Glioblastoma aka GBM

Season 4 of Glioblastoma aka GBM kicks off Brain Tumor Awareness Month with a closer look at CeGaT, a genetic diagnostics company based in Tübingen, Germany. Founded in 2009 by Dr. Saskia Biskup and Dirk Biskup, CeGaT focuses on identifying rare diseases and tumor-specific mutations through advanced sequencing technologies. In this episode, we speak with Dr. Biskup and Florian Battke, Head of Research & Development, about what genetic sequencing is, how it's used in the context of brain tumors, and what they see as the next frontier for diagnosing and treating diseases like glioblastoma. We discuss how long-read sequencing may offer greater accuracy in identifying genetic changes and what that could mean for patients navigating difficult diagnoses. This episode explores the broader role that genomics can play in brain cancer research and the questions still left to answer as science continues to evolve. To learn more about the work CeGaT is doing, visit them online at https://cegat.com/ This episode is intended for informational purposes only and does not constitute medical advice. Always consult a qualified healthcare provider for guidance specific to your health or treatment plan.

In the Season 3 finale of the Glioblastoma AKA GBM Podcast, social media influencer Ellie Thumann shares her heartfelt experiences following the loss of her grandfather, known affectionately as "Pop Pop," to glioblastoma. Ellie discusses the profound impact her grandfather's illness had on her and her family, reflecting on the cherished moments and the challenging journey through grief. Through her narrative, Ellie touches on themes of memory, loss, and legacy, providing a deeply personal insight into the emotional landscape that accompanies the loss of a loved one.

In this episode of The Glioblastoma AKA GBM Podcast, we welcome Doug Malchow, who transformed his personal tragedy into a source of support and solidarity for others. After losing his father to glioblastoma, Doug took to Instagram and TikTok to share his journey through grief and caregiving. In candid posts, he expresses the emotional challenges and the profound impact of his father's illness and passing. Through his social media platform, Doug provides a space for others to connect, share their stories, and find comfort in communal grieving. This episode delves into the realities of caregiving, the grieving process, and the power of sharing one's personal story on social media to help others feel less alone. Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more. Trigger Warning: This episode includes discussions on terminal illness, loss, and grief. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this episode of The Glioblastoma AKA GBM Podcast, Dr. Ashish Shah, Assistant Professor of Neurological Surgery at the University of Miami Miller School of Medicine and Director of Clinical Trials and Translational Research within the University of Miami Brain Tumor Initiative, dives deep into his groundbreaking research on glioblastoma. Dr. Shah discusses a fascinating study revealing how fragments of a retrovirus, integrated into the human genome millions of years ago, are implicated in the proliferation and progression of glioblastoma, the most aggressive primary brain tumor. This episode explores how these findings from Dr. Shah's research at the Sylvester Comprehensive Cancer Center could revolutionize our understanding of glioblastoma and lead to novel treatment strategies. We also delve into the potential of antiretroviral agents and gene therapy as innovative approaches to target these viral fragments, opening new avenues for combatting this challenging cancer. Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and genetic research. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this episode of The Glioblastoma AKA GBM Podcast, we are joined by Dr. Betsy Grunch, renowned neurosurgeon and social media educator, known online as @LadySpineDoc. Born and raised in Gainesville, Georgia, Dr. Grunch has built a distinguished career in neurosurgery, specializing in minimally invasive spine techniques and neurotrauma. Recently named among America's Best Spine Surgeons by Newsweek in 2024, she has taken her expertise to social media to demystify complex medical concepts and educate a broader audience. During our discussion, Dr. Grunch shares insights into the dynamic field of neurosurgery, her approach to patient care, and how she utilizes platforms like Instagram and Twitter to bridge the gap between advanced medical science and public understanding. Join us as Dr. Grunch sheds light on the challenges and advancements in neurosurgery while promoting educational outreach through her social media presence. Episode Sponsor: Novocure - Learn more about their innovative cancer treatments Follow Dr. Betsy Grunch on Instagram: @LadySpineDoc Trigger Warning: This episode includes discussions on medical conditions and surgical treatments. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this timely episode of The Glioblastoma AKA GBM Podcast, released just after Glioblastoma Awareness Day, we welcome John Furey, the CEO of Imvax, Inc. John discusses the groundbreaking work of Imvax, particularly their lead product candidate, IGV-001, currently in a phase 2b randomized trial for newly diagnosed glioblastoma multiforme (GBM). He shares insights into the unique challenges and opportunities of developing patient-specific vaccines and immunotherapy strategies in the fight against GBM. The conversation also delves into the broader landscape of clinical trials, highlighting how these innovative approaches are transforming patient care and outcomes in oncology. Join us to understand more about the cutting-edge science that could potentially revolutionize treatment for glioblastoma and beyond. Episode Sponsor: IMVAX. Visit https://www.imvax.com/ to learn more. Trigger Warning: This episode includes discussions on medical conditions and cancer treatments. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this compelling episode of The Glioblastoma AKA GBM Podcast, we sit down with Rod Nordland, a distinguished foreign correspondent whose work has taken him across more than 150 countries. Rod shares his personal journey with glioblastoma, discussing not only the challenges he's faced but also his advocacy for disability awareness. He introduces his new book, "Waiting for the Monsoon," reflecting his rich experiences and the profound insights he's gained. Special guest Leila, Rod's partner, joins the conversation, adding depth to the discussion of Rod's diagnosis and their shared path forward. This episode offers a unique look at the intersection of a life spent in journalism and a personal battle with a daunting diagnosis. Episode Sponsors: Plus Therapeutics and Imvax Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, death, grief, therapy, and personal loss. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this heartfelt episode of The Glioblastoma AKA GBM Podcast, we are joined by Holly Gainsboro, a grief specialist and founder of Golden Heart Grief Support and Education. Holly shares her profound journey of loss and transformation following her late husband's diagnosis with glioblastoma. Through her personal experiences and extensive training, Holly has developed unique insights into navigating grief, particularly in the context of glioblastoma-related loss. She discusses the emotional whirlwind from diagnosis to her husband's passing and how these experiences propelled her into supporting others as they navigate their own paths of grief. Listen as Holly offers wisdom on coping with the complex emotions of grief and finding hope amidst despair. Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/ to learn more. Trigger Warning: This episode includes discussions on grief, terminal illness, and bereavement. Visit to Learn More: For more support and resources, visit GBMResearch.org and explore Holly's services at goldenheartgrief.com. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

