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11 episodes with lupus warriors
4 episodes with lupus warriors
2 episodes with lupus warriors
4 episodes with lupus warriors
2 episodes with lupus warriors
2 episodes with lupus warriors
2 episodes with lupus warriors
2 episodes with lupus warriors
4 episodes with lupus warriors
Hetlena Johnson is a Patient Advocate, Author, Community Organizer, Retired Educator and Lupus Warrior. She is devoted to helping others face the trials of life with an open mind and energy. A cheerleader for handling life's challenges with laughter and spirited resilience, she believes in living your best life while living with lupus.
In Episode 118 of the Move It or Lose It Podcast I sit down with my lovely friend, Lisa Norris, who is thriving while living with another autoimmune disease—Lupus. We dive into the challenges and triumphs of accepting our diagnoses and moving forward to live a badass life despite the obstacles. Lisa shares her abundance of gratitude and reveals how she uses diet and exercise to disrupt her disease, offering invaluable advice to those newly diagnosed. Join us for an inspiring conversation as we discuss the power of mindset, the importance of staying active, and how to live life to the fullest with an autoimmune disease. Whether you're dealing with lupus, multiple sclerosis, or any other chronic condition, this episode is packed with insights that will empower you on your own health journey. Don't miss it! Don't forget to like, comment, and subscribe for more episodes of the Move It or Lose It Podcast! Want to follow or get in touch with Lisa? Instagram: @autoimmunewarriorinfo DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Follow me (Kathy) on Facebook, Instagram, TikTok, and my website for daily inspiration, fitness tips, and a whole lot of fun! Website: https://msdisrupted.com Facebook: / msdisrupted Instagram: / msdisrupted TikTok: / msdisrupted Here are some additional products that help Kathy deal with beating the Heat and Migraines. Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com
I am in a place to make tough decisions as my Lupus progresses. We all will have to make them.
It's been a while since I posted an episode, and this one is particularly personal and special to me. In recognition of Lupus Awareness Month, I had a heartfelt conversation on Instagram with Holistic Nutritionist and Lupus Warrior, Genny Mack. We discuss our diagnoses, our connections, and our journeys toward living well with this complex disease. To find out more about Genny and her work, please see the links below: Genny's website Genny's IG (she has so many inspiring posts)
Managing autoimmune diseases is challenging, but Tiffany Campbell-Kaloustian lights the way. From her struggle with lupus to becoming a functional nutritionist and naturopath, Tiffany's journey is both insightful and motivating. In our discussion, she opens up about the early lupus signs she missed and the post-pregnancy realization that transformed her path toward healing. She highlights the importance of nervous system regulation and discusses the Safe and Sound Protocol—an innovative approach that benefits those with PTSD and autoimmune disorders.Imagine pivoting from education to functional medicine due to personal health trials and the desire to be there for your newborn. Tiffany vividly shares her transition, emphasizing the importance of diet, lifestyle, and empathy in managing chronic illnesses. Her story not only demonstrates her perseverance but also serves as an inspiration for navigating health complexities.As our conversation wraps up, Tiffany discusses the valuable resources from the Institute for Functional Medicine and the Institute of Integrative Nutrition that have shaped our understanding of this field. She encourages ongoing learning and personal growth as key to vibrant health. For more insights and resources, check out Tiffany's Instagram and website. Chapters:(00:00) Overcoming Lupus With Functional Medicine(15:25) Health Practitioner's Journey to Healing(30:53) Gluten-Free Lifestyle and Starting Practice(37:30) Healing With Safe and Sound Protocol(48:14) Recommended Resources for Functional Medicine(53:58) Key to Longevity Links:Embracingthedance.comJoin Over 18,000 Leading Medical Professionals and Become a Vibrant Wellness Provider Today! https://portal.vibrant-wellness.com/#/sign-up
Hey there, welcome back to Diverse Thinking Different Learning! Today, we're diving into a topic that's often overlooked but incredibly important: late diagnoses of ADHD and autism, particularly in women, people of color, and LGBTQ individuals. It's a conversation that's long overdue, and we're so grateful to have Dr. Monica Blied joining us to shed some light on this crucial issue. As a clinical psychologist and founder of Faces of Health, Dr. Blied brings a wealth of knowledge and expertise to the table. In her private practice, she specializes in providing psychological assessments for adults and children who suspect they may have Autism, ADHD, or learning differences. With a keen focus on supporting adults living with chronic medical and mental illnesses, Dr. Blied has dedicated her career to helping individuals navigate the complex intersection of mental and physical health. Today, dive deep into the reasons why certain conditions like ADHD and autism are often diagnosed late, despite their significant impact on individuals' lives. From systemic biases to misconceptions and missed opportunities for support, Dr. Blied will be sharing invaluable insights and advice for anyone who suspects they may be struggling with an undiagnosed condition and what parents can look for in their children that could be signs of struggle. Show Notes: [2:13] - People are often overlooked and it seems that there are systemic biases. There are studies that show that particularly people of color are misdiagnosed. [3:42] - There are many misconceptions. Something important to remember is that most of the time, certain behaviors are not willful. [6:03] - One reason someone's diagnosis is missed is fewer outward symptoms or struggles, especially when compared to a sibling. [9:34] - Dr. Blied shares an experience in seeing the similarities and differences in siblings and the tendency to put more focus on one child over another. [11:24] - A late diagnosis could also be due to a family normalizing and nurturing certain behaviors. [13:38] - Externalized behaviors are obvious. The kids who internalize are often missed. [15:46] - Individuals who are born female are often misdiagnosed or completely overlooked as children. [17:44] - The average age of ADHD diagnosis in women is 37. By 18 years old, 80% of women who are autistic are still undiagnosed. [20:45] - Special interests can be misleading. [23:51] - Girls and women tend to be very good at masking, until the demands are more difficult to adjust to. [25:07] - In children, ADHD and autism are diagnosed in 4 boys to every 1 girl. But in adulthood, it is a 1 to 1 ratio. It is a misconception that it is more common in boys. [28:21] - There is the belief, even among medical professionals, that ADHD isn't a real struggle or problem. [29:12] - Dr. Blied describes what ADHD and autism might look like in a girl especially during childhood. [31:11] - There are higher rates of autism and ADHD in those with other types of medical issues and in LGBTQIA+ individuals. [33:36] - A late diagnosis leads to years of missed opportunities for support and intervention. [34:27] - Dr. Blied shares some first steps and advice if you suspect that you could need a diagnosis or are late diagnosed. About Our Guest: Dr. Monica Blied is a clinical psychologist, adjunct professor of psychology at Pepperdine, and the founder of Faces of Health in Claremont, California. In her private practice, Dr. Blied provides psychological assessments for adults and children who suspect they have Autism, ADHD, and/or learning differences. With a special interest in supporting adults who are living with chronic medical and mental illnesses, Dr. Blied has also developed expertise in the mind-body health connection. She currently serves as the Chair-Elect (and former Treasurer) of the California Psychological Association's Division of Education and Training, where she has been a member of the Executive Board for over 10 years. Since 2020, she has also served as a Medical Advisory Board member with Lupus LA, a role which allows her to continue giving back to her fellow Lupus Warriors. In 2022, Dr. Blied developed the Faces of Health app, which teaches mental health and stress management skills via brief, educational videos, all taught by women of color. In 2024, she added to her online educational suite a course on Adult ADHD and Autism, and another on Stress Management using Neuroscience. Links and Related Resources: Episode 99: Straight Talk About ADHD in Girls with Dr. Stephen Hinshaw Episode 118: Understanding the Intersection Between Autism and LGBTQIA with Dr. Laurie Stephens Episode 119: Autistic Girls – Overlooked and Underrecognized with Megan Beardmore, PhD, NCSP Episode 63: Supporting Youth with Autism and ADHD with Holly Blanc Moses Connect with Dr. Blied: Dr. Blied's Website Dr. Blied's Mental Health Blog YouTube Channel Email: drblied@drblied.com Connect with Us: Get on our Email List Book a Consultation Get Support and Connect with a ChildNEXUS Provider Register for Our Self-Paced Mini Courses for Better Understanding and Supporting Your Child with ADHD, Dyslexia & Anxiety The Diverse Thinking Different Learning podcast is intended for informational purposes only and is not a substitute for medical or legal advice, diagnosis, or treatment. Additionally, the views and opinions expressed by the host and guests are not considered treatment and do not necessarily reflect those of ChildNEXUS, Inc or the host, Dr. Karen Wilson.
