Podcasts about wolf hirschhorn

Nikole's delivery for her daughter Chloe was... less than ideal for quite a few reasons.  Nikole's health was in jeopardy, Chloe was delivered nearly two months early, and according to one especially rude NICU doctor, Chloe “looked funny.” This difficult experience reached a crescendo when Nikole was given the news of Chloe's rare diagnosis, Wolf Hirschhorn syndrome—which included some inaccurate information about the disease (like an inaccurate life span.) But despite this traumatic start, Nikole and her family have learned to adjust, adapt, and help Chloe to thrive in the years since. In this episode, Nikole is sharing how she and her family created a team of medical staff they could trust despite some past bad experiences, how they celebrate each and every milestone for Chloe, and how they keep moving forward, as they are determined to never, ever give up on their daughter. This episode is equal parts relatable and uplifting. You can't miss it!⠀⠀⠀⠀⠀⠀⠀⠀⠀ Links: Get tickets to a special screening of The Zebra and The Bear just for The Rare Life listeners! Join The Rare Life newsletter and never miss an update! Fill out our contact form to join upcoming discussion groups! Follow Nikole @martinfamilyshenanigans! Follow us on Instagram @the_rare_life! Donate to the podcast or Contact me about sponsoring an episode. Follow the Facebook page. Join the Facebook group Parents of Children with Rare Conditions. Access the transcript on the website here. And if you love this podcast, please leave us a rating or review in your favorite podcast app!

Kammy's Kause, an annual event now in its 20th year, continues to make a significant impact in the community, bringing together people for a cause that supports individuals with rare chromosome disorders. The event was founded by Jared and his daughter Kammy, who has a rare chromosome disorder known as 4P- syndrome, also referred to as Wolf-Hirschhorn syndrome.This year's event features a two-day lineup. On Friday night, an acoustic night on Main Street in Fortville will showcase over 20 acoustic musicians performing inside businesses and on sidewalks, in a style reminiscent of Nashville's live music scene. The main event on Saturday includes Kammy's Ride, a motorcycle ride now in its 15th year, as well as full bands, a Kid Zone, and a silent auction at Landmark Park. All activities are free to attend, with donations encouraged to support the cause.Kammy's Kause was created to raise awareness and fund research for 4P- syndrome, providing resources and support to families facing similar diagnoses. Over the past 20 years, the event has grown to become the largest of its kind globally, offering much-needed assistance to families worldwide. The funds raised go directly to research and the 4P- Support Group, which has helped change the landscape for families dealing with the disorder.Kammy, now a vibrant and spirited young woman, was initially given a bleak prognosis at birth, but has defied expectations, showcasing her lively personality and zest for life. The event not only celebrates her journey but also supports others navigating similar challenges.For more information on Kammy's Kause and how to participate, visit KammysCause.org.See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

-First pregnancy in 2014, ended in miscarriage, no heartbeat at 9 weeks. -Second pregnancy in 2015, at 12 weeks was sent to a specialist - baby had a rare chromosomal defect called Wolf-Hirschhorn syndrome (1:50,000 chance of happening) and we decided to terminate at 15 weeks. -Third pregnancy again in 2015, this time a healthy baby girl, now age 7. -Began trying again in 2018...no luck for 2-3 years. -Fourth pregnancy finally in 2021, after secondary infertility, baby boy born healthy in 2022. -As a parent, I run my own coaching business, have the baby home with me two days a week, and try to manage it all - making a full time salary on part-time hours, being present for my kid or business, and it's a lot. -The large age difference between children does help at times! I'm a career/business coach. I coach women on taking their corporate experience and building a lifestyle/freelance business with their skills. FIND HER HERE: www.corporate2contract.com https://www.linkedin.com/in/kirimohan/ https://www.instagram.com/thekirimohan/ Podcast: https://www.corporate2contract.com/podcast --- Send in a voice message: https://podcasters.spotify.com/pod/show/becoming-parents/message