Dive into the latest developments in glioblastoma treatment with Tamika Wong, MPH, Director of Clinical Research in Neurosurgery, and Dr. Morana Vojnic, Medical Oncologist and Director of Oncologic Services at the Brain and Spine Metastases Program, both from Lenox Hill Hospital. This episode offers a deep dive into groundbreaking clinical trials and treatments, clarifying complex brain tumor and glioblastoma terminology for a broader understanding. Listen as Tamika and Dr. Vojnic highlight the critical role of hope and advanced care strategies in improving patient outcomes. Episode Sponsor: Imvax. To learn more visit https://www.imvax.com/. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and clinical trials. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this deeply moving episode of The Glioblastoma AKA GBM Podcast, we revisit the extraordinary life of David Fitting, known as the longest surviving glioblastoma patient in the USA. David first joined us to share his initial battle with brain cancer as a child and his miraculous journey to remission. Now, he returns to discuss his life post-recovery, the challenges of facing cancer multiple times, and his subsequent diagnosis and fight against osteosarcoma. Beyond his personal battles, David dives into his impactful advocacy work, providing hope and guidance to others navigating similar paths. This episode is a testament to resilience and the power of a positive outlook in the face of life's toughest challenges. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and emotional challenges. Visit to Learn More: For more information and support resources, visit GBMResearch.org. Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this insightful episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Marc Hedrick, President and CEO of Plus Therapeutics. Dr. Hedrick brings his extensive background in surgery and regenerative medicine to discuss the forefront of cancer treatment—targeted radiotherapeutics. He delves into the exciting developments of the ReSPECT GBM clinical trial, addressing the challenges and innovative approaches to treating recurrent glioblastoma, a notoriously difficult condition to manage. Listen in as Dr. Hedrick shares his unique insights on the potential of new therapies and the future of glioblastoma treatment. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and clinical trials. For more information and support resources, visit GBMResearch.org. Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/for-patients/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this inspiring episode of The Glioblastoma AKA GBM Podcast, we're joined by Dr. Sheri Dewan, a trailblazer among the elite group of female neurosurgeons. With a career that spans across continents and cultures, Dr. Dewan brings her unique perspective to some of the most complex neurosurgical challenges. She discusses her groundbreaking new book, "Cutting a Path," her dedication to global healthcare, and her experiences with charity surgery in Southern India. Additionally, Dr. Dewan delves into medical intricacies and advanced surgical techniques that have never before been discussed on our show. Join us as we explore the intersection of gender, innovation, and compassion in the field of neurosurgery with one of its most dynamic practitioners. Trigger Warning: This episode includes discussions on surgical procedures and medical conditions. For more information and support resources, visit GBMResearch.org. To purchase Cutting a Path: The Power of Purpose, Discipline, and Determination, visit: https://www.amazon.com/Cutting-Path-Purpose-Discipline-Determination/dp/161254620X. Episode Sponsor: Novocure. Visit https://www.novocure.com/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

Join us for an enlightening episode of The Glioblastoma AKA GBM Podcast with Dr. Netanel (Nati) Ben-Shalom, a trailblazer in neuroplastic and reconstructive surgery. Dr. Ben-Shalom, the world's first neurosurgeon to complete the prestigious Johns Hopkins Neuroplastic and Reconstructive Surgery fellowship, discusses his innovative approaches in neurosurgery that not only enhance surgical outcomes but also significantly improve the quality of life for patients with brain tumors. In this episode, learn about the revolutionary techniques and implantable biomaterials that are transforming patient care, how 3D printing and third-generation cranial implants are used to minimize physical deformities and enhance recovery, and why a holistic approach is crucial for successful treatment outcomes. Trigger Warning: This episode includes discussions on medical conditions, surgical procedures, and cancer treatments. For more information and support resources, visit GBMResearch.org. Episode Sponsor: Plus Therapeutics. Visit https://plustherapeutics.com/for-patients/ to learn more. Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

In this compelling episode of The Glioblastoma AKA GBM Podcast, we welcome Jordy Glassner, a dedicated therapist who brings a unique dual perspective as both a caregiver and a current patient battling glioblastoma. Jordy opens up about her diagnosis, and how her professional background in therapy has shaped her approach to treatment and self-care. Join us as we explore the emotional and psychological impacts of glioblastoma through Jordy's eyes, offering insights into resilience, therapy, and maintaining hope in the face of adversity. Trigger Warning: This episode includes discussions on medical conditions, cancer treatments, and emotional health challenges. For more information and support resources, visit GBMResearch.org. Episode sponsor: Imvax *Disclaimer: The content discussed on The Glioblastoma AKA GBM Podcast is based on personal stories and experiences. It is not intended as medical advice. Always consult with healthcare professionals for medical guidance and treatment options.

Join us for the Season 3 premiere of The Glioblastoma AKA GBM Podcast, where we delve into the heart and mind of multi-platinum singer-songwriter Mike Posner. In this deeply personal episode, Mike shares his journey through the harrowing landscape of glioblastoma as he witnessed his father's battle with this aggressive form of brain cancer. As we explore the layers of grief and healing, Mike opens up about how this experience has reshaped his creative process and his outlook on life. In this conversation, we cover: The profound impact of his father's glioblastoma diagnosis and the family's journey through treatment and loss. How grief has influenced Mike's music and artistic expression. Cherished advice from his dad that continues to guide him. Mike's vision for living a meaningful life in the wake of personal tragedy. Mike Posner, known for his hit songs and remarkable resilience, brings a unique perspective on dealing with loss, channeling creativity, and finding purpose amidst pain. This episode is a touching reflection on love, loss, and legacy. Trigger Warnings: This episode contains discussions on medical conditions, cancer diagnosis, and end-of-life themes. For more insights and to support the Glioblastoma Research Organization, please visit GBMResearch.org. Disclaimer: The content shared on The Glioblastoma AKA GBM Podcast represents personal stories and is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always consult your healthcare provider with any questions regarding a medical condition.

In this episode of the Glioblastoma AKA GBM Mini Series, Amber gives a recap on the inaugural Padel for Brain Cancer event, goes through life hacks as a caregiver, touches on hospice & palliative care, and unboxes her dads things from storage. Topics covered in this episode include: Hospice care & palliative care Staying organized as a caregiver End of life & food Sleep & sleep therapy Unboxing your loved ones items Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/. Learn more about Earos here: https://earos.com/ Learn more about Certifyde here: https://certifyde.com/ "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community: Instagram: @glioblastomaresearch @glioblastomaakagbm Twitter: @glioblastomaorg Facebook: https://www.facebook.com/glioblastomaresearch Website: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research. #GBMPodcast #Glioblastoma #HopeForTheHolidays **As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

In this episode of the Glioblastoma AKA GBM Mini Series, we delve into our 2024 plans, dating, and a holiday debrief. Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/. Merch of the week: https://www.gbmresearch.org/shop/p/for-a-cure-20 "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community: Instagram: @glioblastomaresearch @glioblastomaakagbm Twitter: @glioblastomaorg Facebook: https://www.facebook.com/glioblastomaresearch Website: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research. #GBMPodcast #Glioblastoma #HopeForTheHolidays **As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

In this third episode of the Glioblastoma AKA GBM Mini Series, we chat about major questions and topics in relation to resources for current caregivers. Topics covered in this episode include: Glioblastoma nonprofits Finding support groups Caregiver benefits & financial aid Books/apps to assist your journey The most important advice as a caregiver - according to Amber Social workers Finding therapy and support Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/. "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community: Instagram: @glioblastomaresearch @glioblastomaakagbm Twitter: @glioblastomaorg Facebook: https://www.facebook.com/glioblastomaresearch Website: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research. #GBMPodcast #Glioblastoma #HopeForTheHolidays **As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

In this third episode of the Glioblastoma AKA GBM Mini Series, we chat about all things ADVOCACY - on the caregiver AND patient side. Topics covered in this episode include: Your role as a caregiver Asking about second opinions Navigating clinical trials Questions to ask your doctor Decision making Thank you to our partners at xCures for supporting the Mini-Series season. To learn more, visit their website at https://xcures.com/. "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community: Instagram: @glioblastomaresearch @glioblastomaakagbm Twitter: @glioblastomaorg Facebook: https://www.facebook.com/glioblastomaresearch Website: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research. #GBMPodcast #Glioblastoma #HopeForTheHolidays **As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

