Podcasts about cancer advocacy

In this episode of the Bench to Bedside podcast, Dr. Roy Jensen, vice chancellor and director of The University of Kansas Cancer Center, is joined by Dr. Andrew Godwin, director of KU Cancer Center's Biospecimen Shared Resource. They discuss the critical role that volunteers who donate biospecimens play in advancing cancer research. The podcast delves into the types of biospecimens collected, their use in medical studies, and how the KU Cancer Center's repository has grown to include over one million samples. Dr. Godwin shares insights on successful projects, including the Triple Negative Breast Cancer Registry and emerging technologies in biomarker analysis. He also emphasizes the importance of community participation in the biobank and offers advice for young investigators in the field of biomedical research. Do you have questions about cancer? Call our Bench to Bedside Hotline at (913) 588-3880 or email us at benchtobedside@kumc.edu, and your comment or question may be shared on an upcoming episode! If you appreciated this episode, please share, rate, subscribe and leave a review. To ensure you get our latest updates, For the latest updates, follow us on the social media channel of your choice by searching for KU Cancer Center. Links from this Episode:  Learn more about KU Cancer Center's Biospecimen Shared Resource Learn how to donate to the KU BioBank Read more about how the Biospecimen Shared Resource supports the Early Detection Program within the KU BioBank Learn more about Dr. Andrew Godwin

In this episode, Emily Gentry, BSN, RN, HON-ONN-CG, OCN, and Chelsea Passwater DNP, RN, AGCNS-BC, OCN, discuss the benefits and background of the Cancer Advocacy & Patient Education (CAPE) Portal.Thank you to our sponsor, Exelixis, for providing funding for this podcast. 

Today, we are honored to host Ray, a writer, musician, and cancer patient advocate who uses his talents and experiences to inspire others. Ray opens up about his personal journey, the challenges he's faced, and how his advocacy work has become a source of hope for many. Through his art and storytelling, Ray demonstrates the power of creativity and purpose in navigating life's difficulties. Whether you're seeking inspiration, encouragement, or practical wisdom, this episode will leave you empowered to face your own challenges with courage and hope. #CJ #CJMoneyWay #CJMoney #CJMoneyWayShow #Podcast #Podmatch #BleavNetwork #RayInspires #WriterAndMusician #HopeAndHealing #LifeWithPurpose     https://rayhartjen.com https://x.com/rayhartjen?s=21 https://youtube.com/@rayhartjen?si=V038ky2uIXX6g2QL https://www.instagram.com/rayhartjen/profilecard/?igsh=MWZoNmwxMGhzeXQ3OQ== https://www.linkedin.com/in/rayhartjen?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=ios_app https://www.tiktok.com/@rayhartjen5?_t=8saLgyjMmBK&_r=1 Ray Ray Hartjen's Website

Welcome to the Change Life Destiny podcast series! In this episode, host Stephanie interviews Season Johnson, a functional nutritional therapy practitioner and a mother who shares her compelling journey through the healthcare system. Season talks about adopting her daughter, prioritizing natural health approaches, and later facing the harrowing diagnosis of her son's leukemia. Despite initial resistance, she embraced conventional treatments while integrating holistic methods. Together, they discuss the importance of advocacy, nutrition, and detoxification in pediatric cancer treatment. Season also shares inspiring stories from her nonprofit, and details her goals for impacting families affected by cancer. Tune in to explore how combining allopathic and functional medicine can foster hope and healing.00:00 Welcome to the Change Life Destiny Podcast00:44 Introducing Our Special Guest: Ms. Season Johnson01:34 Season's Journey into Health and Wellness04:19 A Mother's Battle: Facing Childhood Leukemia08:32 Advocating for Your Child's Health17:14 Supporting Families Through Non-Profit Initiatives20:50 Success Stories and Future Aspirations24:38 Envisioning the Future of Healthcare30:51 Closing Remarks and Final ThoughtsGet in touch with Season:WebsiteInstagramLinkedInChange Life & Destiny is a movement to excite, engage, and educate communities about the importance of taking control of our health and wellness. We highlight the latest and greatest technologies that can restore health, prevent disease, and promote wellness, as well as practitioners who are using cutting-edge technology to help patients take control of their health.Learn more about us here:Website: https://www.changelifedestiny.com/Instagram: https://www.instagram.com/changinglifedestiny/LinkedIn: https://www.linkedin.com/company/changelifedestiny/YouTube: https://www.youtube.com/@changelifedestinyFacebook: https://www.facebook.com/changelifedestinyWant to learn more? Visit our website or follow us on Instagram, Facebook Youtube, and LinkedIn.Want to learn more? Visit our website or follow us on Instagram, Facebook Youtube, and LinkedIn.

The Rally Foundation for Childhood Cancer Research's CEO and Founder, Dean Crowe, shares how she advocates for groundbreaking change in pediatric cancer funding. What began as a grassroots effort in the South has grown into a nationwide movement, securing over $35 million for research grants and $223 million in Department of Defense funding for childhood, adolescent, and young adult cancers. By highlighting the Foundation's impact through compelling stories of Rally Kids and the power of community, Dean demonstrates the life-changing effects of advocacy and financial stewardship to reshape the fight against childhood cancer.

In this special mini episode of the Bench to Bedside Podcast, Dr. Elizabeth Muenks, director of The University of Kansas Cancer Center's Onco-Psychology Program, addresses listener-submitted questions on managing the holiday season while navigating a loved one's cancer journey. The episode provides thoughtful advice on keeping loved ones involved without overwhelming them, adjusting holiday traditions to accommodate dietary restrictions and energy levels, and balancing caregiving responsibilities with holiday preparations. In this conversation, Dr. Muenks emphasizes the value of open conversations, giving oneself grace and seeking support during this emotionally challenging time. The episode concludes with practical tips for creating special, low-energy holiday activities suitable for cancer patients and their families. Do you have questions about cancer? Call our Bench to Bedside Hotline at (913) 588-3880 or email us at benchtobedside@kumc.edu, and your comment or question may be shared on an upcoming episode! If you appreciated this episode, please share, rate, subscribe and leave a review. To ensure you get our latest updates, For the latest updates, follow us on the social media channel of your choice by searching for KU Cancer Center. Links from this Episode:  Learn more about Dr. Muenks Listen to Dr. Muenks in Bench to Bedside episode 20, “Coping with Cancer During the Holiday Season”

What if your greatest challenge became your life's purpose? In this inspiring episode, Jessalynn sits down with Brooks Bell and Sarah Beran, two powerful voices in colon cancer advocacy. Brooks shares her journey as a successful entrepreneur who made the courageous decision to walk away from her company to focus on her health and advocacy, while Sarah opens up about facing a stage four diagnosis as a young mother during COVID, drawing strength from her family to persevere. Together, they tackle misconceptions about colon cancer, highlight the lifesaving importance of early detection, and introduce Worldclass, their nonprofit bringing awareness and funding colonoscopies. If you or someone you know is suffering from the effects of trauma, please know you are not alone in your healing journey. If you would like to speak with a professional therapist, you can reach out to Hello@invisiblescarspodcast.com to book an appointment.  Don't forget to follow Jessalynn on Instagram @invisiblescarspodcast, and visit her website!

