Podcast appearances and mentions of brooke abbott

Where do veteran advocates point people new to advocacy for skills, resources, and research? What are trusted resources? 15 interviews from Healthe Voices 22. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Prefer to watch the episode rather than listen? Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 03:27 Sue Rericha 04:00 Sharnae Smith 04:33 Christine Von Raesfeld Hetlena Johnson 05:48 Brooke Abbott 06:22 Bethany Yeiser 07:41 Michele Nadeem-Baker 08:59 Jenna Green 10:50 Kara Beck 12:15 A word from our sponsor, Abridge 12:47 Jasmin Pierre 13:30 Alexis Newman 14:02 Ryan Williams 14:43 Andrew Schorr 16:04 Howard Chang 17:45 Rachel Star Withers 17:48 Reflection 18:22 Nuggets from the mine 19:55 Podcast Outro 20:55 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Proem and Reflection music, Moe's Blues, played by the Joey van Leeuwen Band Photo by Shane Rounce on Unsplash Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaiser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang, Rachel Star Withers Links Raw, unedited transcript of all responses to question #2 Healthe Voices website Facebook Bethany Yeiser CURESZ (Comprehensive Understanding via Research and Education in Schizophrenia). Mind Estranged: My Journey from Schizophrenia and Homelessness to Recovery Paperback – July 10, 2014 Lupus Foundation of America (LFA) Hetlena Johnson's thelupusliar.com @thejennagreen Instagram Kara Beck @karabear_rny Instagram Schizophernia medication TAAR1 agonist NAMI (National Association for Mental Illness) Books on Alzheimer's by Ryan Williams patient's story Chronic Lymphocytic Leukemia The CLL Society CLL Women Strong  Kicking Cancer in Heels National MS Society Andrew Schorr Patient Power Nuggets from the Mine Knowledge for Caregivers podcast   Related podcasts https://health-hats.com/pod180/ https://health-hats.com/pod182/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing

Patient advocates from the Healthe Voices 2022 conference describe how they recognize success in their advocacy.. Snapshots of diverse lived experiences. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem Podcast intro 01:51 Estella Mata 02:26 Jason Jepson 02:43 Sharnae Smith 03:08 Jim Sneeden 03:31 Christine Von Raesfeld 04:32 Jason Crum 05:02 Brooke Abbott 05:27 Bethany Yeiser 05:41 Ken Taylor 06:11 Cindy Chmielewski 07:17 A word from our sponsor, Abridge 08:51 Jesus Guillen 09:34 Christopher Quimbar 10:22 Stephanie Chuang 10:57 Michele Nadeem-Baker 11:55 Jenna Green 13:02 Jasmin Pierre 14:18 Sam Seavey 14:39 Rachel Star Withers  15:25 Reflection 16:19 Podcast Outro 17:35 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaiser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang, Rachel Star Withers Links Raw, unedited transcript of all responses to question #2 Healthe Voices website Facebook Phyllisa DeRoze website re: Diabetes Diagnosed Not Defeated Bethany Yeiser CURESZ (Comprehensive Understanding via Research and Education in Schizophrenia). Mind Estranged: My Journey from Schizophrenia and Homelessness to Recovery Paperback – July 10, 2014 Ken and Barby's International Pain Foundation Stephanie Chiang The Patient's Story @thejennagreen Instagram Kara Beck @karabear_rny Instagram Books on Alzheimer's by Ryan Williams Sam Seavy's The Blind Life YouTube Channel Andrew Schorr Patient Power YouTube Video of this episode Related podcasts https://health-hats.com/pod180/ https://health-hats.com/but-you-can-total-self-care-at-13/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeu...

