Podcasts about ostomy

About the Speakers:Dr. Thureiyya K. Rodriguez, DHA, MSN, CWOCN, has over two decades of experience in healthcare and specializes in wound, ostomy, and continence nursing. Dr. Rodriguez's experience spans beyond inpatient and outpatient nursing. She has an extensive range of knowledge and expertise in staffing methodology and leadership nursing. Dr. Rodriguez's experience in nursing practice and healthcare administration, combined with her tenure in both federal and private healthcare sectors, equips her to offer comprehensive and tailored solutions. Dr. Rodriguez has peer-reviewed publications in Nursing Made Incredibly Easy and is an active peer reviewer for Wolters-Kluwer: Advances in Skin and Wound Care. She is actively involved in the Northeast Region WOCN (NER WOCN) and National Society of Leadership and Success (NSLS). She is the owner of Thureiyya Rodriguez RN, PLLC and North-Browne Consulting Services.Katie Cesario, MA, RN, CWOCN, became a nurse in 2005 after obtaining her BSN from Pace University. She started her career at Visiting Nurse Service of New York as a public health nurse intern. In 2009, she received her Master's Degree in Nursing Education from Pace University and soon after took a position as Orientation Nurse Instructor at VNSNY. In 2013, she studied at the Cleveland Clinic to become a Wound, Ostomy, Continence Nurse. In 2015, she took a WOC nurse position at New York Presbyterian, Columbia University Medical Center. In September 2018, she joined the WOC nurse team at NYP, Brooklyn Methodist Hospital. She held the Secretary position for the Metro NY Affiliate of the WOCN Society from January 2021-December 2022. Since 2019, she has served on the skin and wound care advisory board for Coloplast. Presently, she is embarking on a new path in her career by starting her own private nursing business for wound and ostomy patients and their caregivers, Katherine Cesario RN, PLLC. In this new role, she is most excited to combine her background in home care and education with her dedication to help people living with wounds and ostomies.Editing and post-production work for this episode was provided by The Podcast Consultant.

In this episode of Talking Smack 415,  Jamie the Great and I chat with Ellyn Mantell—mother, grandmother, devoted wife for over 50 years, ostomate, advocate, and motivational speaker. Ellyn shares the inspiring story behind her memoir, “The Best We Could,” which is about her journey healing from intergenerational trauma after surviving childhood abuse, raising her sisters, finding love and more. Tune in for a powerful conversation about resilience, self worth, and the legacy of hope Ellyn is building for future generations. Invite Ellyn to your book club and connect with her on Instagram and Facebook.Connect with Ellyn: Instagram: @EllynMantellWrites Facebook: EllynMatnellwrites Email: Ellynmantell@aol.comShare this episode with your friends and family who love to laugh. Subscribe to Talking Smack 415 and leave us a rating and review so more peeps can find us for laughter and friendship to feed your soul!

Host: Peter Buch, MD, FACG, AGAF, FACP Guest: Stefan Holubar, MD, MS When are ostomies necessary in patients with inflammatory bowel disease? Join Dr. Peter Buch and Dr. Stefan Holubar, Director of Research at the IBD Surgery Section at the Cleveland Clinic, as they explore key surgical considerations for both ulcerative colitis and Crohn's disease, including when to consider temporary versus permanent ileostomies, how to manage complications like anastomotic leaks, and what factors influence the decision to delay or avoid ileal pouch creation.

For more information on the United Ostomy Association as highlighted on Alex Garrett's One Leg Up, visit  https://www.ostomy.org/

For more information on the United Ostomy Association as highlighted on Alex Garrett's One Leg Up, visit  https://www.ostomy.org/

In this powerful episode of the GOSH Podcast

In this episode of The Beautiful Bag podcast, host LeeAnne speaks with Nina Hayes, a nutritionist and yoga instructor who shares her journey with ostomy and how it has transformed her life. They discuss the importance of yoga and meditation in healing, the challenges of nutrition for those with ostomies, and practical tips for traveling with an ostomy. Nina emphasizes the significance of intuitive eating and how it empowers individuals to listen to their bodies. The conversation concludes with Nina's insights on vulnerability as a strength and resources for those seeking support.takeawaysNina's journey with ostomy began in 2002 after her colon was removed.Yoga has been a crucial practice for Nina, helping her manage pain and improve posture.Intuitive eating allows individuals to trust their bodies and make informed food choices.Traveling with an ostomy requires careful planning and packing extra supplies.Nina emphasizes the importance of community and support for those with ostomies.Practicing yoga can help alleviate adhesions and prevent further surgeries.Nutrition for ostomy patients can include pureed vegetables and juices.Nina offers a 12-week transformational program for women with ostomies.The journey with an ostomy can lead to personal growth and empowerment.Vulnerability is a strength that can foster connection and resilience.

Lisa Orowson has been a certified wound, ostomy, and continence (WOC) nurse since 2003. With a strong background in acute care, she has spent most of her career working as a CWOCN, caring for patients with ostomies and providing ongoing education to both nursing staff and students. About 13 years ago, what began as a classroom lecture for local nursing students transformed into a hands-on ostomy care lab—an interactive experience that continues today.Lisa currently serves as a nurse navigator in the Limb Preservation Program, working across both acute and ambulatory care settings. She remains passionate about education and continues to lead both ostomy and basic wound care labs to help shape the next generation of nurses.Contact Lisa with questions: Lisa.Orowson@hhchealth.org Editing and post-production work for this episode was provided by The Podcast Consultant.

In this episode, LeeAnne Hayden interviews Michelle Valentino, who shares her inspiring journey of living with an ostomy after years of battling chronic illness. Michelle discusses her early health struggles, the challenges of motherhood while managing her condition, and the impact of her surgery during the COVID-19 pandemic. She emphasizes the importance of community support, self-acceptance, and resilience in overcoming the stigma associated with living with an ostomy. Michelle's story is a testament to the strength of the human spirit and the power of connection in navigating life's challenges.TakeawaysMichelle's health struggles began at a young age, leading to a diagnosis of ulcerative colitis.Embarrassment and fear often prevent individuals from seeking help for health issues.Life with chronic illness can be challenging, but it doesn't have to define one's identity.Motherhood brought additional health challenges, but Michelle persevered.Surgery was a turning point, but the COVID-19 pandemic complicated the process.Adjusting to life with an ostomy requires patience and support.Overcoming embarrassing moments is part of the journey to self-acceptance.Finding a supportive community is crucial for mental health and resilience.Life after surgery can lead to newfound freedom and energy.It's important to share experiences to help others feel less alone.

