Move It or Lose it - The Podcast

Move It or Lose It | Episode 128 | Chris Hughes: Foot ScientificGet Excited for the Elevate 360 Brace!Don't forget to like, comment, and subscribe for more episodes of the Move It or Lose It Podcast!

Move It or Lose It | Episode 127 | Brian Wallace: MS Michigan Man and MS Disrupted CollaborationDon't forget to like, comment, and subscribe for more episodes of the Move It or Lose It Podcast!

Move It or Lose It | Episode 126 | Adam Powell: Together Again! 2025 MS EventsDon't forget to like, comment, and subscribe for more episodes of the Move It or Lose It Podcast!

Tiffany Kairos' life was filled with plans and excitement, but everything changed when she experienced her first seizure while driving. Her unexpected diagnosis with epilepsy led to a whirlwind of emotions and adjustments, forcing her to reevaluate her life and how she navigated her new reality. Tiffany has now been living with epilepsy for 16 years, and in our conversation we discussed the challenges and triumphs that come with managing a chronic condition. However, Tiffany's story is not just about her diagnosis; it's about resilience, community, and the importance of education. It took Tiffany about two years to come to terms with her epilepsy. During this time, she found a sense of belonging and comfort by connecting with people online. With the help of her husband, she created the Epilepsy Network, an online community that has grown to nearly 30,000 members. This platform serves as a space for education, support, and breaking down the stigma surrounding epilepsy.  Tiffany also runs a blog called Rise Above Epilepsy, where she shares her personal experiences and offers tips for others navigating similar challenges. Her passion for educating others about epilepsy is evident, and I can't wait to see where her journey takes her next.  DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment. Links and resources:Learn more about Disrupting MS TogetherCheck out the new MS Disrupted Merch Read Tiffany's blog at Rise Above EpilepsyConnect with Tiffany on Facebook, Instagram, and Pinterest    If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training program You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.comConnect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

An update about MS Disrupted and the Move It or Lose It Podcast from Kathy Chester

This episode is a return visit for Robbie Gillett, a talented poet who lives with MS. We talked about Robbie's initial struggles with his diagnosis and how it led him to writing poetry as a form of therapy and self-expression. With the support of his wife, who encouraged him to share his work, Robbie has used his poetry to raise awareness and provide hope to others.Robbie talked about his upcoming projects including a show and book titled "I Don't Like Poetry," which challenges stereotypes and perceptions about poetry.Robbie's message to newly diagnosed individuals is to reach out and connect with others in the MS community, emphasizing the support and understanding that can be found through shared experiences. His upcoming book release in September will further showcase his talent and dedication to raising awareness about MS and mental health. DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Robbie on Instagram, Twitter, and FacebookBuy Robbie's book, Thoughts of a Warrior: Beneath the TracksuitWatch The Painter And The Poet on YouTubeListen to Robbie's music on SpotifyListen to Robbie's previous appearances on the Move It Or Lose It podcast: Episode 085 Part One and Episode 085 Part TwoWant to learn more about The Pulse Device?

Recently I had a fantastic conversation with Kelli Gastis, an author and fellow MS warrior. Kelli shared her journey of being diagnosed with MS at 25 and how she navigated through various treatments, including natural remedies.We talked about Kelli's busy life before her MS diagnosis, working in the fashion industry and teaching dance and aerobics. She shared her initial symptoms of tingling and the journey to diagnosis, highlighting the challenges and uncertainties she faced.Eventually, Kelli transitioned from traditional medication to natural remedies, guided by a homeopathic doctor to explore different approaches to managing her health.Now Kelli has written about her experiences in a book, "Fabulous in Flats," which is available on Amazon and has received rave reviews within the MS community.In our discussion, Kelli emphasized the need for an open mind when looking at ways to manage MS. Her advice to newly diagnosed individuals was to try different approaches and not be afraid to explore alternative treatments.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit Kelli GastisBuy Fabulous in Flats: How I've Learned to Thrive While Living With an Autoimmune Illness by Kelli GastisConnect with Kelli on Facebook and Instagram Want to learn more about The Pulse Device?

Did you know that vibration therapy can help with cognitive function and motor skills? Recently I had the pleasure of speaking to Ethan Pollak who has developed a revolutionary device that is making waves in the rehab space for MS and stroke patients, amongst many others.As experienced weightlifters, Ethan and his co-founder, Cole, realized that many people struggle to engage certain muscles during workouts. They decided to create a product that could replicate the benefits of muscle tapping. After extensive research, they developed the Pulse Device, which uses vibration technology to improve performance and recovery.However, feedback from physical therapists and users has shown that it can aid in rehabilitation for conditions such as ACL recovery, stroke recovery, and pain relief, particularly for MS patients experiencing symptoms like pins and needles.Listen to learn about the mechanism used in the Pulse Device, its application for various health conditions, including Multiple Sclerosis, and upcoming features aimed at enhancing the experience of users. DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Learn more about Disrupting MS TogetherVisit Pulse Device Connect with Pulse Device on Instagram, TikTok, and YouTube   If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

I'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for self-care or providing support during difficult times.As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed. She is passionate about helping those with MS feel better about themselves and the world around them.It was such an honor to be able to interview and meet them both. I hope that you'll be able to feel the love and support they give to each other.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Want to learn more about The Pulse Device?

Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the world's first truly adaptive shoes. Dr. Tyler Susco of Cadense shares his journey from being an engineer to developing a split treadmill for gait therapy at MIT, which eventually led to the creation of an innovative shoe. The shoe features a variable friction surface that helps users move more comfortably and confidently.The shoe underwent a pilot study, where participants experienced significant improvements in their gait mechanics and overall mobility. Feedback from beta testers, including individuals with MS and recovering from strokes, was overwhelmingly positive, with many expressing newfound confidence and mobility. The shoe's impact on users' lives inspired Dr. Susco and his team to continue their work.Discover the story behind this revolutionary shoe designed to help individuals with foot problems due to stroke, MS, rheumatoid arthritis, and more. Listen to the episode for insights into the creation process and the impact on mobility, and learn about the research, trials, and get a glimpse into the future of mobility aids.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit Cadense Want to learn more about The Pulse Device?

Did you know that music can improve our cognitive abilities and even aid rehabilitation for people with neurological conditions?Recently I had the pleasure of meeting Kirsten Smayda who holds a PhD in Auditory Cognitive Psychology, and we dove into the fascinating intersection of music, psychology, and health. Kirsten works at MedRhythms, and they are using the power of music and technology to redefine what's possible in brain health.Kirsten discovered the therapeutic potential of music while studying at the University of Texas at Austin. Her research has shown that learning to play an instrument can significantly improve our auditory processing and listening skills, which is particularly relevant in the context of neurological health. Our conversation highlights the role of neurologic music therapy to adress various rehabilitation goals, including improving speech, mobility, and cognitive functions through music-based interventions.Among other things, Kirsten underlines the importance of community in music-making, suggesting that engaging with others in musical activities can enhance motivation and provide emotional support for individuals facing health challenges.I think you'll agree that the future of music as a healing tool is exciting and full of potential!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Learn more about Disrupting MS Together Check out the new MS Disrupted MerchVisit MedRhythmsConnect with Kirsten on LinkedInIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTokHere are some additional products that help Kathy beat the Heat and Migraines. Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

In a change from our regularly scheduled programming, today I had the pleasure of being interviewed by my wonderful colleague, Mollie Witt. We discussed our journey together, as she has been a personal training client of mine for nearly a year. She shared how our training sessions have transformed her life following her MS diagnosis.We talked about my passion for podcasting and memorable moments and emotional stories from podcast guests, before going on to talk about our new Disrupting MS Together program. Disrupting MS Together aims to empower individuals living with MS through functional movement and coaching. I'm excited about the group workouts and the supportive environment we're creating, and I believe that by fostering a sense of community, we can help each other thrive. As we wrapped up our conversation, I shared a story from my own experience that reinforced my commitment to staying active and encouraging others to do the same. It's all about authenticity and connection, and I'm grateful for the opportunity to share my journey with you all. DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Learn more about Disrupting MS Together Check out the new MS Disrupted MerchIf you're interested in having Kathy speak at your event, learn more hereYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

In the second part of my conversation with former Michigan football player Brian Wallace, Brian shared his journey of coming to terms with his diagnosis and the emotional turmoil that accompanied it. He opened up about the initial fear and embarrassment he felt, especially as someone who had always been athletic. He expressed the difficulty of disclosing such personal news, particularly in a work environment. For nearly a decade, he kept his condition private, only revealing it when it became unavoidable. Throughout our conversation, we touched on the loneliness that often accompanies chronic illness. However, Brian has recently found his voice on social media, with his TikTok channel. Initially hesitant, he discovered that sharing his story not only helped him but also connected him with others facing similar challenges.He discussed the duality of his experience with MS - what it has taken away from him and what it can never take. He emphasized that while the disease has impacted his physical abilities, it cannot erase his accomplishments or the essence of who he is.As we wrapped up, Brian expressed his desire to start a podcast to further advocate for those with MS and to educate others about the realities of living with the disease. He is passionate about breaking down the stigma and ignorance surrounding MS, and I am excited to see where this journey takes him.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Learn more about Disrupting MS TogetherConnect with Brain Wallace on TikTokIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comConnect with @msdisrupted on Instagram, Facebook, TikTokHere are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Brian Wallace is a former Michigan football player, who shared his incredible journey with multiple sclerosis. His story is not just about sports; it's about resilience, determination, and the power of movement, especially for those of us living with MS.In the first of a two-part interview, Brian talked about growing up in a loving household, playing various sports, particularly hockey and football. His high school years were marked by recruitment from prestigious colleges, and he ultimately chose to play for the University of Michigan, where he had the opportunity to learn from legendary coaches like Bo Schembechler and Gary Moeller.As we discussed his diagnosis, Brian recounted the troubling symptoms he experienced leading up to it. After finally learning he had MS, instead of feeling defeated, he felt a sense of relief. Knowing what he was up against allowed him to take control of his health and future.Throughout our conversation, we touched on the importance of movement and how it can serve as a form of medicine. Brian's journey exemplifies the idea that even when faced with limitations, there are always ways to adapt and keep moving. His story is a testament to the belief that we can redefine our capabilities and find new ways to thrive, regardless of the challenges we face.Don't miss Part Two, coming tomorrow.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Learn more about Disrupting MS TogetherConnect with Brain Wallace on TikTokIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comConnect with @msdisrupted on Instagram, Facebook, TikTokHere are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store:2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Did you know that vibration therapy can help with cognitive function and motor skills? Recently I had the pleasure of speaking to Ethan Pollak who has developed a revolutionary device that is making waves in the rehab space for MS and stroke patients, amongst many others.As experienced weightlifters, Ethan and his co-founder, Cole, realized that many people struggle to engage certain muscles during workouts. They decided to create a product that could replicate the benefits of muscle tapping. After extensive research, they developed the Pulse Device, which uses vibration technology to improve performance and recovery.However, feedback from physical therapists and users has shown that it can aid in rehabilitation for conditions such as ACL recovery, stroke recovery, and pain relief, particularly for MS patients experiencing symptoms like pins and needles.Listen to learn about the mechanism used in the Pulse Device, its application for various health conditions, including Multiple Sclerosis, and upcoming features aimed at enhancing the experience of users. DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Learn more about Disrupting MS TogetherVisit Pulse Device Connect with Pulse Device on Instagram, TikTok, and YouTube   If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

