Podcasts about world parkinson coalition

We workshop the LMB acronym to account for the Mexican League signing players of questionable character. We aren't just yanking Verdugo's chain, we are teaching you valuable vocabulary in multiple languages. We review your four options when you catch a home run ball during a game, starting with It Belongs To You. A little over a week in and our guys with slow starts are getting the bats in gear. We've got home runs bouncing off gloves and walls, we've got new nicknames (Turn and Burn O'Hearn!), and platelet infusions. Elly impresses off the field too, conducting his first press conference all in English. Wish wish Stephen Strasburg well on his retirement and as Nats fans we thank him for his service. Pottymouth turns our attention to Baseball United, the Dubai-based program that is attracting lots of attention and dollars from former MLB greats, and now Ronald Acuña Jr as well.  We remain suspicious. Shane and Spencer, just this Saturday, join the ranks of seriously injured pitchers and the MLBPA and MLB argue over the role of the pitch clock in all of this. Compton's MLB Youth Academy hosts the BFA Women's College Club Baseball Championships. Patti and Pottymouth got up early Saturday morning to make friends with Yankee fans for an important cause.  We participated in a live stream marathon “Pinstripes for a Cause” to help raise money for the World Parkinson Coalition. If you want to see us on coffee instead of craft beer, we start at 1:30 into the stream. Please consider adding your donation and add “Pinstripes for a Cause” or No Crying in Baseball to the notes.We say, “That's a Darwin test,” “One set of biceps was more productive than the other,” and “Is he pulling one of your six chains?” Fight the man, send your game balls to Meredith, get boosted, and find us on Twitter @ncibpodcast, on Facebook @nocryinginbball, Instagram @nocryinginbball and on the Interweb at nocryinginbball.com. Please take a moment to subscribe to the show, and leave us a review on Apple Podcasts or wherever you listen to NCiB. Become a supporter at Patreon to help us keep doing what we do. Say goodnight, Pottymouth.

Donate to the World Parkinson Coalition to support this and future World Parkinson Congresses. World Parkinson Congress 2023 (WPC2023) was a true testament to unity and shared vision. It saw the participation of more than 2,600 people, drawn from 73 countries, all converging under one roof with one common objective: unraveling the mysteries of Parkinson's. This assembly comprised nearly a thousand medical doctors and researchers, 450 registered nurses, therapists, and other clinicians, 685 brave individuals living with Parkinson's, and 260 dedicated care partners and family members. In this episode, Larry and Rebecca share their experiences and discuss some of the most poignant lessons, enlightening stories, and groundbreaking revelations from the congress. They will introduce you people making a difference in their local communities and the world stage. KEY LINKS Our Presenting Partner is Parkinson Canada. Diagnosed with Parkinson's? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada. Tight Rope Theatre Improv for Parkinson's – Sign up NOW for fall classes “Improv for Parkinson's” – no experience necessary. The PwP Improv Players Arne Johansen Clara Kluge Larry Gifford Miriam Bram Peter Jarvis Shabbir Latif Dan Dumsha, Director -- Improv for Work & Wellness Rosemary Morrison – Improv for Wellness Coordinator Donate to help support the Amazing Rosemary who organized the Improv for Parkinson's troupe and found a theatre for us to perform in while in Barcelona. PD Avengers – We are building a global alliance to end Parkinson's. Join us. World Parkinson Congress WHO iSupport Thanks to: Julie Worden, Brooklyn, NY Dance for PD Jane Williams London, KY Parkinson's in Motion Amy Lavalle, Brian Grant Foundation www.briangrant.org Geoff Constable, Melbourne, Australia www.fightparkinsons.org.au WLGYP: What's your superpower? Tina Gillespie, South Australia, Australia Parkinson's South Australia Craig Gillespie, South Australia, Australia Parkinson's South Australia Sheena Botrill – South Australia, Australia Parkinson's South Australia  Eric Aquino, Eastern Pennsylvania Gray Strong Foundation – Trembling EMT Podcast  Dr. Tash (Natasha) Fothergill-Misbah Newcastle University Joy Milne, Ted X Manchester This Nurse Can Smell Parkinson's Disease WLGYP: A 3-minute test for a Parkinson's diagnosis WLGYP: World Parkinson Congress – Day 2 (Kyoto) Paul Mayhew Archer Incurable Optimist WLGYP: They say laughter is the best medicine Donate to the World Parkinson Coalition to support this and future World Parkinson Congresses. MAIL Larry and Rebecca: ParkinsonsPod@curiouscast.ca Have a topic or questions that you would like Larry & Rebecca to address on a future episode? We would love you to click here and leave a message  https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thanks to Curiouscast Dila Velazquez – Story Producer Greg Schott – Sound Design

