Podcasts about jpouch

This week we spoke to Michele Rubin! Michele is an advanced practice nurse and is the Associate APN Director of the IBD Center at the University of Chicago Medicine. She specializes in surgery for IBD and has helped to create a J-Pouch specific clinic. We talked to her about surgery part of the treatment options, J-Pouches and what to expect in recovery, and how she works with patients to ensure they have the best outcomes. We also discussed the research that she's done related to IBD surgery and their efforts to try to predict a patient's response to their J-Pouch and how to treat complications. Finally we talked about how and why a surgeon may choose to hand sew instead of use surgical staples. Michele has been in the IBD space for a long time and has so much knowledge to share and she was such a joy and a light. We could have talked to her for hours. Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;) Let's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we had such a great conversation with Dr. David Schwartzberg! Dr. Schwartzberg is a double-board certified colorectal surgeon at Mather Hospital and Columbia specializing in IBD, pelvic floor conditions, re-operative colorectal surgeries, J-Pouch disorders, and minimally invasive surgical techniques. We talked to him about his passion for colorectal surgery and how he spends any free time he has that's not with his family researching and learning more about it. We talked to him about his drive to find a career that helped people and had a true impact on the world. We discussed his interest in J-Pouches and improving complications that may come with previous surgeries. We explored how some folks that had been diagnosed with UC to start may now have a Crohn's diagnosis post J-Pouch and also upper GI Crohn's disease. We also talked about his love of music and how he and his wife have fostered that love in his 3 boys. We also talked about many other things including the improved technology in buckets but I cut that part out.  Needless to say we laughed, we cried, we went off the rails but I promise you're getting the best part.  We don't think Dr. Schwartzberg could be more more passionate about caring for people living with IBD and their families and we can't wait for you to hear that in this conversation too.  Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;) Links: Learn more about Dr. Schwartzberg in this videoDr. Schwartzberg explains 3-Part J-Pouch surgery in this video- Empowering Patients LLCSpecial Concerns for People with J-Pouches- UCSF HealthWhen Should Chronic Pouchitis be Treated as Crohn's Disease?- Crohn's & Colitis Foundation USA X-Health.show - meet the future of healthcareKill your pain once& for all, program human cells to cure cancer, mitigate dementia & moreListen on: Apple Podcasts SpotifyLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we had the pleasure of getting to know Alex Boyd! Alex was diagnosed with UC when she was 26 years old when she thought she had caught a stomach bug that had gotten very aggressive. It was only 2 weeks after her diagnosis that she was advised to have her colon removed and to start her J-Pouch surgery process. We talked to her about the dramatic way that she was introduced to our community and how she worked with her medical team to make this decision. We talk to her about the issues that she's experienced with her J-Pouch and how she's coping with that. We talked to her about how she's focused on her mental health to help with her coping skills and also how she's worked with her employer to get the accommodations that she needs to be the best employee she can be. We also spoke about how living with an illness like this can lead you to examine your life and your relationships and how that can lead you to making some big, and at times scary choices to allow you to grow and lead the life you deserve.  We really enjoyed hearing Alex's perspective and all that she's learned and we know you will too. Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;) Let's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we spoke to Dr. Edward L. Barnes! Dr. Barnes is a gastroenterologist and clinical investigator dedicated to improving the care of patients with inflammatory bowel disease at the University of North Carolina School of Medicine.  Dr. Barnes is also the 2021 Sherman Emerging Leader Prize Recipient. He has a particular interest in improving outcomes for patients with inflammatory bowel disease who require a colectomy and an ileal pouch-anal anastomosis. Patients with an ileal pouch-anal anastomosis may experience significant complications after surgery, including the development of new inflammatory conditions of the pouch. Dr. Barnes has developed multiple new research strategies to identify risk profiles for those patients at greatest risk for adverse outcomes and strategies to improve the effectiveness of available therapies for pouch-related disorders. We talked to him about his research and work on pouch disorders. Links: Dr. Barnes won the 2021 Sherman Emerging Leader Prize! Information about J-Pouch surgery and possible complications- Crohn's & Colitis Foundation USASpecial Concerns for People with J-Pouches- UCSF HealthLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we had quite the conversation with Beth Meals. Beth was diagnosed with UC but also with Endometriosis and POTS. We talked to her about struggling with all of these medical conditions when she was younger and growing up and about how her family dismissed and minimized her health conditions. We also talked about her trying to find the right healthcare providers who would explore these symptoms and help her get the right diagnoses and treatments. We talked to her about how this led to hear not trusting her body and how working with a dietitian has helped her to trust food and her body more. We talked to her about medical gaslighting and how she has coped with that.  We also talked to her about the importance of community and support. Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;) Links: Article: "Feeling Dismissed? How to Spot 'Medical Gaslighting' and What to Do About It"- New York TimesPelvic Floor Dysfunction in IBD- recorded webinar on Own Your Crohn's and in partnership with the Crohn's & Colitis Foundation- USAStacey Collins, M.A., RD/LDN Let's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we spoke to Ken Carpenter! Ken is the producer and host of Athlete 1 podcast and was diagnosed with UC when he was 46 years old. Since he's been diagnosed he has had a pretty wild ride finding the right treatment and the right provider but has been so fortunate to have his wife be his partner in this process. We discussed all of the health conditions that he's faced and how his community rallied around him. We talked about his love of all things sports including coaching baseball for many years and how he managed that while also struggling with his UC. We talked to him about his life and how he eventually found his path (with help from his wife!) but about all the things in tried along the way including serving in the Army as a paratrooper! We had a lot of fun getting to know Ken and we definitely had some good laughs! Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;) Links: Athlete 1 podcastInformation on Ankylosing Spondylitis- Cleveland ClinicInformation on J-Pouch Surgery- Crohn's & Colitis Foundation USASurgery in IBD and Pouchitis video- Crohn' s & Colitis Foundation USALet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