Kate and Mandy chat with super duo mother-in-law Sue and daughter-in-law Mel, founders of Snuggly Bags by Ellie, a company that makes sleeping bags in sizes 4-16 for kids who have trouble staying under the covers at night!Snuggly Bags by Ellie is inspired by Mel's fifteen-year-old daughter Ellie, who is diagnosed with Wolf-Hirschhorn syndrome. Once she'd grown out of her size 4 sleeping bag, Ellie had trouble sleeping under the covers, yet Mel couldn't find bigger sleeping bag sizes to suit Ellie's growing body. So, with Sue's background in the clothing industry and dress design, she set about designing and making a sleeping bag to fit. Using a business called Manufacture My Product, Sue was able to source organic, pure cotton and have samples made up in China, and develop two different weighted full bags, a lighter summer bag and a suit with legs. The bags use soft woven cotton that feels like sheets and allows plenty of room for movement. Sue and Mel took the Snuggly Bags to the Source Kids expo in Sydney, where a tired dad bought a snuggly bag for his young son. He contacted them the next day, to say he'd had his first full night's sleep in years! Sue and Mel then knew they were onto a product that could help Peas everywhere get a better night's sleep. Snuggly Bags can be modified to fit feeding tubes and can be claimed as a consumable through NDIS.Order your Snuggly Bag via their website and follow them on Facebook and Instagram. Sue and Mel will be doing a giveaway on Instagram this week, so please follow them to be in the running! Plus: Listen to our Spotify playlist –Too Peas: Songs Our Guest Peas LoveJoin our Facebook HangoutFind us on YouTubeBuy our book The Invisible Life Of Us!Leave us a speakpipe Help spread the love for Too Peas by rating and reviewing us!Melbourne forecast for Thursday November 23 - Cloud clearing, 26 degreesThank you for supporting Too Peas In A Podcast! We love to hear from you, please contact us here: Website: www.toopeasinapodcast.com.auEmail: toopeaspodcast@gmail.com Hosted on Acast. See acast.com/privacy for more information.

[Content Warning: This episode discusses physical and sexual abuse] In this episode, we're joined by Maria (she/her), a mother whose life took an unexpected turn when her daughter, Josephine, was diagnosed with Wolf-Hirschhorn syndrome, a rare chromosomal abnormality at two weeks old. Maria shares the challenges and transformations her family experienced, from the initial shock of the diagnosis to their journey towards acceptance and gratitude. Maria shares the emotional rollercoaster from the initial shock of the diagnosis to embracing the realities of special needs parenting. At 36 weeks into her pregnancy, an ultrasound revealed her baby was measuring 10 weeks behind, potentially leading to a c-section and an extended stay in the NICU. Maria believes her extensive research and use of acupressure, essential oils, curb-walking, and determination led to a complication-free, physiological, vaginal birth. Maria reflects on how, despite the initial hardships and endless appointments, she and her husband began to discover the incredible blessings Josephine brought into their lives. Their marriage grew stronger, they formed meaningful friendships, and their prayers were answered in unexpected ways. Grief transformed into profound gratitude as they got to know their little girl. Josephine's life may be different, but it is no less valuable. The experience reshaped Maria's perspective on motherhood, emphasising the power of love and the true meaning of life. Maria has also put all of the evidence and information she researched into a pregnancy and birth app, ⁠Zelie.⁠ It covers useful things to do during each trimester to prepare for birth, pregnancy exercises and stretches, the importance of nutrition - with some great smoothie and food recipes - and things like pain management and breathing techniques for labour. You can download it to iOS or Android. Content Warning: From 48 - 51 minutes, this episode contains discussions about the physical and sexual abuse experienced by children and individuals with disabilities. These discussions can be difficult to hear, so feel free to skip this episode, segment of the episode, or take breaks as needed. I encourage you to seek support (I've listed some resources below) if you find these topics distressing or they bring anything up for you: COPE (Centre of Perinatal Excellence): ⁠⁠⁠⁠⁠https://www.cope.org.au/⁠⁠⁠⁠ Beyond Blue: ⁠⁠⁠https://www.beyondblue.org.au⁠⁠⁠ PANDA: ⁠⁠⁠https://panda.org.au/⁠⁠⁠ Lifeline: ⁠⁠https://www.lifeline.org.au/⁠ To see some photos of Maria and her family, follow us on instagram ⁠⁠@definitelybabypodcast⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. The Definitely Baby theme music was written by Hagan Mathews and produced at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@sleeplessfootscray⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠. The photo in the podcast logo was taken by ⁠⁠⁠⁠@maki.levine⁠⁠⁠⁠. This episode was partially recorded on the lands of the Wurundjeri Wilam and Boon Wurrung/Bunurong peoples of the Kulin Nation. Australia always was and always will be the land of the First Peoples. Every month, I Pay The Rent and so can you - click ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠here ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠to learn more.

