2 Mikes Parkinson's Podcast

A group of high school students are spreading awareness about Parkinson's Disease for their HOSA project, which is a worldwide club for future health professionals. Their idea came from one of the group member's uncle who has suffered from the disease for the last 16 years. The students have been working on various activities to raise awareness, such as selling donuts and making bracelets, and will be presenting their project at the spring leadership conference on March 10th. The students have also created a website to further spread awareness and encourage others to share their stories and suggestions. Website: https://learn-fundraise-and-tell-your-parkinsons-disease-story.square.site/about-us   Special thanks to Sadie Robitaille, Brady Benedict-Smith, Sydney Pagnozzi and Ava Pilderian

WE ARE CLOSING OUT 2 MIKES, PLEASE FOLLOW US AT YOPNs LIVING WELL STARTS HERE PODCAST https://yopn.podbean.com/

Join the Young Onset Parkinson's Network (YOPNetwork.org) in celebrating Dianne Goebel Bramble's inspiring story! Dianne's small business, Mind and Body Wellness for You, offers coaching and personal training (mindandbodywellnessforyou.com) . She also sells her beautiful Parkinson's-inspired paintings on Facebook and has authored two books. Check out past podcast episodes on yopn.podbean.com and join the YOPN community for free at yopnetwork.org. #YOPN #ParkinsonsAwareness #InspiringJourney

n 2008, Miriam was diagnosed with Young Onset Parkinson's Disease (YOPD) at the age of 44. She is a Parkinson's advocate and Ambassador for the 6th World Parkinson Congress (WPC) which will take place in Barcelona July 4-7 2023.   As an advocate, she has  raised awareness of Parkinson's disease and  fundraises to help speed research for a cure. Check out her blog at https://www.shakingupparkinsons.com/ “Living well with Parkinson's requires a commitment to staying positive and noticing what you can do rather than what you can no longer do. It is possible to have Parkinson's and live a happy and fulfilling life.” - Miriam Bram, Parkinson's Advocate and Ambassador, World Parkinson Congress To listen to past episodes go to https://yopn.podbean.com/ Interested in joining the YOPN community? Go to https://yopnetwork.org/

Tati Mayorga Wolfe was diagnosed with Young Onset Parkinson's Disease (YOPD) at 31. Now 35 She has fought back from deep depression, and discovered ayurvedic holistic medicine   Ayurveda. While the word may be unknown to many, this holistic approach to medicine has been around for over 5,000 years. Ayurveda is the “traditional, ancient Indian system of health science” and known to be one of the oldest medical systems in the world. Through ayurvedic holistic medicine, yoga, meditation and a few other bits of information, Tati has found peace, acceptance, and a better way of life and refuses to give into PD. Check out her TikTok at https://www.tiktok.com/@tati.wolfe This is not intended for a cure, please consult with your Doctor for all health related issues To listen to past podcast episodes go to https://yopn.podbean.com/ Interested in joining the YOPN community? Go to https://yopnetwork.org/

"Calling all music lovers! Tune in to the young onset Parkinson's podcast interview episode of 'Call on the Fighter' Part 2 where we sit down with the one and only Richard Gootee. He'll be sharing his incredible story, the inspiration behind his Grammy-winning song "Just Reach Out" for the 80s Christian Rock band Petra. Plus, we'll be getting the inside scoop on "Call on the Fighter" and his new release, The Caregiver (I Need A Love)". And who knows, we might even hear an endorsement from Peter Frampton. And don't forget to welcome our new co-hosts Nathan Lee Ward and Ned Neuhaus! #CallontheFighter #RichardGootee #JustReachOut #Petra #YoungOnsetParkinsons #TheCaregiverINeedALove #PeterFrampton #NathanLeeWard #NedNeuhaus #Music #Radioparkies #YOPN #Podcast #inspiration

When a mom with young onset Parkinson's and her son team up, amazing things happen! Checkout the heartwarming story of Joni and Sequoia Lowe and their hit song "Slim Shaky"

"Exciting news for sports fans! "One Giant Leap for Fankind," the new book by ESPN founder Bill Rasmussen, has just won the grand prize at the New England book festival. In the book, Bill shares his secrets to staying positive and offers valuable tips for maintaining a positive outlook. Don't miss this opportunity to hear from the man who revolutionized sports broadcasting and get your hands on a copy of this award-winning book. Follow Bill Rasmussen for more inspiring content“ to purchase the book go to https://www.espnfounder.com/books Special thanks to APDA Regional Director Bill Patjane

Michelle Newman, the Chief Operating Officer of the Kirk Gibson Foundation for Parkinson's, discusses her decision to leave corporate America and join the foundation. She shares her personal connection to Parkinson's disease through her father's experience with the condition, and discusses how he managed his disease. Additionally, she explains the mission and purpose of the Kirk Gibson Foundation for Parkinson's, which is dedicated to supporting individuals with Parkinson's and advancing research on the condition.