In this poignant episode of the Bench to Bedside podcast, Dr. Roy Jensen, vice chancellor and director of The University of Kansas Cancer Center, speaks with Cheryl Jernigan, Lead Patient Research Advocate with Patient and Investigator Voices Organizing Together (PIVOT). Cheryl shares her powerful story of being both a cancer survivor herself and a co-survivor and caregiver to her husband, who battled both prostate cancer and tonsil cancer caused by human papillomavirus (HPV). Their discussion explores the emotional and physical challenges of caregiving, the importance of research and patient advocacy, and the vital support systems needed for caregivers. Cheryl's experience offers invaluable insight into balancing personal health while providing care, highlighting resources such as Turning Point and Gilda's Club to aid caregivers on their journey. Do you have questions about cancer? Call our Bench to Bedside Hotline at (913) 588-3880 or email us at benchtobedside@kumc.edu, and your comment or question may be shared on an upcoming episode! If you appreciated this episode, please share, rate, subscribe and leave a review. To ensure you get our latest updates, For the latest updates, follow us on the social media channel of your choice by searching for KU Cancer Center. Links from this Episode: Learn more about KU Cancer Center's patient research advocacy program, PIVOT Read Cheryl's blog post about PIVOT on the KU Cancer Center website Find cancer caregiver resources at KU Cancer Center Learn more about Turning Point's services for cancer patients and caregivers at KU Cancer Center  

On today's episode, you'll hear a story of resilience, transformation, and groundbreaking change in women's health. Our guest, Ellyn Winters-Robinson, is a breast cancer survivor, entrepreneur, best-selling author, and an advocate for women's health. Before the book and advocacy, she was a woman diagnosed with breast cancer. Who felt alone and angry. Ellyn took her anger and turned it into advocacy. Then, she took her advocacy and turned it into action.Ellyn's book, Flat Please, Hold The Shame, is a girlfriend's companion guide for those on the breast cancer journey. It offers candid stories, comfort, humour, and hard-earned wisdom.Ellyn's advocacy continues beyond the written word. She also co-created AskEllyn.ai, the world's first conversational AI tool designed specifically to support people on their breast cancer journey. This groundbreaking digital companion brings empathy and support to patients and their families, revolutionizing the way support is offered during a challenging time.Join us for an inspiring conversation as Ellyn shares her story, her work, and her vision for a world where no one faces breast cancer alone.ResourcesEllyn's WebsiteVisit AskEllynRead Flat Please, Hold the ShameConnect with Ellyn on InstagramWhat did you think of today's episode? We want to hear from you!Thank you for listening today. Please take a moment to rate and subscribe to our podcast. When you do this, it helps to raise our podcast profile so more leaders can find us and be inspired by the stories our Voices of Leadership have to share. Connect with us:Voices of Leadership WebsiteInstagramBespoke Productions Hub

On today's episode, you'll hear a story of resilience, transformation, and groundbreaking change in women's health. Our guest, Ellyn Winters-Robinson, is a breast cancer survivor, entrepreneur, best-selling author, and an advocate for women's health. Before the book and advocacy, she was a woman diagnosed with breast cancer. Who felt alone and angry. Ellyn took her anger and turned it into advocacy. Then, she took her advocacy and turned it into action.Ellyn's book, Flat Please, Hold The Shame, is a girlfriend's companion guide for those on the breast cancer journey. It offers candid stories, comfort, humour, and hard-earned wisdom.Ellyn's advocacy continues beyond the written word. She also co-created AskEllyn.ai, the world's first conversational AI tool designed specifically to support people on their breast cancer journey. This groundbreaking digital companion brings empathy and support to patients and their families, revolutionizing the way support is offered during a challenging time.Join us for an inspiring conversation as Ellyn shares her story, her work, and her vision for a world where no one faces breast cancer alone.ResourcesEllyn's WebsiteVisit AskEllynRead Flat Please, Hold the ShameConnect with Ellyn on InstagramWhat did you think of today's episode? We want to hear from you!Thank you for listening today. Please take a moment to rate and subscribe to our podcast. When you do this, it helps to raise our podcast profile so more leaders can find us and be inspired by the stories our Voices of Leadership have to share. Connect with us:Voices of Leadership WebsiteInstagramBespoke Productions Hub

Breast Cancer Awareness Month is a time of reflection and advocacy, and we're thrilled to welcome back Andrea Nitta to "Step Into the Pivot." Celebrating Andrea's two years post-diagnosis, we emphasize the ongoing journey of self-care and management. Andrea's advocacy work, including her involvement in events like the More Than Pink Walk and her potential pursuit of a board position, showcases the impact one person can have on a community. Her journey from a personal battle to a platform for support will leave you motivated to take action in your own life.Andrea shares how this life change opened doors for her to further her advocacy efforts, all while balancing personal and family commitments. The conversation reiterates the importance of collective advocacy and mutual support, encouraging listeners to embrace life's pivots with confidence. We thank Andrea for her incredible contributions and stories, reminding everyone that sharing your experiences can provide strength and inspiration to others.Guest Bio:Andrea was introduced to retirement plans through growth and acquisition at her first job out of college at US Bank. She holds a Finance degree from Minnesota State University - Moorhead. Andrea's industry knowledge prospered with 17 years in varying roles focused on service at The Standard. Moving from a recordkeeper to a broker/dealer with two years at Cetera Financial Group only broadened her expertise. Joining Fiduciary Decisions (FDI) in November 2020 as Vice President of National Accounts has allowed her to focus close to 25 years of industry experience on FDI's valuable broker/dealer and RIA clients.Andrea is very active with WIPN — WE | Inspire | Promote | Network — a non-profit organization focused on advancing equity and opportunity for women in the retirement industry. She currently serves as the Regional Leader for the Pacific Northwest region and had previously co-founded and co-chaired the Oregon chapter. She is also active with the Youth Charity League (YCL) and currently serves on the YCL Board as Secretary. YCL has provided her and her family with the opportunity to serve various non-profit organizations. She enjoys time with friends and family, golfing, reading, and traveling. Andrea is a proud parent to three awesome kids – two in college and one in high school. Andrea lives in Portland, Oregon with her husband, kids on the go, and their dog Rocky.   Connect with Andrea:https://www.linkedin.com/in/andrea-nitta/ Connect with Theresa and Ivana: Websites: Theresa, True Strategy Consultants: https://tsc-consultants.com/ Ivana, Courageous Being: https://www.courageousbeing.com/ Instagram: Ivana: https://www.instagram.com/courbeing/ Theresa: https://www.instagram.com/tscconsultants/ LinkedIn: Step into the Pivot: https://www.linkedin.com/showcase/step-into-the-pivot/ Theresa: https://www.linkedin.com/in/tree-conti/ Ivana: https://www.linkedin.com/in/ivipol/

Welcome to the latest episode of Supportive Care Matters. Join Medical Oncologist Professor Bogda Koczwara AM and advocate Matthew Zachary, founder of Stupid Cancer and the creative force behind the documentary "Cancer Mavericks." Matthew shares the profound journeys of pioneers who transformed cancer survivorship from the 1960s to the present day. From exhaustive research to heartwarming interviews, discover the intricate process of honouring those who fought tirelessly to improve the lives of cancer patients and survivors.This episode traces the evolution of cancer survivorship, from the early days of merely surviving to today's focus on enhancing life quality. Explore advancements in genomics, the importance of consumer protection and the nuanced approaches required for effective cancer prevention and treatment. As we navigate through the personal and socio-economic implications of cancer survivorship, we offer crucial advice for newly diagnosed patients and those just completing treatment. Uncover strategies for overcoming the bureaucratic challenges of the American healthcare system and the necessity for mutual empathy between patients and providers. As we conclude, we discuss the need for another revolution in society's attitude toward cancer survivors, underscoring the vital role of community support - and the new role of consumer advocacy - in making the cancer experience a little less daunting for others.Visit www.oncologynews.com.au for show notes and more information about Supportive Care Matters!This conversation is proudly produced by The Oncology Network.

