Podcasts about ostomy

Send us a textWhat happens when you decide to throw caution to the wind, decline your PhD acceptance, quit your job, and travel the world for 10 months—all while managing Crohn's disease? Friend of the show and health psychologist Josie McGarva takes us along on her extraordinary global adventure, revealing both the challenges and profound joys of pursuing dreams despite having IBD.From the medication logistics nightmare of switching from the medication she was on for a long time to one that she can more easily travel with, to having her mother smuggle medication internationally hidden inside fluffy socks, Josie's preparation for this journey was an adventure itself. With refreshing candor, she shares her experience navigating living and volunteering abroad while traveling on a tight budget of just $1,000 per month.Josie's travels have taken her from the breathtaking mountains of Patagonia to the vibrant temples of Thailand, with meaningful stops volunteering at hostels, dog rescues, and teaching English in remote villages along the way. Through food poisoning in Thailand, 28-hour bus rides in Argentina, and confronting roosters at dawn in remote villages, Josie demonstrates remarkable resilience while never losing sight of why she embarked on this journey: "I'm finally healthy, which is why I have to go."Beyond the travel tales lies a deeper narrative about identity and chronic illness. Having been diagnosed at 13 and sick throughout her formative years, Josie reflects on how being in remission has allowed her to question how much space IBD should occupy in her future life and career. Her powerful message resonates far beyond the IBD community: limitations are real, but with creativity, determination, and support, dreams remain within reach.Links: Our first episode with JosieOur Research Roundup episode with Josie and Stacey Collins, RDJosie's Instagram accountWorkaway- volunteer while traveling siteThe Workaway opportunity with Dani and the dog rescueFundacion Animal ChileLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

In this episode of the GOSH Podcast, we continue our rare cancer series with Carly Allen, a passionate advocate and survivor.

In this episode, Kim Fleck shares her personal journey through health challenges leading to her ileostomy. From her background as a special education teacher to her struggles with misdiagnosis and autoimmune issues, Kim's story highlights resilience and the importance of community support. She discusses her experiences with various treatments, the impact of her health on her life, and her exploration of natural remedies and dietary changes. In this conversation, the speakers delve into the misconceptions surrounding vegetarianism, the importance of self-discovery, and the transformative journey of healing through alternative medicine. They share personal stories of resilience, the significance of listening to one's body, and the power of relationships with healers. The discussion emphasizes the need for quiet reflection and the choice to spiral up in life despite challenges.TakeawaysThis is my perspective, not a prescription for others.I had no previous health issues before moving to Connecticut.I got obsessed with P90X to stay fit despite my health issues.Losing all my hair was a significant emotional challenge.Brain lesions affected only 1-2% of the population, and I was one of them.I decided to embrace my appearance and never wore a wig again.I developed a cancer imposter syndrome due to misconceptions about my health.Hospitalization led to my permanent ileostomy, which changed my life.I learned the importance of advocating for my health and choices.Dietary changes became crucial in managing my health issues. There's a lot of processed foods in vegetarian diets.Meeting Dr. Ming Wu was a turning point in my health journey.Self-discovery is crucial for healing.Listening to your body can guide your health choices.Qigong and meditation helped me find peace.Reinventing life after teaching was necessary for my growth.Healing involves building relationships with supportive healers.Vulnerability is a strength, not a weakness.You have a choice to spiral up or down in life.Knowing yourself is key to navigating health challenges.

In this episode, Molly shares her unique journey of living with an ostomy, starting from her childhood struggles with chronic constipation to her eventual ileostomy surgery. She discusses the challenges she faced, the importance of community support, and how her perspective on life has changed since her surgery. Molly emphasizes the significance of mental health and acceptance in navigating life with an ostomy, and she inspires listeners to embrace their journeys and seek support.TakeawaysMolly's journey began with chronic constipation from birth.She faced numerous medical challenges before her ileostomy surgery.The ostomy community is supportive and empowering.Living with an ostomy has improved Molly's quality of life.Mental health is crucial in the journey of acceptance.Finding a support system can help process emotions.Molly's condition is linked to Ehlers-Danlos syndrome.She encourages others to share their stories and connect.Ostomy is not a death sentence, but a life sentence.Authenticity and openness can inspire others.

Resources:Joyful: The Surprising Power of Ordinary Things to Create Extraordinary Happiness by Ingrid Fetell LeeHow To Practice Three Good Things - University of Utah Health Health and happiness go hand in hand - Harvard HealthThe happy secret to better work TEDTalk by Shawn AchorWhat Makes You Grateful? by Anne KubitskyAbout the Guests:Suzanne Lord, BSN, RN, CWOCN, BCMAS, has been a registered nurse for 31 years and Certified Wound, Ostomy and Continence Nurse, for the past 13 years. She also holds a board certification in Medical Affairs. Her background has been predominantly in home care, and it was as a visiting nurse she chose to pursue the unique specialty of wound, ostomy, and continence nursing.she made the leap from caring for mostly an elderly population in the home to leading the skin team at Connecticut Children's medical center—an acute care pediatric hospital. From there, she moved to a global medical affairs role within the ostomy medical device industry and then into an acute care inpatient role as a Wound and Ostomy Resource nurse at Lawrence and Memorial Hospital, New London Connecticut. She is currently working as a Wound Care Clinical Specialist for Solventum.She has been an active member of our New England Chapter of the WOCN® Society and currently sits as Co-Chair of the Communication Committee. In the past, she has served on the leadership, education, and Youth Rally committees.As a side pursuit and counterbalance to the health care arena, Suzanne completed an apprenticeship with a chocolatier and then earned her certificate as a Professional Chocolatier. She now works part-time in a local chocolate shop.In 2014, Suzanne took a Seminar for health professionals titled “The Habits of Happy People”. This launched her into a year's long path of independent learning and course work about positive psychology and the science of wellbeing. It is this professional side study that has brought her here today to speak about finding Joy in your WOC work.Editing and post-production work for this episode was provided by The Podcast Consultant.

Resources mentioned in this episode:E-ordering options that make it faster and easier for HCPs to order and alter patients' suppliesUOAA Resources LibraryAccess to Supplies with Medicare words of Advice from UOAA Advocacy teamThe Critical Need to Provide Ostomy Supplies Specific to Patient Need to ImproveLCD-Ostomy Supplies (L33828)UOAA non-medical switching of ostomy supplies campaignUOAA's Roadmap to establish outpatient ostomy services. About the Guest:Yelena Brusilovsky is the National Vice President of Sales for Edgepark and has been with the organization for 12 years. In her role, she leads three key teams: the urology and ostomy inside sales team, the diabetes sales team focused on endocrinologists and internal medicine providers, and the market access team responsible for managing Edgepark's relationships with contracted insurance payers. With extensive experience in healthcare sales and market access, Yelena is committed to improving patient access to essential medical supplies and fostering stronger collaboration between DMEs and healthcare professionals. Editing and post-production work for this episode was provided by The Podcast Consultant.

Resources mentioned in this episode:E-ordering options that make it faster and easier for HCPs to order and alter patients' suppliesUOAA Resources LibraryAccess to Supplies with Medicare words of Advice from UOAA Advocacy teamThe Critical Need to Provide Ostomy Supplies Specific to Patient Need to ImproveLCD-Ostomy Supplies (L33828)UOAA non-medical switching of ostomy supplies campaignUOAA's Roadmap to establish outpatient ostomy services. About the Guest:Yelena Brusilovsky is the National Vice President of Sales for Edgepark and has been with the organization for 12 years. In her role, she leads three key teams: the urology and ostomy inside sales team, the diabetes sales team focused on endocrinologists and internal medicine providers, and the market access team responsible for managing Edgepark's relationships with contracted insurance payers. With extensive experience in healthcare sales and market access, Yelena is committed to improving patient access to essential medical supplies and fostering stronger collaboration between DMEs and healthcare professionals. Editing and post-production work for this episode was provided by The Podcast Consultant.