Thanks to Ellen Bookman for taking the lead on this series Special thanks to StanandTeresa Jackson for coming on the show (Part 3) and sourcing great guests for this series.   Teresa Jackson is a National Board-Certified Health & Wellness Coach (NBC-HWC), Duke Integrative Medicine Coaching Program, and a Certified Coach— International Coaching Federation who will: Discuss how to take what you have learned about mental wellness, develop a plan, and apply it to your everyday life in concert with the medical management aspect of the disease. Karen Goble, Director at Southern Regional Area Health Education, an ordained chaplain, and a certified Integrative Health Coach and Cognitively Based Compassion Training teacher through the Emory University Center for Contemplative Science and Compassion-Based Ethics will: Discuss the benefits of utilizing calming techniques such as meditation and breathing as a tool to maintaining Mental Wellness. Mental Health Series Segment 2 https://yopn.podbean.com/e/mental-health-part-2-with-ellen-bookman-and-dr-charles-dent/ Segment 1 https://yopn.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/

Dr. Schmidt is active in research, specializing in the intersection between mathematics and medicine, with a special interest in mapping the n-dimensional spaces of clinical data. Schmidt serves as an advisor to several government, industry, and foundation initiatives. He has been involved in several national-scale quality initiatives including with the US National Quality Forum and the Fresco Network in Italy. Schmidt has recent or current advisory engagements in wearable sensors, telemedicine, remote monitoring, and clinical trial design. He has contributed to AHRQ and Commonwealth Fund publications and has been an invited speaker for NIH and diverse international patient and professional conferences. Schmidt previously worked in corporate finance-focused on healthcare innovation, created chronic disease management systems, and served as Chief Operating Officer of a joint venture of Oxford, Stanford, and Yale delivering online education. Educated at Harvard and Cornell, he had a fellowship

In this Episode we spoke with Andrea Merriam, CEO and Anissa Mitchell, LCSW, Chief Program Officer of the PMD Alliance about the ALL IN summit The ALL IN summit was held October 22-25 in Washington DC This national in-person summit gathered community + support group leaders and allies from around the country, convening prospective leaders, newbies, and veterans to connect, collaborate, and embrace the magic that happens when we come together to learn. About the PMD alliance PMD Alliance is a 501c3 nonprofit organization dedicated to educating, empowering, and connecting people with movement disorders, their families, and the healthcare providers and community members who care for them.

Welcome to Segment 2 of our mental health series Segment 1 included MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS which can be found here https://twomikespdpodcast.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/ In segment 2 we discuss a PRIMER ON WAYS TO STAY MENTALLY HEALTHY AS YOU NAVIGATE THOSE THINGS IN LIFE THAT where we: Discuss how we process and understand feelings and emotions as we deal with situations unique to those diagnosed with YOPD Offer insight into managing and expressing feelings Dive into how we connect with others Describe how we function or “put the pieces together” to make life decisions such as family, marriage, work, retirement, etc. Our guest is Dr. Charles Dent: Dr. Charles Dent, M.Div, PHD., is a licensed Mental Health First Aid Trainer, Coach and Therapist. Dr. Dent, a Veteran of the US Marine Corps Special thanks to Ellen Bookman and Theresa Jackson

"Call on the Fighter" began as a simple idea...create and offer original music to encourage and inspire "fighters" along their Parkinson's journey. Colleen Bridges, owner, and director of Bridges for Parkinson's found the perfect fit in one of her own fighters, Rich Gootee. Rich, an award-winning singer/songwriter, knows all too well the constant and daily struggles as he was diagnosed with Parkinson's disease in 2018. Colleen's experience, research, and regular boxing classes have helped Rich and many others discover the fight within themselves to overcome the otherwise debilitating effects of Parkinson's disease. Together, Colleen, Rich, and their team have grown the music idea into an effort to help even more fighters find restoration and hope by raising funds so that nobody will ever have to be turned away from their local program. Please check out more information about our project and consider purchasing our song at www.callonthefighter.com. Thank you for watching!  https://www.youtube.com/watch?v=rq6onvFOC9Y Song Written and performed by Greg Anderson and Rich Gootee

The woman who can smell Parkinson's Joy Milne's husband Les was diagnosed with Parkinson's at the age of 45. However, it had been 12 years earlier when Joy had first noticed that something was different about him. Joy has a rare condition called hereditary hypersomnia that gives her a heightened sense of smell. When Les was 33, she noticed that he had started to develop an odor, which she described as a subtle, musky smell. She also noticed the same distinct smell when attending meetings organised by the charity Parkinson's UK. It was at this point that she was able to link the smell to the disease.  Joy's ‘super smeller' abilities would soon go on to make headlines around the world, and along with researchers, they're changing the landscape of diagnosing Parkinson's.

