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Last week, children with disabilities and their parents were on Capitol Hill telling Republicans that Medicaid cuts would be devastating.
Dr Shannon Schedlich, the insightful force behind Siblings Australia, joins us to unpack the profound impact of supporting siblings of individuals with disabilities, chronic illnesses, or mental health conditions. With her extensive experience and dedication, Dr. Schedlich sheds light on how the organisation has evolved since 1999 to serve over 20,000 families nationwide. We explore the nuanced world of sibling dynamics, emphasising the power of communication and connection through workshops and peer support, and highlight the often-overlooked needs of siblings when families concentrate on members with disabilities. Our discussion goes beyond the statistics as we explore the emotional and spiritual dimensions of charitable work. Inspired by the values of giving back, we examine how businesses engaging in philanthropy find greater success and fulfilment. Dr. Schedlich shares her experiences with families navigating the challenges of disability, whether they arise from birth or sudden incidents. We touch on the importance of acknowledging varying family dynamics and the crucial role of community support in safeguarding the mental well-being of siblings. We also address the financial and emotional challenges that organisations and families face in this field. Dr. Schedlich offers insights on the significance of self-confidence in decision-making and the quiet strength of achievers who make a profound impact without raising their voices. Our conversation turns to the pressures on families, especially within marriages, that arise when caring for children with complex needs. We shine a light on Siblings Australia as a beacon of support, especially for those in remote areas, and invite listeners to consider how they might contribute to or benefit from the resources and compassion offered by trusted organisations. Chapter Summary Chapter 1 Supporting Siblings 00:09 Siblings Australia provides national support for siblings of individuals with disabilities, chronic illnesses, or mental health conditions. Chapter 2 Supporting Children With Disabilities 13:58 Dr Shannon Schedlich and I discuss giving back, thriving businesses, and experiences with disabilities and charity work. Chapter 3 Family Dynamics and Financial Challenges 26:03 Self-confidence in decision-making, quiet achievers in business, funding for organisations supporting families, blended families with special needs, open communication, family dynamics, societal implications, and support for siblings to prevent mental health issues. Chapter 4 Supporting Families of Children With Disabilities 38:28 Families raising a child with a disability may face pressures leading to breakdowns, affecting parents and siblings. Siblings Australia offers support and resources, especially for those in remote regions. CREDITS Host: Peter Salerno Mobile: 0408 811 567 Email: petersalerno.austalk@gmail.com Guest: Dr Shannon Schedlich Web: https://siblingsaustralia.org.au/ Producer: Ron Fiedler, Podcast City
Andrea McNamara, Head of private client law at EY Law
Joe is joined by Labour TD, Conor Sheehan, to hear his opinion on the current assessment of needs system for children with disabilities in Ireland Hosted on Acast. See acast.com/privacy for more information.
Dr. Molly Fuentes is medical director at the inpatient rehabilitation unit at the Seattle Children's Hospital. Dr. Fuentes is an assistant professor of rehabilitation medicine at the University of Medicine. She also is a pediatric physiatrist. She completed her undergraduate degree at Stanford University and is a graduate of the School of Medicine at the University of Michigan. She completed her residency at the University of Washington and later completed a pediatric fellowship at the Seattle Children's Hospital. She then completed a research fellowship in pediatric injury at the Harborview Injury Prevention and Research Center at the University of Washington. She is the medical director at the inpatient rehabilitation unit at the Seattle Children's Hospital. Part 2 She indicated that the Indian Health Service per capita receives half of what Medicaid receives. Treaty-bound trusts for providing health care are chronically underfunded. The Indian Health Service operates under a funding cap, which is annually appropriated. In contrast, Medicare and Medicaid are entitlement programs. She then returned to looking back at the injury-equity framework. She wanted to dive into the pre-event phase factors for native children and teens. An example pertains to motor vehicle injuries. Tribal sovereignty means that tribal laws are what is important to safety on reservations roads, e.g., speed limits and seat belt use. She described various programs that aim to improve safety on tribal roads. She then discussed the post-event phase involving rehabilitation and the golden hour that affects health outcomes. Where native people mostly reside in the U.S., there are fewer trauma centers. A related topic is models of access to health care services. The acceptability of these services by patients is a key element in the quality of health care provided. High rates of health uninsurance affect this population negatively.
