.linkedin.com/in/andrewcapland/ Hire Andrew as your coach: https://deliveringvalue.co/get-started Thanks to our amazing sponsors!Learn more about Appcues: http://appcues.com/value Learn more about Navattic: http://navattic.com/value
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Hey, Careblazers! Today, we're diving into a topic that many of you have asked about: Early Onset Dementia. It's surrounded by myths and often misunderstood, so let's clear the air! What exactly is it? Who's at risk? How does it differ from Late Onset Dementia? And what unique challenges does it pose? We're covering all of this and more in a way that's easy to understand and packed with the insights you need. #EarlyOnsetDementia #DementiaExplained #DementiaSupport #CaregivingTips
Trevor Wood chats to Sarah Moorhead about his new police thriller The Silent Killer, early on set Alzheimer's, family, humour, homelessness and Glastonbury (see pic). THE SILENT KILLER: THE CLOCK IS TICKING. THERE'S NO ESCAPE.DCI Jack Parker has faced down hardened villains and raving, drug-addled lunatics. He's disarmed a machete-wielding psychopath and broken devastating news of a loved one's death more times than he can remember.With a serial killer stalking the Newcastle streets and one of his closest colleagues lying in the mortuary following a hit and run he thinks things are about as tough as they've ever been. But he should know that trouble always comes in threes.Jack is about to face the biggest challenge of his life, one that will end his career and destroy his family: Early Onset Dementia.As he does everything he can to hide his deteriorating condition from his family and colleagues, Jack believes that the serial killer is haunted by his childhood while his own memories are built on increasingly shifting sands.The race against time to save lives, including his own, has begun.TREVOR WOOD has lived in Newcastle for 30 years and considers himself an adopted Geordie, though he still can't speak the language. He's a successful playwright who has also worked as a journalist and spin-doctor for the City Council. Prior to that he served in the Royal Navy for 16 years joining, presciently, as a Writer. Trevor holds an MA in Creative Writing (Crime Fiction) from UEA. His first novel, The Man on the Street, won the CWA John Creasey (New Blood) Dagger, the Crimefest Specsavers Best Crime Debut Award and was shortlisted for the Theakston's Old Peculier Crime Novel of the Year. He is represented by Oli Munson at AM Heath. Trevor is a founder member of the Northern Crime Syndicate and a volunteer cook at the People's Kitchen in Newcastle, which feeds more than 200 members of the homeless community every day. Recommendations Jimmy Johnstone Daniel Gibbs Dispatches from the Land of Alzheimer's Wendy Mitchell One Last ThingSarah Moorhead is Liverpool through and through, she is the author of 2 novels WITNESS X and most recently THE TREATMENT. Sarah is a black belt in kickboxing, is a teacher, youth group leader and regularly interviews authors at waterstones in Liverpool.Editor: Paul Burke writes for Monocle Magazine, Crime Time, Crime Fiction Lover and the European Literature Network, Punk Noir Magazine (fiction contribution). He is also a CWA Historical Dagger Judge 2024. His first book An Encyclopedia of Spy Fiction will be out in 2025.Music courtesy of Guy Hale KILLING ME SOFTLY - MIKE ZITO featuring Kid Anderson. GUY HALEProduced by Junkyard DogCrime TimeCrime Time FM is the official podcast ofGwyl Crime Cymru Festival 2023CrimeFest 2023CWA Daggers 2023& Newcastle Noir 20232024 Slaughterfest, National Crime Reading Month, CWA Daggers
Dr Keith Suter tells Luke how George Clooney has spoken out and made strong suggestion that Joe Biden needs to step down from the Democrats ahead of the presidential election.See omnystudio.com/listener for privacy information.
In this video, we explore practical strategies to improve brain health. See the protocol products below ⤵️ ⤵️
PJ talks to Kathleen who says once you get to know what is happening to you, you adapt and welcomes the new Activity Lodge that was opened in Bessboro, Blackrock Hosted on Acast. See acast.com/privacy for more information.
Benedetto who shares his important story about being diagnosed with Early Onset Dementia at 42 and Dementia Care expert Gary Joseph LeBlanc from the Dementia Spotlight Foundation . Listen in and learn how David and Gary are inspiring other and creating Healing Ties by sharing their stories and critical resources to help those with faced with this diagnosis be better prepared for their own personal journey.
Keri Kitay with the story of her devoted, outgoing mum Terry, who was diagnosed with early-onset Alzheimer's disease at 54 years old
Frank Jennings, was diagnosed in 2020 with Alzheimer's aged only 56, he joins us with his wife Angela & Samantha Taylor, Head of Risk, Compliance and Dementia Advisory Services with the Alzheimer's Society of Ireland.
As we are out of our fifth season, big things are happening. Yeah, Michelle is overhauling her career, and Fawn is grabbing her dog and heading across country for a three-month adventure in her van. But that's just for starters. Let's talk about hair. CONNECT WITH FAWN ✩ Website https://www.fawngermer.com/ ✩ LinkedIn https://www.linkedin.com/in/fawngermer/ ✩ Facebook - https://www.facebook.com/FawnGermerAuthor ✩ YouTube -https://www.youtube.com/@FawnGermerAuthor CONNECT WITH MICHELLE ✩ Coaching Website https://www.michellebrigman.com ✩ Customer Experience Consulting Website https://www.advantagecx.com/ ✩ LinkedIn https://www.linkedin.com/in/michellebrigman/ ✩ Facebook - https://www.facebook.com/TheBraveAdvantage ✩ Instagram https://www.instagram.com/michellebrigmanexeccoach/ ✩ Twitter https://twitter.com/M_Brigman ✩ YouTube - https://www.youtube.com/channel/UCDQumVLGqd7KdV2Z9ESyalg EDITED & PRODUCED BY AJ Aligonero https://ajaligonero.weebly.com/ SPONSORED BY WOMEN'S LEADERSHIP NETWORK https://www.womensleadershipnetwork.com * * * * * NEW TO FAWN & MICHELLE? READ MORE HERE: About - Hard Won Wisdom https://hardwonwisdom.com/?page_id=21 WE LOVE MESSAGES FROM OUR LISTENERS! SEND IT HERE: Fawn@FawnGermer.com ; Michelle@MIchelleBrigman.com #HardWonWisdomPodcast #PodcastAdvice #SelfImprovementTips #LifeLessons #PersonalGrowth #Inspiration #Motivation #Wisdom #Success #Mindfulness #Gratitude #Choices #Change #Reflection #Adventure #SelfDiscovery #Wellness #PositiveMindset #Empowerment #GoalSetting #OvercomingChallenges #Happiness #Contentment #MindsetShift #consciousliving
Here is the first of the SWM Research episodes, Senior Lecturer in the Department of Social Work and MSc Social Work Programme Director at Royal Holloway, University of London - Stefan Brown joins us in this episode. Stefan qualified as a social worker in the 90s and transitioned to higher education over 13 yrs ago. In today's episode, we hear about his work in the field and his PhD research on Early onset dementia. Stefan also shared updates on the Mental Capacity Act. Look out for Stefan's part II, when he shares details on his work in the Race & Mental Health space. Do share your feedback at adosylv@gmail.com Join our Fb community: https://www.facebook.com/groups/412169436067530 Youtube channel: https://www.youtube.com/channel/UCB6IJzP9UzJn2B5oXclbnOwSee omnystudio.com/listener for privacy information.
Jared Milrad chats with award-winning filmmakers Pei Lin Tan and Ee Ming Toh about their powerful documentary, LADY!, which tells the story of a devoted wife who wrestles with reclaiming her sense of self as early onset dementia eats away at her husband's identity. The filmmakers open up about caregiving, dementia, and the stigmas attached to both, as well as why they decided to make this important project.We depend on your generous support of Rewriting Hollywood to empower new creative voices and share urgently important stories with the world. Make a tax-deductible donation today: movikarma.org/donate
Watch the show on YouTube and get the full experience.Follow us TikTok and Instagram for short social clips.In this episode, Joe and Curtis talk about the brand name SPAM, mayonnaise sandwiches, early onset dementia, pork and beans, and a one story house with yellow walls and doors. They also cover topics such as class basketball, Bobby Knight's chair-throwing incident, the Stanford band list of words, and the importance of Earth's core. There's a lot happening in this episode so thanks for listening!Check out these numbers below which show just how much support you've given us since we started.Podcast Episodes: ~1,000 listens/episodesTikTok: Just over 3M viewsInstagram: ~300,000 views and counting
Deb Jobe, who was diagnosed with early onset-dementia at age 53, and Sarah Lovegreen, Alzheimer's Association Programs VP, join Carol Daniel in studio talking about Alzheimer's facts and figures.