Sheila Thelen, owner of Vestibular Training Services LLC (VTS), is a National/International/Master Figure Skating Coach & Worldwide presenters at International Conferences & Events. (She is a Vestibular GENIUS - working with thousands of athletes & kids & rehabilitation groups throughout the world.) https://vestibulartrainingservices.com/web/index.php?siteid=420&pageid=3356 She's here to talk about the benefits that Vestibular training has for people with Parkinson's

The American Parkinson Disease Association (APDA) Massachusetts Chapter is thrilled to announce it will host the region's first ever APDA MA Magic of Hope Gala next month. The event will take place on Friday, November 4, from 6:30 to 10:30pm, at the Newbury Boston.  Event chair Allison Goldberg (Saker) and committee welcome all to this evening of dinner and dancing to support the APDA, which provides local, grassroots resources to people impacted by Parkinson's in Massachusetts. More than 200 guests from the Greater Boston area will attend, many of whom have been touched personally by Parkinson's.  Guests will enjoy a cocktail hour and silent auction followed by dinner, dancing and a live auction. The glamorous backdrop for these festivities will be the iconic and newly restored Newbury Boston in Back Bay (www.thenewburyboston.com/).  Tune in as we speak with Bill Patjane Northeast Regional director of the APDA Allison Goldberg (Gala Lead) Caroline Baltz (Friend and Business partner of Allison) https://www.apdaparkinson.org/community/massachusetts/upcoming-events-ma/moh/

Today's guests include Eli Pollard and Alison Miller Elizabeth “Eli” Pollard is the Executive Director of the World Parkinson Coalition (https://www.worldpdcoalition.org/) talks about many subjects including the WPC in 2023 being held in Spain. She also discusses the "Parkinson's Tulip Project" what it's about and how to enter. Travel grants and much more! Alison Miller, Strategic Partnership Manager with Supernus Pharmaceutical (https://www.supernus.com/commercial-products), talks about building relationships within the Parkinson's Community and the drugs offered by Surpernus to help "on time" as well as the "Parkinson's Tulip Project"

Thanks to Ellen Bookman for taking the lead on this series Special thanks to StanandTeresa Jackson for coming on the show (Part 2) and sourcing great guests for this series.   Maintaining emotional health is as important as the medical management of any chronic disease diagnosis   Monday at 8AM EST on radioparkies.com, we begin a 3-part Mental Wellness series created to educate those diagnosed with YOPD on the importance of maintaining mental wellness Many diagnosed with YOPD may experience a flood of emotions, particularly when the diagnosis comes in the prime of life - as it does with YOPD. The 3-part Mental Wellness, Sponsored by the Young Onset Parkinson's Network (YOPNetwork.org), will:  Identify non-motor symptoms such as depression, anxiety, lack of sleep, apathy, etc.  Discuss how non-motor symptoms can affect everyday life such as how to deal with family, work, retirement, telling people, etc.  Offer tips on how to develop a mental wellness health plan  Examine how mediation can be a component in maintaining mental wellness. SEGMENT ONE: MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS Bo Majors, Licensed Social Worker, employed by Texas Children's Pediatrics in Austin, Texas, who will  Identify mental health symptoms associated with a YOPD diagnosis.  Discuss the consequences of physicians focusing only on the diagnosis, clinical assessment, evaluation, and medical management of our symptoms  

This week on radioparkies.com sponsored by the Young Onset Parkinson's Network (YOPNetwork.org) we chat with  John Cullen about his documentary. The documentary, “It's Just Parkinson's” is an inspiring and emotional look at one man's journey to live life to the fullest, while living with a disease that has no cure. John Cullen is a 62-year-old man battling Parkinson's disease with grit, courage, grace, and a warrior mindset. A lifelong athlete, Parkinson's has slowly taken Cullen out of many athletic pursuits. Yet after being introduced to powerlifting, and incorporating it into his workouts, the improvement to his mobility has been staggering. In a dramatic finish, Cullen competes in his first ever powerlifting contest. IJP is about life, death, brotherhood and the profound impact of mindset in the face of adversity. You can see the documetary here: https://vimeo.com/706326801 Password: Password: Lemond19898xii