*** Warning- This episode discusses sexuality and contains sexual content and may not be suitable for all audiences.****This week we had a really fun conversation with Dr. Neil Nandi! Dr. Nandi is an Associate Professor and Gastroenterologist with the University of Pennsylvania. We discussed his personal connection to IBD and how that shaped his career. We also talked about his role as the Director of Patient Outreach and Advocacy for the South Asian IBD Alliance and how the got involved with that organization. We spent a lot of time talking about how IBD can affect sexuality, how he talks to his IBD patients about this, and how to provide a safe space for people in the LGBTQI+ community to discuss their sexual health. Finally we discussed a fun fact about Dr. Nandi that we found when doing some research on him and now we want his autograph! Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;) Links: South Asian IBD AllianceInformation on sex and relationships and IBD- Crohn's & Colitis UK"Sex, Intimacy, and IBD" Factsheet-  Crohn's & Colitis Foundation- USA"Sexual Health & Ulcerative Colitis: How to Talk to Your Doctor"- Everyday HealthThe Needs of Gay and Lesbian People with IBD- Crohn's &  Colitis UKDr. Nandi's fun fact! How to watch "Tie the Knot" or on YouTubeLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we talked to Dr. Alessandro Fichera! Dr. Fichera is the Division Chief of Colorectal Surgery at Baylor University Medical Center in Dallas, Texas and the Surgery Safety and Quality Officer since July 2020. His clinical and research interest include colorectal cancer and inflammatory bowel disease. We talked to him about the different types of surgeries for IBD including robotically assisted surgery. We talked a lot about J-Pouch surgeries and optimizing outcomes for patients. We discussed how he addresses sexuality with his patients when it may be affected by a surgery. Finally we discussed his "5 R's" principle for preventing surgical recurrence and his love of the blues. Links: Surgery for IBD- Crohn's & Colitis Canada Surgery for UC- Crohn's & Colitis Foundation- USASurgery for Crohn's Disease- Crohn's & Colitis Foundation- USAUnderstanding J-Pouch Surgery- Crohn's & Colitis Foundation- USALet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week Robin had a fan girl moment while we talked to Jackie Zimmerman! Jackie is one of the founders of Girls with Guts and was one of the OG IBD bloggers with her blog called "Blood, Poop, & Tears." Robin was a big fan of her blog and got a lot of information and support from it when she was originally diagnosed. We talked to her about creating community for women with IBD, living with both UC and Multiple Sclerosis, coordinating her care, building and running a business while living with IBD and MS, advocacy and advising with pharma companies, and so much more. This conversation had us feeling so many things- I hope you enjoy it as much as we did. Links: Jackie's BlogGirls with GutsWhat are the younger and elder Futharck Runes? Tips on building a business while living with a chronic illness- ForbesLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we talked to Francesca Ferraro! Francesca was diagnosed with UC in 2019 and just had the first part of a J-Pouch surgery in January 2023. She has been absolutely loving life with her ostomy and talks a lot about the pros and cons of continuing with the next round of the J-Pouch process. She told us how her ostomy has improved her quality of life, decreased her anxiety, and has allowed her to go out and live the life she felt had been significantly compromised by her UC. We also talked about making such big decision as such a young age, the medication merry-go-round, and the emotional toll and trauma that can come with some IBD symptoms. We also talked about working with a therapist to help with the grief and trauma that can come with these diagnoses. Francesca is funny, resilient, interesting, ambitious, and so much more. I think you'll love meeting her as much as we did. Links: Understanding J-Pouch surgery video- Crohn's & Colitis Foundation- USAHow to Change Your Ostomy video- OstomystoryUnited Ostomy Association of America websiteRome Foundation- Find a therapist trained in IBD- USALet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

We had the pleasure of getting to know Dani Edelstein in this episode! We talked to her about being diagnosed when she was only 8 years old and what it was like for her as the child of a doctor to have to navigate the medical system on her own when she got to be an adult. We discussed how the language used around IBD care can create difficulty for folks living with it- for instance when healthcare providers say that a patient has "failed" their medication. Dani talks about how that lead to patients feeling responsibility and even shame for their disease. We talked about the importance of mental health care, the differences between a loop and an end ileostomy, and so much more. Links: What is an ostomy? - United Ostomy AssociationReally informative video about different types of stomas- Zero to Finals YouTube channelMany toolkits for children living with IBD and their parents including transferring care to an adult GI- ImproveCareNowLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we really enjoyed hearing Will Awve's story! We talked about his diagnosis with UC in college and how that affected his college experience. We discussed him trying basically all medication options to try to control his UC, his bouts with C. Diff,  and then his eventual decision to go through J-Pouch surgery. We also had a chance to talk about how your mental health and how you mentally position your disease affects your attitude and resilience. And finally we talk about how UC can create some interesting, uncomfortable, and possibly even dangerous situations when out in the wilderness. Links: Take Action on access to medical nutrition- Crohn's & Colitis FoundationA blog about hiking and camping with IBD- Girls with GutsAn interesting blog with tips about hiking with UC- **this blogger is not known to us- any advice and information is the author's. :)Interested in being a guest? Email Robin at robin@bowelmomentspod.com or Alicia at alicia@bowelmomentspod.com or both! Cheers!Let's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

This week we bring back Stacey Collins, RDN to celebrate(?) jpouch-iversaries. We talked about what Stacey and I have learned and what's been happening in our lives. We shared some tips and some of the not-so-pretty aspects of recovery to give you a better understanding of what to expect if you're discussing j-pouch surgery with your GI. Alicia decided to keep in some of the stuff she usually cuts, so please excuse the entire minute of just us laughing at the beginning. We do actually get down to business. Cheers!Let's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!Links:J-pouch facts and infographic - UOAAJ-pouch surgery video - Crohn's & Colitis FoundationJ-Pouch Handbook - Penn State Health

This week we talked to self-described "IBD Dinosaur" Dewey Thom! Dewey has been living with IBD for more than 40 years and has lived quite a bit of that time with a J-Pouch. We talked to him a lot about the importance of finding a community of people who understand IBD. We talk about his accidental participation in a support group and his subsequent role as a volunteer facilitator for the group. He reminisced about his memorable time as a counselor for a camp with kids with IBD and what an amazing experience camp can be for the kids and also the adults. We also talked to him about obstructions, strictures, pouchitis, and how having IBD may have shaped his career decisions. Dewey is a gem and I know you'll enjoy our conversation. Let's get social!! Follow us on Instagram!Follow us on Facebook!Follow us on Twitter! Links: - Information about J-Pouch surgery and possible complications- Crohn's & Colitis Foundation - Information about J-Pouch surgery and what you need to know- UCSF Health- Video on Pelvic Pouch and Pouch Complications- Cleveland Clinic (professional education but still quite understandable)- Support options including support groups- Crohn's & Colitis Foundation - Information on Camp Oasis- camp for kids with IBD- Crohn's & Colitis Foundation 