In this second episode of the Glioblastoma AKA GBM Mini Series, we chat about replying to the question "how are you doing?" Questions that came in this week included: When someone asks me how I am doing I feel like I am supposed to just smile and say “fine”. Is this ok?   How do I really tell someone how I am doing when the answer feels so dark? Am I bringing others down by being honest? What would be the best way to answer this with honesty without making them regret asking? I have no idea how to cope with all of this. What can I do? I am really tired of people telling me to “stay positive”. How can I express that? Does there always have to be a silver lining? Sometimes I just don't see one. "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community: Instagram: @glioblastomaresearch @glioblastomaakagbm Twitter: @glioblastomaorg Facebook: https://www.facebook.com/glioblastomaresearch Website: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research. #GBMPodcast #Glioblastoma #HopeForTheHolidays **As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Embark on a journey of support and hope with the debut episode of the Glioblastoma AKA GBM Mini Series - presented by the Glioblastoma Research Organization. Join your host, Amber Barbach, as she unravels the complexities of glioblastoma (GBM) and tackles the unique challenges of managing the holidays amidst this diagnosis. In this inaugural episode, Amber candidly shares her personal experiences with her family, and offers insightful strategies for navigating the holiday season with GBM. "Glioblastoma AKA GBM" is more than a podcast; it's a lifeline for those touched by glioblastoma. Stay connected with "Glioblastoma AKA GBM" and the Glioblastoma Research Organization on social media for updates, resources, and to join the community: Instagram: @glioblastomaresearch @glioblastomaakagbm Twitter: @glioblastomaorg Facebook: https://www.facebook.com/glioblastomaresearch Website: https://www.gbmresearch.org/ Subscribe now to be part of this transformative journey and contribute to raising awareness for glioblastoma research. #GBMPodcast #Glioblastoma #HopeForTheHolidays **As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Welcome back to Glioblastoma AKA GBM. This 2023 holiday season we're launching our first-ever MINI SERIES which will be a 1:1 to discuss questions and topics that have been submitted through the organization. Launching on 11/30/23. To learn more about the Glioblastoma Research Organization visit us online at https://www.gbmresearch.org/.

The finale of Season 2 of Glioblastoma aka GBM is here, and to wrap up the season we'd like to welcome Elissa Barbach to the show. Elissa was a caregiver and lost her husband to glioblastoma in 2018, and has learned to rebuild her life after losing her best friend - while still being incredibly gracious, kind, loving, caring, positive - and overall, a great mom. On this episode, you'll hear us chat about: The early stages of finding out her husband had a brain tumor Being a caregiver on her own The end of life progression Her grief and how she's worked through it Her emotional support puppy -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer, end of life, end of life progression, death, terminal illness, grief, loss of spouse, and being so unbelievably proud of your mom for sharing her story. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

David M. Ashley, PhD, FRACP, MBBS (Hons), Director of the Preston Robert Tisch Brain Tumor Center at Duke joins us on this episode to discuss his history in neuro-oncology, innovations happening at the Brain Tumor Center, clinical trial advancements, and his past-life as a surfer. On this episode, you'll hear us chat about: - What led him to Duke - The world-renown Duke Polio clinical trial & it's comeback - His work in discovering how scientists can learn to prevent brain tumors - The brain & it's own lymphatic system - How research is translated from in-vitro to in-vivo -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer, cancer treatment, clinical trials, scientific terminology, and realizing that this episode may have taught you more in 39 minutes than any of your high school science classes did. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Vidya Gopalakrishnan, Ph.D is a researcher at MD Anderson Cancer Center, an esteemed member of the Glioblastoma Research Organization Medical Advisory Board, and has a laboratory focused on research for DIPG (Diffuse Intrinsic Pontine Glioma). On this episode, you'll hear us chat about: - What sparked Vidya's interest in working on brain tumor research - Immunotherapy at MD Anderson Cancer Center - The science behind brain tumors - The difference between tumor types and tumor locations - Her hopes for advances in the field -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer, cancer treatment, and significant medical terminology. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Kate Snedeker started Gray for Glioblastoma Society at just 19 years old in an effort to create a hopeful space for all those impacted by GBM, and to help raise funding for research through community events. Kate joins us on this episode of Glioblastoma aka GBM to discuss the inspiration behind GFG, and how she's utilizing social media to make an impact. On this episode, you'll hear us chat about: - Kate's dads journey with GBM - Starting a nonprofit while still full-time in college - The inspiration behind GFG's original merchandise (Fun Fact: Kate and her dad always told each other "I love you to the moon and back", which is what the title of this episode refers to) - How Kate is processing her grief - Amber's future aspirations for the Glioblastoma Research Organization -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer diagnosis, grief, loss of a parent, traveling to avoid grief, death, and working 12+ hour days. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Sadaf Chaudry lost her husband Rehan Aslam back in 2022 to glioblastoma. Sadaf joins us on this episode of Glioblastoma aka GBM to share her story, advocate for caregiver support, and share raw and honest truths about the effect glioblastoma has on families. On this episode, you'll hear us chat about: - How Sadaf and Rehan met - How it is to continue parenting after the loss of your partner - Grief in children - The legacy she wants to leave behind - The journey of learning to take over responsibilities after the loss of your partner -& so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer diagnosis, grief, grief in children, loss of a partner, death, xanax, and realizing that although it is called glioblastoma, diabloblastoma is just as fitting. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Amani Liaquat was just 22 years old when she was diagnosed with a glioblastoma, and passed away in 2022 from the disease. Amani spent a majority of her diagnosis focused on advocacy efforts, and raising awareness for GBM. Her parents, Yasmin and Khuram, join us on this episode to discuss Amani's journey and how her legacy lives on. On this episode, you'll hear us chat about: - Amani's story - The grief of losing a child as a parent - The difference in grief between men and women - How Amani's legacy lives on - & so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: cancer diagnosis, grief, loss of child, medical terminology, anxiety, death, and coming to the realization that women do in fact speak 50% more than men. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Dr. David Langer is the chair of neurosurgery at Lenox Hill Hospital and vice president of neurosurgery for Northwell Health's Western Region. His love for neurosurgery and mentorship is infectious. On this episode, you'll hear us chat about: - His love for neurosurgery - What it's like being the chair for a major institution and running the department - How Lenox Hill on Netflix & Emergency NYC came to be - His thoughts on stoicism and philosophy - & so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: medical terminology, surgery, end of life, cancer diagnosis, and stoic ways of thinking. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Greg Link is an 8+ year glioblastoma survivor and thriver. He's an advocate for talk therapy, and an advocate for multiple professional opinions. Now, he spends his time focused on his communications company and being a support system for others living with a brain tumor. On this episode, you'll hear us chat about: - His business, and what inspired him to kickstart his career - His thoughts on talk therapy - His advocacy work in helping others with a GBM diagnosis - His current day-to-day, 8+ years post-initial diagnosis - & so much more TO LEARN MORE ABOUT THE ORGANIZATION VISIT GBMRESEARCH.ORG. Trigger warnings may include: medical terminology, cancer diagnosis, surgery, talk therapy, and understanding that it's ok to live life on your own terms. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Catherine Ivy is on a mission to find a cure for brain cancer, with Dr. Nader Sanai and the rest of the incredible team at the Ivy Brain Tumor Center. On this episode, you'll hear the three of us chat about: - Catherine's passion for finding a cure - What inspired Dr. Sanai to dedicate his life to research - Phase 0 clinical trials & how they work - Recharging and finding creativity in your day-to-day - What to do when you/a loved one is diagnosed - & so much more Trigger warnings may include: grief, medical terminology, cancer diagnosis, and thinking great-white-shark-diving may or may not be a good idea. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Sit down with us this week on Glioblastoma aka GBM as we're joined by Diane Pathieu - an American television anchor who works for WLS-TV in Chicago, and her husband Nick Adamski - a glioblastoma thriver. On this episode, you'll hear us chat about: How Diane and Nick met PMA: Positive Mental Attitude Methylation profiling How hope has such a significant impact on one's life The importance of keeping a normal routine when dealing with a brain cancer diagnosis & so much more Trigger warnings may include: medical terminology, caregiving support, cancer, death, morality, and being the first one to make a move to ask someone on a date. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Dr. Henry Friedman is world renowned for his work in Neuro-oncology at Preston Robert Tisch Brain Tumor Center at Duke University. He is also a karaoke star, a massive Broadway fan, a mentor, a die-hard basketball supporter, a husband, a grandfather, and a fantastic podcast guest. On this episode, you'll hear us chat about: How Henry got involved at Duke Upcoming research advancements and clinical trials for glioblastoma The famous Polio vaccine trial at Duke making its comeback UCONN vs. DUKE How "HOPE" is the most important factor when dealing with glioblastoma & so much more Trigger warnings may include: medical terminology, grief/caregiving support, and UCONN being a stronger basketball team than Duke - sorry Henry. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Barbie Blank Coba (aka Kelly Kelly) is best known for her WWE performances, modeling, influencing, and acting - however did you know she co-founded a nonprofit for Brain Cancer Research after losing her dad to glioblastoma? On this episode, you'll hear us chat about: How Barbie got her start in WWE The love Barbie and her dad shared, especially for wrestling The process of getting married and starting a family - without her dad by her side Her nonprofit: Cure Glioblastoma Advice she'd give to someone just starting their GBM journey & so much more Trigger warnings may include: caregiving, end of life, life/milestones/reality without a loved one, grief, and realizing how much in common everyone going through glioblastoma has with each other. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Dave Bolton remains in the top 2% of the world's survivors after given 3 months life expectancy in 2015. He is an 8+ year cancer survivor, helped heal himself with fitness and meditation, has started a charity to help others around the globe, and is an advocate for all those living with brain tumors. On this episode, you'll hear us chat about: Dave's eclectic career background How he found healing with fitness and meditation His nonprofit: Ahead of the Game How his family/home life changed before and after cancer How he continues to advocate for people with cancer & so much more Trigger warnings may include: depression, anxiety, caregiving, end of life, car accidents, traumatic injuries, and losing the "what dog should we get?" debate with your spouse. SEASON SPONSORS: Biodexa Pharmaceuticals, GammaTile, Novocure, and Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

