Living With Scanxiety

Season 6 Episode 2 When Scott, a childhood cancer survivor turned advocate, and Rosalie, the director of government relations and advocacy from St. Baldrick's Foundation, joined me, Rosaria Kozar, the conversation was nothing short of inspiring. Our dialogue cut through the complexities of advocacy, unraveling how crucial policies like the STAR Act shape the landscape of pediatric cancer care. We shared the often unseen struggles that follow the victory of 'beating' cancer — the continuous health battles, risks of secondary cancers, and the psychological toll on families.Support the show

Season 6 Episode One: Join me at the mic with Dr. Pei Wang, who is the Vice President of Clinical Development and Technical Operations, and Dr. Nicole Nunez, who is the Manager of Regulatory Affairs and Patient Engagement of Eureka Therapeutics. Eureka Therapeutics is a clinical-stage biopharmaceutical company located in the Bay Area of California, focused on developing novel therapies for cancer treatment, specifically solid tumors such as liver cancer. Visit www.livingwithscanxiety.org for shownotes and moreSupport the show

Season 5 Episode Join me as I interview Stacey of  The Rare Patient Voice! I am so excited to publish this episode! She joined the Rare Patient Voice team in 2021. She is personable, empathetic, and caring about childhood cancer. Additionally, she builds long-lasting relationships with patients and family caregivers. The Rare Patient Voice connects patients and caregivers with research opportunities and more.More about the Rare Patient Voice:They are celebrating our 10th anniversary and have raised their patient and family caregiver reward to $120 an hour. Rare Patient Voice has over 100,000 participants in our panel and over 3,000 Referral Partners. For more information and show notes:www.livingwithscanxiety.orgOrganization Website:www.rarepatientvoice.comSupport the show

Season 5 Episode 7- Join me at the mic with Ashley Brooks. She is down to Earth and breaks down her experience as a young survivor. She discusses the ups and downs of her experience and how she is rising above her late effects. For show notes and more, visit:www.livingwithscanxiety.orgSupport the show

Season 5 Episode 6: Meet me at the mic with Bonnie Trainer for an authentic and raw conversation about what it means to be a caregiver and caretaker. Hear her suggestions for parents and also identify with her on childhood cancer treatment. [This was recorded before the end of treatment]For show notes and more:www.livingwithscanxiety.orgSupport the show

Season 5 Episode 5: Join me at the mic with Chris Woodruff, the CEO of Lighthouse. Lighthouse is a non-profit located in Georgia. Lighthouse's mission is to strengthen families living through childhood cancer by offering restorative retreats and helpful resources.  Tune in to hear about what they can provide for your family and the history behind what they do.For Show Notes and Links, visit:www.livingwithscanxiety.orgSupport the show

Season 5 Episode 4 Join me at the mic with Meg Gallagher, who discusses everything from friendship and the end of treatment. What she says about childhood cancer and aya cancer might surprise you. She gives a fresh perspective on life with and after cancer and advice for caregivers—a remarkable young woman and survivor of Leukemia.For show notes and more:www.livingwithscanxiety.org/shownotesSupport the show (https://paypal.me/Scanxiety)

Season 5 Episode 3 Join me as I interview Adriana Lewin, a momcologist of a fantastic survivor. Hear her story of triumph during hardship and what she is up to now in the childhood cancer world. She is revolutionizing the coming together of caregivers through mental health and more. For Show Notes Visit:www.livingwithscanxiety.comSupport the show (https://paypal.me/Scanxiety)

Season 5 Episode 2 Join me with Jessica Nelson of My Cancer Story. She is not only a podcaster but a thriver following a battle with Thyroid Cancer. As a thirty-year-old AYA patient, she struggled with cancer on multiple levels. Now thriving, she tells her story here on Living With Scanxiety.For Show Notes:www.livingwithscanxiety.com/shownotesSupport the show (https://paypal.me/Scanxiety)