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Discovering if you have early onset dementia is not a direct medical process. First, the differences in you are probably first only notices by you. Second, after that working with the medical field to determine if I had cognitive or other challenges, I found out that determining cognitive changes are not well understood at the GP or PCP level. Last, it takes a series of test to determine if you have dementia. Here are the early warning signs. #dementia #earlyonsetdementia --- Support this podcast: https://podcasters.spotify.com/pod/show/ted-at-wanderinglite/support
Author Sandi Paris on her husband's early onset dementia.
Our 1000th All Black, Carl Hayman, pulled on the jersey for the first time against Samoa in 2001. He went on to wear the Silver Fern for 45 tests, then played in Europe until he retired in 2015 But it took years to understand the impact all those matches had on his brain. He'd been enduring headaches, depression, fits of anger, frustration. Last year he was diagnosed with early onset dementia, and probably CTE - a fatal brain disease associated with repeated traumatic brain injuries. Carl Hayman is one of the more than a hundred former players taking action against World Rugby for failing to protect them. Carl and his partner Kiko Matthews join us now.See omnystudio.com/listener for privacy information.
Steve Thompson is a former England rugby player and he played in every England match during the 2003 Rugby World Cup. But today, age 43, Steve remembers nothing about that final. And in 2020 he was diagnosed with early-onset dementia - and probable chronic traumatic encephalopathy. In today's episode Krishnan talks to him about his diagnosis, the impact it's had on his mental health and his memoir, ‘Unforgettable'. if you have been affected by any of the issues covered in that report, you can find a range of places to seek help by visiting channel4.com/support Produced by: Joe Lord-Jones and Freya Pickford
Bell Family Chiropractic (865-383-7730) in Knoxville, TN is one of the few alternative wellness clinics in the state that offers hyperbaric oxygen therapy. Research shows that the therapy is a viable treatment for early stages of dementia. Learn more at https://bellfamilychiro.com/alternative-alzheimers-treatment-hbot-knoxville (https://bellfamilychiro.com/alternative-alzheimers-treatment-hbot-knoxville)
Today on Brainwaves, we chat to Dementia Advocate, and immediate past Chairperson of the Dementia Australia Advisory Committee (DAAC) Phil Hazell. Phil who was diagnosed with young onset dementia at age 55, shares his own experience and journey as an advocate including being one of the first to be partnered with a Dementia Assistance Dog named Sara. The DAAC's purpose is to elevate the voices of people living with dementia on a national platform (the first of its kind in Australia, and third in the world). Aside from being involved in numerous advisory groups, national events, Phil has also been a guest for Studio 10 and ABC TV Breakfast, speaking about dementia and discrimination, and the response to Royal Commission into Aged Care Quality and Safety. https://www.alz.org/au/dementia-alzheimers-australia.asphttps://www.dementia.org.au/https://www.assistancedogs.org.au/ https://twitter.com/PhilHazell1
What if your kind, gentle adult son started exhibiting bizarre behavior, so bizarre his wife got a restraining order and he ended up in prison? Our guest in this conversation, Robin, knows this terror as she lost her son little by little to an undiagnosed disease – Early Onset Dementia. Robin's son, Justin, gradually changed from a kind, engaged husband, father and son into a man his family didn't recognize. He lost his family and was imprisoned before doctors finally diagnosed him with frontotemporal dementia or young onset dementia. This is a heart-breaking story, but Robin offers light in the darkness.
What if your kind, gentle adult son started exhibiting bizarre behavior, so bizarre his wife got a restraining order and he ended up in prison? Our guest in this conversation, Robin, knows this terror as she lost her son little by little to an undiagnosed disease – Early Onset Dementia. Robin's son, Justin, gradually changed from a kind, engaged husband, father and son into a man his family didn't recognize. He lost his family and was imprisoned before doctors finally diagnosed him with frontotemporal dementia or young onset dementia. This is a heart-breaking story, but Robin offers light in the darkness.
This mother and daughter duo were both career Army Officers until they were medically retired - Jean following a Traumatic Brain Injury, Lita with Early Onset Dementia. This gutsy pair started podcasting four years ago and continue to this day. PodcastDX showcases weekly interviews with patients, providing experience-based medical insight in a peer-to-peer format.Their podcast is a labor of love and they don't draw income from it at this time, aside from a few affiliate links. They feel that it gives them both a purpose and a reason to get up every day.About the same time they started the podcast, Lita and Jean began writing their book, "Lita & Jean: Memoirs of Two Generations of Military Women."As you'll hear, Lita and Jean see themselves as being in a privileged position, having been retired from the military. There is so much actionable wisdom in this conversation!In this episode:Lita & Jean's careers in the military, prior to their diagnosesWhy they got into podcasting and, eventually, writingTheir tips for other writers and budding chronicpreneursLita's experience of being part of the PGP communityFull notes and resources at https://patientsgettingpaid.com/podcast/lita-jean-marie-podcasting-writing
On June 15, 2021, 5 of our authors came together for our first Virtual Q&A called “Everything You've Always Wanted to Know About Living with Early Onset Dementia but Were Afraid to Ask.” We talked about their diagnoses, and they answered questions regarding their daily lives, how they cope with their condition, how they manage to keep a positive attitude, and so much more. You will learn a lot! For a transcript, please email marianne@alzauthors.com. Let's get started! Our Panelists: Michael Ellenbogen was diagnosed with early onset Alzheimer's at the age of 49, after experiencing symptoms for 10 years. This led to an early retirement from his career in information technology. Following his diagnosis, he has become an outspoken advocate for those with dementia and has written articles and blog posts in addition to his book, From the Corner Office to Alzheimer's. He has appeared on podcasts and television and has testified before the United States Congress. Gerda Saunders was the Associate Director of and taught in the Gender Studies Program at the University of Utah; she also taught gender and literature courses in the English Department. At the age of 61, she was diagnosed with cerebral microvascular disease, a precursor to dementia. She retired a year later. She maintains an active lifestyle, writing and speaking about the disease in a variety of settings. She is the author of Memory's Last Breath: Field Notes on My Dementia, and blogs at Living With My Dementia. Wendy Mitchell started a blog, Which Me Am I Today? after being diagnosed with young-onset Alzheimer's and vascular dementia in 2014. She was 58. Her blog eventually became a memoir, Somebody I Used to Know. Wendy remains active in the dementia community, participating in workshops and lectures across England. She has a very active Twitter presence, which she calls her lifeline. Dr. Jennifer Bute, FRCGP worked in Africa as a doctor before working as a GP (Family Doctor) for 25 years and was involved in medical education. She was diagnosed with dementia ten years ago. She speaks at conferences and on radio and has been involved in television programs raising awareness and understanding of dementia. She passionately believes more can be done to improve both the present and the future for those living with the disease. Her book Dementia from the Inside: A Doctor's Personal Journey of Hope is her story and explains these principles. Her website GloriousOpportunity.org includes many videos where she discusses different aspects of the condition, and she also blogs on Facebook at Glorious Opportunity. Peter Berry ran the family's timber business for decades before being diagnosed with early onset Alzheimer's at age 50. He immediately stopped working and fell into a deep depression. After some time, he realized that he still had a life to live, overcame his depression, and now fills his days with cycling across the English countryside with his friends, and advocating for those with dementia in his community and on social media. To date he has raised more than £20,000 for dementia charities through cycling challenges. He tells his story in Slow Puncture: Living Well with Dementia, with Deb Bunt. Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
#024. Gigi Gabriel is the Education and Outreach Manager at Alzheimer's Arkansas. Her caregiving journey began around 10 years ago, when she became a caregiver to her mother with Younger Onset Alzheimer's. She was a Pastry Chef, under 30 with small children at home. Like many caregivers, she made the decision to leave her career to care for her mother. The past few years, she has been very active with the Alzheimer's Association, Arkansas Chapter. She has served as Mission Chair for the walk and is currently the AIM Ambassador. She was also chosen to speak about her caregiving experience at their yearly forum in Washington, DC. Through AIM, she was able to testify in front of the Arkansas House and Senate about her experience as a caregiver. The bill passed, and now we have bill HB1434- it creates an Alzheimer's and dementia advisory council which provides the implementation of a state Alzheimer's plan. Her passion to help caregivers brought her to Alzheimer's Arkansas, where she continues to educate and advocate for caregivers.Gigi Gabriel, CDPAlzheimer's ArkansasEducation and Outreach Manager201 Markham Center Dr.Little Rock, Ar 72205P: 501-224-0021 ext.202Alzark.orgTheba's website Theba's Youtube channel
In this week's episode, Geoff is talking to Juanita Hughes who was a Finalist in the 2021 Queensland Community Achievement Awards. Juanita Hughes was diagnosed with younger onset early-stage behavioural variant frontotemporal dementia in mid-2019 at the age of 54. She has since dedicated herself to advocacy. Juanita is a Dementia Australia Dementia Advocate, a Dementia Australia Advisory Committee member, and National Older Persons Reference Group member. She is creating dementia-friendly communities and is leading the development of the Western Brisbane Dementia Alliance with great community support, including all 3 levels of government representatives. See omnystudio.com/listener for privacy information.