Send us a Text Message.When Kristen Dahlgren walked away from the https://www.nbc.com/ news desk & into the realm of breast cancer advocacy, she lit a path for countless others to follow. Her foundation, the Cancer Vaccine Coalition , is more than just a passion—it's a pursuit of a world where breast cancer no longer looms over our futures. In our heartfelt discussion, Kristen & I, Jamie Vaughn, intertwine the threads of our own breast cancer battles, revealing the emotional landscapes we navigated & the unconventional symptoms that led us to life-saving diagnoses.Strap in for a journey through the landscape of hope and innovation, as we chart the progress of the Pink Eraser Project's quest for a breast cancer vaccine. Together, Kristen & I dissect the groundbreaking work of Nora Disis M.D.  & how her 30-year pursuit of a cancer vaccine could very well change the game. With the 'Give Us a Shot' campaign gaining traction and https://testthosebreasts.org/ set to launch, we underscore the urgency & importance of education, awareness, & the collective push toward turning the dream of a vaccine into reality.By sharing our stories—Kristen's transformative fight & my own crusade for awareness—we aim to forge a community that's as resilient as it is informed. As we delve into the potential of vaccines to not only treat but also prevent this pervasive disease, we highlight how early detection & proactive health measures remain vital. This episode is an invitation to join us on the frontlines of a battle that is both deeply personal & universally imperative, armed with the most powerful weapon: HOPE.Cancer Vaccine Coalition on Instagram Kristen Dahlgren Leaves NBC  Are you loving the Test Those Breasts! Podcast? You can show your support by donating to the Test Those Breasts Nonprofit @ https://testthosebreasts.org/donate/ Where to find Jamie:Instagram LinkedIn TikTok Test Those Breasts Facebook Group LinkTree Jamie Vaughn in the News! Thanks for listening! I would appreciate your rating and review where you listen to podcasts!I am not a doctor and not all information in this podcast comes from qualified healthcare providers, therefore may not constitute medical advice. For personalized medical advice, you should reach out to one of the qualified healthcare providers interviewed on this podcast and/or seek medical advice from your own providers .

In today's episode of the Keeping Abreast with Dr. Jenn, I am honored to host Heather Craig Alonge, a dedicated healthcare professional and educator who shares her journey surviving uterine sarcoma, a rare cancer diagnosis that turned her world upside down. Heather's story is not just about battling cancer, but about embodying the role of a self-advocate in navigating the complexities of the healthcare system and managing her treatment. Our discussion unveils the challenges and valuable learnings found in persisting through a serious health crisis and the critical nature of personal advocacy in healthcare.In this episode you'll:Grasp the importance of healthcare literacy and proactivity in treatment decisions.Delve into the nuances of being your own health advocate when standard medical practices do not align with personal health needs or make logical sense.Explore Heather's role in educating future healthcare professionals from her experiences, promoting a patient-centered care model.Recognize the power of community support and shared experiences in dealing with chronic illnesses, particularly cancer.Episode Timeline:00:06 Introduction and Welcome  01:45 Guest Introduction: Heather Craig Alonge  02:38 Heather's Initial Diagnosis and Emotional Impact  05:20 Background: Heather's Expertise in Healthcare  09:34 The Importance of Advocating for Yourself in Healthcare  13:12 Discrepancies in Medical Advice and Personal Health Choices  18:27 Heather's Role in Education and Touching Lives  22:50 The Role of Community and Support Systems  25:53 Listener Q&A: Coping Mechanisms and Keeping Positive  31:15 Closing Thoughts and Reflections  32:00 Farewell to Heather and Closing Remarks  Heather Craig Alonge holds a PhD in health services and has an extensive background in teaching healthcare research methods to a diverse array of medical professionals. She challenges the traditional narratives around patient care, pushing for a system that listens more attentively to the individuals it aims to serve. Heather's journey through cancer not only tested her resilience but also galvanized her commitment to teaching and advocating for a more humane and insightful approach to healthcare.To talk to a member of Dr. Jenn's team and learn more about working privately with RHMD, visit: https://jennsimmons.simplero.com/page/377266?kuid=327aca17-5135-44cf-9210-c0b77a56e26d&kref=vOKy0sAiorrKTo get your copy of Dr. Jenn's book, The Smart Woman's Guide to Breast Cancer, visit: https://tinyurl.com/SmartWomansBreastCancerGuideJoin the Facebook group: Facebook: https://www.facebook.com/groups/keepingabreastwdrjennConnect with Dr. Jenn:Website: https://www.realhealthmd.com/Facebook: https://www.facebook.com/DrJennSimmonsInstagram: https://www.instagram.com/drjennsimmons/YouTube: https://www.youtube.com/@dr.jennsimmons

Can a firefighter's battle extend beyond flames? In this episode I am joined by the courageous trio from IAFF Local Number 4—Jason, Aaron, and Joe—as they shed light on the daunting intersection between firefighting and cancer. We share harrowing personal accounts and the pressing need for legislative recognition of cancer as a job-related illness for these heroes. With heartfelt tributes to Mike Broderick and Brian Stokes, two fallen firefighters whose lives and legacies anchor our conversation, this dialogue is a testament to the power of advocacy and the urgent call for comprehensive cancer coverage for those on the frontline.Imagine fighting fires only to face an even more insidious foe; that's the reality for many firefighters confronting cancer. This gathering uncovers the complexities of advocating for cancer to be covered under presumptive legislation, a term that currently applies to only a fraction of cancers in Iowa. We take a closer look at the health risks associated with firefighting, the emotional and financial toll of the disease, and the strategies employed to tackle legislative change. The episode is a patchwork of personal stories, the evolution of healthcare initiatives to better safeguard our firefighters, and the grassroots efforts that fuel the fight for fair coverage.This narrative culminates in an urgent call to action, capturing the essence of unity and persistence in the face of political hurdles. We share a behind-the-scenes look at the legislative journey, from unanimous approvals to unexpected roadblocks, and the shared resolve of firefighters and their allies to continue the push for change. As we honor those who've sacrificed so much, we invite listeners to lend their voices, engage with the fire service community, and support the mission for better protection and support. This episode is not just a conversation; it's a rallying cry for solidarity and the undying spirit of those who risk it all.(08:22 - 09:18) Creation of Cancer Definition in Iowa(11:48 - 13:18) Innovative Fire Station Design Appreciated(20:00 - 21:33) Firefighter Cancer Coverage Advocacy Plan(23:45 - 25:21) Aaron and Voter Voice Software Success(29:24 - 30:18) Firefighters Lobby for Legislative Support(33:15 - 34:48) Impactful Visual Stories on Facebook(44:49 - 46:27) Iowa Firefighters' Pension Concerns(50:15 - 51:34) Unified Effort for Legislative Thank Yous(53:40 - 55:18) Bipartisanship in Firefighter Advocacy(01:01:03 - 01:02:25) Union Efforts for Positive Change 