Mark Milow interacts on social media platforms as #markinthepark21 and shares really informative and fun content while bringing awareness to Parkinson's Disease. Diagnosed with Parkinson's himself in 2020 during the Covid boom Mark immediately searched for a way to add meaning to his diagnosis and found that meaning through patient advocacy! When he received his diagnosis, there were so many questions Mark wanted answered and he felt overwhelmed. Mark then made the determination that he would help others through that difficult experience and would do whatever he could to provide assistance to Parkinson's patients and the family or caregivers that are impacted. Mark can be found on Instagram, TikTok and YouTube as @MarkInThePark21 . His Instagram is https://www.instagram.com/markinthepark21 He also has a Facebook Group for Parkinson's Awareness that can be found at MarkInThePark21 in the “Groups” section of FB. Here's a list of all Mark's social media platforms linktr.ee/markinthepark21

Darbe Schlosser is the coach, consultant, & creator of the Motorvation System. Motorvation (https://www.motorvationfoundation.org/) provides scholarships for People with Parkinson's to receive fall prevention consulting and coaching. They have administered over 900 hours of training through the Parkinson's Foundation community grant. They are in the process of developing a rehabilitative training taxonomy to improve the deliverance of rehabilitative training to the Parkinson's demographic. In addition to developing the best strategies to overcome movement abnormalities within a highly variable disease, Darbe also focusRD on improving the deliverance of these methods with consideration of movement history, movement goals, and individual constraints that impact learning and performance outcomes. ‍ She believes there exists an interrelatedness between motor output and sounds. Understanding these relationships can better provide you with tools on how to break through mental and motor blocks and successfully deconstruct and reconstruct complex movement patterns.

About Keri: Dedicated single mama to 2 amazing girls. Keri has had a long career in pharmaceuticals and geeks out reading anything she can that has to do with research and science. Keri is an avid athlete, starting early as a competitive gymnast and later fell in love with all things running. After being diagnosed with young onset Parkinson's, Keri knew from her prior experience with recovery and sobriety that in order for her to continue to show up for life that she would need to find her people and build a village. The positive approach she takes on living with YOPD allows Keri to keep pushing forward despite living with Parkinson's

The Young Onset Parkinson's Network Podcast (YOPnetwork.org) is proud to present a conversation with Kevin Kwok! Kevin tells his story and discusses being an ambassador of Davis Phinney, his talks with DP and gives his insight of the pharma/biotech industry where he spent years building a great career.   About Kevin "9 years ago, at the age of 48, I was diagnosed with Young Onset Parkinson's Disease. After recovering from the shock of this diagnosis, I opted to embrace my disease. Having been trained as a clinician (PharmD- U of Michigan 1986) and a 30 year executive in the biopharma industry, I approach my disease with a unique involvement and curiosity at multiple levels. To quote Michael J Fox, “when you've seen a Parkinson's patient, you've only seen one patient.” The issue is that no two PD patients are exactly alike, and this poses a dilemma in treating our tribe according to traditional clinical paradigms. This is where personalized medicine (PM) comes in. In the course of my presentation, I will share how my involvement in PM as a patient will both help me and others with this disease."

For this weeks show sponsored by the Young Onset Parkinson's Network (Yopnetwork.org) on Radio Parkies Webradio at radioparkies.com, listen to the story about inventor Jan Grimes. Jan talks about living with PD and a few Parkinson's hacks. Check out this Davis Phinney video for more Parky hacks https://davisphinneyfoundation.org/tips-tricks-and-products-to-manage-parkinsons-symptoms/

Podcast of Thursday 6/23/22 show   The Young Onset Parkinson's Network (YOPN) and radioparkies.com are proud to present the story of a rising personality in the Parkinson's community, Jeremy McDonald. Jeremy a talented musician initially started a YouTube channel to showcase his music then he was diagnosed with PD. So Jeremy decided to change the focus to spreading awareness and help others with this condition using his wit, and sense of humor all the while being serious when needed. Check out his videos by searching JEREMY MCDONALD ON YOUTUBE  