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, we spoke with Elizabeth “Eli” Pollard, vice president & chief education and training officer at the Parkinson's Foundation, and the executive director of the World Parkinson Coalition. She spoke about the foundation's ongoing efforts in providing education about Parkison disease (PD), the challenges of managing a growing population of patients, the need for community physicians and specialists to work in unison, and more. >>Click here to access the Parkinson Foundation's educational series. Looking for more Parkinson disease discussion? Check out the NeurologyLive® PD disease spotlight page. Episode Breakdown: 1:20 – The need for education across the PD care paradigm 4:40 – An overview of the 6-part educational series  6:10 – The inclusion of specialties such as dentistry in the care of PD 9:40 – Using training to overcome gaps in multidisciplinary care 13:05 – Challenges in educating a large population of providers 16:55 – Neurology News Minute 19:00 – Improving access to clinical education 24:07 – The Foundation's goal to inspire learning to improve care 26:30 – Closing thoughts This episode is brought to you by Medical World News, a streaming channel from MJH Life Sciences®. Check out new content and shows every day, only at medicalworldnews.com. The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: FDA Approves Theranica's Nerivio for Preventive Treatment of Migraine FDA Approves Omaveloxolone As First Treatment for Friedreich Ataxia FDA Accepts Supplemental BLA for Traditional Approval of Lecanemab FDA Clears Abbott's Alinity i Lab-Based Blood Test for Traumatic Brain Injury Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

Today's guests include Eli Pollard and Alison Miller Elizabeth “Eli” Pollard is the Executive Director of the World Parkinson Coalition (https://www.worldpdcoalition.org/) talks about many subjects including the WPC in 2023 being held in Spain. She also discusses the "Parkinson's Tulip Project" what it's about and how to enter. Travel grants and much more! Alison Miller, Strategic Partnership Manager with Supernus Pharmaceutical (https://www.supernus.com/commercial-products), talks about building relationships within the Parkinson's Community and the drugs offered by Surpernus to help "on time" as well as the "Parkinson's Tulip Project"

This week we had the pleasure of interviewing Eli Pollard, the Executive Director at the World Parkinson Coalition. The Coalition convenes a World Parkinson's Congress every three years to bring together patients, care partners, researchers, and health care practitioners to further the conversation regarding solving the puzzle of this disease. Eli brings her passion for her work and a great deal of information about Parkinson's Disease to this interview.For more information on Parkinson Disease and Contact Information: https://bit.ly/3eh9UJZ

