A series of podcasts to raise awareness of Pancreatic Cancer in memory of Seth Goodburn who died aged 49 just 33 days after being diagnosed with the disease.
Purple Rainbow Pancreatic Cancer Podcast
And just like that November is over!It's been another busy month so Charlotte and Lesley have been catching up and reflecting on what's been going on this year.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Howard Crawford is the Scientific Director at the Henry Ford Cancer Center in Detroit Michigan.He's looking at health inequality and Pancreatic Cancer in African Americans. Currently there's a 20% higher risk for African Americans developing Pancreatic Cancer.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Georgia Papacleovoulou is the health and intelligence improvement lead at Pancreatic Cancer UK. She shares what the charity is up to at the moment and its latest campaigns.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Les Hamon is 66. He was diagnosed with pancreatic cancer earlier this year.He's currently undergoing chemotherapy with a hope that he might be able to have surgery later.Les shares his story of diagnosis and how he and his family have promised to be positive.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
We've spoken a fair bit over the last few days and weeks about clinical trials but we've not spent much time talking about what a clinical trial actually is. Obviously they can be very different but to help us understand a bit more about what goes on in a clinical trial and to dispel a few myths you're going to hear from Chris Bell, a Clinical Research Nurse at The Christie Hospital in Manchester You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Kasia was diagnosed with Pancreatic Cancer in 2014 aged just 33 and with a young son.She shares with us her diagnosis, treatment and how she uses her optimism and positivity to make sure she is getting the most from life. You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Pancreatic Cancer takes it out of you physically, but what about the emotional impact of not only a diagnosis but also the treatment?Anna Taylor is a doctor who is looking into depression and anxiety in pancreatic cancer patients due to go to surgery.You can contact anna via email here annaktaylor@doctors.org.uk and she can be found on twitter as @Anna_K_Taylor These are the links to the published papers:Exploring the psychological/emotional impact of recovery after surgery, summarises the patient 'journey': https://bmjopen.bmj.com/content/11/12/e050016.abstractSummarising the role of primary care and the GP in caring for patients after surgery, and what support networks patients use and value: https://bjgpopen.org/content/6/2/BJGPO.2021.0154This paper includes a quote from the loved one of a patient and how the diagnosis and treatment impacted them: https://onlinelibrary.wiley.com/doi/full/10.1111/hex.13263Anna also mentioned a review about antidepressants in cancer. This is the link to that paper - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6494588/She adds "In summary it says that although antidepressants are fairly safe medications for people who are medically ill (including cancer) the available evidence for them actually improving depression in cancer is not very good. It doesn't mean people can't have antidepressants and prescribing is all assessed on an individual basis anyway."As always if you have any questions please speak to your doctor. You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Pilar Del Valle is a Research Nurse based in Spain. But before that she spent time in the North West of England working for the NHS. It was here she discovered the role of CNS - something that doesn't exist in Spain. Pilar worked as a CNS for a number of years and is now sharing what she learned during that time with her colleagues and patients in Spain. You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
It's a sad fact at the moment that most people who are diagnosed with Pancreatic Cancer die from the disease.So how can medical professionals make sure that patients get the best care and support to make sure they get the most of the time they have left?That's where Jane Holt a cancer support worker at St Helens and Knowsley NHS Trust and Claire Bowman an Upper GI Cancer Nurse Specialist at Whiston Hospital come in.They share an initiative they are part of to connect patients with the local hospice as part of a supportive care programme from point of diagnosis.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Giulia Biffi is a Group Leader at the Cancer Research UK Cambridge Institute.She also co-directs the Pancreatic Cancer Programme at the Cancer Centre.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Pilar Acedo is a biologist working at University College London in the Institute of Liver and Digestive Health.Her research at the moment is based on the early detection of Pancreatic Cancer.She shares what she's doing and what life is like working as a scientist in the field of Pancreatic Cancer.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Michelle is from Maine in the United States. She's 54 and has a history of breast cancer and pancreatic cancer - both of them related to the BRCA2 mutation that she has tested positive for.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Talia Golan describes herself as passionate and fascinated by Pancreatic Cancer. And she's not wrong. She's a director of the Phase I clinical trials unit at Sheba's Pancreatic Cancer Centre in Israel.Her current research involves examining BRCA genes and the role they play in Pancreatic Cancer.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