Season 5 Episode 1: Join me while I speak with Kris Jerome, CEO of Anna's Pals believes that childhood cancer patients need a safe environment, away from the clinics and hospitals, to bond with family and friends. Listen and learn how they want to provide a place for immune-compromised children that will improve their morale and mindset.For Show Notes and More Visit:www.livingwithscanxiety.orgSupport the show (https://paypal.me/Scanxiety)

Season 4 Episode 7: Join me as I interview activist and advocate for childhood cancer, Chad Ehlers. We discuss everything from his presence on social media to caregiving his child Mia, who is currently battling Leukemia. For Show Notes and More Visit:www.livingwithscanxiety.orgSupport the show (https://paypal.me/Scanxiety)

Season 4 Episode 6:  Listen and find out how you and your child can benefit from their services for sarcoma patients. A philanthropy professional, Alyssa O'Driscoll has been at the helm of the Sarcoma Alliance since 2017. She has a family history of sarcoma and knows the important role patient advocacy has when facing a difficult diagnosis. Alyssa's experience includes leadership at healthcare nonprofits such as Harvard teaching hospital, Dana-Farber Cancer Institute, and Intermountain Healthcare. She received her undergraduate degree from the University of Kentucky and holds both her MBA and MPA. In May 2021 she completed her Nonprofit Management Certificate from Harvard University Extension School. Support the show (https://paypal.me/Scanxiety)

Season 4 Episode 5: Sit with me as I chat with a Stupid Cancer board member David Richman. We touch on AYA cancer, Stupid Cancer, the non-profit, his experiences with oncology, and his work as a humanitarian. For all the details of this episode, tune in. The childhood community can't miss this one!For Show Notes and More Visit:www.livingwithscanxiety.orgSupport the show (https://paypal.me/Scanxiety)

Season 4 Episode 4: Join me as a chat with author and momcologist Samarrah Clayman gives a summary of her son's journey as a warrior of brain cancer, sibling, and more. She also discusses her book. Her story is touching and she is vulnerable discussing her pediatric cancer journey as a mom. For Show Notes and More:www.livingwithscanxiety.org/shownotes

Season 4 Episode 4: Part II with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss pediatric cancer, and how her Çancer for Counseling can help all people involved in the journey on a mental health level.For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 4 Episode 3: This is part 1 with Dr. Frances Baumgarten of Fran's Place: Center for Cancer Counseling. In this part, we discuss all things childhood cancer in relationship to parenting and caregiving. Tune in to hear more.For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 4 Episode 2: Self Proclaimed coffee-loving, cancer Survivor, advocate, positive thinker, and philanthropist joins me at the mic for an intimate look into his story. We discuss so much, from hiding his diagnosis and how parents can better communicate and his fall and rise as an advocate. For Show Notes and More:www.livingwithscanxiety.org

Season 4 Episode 1: Join me as I talk with the mother of Vincent The Conquer. He is currently battling pediatric brain cancer. We discuss all things cancer and Vincent's journey as a cancer warrior. Everything from neurosurgery to research and even social media is touched upon through her perspective. Learn how to better help your child through her story as a momcologist. For Show Notes Visit:www.livingwithscanxiety.org

Season 3 Episode 12: Join me as you get an inside look at the non-profit Strong Little Souls. From customized care packages to wishes, they are worldwide accessible. But they offer so much more. Please tune in to find out what they can do for your child with cancer, also how this pediatric oncology support started.For Show Notes:www.livingwithscanxiety.org/shownotes

Season 3 Episode 11 Join me for a therapeutic look at what trauma can do to a relationship and how to hold it together with Valerie Hamaker; LPC, NCC, CPT, SATP. She is also the host of Voices About Living, which she will summarize during this show. So tune in and hear about siblings, marriage, and more during the face of childhood cancer. For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 3 Episode 10: Join me with Joel, angel Mia Ojeda's father. He was born in El Paso, Texas, and raised in Sunland Park, New Mexico. Joel discusses a father's role and expectations from his experience in the childhood cancer world. Pediatric oncology was new to him while medicine was not; he works in ophthalmology surgery. His vulnerability and his suggestions for the community are the first of their kind on Living With Scanxiety. Tune in because this episode will not disappoint!Show Notes:www.livingwithscanxiety.com/shownotes

