Podcasts about Rett

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

In this episode of On the Couch, I am joined by Jon Pilcher, the CEO of Neuren Pharma (NEU). We first chatted some three years ago, and NEU has delivered for investors since then. Good time for a catch-up as 2026 is going to be another big year.Jon joined Neuren in 2013 as CFO and was appointed CEO in May 2020.Neuren Pharmaceuticals (NEU) is developing new therapies for highly debilitating neurodevelopmental disorders that emerge in early childhood and are characterised by impaired connections and signalling between brain cells.Neuren's lead product trofinetide (also known as NNZ-2566) is licensed to Acadia Pharmaceuticals for North America, with Neuren retaining all rights outside North America and full access to all data generated by Acadia.Some of the points we cover:Talking Points.Neuren has gone from ‘pre-revenue option value' to a profitable company with royalties pouring in. What do you think the market still misunderstands most about Neuren today?”DAYBUE is now the first and only approved treatment for Rett syndrome, with strong real-world persistence. What does the ‘second phase' of growth look like as Acadia pushes deeper into community neurologists and global markets?How do you think about capital allocation now — offensive, defensive, or strategic optionality?” The share price peaked around A$25 but now sits closer to A$18 despite more data, more cash and less risk. What do you think drives that disconnect?NNZ-2591 looks like a true platform drug with multiple late-stage paths. If PMS, Pitt Hopkins and Angelman all succeed, how big could this franchise realistically become?Pitt Hopkins now has Fast Track, new patents, and an FDA meeting coming up. Could PTHS become your second registrational program — and how would that change Neuren's scale?One of the things investors love about Neuren is that you've been able to fund everything from internal cashflow. Under what circumstances would you ever raise equity again?With DAYBUE expanding globally and NNZ-2591 entering multiple late-stage programs, what does Neuren look like in 3–5 years? A royalty engine, a commercial business… or something much biggerDisclaimer: This is general advice only. It doesn't take your personal circumstances into account. Please speak to a licensed adviser before acting on anything in this episode.Looking for personal financial advice? Our friends at Clime Investment Management offer tailored advice and financial planning services across most states. Learn more: marcustoday.com.au/about-us/financial-planning-with-clime/Prefer someone to invest for you? The Marcus Today Managed Strategy Portfolio applies the same strategy we write about daily – but we manage it for you, using Australian-listed ETFs and a long-term growth approach. Find out more: marcustoday.com.au/managed-portfolios/Want to take control of your own investing? Start a free 14-day trial of the Marcus Today newsletter and get daily insights, analysis, and model portfolios designed for self-directed investors. Sign up here: marcustoday.com.au/trial-sign-up/

Martin Bech Holtes nye bok “Alternativt statsbudsjett” er tema i denne utgaven. Hør en ny episode av Økonomisk halvtime med Civitas to samfunnsøkonomer, Steinar Juel og Øystein Olsen.See omnystudio.com/listener for privacy information.

I dagens sending snakker Hans Rustad og Helena Edlund om aktuelle saker.Hver morgen kl. 09.00 har Document en sending for deg. Mandag til onsdag sender vi «Rett på sak» med Espen Teigen. Et direkte og uredd nyhetsprogram for deg som er lei av NRK.Torsdag og fredag sender vi radiosendinger.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Bli med på en dyptgående samtale om temaet 'Født i rett kropp' på TV-Visjon Norge. Vi møter flere gjester som deler sine personlige historier om kjønnsidentitet og tro, inkludert deres reiser fra troen om å være født i feil kropp til å finne sannhet i deres biologiske kjønn. Programmet tar for seg samfunnets innflytelse, medisinsk behandling, og juridiske aspekter rundt kjønnsskifte. Diskusjonen er preget av sterke vitnesbyrd og et kritisk blikk på dagens ideologier. Hvordan kan vi som samfunn møte disse utfordringene med kjærlighet og sannhet?