Lydia Guerrero founded Infusion Wear with a mission to create affordable adaptive wear, specifically designed for individuals undergoing medical treatments. Lydia was diagnosed with multiple sclerosis in 2011, and her DMT infusion process was made more uncomfortable by having to struggle with clothing that was either too tight or cumbersome.After seeing an adaptive sweatshirt online that was priced at $140, she realized there was a gap in the market for affordable, functional clothing. With her husband's support, she took matters into her own hands, literally sewing zippers into sweatshirts to make her infusion experience more comfortable. Lydia's grassroots approach not only filled a personal need but also aimed to help others facing similar challenges.In my conversation with Lydia, we talked about the emotional impact of receiving her MS diagnosis, the motivation behind creating adaptive clothing, and the collaborative effort with family and friends to bring her vision to life. We also discussed the importance of creating affordable, high-quality adaptive wear for those with medical needs and the exciting plans for the future of Infusion Wear.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramFollow Infusion Wear on InstagramVisit Infusion Wear If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at: msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comConnect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

In part two of my conversation with Dr. Summer, we dive deep into her journey of becoming a physician after facing significant life challenges, including a divorce and becoming a single parent to her two boys. As we covered in the first part of this conversation, Dr. Summer was misdiagnosed with MS before receiving the correct diagnosis of neuromyelitis optica (NMO).After attending undergrad in Missouri and med school in Pennsylvania, Summer's path to becoming a physician was unconventional, marked by personal trials and triumphs. She shares her experience of transitioning to a power wheelchair and how it affected her work and interactions with patients.Summer emphasizes that being a physician is not just about treating physical ailments but also about understanding the emotional and spiritual aspects of health. This perspective is crucial, especially for patients dealing with chronic conditions like MS and NMO.Towards the end of our discussion, Dr. Summer shares her insights on the healthcare system and the challenges faced by both patients and providers. She addresses the frustrations of navigating insurance and the pressures that come with high patient loads. Despite these challenges, she remains committed to her patients and finds joy in her work.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramFollow Dr. Summer on TikTok Visit Summer Banzhaf, DO at Fairfield Medical Center If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at: msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

I recently enjoyed speaking with the incredible Dr. Summer about her remarkable story. I've been following her journey on TikTok, and I was eager to dive into her experiences with neuromyelitis optica (NMO), a condition that was initially misdiagnosed as multiple sclerosis (MS). Summer's resilience and determination to overcome her challenges are truly inspiring.In the first part of a two-part interview, Summer shared her journey from being misdiagnosed with MS to receiving the correct diagnosis of NMO. She explained that NMO is often confused with MS due to their similarities, but it has distinct characteristics that can lead to more severe symptoms. Summer described her initial experiences with various treatments, including Gilenya and Tysabri, and how they didn't work for her condition. It was only after multiple attacks that her doctors reconsidered her diagnosis and adjusted her treatment plan.During our conversation, we discussed Dr. Summer's journey through misdiagnosis and the impact of her condition on her medical career, the emotional challenges of living with a chronic illness and the fear of unpredictability, advances in treatment options for NMO and the hope they bring to patients, and the power of resilience and determination in overcoming health challenges.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramFollow Dr. Summer on TikTok Visit Summer Banzhaf, DO at Fairfield Medical Center If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at: msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy beat the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/  Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com  

In Episode 118 of the Move It or Lose It Podcast I sit down with my lovely friend, Lisa Norris, who is thriving while living with another autoimmune disease—Lupus. We dive into the challenges and triumphs of accepting our diagnoses and moving forward to live a badass life despite the obstacles. Lisa shares her abundance of gratitude and reveals how she uses diet and exercise to disrupt her disease, offering invaluable advice to those newly diagnosed. Join us for an inspiring conversation as we discuss the power of mindset, the importance of staying active, and how to live life to the fullest with an autoimmune disease. Whether you're dealing with lupus, multiple sclerosis, or any other chronic condition, this episode is packed with insights that will empower you on your own health journey. Don't miss it! Don't forget to like, comment, and subscribe for more episodes of the Move It or Lose It Podcast! Want to follow or get in touch with Lisa? Instagram: @autoimmunewarriorinfo DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Follow me (Kathy) on Facebook, Instagram, TikTok, and my website for daily inspiration, fitness tips, and a whole lot of fun! Website: https://msdisrupted.com Facebook:   / msdisrupted  Instagram:   / msdisrupted  TikTok:   / msdisrupted  Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

This episode is a return visit for Robbie Gillett, a talented poet who lives with MS. We talked about Robbie's initial struggles with his diagnosis and how it led him to writing poetry as a form of therapy and self-expression. With the support of his wife, who encouraged him to share his work, Robbie has used his poetry to raise awareness and provide hope to others.Robbie talked about his upcoming projects including a show and book titled "I Don't Like Poetry," which challenges stereotypes and perceptions about poetry.Robbie's message to newly diagnosed individuals is to reach out and connect with others in the MS community, emphasizing the support and understanding that can be found through shared experiences. His upcoming book release in September will further showcase his talent and dedication to raising awareness about MS and mental health. DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Robbie on Instagram, Twitter, and FacebookBuy Robbie's book, Thoughts of a Warrior: Beneath the TracksuitWatch The Painter And The Poet on YouTubeListen to Robbie's music on SpotifyListen to Robbie's previous appearances on the Move It Or Lose It podcast: Episode 085 Part One and Episode 085 Part TwoIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comConnect with @msdisrupted on Instagram, Facebook, TikTokHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com