Con @IsabelClementeT

$5 Q-BANK: https://www.patreon.com/highyieldfamilymedicine Aneuploidy, Robertsonian translocation, mosaicism, prenatal screening, physical exam findings, Down's syndrome, Edward's syndrome, Patau syndrome, Klinefelter syndrome, Turner syndrome, Triple X syndrome, XYY syndrome, Cri Du Chat syndrome, Wolf-Hirschhorn syndrome, Jacobsen and Paris-Troussaeu syndromes, Charcot-Marie-Tooth syndrome, Prader-Willi and Angelman syndromes, trinucleotide repeat disorders, Fragile X syndrome, Huntington Disease, Myotonic dystrophy Type I, spinocerebellar ataxia, and Friedrich ataxia.

El síndrome Wolf-Hirschhorn es un trastorno del desarrollo que se caracteriza por unos rasgos craneofaciales típicos, retraso en el crecimiento pre y postnatal, discapacidad intelectual, retraso grave en el desarrollo psicomotor, convulsiones e hipotonía” (disminución del tono muscular), explica Julián Nevado Blanco, responsable de Genómica Estructural y Funcional del Instituto de Genética Médica y Molecular (INGEMM) del Hospital La Paz de Madrid (España). Más info en www.lossilenciosdeelan.com (sección radio - 9ª temporada) y en https://fundacion4pmenos.com/

This Episode is Part 2 with special guest Heather Lanier and talk about some of her experiences with a special needs child born with an ultra-rare syndrome known as Wolf-Hirschhorn. They also discuss her book called Raising a Rare Girl.Mama Marias is a podcast for parents and caregivers of children with special needs of any kind. It is called Mama Marias because the two hosts are both named Maria and each has a teenage daughter with special needs. It is their hope to share their experiences and knowledge, which they have gained through both tough and good times over the years. They hope to be a resource and support for families. They want parents to know they are not alone...not alone in the way they are feeling, in the things they are experiencing, and in the things they are dreaming. Mama Marias aims to bring families understanding, peace, and continued hope. Please email the hosts at mamamariaspodcast@ascfamily.org with any suggestions or questions. We look forward to hearing from you. Thank you for being a part of our lives because we would like to be a part of yours.

This Episode is Part 1 with special guest Heather Lanier and talk about some of her experiences with a special needs child born with an ultra-rare syndrome known as Wolf-Hirschhorn.Mama Marias is a podcast for parents and caregivers of children with special needs of any kind. It is called Mama Marias because the two hosts are both named Maria and each has a teenage daughter with special needs. It is their hope to share their experiences and knowledge, which they have gained through both tough and good times over the years. They hope to be a resource and support for families. They want parents to know they are not alone...not alone in the way they are feeling, in the things they are experiencing, and in the things they are dreaming. Mama Marias aims to bring families understanding, peace, and continued hope. Please email the hosts at mamamariaspodcast@ascfamily.org with any suggestions or questions. We look forward to hearing from you. Thank you for being a part of our lives because we would like to be a part of yours.

ONCE UPON A GENE - EPISODE 106 Rare Book Club with Co-Host Patti Hall - Featuring Heather Lanier and Her Book, Raising a Rare Girl Fellow rare moms, Patti Hall and Heather Lanier have shared their journeys in their memoirs. Patti is the author of Loving Large, a story about her experience raising her son who was diagnosed with a rare disease called acromegaly, also known as gigantism. Heather is the author of Raising a Rare Girl, about her daughter who has Wolf-Hirschhorn syndrome. EPISODE HIGHLIGHTS What is the synopsis of the book, Raising a Rare Girl? I start the book talking about a phenomenon called super baby, which is a pressure in pregnancy culture to make a superbaby— a totally healthy prenatal environment encouraged by medicine and the culture at large. Fiona was born full term, but really small at 4 lbs.10oz and no one initially knew why. Three months later it was discovered that Fiona had an ultra-rare syndrome known as Wolf-Hirschhorn. I talk in the book about how I processed the diagnosis and what it meant to have a child with questionable development, how to advocate for Fiona and how to help her carve her way into the world.  How did you arrive at beautiful acceptance? When someone would say something or make me feel like Fiona was broken, I looked to her and I saw that she was the most miraculous being in my life. Despite the noise around her, I knew Fiona was amazing. I returned to what I knew to be true of her and allowed her to be the light she is.  Did you receive responses from anyone outside of the rare community who read your book? I get notes and emails from parents who thank me because they're early in their diagnosis journey and it serves as a roadmap. I appreciate the reviews from readers who are outside the world of parenting a disabled kid, like a teacher who said she thought she was open to her students, but realized she had a lot of work to do.  Did you have a moment when you realized the experts were asking you for advice? I write about a time when Fiona had a fever and I thought we may need to see an immunologist. I'm waiting for the doctor, who was a very good doctor, to make the same conclusion. He turned to medical literature, struggling to spell Wolf-Hirschhorn, looking for anything about the immune system as it relates to the malformation. I knew kids with the syndrome often needed immune support and that was the moment when he started to trust me more.  RESOURCES AND LINKS MENTIONED Episode 033 - Loving Large: A Mother's Rare Disease Memoir https://effieparks.com/podcast/episode-33-loving-large Loving Large: A Mother's Rare Disease Memoir https://www.amazon.com/Loving-Large-Mothers-Disease-Memoir/dp/1459746368 Raising a Rare Girl  https://www.amazon.com/Raising-Rare-Girl-Heather-Lanier/dp/0525559639 TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/

