Podcasts about hepatoblastoma

Chelsi, mom of 5 year old Jazz who has Trisomy 18 (Edwards Syndrome), joins Extra To Love: A Trisomy Podcast to share her wisdom and perspectives on how Jazz's life has impacted their family, if this journey is worth it, the importance of connecting with the trisomy community and more. You definitely don't want to miss this episode! Follow Jazz's journey and connect with Chelsi on instagram @journey4jazz and Facebook: Chelsi Crawford  Extra To Love is a non-profit organization that aims to improve the lives of people with Trisomy 18 and Trisomy 13 by supporting their families. Through Extra To Love: A Trisomy Podcast, we hope effected families will be empowered, connected, supported and educated by hearing personal stories from parents and healthcare providers. To receive support or learn more about our mission, visit www.extratolove.org Follow us on socials!https://www.facebook.com/extratolovehttps://www.instagram.com/extratolovehttps://www.instagram.com/extratolovepodcast

In December of 2022 10 year old Ramie Darling Jr. was diagnosed with the Pediatric Liver Cancer Hepatoblastoma. HIs father Ramie will talk about his son's diagnosis which occurred in a hospital near their Florida home, but subsequently both father and son moved up to Boston where for the past 8 months  Ramie Jr. has undergone a very successful treatment protocol under the direction of Dr. Allison O'Neill at Boston Children's Hospital.Ramie will talk about his treatment and how well the Darling family, which includes his wife Katie and their 13 and 15 year old daughters, has been treated. Ramie Jr. has spent time at Patriots Training Camp with Quarterback Mac Jones and at Fenway Park with pitcher Garret Whitlock.

This week we're replaying a classic episode where your hosts Steve and Yvonne interview Bibi Fell of Fell Law, PC (https://www.fellfirm.com/).   Remember to rate and review GTP in iTunes: Click Here to Rate and Review   View/Download Trial Documents   Case Details: California trial lawyer Bibi Fell, a founding partner at Fell Law, PC and a partner at Athea Trial Lawyers, shares how she successfully represented a breast cancer patient who fell victim to the beliefs and unconventional cancer treatment of a New York Times bestselling author masquerading as a licensed doctor. Plaintiff Dawn Kali was diagnosed with treatable Stage 1 breast cancer and rejected traditional treatment options in favor of the "Father of the Alkaline Diet" Robert O. Young's "pH Miracle" approach, which focused on making the body less acidic and more alkaline. This process involved costly extended stays at Young's Rancho del Sol in Valley Center, California and expensive intravenous treatments that consisted of little more than baking soda. Unable to pay, Dawn worked for Young in exchange for treatments that were ultimately ineffective. After much time had passed, Dawn went to an oncologist and was diagnosed with terminal Stage 4 cancer that had spread to her spine and femur. At trial, Bibi Fell demonstrated that Young's "pH Miracle" treatment was neither scientifically nor medically sound. In spite of the defense's claims that Dawn was aware that Young was not a licensed medical doctor and that she was not prevented from seeking conventional medical treatment, a San Diego jury found in favor of Dawn for her claims against Young of intentional misrepresentation, negligent misrepresentation, false promise and negligence. In October 2018, the jury awarded Dawn a $105,356,000 verdict, including $15 million in punitive damages. Guest Bio: Bibi Fell Bibi represents plaintiffs who suffered catastrophic injuries or the death of a loved one. She is the Founding Partner of Fell Law, PC, in San Diego, California and is a Partner at Athea Trial Lawyers, a nationwide plaintiff's firm comprised of six prominent female trial lawyers. Bibi is one of the few women attorneys to have received a verdict over $100,000,000.00 as lead trial counsel. Bibi is a National Board Member for the American Board of Trial Advocates (ABOTA). Membership is extended by invitation only to lawyers who have demonstrated extensive trial experience, civility and professionalism. In 2018, Bibi was one of three finalists for Consumer Attorneys of California's “Consumer Advocate of the Year,” Consumer Attorneys of San Diego's “Trial Lawyer of the Year” award and received the “Outstanding Trial Lawyer” award and “Outstanding Advocate” award from Consumer Attorneys of San Diego. In 2020, she received the “Trial Lawyer of the Year” award from Pepperdine Law School. Bibi has also been selected to be a member of Lawdragon 500, The National Trial Lawyers: Top 100 Trial Lawyers, the Daily Journal's Top 100 Women Lawyers, and has been selected as a Top 50 San Diego Superlawyer and Top 25 Women Superlawyer. Bibi gives back by teaching Advanced Trial Advocacy at the USD Law, serving as the program director for the National Institute for Trial Advocacy's Pacific Deposition Skills program, and teaching trial skills through NITA around the country and internationally. Bibi devotes her time to serve as a “Parent Partner” to parents of children newly diagnosed with Hepatoblastoma, a malignant liver tumor found in young children. Read Full Bio   Show Sponsors: Legal Technology Services - LegalTechService.com Digital Law Marketing - DigitalLawMarketing.com Harris Lowry Manton LLP - hlmlawfirm.com   Free Resources: Stages Of A Jury Trial - Part 1 Stages Of A Jury Trial - Part 2

