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Nancy Robey spent 34 years as a Physicians Assistant at Johns Hopkins in Maryland. Now retired, she has a wealth of experience with pediatric transplant patients. She's here today to offer her tips and best practices to care for them.In the pediatric transplant world, the procedure may be for something other than cancer, and many patients and families don't have the knowledge base that cancer patients do. Education is so important.Speaking of education, how do you navigate a patient being out of school for so long? Nancy talks about different strategies she's seen, from private tutors, to virtual classrooms, and more - running through the pros and cons of each.One key is interaction with other children and peers. Unfortunately, some friends will fade away, but social interaction is vital to a patient in isolation. This can be achieved through handwritten notes, Zoom and Facetime calls, and even now through video games and social media.Nancy also talks about the hospital room itself. While each facility has its own rules, she talks about ways to brighten up patients' rooms with pictures, decorations, personal items, and more.At Johns Hopkins in particular, they have a Child Life Services team, offering support to children of all ages. Your hospital may have something similar. You can learn more here: https://www.hopkinsmedicine.org/johns-hopkins-childrens-center/patients-and-families/child-life/Nancy walks us through various aspects of the hospital stay, as well as the isolation period that follows. It's important not to be disheartened if your patient is re-admitted. That's often a minor setback and just part of the process. After all, that's why you're close by!We wrap up with a couple of Nancy's book recommendations, for kids of various ages and their families.For the younger set and families: More Than You Can Handle: A Rare Disease, A Family in Crisis, and The Cutting-Edge Medicine That Cured The Uncureable - https://www.amazon.com/More-Than-You-Can-Handle/dp/0593085914For older kids and young adults: Between Two Kingdoms, a Memoir of a Life Interrupted: https://www.amazon.com/Between-Two-Kingdoms-Suleika-Jaouad/dp/0399588582Other ResourcesNational Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.nbmtLINK Website: https://www.nbmtlink.org/nbmtLINK Facebook Page: https://www.facebook.com/nbmtLINKnbmtLINK YouTube Page can be found by clicking here.Thank you to this season's sponsors:The Leukemia & Lymphoma Society, www.lls.orgSanofi: https://www.sanofi.com/
This message is from our "The Gospel of John" series: "More Than You Can Handle"The Gospel of John was written by the Apostle John, one of Jesus' twelve disciples and a member of his inner circle. John wrote this Gospel from the city of Ephesus for both Jewish and Gentile readers to prove Jesus as the Son of God, that they might believe in him and receive eternal life in his name. Although this Gospel is evangelistic in nature and intent, believers of all ages and maturity levels can benefit from its depth, beauty, and richness. So regardless of where you are in your spiritual walk, John's Gospel is for you.During this series, we'll take a deep dive into this unique book to gain a better understanding of who Jesus is and all he accomplished during his life and ministry.STAY CONNECTED:Twitter: https://bit.ly/2XTOD4rFacebook: https://bit.ly/3ja3TCqInstagram: https://bit.ly/3jeBFq2v
Nicole Jacobsmeyer, author of Take Back Your Joy: Fighting for Purpose When Life is More Than You Can Handle, talks about the difference between joy and happiness, why the greatest threat to Christian joy isn't our circumstances, how to live "unoffended," and practical steps you can take toward joy today.