26 patient advocates from the Healthe Voices 2022 conference describe the moment when they realized health was fragile. Snapshots of diverse lived experiences. Blog subscribers: Listen to the podcast here. Scroll down through show notes to read the post. Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, experience impaired hearing or deafness? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to read (heading. time on podcast xx:xx. page # on the transcript) Proem.. 2 Podcast intro 01:46. 2 Estella Mata 02:23. 2 Sharnae ‘Nae” Smith 02:42. 3 Jim Snedden 03:28. 3 Christine Von Raesfeld 03:48. 3 Hetlena Johnson 04:42. 3 Jason Crum 05:22. 4 Jason Jepson 05:57. 4 Brooke Abbott 06:26. 4 Phyllisa DeRoze 07:28. 4 Bethany Yeiser 07:49. 4 Ken Taylor 08:20. 5 Cindy Chmielewski 09:35. 5 Jesus Guillen 10:35. 5 Christopher Quimbar 12:31. 6 Stephanie Chuang 13:06. 6 Michelle Nadine Baker 6 Jenna Green. 6 Kara Beck. 6 Jasmin Pierre. 7 Sue Rericha. 7 Alexis Newman. 7 Ryan Williams 7 Sam Seavey. 7 Andrew Shore. 8 Howard Chang. 8 Reflection. 8 Podcast outro. 8 Please comment and ask questions at the comment section at the bottom of the show notes on LinkedIn  via email YouTube channel  DM on Instagram or Twitter to @healthhats Credits Intro and outro music by permission from Joey van Leeuwen, Drummer, Composer, Arranger Web and Social Media Coach Kayla Nelson @lifeoflesion The views and opinions presented in this podcast and publication are solely the responsibility of the author, Danny van Leeuwen, and do not necessarily represent the views of the Patient-Centered Outcomes Research Institute®  (PCORI®), its Board of Governors or Methodology Committee. Sponsored by Abridge Inspired by and grateful to Estela Mata, Sharnae 'Nae" Smith, Jim Snedden, Christine Von Raesfeld, Hetlena Johnson, Jason Crum, Jason Jepson, Brooke Abbott, Phyllisa DeRoze, Bethany Yaeser, Ken Taylor, Cindy Chmielewski, Jesus Guillen, Christopher Quibar, Stephanie Chuang, Michelle, Nadine Baker, Jenna Greene, Kara Beck, Jasmin Pierre, Sue Rericha, Alexis Newman, Ryan Williams, Sam Seavey, Andrew Shorr, Howard Chang Links Healthe Voices website Facebook YouTube Video of this episode Related podcasts https://health-hats.com/lead-by-example/ https://health-hats.com/but-you-can-total-self-care-at-13/ https://health-hats.com/gratitude-in-loss-together/ About the Show Welcome to Health Hats, learning on the journey toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.  I'm the Rosetta Stone of Healthcare. We will listen and learn about what it takes to adjust to life's realities in the awesome circus of healthcare.  Let's make some sense of all this. To subscribe go to https://health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed under Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.  Please cite the source as: ‘From Danny van Leeuwen, Health Hats. (including the link to my website). I welcome edits and improvements.  Please let me know. danny@health-hats.com. The material on this site created by others is theirs and use follows their guidelines. The Show Proem Hi. Each of us can remember a moment, an event, or a time in our life when we realized the fragility of health.

Two mothers with inflammatory bowel disease have much in common. But what makes them different is what also makes them so powerful as the “IBD Moms.” In the second of a two-part episode, Brooke Abbott and Amber Tresca talk about how racial disparities impact access to IBD diagnoses and treatment, and why building community is crucial to getting much-needed information into the hands of people living with IBD. “We can help one another in this,” says Amber. “Let's figure out what we need to do to make sure that we're the best moms that we can be. We just found so much joy and so much friendship in one another.” Among the highlights in this episode: 2:41: Brooke describes the health inequities based on stereotypes that exist for Black women 3:14: “I was told that I had everything except for inflammatory bowel disease,” reveals Brooke 3:59: Brooke's poor medical care continued even after she was diagnosed  6:35: Our co-host Melodie describes shutting down and feeling “disqualified, not heard, not seen” by her doctor 7:19: Amber realizes so many people are going through their IBD journeys alone 8:05: Planning is key for people living with IBD 10:09: “The pandemic has shown us that we are creatures who need a community, who need people, who need support,” says Brooke 11:42: “Nine times out of 10, patients are just trying to be patients,” believes Melodie. “They don't even know there's validity in what they've just experienced.” 13:15: Amber shares the most challenging aspects of living with IBD from the IBD community? 15:11: Access to information is important Learn more about IBD Moms  Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness: melodie@cocci.org Catch up on all our episodes on our website or on your favorite podcast channel.   See omnystudio.com/listener for privacy information.

