Podcasts about self advocate

As part of the 2026 Developmental Disabilities Conference, Hari Srinivasan, Rishi Jena, and Héctor Manuel Ramírez discuss mental health and self advocacy. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 41456]

As part of the 2026 Developmental Disabilities Conference, Hari Srinivasan, Rishi Jena, and Héctor Manuel Ramírez discuss mental health and self advocacy. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 41456]

As part of the 2026 Developmental Disabilities Conference, Hari Srinivasan, Rishi Jena, and Héctor Manuel Ramírez discuss mental health and self advocacy. Series: "Developmental Disabilities Update" [Health and Medicine] [Show ID: 41456]

⁠AUTISTIC Viewpoints⁠⁠⁠⁠⁠ is a podcast hosted by ⁠⁠⁠⁠⁠Turrell Burgess⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠⁠Daria Brown⁠⁠⁠⁠⁠. On Episode 11, returning guest Khylil Robinson joins us!Learn more at ⁠⁠⁠⁠⁠⁠https://affectautism.com/autistic-viewpoints/⁠⁠⁠⁠⁠Timestamps:00:13 Introductions01:27 Khylil's recent award01:46 Khylil's sentiments about being a repeat guest02:29 Setting up this episode's topics03:29 Turrell's review of their recent conference presentation04:43 Daria's comments about their presentation as an presentation attendee05:39 Khylil's reflections on their conference presentation08:34 Call out for hiring Khylil or Turrell to present online or in person, especially considering the unique experiences of young, black Autistic men09:33 How this presentation differed from past presentations11:35 Khylil's upcoming work events 15:47 Daria's reaction to Khylil's work events including incarceration16:48 Turrell's upcoming work events18:33 Daria's reaction to Turrell's work events and how we can advocate for all Autistics even if we can't speak to the experience of all Autistics19:42 Khylil's work with police officers21:23 Khylil's experience with law enforcement and his mental break about it25:08 Daria highlighting the gravity of this experience for anyone, let alone Autistic, let alone with the intersectional of being Black and all of the prejudice that accompanies that, then the masking that happens and the toll that takes on one's mental health and emotional well-being26:55 The work of KultureCity 27:22 Turrell's reflections on being Black and Autistic30:07 Daria's comments on Autism awareness all year round and not just in April30:40 Khylil talking about Mental Health Awareness month in May and specifically Men's Mental Health Awareness in June and managing his responsibilities, including his experience of his tire blowing on the highway and the aftermath34:00 Daria's comments on Autistic rumination and the toll on mental health and the accumulation of traumatic experiences35:43 Turrell's reactions about these experiences37:02 Daria bringing up the last episode with KW that if someone describes their experience, believe them37:31 Khylil talks about Autistics sharing their stories and lived experiences39:04 Lightening up the topic to upcoming spring events and Autistic joy that can help to attempt to pull us out of our ruminations or suffering mental health experiences and her specific Autistic joy on display this episode41:31 Khylil's humorous description of his latest fun events 45:20 International travels46:15 Turrell's upcoming plans for the upcoming months47:48 Khylil's interest in the Michael Jackson biopic is strictly related to Sonic the Hedgehog and Daria has no idea what he means51:07 Turrell gives a teaser about the next episode51:52 Wrap-UpResources:KultureCity: Sensory Accessibility and Inclusion podcast episode ⁠https://affectautism.com/2021/10/16/kulturecity/⁠Dr. Gordon Neufeld podcast episode on emotional well-being ⁠https://affectautism.com/2023/03/04/well-being/⁠ Khylil's stellar artist referenceSexy Nerds Events ⁠https://sexynerds.net/⁠* Thank you to Hungarian recording artist ⁠⁠⁠⁠⁠⁠⁠⁠Post Analog Disorder⁠⁠⁠⁠⁠⁠ for the intro/outro music permission: ⁠⁠https://postanalogdisorder.bandcamp.com/album/still-i-rise

What happens when a successful professional and mother realizes that alcohol, once a social "glue," has become a biological crutch? Coach Matt sits down with AFL member Candy to celebrate her 365-day milestone. Candy shares her transition from using wine to numb emotional struggles to becoming a fierce advocate for her own health and boundaries. Discover how the "Field to Heal" philosophy allowed her to navigate high-stakes all-inclusive vacations with total social ease, and why shifting her identity to a "non-drinker" made high-performance decisions automatic. This episode is a roadmap for high achievers to reclaim their focus, strengthen their marriages, and ensure they are fully present for the people who matter most.   Want to speak to a real human being at AFL? Text Kai on our team at +1 361 321 7764 and he will respond and see how we can help. No AI automations here at AFL. Real humans ready to support you on your alcohol free journey.

