Podcast appearances and mentions of Lisa Sniderman

“Grieving, like illness, is a rollercoaster.” This week, Halle hosts Lisa Sniderman, aka Aoede, on the Out Of Grief Comes Art podcast! They discuss Lisa's incredible variety of creations that stemmed from the grief of her chronic illness, the artistic process, and the harsh realities of managing illness daily. Lisa Sniderman's received more than 100 accolades and awards as the artist Aoede, and is author of a powerful new spoken word musical audiobook: "The Grieving Project" (Aug 2020), all while battling a rare chronic illness for 14 years. Music is and art are her lifelines, and she obsessively creates to express, heal and empower others to grieve and thrive. Follow her online: thegrievingproject.com | Facebook: @aoedemuse @aoedemusemusic @grievingproject; IG: aoede.muse, grievingproject; twitter: @aoedemuse; Linkedin: www.linkedin.com/in/aoede/

This episode of Big Blend Radio features Lisa Sniderman aka “Aoede”, an award-winning folk singer-songwriter and author of the memoir, “A Light in the Darkness,” and creator of the new spoken word audiobook ““The Grieving Project: A Moving Journey Through 14 Stages of Grieving & Thriving.” In the audiobook, four actors with chronic illness (including Sniderman) narrate an emotional journey through the 7 stages of grieving and the 7 stages of thriving, set to 22 tracks of original instrumental music. More at https://alightinthedarkness.info/the-grieving-project/

On today's Big Fat Joey Show, we speak with Below Deck's Elizabeth Frankini, A.K.A. Bettabird. Below Deck is now Bravo TV's #1 Franchise and HIT TV Show. Elizabeth is a Long Island girl who catches up on all things shopping and Long Island with the connoisseur of Long Island, Cyn.  Elizabeth, A.K.A., Bettabird also shares what it is like being on Below Deck and working with Captain Lee.  But before she pulls up anchor, she plays everyone's favorite radio game with Cyn, 'This or That'. So stay moored into your seat and listen in! To keep up with all that she's up to, follow her on IG at: @bettabird and on the web at: www.elizabethfrankini.com   Also on today's show, we speak with Award Winning Artist Lisa Sniderman. A.K.A. AOEDE Lisa has been battling a rare and chronic debilitating disease, for more than twelve years, that has changed her life. Lisa has taken the lemons that life has given her to make her spoken word audiobook, 'The Grieving Project'.  'The Grieving Project' sets the stages of grief to music, to move us from surviving to thriving.  Lisa is hoping the 'The Grieving' Project' will help to empower others struggling with chronic illness as well as their families and friends who support them.  So sit down, relax and listen in to all that Lisa has to say through her spoken word and through her song. 'Tell Me What To Eat'. Pick up her audiobook on Amazon. To keep up with all that she's up to, follow her on IG at: @Aoedeinsta and on the web at: www.alightinthrdarkness.info   ***Thank you for listening and follow the show on IG at: @Thebigfatjoeyshow

Join Nancy J. Reid and Lisa D. Smith, the mother-daughter travel team and publishers of Big Blend Magazines, for Big Blend Radio’s Champagne Sundays Show, airing live from Top of the Mountain AirBnB in Springville, Pennsylvania. On This Episode: - Cooking with Ruth Milstein, author of the Gourmand award-winning recipe book, “Cooking with Love: Ventures Into the New Israeli Cuisine.” We'll discuss her Sweet Orange Coconut Glazed Chicken Recipe.  - Susan Hoffman, author of “Grand Distance” that focuses on the choices grandparents have to make when faced with blocks to visitation with grandchildren.  - Lisa Sniderman aka “Aoede”, an award-winning folk singer-songwriter and author of the memoir, “A Light in the Darkness” and the new spoken word  audiobook “The Grieving Project.” Music is “Date Nut Porridge” by the the Walk-A-Bout Band, and “Stepping Stones” by Kimia Penton. 