One time yoga instructor Amanda Chay a.k.a the Lupus Warrior, author of new book The Girlfriend's Guide to Lupus: How to Control your Sh*tty Diagnosis (10/23), a self-help book for women who feel scared and alone with their lupus diagnosis. About 1.5 million Americans have lupus, and there are an estimated 16,000 new cases each year. More than five million people worldwide have some form of the disease and ninety percent (90%) of people living with lupus are women. When asked about the most difficult aspects of coping with lupus, 65% said pain, 61% cited lifestyle changes, and 50% reported emotional problems. Amanda's long battle with lupus, which often drives her bonkers, has fueled her passion for helping other women suffering from the disease. When she was diagnosed, searching for stories like hers was frustrating. She needed approachable, easy to understand information from trusted experts that she could actually use. Her family and friends didn't know exactly how to help or what to say. That's why she's written, in her own words, “the badass warrior lupus advocate book” The Girlfriend's Guide to Lupus. Written with a lighthearted and humorous approach to comprehensively describe the realities of lupus, the book is a fantastic resource not only for those diagnosed with lupus and looking for answers but also for those who care for them. Recommendations: TV Show: Shrinking Books: The Girlfriend's Guide to Lupus: How to Control your Sh*tty Diagnosis What My Bones Know: A Memoir of Healing from Complex Trauma, Stephanie Foo As Long as the Lemon Trees Grow, Zoulfa Katouh Contact Amanda: Amanda Chay –Your New Lupus Girlfriend Amanda Chay | Facebook Amanda Chay - YouTube TikTok Amanda Chay (@amandaechay) • Instagram photos and videos
Season THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant. Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She's using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness Month, World Lupus Day and to spread lupus awareness every day. They have amassed 2 million uses and views in less than a year. On Instagram @OvercomeLupus, her insightful posts provoke conversation and community for Lupus Warriors, by sharing stories while elevating awareness and promoting self-advocacy & discovery to thrive and overcome lupus.
When Selena from MyLoopyLife found herself facing the realities of lupus, she didn't just learn to live with it—she learned to thrive. This episode is a heartfelt exploration of her journey from the shock of diagnosis to a life of empowerment and purpose, offering a personal glimpse into the power of transformation that awaits anyone experiencing chronic illness. Selena and I peel back the layers of emotional resilience and discuss how reclaiming control of one's life is not just possible; it's a path to discovering extraordinary inner strength.Connect with Selena: Selena • Lupus Warrior, Advocate + Coach (@myloopylife) • Instagram photos and videosCLICK THE LINK BELOW TO JOIN the JOURNEY TO LIMITLESS COMMUNITY:Community — Journey to Limitless (jtl-lifecoaching.com)Community member perks: Be apart of an interactive WhatsApp Community with other cyclebreakers where you will have access to back pocket community support & inspirationReceive FREE/DISCOUNTED admission into our monthly eventsBe the FIRST to know about coaching offers & events- there will also be INCREDIBLE bonuses available to community members ONLY!Connect with your host, Court:Court | Podcast Host (@journeytolimitless_) • Instagram photos and videosLove the Journey to Limitless Podcast?Leave us a 5-star rating and review on your favorite listening app! Take a screenshot of the Journey to Limitless podcast on your phone and share it to your Instagram stories! Make sure you tag @journeytolimitless_ so that I can personally say “Hey thanks!” Showing your support for the podcast is SO appreciated and I definitely don't want it to go unnoticed!
"Believe in your own potential. Advocate for your whole being--body, mind, and spirit." -Akrioq Brost On today's episode Abby and Margot welcome their next guest, Cara Nissen. Cara is a certified life coach, chronic illness and Lupus Warrior as well as a part time professor in the Psychology dept. of Mount St. Mary's University, LA. She's the vice president of Grl Pwr LA, a non profit geared helping women and girls discover community while fostering personal and professional development. Cara shares her journey with anxiety and how it manifests as overthinking and intrusive thoughts which lead to a lot of avoidance of trying new or scary things. She practices pushing her own boundaries and advocating for herself more and more, especially since being diagnosed with Lupus just a few years ago. She educates the Warriors about the condition and its effects, and shares the many self soothing and coping strategies that support not just her Lupus and anxiety --but her overall wellbeing. Cara reminds listeners that life is too short to not show up for the things we want, and that anxiety can be embraced and even help with focus/motivation. Shop Anxiety Warriors Podcast Merch at: https://anxietywarriorspodcast.threadless.com/ https://www.instagram.com/anxietywarriorspodcast/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/anxiety-warriors/message
In this episode, during Lupus Awareness month, I chat with Nurjawaan Rawoot from Cape Town, in South Africa. Nurjawaan was diagnosed with Lupus when she was years old, and it resulted in her blindness. Nurjawaan and I also discuss how she, as a blind youth, found herself a job, and her work as a volunteer leader of the South African Blind Youth Organisation (SABYO). Find out more about Nurjawaan Rawoot at: Email: nurjawaanm@gmail.com Facebook: https://www.facebook.com/nurjawaan.magonie.9 LinkedIn: https://www.linkedin.com/in/nurjawaan-rawoot-ba893821b I'd love to hear from you – contact me at Web: https://www.loisstrachan.com/ Facebook: https://www.facebook.com/loisstrachanspeaker This episode edited by Craig Strachan using Hindenburg PRO – find out more on Hindenburg.com Credits and music by Charlie Dyasi of Naledi Media.
May is Lupus Awareness Month!! Across the planet, people are putting on purple to spread the word about the autoimmune disease. Lupus affects women, especially women of color, most often between the ages of 15 to 44 years old. Symptoms of lupus include extreme fatigue, hair loss, the mylar rash (also called the butterfly rash across the face), joint pain, swelling in hands and feet, and fevers. In the metro-Detroit area individuals living with and their families find support, encouragement and inspiration as Lupus Warriors. Through Lupus Detroit, a non-profit organization founded by Sharon Harris Warriors find more than support, they find family. Lupus Detroit hosts regular support meetings, offers financial support and holds an annual walk and gala each year. Johnetta Smith is not only a member of Lupus Detroit, but she is the surviving parent of not one but two Lupus Warriors - her daughters - who were taken too soon by this disease that still has no cure. This Lupus Warrior Mom continues her daughters' legacy by spreading awareness about Lupus while supporting the organization .
In this edition of My Lupus Living Room, Suzanne sits down with Kelly Perhach. Kelly shares all of the ups and downs of her lupus journey.