We were so excited to talk to Tina Aswani Omprakash this week! Tina is a powerhouse in our community and we loved hearing her IBD story and all of the awesome things she's been working on- and despite the super-sized episode, we just scratched the surface! We talked to her about her very complicated Crohn's and her other autoimmune conditions. We talked about her family history of IBD and how her culture shaped her disease journey and eventually motivated her to speak out via her popular blog called "Own Your Crohn's."  After she started speaking out more publicly, more and more people of  South Asian descent and even further afield started reaching out and thanking her for helping to demystify and destigmatize IBD. That prompted her to start a social media group (IBDesis) and the success of that motivated her and her team to start the South Asian IBD Alliance. We were so excited to hear about SAIA's mission and their amazing progress in such a short time.We also talked to her about how she manages her symptoms with a team of folks including a therapist, pelvic floor physical therapist, acupuncturist, and more.  Her team helps her maintain her holistic wellness as well as her disease. We know you'll be just as riveted as we were by Tina's story and all her accomplishments. Thanks to our sponsor- Romanwell!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter! Links: An article on Pelvic Floor PT and IBD- American Physical Therapy AssociationPelvic Floor Dysfunction and IBD video- Own Your Crohn's Blog/Crohn's & Colitis Foundation  Information on Paralytic Ileus- Cleveland ClinicInformation on Ehlers-Danlos Syndrome type 3- Ehlers-Danlos Support UKJournal Article on Culturally Competent Care for South Asian Patients with IBD- Journal of Crohn's & Colitis Journal Article- "Hospitalization Experiences and Post-Traumatic Stress in IBD: Opportunities for Change"- Authored by friends of the show- Dr. Tiffany Taft, Josie McGarva, and Tina! - Inflammatory Bowel Diseases

This week week we interview Jasmine Bouche- AKA JPouch Jasmine! She's the first guest we've had on that neither Robin or Alicia knew already! It was so fun to get to know her and to hear her story of getting diagnosed in college, navigating the social scene and college experience while also navigating the healthcare system- and during a pandemic! We talked a lot about her decision to do the JPouch surgery, how she found connections and resources to help her cope, and about why she started her social media page focusing on her JPouch.  Jasmine is in law school now and we know that she's definitely a woman to watch! Thanks to our sponsor! Romanwell! Links: Navigating College with IBD- Crohn's & Colitis FoundationStudying Abroad with IBD- Crohn's & Colitis Foundation IBD on the College Campus- Lights Cameras Crohn's BlogVideo on JPouch Surgery- Crohn's & Colitis Foundation Advice from a College Student About Navigating College with an Ostomy- The MightyFollow us on Instagram! Follow us on Facebook! 

A story about a small town girl that had no where to turn.  She found strength and hope as God began to show up in small powerful ways  As you all know, I have been doing everything within my power to bring awareness to Crohn's Disease, Ulcerated Colitis, Auto-Immune Disorders, Ileostomy, Colostomy,  & Urostomy bags, Colon cancer etc.  I have been so inspired by all my guest that have been on my podcast.  You are going to be inspired by Brandi also as we bring awareness of  the suffering that some people go through.  Brandi was diagnosed with UC at the age of 18 in Feb of 2006 as a high school senior. Right when she thought she would get better, things just got worse and darker for her.  Following many surgeries she was also diagnosed with Crohn's as her  body decided to attack the Jpouch. Brandi has suffered greatly, but God always provided a person that could help direct her right when she needed it.  Throughout Brandi's sufferings, Philippians 4 has  really ministered to her and has always given her strength.   Like verses 4 & 5 says, " Be full of joy always because you belong to the Lord. Again I say, be full of joy!  Let all people see how gentle you are, for the Lord is coming soon”.  Again…. Verses  6& 7 says, “Do not worry. Learn to pray about everything. Give thanks to God as you ask Him for what you need.  The peace of God is much greater than the human mind can understand. This peace will keep your hearts and minds through Christ Jesus.” Then it goes on to say, “ thing on these things…..good reports! “  Brandi's life verse is that she has learned to be happy with whatever she has.  She strives to be content in need and want.  She has learned the secret of being happy at all times…….Through Jesus Christ!   Philippians 4:13 I can do all things because Christ gives me the strength. 

In this week's episode, I speak with Holistic Health Coach Cody Maher about having multiple surgeries to have a JPouch instead of an ostomy.  We talk about the journey from living life as an athlete, to performing in the circus to the struggles she went through and ending up with a J Pouch.   From her journey, Cody has now changed careers to be a holistic health coach to help others who are learning about their bodies and more importantly how to work through the trauma.     

Ulcerative colitis surgery is sometimes viewed as the last stop for treatment but it can be a good option to treat inflammatory bowel disease (IBD). Dr. Vikram Reddy, Division Chief of Yale Medicine, Colon and Rectal Surgery, answers questions about j-pouch surgery including how patients feel about it, how he manages his patients after surgery, what complications might occur, and why surgery for ulcerative colitis is complicated and nuanced. Transcript and more information at: https://bit.ly/AIBD103 Concepts discussed on this episode include: Yale New Haven Health Digestive Health Service What's It Like To Have A J-Pouch? Do You Need A Colorectal Surgeon or Gastroenterologist? Overview of J-Pouch Surgery Ulcerative Colitis Surgery Find Vikram B. Reddy, MD, PhD at Yale Colon and Rectal Surgery. Find Yale New Haven Hospital at Twitter, Instagram, and Facebook, and Yale New Haven Hospital. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party," is from ©Cooney Studio.