Season 3 Episode 8: Join me as I interview Josh Aryeh, the CEO and founder of Smiles Through Cars. Learn about his mission, legacy, and devotion to making children smile. Whether it's dressing up, coordinating events, or more, he's there for kids with cancer to smile. Childhood cancer has made a huge impact on his calling in life, and tune in to see how. For more information, visit:www.livingwithscanxiety.org/shownotes 

Season 3 and Episode 7 Sit down with your host Rosaria Kozar, the mother of a warrior that battled Rhabdomyosarcoma. She answers numerous questions about her podcast, Living With Scanxiety, the Cancer Podcast that focuses on giving support, providing information, and promoting hope. The aim is at caregivers of a child who has cancer. But this episode focuses on the 'why' of the podcast. 

Season 3 Episode 6 Join me with CEO Ali Hornung of Glimmer of Hope Foundation. We discuss the inspiration, the value of children having a connection to normalcy during childhood cancer, and more.  It is an amazing organization with a bright future as it helps more and more children every day!For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 3  Episode 6 This is part II with Juanita Prada about late-term effects after surviving Leukemia twice as a young child and later as a teen. She gets personal with her own struggles and how they made her who she is today, an advocate, and more. Join me, tune in to find out how and why.For Show Notes and More Visit:www.livingwithscanxiety.org/shownotesSupport the show (https://www.paypal.com/paypalme/livingwithscanxiety)

Season 3 Episode 5 This is part one of a two-part series with Juanita Prada. She is a two-time survivor of ALL (Acute Lymphoblastic Leukemia), a childhood cancer. Join me as we cover her story, her struggles, her triumphs, and her passion for advocating for late-term effects.  She overcame a stroke, language barriers, and more! Tune in to find out more about how this young child from Colombia dealt with culture shock, cancer, and now is in the process of dealing with side effects known as late effects.   For Living With Scanxiety Show Notes Visit:www.livingwithscanxiety.com/shownotes

Season 3 Episode 4: Join Tyler Stover, the CEO of Hope vs. Cancer. His love for Crackerjack temporary tattoos as a child led him to love tattoos as an adult. This love led to a unique idea, giving a tattoo to a child with cancer to wear. Seeing the child's response to the Disney tattoo took his selfless heart and pointed it to the pediatric cancer world.  Find out how this small idea branched out to Tyler's larger mission through Hope vs. Cancer and the ripple effect of improving children's mental health. Living with Scanxiety Show Notes for more information:www.livingwithscanxiety.com/shownotes

Season 3 Episode 3.  Join me for this one! Cerys Davies is a warrior and survivor of Osteosarcoma. She gives an intimate look into transforming her life as an amputee and what it means to have cancer in high school. She talks about bullying and more. For Show Notes and More Visit:www.livingwithscanxiety.org/shownotes

Season 3 Episode 2 Join me as I interview American Childhood Cancer Organization's Public Relations Coordinator,  Blair Scroggs. We don't keep it simple in this interview. We look at the organization's inner dynamics, the progress since it started, and where they see themselves in years to come. There is so much more than meets the eye, and you'll be pleasantly surprised by what they have to offer you and your family. For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 3 Episode 1: We start this season off with a BANG! Grace Eline is 12 years old. Her ability to tell her own story as a pediatric warrior is done with such vulnerability and poise. Join me as this young lady tells her story of beating cancer and becoming an advocate through her own non-profit, With Grace Initiative. She also represented the Childhood Cancer initiatives at a White House State of the Union Address. New to season 3, the ending has something special in store for you.