In this episode of the Beautiful Bag Podcast, host LeeAnne Interviews Danielle and Joe as they share their personal journeys with ostomy surgeries due to Crohn's disease and ulcerative colitis. They discuss how they met through social media, the birth of their advocacy platform 'Double Bagging It', and the importance of community support. The conversation highlights the transformative impact of ostomy on their lives, the freedom it has brought them, and their mission to raise awareness and share stories within the ostomy community.Takeaways:The importance of community support for those with ostomies.Social media can be a powerful tool for connection.Ostomy can lead to a more fulfilling life.Advocacy is crucial in raising awareness about ostomy.Personal stories can inspire and help others.Living with an ostomy can be liberating.It's okay to share your journey in your own way.Finding your tribe is essential for emotional support.Health journeys are unique and should not be compared.Embracing life after ostomy surgery is possible and rewarding.

Amaka discusses her approach to managing peristomal skin and wound care for ostomy patients.  Amaka Akinade is a board-certified Advance Practice Nurse, Adult Health Clinical Nurse Specialist, and Certified Wound Ostomy Nurse. She graduated from the University of Texas at Arlington with a Bachelor of Science in Nursing, obtained her Master of Nursing as an adult clinical nurse specialist from the University of Washington in Seattle, and then pursued her post-master as a family nurse practitioner at Texas A&M Corpus Christi. She is pursuing her doctorate in nursing and practices as an outpatient wound ostomy nurse practitioner at a large accountable care organization. She serves as a leader and clinical resource for colleagues, and she also utilizes her expertise to promote the care of patients. Visit https://www.coloplastprofessional.us/ for more offerings! 

In this podcast episode, Stephanie Benson shares her inspiring journey of living with Crohn's disease and navigating life with an ostomy. From her initial diagnosis to the challenges of dating and self-acceptance, Stephanie discusses the importance of community support and finding strength in adversity. She offers practical tips for managing health, fashion choices, and maintaining a positive outlook despite the struggles of chronic illness. The conversation emphasizes the significance of open communication and the power of shared experiences in fostering resilience and hope.TakeawaysStephanie was diagnosed with Crohn's disease in high school.Living with an ostomy has transformed Stephanie's life for the better.Community support is crucial for those dealing with chronic illness.Dating with an ostomy requires open communication and honesty.Fashion choices can be adapted to accommodate an ostomy.Managing health involves understanding personal dietary needs.Chronic illness can lead to unexpected blessings and growth.It's important to grieve the loss of the pre-illness self.Maintaining a positive outlook is essential for mental health.Finding a supportive community can make a significant difference.

In this episode of The Beautiful Bag podcast, host Speaker interviews Tom, a rectal cancer survivor who shares his journey from diagnosis to recovery. Tom discusses the initial shock of his diagnosis, the challenges of chemotherapy and surgery, and the adjustments he has made to life with an ostomy. He emphasizes the importance of support from family and community, the dietary changes he has experienced, and the various ostomy products available. Tom's story is one of resilience, hope, and a desire to help others facing similar challenges.TakeawaysTom was healthy until he experienced sudden pain.The importance of follow-up appointments cannot be overstated.Chemotherapy and radiation were part of Tom's treatment plan.Support from family was crucial during Tom's journey.Dietary changes were significant after surgery.Tom found strength in online communities.It's essential to try different ostomy products.There is a stigma around ostomies that needs to be addressed.Tom encourages others to reach out for support.You are not alone in your journey.

In this episode of The Beautiful Bag podcast, host and guest Brianna share an insightful conversation about living with an ostomy, her journey with Ehlers-Danlos syndrome, and the importance of raising awareness about ostomies. Brianna discusses her initial struggles, the adjustments she made after surgery, and how her perspective on life with a stoma has evolved over the years. She emphasizes that having an ostomy is not as daunting as many believe and shares her experiences to help others understand and accept their own journeys.TakeawaysBrianna has had her permanent ileostomy for over three years.She was diagnosed with Ehlers-Danlos syndrome, affecting her GI tract.Adjusting to life with an ostomy took time and patience.Brianna named her stoma Stella, which has become a part of her identity.She emphasizes the importance of raising ostomy awareness.Many people fear ostomies due to misconceptions about smell and lifestyle.Brianna's recovery journey included multiple surgeries and challenges.She has learned to navigate ostomy products and find what works best for her.Brianna encourages others to share their stories and experiences.Living with an ostomy can improve quality of life despite initial fears.

A single diagnosis turned Shannon's world upside down, and it all began with a shocking phone call about suspicious spots on her liver. What followed was a whirlwind of emotions and a decade-long journey through misdiagnosis, severe symptoms, and the pursuit of education in Jamaica, all while grappling with the fear of a potential liver metastasis. Amidst this personal health saga, she found solace in the unwavering support of loved ones and the invaluable lesson of listening to her own body. These trials and tribulations underscore the critical importance of self-care and the power of advocacy when faced with medical adversities.Life with an ostomy bag and cancer was a struggle Shannon never anticipated, yet humor became a saving grace. Her candid reflections on living with an ostomy, coupled with an amusing anecdote from a campaign rally for President Obama, reveal the unexpected ways laughter can be found in life's toughest moments. This chapter of Shannon's journey, marked by initial shock and eventual acceptance, highlights the resilience required to maintain quality of life amidst medical challenges. Moreover, it illustrates the transformative power of relationships, particularly the deepened bond with her mother as they weathered these storms together.Honoring the legacy of Lee Silverstein, Blue Couch Chat was born out of a desire to create a platform for authentic storytelling within the African descent community. Inspired by Lee's encouragement and supported by the Podfest community, this venture aims to raise awareness and inspire others facing similar health battles. With gratitude for the connections formed and the support received, Blue Couch Chat is dedicated to continuing meaningful conversations that embrace resilience, celebrate life's gifted time, and recognize the strength gained from overcoming adversity. Join me for a heartfelt exploration of the human spirit and the relentless pursuit of dreams.Talk yo sh!t… Sh!t-Talker!!Support the showFOLLOW US ON;Instagram: https://www.instagram.com/talkshitwithpTwitter: https://twitter.com/TalkshitwithpFacebook: https://www.facebook.com/TalkwhitwIthpTiktok: https://www.tiktok.com/@TalkshitwithpShop IG: https://www.instagram.com/Talkshitwithp.shopLEAVE US A REVIEW ON APPLE PODCAST: https://podcasts.apple.com/us/podcast/talk-shit-with-p/id1509470001AND SUBSCRIBE TO OUR YOUTUBE CHANNEL:https://www.youtube.com/@TalkshitwithpSupport The Show (whatever you can)Cashapp: https://cash.app/$TSWP20Patreon: https://www.patreon.com/TswpBuymecoffee: https://www.buymeacoffee.com/talkshitwithpAmazon Wishlist: https://www.amazon.com/hz/wishlist/ls/2M9Q4HNKRO2WA?ref_=wl_shareTo Learn more on my story;https://flow.page/tal...