Recently I had a fantastic conversation with Kelli Gastis, an author and fellow MS warrior. Kelli shared her journey of being diagnosed with MS at 25 and how she navigated through various treatments, including natural remedies.We talked about Kelli's busy life before her MS diagnosis, working in the fashion industry and teaching dance and aerobics. She shared her initial symptoms of tingling and the journey to diagnosis, highlighting the challenges and uncertainties she faced.Eventually, Kelli transitioned from traditional medication to natural remedies, guided by a homeopathic doctor to explore different approaches to managing her health.Now Kelli has written about her experiences in a book, "Fabulous in Flats," which is available on Amazon and has received rave reviews within the MS community.In our discussion, Kelli emphasized the need for an open mind when looking at ways to manage MS. Her advice to newly diagnosed individuals was to try different approaches and not be afraid to explore alternative treatments.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit Kelli GastisBuy Fabulous in Flats: How I've Learned to Thrive While Living With an Autoimmune Illness by Kelli GastisConnect with Kelli on Facebook and Instagram If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at: msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

I always love speaking to people who are working to improve the lives of people living with chronic health conditions. So I recently had the pleasure of interviewing Claudio Semplicini, an Italian doctor who co-created Exoband, a device aimed at assisting individuals with walking difficulties due to various neurological conditions. Exoband is a lightweight, easy-to-use device that stores and releases energy during the hip extension and flexion phases to aid walking. The device has been tested by over 1000 users worldwide and has shown effectiveness in a high proportion of patients with various conditions.Dr. Semplicini shared his journey into neurology, highlighting the complexity and importance of the brain and the wide range of diseases neurology covers, from migraines to rare genetic disorders.During the interview, we delved into the benefits of Exoband for patients with spinal cord impairment, lower limb weakness, balance issues, and gait limitations due to fatigue. Dr. Semplicini emphasized the potential of the device to improve mobility and quality of life for individuals with walking difficulties.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit Moveo Connect with Moveo on Facebook, Instagram, and YouTubeConnect with Claudio Semplicini on LinkedIn If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at: msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

I'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for self-care or providing support during difficult times.As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed. She is passionate about helping those with MS feel better about themselves and the world around them.It was such an honor to be able to interview and meet them both. I hope that you'll be able to feel the love and support they give to each other.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Cathy on InstagramRead Cathy's blog, An Empowered SpiritWatch Cathy's Ted-like talk, Cathy Chester—I Wish I Knew Read Katie Couric's profile of Cathy, An MS Advocate On Raising Awareness of Living With a Chronic Illness If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

In this special episode for Pride Month, I had the pleasure of chatting with Antonio Perez. Antonio shared his experiences as a member of the LGBTQ+ community living with multiple sclerosis. We delved into topics ranging from his MS symptoms to his journey of self-discovery and coming out. Antonio's openness and authenticity shone through as he shared his personal stories and struggles.Antonio discussed his MS symptoms, including recent issues due to the Texas heat. We also explored Antonio's journey of self-discovery, from realizing his attraction to boys in third grade to coming out to friends and family.Antonio shared his experiences with dating and relationships, highlighting the challenges of navigating the dating scene as a gay man with MS. We discussed the impact of social media, particularly TikTok, on Antonio's life and how it has helped him connect with others in the LGBTQ+ and disability communities.Antonio offered advice for people who might be hesitant to come out, emphasizing the importance of finding supportive communities and events like pride celebrations.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Antonio on TikTok, Facebook, and InstagramListen to Move It Or Lose It podcast Episode 093 - MS Warrior Antonio PerezIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Today I'm delighted to present a very special guest - my daughter Kaitlyn, plus my new granddaughter, Liliana. Together we delve into the topic of living with multiple sclerosis as a family, reflecting on the challenges and experiences we faced in the 90s and early 2000s.Kaitlyn shared her memories of my MS diagnosis during her childhood, highlighting the confusion she felt. We discussed the difficulty of explaining an invisible illness to others, especially when symptoms fluctuate.Kaitlyn also emphasized the value of open and honest communication within families when dealing with chronic illnesses. Sharing experiences and answering questions can help children understand and normalize the situation.By sharing our experiences and supporting each other, we hope to inspire others to find hope and resilience in their own journeys with chronic illness.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Habits play a crucial role in shaping our health and well-being, as I learned when I spent time with the incredible Amy Behimer. As well as having MS, Amy is a podcaster, a National Board Certified Health and Wellness Coach, and a Doctor of Pharmacy. Amy emphasizes the importance of habits in improving our overall health and how changing habits can lead to positive outcomes in our lives. She also introduces the concept of "disease-modifying habits" (DMHs) that focus on six key areas: mindset, food, movement, rest and relaxation, connection, and good stresses.As you'll hear, habits are not just about the actions we take but also about how we tend to think and feel. By addressing these underlying aspects of habits, we can make significant changes in our lives. Amy mentions that habits have been proven to benefit our bodies, and by understanding the science behind habits, individuals can make informed decisions to improve their health.We also explore the ripple effect of habits, highlighting how the habits we cultivate today can be passed down through generations, creating a cycle of well-being.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramListen to The Habit Hub for Autoimmune Health podcast Visit Amy Behimer Coaching Connect with Amy on Instagram  If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

