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In a world where every cancer has a cure, we wouldn't need heroes. Until then, we have people like Deliece Hofen, whose own experience with the untreatable inspired an advocacy bigger than her fear. She is the President of Braden's Hope, the non-profit founded after her own son's devastating diagnosis. As a survivor in her own right, the self-proclaimed MOMcologist finds joy in life's simplest pleasures while working tirelessly to fund precision-based research. And does it all with the hope - SO much hope - that one day, every childhood cancer hero will have a cure.For Extra Innings with Deliece please visit: https://bit.ly/RTBBradensHopewww.bradenshope.org
Tribe Sober - inspiring an alcohol-free life! My guest today is a familiar name to many South Africans. Gabi Lowe came into the public eye back in 2015 as she fought for her daughters life. Gabi has written a book about this extraordinary period – a book called “Get Me to 21” which was the name of a campaign led by her daughter Jenna as she invited the public to become organ donors and attend her 21st birthday party. Tragically Jenna died before reaching this milestone. This is a story full of pain – but also full of courage. The courage of Gabi, her husband and daughter Kristi – and of course Jenna herself. It's also a story of resilience – Gabi explains how she has managed to survive a parents worst nightmare and rebuild her life. A life full of purpose which lives alongside the aching loss of her beautiful daughter. In this episode As she took us through the heartbreaking development of Jenna's illness we discussed the moment when Gabi felt her role shift from that of a hopeless observer who just wanted to cry – to that of a Momcologist who was determined to fight on her daughter's behalf – she discovered the lioness inside. A lioness which kept fighting with Jenna all the way – and then re-emerged during that terrifying beach attack 3 years later. Gabi found it very humbling to ask for help and talked of how activating their first fundraiser left her in tears. But then it led her to reflect on the “virtuous circle” as she discovered that:- Everyone was desperate to find a way to help and they were grateful to be able to do something She learned how to “receive” which led a the virtuous circle of giving and receiving, giving and receiving As she realised that everything they were doing for Jen helped others as well – one of the legacies of Jen's fight is a clinic in a public hospital here in Cape Town Gabi explained that in spite of Jen's campaign dramatically increasing the number of organ donations SA is still in dire need (ironic that only 2% of the population are organ donors when we think of Cape Town as being the home of the first ever heart transplant) SA has an opt in organ donation program whereas in some countries everyone is born an organ donor and they have to opt out – many more lives are saved in those countries with an opt out policy so Gabi continues to fight for a change in SA legislation. Pulmonary Hypertension often goes undiagnosed and in fact Jenna was diagnosed as having asmtha during the first six months of her illness. Gabi stressed that breathlessness is a symptom that must be taken seriously. I asked Gabi if she used alcohol during this period but she explained that her Momcologist duties were so complex that she had to be on top of her game 24/7 so could not risk it. Her coping mechanisms were walking in nature, meditation and yoga. She talked about the listening meditation that the whole family did every couple of weeks – simply expressing how they were (or were not) coping with Jenna's illness – Jenna herself was part of these sessions. This made me reflect on the shares that we do at the beginning of our workshops – everybody introduces themselves and talks about their relationship with alcohol. Nobody comments so it truly is a listening meditation and it often strikes me that sometimes this is the first time that some people have expressed their feelings about alcohol out loud – its always an emotional session but it's also very bonding as people realise they are not alone in this Gabi and I agreed that the deep listening has an effect of the quality of the conversation – which is the essence of coaching. A few months after Jenna's death Gabi was in a dark place – a friend took her off to a silent retreat – where she cried (silently and not so silently) for much of the time – but every day she would go to a place in the grounds where she would observe a weaver building his nest. She watched him complete his nest and it occurred to her that (although she didn't feel like it) she would have to eventually rebuild her own nest. Apparently weavers build several nests in their lifetime which of course got us thinking about the fact that we may need to rebuild our lives after trauma or at certain periods in our life (the empty nest syndrome of course!) – we can't cling on to the old life This got me thinking about Hudsons “cycle of renewal” which we often use in coaching – your life may be going quite well for a few years and then a curved ball will come along – Covid has been a curved ball for most of us! Hudson maintains that at certain periods in our life we will find ourselves "In the Doldrums" – depressed, stuck, uninspired and