Are you aware there's an excellent podcast that deals specifically with Care Partner support for women who have a partner with Parkinson's? It's called Married2PD (https://www.married2pd.com/) Check out the above link to learn more Vivek and Chai talk about raising children, communication, agonists, social media and much more About Vivek and Chai Married for 15 years. Living in Northern Virginia with three kids Chai grew up near Boston and is a trained doctor and a licensed massage therapist. She works in Vivek's home building business. She also started and runs Married2PD, an organization focused on providing a place of support for wives of people with YOPD. There is a website, Facebook group, podcast, and a monthly gathering via zoom. She really enjoys gardening and reshuffling furniture and furnishings inside the home over and over again. Vivek grew up in Northern Virginia. For the last 16 years he has worked with his father in the family homebuilding business, which sounds like a euphemism for a mafia money laundering operation. Now that his wife also works in the company, he shudders at the thought of giving her a performance evaluation. He was diagnosed with Parkinson's disease 10 years ago, the day after his third child was born. New show's sponsored by the Young Onset Parkinson's Network every Thursday evening at 6:00 EST on radioparkies.com

Have you ever had dyskinesia in a public setting? Then had security walk up to you? Were you alone? Thursday's guest is Jennifer Sullivan and she went through this at a casino in California. Tune in Thursday (5/26/22) to radioparkies.com at 6:00 EST and listen to Jennifer's story and how she turned a negative situation into a positive outcome called the “Wiggles Project” and spread awareness about dyskinesia   https://www.thewigglesproject.com/

Five Facebook friends all with Parkinson's, walk into a bar. Whoops! This really happened! They actually have never met each other in person and decide to travel to Oaxaca Mexico to help the Oaxaca Parkinson's community. Here's a few hints of what they discover/re-discover.   Friendship Family Community    Guest hosts: Michael Quaglia, Mike Achin, Heather Kennedy Guests: Gavin Mogan, Nathan Lee Ward, Laura Olmos, Eric Slominski, Russ Parker   Tune in Thursday's at 6:00 EST on radioparkies.com to hear LIVE shows

keep·y-up·py noun INFORMAL•BRITISH a game whose aim is to keep a soccer ball in the air for as long as possible by bouncing it off any part of the body except the hands and arm. Thursday (5/12/22) evening on radioparkies.com at 6:00 EST the Young Onset Parkinson's Network (https://yopnetwork.org/) is proud to present the incredible Joe Gregory! Gavin Mogan and I speak with Joe who was diagnosed with Parkinson's in 2019 did "Keepy Uppy's" for 61 miles in addition to completing over 13,000 consecutive right in his back yard. Joe was a great interview who will keep you inspired, don't miss this one! Check out this video to see a keepy uppy! https://www.youtube.com/watch?v=Q7TzBKLL_XY

Thursday night at 6 EST on radioparkies.com we spoke with new ninja warrior Bryan Hill, Bryan tells his incredible story beginning with his mother being diagnosed with PD at 23 to becoming a Ninja warrior.

Thursday night 5/5/22 at 6:00 on radioparkies.com we spoke Christopher Sutphin otherwise known as cosmosperfect on TikTok. Chris talks about mental Health and Parkinson's and https://www.parkie.tv/

We have Carol Walton and Stacey Walstrum of the Parkinson's Alliance. Yes there is a walk in NYC this year and a virtual component as well!

Jessica runs Zoom classes for voice and yoga, she' worked with the PD community for over 20 years. She runs zoom classes for a "Speak Steady" program Speak Steady Program for people with Parkinson's and other neurologic impairments. This targeted program is delivered by Licensed Speech-Language Pathologist, Jessica Ackerman MSCCC-SLP, also a Registered Yoga Teacher with a career of experience in Voice and Speech Therapy for neurologic impairments, including LSVT LOUD.  Jessica's breath-based yoga program aims to maximize vocal loudness, breath support for speech, and intelligibility of speech  that so often impact communication effectiveness of people with Parkinson's Disease. This weekly program focuses on synchronizing basic gentle yoga poses with breath (matching a movement to an inhale and a movement to an exhale). Movements and poses can be achieved in a chair, wheelchair, recliner, standing, or yoga mat. If/when you have voice issues, this program is highly recommended   

Matt Vilardebo has been one of our most popular guests and now he's running for State Representative. Matt as you know has Parkinson's and he wants to leave this world in a better place. Listen in as Matt explains why he's running. Check out his Facebook page https://www.facebook.com/mvilardebo Donate to his campaign paypal.me/mattvforfm    