In this episode, I had the pleasure of chatting with Amanda Phillips, the director and creator of BeWell, a company dedicated to improving the lives of individuals with autoimmune diseases through thoughtfully designed apparel and products. As you'll hear, Amanda's story began with her struggle to manage Crohn's disease during long car rides, leading her to devise a makeshift emergency toilet using an ice cream bucket. This experience sparked her creativity and led to the development of the IV hoodie, designed to provide warmth and easy access for infusion treatments. In our conversation, we also touch on the challenges of starting and running a business, especially in the niche market of adaptive clothing.Amanda's commitment to the community is evident in her approach to product development, actively seeking feedback through a VIP Facebook group to ensure that the products meet the needs of her customers. She also highlighted upcoming products and the introduction of a patent-pending design aimed at providing even more versatility for medical access.This episode not only sheds light on the unique challenges faced by those with autoimmune diseases but also highlights how innovation and entrepreneurship can lead to practical solutions that enhance daily living. Amanda's story is a testament to the power of personal experience in driving change and creating products that offer comfort, dignity, and functionality to those who need them most.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit BeWellContact BeWell at hello@wearebewell.com Connect with BeWell on Instagram  If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Foot drop - a difficulty in lifting the front part of the foot - is one of the most common issues I see with the people I work with. It can be caused by muscle weakness caused by muscular dystrophy, spinal muscular atrophy or motor neurone disease, or damage to the brain or spinal cord caused by a stroke, cerebral palsy, Parkinson's disease, or multiple sclerosis.There are many ways to manage foot drop - ranging from physiotherapy to electrical nerve stimulation - but my guest today is here to present what his company describes as the world's first truly adaptive shoes. Dr. Tyler Susco of Cadense shares his journey from being an engineer to developing a split treadmill for gait therapy at MIT, which eventually led to the creation of an innovative shoe. The shoe features a variable friction surface that helps users move more comfortably and confidently.The shoe underwent a pilot study, where participants experienced significant improvements in their gait mechanics and overall mobility. Feedback from beta testers, including individuals with MS and recovering from strokes, was overwhelmingly positive, with many expressing newfound confidence and mobility. The shoe's impact on users' lives inspired Dr. Susco and his team to continue their work.Discover the story behind this revolutionary shoe designed to help individuals with foot problems due to stroke, MS, rheumatoid arthritis, and more. Listen to the episode for insights into the creation process and the impact on mobility, and learn about the research, trials, and get a glimpse into the future of mobility aids.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit Cadense If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack 15% discount use code Disrupt15https://www.releafpack.com 

Warning Explicit LanguageAdam Powell - MSd with the Wrong MF'r - is back on the to podcast round up support for his upcoming MS Walk.  His 2024 Bike Run is Sunday May 5th with proceeds going towards Walk MS Milford which is on May 19th.  Last year at the MS Walk Milford he raised over 10K for the MS Society and this year he is looking to surpass that.  The links below are available for your support.Contact AdamInsta: @msd_with_the_wrong_mfrMay 5th 2024 - 2024 Bike Run25/per Bike. 10/Rider Entrance FeeRegistration 9:30-11amKickstands up at 11amScooters Bar and Grill6004 Torrey Rd.Flint, MI  48507Donate to Adam's Walk MShttps://events.nationalmssociety.org/index.cfm?fuseaction=donate.team&teamID=52790DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Jamie on Instagram and TikTokIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com  

In this episode, I had a wonderful conversation with my close friend Jamie, whose handle on Instagram and TikTok is LoveWarriorHugs. Jamie was diagnosed with epilepsy at 18 and later with MS at 24, and we discussed life before diagnosis, the impact of her conditions on her daily life, and the importance of advocacy and support systems.Jamie emphasized the significance of finding a good doctor and being proactive in managing her health through medications and physical therapy. We also talked about the importance of reframing bad days, acknowledging limitations, and prioritizing self-care to navigate the ups and downs of living with chronic illnesses.Jamie's energy and positivity shine through despite the additional challenges she faces, including refractory epilepsy and trigeminal neuralgia. Her commitment to advocacy, positive outlook, and unwavering support for others in similar situations are truly inspiring. Jamie's message to newly diagnosed individuals resonated deeply - "Never stop."DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Jamie on Instagram and TikTokIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

As well as featuring stories of individuals who are living with MS on the podcast, I also like to shine a light on organizations that are working to offer support to our community. One of my favorites is Can Do MS, a national nonprofit organization that provides education, resources, and support for people with MS and their support partners. In this episode, I had the pleasure of speaking with Julia Kender, who joined Can Do MS as a Digital Content Specialist. She told me how her background in journalism and social media helped her to transition smoothly into her role at Can Do MS.Julia passionately believes in the importance of personal stories in raising awareness about MS. She discussed the challenges of providing clear answers to complex questions from individuals with MS, highlighting the importance of seeking help and support.We talked about the unique programs offered by CanDo MS, including dedicated initiatives for care partners and upcoming projects focusing on men with MS. Julia expressed her excitement for new faces and short-form video content to be featured on social media, aiming to provide diverse perspectives and support for the MS community.If you or someone you know could benefit from their resources, don't hesitate to reach out to Can Do MS for support.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramVisit Can Do MS Connect with Can Do MS on Instagram, Facebook, and X (Twitter)Follow the Can Do MS YouTube channelIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Anthony (AJ) McGinty's MS journey began when he experienced symptoms of fuzzy vision when he was traveling for work, leading to a full diagnosis six years ago. Like so many of us, before being diagnosed, he had no experience or knowledge of MS. As you'll hear, he and I share a lot of the same views about the importance of exercise and staying active when you have MS.In this episode, Anthony shares his personal journey of being diagnosed with MS and how he initially struggled to adjust to having a chronic illness at a relatively young age. Despite initial denial and shock, AJ now says that his life has actually improved post-diagnosis. He got married, became a parent, and discovered new career opportunities. This optimistic perspective on life in the presence of MS reflects his belief that the condition does not have to define your entire existence.AJ's advice for newly diagnosed people is to stay positive, avoid negative stories online, and seek support from the MS community. He emphasizes the importance of staying active and finding ways to adapt to the changes MS brings. His commitment to supporting others with MS is evident from his advocacy work, including his involvement in the upcoming Tap MS Out fundraiser on March 30th.Anthony's biggest triumphs, including becoming a black belt in jiu-jitsu and winning pro grappling matches, highlight his strength and perseverance in the face of adversity. His positive outlook and determination to stay active and healthy for his family are truly inspiring.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with AJ on InstagramFollow AJ's YouTube channelRead My MS Story by AJ McGinty on MS4MS More information and a donation page for the Tap MS Out event (March 30th 2024) If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack.15% discount use code Disrupt15https://www.releafpack.com 