powerless – when we know we are drinking too much but have no idea how to make a change – we are in the doldrums "Cocooning" is the next stage – when we start to connect with our inner strengths – being curious and educating ourselves via podcasts and quitlit is a form of cocooning "Getting Ready" is the next stage where we prepare for the transition by reaching out and connecting with others on the same path "Going for it" – is when we change our thinking about drinking and start making the changes we need to In early sobriety many people experience a bit of a low – what some would describe as a "void" – the drinking life has gone and they have no idea what to replace it with – that's where our nest building analogy comes in again – we have to discover new connections, new interests and rebuild our nest. We've entered a period of renewal – a very positive period which can lead to more health and more happiness if we stick with it. One of the most common questions that Gabi gets asked is “how do you cope?” – so she reflected long and hard about this – and started thinking about resilience. She thought about her own journey and that of other bereaved parents she knew and she did a lot of reading on “resilience”. She disagreed strongly with most of the literature on resilience which talked about bouncing back – or pushing through with grit and perseverance. In her experience that is not at all the right way to deal with trauma. So with a colleague (Pippa Shaper) Gabi began to create a 10 step resilience model – a roadmap – something she wishes that she'd had in her darkest days.. The first part of the model is about accepting the facts and operating from a place of realistic optimism. This model can be used for any life change. If you have been using alcohol to numb your pain or just to cope with life then you will struggle in early sobriety. Studying authentic resilience will not only give you a tangible goal but it will enable you to learn how to thrive in your alcohol free life. We both agreed that the hardest thing of all is to reach out for help – whether it's help fighting for your childs life or help to change your alcohol dependence it's a humbling experience. We will feel vulnerable but its not an act of courage if we don't feel vulnerable. So if Gabi Lowe has inspired you then please read her amazing book Get me to 21” which you can get from the website…www.jennalowe.org You can also help by making a donation via that website To learn more about Gabis courses please go to theresiliencefactory.com If you are in SA you heard Gabi explaining about the CPT workshop on Authentic Resilience on 4th March and the Joburg workshop on 7th May – tickets available from Quicket or drop Gabi a mail at info@the resiliencefactory.com We're already getting sign ups for our Sober Spring Challenge which starts on 20th March 66 alcohol free days – supported by daily emails and 66 mini podcasts Its great fun as we put everyone on the Sober Spring Bus on Day one and they all travel through the 66 alcohol free days together – its always a great vibe on that bus as everyone encourages and supports each other – so don't miss the bus Sign up today – just go to tribesober.com and click on Sober Spring 2022 If you'd like copy of our PDF called “30 signs you may have a problem with alcohol” – just email janet@tribesober.com More info For an affordable monthly subscription you can join Tribe Sober - read about the benefits of membership and sign up HERE To access our website click HERE If you would like a free copy of our "Annual Tracker" or our e-book "66 Days to Sobriety" please email janet@tribesober.com If you would like to come to our Saturday afternoon Zoom Cafe as a guest and meet our community just email janet@tribesober.com Episode Sponsor This episode is sponsored by the Tribe Sober Membership Program. If you want to change your relationship with alcohol then sign up today Read more about our 7-step program and subscribe HERE Book a Chat with Sue to find out if our membership would help you - email her on membership@tribesober.com Help us to spread the word! We made this podcast so that we can reach more people who need our help. Please subscribe and share. If you enjoyed the podcast then please leave us a 5 star review on Apple podcasts, take a screenshot of your review and DM it to Tribe Sober's Instagram page - see PS for instructions - we'll send you something special to say thank you! We release a podcast episode every Saturday morning and a Sober Short on Wednesdays You can follow Tribe Sober on Facebook, Twitter and Instagram You can catch our FB live on Saturday mornings (11am SAST) and you can join our private Facebook group HERE Thank you for listening! Till Next Week Janet x PS How to leave an rating/review in Apple Podcasts (on an iOS device) 1. Open the Podcasts app. EASY. 2. Choose "Search" from the bottom row of icons and enter the name of the show (i.e., "Recover Like A Mother") into the search field. 3. Select the show under Shows (not under Episodes). 4. Scroll down past the first few episodes until you see Ratings & Reviews. 5. Click "Write a Review" underneath the displayed reviews from other listeners. You'll then have the option to rate the show on a 5-star scale, and write a review (you can rate without writing, too but it's always good to read your experience).