In this episode, Krista shares her inspiring journey of living with Crohn's disease since childhood and her decision to undergo ostomy surgery. She discusses the challenges she faced, including pain and incontinence, and how she advocated for her health. Krista highlights the positive changes in her life post-surgery and offers encouragement to others facing similar health challenges.TakeawaysKrista was diagnosed with Crohn's disease at a young age.She experienced significant challenges before her ostomy surgery.Advocacy for her health was crucial in her journey.The decision for surgery was influenced by her upcoming wedding.Post-surgery, Krista has experienced a better quality of life.She emphasizes the importance of community support on Instagram.Living with an ostomy has brought unexpected positives.Krista encourages others to not let their illness define them.She shares that it's important to express feelings about health.Life can improve significantly after making difficult health decisions.

In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Lauren Beach, a Crohn's disease survivor who shares her journey from diagnosis at a young age to living with an ostomy. Lauren discusses the challenges she faced during her teenage years, including health struggles, body image issues, and the impact on her dating life. She emphasizes the importance of self-acceptance, community support, and maintaining a positive outlook. The conversation also touches on fitness and how Lauren has adapted her workout routine post-surgery, proving that a fulfilling life is possible with an ostomy. The episode concludes with Lauren's inspiring message about resilience and finding joy in life despite challenges.TakeawaysLauren was diagnosed with Crohn's disease at 12 years old.She faced significant health challenges during her teenage years.Living with an ostomy has its ups and downs, but it's manageable.Dating can be challenging, but honesty is key.Fitness is still possible and beneficial with an ostomy.Community support on social media has been inspiring for Lauren.Self-acceptance is crucial for mental health and confidence.Accidents can happen, but they are not the end of the world.Positivity can help navigate life's challenges.Lauren encourages others to find joy and gratitude in life.

Send us a textWhat happens when you decide to throw caution to the wind, decline your PhD acceptance, quit your job, and travel the world for 10 months—all while managing Crohn's disease? Friend of the show and health psychologist Josie McGarva takes us along on her extraordinary global adventure, revealing both the challenges and profound joys of pursuing dreams despite having IBD.From the medication logistics nightmare of switching from the medication she was on for a long time to one that she can more easily travel with, to having her mother smuggle medication internationally hidden inside fluffy socks, Josie's preparation for this journey was an adventure itself. With refreshing candor, she shares her experience navigating living and volunteering abroad while traveling on a tight budget of just $1,000 per month.Josie's travels have taken her from the breathtaking mountains of Patagonia to the vibrant temples of Thailand, with meaningful stops volunteering at hostels, dog rescues, and teaching English in remote villages along the way. Through food poisoning in Thailand, 28-hour bus rides in Argentina, and confronting roosters at dawn in remote villages, Josie demonstrates remarkable resilience while never losing sight of why she embarked on this journey: "I'm finally healthy, which is why I have to go."Beyond the travel tales lies a deeper narrative about identity and chronic illness. Having been diagnosed at 13 and sick throughout her formative years, Josie reflects on how being in remission has allowed her to question how much space IBD should occupy in her future life and career. Her powerful message resonates far beyond the IBD community: limitations are real, but with creativity, determination, and support, dreams remain within reach.Links: Our first episode with JosieOur Research Roundup episode with Josie and Stacey Collins, RDJosie's Instagram accountWorkaway- volunteer while traveling siteThe Workaway opportunity with Dani and the dog rescueFundacion Animal ChileLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

Join us as we welcome Shaylee Raye Hunter, Miss Petite Utah, who shares her journey as an advocate for women's rights and disability visibility. Shaylee opens up about her personal lived experiences with chronic intestinal pseudo-obstruction (CIPO), gastroparesis, and short bowel syndrome. In an open discussion, she shares how she manages her health conditions with medical interventions, such as a feeding tube and TPN, providing a unique glimpse into her life and the lifeline she depends on daily to receive the nutrients essential to life.We learn about the challenges Shaylee faced at school due to the assumptions made by other students about her health, as well as the subsequent difficulties she encountered in dating and the workplace.Shaylee is passionate about advocating for disability visibility through her pageant platform.If you're interested in any topics and advice discussed in this podcast, please follow up with your GP or healthcare practitioner.If you are experiencing any issues discussed in this podcast, please get in touch with your healthcare practitioner.Hosted by Chantal Boyle and Lynn Smith, Hidden Disabilities Sunflower. If you enjoyed this podcast, please rate, review and share it to increase awareness and understanding of non-visible disabilities.Find out more about the Sunflower by visiting the website hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

In this episode of the GOSH Podcast, we continue our rare cancer series with Carly Allen, a passionate advocate and survivor.

In this episode, Kim Fleck shares her personal journey through health challenges leading to her ileostomy. From her background as a special education teacher to her struggles with misdiagnosis and autoimmune issues, Kim's story highlights resilience and the importance of community support. She discusses her experiences with various treatments, the impact of her health on her life, and her exploration of natural remedies and dietary changes. In this conversation, the speakers delve into the misconceptions surrounding vegetarianism, the importance of self-discovery, and the transformative journey of healing through alternative medicine. They share personal stories of resilience, the significance of listening to one's body, and the power of relationships with healers. The discussion emphasizes the need for quiet reflection and the choice to spiral up in life despite challenges.TakeawaysThis is my perspective, not a prescription for others.I had no previous health issues before moving to Connecticut.I got obsessed with P90X to stay fit despite my health issues.Losing all my hair was a significant emotional challenge.Brain lesions affected only 1-2% of the population, and I was one of them.I decided to embrace my appearance and never wore a wig again.I developed a cancer imposter syndrome due to misconceptions about my health.Hospitalization led to my permanent ileostomy, which changed my life.I learned the importance of advocating for my health and choices.Dietary changes became crucial in managing my health issues. There's a lot of processed foods in vegetarian diets.Meeting Dr. Ming Wu was a turning point in my health journey.Self-discovery is crucial for healing.Listening to your body can guide your health choices.Qigong and meditation helped me find peace.Reinventing life after teaching was necessary for my growth.Healing involves building relationships with supportive healers.Vulnerability is a strength, not a weakness.You have a choice to spiral up or down in life.Knowing yourself is key to navigating health challenges.

In this episode, Molly shares her unique journey of living with an ostomy, starting from her childhood struggles with chronic constipation to her eventual ileostomy surgery. She discusses the challenges she faced, the importance of community support, and how her perspective on life has changed since her surgery. Molly emphasizes the significance of mental health and acceptance in navigating life with an ostomy, and she inspires listeners to embrace their journeys and seek support.TakeawaysMolly's journey began with chronic constipation from birth.She faced numerous medical challenges before her ileostomy surgery.The ostomy community is supportive and empowering.Living with an ostomy has improved Molly's quality of life.Mental health is crucial in the journey of acceptance.Finding a support system can help process emotions.Molly's condition is linked to Ehlers-Danlos syndrome.She encourages others to share their stories and connect.Ostomy is not a death sentence, but a life sentence.Authenticity and openness can inspire others.