On today's podcast, I am excited to introduce you to my amazing friend, Nicole Jacobsmeyer. We have been online friends for awhile and finally got to meet "in person" via zoom. We go there! When I say there, I mean everything from faith under fire, mental health, suicidal thoughts, cancer and so much more. She is a beautiful person inside and out and you will leave this conversation feeling so encouraged! Her new book, Take Back Your Joy: Fighting For Purpose When Life is More Than You Can Handle, comes out on October 4th and I would highly encourage you to preorder today to take advantage of not only getting the book, but also some great preorder gifts! Bio: Nicole Jacobsmeyer has a passion for helping women walk in victory, joy, and faith in the face of trials, sorrow, and suffering. Since becoming a mom almost 8 years ago, her life mantra has been: Embrace the Chaos! With a husband in the medical field, four kids under 8, and lots of moves in between, she needed an outlet to write. The Embracing Chaos blog was started in 2016, which turned into a podcast. When it comes to ministry outside of the home, she have a passion for helping women walk in victory, joy, and faith in the face of trials, sorrow, and suffering. She wants to help women understand that God is good no matter what life brings and that it's possible to find lasting joy in Him. Nicole and her husband have four children under the age of seven and reside in North Carolina. She loves people, comfy clothes, chocolate chips cookies, babies in diapers, watching her kids play sports, writing, and a good glass of red wine. Nicole spends her spare time sharing her faith and encouraging women on her lifestyle website, www.NicoleJacobsmeyer.com, and her Instagram page, @nicole.jacobsmeyer. Anchor Verse: Psalm 126:5 Connect with Nicole: WEBSITE: https://www.nicolejacobsmeyer.com/ INSTAGRAM: https://www.instagram.com/nicole.jacobsmeyer/ FACEBOOK: https://www.facebook.com/NicoleRJacobsmeyer PINTEREST: https://www.pinterest.com/nicolejchristianauthor/ Preorder her new book wherever you order books and then head to her website for the preorder gifts!!! ***This podcast is a proud member of the Spark Network! It is a network of Christian podcasts that cover so many different topics! Head over to: https://www.sparkmedia.ventures/spark-network#/ to find more amazing podcasts!!***
Our great Savior comes through on every word in his promises.
Liz shares that while both she and Sarah embraced gratitude over Thanksgiving, Liz also felt another “g” emotion… guilt! Turns out it's hard to enjoy a few days off when so much work looms on the horizon. One solution? Remember that relaxing now leads to more productivity later. Then, in L v. S (Liz versus Sarah), they debate the merits of sound baths. Liz finds a sound bath more soothing than a massage — Sarah can't stand the high-pitched tone of singing bowls. Finally, this week's Hollywood Hack could be life altering: When looking for a mentor, choose someone whose life you like. Happier in Hollywood is part of ‘The Onward Project,' a family of podcasts brought together by Gretchen Rubin—all about how to make your life better. Check out the other Onward Project podcasts—Happier with Gretchen Rubin, Side Hustle School, Do The Thing, and Everything Happens with Kate Bowler . If you liked this episode, please subscribe, leave a review, and tell your friends! LINKS: More Than You Can Handle by Miguel Sancho: https://www.amazon.com/More-Than-You-Can-Handle/dp/0593085914 What Are Sound Baths? https://www.verywellmind.com/what-are-sound-baths-4783501 Singing Bowls: https://himalayanbowls.com/?gclid=Cj0KCQiAtJeNBhCVARIsANJUJ2HhCDD-dfPCfJr4YHomvgcXyFTNHK_ruJbr3wac0MIMSCB_IDgTT9caAgJnEALw_wcB Learn more about your ad choices. Visit podcastchoices.com/adchoices
Facing More Than You Can Handle? with Miguel Sancho “It's OK to be scared. You're not the first person to go through this. Be patient. Focus on what's in front of you. Push forward. Protect your head. Hold on. And you can do this.” — Miguel Sancho Episode Summary: As a parent, can you wrap your mind around what it would be like to be facing the possible death of your child? How would you face what feels like more than you can handle? In this episode, we talk with Miguel Sancho, an Emmy Award winning journalist, and executive producer of award winning documentaries and news programs. His work has been seen History Channel in 2021, 2020. His current work is “The Proof Is Out There” on The History Channel. Miguel Sancho's book, "More Than You Can Handle, A Rare Disease, a Family in Crisis, and the Cutting-Edge Medicine that Cured the Incurable is a page turner! His book chronicles the lives and deaths of patients and staff at the Duke University Hospital Pediatric Bone Marrow Transplant Unit, where his son's life was saved in 2016. Listen in to hear Miguel Sancho share the harrowing experience of parenting his critically ill son, Sebastian. Topics We Discuss: Chasing medical answers