WATCH THE VIDEO WEBCAST HERE: https://youtu.be/yyQ08ny_hDU Join our host, Dr. Timothy Cripe from Nationwide Children's Hospital, as he's joined with Dr. Jim Geller from Cincinnati Children's Hospital to discuss his expertise in pediatric liver cancer - hepatoblastoma. In this episode, we are also specially joined by Kelly & Jessica Woolwine as they tell their story of how they navigated the hepatoblastoma landscape to seek treatment for their daughter, Charlotte. ----more---- Have any thoughts? Questions? Ideas for future topics? Email us at TWIPO@solvingkidscancer.org. Subscribe to TWIPO to get notifications of new uploads. Want to listen to TWIPO's past episodes? Visit www.solvingkidscancer.org/podcast

Jenny Olson's son Will was born 2 months early in January of 2008 and spent his first 61 days in a Newborn ICU Unit. 2 years later, he was diagnosed with Stage 3 Hepatoblastoma and went through a nine month treatment protocol. Will is now 15 years old, as he has been cancer free for over 12 years.  During Will's battle, Jenny decided to pursue a career in public speaking and becoming an advocate for pediatric cancer patients and their families, and she will tall about the many lessons that she has learned over the years. 

After hurting his leg as a sophomore in high school during a school football game in 2010, Ian Lock  went to his pediatrician who saw a dark spot on his leg while examining him. This spot turned out to be Osteosarcoma. Ian went through the usual difficult treatment for this most common form of bone cancer, and fortunately he did not suffer a relapse which so many Osteosarcoma patients do.Ian then decided to become an advocate through the American Cancer Society for Pediatric Cancer while still in high school and then while in college, decided to do research on such pediatric  cancers as Hepatoblastoma, Leukemia , and Osteosarcoma.Ian is now going after his PHD in Molecular Cancer Biology from Duke University and his career path is geared towards in some way helping Pediatric Cancer patients find an easier path to handle their own cancer battles.  

Hepatoblastoma is the most common form of Pediatric Liver Cancer. On today's podcast, Dr. Allison O'Neil who is the Director of the Liver Tumor program at the Dana Farber Cancer Institute and Doctor's Pei Wang and Nicole Nunez from Eureka Therapeutics will give expert tutorials from the medical side about this rare form of pediatric cancer. From the family side we will hear from Christina and Cody Stiverson and Kathy and Ben Braden who will talk about their respective daughters Adelaide and Avery, who both were diagnosed with this disease. 