Ed Elder is a staple in the Kansas City business community, as President of the Kansas City office of Colliers, a leading diversified professional services and investment management company, as well as an active member of the Kansas City community, which includes his service on the Board of Directors for KU Cancer Center's Cancer Funding Partners. He also formerly served as a board member for Coaches vs. Cancer with the American Cancer Society. While Ed has been a long-time advocate for cancer research and treatment advances through these roles, the cause became even more personal when both Ed and his wife were separately diagnosed with different cancers, leading to them going through treatment at the same time. Ed joins podcast host Dr. Roy Jensen, vice chancellor and director of KU Cancer center, to talk more about his family's story, how they came together to persevere through countless obstacles, and to share what he's learned along the way. Do you have questions about cancer? Call our Bench to Bedside Hotline at (913) 588-3880 or email us at benchtobedside@kumc.edu, and your comment or question may be shared on an upcoming episode! If you appreciated this episode, please share, rate, subscribe and leave a review. To ensure you get our latest updates, For the latest updates, follow us on the social media channel of your choice by searching for KU Cancer Center. Links from this Episode:  Learn more about Ed Elder Learn more about blood cancer treatment and research at KU Cancer Center Learn how to give back to KU Cancer Center Find more information on the American Cancer Society's Coaches vs Cancer program

When the trials of life hit hard, where do we find the resilience to push through? Denise Ejoh joins me in a profound exploration of this question, sharing her journey of living with cancer interwoven with her passion for education. As a CEO, educationist, and teacher, Denise's life is a beacon of hope and determination that illuminates the path for others facing similar battles. Her story is not only about survival; it's about transformation and the relentless pursuit of empowering young minds, even amidst personal health struggles.Embarking on this episode, we traverse the tumultuous landscape of cancer diagnosis and treatment, guided by Denise's firsthand experiences. Her narrative paints a vivid picture of the challenges within healthcare systems and the resilience required to confront life-altering realities. Denise's emphasis on mental health's role in healing highlights the need for a holistic approach to care, blending faith, neuroscience, and emotional intelligence. Her insights on the societal repercussions of a cancer diagnosis—stigma, isolation, financial strains—are eye-opening, prompting a critical examination of how we, as a community, can offer tangible support to those in need.Listen as we delve into the world of cancer support resources and the financial hurdles that patients and families face. Denise's foundation emerges as a pillar of advocacy, striving to make comprehensive care accessible and dismantle the barriers that impede cancer treatment. The conversation calls for greater awareness, advocacy, and a redefined narrative around cancer, emphasising the importance of emotional expression, vulnerability, and seeking help. This episode celebrates Denise's remarkable journey and affirms that the human spirit's capacity for teaching and thriving can indeed intersect in impactful ways.Connect With Denise Ejoh:Website: https://www.cormode cancer foundation.orgInsta: @Dejoh25 YouTube: Cormode Cancer Foundation LinkedIn: Cormode Cancer Foundation Twitter: dejoh1Stay Connected with Maureen:Mindsight Store: https://www.mindsightstore.comWebsite: https://www.maureenchiana.comAcademy: https://www.themindsightacademy.com/Christian Women's Leaders Guide on Decision-Making: https://www.maureenchiana.uk/christianfemaleguideMindsight Women's Network: https://bit.ly/3qvAzg1Articles on Brainz: https://bit.ly/brainz-digBook A Consultation: https://calendly.com/maureen-77/30minThank you for tuning in! If you enjoyed this episode, please make sure to hit 'Subscribe' to stay updated on future conversations. For more insights and connections, follow me on LinkedIn, and don't miss out on our exclusive merchandise designed to inspire and rewire at our Online Shop. Elevate your journey with our courses at the Website and Online Academy. Stay curious and empowered!

This episode of "Real Pink" presents an intimate and powerful conversation with Lauren Velarde, whose life was deeply affected by breast cancer. Lauren, shares her compelling story, from the early diagnosis at the age of 26, following a BRCA gene test, to her courageous decision to undergo a bilateral mastectomy. The episode delves into the complexities of facing such a life-altering condition as a young mother, and the impact it had on her family life. Lauren's journey is not just about her struggle with cancer, but also about the importance of genetic testing, being one's own advocate in healthcare, and the vital support of loved ones. The episode also touches upon how her experience influenced her mother's decision to undergo genetic testing, ultimately leading to early detection and treatment of her own breast cancer.

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Have you ever wondered how triumph over adversity can fuel a life of purpose? Join me, Shannon Burrows, as I intertwine the threads of my real estate expertise and fervent breast cancer advocacy to reveal a blueprint for meaningful living. Through personal anecdotes and the wisdom gleaned from many coaches and fearless leaders, we uncover that our life's work can indeed form a legacy of hope and support for those navigating the journey of breast cancer.This season on Bustin' Out of Breast Cancer, we're not just setting goals; we're redefining them. I invite you to consider the long game, to reflect deeply on what truly motivates you, and to embrace the courage to say 'no' when it aligns with your grander vision. Let's cast aside societal expectations and discover the power in aligning our daily actions with the future we desire. Not a single decision is trivial when it's steered by your personal 'why,' and I'm here to guide you through that transformative process.Finally, we step into the world of real estate, a realm where dreams take shape, and giving back is a cornerstone. Whether you're looking for a roof over your head or an investment to secure your future, I'm here to support that journey. We also open the floor to the courageous stories of those battling breast cancer, reminding us all that every struggle has the potential to morph into a story of resilience. Join us in celebrating these powerful narratives and become part of a community that flourishes in the face of adversity.If you'd like to be a guest on our podcast or know someone who would be a greast guest, email us at SMILE@shannonburrows.com.Follow us at:● Personal Instagram: @‌shannonmburrows● Podcast Instagram Page: @‌bustinoutofbreastcancer● Personal Facebook: Shannon M Burrows● Podcast Facebook Page: Bustin' Out of Breast Cancer PodcastDon't forget to Follow, Subscribe and Share this podcast so you can help us Change The World, One S.M.I.L.E. At A Time!

Join LaTangela as she chats with Elvin Howard, Sr. Pancreatic Cancer Advocacy Foundation on the #TanLine Prepare for the 7th Annual Fundraiser - Friday November 10, 2023 @ 7pm  Drusilla Place Catering 3482 Drusilla Lane, Baton Rouge, La. 70809 Silent Auction/ Live Performance by George Bell & Friends - Hosted by LaTangela Fay For tix/silent auction info click HERE NEW MUSIC ALERT NEVER KNEW - LaTangela Fay NEW BOOK ALERT P.O.O.F. (Power Over Obstacles Forever) - LaTangela Fay Sherman THE LATANGELA SHOW TANTUNE RADIO -  WEMX- Baton Rouge, La. Mon-Fri 10a.m.-3p.m.CST TV - WLFT - Baton Rouge, La. KGLA  - New Orleans, La. The Louisiana Film Channel YouTube - #LaTangelaFay Podcast - ALL digital platforms www.LaTangela.comSee omnystudio.com/listener for privacy information.

Laura Schwinn holds The Rose's mission close to her heart. That's because she's seen the devastation firsthand. In her own family. During this episode, Dorothy and Laura talk about how this personal experience led her to The Rose, as well as the importance of being a “global citizen.” You'll hear about the billion dollar companies she's run, and why she's so passionate about The Rose's mission to serve the uninsured woman. Help us grow the show by leaving a review on your podcast platform and sharing with your family and friends. And please consider supporting our mission at therose.org. Your donation could help save the life of women across southeast Texas.See omnystudio.com/listener for privacy information.