Kya's story started as a teenager and was definitely a wild ride for a few years! She went from having an Ostomy to a j-pouch, then while she was pregnant with her first child, had surgery for an Ostomy. She is such an inspiration and has so much courage speaking on this and helping others so that they are not afraid to ask questions and talk about their ostomy. "In hindsight, everything definitely looks better. At the moment we tend to sit there and forget that we are ok. You are sitting there and you are going to be okay. Have confidence with it all and ask questions. There is never a stupid question. There is never an awkward question. Message me with something weird if you have it! I have heard it all! Just embrace it. It is you and you are not alone at all. There are so many people that have Ostomy's. We just don't like to talk about it. I want to be the person who talks about now because I was the person who didn't for years. Embrace your situation and look around for ways you can help other people." - Kya Find Kya on Instagram @itskyajeub

Motherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ignored altogether. That's why I asked my close friend and co-founder of IBDMoms, Brooke Abbott of The Crazy Creole Mommy Chronicles, to tell me about her challenges and her successes living with IBD, a j-pouch, and being a single mom of a young son. Concepts discussed in this episode: What Are the Five Love Languages? An Overview of Asacol (Oral Mesalamine) How Does Implicit Bias Influence Behavior? Black Women Suffer Most From Restrictive Reproduction Policies, Study Shows Racial Disparities in Maternal Health May Be at a Pivot Point How Prince Shook Up the Music Industry Motherhood Unplugged on Lights, Camera, Crohn's Complete show notes and transcript found at https://aboutibd.com/?p=1965. Find Brooke Abbott on Twitter, Facebook,  and Instagram and on her blog, The Crazy Creole Mommy Chronicles. Find IBDMoms on Facebook, Twitter, and Instagram Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party,” is from ©Cooney Studio.

In this week's episode, I speak with guest April Wilson also known as @thatgirlwithabag on Instagram.   April is a mom, wife, Army veteran who has a business creating gorgeous ostomy covers.   We discuss... - How a bacterial infection created colitis - Talking her Drs into an ostomy - Jpouch  - Creating a business out of her message  Follow me on Instagram @leeannehayden and tiktok @leeannehayden1 

In this episode with guest Sam Abarca we discuss:  - When Colitis comes on during your pregnancy  - Being on every kind of medication - Needing to know where all the toilets are - Being a nurse and taking care of ostomy patients  - Becoming an ostomy patient  - Finding others online who are in ostomies to relate too  - Being able to enjoy life now - running marathons, swimming  You can find Sam on Instagram @aussie_ostomate 

Inflammatory bowel disease (IBD) affects more than the digestive system. Crohn’s disease or ulcerative colitis can also affect the eyes, joints, and skin. Jordan Ditty was diagnosed with IBD as a child, though her diagnosis floated between Crohn’s and ulcerative colitis and she had j-pouch surgery due to a colonic perforation. Recently, she had her j-pouch removed and a permanent ileostomy placed. Surgery gave her with a better quality of life but also a new diagnosis of a skin condition related to IBD, called pyoderma gangrenosum. Learn how Jordan remains hopeful through her long journey with IBD and a host of complications. Concepts discussed in this episode: The Differences Between an Ileostomy and a J-Pouch Fistula Types, Diagnosis, Treatment, and Prognosis How to Prepare Yourself for Ileostomy Surgery Mouth Ulcers (Aphthous Stomatitis) Overview of J-Pouch Surgery Pouchitis After IPAA (J-Pouch) Surgery Proctectomy Surgery for Inflammatory Bowel Disease (“Barbie” butt or “Ken” butt surgery) Pyoderma Gangrenosum as a Potential Complication of IBD Find Jordan Ditty on Instagram. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sound design is by Mac Cooney. Theme music, "IBD Dance Party,” is from ©Cooney Studio.

Jack(26) - Ileostomy at 11 and 24 years old and a JPouch for 6 years in between. Diagnosed with Ulcerative Colitis in '98 when he was 5. When Jack looks back at his journey, he wishes he would have been open to having a stoma sooner rather than trying and taking every drug out there. Though he still has challenges, life is so much better w a stoma. #ostomy #theOG #crohns #crohnsandcolitis #ostomybomb #ostomylife #ostomyawareness #ostomybag #badassbaglife #crohnsdisease #theostomyguy #breakingthestigma #crohnswarrior #doublebagginit #chronicillness #crohnsandcolitisfoundation  #baghalffull #beatingtheodds #theresgoodinthisworld

Join Renee and Jess, two young ostomates as they delve into all things ostomy from surgery to love and travel. Ostomingle The Podcast asks all the questions you want to know to special guests and gets the inside scoop on living life as an ostomate.New episodes every 2 weeks! Make sure you subscribe to be notified.Premiere episode debuts 17th July 2020 with Stomal therapy nurse and ostomate Sam AbarcaHave a question for us or a topic you want us to discuss? Get in touch and follow us on Instagram @OstomingleSupport the show (http://www.ostomingle.com)

How would you answer these questions about your inflammatory bowel disease (IBD)? What is the best part of having IBD? What is the hardest part of your day? What is your least favorite treatment? If you could choose one dance for your doctor, what would it be and why? What is one thing you wish people knew about your condition? Amber answers these questions, posed by Shawntel Bethea of Crohn's & Stuff, for fun and also to get the conversation started about how Crohn’s disease and ulcerative colitis affect our lives. Find Shawntel Bethea of Crohn’s & Stuff on YouTube, Facebook, Twitter, and Instagram. Answer the 5 questions, tag her on social media, and use #IBDTag. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.

I almost died, my JPouch has gave me my life back In this episode I talk to Amber, the creative mind behind Colitis Ninja. Amber tells me about her struggles with IBD and how this was framed to become ‘Colitis Ninja’ so join us for ‘My IBD is the source of my creativity’    Amber Instagram @Colitisninja - https://www.instagram.com/colitisninja  Amber Twitter @Colitisninja - https://twitter.com/ColitisNinja  Amber Facebook @Colitisninja - https://www.facebook.com/colitisninja/   I’m a 36 yr old dad, who happens to be a fitness professional with Crohn’s disease, with a little help from my friends at Crohn’s and Colitis UK I want to help put people’s minds at ease when thinking about exercising with Crohn’s disease! I would love to hear from you in the comments and turn it into a bit of a discussion forum, where I can answer any questions or better yet learn from you guys!  ======================================  #crohnscast #crohnsdisease #crohnscolitiswarriors  ====================================== My Socials   Instagram - https://is.gd/sw8Pc0   Twitter - https://is.gd/R7Ko6u   Facebook - https://is.gd/tG0mmw   YouTube - https://is.gd/7eflmB   Podcast - https://is.gd/9w1nXi   ======================================  Links shortened by tinyurl  Gear used   Main camera - https://is.gd/spHLS7   Smartphone camera 1 - https://is.gd/neXpps   Smartphone camera 2 - https://is.gd/xPEv6I   Small action camera 1 - https://is.gd/ts0Jsq