In this episode of When Life Gives You Parkinson’s, my wife Rebecca and I are talking with two leaders of Parkinson's organizations about the impact coronavirus has had on advocacy, collaboration, new programs. Karen Lee and Elizabeth “Eli” Pollard are true leaders with serious minds and senses of humor, and both are visionary when it comes to bringing the Parkinson community together with a purpose.  Dr. Karen Lee took on the role of President and CEO of Parkinson’s Canada in the middle of the Coronavirus pandemic. She’s taking the work-at-home mandate as a chance to meet and get to know her staff, advocates, and leaders of other organizations virtually, “We talk with all the various groups, look for opportunities, synergies, it's not about trying to compete and were not looking to duplicate efforts, but really looking for efficiencies and opportunities.” Parkinson Canada is also establishing a Parkinson Advisory Council to help inform decisions and make recommendations to the charity. Eli Pollard, Executive Director of World Parkinson Coalition, would typically make 12 to 15 trips to various destinations as she plans for the World Parkinson Congress 2022 in Barcelona. With travel restricted by COVID-19, she has been busy creating new programs including a dual language webinar series where the same presenters host a webinar first in English and then thirty minutes later in Spanish.  She’s also just announced that May 17-21, 2021 is the inaugural VIRTUAL World Parkinson Congress, “We've been chewing on this idea for a long time and COVID sort of pushed our hand, which is great. So it would be sort of “year one” is the in-person Congress, “year two” and “year three” would be a virtual Congress. And so we're calling it WPC Virtual.” This year’s theme is advancing science care and living with Parkinson's. Their will be around 80 presenter's, with 5 tracks, but all the content for each day will be release at once for virtual attendees to watch it at their convenience. There will be live Q&A sessions 24 hours after each scheduled session. The WPC Virtual admission is $25.00, all inclusive.                                      Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons Follow us, Larry & Rebecca Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod Thank you to the following people featured in this episode: Dr. Karen Lee – President and CEO of Parkinson Canada@Dr_KarenLee To learn more about the Parkinson Advisory Council https://www.parkinson.ca/listing/parkinson-advisory-council-member/ Eli Pollard – Executive Director, World Parkinson Coalition #WPC2022 For more information on Dual Language webinars https://www.worldpdcoalition.org/page/webinarseries For more information on 2021’s VIRTUAL World Parkinson Congress https://www.worldpdcoalition.org/page/WPCVirtual For more information on the WPC Research Spotlight https://www.worldpdcoalition.org/events/EventDetails.aspx?id=1470125 For more information on 2022’s World Parkinson Congress in Barcelona https://www.worldpdcoalition.org/events/EventDetails.aspx?id=1470125 Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada Thanks also to our content and promotional partners The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  PD Avengers - United to end Parkinson’s. Join us. World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain. See omnystudio.com/listener for privacy information.

I am in Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event, which is held every three years and it opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.      The WPC wrapped up the fourth and final day by announcing Barcelona, Spain as the next destination for the World Parkinson Congress in 2022. In this episode of the pod, my wife Rebecca and I sit down with Amazing Race Canada Season One winner Tim Hauge and his wife Cheryl to talk about the gifts Parkinson’s have given our families.   There’s also a roundtable discussion where participants of WPC2019 share thoughts on what they’ll take away after four days of meetings, workshops and socialization.   Eli Pollard, Executive Director of World Parkinson Coalition which organizes the World Parkinson Congress gets the final word on the podcast declaring it quite a success with a few themes bubbling up to the surface. Families and Parkinson’s is really a hot topic and there were more kids of parents with Parkinson’s were at this WPC than ever before and for the first time actually participated as speakers in a workshop. The other notably theme was the rising interest in more programming geared towards the Young Onset Parkinson’s Disease (YOPD) contingent.     Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspodirt For more info on the World Parkinson Congress head to www.WPC2019.org Facebook: Facebook.com/WorldPDCongress/ Twitter: @WorldPDCongress YouTube: WorldPDcongress Instagram: @worldpdcongress Thank you to: Tim & Sheryl Hauge Andy Butler, partner in Parkinson’s Vicki Dillon, person with Parkinson’s Benjamin Stetcher, https://tmrwedition.com/ Anne Cohn Donnelly D.P.H., Michael J. Fox Foundation Patient Council David Murray, Cure Parkinson’s Trust Eli Pollard, Executive Director of World Parkinson Coalition