On this episode of the Bench to Bedside podcast, host Dr. Roy Jensen, vice chancellor and director of The University of Kansas Cancer Center, speaks with Dr. Steve Scott, the recently named chair of KU Cancer Center's Community Advisory Board (CAB). The KU Cancer Center CAB includes community members and organization leaders from across the areas we serve, including the state of Kansas and western Missouri, and is comprised of individuals representing a diversity of cancer experiences, skills, community connections, geographic locations and demographics. Dr. Scott, a cancer survivor himself, is the immediate past president of Pittsburg State University and has been involved advocacy for cancer patients, caregivers and survivors for many years. With a family history of cancer, Dr. Scott says his focus now is on keeping cancer at bay through fitness, nutrition and preventative screening, as well as sharing his experience and lessons learned with others in his community. Do you have questions about cancer? Call our Bench to Bedside Hotline at (913) 588-3880 or email us at benchtobedside@kumc.edu, and your comment or question may be shared on an upcoming episode! If you appreciated this episode, please share, rate, subscribe and leave a review. To ensure you get our latest updates, For the latest updates, follow us on the social media channel of your choice by searching for KU Cancer Center. Links from this Episode: Learn more about Dr. Steve Scott Learn about KU Cancer Center's Community Advisory Board (CAB) Learn more about prostate cancer signs and symptoms Learn more about screening for prostate cancer Check out the Kegel Trainer PFM Exercises App - similar to the one Dr. Scott mentions on this episode - on the Apple App Store or Google Play   

As Breast Cancer Awareness Month highlights the importance of advocacy, Rosalina and Shauna discuss the diverse forms of advocacy one can take, emphasizing that there is no one-size-fits-all approach. They touch upon how individuals can become advocates, from sharing their stories on social media to supporting friends and loved ones through their breast cancer journeys.They also share their advocacy work together, including participation in panels for non-profit organizations, being on the Kelly Clarkson Show, and supporting communities. Lastly, they provide important insights into the challenges and responsibilities of public advocacy and the importance of setting boundaries to prioritize self-care.If you are looking to make a difference and become an advocate, we invite you to visit our resources page. You'll find a comprehensive list of organizations we support and a program designed to empower anyone to become an advocate.Visit https://tyftspodcast.com/breast-cancer-resources-aya-podcastEpisode Timestamps:[00:01:01] Housekeeping Items/Updates[00:02:13] How Was Breast Cancer Awareness Month Developed?[00:04:20] What Does Advocacy Mean To Us[00:12:24] Community Host Breasties Meetings[00:15:10] Camp Breastie - Speaking Engagement[00:16:21] Kelly Clarkson Show[00:18:24] Check Out My Rack Webinar[00:19:50] Setting Healthy Boundaries[00:25:46] Small Actions, Big Impact[00:28:29] Making Donations That MatterClick here to leave us a voicemail about what Is It like to be a Survivor?If you want to submit a quote about your breast cancer journey, submit one here: Submit A QuoteWe'll post your quote on our Instagram page, and you'll have the opportunity to connect with fellow community members, where we invite our community to share their own quotes. This platform is a valuable space for you to express yourself and let others know they are not alone in their personal journeys.Cancer Magazines to submit your story:Wildfire MagazineElephants & Tea MagazineVisit our link.tree to access the Kelly Clarkson segment, and any media outlets about our story.If you enjoy this episode, please share it with your friends. Help us reach more women by subscribing and rating us on Apple Podcast, Spotify, and YouTube.You can follow us on Instagram @TYFTSpodcast and email us at tyftspodcast@gmail.com

Brandi Lee Sawyer's son Finn  was diagnosed with Rhabdomayosarcoma in 2016 when he was 18 months old and after a nearly 2 and a half year battle, passed away on December 2nd of 2018. Brandi Lee will talk about her beloved Finn on today's podcast and will also talk about the great advocacy work that she has been doing since his passing. Now the Director of Patient Advocacy and Engagement for the Shepherd Foundation which focuses on the rarest of cancers, Brandi Lee has been focusing on legislation involving Genomic Sequencing, which gives these kids and their families help in figuring out more precise detail about their individual cancers, which will lead to better overall treatment. 

After hurting his leg as a sophomore in high school during a school football game in 2010, Ian Lock  went to his pediatrician who saw a dark spot on his leg while examining him. This spot turned out to be Osteosarcoma. Ian went through the usual difficult treatment for this most common form of bone cancer, and fortunately he did not suffer a relapse which so many Osteosarcoma patients do.Ian then decided to become an advocate through the American Cancer Society for Pediatric Cancer while still in high school and then while in college, decided to do research on such pediatric  cancers as Hepatoblastoma, Leukemia , and Osteosarcoma.Ian is now going after his PHD in Molecular Cancer Biology from Duke University and his career path is geared towards in some way helping Pediatric Cancer patients find an easier path to handle their own cancer battles.  

Listen in as we discuss cancer advocacy with some amazing cancer warriors at the Healthy eMatters Conference in Toronto, Canada. Learn how cancer advocacy is a rewards calling and how helping others can be such a honor. We also discuss the challenges and fears that come with being an advocate but through knowledge and understand you can master those doubts. This is an episode you do not want to miss. You can visit our following platforms:  Website: alltalkoncology.com, Facebook, Instagram, and YouTube

Learn To Advocate For Yourself with "I Am The One" Author, Viki Zarkin: Viki Zarkin is the only person alive with this aggressive form of Stage 4 metastatic cancer for over 11 years. She was diagnosed in her 40's when her doctor first told her to go home and get her affairs in order. At the time, she had two small children at home and was running her husband's dental practice. Viki spent the next several years fighting for her life, advocating for herself and navigating through the healthcare world, and following her gut. Now, "I really am the luckiest girl around. But I just happen to have Cancer." ~ Viki Zarkin Viki is a beacon of hope as a national motivational speaker, coach, and author of I Am the One. She inspires women to change the way we have been programmed to think and emphasizes the importance of starting with young women on how to believe in themselves, challenge the status quo, find their voices, and listen to their hearts. Viki's can-do attitude inspires people to think differently in their everyday lives; by applying her unique thought process, deals can be made in a boardroom just as easily as they can help people through their cancer battle. Today's Top 3 Takeaways: Understanding Metastatic Cancer Realizing Importance of Cancer Advocacy Put Yourself First Today's Guest & Resource Links: Website: www.iamtheone.com Twitter - https://twitter.com/iamtheonev LinkedIn - https://www.linkedin.com/in/viki-zarkin-b57a2176/# Instagram - https://www.instagram.com/iamtheone_viki/?hl=en Facebook- https://www.facebook.com/iamtheoneviki Watch us on YouTube: https://youtu.be/snxKS6vdkRc Timestamped Show Notes: 00:30 - Introduction 09:40 - I'm wholeheartedly aligned with you. I understand where you're going with that. Do you know that women's healthcare today has been cut back so severely that we don't get any of the same procedures afforded us even as much as five years ago?! 20:00 - So find the professionals get the second, third or fourth opinion till you find the professional to your point, who is the different color crayon in the box that DOES care to do their own analysis, their own research. They do exist and I've now met lots of them, and I do mean a lot. I left in the middle of the night, after my mammogram, in a hospital gown flying open, as my mother and my husband wheeled me down the hall running for our lives! 30:20 - It comes back to your advocacy for yourself, do it for yourself, and so on. If it's you just make it organic, I'm not talking about food, I'm just talking about your life choices can become organic, and you make it matter. 37:10 - You don't necessarily have to listen to me. But when you do have a near death experience, it does give you insight, it truly does something that no others have. When you learn, when you drop into the abyss, and you personally are responsible for lifting yourself out. How can you not share that knowledge with others? How can you not be responsible for the other lives and the knowledge that you...