Alex Lin joins Shannon on today's show to talk about the 10 year anniversary of Autism Rocks and what is next.  Alex also shares his opinions on the current focus to find the cause of autism. The jargon of the day is Self Advocate! 00:00 Introduction & Autism Live Disclaimer 00:31 Welcome to Autism Live with Shannon Penrod 01:12 Celebrating 10 Years of Autism Rocks 02:18 Choosing Words: Identity, Language & Respect 03:18 Where to Watch & Listen to Autism Live 04:02 Podcasts, YouTube Channels & Ad-Free Options 05:29 Save the Date: All Goals Gala on Halloween 05:54 Jargon of the Day: What Is Self-Advocacy? 07:07 Who Gets to Speak About Autism? 09:22 Defining Self-Advocacy (Autistic Self-Advocacy Network) 11:14 Communication as a Civil Rights Issue 13:21 Supporting Communication for Non-Speakers 15:04 Introducing Alex Lynn 16:15 Alex Joins Live from Taiwan 17:48 The Origin Story of Autism Rocks 19:27 Grandmother's Influence & Finding Purpose 21:40 10th Anniversary of Autism Rocks 23:02 Expanding Autism Rocks Internationally 24:47 Autism Rocks Performers Over the Years 26:03 2026 Autism Rocks Lineup Preview 28:31 Role Models, Music & Representation 31:19 Alex's Podcast "Issues at Hand" 33:12 Podcast Topics & Autism Advocacy 35:46 Self-Advocacy vs Advocacy – Alex's Perspective 37:55 Parents Speaking for Autistic Children 40:14 Autism Culture & Language in Taiwan 41:58 Disability Rights & Workplace Accommodations 44:07 U.S. Disability Laws & Current Challenges 44:57 Autism, Politics & Public Perception 48:32 Trauma, Bullying & Mental Health 49:51 Why Acceptance Matters More Than a "Cure" 51:18 Identity, Growth & Personal Evolution 53:01 Learning Self-Worth & Letting Go of Pleasing Others 56:07 Family Relationships & Independence 58:03 Managing Anxiety & Panic Attacks 59:33 Autism Rocks 2026 Event Details 01:00:47 Next Week on Autism Live  01:02:05 Like, Subscribe & Final Sign-Off

Information Specialist Eric Stoker Interviewed Hannah Wood. During the interview Hannah told Eric what she likes to do for fun, what her future plans are after she graduates from VISTA education campus and so much more.

Get answers to questions about Supported Decision-Making (SDM) in this conversation between Leo True Frost, a wheelchair user with cerebral palsy who uses a communication device to speak, and Jonathan Martinis, Senior Director for Law and Policy at the Burton Blatt Institute. Martinis explains that SDM involves individuals seeking advice and support to make decisions, similar to how non-disabled individuals do. He highlights the Jenny Hatch case, which brought SDM into public consciousness and led to many states recognizing SDM. Martinis emphasizes the importance of planning ahead, identifying supporters, and formalizing agreements. He also discusses the balance between SDM and guardianship, advocacy for legal recognition, and the role of self-advocates in promoting their rights.

Supervision Simplified is back with a fresh perspective—from the supervisee's chair! In this heartfelt conversation, Dr. Amy Fortney Parks sits down with Miranda Singer, a neurodivergent social work supervisee, play therapist-in-training, and passionate advocate for neurodiversity and anti-ableist practice.Together, they explore the real-world experiences of clinical supervision from the trainee's point of view: the nerves, the learning, and the growth that come from good feedback and supportive supervisors. Miranda shares insights from her work with neurodivergent children, what she's learned from supervision, and how her late diagnosis shaped both her advocacy and her approach to therapy.You'll also hear about her initiative, Dis No More Abilities, and how she's building a movement to promote inclusion, empathy, and authenticity within and beyond the therapy world.Supervision Simplified brings you real conversations with real clinical supervisors—and now, supervisees—navigating the complex, messy, and meaningful world of mental health.Clinical Supervision Directory – www.clinicalsupervisiondirectory.com