Description After suffering for more than a decade from a rare autoimmune disease, dermatomyositis (DM), a progressive muscle weakness disease, Lisa Sniderman, aka Aoede, has persevered by obsessively turning to creativity to express herself and as a healing path.   An award-winning, quirky, folk-pop artist, playwright, filmmaker and author, Aoede’s life purpose is also becoming a light in the darkness and a muse, offering support, compassion, inspiration, connection, and encouragement to those who need it most-especially those experiencing transformations: illness, disability, or unexpected life challenges.  Aoede is a living example that it is possible to live a life filled with hope, passion, and joy, even if the shape and substance of our dreams change.   What You Will Hear in This Episode Lisa’s personal journey battling and managing dermatomyositis and its life altering effects as well as the challenges of going from being completely independent to totally dependent. The SPOON Theory: Living with a limited number of spoons The importance of finding balance between your passions and self care. Aoede’s discovery of how to use her creativity to help people process their losses or transformations and the importance of going through the grieving process. Discovering balanced wellness Tips on how to move from surviving to thriving 7 stages of grief and 7 stages of thriving   Quotes “Creating and creativity enables me to not focus on being sick and the darkness…...it gives me purpose and meaning.  It reminds me I am not my illness.” “My illness is a continuing journey.” “Whatever your self care and needs are, attend to them.  Don’t have guilt over that because sometimes to do that means that you’re going to be able to be more present and able to be there for yourself and for others.” “I have to allow myself to grieve” “Just allow yourself to be open to the experience, and whatever is coming up for you, sit with it, cause that, to me, is what grieving is about.  It’s not linear, it’s a journey, it’s not a one time event” Mentioned A Light in the Darkness The Grieving Project audio book Myositis support and understanding Twitter / facebook @aoedemuse @aoedemusemusic

This week on ART ON THE AIR (9/18 & 9/20) We feature folk-pop artist Lisa Sniderman, Aoede, and her new The Grieving Project release, then cellist Josh McClain with Somatic Movement therapist Rosario Sammartino. Our Spotlight is with Trisha Hernandez of South Shore Arts discussing their upcoming virtual Beaux Arts Ball Tune in on Friday at 11am for our hour long conversation with our special guests or listen on the web at WVLP.org Listen to past ART ON THE AIR shows at brech.com/aota. Rebroadcast on WVLP - Monday at 5pm and Sunday (9/13) on 7pm on Lakeshore Public Radio 89.1FM or lakeshorepublicradio.org. Please have your friends send show feedback to Lakeshore at: radiofeedback@lakeshorepublicmedia.org Send your questions about our show to artontheairwvlp@gmail.com. LIKE us on Facebook.com/artonthairwvlp to keep up to date about art issues in the Region. New and encore episodes also heard as podcasts on: anchor.fm/art-on-the-air, NPR ONE, and Spotify (open.spotify.com/show/1s7QF3ApaM2gOKQUam8BT7), and several other podcast platforms. Larry A Brechner & Ester Golden hosts of ART ON THE AIR.

HOW TO THRIVE SUMMITGet into touch with LisaSuicide Hotline1-800-273-8255Sexual Assault Hotline1-800-656-4673The Magicians(Explicitly Sick) How to Thrive With Chronic Illness and Limited Energy Summit: Lisa Sniderman*Please DO NOT listen if you have not watched through season 5 of The Magicians! We jump right into the biggest gag of the entire show in the first 5 minutes. GO WATCH the show 1-4 is on Netflix. I have watched the show all the way through 5 times.The Magicians is sort of if Harry Potter went to graduate school and discovered acid. It is one of my favorite shows for how disability (disabled characters are largely played by actors who have the disability), addiction, depression, and life after sexual assault.As a writer I revisit this show over and over to get character development and dialog correct. Shock of shocks I found Lisa LOVES the show as well.Next in the series of chronic illness and disability in popular culture we are going to talk about Westworld. If you want to watch along that should come out in August. Comment below if you have a series you would like us to cover. Good or bad.FULL TRANSCRIPT IN SHOW NOTES ON https://invisiblenotbroken.com/explicitly-sick See acast.com/privacy for privacy and opt-out information.

How to Thrive SummitGet into touch with LisaSuicide Hotline1-800-273-8255Sexual Assault Hotline1-800-656-4673The Magicians(Explicitly Sick) How to Thrive With Chronic Illness and Limited Energy Summit: Lisa Sniderman*Please DO NOT listen if you have not watched through season 5 of The Magicians! We jump right into the biggest gag of the entire show in the first 5 minutes. GO WATCH the show 1-4 is on Netflix. I have watched the show all the way through 5 times.The Magicians is sort of if Harry Potter went to graduate school and discovered acid. It is one of my favorite shows for how disability (disabled characters are largely played by actors who have the disability), addiction, depression, and life after sexual assault.As a writer I revisit this show over and over to get character development and dialog correct. Shock of shocks I found Lisa LOVES the show as well.Next in the series of chronic illness and disability in popular culture we are going to talk about Westworld. If you want to watch along that should come out in August. Comment below if you have a series you would like us to cover. Good or bad.