In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.  Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives You Parkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.  Etienne Hirsch is Director of the French National Institute for Neuro Science, neurology and psychiatry. He’s a board member and chair for the basic science program committee for this year’s WPC. In his plenary talk, Hirsch will be examining the question, “Are we moving towards personalize medicine?” Hirsch isn’t hiding his passion for the topic, “I think that it is the most important challenge these days for Parkinson's disease.” He adds, “By the way I should not say Parkinson's disease, I should say Parkinson's diseaseswith an “s.” The concept is that everyone diagnosed with Parkinson’s is not dealing with the same disease, but different diseases that deserve different treatments. Much of Hirsch’s work revolves his belief that inflammation may actually trigger the events that lead to the death of the dopamine producing brain cells. He recalls that, until recently, it was a controversial theory, “Some people were even laughing saying that neuro inflammation is a consequence of neuron degeneration. And now we know that in fact the neuro inflammatory processes are not just a consequence of neuron degeneration. These events really participate to the cascade of events leading to degeneration in the past.” In his workshop, Hirsch will help lead a discussion around why some cells degenerate in people with Parkinson’s and some do not. Eli Pollard, Executive Director of the World Parkinson Coalition, which is the organization that hosts the triennial World Parkinson Congress is expecting just over 3,000 people to attend the event in Kyoto. She encourages participants to check out “Wellness Way” which features free fitness and exercises classes in the renewal room, complimentary massage and Raiki, the Care Partner Lounge, there is a Quiet Room for people who might need to escape the crowds or take a quick nap. There’s also a clinical research village sponsored by the Michael J. Fox Foundation and with in-kind support from the Cure Parkinson's Trust. “It is a space for just people to learn about clinical research clinical trials what you should ask if you want to engage in a clinical trial.” Pollard continues, “What are your rights as a participant in a clinical trial? What do you need to know before you sign on the dotted line?” The research village will be open all the hours that the exhibit halls. Finally, Pollard has some last minute packing tips. She recommends you pack comfortable clothes and a rain coat, because it’s going to be hot and it is the rainy season in Kyoto. While some attendees will be wearing shorts, there will be air conditioning in the conference center, so pants may be more appropriate if you tend to be cold. Do not forget to bring a pen and pad of paper to take notes and trade information with other attendees, unless you are using your phone or tablet. Most importantly, if you are a person with Parkinson’s, Pollard urges you to pack at least twice the amount of medication you think you will need and better yet, pack three times the amount. She recommends you spread it out between your carry on, your checked luggage and your travel companion. Each episode of the WPC2019 Podcast, I check in with James Heron, the Executive Director of the Japanese-Canadian Cultural Centre. This week, we wrap up our Japanese tutorial with a hodge-podge of tips and insights. Key among them is to speak directly and clearly. In North America, we tend to use idioms like “pulling-your-leg,” “bite-the-bullet,” and “dime a dozen.” When literally translated by a Japanese speaker, these phrases can be confusing. Heron uses “pulling-your-leg” as an example, “There is an expression in Japanese, ashi o hipparu,which means you have to pull someone's leg which actually means to purposefully hold someone back, to make them fail, almost to sabotage someone.” Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod For more info on the World Parkinson Congress head to www.WPC2019.org Facebook: Facebook.com/WorldPDCongress/ Twitter: @WorldPDCongress YouTube: WorldPDcongress Instagram: @worldpdcongress Thank you to: Etienne Hirsch, Director French National Institutes of neurosciences, cognitive sciences, neurology and psychiatry. Eli Pollard, Executive Director World Parkinson Coalition James Heron, Executive Director of Japanese Canadian Cultural Centre   Credits Dila Velazquez – Story Producer Rob Johnston – Senior Audio Producer