while their infant son Sebastian endured surgeries, treatments, medicines in his first months. Ultimately, a bone marrow transplant when his son was age 4. Miguel Sancho's journey of ups and downs - through stoicism, workaholism, depression, anxiety, marital issues, and finally through meditation, discipline and faith. Plunging into the science and knowledge of the situation, as an ennobling exercise in optimism. The importance of trying and using multiple modes of healing to find the particular combination that works for you individually – therapy, mediation, medications, exercise... The therapeutic benefit of mindfully allowing yourself to feel your intense emotions. Meditation and lovingkindness or meta as coping and healing practices. Miguel Sancho's wife's program: “Five F's” – faith, family, friends, food, fun. Get Your Copy of “More Than You Can Handle” You can learn more about “More Than You Can Handle” and purchase your copy at here or anywhere books are sold. Follow Miguel Sancho on: Website LinkedIn Support Life, Death and the Space Between: If you're enjoying the podcast and finding value in guest interviews, ghost stories, and the content I share, please consider supporting the show by becoming a Patreon member for as little as $5 a month at Patreon.com/DrAmyRobbins As a member you'll get more say in the content we cover and exclusive access to behind-the-scenes goodness! Stay Connected: Facebook Instagram YouTube Fireside
S6 E18: In this episode, meet magazine editor, on-air lifestyle expert, and certified trainer Meaghan B Murphy, Emmy Award-winning television producer Miguel Sancho, and pastor and blogger Kurt Willems. Discover what drove each of these authors to share their personal experiences with readers and listeners and why it was important for them to record their audiobooks. Your Fully Charged Life by Meaghan B Murphy: https://www.penguinrandomhouseaudio.com/book/624337/your-fully-charged-life/ More Than You Can Handle by Miguel Sancho: https://www.penguinrandomhouseaudio.com/book/611475/more-than-you-can-handle/ Echoing Hope by Kurt Willems: https://www.penguinrandomhouseaudio.com/book/652046/echoing-hope/
In Part 2 of our powerful interview with author Miguel Sancho and his wife Felicia Morton we talk about the myriad decisions that parents raising a child with a rare disease must make. Their son was born with a severe immunodeficiency known as chronic granulomatous disease (CGD). The decisions range from the ones we cannot imagine having to make to the common decisions we all make. Renowned experts provided input but the decision to take the drastic step of an umbilical stem cell bone marrow transplant fell to them. This forced them to make a series of “life-event” decisions: where to live, career choices, and schooling for their healthy daughter. Piling these decisions upon each other led to emotional strain which could have led to decision paralysis. They learned that there is a difference between knowing what you have to do, and then actually doing it. We talk about the biases that we all bring to making decisions. Felicia felt like she could not watch her child go through the procedure until another mom told her, “You can do this. You will do this.” Miguel just wanted to avoid disruption in their lives. He had to get past this for them to do what was need. This couple has dealt with this experience in their own distinct ways. Miguel wrote a book, Felicia started a nonprofit. Control what you can. Get more information. Try to let go of the control. We get a chance to hear more about https://cgdaa.org/ (CGD Association of America), an advocacy that Felicia has started to support families through this forest of decisions. Please order Miguel's book today, https://www.amazon.com/More-Than-You-Can-Handle-ebook/dp/B089S73XVC/ref=mp_s_a_1_3?dchild=1&keywords=more%20than%20you%20can%20handle%20miguel%20sancho&qid=1612366808&sprefix=more%20than%20you%20can%20handle%20&sr=8-3&fbclid=IwAR2CdtlBFMMRlc_y9ohuFU87F3n-75K0ZB9XWELcB4Q9qAL7NZEOkAANf6k (More Than You Can Handle: ) https://www.amazon.com/More-Than-You-Can-Handle-ebook/dp/B089S73XVC/ref=mp_s_a_1_3?dchild=1&keywords=more%20than%20you%20can%20handle%20miguel%20sancho&qid=1612366808&sprefix=more%20than%20you%20can%20handle%20&sr=8-3&fbclid=IwAR2CdtlBFMMRlc_y9ohuFU87F3n-75K0ZB9XWELcB4Q9qAL7NZEOkAANf6k (A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured) https://www.amazon.com/More-Than-You-Can-Handle-ebook/dp/B089S73XVC/ref=mp_s_a_1_3?dchild=1&keywords=more%20than%20you%20can%20handle%20miguel%20sancho&qid=1612366808&sprefix=more%20than%20you%20can%20handle%20&sr=8-3&fbclid=IwAR2CdtlBFMMRlc_y9ohuFU87F3n-75K0ZB9XWELcB4Q9qAL7NZEOkAANf6k (the Incurable) Support this podcast
This week on the "Stories from the Brink" Podcast, Emmy Award-winning television producer Miguel Sancho joins host Maya Browne to talk about his new book "More Than You Can Handle", his riveting tale of the diagnosis and treatment of his infant son's illness.