In this episode of the Beautiful Bag podcast, LeeAnne Hayden shares her personal journey through marriage, love, and the challenges she faced, including a cancer diagnosis and the impact it had on her relationship. She emphasizes the importance of communication, commitment, and resilience in navigating the ups and downs of marriage. LeeAnne reflects on her experiences, the lessons learned, and the significance of family and support in overcoming life's obstacles. Takeaways: February is often seen as the month of love, but love should be celebrated all year round. Marriage is a commitment that requires work and dedication. Facing challenges together can strengthen a relationship. Cancer can be a life-altering experience, but there is hope and support available. Adjusting to significant life changes, like a colostomy, requires open communication. Financial struggles can put a strain on relationships, but they can also lead to growth. Rebuilding a relationship often involves starting fresh and focusing on each other. Communication is essential for a healthy marriage. It's important to give each other space to grow and change. True love is about supporting each other through thick and thin. Chapters 00:00 Introduction and Overview of the Episode 10:14 Navigating Challenges in Marriage 17:05 Adjusting to Life with a Colostomy 25:01 Rebuilding the Relationship in New York

In this episode of The Beautiful Bag podcast, Yvonne Holly, known as Crohn's Mummy on Instagram, shares her profound journey with Crohn's disease, which began at the age of 11. She discusses her diagnosis, the challenges of living with a colostomy bag, and her experiences with pregnancy while managing her health. Yvonne's story highlights the resilience required to navigate chronic illness and motherhood, offering insights into the emotional and physical hurdles she faced along the way. In this conversation, Yvonne shares her profound journey through motherhood, health challenges, and the experience of living with an ostomy. She reflects on the emotional turmoil of her daughter's health struggles, her own battles with sepsis and surgeries, and how these experiences shaped her resilience. Yvonne emphasizes the importance of finding positivity in adversity and encourages open discussions about health issues to foster support and understanding. Takeaways: Yvonne was diagnosed with Crohn's disease at age 11. She underwent a colostomy in 2010, which became permanent in 2016. Living with a perianal abscess for nine years was a significant challenge. The colostomy bag provided relief and improved her quality of life. Pregnancy had a positive effect on her Crohn's symptoms. Yvonne had to plan her pregnancies around her health condition. She experienced complications during her second pregnancy. Her daughter Felicity faced health challenges at birth. Yvonne has undergone over 50 surgeries throughout her life. The support from the NHS was crucial during her pregnancies. It's not my fault, but I felt responsible. She needs to fight for her life before she learns to feed. My daughter is the strongest little girl I know. I was rushed in with sepsis again, it was scary. I just remember signing and saying, take it all away. I love my colostomy bag just as much as my children. My ostomy has given me a life back. You can always find the positivity in anything. Never suffer in silence, always talk about your illness. Talking about your illness can do wonderful things to your brain. Connect on Instagram: LeeAnne https://www.instagram.com/leeannehayden/ Yvonne https://www.instagram.com/crohns.mummy/

Summary In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Kaya, who shares her journey with ulcerative colitis and living with an ostomy. Kaya discusses her diagnosis at a young age, the challenges of managing her health, and the emotional toll it took on her. She also shares her experiences with pregnancy, the transition to a J-pouch, and the support she received from her family and husband. Throughout the conversation, Kaya emphasizes the importance of self-advocacy, embracing one's situation, and helping others who face similar challenges. Takeaways: Kaya was diagnosed with ulcerative colitis at 14. She experienced significant weight loss and health challenges. Navigating life with an ostomy was initially overwhelming. Surgery was a turning point in her health journey. Transitioning to a J-pouch involved dietary adjustments. Pregnancy brought new health complications for Kaya. Support from family and friends was crucial during tough times. Kaya's husband played a significant role in her recovery. She learned to embrace her ostomy and share her story. Kaya encourages others to ask questions and seek support.

Susan Allison-Dean is a Board Certified Advanced Holistic Nurse and Certified Clinical Aromatherapy professional with over thirty years of experience in nursing.  During the first half of her career, she practiced mainly as a Certified Wound, Ostomy, & Continence Clinical Nurse Specialist, holding a joint position with Yale-New Haven Hospital & Yale University.In 1999, she experienced the profound loss of two significant family members just two days apart.  This loss and the profound healing experiences that she experienced in nature led her to leave the disease-care model and shift her practice to health promotion, specifically nature and health.Sue is the Founder and CEO of TheNatureNurse.com, which focuses on connecting women with nature so they may live more joyous, vibrant, awe-inspiring lives in harmony with Mother Nature.  She is the co-chair of the Global Nature Nurse Network, connecting nurses who specifically partner with the natural world to enhance holistic health and prevent disease.Sue also enjoys writing, traveling with her husband, and dabbling in other creative arts.  She lives in New York and North Carolina in the US.How you became a Nature Nurse 4:12 deep level grief, profound loneliness, pain 6:02  mother nature 24/7 availability - transformative - helped me to live a joyous and productive life. Bring light into people's lives. 9:03 Florence Nightingale "nature itself is healing"14: Nurse Pioneers in Global Nature Nurse Network Verla cites podcast episode with Professor Andy Jones systematic review and meta analysis of green space exposure and health outcomes (103 observational and 40 interventional studies investigating 100 outcomes: green space exposure decreased heart rate and blood pressure, HDL cholesterol, increased HRV, decreased preterm birth, diabetes, and all cause mortality in particular cardiovascular mortality.  For transcript see verlafortier@substack.com  Nature Nurse on Instagram https://www.linkedin.com/in/susan-allison-dean-rn-ms-ahn-bc-ccap/  For peer reviewed research on how your time spent in green space can change your mindset, balance your nervous system and your heart rate please go to verlafortier@substack.com and check out my books Take Back Your Outside Mindset: Live Longer, Stress Less, and Control Your Chronic Illness and Optimize Your Heart Rate: Balance Your Mind and Body With Green Space

In this episode of the Beautiful Bag podcast, LeeAnne Hayden discusses the concept of 'chic confidence,' which combines inner self-esteem with outward style. She shares personal experiences and practical tips on how to boost confidence through fashion, self-care, and community support. LeeAnne emphasizes the importance of feeling good inside and out, and how personal style can reflect one's unique personality. The conversation also touches on the significance of gratitude, self-talk, and the role of supportive communities in building confidence, especially for those living with an ostomy. Takeaways: Chic confidence is about feeling good inside and out. Fashion can significantly boost your confidence. It's important to wear clothes that reflect your personality. Building confidence takes time and small steps. Self-talk plays a crucial role in your confidence levels. Practicing gratitude can enhance your overall well-being. Surround yourself with supportive people to build confidence. Don't compare yourself to others; focus on your journey. Create a 'power outfit' that makes you feel confident. Community support is vital for personal growth and confidence. Chapters 00:00 Introduction to Chic Confidence 05:39 Fashion as a Confidence Booster 15:15 Inner Confidence and Self-Talk 23:40 The Importance of Community and Support 30:52 Legal statement.mp3

Join Michael and Mom as they talk to Amy Hart. Amy is a colorectal cancer survivor; she lives with Lynch Syndrome and has permanent Ostomy. She is beautiful, sexy, smart, and funny! She is a mama, wife, has a full-time career and she advocates not only for colorectal cancer, but for ALL women AND men going through difficult times with health and body acceptance. The three laugh, get serious, talk about needed changes (especially for AYA's, adolescents and young adults going through cancer), listening to our bodies, advocating and standing up to doctors, and simply waking up and moving forward. Follow Amy and her inspiring journey on Instagram: https://www.instagram.com/barefootostomate/?hl=en

Episode Resources:The Phoenix magazine, the official publication of United Ostomy Associations of America (UOAA)OstomyConnection.comAbout the Speaker:JoAnn is a CWOCN® since 1989 and FNP since 1999. She currently is President, Co-Director, and faculty for WEB WOC® Programs in Minneapolis, MN since 2002, educating nurses who are interested in becoming wound, ostomy, and continence care nurse specialists. In addition, JoAnn practices parttime at MercyOne North Iowa Continence clinic and Wound/Vascular Center in Mason City, IA. She is co-author of a chapter in the 2nd Edition of WOCN Core Curriculum: Wound Management, 2022, which discusses wound bed preparation using the expanded TIME framework and other general principles of topical therapy.