Resources:Joyful: The Surprising Power of Ordinary Things to Create Extraordinary Happiness by Ingrid Fetell LeeHow To Practice Three Good Things - University of Utah Health Health and happiness go hand in hand - Harvard HealthThe happy secret to better work TEDTalk by Shawn AchorWhat Makes You Grateful? by Anne KubitskyAbout the Guests:Suzanne Lord, BSN, RN, CWOCN, BCMAS, has been a registered nurse for 31 years and Certified Wound, Ostomy and Continence Nurse, for the past 13 years. She also holds a board certification in Medical Affairs. Her background has been predominantly in home care, and it was as a visiting nurse she chose to pursue the unique specialty of wound, ostomy, and continence nursing.she made the leap from caring for mostly an elderly population in the home to leading the skin team at Connecticut Children's medical center—an acute care pediatric hospital. From there, she moved to a global medical affairs role within the ostomy medical device industry and then into an acute care inpatient role as a Wound and Ostomy Resource nurse at Lawrence and Memorial Hospital, New London Connecticut. She is currently working as a Wound Care Clinical Specialist for Solventum.She has been an active member of our New England Chapter of the WOCN® Society and currently sits as Co-Chair of the Communication Committee. In the past, she has served on the leadership, education, and Youth Rally committees.As a side pursuit and counterbalance to the health care arena, Suzanne completed an apprenticeship with a chocolatier and then earned her certificate as a Professional Chocolatier. She now works part-time in a local chocolate shop.In 2014, Suzanne took a Seminar for health professionals titled “The Habits of Happy People”. This launched her into a year's long path of independent learning and course work about positive psychology and the science of wellbeing. It is this professional side study that has brought her here today to speak about finding Joy in your WOC work.Editing and post-production work for this episode was provided by The Podcast Consultant.

Resources mentioned in this episode:E-ordering options that make it faster and easier for HCPs to order and alter patients' suppliesUOAA Resources LibraryAccess to Supplies with Medicare words of Advice from UOAA Advocacy teamThe Critical Need to Provide Ostomy Supplies Specific to Patient Need to ImproveLCD-Ostomy Supplies (L33828)UOAA non-medical switching of ostomy supplies campaignUOAA's Roadmap to establish outpatient ostomy services. About the Guest:Yelena Brusilovsky is the National Vice President of Sales for Edgepark and has been with the organization for 12 years. In her role, she leads three key teams: the urology and ostomy inside sales team, the diabetes sales team focused on endocrinologists and internal medicine providers, and the market access team responsible for managing Edgepark's relationships with contracted insurance payers. With extensive experience in healthcare sales and market access, Yelena is committed to improving patient access to essential medical supplies and fostering stronger collaboration between DMEs and healthcare professionals. Editing and post-production work for this episode was provided by The Podcast Consultant.

Resources mentioned in this episode:E-ordering options that make it faster and easier for HCPs to order and alter patients' suppliesUOAA Resources LibraryAccess to Supplies with Medicare words of Advice from UOAA Advocacy teamThe Critical Need to Provide Ostomy Supplies Specific to Patient Need to ImproveLCD-Ostomy Supplies (L33828)UOAA non-medical switching of ostomy supplies campaignUOAA's Roadmap to establish outpatient ostomy services. About the Guest:Yelena Brusilovsky is the National Vice President of Sales for Edgepark and has been with the organization for 12 years. In her role, she leads three key teams: the urology and ostomy inside sales team, the diabetes sales team focused on endocrinologists and internal medicine providers, and the market access team responsible for managing Edgepark's relationships with contracted insurance payers. With extensive experience in healthcare sales and market access, Yelena is committed to improving patient access to essential medical supplies and fostering stronger collaboration between DMEs and healthcare professionals. Editing and post-production work for this episode was provided by The Podcast Consultant.

In this episode of the Beautiful Bag Podcast, host LeeAnne Interviews Danielle and Joe as they share their personal journeys with ostomy surgeries due to Crohn's disease and ulcerative colitis. They discuss how they met through social media, the birth of their advocacy platform 'Double Bagging It', and the importance of community support. The conversation highlights the transformative impact of ostomy on their lives, the freedom it has brought them, and their mission to raise awareness and share stories within the ostomy community.Takeaways:The importance of community support for those with ostomies.Social media can be a powerful tool for connection.Ostomy can lead to a more fulfilling life.Advocacy is crucial in raising awareness about ostomy.Personal stories can inspire and help others.Living with an ostomy can be liberating.It's okay to share your journey in your own way.Finding your tribe is essential for emotional support.Health journeys are unique and should not be compared.Embracing life after ostomy surgery is possible and rewarding.

Amaka discusses her approach to managing peristomal skin and wound care for ostomy patients.  Amaka Akinade is a board-certified Advance Practice Nurse, Adult Health Clinical Nurse Specialist, and Certified Wound Ostomy Nurse. She graduated from the University of Texas at Arlington with a Bachelor of Science in Nursing, obtained her Master of Nursing as an adult clinical nurse specialist from the University of Washington in Seattle, and then pursued her post-master as a family nurse practitioner at Texas A&M Corpus Christi. She is pursuing her doctorate in nursing and practices as an outpatient wound ostomy nurse practitioner at a large accountable care organization. She serves as a leader and clinical resource for colleagues, and she also utilizes her expertise to promote the care of patients. Visit https://www.coloplastprofessional.us/ for more offerings! 

In this podcast episode, Stephanie Benson shares her inspiring journey of living with Crohn's disease and navigating life with an ostomy. From her initial diagnosis to the challenges of dating and self-acceptance, Stephanie discusses the importance of community support and finding strength in adversity. She offers practical tips for managing health, fashion choices, and maintaining a positive outlook despite the struggles of chronic illness. The conversation emphasizes the significance of open communication and the power of shared experiences in fostering resilience and hope.TakeawaysStephanie was diagnosed with Crohn's disease in high school.Living with an ostomy has transformed Stephanie's life for the better.Community support is crucial for those dealing with chronic illness.Dating with an ostomy requires open communication and honesty.Fashion choices can be adapted to accommodate an ostomy.Managing health involves understanding personal dietary needs.Chronic illness can lead to unexpected blessings and growth.It's important to grieve the loss of the pre-illness self.Maintaining a positive outlook is essential for mental health.Finding a supportive community can make a significant difference.

In this episode of The Beautiful Bag podcast, host Speaker interviews Tom, a rectal cancer survivor who shares his journey from diagnosis to recovery. Tom discusses the initial shock of his diagnosis, the challenges of chemotherapy and surgery, and the adjustments he has made to life with an ostomy. He emphasizes the importance of support from family and community, the dietary changes he has experienced, and the various ostomy products available. Tom's story is one of resilience, hope, and a desire to help others facing similar challenges.TakeawaysTom was healthy until he experienced sudden pain.The importance of follow-up appointments cannot be overstated.Chemotherapy and radiation were part of Tom's treatment plan.Support from family was crucial during Tom's journey.Dietary changes were significant after surgery.Tom found strength in online communities.It's essential to try different ostomy products.There is a stigma around ostomies that needs to be addressed.Tom encourages others to reach out for support.You are not alone in your journey.