Join us for 2 part with Lupus Warrior and Health Coach, Stacey Ragin. From her journey of finding out she had lupus to health/weight challenges, she took her life back and is now coaching people how to regain their confidence and lives. Make sure to invite people to listen to this powerful broadcast. ***Want to grow personally and professionally in our inner circle? Join us at: http://upgradersinnercircle.com/ (The academy is designed to take your life to the next level! We will help you grow in ways your never thought possible. Start that business, create that youtube channel, start today). My wife Dr. Tonya and I are Nationally Syndicated Radio Show Host of "UPgrade Your Life" which can listened to on IHeart Radio, WDRB Media, Streema, Raddio, TUNEIN Radio App. Our exposure is National... Do you want us to help promote your business, brand or event on the radio? Email us at: upgradeyourliferadio@gmail.com and type "Radio" in the subject line. Get you mind back into balance by getting your copy of "Help, My Mind is Too Loud". www.dexterlscott.com Email: info@theupgraders.com
Join us for a 2 part discussion with Lupus Warrior and Health Coach, Stacey Ragin. From her journey of finding out she had lupus to health/weight challenges, she took her life back and is now coaching people how to regain their confidence and lives. Make sure to invite people to listen to this powerful broadcast. ***Want to grow personally and professionally in our inner circle? Join us at: http://upgradersinnercircle.com/ (The academy is designed to take your life to the next level! We will help you grow in ways your never thought possible. Start that business, create that youtube channel, start today). My wife Dr. Tonya and I are Nationally Syndicated Radio Show Host of "UPgrade Your Life" which can listened to on IHeart Radio, WDRB Media, Streema, Raddio, TUNEIN Radio App. Our exposure is National... Do you want us to help promote your business, brand or event on the radio? Email us at: upgradeyourliferadio@gmail.com and type "Radio" in the subject line. Get you mind back into balance by getting your copy of "Help, My Mind is Too Loud". www.dexterlscott.com Email: info@theupgraders.com
- We back in studio with special guest Aviona Adams (@lupus.queen.04)- She gets into how she found out she had lupus.- Aviona explains what lupus is and how it effects the body.- We ask about the daily struggles of living with lupus.- She talks about her childhood and how she had to grow up fast.- Aviona started her first business after having surgery and being stuck in the house.- She reveals to us her high school crush.- We answer questions from the "cup of thoughts".- Great conversation you will ENJOY!!!!Aviona IG: Lupus.queen.04 Snap: Mzciroc87 FB: Aviona FloridaMade Unbothered (Loyal Boss Chick )Karie IG: p.b.f.t.s Snap: lifewk001Also if you want to send in questions that we answer on the podcast email : Navyblackpodvids@gmail.comTwitter/IG: @Navyblackpod Facebook: Nav Black Youtube: "Navy Black Podcast" Website: Navyblackpodcast.com
We're back!!!Life has truly been life-ing, and as fellow #LupusWarriors, we're sure you understand.Shanelle and Ayanna are reunited and it feels so good. After a long, and we truly mean long break, we're so excited to be back with a brand new episode. Self-care is such a hot topic, as it should be, but as Lupus Warriors, it tends to have a different meaning to us versus our immuno-normative counterparts (yes, just made that term up...I think). The ladies discuss their challenges with self-care, being consistent with their healthy routines and habits, and how self-care not only impacts self, but spills over into our closest friends, family, and tribe. We hope you enjoy this episode and will do our best to not be gone so long! Make sure you follow us on Instagram to keep up with Ayanna and Shanelle and when we drop new episodes!
I had the privilege of having my sister, Danelle Pinnock, joining us for this heart-warming conversation inside the Roadblock podcast! Danelle is such a gracious speaker who blessed us with her story as a lupus warrior. May you hear the love of God for you, as I have, through her journey and may you be inspired to live whole.Support the show
In 2021, Equal Pay Day was August 3rd. Just one year later, Equal Pay Day has shifted to September 21st. Black women are paid 58 cents for every dollar paid to white men. In this episode, I'm talking with Angela Bishop Ross about how to negotiate your salary and get paid what you deserve. Angela Bishop Ross is a Lupus Warrior, Business, Money, and Life Coach, and President of a small tax firm in Oakland, California. She loves helping women to find clarity and confidence, build and organize their small businesses, own their money, and reach financial freedom. In this episode you'll learn: What is Equal Pay Day How Angela Bishop Ross became an entrepreneur What Congress is really doing to push the women's equal pay mission forward Why equal pay day shifted from August 3rd in 2021 to September 21st in 2022 3 Tips to help you negotiate your salary and the reason why most women don't negotiate And so much more! Subscribe to The Purpose of Money, so you never miss an episode! If you enjoy this episode about Equal Pay Day, check out this additional content from The Purpose of Money How to Identify Financial Abuse & Get the Help You Need Our 2020 Episode about Black Women's Equal Pay Day & What You Can Do To Close the Wealth Gap MWB Series: How to Negotiate a Pay Raise and Get Latinas Equal Pay with Athena Lent How to Get Into the Hemp Industry with Maya Gilliam Follow Angela Bishop Ross on Social Media Instagram: @coachangelaross Facebook Website Follow The Purpose of Money Instagram: @thepurposeofmoney Facebook Twitter: @purpose_money Website
In this week's episode, Sabrine interviews Naomi Rose, digital content creator, mother, and Lupus warrior!In this episode we discuss:Naomi's natural hair journeyThe inspiration behind her content creator journeyWorking in the film industrySigns, symptoms, and being diagnosed with LupusHer pregnancy journey and life as a single momRebranding her content to reflect her life changesand much more!This week's episode is proudly brought to you by Athletic Greens and Betterhelp!With ONE, delicious scoop of AG1 by Athletic Greens, you're absorbing 75 high-quality vitamins, minerals, whole-food sourced ingredients, probiotics, and adaptogens to help you start your day right. It's lifestyle-friendly — whether you eat keto, paleo, vegan, dairy-free or gluten-free, and contains less than 1 gram of sugar. Receive a FREE 1 year supply of immune-supporting Vitamin D AND 5 FREE travel packs with your first purchase by visiting athleticgreens.com/NATURALLYBetterhelp is convenient, affordable option for therapy entirely online. Get matched with a therapist after filling out a brief survey, and you can switch therapists at any time. Receive 10% off your first month with Betterhelp by visting betterhelp.com/naturallybeautifulAs always, thanks for being a part of the #naturallybeautifulfam, and we hope we enjoy today's episode!For more information about Naturally Beautiful visit:www.naturallybeautiful.coIG: @naturallybeautiful.coFor more information about Naomi Rose visit:IG: @nayrosee
This week, we gave Shanelle some much deserved time off as she graduated with her Masters from Teachers College at Columbia University. So Ayanna wasn't on the couch, talking to herself, we got fellow Lupus Warrior, Advocate, Educator, Coach, AND friend of the podcast Selena Colon to fill in. Ayanna and Selena talked about their experiences with Benalysta, both infusion and self-injection. Selena shared her origin story along with what advocacy looks like to her.Make sure you find Selena on Instagram.And, if you're not following the Queenz, make sure you check their IG.
May is Lupus Awareness Month and we are honored to celebrate another Lupus Warrior. Diagnosed at age 19, Christina Hayes has more than survived her diagnosis but thrived becoming an advocate not only for other Lupus Warriors but for other social justice issues as well. Now in her 30's this mother advocates for paid sick leave with the Mothering Justice organization which has allowed her to tell her story of navigating employment while dealing with Lupus. She founded "The Christina Project" to provide inspiration, comfort and care to patients with Lupus and Lupus related conditions that are hospitalized and their families. Love and support during hospital stays are imperative for healing and recovery which brighten the lives of the Lupus Warriors and their family. She is also active in and a big supporter of Lupus Detroit - A nonprofit dedicated to eliminating lupus as a health problem through advocacy & service - attending monthly support groups, the annual gala, and annual Lupus Walk. She is another amazing LUPUS WARRIOR
Anne Marie Blacketer is the CEO of the Lupus Foundation of America – Texas Gulf Coast Chapter. Lupus is a rare and currently incurable disease that is not benefitting from much media exposure nor is it receiving enough research funding. The Lupus Foundation is changing this by creating support groups and sharing advice on how to alleviate Lupus symptoms. Staying active, taking medicine (although there are currently very few options), staying out of the sun and diet are all important considerations. We also discuss the cruel nature of Lupus which is difficult to diagnose. Often, people suffer for years before being properly diagnosed. The Lupus Foundation online: www.lupus.org/texasgulfcoast
A right of passage for all Lupus Warriors is constantly getting pitched various home remedies that will either help or flat out cure your Lupus. In this episode, Ayanna & Shanelle talk about the weirdest suggestions they've gotten to treat their lupus. They also go on a tangent about "hoteps" that lasts way too long and discuss the differences and benefits of holistic treatments and western medicine. Follow us on Instagram and please share the home remedies you've been bombarded with during your Lupus journey.
Hello! Thank you so much for joining Ayanna & Shanelle on this journey. This is a quick teaser, spoiler of what this podcast is about. We look forward to sharing our experiences living with this "cruel mystery" and connecting with fellow Lupus Warriors.