Dr. Randy D'Amico, Director of the Brain and Spine Metastasis Program at Lenox Hill Hospital joins us on Episode 2 of Glioblastoma aka GBM to discuss: The ins and outs of glioblastoma Upcoming developments in neurosurgery His life as a neurosurgeon, and his past-life as a punk band member The future of brain tumors The importance of passion in the medical field & so much more Trigger warnings may include: medical procedures, surgery, and tattoos looking different as you age. SEASON SPONSORS: BIODEXA PHARMACEUTICALS, GAMMA TILE, NOVOCURE, AND ROON. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

To kick off the SECOND season of Glioblastoma aka GBM, we're joined by Paolo Presta as he shines a light on his experience as a caregiver when his mother was living with a glioblastoma diagnosis. On this episode, you'll hear us chat about: Paolo's experience as a caregiver Different stages of the grieving process Paolo's relationship with his mom, and the special relationship they shared Our thoughts/experiences on staying connected to those that have passed away Which our favorite Broadway musical is & so much more Trigger warnings may include: grief, death, caregiving, end of life, and Hamilton not being the favorite musical of choice. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat, diagnose, or prevent any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“No matter what clinical trials are conceptualized, no matter what different projects and drugs are developed, you need research to get to a place where these things are thought up, where things are coming into existence.” During her experience with glioblastoma as a caregiver, there were many things Amber Barbach wished she had. Now, she's giving those things to others so their experiences won't reflect hers. In this season finale of Glioblastoma AKA GBM, Amber talks about how her family dealt with her father's diagnosis and subsequent surgery. She peels back the curtains on founding GBMRO.  Hear me talk about: Finding out. My dad and I didn't have the best relationship growing up, but after I left home, we built a foundation for a great one. I didn't know he had cancer until my mom called me months after the diagnosis to tell me he'd just had surgery for a brain tumor. I was in total shock. I'd been teaching in Spain at the time, but I immediately took the next flight home.  Complications. I found my dad halfway off the bed when I finally went upstairs. The hospital had sent him home two days after the surgery. My mother and I had to call an ambulance to take him back to the hospital the next day, and getting him back into proper care was a nightmare. They did another MRI, found that he had a brain tumor. I couldn't process any of it. My dad's stubbornness. During his stay at the hospital, my father was advised to call the nurses when he needed to use the bathroom. He didn't like that. He attempted to go by himself, which ended in disaster. At home, he was advised to use his walker. He didn't. This resulted in a trip to the hospital for a head injury that thankfully didn't cause any brain bleeding.  Hospice care. He gradually became more ill, due to a lack of treatment for various reasons, to the point where we had to hire a private nurse to take care of him when we couldn't. It was very stressful being a caregiver at 22 years old, but I committed to it. Eventually, my mother and I decided to put him in hospice care. Neither of us were there when he passed - I think he wanted it that way.  Starting the nonprofit. I was, understandably, a mess after my dad died. It had been the worst year of my life, and I was so affected that I didn't want anyone to ever have to deal with a situation like this. I started looking into nonprofit organizations focused on glioblastoma. They were very few in number. I thought to myself, if you want something done right, you should do it yourself. And so I started the nonprofit. It was an effort to build what I didn't have in hopes that I'd be able to help people with community, information, and overall support. What's Next? The next project GBMRO has been working on is a pediatrics project. They are tentatively partnering with another great nonprofit to do a collaborative grant. “My goal is to make brain cancer as aware in society as breast cancer is,” Amber Barbach shares.  As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“We really imagine this place at the fundamental level as an online sanctuary… you're guided by both medical experts and by other people that you know have been there and want to pay it forward.” Vikram Bhaskaran and Rohan Ramakrishna saw the online healthcare experience and politely said “thanks but no thanks.” Troubled by the lack of information and support for glioblastoma patients and caregivers, they created Roon, a platform that is re-imagining medical content and health communities. Vikram and Rohan join Amber Barbach on Glioblastoma aka GBM to discuss Roon, its mission, and how it's changing the game for navigating glioblastoma. Hear us talk about: Roon. Roon is a medical Q&A platform patients and caregivers navigating glioblastoma can visit to find information, community, and support. Driven by a multidisciplinary team of doctors, patients and caregivers, Roon gathers them all in one place to make a patient's and caregiver's experience much easier. There are questions only doctors can answer, but patients and caregivers, having lived the experience of the disease, also share helpful insights and suggestions about the non-medical aspects of navigating glioblastoma. Roon's down-to-earth approach to disseminating information. Medical professionals often say not to go to Google when you leave the clinic as people come back more overwhelmed and misinformed, but where else are patients and caregivers supposed to access information? Even so, Google and all the medical websites it shows aren't particularly helpful when it comes to glioblastoma. Roon aims to correct that with its easy to use features and its interdisciplinary team of glioblastoma experts. Dividing the experience. Content is typically shared for both caregivers and patients who use Roon, unless specifically directed at either group - for example, only caregivers have access to Roon's Caregiver Resource. There are subtle differences in the ways caregivers and patients are addressed individually, because the people at Roon understand that everyone's experience is fully different. They curate a place for everyone's particular situation. Creating a new experience. “[Our team is] really tired of the internet as being a source of disinformation and misinformation,” Rohan shares. “They're really excited about creating a new online healthcare experience where they can foundationally be a part of it.” They are personally handcrafting content because they want the experience for patients and families to be different from what it currently is, he adds.  Moving forward. Vikram and Rohan plan for Roon to grow beyond the small community it is today. Imagine a world where, after receiving a glioblastoma diagnosis, your doctor directs you to Roon, where every GBM expert in the world is sharing information - that's the world they want to create. They hope to make it even more accessible by going global and translating the platform into several different languages.  What's Next? Rohan Ramakrishna is co-founder of Roon, Chief of Neurological Surgery, and Associate Professor of Neurological Surgery at Weill Cornell Medicine. Vikram Bhaskaran is co-founder and CEO of Roon, board member at the Museum of Food and Drink, and former Head of Partnerships, Creators and Content at Pinterest. Their current goal is to grow the community of experts at Roon. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team. Resources Rohan Ramakrishna on LinkedIn Vikram Bhaskaran on LinkedIn Roon