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted.This time around we delve into my journey of public speaking, from sharing my experiences as a pastor's wife to speaking at events for women and youth groups. My speaking career began unexpectedly at AA meetings, where I shared what it was like growing up with an alcoholic parent, leading me to discover my passion for helping young adults and teenagers.Later, we reflect on the advice I would offer to fellow MS warriors, whether newly diagnosed or long-time sufferers. I emphasize the importance of reframing the narrative around MS, finding beauty in the middle of challenges, and embracing the changes that come with the disease. By shifting your perspective and focusing on the positives, you can navigate the complexities of MS with resilience and grace, finding fulfillment in unexpected places.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS Program!Connect with Amanda Thompson on InstagramIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the heat and migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

In a special two-part episode, we're taking a unique turn where I am the guest! My friend and marketing guru Amanda Thompson delves into the heart of what this podcast is all about and what the future holds for MS Disrupted.The heart of the episode is the introduction of my new 10 Weeks to Disrupt MS Program, which addresses fitness, nutrition, and mental health, all tailored to the unique needs of our community.During our conversation, we reflect on the incredible journey of the podcast, and recent transitions in my professional life, from owning a gym to focusing on personal training and online coaching for those living with MS and other autoimmune diseases. I also shared the challenges of balancing the passion for helping others with the realities of making a living. DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS Program!Connect with Amanda Thompson on InstagramIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the heat and migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

In this deeply personal and candid episode of the Move It or Lose It podcast, I, along with my guests Julie Stamm and Dawn Morgan, dive into the emotional rollercoaster that comes with living with Multiple Sclerosis. We share our raw and real experiences, discussing how our days can take unexpected turns due to the unpredictable nature of MS, and the profound impact it has on our emotional well-being. We open up about the emotional toll of living with MS and how it can make even the simplest tasks feel insurmountable.However, our discussion is not just about the struggles, but also about the resilience and determination we muster to face each day. We touch on the importance of having a support system, whether it's family, friends, or the MS community, and how crucial it is to ask for help when needed.Despite the challenges, we end on a note of hope and empowerment, reflecting on the beauty that can be found in the hardships and the strength we've gained through our journeys with MS. Our message to listeners, especially those newly diagnosed or feeling overwhelmed, is to look for the silver linings and to remember that they are not alone in this fight.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Visit Julie Stamm Watch Dawn Morgan on MS Views Now: Developing a Strong Relationship with Your DoctorIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack.15% discount use code Disrupt15https://www.releafpack.com 