RePost of Thursday (4/14/22 show at 6:00 EST on radioparkies.com we have two very special people to the Parkinson's community, Karl and Angela Robb!   They share their amazing journey from meeting in an America on-line chatroom through how they stay strong dealing with PD for over 30 years.   This is a fun, inspiring interview, check it out, you'll enjoy.   About Karl Karl Robb has had Young Onset Parkinson's disease (PD) for over thirty years. With symptoms since he was seventeen years old, Karl was diagnosed at the age of twenty-three. Now fifty-five, he is a Parkinson's disease advocate, entrepreneur, inventor, Reiki Master, and author of two books (A Soft Voice in a Noisy World: A Guide to Dealing and Healing with Parkinson's Disease and Dealing and Healing with Parkinson's Disease and Other Health Conditions: A Workbook for Body, Mind, and Spirit) with his wife and carepartner, Angela Robb. He has blogged for thirteen years on his website, ASoftVoice.com. He is a Community Team Member to ParkinsonsDisease.net. Karl is a board member of both the Parkinson Voice Project and Parkinson Social Network.   About Angela Angela Robb is Karl's wife of 25 years, co-editor at ASoftVoice.com, Community Team Member at ParkinsonsDisease.net, and a Reiki Master. Angela has advocated for caregiver issues by sharing her experiences at various regional and national Parkinson's conferences, writing for the Every Victory Counts manual from the Davis Phinney Foundation, and presenting at the World Parkinson Congress. In 2015, Angela was honored at The White House as a Champion of Change in Parkinson's Disease.

PODCAST version of Thursday 4/8/22 EST aired LIVE each Thursday on radioparkies.com we talked with Arlene Faulk. Arlene Faulk is a teacher, writer, storyteller and accomplished business woman. After a years-long struggle to understand and conceal debilitating symptoms as she ascended the corporate ladder, a life-changing zigzag led her to find comfort and healing through Chinese medicine and Tai Chi. She discovered her calling with Tai Chi and has been teaching for more than 20 years. An award-winning blogger who had a passion for writing from a young age, now Arlene has captured her dramatic personal story in a memoir, Walking on Pins and Needles: A Memoir of Chronic Resilience in the Face of Multiple Sclerosis. Her inspiring story demonstrates how a chronic and debilitating health condition lacks the power to control our lives and stop us from moving in the direction of possibility. PANEL INCLUDES Ellen Bookman https://laughingmywaythroughparkinsons.home.blog/.../ell.../ Heather Kennedy https://www.kathleenkiddo.com/blog/ Teresa Jackson https://podcasts.apple.com/.../parkinsons.../id1541914877

Joe and Alicia Golomboski remember their father talk about their latest fundraiser for the American Parkinson's disease Association of Rhode Island

Thursday night 3.25.22 on the YOPN PODCAST we have guests hosts: Jonathan Braddock author of YOPD Club 1 and 2 Teresa Jackson host of Podcast “Parkinson's Pathway Pals” Heather Kennedy podcast host, writer blogger Mike Achin, athlete, and fundraiser (over 300K for MJFF and APDA) and my co-host for over 5 years Check it out as we take turns asking blogger and exercise advocate Eric Slominski (PARKYPERSPECTIVE.COM) questions about how he deals with Parkinson's symptoms and situations. Also, we have YOPN founder Anna Grill giving updates on the membership drive and the latest happenings with the Young Onset Parkinson's network.

h  ·  Shared with Public Tonight at 6 on Radioparkies.com the Young Onset Parkinson's Network Podcast (https://yopn.podbean.com/) is proud to present 2-time Stanley cup champion and all-around great guy Shawn Thornton. In this episode Shawn breaks down as he talks about his grandmothers battle with Parkinson's, his book “Fighting my way to the top”, his foundation (https://www.thorntonfoundation.org/ ) which raises money for Parkinson's and Pediatric cancer and why he's worked with the APDA of Massachusetts for 10 years plus much more. Please see attached tribute to Shawn when he played in Boston for 7 years accompanied by the Drop Kick Murphy's. Happy St. Patrick's Day! https://www.youtube.com/watch?v=APMuw8drN8c Special thanks to Bill Patjane Executive Director of the APDA Northeast for setting everything up

  SEASON 1 : EPISODE 3 Re-Post from Thursday 3/10/22 on radioparkies.com at 6:00 EST the Young Onset Parkinson's Network Podcast proudly to spoke with PD advocate extraordinaire Teresa Jackson!   Diagnosed in February 2019 Teresa quickly became a tremendous advocate for PD starting with a Mrs. Virginia beauty Pageant where she placed top 10 at 57 years young with Parkinson's.   Next, she authored her book called “Thriving with Parkinson's – finding Joy after diagnosis” a personal memoir since being diagnosed   She didn't stop there adding a hit Podcast “Parkinson's Pathway Pals - Tuesdays with Teresa to her resume   Today in addition to managing her Podcast, this amazing person is preparing for a bike ride across Virginia (300+ Miles) raising awareness and funds for Parkinson's research   To top it all off she manages to exercise 14-16 hours a week! Catch the LIVE show Thursday's 6:00 on radioparkies.com PODCAST: https://www.buzzsprout.com/1386772 FUNDRAISER: https://www.facebook.com/donate/1664174550641619/