A hotel bar is an unlikely place to start a support group for Inflammatory bowel disease. But that's where Brooke Abbott and Amber Tresca found a special magic to form the group, "IBD Moms." In the first of a two-part episode, get to know Brooke and Amber and how they manage life as mothers living with IBD. “We both realized that going through your journey… you don't just meet people in the wild who are like, ‘Yeah, I have IBD as well,'" says Amber. ”We just found so much joy and so much friendship in one another.” Among the highlights in this episode: 2:24: Amber describes being diagnosed at 16 with ulcerative colitis 3:27: Brooke talks about first having symptoms in college 5:06: How Amber and Brooke started IBD Moms 7:51: How IDB impacts Brooke's life as a single mother 9:36: Amber describes her motherhood journey having IBD 10:29: IBD forced Amber to stop volunteering as a Cub Scout and Girl Scout leader 11:59: Most people don't understand the ups and downs of having IBD 10:24: ”You can have an “A” day or a “D” day within 30 seconds,” says Melodie Learn more about IBD Moms  Contact Our Hosts Steven Newmark, Director of Policy at GHLF: snewmark@ghlf.org Melodie Narain-Blackwell, President and Founder of The Color of Crohn's and Chronic Illness: melodie@cocci.org Catch up on all of our episodes on our website or on your favorite podcast channel. See omnystudio.com/listener for privacy information.

People who live with Crohn's disease or ulcerative colitis don't want to feel like a burden. They may feel guilty about changing or canceling plans. Sometimes, people with IBD may not even want to make plans in the first place. A strong support system can help overcome these issues and help patients manage their new normal. Dr Alexandra Fuss, a clinical health psychologist and an Assistant Professor of Psychiatry in the Department of Psychiatry at Yale School of Medicine and Brooke Abbott, ulcerative colitis patient, founder of The Crazy Creole Mommy Chronicles, and co-founder of IBDMoms tell me how they have productive conversations with friends and family surrounding IBD. Concepts discussed on this episode include: What to Know Before You Eat Out When You Have IBD How to Share a College Dorm Bathroom 7 Tips for Keeping IBD at Bay on Big Days Navigating Daily Life with IBD Find Alexandra Fuss, PhD on Instagram, LinkedIn and at Yale School of Medicine. Find Brooke Abbott at The Crazy Creole Mommy Chronicles, Facebook, Twitter, and Instagram. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio. Episode transcript and more information at https:/bit.ly/AIBD112

One Mom's Journey to Health Advocacy It's our podcastversary! On the podcast's one-year anniversary, I speak with Brooke Abbott, a health advocate and mom who is living with inflammatory bowel disease and fighting for other moms -- and anyone -- living with IBD or any chronic illness.  She explains that while doing so can can be isolating, frightening, and sometimes hopeless, it doesn't have to be.  At least not always.  Listen and learn about how to live, with or without a chronic disease, because her advice is just that insightful, real, and inspiring.

IBD AWARENESS WEEK is this week and as some of you may know I am an IBD Warrior myself. I live with a j-pouch now and have ulcerative colitis. I previously had an ostomy bag and on today's episode I have a conversation with the host of the About IBD podcast her name is Amber Tresca and she has a similar story to mine a lot of ways. She does a lot to inform others about IBD and what it is like to live with it. Amber is an IBD patient (diagnosed with ulcerative colitis in 1989) who has been writing and editing patient-facing content for the IBD community since 2000 both for major online outlets and on her own site, AboutIBD.com. After 10 years of active disease, medical therapy failed and she underwent the 2 step j-pouch surgery (removal of the large intestine and creation of an internal pouch from the last part of the small intestine). In 2017, she began the About IBD Podcast to educate people living with IBD about their disease and to bring awareness to the patient journey. She founded IBDMoms with Brooke Abbott of The Crazy Creole Mommy Chronicles to support moms who are touched by an IBD. She currently works as a speaker, facilitator, and advocate for people with IBD as well as a freelance writer and editor for medical web sites and publications. About IBD Blog: http://aboutibd.com/ About IBD Podcast on iTunes: https://itunes.apple.com/us/podcast/about-ibd/id1228402052 About IBD Facebook: https://www.facebook.com/aboutibd/ About IBD Instagram: https://www.instagram.com/about_ibd/ About IBD Twitter: https://twitter.com/aboutIBD IBDMoms Facebook: https://www.facebook.com/IBDMoms/ More information from Mayo Clinic: Inflammatory bowel disease (IBD) is an umbrella term used to describe disorders that involve chronic inflammation of your digestive tract. Types of IBD include: Ulcerative colitis. This condition involves inflammation and sores (ulcers) along the superficial lining of your large intestine (colon) and rectum. Crohn's disease. This type of IBD is characterized by inflammation of the lining of your digestive tract, which often can involve the deeper layers of the digestive tract. Both ulcerative colitis and Crohn's disease usually are characterized by diarrhea, rectal bleeding, abdominal pain, fatigue and weight loss. IBD can be debilitating and sometimes leads to life-threatening complications. Thank you so much for listening to today's episode to learn more about IBD. YOU GUYS! This is the mental health pick me up we all need once in awhile when things are crazy & hectic…. I wanted to send you reminders twice a week to take care of YOU & YOUR MENTAL HEALTH! I'm so excited to announce that in January we will be starting a twice per week mental health messages text list