Episode Resources:World Council of Enterostomal Therapists (WCET®) International Ostomy GuidelinesWCET® JournalLeininger's Culture Care Diversity and Universality: A Worldwide Nursing TheoryTranscultural Nursing Society (TCNS)Journal of Transcultural NursingNational Association of Hispanic Nurses (NAHN)National Black Nurses Association (NBNA)Journal of Wound, Ostomy, and Continence Nursing (JWOCN) About the Speaker:Cecilia Zamarripa, PhD, RN, CWON, is a Wound, Ostomy, and Continence (WOC) Nurse for 38 years and currently manages the WOC Nursing Department at the University of Pittsburgh Medical Center. Prior to that, Cece practiced WOC Nursing at Baylor University Medical Center Dallas, Texas; Rush University Medical Center; and at the UPMC since 1997.Cece has been involved as a clinical preceptor for nurses in a WOCNEP and in Nursing Education roles. In 2010, Cece had the privilege of being selected as the Joint Commission Resources Patient Safety Scholar in Residence. Her teaching experience includes RN to BSN program at Slippery Rock University, Community Health Nursing, clinical instructor at Duquesne University, Preceptor for nurses completing their WOC Nursing Education Program, and Course Co-Coordinator for the Wound Treatment Associate (WTA®) and Ostomy Care Associate (OCA®) programs.Cece is involved in the Wound, Ostomy, and Continence Nurses Society™ (WOCN®) and was a past volunteer for WOCNext Conference Planning Committee. Cece is involved in her professional specialty organization and was a contributing member of the WOCN Peristomal Consensus Panel in November 2020. She is a member of Sigma Theta Tau, Western PA Area Chapter for National Association of Hispanic Nurses, WOCN Society™, the WCET and a current Director for the WOCN Board.

Send us a textWhat happens when a self-proclaimed couch potato transforms into a formidable Ironman triathlete? Caroline "Ironostomy" Bramwell joins us to share her extraordinary journey of resilience and empowerment. Diagnosed with ulcerative colitis during her second pregnancy, Caroline faced a life-altering ileostomy surgery. Yet, she turned this challenge into an opportunity for change, embracing triathlons and becoming a passionate advocate for ostomy care worldwide. Her story is a testament to the idea that "the obstacle is the way," as she navigates her dual existence as a PR professional by day and a triathlete by night.Exploration of identity takes center stage as Caroline recounts her transformative path from a bullied child to a confident adult. Set against the backdrop of serene woodland clearings, these personal narratives highlight how early experiences shape us and the power of reinvention. We dive into the mental and physical preparations necessary for surgical interventions that can lead to newfound freedom, as well as the joy of surpassing previous limitations and embracing a more active lifestyle.The episode takes a global turn as Caroline discusses her advocacy work with the European and International Ostomy Associations. Her dedication to improving ostomy care standards echoes her personal motto, "Anything is possible." Listeners are invited to reflect on their own life stories through Chris's unique "5, 4, 3, 2, 1" exercise, a structured storytelling format that encourages introspection and ultimately, transformation. Join us for a fascinating exploration of personal triumph, the strength found in shared experiences, and the enduring power of storytelling.Tune in next week for more stories of 'Distinction & Genius' from The Good Listening To Show 'Clearing'. If you would like to be my Guest too then you can find out HOW via the different 'series strands' at 'The Good Listening To Show' website. Show Website: https://www.thegoodlisteningtoshow.com You can email me about the Show: chris@secondcurve.uk Twitter thatchrisgrimes LinkedIn https://www.linkedin.com/in/chris-grimes-actor-broadcaster-facilitator-coach/ FaceBook Group: https://www.facebook.com/groups/842056403204860 Don't forget to SUBSCRIBE & REVIEW wherever you get your Podcasts :) Thanks for listening!

Episode Resources:WOCN Society Pediatrics Community and Ostomy Community for members onlyJWOCN® evidence-based articles on pediatric carePediatric Ostomy Support Group (POGS) by the United Ostomy Associations of America (UOAA)Youth Rally, Pull-thru Network, Crohn's & Colitis Foundation, Girls with Guts, Shadow Buddies Foundation About the Speaker:Michelle Rice, MSN, RN, CWOCN, has been a WOC nurse since 1999 and currently practices at Duke University Hospital. Michelle's primary population is pediatrics and focuses on wound care and ostomy care.

Amaka shares her expertise on the use of convexity with ostomy patients along their pre-op and post-op journey.  Amaka Akinade is a board-certified Advance Practice Nurse, Adult Health Clinical Nurse Specialist, and Certified Wound Ostomy Nurse. She graduated from the University of Texas at Arlington with a Bachelor of Science in Nursing, obtained her Master of Nursing as an adult clinical nurse specialist from the University of Washington in Seattle, and then pursued her post-master as a family nurse practitioner at Texas A&M Corpus Christi. She is pursuing her doctorate in nursing and practices as an outpatient wound ostomy nurse practitioner at a large accountable care organization. She serves as a leader and clinical resource for colleagues, and she also utilizes her expertise to promote the care of patients. Visit https://www.coloplastprofessional.us/ for more offerings! 

Send us a textKaren Zulkowski is the GOAT of wound care nursing. Her professional journey began with earning a BSN in 1972 and culminated with a Doctorate in Nursing Science. Throughout her career, she has held various roles, including business owner, associate nursing professor, and wound course instructor. Karen has also served on the National Pressure Injury Advisory Board and the World Council of Enterostomal Therapists. Her extensive research and publications in peer-reviewed articles, both nationally and internationally, reflect her commitment to advancing wound care. Karen's primary focus is always on the patient, and she aims to improve patient care by bridging the gap between wound care research and clinical practice. In our discussion, she highlighted the knowledge gaps in wound care, the evolving landscape, and the exciting advancements in technology.  Karen says wound care nursing is not for everyone, it requires a special dedication, and I would encourage those interested in this field to listen to her insights.In the five-minute snippet: Aloha! For Karen's bio, please visit my website (link below).Wound Care certifications:National Alliance of Wound Care and OstomyWound, Ostomy and Continence Nursing Certification BoardAmerican Board of Wound ManagementWound Care Professional Organizations:Association for the Advancement of Wound Care (AAWC)American Board of Wound Management (ABWM)Wound Healing SocietyNational Pressure Injury Advisory PanelWorld Council of Enterostomal TherapistsContact The Conversing Nurse podcastInstagram: https://www.instagram.com/theconversingnursepodcast/Website: https://theconversingnursepodcast.comYour review is so important to this Indie podcaster! You can leave one here! https://theconversingnursepodcast.com/leave-me-a-reviewWould you like to be a guest on my podcast? Pitch me! https://theconversingnursepodcast.com/intake-formCheck out my guests' book recommendations! https://bookshop.org/shop/theconversingnursepodcast Email: theconversingnursepodcast@gmail.comThank you and I'll talk with you soon!