For the first time in full-form, Effingham-area attorneys Roy and Kaye Dent share their courageous story in managing Roy's diagnosis of early-onset dementia at the age of 51. Roy and Kaye talk about the diagnosis and its deep impact on their personal and professional life.Follow Sean on Instagram and TikTok: @seansandiferLike Us on Facebook: facebook.com/theseansandifershowJoin Our Email List: theseansandifershow.com
On this episode, Joy Loverde highlights the importance of helping people in the early stage of dementia to continue working and living their best life. Join us as we talk about the issues facing younger people who are getting diagnosed with dementia – How can employers create a dementia-friendly workplace? Does HR have a plan for such patients? Are there protections provided by the Americans with Disabilities Act? These are all important questions to ask as we seek to create a healthy dialogue and an environment that helps patients live with this disease. Don't forget to subscribe, download, and review to share your thoughts about the show! To find out more about Bobbi and Mike or the inspiration behind this podcast, Rodger That, head over to rodgerthat.show. ***************************************** Rodger That is produced by Missing Link—a podcast media company that is dedicated to connecting people to intelligent, engaging and informative content. Also in the Missing Link line-up of podcasts, is The Designated Drinker Show —a high-spirited show featuring craft cocktails and lively banter with the people who create (and quaff) them. Now, if you are looking for a whole new way to enjoy the theatre, check out Between Acts—an immersive audio theatre podcast experience. Each episode takes you on a spellbinding journey through the works of newfound playwrights—from dramas to comedies and everything in between.
We are humbled to host Kenneth Kosik, professor of Neuroscience at UC Santa Barbara on this week's Colombia Calling podcast, the final for 2021. Kenneth S. Kosik, M.D. is an American neurologist, author, researcher and professor in neuroscience at the University of California, Santa Barbara. Kosik provided much of the original data on the largest family in the world with a genetic form of Alzheimer's disease located in Antioquia, Colombia. And this is where our interest lies. We discuss the "paisa mutation," which has appeared in Antioquia and certain genetic mutations which cause early onset Alzheimer's disease in the region and that have been traced all the way back to the Iberian peninsula and the year 1500! This is a revealing and fascinating episode, one which we feel is fitting to end 2021.
This week I'm talking to Tony Copeland-Parker about how to boost your brain health and mental health, and the role physical fitness plays in those.Tony was a professional pilot for thirty-seven years, but when in his early fifties he needed a heart-valve replacement, and his partner Catherine was diagnosed with early onset Alzheimer's, they decided to sell their home, retire from their jobs, and become nomads, running marathons and half-marathons all over the world. Since then, he and his partner Catherine have traveled to eighty-two different countries and have run at least a half-marathon in thirty-five countries and on all seven continents! Tony shares his inspiring story with us and shows us how through simple lifestyle changes and fulfilling experiences, we can learn to change our future through meaningful moments that spark joy.RESOURCES:Join The Better Than Happy Zone MembershipRunningwithCat.com
Award-winning sports journalist Dylan Cleaver chats with Staf about the remarkable piece he wrote on former All Black Carl Hayman's admission of early-onset dementia.
Dr. Pedro Rosa-Neto is a Professor in the Departments of Neurology & Neurosurgery and Psychiatry at McGill University and the Director of the McGill University Research Centre for Studies in Aging. He was recently named Adjunct Professor at the Department of Biomedical Science and Engineering at the Gwangju Institute of Science and Technology. He is a Clinical Neurologist with expertise in the quantification of dementia pathophysiology and preclinical diagnosis of Alzheimer's disease using biomarkers. He has been recognized by the Fonds de la recherche en santé du Québec (FRSQ) as a Senior Scholar and has a leadership role in the Team II Canadian Institutes of Health Research (CIHR-CCNA). Dr. Rosa-Neto will speak about early onset dementia, focusing on how and when it is diagnosed, the specific issues faced by those receiving the diagnosis, whether any measures can be taken to delay progression and possible treatments on the horizon. Original Air Date: July 7, 2021. McGill Cares is a webcast series designed to support informal caregivers. During candid, 30-minute interviews with leading experts, Claire Webster, Alzheimer Care Consultant and Founder of the McGill Dementia Education Program, explores topics related to caring for a loved one with dementia. For more information about the McGill Dementia Education Program or to make a donation, please visit www.mcgill.ca/dementia. If you have specific topics or questions that you would like us to address during our weekly webcasts, please email us at dementia@mcgill.ca.
Welcome back to our latest Thursday Specials episode. This episode was originally released on the 7th of September 2020 and was part of our Dementia Series were we aimed to raise awareness of dementia and experiences of it across the world. The series started with a conversation with Kate Swaffer (Humanitarian & Chair/CEO/Co-founder of Dementia Alliance International). Additional Information: Kate's books “ What The Hell Happened to My Brain?: Living Beyond Dementia” (Amazon) “Diagnosed with Alzheimer's or Another Dementia” (Apple Books) Kate's daily blog - https://kateswaffer.com/daily-blog/ Dementia Alliance International (DAI) Public Engagement Article - "Public engagement workshop: How to improve medicines for older people?" Follow Kate on Twitter & Instagram (@KateSwaffer) on Facebook (@Kate.Swaffer) & LinkedIn. Episode and dementia series image credit: Scicommics https://www.instagram.com/science_commics/ Thank you for listening! If you liked the episode, please give us a five-star rating and review. Buy a Coffee for Monday Science Episode image credit: www.unsplash.com Subscribe, follow, comment, leave a review and get in touch ! Submit your questions or send your voice note questions (up to 30 seconds) here . https://www.mondaysciencepodcast.com/ e. info@mondaysciencepodcast.com --- Send in a voice message: https://anchor.fm/mondayscience/message
On June 15, 2021, 5 of our authors came together for our first Virtual Q&A called “Everything You've Always Wanted to Know About Living with Early Onset Dementia but Were Afraid to Ask.” We talked about their diagnoses, and they answered questions regarding their daily lives, how they cope with their condition, how they manage to keep a positive attitude, and so much more. You will learn a lot! For a transcript, please email marianne@alzauthors.com. Let's get started! Our Panelists: Michael Ellenbogen was diagnosed with early onset Alzheimer's at the age of 49, after experiencing symptoms for 10 years. This led to an early retirement from his career in information technology. Following his diagnosis, he has become an outspoken advocate for those with dementia and has written articles and blog posts in addition to his book, From the Corner Office to Alzheimer's. He has appeared on podcasts and television and has testified before the United States Congress. Gerda Saunders was the Associate Director of and taught in the Gender Studies Program at the University of Utah; she also taught gender and literature courses in the English Department. At the age of 61, she was diagnosed with cerebral microvascular disease, a precursor to dementia. She retired a year later. She maintains an active lifestyle, writing and speaking about the disease in a variety of settings. She is the author of Memory's Last Breath: Field Notes on My Dementia, and blogs at Living With My Dementia. Wendy Mitchell started a blog, Which Me Am I Today? after being diagnosed with young-onset Alzheimer's and vascular dementia in 2014. She was 58. Her blog eventually became a memoir, Somebody I Used to Know. Wendy remains active in the dementia community, participating in workshops and lectures across England. She has a very active Twitter presence, which she calls her lifeline. Dr. Jennifer Bute, FRCGP worked in Africa as a doctor before working as a GP (Family Doctor) for 25 years and was involved in medical education. She was diagnosed with dementia ten years ago. She speaks at conferences and on radio and has been involved in television programs raising awareness and understanding of dementia. She passionately believes more can be done to improve both the present and the future for those living with the disease. Her book Dementia from the Inside: A Doctor's Personal Journey of Hope is her story and explains these principles. Her website GloriousOpportunity.org includes many videos where she discusses different aspects of the condition, and she also blogs on Facebook at Glorious Opportunity. Peter Berry ran the family's timber business for decades before being diagnosed with early onset Alzheimer's at age 50. He immediately stopped working and fell into a deep depression. After some time, he realized that he still had a life to live, overcame his depression, and now fills his days with cycling across the English countryside with his friends, and advocating for those with dementia in his community and on social media. To date he has raised more than £20,000 for dementia charities through cycling challenges. He tells his story in Slow Puncture: Living Well with Dementia, with Deb Bunt. Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.