This week I have a conversation with Amber Tresca. Amber is an IBD patient (diagnosed with ulcerative colitis in 1989) who has been writing and editing patient-facing content for the IBD community since 2000 both for major online outlets and on her own site, AboutIBD.com. After 10 years of active disease, medical therapy failed and she underwent the 2 step j-pouch surgery (removal of the large intestine and creation of an internal pouch from the last part of the small intestine). In 2017, she began the About IBD Podcast to educate people living with IBD about their disease and to bring awareness to the patient journey. She founded IBDMoms with Brooke Abbott of The Crazy Creole Mommy Chronicles to support moms who are touched by an IBD. She currently works as a speaker, facilitator, and advocate for people with IBD as well as a freelance writer and editor for medical web sites and publications. https://aboutibd.com/category/podcast/ https://www.instagram.com/about_IBD/ https://www.facebook.com/aboutibd/

Motherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ignored altogether. That's why I asked my close friend and co-founder of IBDMoms, Brooke Abbott of The Crazy Creole Mommy Chronicles, to tell me about her challenges and her successes living with IBD, a j-pouch, and being a single mom of a young son. Concepts discussed in this episode: What Are the Five Love Languages? An Overview of Asacol (Oral Mesalamine) How Does Implicit Bias Influence Behavior? Black Women Suffer Most From Restrictive Reproduction Policies, Study Shows Racial Disparities in Maternal Health May Be at a Pivot Point How Prince Shook Up the Music Industry Motherhood Unplugged on Lights, Camera, Crohn's Complete show notes and transcript found at https://aboutibd.com/?p=1965. Find Brooke Abbott on Twitter, Facebook,  and Instagram and on her blog, The Crazy Creole Mommy Chronicles. Find IBDMoms on Facebook, Twitter, and Instagram Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party,” is from ©Cooney Studio.

On the #RADIO show this week we cover how your voice is needed to lift healthcare coverage and the Safe Step Act; cover the powerful work of Black Voters Matter; discuss what you can do to stop the unfair cradle to prison pipeline; and close the show getting the bad news about the rise in hate crimea and the good news about how the rise in our votes can lift everyone. *Special guests include: Brooke Abbott, advocate, mom, and superhero, @crzycreolemommy; Cliff Albright, Black Voters Matter Fund, @blackvotersmtr; Beatriz Beckford, MomsRising; and @MomsRising; Gloria Pan, MomsRising, @MomsRising  Originally Aired November 18, 2019

On the #RADIO show this week we cover how your voice is needed to lift healthcare coverage and the Safe Step Act; cover the powerful work of Black Voters Matter; discuss what you can do to stop the unfair cradle to prison pipeline; and close the show getting the bad news about the rise in hate crimea and the good news about how the rise in our votes can lift everyone. *Special guests include: Brooke Abbott, advocate, mom, and superhero, @crzycreolemommy; Cliff Albright, Black Voters Matter Fund, @blackvotersmtr;  Beatriz Beckford, MomsRising; and @MomsRising; Gloria Pan, MomsRising, @MomsRising