How to Measure Physical Activity in Children and Adolescents Download your free e-book here: https://www.physicalactivityresearcher.com/ebook2 Authors: Ugne Kari, Olli Tikkanen, Arto Pesola _________________ This podcast episode is sponsored by Fibion Inc. Better Sleep, Sedentary Behavior and Physical Activity Research with Less Hassle Learn More About Fibion Devices: Fibion SENS- Collect, store and manage SB and PA data easily and remotely. Fibion Flash - A versatile customizable tool with HRV and accelerometry capability. Fibion Research - SB and PA measurements, analysis, and feedback made easy Fibion Helix – Ideal for large scale studies. Scalable and affordable with patented precision. Fibion G2 – Validated data on sitting, standing, activity types, energy expenditure, with participant friendly reports. Read about Fibion Sleep and Fibion Circadian. Fibion Kids - Activity tracking designed for children. Fibion Vitals - A portable device designed to be worn on the chest that serves as a comprehensive health management tool. Fibion Emfit - Contact free tracking and sleep analysis. Explore Our Solutions: Fibion Sleep Solutions Fibion Sedentary Behavior and Physical Activity Solutions Fibion Circadian Rythm Solutions Fibion Biosignal Measurements Solutions Recommended Articles & Guides: Explore our Wearables, Experience sampling method (ESM), Sleep, Heart rate variability (HRV), Sedentary Behavior and Physical Activity article collections for insights on related articles. Refer to our article "Physical Activity and Sedentary Behavior Measurements" for an exploration of active and sedentary lifestyle assessment methods. Learn about actigraphy in our guide: Exploring Actigraphy in Scientific Research: A Comprehensive Guide. Gain foundational ESM insights with "Introduction to Experience Sampling Method (ESM)" for a comprehensive overview. Explore accelerometer use in health research with our article "Measuring Physical Activity and Sedentary Behavior with Accelerometers ". For an introduction to the fundamental aspects of HRV, consider revisiting our Ultimate Guide to Heart Rate Variability. Stay Connected: Follow the podcast on Twitter https://twitter.com/PA_Researcher Follow host Dr Olli Tikkanen on Twitter https://twitter.com/ollitikkanen Follow Fibion on Twitter https://twitter.com/fibion Check our YouTube channel: https://www.youtube.com/@PA_Researcher Receive Updates on Latest Research Grade Wearables: Next Generation Reseach Techniques LinkedIn Newsletter
Dr. Molly Fuentes is medical director at the inpatient rehabilitation unit at the Seattle Children's Hospital. Dr. Fuentes is an assistant professor of rehabilitation medicine at the University of Medicine. She also is a pediatric physiatrist. She completed her undergraduate degree at Stanford University and is a graduate of the School of Medicine at the University of Michigan. She completed her residency at the University of Washington and later completed a pediatric fellowship at the Seattle Children's Hospital. She then completed a research fellowship in pediatric injury at the Harborview Injury Prevention and Research Center at the University of Washington. She is the medical director at the inpatient rehabilitation unit at the Seattle Children's Hospital. Part 1 Dr. Fuentes described her life experiences that influenced her choice of a career in the area of pediatric disability. In this presentation, she wanted to: review the injury epidemiology literature for American Indian and Alaska Native children and teens, identify some historical traumas that impact native people, recognize the utility of the injury-equity framework, the international classification of functioning disability and health model, conceptualize rehabilitative care, and describe some barriers to rehabilitation care. A health disparity is just that difference in health status between population groups. A health disparity becomes an inequity when that disparity is due to systematic differences in social, economic, environmental, or health care resources. There is a health care inequity when there is a difference in access to health care utilization or receipt of health care services. Looking specifically at disability and functional difference among American Indian and Alaska Native children, there really is not that much published literature on the prevalence of disability in this population. Dr. Fuentes concluded Part 1 by discussing historical relationships between Native American tribes and the federal government, which have had a significant deleterious impact on individual and community health status of these individuals. For example, boarding schools or residence schools represent another kind of push in the direction of forced assimilation where traditional practices were punished.
In this episode, we dive into the real-life consequences of proposed U.S. Department of Education budget cuts, specifically their impact on children with disabilities in Michigan. With guests from an Intermediate School District (ISD), the Autism Alliance of Michigan, and an agency serving people with developmental disabilities, we explore how federal education dollars currently support essential services, what's at risk if that funding disappears, and how local communities can respond. From early intervention to IEP implementation and long-term equity concerns, our panel unpacks the cascading effects these cuts could have on students, families, and schools across the state.
What does being the best really mean?What does ‘fitting in' look like?Parents and children living with physical disabilities live with a unique set of challenges. They often find themselves judged or ridiculed, and this can have a big impact on our kids.On this week's bucket emptying, I welcome back Cathy Reay, a disabled writer and journalist, and mum of two (plus a very cheeky cat!). She also works in educational publishing. How To Be Disabled and Proud (or at least kinda sorta okay with it...) is her first children's book.We discuss how to empower our kids with self-confidence and resilience in relation to living with a disability, so they grow up seeing it not as a weakness, but as their superpower.So find a comfy seat, pour yourself a cuppa and enjoy the conversation…Connect with Cathy:Website: https://www.cathyreay.com/Instagram: https://www.instagram.com/cathyreaywrites/ X: https://x.com/cathyreaywrites?lang=en How To Be Disabled And Proud: How To Be Disabled and Proud: (or at least kinda sorta okay with it...): Amazon.co.uk: Reay, Cathy: 9780241676967: Books Highlights from this episode:00:48 - The desire to just fit in04:28 - The power of community and connection06:32 - What does the ‘best' even mean?
Planning for the future of a child with disabilities is a complex and emotional journey, but taking proactive steps can help ensure a stable and fulfilling transition into adulthood. Families often face significant challenges when essential services suddenly end, making it crucial to have a well-structured plan in place. In this episode of A Wiser Retirement® Podcast, Casey Smith and Meaghan Timko, MS, BCBA, Founder at Parallel, share valuable insights on estate planning, financial strategies, and legal considerations to help parents navigate this critical process.Related Podcast Episodes:- Ep 146: The Power of Life Insurance to Meet Your Family's Goals - Ep 214: What is disability insurance and do I need it? - Ep 224: Living in the Moment While Planning for the Future Related YouTube Videos:- What is the role of a trustee?- Tips to Safeguard Assets for Future GenerationsLearn More:- About Wiser Wealth Management- Schedule a Complimentary Consultation: Discover how we can help you achieve financial freedom.- Access Our Free Guides: Gain valuable insights on building a financial legacy, the importance of a financial advisor for business owners, post-divorce financial planning, and more! Stay Connected: - Social Media: Facebook | Instagram | LinkedIn | Twitter- A Wiser Retirement® YouTube Channel This podcast was produced by Wiser Wealth Management. Thanks for listening!