Hello everyone and welcome back to our podcast, The Patients Speak, where we're combining the business and science innovations of healthcare with the patient voice and how to help them navigate the system to get from diagnosis to wellness faster and more smoothly, and navigate the complicated healthcare system. Today our guest is Andrea Wilson Woods, president and founder of a non-profit called Blue Faery for liver cancer. She is also the CEO of Cancer U, a for-profit social impact healthcare startup in addition to being the author of a best-selling book, Better Off Bald: The Life of 140 Days. It's a medical memoir about raising her young sister.“I think you just need to not assume that you know what a patient wants, you need to listen and really listen and ask more questions,” says Andrea.As she gives us her greatest tip for us not to assume that we know what a patient automatically wants.“I started Blue Faery in memory of my sister Adrienne. I was 22 years old and living in Los Angeles,” she tells us.Blue Faery's mission is to prevent, treat and cure primary liver cancer, specifically hepatocellular carcinoma through research, education, and advocacy. She started Blue Faery in memory of her sister who was diagnosed with Stage 4 liver cancer about a month after her 15th birthday. and she only lived 147 days with that diagnosis. In our conversation, we talk about the 20th anniversary of the founding of the organization and the many wonderful things they have achieved in that time.They have a research award, they give out every year on her sister's birthday. Which they have been able to increase over the years. They also have a lot of patient education programs. All patient education materials they ship worldwide for free in multiple languages. They have a lot of different advocacy programs.A year ago they started their first liver disease and liver cancer prevention and awareness campaign, and that has expanded. It is called Love Your Liver.In summary, because of her sister's journey, her book has been instrumental in educating people who are either in sales or even medical affairs and helping them better understand the patient's journey.She and her team have been amazing at advocating for choice which boils down to empowering patients with information just in case they feel like they may be out of options.We also touched on her other outstanding venture Cancer U is an online platform for both cancer patients and caregivers to educate, empower and engage them to become advocates for their care, improve outcomes, lower stress, and reduce cost. As we conclude, we emphasize how important a caregiver's job is. Whether it's a spouse, an adult, a child or sibling, or even a parent of a pediatric patient, that caregiver is the secretary, the butler, the chauffeur, the maid, and the cook. That caregiver knows everything, so you need to get them in on the conversation from the get-go. With the goal to learn more.She also has a tip for anybody who is going into healthcare startup world that has a tech component “Make sure one of your co-founders is a tech co-founder. It's really important.”You can find her and her work at:Her website andreawilsonwoods.comHer Advocacy work Cancer U & Blue FaeryHer book, Better Off Bald: A Life in 147 Days

Welcome to the series finale of The Cancer Mavericks. In this final episode, we reflect on the first seven episodes through the lens of history and progress with a series of insightful conversations featuring some of healthcare's most influential and visionary voices across the past four decades. If history is a teacher, we have learned that change can happen, albeit slowly. But it is only when the people stand up, organize and activate their voices demanding change, that the culture will shift, the institutions will pivot, and the very system itself will be forced by the will of the citizens to bend towards the arc of justice. Thank you for joining us for this groundbreaking series. If you like this series, please leave a review and a rating on your favorite podcast app. To learn more about The Cancer Mavericks, visit https://CancerMavericks.com. To learn more about OffScrip Health, visit https://OffScrip.com.FEATURED VOICESGil BasheChair Global Health and Purpose, FINN PartnersJohn D. Carpten, Ph.D.President's Cancer Panel (Emeritus)Director, Institute of Translational GenomicsKeck School of Medicine at USCDeanna DarlingtonPresident at Links2EquityKenny KaneYoung Adult Cancer Advocacy PioneerCo-Founder/CEO, Stupid Cancer (Former)Margaret LawsPresident and CEO, Hope LabLisa C. Richardson, MD, MPHDivision Director, Cancer Prevention and Control at The CDCCatharine Young, Ph.D.Assistant Director of Cancer Moonshot Engagement and PolicyThe White HouseSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Myriad  Live episodes are recordings of an open-forum webinar hosted by Dr. Thomas Slavin. The opinions and views expressed in this recording do not necessarily represent those of Myriad Genetics or its affiliates. To participate in a future recording, visit https://myriad.com/live/ for a list of dates, times, and subjects.

The Importance of Breast Cancer Advocacy:  Special Guest Ann Fonfa:  Annie Appleseed Project. What are the challenges of Breast Cancer Advocacy?  Why are breast cancer advocates so important?  Tips for cancer survivors on how to follow a path to wellness!Ann Fonfa was diagnosed with breast cancer in January 1993.  She was suffering from extreme Multiple Chemical Sensitivity, a still not recognized illness.  She avoided chemotherapy, hormonal and radiation treatments using surgery and natural strategies to survive.  Told she was stage IV in 1997, Ann added personalized Chinese herbal prescriptions to her complex complementary protocol. In 1999 she founded Annie Appleseed Project, an all-volunteer cancer nonprofit sharing evidence-based information on complementary therapies (Integrative Oncology).  Ann has spoken at many conferences and events, been interviewed and presented posters.  Her work continues to educate and inform the community of people with cancer as well as all in oncology.  The Annie Appleseed Project has presented a lot of information on males with breast cancer and on the LGBT community. The website had an International section as well.Ann serves on the board of directors for the National Breast Cancer Coalition and has been an active grant reviewer for journals and the Dept of Defense, for which she recruits other cancer survivors.She is well-known for moving awareness forward.  Ann spoke at events around the world and is very proud of her work. She doesn't take personal credit for the interest around Integrative oncology but she was the charter Advocate member of the Society for Integrative Oncology.  It's time is NOW.Today many in oncology acknowledge the need and value for exercise, nutritional changes, handling stress and more.An amazing lady! Support the show

After being diagnosed with kidney cancer — which was a possible result of exposure to the 9/11 terrorist attacks in New York City – Steven Edwards realized that he had to be his own advocate. Pivotal to his advocacy was asking questions and getting as many professional opinions as possible.  “I probably would consider whether it was the right doctor for me in the first place if a doctor was upset about getting a second opinion, because it's all about gathering education and becoming educated yourself,” Edwards said in an interview with CURE®.  Edwards went through multiple different treatments, including the participation on a clinical trial, and continues to push for better outcomes for himself and other survivors through being an advocate for the Kidney Cancer Association and KidneyCAN.  Through cancer setbacks like a diagnosis of metastatic disease in 2017, classifying Edwards' disease as stage 4, he continues to seek information in this rapidly changing field. After all, “There's only way to go, and that's forward,” Edwards said.  For more news on cancer updates, research and education, don't forget to subscribe to CURE®'s newsletters here.