"Hoy hablamos con con Lucía García, madre de Julieta, para conocer la iniciativa solidaria que han puesto en marcha los bomberos de Narón: un calendario cuyos beneficios se destinan íntegramente a la investigación del síndrome de Rett. Este proyecto busca apoyar a Julieta y a otras niñas que padecen esta enfermedad rara, financiando estudios y revisiones multidisciplinares en el Hospital San Juan de Dios de Barcelona, un centro pionero en ensayos clínicos sobre este síndrome. Conversaremos sobre cómo surgió la idea, la implicación de la comunidad y el impacto que esperan lograr con esta acción solidaria."

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

I dagens sending snakker Hans Rustad og Helena Edlund om aktuelle saker.Hver morgen kl. 09.00 har Document en sending for deg. Mandag til onsdag sender vi «Rett på sak» med Espen Teigen. Et direkte og uredd nyhetsprogram for deg som er lei av NRK.Torsdag og fredag sender vi radiosendinger.

Rett før innspillingen av denne episoden ble lovforslaget om å tvinge Justisdepartementet til å offentliggjøre Epstein-dokumenter vedtatt med et stort flertall i Representantenes Hus. Det skjedde fordi Trump snudde for bare noen dager siden og nå sier han ønsker å offentliggjøre dokumentene.  Samtidig har han også fått besøk av Saudi-Arabias kronprins Mohammed Bin Salman. 

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Hvordan hjelper du plantene dine å trives når det er mørkt, tørt og kaldt ute?I denne episoden deler Renathe sine beste tips for å holde plantene sunne gjennom vintermånedene – fra riktig lys og temperatur, til luftfuktighet, vanning og gjødsling.Du får også høre hvordan du kan bruke vinteren til å forberede neste sesong, og hvorfor denne stille tiden faktisk er perfekt for både planter og mennesker til å lade opp igjen

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Det er ofte en tålmodighetsprøve å gå veien om de vanlige kanalene, politiet og domstolene, når man mener at en urett er begått. De mest kjente eksemplene på selvtekt involverer ofte motorsag, og resultatet blir som regel kostbart for den som går løs på andres busker og trær på egen hånd. Hvorfor selvtekt ikke er å anbefale, er tema for denne episoden av «Rett skal være rett. For alle», ved Kathrine Hagen Finrud, Øystein Rennesund og Dag Are Børresen. Lyd: Francesco Hygen Puddu. 

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

I dag snakker vi med IDF-soldat Doron Keidar som nettopp kom hjem fra Gaza etter to måneder. Vi snakker om alle løgnene om IDF, og debunker anklagene. Vi snakker om avsløringene om at BBC lyver om Israel. Det jødiske miljøet bryter med Antirasistisk Senter, om markeringen av Novemberpogromene, Nasjonalmuseet, og hvem skal egentlig avvæpne Hamas?Følg Doron Keidar her: https://doronkeidar.com/Sjekk ut den nye nettsiden til Leifern her: https://www.bemet.no/Meld deg på panelsamtale om menneskerettigheter her: https://www.kosogkaos.org/humanrights/► NY BOK UTE NÅ: Frykt og Stillhet - jødiske stemmer i Norge etter 7. oktober. Bestill her:  https://bok.norli.no/frykt-og-stillhet► STØTT ARBEIDET PÅ VIPPSOm du ønsker å støtte arbeidet med denne podcasten, kan du bidra med et stort eller lite beløp, etter eget ønske. All støtte settes pris på, og du bidrar til arbeidet med å lage flere episoder. Bruk Vippsnummer: #823278►  ⁠BLI ⁠⁠⁠⁠MEDLEM⁠⁠⁠⁠⁠ Fremover vil de som er støttemedlemmer få tilgang til episodene først. Da støtter du podcasten med det samme som prisen av en kaffe hver måned. Setter stor pris på om du blir støttemedlem. Tusen takk.► Annonsere på Henrik Beckheim Podcast?Send en mail til post@henrikbeckheim.no ► MERCH: Kjøp klær, kopper, capser og mer: https://henrikbeckheim.com/store► Linker:⁠⁠Youtube⁠⁠ | ⁠⁠Nettside⁠⁠ | ⁠⁠TikTok⁠⁠ | ⁠⁠Instagram⁠⁠ | Podimo | ⁠⁠Facebook⁠⁠ | ⁠⁠Apple