“Any time anything really bad is happening, I always say ‘it doesn't matter - it's not like glioblastoma.'” The agony of slowly watching a parent die from brain cancer is unlike any other. Glioblastoma is a uniquely painful and haunting experience, and siblings Meghan and James McCain know it better than anyone. Their father, former politician John McCain III, died of glioblastoma in 2018, changing their lives forever. James and Meghan join Amber Barbach on Glioblastoma aka GBM to share their experience of losing a parent right before your eyes, and how they live with the grief.  Hear us talk about: Living with grief. Meghan sees her grief as a demon she can't get rid of and has to live with. “I contain it, but that doesn't mean there aren't moments where it's encompassing my life,” she shares. Over the years, it's grown softer and quieter, but it still lingers and flares up at weird times. It's not easy - just easier to handle. “You'll be great, and then you hear a song that reminds you of them, and all of a sudden you're like ‘oh, this sucks.'” Leaning on Meghan for support. Despite his military training and experience, James was a wreck when it came to keeping himself together throughout their father's last days. Per his own request, a film crew came down to Sedona to capture the end of John McCain's life and his experience with glioblastoma. Meghan was a fixture in this venture, and her purposeful direction provided a sort of silent support for James to lean on.  The power of pain as a tool for connection. Pain takes so much from you, but it can also give. For instance, because of Meghan's experience with glioblastoma, she was able to connect a viewer with the disease with her favorite artist, Taylor Swift. She also got to meet Colin Gerner, a previous guest of AKA GBM and advocate for the disease. “It's dark, but it's beautiful,” she says. “Pain can unite us as well, so it wasn't all bad. This diagnosis… is just the worst; it's horrible, it's so hard, and it's scary, and being able to bond with people over that intensity is a blessing.” James' grief journey. It hasn't been easy recently, especially with his father's death anniversary coming up later this month. Every day was an obstacle to overcome, and he was already high-strung when, at the worst possible timing, his dog died. Grappling with both losses was too much. “[That] night I was in the laundry room… and I'm bawling,” he shares. “It comes and goes like waves… I don't think about it, and I think I'm doing great… and then I feel like a sledgehammer hits me, and I fall apart.” A lesson learned despite, or perhaps due to the tragedy. Watching their father die from glioblastoma brought a deeper perspective to Meghan's life. Health really is the ultimate blessing, and the things that truly matter are family, friends, and living a purpose-driven life. What's Next? Meghan McCain is a television personality, columnist, and author. James McCain has been accepted to attend OCS and become an officer in U.S. Army Intelligence. They carry on their father's legacy and memory in their hearts and minds every day.  As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“It's about figuring out how to work with an individual, how to balance out the body and then get them to adapt to changes.” The answer to healthy living may be right within us all along. Tiffany Meyer is a firm believer in a holistic approach to healing the root causes of health issues, rather than slapping on band-aids. As a certified Oncology Nutrition Consultant (ONC) and Functional Nutrition Therapy Practitioner (FNTP), she works with clients to support them in meeting their health goals. Tiffany joins Amber Barbach on Glioblastoma aka GBM to share insights on how she treats cancer patients and shed light on the importance of balance within the body.  Hear us talk about: Understanding functional nutrition. Functional nutrition seeks to treat specific health issues by naturally balancing out the body. For example, in treating eczema, a functional nutrition therapy practitioner would investigate food intolerances and gut health. Functional nutrition doesn't just provide you with a supplement in place of a medication - it gets to the root of the problem and smooths it out. How Tiffany interacts with clients. She doesn't tell her clients what they should and shouldn't eat, instead Tiffany works with them to understand how they feel and what they are willing to do. She guides clients along the decision making journey, leaving the final decision up to them. The only requirement, however, is for vegans and vegetarians. “If you're going to work with me,” Tiffany tells them, “I'm going to request that you adapt to eating red meat, even if that starts in supplement form.”  Why you should sit down to eat. If you're eating on the go, your body is in a sympathetic state and can't do what it needs to to digest your food. Tiffany suggests a method you can use to get your body into a parasympathetic state. Lay on the floor, put your feet up on the couch so that your knees are above your heart, and take a few deep breaths before you sit down to eat - this calms you down from whatever you were doing before, and preps your body for digestion. Gradual change vs. rapid change. Changing lifestyle habits isn't easy, but that's a good thing. When you try to quit cold turkey and drastically change everything you're putting in your body, it struggles to adapt for a few weeks because you are essentially going into shock. The best method is to gradually shift things - a capsule here, a smoothie there - until you build up to changing everything completely. It's about keeping your body balanced. Individualized treatment. No two people are the same, so why should their treatment be? Tiffany cultivates treatment plans for each client based on their specific needs and circumstances, because she understands that what works for one person may not work for another.  What's Next? Tiffany Meyer is a certified Oncology Nutrition Consultant (ONC) and Functional Nutrition Therapy Practitioner (FNTP). She is dedicated to designing individualized nutrition and lifestyle recommendations for each client, helping them heal their bodies from the inside out. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“Make memories, take pictures, do videos, and tell people you love them, because we never know how long we're here for.” When their youngest son, Liam, passed from glioblastoma, Oscar and Tracy Gill were devastated. Things were already tough with their decision to get divorced, but they gave their marriage one last chance when Liam was diagnosed. The painful journey of watching their child die tied their family tighter together, and though Liam is no longer with them physically, they feel his impact in their lives every day. Tracy and Oscar join Amber Barbach on Glioblastoma aka GBM to talk about their experience as caregivers and parents of an infant glioblastoma patient, and how they coped with the loss of their child. Hear us talk about: The first signs. When Liam first started feeling pain from the tumor in his brain, Tracy thought he was throwing a tantrum. He was behaving erratically but because of his speech issues, he wasn't able to communicate that something was wrong. Oscar found him in bed, unresponsive, and immediately called for Tracy. They eventually took Liam to a children's hospital, and it went downhill from there. Getting the diagnosis. The nearest hospital was ill-equipped to treat Liam, so they had to transfer him via helicopter to another one. The doctors explained that there was a mass in Liam's brain that was hemorrhaging and did their best to operate on him. Within a week they received the news: Liam had grade 4 glioblastoma.  Liam's deteriorating condition. He was admitted to the hospital and received chemotherapy, and even got to go back home for Tracy's birthday, but he was soon taken back after suffering a seizure. Liam celebrated his third birthday at the hospital with his family and other patients, but two months later, the doctors were rushing his Make A Wish visit. His prospects had gone from a 50/50 chance of recovery to a 10% chance. Months later, he passed, leaving grieving parents and siblings. Coping with their loss. Tracy and Oscar's family and friends were by their side throughout Liam's treatment and after his death. Still having to parent their other children was hard after losing Liam, and they were wracked with guilt, but they pressed on because they couldn't stop being parents. Navigating all their grief was a challenge they tackled hand in hand. Ways they found strength and comfort. The Gills are a praying family, and they have the utmost faith they'll see Liam again in heaven. In addition to prayer, they practice checking in with each other often and communicating their feelings.  What's Next? Oscar and Tracy memorialize and celebrate Liam's life with their page Liam Bear Strong, where they share updates about their grief journey and raise awareness for childhood cancer. Tracy is specializing in child development in hopes to help children through grief. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“Just providing togetherness and hope and understanding to a family who's going through this at any stage of that continuum, is probably the most powerful thing.” Colin Gerner had no idea what glioblastoma was until he lost his brother to the disease. Now, he's helping people across the country gain access to resources, information, and support. He is the President and co-founder of StacheStrong, a nonprofit that started as a silly but powerful stand of solidarity with his brother as he went for surgery. Colin is joining Amber Barbach on Glioblastoma aka GBM to talk about his experience as a caregiver, and how he used his grief to push for change and advancement. Hear us talk about: Colin's first encounter with glioblastoma, and how he founded his nonprofit. He was unfamiliar with the disease until his older brother, who was 28 at the time and seemingly healthy, had a seizure in 2017. After over 10 hours in the hospital, they discovered a mass on his brain larger than a golf ball. Against all hope, it turned out to be cancerous. He shaved down his facial hair to a little mustache going into surgery, and Colin followed suit in solidarity. It became a silent show of support between them, and inspired the creation of StacheStrong. StacheStrong's breweries. One of their biggest campaigns is Brew StacheStrong - where hundreds of participating breweries across the country brew a collaboration beer and donate a dollar per pint. Now, over 300,000 pints are brewed annually, and every dollar goes directly towards research and clinical trials. StacheStrong's impact. Since inception, StacheStrong has funded 17 research grants. Colin hoped that this advancement of research would buy his brother more time. Sadly it did not, but Colin still takes pride in what StacheStrong has been able to accomplish. “Hopefully we're moving one step closer to ensuring the next set of brothers, the next family that goes through this, has a potential resource and clinical trial and breakthrough that's going to help them.” Colin's outlet for grief. Everyone grieves differently, and Colin considers himself fortunate to have StacheStrong as an outlet to carry on his brother's memory. “I grieve through driving this forward,” he shares, “... Fighting for change in advancement and research is what we need to hopefully make sure that that loss wasn't happening in vain.” Meeting people where they are. Colin has been able to do this through his nonprofit. He has built a community where people can share their struggles, give each other support, and access resources to help them.  What's Next? Colin Gerner is President and co-founder of StacheStrong, a nonprofit devoted to raising funds and awareness for brain cancer research. StacheStrong has raised over $2,000,000 and funded 17 research grants at top institutions since its inception. Their brewery collaboration, Brew StacheStrong, happens in the spring. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“I believe a combination immunotherapy approach for glioblastoma will be curative…it's just a matter of getting big companies to work together and getting the funding together.” Shawn Carbonell MD, PHD, has high hopes for developing the cure to glioblastoma… but low funding. Shawn, co-founder and president of Cure Glioblastoma, is considered The Brain Surgery Dropout across social media. He left neurosurgery training to invent a new drug for brain cancer, which is now in phase one clinical trial for recurrent high-grade gliomas and glioblastomas. Shawn is joining Amber Barbach on Glioblastoma aka GBM to talk about his experience as a neurosurgeon in training, how his nonprofit is carrying out its mission, and details about his drug. Hear us talk about: Discovering a molecule. According to Shawn, this occurred with a little luck and a little bias. He didn't discover the molecule itself, one of his PhD advisers did; he noticed its function in brain cancer. He went into Oxford studying glial cells with none of the biases of the field, opting to use a top-down approach rather than bottom up, to be open to all possibilities. While observing and analyzing human and animal tissues, he hypothesized that the cells were doing something that might have involved the molecule that his mentor discovered. It was verified with a few experiments. Developing the drug. Shawn's career took a few turns after his discovery blew up, leading him to leave the neurosurgery residency to start a biotech company, OncoSynergy. His goal was to develop a drug against the molecule, but there were no resources to aid him in LA at that time. He moved to San Francisco, and got a second postdoctoral degree at UCSF, where he was able to develop the drug as a spinout. It was a seven-year process to get to a manufactured drug and a vial from an idea, then another year after that. The trial was delayed a year due to COVID-19, then the first patient was enrolled. The for-profit out of the nonprofit. Shawn launched a new biotech company called Brazen Bio as a completely separate entity partially owned by Cure Glioblastoma. It's an accelerator for new scientists to get their discoveries out of the lab and into the real world to benefit patients. “I created the program that I wish I had in 2009 when I was starting OncoSynergy… we really nurture these scientists and try to create scientist-CEOs.” The combination immunotherapy approach. The way forward for treating glioblastoma is a combination immunotherapy, multiple drug approach, Shawn claims. He believes that though it will take a lot of optimization, it will create enough synergy to teach the body's own immune system that glioblastoma cells are bad and to eliminate them. Those drugs already exist, and one of them is Shawn's very own, but the others are owned by Big Pharma A and Big Biotech B, who are resistant to cooperating for various reasons.  The power of social media. Shawn uses his TikTok platform to provide value to his audience, but he's still figuring out how to do it. His content is building a community of thousands of people who have been touched by glioblastoma in some way. Glioblastoma is a rare cancer in relation to other cancers, but that doesn't mean few people have it.  What's Next? Shawn has created the first biotech launch house, Brazen House, to accelerate new scientists in getting their discoveries out of the lab and into the real world to benefit patients. Resources Shawn on the web | LinkedIn | Twitter As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“I think it's time we shift a bit. Not saying that we stop focusing on those important cancers, but recognize that there are other forms of cancer, albeit more rare, that still need attention, funding, and brilliant minds for research.” Dr. Ricardo Komotar knew he wanted to study neuroscience as early as the 9th grade. He is a member of the Glioblastoma Research Organization's Medical Advisory Board, and a prolific, internationally recognized leader in the field of brain tumors. Dr. Komotar is joining Amber Barbach on Glioblastoma aka GBM to share a neurosurgeon's perspective and expertise on glioblastoma.  Hear us talk about: How people make their way to neurosurgeons. Most of the referrals neurosurgeons get, Dr. Komotar says, are at their endpoint. Neurosurgeons are typically not the ones making the diagnosis or ordering the MRI scans: about 95% of patients develop symptoms such as a seizure, visual changes, or confusion headaches, and they get worked up by their primary care doctor, neurologist, or oncologist, who orders the MRI. Once there is a tumor, patients typically get sent to the neurosurgeon for evaluation to see if they need surgery. The protocol for a GBM diagnosis. When discussing a glioblastoma diagnosis with a patient out of surgery, the care team needs to take a team-based approach. If the patient has a potentially malignant glioma, they meet with the neurosurgeon, the radiation oncologist, and the medical neuro-oncologist, who is the one who breaks the news. This is because the medical neuro-oncologist has the most expertise in the treatment, and can answer all the questions a family is going to have. The challenge in tracking GBM. Identifying the key mutations that lead to glioblastoma multiforme is difficult because there are so many different types. Glioblastoma is a catch-all term for people who have this type of disease, but the reality is each patient's glioblastoma is unique. Until doctors and scientists discover why that is, there's going to be a problem - because the same treatment is being used for different tumors. “I think as soon as we can figure out what makes each person's tumor so specific and we can give targeted therapy, that's when we're gonna have breakthroughs.” Mutations. Given enough time, all gliomas will eventually degenerate into a grade four. A glioma is a primary brain tumor - it starts in the brain and stays in the brain. Even the low-grade tumors are mutating, albeit slower than a grade three or four. Over time, they mutate into a more malignant form. Why other cancers get more attention than brain cancer. Other cancers like lung cancer, breast cancer, and colon cancer are the most common types of cancer, and as such, affect the most people. They get large amounts of funding because they constitute a public health issue. Research and treatment of these common cancers have advanced because of the amount of funding, attention, and brilliant minds that have gone into it.  What's Next? Dr. Ricardo Komotar is a member of the Glioblastoma Research Organization's Medical Advisory Board, and a professor of Clinical Neurological Surgery, director of Neurosurgery Residency program, director of the Brain Tumor Initiative, and director of Surgical Neuro-Oncology program at the University of Miami Health Systems Sylvester Comprehensive Cancer Center. Resources Dr. Ricardo Komotar on the Web | Instagram As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“My mom was like ‘Absolutely not, we are not telling a child he has 6 months left to live,' which I think played a huge role in [me] staying positive.” David is one of the longest surviving patients of glioblastoma in America, beating all the odds stacked against him since he was a child. He is joining Amber Barbach on Glioblastoma aka GBM to talk about his experience as a three-time survivor, how the support of his friends and family pushed him through, and the importance of being your own advocate. Hear us talk about: David's first diagnosis. David was a healthy child who never got sick, until he got sick. When he was 10, he started getting headaches and deja vu so bad they caused him to vomit - even touching his head induced severe pain. A CT scan that showed a brain tumor. After taking many other tests and being admitted to the hospital, David was scheduled for a surgery to remove his tumor, and it was successful - so successful that the neurosurgeon claimed it was the easiest surgery he had ever done because the tumor fell out of his skull due to its fully encapsulated nature. The pathology of the tumor revealed that it was stage four glioblastoma, and the doctor's diagnosis was that David would only have six more months to live. His mother informed him of his cancer but refused to let the doctor tell David that his days were numbered. The return of the tumor. David's headaches and deja vu episodes came back with a vengeance, and it was discovered that the tumor had returned, bigger than it was before. Surgery was performed, but his chance of survival was even lower this time. Not one to be deterred, David's mother thanked the doctors and respectfully decided to get a second opinion. He was put in a clinical trial at Duke for a new type of treatment, and the positive attitudes of everyone around him kept him grounded and stable. He gradually got better. More cancer. The year was 2019, and David started getting pain in his jaw. At first thinking it was TMJ, he went to a specialist who told him he had a severe underbite and needed total jaw realignment surgery. Knowing that underbites were either hereditary or caused by a severe contact injury, none of which applied to him, he got a second opinion, which led to an MRI. The MRI showed that there was a tumor the size of a baseball at the base of his skull. He had a biopsy done, and it revealed that it was radiation-induced osteosarcoma. Experiencing chemotherapy as an adult was a stark difference from when he was a child. There were moments where he faltered in spirit, but he quickly snapped out of the ‘why me' spiral. Being your own advocate. If a surgeon or doctor says something to you that you don't agree with, just know that there are millions of them on the planet - you are bound to find one that's willing to help you. Don't just roll over and accept whatever you're told.  Finding positivity. It is absolutely essential in the midst of any adversity to find positivity, David shares. Some people might handle it through humor, meditation, exercise - as long as you find an outlet to channel what you're feeling into something positive, you will feel more complete. “Cancer is already going to change your life as it is through your health, but it doesn't have to change who you are spiritually or mentally, emotionally.” What's Next? David Fitting is an ambassador for the Glioblastoma Research Organization, who has given hope to people all around the world. He's passionate about motivational speaking and sharing his story to inspire others. As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