Today on The Right Side, I interviewed Daniel Keith Austin, a resilient author and actor who developed autism from vaccine injury but channels his experiences into a powerful message of hope. As the bestselling author of the children's book "Chelsea's New Beginning" – a heartwarming story of a puppy finding her forever home – Daniel is now working on the next books in the Chelsea the Golden Retriever series. His story reminds us that challenges can lead to triumph. Check out his work at www.DanielKeithAustin.com #AutismAwareness #VaccineInjury #ChildrensBooks #HopeAndHealing--------------------------Subscribe to my YouTube Channel: "Welcome to The Right Side"Contribute to The Right Side by prayerfully considering a recurring $5/month contribution at: www.DougBillings.usSupport the show

Aaron Kalinowski, Self-Advocate and Podcaster, Nathan Gerhard, Associate Executive Director at Keystone Human Services, Martin Noah, Senior Director of Information Technology at The Arc of Essex County, and Meghan O'Sullivan, Sales Director at SimplyHome, discuss how enabling technologies are expanding independence and choice for people with disabilities.  Interviewer: Colleen McLaughlin, MEd, Co-Director of The Boggs Center on Disability and Human Development Click for Full Transcript or Episode 38

Information Specialist Eric Stoker Interviewed Drake Becker. During the Interview Drake told Eric what he likes to do in his free time, a little bit about himself, the day he received the self-advocate of the year award from the council and so much more. If you would like to follow along on Drake's self-advocacy journey you can check out his Instagram page which is ddogcity.

Reborn MeatSuit has published its latest article covering what might feel like self-confidence/realism as a deeper, subconscious self‑sabotage rooted in narcissism; specifically, internal gaslighting, which is aimed primarily at self-aware, growth-oriented, emotionally intelligent people. The article is available for viewing in full at https://rebornmeatsuit.com/2025/08/16/self-sabotage-patterns-biggest-narcissist/ Reborn MeatSuit City: Casper Address: 5830 East 2nd Street Website: https://rebornmeatsuit.com/

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

- How Being a Member of Diverse Communities May Impact Your Access to Oncology Care, Treatment, Management of Treatment Side Effects, & Pain Management - What to Expect from Your Relationship with Your Health Care Team: Is Your Health Care Team Providing You with Equitable, Excellent Care - What to Consider When Selecting a Cancer Care Team & Treatment Facility - Languages Spoken & Diversity of the Health Care Team - What Is Cultural Humility & How Your Care Team Practices Cultural Humility - When to Seek a Second Opinion: Finding the Best Care - How to Request Copies of Treatment & Pathology Reports - Your Encounter Notes - Key Questions to Ask Your Health Care Team About Your Treatment Plan - How to Self-Advocate with Health Care Staff: Languages Spoken, Disability Services & Other Barriers to Health Equity - Health Literacy: How to Become More Knowledgeable & Satisfied with Your Care - Your Important Role in Shared Decision-Making - Tips to Communicate with Your Health Care Team to Determine if They are the Best Team for You - Guidelines to Improve Telehealth/Telemedicine Appointments, Including Technology, Prepared List of Questions & Discussion of OpenNotes - Questions for Our Panel of Experts

Dr. Kim Lannon emphasizes the importance of self-advocacy, especially when it feels uncomfortable. She also explains how to do it effectively.

Self-advocacy can feel like a challenge, especially if you're conflict-avoidant, culturally conditioned to prioritize group harmony, or simply unsure how to speak up without fear of being labeled “difficult.” In this episode, we'll explore how to advocate for yourself effectively while balancing cultural expectations, professional norms, and personal boundaries. Neelu Kaur brings her unique expertise to the discussion. With a business degree and a masters in Social & Organizational Psychology along with her experience as a coach and master practitioner certified in NeuroLinguistic Programming, Yoga, and Ayurveda, Neelu has a really unique and comprehensive framework for tackling this topic. You'll learn: How cultural upbringing in collectivist vs. individualist societies influences our ability to speak up. Why advocating for yourself isn't selfish—it's a collective act that paves the way for others. The concept of being “a part of and apart from” group efforts to gain recognition for your contributions. How to shift from problem-framed to outcome-framed questions to open up possibilities. Practical tips for navigating conflict-avoidance and building confidence in difficult conversations. Why modeling self-advocacy as educators is essential for empowering students. How mindfulness, movement, and non-attachment can ground you before challenging situations. Whether you're negotiating for resources, managing peer dynamics, or striving to be heard or advance in a professional space, this episode provides the tools you need to find your voice and advocate for what matters most. Get the shareable article/transcript for this episode here.