This week, your hosts Steve Lowry and Yvonne Godfrey interview Bibi Fell of Fell Law, PC (https://www.fellfirm.com/)   Remember to rate and review GTP on iTunes: Click Here To Rate and Review   Case Details: California trial lawyer Bibi Fell, a founding partner at Fell Law, PC and a partner at Athea Trial Lawyers, shares how she successfully represented a breast cancer patient who fell victim to the beliefs and unconventional cancer treatment of a New York Times bestselling author masquerading as a licensed doctor. Plaintiff Dawn Kali was diagnosed with treatable Stage 1 breast cancer and rejected traditional treatment options in favor of the "Father of the Alkaline Diet" Robert O. Young's "pH Miracle" approach, which focused on making the body less acidic and more alkaline. This process involved costly extended stays at Young's Rancho del Sol in Valley Center, California and expensive intravenous treatments that consisted of little more than baking soda. Unable to pay, Dawn worked for Young in exchange for treatments that were ultimately ineffective. After much time had passed, Dawn went to an oncologist and was diagnosed with terminal Stage 4 cancer that had spread to her spine and femur. At trial, Bibi Fell demonstrated that Young's "pH Miracle" treatment was neither scientifically nor medically sound. In spite of the defense's claims that Dawn was aware that Young was not a licensed medical doctor and that she was not prevented from seeking conventional medical treatment, a San Diego jury found in favor of Dawn for her claims against Young of intentional misrepresentation, negligent misrepresentation, false promise and negligence. In October 2018, the jury awarded Dawn a $105,356,000 verdict, including $15 million in punitive damages.   Click Here to Read/Download the Complete Trial Documents   Guest Bio: Bibi Fell Bibi represents plaintiffs who suffered catastrophic injuries or the death of a loved one. She is the Founding Partner of Fell Law, PC, in San Diego, California and is a Partner at Athea Trial Lawyers, a nationwide plaintiff's firm comprised of six prominent female trial lawyers. Bibi is one of the few women attorneys to have received a verdict over $100,000,000.00 as lead trial counsel. Bibi is a National Board Member for the American Board of Trial Advocates (ABOTA). Membership is extended by invitation only to lawyers who have demonstrated extensive trial experience, civility and professionalism. In 2018, Bibi was one of three finalists for Consumer Attorneys of California's “Consumer Advocate of the Year,” Consumer Attorneys of San Diego's “Trial Lawyer of the Year” award and received the “Outstanding Trial Lawyer” award and “Outstanding Advocate” award from Consumer Attorneys of San Diego. In 2020, she received the “Trial Lawyer of the Year” award from Pepperdine Law School. Bibi has also been selected to be a member of Lawdragon 500, The National Trial Lawyers: Top 100 Trial Lawyers, the Daily Journal's Top 100 Women Lawyers, and has been selected as a Top 50 San Diego Superlawyer and Top 25 Women Superlawyer. Bibi gives back by teaching Advanced Trial Advocacy at the USD Law, serving as the program director for the National Institute for Trial Advocacy's Pacific Deposition Skills program, and teaching trial skills through NITA around the country and internationally. Bibi devotes her time to serve as a “Parent Partner” to parents of children newly diagnosed with Hepatoblastoma, a malignant liver tumor found in young children. Read Full Bio   Show Sponsors: Legal Technology Services - LegalTechService.com Digital Law Marketing - DigitalLawMarketing.com Harris Lowry Manton LLP - hlmlawfirm.com   Free Resources: Stages Of A Jury Trial - Part 1 Stages Of A Jury Trial - Part 2

Hepatoblastoma is the most common malignant liver tumor in the pediatric population but treatment strategies have changed dramatically over the past couple of decades so today we will review the basics of hepatoblastoma with Dr. Greg Tiao, MD - pediatric transplant surgeon at Cincinnati Children's Hospital Medical Center.