One of the main things that affect individuals caring for a loved one suffering from Glioblastoma is the huge amount of time spent on that care: it becomes overwhelming. From handling anxiety to managing burnout to making sure you're getting enough sleep and building a good relationship with medical services providers of your own, today's guest has the insight you can use. Dr. Stephanie Silberman is a sleep psychologist with a great deal of experience working with caregivers, she is here to talk to us today about taking care of yourself while you're taking care of a loved one.  Hear us talk about: Why burnout is so common among glioblastoma caregivers. The people who need care need a lot of it, and that takes a lot of time - and a huge adjustment of normal routines. Dr. Silberman talks about why it's critical to continue to prioritize self-care and normal activities. The extra difficulties that come from being a sole caregiver. Often caregivers don't want to be a burden on their friends and families. “People like to help others,” Dr. Silberman argues. People are more than happy to support a sole caregiver - friends, distant family, community and even specific organizations are there to provide support.  The many benefits of therapy for helping to process the diagnosis and the realities of caregiving. Being open to receiving that kind of professional help can be a major benefit, and have impacts that go beyond the immediate situation. Where boundaries can and should exist in the caregiving relationship- between the patient and caregiver, and the caregiver and the rest of the world. Specific techniques for anxiety that caregivers can help bring some peace, and significantly more relaxation. Sleep is also imperative and Dr. Silberman shares how your sleep can impact your emotion and cognition as well as your physical wellbeing. How we can be damaging our sleep without realizing it, and some of the steps to take to prevent occasional insomnia from becoming chronic. Dr. Silberman also talks about how it's important to try non-pharmacological methods first, as medications that help you sleep can cause dependence.  Why journaling can be very helpful - but can also be damaging if you're approaching it from the wrong angle, or without a specific goal. How to evaluate a relationship with a new medical services provider - the person who is supposed to be helping you should understand you, care about your story and make you feel comfortable. Dr. Silberman notes it is also important to make sure you are investing enough time to really establish a fit. Resources Dr. Stephanie Silberman on the web Facebook Twitter The Insomnia Workbook