From quiet questions to Capitol Hill calls: Discover how any voice can ignite disability advocacy. In this episode of the Water Prairie Chronicles, host Tonya Wollum welcomes back Ally Pack-Adair, a passionate advocate and ambassador for the MDA.

Jonathan Gardner is a dedicated advocate for disability rights at both the state and national levels. A homeschool graduate, cancer survivor, and individual who happens to have Autism, Jonathan serves […] The post Jonathan Gardner Self-Advocate & Motivational Speaker appeared first on PLAN of MA and RI.

In this episode, Steph and Steph explore the art of self-advocacy. What does it really mean? Why is it so challenging yet so crucial to creating the life we want? And how can something as simple as asking questions strengthen our self-advocacy skills? We dive into all this and more, sharing real-life stories and anecdotes about what self-advocacy looks like in action!

Today's episode is part of a solo series on Reimagining Love about Family of Origin Roles (a.k.a. FOO roles). We're exploring how the roles we were cast into as children and held within our family systems shape how we show up in our relationships today. Whether you were the one who held the family together, the rebel who pushed back against household norms, or the “easy” kid who flew under the radar, we all inhabited a position in the community of our family and absorbed certain messages about love, connection, and worthiness as a result. Check out the introductory episode of the series if you missed it! All previous role-specific episodes are also linked below.We're taking a look at “The Parentified Child” role in today's episode. The child cast into this role likely heard that they were “so mature,” “wise beyond their years,” or were praised for their comforting presence when they were growing up. The problem? Kids shouldn't have to provide emotional support to the adults in their family. Unfortunately for the Parentified Child, this felt like the surest route to safety and love, perhaps due to a chaotic environment, overwhelmed parents, or conflict in the family system. As an adult, the Parentified Child carries with them a certain set of beliefs and tendencies that they picked up as a kid in this role. Does this sound like you, or someone you love? Listen to the episode to learn more about this role and how The Parentified Child can free themselves from always taking on others' needs and create more egalitarian relationships that feel safe and nourishing.Relevant links:Reimagining Love episode with Dr. Hillary McBride: Getting Present: Tuning Into Your Body with Dr. Hillary McBrideReimagining Love series: “I Love My Partner, But Their Family is Toxic”: Part 1, Part 2Girlhood Interrupted: The Erasure of Black Girls' Childhood (Rebecca Epstein, Jamilia J. Blake, Thalia González, from the Center on Poverty and Inequality, Georgetown Law)Past episodes of the Family of Origin Roles Series: Introductory Episode, The Perfect One (From Performance to Presence), The Easy One (From Accommodation to Authenticity), The Struggling One (From Scapegoat to Self-Advocate), The Peacemaker (From Referee to Realist)Take the Family of Origin Roles QuizDr. Alexandra's Psychotherapy Networker ArticleOrder Dr. Alexandra's book, Love Every DaySubscribe to Dr. Alexandra's NewsletterSubmit a Listener Question