Episode Resources:Ostomy Care Management (OCM) ProgramThe Wound, Ostomy, and Continence Nurses Society™ (WOCN®) SocietyThe American Society of Colon and Rectal Surgeons (ASCRS) About the Guests:Jan Colwell, APRN, CWOCN, FAAN, is an advanced practice nurse certified in wound ostomy and continence care. She most recently practiced at the University of Chicago Medicine providing care to patients with ostomies. She is a past president of the WOCN Society and Friends of Ostomates Worldwide USA, and has contributed to ostomy patient care by editing several ostomy care text books, participated in ostomy research projects, authored multiple ostomy based articles and is the co-section editor of the ostomy section of the Journal of Wound, Ostomy, and Continence Nursing (JWOCN®).Bethany Malone, MD, is a board-certified colon and rectal surgeon based in Fort Worth, TX. She practices broad-based colorectal surgery including screening colonoscopies and treats benign anorectal conditions, hemorrhoids, fecal incontinence, colon cancer, rectal cancer, and inflammatory bowel disease. Dr. Malone is an active member of the American Board of Colon and Rectal Surgeons, the American College of Surgeons, and the International Society of University Colon and Rectal Surgeons.Jenny Speranza, MD, attended the Rochester Institute of Technology, graduating in 1994 with her B.S. degree, Magna Cum Laude. She earned her M.D. from the School of Medicine, State University of New York at Buffalo (1999). Dr Speranza finished her surgical residency in 2004 from the State University of New York at Buffalo Consortium. In 2005, she completed a Colon and Rectal fellowship at the University of Miami. Prior to arriving at the University of Rochester, Dr. Speranza was on staff at the Cleveland Clinic Florida where she was an attending surgeon in the department of Colon and Rectal Surgery. Dr. Speranza is a member of American College of Surgeons, the American Society of Colon and Rectal Surgeons, and serves on two committees of the Society of American Gastrointestinal and Endoscopic surgeons.

Send us a textThis week Alicia was joined by guest host and former guest, Hannah Cramer and they interviewed Alicia Aiello! Alicia A. is the President of Girls With Guts which is a nonprofit organization supporting and empowering women living with IBD and with ostomies. We talked to her all about her IBD journey and how that lead her to Girls With Guts. We discussed how her background in videography and visual arts helped her to bring some awareness to their work and how she eventually transitioned to become their President. We discussed some of their work including their "Butt Baskets" and their Lover Your Guts program and we spent a lot of time talking about their retreats. They host 2 retreats per year including a New Attendee or "Newbie" Retreat as well as an annual retreat that brings in come of those first-timers as well as alumnae. We really enjoyed our conversation with Alicia and are so impressed with the work of GWG and Hannah was an amazing co-host! Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)Links: Girls With Guts websiteInfo about the GWG retreatsThe presentation that Alicia gave to her classAlicia's personal website with more videosHannah's episodeHannah and Robin's episode about EMDRLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

Episode Resources:For resources mentioned in this episode, visit the links below.WOCNext® 2024 presentation, “Don't Just ‘Go with the Flow'! Practice Update for the Management of High Output Fecal Ostomies” - available for on-demand viewing for registered attendeeWOCN members-only communities for online networking threads and professional discussions About the Speaker:Tammy Lichtman, BSN, RN, CWON, is a seasoned CWON with 15 years of experience, including roles as Regional Wound and Ostomy Director for home health in Florida and owner of her own consulting business. Her background includes surgical nursing at the Cleveland Clinic and leadership positions at AdventHealth, where she managed the wound/ostomy program across multiple campuses.

Episode Resources:For resources mention in this article, visit the links below:Maura's Abstract & ePoster: Skin Care Champion Program at a South Jersey Teaching Hospital's Progressive Care UnitAlicia's Abstract & ePoster: An Educational Intervention Differentiating Between Pressure Injuries and End-of-Life WoundsWOCNext 2024 PicturesWOCNext website About the Guests:Alicia Perez Varela has been a registered nurse since 2017 and earned her wound care certification in 2021. She attended WOCNext® for the first time in 2024. Alicia currently works at an outpatient advanced wound care and hyperbaric clinic and is also a member of the inpatient wound care team.Maura Callahan has been a bedside nurse for 8 years, with experience in Long Term Care, Home Care, and Acute Care in the Progressive Care Unit as a Charge Nurse and Training Preceptor. She is passionate about Wound, Ostomy, and Continence Care and completed the Rutgers University-Camden Wound Ostomy Continence Nursing Education Program. This training has enabled her to support various units with care and education for patients, families, and caregivers. Maura is actively involved in her facility's Skin, Wound Assessment Team, leads the Skin Care Champion Program, and recently joined the Hospital System's Pressure Injury Reduction Council.

Episode Resources:For resources mention in this article, visit the links belowAbstract: “Going With the Flow” to Develop a Robust External Female Catheter Implementation ProcessePoster: Going With the Flow” to Develop a Robust External Female Catheter Implementation ProcessArticle: Implementation of an external female urinary catheter strategy on prevention of skin breakdown in acute care: A quality improvement studyWound Treatment Associate (WTA) ProgramOstomy Care Associate (OCA) ProgramWOC Nursing Education Programs accredited by the WOCN Society About the Speakers:Cecilia Zamarripa, PhD, RN, CWON, is a Wound, Ostomy and Continence (WOC) Nurse for 38 years and currently manages the WOC Nursing Department at the University of Pittsburgh Medical Center. Prior to that, Cece practiced WOC Nursing at Baylor University Medical Center Dallas, Texas; Rush University Medical Center; and at the UPMC since 1997.Cece has been involved as a clinical preceptor for nurses in a WOCNEP and in Nursing Education roles. In 2010, Cece had the privilege of being selected as the Joint Commission Resources Patient Safety Scholar in Residence. Her teaching experience includes RN to BSN program at Slippery Rock University, Community Health Nursing, clinical instructor at Duquesne University, Preceptor for nurses completing their WOC Nursing Education Program, and Course Co-Coordinator for the Wound Treatment Associate (WTA®) and Ostomy Care Associate (OCA®) programs.Cece is involved in the Wound, Ostomy, and Continence Nurses Society™ (WOCN®) and was a past volunteer for WOCNext Conference Planning Committee. Cece is involved in her professional specialty organization and was a contributing member of the WOCN Peristomal Consensus Panel in November 2020. She is a member of Sigma Theta Tau, Western PA Area Chapter for National Association of Hispanic Nurses, WOCN Society™, the WCET and a current Director for the WOCN Board.Alexandra Craig, BSN, RN, WTA-C is a clinical research coordinator (CRC) for the UPMC Presbyterian WOC Nursing Department. During Alex's time in the department, she has been instrumental in to help develop the projects and prepared documents for research study protocols. Her research experience includes a Support Surfaces RCT, Ostomy Barrier leakage retrospective study and numerous wound care quality projects. She is passionate about learning; research and the nursing science provides the evidence to improve patient care outcomes. She is currently enrolled in her MSN program and plans to attend a WOC Nursing Education Program (WOCNEP) soon after.

Episode Resources:For resources mentioned in this episode, visit the links below:Local Coverage Determination (LCD) for Ostomy Supplies document L33828 located on cms.govUOAA Support Group Finder About the Speaker:Stephanie Yates MSN, RN, ANP-BC, CWOCN, WOCNF, is a master's prepared Nurse Practitioner and consultant, educated at UNC - Chapel Hill, and Duke University. She received WOC nursing education at Emory University. Stephanie practiced for many years in acute care, home health, long term care and at the Duke Wound Management Clinic and Duke Cancer Center. She is a Past President of the WOCN® Society and she led or participated on three consensus conferences related to MARSI. She co-authored several journal articles on MARSI as well as co-edited the second edition of the WOCN Core Curriculum-Wound Care. She has lectured on wound care topics locally, regionally, and nationally. She was recently inducted as a Fellow in the WOCN Society.

