Podcasts about msers

I'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for self-care or providing support during difficult times.As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed. She is passionate about helping those with MS feel better about themselves and the world around them.It was such an honor to be able to interview and meet them both. I hope that you'll be able to feel the love and support they give to each other.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Want to learn more about The Pulse Device?

I'm delighted to present my recent chat with my almost-namesake Cathy Chester and her husband Gary. Cathy and Gary began dating in 1985, the year before Cathy's diagnosis, which means that at the time of recording they have been together for nearly 40 years - incredible!Cathy and Gary share valuable insights into the importance of communication and mutual respect in maintaining a happy and successful marriage, especially when facing the challenges of MS. They also emphasized the importance of empathy and understanding in their relationship. They acknowledge each other's needs and emotions, whether it's taking a break for self-care or providing support during difficult times.As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed. She is passionate about helping those with MS feel better about themselves and the world around them.It was such an honor to be able to interview and meet them both. I hope that you'll be able to feel the love and support they give to each other.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Sign up for the 10 Weeks to Disrupt MS ProgramConnect with Cathy on InstagramRead Cathy's blog, An Empowered SpiritWatch Cathy's Ted-like talk, Cathy Chester—I Wish I Knew Read Katie Couric's profile of Cathy, An MS Advocate On Raising Awareness of Living With a Chronic Illness If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.commoveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you.  How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked them to bring along their partners so we could hear both sides of the story - my own husband included!In the first part of a two-part interview, we talk about how they all met and what their partners already knew about MS - if anything. We also talk about how much carers do for the MSers in their life.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Visit Tyler CampbellConnect with Chris and Nabila DunbarVisit Dan & Jennifer Digmann Visit Julie Stamm If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

For the 100th episode of the Move It Or Lose It podcast, I'm delighted to welcome back a guest who assisted me in one of my first webinars. Dr. Laura Hancock, PhD is a Board Certified Neuropsychologist, specializing in the treatment of people with Multiple Sclerosis. In this episode, we talk about what a clinical Neuropsychologist does, the work that Dr, Laura does at the Cleveland Clinic, and our frustration that a lot of people with MS don't know the benefits that working with a Neuropsychologist can bring. Laura also talks about the things she has noticed about brain function in people recovering from the effects of the pandemic, why she chose to specialize in working with people with MS, and why she wants MSers to rewrite the rules in their own lives. We get on so well because she's a Disruptor like me!Thank you to all of the guests who have appeared on the podcast over the last 100 episodes! More than anything, thank you to you for listening and supporting the work that I do here.Here's to the next 100 episodes!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Connect with Laura on X / TwitterCheck out Laura at the Cleveland Clinic If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack15% discount use code Disrupt15https://www.releafpack.com 

After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok.There are a lot of MSers on TikTok but in this episode, I'm continuing to talk to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her channel to show how she's adapting to life with MS and continuing to thrive.In the final part of our interview, Paige talks about how her MS reared its ugly head again following the COVID pandemic, which led to her canceling the marathons and half-marathons that she'd organized. She tells us how she refused to give up and kept moving, finding new ways to maintain her fitness. Paige also talks about how she discovered TikTok, her favorite things about the platform, and her experiences of being gaslit by medical professionals.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Follow Paige on TikTok and InstagramConnect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

After any Multiple Sclerosis diagnosis, one of the key things that you're going to need is a sense of community. And if you're looking for community online, more and more you will be looking on TikTok.There are a lot of MSers on TikTok but over the next two episodes, I'm talking to one of the most established presences on that site, Paige Butas aka MSfighter 101. Paige uses her channel to show how she's adapting to life with MS and continuing to thrive.In the first part of this interview, Paige tells me about her life as an endurance sport junkie before the onset of her initial symptoms. Even when her first notable relapse grounded her in 2018, Paige still thought that the fact that she was at the peak of her physical fitness would carry her through. Paige also talks about the compassion that she learned through her diagnosis, her experience of choosing MS medication, and the fitness goals that she set for herself following her relapse. Surely MS was done with her at that point, right? Don't miss part two of this episode to find out!DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Follow Paige on TikTok and InstagramConnect with @msdisrupted on Instagram, Facebook, TikTok You can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