If you feel like you're being called to a dream that seems too big, I know this episode will inspire you to move forward! My guest today is Anne Tarwater, an SLP of 12 years and founder of iShine Pediatric Therapy Clinic in Boerne, Texas. Anne is dedicated to creating a nurturing and supportive environment where children can grow, learn new skills, and gain independence. I got to know Anne in the Grow Your Private Practice Program. In addition to her amazing practice, she is opening a preschool specifically designed for children with disabilities. In this episode, Anne shares how she got into SLP, the mindset that pushes her to take real steps toward her ambitions, and how her practice and other dream projects are improving her community and family life. Before opening her own pediatric therapy clinic, Anne spent seven years working in Boerne ISD, where she was a key member of the preschool program for children with disabilities assessment team. This experience strengthened her commitment to early intervention and the importance of family involvement in a child's development.Believing that every child deserves a personalized, holistic approach to learning, she co-founded The Bloom School, a child-led preschool that focuses on the whole child. Through engaging, play-based methods, she strives to make learning fun while fostering confidence, communication, and independence.Anne has two college-aged children and 3 dogs that keep her busy in her off time.In Today's Episode, We Discuss:Annes's original career and how she made the pivot to SLPWhat her practice looks like and what kind of clients she servesThe inspiration behind her new project and how she got startedHow she stays organized through it all and what systems she has in placeAnne's advice for other single parents who want to turn their dreams into a realityAnne is a great example of someone who took bold action to better serve her community and family. I know if she can do it, you can too!If you'd like to know more about how we help SLPs and OTs like Anne start and grow successful practices, please visit www.IndependentClinician.com/resources.Whether you want to start a private practice or grow your existing private practice, I can help you get the freedom, flexibility, fulfillment, and financial abundance that you deserve. Visit my website www.independentclinician.com to learn more.Resources Mentioned: Get help starting your private practice: http://www.IndependentClinician.com/resourcesCheck out Anne's Practice: https://ishinepediatrictherapy.com/Follow iShine on Facebook: https://www.facebook.com/profile.php?id=61560361318161Follow iShine on Instagram: https://www.instagram.com/ishine_pediatric_therapy/Where We Can Connect: Follow the Podcast: https://podcasts.apple.com/us/podcast/private-practice-success-stories/id1374716199Follow Me on Instagram: https://www.instagram.com/independentclinician/Connect
An organization made up of parents of severely physically and mentally disabled children receiving medical care at home has requested Sendai City to expand hospital beds and day care services. The organization visited Aoba Ward Office in Sendai City on March 24th and handed in a request letter calling for an increase in short-term hospital beds for severely physically and mentally disabled children and adults who play an important role when their family members are unwell, and an expansion of day care services that they use on a daily basis. Episode Notes: ‘Parents of severely disabled children request Sendai City expand hospital beds and day care services': https://barrierfreejapan.com/2025/03/25/parents-of-severely-disabled-children-request-sendai-city-expand-hospital-beds-and-day-care-services/
In this conversation, Cole James and Dinah Simmons explore the profound themes of grief recovery, personal experiences with disabilities, and the cultural perspectives surrounding grief. Dinah shares her journey of becoming a grief recovery specialist during the COVID pandemic, her insights on the limitations of traditional bereavement support, and the importance of recognizing various forms of loss beyond death. The discussion delves into the emotional complexities faced by individuals with disabilities, the impact of childhood experiences on grief, and the significance of emotional awareness in navigating life's challenges. Dinah emphasizes the need for ownership of one's grief and the freedom that comes from understanding what can and cannot be controlled in life. They discuss the importance of recognizing various forms of loss, including the emotional toll of losing a service animal and the complexities of navigating life with a disability. The discussion emphasizes the significance of the loss history graph as a tool for understanding grief and the necessity of addressing unresolved grief to reclaim personal choices. Dinah shares her experiences and insights on how grief recovery can empower individuals and families, particularly parents of children with disabilities, to navigate their unique challenges and find peace. Connect with Dinah: https://www.linkedin.com/in/dinahsimmons/?originalSubdomain=uk
When someone we love has a child with intellectual or physical disabilities, we want to be there for them—but sometimes, we're unsure how. What should we say? What if we say the wrong thing? How can we genuinely show up in ways that matter? In today's episode, I'm joined by Katie Blackburn, a mom of children with disabilities, who's here to share practical, heartfelt ways to support families in the disability community, including:
In this powerful episode of Autism for Badass Moms, we sit down with Susie Thomas, a dedicated mother, cosmetologist of 21 years, and licensed massage therapist of 14 years, balancing work and family life in Las Vegas, Nevada. Susie and her husband, Gerard, are parents to three children—Caydell (19), diagnosed with ADD; Mugen (7), who has sensory processing disorder; and Saya (4), who was diagnosed with autism at just 22 months.Susie opens up about how their journey into autism began in the middle of COVID, a time filled with uncertainty and struggles. With Caydell navigating mental health challenges, including suicidal thoughts and self-harm, and both Mugen and Saya requiring different levels of support, Susie often felt pulled in multiple directions, trying to ensure each of her children received the attention and care they needed. Through all the challenges, Susie has gained a profound perspective on life and parenting, learning to see the world through Saya's eyes. She shares how this experience has strengthened their family and shaped her belief that in order to truly understand autism, we must learn to “hear what isn't said.”This episode is a must-listen for parents navigating multiple diagnoses, mental health struggles, and the emotional weight of advocating for their children. Susie's story is raw, real, and filled with wisdom that will inspire and empower other badass autism moms on their own journeys.Connect with Susie:-Instagram: @sayautism (Saya's journey) | @famugenListen Now & Subscribe: Don't miss this heartfelt conversation! Follow Autism for Badass Moms on Spotify, Apple Podcasts, or your favorite podcast platform.Join the Community: Follow us on IG @theabmpodcast and connect with other moms who just get it.