“[When] you know that your life is a risk, that you're gonna die and if you don't [then] it's a miracle… you change and you find the value of what really matters.” Glioblastoma changes things not just for the diagnosed patient, but for everyone around them, and it can be easy to lose hope when faced with its incurable nature. This wasn't the case for Chef Lorena Garcia and her family, however. When glioblastoma hit her brother Carlos, they hit back harder with faith and food. A world-renowned culinary master and owner of multiple restaurants, Chef Lorena Garcia is a firm believer that food heals more than the body. She is joining Amber Barbach on Glioblastoma aka GBM to talk about how food intersects with physical and spiritual health, her experience as a caregiver, and how glioblastoma changed her family's life. Hear us talk about: The correlation between food and health. What you eat is not only reflected in your mood, but also in the way you view yourself. Food is a big part of healing the mind, body, and soul, Lorena claims. It's more than just eating right for your body - you even develop relationships over sharing meals. Everyone is more open to ideas while breaking bread than they would be if they were stuck in a stuffy office.  The strict diets doctors instruct patients to adhere to. Of course, the advice of medical professionals should always be considered, especially when it comes from your primary care physician, but having comfort food here and there in moderation is also okay. “My brother's diet was very balanced, but I was [also] able to comfort him with things he liked,” Lorena shares. Lorena's experience with her brother Carlos' treatment. His first operation was not successful, but their family didn't give up. When the doctor gave them a prognosis without hope, Lorena ran in the other direction to find someone who had it. Fortunately, she was able to find a “dream team” of doctors dedicated to helping her brother live on.  How the experience changed her life. Being Carlos' caregiver gave her a better perspective of the things that truly matter in life, and in their family's resolve to fight glioblastoma with him, they drew closer. They often spend time together just talking, eating, and feeding the soul.  An important lesson Lorena learned. Everybody stumbles from time to time, she says, and along that journey you find pieces of wood that you either have to burn or jump over - but at the end of the day, they're all part of the same fire.  What's Next? Chef Lorena Garcia, alongside the University of Miami and the GBMRO, have launched a brain cancer research project named Project Garcia, in honor of her brother Carlos. The project aims to improve treatment methods and options with novel research.  Resources Chef Lorena Garcia on the Web | Twitter As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“We really have to focus our efforts on blood brain barrier permeability - bypassing the blood brain barrier and then navigating the immune suppression of GBM.” There are many biological obstacles in the way of finding better ways to control, or even cure glioblastoma, says neurosurgeon Dr. John Boockvar, but hope is on the horizon. He is an internationally recognized professional known for his surgical expertise and safe, effective, and minimally invasive treatment for brain tumors, as well as a main character in Netflix's medical docuseries, Lenox Hill. He is joining Amber Barbach on Glioblastoma aka GBM to talk about his experience as a doctor treating glioblastoma, how the associated technologies work, and what moving forward looks like. Hear us talk about: John's experience with breaking the news to families. Getting a cancer diagnosis is devastating enough, but a glioblastoma cancer diagnosis is heartbreaking. John is a big proponent of giving families rational hope - he doesn't promise miracles, but informs them that there is hope against the disease and that improvements in the treatment are being made. The “aggressiveness” of glioblastoma cells. They grow like mold or weeds, John says. You can't control the spread despite your best efforts; glioblastoma cells spread uncontrolled, because doctors cannot get into the roots of the growth and pull it out.  Early warning signs. “Early detection starts with early surveillance.” Doctors can intervene when early low-grade gliomas that turn into higher-grade glioblastoma are identified. Surgeons can remove them before they transform.  The attainability of a “cure.” Much like there is no cure for high cholesterol or diabetes, there isn't one for glioblastoma. Instead, John's job is to find the drug that will control glioblastoma for the entirety of one's life. Lenox Hill on Netflix. John had the honor of starring in a docuseries about the ins and outs of his job. Because of the show's success, neuropsychological and neurological communities have been banding together on social media and sharing ideas. “We don't live in silos anymore.” What's Next? Dr. Boockvar is laser-focused in his approach to brain tumors. He's working with several people to combine MRI, ultrasound, and intra-arterial drug delivery technology to create an MRI guided focused ultrasound.   Resources Lenox Hill Neurosurgery Dr. John Boockvar on LinkedIn As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“We want all the answers, but that's why we're raising awareness: in hopes that we do get to that point where we get these answers for all of us that have questions.” This is a common sentiment among patients with Glioblastoma and their families, especially for Laura Dill, CEO of Slay Society. She is the daughter of parents who were diagnosed with Glioblastoma within 14 days of each other. She is joining Amber Barbach on Glioblastoma aka GBM to talk about her experience as their caregiver, how she coped during their treatment and after their deaths, and how her father's advice for handling problems became the name of her nonprofit. Hear us talk about: New discoveries about Glioblastoma. As far as experts know, it's not genetic, but there are genetic components to it - which is why they were shocked at Laura's parents' identical diagnosis.  Taking on the role of caregiver for both of Laura's parents, and the stress of having five dependents, including her three children. “About those concepts about using your grief as fuel and spirituality - nobody is in a place to think about spirituality when they first get that diagnosis.” Instead, she focused on one small thing she could control every day: having a glass of water. Circles of support. A patient is at the nucleus of their condition, and their caregiver is there to support them, but when the caregiver needs a caregiver, who's there for them? There have to be concentric circles of support stemming out from the patient, Laura says, to keep everyone as healthy as they can be. Important advice Laura applied throughout the GBM experience: do what comes naturally and ignore the rest. As a caregiver, you get a lot of well-intended but unsolicited advice on how to do your job, but Laura kept this advice in mind and acted with intention. Using her grief as a motivator to live her best life. “You almost feel obligated to do something good with the grief you had to experience.” What's Next? Laura's nonprofit, Slay Society, has finally been approved as a charity. Their mission is to raise money to support caregivers of patients with Glioblastoma, because caregivers are just as important as their patients - it's a team effort that helps everyone weather the storm. She encourages listeners to learn to accept help from whoever they can. Resources Slay Society Laura Dill on Instagram As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.