Often on this podcast, we feature people with MS, talking to other people with MS, about living with MS. But this time, I wanted to provide an inside look into what it's like when your support person is the person you love and who lives with you.  How do we make our relationships work so we can stay together, despite everything this crappy disease can throw at us? My guests are some of my favorite people from the MS world - Tyler Campbell, Chris Dunbar, Dan and Jennifer Digmann, and Julie Stamm. And where possible, I asked them to bring along their partners so we could hear both sides of the story - my own husband included!In the first part of a two-part interview, we talk about how they all met and what their partners already knew about MS - if anything. We also talk about how much carers do for the MSers in their life.DISCLAIMERThe information in this podcast is for informational purposes only and is not intended as a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare providers with any questions you may have regarding a medical condition or treatment.Links and resources:Visit Tyler CampbellConnect with Chris and Nabila DunbarVisit Dan & Jennifer Digmann Visit Julie Stamm If you're interested in having Kathy speak at your event, learn more hereFind out more about the DMAT Fitness Training programYou can find Kathy Chester at:msdisrupted@gmail.comdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Connect with @msdisrupted on Instagram, Facebook, TikTok Here are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Being a podcaster can be a lonely life. So what better way to begin the holiday celebrations than getting some of your favorite MSers together to talk about our plans for the season? Alongside my guests, we talk about some of the things that can play on our minds during this time of year, particularly when combined with having a chronic illness like MS. Dan & Jennifer Digmann talk about how to handle the stresses of maintaining relationships. Ardra Shephard is here to talk about staying fashionable and feeling good about yourself. Then Kathy Chester covers the different ways that you can maintain your fitness and movement schedule, while Alene Brennan talks about the essential stuff - food choices and cooking!Finally, we all share some of our favorite holiday recipes - link provided below.Topics covered in this episode include:Tools for handling challenging relationships at this time of yearHow to look our best when we're tired, cog-foggy, and stressed? And why should we care?How to find the time and motivation to keep moving and exercisingTips on how to enjoy holiday food without regret - and making yourself feel worseOur favorite holiday food memories and recipesFull show notes and resources at https://fumsnow.com/fums119/See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Tune in for the second part of our discussion with world-renowned Dr. Terry Wahls, creator of The Wahls Protocol. In today's discussion, we'll learn more about Dr. Wahls' role as a researcher. She shares about her upcoming randomized study, Efficacy of Diet on Quality of Life in Multiple Sclerosis.  Diet is often heralded as the key ingredient to managing MS symptoms. But, with over a dozen "MS diets" out there that are often contradictory to each other, how do we really know which one is best? Or is there even one diet that works for everyone? Everyone shares their opinions about the "proper" MS diet, from fellow MSers to complete strangers. But is the only evidence available anecdotal? What makes this study so exciting is that it's the largest, longest, randomized study about diet and MS. Study outcomes will be measured both with physical measures, such as MRI findings and changes in walking ability, and patient-reported outcomes in regards to fatigue and mood. We're all looking forward to the proof in that "gluten and dairy free" pudding. So grab those spoons and let's dig in. In this episode, we'll learn more about the study.  Inclusion/exclusion criteria Location, start date, and duration Physical measures being tested Primary and secondary outcomes 3 different diets being compared Randomization process and adherence requirements Time line of results Dr. Wahls also discusses: The importance of adopting a diet that's realistic for each household The recent updates to her book, The Wahls Protocol, and how results from this study may shape further revisions The carnivore diet as the "ultimate" elimination diet and her reservations about it For more information about Dr. Wahls upcoming study check out these links: Study information Recruitment Poster Screening eligibility Additional links: DR. TERRY WAHLS: Website Book - The Wahls Protocol - with access to BONUS content THE MS GYM: Website YouTube Facebook Instagram  

I'm continuing my exploration of what the MS diagnostic and treatment processes are like for MSers of color. As I mentioned previously, MS is considered a white person's disease. So how does it feel to go through it all when people don't believe that you can have it?For the second part of this series, Dawn Morgan is joined by Tyler Campbell and Mike Stafford. We talked about my guests' health and lifestyle choices, the difficulty of adjusting to an MS diagnosis when there is no one who looks like you in the MS space, and their need to be proactive and become the advocates that they wish they'd had when they were first diagnosed.Thank you so much to all of my guests for sharing their experiences in these two episodes.Links and resources:Connect with my guests: Dawn Morgan, Mike Stafford, and Tyler Campbell Read Some Days: A Tale of Love, Ice Cream, and My Mom's Chronic Illness by Julie Stamm Find out more about my new DMAT Fitness Training programYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgymHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