Between 5 and 20% of children in the U.S. live with a disability. The definition and measurement of disability are constantly changing. Therefore, people with disabilities have been inadequately represented and understudied in research. In this episode, Molly Costanzo shares her research on the economic well-being for households with children with disabilities and recommendations for policymakers, practitioners, and researchers to improve their quality of life. Molly Costanzo is a scientist at the Institute for Research on Poverty. She has a PhD in social welfare from the University of Wisconsin-Madison. Her research focuses broadly on policies that support children and families.
In this episode of Raising Kellan, host Marsh Naidoo engages in an enlightening conversation with Todd Evans, co-author of the book "How to Build a Thriving Marriage as You Care for Your Children with Disabilities." Todd shares his journey with his wife Kristen, from their initial meeting in college to navigating the complexities of raising children with special needs while maintaining a strong marital bond. Todd discusses the significance of communication in marriage, especially when parenting children with complex medical needs. He emphasizes distinguishing between 'feelings' and 'problem-solving' conversations to prevent misunderstandings and strengthen relationships. The conversation also delves into the intersection of faith and disability, highlighting how faith has been a cornerstone for Todd and Kristen throughout their journey. The episode offers personal experiences and practical insights, providing valuable guidance for parents facing similar challenges. Todd's story is one of resilience, faith, and the power of communication in building a thriving family life. 01:04 Todd and Kristen write a book about raising children with special needs 06:01 Communication 12:08 The misnomer that 80% of couples end up in divorce when raising a special needs child 14:11 Faith 21:44 What has Todd excited about the future of his family 24:03 Conclusion Stay tuned for part two of the interview with Kristin Evans, coming soon! Todd's podcast episode with David Hirst of the Dad to Dad Podcast https://21stcenturydads.org/352-todd-evans-of-brentwood-tn-business-owner-author-father-of-two-children-with-disabilities/ Todd and Krstin's website https://disabilityparenting.com/
In episode 128 of Raising Kellan, host Marsh Naidoo continues the enlightening conversation with Kristen Evans, co-author of "How to Build a Thriving Marriage as You Care for Children with Disabilities." This episode serves as part two of the discussion, following Todd Evans' insights in part one. Kristen, a licensed master social worker, shares her motivation behind the book, emphasizing the need for practical skills to support marriages facing unique challenges. The episode delves into the mental health struggles caregivers often face, highlighting the increased risks of depression and anxiety, and the importance of addressing these issues for a healthier family dynamic. Listeners will gain valuable insights into the framework Kristen and Todd developed, which combines communication strategies, coping mechanisms, and the significance of acknowledging grief. Kristen also touches on the benefits of counseling, mindfulness, and self-compassion as essential tools for maintaining a strong marital bond and personal well-being. 00:00 This podcast features part two of the Conversation with Todd and Kristen Evans 01:26 Kristin Evans writes a book to help couples learn practical marriage skills 02:53 Parent caregivers and all caregivers are at increased risk from mental health and physical conditions 04:54 Kristen writes about helping spouses solve difficult problems in her new book 08:33 One of the biggest factors that affect the marriage is the level of chronic stress 10:12 Grief for special needs parents can be cyclical, Kristen says 13:15 You often talk about the benefit of seeking help in terms of counseling 15:20 Kristen says parents need to prioritize their health over 20:03 Expressing and understanding your emotions 21:55 Kristen Baker created free resources on disability parenting for listeners 23:02 Conclusion Todd and Kristin's website is disabilityparenting.com
Seclusion, Restraint and Abuse/Mistreatment of Children with Disabilities in Public Schools: Performance Audit Services Senior Auditor Alison Butts recaps a new LLA report that evaluates the Louisiana Department of Education's oversight of the use of seclusion and restraint for students with disabilities, as well as Louisiana's laws and regulations related to allegations of staff abuse of students with disabilities. | https://LLA.La.gov/go/podcast
Seclusion, Restraint, and Abuse/Mistreatment of Children with Disabilities in Public Schools: Performance Audit Services Senior Auditor Alison Butts recaps a new LLA report that evaluates the Louisiana Department of Education's oversight of the use of seclusion and restraint for students with disabilities, as well as Louisiana's laws and regulations related to allegations of staff abuse of students with disabilities. | https://LLA.La.gov/go/podcast
About our Guests:Kristin Faith Evans, MA, MS, LMSW, and Todd Evans, PhD, MA,are award-winning authors, speakers, and disability parents. Theyearned their MA in Christian educational ministries at Wheaton Collegein Illinois and have served together in full-time ministry in church,camping, and retreat settings. Todd received his PhD from VanderbiltUniversity's School of Engineering and currently manages his ownbusiness. Kristin earned her MSW from the University of Tennessee andis a Licensed Master Social Worker experienced in couples, child andfamily, substance abuse, and crisis counseling.About Their Book:In their upcoming book How to Build a Thriving Marriage as You Care for Children with Disabilities (Baker Books, May 2024), Kristin and Todd provide the field guide for success. With extreme practicality and empathy, they present research-based skills for fostering a thriving caregiving marriage.Caregiving parents require an additional set of skills for protecting their marriage amidst emotional, financial, and relational obstacles. Much like on a wilderness adventure, the steps of identifying where you are, setting goals, and planning your path together are vital to the success and enjoyment of the journey. Kristin and Todd apply this easy-to-follow framework in crucial areas such as stress management, communication, problem-solving, and respite to help couples thrive.Kristin and Todd are available for interviews to discuss topics such as:• Grieving the continual losses in a caregiving lifestyle• Prioritizing marital intimacy in an overwhelming schedule• Supporting each other's mental, physical, and emotional health• Fostering a life of joy despite “unhappy” circumstanceshttps://disabilityparenting.com/Dr. Holmes says you want to get the book!Get the book! Visit their site:https://toddandkristinevans.com/Get Connectedwww.DisabilityParenting.comInstagram@disabilityparentingFacebook/kristin.evans.5895X@AuthorKristinEv