In June, I will be traveling to Kyoto, Japan for the 5th World Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.  Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.  At the congress, there will be many sessions, workshops and round tables focused on issues unique to people with Young Onset Parkinson’s Disease (YOPD). A person is typically diagnosed with Parkinson’s at the age of 60. If you are diagnosed under the age of 50, you are considered YOPD. Reports vary, but the Michael J. Fox Foundation says somewhere around 10% of Parkinson’s patients fall into this category. On the podcast, fellow YOPD patients Emma Lawton and Rebecca Miller share their experiences living with the disease and offer tips around finding happiness, parenting and working with PD. Both were diagnosed at the age of 29 and will be speaking at WPC2019. Three months after her diagnosis in 2013, Emma Lawton suddenly stopped going out and doing anything, because she didn’t know how to talk about it. “I was making my life worse by letting Parkinson's make me feel the way I was letting it feel,” said Lawton. “I was actually letting it win and it was stopping me from going out and doing stuff.”  Upon reflection, Lawton believes she gave in too easily at the beginning and now realizes she’s in control of her life, her happiness and how she deals with PD. In January, in an effort to make up for lost days of happiness, she started seeking daily adventures through her “F--- it List.” Every day of 2019, Lawton is trying a new activity. She’s already been to a gun range, learned how to arrange flowers, and was shown how to be a crime scene investigator. The adventures are documented on YouTubeand her website. “I'm kind of hoping at the end of it to have something which shows me as a person what makes me happy, but also along the route might kind of inspire others to try and take control of their own happiness. Actually having something that makes me work on my own happiness and work my own well-being is actually really important to me.” Rebecca Miller has earned her PhD, is an assistant professor in the department of psychology of Yale School of Medicine, a single mother of a Kindergartener, and trying to juggle all of that with the progressing symptoms of Parkinson’s. “I really worried that I would have to stop working and that I wouldn't be able to do my job. Ironically, it's sort of actually in some ways at least for now propelled me further in my career.” Prior to PD, Miller’s goals didn’t include working her way along the faculty tract. Now she is working towards a promotion of Associate Professor and she’s writing more than she ever has. How does she balance it all? “Oh, I think maybe the idea of a balance is a myth,” she said. “Iguess I do my best to do the juggle. So, it’s really about staying flexible, accepting help, asking for help -- that is a real challenge for me.” Miller also focuses on prioritizing activities, “I know that I may not have so much energy during the day and at certain times of day.” In those moments, Miller says there is a decision to make, “What's more important; going on my daughter's field trip or working today? And just thinking, you know what? She's never going to be in kindergarten again.” Miller, like many parents with PD, feels guilty about not being able to always do the things her daughter wants her to do. She is beginning to chat about PD with her five-year-old, but just the very basics as she tries to match the conversation with where her child is developmentally, using language she understands and reassuring her at every step of the way. Each episode of the WPC2019 Podcast, I check in with James Heron, the Executive Director of the Japanese-Canadian Cultural Centre. He teaches us words and phrases that will come in handy in Japan. This episode, Heron teaches us the phrase Nihon-go ga hanase masen, which means, “I can’t speak Japanese.”  Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod For more info on the World Parkinson Congress head to www.WPC2019.org Facebook: Facebook.com/WorldPDCongress/ Twitter: @WorldPDCongress YouTube: WorldPDcongress Instagram: @worldpdcongress Thank you to: Emma Lawton. Follow her adventures here https://www.thef---itlist.com/, on YouTubeand Twitter Rebecca Miller, PhD Assistant professor in the department of psychology of Yale School of Medicine  James Heron, Executive Director of Japanese Canadian Cultural Centre  