For some reason, MS is considered a white person's disease. So I wanted to find out how that might affect the diagnostic process - and treatment options - for MSers of color. For the first part of this short series, I spoke to comedian Rosani Christy, Dr. Folake Taylor, and MS advocates Dawn Morgan and Damian Washington. We talked about their own diagnosis stories, the effect of the pandemic and Black Lives Matter, what it's like for them to have a chronic illness, and some things many people just don't get!I wanted to understand more and give a voice to some people that deserve to share, and it was an enlightening and beautiful conversation.  Links and resources:Connect with my guests: Rosani Christy, Dawn Morgan, Dr. Folake Taylor, Damian WashingtonFind out more about my new DMAT Fitness Training programYou can find Kathy Chester atdisruptfitnessgym@gmail.com moveitorloseit109@gmail.com Instagram - @msmoveitorloseit @disruptfitnessgymHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in-store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/ Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com 

Our Pop Up Podcast is covering 10  Tips and Advice with Melody Sapien - Functional Nutritional Therapist and Wahls Practitioner.  Melody was Diagnosed with Multiple Sclerosis at the age of 15 which was 7 years ago.  She focused on nutrition as a way to combat her disease symptoms.  Her passion for nutrition lead her to this career path and is currently helping many MSers and others with Autoimmune Diseases.  She has a youthful and vibrant approach and I think you will enjoy this episode.How to find out more about Melody:Instagram@autoimmune.wellnesswarriors melodysapien@gmail.comYou can find Kathy atdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comFacebook Group: Disrupt and Heal Autoimmune Diseaseshttps://www.facebook.com/groups/239205444262461Instagram - @msmoveitorloseit @disruptfitnessgymPrevinex - Use the same clinically effective supplements that promote Longevity, performance and everyday health as Kathy does.https://www.previnex.com/Use promo code disrupt15 to get 15% offHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

 Today's Interview is with "The Cathy Chester".  Cathy has been an MS influencer since before the time of "infleuencers". Cathy Chester has lived with multiple sclerosis since 1986. This blog is her platform to empower, educate and inspire others with MS to live a rich, full life despite living with a chronic illness.Cathy's mission is to help others on their own MS journey to lead a healthy, hopeful and enriching life – the best life possible within each person's abilities.“No matter what adversity you face, life is still delicious.” ~ Cathy ChesterCathy's approach focuses on the need for care of physical, emotional and spiritual needs. As a leading MS advocate she also uses her voice to share the latest news and information about MS and how others can find the answers they need.As an award-winning writer and certified health advocate, Cathy is dedicated to helping other MSers feel less lonely, isolated and overwhelmed than she did when she was diagnosed in 1986. She is passionate about helping those with MS feel better about themselves and the world around them.Most recently Cathy received the Lifetime Achievement Award from WEGO Health.https://www.wegohealth.com/shifrachesterThings discussed in podcast:Grammarly - Writing Assistanthttps://www.grammarly.com/Ways to Reach Cathy:Here is her Blog:https://anempoweredspirit.com/cathychester/Instagram: @thecathychesterFacebook: @cathy.chester1You can find Kathy Chester atdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comInstagram - @msmoveitorloseit @disruptfitnessgymPrevinex - Use the same clinically effective supplements that promote longevity, performance and everyday health as Kathy does.https://www.previnex.com/Use promo code disrupt15 to get 15% offHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

Well, COVID-19 doesn't seem to be going away anytime soon, does it? You had questions about the COVID-19 vaccines and booster shot and Dr. Beaber had answers.Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He posts new videos about MS on YouTube every Wednesday AND he has written a book that features amazing stories and practical advice to enable people to develop resilience as they live with MS.In my conversation with Dr. Beaber, we also talk about diet, exercise, and the potential benefits of dirt!Topics covered in this episode include:COVID-19 and MS - Are people with MS more at risk or are we better protected than the 'normals'? How do the various vaccines interact with MS DMTs?What Dr. Beaber thinks MSers should do about receiving COVID booster shots Dr. Beaber's thoughts about the numerous diets which are supposed to help MSers - and his cautious recommendationsWhy exposing yourself to a little bit of dirt might be good for what ails ya!The counterintuitive benefits of exercise in combating MS fatigueDr. Beaber's book, "Resilience in the Face of Multiple Sclerosis" - and how you can get a free downloadFull shownotes and resources at https://fumsnow.com/fums089See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today's Interview is with Melody Sapien - Functional Nutritional Therapist and Wahls Practitioner.  Melody was Diagnosed with Multiple Sclerosis at the age of 15 which was 7 years ago.  She focused on nutrition as a way to combat her disease symptoms.  Her passion for nutrition lead her to this career path and is currently helping many MSers and others with Autoimmune Diseases.  She has a youthful and vibrant approach and I think you will enjoy this episode.How to find out more about Melody:Instagram@autoimmune.wellnesswarriors melodysapien@gmail.comYou can find Kathy atdisruptfitnessgym@gmail.commoveitorloseit109@gmail.comFacebook Group: Disrupt and Heal Autoimmune Diseaseshttps://www.facebook.com/groups/239205444262461Instagram - @msmoveitorloseit @disruptfitnessgymPrevinex - Use the same clinically effective supplements that promote Longevity, performance and everyday health as Kathy does.https://www.previnex.com/Use promo code disrupt15 to get 15% offHere are some additional products that help Kathy deal with beating the Heat and Migraines.  Take advantage of the coupon code.Koldtec - Cool Head WrapKOLD10To save $10 off every item in store.2 items = $20 savings3 items = $30 savingshttps://www.koldtec.com/Cold bean bag Releafpack. 15% discount use code Disrupt15https://www.releafpack.com