What a difference a week made… Etter ligacup-fadesen har Liverpool slått tilbake på absolutt beste vis, og leverte årsbeste under elektrisk og fiendtlig stemning mot Real Madrid på Anfield.Mari Lunde har med seg Tore Hansen (en stund, i hvert fall) og Jens Bessesen for en prat om formen som kanskje har snudd, om Conor Bradley med Vinicius Jr i lomma, og supporternes buing på Trent Alexander-Arnold. Her er temaene:00:00 Intro00:40 Ting kan snu03:20 Derfor har trenden snudd08:00 Årsbeste10:40 Conor Bradley12:40 Trent-buing24:30 Lytterspørsmål rett til Slot26:00 Florian Wirtz til venstre27:30 Kerkez og Robertson29:10 Hvordan stoppe Haaland?Intromusikk Pausepraten: The Epic 2 by Rafael Krux Link: https://filmmusic.io/song/5384-the-epic-2- License: http://creativecommons.org/licenses/by/4.0/ Music promoted on https://www.chosic.com/free-music/all/ Hosted on Acast. See acast.com/privacy for more information.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Furman assistant coach, Rett Lister, provides advice and insights to young coaches looking to rise the coaching ranks. We talk what it takes to be recruited, teaching players conceptual offense and defense, using analytics with players, and structuring practices.This episode is sponsored by the Dr. Dish Basketball Shooting Machine. Mention "Quick Timeout" and receive $300 off on the Dr. Dish Rebel, All-Star, and CT models. Get $100 off the IC3 Basketball Shot Trainer with the code TONYMILLER (or click this link).If you're already using tools like FastDraw, FastScout, or FastRecruit—you know how essential they are to your workflows. And now that they're fully part of the Hudl ecosystem, they're more powerful than ever. From film and play diagrams to scouting reports and custom recruiting boards, everything flows together. One system. Built for high-performance programs. Learn more at hudl.com/aquicktimeout. Hosted by Simplecast, an AdsWizz company. See pcm.adswizz.com for information about our collection and use of personal data for advertising.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

This week, Brent speaks with Sir Adrian Bird, the pioneering geneticist whose discoveries on DNA methylation reshaped our understanding of how genes are regulated. Bird explains what DNA methylation actually is and why he's skeptical of popular claims that it determines "biological age" or can be easily hacked to reverse aging. They discuss his groundbreaking work on Rett syndrome, how CRISPR gene editing is being used in clinical trials to potentially cure it, and what that might mean for other neurological diseases. He's a wonderful guest. Hope you enjoy.

Comissão aprova uso do FUNDEB para pagar profissionais que atendem alunos com autismo e doenças raras. Em outra frente, o Novo Código Civil ganha livro sobre Direito Digital, e o Senado aprova o mês de conscientização da Síndrome de Rett.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

BASE jumping in national parks is illegal, but with the federal government shut down, some thrillseekers are taking advantage of the situation. CBS News' Carter Evans explains. California Gov. Gavin Newsom told Robert Costa in a "CBS Sunday Morning" exclusive interview that he'll consider a 2028 White House bid. Costa joins "CBS Mornings" to discuss what Newsom said will guide his decision and who else could enter the Democratic race. Writer and filmmaker Cameron Crowe joins "CBS Mornings" to talk about his new memoir, "The Uncool," where he reveals the true stories behind his classic film, "Almost Famous," and his early days interviewing legends like Led Zeppelin, David Bowie, and the Allman Brothers. In this week's "Dear David," CBS News contributor David Begnaud shares two powerful stories of love: Jerome and Agnes Bourgeois of Houston, marking 66 years of marriage through song, and 9-year-old Nora Vaughn of Louisiana, spreading laughter to raise money for her sister with Rett syndrome. World-renowned mentalist Oz Perlman joins "CBS Mornings" for his first live TV interview about his new book, "Read Your Mind: Proven Habits for Success from the World's Greatest Mentalist." He shares how techniques used to read people can also unlock personal and professional potential. To learn more about listener data and our privacy practices visit: https://www.audacyinc.com/privacy-policy Learn more about your ad choices. Visit https://podcastchoices.com/adchoices