In this episode of The Beautiful Bag podcast, host and guest Brianna share an insightful conversation about living with an ostomy, her journey with Ehlers-Danlos syndrome, and the importance of raising awareness about ostomies. Brianna discusses her initial struggles, the adjustments she made after surgery, and how her perspective on life with a stoma has evolved over the years. She emphasizes that having an ostomy is not as daunting as many believe and shares her experiences to help others understand and accept their own journeys.TakeawaysBrianna has had her permanent ileostomy for over three years.She was diagnosed with Ehlers-Danlos syndrome, affecting her GI tract.Adjusting to life with an ostomy took time and patience.Brianna named her stoma Stella, which has become a part of her identity.She emphasizes the importance of raising ostomy awareness.Many people fear ostomies due to misconceptions about smell and lifestyle.Brianna's recovery journey included multiple surgeries and challenges.She has learned to navigate ostomy products and find what works best for her.Brianna encourages others to share their stories and experiences.Living with an ostomy can improve quality of life despite initial fears.

A single diagnosis turned Shannon's world upside down, and it all began with a shocking phone call about suspicious spots on her liver. What followed was a whirlwind of emotions and a decade-long journey through misdiagnosis, severe symptoms, and the pursuit of education in Jamaica, all while grappling with the fear of a potential liver metastasis. Amidst this personal health saga, she found solace in the unwavering support of loved ones and the invaluable lesson of listening to her own body. These trials and tribulations underscore the critical importance of self-care and the power of advocacy when faced with medical adversities.Life with an ostomy bag and cancer was a struggle Shannon never anticipated, yet humor became a saving grace. Her candid reflections on living with an ostomy, coupled with an amusing anecdote from a campaign rally for President Obama, reveal the unexpected ways laughter can be found in life's toughest moments. This chapter of Shannon's journey, marked by initial shock and eventual acceptance, highlights the resilience required to maintain quality of life amidst medical challenges. Moreover, it illustrates the transformative power of relationships, particularly the deepened bond with her mother as they weathered these storms together.Honoring the legacy of Lee Silverstein, Blue Couch Chat was born out of a desire to create a platform for authentic storytelling within the African descent community. Inspired by Lee's encouragement and supported by the Podfest community, this venture aims to raise awareness and inspire others facing similar health battles. With gratitude for the connections formed and the support received, Blue Couch Chat is dedicated to continuing meaningful conversations that embrace resilience, celebrate life's gifted time, and recognize the strength gained from overcoming adversity. Join me for a heartfelt exploration of the human spirit and the relentless pursuit of dreams.Talk yo sh!t… Sh!t-Talker!!Support the showFOLLOW US ON;Instagram: https://www.instagram.com/talkshitwithpTwitter: https://twitter.com/TalkshitwithpFacebook: https://www.facebook.com/TalkwhitwIthpTiktok: https://www.tiktok.com/@TalkshitwithpShop IG: https://www.instagram.com/Talkshitwithp.shopLEAVE US A REVIEW ON APPLE PODCAST: https://podcasts.apple.com/us/podcast/talk-shit-with-p/id1509470001AND SUBSCRIBE TO OUR YOUTUBE CHANNEL:https://www.youtube.com/@TalkshitwithpSupport The Show (whatever you can)Cashapp: https://cash.app/$TSWP20Patreon: https://www.patreon.com/TswpBuymecoffee: https://www.buymeacoffee.com/talkshitwithpAmazon Wishlist: https://www.amazon.com/hz/wishlist/ls/2M9Q4HNKRO2WA?ref_=wl_shareTo Learn more on my story;https://flow.page/tal...

In this episode of the Beautiful Bag podcast, LeeAnne Hayden shares her personal journey through marriage, love, and the challenges she faced, including a cancer diagnosis and the impact it had on her relationship. She emphasizes the importance of communication, commitment, and resilience in navigating the ups and downs of marriage. LeeAnne reflects on her experiences, the lessons learned, and the significance of family and support in overcoming life's obstacles. Takeaways: February is often seen as the month of love, but love should be celebrated all year round. Marriage is a commitment that requires work and dedication. Facing challenges together can strengthen a relationship. Cancer can be a life-altering experience, but there is hope and support available. Adjusting to significant life changes, like a colostomy, requires open communication. Financial struggles can put a strain on relationships, but they can also lead to growth. Rebuilding a relationship often involves starting fresh and focusing on each other. Communication is essential for a healthy marriage. It's important to give each other space to grow and change. True love is about supporting each other through thick and thin. Chapters 00:00 Introduction and Overview of the Episode 10:14 Navigating Challenges in Marriage 17:05 Adjusting to Life with a Colostomy 25:01 Rebuilding the Relationship in New York

In this episode of The Beautiful Bag podcast, Yvonne Holly, known as Crohn's Mummy on Instagram, shares her profound journey with Crohn's disease, which began at the age of 11. She discusses her diagnosis, the challenges of living with a colostomy bag, and her experiences with pregnancy while managing her health. Yvonne's story highlights the resilience required to navigate chronic illness and motherhood, offering insights into the emotional and physical hurdles she faced along the way. In this conversation, Yvonne shares her profound journey through motherhood, health challenges, and the experience of living with an ostomy. She reflects on the emotional turmoil of her daughter's health struggles, her own battles with sepsis and surgeries, and how these experiences shaped her resilience. Yvonne emphasizes the importance of finding positivity in adversity and encourages open discussions about health issues to foster support and understanding. Takeaways: Yvonne was diagnosed with Crohn's disease at age 11. She underwent a colostomy in 2010, which became permanent in 2016. Living with a perianal abscess for nine years was a significant challenge. The colostomy bag provided relief and improved her quality of life. Pregnancy had a positive effect on her Crohn's symptoms. Yvonne had to plan her pregnancies around her health condition. She experienced complications during her second pregnancy. Her daughter Felicity faced health challenges at birth. Yvonne has undergone over 50 surgeries throughout her life. The support from the NHS was crucial during her pregnancies. It's not my fault, but I felt responsible. She needs to fight for her life before she learns to feed. My daughter is the strongest little girl I know. I was rushed in with sepsis again, it was scary. I just remember signing and saying, take it all away. I love my colostomy bag just as much as my children. My ostomy has given me a life back. You can always find the positivity in anything. Never suffer in silence, always talk about your illness. Talking about your illness can do wonderful things to your brain. Connect on Instagram: LeeAnne https://www.instagram.com/leeannehayden/ Yvonne https://www.instagram.com/crohns.mummy/

Summary In this episode of The Beautiful Bag podcast, host LeeAnne Hayden speaks with Kaya, who shares her journey with ulcerative colitis and living with an ostomy. Kaya discusses her diagnosis at a young age, the challenges of managing her health, and the emotional toll it took on her. She also shares her experiences with pregnancy, the transition to a J-pouch, and the support she received from her family and husband. Throughout the conversation, Kaya emphasizes the importance of self-advocacy, embracing one's situation, and helping others who face similar challenges. Takeaways: Kaya was diagnosed with ulcerative colitis at 14. She experienced significant weight loss and health challenges. Navigating life with an ostomy was initially overwhelming. Surgery was a turning point in her health journey. Transitioning to a J-pouch involved dietary adjustments. Pregnancy brought new health complications for Kaya. Support from family and friends was crucial during tough times. Kaya's husband played a significant role in her recovery. She learned to embrace her ostomy and share her story. Kaya encourages others to ask questions and seek support.