Season 2 Episode 28: Maintaining side effects through nutrition is key. We all know food choice, appeal, or lack thereof is limited during treatment. Nichole Giller joins me for an episode from the LWS vault on how to manage symptoms due to childhood cancer treatments, such as chemotherapy and radiation. These symptoms include but are not limited to diarrhea, vomiting, and mouth sores.

Season 2 Episode 27Join me with advocate Brandi Benson. She not only shares her story of AYA cancer, Ewing’s Sarcoma but also of the acceptance of the 'new Brandi.' She went from a very active and positive individual to a depressed one. But listen and find out how she overcame her trauma and became the amazing and inspirational person she is today.Show Notes Please Visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 26 Part II With Efren Gonzalez, MD, the director, Ocular Oncology Service, and Director, Pediatric Retina Program at Boston Children's Hospital. Do you wonder what happens when your child is taken into surgery? Join me as Dr. Gonzalez discusses the specifics of eye removal surgery. For Show Notes Visit:www.livingwithscanxiety.org

Season 2 Episode 25 Part I With Efren Gonzalez, MD, the Director, Ocular Oncology Service and Director, Pediatric Retina Program at Boston Children's Hospital. Join me as we discuss the ins and outs of eye cancers. We focus on Retinoblastoma. For Show Notes Visit:www.livingwithscanxiety.org

Season 2 Episode 24. Join me as I discuss mental health with seasoned Doctoral Fellow Alexandra Neenan. We discuss singular and co-existing, comorbid diagnoses. We cover a lot of ground on mental health concerning childhood cancer including therapy. You are sure to learn a lot, much of which applies to your own struggles.For Show Notes and Links Visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 23 Join me as I interview author Rosaria Calafati. It is her goal to better the lives of children that are struggling with anything, including cancer. Her books' heroes are bald and highly identifiable with children struggling with cancer. So tune in to hear more. For more information, visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 22: Ashlie Gauthier, a warrior, speaks on AYA cancer in the childhood cancer community. Also, we focus on friendships of varying degrees. How different friendships are affected by cancer and how new ones are made. Please join me for an intimate portrait of a warrior that is wise beyond her years. For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 21 Join me as I sit with Catie, the Family Service Manager from Christopher's Haven. She opens up about her experience as a mother with a child, Kenny, that needed treatment. She discusses the ups and downs and the strain it can put on a family. The most important part of his treatment was radiation. She chose to stay at Christopher's Haven, a short walk from the clinic. Catie was taken back by all they have to offer in contrast to standard communal living with their styled and fully furnished apartments and loft area. She took to it so much she decided to stay but now works directly with the kids as a manager.For Links Visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 20 At 18 years young, Matthew, a writer, and runner, shares his story of a reoccurrence of brain cancer. While they are separate forms of cancer, both are located in the same region, except this time, it is terminal. Join me as I interview Matthew and hear his story and positive outlook on life, dreams, and hopes. For Show Notes:www.livingwithscanxiety.org/shownotes

Season 2 #19 Join me as I interview warrior Ava Paige, known for her music and grace. She was well on her way to achieving her dreams when Leukemia stopped her in her tracks. She is an amazing soul that shares a song with us, her story of childhood cancer (AYA), information about her charity, and the importance of taking a stand as a teen. This is a great one you do not want to miss!For Show Notes Visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 18: Join me at the mic with Jackie McMullen, a momcologist of the cutest little warrior, Ollie. Ollie is currently battling ALL Leukemia. But Jackie’s not here to only discuss his story. She is going to talk about the choice she and her husband made to grow their family. Since the recording of the interview, Jackie had a healthy little boy. She comes with an open heart and talks about mental health, maintaining a solid marriage through this trauma, pregnancy, and her own outlet through her podcast A.L.L. Mama CareShow Notes:www.livingwithscanxiety.org/shownotes