How does having Crohn’s disease or ulcerative colitis have an impact on your career? The symptoms of IBD, as well as the cost, can affect the ability to work in the same way as healthy people. Three women who live with IBD, Megan Starshak, Mary Elizabeth Ulliman, and Tina Aswani Omprakash, tell their stories about coping with college, first jobs, and career derailment as a result of their disease. Information discussed in this episode includes Clostridium difficile (C diff) Infection, Short-Term Disability Insurance, Colectomy Surgery, J-pouch Surgery, and  IBD and the Americans With Disabilities Act. Find Megan Starshak on MeganStarshak.com, Twitter, and Instagram. Find Tina Aswani Omprakash on Own Your Crohn’s, Facebook, Twitter, and Instagram. Find Mary Elizabeth (Emmy) Ulliman on Instagram. Find The Great Bowel Movement on Facebook, Twitter, and Instagram. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.

This episode is sponsored by AbbVie. How do you think about your connection with your gastroenterologist? The patient/physician relationship is important in managing inflammatory bowel disease. I talk with Dr. Aline Charabaty, Associate Professor of Medicine, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital, and winner of the 2019 Healio Gastroenterology Social Media Influencer Award, about how patients and doctors can better understand one another and better communicate about managing your disease. Find out how doctors can help patients in addition to finding the appropriate treatment for them, including what kinds of questions both groups should be asking, and how we can all move beyond “how many bowel movements” to discuss other issues important in Crohn’s disease and ulcerative colitis. Want to get ahead of preparations for your next appointment? Try out the Doctor Discussion Guide at crohnsandcolitis.com/podcast Find Aline Charabaty, MD on Facebook, Twitter, Instagram, and at Monday Night IBD. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Sound engineering courtesy Mac Cooney. "IBD Dance Party" ©Cooney Studio.

Being diagnosed with inflammatory bowel disease (IBD) at any time or at any age is challenging. However, the pre-biologic era was especially difficult because of the lack of treatment options and the absence of some of the legal protections that are in place today. Danielle O’Connor tells her story of being diagnosed with ulcerative colitis at a young age and how she managed her career as a special education teacher through many hospitalizations and surgeries. Concepts discussed in this episode: Family Medical Leave Act (FMLA): https://www.verywellfamily.com/understanding-family-medical-leave-act-4628330 Affordable Care Act (ACA): https://www.verywellhealth.com/affordable-care-act-what-you-should-know-1738904 Rectovaginal Fistula: https://www.verywellhealth.com/rectovaginal-fistula-overview-4587356 J-Pouch Surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967 Find Danielle O'Connor at: Instagram: https://www.instagram.com/d_mvoc Twitter: https://twitter.com/Youcantmakethi4 Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: https://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

In the final episode of my Summer of Activism Series, I asked Brooke Abbott of The Crazy Creole Mommy Chronicles to help us better understand Congressional Briefings. During Crohn’s and Colitis Awareness Week, she spoke at a briefing about IBD and minority health. It was an opportunity to bring awareness to this little-discussed factor of IBD and it presented some challenges and opportunities. Learn more about Congressional Briefings, how they are an important tool for advocacy groups, and how they have an impact on public policy.   See video of the Congressional Briefing on IBD & Population Health: https://www.facebook.com/ccfafb/videos/452493261950841/   Find Brooke Abbott of The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

The inflammatory bowel diseases (IBD) can make people feel powerless and isolated. Participating in day on the Hill events in Washington DC with patient advocacy groups are one way to take back control and have your voice heard by those who can help affect change. Hear from Jaime Holland of Pretty Rotten Guts, who describes her experiences in lobbying on Capital Hill including why it’s important to her, how she navigates the day with mobility issues, and why the experience is empowering. Download your FREE copy of the new single, "IBD Dance Party," by signing up for the About IBD newsletter here: http://aibdnewsletter.aboutibd.com/music Find Jaime Holland of Pretty Rotten Guts at: Blog: http://prettyrottenguts.tumblr.com/ Twitter: https://twitter.com/JaimeEditor Instagram: https://www.instagram.com/slightlyjaided/ YouTube: http://po.st/prKAKf Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

How does an IBD patient attend Day on the Hill events and meet with the offices of congressional representatives in Washington DC? What is it like to go to these events? In this episode I describe how I got involved in hill day meetings, why I do it, and what the process is like to attend. I also offer you my tips on how to make the best of the time spent in the capital in order to make the biggest impact on the people who can affect change in the lives of IBD patients.    How to Get Involved: Crohn’s and Colitis Foundation—Be an Advocate: https://www.crohnscolitisfoundation.org/get-involved/be-an-advocate International Foundation for Gastrointestinal Disorders—Advocate for Digestive Health: https://www.iffgd.org/advocate-for-digestive-health.html United Ostomy Associations of America—Advocates for a Positive Change: https://www.ostomy.org/advocacy/   Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Credits: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

How we cope, living training & eating with Crohn's colitis whilst managing living with a jPouch and an Ostomy.

Crohn's and us, a little about who we are, where we have been and how we hope to help, we both have IBD and live with a Jpouch or an Ostomy. Here is part of our story