Susan Allison-Dean is a Board Certified Advanced Holistic Nurse and Certified Clinical Aromatherapy professional with over thirty years of experience in nursing.  During the first half of her career, she practiced mainly as a Certified Wound, Ostomy, & Continence Clinical Nurse Specialist, holding a joint position with Yale-New Haven Hospital & Yale University.In 1999, she experienced the profound loss of two significant family members just two days apart.  This loss and the profound healing experiences that she experienced in nature led her to leave the disease-care model and shift her practice to health promotion, specifically nature and health.Sue is the Founder and CEO of TheNatureNurse.com, which focuses on connecting women with nature so they may live more joyous, vibrant, awe-inspiring lives in harmony with Mother Nature.  She is the co-chair of the Global Nature Nurse Network, connecting nurses who specifically partner with the natural world to enhance holistic health and prevent disease.Sue also enjoys writing, traveling with her husband, and dabbling in other creative arts.  She lives in New York and North Carolina in the US.How you became a Nature Nurse 4:12 deep level grief, profound loneliness, pain 6:02  mother nature 24/7 availability - transformative - helped me to live a joyous and productive life. Bring light into people's lives. 9:03 Florence Nightingale "nature itself is healing"14: Nurse Pioneers in Global Nature Nurse Network Verla cites podcast episode with Professor Andy Jones systematic review and meta analysis of green space exposure and health outcomes (103 observational and 40 interventional studies investigating 100 outcomes: green space exposure decreased heart rate and blood pressure, HDL cholesterol, increased HRV, decreased preterm birth, diabetes, and all cause mortality in particular cardiovascular mortality.  For transcript see verlafortier@substack.com  Nature Nurse on Instagram https://www.linkedin.com/in/susan-allison-dean-rn-ms-ahn-bc-ccap/  For peer reviewed research on how your time spent in green space can change your mindset, balance your nervous system and your heart rate please go to verlafortier@substack.com and check out my books Take Back Your Outside Mindset: Live Longer, Stress Less, and Control Your Chronic Illness and Optimize Your Heart Rate: Balance Your Mind and Body With Green Space

In this episode of the Beautiful Bag podcast, LeeAnne Hayden discusses the concept of 'chic confidence,' which combines inner self-esteem with outward style. She shares personal experiences and practical tips on how to boost confidence through fashion, self-care, and community support. LeeAnne emphasizes the importance of feeling good inside and out, and how personal style can reflect one's unique personality. The conversation also touches on the significance of gratitude, self-talk, and the role of supportive communities in building confidence, especially for those living with an ostomy. Takeaways: Chic confidence is about feeling good inside and out. Fashion can significantly boost your confidence. It's important to wear clothes that reflect your personality. Building confidence takes time and small steps. Self-talk plays a crucial role in your confidence levels. Practicing gratitude can enhance your overall well-being. Surround yourself with supportive people to build confidence. Don't compare yourself to others; focus on your journey. Create a 'power outfit' that makes you feel confident. Community support is vital for personal growth and confidence. Chapters 00:00 Introduction to Chic Confidence 05:39 Fashion as a Confidence Booster 15:15 Inner Confidence and Self-Talk 23:40 The Importance of Community and Support 30:52 Legal statement.mp3

Join Michael and Mom as they talk to Amy Hart. Amy is a colorectal cancer survivor; she lives with Lynch Syndrome and has permanent Ostomy. She is beautiful, sexy, smart, and funny! She is a mama, wife, has a full-time career and she advocates not only for colorectal cancer, but for ALL women AND men going through difficult times with health and body acceptance. The three laugh, get serious, talk about needed changes (especially for AYA's, adolescents and young adults going through cancer), listening to our bodies, advocating and standing up to doctors, and simply waking up and moving forward. Follow Amy and her inspiring journey on Instagram: https://www.instagram.com/barefootostomate/?hl=en

Episode Resources:The Phoenix magazine, the official publication of United Ostomy Associations of America (UOAA)OstomyConnection.comAbout the Speaker:JoAnn is a CWOCN® since 1989 and FNP since 1999. She currently is President, Co-Director, and faculty for WEB WOC® Programs in Minneapolis, MN since 2002, educating nurses who are interested in becoming wound, ostomy, and continence care nurse specialists. In addition, JoAnn practices parttime at MercyOne North Iowa Continence clinic and Wound/Vascular Center in Mason City, IA. She is co-author of a chapter in the 2nd Edition of WOCN Core Curriculum: Wound Management, 2022, which discusses wound bed preparation using the expanded TIME framework and other general principles of topical therapy.

Episode Resources:World Council of Enterostomal Therapists (WCET®) International Ostomy GuidelinesWCET® JournalLeininger's Culture Care Diversity and Universality: A Worldwide Nursing TheoryTranscultural Nursing Society (TCNS)Journal of Transcultural NursingNational Association of Hispanic Nurses (NAHN)National Black Nurses Association (NBNA)Journal of Wound, Ostomy, and Continence Nursing (JWOCN) About the Speaker:Cecilia Zamarripa, PhD, RN, CWON, is a Wound, Ostomy, and Continence (WOC) Nurse for 38 years and currently manages the WOC Nursing Department at the University of Pittsburgh Medical Center. Prior to that, Cece practiced WOC Nursing at Baylor University Medical Center Dallas, Texas; Rush University Medical Center; and at the UPMC since 1997.Cece has been involved as a clinical preceptor for nurses in a WOCNEP and in Nursing Education roles. In 2010, Cece had the privilege of being selected as the Joint Commission Resources Patient Safety Scholar in Residence. Her teaching experience includes RN to BSN program at Slippery Rock University, Community Health Nursing, clinical instructor at Duquesne University, Preceptor for nurses completing their WOC Nursing Education Program, and Course Co-Coordinator for the Wound Treatment Associate (WTA®) and Ostomy Care Associate (OCA®) programs.Cece is involved in the Wound, Ostomy, and Continence Nurses Society™ (WOCN®) and was a past volunteer for WOCNext Conference Planning Committee. Cece is involved in her professional specialty organization and was a contributing member of the WOCN Peristomal Consensus Panel in November 2020. She is a member of Sigma Theta Tau, Western PA Area Chapter for National Association of Hispanic Nurses, WOCN Society™, the WCET and a current Director for the WOCN Board.