Lisa Sniderman, aka Aoede, is an award-winning quirky folk-pop musician, playwright, author, and filmmaker from San Francisco. She’s been honored with more than 85 awards for songwriting, audiobooks, films, stage plays, and books since 2012 — all while living from rare autoimmune disorder dermatomyositis (or DM, as she calls it), a progressive muscle weakness disease. Her memoir, A Light in the Darkness: Transcending Chronic Illness through the Power of Art and Attitude chronicles her decade-plus journey living with DM while creating to heal. As Aoede, she creates and records unique, original full-length fantasy musicals on audiobooks that she adapts to musical theater stage plays. Her goal as an advocate is to encourage and inspire others — especially those experiencing transformations, from chronic illness and disability to unexpected life challenges. Hers is a joyful perspective on living well with chronic illness, and her latest venture is a free two-week virtual summit entitled Keep Shining: How to Thrive With Chronic Illness and Limited Energy, which will be hosted online from July 10th-24th. The summit will bring together a vibrant interactive community of 60 expert speakers; thriving artists who battle chronic illness, alternative practitioners, spiritual teachers and healers, creative therapists, thought leaders, medical professionals, and online support communities; who will share stories, resources, tools, practices, strategies, tips, and life lessons through conversational videos in order to help those of us struggling with chronic illness, caretakers, and loved ones to THRIVE. Tune in as Lisa shares: that she was first diagnosed 12 years ago — 6 weeks before her wedding that chronic illness treatment is always focused on the physical, and rarely addresses mental health and other holistic concerns what dermatomyositis is — a progressive muscle disease that also attacks and weakens her immune system that in 2010, she had a DM flare that left in hospital for a month, and led to such severe muscle weakness that she had to learn the basics of motion all over again why her life is “firmly cast in Jello” what pacing looks like when you’re living with chronic illness what to expect at her free virtual summit this month

In this episode, you'll learn Lisa's not-so-super-quick secrets. You'll discover their favourite book, favourite place, scariest thing they've done and (our favourite) the weirdest thing they've ever done. What actions do they think needs to change to help people with chronic illnesses. Discover what is still possible after a diagnosis or accident, only on the DISabled to ENabled podcast.  Get your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors  Check out Lisa's links:"Keep Shining" youtube video:https://youtu.be/4wYJcnCvhyo My book:https://www.amazon.com/Light-Darkness-Lisa-Sniderman/dp/1681605570/ My websites and social media sites:alightinthedarkness.infodoyoubelieveinmagic.infowhataredreamsmadeof.comisloveafairytale.comaoedemuse.comfacebook.com/aoedemusemusictwitter.com/aoedemuseyoutube.com/aoedemuseHow to Thrive Facebook group: https://www.facebook.com/groups/2521920814702414/ Lights in the Darkness-Artists, Authors, Musicians Creating to Heal-Facebook Group:https://www.facebook.com/groups/433332727132078/ Join our tribe of ENabled warriors and fight back against your chronic illness!Facebook / ENabled Warriors  Insta: @ DISabledtoENabled Get the written out version of the episodes here: https://mmini.me/transcription

On the podcast today, I’m so excited for you to hear from creative and artist, Lisa Sniderman aka Aoede. Lisa takes us through her story with having chronic illness for over 12 years and how she has learned to use her creativity to transition into surviving to thriving. While chronic illness is debilitating and positivity may seem impossible at some points in our journeys, learning to find things to hold on to and move forward in your life are so important. We talk about grief, creativity and seeing wellness / health holistically. We chat in depth about her virtual summit for those with chronic illness: How to Thrive with Chronic Illness and Limited Energy. This FREE summit will be happening July 10-24 online. Sign up here! In today’s episode we chat about: The difference between functional and conventional medicine and why Karyn chose her career Karyn's book, Heal, and what inspired her to write a roadmap for healing for those with chronic illness Your genes are not your destiny! Feeling stuck is a story - let's find the reason we feel the way we feel How to empower yourself along your healing journey instead of getting stuck in victimhood Links and things… Sign up for the virtual summit! Aoede Music Facebook How to Thrive With Chronic Illness and Limited Energy Facebook Group Lights in the Darkness: Artists, Authors, Musicians Creating to Heal Facebook Group “A Light in the Darkness” (purchase her book!) A video sharing her story and struggle with rare illness, disability and recovery Jessie's Instagram Chronically Healing Facebook Group

In this episode, you'll learn more about using the creative arts to heal as we carry on our chat with Lisa Sniderman. Tune in to the last part of our interview where we find out about Lisa's not-so-super-quick secrets. You'll discover their favourite book, favourite place, scariest thing they've done and (our favourite) the weirdest thing they've ever done. What actions do they think needs to change to help people with chronic illnesses. Discover what is still possible after a diagnosis or accident, only on the DISabled to ENabled podcast.  Get your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors  Check out Lisa's links"Keep Shining" youtube video:https://youtu.be/4wYJcnCvhyo My book:https://www.amazon.com/Light-Darkness-Lisa-Sniderman/dp/1681605570/ My websites and social media sites: alightinthedarkness.infodoyoubelieveinmagic.infowhataredreamsmadeof.comisloveafairytale.comaoedemuse.comfacebook.com/aoedemusemusictwitter.com/aoedemuseyoutube.com/aoedemuseHow to Thrive Facebook group:https://www.facebook.com/groups/2521920814702414/ Lights in the Darkness-Artists, Authors, Musicians Creating to Heal-Facebook Group:https://www.facebook.com/groups/433332727132078/ Join our tribe of ENabled warriors and fight back against your chronic illness!Facebook / ENabled Warriors  Insta: @ DISabledtoENabled Get the written out version of the episodes here: https://mmini.me/transcription