Season 4 Episode 4: Join me as a chat with author and momcologist Samarrah Clayman gives a summary of her son's journey as a warrior of brain cancer, sibling, and more. She also discusses her book. Her story is touching and she is vulnerable discussing her pediatric cancer journey as a mom. For Show Notes and More:www.livingwithscanxiety.org/shownotes
I am so grateful to have met some amazing Momcologists during my son’s treatment. My next guest, Edit Keshishyan is a fellow Momcologist and an Occupational Therapist. We’ve known each other for the last year and a half. I was so happy when the stars aligned and she joined me on the podcast to talk about her amazing daughter, Emma, and how Edit was able to help her through some of the toughest times during her treatment for Leukemia. With over 10 years of experience as an Occupational Therapist, Edit founded her company, Achieving Milestones Therapy, not too long ago. In this episode Edit shares with us Emma’s story and all the amazing things that OT can do to help children during treatment. We talk about the many side effects of the chemotherapy our children had to take and we take a deep dive into the multiple facets of OT. So settle in as we unpack the multitude of ways to help your child during treatment. We touch upon everything from sensory play, to ways to strengthen muscles, increase your child’s gross motor skills (large muscles), their fine motor (smaller muscles) and strengthen their vision. We even get a special celebrity appearance from Emma as she drops in for a little bit to say “hi” and show me her missing teeth and wiggly tooth! Edit Keshisyan Aghazarian- Momcologist & Occupational Therapist Find her on Instagram- @editkeshishyan @achievingmilestonestherapy (Website in the works) https://www.instagram.com/achievingmilestonestherapy/?hl=en (https://www.instagram.com/achievingmilestonestherapy/?hl=en) Los Angeles, CA AchievingMilestonesTherapy@gmail.com Phone: 818-288-3334 Recommended Links/Apps: https://www.abcmouse.com/abc/?8a08850bc2=T1148250950.1621217908.3024 (ABC Mouse)https://pbskids.org/ (PBS Kids)https://www.kidtopia.info/ (Kidtopia)https://apps.apple.com/us/app/id994021869?ign-mpt=uo%3D4 (Dexteria VMI Visual-Motor Integration Skills )https://apps.apple.com/us/app/match-it-find-the-matching/id1340458852 (Match it - Find the matching)https://play.google.com/store/apps/details?id=com.loop.match3d&hl=en_US&gl=US (Match 3D - Matching Puzzle Game)https://play.google.com/store/apps/details?id=com.loop.match3d&hl=en_US&gl=US (Sort It 3D)https://play.google.com/store/apps/details?id=com.rollic.tanglemaster3D&hl=en_US&gl=US (Tangle Master 3D)
This week I interviewed Tricia Campero, a fellow momcologist and a woman who has been by my side from the very beginning of my son’s diagnosis. Tricia’s son, Christian was diagnosed with T-Cell Leukemia when he was 5 years old. She shares with us all the ins and outs of his journey back to health. Everything from how she sensed something was not right, to his diagnosis, to his 3 years of treatment including radiation, and they’re experience with Make a Wish and annual family vacation at Hole in the Wall camp in Connecticut. She offers advice for families that are in treatment and takes us into what school was like for Christian coming off treatment. This episode is a special one because Christian joined us for a little bit too! There are no words to express how deeply I am appreciative of Tricia’s friendship. And I know we are connected for life! Links: Meet Christian and Tricia- https://www.facebook.com/christiancourage2012 (https://www.facebook.com/christiancourage2012 ) https://www.holeinthewallgang.org/ (https://www.holeinthewallgang.org/) https://wish.org/ (https://wish.org/)
Who is Laura Sobiech? She is the author to the book Clouds: A Memoir which has now been adapted to the movie Clouds now available on Disney Plus. But who is she really, beside an outstanding author?Ever heard of Zach Sobiech? The teen singer/songwriter to the chart topping song Clouds that bared his soul to the world when he found out he was terminal with osteosarcoma?Well, Laura is the mother to this amazing and inspiring warrior who gained his angel wings far too soon. She is also the mother to his three super siblings.We cancer families understand that the cancer diagnosis of one child affects the entire family system. This episode is a very candid interview on her story, Zach's story, and her families story on the behind the scenes of how they really coped with Zach's cancer diagnosis. Her book is now available to purchase on all major platforms and there is also the audiobook titled Fly a Little Higher on Audible.