Send us a textWhat happens when a self-proclaimed couch potato transforms into a formidable Ironman triathlete? Caroline "Ironostomy" Bramwell joins us to share her extraordinary journey of resilience and empowerment. Diagnosed with ulcerative colitis during her second pregnancy, Caroline faced a life-altering ileostomy surgery. Yet, she turned this challenge into an opportunity for change, embracing triathlons and becoming a passionate advocate for ostomy care worldwide. Her story is a testament to the idea that "the obstacle is the way," as she navigates her dual existence as a PR professional by day and a triathlete by night.Exploration of identity takes center stage as Caroline recounts her transformative path from a bullied child to a confident adult. Set against the backdrop of serene woodland clearings, these personal narratives highlight how early experiences shape us and the power of reinvention. We dive into the mental and physical preparations necessary for surgical interventions that can lead to newfound freedom, as well as the joy of surpassing previous limitations and embracing a more active lifestyle.The episode takes a global turn as Caroline discusses her advocacy work with the European and International Ostomy Associations. Her dedication to improving ostomy care standards echoes her personal motto, "Anything is possible." Listeners are invited to reflect on their own life stories through Chris's unique "5, 4, 3, 2, 1" exercise, a structured storytelling format that encourages introspection and ultimately, transformation. Join us for a fascinating exploration of personal triumph, the strength found in shared experiences, and the enduring power of storytelling.Tune in next week for more stories of 'Distinction & Genius' from The Good Listening To Show 'Clearing'. If you would like to be my Guest too then you can find out HOW via the different 'series strands' at 'The Good Listening To Show' website. Show Website: https://www.thegoodlisteningtoshow.com You can email me about the Show: chris@secondcurve.uk Twitter thatchrisgrimes LinkedIn https://www.linkedin.com/in/chris-grimes-actor-broadcaster-facilitator-coach/ FaceBook Group: https://www.facebook.com/groups/842056403204860 Don't forget to SUBSCRIBE & REVIEW wherever you get your Podcasts :) Thanks for listening!

Episode Resources:WOCN Society Pediatrics Community and Ostomy Community for members onlyJWOCN® evidence-based articles on pediatric carePediatric Ostomy Support Group (POGS) by the United Ostomy Associations of America (UOAA)Youth Rally, Pull-thru Network, Crohn's & Colitis Foundation, Girls with Guts, Shadow Buddies Foundation About the Speaker:Michelle Rice, MSN, RN, CWOCN, has been a WOC nurse since 1999 and currently practices at Duke University Hospital. Michelle's primary population is pediatrics and focuses on wound care and ostomy care.

Amaka shares her expertise on the use of convexity with ostomy patients along their pre-op and post-op journey.  Amaka Akinade is a board-certified Advance Practice Nurse, Adult Health Clinical Nurse Specialist, and Certified Wound Ostomy Nurse. She graduated from the University of Texas at Arlington with a Bachelor of Science in Nursing, obtained her Master of Nursing as an adult clinical nurse specialist from the University of Washington in Seattle, and then pursued her post-master as a family nurse practitioner at Texas A&M Corpus Christi. She is pursuing her doctorate in nursing and practices as an outpatient wound ostomy nurse practitioner at a large accountable care organization. She serves as a leader and clinical resource for colleagues, and she also utilizes her expertise to promote the care of patients. Visit https://www.coloplastprofessional.us/ for more offerings! 

Send us a textKaren Zulkowski is the GOAT of wound care nursing. Her professional journey began with earning a BSN in 1972 and culminated with a Doctorate in Nursing Science. Throughout her career, she has held various roles, including business owner, associate nursing professor, and wound course instructor. Karen has also served on the National Pressure Injury Advisory Board and the World Council of Enterostomal Therapists. Her extensive research and publications in peer-reviewed articles, both nationally and internationally, reflect her commitment to advancing wound care. Karen's primary focus is always on the patient, and she aims to improve patient care by bridging the gap between wound care research and clinical practice. In our discussion, she highlighted the knowledge gaps in wound care, the evolving landscape, and the exciting advancements in technology.  Karen says wound care nursing is not for everyone, it requires a special dedication, and I would encourage those interested in this field to listen to her insights.In the five-minute snippet: Aloha! For Karen's bio, please visit my website (link below).Wound Care certifications:National Alliance of Wound Care and OstomyWound, Ostomy and Continence Nursing Certification BoardAmerican Board of Wound ManagementWound Care Professional Organizations:Association for the Advancement of Wound Care (AAWC)American Board of Wound Management (ABWM)Wound Healing SocietyNational Pressure Injury Advisory PanelWorld Council of Enterostomal TherapistsContact The Conversing Nurse podcastInstagram: https://www.instagram.com/theconversingnursepodcast/Website: https://theconversingnursepodcast.comYour review is so important to this Indie podcaster! You can leave one here! https://theconversingnursepodcast.com/leave-me-a-reviewWould you like to be a guest on my podcast? Pitch me! https://theconversingnursepodcast.com/intake-formCheck out my guests' book recommendations! https://bookshop.org/shop/theconversingnursepodcast Email: theconversingnursepodcast@gmail.comThank you and I'll talk with you soon!

Episode Resources:Ostomy Care Management (OCM) ProgramThe Wound, Ostomy, and Continence Nurses Society™ (WOCN®) SocietyThe American Society of Colon and Rectal Surgeons (ASCRS) About the Guests:Jan Colwell, APRN, CWOCN, FAAN, is an advanced practice nurse certified in wound ostomy and continence care. She most recently practiced at the University of Chicago Medicine providing care to patients with ostomies. She is a past president of the WOCN Society and Friends of Ostomates Worldwide USA, and has contributed to ostomy patient care by editing several ostomy care text books, participated in ostomy research projects, authored multiple ostomy based articles and is the co-section editor of the ostomy section of the Journal of Wound, Ostomy, and Continence Nursing (JWOCN®).Bethany Malone, MD, is a board-certified colon and rectal surgeon based in Fort Worth, TX. She practices broad-based colorectal surgery including screening colonoscopies and treats benign anorectal conditions, hemorrhoids, fecal incontinence, colon cancer, rectal cancer, and inflammatory bowel disease. Dr. Malone is an active member of the American Board of Colon and Rectal Surgeons, the American College of Surgeons, and the International Society of University Colon and Rectal Surgeons.Jenny Speranza, MD, attended the Rochester Institute of Technology, graduating in 1994 with her B.S. degree, Magna Cum Laude. She earned her M.D. from the School of Medicine, State University of New York at Buffalo (1999). Dr Speranza finished her surgical residency in 2004 from the State University of New York at Buffalo Consortium. In 2005, she completed a Colon and Rectal fellowship at the University of Miami. Prior to arriving at the University of Rochester, Dr. Speranza was on staff at the Cleveland Clinic Florida where she was an attending surgeon in the department of Colon and Rectal Surgery. Dr. Speranza is a member of American College of Surgeons, the American Society of Colon and Rectal Surgeons, and serves on two committees of the Society of American Gastrointestinal and Endoscopic surgeons.