In this episode, you'll learn more about Dermatomyositis as we chat with Lisa Sniderman about her diagnosis. The highs and the lows. Symptoms to medication to things she's found to help her condition. In the next episode find out about how she has been using creativity to heal. Get your ENabled Warrior Symptom Tracker book to help track and manage your symptoms, instantly spot triggers and get the best possible care from your doctors  Check out Lisa's links"Keep Shining" youtube video:https://youtu.be/4wYJcnCvhyo My book:https://www.amazon.com/Light-Darkness-Lisa-Sniderman/dp/1681605570/ My websites and social media sites:alightinthedarkness.infodoyoubelieveinmagic.infowhataredreamsmadeof.comisloveafairytale.comaoedemuse.com facebook.com/aoedemusemusic twitter.com/aoedemuse youtube.com/aoedemuse How to Thrive Facebook group:https://www.facebook.com/groups/2521920814702414/ Lights in the Darkness-Artists, Authors, Musicians Creating to Heal-Facebook Group:https://www.facebook.com/groups/433332727132078/ Join our tribe of ENabled warriors and fight back against your chronic illness!Facebook / ENabled Warriors  Insta: @ DISabledtoENabled Get the written out version of the episodes here: https://mmini.me/transcription

Award-winning San Francisco folk singer-songwriter and author Lisa Sniderman “Aoede” discusses her upcoming free virtual summit, “Keep Shining: How to Thrive With Chronic Illness and Limited Energy,” a 14-day event filled with inspirational talks from 60 dynamic expert speakers! The two-week free summit will run online from July 10th, Chronic Disease Awareness Day, through July 24th 2020. More: https://how-to-thrive-with-chronic-illness.heysummit.com/

With all the fake news and unrest, it's time to talk about something positive for a change.  Like being tested positive for a chronic illness.  Hey, it all depends on your outlook.  Lisa (aka Aoede) takes the optimistic approach, which might explain her 85 awards for songwriting, plays, films, and other muse-like endeavors. Keep Shining: How to Thrive With Chronic Illness and Limited Energy Jul 10th-24th

In this COVID 19 Special episode, we chat with Lisa Sniderman about how she's coping with the pandemic and lockdown. Listen out for Lisa's episodes in the near future. And remember Warriors, stay ENabled! Follow Lisa:"Keep Shining" youtube video:https://youtu.be/4wYJcnCvhyoMy book:https://www.amazon.com/Light-Darkness-Lisa-Sniderman/dp/1681605570/My websites and social media sites:alightinthedarkness.infodoyoubelieveinmagic.infowhataredreamsmadeof.comisloveafairytale.comaoedemuse.comfacebook.com/aoedemusemusictwitter.com/aoedemuseyoutube.com/aoedemuseHow to Thrive Facebook group:https://www.facebook.com/groups/2521920814702414/Lights in the Darkness-Artists, Authors, Musicians Creating to Heal-Facebook Group:https://www.facebook.com/groups/433332727132078/ Join our tribe of ENabled warriors who fight back against their symptoms!:Facebook / ENabled Warriors  Insta: @ DISabledtoENabled twitter @DISabletoenableWant to tips for managing your symptoms? Check out our blog: www.DISabledtoENabled.com Join the VIP waitlist to get the ENabled Warrior Tracker before anyone else click here to join through Facebook Messenger: http://mmini.me/waitlistEnter to WIN $100! Leave a review on iTunes, and each month we'll choose one person at random to win. Here are some prompts to help you: who was your favorite guest and what did you learn from them? Will you listen to another episode? What did you like best about the show? Click here to learn how to leave a review on desktop and on a Phone. Android users may need to download the apple podcasts appENabled warriors thank you for supporting our sponsors. Today's episode is sponsored by BeeKeeper's Naturals. Start building your natural first aid kit today. Use code WARRIOR for 10% off your order.Read the transcription of the episodes here: https://mmini.me/transcription