I'm so thankful to have Lauren Gilley on the episode today to share her experience and story as a first time mom to Ruby who recently completed treatment and is in remission from stage 4 Hebatoblastoma! Lauren talks about how they first discovered Ruby's diagnosis, how even during chemo Ruby was hitting milestones like walking, gaining weight, and starting to talk and how absolutely resilient Ruby was throughout the whole process. Lauren also opens up about trying to find other parents with kids that have or had this type of cancer since it's so rare, how relating to other parents was extremely difficult and how little childhood cancer is researched compared to adult cancer. Her and Ruby are truly so inspiring and Lauren's outlook on this whole experience is incredible. You can follow her for updates on Ruby @laur_gilley on Instagram & Twitter Follow us to keep up with guests and new episodes on Facebook and Instagram @canceractuallysuckspodcast

Chrissy Blumenthal grew up in Arvada, Colorado.  She describes her childhood as pretty normal and uneventful until her parents divorced when she was nine years old.  Her mother struggled to make ends meet and tried to provide the best she could for Chrissy and her older brother Gary.  After high school, Chrissy took on a number of odd jobs to support herself, including a stint in mud wrestling.  At age 20, she gave birth to her first son, Cody, and shortly after his birth, she put herself through art school earning an associate’s degree in the music business.  After graduation, she moved to Los Angeles with her then, 2-year-old son, Cody, and she began her professional career at Columbia Pictures. She was a single mother for 12 years until she met and married her best friend, a successful film producer and writer, Jason Blumenthal in 1999.  Together they had two kids, Jax and Calli.   Life felt like a fairy-tale until the summer of 2013 when her world came to a screeching halt.  Four words forever changed her life:  YOUR CHILD HAS CANCER.  Jax was just 11 years old when he received the devastating diagnosis. Her son had stage 3 hepatoblastoma (cancer of the liver).  Chrissy immediately jumped into the most important role of her life, caretaker, healer, medical advocate, and research fanatic.  After a very long, turbulent, and uncertain road that included a liver transplant, lung resections, and chemotherapy, Jax is finally cancer-free. During their journey, Chrissy became passionate about raising funds and awareness for pediatric cancer research, which is profoundly underfunded by the government.  She now serves as President at Chords2Cure, a non-profit centered around live music events which benefit pediatric cancer research. Chrissy currently lives in Brentwood, California with her husband, two teenagers, two dogs, and a French lop bunny. During Covid, Chrissy was thrilled to finally get a message that she had been waiting over 2 decades to receive.  It was from the mother of Chrissy’s biological children, who were conceived via IVF with the eggs Chrissy donated 27 years earlier. The pregnancy resulted in twins, who have now grown into an awesome young man and wonderful young lady.  Her family has welcomed them all into their homes and into their hearts.  The family continues to grow because her firstborn son, Cody recently had an adorable baby girl named Arrow- officially making Chrissy a proud Glam-Ma.   SHOW NOTE LINKS:   Chords2Cure Website Chords2Cure on Instagram Chrissy’s Email The Wolf Connection     CONNECT WITH US! *Dear Family, Podcast Page *Write Now Rachel Website *Rachel's Blog @Medium *Rachel’s Twitter *Facebook *Instagram   PLEASE JOIN: *Dear Family Members, the Private Facebook Group     WAYS TO HELP THE PODCAST: *PLEASE Leave a 5-Star Review and Subscribe! Thank you! Your support means the world to me. Wishing you love, happiness, and good mental health always.

Pediatric surgeon David Magnuson, MD, and oncologist Stacey Zahler, DO, join Butts & Guts to share their unique perspectives on hepatoblastomas, rare liver tumors most commonly found in children ages 3 and younger.