“I feel like the luckiest dude in the world.” Maybe not a statement you would expect from someone with brain cancer, but it is how DJ Stewart, star of the documentary Rare Enough has felt at times since his diagnosis. He is a long term Glioblastoma Survivor, and he is joining Amber Barbach on Glioblastoma aka GBM to talk about his journey, and what he has learned along the way. Hear us talk about: The moment of receiving a bran cancer diagnosis, and how fast things can move once it happens. It came as a surprise after a previous sarcoma diagnosis and treatment, when it seemed like everything should be going back to normal. The importance of friends and family supporting you. “I was never without somebody, everybody. Friends were coming in - just an overload of love.” This is why he felt like “The luckiest dude in the world.” What it was like wearing the Optune Device, breaking several of them, and how it helped to treat the tumor while he was going about normal (for him!) activities. An important lesson from his grandmother: “When your grandpa got diagnosed, that was the day he started dying.” DJ decided he was going to go in the exact opposite direction. The determination to keep doing the things he loves, that are important to him, and that make life exciting, always with gratitude. What's Next? DJ plans to make a living in bran cancer advocacy and mental health awareness. His biggest reward has been the thousands of people that have reached out - and “There's nothing cooler than being able to help somebody who is going through some shit.” He reminds us to always find the positives.  Resources Rare Enough DJ Stewart on the web, Twitter As always, the information that is discussed in Glioblastoma AKA GBM is not meant to treat or diagnose any disease. What we and our guests share are personal stories of what has worked for the individuals in question, and should not be taken as medical advice or opinion, and is not a substitute for medical advice. If you have any questions about your own situation, always consult with your medical provider and healthcare team.