In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.  Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.  Since my diagnosis, the most unsolicited advice I’ve received is about my diet. As a change of pace, I’m actually asking for advice today from Dr. Laurie Mischley, a naturopathic physician and nutritional neuro-epidemiologist. For the past seven years, she has been tracking 2,000 people with Parkinson’s to determine how foods, vitamins and minerals are impacting the rate of progression. In this episode, Dr. Mischley comments on the positives and negatives of many diets that have been recommended to me including Keto, Gluten-Free, 7:1, and the 24 eggs a day diet.  Based on her research, Mischley finds the people with Parkinson’s that are doing the best overtime, post-diagnosis, are eating fresh fruits, fresh vegetables, non-fried fish, nuts, seeds, olive oil, coconut oil, wine, fresh herbs and spices. She notes that this is closely resembles the Mediterranean diet. As important as what to eat, is what not to eat. Mischley has identified several foods associated with statistically-significant, faster than average Parkinson’s progression including dairy, beef, fried foods, soda, canned fruits, and canned vegetables. Organic and local foods matter too. In a true or false question in her study, people who said TRUE to the statement, “I try to eat organically grown foods when possible” are doing significantly better than people who do not go out of their way to eat organic. The same thing is true for the statement, “I shop at local farmers markets, co-ops and try to eat locally and seasonally.” It is because of research and people with Parkinson’s willing to participate in that research that there are best practices, better treatments, and continuing hope for a bio-marker and a cure. Dr. Soania Mathur is a family physician who has been living with Parkinson’s for 21-years. She is speaking at WPC2019 about advocacy and research. “I think there are a lot of myths and misconceptions about clinical trials,” says Mathur on When Life Gives You Parkinson’s. “I think some of the barriers are probably logistical. It’s hard sometimes to fit into our schedules especially when you have Young Onset and you maybe work or raising a young family. Some of the clinical trials can be quite involved in terms of time. Some of it is that people just don’t know how to find trials they would qualify for and be in their geographical area.” During our discussion, Dr. Mathur also outlined some key misconceptions. She notes that some people like the idea of clinical trials, but are fearful that they will lose their current medical care. Others fear they will be subjected to tests that will be painful or inconvenient. And some are concerned that they are being used as a guinea pig for potentially dangerous medication or treatment plan. The reality is while there are invasive clinical trials, there are also observational clinical trials where you fill out questionnaires, there are genetic clinical trials where you simply provide a spit sample, and there are a lot of trials where you have to go in one time and you’re not subjected to long follow up.  Without all of these types of clinical trials the science cannot progress, our understanding of the disease won’t progress, and certainly the development of new treatments won’t occur. When you ready to participate in research, Dr. Mathur suggests you look into data bases like Fox Trial Finder, which she describes as Match.com for clinical trials. These data bases ask for your demographic information and Parkinson’s history and then suggest clinical trials near you which best suit your situation. Each episode of the WPC2019 Podcast, I’m going to check in with James Heron, the Executive Director of the Japanese-Canadian Cultural Centre to teach us a new word or phrase and help us better understand the culture so we can avoid embarrassing ourselves or offending our hosts. This episode Heron teaches us the phrase Toire wa doko desu ka?Which translates to “where is the washroom?” When you enter a Japanese washroom, Heron cautions that there are three types of toilets you may encounter. There is a traditional Japanese toilet. This toilet features a long porcelain trough that you squat over. You’re likely to only encounter this in the countryside and not in the cities. You might encounter a traditional western toilet. This a toilet much like we have here in North America. One difference is that when you flush, water comes out of a fountain for hand washing before being used to flush any liquids or solids. And then there is a modern or “space age” toilet. These toilets can feature lights, a seat warmer and many options for spray cleaning and drying. Heron notes there is no need to be intimidated, because there are pictures clearly identifying where water will be sprayed depending on your needs and that it is quite pleasant and hygienic.    Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod For more info on the World Parkinson Congress head to www.WPC2019.org Facebook: Facebook.com/WorldPDCongress/ Twitter: @WorldPDCongress YouTube: WorldPDcongress Instagram: @worldpdcongress Thank you to: Soania Mathur, MD and author of Shaky Hands: A Kids Guide to Parkinson’s Disease,My GrandPa’s Shaky Handsand the blog, “Designing a Cure; Living Well with Parkinson’s Disease.” Follow Soania on Twitter: @SoaniaMathur Laurie Meschley, ND, MPH, PhD(c). You can follow Laurie’s research on her website “Education is Medicine” on her Facebook pageand on Twitter: @NatNeuro James Heron, Executive Director of Japanese Canadian Cultural Centre   Credits Dila Velazquez – Story Producer Rob Johnston – Senior Audio Producer