Lisa Sniderman, aka Aoede, is an award-winning, quirky, folk-pop artist, playwright, teaching artist, author, filmmaker from San Francisco who obsessively creates to heal. She creates and records unique, original full-length fantasy musicals on audiobooks that she adapts to musical theater stage plays. She’s been honored with more than 80 awards for songwriting, audiobooks, and stage plays since 2012 all while suffering from a rare autoimmune disease: dermatomyositis, a progressive muscle weakness disease. Lisa’s mission is to be a light and a muse by inspiring, engaging, empowering, connecting with, encouraging, and supporting young adults and kids at heart of all ages, challenges, and abilities through original art and music. Her new memoir: A Light in the Darkness: Transcending Chronic Illness through the Power of Art and Attitude, chronicles her 10-year journey living with chronic illness while creating to heal. Lisa founded an online community of artists creating to heal and collaborated with more than 50 artists who are also creating to heal, culminating in an online video showcase and live multi-media performances in December 2018. Links to website, author page(s) and social media: Websites and Social Media: https://alightinthedarkness.info doyoubelieveinmagic.info whataredreamsmadeof.com isloveafairytale.com aoedemuse.com facebook.com/aoedemusemusic twitter.com/aoedemuse youtube.com/aoedemuse Author Page on Crimson Cloak: http://crimsoncloakpublishing.com/lisa-sniderman.html Amazon Author Page: https://www.amazon.com/Lisa-Sniderman/e/B07H1XTQ9K/ Get 3 Ebooks for $5 by visiting: www.crimsoncloakpublishing.com and clicking on the “bookstore” link. Use promo code 3FOR5 at checkout. Support this podcast: https://anchor.fm/inspirational-journeys/support Leave feedback and connect with me at the following links: Email: annwrites75@gmail.com Website: https://annwritesinspiration.com/contact Voice messages from anywhere: https://anchor.fm/inspirational-journeys/message Social media: https://www.facebook.com/annwritesinspiration https://twitter.com/annwrites75 Subscribe to my YouTube Channel: https://www.youtube.com/user/annsmusic1 --- Send in a voice message: https://anchor.fm/inspirational-journeys/message

Kathryn interviews coach Valorie Kondos Field, author of “”Life is Short, Don't Wait to Dance: Advice and Inspiration from the UCLA Athletic Hall of Fame Coach of 7 NCAA Championship Teams”. For Field it's not about the X's and O's, it's about choreographing your life and owning the choices you make. This book is a thought-provoking, fun journey through the personal stories and anecdotes of the 35-year career of an athletic coach. Kathryn also interviews award-winning artist Lisa Sniderman, author of “A Light in the Darkness (A Memoir): Transcending Chronic Illness through the Power of Art and Attitude”. Living with a chronic illness for more than 10 years, Sniderman creates to heal. Diagnosed with a rare, debilitating immune disorder called dermatomyositis (DM), she struggled to maintain a normal life with a body in revolt. Living with a chronic illness challenged her to see DM as a gift in disguise that has opened the door to new dreams, new songs, and new opportunities.

Kathryn interviews coach Valorie Kondos Field, author of “”Life is Short, Don't Wait to Dance: Advice and Inspiration from the UCLA Athletic Hall of Fame Coach of 7 NCAA Championship Teams”. For Field it's not about the X's and O's, it's about choreographing your life and owning the choices you make. This book is a thought-provoking, fun journey through the personal stories and anecdotes of the 35-year career of an athletic coach. Kathryn also interviews award-winning artist Lisa Sniderman, author of “A Light in the Darkness (A Memoir): Transcending Chronic Illness through the Power of Art and Attitude”. Living with a chronic illness for more than 10 years, Sniderman creates to heal. Diagnosed with a rare, debilitating immune disorder called dermatomyositis (DM), she struggled to maintain a normal life with a body in revolt. Living with a chronic illness challenged her to see DM as a gift in disguise that has opened the door to new dreams, new songs, and new opportunities.

Chronic illness can be a challenge for those coping with their condition. How can one transcend a chronic illness? On this episode, Lisa Sniderman discussed a Light in the Darkness.

One of the strongest women I know and one who is renowned throughout the indie music community as "Aoede The Muse," is the award-winning pop-folk singer, songwriter, artist, playwright, and author, Lisa Sniderman. She has recently released her memoir of creating music, plays, performances in face of a debilitating disease and it is a must read for anybody in the music or creative communities. She joins us to talk about A Light in the Darkness this week.  In it she discusses the Gift in the Curse. The curse is her disease, a debilitataing condition that she lives with every day;  the Gift is that because of her experience,  she can feel compelled to share, connect with and inspire others and offer a path towards healing and hope despite hardship and struggles. As long as I have known her, she has been a source of joy, creativity, and strength - no wonder she has won so many music awards! Maybe next is a book award?.  Trevor Douglas is a singer, songwriter and musician from Fort Worth, Texas.  A finalist on American Idol and Dallas winner of Hard Rock Rising 2017, he has opened for the Jonas Brothers, sang at  The Dallas International Film Festival,  and played The State Fair of Texas.  Texas even awarded him "The Most Entertaining Singer" in The Texas Top Ten competition, solidifying him as a musician to watch in the region. Trevor was also invited to give a TED Talk for TEDxSMU titled “Creativity: What Makes Us Different”.  As a songwriter, he gravitates towards a subtle pop style, sensitive lyrics, sweeping melodies, and hooky choruses, using his guitar as both an acoustic and percussive instrument, creating live backing tracks and vocal harmonies with his loop pedal.  