In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn’s and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy.   See video of the Congressional Briefing on IBD & Population Health: https://www.facebook.com/ccfafb/videos/452493261950841/   Find Brooke Abbott of The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn’s and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media. 1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project Concepts and ideas discussed in this episode: Resources From the Crohn’s and Colitis Foundation: Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist Just Like Me: http://justlikemeibd.org Quiz My IBD: http://www.ibdskillsquiz.org Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/ Crohn’s & Colitis Community: https://www.crohnscolitiscommunity.org/ The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/ Find Dr Rajeev Jain at: Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/ Twitter: https://twitter.com/rajster Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/

What are your traditions around Thanksgiving? What we eat and how we celebrate Thanksgiving depends on where we live, our ethnicity, and our family traditions. What matters is coming together and remembering to be thankful. Brooke Abbott of The Crazy Creole Mommy Chronicles and IBD Moms tells me about some of her family’s Thanksgiving traditions and how she talks about being grateful with her son. We discuss some of the ways we try to support the IBD community and what we can do better, especially during the hectic and stressful holiday season. Plus, see the end of the show notes for some of Brooke's recipes!   Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/   Brooke’s Jambalaya Recipe I cook my rice separately than the meat & broth. Then combine them together. This is the non-spicy version of cajun jambalaya. If you want it spicy you can add crushed red pepper or andouille sausage. Boneless Chicken Breast or Thighs Raw Shrimp w/out the tail Smoke Sausage Ham White Onion Fresh Garlic Bell Pepper Canned Diced Tomatoes Bay Leaf Green Onion Parsley Olive Oil Lemon Pepper Garlic Powder Salt Black Pepper Tony Chachere Creole Seasoning Directions: Use a large stewing pot to cook in and another pot for rice. Season the chicken and shrimp separately with lemon pepper, garlic powder, salt, and Tony’s Chachere Creole Seasoning. Dice onion, garlic, and bell pepper together. Cover the bottom of the pot in a layer of olive oil. Place chicken in and brown on all sides. Remove chicken, dice, and set aside. Add the trifecta of garlic, onions, and peppers to the pot and brown. Add diced ham and sliced smoked sausage. Mix in a can of diced tomatoes and a bay leaf. Add salt and black pepper. Add chicken back in. Simmer. Stir in shrimp. Simmer again for 20 minutes. Add cooked rice and mix together. Garnish with sliced green onion and chopped parsley.   Brooke’s Christmas Spaghetti   You can use any kind of pasta with the sauce.   Ground Turkey or Beef Smoked Sausage Pete’s Hot Sausage or Andouille Sausage Shrimp Ham Canned Peeled Tomato Onion Garlic Bell Pepper Tomato Sauce Salt Pepper Oregano Tony Chachere Creole Seasoning Better than Bouillon Chicken Olive Oil Directions: In a large stew pot brown the ground meat. Once cooked through, add the onions, garlic, and bell pepper. Add ham and smoked sausage. *If adding a spicy sausage like Pete’s Sausage or andouille, brown those in separate pan and then add to the mixture* Add canned peeled tomato and mash into large pieces. Mix in the tomato sauce. Add a teaspoon of Better than Bouillon Chicken. Season with Oregano, salt, and pepper. Mix all together and simmer. Pour over your choice of pasta.

Lilly heads to Vegas to attend the first-ever Crohn's and Colitis Congress. Along the way, she interviewed the ever-inspirational Brooke Abbott (crazycreolemommy.com) about advocacy, mothering, and a busy life with a chronic condition.  