In this heartfelt episode, we are joined by Shilda Frost-Labule, founder of Second Family, a nonprofit dedicated to supporting adults and children abandoned in nursing homes and hospitals due to their medical conditions. With over 40 years of experience as a Registered Nurse and 15 years as a foster parent for medically fragile children, Shilda brings a wealth of knowledge and compassion to her work. Join us as we discuss her inspiring journey and the impact of Second Family. --- Support this podcast: https://podcasters.spotify.com/pod/show/skindeepradioshow/support
Our guest this week is Todd Evans of Brentwood, TN who is a business owner, author and father of two chidlren with disability. Todd and his wife, Kristin, have been married for 23 years and are the proud parents of two children: an 18 year old who was born with a metabolic disorder and 14 year old who has Cri du chat syndrome is a genetic disorder caused by a deletion of the short arm of chromosome 5.Together Kristin & Todd maintain the website: DisabilityParenting.com, dedicated to empowering parents of kids with all kinds of disabilities.They are also co-authors of the book, How To Build a Thriving Marriage As You Care For Children with Disabilities. Todd is also a member of the Nashville SFN Mastermind Group.Theirs is a story about faith, marriage overcoming adversity and service to others all on this episode of the SFN Dad to Dad Podcast.Show LinksPhone – (731) 202-1112Email – mauddib6@gmail.comLinkedIn – https://www.linkedin.com/in/todd-evans-a35744137/Website - https://disabilityparenting.com/Book - https://tinyurl.com/3urefxprSpecial Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/
Send us a textImagine navigating a labyrinth where each turn presents new challenges and unexpected hurdles. That's the reality parents often face within the special education system. This episode of Mental Metals takes you on a journey through the complex world of advocacy and empathy for children with special needs. We unravel the systemic barriers that hinder progress and share insights on how empathy can transform educational experiences for these children. With heartfelt anecdotes, we highlight the vital role of advocates who stand as beacons of support, ensuring that children receive the services and respect they deserve. As we explore the importance of empathy, we promise to leave you with a renewed understanding of how crucial it is for typically developing children to value their peers with disabilities.Misconceptions can shackle potential, but understanding can set it free. We challenge preconceived notions by highlighting the unique strengths and passions that children with special needs bring to the table. Through personal stories, we emphasize the power of safe exploration and social integration in fostering independence and confidence. The episode sheds light on the critical transition to middle school, a time when bullying can escalate, and underscores the need for inclusive environments that nurture acceptance and understanding. Our conversation is enriched with reflections on how having a child with special needs can reshape our perspectives on mental health, compelling us to foster a more supportive landscape for all children.Empowered parents can move mountains, and we discuss how early education and active involvement can transform the support system for children with disabilities. The episode explores the gaps in communication between schools, therapists, and parents, advocating for stronger collaborative efforts to enhance a child's developmental journey. We also delve into the true essence of inclusion, arguing that it extends beyond physical accessibility to create environments where children with disabilities are genuinely welcomed and supported. This episode is a call to action for listeners to engage more deeply with the disability system, offering strategies to build a community that values empathy and inclusion.Discover Podcasting with PodmatchJoin Podmatch to connect with top podcast guests and hosts! Start your podcast journey here.Save on Natural Health SolutionsEnjoy 15% off your Redd Remedies order with code ASEKHO99. Experience nature's healing power.Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.Support the show
This week on The Lawman's Lounge, I'm hanging out with Abby McCarthy, a school psychologist who knows exactly how to cut through the school system's red tape.
This week, Kirsty sits down with Roxeanna Steiner, an early childhood specialist and mother of a child with a disability, to share her personal journey with her son, Austin. Together, they offer valuable tips on supporting children with disabilities and healing attachment wounds. Show Notes: Roxeanna's Email Follow LUME on Facebook LUME's Website
Rebecca O Riordan tells PJ the Government's claim that "carers will feel seen" is widely disputed Hosted on Acast. See acast.com/privacy for more information.
This year marks the 35th anniversary of the approval of the Convention on the Rights of the Child. To commemorate this landmark in child rights, UNICEF Innocenti is producing Present Imperfect, a podcast series exploring the evolution of child rights over the past three decades - and the decades to come. In this episode, Gavin Wood discusses the rights of children with disabilities.