How does IBD affect your family? Do you know about the tools and resources that are available to help you on your disease journey? On this episode of About IBD, I talk with the Director of Patient Education and Support at the Crohn’s and Colitis Foundation, Catherine Soto, who outlines the many tools the Foundation provides for anyone with IBD, including those made just for parents, kids, and teens. I also spoke with Dr Rajeev Jain, who tells me about a new, one-of-a-kind resource for women with IBD who want to be mothers, called the IBD Parenthood Project. And finally I called upon Brooke Abbott, co-founder of IBD Moms, to talk about her role as a patient in developing the IBD Parenthood Project, and she entertains me with a small rant about social media. 1:50 - Cathrine Soto, Director, Patient Education & Support at Crohn's & Colitis Foundation, talks about resources available for kids, teens, and parents 24:21 - Dr Rajeev Jain of Texas Digestive Disease Consultants talks about the IBD Parenthood Project 35:35 - Brooke Abbott, the Crazy Creole Mommy and co-founder of IBD Moms, gives the patient perspective on the IBD Parenthood Project Concepts and ideas discussed in this episode: Resources From the Crohn’s and Colitis Foundation: Camp Oasis: https://www.crohnscolitisfoundation.org/get-involved/camp-oasis Help Center: https://www.crohnscolitisfoundation.org/living-with-crohns-colitis/talk-to-a-specialist Just Like Me: http://justlikemeibd.org Quiz My IBD: http://www.ibdskillsquiz.org Campus Connection: https://www.crohnscolitisfoundation.org/campus-connection/ Crohn’s & Colitis Community: https://www.crohnscolitiscommunity.org/ The IBD Parenthood Project: http://www.ibdparenthoodproject.gastro.org/ Find Dr Rajeev Jain at: Texas Digestive Disease Consultants: https://tddctx.com/staff/dr-rajeev-jain/ Twitter: https://twitter.com/rajster Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/

It’s common for people with IBD to look online for patients who have a similar disease journey to their own. For men, however, there are fewer places to find such a peer because there are not as many men in the IBD influencer space as there are women. That’s where Rasheed Clarke, author of Three Tablets Twice Daily, blogger, and ulcerative colitis and j-pouch patient steps in. Hear Rasheed contrast how his running career is different before and after j-pouch surgery, his thoughts on being one of the few male voices in the online IBD community, how we can encourage more men to share their journey, and the wild and wonderful thing he did with a toilet for World IBD Day in 2017. Concepts and ideas discussed in this episode: J-pouch surgery: https://www.verywellhealth.com/what-you-need-to-know-about-j-pouch-surgery-1942967 Colectomy surgery: https://www.verywellhealth.com/types-of-colectomy-surgery-1943059 Exercise and IBD: https://www.verywellhealth.com/exercising-with-ibd-4582068 World IBD Day: https://worldibdday.org Find Rasheed Clarke at: Blog: https://rasheedclarke.com Twitter: https://twitter.com/rasheedclarke Instagram: https://www.instagram.com/rasheedclarke/ Facebook: https://www.facebook.com/rasheedclarke Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

What compels a person to share their personal journey with IBD? For Rasheed Clarke, author of Three Tablets Twice Daily, his writing began as a way to keep track of everything for himself and his healthcare team. It quickly turned into a tool that he used to show those around him the stark realities of a life with IBD: bloody diarrhea and all. His coworkers and friends were shocked to learn how much he was coping with every day but not everyone close to him approved of his honesty. On this episode of About IBD, Rasheed digs into the positives, the negatives, and the responsibilities that come with being an influencer in the IBD space.   Find Rasheed Clarke at: Blog: https://rasheedclarke.com Twitter: https://twitter.com/rasheedclarke Instagram: https://www.instagram.com/rasheedclarke/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Why is it important to tell our stories? Every person who has IBD is unique and so is their disease journey. You might not think your experience is relevant to others living with IBD or another chronic condition, but it is, in many ways. A story can provide validation and hope while helping put the reality of life with IBD in perspective. Brooke Abbott of The Crazy Creole Mommy Chronicles and IBD Moms and I continue our discussion of how we can support others with IBD through telling our stories and listening to yours.   Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

What are your traditions around Thanksgiving? What we eat and how we celebrate Thanksgiving depends on where we live, our ethnicity, and our family traditions. What matters is coming together and remembering to be thankful. Brooke Abbott of The Crazy Creole Mommy Chronicles and IBD Moms tells me about some of her family’s Thanksgiving traditions and how she talks about being grateful with her son. We discuss some of the ways we try to support the IBD community and what we can do better, especially during the hectic and stressful holiday season. Plus, see the end of the show notes for some of Brooke's recipes!   Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/   Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/   Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/   Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/   Brooke’s Jambalaya Recipe I cook my rice separately than the meat & broth. Then combine them together. This is the non-spicy version of cajun jambalaya. If you want it spicy you can add crushed red pepper or andouille sausage. Boneless Chicken Breast or Thighs Raw Shrimp w/out the tail Smoke Sausage Ham White Onion Fresh Garlic Bell Pepper Canned Diced Tomatoes Bay Leaf Green Onion Parsley Olive Oil Lemon Pepper Garlic Powder Salt Black Pepper Tony Chachere Creole Seasoning Directions: Use a large stewing pot to cook in and another pot for rice. Season the chicken and shrimp separately with lemon pepper, garlic powder, salt, and Tony’s Chachere Creole Seasoning. Dice onion, garlic, and bell pepper together. Cover the bottom of the pot in a layer of olive oil. Place chicken in and brown on all sides. Remove chicken, dice, and set aside. Add the trifecta of garlic, onions, and peppers to the pot and brown. Add diced ham and sliced smoked sausage. Mix in a can of diced tomatoes and a bay leaf. Add salt and black pepper. Add chicken back in. Simmer. Stir in shrimp. Simmer again for 20 minutes. Add cooked rice and mix together. Garnish with sliced green onion and chopped parsley.   Brooke’s Christmas Spaghetti   You can use any kind of pasta with the sauce.   Ground Turkey or Beef Smoked Sausage Pete’s Hot Sausage or Andouille Sausage Shrimp Ham Canned Peeled Tomato Onion Garlic Bell Pepper Tomato Sauce Salt Pepper Oregano Tony Chachere Creole Seasoning Better than Bouillon Chicken Olive Oil Directions: In a large stew pot brown the ground meat. Once cooked through, add the onions, garlic, and bell pepper. Add ham and smoked sausage. *If adding a spicy sausage like Pete’s Sausage or andouille, brown those in separate pan and then add to the mixture* Add canned peeled tomato and mash into large pieces. Mix in the tomato sauce. Add a teaspoon of Better than Bouillon Chicken. Season with Oregano, salt, and pepper. Mix all together and simmer. Pour over your choice of pasta.