When Cheryl Hile's neurologist told her to “lower her expectations”, the marathon runner showed that she was an FUMS'er to her core. Adopting the mantra “I do what I can and never give up”, she has now completed 56 (FIFTY-SIX!!!) marathons, 41 following her diagnosis.After running 7 marathons on 7 continents in 12 months, Cheryl founded the running and walking team Run A Myelin My Shoes to challenge the perception that strenuous exercise is bad for MS.Listen in as I chat with this amazing MS Warrior and even get strong-armed into taking part in the 2021 event!Topics covered in this episode include:Cheryl's pre-MS life including running marathons on vacation with her husbandHer first MS symptoms and THAT neurologist conversationHow she founded Run A Myelin My Shoes after meeting MSers who ran or wanted to runWhy you don't have to run to get involved with Run A Myelin My Shoes!Details of how you can get involved with the 2021 event, regardless of where you liveResources for this episode (clickable links):Visit CherylHile.comVisit the website for Run A Myelin My Shoes and get details about the 2021 RAMMS eventWatch the Run A Myelin My Shoes mini-documentaryHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchSign up for the Patients Getting Paid course email waiting list** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

  Join us for Part I of "The Language of MS" -- a 3 part series produced in partnership with Emilyn. Today we talk about the super problematic quasi-compliment "But you don't look sick" that many MSers have faced. Don't miss this great conversation.   Emilyn is a free MS companion app to help manage life with MS. On Emilyn you can log your symptoms, medications and download reports to share with your doctors. You can also get advice about symptoms and connect with other people with MS.   Download the Emilyn: My MS Companion app for free on  the App Store and Google Play.   the You can find us on the web at http://myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube.   Consider supporting us through our Patreon -- http://patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more.   Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production, and more.   As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle.   If you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts.    

Mark Webb is one amazing human: he’s a writer, wheelchair rugby athlete and head of communications for Shift.ms, an amazing community of people with MS. Amidst all that still manages to find time to be a champion of all things MS, especially as it relates to diversity and inclusion. Join Geoff Allix in his fascinating interview with Mark and get one exceptional person’s “view from Shift.ms”.   We hope you continue to tune in to more episodes of Living Well with MS, our Coffee Break series a brand new limited series call Ask Jack, launching in March 2021, and featuring professional holistic chef Jack McNulty answering food-related questions generated by you, our community. Stay tuned and watch this space as well as the OMS website and social channels for more updates.   Questions:   Welcome to the show, Mark. Can you tell our audience a little bit about yourself? Mark, you’re affiliated with Shift.ms. Can you tell us a little about the organization? What do you do for Shift.ms? As a person with MS, how does it feel to have this impact on the MS community? In terms of your MS, when were you diagnosed and how did it impact your life? What’s your personal mission in helping the MS community? Exercise is very important to you. I know you’re active in wheelchair rugby… can you tell us what that’s about? How has wheelchair rugby helped you build strength and confidence? What would your advice be for people with MS that have mobility issues about getting more active? Since MS affects everyone differently, and some people experience more mobility issues and other symptoms than others, what’s your view on how this diversity in the MS community is treated? How do you think we can all make the MS community more inclusive? You’re a pretty busy guy, but you still find time for public speaking, including a TED talk. What do you present on? 2020 was a tough year for all of us. What are you most hopeful about for 2021?   Bio:   Mark Webb is a public speaker and campaigner for all things Multiple Sclerosis, disability and diversity. He is also Head of Communications for the worldwide social network for MSers, Shift.ms.   He blogs at onemanandhiscatheters.com, is writing a book slowly, and plays Wheelchair Rugby very badly.   Links:   Learn more about Shift.ms Check out Mark’s Twitter feed Check out Mark’s blog Check out Mark’s Instagram   Coming up on our next episode:   Tune in on March 17, 2021 for the premiere episode of Ask Jack, our special 5-part series where every couple of months, certified OMS foodie and professional chef Jack McNulty answers cooking- and food-related questions from you, our OMS community. This is a tasty morsel you won’t want to miss. And remember, you can submit your questions for future Ask Jack episodes by emailing them to podcast@overcomingms.org.   Don’t miss out:   Subscribe to this podcast and never miss an episode. You can catch any episode of Living Well with MS here or on your favorite podcast listening app. Don’t be shy – if you like the program, leave a review on Apple Podcasts or wherever you tune into the show. And feel free to share your comments and suggestions by emailing podcast@overcomingms.org.