The healthcare space isn’t a level playing field. Minority populations face complex challenges when it comes to accessing and receiving care, which is why April is designated as National Minority Health Month. In regards to inflammatory bowel disease, it’s not well known that Crohn’s disease and ulcerative colitis also affect minorities. Shawntel Bethea of Chronically Strong and Brooke Abbott of The Crazy Creole Mommy Chronicles discuss how they’ve been affected by healthcare disparity and offer concrete ideas on what can be done to start addressing healthcare gaps in their communities. Learn more about National Minority Health Month here: https://minorityhealth.hhs.gov/NMHM18/ Find Shawntel Bethea, Chronically Strong, at: Blog: https://chronicallystrong.com/ YouTube: https://www.youtube.com/channel/UCrklcLJ7FvGtN-fOvJJM-jQ Facebook: https://www.facebook.com/chronicallystrongblog/ Twitter: https://twitter.com/shawnbethea_ Instagram: https://www.instagram.com/chronicallystrongblog/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles, at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Pregnancy and birth are different for women with IBD. There are not only challenges that come from the disease itself but the lack of awareness about IBD during pregnancy can lead to less than optimal treatment. Brooke Abbott of The Crazy Creole Mommy Chronicles describes how she coped with ulcerative colitis during her pregnancy and a birth that did not go as she’d hoped or as she’d expected. Learn how everything turned out in the end and find out what Brooke and Amber think pregnant women with IBD should do to prepare for birth and for those first few weeks with a new baby.   Web sites mentioned in this episode: Mother to Baby: https://mothertobaby.org/La Leche League: https://www.llli.org/Kelly Mom: https://kellymom.com/Breastmilk Donations: https://www.hmbana.org/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBDPinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels. Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452 Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.instagram.com/crohnie_bologna_ibd/ Find Ryan Stevens, IBD Swimming & Me, at: Blog: http://www.crohnsguy.com/ Facebook: https://www.facebook.com/IBDSwimmer/ Instagram: https://www.instagram.com/rp_stevens/ Find Jaime Weinstein at: Blog: http://prettyrottenguts.tumblr.com/ Twitter: https://twitter.com/JaimeEditor Instagram: https://www.instagram.com/slightlyjaided/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Michael Tresca at: Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Find Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine at: Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html Facebook: https://www.facebook.com/opbmed/ Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/ Dr Taft’s Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th Find Brian Greenberg at: Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/ Facebook: https://www.facebook.com/ChronicallyBetterYou/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Rumble - Bensound.com - www.bensound.com/royalty-free-music Interludes: Love - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Summer - Bensound.com - www.bensound.com/royalty-free-music

Are you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government! 6:00: What’s an IBD Elevator Speech? Hear Brooke’s and then use the create your own. 7:15: Find out what happens when you meet with the staff in your representatives’ office. 12:27: What should you know—and do—before you meet with someone at your representative’s office? 12:53: What you do say when you call your representative’s office to set up a meeting? 15:34: Do this if your representative will not meet with you. 22:07: What to write on a postcard you send to your representative. 28:50: Do our representatives pay attention to Twitter hashtags? 29:48: How https://www.govtrack.us/ and https://www.congress.gov/ can help you advocate! 35:30: Brooke always does this one thing before she goes into a meeting. 39:70: Learn which senator is also a gastroenterologist. 44:04: We talk about one of my Senators who I coincidentally met with about a week after we recorded this episode! (See my Facebook or Twitter feed for the photos!) 52:35: New segment on the show: Amber’s Unsolicited Parenting Advice! 59:23: Listen to About IBD Episode 5 to learn why Brooke is Amber’s "Alec Baldwin." Want to do more? *Brooke and Amber attended the Digestive Disease National Coalition Public Policy Forum in 2017. You can find out more about their events and legislative events on their site: http://www.ddnc.org/ *Sign up for the Crohn’s and Colitis Foundation Advocacy Network to get informed about advocacy goals: http://www.crohnscolitisfoundation.org/get-involved/be-an-advocate/ *See if your legislator is on the Crohn’s and Colitis Caucus. If not, write them and ask them to join! http://www.crohnscolitisfoundation.org/assets/pdfs/advocacy/2017-caucus-handout-1.pdf *Don’t know where to start? Get in touch with us—we’re friendly! Featured Guest: Brooke Abbott, The Crazy Creole Mommy Chronicles Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Retro Soul - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Jazzy Frenchy - Bensound.com - www.bensound.com/royalty-free-music