Michael Holtz of Knoxville, Tenn., is a colorectal cancer survivor, advocate, author, public relations professional, weightlifter, and more. On today's episode, I chat with Michael about his journey from being a cancer patient, to becoming an advocate. He encourages patients, survivors, and caregivers to volunteer for advocacy organizations, at any level you feel comfortable doing so, because as Michael says, “Every voice counts.” Michael was diagnosed with aggressive stage 3b rectal cancer in March 2012, and following 11 months of treatment was declared cancer-free in May 2013.  As the Tennessee state lead ambassador for the American Cancer Society Cancer Action Network, Michael volunteers his time to push for new legislation and policy changes that will make life better for people facing cancer and their families.  Last year, the American Cancer Society Cancer Action Network presented Michael with their Volunteer Award for Excellence in Cancer Advocacy. It's like the lifetime achievement award for cancer advocacy and the highest honor bestowed on an ACS CAN volunteer. Michael is the author of “It's Not Harder than Cancer: The Mindsets You Need to Survive and Thrive After Serious Illness.” He lives in Knoxville with his wife, Sarah, and their rescue dog, a Golden Bassett named Marley. You can connect with him and check out his work at https://www.michaelholtzonline.com/ (https://www.michaelholtzonline.com/)  If you want to learn about the work of the American Cancer Society Cancer Action Network, and are interested in possibly becoming a volunteer, visit https://www.fightcancer.org/ (https://www.fightcancer.org/)  SPONSOR SHOUT-OUT Today's episode is brought to you exclusively by the good folks at Blue Note Therapeutics. Blue Note creates digital therapeutics to help cancer patients cope with the emotional distress associated with our disease. Check out their premier product, COVID Cancer Care, at https://covidcancercare.com/ (covidcancercare.com), and we'll keep you posted on more programs that they're going to be releasing soon. You can also visit their website, https://bluenotetherapeutics.com/ (bluenotetherapeutics.com), and follow them on https://www.linkedin.com/company/blue-note-therapeutics/ (LinkedIn). Now fundraising on Patreon There's now a way for you to support the Man Up to Cancer Podcast, and to get some awesome perks while doing so. We are now accepting donations on Patreon. Just go to http://www.patreon.com/manuptocancer (www.patreon.com/manuptocancer), and you can see how it works. You can sign up for $5, $10, or $20 per month tiers, or you can make a one-time donation.  There are rewards for patrons, including shout-outs, discounts in the http://www.manuptocancer.com/merch (Man Up to Cancer store), exclusive merch, and a monthly hang-out with me and other patrons.

For 2022's National Patient Recognition Week, Elridge Proctor of the Go2 Foundation sits down with Heidi and Pierre Onda of the White Ribbon Project and Nichelle Stigger from LUNGevity to discuss how they went from patient to patient advocates and ways those without lung cancer can use their voices for change. Elridge Proctor, MPA, is the Senior Director for Government Affairs and Public Policy at the Go2 Foundation for Lung Cancer, with over 15 years of experience in patient advocacy and non-profit work. Heidi Onda, MS, is a health educator and fitness trainer as well as a lung cancer survivor. She and her husband Pierre Onda, MD, MPH, founded "The White Ribbon Project" in 2020 to promote awareness and the idea that “anyone with lungs can get lung cancer.” Nichelle Stigger is a middle school teacher and Board Member for the LUNGevity Foundation who was diagnosed with lung cancer in 2016.     As a followup to the National Lung Cancer Roundtable and American College of Radiology's 2021 webinar series, the “Power of Partnerships” limited podcast series will feature conversations currently happening in the world of lung cancer with the people pushing the field into the future. Additional information on this topic, as well as the resources mentioned during the episode, can be found at https://www.acr.org/Clinical-Resources/Lung-Cancer-Screening-Resources.

A cancer diagnosis sucks no matter what — but factors like income, education, racism, geography, housing, and access to health care, known as "social determinants of health," can worsen the burden. When researchers zoom out from individual experiences and survey cancer survivors, they see patterns called social determinants of health. Individual circumstances such as economic stability, physical environment, racial bias, proximity to a provider, or fluency in that provider's language can influence a survivor's health outcome before any cancer treatment begins. In this episode, we share stories of cancer mavericks who rebelled against the foreshadowing of health disparities. 23-year survivor Mary P. Lovato started a support group at her pueblo in New Mexico that expanded to reach American Indian and Alaska Native tribes across the United States. After learning she had breast cancer at 31, Maimah Karmo made it her mission to advocate for young women, Black women, and those with metastatic disease — and to end health disparities in our lifetime. Finally, health disparities researcher Dr. Carmen Guerra shares how the University of Pennsylvania's Abramson Cancer Center nearly doubled the number of Black patients in its clinical trials. For more information about this series, visit https://CancerMavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In a frank and candid conversation, two devoted husbands share the challenges and rewards of caring for their wives in different stages of Chronic Lymphocytic Leukemia or CLL. Relationships are tough on their best days, but it can add a whole new range of challenges when the person you love is battling cancer. Meet Scott Fuller and Ted Walsh, who talk candidly about their failures and successes as caregivers to their wives who have CLL. Ted Walsh lives in the Raleigh, Durham area of North Carolina and works in the biomedical industry. Ted found out that his wife Laura had CLL just three months before their wedding date. Laura is currently in what's known in the CLL world as the "watch and wait" phase -- often known to folks on the inside as "watch and worry." Our other guest is Scott Fuller from Trophy Club, Texas, where he's the director of golf course maintenance at a country club. Scott has been married for 32 years to his wife Christina, who was diagnosed with CLL in 2018. Christina has recently begun treatment and is participating in a clinical trial at UT Southwestern. Both Scott and Ted are two extraordinary men who are partners in their wives' CLL journey. Caregiver Lifehacks is a production of OffScrip Health. For more information visit https://offscrip.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

In our final episode, we continue to expand upon what caregiving looks like through the eyes of two women who have very different, non-traditional experiences for their parents. We examine the emotional side, the mental load, and the educational advocacy needed to sort through the deluge of information that comes with a cancer diagnosis. We are so quick to turn to Google for all of our answers to our medical questions. When Mari Hoffman's dad was diagnosed with CLL, she found comfort in getting educated. She bonded with her dad through research, and they spent a lot of time together googling the latest CLL information. Mari went on to study genetics and genomics in college at UC Davis, where she is a recent graduate. Our other guest Michelle Stonis, a mom of three and a university professor from California, found the “google rabbit hole” very stressful. She made a conscious choice to stay away from googling until a few days before her mom's battle with CLL came to an end. Join us for this inspiring conversation from two women in different phases of their lives as they share their very different approaches to caregiving. Caregiver Lifehacks is a production of OffScrip Health. For more information visit https://offscrip.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

This episode discusses the moment of hearing about a loved one's CLL diagnosis, the daunting task of navigating insurance and the healthcare system, and the necessity of finding and building your support network. Our host, Elura Nanos, talks with Lisa Ferguson, a communications director and mother of two from Huntsville, Alabama, and Erin O'Brien, a project manager from Cincinnati, Ohio. Lisa's husband and Erin's mom have CLL. In sharing their stories, they discuss their struggles and challenges and the importance of building your support network. Lisa and Erin begin our conversation as strangers, but they become each other's “people by the end.” Caregiver Lifehacks is a production of OffScrip Health. For more information visit https://offscrip.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

For decades, the portrayal of cancer in movies and television was grim. If a character was diagnosed with cancer, it was a near certainty they'd be dead by the credits. But, like cancer treatment itself, Hollywood evolved, and many storylines about cancer became stories of survival.In this episode, we ask the question, "Who influences us and why?" From musicians to television stars, film producers to televised cancer screenings, when celebrities lend their voices to raising awareness and fundraising, that kind of star power can move mountains. Join us as we hear from voices such as actor Patrick Dempsey, StandUp2Cancer Co-Founders Katie Couric, Pam Williams, the late Laura Ziskin. Also appearing in this episode: Steven Hoffman (Professor of Global Health Law and Political Science at York University in Toronto, Canada,) Dr. Larissa Nekhlyudov (Director of Internal Medicine for Cancer Survivors at the Dana Farber Cancer Institute,) Kami Kosenko (Professor of Communication at North Carolina State University,) and Milton Kent (Former reporter and sports columnist for The Baltimore Sun).For more information about this series, visit https://CancerMavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Diagnosed with breast cancer when she was pregnant with her fourth child, Heidi Floyd presents a message of faith in God's promises in all circumstances. Heidi shares her powerful story with us in this episode. Heidi Floyd is a sought after influencer with over 10 years of experience in healthcare advocacy and breast cancer activism. She's a powerful communicator, international public speaker, and the author of in a word: quiet little thoughts about God. Heidi has served as the voice of the patient for a wide variety of organizations, including the U. S. Department of Defense, the American Cancer Society, and Susan G. Komen. Her experience has helped us establish and strengthen relationships with patient advocacy organizations that support patients and their families and educate corporations and other entities on compassionate outreach to the worldwide cancer community.Connect with Heidi on LinkedInFollow Heidi on Twitter