In this episode of the Move It Or Lose It podcast, I am joined by Adam Powell, my friend and truly one of the most inspiring people that I know.Adam joined me to talk about his journey after knee surgery. In this interview, he talks about how his knee suddenly locked up one day, which caused him to realize that he had experienced similar problems before. Although Adam clarifies that his knee issues are not related to his Multiple Sclerosis, I think you'll find plenty of inspiration in his determination to return to a health and fitness routine, and his plans for the future. Overall, the episode underscores the importance of perseverance in achieving success and fulfillment in all aspects of life.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Listen to Adam's previous appearance on the Move It Or Lose It podcast: Episode 56 - Adam Powell - "Darkness is a hell of a coach"Connect with Adam on Facebook, Instagram, and TikTokIf you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Roxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior.In the final part of our two-part conversation, Roxanne talks more about the importance of surrounding ourselves with positive and supportive people. We discuss how toxic relationships can hinder our growth and how important it is to have a community of like-minded individuals who can uplift and inspire us.We also talk about Roxanne's amazing Styled Sessions, where she helps women feel empowered and confident through professional styling and photography. These sessions are not just about taking beautiful photos, but also about celebrating each woman's unique beauty and helping them see themselves in a different light. Throughout the conversation, we touched on the challenges of living with a chronic illness like MS, and how it can change our perspective on life. We discussed the importance of prioritizing our health and well-being, and not being afraid to ask for help or take time for ourselves.Roxanne is all about supporting and uplifting women - as she says, we are all worthy to be celebrated and seen!The two episodes I recorded with Roxanne are a powerful reminder of the resilience and strength within each of us. They highlight the importance of pursuing our passions, building a supportive community, and embracing failure as a stepping stone to success. I hope you find them inspiring!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Connect with Roxanne on InstagramVisit Rox EngstromListen to Roxanne's previous appearances on the Move It Or Lose It podcast: Episode 95 - MS and Intimacy, Parts One and Two. If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Roxanne Engstrom is a multi-passionate entrepreneur who loves to help others win! She is also a wife, a Mama of 4, a visual storyteller - and an MS Warrior.In the first part of a two-part conversation, Roxanne shares her experience of being diagnosed with multiple sclerosis and how it motivated her to create a fulfilling career that accommodated her health needs. She encourages listeners to pursue their dreams, whether it's starting a side hustle or exploring a new passion. We also discuss the power of community and the importance of surrounding yourself with supportive and like-minded individuals. Roxanne also talks about collaborating with other female entrepreneurs and the positive impact it has had on her own business and personal growth.Roxanne also highlights the significance of resilience and embracing failure. We also touch upon the challenges faced by people with chronic illnesses and how they can still pursue their passions and find fulfillment. The two episodes I recorded with Roxanne are a powerful reminder of the resilience and strength within each of us. They highlight the importance of pursuing our passions, building a supportive community, and embracing failure as a stepping stone to success. I hope you find them inspiring!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Connect with Roxanne on InstagramVisit Rox EngstromListen to Roxanne's previous appearances on the Move It Or Lose It podcast: Episode 95 - MS and Intimacy, Parts One and Two.  If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Lyndsay Watterson has designed walking sticks used by Selma Blair and Christina Applegate. And if that's not impressive enough, she also performed death-defying circus moves at the closing ceremony of the 2012 Paralympic Games in London. While Coldplay performed!After having arthritis since her teens, Lyndsay had knee replacement surgery at age 39. But an infection left her in more pain, so she took the decision to have the leg she describes as "not a team player" amputated. By this time, she'd already decided that, as a younger lady with a disability, Lyndsay wanted a cool, confident walking stick to help her find her own confidence again. So she created Neo-Walk sticks, gorgeous handmade walking aids in tactile acrylic, and lots of vibrant colors.Lyndsay's mission at Neo-Walk is to see disability normalized and for designers to embrace our needs in mainstream products. She is passionate about inclusion and wants to use her success to shout it from the rooftops. In this conversation, we talk about her health issues and the frustration she felt when seeing the lack of choice when it came to choosing her first walking aid. She also tells us about creating her first walking stick in her kitchen, the reaction she got when she used it, and all of the amazing things she has done - and continues to do.Links and resources:Visit Neo-WalkConnect with Neo-Walk on InstagramRead an article about Lyndsay's appearance on Dragon's Den UKWatch Lyndsay performing in the closing ceremony of the London 2012 Paralympic GamesFind out more about the DMAT Fitness Training programIf you're interested in having Kathy speak at your event, learn more hereYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Dr. Aviva Gaskill is another example of something which I didn't know existed until a short while ago. Dr. Gaskill is a Clinical Psychologist who specializes in treating MS patients. Not only that, she is a designated Partner in MS Care for the National Multiple Sclerosis Society.Dr. Gaskill's interest lies in the convergence of medical issues and psychology. So in this interview we talk about Depression, Anxiety, Insomnia, and Sexual Issues as they relate to MS. Links and resources:Visit Aviva Gaskill Visit PsyPactYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgymHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store2 items = $20 savings3 items = $30 savings

This is an Encore presentation of Episode 63 and one of my favorites from earlier in 2022.  My guest was  Shari Short, a comedian, writer, and, naturally, a developmental psychologist working in healthcare communications. Since her MS diagnosis in 2008, Shari has used humor to deal with MS, communicate about MS and cope with MS.In this episode, we talk about how Shari got started in comedy, her diagnosis with MS, her experiences of loss during the COVID pandemic, and why sometimes it can be ok to embrace the dark humor.Links and resources:Watch clips from Shari's One Woman Show, “It's My Mother's MS, I Just Have It” – Mom and Her Support Group and Don't Talk to Strangers, plus her series of MS Award VideosWatch Shari's standup that's NOT about MS – Being a Jewish Mother at ChristmastimeThink Outside The Product Box – an article that Shari wrote for Momentum MagazineShari's 10 Tips for Making Your Pharmaceutical TV Spot as Generic as PossibleConnect with Shari on TwitterFind out more about my new DMAT Fitness Training programVisit Disrupt Fitness You can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgymHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you. How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked them to bring along their partners so we could hear both sides of the story - my own husband included!In the final part of this two-part interview, we talk about what we can do to escape MS, and also share the funniest MS moments from our relationships. We also talk about what those of us with MS would like to give to our partners.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Visit Tyler CampbellConnect with Chris and Nabila DunbarVisit Dan & Jennifer Digmann Visit Julie Stamm If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Many people I've spoken to on the podcast have struggled to get an MS diagnosis, but Roxy Murray's story is especially frustrating. A UK-based podcaster, MS advocate, and fashionista, she first presented with MS at 18, waking up one day with double vision and intense headaches.They were rushed to hospital, undergoing an MRI and a Lumbar Puncture - standard tests for MS. However, Roxy was diagnosed with lupus, benign intracranial hypertension, and antiphospholipid syndrome.It would be almost another decade before Roxy was diagnosed with MS, by which point their disease had progressed. But the diagnosis wasn't the end of Roxy's problems, as they faced prejudice and disbelief as a young person of color living with MS - a so-called "white woman's disease." Nowadays Roxy advocates for the visibility of people of color to be included in the MS narrative.In our conversation, we talk about Roxy's work as a fashion stylist, their diagnosis, and subsequent advocacy work. Among other things, Roxy is passionate about removing the stigma surrounding mobility aids and holding space for under-recognized groups within the disability community. Links and resources:Follow Roxy @MultipleSclerosisFashionista on YouTubeFollow the Sick and Sickening podcast on Spotify and Apple PodcastsSee Roxy's profile on the UK MS Society websiteFind out more about the DMAT Fitness Training programIf you're interested in having Kathy speak at your event, learn more hereYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you.  How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked them to bring along their partners so we could hear both sides of the story - my own husband included!In the first part of a two-part interview, we talk about how they all met and what their partners already knew about MS - if anything. We also talk about how much carers do for the MSers in their life.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Visit Tyler CampbellConnect with Chris and Nabila DunbarVisit Dan & Jennifer Digmann Visit Julie Stamm If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