At any age, a dementia diagnosis is difficult to grasp... But a dementia diagnosis at age 42? This episode of Healing Ties features special guest David Benedetto who shares his important story about being diagnosed with Early Onset Dementia at 42 and Dementia Care expert Gary Joseph LeBlanc from the Dementia Spotlight Foundation . Listen in and learn how David and Gary are inspiring other and creating Healing Ties by sharing their stories and critical resources to help those with faced with this diagnosis be better prepared for their own personal journey.
At any age, a dementia diagnosis is difficult to grasp... But a dementia diagnosis at age 42? This episode of Healing Ties features special guest David Benedetto who shares his important story about being diagnosed with Early Onset Dementia at 42 and Dementia Care expert Gary Joseph LeBlanc from the Dementia Spotlight Foundation . Listen in and learn how David and Gary are inspiring other and creating Healing Ties by sharing their stories and critical resources to help those with faced with this diagnosis be better prepared for their own personal journey.
This was both inspiring and informative. Alix is a fantastic bloke, and his positivity since revealing his condition, and the condition of others, has been unreal. It was a real pleasure to get to understand him, his story, but the changes he wants to see to make the game of Rugby (and other contact sports), safer for all, whilst making it more enjoyable to watch. Give www.headforchange.org.uk a look, and catch Alix on socials to see what crazy fundraisers he has coming up! Thanks always JBG Group Electrical, Ron Skinner & Sons, LT Scaffold, RUME Barbershop, and Tiny Rebel Brewery
Chris Wynn is an award-winning filmmaker and Alzheimer's advocate. Mr. Wynn documented his father's struggles with Alzheimer's Disease to produce an award-winning feature documentary for TVO called Forgetful Not Forgotten. He has since produced Much Too Young, a documentary about younger caregivers that was nominated for a Canadian Screen Award in 2017, and the web series A New Voice, Living Well with Dementia about a woman living with dementia in her late forties. His current work explores animated and augmented virtual reality for storytelling. Mr. Wynn will talk about his decision to return to Québec to care for his father and the impact it has had on his life. He will discuss early onset dementia and how it affects young caregivers, and share what he has learned from other caregivers that he has met through his filmmaking and advocacy work for the Canadian Alzheimer's Society. This free webcast is sponsored by Home Care Assistance. Original Air Date: July 29, 2020 McGill Cares is a weekly webcast series designed to support informal caregivers. During candid, 30-minute interviews with leading experts, Claire Webster, Alzheimer Care Consultant and Founder of the McGill Dementia Education Program, explores topics related to caring for a loved one with dementia. For more information about the McGill Dementia Education Program or to make a donation, please visit www.mcgill.ca/dementia. If you have specific topics or questions that you would like us to address during our weekly webcasts, please email us at dementia@mcgill.ca.
Tony Copeland-Parker was a professional pilot/manager for 37 years. When he retired, he began writing his blog, PlayHard-HaveFun.com. Since then, he and his partner Catherine have traveled to 82 different countries. They have run at least a half-marathon in thirty-five countries and on all seven continents. When Tony and his partner Catherine were in their 50’s, they found that he needed a heart-valve replacement, and she had early-onset Alzheimer’s. They both had a history as endurance athletes, so their reaction to the news was to sell their home, retire from their jobs, and become nomads, running marathons and half- marathons all over the world. “It's amazing the number of conversations that we've had with folks where you will be sitting around the table, talking, and they start to notice something a bit odd, you know, about Catherine,” Tony explains. “So she just straight-up says, ‘I just want you to know I've early onset dementia and I might be a bit confused when you ask me a question.’ The conversation then turns to others talking about their aunt, uncle, mother, or sister who has dementia. This disease permeates throughout society.” Many people with early onset are in their 40s and 50s. They have families, careers, or are even caregivers themselves when Alzheimer's disease strikes. “A lot of people look at early onset Alzheimer's as a death sentence. But they are forgetting about the 12 years or so that they are going to have after the diagnosis. Catherine’s been like this for seven years, and you know, she's going be around for quite a while,” Tony says. “I've heard that she's probably going to die from something else, so we might as well just go ahead and make the best of it, and that's what we're trying to do.” Don't forget to subscribe, download, and review to share your thoughts about the show! To find out more about Bobbi and Mike or the inspiration behind this podcast, Rodger That, head over to rodgerthat.show.
Early onset Alzheimer’s can be an enormously difficult diagnosis to come to terms with. Many people who are diagnosed are in the middle of a career, raising a family, and pursuing new ventures when this disease unexpectedly disrupts life as they know it. New studies have found that an early diagnosis could lead to more positive experiences with treatment and there are ways to slow the rate of progression so patients can maintain a sense of normalcy for as long as possible. Still, there is no cure for Alzheimer’s disease, so anyone who has received a diagnosis will have to re-evaluate many things in their life in order to best prepare for what’s to come. On today’s episode of All Home Care Matters, we’ll be discussing all you need to know about early onset Alzheimer’s. We know how difficult this disease can be to face – so we want you to know that we are here to support you through the ups and downs of this new and trying journey. This episode will be a little different. In addition to discussing what early onset Alzheimer’s is and how it affects the brain, what symptoms to look for and what options are for treatment, we’ll also talk about the tougher stuff. How to speak to your kids about a diagnosis. How to handle friends, family, and a possible stigma that you might face outside of your home. How to plan ahead financially and legally, while you’re still in the early stages of the disease. We know that this is a diagnosis that interrupts your world. That’s why it’s so important to take the time to prepare for the future and implement a healthy lifestyle with a treatment plan. That way, you can focus on spending time with your family and taking on new and cherished experiences, instead of spending all of your time worrying and stuck in the dark about what comes next. Many people with early on-set Alzheimer’s feel alone after a diagnosis. Watching friends and family continuing to live their lives, getting to focus solely on their careers and family, can cause a great deal of resentment and even depression. One key difference, on an emotional level, between Alzheimer’s and early onset Alzheimer’s is that those experiencing the former are more likely to have peers in similar situations – whether friends, friends of friends, or a community in a senior living facility. For those with early onset, the world can feel like it’s coming to a halt for you and only you. That’s why I want to start by saying this: even though it may not feel like it now, you are not alone. According to alz.org, it’s estimated that about 200,000 people in the United States have early onset. That’s 5% of the 5 million Americans living with Alzheimer’s. If you are at all interested, in can be enormously helpful to meet others who are facing similar circumstances. There are support groups available for patients with the diagnosis as well as counseling services, gathering events, and more. Look into your local community to see what resources might be available to you. Surrounding yourself with others who know what you are going through could help you to feel supported, encouraged, and not alone. Now, before we get any further, let’s get into the basics. When anyone under the age of 65 is diagnosed with Alzheimer’s disease, it’s considered early onset, or younger onset. A person can be in their thirties, forties, or fifties. More rarely, a person might get the disease as early as their twenties. In the brain, early onset does not look different from standard Alzheimer’s. In both cases, the brain is no longer able to function normally because of nerve cell death and tissue loss caused by a build-up of protein fragment clusters between nerve cells. At the same time, a dead nerve cell contains tangles – or twisted protein strands. The protein fragment clusters are known as plaques. When the plaques and tangles crowd the brain together, it caused mixed-up signaling that can trigger immune system cells, which consume the dead or dying cells and trigger inflammation. In the end, the brain is unable to properly process nutrients or other important supplies. That leads to cell death. The dead cells tend to crowd in the areas of the brain that affect thinking, planning, learning, and memory. That’s why Alzheimer’s patients eventually lose their memory altogether. To learn more about how Alzheimer’s affects the brain, check out our episode on understanding Alzheimer’s and dementia. While it is estimated that around 200,000 Americans are living with early onset, that number is likely even greater. The disease is often overlooked or misdiagnosed by doctors, who simply do not consider Alzheimer’s or dementia on their younger patients. Sometimes, a patient can get multiple misdiagnoses from multiple doctors before being diagnosed with early onset. This means that many people do not know they have the disease until they are already in the later stages. If you believe you may have the disease, receiving a diagnosis can be a painful and disheartening process. That’s why it’s so important to advocate for yourself and push your doctors to evaluate you for early onset if you are suffering from memory problems. If you are truly worried and your doctor is simply not considering early onset even after you specifically ask, make an appointment with an Alzheimer’s specialist. They are much more likely to give you comprehensive, conclusive evaluation. At the very least, they will help you to feel validated and comforted – which can mean the world after enough doctor appointments that felt like they were going nowhere. It’s important to note that early