How does IBD impact the family? Couples who are thinking about having children when one or both of them have IBD often have questions about how the disease will affect their family. Amber interviews her 8-year-old daughter and 10-year-old son about how IBD does — and doesn’t — affect their lives. Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/ibdcrohns/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Find IBD Moms at: Facebook: https://www.facebook.com/IBDMoms/ Twitter: https://twitter.com/ibdmoms Instagram: https://www.instagram.com/ibdmoms/   "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Katrina’s medical journey began at 15 with her Ulcerative Colitis diagnosis, but as she found experts that provided much needed relief, she was diagnosed with Primary Sclerosing Cholangitis. She discusses her shift in outlook, her support system, her second pregnancy and what role PSC plays, or doesn’t, in her day to day life.

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels. Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452 Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.instagram.com/crohnie_bologna_ibd/ Find Ryan Stevens, IBD Swimming & Me, at: Blog: http://www.crohnsguy.com/ Facebook: https://www.facebook.com/IBDSwimmer/ Instagram: https://www.instagram.com/rp_stevens/ Find Jaime Weinstein at: Blog: http://prettyrottenguts.tumblr.com/ Twitter: https://twitter.com/JaimeEditor Instagram: https://www.instagram.com/slightlyjaided/ Find Brooke Abbott, The Crazy Creole Mommy Chronicles at: Blog: https://crazycreolemommy.com/ Facebook: https://www.facebook.com/CrazyCreoleMama Twitter: https://twitter.com/CrzyCreoleMommy/ Instagram: https://www.instagram.com/crazycreolemama/ Find Michael Tresca at: Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Find Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine at: Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html Facebook: https://www.facebook.com/opbmed/ Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/ Dr Taft’s Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th Find Brian Greenberg at: Twitter: https://twitter.com/BrianG_CBY https://twitter.com/ChronicBetterU Instagram: https://www.instagram.com/BrianG_CBY/ https://www.instagram.com/ChronicallyBetterYou/ Facebook: https://www.facebook.com/ChronicallyBetterYou/ Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Intro Music: Rumble - Bensound.com - www.bensound.com/royalty-free-music Interludes: Love - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Summer - Bensound.com - www.bensound.com/royalty-free-music

How does stress affect IBD? We know that stress does not cause IBD, but it does affect the disease. How does IBD actually cause stress, and what can we do to balance our lives in such a way that it does not affect us in a negative way? I talk with my guest, Dr Taft, about how she advises patients with chronic diseases on relieving stress and the tips and tools that have worked for her and her patients in integrating a comprehensive stress relief program into daily life. :28 The role of stress as it applies to IBD. (No, it’s not “all in your head!”) 1:40: Easy ways to get started on stress relief, even for people who aren’t interested in it, and a reality check on how effective it is. 4:15: Some of the free apps that Dr Taft recommends for mindfulness and insomnia.  5:30: What is mindfulness? 7:45: How do I make mindfulness a habit? 11:22: But what does the research show about what stress relief techniques actually work for IBD? 13:52: Are there risks involved with trying stress relief techniques? 16:23: Stress doesn’t cause IBD so why should stress relief factor into my treatment plan? 21:53: When do you need to look for more help when it comes to stress relief for IBD? 25:06: How treatment doesn’t have to be long-term to be effective but could be more focused and short-term.  31:03: How do you find a therapist? How do you "try one out” to see if you are a fit? What should you look for in a therapist? 34:00: How do you know if you’ve found “Dr Right” or “Dr Wrong”? Resources: Does Stress Cause Inflammatory Bowel Disease? https://www.verywell.com/does-stress-cause-inflammatory-bowel-disease-1942856 Do Most People With IBD Have A Mental Disorder? https://www.verywell.com/do-people-with-ibd-have-mental-disorders-1943050 Is IBD Associated With Depression? https://www.verywell.com/is-ibd-associated-with-depression-1942855 Featured Guest: Dr Tiffany Taft, PsyD, licensed clinical psychologist, Oak Park Behavioral Medicine Blog: http://opbmed.blogspot.com/2017/08/breaking-100-chance-were-all-going-to.html Facebook: https://www.facebook.com/opbmed/ Twitter: https://twitter.com/OPBMed Oak Park Behavioral Medicine: http://www.opbmed.com/ Dr Taft’s Research: https://www.ncbi.nlm.nih.gov/pubmed/?term=taft+th Find Amber J Tresca at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutibd/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.instagram.com/about_IBD/ Credits: "About IBD with Amber Tresca" ©Cooney Studio http://cooneystudio.com/

What's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we met, what it was like to watch my health degrade, and all about our fairy tale wedding. Featured Guest: Michael Tresca Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Want to become a Lady or Lord of Glencoe, like Amber? Buy your plot of land here: https://www.highlandtitles.com No, there are no utensils at Medieval Times. But you can get married there, like we did, or have your 15th anniversary party there, which we also did: http://www.medievaltimes.com In loving memory of Anastasia, also known as Mary Queen of Scots and the Quiet Scottish Tailor. Intro Music: Sunny - Bensound.com - www.bensound.com/royalty-free-music Outro Music: Tenderness - Bensound.com - www.bensound.com/royalty-free-music  