Creating is good. Healing is good. What if you could do both at the same time? Then you're Lisa Sniderman. Or Doug. The right car can cure any illness. Disclaimer: do not buy a car to cure your illnesses.See omnystudio.com/listener for privacy information.See omnystudio.com/listener for privacy information.

Award-winning San Francisco folk singer-songwriter Lisa Sniderman "Aoede" discusses her memoir "A Light in the Darkness: Transcending Chronic Illness through the Power of Art and Attitude," that spans 10 years of what it was like living with chronic illness, and is an inspiring message for those living with chronic illness, disability, and unexpected life challenges. www.ALightintheDarkness.Info Thank you Find Something Awesome for sponsoring this episode! www.FindSomethingAwesome.com

It seems like pretty much everyone has a chronic illness of some sort. It's a good idea, then, to learn to deal with it without letting it ruin your life. Enter Lisa, or more specifically her book, which offers a first hand account of living freely despite your disease.See omnystudio.com/listener for privacy information.See omnystudio.com/listener for privacy information.

Lisa Sniderman, aka Aoede, is a 45-year old award-winning, quirky, folk-pop artist, playwright, teaching artist, and author from San Francisco. She's been honored with more than 50 awards for songwriting, audiobooks, and stage plays since 2012 against a fierce obstacle-while suffering from a rare autoimmune disease: dermatomyositis, a progressive muscle weakness disease. Says Lisa: “Music and art are my lifelines, and I just cannot stop creating.” Her new book is “Light in the Darkness: Transcending Chronic Illness through the Power of Art and Attitude,” a guide to help those who are struggling with or know someone who battles chronic illness, disability, or unexpected life events. Her website is www.aoedemuse.com