Bare et par spillere får godkjent - resten fortjener mer eller mindre slakt etter tapet mot Brentford. Det fjerde tapet på rad i Premier League. Rett etter 3–2-tapet for Brentfor satte Tore Hansen og Arve Vassbotten seg ned for å spille inn en reaksjonspodcast av Pausepraten. Dette er temaene00:00 – Alle gjør de samme feilene 02:17 Nå skrinlegges titteldrømmen og forventingene justeres 03:51 Det er et skremmende mønster her 07:16 Uforståelige baklengs og dårlig med sjanser 09:12 Arne Slot har prøvd så mye forskjellig, men ingen ting fungerer 13:15 – Jeg neker å tro man kan kjempe om tittelen nå14:57 Mangler det ledertyper i laget? 17:37 Til en ny Palace-kamp må ermene brettes opp fra alle 18:33 Står Arne Slots jobb i fare nå? Intromusikk Pausepraten: The Epic 2 by Rafael Krux Link: https://filmmusic.io/song/5384-the-epic-2- License: http://creativecommons.org/licenses/by/4.0/ Music promoted on https://www.chosic.com/free-music/all/ Hosted on Acast. See acast.com/privacy for more information.

Er det sånn at noen av oss passer best som singel? I denne uka av Datingmysteriets terapitime skal terapeutene snakke med på Jon Terje, som har vært singel de siste 13 årene, og egentlig synes det er helt ok. Nå lurer han på om terapeutene kanskje kan gi han input som gir han lysten til å date. Men trenger han egentlig det når han er lykkelig alene? I Datingmysteriets terapitime får ukas klient hjelp av sexolog og parterapeut, Tone Haldorsen, parterapeut, rådgiver og filosofisk praktiker, Lina Holte-Leyk og parterapeut Anders Solfjeld Gjerdseth. Målet er at både gjesten i studio - og dere som lytter - skal få hjelp til å navigere på dagens datingmarked.Programleder: Hilde Nordlund Hosted on Acast. See acast.com/privacy for more information.

Rett på sak er direkte tydelige meninger og usensurerte nyheter kl. 09.00.Som alltid får du de usensurerte nyhetene og ærlige perspektivene du ikke finner hos NRK.Kom gjerne med forslag til saker ved å sende oss en e-post eller skrive i kommentarfeltet.

Welcome to Specifically for Seniors, where today we explore the civic power of everyday objects and the people who dare to redesign them. Today's guest didn't start with a blueprint—she started with a daughter. Drew Ann Long is the creator of Caroline's Cart, a revolutionary shopping cart designed for children and adults with disabilities. Named after her daughter Caroline, who was born with Rett syndrome, the cart began as a mother's plea for inclusion and became a national movement in retail design.Drew Ann taught herself the language of industrial engineering, founded Parent Solution Group in 2008, and partnered with Technibilt to bring her vision to life. Her invention has earned national recognition, including the Da Vinci Award for universal design, and is now available in major retailers like Target, Kroger, and Walmart. But this story isn't just about a cart—it's about civic imagination, maternal resolve, and the quiet revolution of making space for everyone.

Hvorfor du ikke skal bruke tåkelys, hvordan det er å jobbe som motorjournalist og hva må du ALLTID huske på når du setter deg inn i bilen og skal ut å kjøre? Dette diskuterer David og Håkon, i tillegg til å ta opp fem ting å sjekke når du skal kjøpe entusiastbil til høstpris. Hosted on Acast. See acast.com/privacy for more information.

Donald Trump kunngjorde at det kan bli fred i Midtøsten "for første gang på 1000 år". Rett etterpå holdt han og krigsminister Pete Hegseth et allmøte for amerikanske generaler. Der ble de fortalt at den største trusselen mot USA kommer innenfra. Og så er jo den amerikanske staten lukket ned ... igjen. Aftenpodden USA får hjelp til å analysere nok en travel uke med avtroppende USA-korrespondent Tove Bjørgaas fra NRK. Med korrespondent Kjetil Hanssen, kommentator Christina Pletten og programleder Kristoffer Rønneberg. Foto: Andrew Harnik / Reuters / NTB.