WHAT YOU WILL DISCOVER Medicine:  Her premed prerequisites and change in plans after advice from her physician hubby Her thoughts about dating a medical student, resident, and attending Her journey as a parent of a 10 week-old baby diagnosed with a hepatic tumor Marriage:  How she met her anesthesiologist hubby Their belief in each other and unwavering support  Why working through disagreements may be the most beneficial choice Money: How they decide how much to donate to which charities The smartest financial (and non-financial) decision she had ever made  How the “soft space” allows her to take big risks for big rewards Real Estate:  How the pandemic has affected her decisions as a multifamily investor Pricing changes in real estate during the pandemic Why relationships are key in the success of a real estate investor  TAKE HOME POINTS FROM VEENA  Believing and supporting your spouse allows them to believe even more in themselves and this is what we want. We want to watch our spouse to be successful in whatever that means to them.  Find a partner that is good at something you are not good at so that you can collaborate and grow. Her businesses are successful because she focuses on the relationship side of her business more than anything else. She doesn’t mind giving up a little bit today to be successful in the future. We can all win as a team.  WALK AWAY ASKING YOURSELF Is my spouse my best friend? Do we have or need a check in amount for spending on frivolous things? Do I have donation rituals? Why do I choose to be married to my spouse everyday? Am I a soft space for my partner to land? Do I collaborate or compete?   FEATURED ON THIS SHOW Website: www.vivefunds.com Facebook: Veena Jetti Instagram: @veenajetti   *This podcast is a member of the Doctor Podcast Network.

2.-Tumores y neoplasias

In this episode Trina Peterson shares the snags they encountered during the first year of life with their 4th child. She shares how their baby girl was expected to be born healthy but was born with an unexpected tumor. As Trina and her husband navigate surgeries and chemo with their newborn daughter they learn many lessons through their journey and share them in this episode.

In early 2017 Julie Chessell's son, Brock, was diagnosed with Hepatoblastoma, a rare form of pediatric liver cancer. During our conversation we discussed: What motivated Julie to have Brock examined by a doctor. The treatments Brock underwent and what they did when the treatments stopped working. How the Chessell's faced Brock's diagnosis as a family. How Julie and her husband faced Brock's illness. How Brock came to meet when of his sports heroes. The work Brock and has done to raise awareness. Connect With Julie On Facebook: https://www.facebook.com/julie.l.chessell On Instagram: https://instagram.com/warrior.bossbabe WE Have Cancer Links Subscribe to the show - https://pod.link/wehavecancer Follow WE Have Cancer on Social Media Like our Facebook page - https://www.facebook.com/wehavecancershow/ Join our private Facebook group - https://www.facebook.com/groups/wehavecancershow/ Follow us on Twitter - https://twitter.com/wehavecancerpod Follow us on Instagram - https://instagram.com/wehavecancerpod Follow us on LinkedIn - https://linkedin.com/company/wehavecancer Know someone touched by cancer who has an inspiring story? Nominate a guest to appear on the podcast - https://wehavecancershow.com/guest Email Lee Lee@wehavecancershow.com

In January 2018, Will's pediatrician noted that he hadn't gained weight for a few months. Being cautious, the family was sent to the hospital under the assumption that William was having GI issues.Will was seen at the ER and the doctor ordered labs.The doctor felt William's belly after the labs had come back a little funny and it seemed a little swollen. However, these abnormalities could all be explained from a virus, since William had been getting over a cold. The ER doctor ordered an ultrasound as a precaution.The radiologist that conducted the ultrasound was the one who informed the Holbrooks that William had what appeared to be a large tumor on his liver.Jake and Stephanie met with doctors at the Jimmy Fund Clinic and had a CT scan the next day. They then learned that the cancer had spread to Will's lungs.His treatment has included chemotherapy and surgery.Will loves listening to music, dancing, and going for walks. He loves dinosaurs and balloons.Will had his last chemotherapy treatment on July 18.

In July 2016, Jack had been complaining of a stomach ache and was feverish. His mother, Brenna, took him to the pediatrician to be examined and hopefully receive a prescription.The doctor felt Jack's stomach and noticed a mass. He was immediately sent in for x-rays and then to the ER. Brenna initially thought that Jack had appendicitis. After undergoing CT scans, doctors informed Jack and his mother that he had tumors on his liver. He was diagnosed with Stage III hepatoblastoma.Jack has since undergone 6 rounds of chemotherapy. In October 2016, he received a liver transplant.Jack is being treated by Dr. O'Neill, who Jack says is always upbeat and positive. Dr. O'Neill always manages to put a smile on Jack's face and answers all questions with honesty and care. She is not only comforting for Jack, and also for his parents.Jack has a little sister, Clara, 2.While not at preschool, Jack loves to go to the playground, ride bikes, color, read, and learn about the solar system.