In this episode, we chat it up with Monica from The Bronx! She speaks on navigating life as a single lady alongside of how it's been going living with the challenges of Lupus. Knowing her for over 10+ years, she was a beacon of light for many youths and still is to an extent! Monica is one of the few persons who has seen our relationship of boyfriend and girlfriend blossom to husband and wife. Here is an interesting fact about Monica - she actually guided us through the world of podcasting, so can she been revered as our podcast mentor! Monica has her own podcast - check it out! https://open.spotify.com/show/1Z6CNLZXlF22dQ1YwnunA7 https://instagram.com/withmonica.co?utm_medium=copy_link --- Send in a voice message: https://anchor.fm/itsrelational/message Support this podcast: https://anchor.fm/itsrelational/support
Even the most well-intentioned people can say things that can deeply wound people with lupus and other chronic diseases! The LupusCorner Team discuss the many things that should be avoided when talking to people with lupus, and highlighting the things that should be said instead. Tune in for the newest episode of the LupusCorner Podcast!
Kelsey Alamillo is not only a Musician, Avid Weightlifter, Content Creator and Occupancy Specialist in Real Estate, but there's a side of her that many don't know: She was Diagnosed with Lupus at 13 and has been living with it for 10 years. With a secret many wouldn't guess, she opens up about living with such a life changing diagnosis and how her life has changed since that young age. I even get personal and discuss life after being born with Asthma. A lot of fun, laughs and honesty in this episode. Never judge a book by it's cover! You can follow Kelsey on IG @HunnyKelsey --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/princeoffreshair/message Support this podcast: https://anchor.fm/princeoffreshair/support
Cold weather is no joke! Cold temperatures could be causing painful flare-ups for Lupus Warriors. The LupusCorner Team discuss this connection, the best ways to stay warm this winter season, and the role of lupus fevers! Tune in!
Episode 6 is here! The LupusCorner Team discuss the societal expectations and social norms that many Lupus Warriors must deal with on a daily basis. As well as providing six valuable tips and tricks to help you navigate these expectations! We also dive into The Spoon Theory, and examine the importance of managing energy for people with lupus.
Feeling that sense of accomplishment is linked to well-being, but many Spoonies struggle to feel that because they are limited in their daily activities. If this sounds like you, then in tune in because APS and Lupus Warrior, Darren Radke shares how he manages to feel a sense of accomplishment often, despite having two chronic illnesses.In this episode we talk about:two coping skills: music and exercisewhat gives Darren feelings of accomplishmenthow having fun is important for the well-being of chronic illness warriorsDarren's new book, Deceived From WithinGuest BioDarren Radke is a 49 year old male, from Marshall, Wisconsin. Proud Husband and a Father of two. He has an Associates Degree in Business Management. Loves to exercise when his body allows, study history, music enthusiast and a huge Green Bay Packers fan. First time Author with hopes to help others living with Invisible Chronic Illnesses.Check out Darren's website: www.deceivedfromwithin.comFollow Darren on Instagram @deeradke_apsandlupusFollow the show on Instagram @chronically.living_Check out the companion blog: www.chronically-living.comSupport the show on Patreon.
Our guest for this episode is Claremont's own Dr. Monica Blied, the co-author of 12 journal articles, 4 book chapters, and over 60 conference presentations, and is an Adjunct Professor at Pepperdine University. She serves the public through her work on the Medical Advisory Board for Lupus LA (as a Lupus Warrior) and the California Psychological Association. As a Clinical Psychologist who specializes in the testing and assessment of ADHD (Attention Deficit Hyperactivity Disorder) and Autism. Additionally, and unlikely in equal measure, she is a mother of 3, the founder of Faces of Health Wellness Center, providing integrative care to adults with chronic medical illnesses, and she also teaches Chair Yoga. In this interview, Dr. Blied recounts the path to her many achievements, the personal drivers behind her passion for helping teens and adults - especially women - who may have had ADHD or Autism all their lives, yet it went undiagnosed for a variety of reasons. She offers insight and recommendations on living with Lupus, keeping one's faith in the face mounting challenges, and her perspectives in turning what others look at as handicaps into superpowers,Dr. Blied's likeable and humorous demeanor combined with her uplifting and inspiring accounts of some of her greatest successes will give your day a boost and, we hope, encourage some to get the help they genuinely need - a great listen either way.-------------------------------------------------------------------------------------------------------Contact Information:Direct : 909-741-2849email: drblied@drblied.com Private Practice info: www.drblied.comADHD Evaluations: www.drblied.com/adhdwww.linktr.ee/drbliedFor appointments www.drblied.com/schedule-appointment/
This week marked the 31st Anniversary of the Americans with Disabilities Act. This episode we brought in our fellow HR colleague, friend, and Lupus Warrior, Ayanna McKinley to talk about her journey with Lupus and discuss her thoughts on disabilities in the workplace and how employers can respond and be better equipped to support people with disabilities. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/thecareersalon/support
Mina was born in the UK and moved to Nigeria when she was five years old. Mina had a carefree childhood growing up in Northern Nigeria with siblings, before deciding to move back to the UK at sixteen to continue her education. Mina shares more about this challenging time in her life, from losing her mother at eighteen years old and having to work three part time jobs to support herself as she continued her education to become a Doctor. Mina talks about her reasons for deciding to join the army and how she incorporated fitness into her already busy schedule. Mina talks about her passion for running and why its such a big part of life, she talks about training, jegging and taking on her first marathon and what she has learned along the way, and why she has kept on running even after being diagnosed with Lupus (autoimmune disease) a long-term condition that causes joint pain, skin rashes and tiredness. If you are passionate about running then this is the episode for you to listen to, Mina will inspire you to take your first step and to sign up for a marathon, whether that's taking on a fast flat marathon like the Berlin Marathon or deciding to head to New York City to experience a running atmosphere like no other. Listen to Mina now on the Tough Girl Podcast - available on iTunes, Stitcher, Soundcloud & iheartradio. New episodes go live every Tuesday and Thursday at 7am UK time - Make sure you hit the subscribe button so you don't miss out. The Tough Girl Podcast is sponsorship and ad free thanks to the monthly financial support of patrons. To find out more about supporting your favourite podcast and becoming a patron please visit www.patreon.com/toughgirlpodcast. Monthly and annual options available. Show notes Being born in Newcastle Moving to the North of Nigeria at 5 years old until 16 Being the middle child Being able to walk to school and living in a very peaceful area Spending a lot of time outside Moving back to England at 16 for her education Wanting to be a Doctor from a young age Her journey to joining the military in the UK Being independent from a young age Working 3 jobs while being in full time education How it all changed in her 3rd year at University Being accepted into the Army Being able to focus on her studies full time Broken sleep and studying for University Kindness of strangers who helped her Not getting the A'Level grades she needed Losing her mum at 18 Going back to college for another year and getting offered a place at Southhampton How fitness and maintaining her health during stressful times Finishing university and focusing on her military fitness Learning how to run and focusing on swimming Being taken outside her comfort zone Being stubborn and not liking to be told no What drives her Learning to be comfortable in her own skin Starting to love running Deciding to run her first marathon to raise money for charity Signing up for the Berlin Marathon The benefits of going on long runs Being diagnosed with Lupus Jeffing - walk/run Figuring out her run training and focusing on her pace The Hanson Marathon Method Happy memories from the NYC marathon Telling her story to inspire young women The Namu Project Visiting Internally displaced people (IDPs) at camps in Nigeria Crochet with plastic bags Maintaining her positivity when there is so much to do Needing to impact one person Taking her children to the IDP camps How the charity is coping doing Covid Wanting to teach basic breast examination to women Final words of advice to motivate and inspire Social Media Namu Project - “Namu" is Hausa for "ours". A charity working towards alleviating poverty through training, education and empowerment. Website namuproject.org Instagram - @thenamuproject Instagram - @justdoing.m.e
What do you do when your own body attacks itself? Some days it simply hurts to move but you fight through it. Join me as we listen to the story of two beautiful Lupus Warriors; Victoria Roberts and Gabrielle Davis in “The Butterfly Stamp”.