We have all heard the inspiring stories of a family that suddenly faces the trauma of a rare diagnosis, become advocates for themselves or their child, finds a solution, and celebrate the triumph. This one is different. Miguel Sancho and his wife Felicia Morton were that family. They became advocates and went on a wild medical adventure. And today, they can celebrate the triumph. However, they have decided to share the harder part of their journey. Miguel has written an enthralling book entitled More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable. It is the story of a family straining under the weight of their son's diagnosis of chronic granulomatous disease (CGD). Written in the first-person, Miguel shares his deepest thoughts, fears, and vulnerabilities. He relates the mistakes he made along the way and how he has come to grips with them. It was wonderful to have Felicia give her angle on some of the stories too. Felicia has used the experience and started a nonprofit https://cgdaa.org/ (CGD Association of America). CGDAA is committed to advocating on behalf of patients, carriers, and families by providing clear, accurate, and independent news and information about CGD and advancing CGD research. During the interview, Miguel and Sanath connect in a way that only rare dads can. Sanath is at one end of the tunnel, filled with little more than hope and drive. Miguel is at the other end of that tunnel, able to provide encouragement and speak of hopes fulfilled. We highly recommend Miguel's book. It is extremely well written and the story teaches some important lessons. It will be available starting March 2. You can order it on amazon. https://www.amazon.com/More-Than-You-Can-Handle-ebook/dp/B089S73XVC/ref=mp_s_a_1_3?dchild=1&keywords=more%20than%20you%20can%20handle%20miguel%20sancho&qid=1612366808&sprefix=more%20than%20you%20can%20handle%20&sr=8-3&fbclid=IwAR2CdtlBFMMRlc_y9ohuFU87F3n-75K0ZB9XWELcB4Q9qAL7NZEOkAANf6k (More Than You Can Handle) Support this podcast
In this episode, Bruce and Justin discuss popular Christian cliches and why they're not helpful or biblical. Cliches like, "God will never give you more than you can handle" are not only damaging but also have no grounding in biblical truth.
Today we are hitting another Christian cliche. I'm sure that if you have been a follower of Jesus for any length of time you have heard it said or said it yourself...God will never give you more than you can handle. It is a half truth, but even a half truth is a full lie. We are going to explore this cliche today. The music on the podcast is from John Nugent. John is a Chicagoland area musician who has been a real blessing to Tabor Church. Support the show (http://taborchicago.org/give/)
Moving Forward When It's More Than You Can Handle
Sermon from Pastor Chris Doak. Scripture from 1 Corinthians 10:13, Matthew 26:37-39, 2 Corinthians 1:8-10.
Sometimes we face challenges and obstacles in life that seems unbearable and overwhelming but we must remember that God is with us. Pastor Nate Pyle, joined Kevin Krueger to discuss this in his book “More Than You Can Handle”.
In this week's episode, our new friend Nate Pyle joins us. Jessica shares a series of crazy events all involving 9-1-1 calls that she experienced over the past few day. Then the crew talks to Nate Pyle about his new book More Than You Can Handle. Then Nate closes us out with a great devotional on Lent.
Nate is pastor and also author of the brand new book More Than You Can Handle. In this episode we cover early ministry mistakes, growing from self aware to truly transformed, when a leader shares her or his own struggles and when to wait, and our usual gauntlet of anxiety questions
Week 1 of "MISLED"
In week two of the God Never Said That series, Pastor Dione talks about perhaps the most oft used and least true phrase that we use as Christians - God will never give you more than you can handle.