In June, I will be traveling to Kyoto, Japan for the 5thWorld Parkinson Congress(WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.  Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives YouParkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.  Traveling to a foreign country can be difficult and intimidating whether you have Parkinson’s disease or not. In this episode of the WPC2019 podcast, we concentrate on learning some basic Japanese vocabulary and learn about the cultural nuances and expectations. James Heron, Executive Director of the Japanese Canadian Cultural Centre, offers proper pronunciation and explains the translation to more than a dozen useful Japanese words and phrases from how to introduce yourself and what to say before a meal and how to ask where the washroom can be found. Heron also helps us better understand the Japanese culture. Ambiguity, for instance, is one of the traits you’ll encounter while interacting with Japanese people. He says, “It can be difficult to sometimes draw out opinions or get a clear ‘yes’ or ‘no.’” Ambiguity is driven by one of the most fundamental Japanese cultural concepts called wa, which is the Japanese word for harmony. According to Heron, “It’s very central to the Japanese psyche. As is the need to not put your opinions out there until group consensus has been reached.” Additionally, in Japan, things don’t always need to be said to be understood. Heron uses the Haiku poem to illustrate this idea, “While it’s only 17 syllables, there can be cultural markers in those very, very short poems that can open up huge swaths of meaning to the Japanese.” It’s really important when communicating with Japanese people you should be a little more patient than you might be in everyday life and avoid pushing for an opinion or answer. When it comes to eating, Heron offers a menu full of insights. For instance, never stick chopsticks upright in your rice, because that is part of the funeral ritual. Also, if you can’t use chopsticks you can ask for a spoon or fork and in Japan sushi is a hand food, so you can eat it with your hands. There are many other lessons tucked inside this episode including what to know about the “Japanese smile,” what to expect when you enter a Japanese washroom, where you can go to get quick cash, and what to know about slurping noodles.     Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod For more info on the World Parkinson Congress head to www.WPC2019.org Facebook: Facebook.com/WorldPDCongress/ Twitter: @WorldPDCongress YouTube: WorldPDcongress Instagram: @worldpdcongress Thank you to: James Heron, Executive Director of Japanese Canadian Cultural Centre   Credits Dila Velazquez – Story Producer Rob Johnston – Senior Audio Producer

In June, I will be traveling to Kyoto, Japan for the 5th World Parkinson Congress (WPC). WPC is a global Parkinson's event that opens its doors to all members of the Parkinson's community, from neurologists and researchers to those living with the disease.  Since my diagnosis in August 2017, I’ve launched the podcast When Life Gives You Parkinson’s. As an extension of that podcast, I have teamed up with the World Parkinson Coalition to help preview WPC2019.    In this episode, Jill Ames-Carson, the co-chair of the ambassadors program, can’t say enough good things about the congress, “The World Parkinson Congress changed my whole life and how I live with Parkinson’s. It gets everybody ‘Parkinsons’ in the same room together. Which is an absolutely amazing feeling, because you know you’re not alone.” She suggests those planning to attend review the program online or download it, before landing in Kyoto. The thermometer next to each session indicates the level of scientific discussion. The other symbols let you know whether it's a basic science, clinical science, or comprehensive care “As a person with Parkinson’s I would really advise you to attend things you’re interested in.”   Dr. A Jon Stoessl, the co-chair of WPC2019, agrees noting some of the presentations will be very scientific, “It’s important for the meeting to be a top-notch scientific meeting and we truly believe that it is and so there are sessions that are targeted really only towards scientists.”  This year, among the world renowned researchers and neurologists there will be a Nobel Prize winner.   In our discussion, Dr. Stoessl mentioned the Pre-Congress Courses. These are full day courses that take place Tuesday, June 4. You can see what is being offered by visiting this page on WPC2019.org website. Both, Dr. Stoessl and Ms. Ames-Carson talked about pacing yourself. There is a lot to do, but if you have Parkinson’s, you will want to build in down time. If you need a break from sitting through educational sessions, the WPC has a variety of spaces where you can recharge or get some exercise. You can learn more about that on the wellness page of the website.  As you prepare for your trip, Ames-Carson suggests you pack a pen, a pad of paper, and some small gifts from your home country to offer to new friends you’ll meet. The WPC offers other tips in its online Travel Tool Kit.   Each episode of the WPC2019 Podcast, I’m going to check in with James Heron, the Executive Director of the Japanese-Canadian Cultural Centre to teach us a new word or phrase and help us better understand the culture so we can avoid embarrassing ourselves or offending our hosts. This week we start with a simple hello. But, it’s not so simple. Depending on the time of day, the Japanese have three different greetings.   In the morning until around 11a, the full formal greeting is Ohayô gozaimasu. Informally you can also use Ohayô. In the midday from about 10a-5p, the appropriate greeting is Konnichiwa. In the evening, Konbanwa, is the greeting that is most invoked.   Pronunciations can listened to if you google these phrases online. A key thing to keep in mind when saying phrases in Japanese is to be sincere, speak slowly, and be polite. Simply making the attempt to speak Japanese will be appreciated.   Heron also notes that silence is an important part of the communication approach. The Japanese have a saying that goes, “words separate and silence unifies.” Citing studies by other linguists, Heron cautions us that North Americans are less comfortable with the amount of silence we allow to pass in conversation before feeling a need to fill the void. In Japan, the acceptable amount of silence is over four seconds, but for North Americans after three-quarters of a second we begin to feel a sense that the communication is dying and we need to say something. If we fill those silences too quickly, we muddy the communication waters.     Follow me, Larry Gifford  Twitter: @ParkinsonsPod Facebook: Facebook.com/ParkinsonsPod Instagram: @parkinsonspod For more info on the World Parkinson Congress head to www.WPC2019.org Facebook: Facebook.com/WorldPDCongress/ Twitter: @WorldPDCongress YouTube: WorldPDcongress Instagram: @worldpdcongress Thank you to: Jill Ames Carson, co-chair of World Parkinson Congress Ambassador’s Program 2019 Dr. A. Jon Stoessl, co-chair of World Parkinson Congress 2019    James Heron, Executive Director of Japanese Canadian Cultural Centre   Credits Dila Velazquez – Story Producer Rob Johnston – Senior Audio Producer John O’Dowd – Content Producer