An interactive discussion between Todd Ponsky, MD and Max Langham, MD on the management of hepatoblastomas. Dr. Max Langham is a Professor of Surgery and Pediatrics and the Vice Chairman of the Department of Surgery at the University of Tennessee Health Science Center. Table of Contents 00:00 - Introduction 01:15 - Work-up of a newly diagnosed liver mass 04:20 - Differential diagnosis of liver mass 08:03 - Tumor biopsy 10:11 - Pretext staging system 14:43 - Upfront resection 16:18 - How to use the pretext system to determine resectability 20:14 - Annotation factors 22:25 - Histologic subtypes 25:17 - Management of unresectable tumors 28:44 - What makes hepatoblastoma high-risk? 30:52 - Approach to pulmonary metastases 34:01 - Chemotherapy regimen for metastatic hepatoblastoma 35:29 - Maneuvers to improve safety and success of liver resection 38:27 - Anesthesia care during resection 39:32 - Key surgical steps 41:58 - When to consider extreme resection and Vascular reconstruction 44:35 - Recurrent disease 46:36 - Post-resection care 47:49 - Management of pretext 4 lesions 49:45 - Summary Intro track is adapted from "I dunno" by grapes, featuring J Lang, Morusque. Artist URL: ccmixter.org/files/grapes/16626 License: creativecommons.org/licenses/by/3.0/

Hepatoblastoma is a malignant disease of the liver. It accounts for about 1 % of all childhood cancers and is the most common malignant liver tumor in infancy. Hepatoblastoma is assumed to arise from immature liver progenitor cells by aberrant activation of genes important in the embryonic development. Based on its early manifestation it is generally assumed that hepatoblastoma displays a relatively normal genomic background. Whole-exome sequencing performed in our group identified hepatoblastoma as one of the genetically simplest tumors ever described, with recurrent mutations in beta-catenin (CTNNB1) and nuclear factor (erythroid-derived 2)-like 2 (NFE2L2). Based on this finding we performed targeted genotyping of a large cohort of primary hepatoblastomas, hepatoblastoma cell lines and transitional liver cell tumors and identified CTNNB1 and NFE2L2 to be mutated in 72.5 % and 9.8 % of cases, respectively. CTNNB1 is a key effector molecule of canonical WNT signaling pathway, a pathway that is essential in organogenesis and cellular processes such as cell proliferation, differentiation, survival and apoptosis. However, NFE2L2 is involved in the activation of the cellular antioxidant response to combat the harmful effects such as xenobiotics and oxidative stress. Interestingly, all NFE2L2 mutations were located in or adjacent to the DLG and ETGE motifs of the NFE2L2 protein that are needed to get recognized by the KEAP1/CUL3 complex for proteasomal degradation. Functional analysis showed that cells transfected with mutant NFE2L2 were insensitive to KEAP1-mediated downregulation of NFE2L2 signaling and that depletion of the NFE2L2 via siRNA downregulates the NAD(P)H dehydrogenase (quinine) 1 (NQO1), a target gene of NFE2L2, and inhibits proliferation. In the clinical setting, NQO1 overexpression in tumors was significantly associated with metastasis, vascular invasion, the adverse prognostic C2 gene signature as well as poor outcome. RNA sequencing in our group identified the ubiquitin-like with PHD and ring finger domains 1 (UHRF1), a protein known to preferentially bind to hemi-methylated DNA, to be highly overexpressed in hepatoblastoma tumors. UHRF1 is as a key regulator in the epigenetic crosstalk, by controlling DNA methylation and histone modification. Using immunoprecipitation, we were able to show that UHRF1 binds in concert with DNA methyltransferase 1 (DNMT1) and ubiquitin specific peptidase 7 (USP7) as a trimeric complex to promoter regions of tumor suppressor genes (TSG) relevant in hepatoblastoma, such as hedgehog interacting protein (HHIP), insulin-like growth factor binding protein 3 (IGFBP3), and secreted frizzled-related protein 1 (SFRP1). These genes are epigenetically silenced in hepatoblastoma, as evidenced by heavy DNA methylation and enrichment of the repressive H3K27me3 and H3K9me2 chromatin mark. Interestingly, knockdown of UHRF1 expression via RNA interference resulted in promoter demethylation, but no reactivation of TSG gene expression. Additionally, no effect on tumor cell proliferation was observed after UHRF1 knockdown. Chromatin immunoprecipitation experiments revealed a decrease of the repressive chromatin marks H3K27me3 and H3K9me2 after UHRF1 depletion, but neither a clear shift towards the active H3K4me2 chromatin mark nor enrichment of RNA Polymerase at the TSG loci was observed. Statistical analyses revealed that a high expression of UHRF1 was associated with advanced disease state and a worse overall survival. Taken together our study demonstrates that activation of WNT signaling in concert with activation of the NFE2L2-KEAP1 pathway might be the driving force in the development of liver cancers. Moreover, we defined aberrant NQO1 expression as a marker for adverse course of disease and poor outcome. In addition, we showed that an aberrant expression of the epigenetic regulator UHRF1 and its excessive binding on promoter regions results in methylation of TSGs. This may represent an important mechanism in the initial phases of embryonal tumorigenesis. However, UHRF1 depletion alone was not sufficient to re-induce TSG expression. Therefore, UHRF1 might be more useful as a biomarker for the prognosis of hepatoblastoma than a direct anti-cancer target for hepatoblastoma therapy.