For the 100th episode of the Move It Or Lose It podcast, I'm delighted to welcome back a guest who assisted me in one of my first webinars. Dr. Laura Hancock, PhD is a Board Certified Neuropsychologist, specializing in the treatment of people with Multiple Sclerosis. In this episode, we talk about what a clinical Neuropsychologist does, the work that Dr, Laura does at the Cleveland Clinic, and our frustration that a lot of people with MS don't know the benefits that working with a Neuropsychologist can bring. Laura also talks about the things she has noticed about brain function in people recovering from the effects of the pandemic, why she chose to specialize in working with people with MS, and why she wants MSers to rewrite the rules in their own lives. We get on so well because she's a Disruptor like me!Thank you to all of the guests who have appeared on the podcast over the last 100 episodes! More than anything, thank you to you for listening and supporting the work that I do here.Here's to the next 100 episodes!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Connect with Laura on X / TwitterCheck out Laura at the Cleveland Clinic If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

If you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of misinformation out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists.One of my recently discovered favorites is @thatmsdoc on TikTok, aka the awesome Dr. Samantha Roman. And not only is Dr. Sam a Johns Hopkins-trained MS neurologist, but she's also living with her own MS diagnosis.Concluding this two-part interview, Dr. Sam talks about the increased role of social media in getting information to patients, as well as its importance in creating a sense of community for people diagnosed with chronic diseases, including MS. She also talks about how surprised she was by the initial response to her videos, her plans for the future, and her message for people with MS everywhere.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Follow Dr. Sam on TikTok, X, and InstagramConnect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

If you're newly diagnosed with MS or have had it for years, one of the first places you're going to look for advice and support is social media. But as we all know, there's a lot of bad information out there, and there aren't too many medical professionals who have the skills to communicate on video, and even fewer who are MS specialists.One of my recently discovered favorites is @thatmsdoc on TikTok, aka the awesome Dr. Samantha Roman. And not only is Dr. Sam a Johns Hopkins-trained MS neurologist, but she's also living with her own MS diagnosis.In the first part of a two-part extended interview, we talk about her passion for cutting through medical jargon to communicate with the patients in her care, and how this impacts the videos that she shares online. Dr. Sam also talks about how grateful she is that she had some medical knowledge when she was diagnosed with MS in 2016.Don't miss part two, coming tomorrow!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Follow Dr. Sam on TikTok, X, and InstagramConnect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Sam Greenberg is the Founder and CEO of MS4MS (Mission Stadiums for Multiple Sclerosis), an entertainment-focused non-profit organization.  Its mission is to raise awareness of MS, while raising funds for affected families and to aid research at the Johns Hopkins Project Restore MS Research Center in hopes of finding a cure.  Founded in 2011, MS4MS is now a nationally recognized non-profit making big impacts in the lives of people with MS and their families.Sam was one of the first guests on the Move It or Lose It podcast back in June 2021 so I thought it was about time we got him on again to update us on how things are going.In this conversation, we talk about how they've continued to grow as an organization, including their plans for the future. Sam also talks about the different ways that you can support the important work that they do, as well as how to approach MS4MS for assistance and help.Links and resources:Listen to Sam's previous appearance on the Move It or Lose It podcastVisit MS4MS, and follow them on Instagram, Facebook, and X / Twitter Find out more about the DMAT Fitness Training programIf you're interested in having Kathy speak at your event, learn more hereYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok.There are a lot of MSers on TikTok but in this episode, I'm continuing to talk to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her channel to show how she's adapting to life with MS and continuing to thrive.In the final part of our interview, Paige talks about how her MS reared its ugly head again following the COVID pandemic, which led to her canceling the marathons and half-marathons that she'd organized. She tells us how she refused to give up and kept moving, finding new ways to maintain her fitness. Paige also talks about how she discovered TikTok, her favorite things about the platform, and her experiences of being gaslit by medical professionals.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Follow Paige on TikTok and InstagramConnect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok.There are a lot of MSers on TikTok but over the next two episodes, I'm talking to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her channel to show how she's adapting to life with MS and continuing to thrive.In the first part of this interview, Paige tells me about her life as an endurance sport junkie before the onset of her initial symptoms. Even when her first notable relapse grounded her in 2018, Paige still thought that the fact that she was at the peak of her physical fitness would carry her through. Paige also talks about the compassion that she learned through her diagnosis, her experience of choosing MS medication, and the fitness goals that she set for herself following her relapse. Surely MS was done with her at that point, right? Don't miss part two of this episode to find out!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Follow Paige on TikTok and InstagramConnect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

Although our primary focus on the podcast is Multiple Sclerosis, we're well aware that the diagnosis journey for different conditions can be very similar. For one thing, people often have no prior knowledge of their condition before they're diagnosed.In this episode, I talk to my friend Victoria Garner about her experience of being diagnosed with Chikungunya Virus. This is a viral disease that is spread to people by the bite of an infected mosquito. The most common symptoms of infection are fever and joint pain. But as you'll hear, Victoria also experienced brain fog and neurological issues, which will be all too recognizable to people with MS. And her initial symptoms were brushed off as being stress-related. Sound familiar?Victoria talks about when she first realized that something was wrong, her struggle to get a diagnosis, and the anger she felt at having to adapt to her new reality. She also talks about how much happier she is now that she has worked to make her life better than she ever could have imagined.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store:2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com