In this heartfelt, high-energy conversation, Stephanie Bohn—entertainment veteran turned startup founder—traces her journey from American Express to 13 years at Warner Bros., scaling Rotten Tomatoes, a pivotal stint at Netflix, and ultimately to purpose-built entrepreneurship. Stephanie shares how “raising your hand before you feel 100% ready” opened doors to building new business lines (hello, early App Store days) and leading through ambiguity. We dig into her time as CMO at Chief, the power of peer boards for executive women, and what servant leadership looks like in practice. The episode turns deeply personal as Stephanie opens up about her daughter's Rett syndrome diagnosis, the broken systems families navigate, and how that sparked Truly Care—a mission-driven platform connecting families with specialized caregivers and guiding them to underused respite resources. It's a masterclass in turning obsession into action, finding champions, and designing a life that sustains both ambition and wellbeing.We cover:Spotting and pitching opportunities before you're “ready”Intrapreneurship at scale: apps, IP, and the Rotten Tomatoes playbookInside Chief: “who mentors the mentors?” and changing the face of leadershipCaregiving as infrastructure: access, affordability, and dignityDefining servant leadership and leading by removing obstaclesFounder fuel: memoirs, The Pitch podcast, and mindset rituals that stickGuest links:LinkedInWebsiteInstagramMic-drop moment: “If you're obsessed with the idea, break it into nano-steps, find your champions, and build the scaffolding until it exists.”

Stardust Rhapsody: Anthem is a sci-fi D&D campaign that features Pyke, Rett, and the rest of the Rhapsody crew as they sail through the aether hunting bounties and getting way in over their heads. We stream this campaign live monthly on Saturdays!   You do NOT need to listen to Overture to enjoy Anthem! If you have the appetite to listen to both, we recommend starting with Anthem, then going back to listen to Overture!   Gain access to an exclusive campaign, Shroud Over Saltmarsh, over on Patreon: https://legendsofavantris.com/patreon The Crooked Moon, a folk horror supplement for 5e, is available for preorder! Get the Crooked Moon at: https://thecrookedmoon.com/ Watch more D&D adventures in the world of Avantris live on Twitch: https://www.twitch.tv/legendsofavantris Check out our merch store: https://shop.legendsofavantris.com  Join our community on Discord: https://legendsofavantris.com/discord Watch our many campaigns on YouTube: https://legendsofavantris.com/youtube  All other links: https://linktr.ee/legendsofavantris   Watch the full episode here: https://youtu.be/h-8umO8Frpo?si=uK2cFpfKv5EEeDA4

Var det en god eller dårlig nyhet som kom torsdag? Jonas Gahr Støre var ikke i tvil. Rett etter at Norges Bank satte ned renten med et kvart prosentpoeng var han på Facebook med en jubelmelding. Men har han grunn til å feire? Hør Maria Berg Reinertsen, Aslak Bonde og Maria Dyrhol Sandvik i Morgenbladets økonomi- og politikk-podkast. Hosted on Acast. See acast.com/privacy for more information.

Rett før Nederland Grand Prix, og starten på andre del av sesongen, samlet vi lyttere til en live podcast på Carls i Oslo. Der avslørte vi hvor godt, eller dårlig, vi traff på spådommene våre tidligere i år, og hva vi tror om resten av 2025-sesongen. Episoden kan inneholde målrettet reklame, basert på din IP-adresse, enhet og posisjon. Se smartpod.no/personvern for informasjon og dine valg om deling av data.