Find out how childhood cancer changed Auburn Curry's life, and how her story can change yours!
Season 2 Episode 15 PART I Join me at the mic with Luby Myrthil, a momcologist, and lawyer, out of Tampa, FL. She discusses why Estate Planning is very important for those in the cancer community or just in general. Those of us with pediatric age children or adult children facing cancer truly need to look into Estate Planning. Living Wills, Proxy's, and more are all described in full.For shownotes please visit:www.livingwithscanxiety.org/shownotes
Ep. #14 - Crissy Johnson’s life was abruptly changed when her 1yr old son was diagnosed with cancer. First she noticed that his stomach didn’t look quite right. After developing a fever she took him to a doctor, who told her he had an ear infection, gave him meds and sent her home. But deep inside she still knew something was wrong. Listen as she describes how she refused to accept what the doctors were saying and kept pressing until they helped her son. This powerful story resulted in a nonprofit as well as a life-changing book. Website: https://momcologistfoundation.org/ Husband’s site: https://dolphinssports.org/
At the time of this recording the Corona Virus had not yet spread to the UK. There is a quote among the cancer community that I wholeheartedly believe is a fact. “One day you will tell your story of how you’ve overcome what you’re going through now, and it will become part of someone else’s survival guide.” My next guest is Michelle Johnson, mother to Alex, from a town near Liverpool, England. Her son was diagnosed with Acute Lymphoblastic Leukemia about a month and a half after my son. We found each other early on during our son’s treatment and it’s been an honor getting to know her and her beautiful family over this past year! She shares with us the days leading up to his diagnosis, how he remained in school throughout treatment and how the amazing support from family, friends and school community helped them navigate the first year of treatment. We talk about some helpful self care techniques that have worked well for her as well as how she’s been able to grow closer to her husband and children throughout this challenging time. It was her original idea to use this platform to share her story in hopes that it will encourage other families to do the same, grow our community and raise awareness of the condition. And now without further ado I’d like to welcome Michelle Johnson to the podcast! Links: @Michelleannefloristry @Michelleannefloristyand3boys --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/allmammacaretime/message Support this podcast: https://anchor.fm/allmammacaretime/support
Christina Johnson also known as the Momcologist has a powerful story about overcoming. Her son was diagnosed with childhood cancer at one years old. She wrote an amazing memoir about her experience, and she travels and speaks as a cancer advocate and community leader. She is a Woman who leads well.