What's up Everyone, welcome back to Finer Thoughts Creator With Cali!! On this episode I discuss with Lupus Warrior Danielle Hall ,her journey battling with the debilitating effects of this disease. She shares her journey and what she goes through daily, having her faith and support system shaken and then strengthened. I know you will be encouraged by this episode! To support this podcast click my link @ Paypal.me/finercali it is greatly appreciated! --- Send in a voice message: https://podcasters.spotify.com/pod/show/calida-finercreator/message Support this podcast: https://podcasters.spotify.com/pod/show/calida-finercreator/support
No victims here - A bond of love between father and daughter despite Lupus! Toya Oglesby has had a life saturated with love and support. She saw the effect Lupus can have on individuals and their families as a child. Her father had Lupus and passed away when Toya was twelve. Her sharing her life as a Lupus Warrior is not only a testimony to her personal resilience and strength but also a story of the love between father and daughter. Lupus is a disease that occurs when the body's immune system attacks its own tissues and organs (autoimmune disease). Inflammation caused by lupus can affect many different body systems — including the joints, skin, kidneys, blood cells, brain, heart, and lungs. No two cases of lupus are exactly alike. Although lupus affects people of all ages, it's most often diagnosed between the ages of 15 and 45. Lupus is more common in African Americans, Hispanics, and Asian Americans. Ninety percent (90%) of people living with lupus are women. Despite the flare-ups that have affected her life Toya has received her BA in communications from Wayne State University, and her MBA from Northwood University. She currently is the Chief Operations Officer for Express Dumpster Services and has numerous volunteer partnerships. She strives to live a waste-free life by campaigning about environmental awareness and advocacy. Lupus Detroit is a voluntary health organization dedicated to eliminating lupus as a major health problem through education, advocacy, and service. Lupus Warriors provide resources, education, and support for one another. Because of the pandemic, the organization is not having its two annual fundraisers. Instead, it is holding a raffle. The drawing will take place on June 1st. To enter Text GIVE to 313-214-2917. You can also make a contribution for the general support of Lupus Detroit by texting to this number.
The WMN tell their stories of battling and surviving Lupus and Cancer Follow the ladies of WMN N A Mic on instagramSpicey | Kay Chantel | Major Payne | Tiki GET MORE of Yale RadioCast on ALL social Media Sites• Yale RadioCast LIVE • Facebook • Twitter • Instagram • Youtube •Support the show (https://cash.app/$YaleRadiocast)
May is Lupus Awareness Month! Tanesha Townsend, entrepreneur, Lupus warrior, and pageant queen, is our guest today. In this episode of Soul Stories, Tanesha chats with Rukiya Michele about her work as an entrepreneur and pageant queen and how she uses both platforms to raise funds for and awareness about Lupus. Tanesha uses her own Lupus experience to help others. In this episode, Tanesha shares great advice for listeners of all ages and walks of life. To learn more about Tanesha and Swag Styling follow her on social media: @itz_me_tanesha. Tanesha Townsend [S2E67]. Be sure to subscribe to Soul Stories. If you've enjoyed this or any episode of the podcast, please make a donation via our Soul Stories page on Anchor (anchor.fm/rukiyamichele). Thanks for listening! About the show: Soul Stories is dedicated to centering Black stories. Everyone has a story that must be told, a story that they were born to tell. Our stories matter. Your story matters. This is Soul Stories, where we tell our stories. About the host: Rukiya Michele is the show's host and creator. Rukiya Michele is a former college professor who was born to tell stories. Rukiya Michele is a natural storyteller mixed with a little ethnographer and a lot of griot. For feedback on this episode or to pitch a story to her, you may email Rukiya at RukiyaMichele2@yahoo.com. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/rukiyamichele/message Support this podcast: https://anchor.fm/rukiyamichele/support
May is Lupus Awareness Month. May 10, 2021 is World Lupus Day. This year let's share our stories of how we live with lupus. If you are a friend or family member of a Lupus Warrior, share how you support them. Let's take away the mystery of lupus. Lupus Foundation of America: Lupus.org Get the book “Living Life with Lupus” on Amazon: Living Life with Lupus-A Guide to Living A Full Life While Having Lupus. How to connect with Gwen: Email: gwen@thegwenalexander.com Website: thegwenalexander.com/lupus-life-podcast Facebook: facebook.com/lupuslivingpodcast Instagram: instagram.com/thegwen1685 Disclaimer: The information in this podcast is for informational purposes only. The opinions of the guest on the podcast are their own. The host of the podcast is not a medical professional. You should consult with your doctor
Best Selling Author of Novellas Sapphic Island Series & She Knows Angel speaks to us and shares her love of writing and her poetry, Listen & Support. We thank you in advance. Her Publishing Company Blue Notebook Publishing Consultant & fighting lupus daily. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/goddess-mouzon/support
Listen to this powerful message of courage and hope, as Justin discusses his journey with lupus, suffering strokes and a heart attack to becoming a Fitness expert. He also discusses various modalities that he believes are crucial when you are living with a chronic illness, and for everyday living as well: Hydration Nutrition Having a hobby Mindset health Financial growth and legacy wealth The power of WORDS Reducing stress --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/gina-welds-hulse/support
Many cultures associate the butterfly with our souls, as a symbol of resurrection, as representing endurance, change, hope, and life. Sandra Epps is all this and more. A survivor of Systemic Lupus (SLE) for which the butterfly rash is often a symptom, Epps has adopted the butterfly as a symbol of her strength, resiliency, and creativity. . Her triumph over Lupus inspired her first self-published children’s book -- Imani Has the Most Exciting Dream! Epps is an artist and author. She is also the Founder of Sandy’s Land LLC and the Detroit Doll Show. The Detroit Doll Show strives to inspire black and brown girls of all ages to “Love the Skin They’re In.” The charge is to celebrate history, culture, self-love, and diversity with the promotion of dolls of color. It is the largest black doll show of its kind. Epps also established SHE’S Empowered, (Sisters Helping Encourage Sister) which was an organization created to encourage women to live healthy in mind, body, and spirit and to increase lupus awareness. The Women’s Empowerment Conference BUTTERFLY BASH has been pivotal in providing empowerment from professional speakers, tackling health disparities with black women, intriguing attendees with creative fashions from local designers, and closing out the event with surprise entertainment. Epps’ story has been featured in the media locally and nationally. She has also been recognized for her work to help women to live their best lives on their own terms.
As Collections by Michelle Brown – Blog Radio enters its 4th year we are taking time to reconnect with old friends who have shared the gift of telling their stories with us by rebroadcasting some of our favorite past interviews that celebrate the strength, inspiration, courage and love of our human spirit. Sharon Harris is a community jewel, a queen, a friend, and a LUPUS Warrior. Back when we first met in 2017 when this interview was recorded, we had never met, and my knowledge about LUPUS was limited. A month after graduating from Florida A & M University, she was diagnosed with lupus. When her lupus went into remission she became a flight attendant. Her reasoning was if lupus was going to attack her, it would have to find her on the beaches of Aruba or high above the Eiffel tower. I late 2008 Sharon experienced a lupus flare so great that her doctor told her there was nothing left that he could do. She moved back to her native Detroit. Following a career with the Lupus Alliance of America Michigan Indiana Affiliate. She went on to found LUPUS Detroit a support and advocacy organization for LUPUS Warriors. The organization hosts monthly support meetings and pre-2020 has hosted annual events including a brunch/gala and walk to raise funds to provide services for Lupus Warriors. A scholarship fund helps Lupus Warriors return to school. The organization is primarily volunteer-based with Sharon at the helm raising funds, cheering members on, providing support and encouragement while fighting her own battle against this disease with no known cure. This is a rebroadcast of an early interview with Sharon Over the years she has introduced us to others who were living and thriving with LUPUS.