18 months ago Dan hadn't heard of Pancreatic Cancer. But that changed in November 2021 when he got a devastating diagnosis.A year on and Dan is doing well after surgery and rounds of chemotherapy. He's been documenting his journey on his blog https://ebb-and-flow.blog/ and told us all about what it's been like over the past 12 months.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Kathy Del Giorno is Assistant Professor at Vanderbilt University. Her laboratory is looking at pancreatic cancer, as you'd expect, and especially the changes in the acinar cells that secrete digestive juices and which change in pancreatic cancer. You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Stjin Van Laarhoven is a surgeon working in Bristol. He also works with trainee surgeons and newly qualified surgeons when it comes to developing their training. This month he's focusing on Pancreatic Cancer and bringing Upper GI surgeons from across the world together for a special webinar highlighting the disease and how surgeons can look after their patients better.If you want to register for the webinar Stijn is running it's taking place on 16th November and all the details are here -bit.ly/TUGS_HPBYou can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Catarina Pelicano is a PhD student based at CRUK Cambridge Centre. She is funded by Pancreatic Cancer UK.In this episode she shares with us her research so far as well as the challenges faced by researchers in the Pancreatic Cancer space.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Nicola Day is a Clinical Specialist Physiotherapist in Oncology Rehabilitation & Exercise at Addenbrookes Hospital in Cambridge.She shares with us how and why exercise can help patients being treated for cancer. You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Dr Alex Ney is clinical research fellow at University College London.He's been working on a study about the role of data in medical research and the importance of communication between researchers and patients and their families.If you want to find out more about the research there is a film that has been produced which you can find here.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Lauren Maggs is a PHD student studying at Babraham Institute in Cambridge, joint with Cancer Research Horizons. Whilst Lauren's research now looks at Pancreatic Cancer, this wasn't initially an area she was going to study. Lauren shares with us how she became interested in Pancreatic Cancer.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Mel Dadkhah Taeidy has two job titles. Her official role is as a Macmillan Clinical Nurse Specialist at Tameside General Hospital. The other is Professional Mitherer. Mel shares with us how she works closely with patients and families to support them through treatment and often palliative care. You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Purple Rainbow is back for Pancreatic Cancer Awareness month 2022.Once again Lesley and Charlotte will be highlighting the pancreatic cancer community, speaking to doctors, nurses, researchers, charities and you.You'll be getting an episode every weekday throughout November so make sure you follow the podcast to not miss an episode.You can find out more about Purple Rainbow here https://purplerainbow.co.uk/Music Credit Purple Planet StudiosDISCLAIMER:All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of their employers.The charities mentioned and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series.The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
It's episode 30 and time for Charlotte and Lesley to reflect on the month. Purple Rainbow Podcasts has published 30 episodes across 30 days. But we couldn't have done it without our fabulous guests. Thank you to Tony, Claire, the Europac Team, Dominique, Naureen, Lindsey, Hemant, Dan, Anne-Marie, the forum ladies, Nicoletta, Tony D, Liz, Gill, Nessie, Dawn, Harry, Vicky, Fieke, Lori, Steph, The Great Wall of China ladies, Louise, and Kiruthikah. And a massive thank you to you for listening too. These podcasts are staying online so please do share them far and wide and keep raising awareness. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Kiruthikah Thillai is a consultant medical oncologist specialising in patients with pancreatic cancer. She spoke to us about her work and her research into the symptoms of Pancreatic Cancer - including depression. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
It's the end of week four of our daily podcasts in November for Pancreatic Cancer Awareness Month. And this is in fact the last round up episode from us. We do have two more episodes to finish the month off but let's take a moment, like we have for the previous 3 Sundays, to reflect on some of the interviews we heard this week as well as some bits of the interviews you didn't hear this week. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today I'm talking to Louise who lost her sister Jo to Pancreatic Cancer earlier this year. And the day after Jo's funeral Louise was taking part in a 100km hike around the peak district to raise money! The event had been postponed to covid so Louise was never meant to be doing it this year. But she tells us how she strapped on her trainers, left her sister's wake at 3.30pm to travel to the Peak District. And why it was one of the best decisions! You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
There's lots of ways people can raise money for charities supporting the pancreatic cancer community. We've heard already this month from Tony who took part in some very long cycling events, Nessie who sells second hand books and Lindsey who was putting on part memorial part fundraising night for her dad Macca. Linda and Jo though decided they were going to trek the Great Wall of China and boy did they have an adventure - which you'll hear in today's episode. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Presenter Stephanie Hirst joins the podcast today to share her memories of her mum Joyce. Joyce died from Pancreatic Cancer in 2013. Steph tells us about how she'd go out clubbing when Steph was DJing and how she managed to record her mum talking about her life. Steph also shares her own recent related health scare and how important it is not to ignore any signs that something might not be right with your health. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you will hear from Lori Casey. She got in touch from America because she wanted to share her memories of her big brother Dave Nardella. Dave was a Special Agent for the U.S. Government travelling the world and working undercover. But most importantly he was a son, brother, father, uncle and friend. He died in 2017, 6 months after diagnosis. And whilst it's an emotional story, it's also one of love. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you're hearing from Dr Fieke Froeling - a consultant medical oncologist and clinical senior lecturer at the University of Glasgow She's part of the Precision Panc team which brings together experts in pancreatic cancer across the UK. You were also supposed to hear from David Chang in this episode, but there were a few technical difficulties with his recording so he doesn't make an appearance this time. Fieke tells us what it's like working in collaboration and why it's so important to her that Pancreatic Cancer patients get the treatment they deserve. You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today Vicky joins us on the podcast to talk about her twin sister and her friend who both died of Pancreatic Cancer. She shares how their deaths affected her and her family and what it's like no longer having her sister around. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
It's the end of week 3 of our daily podcasts in November for Pancreatic Cancer Awareness Month. I can't quite believe we're here already. At the end of every week we're going to take a moment to reflect on what we've heard so far and in some cases hear bits of the interviews you haven't heard. It's been quite an emotional week with guests sharing their stories of losing their parents partners, other relatives and friends. But we also heard from Gill who is a survivor of Pancreatic Cancer and Tony Duffy a Palliative Care doctor who explains what palliative care is and why it's not to be feared. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Harry's dad was just 41 when he died from Pancreatic Cancer last year. Harry was a second year student at Loughborough University at the time. He shares with us what it's like losing your dad at such a young age as well as the support he got from the university - which included lighting up halls of residence and fountains on campus purple to raise awareness. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
There are undoubtedly people in our lives who make a huge and lasting impact. For Dawn that's Uncle Elvis. Sadly Uncle Elvis died from Pancreatic Cancer, but his legacy remains through Dawn's love of Elvis Presley. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you'll hear from Nessie. Nessie's husband Peter and her best friend June both died from Pancreatic Cancer at around the same time 8 and a half years ago. More recently her cousins husband and her ex mother in law also died from the disease. In today's episode she shares how spreading awareness of Pancreatic Cancer is now her mission to help prevent others going through the disease. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Being diagnosed with Breast Cancer for a second time saved Gill's life. Because when she went to her consultant with the lump on her breast they decided to do extra checks and tests. And that's when they discovered her pancreatic cancer. Gill's able to tell her story because she was diagnosed and treated early in the disease. And it's a privilege and a joy to have her on today's episode. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
In today's episode you'll hear from an amazing woman called Liz. She lost her mum to Pancreatic Cancer in May last year - during the first covid lockdown in the UK. Liz explains how hard lockdown was on the family and shares her mums last message to her and the rest of the family. Just a heads up - Liz's story is still really raw and there are parts of this podcast which you may find upsetting. I'd suggest if you're feeling a bit wobbly today then you might want to give this episode a miss, for now, and come back for tomorrow's episode. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today we're hearing from Tony Duffy. He's a palliative care doctor working in a hospice. Three years ago his mum died from Pancreatic Cancer. In this episode Tony talks about how his mum's illness has changed how he works as a doctor and how he's helping others with his Twitter threads about palliative care. You can find Tony on Twitter https://twitter.com/Existential_Doc (@exisitential_Doc) You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
At the end of every week we're going to take a moment to reflect on what we've heard so far and in some cases hear bits of the interviews you haven't heard. In this episode you'll hear from Lindsey, Hemant, Dan, Anne-Marie, Nicoletta and Carole, Alison and Jools aka The Girls. We cover a range of topics including remembering dads, finding out about clinical trials, the challenge of spreading the message about Pancreatic Cancer, the lack of progress when it comes to treating the disease and a beautiful friendship forged under the saddest of circumstances. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Sometimes somebody will say something and it absolutely just hit homes. And today it's Nicoletta Epaminonda who does that to me. She's a lawyer based in Cyprus and she shares with me her dad's story. He died from Pancreatic Cancer 10 years ago - and you'll hear it was only a fortnight between diagnosis and his death. This short timeframe has left Nicoletta campaigning for more to be done to get an earlier diagnosis and this is the bit that hit home for me - she calls herself a Pancreatic Cancer Activist. I love that and think that's something we can all be! You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
It's hard having a loved one die, especially when they've been diagnosed with Pancreatic Cancer. There is, however, support out there. And one of the places you can find support is the Pancreatic Cancer UK Forum. Which is what Alison, Carole and Jools did. They spoke to me about the unique friendship group they (and others who couldn't make the recording) formed when their husbands were diagnosed with Pancreatic Cancer. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast s