David Lyons was a healthy athlete, gym owner and TV & film producer when he was diagnosed with Multiple Sclerosis in 2006. After immediately being told that he would be wheelchair bound, David, along with his wife Kendra, decided to battle MS in the gym! David founded the MS Fitness Challenge (MSFC) charity to help educate and train both MSers and fitness professionals on the importance of fitness in the fight against MS. In 2009, at age 50, David competed in his first bodybuilding contest with MS, winning a Most Inspirational trophy. He went on to be presented with the Milestone Award by the National MS Society for his accomplishments. Listen in for David's inspiring story, as well as details of his new OptimalBody membership program for MS exercise and fitness. Topics covered include: David's background in fitness and his diagnosis story Why, after succumbing to depression, he decided to get back into the gym David's first bodybuilding competition - with MS - at age 50! The realization that bodybuilding and available exercise programs weren't helping him to beat his disease, and his decision to create his own training methods The motivational benefits of group membership and accountability for David's fitness programs Details of David's OptimalBody membership program for MS exercise and fitness - and the response to the program so far PLUS information about a lifetime discount for members of the FUMS Nation when they sign up for the OptimalBody membership program using the discount code FUMS5 Resources for this episode (clickable links): Information about the OptimalBody membership program for MS exercise and fitness - use the discount code FUMS5 for a lifetime discount DavidLyonsFitness.com - online personal trainer The MS Fitness Challenge website, Facebook group and Facebook page MS Fitness Challenge on Twitter Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com

After hearing from other MSers about the benefits of using Taopatch, Kathy just had to find out more. So she reached out to Dimitri Leonov, Co-Founder and CEO of Taopatch USA to bring you the scoop. Taopatch is a wearable device which captures heat from your body and converts it into light, which it emits into specific points on your body. These photons stimulate your Central Nervous System and "remind" it how it was meant to communicate with the rest of your body. By combining light therapy with acupuncture, Taopatch can naturally boost your immune system, improve posture, balance and mobility, and improve emotional and mental wellbeing. The results they’ve seen with Multiple Sclerosis, Parkinson’s and other neurological diseases are incredible. Listen in to find out more about how Taopatch works, the company's no-questions-asked money back guarantee and a special discount for the FUMS nation. Topics covered include: The story of how Taopatch came to the USA How Taopatch works The general benefits of using Taopatch and the potential benefits for people with Multiple Sclerosis Taopatch's money-back-guarantee Buy Taopatch here [affiliate link] and get 10% discount when you use the code FUMS Resources for this episode (clickable links): Visit Taopatch [affiliate link] and use the code FUMS to get 10% discount Customer reviews of Taopatch and research conducted at major universities Follow Taopatch on YouTube, Twitter, Instagram and Facebook Help keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com

In this podcast, I discuss the importance of a positive attitude when dealing with a life-changing disease like MS. Although we have every right to, I have never met another person with MS who didn't make the most out of a bad situation. I am proud of my fellow MSers who are both resilient and resourceful, staying positive in the face of immense challenges. Maybe it was my destiny to get MS all along so that I could help others struggling with illness see how very precious their life is and how important it is to keep on keeping on. --- Send in a voice message: https://podcasters.spotify.com/pod/show/kimberly-albin/message