onset is not something you can take a test for like strep throat or the flu. It can only be diagnosed after a careful and drawn-out medical evaluation, in which the doctor will ask you a series of questions about your symptoms, memory, and quality of life, before making a definite diagnosis. Remember to be honest with your answers and share anything memory related, even if you feel it isn’t relevant, because too much information is always better than not enough – especially when going after a diagnosis that is difficult to come by at a younger age. There are two types of early onset Alzheimer’s. The first type is Common Alzheimer’s Disease, which is the most typical form among both early onset patients and patients 65 and older. This version of the disease progresses at much the same rate in younger patients as it does in older ones. Unfortunately, researchers have not yet determined what causes Common Alzheimer’s Disease, and there are no risk factors that might lead to the disease. Common Alzheimer’s early onset could happen to anyone. The other type is early onset familial Alzheimer disease. This is much rarer. Patients with this type of Alzheimer’s usually have a parent or parents that have also had the disease. A patient’s siblings and children have a 50/50 chance of getting the disease themselves at an atypically young age. A person who has two parents with the disease is at a higher risk than someone who only has one parent with it. Researchers have pinpointed two types of genes that influence a person’s likelihood to get familial Alzheimer’s disease. These are risk genes and deterministic genes. If a person has risk genes, then they have an increased chance of developing the disease, but it is not guaranteed. Risk genes include APOE-e4, APOE-e2, and APOE-e3. Those with APOE-e4 have a 40-65% chance of eventually being diagnosed with Alzheimer’s. According to alz.org, about 2% of the US population has this gene. Deterministic genes guarantee that a person will inherit Alzheimer’s. This type of gene is exceptionally rare – only a few hundred families have been found to pass it on worldwide. Deterministic genes lead to early onset Alzheimer’s for patients in the early 40’s to mid 50’s. Sadly, early onset cases tend to progress more quickly than standard Alzheimer’s in older patients. This is because in patients with early onset, the plaque and tangle build up tends to be much larger. Alzheimer’s expert Dr. Thomas Wisniewski explained to CBS news in 2016 that, “the pathology tends to be more extreme in early-onset. Many can deteriorate more quickly, so it is a much more aggressive disease…when you look at the pathology, it’s just like late-onset Alzheimer’s disease, but there’s just more of it.” This is the often-brutal reality for patients facing the early-onset form of this disease. However, because recent studies have found that early diagnosis can lead to better treatment options and a longer delay of progression, it’s essential that patients look for symptoms and report them to a doctor as soon as they notice any. This is especially true for people whose parents or siblings have had Alzheimer’s or early-onset, but it is also true for anyone else, since there is no known cause for the majority of these cases. Symptoms of early onset are quite similar to other versions of the disease. They include forgetting newly learned information, important dates, and even names of people close to them. If a person asks for information to be repeated multiple times on a semi-regular basis, this could be a sign. If a person is failing to remember something they used to know by heart – like a favorite recipe, hobby, or craft that they should be able to do with their eyes closed – that’s another sign. If a person is forgetting to pay their bills or stay on top of other important responsibilities, and gets confused and overwhelmed when they try, this is another sign. Other symptoms include wandering or getting lost, forgetting how you got from one place to another, losing track of dates, forgetting important events, having trouble socializing, struggling to remember certain words in conversation, vision issues or depth perception issues, poor judgement, and slight mood and personality changes. In the later stages, symptoms include major mood swings and drastic changes to personality, increased paranoia – particularly surrounding close friends, family members, and caregivers – difficulty speaking and swallowing, mobility issues, and severe loss of memory. If any number of these symptoms sound like you – don’t wait to book an appointment with an Alzheimer’s specialist. Again, the sooner you can get diagnosed, the better your options for treatment will be. Early diagnosis really is crucial to maintaining a normal quality of life for as long as possible. While early onset Alzheimer’s does not have a cure, there are treatment options that can slow the progression of the disease and help patients maintain a good quality of life for longer than if no treatment was implemented. Treatments usually consist of a mixture between medicines, physical activity, and healthy living. Common prescribed medications are Donepezil, Rivastigmine, Galantamine, and Memantine. Medicines can help a person for as long as months or even years, especially when combined with lifestyle changes. Healthy lifestyle choices for patients with early onset are quite similar to those with standard Alzheimer’s disease. This means making a consistent effort to care for your physical, mental, and emotional wellbeing. Alz.org recommends that patients find a physician that they truly trust and then build a relationship with them through regular check-ups. When your doctor is intimately familiar with your case, they will be more likely to notice any changes, even the subtle ones, that might require a change in treatment plan. At the same time, the more you trust your doctor, the more likely you are to call when you need guidance or have a medical related question. You need to come up with a diet and exercise routine that will keep you moving, alert, and energized. The healthier and stronger your body is, the better equipped your mind will be to delay the progression of this disease. You can work with your doctor to establish a diet and exercise plan that best fits your individual needs. There are also nutritionists, physical therapists, and personal trainers who specialize in Alzheimer’s patients. Be sure to work closely with an expert so you know that you are not over or under working yourself, and you are staying as healthy as possible. All Alzheimer’s patients should drink less alcohol and more water and eat more fruits and vegetables and less junk food. When it comes to exercise, it’s usually recommended that patients engage in mild-to-moderate routines that will increase endorphins and help the body and mind without over-exerting the patient. According to alz.org, “physical activity may help delay or slow decline in thinking skills, reduce stress, possibly improve symptoms of depression, and may even reduce the risk of falls. Some evidence also suggests that exercise may directly benefit brain cells by increasing blood and oxygen flow. Even stronger evidence suggests exercise may protect brain health through its proven benefits to the cardiovascular system.” The same site recommends trying exercises like aerobics, walking, biking, tennis, or even walking. Remember to consult your medical team before you engage in any exercise, though, because they will best know what you are capable of and what might help you the most. In addition to diet and exercise, mental stimulation can play a big role in strengthening your brain and slowing cognitive decline. Try taking a class, picking up a new hobby, playing board games, or reading. Anything to stimulate your brain and get you thinking and problem solving is beneficial. You also need to care for yourself emotionally. This is a diagnosis that can be devastating to live with, especially when you’re in the prime of your life, raising kids and engaging in a career. Early onset patients are liable to depression, anxiety, mood swings, and extreme feelings of loneliness. While you should certainly give yourself permission to feel whatever you need to during this difficult time, it is important to note that depression can actually lead to bigger health issues and even quicken the progression of your disease. To help with these feelings, you have many options. You can join a support group for other patients with early onset so you can be part of a community that understands what you are going through. You can meet with a counselor or therapist regularly – especially one that specializes in Alzheimer’s and dementia. You can take time every day to do something you love, just for you. You can spend more time outside on walks, exercising, or just enjoying the fresh air. You can meet with trusted friends and family members and confide your fears and worries to them. Early onset Alzheimer’s can hit so much harder when you are a parent in the middle of raising a family. Many early onset patients are young mothers and fathers who have to grapple with what their diagnosis will mean for their family. For some, this is the scariest part. No parent wants their child to go through grief, loss, or heartache of any kind – and to know that this disease will affect them can feel devastating. At the same time, many parents are left wondering if they will miss important milestones in their children’s lives or be able to be there for them as they grow up. Harboring these fears is a terrible thing for any parent to go through. By caring for your physical and emotional needs, you will more likely be in a better place to care for your children longer and stay strong for them when you want to be. As hard as it might feel, do not neglect your own needs. The more you care for yourself, the better equipped you’ll be to care for your children. Whether or not to talk to your child about your diagnosis will depend on a variety of factors – but ultimately, the decision is a deeply personal one that can only be made by you. How much you share might depend on your child’s age and what they are capable of digesting and understanding. Children and teenagers alike might respond with a myriad of emotions. These can range from confusion, sadness, anger, curiosity, worry, guilt, embarrassment, or even jealousy as they are having to share their attention with their struggling parent. Teenagers in particular might withdraw from family and friends, have a hard time in school, stay away from home because it is too hard to see their parent suffer, avoid inviting friends over, and easily jump to anger or even aggression. Remember that your child or teenager is