Our most generational divide yet! This week Wes brings the receipts and destroys another one of Rett's childhood classics: 1997's Starship Troopers. This movie has had a resurgence in popularity recently. Does it still hold up? Listen and find out!https://www.spreaker.com/episode/starship-troopers--67477512#scifi #sciencefiction #action #horror #90s #bug #bugs #robertheinlein #heinlein #pulp #novel #book #asimov #clarke #grok #waldo #payitforward #spacemarine #powerarmor #fallout

In Part 2 of our Roundtable chat with Rett Larson, we shift the focus to what happens once that trust is built. Rett breaks down how he uses warm-ups as more than just a physical prep; they're also a way to engage athletes mentally, meet the needs of coaches and support staff, and create a culture of energy and buy-in. He talks about designing sessions that athletes actually enjoy, and how that level of enthusiasm is just as important as the training itself. We also explore his use of light resistance tools like aqua bags and weight vests to keep movements sport-specific and fast, without compromising intent. The second half of this episode also dives into how Rett gamifies workouts to boost motivation and build team connection. From pairing athletes in unexpected ways to building in mini competitions that get people fired up, he shows how strategy and fun can coexist in elite training environments. We wrap up with a great conversation around warm-up design, resisted and assisted movements, and how small incremental changes can lead to major performance gains. Rett's perspective is a masterclass in creativity, culture, and coaching that's worth hearing all the way through.

Tony (11, M) Story.  Now we sleep with the alarm on every night.   Elopement:  involves leaving a safe or supervised area without permission. poses a risk to the individual's safety. can occur in various settings. is a common behavior in individuals with ASD. Virginie (10, M) Stories and Service Dog.   Single Mom (9, M) heading to the judge and calls me asking for papers.  Here you go…   Let's note that Elopement was masked behind broader buckets and I think this is a miss.  We need to name and discuss this very challenging behavior.   FB Survey.  4 hours.  100+ votes, 100 comments.   https://www.facebook.com/groups/syngap/posts/1734514154096968/ 76% of respondents eloped (35% F, 41% M) 24% didn't (17% F, 7% M)   11 F, no elopement at home - but sometimes tries to elope while at school. C ( has always been an eloper - kid has a sixth sense for when someone leaves the door unlocked C elopes and age 16 years old H 9 girl constantly running away B-7.5 years old Girl - 3 Fourteen. She doesn't anymore, but used to. Not to the degree that other families struggle, but we definitely had to keep an extra close eye/ear. Had bells on all our doors, etc. Did get a call from our neighbor once while I was making dinner saying that S had just walked into her house, that she was safe, and was helping to give their baby a bath. Thankfully they were very good friends and took it in stride. (S was about four at the time.) Boys age 7. He has for awhile Boy, age 8.5. Just started eloping more so recently, in the last year. 11, girl Boy age 15 13 year old girl Girl-3 Ty 10 elopes since he can walk. It's our biggest problem. Boy age 8 but has been doing it for a while Age 7, girl. Boy - 14y/o Boy age 9… he's a track star! Boy age 12, has eloped since he could walk/run. It probably peaked around age 6 and got better with meds. Elopement is less frequent now but scarier now that he's older and higher. Boy 10. Always has wandered and will still now run off knowing he's not suppose to Any chance he gets 13 My boy (22 y/o) always was and is now a master of escape, he can hear if I turn the key in the door, front door has an alarm fitted just in case Boy , 25 the risk is high because he looks typical 25 yo female, requiring alarms, cameras,and specialized door locks.  