Alene Brennan has already appeared on the FUMS Podcast (Episode 017) but she returns today to talk about Essential Oils and their potential benefits for MSers. After noticing how essential oils positively affected her illnesses, Alene now views them as being as important to her healthy lifestyle as diet. Alene is a certified nutrition coach, natural food chef, yoga instructor, and personal trainer who helps people with autoimmune disease heal through diet and lifestyle. Oh, and on top of all this, she has MS. And migraines. Listen up for an exclusive offer for the FUMS nation - a FREE  3 Day Course, Essential Oils for MS Warriors!   Topics covered include: The three different ways in which essentials can be used Where do essential oils come from? How Alene uses essential oils as part of her overall lifestyle to manage her MS and migraines Are there essential oils which can help MSers to manage specific symptoms, including fatigue, cog fog, or sleep issues? How to spot the essential oils which can help, and those which are basically just perfumes Resources for this episode (clickable links): Alene's first appearance on the FUMS podcast: FUMS 017 – Autoimmune Health Coach Alene Brennan Sign up for an exclusive FREE 3 Day Course, Essential Oils for MS Warriors Visit Alene's website Alene on Facebook Alene on Twitter and Instagram Sign up for the Patients Getting Paid email waiting list Help keep FUMS alive at the FUMS Podcast Patreon page   ** Sign up for the FUMS Friday Night 6 Pack here: Friday Night 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him here: The Podcasting Editor

Being asked "what you do" when you're on SSDI can be triggering for many MSers. Join us for a conversation with fellow MSer and content creator Kiki Charles as we grapple with this topic. Please forgive the sound quality of this episode. You can find Kiki on Instagram and Twitter @kikicharles. You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Consider supporting us through our Patreon -- patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more. Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more. As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle. Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts. Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts. Peace!    

It's March -- MS Awareness Month. Join us for a bonus episode featuring an organization that may prove to be an invaluable resource for MSers. Tune in for a conversation with Jennifer Hanes from Canine Companions for Independence. Founded in 1975, Canine Companions for Independence® is a non-profit organization that enhances the lives of people with disabilities by providing highly trained assistance dogs (free of charge) and ongoing support to ensure quality partnerships.  Find CCI on the web at http://cci.org and Instagram and Twiter at @ccicanine. You can find us on the web at myelinandmelanin.com, Facebook, Instagram, and Twitter @myelinmelanin. You can also subscribe to us on YouTube. Consider supporting us through our Patreon -- patreon.com/myelinmelanin. Patrons can gain access to exclusive content, Myelin & Melanin swag & more. Your support helps us offset the cost of maintaining our website, paying for our remote recording technology, music, podcast & merchandise production and more. As we do not get paid to produce the podcast, these are costs that come out of our pockets. This can often be a struggle. Also, if you enjoy the podcast, please take a minute to leave us a 5-Star rating on Apple Podcasts. Stream the podcast on Apple Podcasts, Spotify, Google Play and everywhere you listen to podcasts. Peace!  

Kendra Lyons may very well be the reason the MS Fitness Challenge exists. After seeing the success and the impact David Lyons found through bodybuilding and fitness, she inspired him to start a charity that would go on to be a globally recognized banner of hope for people living with MS. Some key takeaways:Kendra's experiences as a nurse working with MS patients and how that framed her initial understanding of what MS was likeHow David & Kenra first met and her initial impression of him and his remarkable abilities in spite of MSAn incident in which Kendra learned that David does not share food - even with the person who would become his wifeDavid's past injuries during training and how they've taught Kendra to be mindful of the risks associated with MS and physical training while also acknowledging the importance of fitness and the need to train smartlyThe moment Kendra realized that David had the potential to inspire others to embark on their own MS fitness journeys Initial goals of the MS Fitness Challenge and how the organization evolved into what it is today Emotional stories of the hope and impact the MSFC has had on MSers as well as their familiesChallenges family members and close friends face when caring for someone with MS and the importance of taking the time to focus on self-health strategiesDavid's impact on Kendra's personal fitness habits and lifestyleKendra's reflection on the path her and David have traveled as well as her hopes and dreams for the future of the MS Fitness ChallengeHow to get involved:DonateMSFC Training Camp - Los AngelesMSFC Facebook GroupHow to reach us:E-Mail: msfcinfo1@gmail.comPhone: (855) MSFIT4U (673-4848)Would you like to be on the MSFC Podcast? Contact the host, Stephen Glaus at stephen.glaus@msfitnesschallenge.com

Tune in as we chat with the fabulous Ardra Shephard -- Ms. Tripping on Air -- about summer hacks for MSers, hypothetical MS swag bags (an awesome idea, right?), underwear you can get drunk and pee your pants in, and internalized ableism. You don't want to miss it. You can check her blog out at  http://trippingonair.com (she's on Instagram @ms_trippingonair and Twitter @tripping_onair) You can find US on the web at http://myelinandmelanin.com, Facebook, Instagram and Twitter @myelinmelanin. You can also check us out on YouTube. Peace!