Parkinson's It Wont Define Me by Sara Lew by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Don't Stop by Robert Kamper by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Possibilities by Annette Edwards by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

REASON TO HOPE by ARLON BENNETT by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

HOPE, KIBOU by Carol Echols by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

WINNER - I Will Fall Down by Daniel Reed by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

I Will Thrive - Despina Karamitsou by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

My Fathers Hands by Emmanuel Mutsune by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Park You Too by Eros Bresolin by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Shook The World by Eros Bresolin by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

We all have Parkinsons by Eros Bresolin by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Tremble Clefs by Jim Sorensen by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

I'm the Beat of Another Song by Jose Maria Lobo by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Judy by MaryAnn Conway by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Parkinsons Anthem by Robert Kamper by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Together We Conquer Parkinsons by Rachael Yap by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Live It Loud by Philip Thomas by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

WINNER - Side By Side by the Edinburgh Parkinsons Branch Singing Group by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Set Your Body Free by William Baek by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Hope For PD by Mihaela Avrigeanu by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Sing it Up by Marilyn Neault by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Snowflake by Skip Satterwhite by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Make Your Life A Song by Linda Neil by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

I'm Going to Sing Out Loud by Lee Morris by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Only Love Is Real by Kyle Hollingsworth by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

Friends by Tim Hall by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

You Still Really Matter by Victor Ruiz Molina by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

I'm Still Here by Tyrone Larmour by World Parkinson Coalition with support from the Parkinson’s Resources of Oregon

SiriusXM Doctor Radio Interview with May May Ali by World Parkinson Coalition with support from the Parkinson's Resources of Oregon

 Parkinson's disease has no cure. But, new developments can help those with Parkinson's lead a quality life.Parkinson's disease is a motor system disorder. Some symptoms are trembling, stiffness, slowness and impaired coordination. There is currently no cure for Parkinson's disease.However, new developments are making symptom management easier. For example, there are now patches and nasal sprays for those who have difficulty swallowing pills because of the condition.Thanks to social media, people with Parkinson's don't have to feel so alone. It is easier to contact others who have the same condition. There are support groups and communities for sufferers and caretakers.World Parkinson Congress is a triennial meeting that covers the latest on the disease. Talks vary from the latest research to techniques for care.Listen in as Eli Pollard of World Parkinson Coalition joins Melanie Cole, MS, to share the latest developments in easing Parkinson's symptoms.