Myeloid leukemia (AML) involves an overgrowth of immature blood cells while myelodysplastic syndromes (MDS) concerns the bone marrow producing too few blood cells. MD Anderson Cancer Center is the world’s largest and most innovative practice for treating AML and MDS. Guillermo Garcia-Manero, M.D., professor in Leukemia at MD Anderson, discusses achievements made with this MD Anderson Moon Shots platform, including new research with immunotherapy and ways to make stem cell transplantation less toxic.

Episode 55: Today's podcast is about social work with children who have cancer, also referred to as pediatric oncology social work. Although pediatric cancer is relatively rare event, making up less than 1% of the cases diagnosed annually, that single case affects the lives of countless others. From a treatment perspective, when a child is diagnosed with cancer, the whole family is diagnosed with cancer. Children are most likely to get cancer in their first year of life, and least likely between the ages of 5 and 14. If you are white kid in the United States you are nearly two times more likely to get cancer than if you are black. One in 300 boys and one in 330 girls will develop cancer before the age of 20. Every year 2500 children die from cancers with names like Acute Lymphoblastic Lukemia (cancer of the bone marrow - the most common childhood cancer), Hepatoblastoma (cancer of the kidney), neuroblastoma (cancer of the central nervous system), Ewings sarcoma (bone cancer), Hodgin’s Lymphoma (cancer of the lymph nodes), and Wilms tumor (cancer of the kidney). Notice that the most common forms of adult cancer such as lung, breast and colon are not included on this list. And it is not just that children get some cancers and adults get others. Among children, the cancers most often found in infants and toddlers are not the same as the cancers most often found in teenagers. For children today, getting a diagnosis of cancer is not the death sentence it once was. Before 1970 most children who got cancer died. Today, survival rates are nearly 80%. Currently there are about 270,000 survivors of childhood cancer. Consequently pediatric oncology social workers need to know as much about working with survivors of cancer as they do about issues of death and dying. To help me get a better idea of what being a pediatric oncology entails, I spoke with Dr. Barbara Jones, social worker and faculty member at the school of social work at the University of Texas at Austin. Dr. Jones is the immediate past president of the Association of Pediatric Oncology Social Workers, on the editorial board for the Journal of Social Work in End-of-Life and Palliative Care , and the co-director of the Institute for Grief, Loss and Family Survival at UT-Austin. Dr. Jones recently designed and taught the first social work course in the United States on psychosocial oncology. In today's podcast, Barbara and I talked about the role of a pediatric oncology social worker in a multidisciplinary team, with the child, with the family, in a hospital setting and in the community. We talked about best practices for working with kids with cancer and the role of research in pediatric oncology social work. She talked about practical and ethical issues in pediatric oncology social work such as consent and assent, how to accurately assess a child's pain, and how social workers can take care of themselves. Barbara told some powerful and moving stories about the work she's done with children who have died and children who have survived cancer. We ended our conversation with a discussion about how social workers get training in pediatric oncology social work, and what some resources are for social workers who would like to know more about working with children with cancer. One quick word about today's podcast: I recorded today's podcast using a Zoom H2 recorder on location at the Society for Social Work Research annual conference. If you listen closely you can hear the sounds of San Francisco in the background: a clock chiming, busses loading and unloading passengers, and even some pigeons congregating outside of the interview room. They don’t detract from the interview, but I wanted to give fair warning in case you were listening to this podcast anywhere were those sounds might be cause for alarm.