Nicole Woody is the wife of 2 X Super Bowl Champion and ESPN Analyst Damien Woody, a mom of seven, and a Lupus Warrior. __________________________Today on the podcast we discussed what life has been like having her whole family home since the pandemic, how her kids are handling remote learning, and the importance of sneaking away for date nights.__________________________Please follow me: FB & IG: @stayathomemomyeahright and Twitter: @homeyeahright
My guest this week is Sarah Eni, a lupus warrior who shares her experiences living with lupus for the past 15 years, and what she has found to be helpful for her including diet changes, self-care, and cannabis.In this episode we talk about:lupuskidney failureholistic approaches to healthbenefits of dietself-care strategies for mental healthmedicinal uses of cannabis and cannabis legalizationGuest Bio:Sarah Eni is a lupus warrior of 15 years from London. She's tried a lot of medications, many remedies, and found various ways to live her life. "I am so grateful for our online community where we can share our experience." - Sarah.Follow her on Instagram: @chia.jpgFollow her on Twitter: @ChiaTwote and @SarahEniTwote
Meet this Lupus warrior, Justina Hinterberger. She is a psychotherapist and private practice owner in Cornelius, North Carolina who specializes in women and trauma. In addition to sharing her journey into the Psychotherapy field, Justina shares with us with her personal battle with Cervical Cancer and Lupus The post Episode #21: Lupus Warrior w/ Justina Hinterberger appeared first on Beyond Picket Fences.
Meet this Lupus warrior, Justina Hinterberger. She is a psychotherapist and private practice owner in Cornelius, North Carolina who specializes in women and trauma. In addition to sharing her journey into the Psychotherapy field, Justina shares with us with her personal battle with Cervical Cancer and Lupus The post Episode #21: Lupus Warrior w/ Justina Hinterberger appeared first on Beyond Picket Fences.
The LupusCorner team discusses the role of brain symptoms and brain fog for Lupus Warriors. • Featured segment from Dr. Donald Thomas and Dr. Chaim Putterman on lupus flares, and much more!
Rukiya Michele talks with Tonya D. Bradley about her journey as a teen mom, survivor of domestic violence, and Lupus Warrior. Tonya shares how she has dealt with abuse, diminished self-worth, and an auto-immune disease to become an advocate for others. And this leads us to a great question: in what ways have you been an advocate for yourself and others? How have the so-called bad decisions of your life served you well? Tune in, relate, and share this episode with your family, friends, neighbors, and coworkers. Thanks for listening! For more information on Tonya and the work she does, follow her on social media: Tonya D. Bradley. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/rukiyamichele/message Support this podcast: https://anchor.fm/rukiyamichele/support
I am so incredibly honored to share with you the story of a very dear friend of mine, Brittany Sandoval. She has been through so so much, and I have been continually inspired by her ability to cope with everything life throws at her. We had so much to discuss, so this is actually part 1 of our conversation. Part 2 will be available on Episode 4, which should release soon! I hope you enjoy!
In this episode, I learn about Lupus from Toni Grimes. She is a survivor, and ambassador, and advocate, and a spokesperson for the Lupus Foundation Of America. Listen and learn with me, the help the cause! See omnystudio.com/policies/listener for privacy information.
Antonette is a Lupus Warrior who has been fighting since 2007. She has been through many ups and downs since being diagnosed but it hasn't stopped her from LIVING the life that she wants to live, even when fighting for her life in 2018 from a huge PE ( pulmonary embolism), blood clot to the lungs that caused her to lose half of her right lung, getting two blood transfusions and catching the flu while being hospitalized but that didn't stop her. Why? Antonette started her business ( Live. Love. Juice) in 2016 after visiting Dr. Sebi's USHA Village in Honduras and learning about all of the products that Live. Love. Juice currently carries. These particular products helped her so well, she thought why not provide them for others that are trying to manage their illness naturally or just want to live a healthier lifestyle. Being in fashion retail management for 15 years really helped her and showed her how to run a successful business. She continues to stay focused and grounded and for that, Live. Love. Juice continues to blossom, hence the reason why she loves sunflowers so much because they start off as a seed then blossoms! Shop https://www.livelovejuice.net --- Send in a voice message: https://podcasters.spotify.com/pod/show/protectyoenergy/message
It's been 20 years since I was diagnosed with lupus and what a challenging journey this has been. Join me as I share my lupus story, talk about what lupus is and how it affects my daily life, the complexities of navigating lupus and coronavirus, and the resources available for those who desire to learn more. --- Send in a voice message: https://podcasters.spotify.com/pod/show/candidandcaffeinated/message
Because of the COVID-19 pandemic Lupus Detroit’s main fundraising events – The Lupus Detroit Brunch in May and the Walk for Warriors in the fall have been canceled but the work continues. Sharon Harris, Lupus Detroit Founder/Executive Director, talks about how the organization continues to provide support for warriors including virtual meetings and webinars, and introduces another phenomenal Lupus Warrior Kalyn Risker Fahie. Kalyn is not only a Lupus Warrior but also a survivor of domestic violence. After escaping her abusive relationship she went on to found SAFE - Sisters Acquiring Financial Empowerment - to equip survivors of domestic violence with the appropriate financial tools and resources needed to enable women to leave or recover from the economic portion of domestic violence. In 2015 she married and moved to St. Thomas in the US Virgin Island but continued to run SAFE long-distance with the assistance of a group of dedicated volunteers. In 2016 she joined The Virgin Island Domestic Violence and Sexual Assault Council as program liaison. The Council is a leader of the Domestic Violence and Sexual Assault Awareness cause. She still visits Detroit regularly for SAFE and to support her Lupus Warrior family.
May is Lupus Awareness Month and on Lupus Day, the 10th of May 2020 we Join Lupus Warrior Pontsho Hlakoane , who has been diagnosed with the condition in her fight against Lupus as she dispels myths on the rarely known condition.
May is Lupus Awareness Month and we get to dispel all myths regarding Lupus , with Lupus Warrior Pontsho Hlakoane who has been diagnosed with the condition and is living with a positive outlook on life.
May is Lupus Awareness Month and on Lupus Day, the 10th of May 2020 we Join Lupus Warrior Pontsho Hlakoane , who has been diagnosed with the condition in her fight against Lupus as she dispels myths on the rarely known condition.
Lupus Warrior Pontsho , will be joining Inclusive SA Magazine on Lupus Awareness Day , and that is on the 10th of May 2020 to share on how she’s taking the Lupus fight head on together with other Lupus Warriors.
We don't know how STRONG we are until being strong is the only CHOICE we have. Kenzie defines who she is , Lupus is just a bully she beats every morning whenever she gets out of her bed. Living with lupus means waking up every morning with a single desire to have a pain free day... In spite of her struggles she embraces life with kindness and dares to live it to the fullest. One experience, one moment at a time.... Fighting an Invisible battle and winning it everyday. She is a WARRIOR. Tough Times don't last but TOUGH people do..... learn from Kenzie's journey as she shares her battle in fighting LUPUS.
We don't know how STRONG we are until being strong is the only CHOICE we have. Kenzie defines who she is , Lupus is just a bully she beats every morning whenever she gets out of her bed. Living with lupus means waking up every morning with a single desire to have a pain free day... In spite of her struggles she embraces life with kindness and dares to live it to the fullest. One experience, one moment at a time.... Fighting an Invisible battle and winning it everyday. She is a WARRIOR. Tough Times don't last but TOUGH people do..... learn from Kenzie's journey as she shares her battle in fighting LUPUS. if you want to know more about Kenzie - you may find her on Facebook, instagram. email: kenzieannegrant@gmail.com
Lupus Rebel aims to create a movement among those who are not just struck down by Lupus, but those who fight back and work to heal no matter what. Are you a true Lupus Rebel?