More than 53 million Americans act as family caregivers who often fall below the radar sacrificing everything in the name of compassion, empathy, and love. Caregiver Lifehacks amplifies the voices of those impacted by the diagnosis of a loved one. Hungry to connect and share information, these authentically candid interviews give us a peek into the vulnerable spaces of what it means to provide care for a loved one. Host Elura Nanos uses her no-BS conversational style to provide a home for the often unspoken thoughts and feelings of the caregiver experience. As a fiercely intelligent and radically compassionate lawyer and media professional, she knows the caregiver path all too well. Caregiver Lifehacks is a production of OffScrip Health. For more information visit https://offscrip.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Facing a diagnosis of cancer at any age is horrible. But for young adults, it's just plain different. Not better. Not worse. Different. Those diagnosed between the ages of 15 and 39 are on a planet all their own, often left to fend for themselves as lost voices sandwiched between pediatrics and adult cancer. The consequences of living with, through, and, ideally, beyond cancer carries with it a whole host of unique long-term issues, issues that had fallen under the radar and gone ignored by the system for far too long.In this episode, we talk to a new generation of cancer mavericks like Tamika Felder, Heidi Adams, Doug Ulman, and Lindsay Nohr-Beck, who revived a dying national conversation on cancer survivorship in the earliest days of the Internet. They created edgy websites, forced doctors to listen by creating fertility preservation guidelines, and fought to bring the invisible and underserved voice of the young adult cancer community into the national public spotlight.For more information about this series, visit https://CancerMavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

About This Episode: Guest Terri Ann DiJulio discusses great insights, lung cancer patient support and advocacy for research, and shares her compelling story about how she “Lives the Hell Out of Life”, because she does not want to waste “The Gift of Her Beautiful Life.” Compelling inspiration and great takeaways abound. =====CLICK HERE to View Full Show Notes, and to Hear a BONUS AUDIO CLIP of Terri Ann DiJulio sharing a story about “Forget the BUT, and just say YES!” at our website.  Visit: https://www.ourcancerjourney.com/category/podcast/=====Episode Guest(s): Terri Ann DiJulioTerri Ann DiJulio is a three-time lung cancer survivor and member of a multi-generational lung cancer family. Fueled by gratitude for her own health, Terri Ann has dedicated time to educate herself, fundraise for research and engage in legislative advocacy in hopes of having her voice help move the needle forward in the fight against lung cancer. =====About the Podcast:Follow Our Facebook Page:https://www.facebook.com/ourcancerjourneypodcastSubscribe for Free to the OCJ Newsletter:https://www.ourcancerjourney.com/contact/Check out Our Official Webpage:https://www.ourcancerjourney.com/=====Episode Host: Bruce WatkinsA Father, Cancer survivor, podcaster, writer & content creator, speaker, voice-over artist, facilitator/moderator, avid traveler, cultural explorer, humanitarian, giving-back & minimalist evangelist, music enthusiast, former Corporate people leader, and curious soul who transformed into an unapologetically optimistic and unpretentious advocate of Life-Optimization for all. After surviving Cancer and other life-changing experiences in 2017, Bruce gave away most of his possessions, left his home behind and began traveling, writing, volunteering, and giving-back. https://www.ourcancerjourney.com/about-our-cancer-journey-bruce-watkins/https://www.brucewatkins.comhttps://www.linkedin.com/in/brucewatkins/

In this episode, Nikki Gal and her guest Vera dig into manifesting the obstacles/hurdles of life, accepting growth, advocacy journey, as well as embodying her own self discovery. Vera Morris is a blogger, breast cancer/patient advocate, model, and pageant titleholder holder. She has been on her incredible journey of self love, self growth, and self awareness. We all go through challenges in our life, but it's how you manifest those challenges. Check out her journey: @veralashay

In just over 20 years, the number of cancer survivors in the United States has doubled to 17 million survivors, each confronting their new (ab)normal lives. From chemo brain to PTSD, medical debt to workplace discrimination, this episode follows survivors along with their unique—and often difficult—paths post-treatment. In this episode, we hear from some of the godmothers of the cancer survivorship movement like Dr. Patricia Ganz and Barbara Hoffman and “everyday mavericks” who are forging ahead into life after cancer. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Advocacy can take many forms in the cancer community — from advocating for yourself or a loved one to receive the best possible treatment to calling your Congressperson or testifying on Capitol Hill to demand increased access to care. This episode explores different ways cancer mavericks have elevated survivors' needs and improved their lives, including the pioneering patient navigation model created by Dr. Harold Freeman at Harlem Hospital, the story of Ellen Stovall's fearless and collaborative approach to policy, shaped around a shared agenda to represent the needs of all cancer survivors, and the landmark 1998 March on Washington called Coming Together To Conquer Cancer. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

By the 1980s, cancer was no longer a death sentence. But the question of what surviving actually meant was unanswered. Cancer survivors had to navigate issues around employment, relationships, and the emotional and physical side effects of treatment in a world that largely didn't know what to do with them. (and they were still called “victims.”) In 1985, a young doctor named Fitzhugh Mullan wrote an essay called “Seasons of Survival” about his own experience with cancer. His piece helped popularize the term “cancer survivor” and resonated with a growing number of survivors, who were starting to form support groups around the country. Among them was Catherine Logan Carrillo, the founder of People Living Through Cancer in New Mexico, who asked Fitzhugh to help her convene an “alumni association” for cancer survivors. And they did, during one monumental weekend in Albuquerque. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Mary Lasker used to say that more money was spent on advertising campaigns for gum than was spent on cancer research. She'd seen the effects of that almost non-existent budget first hand: she watched people close to her die from cancer, including her advertising exec husband. She was outraged by the lack of money and research devoted to ending the disease. But with her own funds and influence, Mary Lasker rallied the public and lawmakers to take notice, ultimately leading to The National Cancer Act of 1971. This "War on Cancer" brought millions of dollars, but also harsh truths: there was no simple cure for cancer, and the remedies of modern science to control the disease took a devastating toll on patients. Rose Kushner was one of those patients. She questioned the treatments and surgeries that had become the status quo for medical experts. Her pushback helped start a massive change in the patient-doctor relationship as well as in cancer treatment. In Episode 1, we learn how Mary Lasker and Rose Kushner became two of the most important health policy advocates of the 20th century, putting cancer—and cancer patients—front and center. For more information about this series, visit https://CancerMavericks.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Most people don't know that you're considered a cancer survivor at the moment of diagnosis. It wasn't always this way. Sixty years ago, a cancer diagnosis was a death sentence. And if you did survive, you were left to figure out the rest of your life on your own.But some survivors demanded something different, something better.From OffScrip Media, this is The Cancer Mavericks, a deep-dive narrative into the people who fought for better treatment, forced doctors to listen, and pushed America to see the human side of the disease. Episodes of this series will publish monthly through the end of December 2021 to commemorate the 50th anniversary of the signing of the National Cancer Act of 1971. For more information, visit https://cancermavericks.com.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.