Author Anitra Rowe Schulte shares her journey into picture books and how she found the right story for her character. Today's featured book, DANCING WITH DADDY, is about the excitement of a first father-daughter dance told from the point of view of a character with Wolf-Hirschhorn syndrome. Books featured on the show this spring: https://bookshop.org/lists/summer-2021-picturebooking-list Become an email subscriber to enter the monthly book giveaway: https://picturebooking.com/email

Episodio final de la primera temporada de #NeuroPhysioClub, la sala semanal del Club Neurofisioterapia en ClubHouse. Hablamos sobre enfermedades poco frecuentes, en concreto nos centramos en tres ejemplos: Síndrome de Wolf Hirschhorn [4p-], Síndrome de Rett y PKAN. Juan Anaya [@juanayaojeda] modera una charla en la que intervienen distintos perfiles [profesionales, familiares...] relacionados con estas enfermedades. Isabel Clemente [@IsabelClementeT], Ana María García Piñero y el Profesor José Antonio Sánchez Alcázar intervienen en este episodio y aportan su conocimiento y experiencia desde el punto de vista investigador, de neurofisioterapia y familiar, sacando conclusiones muy interesantes y llenas de humanidad, ciencia y espíritu constructivo y divulgador. Esperamos que esta primera temporada de #neuroPhysioClub os haya resultado interesante, si os apetece que sigamos publicando en septiembre podéis enviarnos vuestros mensajes por redes sociales usando el HT #NeuroPhysioClub, estaremos encantados de leer vuestras opiniones :-) Muchas gracias a José Antonio, Ana e Isabel por su participación, esperamos volver pronto a este espacio de intercambio y aprendizaje. ¡Feliz verano! Nuestra banda sonora es "Life" de Roa Music. Os recomendamos que echéis un vistazo a su obra, que está publicada de forma libre [https://soundcloud.com/roa_music1031] con CC. 3.0.

Hoy voy a entrevistar a Isabel Clemente y June Arroitajauregui, dos responsables de la Fundación Síndrome de Wolf Hirschhorn que nos hablarán sobre esta enfermedad. Ellas nos explicarán la problemática a la que se enfrentan las familias cada día y en qué medida la tecnología les ayuda para […]

Todo el mundo habla sobre las vacunas, algunos convencidos de su eficacia, otros escépticos y otros directamente negacionistas. Conceptos como eficacia, inmunidad de grupo o especificidad resuenan en los medios, pero para entenderlos hay que hacer algo más que intuir al vuelo su significado.Necesitamos comprender los mecanismos inmunitarios que hay detrás y así entender por qué llamamos “negacionistas” a los negacionistas.Para hablar sobre esto tenemos con nosotros a Elena Campos, doctora en Biociencias Moleculares (especialidad Biomedicina) y Licenciada en Biotecnología por la Universidad de Salamanca. En Salamanca se inició en la investigación desde el Centro de Investigación del Cáncer, donde se especializó en la generación y caracterización de modelos de ratón para el estudio de dicha patología. Posteriormente se fue a Madrid, donde realizó su tesis doctoral en el Centro de Biología Molecular Severo Ochoa, estudiando el desarrollo del sistema hematopoyético (sanguíneo) en el contexto de enfermedades raras, en concreto, del Síndrome de Wolf-Hirschhorn. Actualmente, es investigadora postdoctoral del CSIC en el grupo de Inmunología Viral orientado a la mejora del control por parte del sistema inmunitario de infecciones crónicas y oportunistas, en las que la respuesta inmune celular juega un papel esencial, con el fin último de contribuir al diseño racional de vacunas. También preside la Asociación para Proteger al Enfermo de Terapias Pseudocientíficas (APETP).