Episode 55: Today's podcast is about social work with children who have cancer, also referred to as pediatric oncology social work. Although pediatric cancer is relatively rare event, making up less than 1% of the cases diagnosed annually, that single case affects the lives of countless others. From a treatment perspective, when a child is diagnosed with cancer, the whole family is diagnosed with cancer. Children are most likely to get cancer in their first year of life, and least likely between the ages of 5 and 14. If you are white kid in the United States you are nearly two times more likely to get cancer than if you are black. One in 300 boys and one in 330 girls will develop cancer before the age of 20. Every year 2500 children die from cancers with names like Acute Lymphoblastic Lukemia (cancer of the bone marrow - the most common childhood cancer), Hepatoblastoma (cancer of the kidney), neuroblastoma (cancer of the central nervous system), Ewings sarcoma (bone cancer), Hodgin’s Lymphoma (cancer of the lymph nodes), and Wilms tumor (cancer of the kidney). Notice that the most common forms of adult cancer such as lung, breast and colon are not included on this list. And it is not just that children get some cancers and adults get others. Among children, the cancers most often found in infants and toddlers are not the same as the cancers most often found in teenagers. For children today, getting a diagnosis of cancer is not the death sentence it once was. Before 1970 most children who got cancer died. Today, survival rates are nearly 80%. Currently there are about 270,000 survivors of childhood cancer. Consequently pediatric oncology social workers need to know as much about working with survivors of cancer as they do about issues of death and dying. To help me get a better idea of what being a pediatric oncology entails, I spoke with Dr. Barbara Jones, social worker and faculty member at the school of social work at the University of Texas at Austin. Dr. Jones is the immediate past president of the Association of Pediatric Oncology Social Workers, on the editorial board for the Journal of Social Work in End-of-Life and Palliative Care , and the co-director of the Institute for Grief, Loss and Family Survival at UT-Austin. Dr. Jones recently designed and taught the first social work course in the United States on psychosocial oncology. In today's podcast, Barbara and I talked about the role of a pediatric oncology social worker in a multidisciplinary team, with the child, with the family, in a hospital setting and in the community. We talked about best practices for working with kids with cancer and the role of research in pediatric oncology social work. She talked about practical and ethical issues in pediatric oncology social work such as consent and assent, how to accurately assess a child's pain, and how social workers can take care of themselves. Barbara told some powerful and moving stories about the work she's done with children who have died and children who have survived cancer. We ended our conversation with a discussion about how social workers get training in pediatric oncology social work, and what some resources are for social workers who would like to know more about working with children with cancer. One quick word about today's podcast: I recorded today's podcast using a Zoom H2 recorder on location at the Society for Social Work Research annual conference. If you listen closely you can hear the sounds of San Francisco in the background: a clock chiming, busses loading and unloading passengers, and even some pigeons congregating outside of the interview room. They don’t detract from the interview, but I wanted to give fair warning in case you were listening to this podcast anywhere were those sounds might be cause for alarm.