RE-POST OF THURSDAY 3/3/22 SHOW ON RAIOPARKIES.COM Heather Kennedy, new co host Ellen Bookman and I, Interview author Michael Murray about his new book “My Pain-Body Solution” A Journey to the Other Side of Suffering which can be purchased on the website mypainbodysolution.com About the book MICHAEL J. MURRAY'S powerful memoir chronicles his difficult battle to conquer his undiagnosed pain. Murray confides his emotional torment and near collapse as numerous doctors promise relief but only deliver ineffective treatments, contradicting diagnoses, and often dispassionate care. In the end, Murray's chance discovery in a book on back pain leads to a dawning awareness of the emotional root of his near-constant agony. As he digs deeper into this line of medicine and therapy—and his past—he uncovers the deep connection between mind and body, the healing power of outdoor pursuits and connecting with nature, and the inspiring, innovative methods that can cure physical and emotional pain. But first up we have Gavin Mogan, Russ Parker, Laura Olmos, Eric Slominski and Nathan Lee Ward talk about why they're going to Oaxaca, Mexico this April starting on the 19th. They're looking to learn about their PD culture and see where they can help

RePost from LIVE show, Thursday February 24, 2022 6:00 on radioparkies.com for our first podcast as YOPN "living well starts here" podcast. Tonight we speak with Young Onset Parkinson's Network (YOPN) founder Anna Brown Grill about the latest and greatest updates concerning the YOPN. Also, we speak with board members and fellow Parkinson's fighters Jeremy Likeness and Mark Kohus, they tell their PD story and address why they joined the YOPN board. About today's guests: Anna Grill is the Founder of Young Onset Parkinson's Network (YOPN). She was on the fast track as a sales executive at a Fortune 200 company, and the youngest and only woman on the executive team when she was diagnosed with Young Onset Parkinson's Disease (YOPD) in 2007 at the age of 38. Jeremy Likness has been a professional technology and software developer for over three decades. Currently, Jeremy is the Senior Program Manager for .NET Data at Microsoft where his personal mission is to empower developers to be their best. Prior to his current position, Jeremy helped kickstart the technology and software development efforts for several startups that ultimately grew into multi-million and multi-billion-dollar corporations. YOPN board member, Mark C. Kohus, is a Senior Vice President and Group Manager with Fidelity Investments. With more than 24 years of experience working in the financial services field, Mark has held a variety of leadership roles including project management, relationship management and supporting operations.

RePost of Thursday 2.17.22 aired live on radioparkies.com   Heather, Gavin, and I had a great chat with Colonel Guy Deacon, Guy was diagnosed with PD over 11 years ago. He is very honest and show's his passion to spread awareness during this interview. I loved listening back to his incredible story and I hope you will enjoy as well!   This spring, Colonel Guy Deacon CBE will be driving an incredible 7,000 miles across Africa, from Sierra Leone to Cape Town, to raise vital awareness for Parkinson's and the need for research into the condition that affects the lives of so many people worldwide. Guy, who was diagnosed with Parkinson's over 11 years ago will mostly be traveling alone. He began his epic expedition across Saharan Africa in November 2019 which was put on hold due to COVID. Fast forward to 2022 and Guy is ready to continue his journey throughout Africa.   If you would like to contribute, just click the link below, the cost of the journey he is covering himself, the monies raised will support the creation of a documentary that will be used worldwide to raise awareness of Parkinson's.   https://www.indiegogo.com/projects/freetown-to-cape-town-with-parkinson-s-disease--2?fbclid=IwAR2OETuGlbvzsyWGgXBvv6q9bU_9d4SgA8CZLSuNLbn8NloiontCs_co55w#/

Thursday (2/10/22) at 6:00 EST on radioparkies.com we spoke with Becca Miller PhD. Becca talks about Parkinson's medication and hospital stays, and the way to fix this problem. She shares her personal story plus much more.    She co-authored the book, Deprescribing in Psychiatry, published by Oxford University Press. Becca was diagnosed with Young Onset Parkinson's Disease, at age 39 when her daughter was 9 months old, and after living with symptoms undiagnosed for 10 years prior. She has served as a delegate and spoken on YOPD and parenting at the World Parkinson Congress in Portland, OR and Kyoto, Japan.   Rebecca (Becca) Miller, Ph.D., is a licensed clinical psychologist and Associate Professor at the Yale School of Medicine, Department of Psychiatry, New Haven CT, USA. She received her MA and PhD in Clinical Psychology from Long Island University, Brooklyn, and her BA from Barnard College.  