In a state that says that these measures are unlawful restraint and invasion of privacy   Frazier, 2025. Extremely High finding as a Symptom of SYNGAP1.  See Table 2 of Quantifying neurobehavioral profiles across neurodevelopmental genetic syndromes and idiopathic neurodevelopmental disorders https://onlinelibrary.wiley.com/doi/10.1111/dmcn.16112   McKee, 2025.  Notes the significantly heightened enrichment of Autistic Behavior and Behavioral Abnormality vs. Rett, Angelman or Epilepsy cohorts.  See Figure 2B of Clinical signatures of SYNGAP1-related disorders through data integration. https://www.gimjournal.org/article/S1098-3600(25)00066-8/abstract   Cunnanne, notes impulsivity (which is a euphemism for elopement if I have ever heard one) and has three quotes in Table 1 (see below), but also notes in Figure 2 that both ASD and lack of danger awareness came up in almost every interview.  See SYNGAP1-Related Intellectual Disability: Meaningful Clinical Outcomes and Development of a Disease Concept Model Draft.  https://papers.ssrn.com/sol3/papers.cfm?abstract_id=5098346   Impulsivity quotes:   Runs toward streets - “He wouldn't stop himself from running into the road. He climbs things in that house that you're like‘oh my god, how are you going to get out of that?'”   Jumps into pools - “He would walk into a pond. We were at the pool the other day…and he just walked off the edge and just fell into the water and was like… he would have just drowned.”   Runs toward crowds - “She was a bolter. So that was always scary. We had a few scares where you look away for a moment, I mean, we always had somebody with her, but it could be a moment's time and it's like where'd you go, you thought she was right there.”   FUNDRAISING 3 events in 3 states… https://mailchi.mp/curesyngap1.org/3-events-1-mission-support-syngap1-families-this-fall?e=e95ed9a1c4  Gala for SYNGAP1 August 22, 2025 - Farmingdale, NJ cureSYNGAP1.org/Gala5 Beacon of Hope September 12, 2025 - Boston, MA cureSYNGAP1.org/Beacon25 Scramble for SYNGAP October 4, 2025 - Greer, SC cureSYNGAP1.org/Scramble   Also, Conference is in 107 Days https://curesyngap1.org/events/conferences/cure-syngap1-conference-2025-hosted-by-srf/   STUDIES - MATTER https://docs.google.com/presentation/d/1yRPHMRY3pXPgbOacDM9Sr906VejdJWsonUWvqRD9VVI/edit?usp=sharing    Pubmed is at 37 (One a week!) https://pubmed.ncbi.nlm.nih.gov/?term=syngap1&filter=years.2025-2025&timeline=expanded&sort=date&sort_order=asc   SHARE BLOOD TO THE SRF BIOBANK AT CB! Read here for more information: https://curesyngap1.org/blog/fueling-research-syngap1-combinedbrain-biorepository-roadshow/    VOLUNTEER  Join us: https://curesyngap1.org/volunteer-with-srf/    SOCIAL MATTERS - 4,283 LinkedIn.  https://www.linkedin.com/company/curesyngap1/  - 1,420 YouTube.  https://www.youtube.com/@CureSYNGAP1    - 11,303 Twitter https://twitter.com/cureSYNGAP1  - 46k Insta https://www.instagram.com/curesyngap1/    NEWLY DIAGNOSED? Next New Family Webinar - Tuesday Sept. 9th, 2025, 5 PM Pacific scheduled! https://curesyngap1.org/resources/webinars/webinar-105-syngap-research-fund-quarterly-webinar-new-syngap1-family-orientation/   Resources https://curesyngap1.org/syngap1-resources-for-newly-diagnosed-families   Podcasts, give all of these a five star review! https://cureSYNGAP1.org/SRFApple   https://podcasts.apple.com/us/channel/syngap1-podcasts-by-srf/id6464522917    Episode 178 of #Syngap10  #Advocate #PatientAdvocacy #UnmetNeed #SYNGAP1 #SynGAP #SynGAProMMiS