grieving. This diagnosis means a loss of the way life used to be – and it is extremely heart wrenching for most children to watch their parents change and decline. Be patient with your child and give them space to feel how they need to. There are many ways you can help your child to cope with this diagnosis and their changing lives. Offering patience, love, and support can mean everything. When your child knows they can go to you or their other parent or caretaker with their questions and their big feelings, then they are less likely to seek an outlet elsewhere. It might help to arrange therapy or counseling for your child, or even group therapy for other kids who are going through the same thing. Just as building your own community is so beneficial, it will make children feel far less alone to know others can relate to them. Provide your children with a space for their feelings – whether through art, music, or journaling. Educate them about the disease and what they can expect as time goes on, so they are not taken by surprise as the condition worsens. Be open and honest with them. Family activities can also be enormously helpful, as they allow a child or teenager to hold onto a sense of family and stability – so they feel less lost and scared that they are losing their foundation. Activities can include walking, hiking, going to movies, playing or listening to music, playing board games. You can look through family photo albums together, read together, even do housework together. The more routine family time can be, the better. In the description of this episode, you’ll find further resources that can help you navigate parenthood with your new diagnosis. These include a list of common questions and answers, activity ideas, and advice for getting through those tough conversations. In addition to parenthood, you might be struggling with stigma from family and friends. Because early onset is so uncommon, you might find that those around you are getting impatient with you or acting frustrated when you are unable to do things as fast or as easily as you used to. To help with this stigma, make sure to educate your loved ones about your disease. Provide them with resources that will help them to understand what you are going through and what they can expect in the months and years ahead. You can even arrange a meeting with your care team and your loved ones, to answer any of their questions and explain your individual situation on a deeper level. In the early stages of the disease, it’s essential to plan ahead for the future. This means legal and financial planning, so your family is not left confused and lost when they need this information later on. You will likely feel daunted and overwhelmed when it comes to legal planning – so don’t be afraid to enlist the help of friends, family, and a lawyer to make sure that everything is taken care of and you are not having to carry this weight on your own. Begin by organizing all important legal documents to your name, making necessary updates, and putting a plan in place for future finances for your healthcare, long-term care, and will. Give someone you trust power of attorney for when you are no longer to make legal decisions. A person with power of attorney will be able to make decisions for you and sign for you on important documents. Make sure that this person is fully aware of everything you want and need for the future, so they can make sure to make decisions based on your own plans and hopes. Financial planning will include organizing documents and checking over your assets and debts, so you know exactly what you are responsible for down the road. Choose a family member, or family members, to help you with your financial plans when you are no longer able to. This person should have intimate knowledge about your finances and have your best interests in mind and in heart. Find out the care options available to you and what they might cost. Whether you choose a family caregiver, hired home care, a nursing home, memory home, or assisted living facility will depend on what you can afford and what you desire. Check your insurance and benefits. Patients with early onset Alzheimer’s disease will be eligible for Medicaid. You might also have long-term care insurance, life insurance, or other health insurance that can help you pay for care costs. If you are still working, see if your employer has any disability or early retirement benefits that might help you. It is recommended that people with memory issues stay in familiar surroundings, as strange places can quicken the progression of the disease. To learn more about choosing the right care, listen to our episodes on Alzheimer’s, dementia, and long-term care options. Early onset dementia is an extremely difficult diagnosis for anyone to face. The more you can prepare for the road ahead, though, the more you can focus on spending precious time with your friends and family and doing what you love, instead of worrying about an uncertain future. Start planning today for the road ahead. We want to thank you for joining us here at All Home Care Matters, All Home Care Matters is here for you and to help families as they navigate long-term care issues. Please visit us at allhomecarematters.com there is a private secure fillable form there where you can give us feedback, show ideas, or if you have questions. Every form is read and responded to. If you know someone is who could benefit from this episode, please share it with them. Remember, you can listen to the show on any of your favorite podcast streaming platforms and watch the show on our YouTube channel and make sure to hit that subscribe button, so you'll never miss an episode. On our next episode we will be welcoming several guests who will be sharing how they have remained engaged, active, and building friendships and socializing while quarantining during covid. This is an interview you won’t want to miss! Here are the resources used for this episode: https://www.alz.org/help-support/i-have-alz/younger-onset https://www.alz.org/alzheimers-dementia/what-is-alzheimers/younger-early-onset https://www.alz.org/alzheimers-dementia/what-is-alzheimers/causes-and-risk-factors/genetics https://www.alz.org/help-support/i-have-alz/live-well/taking-care-of-yourself https://www.alz.org/help-support/resources/kids-teens/for_parents_teachers https://www.alz.org/help-support/i-have-alz/plan-for-your-future/financial_planning https://www.alz.org/help-support/i-have-alz/plan-for-your-future/financial_planning https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20048356 https://www.hopkinsmedicine.org/health/conditions-and-diseases/alzheimers-disease/earlyonset-alzheimer-disease https://memory.ucsf.edu/genetics/familial-alzheimer-disease https://rarediseases.info.nih.gov/diseases/632/familial-alzheimer-disease https://www.cbsnews.com/news/pat-summitts-death-what-to-know-about-early-onset-alzheimers/
In this recap, Marla and Mary discuss the 35th episode of Elevate Eldercare where Susan Ryan sits down with her good friend and colleague, Mike Belleville. After a career in telecommunications and as a member of the Rhode Island National Guard for over a decade, Mike was diagnosed with early onset dementia. While devastating, Mike has not let the diagnosis define him. He currently serves on the board of directors for Dementia Action Alliance and the Council on Aging. Mike is adamant about using his voice to encourage and advocate for others and challenge beliefs and stigmas about people living with dementia. Marla and Mary take a deeper dive into Mike’s “Four Myths of Dementia.” He initially delivered that message at a Green House Annual Meeting in 2018 and recently updated it for a special presentation to Green House partners. Find out why a line from one of Mike’s favorite movies is his motto these days. And Mary talks about why a driving simulator created such a memorial moment for Mike and why you should never assume you know what might be meaningful to someone. Mike’s “Four Myths of Dementia” presentation: https://youtu.be/YS8KKGPrh-o
Susan Ryan sits down with her good friend and colleague, Mike Belleville. After a career in telecommunications and as a member of the Rhode Island National Guard for over a decade, Mike was diagnosed with early onset dementia. While devastating, Mike has not let the diagnosis define him. He currently serves on the board of directors for Dementia Action Alliance and the Council on Aging. He recently participated in a year-long dementia initiative hosted by The Green House Project, known as Best Life Impact, where he offered counsel and guidance to nursing home providers and care teams across the country to better equip them to support people living with dementia. Mike is adamant about using his voice to encourage and advocate for others and challenge beliefs and stigmas about people living with dementia. Mike, who is joined by his wife, Cheryl, in this episode, talks about the power of family and relationships in providing support, understanding, and acceptance. The couple describe the path they took to find hope and tangible solutions in their journey and the need for caregiver support and respite, as well as the impact of COVID-19 on routines, normalcy and vital human connections. Connect with Mike on LinkedIn: https://www.linkedin.com/in/michael-r-belleville-584b1b40 Find out more about the work of the Dementia Action Alliance here: https://daanow.org/
It's the October 14th, 2020 episode of WWE NXT live from the Capitol Wrestling Center on USA Network on the road to Halloween Havoc! On this episode... Kyle O’Reilly SPEAKS! NXT Tag Team Championship No. 1 Contendership to face Breezango: Danny Burch & Oney Lorcan vs Undisputed Era (Bobby Fish & Roderick Strong) Update on NXT Champion, Finn Balor Ember Moon returns Ashante “Thee” Adonis vs Jake Atlas, with run-ins from Legado del Fantasma & Isaiah “Swerve” Scott! Austin Theory vs Johnny Gargano Raquel Gonzalez & Rhea Ripley fight backstage Tommaso Ciampa sets his sights on Velveteen Dream after interfering in his match with KUSHIDA NXT Women’s Championship No. 1 Contendership to face Io Shirai: Candice LeRae vs Shotzi Blackheart, with an appearance from Indi Hartwell Xia Li & Boa demand a match Aliyah vs Toni Storm making her return to NXT Drake Maverick & Killian Dain vs Imperium, with a surprise run-in from Ever-Rise NXT North American Championship: Damian Priest vs Dexter Lumis, with run-in from Cameron Grimes Johnny Gargano & Candice LeRae cause chaos but NXT Commissioner William Regal & Shotzi Blackheart have a surprise in store for Halloween Havoc! Be sure to subscribe to Hamin Media Group on YouTube for all the latest original content, & follow us on social media for all the latest news! Facebook: Hamin Media Discussion Group Twitter: @HaminMediaGroup @TedTheManbeast @JammyMcIvor@BigRaysMinistry Dr. Ted can also be reached for bookings, business consulting, character development, voiceover work, & injury/rehab needs at bookthedoctor@gmail.com And of course we could not do any of this without our amazing sponsors. Be sure to check them out at the links below. Stevie Richards Fitness http://www.StevieRichardsFitness.com Zourdo's Olive Oil http://www.ZourdosOliveOil.com The Coffee Broaster's http://www.TheBroasters.com Pro Wrestling Tees http://www.ProWrestlingTees.com Rat Salad Review http://www.RatSaladReview.com Interested in becoming a sponsor on our growing podcast network? At over 2 million downloads & climbing, the value of your advertising dollars is well worth the investment when you sponsor with Hamin Media Group. Please send inquiries to HaminMediaGroup@gmail.com #HalloweenHavoc #WWENXT #ShotziBlackheart