Buy A Light in the Darkness: Transcending Chronic Illness Through the Power of ArtI got an up close look at an amazing woman, Lisa Sniderman, Aoede, with an interview about her upcoming book A Light in the Darkness: Transcending Chronic Illness Through the Power of Art and her chronic illness Dermatomyositis. She is full of fairy sparkle and creativity. Just listening to her made me feel so inspired. We talk a lot about what it means to be chronically ill and disabled as an artist. In many ways, it is a tremendous escape to use art as a therapy when dealing with chronic pain. We go over some real ways, tools, and apps that can help you explore new art forms.Name *Lisa SnidermanWhat is your disorder? *Dermatomyositis (DM)-a rare autoimmune progressive muscle weakness disease, which attacks and weakens my immune system, muscles and skin as well as my mind and spirit, and if left untreated, could result in complete muscle wasting and long-term disability, as well as other complications.At what age did your disorder become a daily issue? *36Who were you before your illness became debilitating? *An Environmental Scientist and Singer-Songwriter-and ME-someone on go go go like that energizer bunny-hopping from activity to activity and never stopping until my body forced me to! Like when I was diagnosed: I was getting married in 6 weeks, I was prepping for a Northwest Tour and releasing my first full-length album, and planning a huge environmental workshop, and taking lapidary and songwriting classes, all at the same time.What would you do if you were not dealing with your invisible illness? *Still be on my path to fostering healing and doing expressive and teaching arts-just wouldn't have to do it WHILE battling my DM-and maybe I would be packing more into my days..What would you like people to know about your daily life? *I am NOT my disease. I spend my days in my place of joy-creating, expressing, or sharing my art and music-mostly from home so that I do not have to focus on the illness, the disease, the darkness, the doctor appointments, the things I can no longer do. It doesn't mean I don't struggle daily with weakness, get tired easily, have little stamina and energy when out in the world. It means I must choose my specific activities each day so I can make sure I have the energy for those things that DO bring me or others joy, and rest if I am going to do a big activity. I feel blessed to choose how to spend my days. I feel grateful that I am able to rest when I need to. Some days, I feel isolated from the world, but when I am out, I don't take my surroundings or my activities for granted. I treasure and try to be aware of living in each moment. I am so fortunate to have an amazing husband and supportive family and friends, and the sweetest fox terrier Alice, (I feel like I'm HER support animal!) so I don't go it alone.What would make living and moving in the world easier for you? *If I had more stamina and strength! Otherwise, I use my cane when I am out, and bring my walker if it is a longer distance. I use uber or lyft to get around, so I don't constantly have to rely on my husband and can feel more independent. Also, MORE CHAIRS when I am in stores! OMG I feel like I have to walk and walk and if I only have my cane, I tire easily-but no chair!Do you have any life hacks? *Sure! https://ourheartspeaks.org/wp-content/uploads/2018/07/Life-Lessons.pdfWhat kind of support do you get from family or friends? *I am blessed! I have surrounded myself with loving supportive family and friends during the hardest darkest moments, I learned that not everyone deals with sickness or caring for a sick person the same. I learned who stuck by me. Now that I have been living with chronic illness for 10 years, I find that most of friends get that I have limitations but don't really need to know the details of what it is like for me to go through my day to day dealing with DM. My husband is a saint and a rock. I swear I wouldn't be here let alone the person I am today without him as a true partner by my side. I love that he believes me, wants me to rest, gets that I have limitations and wants to care for me. I know how rare that is.Have you ever had someone not believe you have an invisible illness because of your appearance and if so are there any examples that stand out? *Not believe-but more like, WOW you look great! I'm so glad to see you feeling well! Or you look amazing-therefore you must feel well!How has your invisible illness affected your relationships? *Yes in that I no longer drive (I haven't since 2010) nor do I have a lot of stamina for being out in the world. That means that people who want to stay in my life often do it on my terms-e.g., come to me rather than me going to them. I am able to do more now, but that has been the case for many years. People who are close to me accommodate. Same with my crazy restricted diet-I've been gluten, sugar, and dairy free for 10 years! Another example, my Producer and I were working on a full-length fantasy musical audiobook. He lives in LA, but drove up to my house in SF Bay Area so we could work together because he knew it would be less taxing on me. Also, with my husband! I was diagnosed 6 weeks before we got married! So for all of our married life, it has been caretaker-patient relationship-especially when I flared in 2010 and had to spend a month in the hospital due to complete muscle weakness and then months of grueling rehab to regain my strength, relearn to sit up, stand, walk, sing and play. It has affected every relationship I have I suppose!Is there anything you are afraid to tell people in your life? *At times, especially because I’m almost always home, I feel like I’m hiding from the world, playing it safe indoors. Maybe that’s why I create light characters, focus on fantasy, and want to connect with my inner child. As I’ve taken on my artist-Aoede the Muse’s identity, inspiring others, I’m disinclined to share the scary, icky, fearful, sad, negative feelings—the secret spaces where I’ve stuffed my skeletons. I tell myself I have to put on a smile and be upbeat, not show weakness or have self-doubt. It’s much easier to tell the world that all is beautiful than to admit that living with a chronic illness is harder than anything I’ve ever faced; that some days it’s exhausting to get out of bed, despite my positive attitude and optimism; that I get tired of thinking and talking about being sick, and just plain being sick; that the endless therapies, drug cocktails, and unwanted side effects keep me on a roller coaster; that I resent having precious moments of my life replaced with 156 doctors’ appointments; that I wish I had more stamina for being in the world; that I wonder where David’s and my relationship would be had I never gotten sick—if he didn’t have to do all the shopping, cleaning, cooking, and driving, and we had an equal partnership instead of a caretaker- patient relationship.Does the fact that your disease is invisible change how healthcare professionals treat you? *I have had the same rheumatologist up until Oct 2017-so I felt fortunate and listened to...What is your best coping mechanism? *creating arts and music! (e.g., expressive arts-creating, recording, performing songs; creating and recording full-length musicals on audiobooks and adapting them to musical theater stage plays; sharing my story, writing and releasing my memoir; collaborating with 50 artists who use creativity to heal to share their stories; helping others navigate their personal darkness; being a teaching artistWhat are you the most concerned about and the hopeful for in the future? *Concern-that I will stay here at this place and this will be my best quality of life that I won't be able to get off the treatment-that there is no remission or cure-only manage and get the best quality of life I can; that I will flare and have setbacks and revert to the shell of a person I was in 2010 in the hospital and not have the enthusiasm and physical ability to sing, to play, to create; that I never know when I am doing too much until it is too late. I fear the unknown, particularly loss or change in security, support, and safety. In a worst-case scenario, being forced to work to maintain financial security could further stress my body, make my DM flare up, and land me back in the hospital, undoing years of recovery. I imagine losing my support, my gift of time, and my ability to live in my place of joy and focus on my art each day. I worry that I could change as a person— that I could lose my drive, my passions, my heart, and my spirit and have no room or interest to chase or follow my dreams if I were constantly stressed and concerned about making ends meet or getting sicker. I think of the negative impact such losses could have on my relationships with David and other family members, friends, and even fans. I can’t help but wonder if I even fear success because of what it might cost me. Hopes: I am managing for now! I am living in my place of joy so that is the best place I could be. I am hopeful I will continue to have the best quality of life I can. I am hopeful my energy, strength and stamina will improve over time. I am hopeful I will be able to travel, stay out in the world for longer, do activities that make me feel a sense of normalcy. I know I will continue to create to help me and others heal. Also, that there is a CURE for myositis in the future and better diagnosing so others (especially the kids juvenile myositis) don't have to suffer!What is your favorite swear word?HA! probably assIs there anything you want to make sure we talk about during the interview? Like an organization you want to promote or something specific that you deal with.Love to make sure we talk about: my upcoming memoir: "A Light in the Darkness-Transcending Chronic Illness through the Power of Art and Attitude" Sep 21 publish date-and Myositis Awareness Day; and Lights in the Darkness-my collaboration with more than 50 artists who are using creativity to help heal to share stories of art and healing-live/streaming event in December 2018. Perhaps also success-what does it mean how has it changed etc. bc there are so many ways to think about success besides financial it is important to attract abundance into your life.What is the hardest and/or best lesson your condition has taught you?When life throws us curveballs; when we’ve lost our inspiration because of a significant change in health status, and when we live day in and day out with a chronic disease or disability, it’s tempting to want to give up our dreams, to play the victim. It’s easy to succumb to discouragement, self-pity, or even despair. But dreams and significant health challenges aren’t mutually exclusive. I’m a living example. We can live with hope, passion, and joy, even if the shape and substance of our dreams have changed. We can live well with chronic illness!What is the best purchase under $100 that helped your lifeMy unique cane! It is twisted wood and multi-colored and so fits my bright, quirky brand and personality! 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AOEDE is the stage name for Lisa Sniderman - who transports her audiences into the world of mystical imagination. Lisa is a trip -listen - please!!!!