In this episode of SurgOnc Today®, Dr. Patrick Sullivan is joined by Dr. Nicole Lopez and Dr. César Reátegui to discuss diverting ostomy. Current practice guidelines suggest that diverting ostomy is the standard of care in surgical management of rectal cancer after neoadjuvant therapy to minimize the risk of clinically significant leak which can then result in permanent colostomy. However, the risk of anastomotic leak after neoadjuvant chemoradiation ranges from 4-12% suggesting that most patients have unnecessary ostomy and additional surgery. With improvement of surgical techniques, utilization of robotic surgery and recent adoption of more TNT approaches, selective use of diverting ostomy will lead to improvement in QOL and decrease in health care costs with minimal impact on incidence of permanent colostomy.

So you have an ostomy…Learn from experts how to manage & live life to the fullest.

Episode Resources:Connect with Janice on the WOCN Community platform.Post ostomy clinic questions in the ostomy community and/or professional practice community. About the Speakers:Janice Erbe Gorski, DNP, APNP, FNP-BC, CWON-AP, is an ostomy nurse practitioner who is employed at the Medical College of Wisconsin as a lead Ostomy APP. She is responsible for the development of the ostomy program and works in both the inpatient and outpatient clinic settings. In her role, Janice opened a nurse practitioner led ostomy clinic which has dramatically grown to support two dedicated ostomy nurse practitioners.Janice became certified as a wound ostomy nurse in 2008 and received her Doctorate of Nursing Practice in 2020. She is active with the Wound Ostomy Continence Nursing Society at both the Chapter and National levels. She is the current president of the North Central Chapter. Additionally, she serves on the United Ostomy Associations of America (UOAA) Education Committee.

Episode Resources:Journey of WOC Nursing through the DecadesYouth RallyUnited Ostomy Associations of America (UOAA)Crohn's and Colitis FoundationKristin's blog: Gutless Wonder Woman About the Speakers:Paula Erwin-Toth, MSN, RN, CWOCN, CNS, FAAN, has over 30 years of experience in wound, ostomy and continence care. She is a well-known author, lecturer and patient advocate who is dedicated to improving the care of people with wounds, ostomies and incontinence in the US and abroad. Paula completed her basic nursing education in 1978 at the Akron City Hospital's Idabelle Firestone School of Nursing, she received her (WOC)ET education at the Cleveland Clinic's RB Turnbull, Jr. School of Enterostomal Therapy in 1982; her BSN and MSN were awarded in 1986 and 1990, respectively, by the University of Akron in Ohio. Paula served as the Director of WOCN Nursing Education at the Cleveland Clinic in Cleveland, Ohio, from 1990-2012 and served as Director Emerita of that program. In 2012, Paula received the Lifetime Achievement Award from the WOCN Society. In 2013, Paula was inducted as a Fellow of the American Academy of Nursing. Paula is also President and CEO of PETprojects, a firm specializing in wound, ostomy, and continence care, education and advocacy. Recently at WOCNext 2024, Paula received the President's Recognition Award from the WOCN Society.Kristin Knipp, LPN, is a Care Coordinator for the Center for Swallowing & Esophageal Disorders at the Cleveland Clinic. She has been a Youth Rally nurse and counselor for 30+ years. She is a Past President of United Ostomy Associations of America (UOAA). She served as Education and Support Coordinator and Development Coordinator for the Crohn's and Colitis Foundation Northeast Ohio. She also served as a Sales manager for Ostomy Secrets. Kristin serves in various other volunteer support and advocacy roles. She is a nurse, an ostomate, and a patient advocate.

Episode Resources:For resources mentioned in this episode, including organizations where you can donate unused ostomy supplies, visit the links below:Friends of Ostomates Worldwide-USA (FOW)Friends of Ostomates Worldwide (Canada) (FOWC)United Ostomy Associations of America (UOAA) Support Group finderAmerican Cancer SocietyUSC Center for Inflammatory Bowel Disease About the Speaker:Janice Colwell, APRN, CWOCN, FAAN, is an advanced practice nurse certified in wound ostomy and continence care. She most recently practiced at the University of Chicago Medicine providing care to patients with ostomies. She is a past president of the WOCN Society and Friends of Ostomates Worldwide USA, and has contributed to ostomy patient care by editing several ostomy care textbooks, participating in ostomy research projects, authoring multiple ostomy-based articles, and is the co-section editor of the ostomy section of the Journal of Wound, Ostomy, and Continence Nursing (JWOCN).

Episode Resources:Visit the Chapter page on the WOCN website for more information on the restructure, including FAQs and additional resources.Connect with your local WOCN peers through the online Chapter Communities.View this infographic about the WOCN Society's history. About the Speakers:Derik Alexander, MSN, RN, FNP-BC, CWOCN, CFCN, has been a dedicated member of the WOCN Society for 23 years. He is the Wound, Ostomy, and Continence Nurse Practitioner at Dignity Health Medical Group and St. Joseph's Hospital & Medical Center in Phoenix, Arizona. He holds a Master of Science in Nursing, Family Nurse Practitioner from the University of Phoenix (2009) and completed his Wound, Ostomy, and Continence Nurse Education at Emory University.Mandy Spitzer, MBA, RN, CWOCN, CFCN, is a Certified Wound, Ostomy, and Continence Nurse, as well as a Certified Foot Care Nurse. An active WOCN Society member, Mandy has served on the South Central Chapter's Board of Directors in various roles, including President (January 2023 – present), President-elect (2021 – 2022), and Communications Officer (2017 – 2020). She is currently the Medical Education Manager for Negative Pressure Wound Therapy at Smith and Nephew.Nicole Kindel, BSN, RN, CWOCN, is an Acute Care Wound, Ostomy, and Continence Nurse with 18 years of certification as a WOC nurse. Over the past 15 years, she has held every position on the North West Chapter Board of Directors.

 Working with teens with ostomies is a unique situation. Kim shares her expertise and some best practices when working with this population. Guest bio: Kim is a Registered Nurse and certified in wound, ostomy and continence. She has been a pediatric nurse for over 20 years. She currently practices at a level one trauma, academic hospital that includes a free-standing children's hospital. Her current practice area is focused on the pediatric wound and ostomy population. Kim has provided over 11 years of camp service at Youth Rally, a summer camp for kids ages 10-17 with bowel and bladder conditions. She has also traveled internationally to assist with mobile clinics and education. Visit  Coloplastprofessional for more offerings! 