This episode is the third installment of our international series where Kathy talks to MS’ers from around the world, to see how their diagnosis and treatment experiences differ from our own. Today's guest is Katrine Bonde, a university student from Aarhus in Denmark. Denmark has one of the highest rates of Multiple Sclerosis in the world (only San Marino and Canada have a higher prevalence). Now aged 24, Katrine was diagnosed with MS in June 2014.   Topics covered include: Katrine's diagnosis and initial symptoms Availability and cost of care and treatment in Denmark, including DMTs and ancillary treatments Workers' rights, protection and sick-pay in Denmark Danish protocol for MS relapses Availability of medical marijuana in Denmark How to say FUMS in Danish!   Resources mentioned in this episode (clickable links): Parts one and two of the international podcast series The Visit Aarhus website The Danish Multiple Sclerosis Center website If, like Katrine, you would like to link up with other MSers, Shift.MS is an international social network for people with Multiple Sclerosis. Their MS forum has thousands of members worldwide and it's free to join. Temperature conversion! To change Fahrenheit to Celsius, deduct 32, then multiply by 5, then divide by 9 To change Celsius to Fahrenheit, multiply by 9, then divide by 5, then add 32   ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, get on the email list at  FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!!

This episode is the second of a series where Kathy talks to MSers from around the world about their diagnosis and treatment experiences, to see how they differ from our own. Kathy's guest today is Robert Joyce, who lives in a beautiful part of the world, Connemara in Ireland. Now aged 50, Robert was diagnosed with MS while he was living and working in England at the age of 23. Although his fatigue meant that he couldn't continue working at the same rate, over the years he has owned several businesses, operated as a business consultant, and was the head of a sporting organisation in Ireland. However, following a minor car accident his MS, which had been in remission for nearly a decade, returned and since then his life has to be lived in 30-minute blocks Topics covered include: Robert's story of diagnosis in England, and subsequent treatment in Ireland His experience of working with a chronic illness in Ireland, USA, UK, Norway, Spain, Turkey and Switzerland The accident which bought his MS out of remission The symptoms which mean he has to live in thirty-minute bursts of activity Resources mentioned in this episode (clickable links): Robert’s website A 30 Minute Life Robert on Twitter Robert on Instagram Temperature conversion! To change Fahrenheit to Celsius, deduct 32, then multiply by 5, then divide by 9 To change Celsius to Fahrenheit, multiply by 9, then divide by 5, then add 32   ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It’s quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Pageand on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!!

This episode is the first in a series where Kathy talks to MSers from around the world about their diagnosis and treatment experiences, to see how they differ from our own. The first guest in the series is Steve Woodward, who lives in England. He and Kathy had a lot of fun recording this, even if some parts were proof that the US and the UK are still "two nations divided by a common language"! Topics covered include: Steve's diagnosis story His experience of treatment through the UK National Health Service or NHS How the NHS is funded and what it means for people with MS Social security benefits and working with a chronic condition in the UK   Resources mentioned in this episode (clickable links): Steve's article about the UK National Health Service Steve's blog It's a Shit Business All of his articles on MultipleSclerosis.net Steve's blogs about applying for Personal Independence Payment (PIP) - part one and part two Steve on Twitter An explanation of the term "Heath Robinson" which Steve uses in the chat! ** Sign up for the FUMS Friday Night 6 Pack at FUMSnow.com. And for more information about Patients Getting Paid, please visit FUMSnow.com/PatientsGettingPaid. **If you get value from the FUMSnow Podcast Show, please consider leaving a rating or review wherever you get your podcasts. Reviews are really important and help to spread the word about what we do. It's quick and easy to do and we have some instructions here. Thanks for your time and support! **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!!

This week, another celebrity publicly disclosed an MS diagnosis. Art Alexakis, from the band Everclear, announced his recent MS diagnosis on Instagram and in an open letter to his fans on the band's website. Almost immediately, there were people (namely MSers) who expressed confusion about the information he touted about his "prognosis" (in and of itself, a precarious word to use to describe MS). On one of the last days of MS Awareness Month, join us as we discuss the importance of celebrities (and perhaps their neurologists) using their platforms to disseminate clear, honest and realistic information about multiple sclerosis. The amount of conflicting information often spread about the disease makes it confusing, and creates unrealistic expectations about this unrelenting disease. You can find US on the web at http://myelinandmelanin.com , Facebook, Instagram and Twitter @myelinmelanin. You can also check us out on  YouTube (https://www.youtube.com/channel/UCJ0XzvBpSJKqm9b-aaY6pZg?). Peace!  