On this Special Fathers Network Dad to Dad Podcast, host David Hirsch talks to two Dads, Chris Wade and Travis Jorgensen. Chris is a divorced dad of three kids one of whom, Luca, has Wolf Hirschhorn Syndrome, a rare congenital disease. Travis is a step-dad of sorts to Luca, though not married to Luca's mom, Leah, he is a dedicated partner and caregiver of Luca and her siblings. Chris, Travis and Leah all take turns caring for those three kids. It's a unique as well as beneficial situation and we'll hear all about it in this Special Father Network Dad to Dad Podcast.Special thanks to Louis Mendoza at Washington State Fathers Network and Kindering Center for making the introduction. Washington State Fathers Network – https://fathersnetwork.org Wolf-Hirschhorn Syndrome – https://rarediseases.info.nih.gov/diseases/7896/wolf-hirschhorn-syndrome Human Milk for Human Babies - https://www.facebook.com/hm4hbWA/ https://www.21stCenturyDads.orgPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/

[REBROADCAST FROM JULY 20, 2020] Wolf-Hirschhorn is a genetic syndrome which affects one in 50,000 births, according to the NIH. Award-winning writer Heather Lanier discusses raising her daughter diagnosed with the rare syndrome and their relationship in her new book, Raising a Rare Girl: A Memoir.

Wolf-Hirschhorn is a genetic syndrome which affects one in 50,000 births, according to the NIH. Award-winning writer Heather Lanier discusses raising her daughter diagnosed with the rare syndrome and their relationship in her new book, Raising a Rare Girl: A Memoir.

Kim Parke was another example of exploring diverse perspectives to inform understanding of inclusion and freedom. Winnipeg Mom wrote "Raising Hope"   is a true story of a mother’s unending love for her second child, named Hope, who was born with Wolf-Hirschhorn, a rare genetic syndrome. She says she "came into this world to teach others about what unconditional love really means and how that needs to be protected." Recognizing issues of inclusion were entangled with freedom, her perspective informs her take on solutions and what it means to go from Me to We. More about Kim,  her book, or speaking inquiries go to: http://www.raisinghope.ca/   Twitter @KimParke123 You can also find her on FaceBook & LinkedIn 

In this episode I talk with Heather Joy Magdelano about her journey as a mother to two children with a rare genetic syndrome called Wolf-Hirschhorn. We get real about the complexity of emotions parents with kids with disabilities experience, along with caregiver's burnout, how to avoid it + finding joy in deep acceptance. We cover G-Tube feeding to the fear of outliving your own child, along with flower essences + alternative therapies for kids with disabilities.  

Heather Lanier's daughter Fiona has Wolf-Hirschhorn syndrome, a genetic condition that results in developmental delays -- but that doesn't make her tragic, angelic or any of the other stereotypes about kids like her. In this talk about the beautiful, complicated, joyful and hard journey of raising a rare girl, Lanier questions our assumptions about what makes a life "good" or "bad", challenging us to stop fixating on solutions for whatever we deem not normal, and instead to take life as it comes. Hosted on Acast. See acast.com/privacy for more information.

La fille d'Heather Lanier, Fiona, est atteinte du syndrome de Wolf-Hirschhorn, une maladie génétique qui résulte en des retards développementaux -- mais cela ne la rend pas tragique, angélique ou l'un des autres stéréotypes sur les enfants comme elle. Durant cette intervention sur le magnifique, complexe, joyeux et difficile chemin que c'est d'élever une fille rare, elle remet en question nos assomptions sur qui rend une vie « bonne » ou « mauvaise », nous défiant d'arrêter de nous concentrer sur des solutions pour ce que nous ne considérons pas normal et de prendre plutôt la vie comme elle vient.