Episode Resources:Click here to find a UOAA Affiliated Ostomy Support Group near you. People who have or will have surgery, caregivers, family, friends and medical professionals are invited to attend and benefit from lifelong learning and emotional support.Click here to access the article, The Role of the WOC Nurse in an Ostomy Support Group by Stephanie Mowdy, BSN, RN, C, CETN. Click “Download” on the left-hand side to get the PDF version of the original article that was published in the JWOCN® in 1998.Click here to access the article Starting and Maintaining a Hospital‐Based Ostomy Support Group by Heidi Huddleston Cross, MSN, RN, FNP-BC, published in the JWOCN in 2010.Click here to access the WOCN members-only online Ostomy CommunityClick here to access the WOCN members-only Professional Practice Community About the Speakers:Vashti Livingston, MS, RN, CWOCN, has been a member of the WOCN Society for 20 years. Vashti has been a WOC nurse co facilitator for an ostomy support group for 20 years. She currently works as a Certified WOC Nurse Ambulatory Urology at Memorial Sloan Kettering Cancer Center NYC. Her educational background includes Emory University WOCNEP (2001); MS in Adult Health Nursing (2005); BSN (1990) and BS Biology (1984).Stacy Krakower, BSN, RN, CWON, has over 20 years of direct patient care working in the acute, long term, ambulatory and home care settings. Stacy completed her training in wound and ostomy nursing from the Emory University Wound and Ostomy Certification Program and has been certified wound and ostomy nurse for the past six years. Since 2019, Stacy has had the privilege of being one of the leaders of the Cooperman Barnabas Medical Center's Ostomy Support Group. She has helped grow this group over the years as it successfully pivoted from an in person support group to a virtual group. She is passionate about her role as a leader of such an important group as she feels that knowledge is acquired over time and support groups can offer the ostomy community life long learning, support and friendship.Rebecca Poleshuck, MSN, FNP-BC, CWOCN, presently practices as a Wound Ostomy and Continence Specialist and Colorectal Surgery Nurse Practitioner, with special certification in wound, ostomy and continence care. She has practiced in the field of nursing for over 19 years, providing care to pressure injury patients, and developing comprehensive educational programs for registered nurses, licensed practical nurses and patient care assistants. As a wound care expert at an academic medical center, she routinely diagnoses and treats patients with pressure injuries based on the etiology and stage of the wound. She received a BS in Nursing from Hunter-Belleveue School of Nursing and certification as a Family Nurse practitioner from SUNY Downstate. She is currently employed at Mt. Sinai Beth Israel Hospital in New York as a nurse practitioner, wound, ostomy and continence specialist. Rebecca is Co-chair of the WOC Nurse Mount Sinai Health System Steering Committee for Hospital Acquired Pressure Injury prevention and provide a consultation service for wounds, ostomies and fistulas in the acute care setting as well as in a nurse practitioner run outpatient clinic for patients with recent ostomies and patients with long term concerns. She has also developed prevention strategies for patients at risk for pressure injuries in unit based quality improvement projects as well as developing a wound and ostomy continuing education program for Mount Sinai Beth Israel School of Nursing. Rebecca has created a staff development program for Registered Nurses and Patient Care Associates to prevent pressure injuries, moisture associated dermatitis, the care of lower extremity wounds and ostomies. She also created a staff development program for nurse practitioners for care of oncological wounds. Rebecca sits on Mount Sinai systemwide committees for pressure injury prevention and for credentialling of advanced practice providers.

Leanne Watanabe shares her journey with ulcerative colitis and the decision to undergo surgery to remove her colon. She discusses her late discovery of fitness and her initial motivation to work out for weight loss. Leanne talks about her mentor who introduced her to marathon running and helped her believe in her abilities. She shares her experience training for her first marathon while dealing with GI issues. Leanne discusses the impact of stress and her dysfunctional upbringing on her health. She talks about her struggle to accept her diagnosis and the various treatments she tried before deciding on surgery. LeeAnne Hayden shares her experience living with ulcerative colitis and undergoing surgery to have an ostomy. She emphasizes that living with a chronic illness is never easy, but she is grateful for the chance to live a healthy life. Hayden encourages others to embrace their bodies and not let their diagnosis dictate how they live and thrive. She discusses the importance of therapy and setting boundaries in her healing journey. Hayden also talks about her experience competing in fitness competitions and how it has helped her change her relationship with dieting and exercise. She concludes by emphasizing the importance of self-love in achieving personal goals. Takeaways Fitness can be a powerful tool for building confidence and achieving goals, even for those with chronic illnesses. Stress and a dysfunctional upbringing can contribute to the development and exacerbation of health issues. It is important to be your own advocate and seek out the best medical care available, even if it means traveling to different locations. Surgery can be a life-changing decision for those with severe refractory ulcerative colitis, offering the possibility of improved quality of life. Alternative therapies may provide temporary relief, but it is essential to weigh the potential benefits against the risks and costs. Living with a chronic illness is never easy, but it is important to embrace the chance to live a healthy life. Therapy and setting boundaries are crucial in the healing journey. Competing in fitness competitions can help change one's relationship with dieting and exercise. Self-love is the foundation for achieving personal goals. Chapters 00:00 Introduction and Summer Break Announcement 00:55 Leanne's Journey into Fitness 03:21 Navigating GI Issues While Training for a Marathon 08:06 The Role of Stress and Upbringing in Leanne's Health 14:11 Exploring Alternative Therapies for Ulcerative Colitis 27:46 Living with Ulcerative Colitis and Making the Decision for Surgery 29:13 Gratitude for a Chance at a Healthy Life 30:41 Overcoming Challenges and Embracing Life 31:39 Living Beyond the Diagnosis 33:05 The Power of Self-Confidence and Body Acceptance 35:30 Therapy and Setting Boundaries in the Healing Journey 39:16 Changing the Relationship with Dieting and Exercise 44:00 The Importance of Self-Love in Achieving Personal Goals

SummaryDana shares her 17-year journey with ulcerative colitis and the challenges she faced before ultimately getting an ostomy. She reflects on her carefree college years, multiple surgeries, and the disappointment of the J-pouch not working as expected. Dana discusses the emotional toll of living with a chronic illness and the importance of therapy and self-care. She highlights the silver linings of having an ostomy, such as improved sleep and the ability to enjoy life's moments. Dana emphasizes the need for education, support, and breaking the stigma surrounding ostomies.     Takeaways Living with a chronic illness can be emotionally challenging, and therapy can be a valuable tool for coping and finding support. Having an ostomy can bring unexpected benefits, such as improved sleep and the ability to fully participate in life's activities. Education and awareness about ostomies are crucial for breaking the stigma and providing support to those who need it. It's important to ask questions, seek advice, and connect with others who have similar experiences to navigate life with an ostomy.   "I hit my rock bottom after surgery. I feel like that person that I used to know was gone. Like that version of me was gone. I was not me anymore. I was, who am I?" "I started to find the silver linings. Like this, this is not that bad. Maybe this will make things a little bit easier. Like, you'll be able to sleep at night and you're not running to the bathroom and you're not having a million accidents." "I feel like I can finally stand by myself. Yeah. It's pretty cool." Chapters 00:00Introduction and Background 01:29Diagnosis and College Years 06:25The Need for an Ostomy 10:02Adjusting to Life with an Ostomy 13:27The Emotional Journey and Therapy 23:53Embracing Life with an Ostomy 32:55Empowering Others and Breaking the Stigma 41:00Final Thoughts and Advice

Episode 17 - Discover the journey of living with an Ostomy with Andy Wakefield. Against all odds, he ran three London marathons with two Ostomy bags post-cancer, inspiring resilience and courage. Disclaimer: Please note that all information and content on the UK Health Radio Network, all its radio broadcasts and podcasts are provided by the authors, producers, presenters and companies themselves and is only intended as additional information to your general knowledge. As a service to our listeners/readers our programs/content are for general information and entertainment only.  The UK Health Radio Network does not recommend, endorse, or object to the views, products or topics expressed or discussed by show hosts or their guests, authors and interviewees.  We suggest you always consult with your own professional – personal, medical, financial or legal advisor. So please do not delay or disregard any professional – personal, medical, financial or legal advice received due to something you have heard or read on the UK Health Radio Network.