Welcome to a heartfelt episode of the "I Am Dad" podcast. Today, we are joined by a remarkable father, Jason Tuttle, who has turned his deep personal loss into a powerful way to help others. Jason is a former stay-at-home dad and the father of two children with multiple physical and cognitive disabilities. Tragically, Jason lost his 15-year-old son, Zachary, in January 2022. In the midst of his grief, Jason chose to channel his pain into something meaningful by creating "Letters To Zachary"—a raw and honest exploration of his emotions, shared openly to help others understand the grieving process, especially from a father's perspective. We are honored to have Jason with us today to share his journey, his memories of Zachary, and how he is finding healing through helping others. Please join me in welcoming the courageous and compassionate Jason Tuttle to the "I Am Dad" podcast.
What can Jewish wisdom teach us about dealing with disability? Adrienne turns to the words of our sages for guidance. The “Rise & Shine” podcast series has been made possible by the Zitelman Family Foundation's generosity. If you would like to sponsor an upcoming podcast, please email us at info@momentumunlimited.org
It's been one week since CBC asked the provincial education department and NL Schools for an interview - about supports for children with disabilities - or the lack thereof. We also wanted to ask about the use of federal funding under Jordan's Principle, which pertains to Indigenous children specifically. But the education department and NL Schools, which is now an entity of the provincial government, declined to do an interview. It sent a statement by email. This morning, we spoke with Tony Wakeham, leader of the provincial Progressive Conservative Party.
Some families who have children with disabilities say NL's school system isn't providing enough supports for students' learning and safety. And they are NOT putting the blame on the people on the front lines. On Friday, we heard from two parents who say more instructional resource teachers and teaching assistants are needed. Jennifer Broadbent has a son in Grade 3 who needs supports at school. Trent Langdon is president of the Newfoundland and Labrador Teachers Association.
Back to school promises new beginnings and fresh starts, but last week some families who have children with disabilities found themselves facing a familiar battle. The return to the classroom for their children led to the discovery that the supports available to help weren't adequate. On Friday, we heard from Terri Lynn Herritt whose son, Theo, is in Grade 3 and has autism and ADHD. Today, we spoke with Leah Farrell. advocacy manager at the Autism Society of Newfoundland and Labrador.
Some parents of children with disabilities say they are once again fighting the same battle they face at the start of every school year. They are trying to get adequate student assistant hours to support their children. In Western Newfoundland, two Indigenous parents are speaking up about the specific help available under Jordan's Principle. That's the federal policy that stipulates that First Nations children living in Canada must be able to access the products, services and supports they need, when they need them. Jennifer Broadbent's son, Obie, is in Grade 3 this year. Terri Lynn Herritt's son, Theo, is also in Grade 3 this year.
Dr. Dan interviews Joanne De Simone about raising children with disabilities on this powerful episode. Joanne is a modern dancer turned mom and special education advocate. She faced profound challenges when her first child was diagnosed with a life-limiting brain malformation, and her second child with autism. Drawing from her colorful background in dance, Joanne discovered unexpected life lessons that shaped her approach to parenting and her advocacy work. Dr. Dan and Joanne discuss her parenting journey and Joanne's inspiring book Fall and Recovery. Joanne shares her wisdom with Dr. Dan and listeners: she accepts that life is messy and that motherhood can be hard and beautiful at the same time. For more information visit www.special-educationmom.com/ Email your parenting questions to Dr. Dan podcast@drdanpeters.com (we might answer on a future episode). Follow us @parentfootprintpodcast (Instagram, Facebook) and @drdanpeters (X). Learn about more podcasts @exactlyright on Instagram. Please listen, follow, rate, and review on Apple Podcasts, Spotify, or wherever you listen to podcasts. Please support our podcast by shopping our latest sponsor deals and promotions at this link: https://bit.ly/4bqTWJ2 For more information: www.exactlyrightmedia.com www.drdanpeters.com Learn more about your ad choices. Visit megaphone.fm/adchoices
Andrea McNamara, Head of private client law at EY Law
Episode Summary: In this episode, I had the pleasure of welcoming Jan Stewart, a dedicated mother and advocate for neurodivergent individuals, back to the Autism Blueprint Podcast. Jan shared valuable insights into the challenges and triumphs of raising her children, Andrew and Ainsley, who are now thriving in their respective careers. Jan discussed the importance […] The post How To Be A Forever Parent | Empowering adult children with disabilities | A conversation with Jan Stewart appeared first on Puzzle Peace Counseling.
Parents naturally want to make sure their child with disabilities is well taken care of, both now and in the future. It's not just about meeting the day-to-day needs but also thinking ahead to their long-term financial security. There's a lot to juggle—from managing medical expenses to planning for their financial future. It can feel pretty overwhelming and complicated. In this episode, host Annette Hines welcomes financial planning expert, James Lange, to discuss the crucial need for specialized financial planning for parents of children with disabilities. James emphasizes the importance of working with advisors who understand the unique financial needs of these families and securing government benefits like SSI or SSDI to ensure long-term support. The conversation covers essential legal documents such as wills and trusts, and James offers a free copy of his book, “Retire Secure for Parents of a Child with a Disability,” packed with strategies for financial planning. Annette and James delve into the practical and emotional aspects of financial security, reflecting on how proactive planning can provide peace of mind and a brighter future for children with disabilities. In this episode, you will hear: The importance of collaborating with specialized financial planners and tax advisors for families with children with disabilities Key government benefits essential for the financial support of children with disabilities The necessity of creating appropriate wills, trusts, and powers of attorney tailored for children with disabilities How proper financial planning can alleviate anxiety for parents raising children with disabilities Why it is important to involve the child in the financial planning process Resources from this Episode: Free digital copy of Retire Secure for Parents of a Child with a Disability Website: https://DisabledChildPlanning.com Facebook: @RothRevolution Twitter/X: @rothguy LinkedIn:@jameslangecpa Other Sites:https://PayTaxesLater.com Engage with us: Join our community: Circle of Care Visit: https://annettehines.com Read Butterflies and Second Chances LinkedIn: @annette-hines-snc Instagram: @parentingimpossible Facebook: @SpecialNeedsCompanies Twitter: @SpecialNeedsCo Follow and Review: We'd love for you to follow us if you haven't yet. Click that purple '+' in the top right corner of your Apple Podcasts app. We'd love it even more if you could drop a review or 5-star rating over on Apple Podcasts. Simply select “Ratings and Reviews” and “Write a Review” then a quick line with your favorite part of the episode. It only takes a second and it helps spread the word about the podcast.