Betsy Wurzel's guest on the show today is Candance Williams on her Mother's diagnosis of Frontotemporal Dementia. Candace is a caregiver for her mother who was diagnosed with FTD (Frontotemporal Dementia) at the age of 57. She started the blog because she wanted to share her and her mother's experience about what life with FTD is like, the challenges, the joys, the pain…not to mention, early on in her journey with her mother, she realized the lack of resources and support available for people dealing with (not just FTD), but Early Onset Dementia in general. For more information on this interview: https://bit.ly/3lMPwlK Learn more about your ad choices. Visit megaphone.fm/adchoices
Betsy Wurzel’s guest on the show today is Candance Williams on her Mother’s diagnosis of Frontotemporal Dementia. “Candace is a caregiver for her mother who was diagnosed with FTD (Frontotemporal Dementia) at the age of 57. She started the blog because she wanted to share her and her mother’s experience about what life with FTD is like, the challenges, the joys, the pain…not to mention, early on in her journey with her mother, she realized the lack of resources and support available for people dealing with (not just FTD), but Early Onset Dementia in general. It is Candace’s hope to not just share the experienceFor more information on this interview: https://bit.ly/3lMPwlKI hope you are doing well and being safe Jeanne White, Station Manager, Passionate World Talk Radio
Betsy Wurzel talks about the First Anniversary of Chatting with Betsy. How she began the journey to bring awareness for Early Onset Dementia. How she entered the broadcast world to have her own radio show. Betsy speaks about her husband Matt and how she advocated for him. How important it is to tell your story and advocate for your loved one. For more information about this show: https://bit.ly/3jKoevH I hope all is going well for you. Please be safe Jeanne White, Station Manager, Passionate World Talk Radio Learn more about your ad choices. Visit megaphone.fm/adchoices
Betsy Wurzel talks about the First Anniversary of Chatting with Betsy. How she began the journey to bring awareness for Early Onset Dementia. How she entered the broadcast world to have her own radio show. Betsy speaks about her husband Matt and how she advocated for him. How important it is to tell your story and advocate for your loved one.For more information about this show: https://bit.ly/3jKoevHI hope all is going well for you. Please be safe Jeanne White, Station Manager, Passionate World Talk Radio
A fascinating and informative conversation with Tommy Dunne, from Liverpool England. Tommy was diagnosed with Early Onset Dementia at 58 and has made it his mission to raise awareness about living with dementia, and supporting communities in improving dementia care.
A fascinating and informative conversation with Tommy Dunne, from Liverpool England. Tommy was diagnosed with Early Onset Dementia at 58 and has made it his mission to raise awareness about living with dementia, and supporting communities in improving dementia care.
Tully chats about her experience turning 30 years old, what it was like thinking she had early onset dementia, dating in your 30s, and we chat to Tully's kinesiologist, Janelle Green, about Saturn Return. On this episode, we discuss: Tully's experience turning 30 The anxiety of potentially having early onset dementia Celebrating Jess' 30th birthday Dating in your 30s Tully's kinesiologist, Janelle Green Saturn Return Thinking life is downhill from 30 Not knowing how to feel at 30 Making friends at 30 Divorces in your 30s We'd love to hear from you, slide on into our DMs or email us at hi@toomuchtully.com - nothing's off limits. Website - toomuchtully.com Instagram - @TooMuchTully Facebook - @TooMuchTully Twitter - @TooMuchTully See omnystudio.com/listener for privacy information.
Betsy Wurzel's guest on Chatting with Betsy is Kelly Bone and the discussion on the genetic testing done that revealed she had two APOE4 genes and the diagnosis for Early Onset Dementia. Kelly speaks about how she is taking care of herself as best as possible, but at some point, decisions will have to be made when the quality of life changes for her. End of life decisions can be a controversial subject but is this not the right of an individual? What is the right to die with dignity? Kelly Bone speaks about her rights and what is right for her. Join in the conversation on the right to die. Example: What would you do if someone said you do not have the right to make any decisions? Now What! One of the topics that Kelly would like to see addressed in the United States is changing the laws around assisted suicide and allow people with cognitive disorders to allow people to choose to die with dignity. For contact information:https://bit.ly/2Bi1yCa I hope all is going well for you and your family. Jeanne Whte, Station Manager, Passionate World Talk Radio Learn more about your ad choices. Visit megaphone.fm/adchoices
Betsy Wurzel’s guest on Chatting with Betsy is Kelly Bone and the discussion on the genetic testing done that revealed she had two APOE4 genes and the diagnosis for Early Onset Dementia.Kelly speaks about how she is taking care of herself as best as possible, but at some point, decisions will have to be made when the quality of life changes for her. End of life decisions can be a controversial subject but is this not the right of an individual? What is the right to die with dignity? Kelly Bone speaks about her rights and what is right for her. Join in the conversation on the right to die. Example: What would you do if someone said you do not have the right to make any decisions? Now What!One of the topics that Kelly would like to see addressed in the United States is changing the laws around assisted suicide and allow people with cognitive disorders to allow people to choose to die with dignity.For contact information:https://bit.ly/2Bi1yCaI hope all is going well for you and your family. Jeanne Whte, Station Manager, Passionate World Talk Radio
You probably know Takaya Honda from the TV show Neighbours, where his on-screen character David got hitched as part of the first same-sex wedding on Aussie TV, as well as roles on Play School and The Family Law to name a few.But you might not know behind closed doors, Takaya and his family are fighting a very real battle.For the last decade, he has watched his mum Rhonda slip away after she was diagnosed with early-onset Alzheimer's at the age of just 52.In this very honest chat, Takaya discusses what it’s like to grieve someone still alive along with the unique position his public platform has given him to support the families of the almost half a million Australians living with dementia, 30 thousand of those diagnosed with early-onset.He also chats about what the experience has taught him and the way he’ll always remember his beautiful mum.Takaya is a pillar of strength and resolve and I’ve no doubt you’ll be just as touched by the thoughtful and compassionate way he shares his story as I was.Follow Takaya - @takayahSeek support from Dementia Australia on 1800 100 500Connect with me @elizabethanileLemonade now has its own Instagram account chock-a-block full of self love inspo - follow here!Your support of Lemonade helps it grow and allows me to spend time finding awesome guests to share with you. Clicking subscribe, hitting 5 stars, leaving a review, sharing it with your friends via social media or word of mouth, it all really helps! So I appreciate anything you have time for. See acast.com/privacy for privacy and opt-out information.
Education Series on the most common types of Dementia on the Chatting with Betsy. Sue Fernandez is bringing her knowledge for Dementia on Chatting with Betsy Show. The first type of Dementia that Sue will be discussing Early Onset Dementia and a few more. Education oneself on Get your pencil and paper ready Sue Fernandez is on Betsy's show todayDementia is so important as there many types of Dementia. The one dementia that many hear about is Alzheimer's. Sue Fernandez will be giving information on this series for at least 9 different types of Dementia. As caregivers the more information you have the more it could be less stressful for you in this journey.To contact Betsy Wurzel https://www.facebook.com/profile.php?id=100005271496390To contact Sue Fernandez -https://www.facebook.com/sue.fernandez.9699Sending Hugs to you all and hope you and your family are doing goodJeanne White, Station Manager, Passionate World Talk Tadio
Education Series on the most common types of Dementia on the Chatting with Betsy. Sue Fernandez is bringing her knowledge for Dementia on Chatting with Betsy Show. The first type of Dementia that Sue will be discussing Early Onset Dementia and a few more. Education oneself on Get your pencil and paper ready Sue Fernandez is on Betsy's show today Dementia is so important as there many types of Dementia. The one dementia that many hear about is Alzheimer's. Sue Fernandez will be giving information on this series for at least 9 different types of Dementia. As caregivers the more information you have the more it could be less stressful for you in this journey. To contact Betsy Wurzel https://www.facebook.com/profile.php?id=100005271496390 To contact Sue Fernandez -https://www.facebook.com/sue.fernandez.9699 Sending Hugs to you all and hope you and your family are doing good Jeanne White, Station Manager, Passionate World Talk Tadio Learn more about your ad choices. Visit megaphone.fm/adchoices
Early onset dementia and your estate plan -- I love comments. I make these videos specifically to help people with no expectations. Please take a second and say ‘Hi’ in the comments and let me and know what you thought of the video… and p.s. It would mean the world to me if you hit the subscribe button.