Matthew Farrer, Ph.D., along with special guest host Gaynor Edwards  joined us on radioparkies.com (Thursday 02.03.22) at 6:00 EST. Dr. Farrer, internationally recognized for his work on the genetics of Parkinson's disease, currently works at the University of Florida where he is a professor of Neurology. He is a medical and populist geneticist by training and a neurologist by design. This interview covers why he focused on Parkinson's (specifically YOPD), alpha synuclein and much more! Matt and Gaynor are working together with the World Parkinson Congress - along with other advocates and researchers to further information and research into young onset PD. They hope to have a significant presence at Barcelona in 2023.

Re-Post of Thursday 1.20.22 show on radioparkies.com Mike Heather and I have a great discussion with Jonathan Braddock about his 2nd book “WELCOME TO THE YOPD CLUB”. Like the first book Jonathan interviews 10 inspirational people with Parkinson's from around the world and tells their stories. In this Chat with  Jon we discussed who he's interviewed, how people he's interviewed have helped him, ways to manage anxiety, the importance of laughter and much more Join us LIVE every Thursday at 6:00 Follow us on apple https://podcasts.apple.com/us/podcast/2-mikes-parkinsons-podcast/id1537782063 or just about all other major podcast sites    

RePost from Thursday 01.23.22 interview Robert Cochrane, an award-winning filmmaker, with numerous narrative and documentary features to his credit. His touching relationship with his father who has Parkinson's was the inspiration for Robert's Parkinson's-themed documentary series, Boys of Summer. He is a Ph.D. student at the University of Nevada, Las Vegas (UNLV) studying the effect of improvisation on Parkinson's Disease and Co-Owner of ComedySportz Las Vegas, which is part of an internationally-acclaimed improvisation league. The majority of this interview we discuss the benefits that improv has on parkinson's  To find out more including how you can participate, go to Robert's website, www.yesandexercise.com  

RePost of Thursday 01.13.22 on RADIOPARKIES.COM We start at 6:00 EST with Brett Miller Brett is the founder and owner of 110 Fitness (https://110fitness.org/) in Rockland, Massachusetts. Brett is passionate about adaptive fitness and inspiring the best in everyone he meets. The mission of his wellness design is to set a new standard for the world in the “fight back” against Parkinson's Disease through holistic and fitness-based approaches. Brett also serves as an ambassador for the Michael J. Fox Foundation for Parkinson's Research and the Davis Phinney Foundation. This interview we talk about his inspirational book “It's a Beautiful Day to Save Lives: A Medic's Journey to His Destiny” and the latest and greatest happenings with 110 Fitness Purchase at https://www.amazon.com/Its-Beautiful-Day.../dp/1665524650

Thursday 12.23.21at 6:00 EST on Radioparkies.com we had a conversation with Karen Frank. Karen is a retired Certified Registered Nurse Anesthetist and diagnosed with Parkinson's in 2018 She's been working with the American Parkinson's Disease Association starting a Young Onset Support Group. Additionally, she's also with the Davis Phinney ambassadorship program Karen co-founded along with Beca Miller and Kat Hill, Hospital Equity for those living with Parkinson's (HELP), it's an advocacy group focused on improving health care for Parkinson's patients. Plus, much more! Get to know Karen and catch some great Christmas tunes after the interview.

Thursday evening at 6:00 on radioparkies.com, the 2 Mikes and Heather spoke with Bill Patjane (Executive Director of the APDA – Massachusetts) and Rebecca Gilbert, MD, PHD Dr. Gilbert is the Chief Scientific Officer of the American Parkinson Disease Association (https://www.apdaparkinson.org/), the largest grassroots organization dedicated to the fight against Parkinson's disease. She also sees patients at the Movement Disorders Clinic at Bellevue Hospital Center, the flagship public hospital of New York City's Health and Hospital Corporation. This interview we cover: Focused ultrasound and DBS Gene therapy Past GDNF Trials The need for improved clinical trials for women Medication approval process Diversity in Parkinson's APDA Grant process New treatments to include -Inhaled levodopa -Non motor meds -Orthostatic Hypotension -Clinical trials to slow & stop progression Listen LIVE Thursday evenings @ 6:00 PM on radioparkies.com