In Part 1 of our conversation with Rett Larson, we dive into the global perspective he brings to the strength and conditioning world. Rett has worked with elite athletes across multiple continents, including his role with the Chinese women's national volleyball team—a team with a cultural presence and history that goes far beyond the sport itself. He talks about the challenge and importance of not overhauling what already works, and instead finding ways to integrate new ideas without disrupting a winning formula. From cultural expectations to coaching philosophy, Rett explains how humility and adaptability are key when stepping into an unfamiliar system. We also get into the differences between coaching in the United States and abroad, including how American "rah rah" intensity is sometimes seen as over the top. Rett shares how his own beliefs around training were challenged by working with athletes and coaches who didn't necessarily agree with the so-called sacred cows of Western programming. There's plenty of insight here for anyone who wants to expand their coaching lens and learn how to gain trust in new environments. Whether you're just starting out or have been coaching for years, this part of the conversation lays a strong foundation for what's coming in Part 2.  

This week Rett and Wes discuss 2009's animated film 9, directed by Shane Acker. Listen as we journey to the source in order to protect the future. And be careful not to disturb The Beast!https://www.spreaker.com/episode/9--67224984

Hoy hablamos del Síndrome de Rett, un trastorno neurológico que afecta principalmente a niñas: nacen sanas, pero entre los 6 meses y 2 años pierden habilidades como hablar, caminar o usar las manos. Nos acompaña Daniela Morales, mamá de Javiera, una niña de 8 años con Rett, y el Dr. Eduardo Barragán, neurólogo pediatra, para explicarnos todo sobre este raro y devastador padecimiento. Hosted on Acast. See acast.com/privacy for more information.

Les tenemos un súper programa... Vamos a hablar de las emociones que nos secuestran, qué onda con la alimentación de los perros senior y todo sobre el síndrome de Rett. Hosted on Acast. See acast.com/privacy for more information.

Today's guest is Rett Larson, strength coach for the German Women's Volleyball Team and creator of the "No Zombies" training philosophy. Rett coached Olympic medalists with China and the Netherlands, blending energy, rhythm, and purposeful movement into world-class performance. As sport expands into an increasingly more high-pressure, early specialization event that can easily suck fun and joy away, there grows a need for a "counter-culture" within athletic performance. Not only does a "physical preparation" process for athletes that is joyful and gamified lead to more fun within a training session, but it also develops important athletic qualities, within that umbrella of "fun" that may not be possible in more "traditional" sessions. Rett Larson is spearheading an active, engaging approach to the physical preparation process for athletes with warmups designed for joy, engagement, and a comprehensive stimulation of athletic qualities along the way. On today's episode, Rett speaks on a variety of engaging tools and gamifications in the warmup process for both thermogenic and neurological preparation. He goes into his take on partner exercises and isometrics, and the process of using a physical challenge to "sneak" strength and skill elements in the program. Today's episode is brought to you by Hammer Strength and LILA Wearable Resistance Gear. Use the code "justfly25" for 25% off any Lila Exogen wearable resistance training, including the popular Exogen Calf Sleeves. For this offer, head to Lilateam.com View more podcast episodes at the podcast homepage. (https://www.just-fly-sports.com/podcast-home/) Timestamps 6:12- Enhancing Athlete Performance through Innovative Training 20:06- Rope Flow in the Warmup Process 25:19- Team Bonding through Partner Exercises and Gamification 29:39- Athletic Development through Diverse Warm-Ups 31:24- Engaging Training Games for Athletic Development 38:00- Enhancing Motor Learning Through Novel Activities 48:14- Isometric and "Sneaky Strength" Exercises 54:50- Tennis Balls as a Powerful Warmup Tool 1:05:36- Animal-Inspired Safari Warmup Routine 1:14:35- Dynamic Movement Enhancement with Wearable Resistance Gear Key Takeaways 1️⃣ Rethinking Training Norms: Breaking the Script Let's be honest—starting the season with FMS testing or default punishments like push-ups feels like a missed opportunity. Rett challenges that default. Why not flip the script? Start with something that actually taps into the nervous excitement athletes bring into day one. Instead of draining that spark, use it to build buy-in. What to try: • Kick things off with a creative team challenge instead of movement screens. • Replace punishments with something silly but memorable (e.g., team serenade or worm dance). • Avoid singling people out—no solo singing for introverts. The goal is laughter, not dread. 2️⃣ Rope Flow: Movement Puzzles that Stick If you've ever tried rope flow, you know it's strangely addicting. Rett uses it as a warm-up tool that hits thermogenic, rotational, and coordination qualities all in one. It's essentially a moving puzzle—and that makes it ideal for getting athletes out of zombie mode. What to try: • Add rope flow sequences early in warm-ups to raise body temp and spark engagement. • Mix in new patterns over time so it stays fresh. • Think of it as "motor learning meets party trick"—athletes love that feeling of leveling up. 3️⃣ Partner Work and Social Pressure: The Good Kind Warm-ups don't have to be solo grinds. In fact, the social element is part of the magic. Whether it's balloon volleys in a split squat or partner wall sits, Rett uses simple tools to inject teamwork, laughter, and just the right amount of peer pressure. What to try: • Design partner or trio-based warm-up drills to naturally boost effort and engagement. • Add tasks or games that distract from the burn (like volleying a balloon while holding a lunge).