Carol Labov has written a heart-warming book, The Cave Boy Who Would Be President, which shows that with love and acceptance from those around them, a child can learn how to overcome any obstacle and change that obstacle to a positive. Carol Labov is a graduate of Indiana University and where she majored in English. She is also the co-owner with her husband, Barry, of a marketing firm named LaBov and Beyond. For over 40 years, LaBov and Beyond has created strategic planning for companies like The Mccallan, Audi, Vollswagen, and Harley Davidson. Now the proud grandmother of two boys I felt the need to author a book about my youngest grandson, Cooper, who has struggled with a speech problem since birth. enVision Together welcomes Carol to our show!
The Creator's Adventure - Course Creation, Entrepreneurship & Mindset tips for Creators
Lisa Lightner has been a Heights Platform creator for four years now, and today, she is here to share her story of how she started her online course business. Lisa is a parent and award-winning special education advocate living in southeastern Pennsylvania. Being a parent of a kid with disabilities, she turned adversities into opportunities and started a profitable business helping other parents who are going through the same hurdles of IEP. Today, she shares how she got started with her online business, the struggles she faced and the freedom that comes with being a creator and entrepreneur.
On Saturday (July 13), Pacific Power and the Washington Department of Fish and Wildlife joined together to host a memorable fishing event for children with disabilities at the Merwin Fish Hatchery near Woodland. https://www.clarkcountytoday.com/youth/children-with-disabilities-make-memories-at-the-24th-annual-merwin-day-of-fishing/ #PacificPower #WashingtonDepartmentOfFishAndWildlife #MerwinDayOfFishing #ChildrenWithDisabilities #MerwinFishHatchery #MerwinDam #Woodland #ClarkCountyWa #ClarkCountyNews #ClarkCountyToday
Episode 47: Parenting Children with Disabilities with Kelley Coleman @hellokelleycoleman This week Rachael and Kelley Coleman, author and mother, discuss parenting children with disabilities. Here's what they discuss inside this powerful episode: Hear Kelley's personal journey with parenting two kids: one with multiple disabilities and one with typical development Kelley shares her story about her son's diagnosis and how it changed her as a parent Suggestions for parents who just received a diagnosis or are trying to receive a diagnosis for their child Ways for parents to feel empowered to speak up for their child Fostering communication with your child's school team and others Grieving the childhood you pictured for your kid The ways your relationship with your partner can be affected by parenting a child with disabilities How to talk to your kids about others with disabilities All about her book: Everything No One Tells You About Parenting a Disabled Child The importance of finding community of support and connecting with others who are in similar situations And so much more! Kelley is a feature film development executive turned author and advocate for parent caregivers and individuals with disabilities. Her writing and advocacy draw upon over a decade of experience accessing the necessary supports for children with disabilities to succeed, including her own child. Kelley's book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports is available for preorder and will be released March 12th. She lives in Los Angeles with her husband, two boys, and her son's trusty service dog. Mentioned in this episode: Kelley's Book: Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports Kelley's website: kelleycoleman.com Kelley's Instagram: @hellokelleycoleman Welcome To Holland by Emily Perl Kingsley Learn more about your ad choices. Visit megaphone.fm/adchoices
In this episode Renee Turchi, MD, MPH, FAAP, describes new guidance about transitioning to adult care for youth with intellectual and developmental disabilities. Hosts David Hill, MD, FAAP, and Joanna Parga-Belinkie, MD, FAAP, also speak with Grace Kong, PhD, about the dangers of modifying electronic nicotine delivery systems. For resources go to aap.org/podcast.