Jill Nicolini Interviews Kathy Froiland Deck Consultant for Ostomy Nursing Care -- kgfroiland@gmail.comListen to us live on mytuner-radio, onlineradiobox, fmradiofree.com and streema.com (the simpleradio app) https://onlineradiobox.com/search?cs=us.pbnnetwork1&q=podcast%20business%20news%20network&c=us https://mytuner-radio.com/search/?q=business+news+network https://www.fmradiofree.com/search?q=professional+podcast+network https://streema.com/radios/search/?q=podcast+business+news+network

Stoma4Life, the Bowel Cancer Awareness and Life as a Ostomate, radio show and podcast is hosted by Raphaela Reeb. Raphaela, invites you to join her and benefit from the up-to-date knowledge of the experts she interviews. Surgeons, nurses, specialists in stoma & cancer care, IBS or Crohn's disease sufferers, people just like her, living with a stoma. She is here to debunk myths, clear up misconceptions and help you approach the subject that so many people are afraid to talk about, in a positive manner. Join Robert Manni, author of The Guys' Guy's Guide To Love as we discuss life, love and the pursuit of happiness. Subscribe to Guy's Guy Radio on YouTube, iTunes and wherever you get your podcasts! Buy The Guys' Guy's Guide to Love now!

Stoma4Life, the Bowel Cancer Awareness and Life as a Ostomate, radio show and podcast is hosted by Raphaela Reeb. Raphaela, invites you to join her and benefit from the up-to-date knowledge of the experts she interviews. Surgeons, nurses, specialists in stoma & cancer care, IBS or Crohn's disease sufferers, people just like her, living with a stoma. She is here to debunk myths, clear up misconceptions and help you approach the subject that so many people are afraid to talk about, in a positive manner. Join Robert Manni, author of The Guys' Guy's Guide To Love as we discuss life, love and the pursuit of happiness. Subscribe to Guy's Guy Radio on YouTube, iTunes and wherever you get your podcasts! Buy The Guys' Guy's Guide to Love now!

How would you handle it if you ended up having a medical condition that suddenly made you different from everyone else, in the most embarrassing way possible? That's what happened to Mike. Today you'll hear about when Mike got the news from his doctor – sorry, you won't be able to poop the normal way any more. From now on, for the rest of your life, you'll use a bag, actually called a pouch, and you're gonna poop directly from your stomach into that. And when Mike got that news, he was just a kid – not even a teenager yet. So today, Mike's gonna tell us what that was like, and how he handled it, and what it's like today, as an adult with an ostomy. I asked Mike all the questions that normally you'd never be comfortable asking someone in this situation. This conversation with Mike is so real. That's what we do here – real life. You'll hear it all, because Mike is open to talking about everything. And you know what else he is? He's happy and he loves life. Because he wants people to know – if you get the diagnosis he got, it's not the end of the world. If you'd like to contact Mike, his email is mikegmoffat@yahoo.ca Full show notes and pictures for this episode are here: https://WhatWasThatLike.com/175 Resources: The r/ostomy subreddit – 8000 members - https://www.reddit.com/r/ostomy/ Meet an OstoMate – large ostomy community - https://www.meetanostomate.org/ Facebook groups: The Real Ostomy Support Group – 23k members - https://www.facebook.com/groups/1160120857334266 Stoma and Ostomy Support Group – 14k members – https://www.facebook.com/groups/1442544766001622 Colostomy and Stoma Support Group – 13k members – https://www.facebook.com/groups/607387186088212 Graphics for this episode by Bob Bretz. Transcription was done by James Lai. Want to discuss this episode and other things with thousands of other WWTL listeners? Join our podcast Facebook group at WhatWasThatLike.com/facebook (many of the podcast guests are there as well) Get every episode ad-free, AND get all the Raw Audio exclusive episodes to binge, by joining the other listeners at What Was That Like PLUS. Try What Was That Like PLUS free: iPhone: at the top of the What Was That Like podcast feed, click on “Try free” Android: on your phone, go to WhatWasThatLike.com/PLUS and click to try it free on any app Sponsor deals: Go to Seed.com/what and use code 25WHAT to get 25% off your first month. Go to storyworth.com/what to save $10 on your first purchase! Get 15% off OneSkin with the code WHATWAS at https://www.oneskin.co/ #oneskinpod Cancel your unwanted subscriptions by going to RocketMoney.com/whatwas. This episode is sponsored by BetterHelp. Give online therapy a try at BetterHelp.com/whatwas and get on your way to being your best self. Go to cookunity.com/What or enter code What before checkout for 50% off your first week. Learn more about your ad choices. Visit megaphone.fm/adchoices

In this episode, host LeeAnne Hayden interviews Raina about her journey with an ostomy and her book 'Bare'. Raina shares her experiences with ulcerative colitis, her decision to get an ileostomy, and her subsequent journey with a J-pouch. She discusses the role of social media in her life and how it has helped her connect with others. Raina also talks about the challenges of dating with an ostomy and the importance of being open and honest about her condition. In this part of the conversation, LeeAnne Hayden discusses her experiences with relationships after getting an ileostomy. She shares how her first relationship after the surgery helped her feel loved and accepted with her bag. She also talks about the challenges of dating and having to disclose her condition to potential partners. LeeAnne emphasizes the importance of self-love and acceptance in navigating relationships with an ostomy. She also discusses her transition from being a wellness coach to a life coach and the power of journaling in her healing journey. Takeaways Raina's journey with ulcerative colitis led her to get an ileostomy and later a J-pouch. Social media has played a significant role in Raina's life, allowing her to connect with others and share her experiences. Dating with an ostomy can be challenging, but being open and honest about it is important. Raina's book 'Bare' is a candid and honest account of her journey with an ostomy. Having a supportive partner can help in feeling loved and accepted with an ostomy. Self-love and acceptance are crucial in navigating relationships with an ostomy. Disclosing one's condition to potential partners can be nerve-wracking, but it is important for open communication. Transitioning from a wellness coach to a life coach allowed LeeAnne to focus on deeper aspects of personal growth and mindset. Journaling can be a powerful tool for self-reflection, healing, and manifestation. "I think my soul knew I needed that community and needed to have that as this like, you know, just this voice to like keep going, even when I didn't want to sometimes."   LeeAnne emphasizes that listeners should read this book, which you can find HERE  Connect with Raina on Instagram  Connect with LeeAnne on Instagram   

Jill Nicolini Interviews Kathy Froiland Deck Consultant for Ostomy Nursing Care -- kgfroiland@gmail.comListen to us live on mytuner-radio, onlineradiobox, fmradiofree.com and streema.com (the simpleradio app) https://onlineradiobox.com/search?cs=us.pbnnetwork1&q=podcast%20business%20news%20network&c=us https://mytuner-radio.com/search/?q=business+news+network https://www.fmradiofree.com/search?q=professional+podcast+network https://streema.com/radios/search/?q=podcast+business+news+network

Jill Nicolini Interviews Kathy Froiland Deck Consultant for Ostomy Nursing Care -- kgfroiland@gmail.comListen to us live on mytuner-radio, onlineradiobox, fmradiofree.com and streema.com (the simpleradio app) https://onlineradiobox.com/search?cs=us.pbnnetwork1&q=podcast%20business%20news%20network&c=us https://mytuner-radio.com/search/?q=business+news+network https://www.fmradiofree.com/search?q=professional+podcast+network https://streema.com/radios/search/?q=podcast+business+news+network

Jill Nicolini Interviews Kathy Froiland Deck Consultant for Ostomy Nursing Care -- kgfroiland@gmail.comListen to us live on mytuner-radio, onlineradiobox, fmradiofree.com and streema.com (the simpleradio app) https://onlineradiobox.com/search?cs=us.pbnnetwork1&q=podcast%20business%20news%20network&c=us https://mytuner-radio.com/search/?q=business+news+network https://www.fmradiofree.com/search?q=professional+podcast+network https://streema.com/radios/search/?q=podcast+business+news+network