What if you were diagnosed with an autoimmune disease tomorrow? What would happen to your job… your family… your life? What are the right “next steps” to take? What if you’ve been dealing with it for years, but something recently made you realize that your life is far from over? Things aren’t as bad as they might have seemed, and indeed, you were not alone? Danielle Turco was diagnosed with lupus while she was pregnant with her son. She spent many years altering her diet, exercising and doing tons of research to see what worked for her. Gaining control of her own health and happiness became a mission for her. Danielle is now the director of Laxin’ For Lupus (a nonprofit founded by her son in her honor). She’s also an AFAA Certified Personal Trainer, a Certified Life and Health Coach and most importantly LUPUS WARRIOR!!! Visit Danielle’s site: https://www.ketolupie.com Instagram: @Ketolupie Facebook: https://www.facebook.com/danit813 Connect with William Facebook: https://www.facebook.com/william.winterton.7 LinkedIn: https://www.linkedin.com/in/william-winterton/ I help talented coaches attract first-class clients at first-class prices, so they can quickly and reliably build a 6-figure business doing what they love. Visit https://www.WilliamWinterton.com to see my exact process!
It’s time for the Lupus Detroit 7th Annual Walk for Warriors. Val Harris Carter is the organization's Board Secretary and Shannon Hester is a Lupus Warrior. Val has been involved with the organization since its beginning stepping out on faith with Founder/Executive Director Sharon Harris to start this organization to fill a gap left by the more traditional Lupus organizations. Val has lost two family members to this disease. She uses her background in communications and marketing to inform and an educate others about the disease and build support for Lupus Detroit. Shannon is one of those Warriors who has found home, community, and family at Lupus Detroit. She was diagnosed with Lupus in 2002. The disease attacked her kidneys and she has battled it for the past 17 years. Lupus Detroit is a community based, voluntary health organization dedicated to eliminating lupus as a major health problem through education, advocacy, and service. The organization has assembled a hard-working and dedicated group of empathetic professionals to serve Lupus Warriors but its commitment goes even further. Lupus Detroit believes that no Lupus Warrior should have to decide between purchasing their medication and buying food for their families. The organization realizes that everyone needs assistance from time to time. They offer emergency financial assistance grants in addition to awareness and advocacy events. For Warriors its more than a handout, it’s a community. It’s a family! The walk takes place Saturday, September 7th. Registration can be made online or the day of the event at New Center Park in Detroit. Registration and donations can be made online or the day of at the event. No team, no problem – everyone in attendance whether a Warrior or just there to support is a member of the Lupus Detroit family. You will feel the strength, determination but most of all the love.
We are so excited to share with you the fiercely strong, fun, and inspiring Victoria Frye. Victoria founded the Black Lotus Sanctuary Collective, a nonprofit that assists people through whatever transformation they are going through and she is currently in training for her 500 RYT. Victoria tells us about her journey as a lupus warrior and how she got into the fitness world through hiphop dance classes and bikram yoga. We go on to discuss how these lead her to develop her own teaching style of yoga (Black Lotus Sanctuary Vibes) that accepts all body shapes, sizes, colors, and sexual orientations, her passion for seeking out communities that are underserved and cheering for the underdog, and how it has been so important for her to create a space that is welcoming and allows people to be seen, not only in the studio, but outside the walls of the studio as well. She goes on to inspire us through her commitment to her lifelong friendships, choosing a partner/husband who has similar morals and values, and how together they consciously parent their sons. The conversation ends with us discussing the future of the health/fitness/wellness industry and how important it is for our students and ourselves to continue to be aware, conscious, and grow as a yoga instructor. Follow us on Instagram! @stayingconsciouspodcast Where to find Victoria: Instagram:@black_lotus_sanctuary @victoriaj_bls Facebook: Black Lotus Sanctuary Seven Studios on Wednesday nights (FIRST CLASS FREE!) Book Recommendation: Yoga for Trauma
Barbara Alexander is a Lupus sufferer and ambassador Barbara's Instagram https://www.instagram.com/binthecenter/ Our Pages www.facebook.com/1aweekchallenge www.instagram.com/_1aweek www.1aweekchallenge@gmail.com *Trigger Warning* If this episode in anyway made you feel like self harming, or you need in general, please contact one of the numbers provided below. National Suicide Prevention Lifeline: 1-800-273-8255 Depression and Bipolar Support Alliance (DBSA): 1-800-826-3632 SAMHSA Treatment Locator: 800-662-4357
Rainbow Blak talks your health is your wealth vibes. Living with Lupus and clawing back energy through positive thinking, doing and her therapeutic works. She also talks about getting distracted by Director Ava Duvernay's groundbreaking mini series "When They See Us " and how it affected her and her brother. Ampersand The Enigma Podcast is now available on the below platforms enjoy. Like, listen, rate, share & subscribe. Thanku xx https://open.spotify.com/show/0OpiwAQWCB7tzVW2kgnW9X https://www.breaker.audio/ampersand-the-enigma-podcast https://pca.st/Ps32 https://podcasts.apple.com/gb/podcast/ampersand-the-enigma-podcast/id1458766364 https://anchor.fm/atep https://overcast.fm/itunes1458766364/ampersand-the-enigma-podcast https://radiopublic.com/ampersand-the-enigma-podcast-GmkMED Hit me up on my socials Ampersand the Enigma Podcast, share on your socials and subscribe. Connect and show support via my socials; www.instagram.com/ampersandtheenigmapodcast www.twitter.com/ampersandtheenigmapodcast Email:rainbowblak@hotmail.com www.twitter.com/RainbowBlak Musik By Rainbow Blak- Copyrighted © --- Send in a voice message: https://anchor.fm/atep/message
May is Lupus Awareness Month! This episode touches on the disease itself, what you can do to hopefully improve the outcome of your pregnancy and some of this import things we as physicians watch out for in a woman who is pregnant with Lupus. I do not claim to know everything about Lupus or Lupus in Pregnancy, that why in these scenarios I work with a team. But! I have cared for patients with Lupus in pregnancy and have family and friends with the disease. This episode is for everyone to learn and understand just a little more about the effects of lupus on the millions of Americans that have been diagnosed with this autoimmune disease.
Shortly after graduating from FAMU, Sharon Harris was diagnosed with Lupus. She not only lives with Lupus but thrives and provides support and encouragement for others living with this chronic autoimmune disease. Sharon says she didn’t wake up one morning after graduating from college and say she wanted to start a non-profit organization about this disease. She wanted to be Oprah! But apparently, God had a different plan.” Rosetta “Rosie” Shaw is from Detroit. In 2005 she had to travel to San Diego, California for surgery related to complications from LUPUS. There wasn’t any organization to help this young mother and her young son. Back in Detroit a few years later she was introduced to Sharon Harris and Lupus Detroit and she found a village of survivors there to support her emotionally and spiritually. Lupus Detroit believes that no Lupus Warrior should have to decide between purchasing their medication and buying food or providing for their families. Everyone needs assistance from time to time. Lupus Detroit offers emergency financial assistance grants in addition to awareness and advocacy events. The 7th Annual Lupus Detroit Brunch takes place Saturday, May 18th. This fundraiser is one of the activities that allow Lupus Detroit to continue serving the community. With no paid staff or offices, to date Lupus Detroit has been able to give over $60,000 to assist Lupus Warriors with expenses incurred due to complications from the disease.
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Sharon Harris, founder and director of Lupus Detroit, and Lupus Warrior, Francine Houston are here to talk about the 6th Lupus Detroit Walk for Warriors/ It takes place Saturday, September 1st. Walkers will gather at the New Center Park at 9AM for registration, warm-ups, and festivities before beginning the 1K walk. Lupus Detroit believes that no Lupus Warrior should have to decide between purchasing their medication and buying food for their families. Everyone needs assistance from time to time. Lupus Detroit offers emergency financial assistance grants in addition to awareness and advocacy events. The fundraising goal for this year's walk is $50,000. Participants can form teams or just walk with others. The registration fee is $20 for Walkers over 12 years of age. Sharon Harris is the founder of Lupus Detroit. Shortly after graduating from FAMU, she was diagnosed with lupus. She not only lives with Lupus but thrives and provides support an encouragement for others living with this chronic autoimmune disease. Francine Lakeisha Houston is a lupus survivor. She wrote a book for people with lupus called “Lupus Journey”. A multitalented individual who enjoys fashion, graphic/media and writing, she has founded two businesses. She has a bachelor’s degree in communication design and associate 's degrees in applied graphic design and fashion design. from College for Creative Studies.
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I interview 6 complete strangers on their creative experience.