If I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce. 4:45: Hear why Alison Rothbaum of Empowering Patients wouldn't give back these 2 things. 6:25: Brooke Abbott of The Crazy Creole Mommy Chronicles explains why IBD turned her life upside down in a positive way. 8:55: Christy Stone of Crohnie Bologna gives you the four-letter word that has defined her journey with IBD. 11:17: Megan Johnson of The Front Butt YouTuber explains why her IBD goes hand-in-hand with her accomplishments. 13:00: Ryan Stevens of Crohn’s Guy tells us what IBD has helped him cut out of his life. 14:00: What’s Your Trust Setting? http://aboutibd.com/2016/04/04/whats-your-trust-setting/ Featured Guests: Alison Rothbaum, Empowering Patients: https://twitter.com/Empoweringpts9 Brooke Abbott, The Crazy Creole Mommy Chronicles: https://crazycreolemommy.com/ Christy Stone, Crohnie Bologna: http://www.crohniebolognaibd.com/ Megan Johnson, The Front Butt YouTuber: https://www.youtube.com/user/TheFrontButttuber Ryan Stevens, Crohn’s Guy: http://www.crohnsguy.com/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: New Dawn - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Slow Motion - Bensound.com - www.bensound.com/royalty-free-music  

I talk with Brooke Abbott of The Crazy Creole Mommy Chronicles about what it's like to be a parent with a chronic illness and how that's affected our relationship with our children. We also try to figure out how to clone ourselves and I'm so tired that I get the name of a well-known celebrity wrong -- several times. Featured Guest: Brooke Abbott Twitter: @CrzyCreoleMommy Facebook: https://www.facebook.com/crazycreolemommy/ Web site: https://crazycreolemommy.com/ Women of Distinction: https://crazycreolemommy.com/the-giant-pat-on-the-back/ Additional Audio Engineering by Mac Cooney http://cooneystudio.com/ Music: Clear Day - Bensound.com - www.bensound.com/royalty-free-music