March is MS Awareness Month. Yawn. Yeah, we said it. Join us as we share our thoughts about MS Awareness Month, and the need to highlight the whole truth about MS. The media often tells a one sided story about the reality of MS (this includes the false narrative that the drug companies tell in their sometimes cringeworthy commercials). We feel that it does a disservice to the MS community to not be up front and honest about the often harsh realities that this disease deals us.  Once again, we discuss the fabulous Tripping On Air blog, and her frank discussion about why March is often frustrating for a lot of MSers. You can check her blog out at  http://trippingonair.com (she's on Instagram @ms_trippingonair and Twitter @tripping_onair) You can find US on the web at http://myelinandmelanin.com , Facebook, Instagram and Twitter @myelinmelanin. You can also check us out on YouTube (https://www.youtube.com/channel/UCJ0XzvBpSJKqm9b-aaY6pZg?). Peace!

Being able to brainstorm and solve the symptoms people are having and how to help them in their daily lives is what Gretchen Hawley loves most about her job. Even with the uncertainty of how the disease manifests itself with different people. Gretchen is a Doctor of Physical Therapy who specializes in Multiple Sclerosis. It has become her advocacy to help each of her patients reach their goals in as many ways as she can. It’s never boring to do things when your heart is in the right place. At the end of this episode, Dr. Hawley tells us about her plans on launching a virtual PT program. She walks us through how she started a Youtube Channel and an Instagram account to better reach her patients from different locations. She created these in order to teach and encourage people that they can exercise in the comfort of their homes. In this episode we discuss: Her journey towards becoming a Certified MS Specialist. What made her interested in working with people with MS. General Nutrition and Cognitive Therapy. Dr. Hawley’s Advocacy and Strategic Tips for MSers when fatigue kicks in. Determining the best therapy for every MS patients. The comfortable temperature for every patient during therapy sessions. The importance of Water Therapy. Resources every one could use to find an MS PT near them. Resources mentioned in this episode (clickable links): National Multiple Sclerosis Society MS Navigator The Multiple Sclerosis Association Of America: MSAA National Multiple Sclerosis Society: Home Products Recommended by Dr. Hawley: HyperKewl Cooling Vests HyperKewl Wrist Wraps Koldtec Ice Towel Where to find Dr. Gretchen Hawley: Email her at doctor.gretchen.hawley@gmail.com Instagram Youtube Channel   **Today’s episode is brought to you by: Patients Getting Paid – a new course being developed by FUMS – to help patients find legitimate work from home opportunities and paid patient advocacy gigs. There are all kinds of companies looking for the kind of knowledge you have in living with your disease. You’ve got the disease, you’ve got the knowledge – you should get paid. Sign up now for more information at FUMSnow.com/PatientsGettingPaid. **Don’t forget to join us on the FUMS Facebook Page and on Twitter at FUMS. Have an idea for a topic or someone to interview? Perhaps YOU?? Send me an email at Kathy@FUMSnow.com. And remember to speak to this stupid disease as it deserves: tell it FUMS every day!!

Jim's past life included In-Game Entertainment work for the Colorado Rockies and Denver Broncos before moving to the Pacific NW to start a coffee catering company. Jim has also had MS (Margaret Swanson) for 18 years. Although his nerves may be disconnected he has found that talking about it is his path to connection in other ways. About 2 years ago, as a way out of a deep depression, Jim started a podcast called How You REALLY Doin' to connect with other MSers and discuss what it's REALLY like to live with dis-ease. Check out his podcast on iTunes or at http://www.howyoureallydoin.com/ URBAN TELLERS May 14, 2016 VULNERABILITY Jim Fairchild on stage at Alberta Abbey for live storytelling with Portland Story Theater Hosted by Lynne Duddy and Lawrence Howard www.portlandstorytheater.com

Imagine being diagnosed and having no one your own age to talk to about it. What do you do? Set up a Facebook group for people your own age of course! MSaroundtheUK got the exclusive about this fantastic new group! #MS #multiplesclerosis #Facebook #makingadifference

She has represented MSers all over the UK with her dancing on 'The People's Strictly'. But there's more to this woman than meets the eye, grab a cuppa and have a listen to the fascinating Trishna Bharadia! You can follow here here too: Twitter: @TrishnaBharadia Facebook: www.facebook.com/trishnabharadia2015 #peoplesstrictly #ms #trishnabharadia