-018- Join me as I interview author, advocate, life coach, and momcologist Christina Johnson. Her son, David, was diagnosed with childhood cancer (High-Risk Neuroblastoma) due to circumstances, discussed in the episode, she felt alone. She used her journal, now a book, to cope and release her emotions. She also knew she had to stand up for her son, as you do your child because, before diagnosis, no one would listen. She went to the emergency room, pediatricians, and finally saw a pediatric oncologist to get the care David needed. She not only explains her story but also gives tips to parents on how to manage through this horrible time, diagnosis of pediatric cancer, treatment of cancer, and life after treatment. Cancer does not have a stopping point, and she gets into details about what this means. So please tune in, I think you can get a lot out of this episode on coping skills and also identifying with a fellow parent. For Show Notes Please Visit:www.livingwithscanxiety.org/shownotes
Welcome to Episode 7 of Soul on Fire Leadership! Today’s episode is extra special and is for everyone who wants to start 2020 off with clear intention! There is so much new energy with the turn of a decade and a new year that I’m certain you have wondered what the next decade will look like for you. Whether you’ve spent time visioning for 2020, setting goals and intentions, with this new energy comes a new recognition: We want to set the intention to STICK to our goals and stay in integrity with ourselves. We want to avoid the feeling of letting ourselves down.So, this is an episode dedicated to helping you through ALL parts of the process. We dive into 7 Surefire Ways to Build Momentum, Track Your Progress, and Stay in Integrity with Your Goals.You have people that need your impact. They need your follow through. They need to see your courage. You have a special gift that only YOU can share. How you show up for yourself will be a perfect reflection of how you will teach others to show up for themselves as well.This episode is ALL about how you can practice staying in integrity with yourself and not falling into overwhelm or disappointment. True leadership is about integrity, authenticity and about not taking yourself too personally. Standing your sacred ground, even when things get shaky.You might want to get your journal out and write this list down!Be sure to check out the links mentioned below!Special thanks to Momcologist, who received today’s Listener Shoutout!And for YOUR chance to be featured as a Listener Shoutout, stop by and leave a written review on Apple Podcasts! Don't forget to SUBSCRIBE so you don't miss when we drop a new episode or bonus!*Links & Freebies*Lauren’s Facebook Live for creating an Ideal Scene (Ideal Scene handout is show and discussed around the 19:45 mark)Lauren’s Ideal Scene worksheetLauren’s website: LaurenLeighHenry.comLauren’s Instagram: @Lauren.Leigh.HenryLauren’s Facebook Page: Lauren Leigh HenryBooks MentionedOne Small Step Can Change Your Life: The Kaizen Way- Dr. Robert MaurerAtomic Habits- James ClearRising Strong- Brene BrownApps MentionedInsight Timer (Meditation)Stride Habit Tracker (Apple iOS only)Loop Habit Tracker (alternative to Stride, on GooglePlay)
Should you be worried about glyphosate? Last week we sat down with Jessica E, (@momcologist_on_a_mission) a mom who is a fierce advocate for toxin-free living. After her daughter got sick, she started learning everything she could about glyphosate and she's here to share her story and her vast knowledge with you about this important topic. Learn how it can harm, and what you can do about it in the second part of our two-part conversation about this pervasive chemical.
Should you be worried about glyphosate? We sat down with Jessica E, (@momcologist_on_a_mission) a mom who is a fierce advocate for toxin-free living. After her daughter got sick, she started learning everything she could about glyphosate and she's here to share her story and her vast knowledge with you about this important topic. Learn what it is, how it can harm, and what you can do about it in our two-part conversation about this pervasive chemical.
Savanna Tate takes us on her journey of pregnancy with triplets, and through her darkest times as her baby had cancer. The hero's journey can be full of our most terrifying and dreaded moments. But it also provides a gateway towards equally vibrant and growth-filled days in the future. The hero's journey asks us to step away from the familiar of who we are or have always been, and direct us on a pilgrimage towards who we are becoming. The in-between moments of this epoch can leave us feeling shook and out of sorts. But there is always hidden magic and clues that live in the shadows, that will direct our path and hold our hand through the darkest of days. It's only when we arrive on the other side that we can look back with a sense of gratitude for our growth. Savanna courageously shows us how she navigated her dark night of the soul and is now keeping Hayes memory alive through education, advocacy, and fundraising to assist others who are facing their worst nightmares. www.theartofjoy.com www.tatepartyof8.blog www.hayestough.org @savannat8 (Instagram)
Crystal Kiefer is a wife, mom of two girls, self-proclaimed "momcologist" and and Etsy shop owner. Crystal talks about thriving through the hardest season of her life--watching her 5-month-old baby girl fight leukemia. She reveals how she dealt with unexpected guilt, has learned how to trust God again, and how she's still sorting through grief--even now that her daughter is a thriving 3 year old.