Big Blend Radio interview with Lisa Sniderman, an award-winning singer-songwriter, performer and playwright known as AOEDE. Known for her quirky folk/pop music, she also records fantasy musicals on audiobooks for tweens, teens and all “kids at heart,” and adapts them to musical theater. Listen to her story about the song 'What You Got' and how it connects with the 7th Key of Excellence - FLEXIBILITY. Visit www.AoedeMuse.com & www.8Keys.org

Listen in as we interview Mike Young, CEO of Splash Enertainment, Lisa Sniderman, the producer of Aoede, discuss Star Wars 4, 5, and 6 in preparation of the new Star Wars: The Force Awakens and discuss the merits of film editing. Hosts Gerry Orz and Keefer Blakeslee will entertain you and help you decide how to spend your hard-earned dollars at the movies.

Listen in as we interview Mike Young, CEO of Splash Enertainment, Lisa Sniderman, the producer of Aoede, discuss Star Wars 4, 5, and 6 in preparation of the new Star Wars: The Force Awakens and discuss the merits of film editing. Hosts Gerry Orz and Keefer Blakeslee will entertain you and help you decide how to spend your hard-earned dollars at the movies.

Lisa Sniderman is an award-winning San Francisco-based playwright and folk pop artist who creates unique full-length fantasy musicals for audiobooks and musical theater. Recording as Aoede she has won over 35 awards including the Independent Music Awards, the International Songwriting Competition, and was a finalist for the John Lennon Songwriting Contest in 2013 and 2012. Her latest release “Do You Believe In Magic? is an alternative musical/rock opera, now adapted into a musical stage play. Orchestral pop piano-violin duo, Gracie and Rachel, crafts intricate tunes combining classical strings with haunting vocals and powerful percussion, creating music of starling beauty and stark simplicity. With the release of their latest single, "Tiptoe," Gracie and Rachel's audience has expanded across the country. Their forthcoming debut album, GO is eagerly awaited by their fans who are passionate about the pairs iconoclastic music.  

Jordie Lane's  2009 debut LP Sleeping Patterns,established his reputation as one of Australia’s brightest new roots music stars. Sold out national tours followed major festival appearances. Next came  opening for The Moody Blues, Old Crow Medicine Show and Neko Case, and a feature on Triple J’s ‘Like A Version’  He joins us in Segment 2 today, 11:30 am PT. Find him at http://jordielane.com/site/Lisa Sniderman,  award-winning singer/songwriter, aka: Aoede,  top-rated Skeletons of the Muse  shot her to #1 on Reverbnation's San Francisco pop chart and #8 on the national chart.   Her third full-length album and overall fifth release, Is Love A Fairy Tale? “creates  a compelling fairy tale story for tweens .  She kicks off the show this Friday in Segment 1, 11:05 am PT. check her out at http://www.aoedemuse.com/ Music Friday is the weekly music and film program that interviews bands and musicians and film directors who make films about bands and musicians.  And you choose the people we interview.  Just go to my webiste  musicfriday.nationbuilder.com and fill out the You Choose form and we will get the band you want. Follow us at @musicfridaylive. and on Reverbnation.