Send us a textThis week Alicia was joined by guest host and former guest, Hannah Cramer and they interviewed Alicia Aiello! Alicia A. is the President of Girls With Guts which is a nonprofit organization supporting and empowering women living with IBD and with ostomies. We talked to her all about her IBD journey and how that lead her to Girls With Guts. We discussed how her background in videography and visual arts helped her to bring some awareness to their work and how she eventually transitioned to become their President. We discussed some of their work including their "Butt Baskets" and their Lover Your Guts program and we spent a lot of time talking about their retreats. They host 2 retreats per year including a New Attendee or "Newbie" Retreat as well as an annual retreat that brings in come of those first-timers as well as alumnae. We really enjoyed our conversation with Alicia and are so impressed with the work of GWG and Hannah was an amazing co-host! Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthcare team on any changes to your disease, diet, or treatment. We want you to stay safe and healthy! ;)Links: Girls With Guts websiteInfo about the GWG retreatsThe presentation that Alicia gave to her classAlicia's personal website with more videosHannah's episodeHannah and Robin's episode about EMDRLet's get social!!Follow us on Instagram!Follow us on Facebook!Follow us on Twitter!

Episode Resources:For resources mentioned in this episode, visit the links below.WOCNext® 2024 presentation, “Don't Just ‘Go with the Flow'! Practice Update for the Management of High Output Fecal Ostomies” - available for on-demand viewing for registered attendeeWOCN members-only communities for online networking threads and professional discussions About the Speaker:Tammy Lichtman, BSN, RN, CWON, is a seasoned CWON with 15 years of experience, including roles as Regional Wound and Ostomy Director for home health in Florida and owner of her own consulting business. Her background includes surgical nursing at the Cleveland Clinic and leadership positions at AdventHealth, where she managed the wound/ostomy program across multiple campuses.

Episode Resources:For resources mention in this article, visit the links below:Maura's Abstract & ePoster: Skin Care Champion Program at a South Jersey Teaching Hospital's Progressive Care UnitAlicia's Abstract & ePoster: An Educational Intervention Differentiating Between Pressure Injuries and End-of-Life WoundsWOCNext 2024 PicturesWOCNext website About the Guests:Alicia Perez Varela has been a registered nurse since 2017 and earned her wound care certification in 2021. She attended WOCNext® for the first time in 2024. Alicia currently works at an outpatient advanced wound care and hyperbaric clinic and is also a member of the inpatient wound care team.Maura Callahan has been a bedside nurse for 8 years, with experience in Long Term Care, Home Care, and Acute Care in the Progressive Care Unit as a Charge Nurse and Training Preceptor. She is passionate about Wound, Ostomy, and Continence Care and completed the Rutgers University-Camden Wound Ostomy Continence Nursing Education Program. This training has enabled her to support various units with care and education for patients, families, and caregivers. Maura is actively involved in her facility's Skin, Wound Assessment Team, leads the Skin Care Champion Program, and recently joined the Hospital System's Pressure Injury Reduction Council.

Episode Resources:For resources mention in this article, visit the links belowAbstract: “Going With the Flow” to Develop a Robust External Female Catheter Implementation ProcessePoster: Going With the Flow” to Develop a Robust External Female Catheter Implementation ProcessArticle: Implementation of an external female urinary catheter strategy on prevention of skin breakdown in acute care: A quality improvement studyWound Treatment Associate (WTA) ProgramOstomy Care Associate (OCA) ProgramWOC Nursing Education Programs accredited by the WOCN Society About the Speakers:Cecilia Zamarripa, PhD, RN, CWON, is a Wound, Ostomy and Continence (WOC) Nurse for 38 years and currently manages the WOC Nursing Department at the University of Pittsburgh Medical Center. Prior to that, Cece practiced WOC Nursing at Baylor University Medical Center Dallas, Texas; Rush University Medical Center; and at the UPMC since 1997.Cece has been involved as a clinical preceptor for nurses in a WOCNEP and in Nursing Education roles. In 2010, Cece had the privilege of being selected as the Joint Commission Resources Patient Safety Scholar in Residence. Her teaching experience includes RN to BSN program at Slippery Rock University, Community Health Nursing, clinical instructor at Duquesne University, Preceptor for nurses completing their WOC Nursing Education Program, and Course Co-Coordinator for the Wound Treatment Associate (WTA®) and Ostomy Care Associate (OCA®) programs.Cece is involved in the Wound, Ostomy, and Continence Nurses Society™ (WOCN®) and was a past volunteer for WOCNext Conference Planning Committee. Cece is involved in her professional specialty organization and was a contributing member of the WOCN Peristomal Consensus Panel in November 2020. She is a member of Sigma Theta Tau, Western PA Area Chapter for National Association of Hispanic Nurses, WOCN Society™, the WCET and a current Director for the WOCN Board.Alexandra Craig, BSN, RN, WTA-C is a clinical research coordinator (CRC) for the UPMC Presbyterian WOC Nursing Department. During Alex's time in the department, she has been instrumental in to help develop the projects and prepared documents for research study protocols. Her research experience includes a Support Surfaces RCT, Ostomy Barrier leakage retrospective study and numerous wound care quality projects. She is passionate about learning; research and the nursing science provides the evidence to improve patient care outcomes. She is currently enrolled in her MSN program and plans to attend a WOC Nursing Education Program (WOCNEP) soon after.

Episode Resources:For resources mentioned in this episode, visit the links below:Local Coverage Determination (LCD) for Ostomy Supplies document L33828 located on cms.govUOAA Support Group Finder About the Speaker:Stephanie Yates MSN, RN, ANP-BC, CWOCN, WOCNF, is a master's prepared Nurse Practitioner and consultant, educated at UNC - Chapel Hill, and Duke University. She received WOC nursing education at Emory University. Stephanie practiced for many years in acute care, home health, long term care and at the Duke Wound Management Clinic and Duke Cancer Center. She is a Past President of the WOCN® Society and she led or participated on three consensus conferences related to MARSI. She co-authored several journal articles on MARSI as well as co-edited the second edition of the WOCN Core Curriculum-Wound Care. She has lectured on wound care topics locally, regionally, and nationally. She was recently inducted as a Fellow in the WOCN Society.

In this episode of SurgOnc Today®, Dr. Patrick Sullivan is joined by Dr. Nicole Lopez and Dr. César Reátegui to discuss diverting ostomy. Current practice guidelines suggest that diverting ostomy is the standard of care in surgical management of rectal cancer after neoadjuvant therapy to minimize the risk of clinically significant leak which can then result in permanent colostomy. However, the risk of anastomotic leak after neoadjuvant chemoradiation ranges from 4-12% suggesting that most patients have unnecessary ostomy and additional surgery. With improvement of surgical techniques, utilization of robotic surgery and recent adoption of more TNT approaches, selective use of diverting ostomy will lead to improvement in QOL and decrease in health care costs with minimal impact on incidence of permanent colostomy.