CROHN’S & COLITIS FOUNDATION HONORS BROOKE ABBOTT, SHAWN LACY BULLEN AND ROXY SOWLATY AT TENTH ANNUAL WOMEN OF DISTINCTION LUNCHEON Los Angeles, CA– The Greater Los Angeles Chapter of the Crohn’s & Colitis Foundation will celebrate its 10th Annual Women of Distinction Luncheon on May 17, 2017 at the Beverly Hilton Hotel. Each year the foundation recognizes women who are successful in their fields and celebrate their commitment to philanthropy. The 2017 Honorees include: Brooke Abbott, creator/blogger for The Crazy Creole Mommy Chronicles and owner of The Crazy Creole Mommy Life, Inc; Shawn Lacy Bullen, Owner/Managing Director, Biscuit Filmworks; and Roxy Sowlaty, Beverly Hills based interior designer. Past honorees include Jamie Lee Curtis, Mary Hart, Wendy Goldberg, Joyce Brandman, Mindy Weiss, Amy Brenneman, Judy Felsenthal, Evelyn Heyward, Linda Howard, Bobbe Joy Dawson, Barbara Herman, Lisa Greer, Tina Finkelman Berkett, and Janice Bryant Howroyd. We are pleased to announce that Bloomingdale's Century City, last year’s fashion show presenter, has agreed to partner with us once again and present the 2017 fashion show. In addition, Sprinkles Cupcakes of Beverly Hills has generously donated cupcakes for each guest. “Since 1967, the Crohn’s & Colitis Foundation has been a leader at the forefront of research in Crohn’s disease and ulcerative colitis, committed to innovation and collaboration through uniting all patients, caregivers, providers, donors, and researchers to find cures for these diseases. As a volunteer driven organization, we rely on the generous support of local people and businesses to fuel our programs. Without the sponsorship of Mercedes-Benz of Beverly Hills and the support of Bloomingdale’s Century City, we simply couldn’t support the 90,000 patients in our community”, said Ashley Atkins, Executive Director. The Women of Distinction Luncheon is a highly anticipated event of the Beverly Hills social season and is attended by 500 prominently influential leaders and philanthropists in the Greater Los Angeles community. For tickets and information: (310) 478-4500 or visit bit.ly/wod2017la. About the Crohn’s & Colitis Foundation For the past 50 years, the Foundation has supported the IBD community with the goal to ultimately achieve our vision – a future free of Crohn’s disease and ulcerative colitis. One out of 200 Americans has Crohn’s disease or ulcerative colitis (also called Inflammatory Bowel Disease or IBD), and 5% of all those diagnosed are under the age of 18. Proceeds from the Women of Distinction Luncheon fund cutting-edge medical research, education programs for patients and healthcare professionals, and support programs such as Camp Oasis, the foundation’s summer camp for children who suffer from IBD. More than 82 cents of every dollar received goes directly to support our mission. For more information about the foundation, visit www.crohnscolitisfoundation.org. Media Contact Ashley Atkins Executive Director Crohn’s & Colitis Foundation, Greater Los Angeles Chapter (323) 369-6409 aatkins@ccfa.org Information on the 2017 Women of Distinction Luncheon Honorees: In 2008, Brooke Abbott was diagnosed with left-sided ulcerative colitis. Though it was a mild case at diagnosis, the disease rapidly advanced over a period of four years. In 2009, Ms. Abbott traded in her film and television production notebook for a diaper bag with the birth of her son, Jaxon Lee Coltrane. While navigating through motherhood, Abbott began to tweet about her adventures with her newborn with the hashtag, #CrazyCreoleMommy. The stories behind her tweets and Facebook statuses grew larger than the allotted 140 characters and by 2011, her new life needed its own vehicle. In January 2012, The Crazy Creole Mommy Chronicles were born. In April 2012, Abbott was given a total colectomy after spending weeks in the hospital fighting a losing battle with her diseased colon. She was given an ostomy for five months, as a transition into receiving her JPouch. She now lives with an internal J-Pouch and her health continues to change for the better. Still without insurance, arthritis, and the inability to work as much as she could before, Abbott advocates for all those with severe and mild cases of Crohn’s disease and ulcerative colitis. Abbott continues to photograph, working under the name, bonzaibaby Photography, having photographed celebrities including Holly Robinson Peete, Alfonso Riberio, Valarie Pettiford & Arthel Neville. Abbott is the creator and blogger for The Crazy Creole Mommy Chronicles & The HollyRod Foundation Influencer Circle. She is an advocate often representing The Crohn’s & Colitis Foundation & The Digestive Disease National Coalition on Capitol Hill in Washington DC. Abbott is a single mother of one son, Jax Lee Coltrane, and they currently reside in Los Angeles. Shawn Lacy Bullen is the co-founder and managing director of Biscuit Filmworks and Biscuit UK. She grew up in Washington DC to architect parents who fostered her entrepreneurial spirit and appreciation of art. Armed with a double major in French and political science from Duke University, she ignored the advice of family friend Jay Chiat to avoid advertising altogether, and immediately moved to New York to work at Young & Rubicam. Her journey in advertising, first in New York and later in Los Angeles with HKM, led her to work with then up-and-coming director Noam Murro. The two immediately hit it off and in 2000 co-founded Biscuit Filmworks, which today represents some of the top creative talent in advertising and is one of the most awarded commercial production companies in the world. As managing director, Shawn continues to expand the company’s roster, cultivate new talent relationships and oversee the production of an acclaimed portfolio of work. Her solid creative instincts have helped build Biscuit’s reputation for fostering and growing talent from within, and serving as a trusted partner for top advertising agencies around the world to deliver standout commercial projects. A consummate multi-tasker, Shawn is also the proud mother of four children, one in college, one in high school, and twin first graders. Her son Jett was diagnosed with Crohn’s in 2013, and she then became involved in the Crohn's and Colitis Foundation to help raise awareness and funding for Crohn's disease and ulcerative colitis. Roxy Sowlaty is a Beverly Hills native that has been working in design since the age of 16, when she started a clothing line with her sister Tara called RoxTar. Upon earning her undergraduate degree from USC’s Marshall School of Business, she decided to re-focus her design interests from fashion to interiors. She enrolled at Parsons New School of Design to obtain her masters degree in interior design. During this time in New York, she freelanced on a number of residential projects in Manhattan, as well as a home in Aspen – which certainly confirmed her love for interior design! Now back in California, she has opened her own interior design firm specializing in high end residential projects and is simultaneously launching an online 'do-it-yourself' interior design website and home goods product line. She had a stint on one of E!’s top hit shows for three seasons, displaying her entrepreneurial spirit in getting her line off the ground. It is with deep gratitude that Sowlaty is involved with such a high honor, as both her father and sister are affected by Crohn’s disease. She is determined to use her voice to make a difference and shed light on this otherwise very difficult subject matter.