Today you're hearing from Anne-Marie Houlder, she's GP and Deputy Medical Director Of NHS England Improvement. She shares her experiences of a family member being diagnosed with Pancreatic Cancer in the 1970s and more recently a family friend dying from the disease. Please be aware we do talk about the death of her friend in quite a bit of detail so if you're not ready to hear that please give this episode a miss and come back tomorrow. (There's lots of laughter in tomorrow's episode I promise) You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
On the 15th October ITV Tonight showed a film all about Pancreatic Cancer. The documentary was filmed by Daniel Kennedy who decided to make the programme when his dad was diagnosed with the disease. In today's podcast you'll hear from Dan as he explains why he did it and what he would like to see happen next when it comes to spreading the message about Pancreatic Cancer. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Have you ever wondered what it's like to take part in a clinical trial? It's one of those things we hear about taking place but we don't really find out what goes on, unless we get invited to take part. Today you'll hear from Hemant Kocher who is a professor of Liver and Pancreas Surgery at Barts Cancer Institute & Queen Mary University of London, and Consultant Pancreatic and Liver Surgeon at Barts Health NHS Trust. He tells us what it's like to be part of a clinical trial as well as explaining the research he's working on when it comes to beating Pancreatic Cancer. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you're hearing from Lindsey who is sharing the story of her dad Macca. Macca died from Pancreatic Cancer in April this year after being diagnosed in 2019. You'll hear how he still influences Lindsey and how the family and friends plan to celebrate his life with a special event called Macca's St Pancreas Day on Saturday - you'll have to listen to find out what it's all about! You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
At the end of every week we're going to take a moment to reflect on what we've heard so far and in some cases hear bits of the interviews you haven't heard. This first week has been a busy one as we kicked off our challenge to make 30 podcasts over 30 days to raise awareness of Pancreatic Cancer during November. Thank you so much for your support so far, it's been brilliant to see so many positive messages. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you're hearing from Dr. Naureen Starling. She is a consultant medical oncologist at The Royal Marsden in London. She specialises in different gut cancers, including Pancreatic Cancer. She's also a trustee of Pancreatic Cancer UK. In this episode she takes us back to basics as she explains more about the pancreas, what it is, where it is and what it does. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you're hearing from Dominique. She got a text message from her mum in September 2020 telling her “please don't panic…” which is hard not to do when your mum is in Scotland and you're in the middle of a very strict lockdown in Australia. Dominique's mum was diagnosed with Pancreatic Cancer and in this episode you'll hear how Dominique needed federal clearance to get back home, how the pair of them got through the Scottish lockdown and recovery from the Whipple Operation by doing fundraising challenges. And most importantly how early diagnosis means Dominiques mum is still doing well today! You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Sometimes pancreatic cancer cases can run in families. Although this is rare there can be a set of genetic conditions which are linked to a higher risk of the disease. Researchers based in Liverpool are hoping to learn more about this and help identify people at a higher risk of pancreatic cancer. And in today's episode you'll hear from two of the team from The European Registry of Hereditary Pancreatitis and Familial Pancreatic Cancer - which is more commonly known as EUROPAC - as they explain what they do, why they do it and how you might be able to get involved too. For more information about EUROPAC head to their website https://www.europactrial.com/ (www.europactrial.com ) You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
Today you're hearing from Claire. Claire's story is a complex one because as well as dealing with her mum's pancreatic cancer diagnosis, Claire also was caring for her dad and brother. Claire shares her memories of her mum and how getting help and support was key for them all. Please share the podcast and leave a review. It really helps spread the word about what we're doing. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
For day 2 of our 30 podcasts in 30 days Charlotte is talking to a friend of Lesley and Seth. Tony Hull aka Tony Macaroni worked with them at MFI. He shares his memories of Seth as well some of the mishaps he's had while raising money in Seth's memory. You can follow these hashtags #Sethslegacy and #30PRPodcasts as well as #ShineASpotlight4Seth and #Sparkle4Seth You can find out more about Purple Rainbow herehttps://purplerainbow.co.uk/ ( https://purplerainbow.co.uk/) Music Credithttps://www.purple-planet.com/ ( Purple Planet Studios) DISCLAIMER: All views, information or opinions expressed in this podcast series are solely my own and those of individuals interviewed and do not necessarily represent the views and opinions of Pancreatic Cancer UK , Pancreatic Cancer Action, Pancreatic Cancer Research Fund And The Elizabeth Coteman Fund The charities and their employees are not responsible for and do not verify the accuracy of any of the information contained in the podcast series. The primary purpose of this podcast series is to inform, but it does not constitute medical or other professional advice or services.
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