CROHN’S & COLITIS FOUNDATION HONORS BROOKE ABBOTT, SHAWN LACY BULLEN AND ROXY SOWLATY AT TENTH ANNUAL WOMEN OF DISTINCTION LUNCHEON Los Angeles, CA– The Greater Los Angeles Chapter of the Crohn’s & Colitis Foundation will celebrate its 10th Annual Women of Distinction Luncheon on May 17, 2017 at the Beverly Hilton Hotel. Each year the foundation recognizes women who are successful in their fields and celebrate their commitment to philanthropy. The 2017 Honorees include: Brooke Abbott, creator/blogger for The Crazy Creole Mommy Chronicles and owner of The Crazy Creole Mommy Life, Inc; Shawn Lacy Bullen, Owner/Managing Director, Biscuit Filmworks; and Roxy Sowlaty, Beverly Hills based interior designer. Past honorees include Jamie Lee Curtis, Mary Hart, Wendy Goldberg, Joyce Brandman, Mindy Weiss, Amy Brenneman, Judy Felsenthal, Evelyn Heyward, Linda Howard, Bobbe Joy Dawson, Barbara Herman, Lisa Greer, Tina Finkelman Berkett, and Janice Bryant Howroyd. We are pleased to announce that Bloomingdale's Century City, last year’s fashion show presenter, has agreed to partner with us once again and present the 2017 fashion show. In addition, Sprinkles Cupcakes of Beverly Hills has generously donated cupcakes for each guest. “Since 1967, the Crohn’s & Colitis Foundation has been a leader at the forefront of research in Crohn’s disease and ulcerative colitis, committed to innovation and collaboration through uniting all patients, caregivers, providers, donors, and researchers to find cures for these diseases. As a volunteer driven organization, we rely on the generous support of local people and businesses to fuel our programs. Without the sponsorship of Mercedes-Benz of Beverly Hills and the support of Bloomingdale’s Century City, we simply couldn’t support the 90,000 patients in our community”, said Ashley Atkins, Executive Director. The Women of Distinction Luncheon is a highly anticipated event of the Beverly Hills social season and is attended by 500 prominently influential leaders and philanthropists in the Greater Los Angeles community. For tickets and information: (310) 478-4500 or visit bit.ly/wod2017la. About the Crohn’s & Colitis Foundation For the past 50 years, the Foundation has supported the IBD community with the goal to ultimately achieve our vision – a future free of Crohn’s disease and ulcerative colitis. One out of 200 Americans has Crohn’s disease or ulcerative colitis (also called Inflammatory Bowel Disease or IBD), and 5% of all those diagnosed are under the age of 18. Proceeds from the Women of Distinction Luncheon fund cutting-edge medical research, education programs for patients and healthcare professionals, and support programs such as Camp Oasis, the foundation’s summer camp for children who suffer from IBD. More than 82 cents of every dollar received goes directly to support our mission. For more information about the foundation, visit www.crohnscolitisfoundation.org. Media Contact Ashley Atkins Executive Director Crohn’s & Colitis Foundation, Greater Los Angeles Chapter (323) 369-6409 aatkins@ccfa.org Information on the 2017 Women of Distinction Luncheon Honorees: In 2008, Brooke Abbott was diagnosed with left-sided ulcerative colitis. Though it was a mild case at diagnosis, the disease rapidly advanced over a period of four years. In 2009, Ms. Abbott traded in her film and television production notebook for a diaper bag with the birth of her son, Jaxon Lee Coltrane. While navigating through motherhood, Abbott began to tweet about her adventures with her newborn with the hashtag, #CrazyCreoleMommy. The stories behind her tweets and Facebook statuses grew larger than the allotted 140 characters and by 2011, her new life needed its own vehicle. In January 2012, The Crazy Creole Mommy Chronicles were born. In April 2012, Abbott was given a total colectomy after spending weeks in the hospital fighting a losing battle with her diseased colon. She was given an ostomy for five months, as a transition into receiving her JPouch. She now lives with an internal J-Pouch and her health continues to change for the better. Still without insurance, arthritis, and the inability to work as much as she could before, Abbott advocates for all those with severe and mild cases of Crohn’s disease and ulcerative colitis. Abbott continues to photograph, working under the name, bonzaibaby Photography, having photographed celebrities including Holly Robinson Peete, Alfonso Riberio, Valarie Pettiford & Arthel Neville. Abbott is the creator and blogger for The Crazy Creole Mommy Chronicles & The HollyRod Foundation Influencer Circle. She is an advocate often representing The Crohn’s & Colitis Foundation & The Digestive Disease National Coalition on Capitol Hill in Washington DC. Abbott is a single mother of one son, Jax Lee Coltrane, and they currently reside in Los Angeles. Shawn Lacy Bullen is the co-founder and managing director of Biscuit Filmworks and Biscuit UK. She grew up in Washington DC to architect parents who fostered her entrepreneurial spirit and appreciation of art. Armed with a double major in French and political science from Duke University, she ignored the advice of family friend Jay Chiat to avoid advertising altogether, and immediately moved to New York to work at Young & Rubicam. Her journey in advertising, first in New York and later in Los Angeles with HKM, led her to work with then up-and-coming director Noam Murro. The two immediately hit it off and in 2000 co-founded Biscuit Filmworks, which today represents some of the top creative talent in advertising and is one of the most awarded commercial production companies in the world. As managing director, Shawn continues to expand the company’s roster, cultivate new talent relationships and oversee the production of an acclaimed portfolio of work. Her solid creative instincts have helped build Biscuit’s reputation for fostering and growing talent from within, and serving as a trusted partner for top advertising agencies around the world to deliver standout commercial projects. A consummate multi-tasker, Shawn is also the proud mother of four children, one in college, one in high school, and twin first graders. Her son Jett was diagnosed with Crohn’s in 2013, and she then became involved in the Crohn's and Colitis Foundation to help raise awareness and funding for Crohn's disease and ulcerative colitis. Roxy Sowlaty is a Beverly Hills native that has been working in design since the age of 16, when she started a clothing line with her sister Tara called RoxTar. Upon earning her undergraduate degree from USC’s Marshall School of Business, she decided to re-focus her design interests from fashion to interiors. She enrolled at Parsons New School of Design to obtain her masters degree in interior design. During this time in New York, she freelanced on a number of residential projects in Manhattan, as well as a home in Aspen – which certainly confirmed her love for interior design! Now back in California, she has opened her own interior design firm specializing in high end residential projects and is simultaneously launching an online 'do-it-yourself' interior design website and home goods product line. She had a stint on one of E!’s top hit shows for three seasons, displaying her entrepreneurial spirit in getting her line off the ground. It is with deep gratitude that Sowlaty is involved with such a high honor, as both her father and sister are affected by Crohn’s disease. She is determined to use her voice to make a difference and shed light on this otherwise very difficult subject matter.

On this episode of the About IBD Podcast, I discuss j-pouches and bust some of the misconceptions that surround them. I also give my firsthand experience as a j-poucher who gave birth twice and let you in on what it's like for me to have a midline scar from open surgery. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: “About IBD" ©Cooney Studio.

Hear author Luca Stocchi and Scott Strong discuss a controversial topic: j-pouch vs. ileorectal surgery for large bowel Crohn's. 

Sara Ringer – IBD Advocate, QUEEN of IBD Videos on YouTube, IBD Blogger extraordinaire, and co-host / panelist of The IBD Round Table Discussion joins me for a one on one interview. We’ll not only talk about her battle with Inflammatory Bowel Disease and her advocacy for the disease but also get to know the […] The post SPECIAL – Meet Sara Ringer appeared first on The Crohn's Colitis Effect.