After graduating at the top of her MBA class and landing an interesting job, Barb Anderson suddenly found herself staring directly in the face of every parent's worst nightmare when her 18-month old son, Jude, was diagnosed with Acute Lymphoblastic Leukemia. With this diagnosis, Barb was thrown into her new role as a "Momcologist," a position where she serves as chief advocate, medical officer and public relations expert for her family. Jude's journey has defied all odds, surviving three relapses, two bone marrow transplants and travel across the United States for groundbreaking clinical trials. He is now approaching six months after his second bone marrow transplant (for which Barb was the donor) and recovering well. Barb loves living in the kind, vibrant city of Tucson, Arizona with her husband, Aidan, Jude and younger son, Finn. When not serving as a Momcologist, Barb loves to cook, drink wine, brew kombucha, and connect with friends & family. She is a double graduate of the University of Arizona with an undergraduate degree in Marketing and an MBA in Entrepreneurship. I asked Barb to come on the show to talk about her story as a momcologist. She is going to walk us through the last 3 years of her life since Jude was diagnosed with Leukemia at just 18 months old. Listen in to hear Barb share: How Jude was diagnosed What life looks like with the ups and downs of pediatric cancer What kind of emotional turmoil remains even when the cancer is gone What it’s like to raise a sibling of a child with pediatric cancer What NOT to say (or send) to people fighting cancer The alarmingly low research funding that supports pediatric cancer Links Mentioned: Jude’s Man and Woman of the Year Leukemia and Lymphoma Donation Page Team Jude inspirational merchandise order form Book: The Emperor of Maladies Sponsor: Aaptiv.com (use code SMA30 for a free 30 day trial)
Did you know that pediatric cancer is the number one leading cause of death in children under the age of 15? Today we have got a really special guest, a fellow NTP and total #momboss, Season Johnson. Season has an incredible story of making beauty from ashes that will bring you to tears, so get your tissue ready friends. Season shares her story with us about how her son Kicker was diagnosed with Acute Lymphoblastic Leukemia at the age of 2, a diagnosis that would change their lives in ways they could have never imagined, and how nutrition has played a massive role in how well Kicker has done. Nearly 3 years into treatment and this Momcologist has figured out how to bring hope to families struggling with this impossible diagnosis using real food and alternative therapies. Her non-profit foundation, KICKcancER, was created to educate pediatric cancer families on how to support their child’s body to help them THRIVE throughout treatment, helping families improve their well-being and quality of life. On this week’s episode, Season shares different ways families can get involved and how you and I can support this incredible movement. We want to ask that you SHARE this podcast episode with a few of your loved ones or anyone you know who is dealing with pediatric cancer. We believe that if all of our listeners share with just a few people, we can spread the word on this incredible movement and bless many with this information. For more information on the KICKcancER movement, please visit their website, Facebook page and Instagram. To donate, please click HERE. Download in iTunes HERE.
Mel sits down with "Momcologist" Mindy Finch of 46 Mommas. Her son Gregory was only 3 when he was diagnosed with a rare form of cancer called Juvenile Mylo Monocytic Leukemia, wanting to help other parents with kids with cancer she joined 46 mommas, a group that was well publicized on last years Stand Up 2 Cancer telecast. This year a new set of 46 Mommas, including Mindi will shave their heads in Washington DC on September 21st in Union Station for the St. Baldricks Foundation. Find out about this amazing Momma and how you can help fight childhood cancer on this weeks The Cancer Warrior.