Season 2 Episode 17-The wife of the director of Frozen I and Frozen II, Shelley Buck, dives deep into AYA cancer alongside her best friend, Kathy Curtis. You will hear about anticipatory grief, personal stories, and grief itself. Everyone’s way of grieving is different; as you will hear in this episode, hearing others' stories can sometimes jumpstart a healthy way for our own grieving. But this episode also does more than that; it discusses sharing a story through a book the two best friends authored about AYA warrior Ryder Buck, "Leave Your Light On.” His legacy will leave a permanent imprint in the world, listen and find out why.For Show Notes:www.livingwithscanxiety.org/shownotes

Season 2 Episode 16 Part II Join me at the mic for the second part of this episode with Luby Myrthil. In this episode, she discusses her son's diagnosis, pregnancy, and survivor's guilt. Tune in to find out more. Show Notes:www.livingwithscanxiety.org/shownotes

Season 2 Episode 15 PART I Join me at the mic with Luby Myrthil, a momcologist, and lawyer, out of Tampa, FL. She discusses why Estate Planning is very important for those in the cancer community or just in general. Those of us with pediatric age children or adult children facing cancer truly need to look into Estate Planning. Living Wills, Proxy's, and more are all described in full.For shownotes please visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 14 Join me at the mic with Erin Murray who started Comfort Cuddles for children with medical complexities, like cancer. She has donated numerous blankets that are designed specifically for the child receiving their blanket. That's right the child at the hospital, or home chooses the blanket's style! Tune in and find out more. For Show Notes:www.livingwithscanxiety.org/shownotes

Season 2 Episode 13 Join me as I interview Scott Kramer, who's inspiration sets on his daughter's battle with cancer. Maddie was a girl with such strength and had a genuine love for life. She adapted quickly to every challenge she faced. After losing Maddie, Kramer and his wife decided to honor her by writing two books and founding the non-profit, Dancing While Cancering. For Show Notes, Please Visit:www.livingwithscanxiety.org/shownotes

Season 2 Episode 012 Join me at the mic with Katie Taylor, a certified Child Life Specialist. She discusses what it takes to become a specialist, their role in their care team, how they work with children, even those with compromised immune systems, and more. For Show Notes Please Visit:www.Living With Scanxiety.org

Season 2 Episode 11 Grace B Charrier, survivor and author of "Impossicant!: Quirky Inspirational Cancer Survivor," is my guest, and we are talking about all things radiation. I felt that an adult survivor would be best suited because little ones with childhood cancer can't explain what they are going through. With Grace's words, you can understand what your child will experience, has experienced, or is experiencing. She also has experience discussing cancer on her YouTube channel, Cancer Convo's With Grace B, catering towards adult cancer. Tune in for this fantastic episode on a rarely touched upon subject, radiation. For Show Notes:www.livingwithscanxiety.org/shownotes

Season 2 Episode 10 I am so excited that orthopedic surgeon, Dr. Alex Christ of both Keck Medical and Children’s Hospital of LA joined Living With Scanxiety for a look into the world of pediatric orthopedics and childhood cancer. We discussed everything limb salvage versus amputation, operating rooms, and a breakdown of the type of resections. It is all around a fantastic episode with a very well rounded, published, and an educated specialist.For show notes and more visit: www.livingwithscanxiety.org/shownotes

Season 2 Episode 9 -Camille, 17, was diagnosed with Osteosarcoma at the age of 10 and since then she has relapsed 4 times! Now living with what her oncologists call chronic cancer she dives deep within herself to maintain balance in her life. Join me for a vulnerable and honest portrait of a young woman facing what no one should face. See how she copes with scanxiety, utilizes the hospital supports, and more.

Season 2 Episode 8: Join me at the mic with CEO of Campaign One At A Time. We chat about the childhood cancer community in regards to this truly organic-based dream-making non-profit. Yes, they grant wishes, but they do so much more. But what is special about this non-profit is not only what inspired Brodi Nicolas to start it but also the relationship the organization maintains with each child. Please tune in to find out more about this new-ish organization and how awesome their CEO is in relationship to his inspiration, motivation, and more. For Show Notes and More Visit:www.livingwithscanxiety.org/shownotes