Pineapple Richmond, also known as Pineapple Soda, is a Lupus Warrior, a fighter and advocate. She is also the founder of 4EKG and Chemo Cuties. Ms. Pineapple is the CEO and owner of Pineapple Productions, which creates graphics & logos, promotional materials, event makeup, photography, and photo editing. 4EKG (For Every Kind of Girl) is a FB Support Group for Women.Chemo Cuties and Cliques is an edgy FB page for Chemo Patients, Supporters, and Friends to be normal, open, and able to vent and share. We remind people that we are still human. Chemo Cuties’ Wig & Weave line is coming soon, June 2018. Please follow Chemo Cuties Radio @ChemoCuties on Twitter; new followers are welcomed.Twitter handle: @MsPineappleSodaInstagram: @mspinappleslifeSpecial Promotion for our listeners (only): Anyone who follows @ChemoCuties on Twitter and Periscope will be entered in a drawing to receive a FREE Promotional Video that showcases their products and/or services. There will be 5 winners! Must enter by Friday, May 18, 2018 by 12:00 AM EST.
No assholes! Liz and Sarah talk to ABC's Agents of Shield Executive Producer, Maurissa Tancharoen, about her "no asshole policy" -- and about being a high-powered, ass-kicking writer/producer, boss, and mom all while living with Lupus. One way she copes — embracing the Spoon Theory. Then Liz has a Hit this week — reading books to Jack’s class at school — and Sarah has an exercise-related Bomb. Finally, this week's Hollywood Hack will up your parenting game: create a kid bag for the car.
Beverly Humphrey is a 67-year-old African American woman who was diagnosed with lupus in 1976 at age 26. She has been living with the disease for 41 years. Beverly was the first in her family to receive a diagnosis of systemic lupus. Her younger sister was diagnosed two years later and passed away in 2001 from complications related to lupus. Years later, Beverly's oldest niece was also diagnosed with lupus. By that time, Beverly had been living with lupus for 27 years and was instrumental in getting her niece to the proper health care services. Like most lupus patients, Beverly has experienced her share of challenges in her determination to live victoriously in spite of this difficult diagnosis. Some of her achievements include earning her Bachelor's degree in social work in 2006 and just this past May, earning her master's degree in counseling from the University of Detroit Mercy. Beverly has served as a leader, and speaker for many women’s groups on a variety of topics ranging from spirituality, HIV/AIDS, to what it means to live with lupus. Most importantly Beverly is passionate about helping to encourage and empower women to live their best lives not in spite of the challenges they face with a lupus diagnosis, but because of those challenges. She truly is a LUPUS Warrior.
What does it mean to be a warrior for a cause? In honor of Lupus Awareness month, we sat down with Jokiva Bellard, lupus survivor; lupus warrior. This interview captures an honest picture of this body-attacking illness and the journey one young woman is taking each day to address her body, her condition, and her life. Her message to women everywhere - love yourself.
Lupus is more pervasive and severe than people think, and has a devastating impact that the public doesn't realize. In fact, research shows that a staggering two-thirds of the public knows little or nothing about lupus. You can help change that. May is Lupus Awareness Month. Joining Collections by Michelle Brown is the founder of Lupus Detroit, Sharon Harris. Ms. Harris not only lives with Lupus but thrives and provides support an encouragement for others living with this chronic autoimmune disease, living with both systemic and discoid lupus, Harris founded Lupus Detroit to not only provide emotional support but to also assist Lupus Warriors with daily challenges including paying for medicine, rent and other financial expenses. Lupus Detroit is celebrating its fifth anniversary with a gala celebration on May 20, 2017. Despite suffering, two strokes in 2016, Sharon Harris continues to work to help others not just survive bit to thrive and celebrate their lives.
The Life Lab is a bi-monthly radio show that empowers listeners to be the best version of themselves. Through reframing problems into challenges that can be met, co-hosts Jace and Lex examine personal-social connections, give holistic tips and strategies and promote self care and positive change. Each episode features words of wisdom from a special guest that is on a journey of their own making! Jace is a lyftologist, musician, singer /song writer, fundraiser and youth empowerment specialist who loves seeing the internal transformation that comes from people taking their health and well-being to the next level. Lex is a social justice advocate, media writer/producer and emotional healer who lovessupporting people to be their best, most authentic selves and live the life of their dreams. Special Guest : Seda Bryant and Tim Taulbee Lupus Activist Seda Bryant is an overcomer, mother, blogger, graphic designer and philanthropist, who is using her gifts to transform pain into purpose. Lupus is an autoimmune disease with no known cause or cure, causing the body to attack itself. A cruel mystery, it masks itself as other diseases. Through her Instagram Blog and the #Overcome Lupus Movement, her goal is to elevate the brand awareness of Lupus in the public to the level of Breast Cancer. Her raw, witty and insightful posts provoke thought and uniquely challenge perceptions about Lupus and chronic illness.Tim Taulbee has been living with Lupus for the past 5 years. A as music producer for years, since discovering he was living with Lupus he has since used his platform to bring awareness in the disease. With the help of some well known artist in the industry Layzie Bone and Lil Eazy-E.Tim has turned from your everyday guy to an activist on the move. His mission is to educate people about the disease. IG @lupus_warrior80.
May is Lupus Awareness Month! Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints and/or organs inside the body). African-Americans are three times more likely than Caucasians to develop lupus and with greater severity. Black females disproportionately are burdened by lupus. Joining CAN WE TALK FOR REAL ,May 25, 2016 is Sharon L. Harris, founder and president of Lupus Detroit. Ms. Harris will share her journey from diagnosis to Lupus Warrior raising awareness about the disease and advocating for others stricken with Lupus so they could also not just survive but thrive.A month after graduating from Florida A & M University, she was diagnosed with discoid and systemic lupus. Soon after the diagnosis, she had a “what if tomorrow is never promised” moment. Shortly after the lupus went into remission, she passed two rigorous interviews and six weeks of training and became a flight attendant for Mesaba Airlines. Her reasoning was if lupus was going to attack her, it would have to find her on the beaches of Aruba or high above the Eiffel tower. In late 2008 threatened her health and well-being. Sharon experienced a lupus flare so great that her doctor told her there was nothing left that he could do. He then patted her on her back and told her “good luck”. Within a year, Sharon raised more than one million dollars in pledges, in-kind donations and sponsorships for the organization. In 2009, her Lupus Walk team raised almost $5,000 for lupus research. This led her to be a sought after lupus advocate, participating as a guest on radio and television. She has travelled to Washington D.C to lobby Congress and the Food and Drug Administration (FDA) on behalf of those with lupus. The genetics of lupus in minority populations is starting to get the attention it deserves in part due to the efforts of Warriors like Sharon L. Harris.
TONIGHT WE WELCOME DYON DAVIDSON! DIAL IN 657-383-1581 TO LISTEN TO HER INCREDIBLE STORY OF SURVIVAL, WHETHER FROM HER DIAGNOSIS OF LUPUS OR DOMESTIC VIOLENCE. DYON IS ALSO THE CREATIVE OWNER OF BEADLY SPEAKING. HEAR HOW SHE USED HER CREATIVE GIFTS TO DEAL WITH HER JOURNEY TO WELLNESS AFTER SEVERAL HEALTH CHALLENGES IN HER FAMILY. TO REACH DYON CALL OR EMAIL HER: 410-812-3475 BEADLYSPEAKING@GMAIL.COM
According to the Lupus Foundation of America, research estimates that at least 1.5 million Americans have lupus. The disease can be challenging to diagnose. The national award-winning radio talk show Let's Talk America with Host Shana Thornton will spotlight lupus on Tuesday, May 5, 2015 at 7:30 pm EST. Our exclusive featured guests will share vital information. Shana talks to renowned physician Dr. Mitchell Gaynor, lupus advocate Sharon L. Harris, popular author Ebonee Oliver, and acclaimed vocalist Michael Keith for one groundbreaking health edition that will inspire you. Join us! Please support our national sponsors by visiting www.letstalkamericawithshanathornton.com. Thank you!
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