"If your child is having difficulty moving their body, they ARE going to have difficulty in moving their eyes." Dr. Susan Daniel, neuro-developmental optometrist talk about vision and its role in learning and regulation for Autistic students and learners with Down Syndrome Vision difficulties can impact a child's regulation and behavior, leading to frustration and anxiety. Dr. Daniel explains the various components of vision, including visual gathering skills, eye teaming, and visual processing. Tune in to learn: Why specialized vision exams are crucial for children with autism, Down syndrome, and other disabilities How vision difficulties can impact a child's regulation and behavior, leading to frustration and anxiety The components of Vision What you can do right now to support your child's learning 00:00 The Impact of Vision on Regulation and Behavior 06:09 The Relationship Between Body Movement and Eye Movement 16:23 The Gap in Vision Evaluations for Children with Disabilities 34:46 The Importance of Access to Complex Information 45:21 Passion for Helping Children and Adults with Vision Impairments Links mentioned in the podcast: Find a developmental optometrist here: - www.covd.org - www.noravisionrehab.org The reading app Dr. Daniel mentioned: www.bookshare.org You can reach Dr. Daniel at susan.danieloptometry@gmail.com
Kelley Coleman is a mom to two amazing boys, one of whom has multiple disabilities (including a yet-undiagnosed genetic syndrome, cerebral palsy, autism, CVI, epilepsy, and more). Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. Kelley's message resonates with everyone, even parents whose children are not disabled. We all know someone in this camp (whether it's a kid with ADHD or a rare disease). Kelley's tools and resources change lives for families who have a child with disabilities and all of those who interact with them. https://www.kelleycoleman.com/ https://www.instagram.com/hellokelleycoleman/ Get her Book: https://www.amazon.com/dp/0306831708/ref=cm_sw_r_as_gl_api_gl_i_DF8V5JNJ5HVZHY13K8HP?linkCode=ml2&tag=elizabethsand-20 Connect with Liz https://www.instagram.com/esandoz/?hl=en https://www.Elizabethjoy.co Get the First Trimester Survival Guide https://elizabethjoy.co/freebie Join the Waitlist https://elizabethjoy.co/join-waitlist
The number of disabled students recognised as needing greater learning support has grown to almost 1 million nationally. But these children are increasingly being suspended from schools, including some as young as five years old. Investigative reporter Sarah Martin explains to Jane Lee how Australia's education system has reached crisis point
She doesn't talk about it often around here because of how personal it is - but today, because it's the end of World Autism Month, Erin is sharing some of her own experiences and her advice for families raising children with disabilities. Get some insight on how to manage the added financial complexities, access resources and foster inclusion. Erin knows firsthand how important it is to build a supportive community, and WE GOT YOU. Link to the Denver Model book: https://amzn.to/4bgHPhK _______________________________
Their daughter's urgent genetic and medical condition completely changed Todd and Kristin Evans' lives and marriage. They join AllMomDoes Podcast host Julie Lyles Carr for a frank and inspiring interview about when they realized their marriage was in shambles even as they were creating a beautiful life for their daughter, and how they learned how to get back on track.Show Notes: https://bit.ly/4aYTcL2
We are honored to welcome the inspiring Kelley Coleman to our podcast. Kelley shared her deeply personal journey as a parent of a child with multiple disabilities and how she ended up writing her book, "Everything No One Tells You About Parenting." Her authenticity and wisdom shine through in this interview. We discuss the lack of information parents are provided on diagnosis and how there's not one specific place a parent can go to find the info and support they need. We talked about the crucial aspects of caregiving in navigating the healthcare system, accessing financial support, and our need for self-care that might be unconventional.Ep. 162; March 19, 2024Key Moments:[7:03] Care plan for my dependent child brings victories[15:52] State disability definitions and benefits[26:12] Getting a second opinion is freeing[39:57] Balancing rewards and guilt of parenting challenges[44:05] Going home Googling things and cryingResources:https://www.kelleycoleman.com/https://www.kelleycoleman.com/bookshttps://www.instagram.com/hellokelleycoleman/https://www.facebook.com/kelley.coleman.56https://emilypfreeman.com/next-right-thing-book/ If you enjoyed the show:Have you purchased our new book, The Other Side of Special? Subscribe to our newsletter on the Take Heart WebsiteGet our free resource on finding Gratitude, Peace, and HopeReview and like us on Apple Podcasts Share us with others from wherever you listen to podcastsFollow us on Instagram @takeheartspecialmomsFind Amy at www.amyjbrown.com/ or on Instagram @amyjbrown_writerFind Carrie at www.carriemholt.com or on Instagram @carriemholtFind Sara at www.saraclime.com or on Instagram @saraclimeSupport the show
Raising a child with a disability can be challenging. So, we invited Kelley Coleman for an eye-opening conversation on the challenges of parenting kids with disabilities and practical ways to support these families. Ditch the pity party and be empowered to create a fulfilling life for children with special needs by tapping in! Key takeaways to listen for: A major fear in parenting children with disabilities Why breaking isolation for kids with special needs matters Powerful ways to balance the needs of your children Common challenges in raising a child with a disability Actionable steps to support parents of children with special needs Resources Everything No One Tells You About Parenting a Disabled Child by Kelley Coleman | Kindle and Paperback Do you want to create a legendary family life like Jim and Jamie? Go to www.JJPlaybook.com to schedule a call with a sales counselor and download your own copy of their book, Passive Income Playbook, so you never have to choose between work and family ever again! It's time to rediscover and deepen your connection with your loved ones! Spend time with Jim and Jamie's family while strengthening the connection with yours in the Blue Zone paradise of Nosara, Costa Rica, on June 20-22, 2024. Reserve your retreat spot at 18summers.com/retreat to join us in enjoying good food, sun-kissed beaches, and precious family moments that will last for a lifetime! About Kelley Coleman Kelley is a feature film development executive turned author and advocate for parents, caregivers, and individuals with disabilities. Her writing and advocacy draw upon over a decade of experience accessing the necessary support for children with disabilities to succeed, including her own child. She lives in Los Angeles with her husband, two boys, and her son's trusty service dog. Connect with Kelley Website: Kelley Coleman Facebook: Kelley Coleman Instagram: @hellokelleycoleman Connect with Us To learn more about us, visit our website at www.18summers.com or email us at info@18summers.com. To get a copy of our book “The Family Board Meeting”, click here. Subscribe to 18 Summers Podcast and leave a rating and written review! Social Media Channels Facebook Group: 18 Summers LinkedIn: Jimmy Sheils Instagram: @18summerstribe