Fiona, la hija de Heather Lanier, tiene síndrome de Wolf-Hirschhorn, una enermedad genética que causa retrasos en el desarrollo… pero esto no la hace trágica, angelcial o ninguno de los otros estereotipos con los que se etiqueta a niños como ella. En esta charla sobre la hermosa, complicada, alegre y ardua tarea de criar a una niña inusual, Lanier cuestiona nuestras suposiciones sobre lo que hace que una vida sea buena o mala. Nos desafía a que dejemos de buscar soluciones para lo que consideramos 'anormal' y a que, en su lugar, aceptemos a la vida tal y como es.

A filha de Heather Lanier, Fiona, tem síndrome de Wolf-Hirschhorn, uma condição genética que resulta em atrasos no desenvolvimento - mas isso não a torna trágica, angelical ou qualquer outro estereótipo sobre crianças como ela. Nesta conversa sobre a bela, complicada, alegre e difícil jornada de criar uma garota rara, Lanier questiona nossos pressupostos sobre o que torna uma vida "boa" ou "ruim", desafiando-nos a parar de nos concentrar em soluções para o que julgamos não normal e, em vez disso, levar a vida como ela se apresenta.

Heather Lanier's daughter Fiona has Wolf-Hirschhorn syndrome, a genetic condition that results in developmental delays -- but that doesn't make her tragic, angelic or any of the other stereotypes about kids like her. In this talk about the beautiful, complicated, joyful and hard journey of raising a rare girl, Lanier questions our assumptions about what makes a life "good" or "bad," challenging us to stop fixating on solutions for whatever we deem not normal, and instead to take life as it comes.

Hoy en Buenas Tardes Getafe: Aitor tiene el Síndrome de Wolf-Hirschhorn. Gema su madre nos habla de la solidaridad del Municipio de Getafe a través de la compra de unas pulseras que muestran como lema “El Sueño de Aitor” poder andar , conoceremos la implicación de los Comandos Azules con en esta causa y charlaremos con nuestras compañeras de Equinoterapia Madrid Sur.

This episode features the amazingly talented writer, Heather Kirn Lanier, who writes the beautiful blog Star in her Eye, telling her story about her daughter Fiona. Fiona was diagnosed with Wolf Hirschhorn Syndrome, or 4P deletion after doctors noted her small size as an infant. During the episode, Heather explains about Fiona's diagnoses, how she and her husband Justin came to redefine what a "problem" was, and how communication has changed life for Fiona. There's also a brief cameo from Fiona herself. 

Ahhh, festival season.  My favorite time of year -- Wunurth, Muncie Musicfest, The Battle of Birdy's, Oranje, Little Turtle, and my personal favorite (well, now that Circlefest is no more, yeah, THANKS Laura): Kammy's Kause.  Every year at the end of summer, some of the finest musicians from Indy, Chicago, Louisville, and everywhere in between rally behind Jared Hiner (Original State of Mind, ) and help him raise money and awareness for Wolf-Hirschhorn syndrome (Chromosome 4p- disorder) and his daughter Kammy.  For me, it's become an annual reunion and chance to catch up with old friends ... like the Shadyside All-Stars, who have kicked off both of our Kammy's Kause series thus far, and once again prove themselves to be the undisputed champions of interview chaos generation.  I'm always skeptical when what is essentially a live, somewhat improvisation-based band goes into the studio to capture their sound in a recording.  Invariably, phrases like "paired down" and "specially arranged" get thrown out, which usually translate to "removed the magic moments" and "took out the energy."  This is not the case with the debut CD from Shadyside Allstars -- possibly because they had more magic moments and energy than the average band when they went in, I'm not sure.  Their debut CD is an excellent representation of what these guys are capable of in a live setting, fine tuned and with just a little added polish (this is a permanent record and subject to over-scrutinizing, remember).  While it can never equal the enjoyment of attending the spectacle of their live shows (and maybe putting a little of your hard-earned money into "Head") it's great for those cold late autumn/early winter evenings when you're home alone because the Allstars are on their holiday break.  It's definitely worth clicking on the link below and ordering yourself a copy. Links referenced in the show:                Shadyside Allstars can be found here: | | | | | They made their first appearance back on which you may want to review before you listen to this one, since we reference a couple of jokes for that show.   Jack Barkley, who twittered in at the beginning of the show appeared with his band back on .  Their first album, Shadyside Allstars is available on , , , , and . It was recorded at , engineered by Chris Dobbs and Steve Allen, and mastered by Brian Lucey. Their home bar, and favorite place to play, is . They recently played hosted by . Our last song Deep Rolling Water concerns the plight of .  This is the first of five shows recorded at .