Some signs of memory loss typically have been blown away as a regular part of the aging process, but when the problems start to regularly affect the person's level of functioning and it becomes more difficult to remember recently learned facts or retain new information and details about their own life history or the inability to recall vocabulary, it becomes serious. Some report there are changes in behavior such as possibly having hallucinations, delusios, or paranoia. Some changes in sleep patterns could also be a sign.
GUEST: Bernie Travis - President of the Early Onset Dementia Alberta Foundation
Our continual reliance on wireless technology has increased our exposure to EMF ( Electro Magnetic Field) radiation like never before. While technology companies continue to produce faster and smarter wireless technology at rapid rates, they don't seem to ever address safety issues when it comes to EMF exposure and our health. (Mainly because they don't have to.) The good news is that independent researchers and scientists, some previously featured on this podcast, have performed animal studies and written up human case studies concerning EMF exposure. That growing body of evidence suggests that EMF exposure is certainly not benign, absolutely impacts mammalian cells, and the World Health Organization should, at the least, readdress the dangers of EMF exposure. It has been linked to brain tumors, heart tumors, ADHD and cognitive impairment, neurological issues and infertility issues. It seems especially harmful when exposed as a child or while in-utero. Many health advocates call EMF the "new smoking." Yet, it's everywhere and only getting worse. As my guest for this podcast aptly puts: "We can no longer do a controlled experiment on EMF exposure, because it's everywhere. We are all currently part of the experiment." Dr. Pritchard is a researcher and professor at Bournemouth University in the UK and a professor of Psychiatry at The University of Southampton School of Medicine. He is internationally known for his work on suicides and child abuse. Recently, he has been using data provided by the World Health Organization to document changing rates in deaths due to neurological diseases in developed nations. These neurological diseases include ALS, Multiple Sclerosis, Parkison's Disease, and early-onset dementia. The trend Dr. Pritchard has documented is significantly increased rates of deaths overall, with the USA having the highest increase over the last several years. He has also documented more cases of early-onset dementia, as early as forties and fifties, especially in the US. What is causing this increase? Dr. Pritchard offers his theory ( and more) on this podcast. Follow Erin on Instagram here! Read her new parody on the sleazy side of the wellness industry here!
FREE NUTRITION ASSESSMENT FROM SPORT NUTRITION PROFESSIONALS!! https://compeatnutrition.typeform.com/to/K8iY8Q There isn't many under 30 year olds that can say they have raised $50000 for a cause and started a non-for-profit, but this cyclist is one of them. Nick is a National Road Series rider for Suburu Anchorpoint, who in his ‘spare time' plans and conquers some incredible challenges all in the name of awareness for Dementia. After losing his Dad at just 61yo to Early Onset Dementia, Nick is on a mission with purpose. Using his skills on the bike for a bigger cause and sharing an important message along the way. We also chat through changing careers from AFL to Cycling, his journey over the past 10years and all that he has learnt along the way. A raw and inspiring chat from an individual that has been a pleasure to welcome into our crew.
We discuss the case of Nasrin Sotoudeh the Iranian lawyer, who's been jailed for 38 years, and sentenced to 148 lashes for defending women's rights. We hear from Mansoureh Mills Middle East Researcher from Amnesty and from Rana Rahimpour from the BBC Persian Service.Five years ago Wendy Mitchell was diagnosed with young onset dementia, she was just 58 years old. She tells us how she copes with the disease which is robbing her of her memories.After winning the SheBelieves Cup in America recently England's women are now setting their sights on the World Cup. Nike and Adidas have come on board with sponsorships but what difference, if any, will this make? Rebecca Myers, Sports Journalist from the Sunday Times explains the significance of big brands getting involved in the women's game.Baroness Liz Barker, the Liberal Democrat Peer and an ambassador for Lesbian, Bisexual and Trans Women's health week, tells us why lesbian and bisexual women say they feel invisible to their doctors and nurses.Fern Champion was raped three years ago but has waived her anonymity to call on the government to provide more support to people like her. She tells us why she's set up a petition to ask for rape counselling to be made available to anyone who needs it and Rebecca Hitchin the Campaign Manager at End Violence Against Women, explains why there is a funding shortfall for these services.Margaret Busby the editor of the anthology New Daughters of Africa and writer and contributor Candice Carty-Williams tell us about the new volume.And with Instagram full of cleaning tips we ask if cleaning has become cool? Lynsey Crombie Instagram's Queen of Clean and journalist Zing Tsjeng discuss.Presented by Jane Garvey Producer: Rabeka Nurmahomed Editor: Erin Riley Interviewed Guest: Mansoureh Mills Interviewed Guest: Rana Rahimpour Interviewed Guest: Wendy Mitchell Interviewed Guest: Rebecca Myers Interviewed Guest: Baroness Liz Barker Interviewed Guest: Fern Champion Interviewed Guest: Rebecca Hitchin Interviewed Guest: Margaret Busby Interviewed Guest :Candice-Carty-Williams Interviewed Guest: Lynsey Crombie Interviewed Guest: Zing Tsjeng
Cooper and Nicole take an intimate look at one couple's journey with early onset dementia.
***REBROADCAST** The Mayo Clinic says that early onset dementia is a condition that occurs before the age of 65, and that Parkinsons and Alzheimers are closely related. How do I handle news that could possibly mean that at sometime in the future I may not be able to remember my family or my friends? How do I live my life in the present without constantly thinking about what's going to happen? Everyday I wake up I wonder if this is the day that my entire memory will be gone and my family puts me in a facility. However, I guess the good news will be that I won't know anything about it. Listen in by callin 646-668-8485. Or download Stitcher on your mobile device. Or, click on the link here: http://tobtr.com/9955873.
The Mayo Clinic says that early onset dementia is a condition that occurs before the age of 65, and that Parkinsons and Alzheimers are closely related. How do I handle news that could possibly mean that at sometime in the future I may not be able to remember my family or my friends? How do I live my life in the present without constantly thinking about what's going to happen? Everyday I wake up I wonder if this is the day that my entire memory will be gone and my family puts me in a facility. However, I guess the good news will be that I won't know anything about it. You may call 646-668-8485 to listen and press the 1 if you would like to ask a question or to make a comment, however you may also listen by going to http://tobtr.com/s/9919921.
This month Science & U! finds a company that is making real human bones; goes on a tour of virtual reality; examines our understanding of Early Onset Dementia; finds a way to exercise in small spaces; and links a healthy diet and our mood.
http://www.alz.to Paul Lea describes his journey with dementia, and the increasing numbers of people that are succumbing to this silent and hidden epidemic. Find out what you can do to spot early onset in yourself or in your friends, and find out what you might be able to do to prevent alzheimers and early-onset dementia. http://www.thatchannel.com
With 1 in 10 Ontarians over 65 diagnosed with Dementia, you or someone you know may be affected. Find out how you can help support programs to raise awareness and alleviate the burden on families affected by Dementia.
With 1 in 10 Ontarians over 65 diagnosed with Dementia, you or someone you know may be affected. Find out how you can help support programs to raise awareness and alleviate the burden on families affected by Dementia.
Today's show will feature some of our friends from Australia. Joining us will be two women with early onset dementia. Christine Bryden was diagnosed at the age of 46, Wendy Kudell at the age of 50. Also joining us will be Denise Craig a psychologist dedicated to supporting people with dementia in many ways. Denise also cared for her mother who experienced young onset dementia. Come with your questions and share your comments. We love to interact with our audineces as we all can learn from each other. To Contact Denise, Christine and/or Wendy: Facebook Christine BrydenSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.
“Music First” Hi Tech Personalized Therapy for Alzheimer's Guest - David Schofman, Co-Founder, Chief Executive Officer of Coro Health I am so thrilled to be able to introduce you to David Schofman, CEO of Coro Health. Not only will Dave share this life changing musical product with us, but he will also be giving out a FREE TRIAL LINK FOR OUR LISTENERS! The inspiration for Coro Health was largely driven by his daughter with special needs, with whom music therapy has had a strong impact. The work she has undergone and progress she has made with the help of the Austin Center for Music Therapy, proves inspirational for his mission. For further information on Music First and Coro Health Website: www.corohealth.com Email: david@corohealth.com Our Second guest today will be Dennis Berkholtz, Founder and President of the National Senior League (NSL) who coordinates Wii Bowling Leagues and is interested in started one league for people with Early Onset Dementia. www.NSLGames.com 435.714.9491 Dennis@NSLGames.comSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.
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