So you have an ostomy…Learn from experts how to manage & live life to the fullest.

Episode Resources:Connect with Janice on the WOCN Community platform.Post ostomy clinic questions in the ostomy community and/or professional practice community. About the Speakers:Janice Erbe Gorski, DNP, APNP, FNP-BC, CWON-AP, is an ostomy nurse practitioner who is employed at the Medical College of Wisconsin as a lead Ostomy APP. She is responsible for the development of the ostomy program and works in both the inpatient and outpatient clinic settings. In her role, Janice opened a nurse practitioner led ostomy clinic which has dramatically grown to support two dedicated ostomy nurse practitioners.Janice became certified as a wound ostomy nurse in 2008 and received her Doctorate of Nursing Practice in 2020. She is active with the Wound Ostomy Continence Nursing Society at both the Chapter and National levels. She is the current president of the North Central Chapter. Additionally, she serves on the United Ostomy Associations of America (UOAA) Education Committee.

Episode Resources:Journey of WOC Nursing through the DecadesYouth RallyUnited Ostomy Associations of America (UOAA)Crohn's and Colitis FoundationKristin's blog: Gutless Wonder Woman About the Speakers:Paula Erwin-Toth, MSN, RN, CWOCN, CNS, FAAN, has over 30 years of experience in wound, ostomy and continence care. She is a well-known author, lecturer and patient advocate who is dedicated to improving the care of people with wounds, ostomies and incontinence in the US and abroad. Paula completed her basic nursing education in 1978 at the Akron City Hospital's Idabelle Firestone School of Nursing, she received her (WOC)ET education at the Cleveland Clinic's RB Turnbull, Jr. School of Enterostomal Therapy in 1982; her BSN and MSN were awarded in 1986 and 1990, respectively, by the University of Akron in Ohio. Paula served as the Director of WOCN Nursing Education at the Cleveland Clinic in Cleveland, Ohio, from 1990-2012 and served as Director Emerita of that program. In 2012, Paula received the Lifetime Achievement Award from the WOCN Society. In 2013, Paula was inducted as a Fellow of the American Academy of Nursing. Paula is also President and CEO of PETprojects, a firm specializing in wound, ostomy, and continence care, education and advocacy. Recently at WOCNext 2024, Paula received the President's Recognition Award from the WOCN Society.Kristin Knipp, LPN, is a Care Coordinator for the Center for Swallowing & Esophageal Disorders at the Cleveland Clinic. She has been a Youth Rally nurse and counselor for 30+ years. She is a Past President of United Ostomy Associations of America (UOAA). She served as Education and Support Coordinator and Development Coordinator for the Crohn's and Colitis Foundation Northeast Ohio. She also served as a Sales manager for Ostomy Secrets. Kristin serves in various other volunteer support and advocacy roles. She is a nurse, an ostomate, and a patient advocate.

Episode Resources:For resources mentioned in this episode, including organizations where you can donate unused ostomy supplies, visit the links below:Friends of Ostomates Worldwide-USA (FOW)Friends of Ostomates Worldwide (Canada) (FOWC)United Ostomy Associations of America (UOAA) Support Group finderAmerican Cancer SocietyUSC Center for Inflammatory Bowel Disease About the Speaker:Janice Colwell, APRN, CWOCN, FAAN, is an advanced practice nurse certified in wound ostomy and continence care. She most recently practiced at the University of Chicago Medicine providing care to patients with ostomies. She is a past president of the WOCN Society and Friends of Ostomates Worldwide USA, and has contributed to ostomy patient care by editing several ostomy care textbooks, participating in ostomy research projects, authoring multiple ostomy-based articles, and is the co-section editor of the ostomy section of the Journal of Wound, Ostomy, and Continence Nursing (JWOCN).

 Working with teens with ostomies is a unique situation. Kim shares her expertise and some best practices when working with this population. Guest bio: Kim is a Registered Nurse and certified in wound, ostomy and continence. She has been a pediatric nurse for over 20 years. She currently practices at a level one trauma, academic hospital that includes a free-standing children's hospital. Her current practice area is focused on the pediatric wound and ostomy population. Kim has provided over 11 years of camp service at Youth Rally, a summer camp for kids ages 10-17 with bowel and bladder conditions. She has also traveled internationally to assist with mobile clinics and education. Visit  Coloplastprofessional for more offerings! 

How would you handle it if you ended up having a medical condition that suddenly made you different from everyone else, in the most embarrassing way possible? That's what happened to Mike. Today you'll hear about when Mike got the news from his doctor – sorry, you won't be able to poop the normal way any more. From now on, for the rest of your life, you'll use a bag, actually called a pouch, and you're gonna poop directly from your stomach into that. And when Mike got that news, he was just a kid – not even a teenager yet. So today, Mike's gonna tell us what that was like, and how he handled it, and what it's like today, as an adult with an ostomy. I asked Mike all the questions that normally you'd never be comfortable asking someone in this situation. This conversation with Mike is so real. That's what we do here – real life. You'll hear it all, because Mike is open to talking about everything. And you know what else he is? He's happy and he loves life. Because he wants people to know – if you get the diagnosis he got, it's not the end of the world. If you'd like to contact Mike, his email is mikegmoffat@yahoo.ca Full show notes and pictures for this episode are here: https://WhatWasThatLike.com/175 Resources: The r/ostomy subreddit – 8000 members - https://www.reddit.com/r/ostomy/ Meet an OstoMate – large ostomy community - https://www.meetanostomate.org/ Facebook groups: The Real Ostomy Support Group – 23k members - https://www.facebook.com/groups/1160120857334266 Stoma and Ostomy Support Group – 14k members – https://www.facebook.com/groups/1442544766001622 Colostomy and Stoma Support Group – 13k members – https://www.facebook.com/groups/607387186088212 Graphics for this episode by Bob Bretz. Transcription was done by James Lai. Want to discuss this episode and other things with thousands of other WWTL listeners? Join our podcast Facebook group at WhatWasThatLike.com/facebook (many of the podcast guests are there as well) Get every episode ad-free, AND get all the Raw Audio exclusive episodes to binge, by joining the other listeners at What Was That Like PLUS. Try What Was That Like PLUS free: iPhone: at the top of the What Was That Like podcast feed, click on “Try free” Android: on your phone, go to WhatWasThatLike.com/PLUS and click to try it free on any app Sponsor deals: Go to Seed.com/what and use code 25WHAT to get 25% off your first month. Go to storyworth.com/what to save $10 on your first purchase! Get 15% off OneSkin with the code WHATWAS at https://www.oneskin.co/ #oneskinpod Cancel your unwanted subscriptions by going to RocketMoney.com/whatwas. This episode is sponsored by BetterHelp. Give online therapy a try at BetterHelp.com/whatwas and get on your way to being your best self. Go to cookunity.com/What or enter code What before checkout for 50% off your first week. Learn more about your ad choices. Visit megaphone.fm/adchoices