UPDATE for 2025: First, we want to say how much this podcast community means to us. Over the past seven years, we've released 290 episodes, reaching millions of listeners worldwide. You've been with us through laughter, tears, challenges, growth, and friendships. This podcast exists because of you, and we're deeply grateful for your support. To keep The Lucky Few Podcast thriving, we'll be making some changes early this year. While we focus on restructuring and exploring new ideas, we invite you to revisit past episodes or relisten to your favorites. Stay up-to-date by following us on social media ⁠@theluckyfewpod.⁠ We're excited for what's ahead! Until then, know we're cheering you on and love you so much. ... Friends, today we're diving deep into the heart of our favorite topic: inclusion! We chat about the barriers preventing true inclusion and we're challenging societal norms and asking the important questions about what defines human worth. What kind of person gets to be celebrated? What kind of person with Down syndrome gets to be celebrated? We explore the buzzword status of “inclusion,” the role of privilege in accessing support and services, and so much more. As we navigate this journey, we recognize the honor and burden of advocating for a more inclusive world. Progress in inclusion is happening, but are we truly championing the essence of every individual? Is the current system promoting equal access and opportunities? We're asking all the questions, you don't want to miss this thought-provoking episode! --- SHOW NOTES ⁠Learn more about regional assembly member Mar Galcerán's!⁠ Other episodes to check out: ⁠17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!⁠ ⁠28. Owning Your Influence In ALL Your Spaces!⁠ ⁠40. Back to School & All Things Education, Inclusion, & Down Syndrome⁠ ⁠58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman⁠ ⁠64. Building Bridges Towards Inclusion w/Barbara Butler⁠ ⁠67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis⁠ ⁠85. Is Inclusion Always The Best Option?⁠ ⁠92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing⁠ ⁠101. Jalondra Davis on Race, Disability, & Advocacy⁠ ⁠126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair)⁠ ⁠128. What To Expect From Inclusive Settings⁠ ⁠148. Diversity in the Down Syndrome Community⁠ ⁠149. The Only Black Mama In The Room - ft. Ashley Dirks (mother/advocate)⁠ ⁠172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani⁠ ⁠195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)⁠ ⁠197. Exposing The Roots (Racism, Ableism, Microagressions, + More)⁠ ⁠198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools⁠ ⁠203. Beyond Checking A Box⁠ ⁠204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward⁠ ⁠205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko⁠ ⁠208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)⁠ ⁠218. Creating Inclusion For All Learners (w/Tim Villegas) ⁠ ⁠223. Included, Seen, & Heard: The Impact of Successful Inclusion⁠ DISCOUNT CODE Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information! LET'S CHAT Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Today's episode is part of a solo series on Reimagining Love about Family of Origin Roles (a.k.a. FOO roles). Tune in on the first two Tuesdays of each month to learn about how the roles we were cast into as children and held within our family systems shape how we show up in our relationships today. Whether you were the one who held the family together, the rebel who pushed back against household norms, or the “easy” kid who flew under the radar, we all inhabited a position in the community of our family and absorbed certain messages about love, connection, and worthiness as a result. Check out the introductory episode of the series if you missed it!We're taking a look at “The Struggling One” role in today's episode. In some families, there is an individual who needs more care and attention than others. There are a number of reasons why this might be the case, including a difference in ability, a behavioral challenge, or a mental health condition. In any case, the “struggling one” is the recipient of a lot of the family system's energy, and this dynamic may lead to certain challenges and strengths for that person in adulthood. Does this sound like you, or someone you love? Listen to the episode to learn more about this role and how The Struggling One can embark on their healing journey.Relevant links:Minorities Less Likely to Be Identified for Special Education, Study Finds (EducationWeek)‘Boys are disappearing' from mental health care as signs of depression go undetected (NBC News)Girls With Social and/or Attention Deficit Re-Examined in Young Adulthood: Prospective Study of Diagnostic Stability, Daily Life Functioning and Social Situation (National Library of Medicine)The "Spoon Theory" (Christine Miserandino, www.butyoudontlooksick.com)Take the Family of Origin Roles QuizReimagining Love: “Tending to ‘Little You' & Exploring Your Family of Origin”Dr. Alexandra's Psychotherapy Networker ArticleOrder Dr. Alexandra's book, Love Every DaySubscribe to Dr. Alexandra's NewsletterSubmit a Listener Question

Our guest this week is Emma Livingstone of London, England who is the mother of three typical kids, a self-advocate with Cerebral Palsy and founder & CEO of UP - The Adult Cerebral Palsy Movement. Emma and her husband, Derrick, have been married for 17 years and are the proud parents of three typical children ages 11-16.  She is the one who has cerebral palsy, which has propelled her to become one of England's most outspoken advocates for adults with CP.   Emma is founder and CEO of UP - The Adult Cerebral Palsy Movement, a non-profit whose mission is to help all members of the adult Cerebral Palsy community to live their best lives. It's an uplifting story about family, perseverance and service all on this episode of the SFN Dad to Dad Podcast. Show Notes -Phone/WhatsApp – 44-07-951-019-508Email –  emma@upmovement.org.ukLinkedIn – https://www.linkedin.com/in/emma-livingstone-080967a4/Website - https://upmovement.org.uk/Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 800+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated.  There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channel/UCzDFCvQimWNEb158ll6Q4cA/videosPlease support the SFN. Click here to donate: https://21stcenturydads.org/donate/Special Fathers Network: https://21stcenturydads.org/  

Send Kira a text message!In theater and in the arts world, self advocacy can feel almost impossible, especially for artists who so often feel they're replaceable. In a lot of ways, that assumption is true and something we as an industry need to work on changing. Being able to advocate for yourself helps lay the groundwork for inclusion. Waiting to advocate for yourself can lead to a lot more stress, tension, and negative things that make communication difficult. And it leads to issues that can't make for an inclusive environment where people feel safe or supported or empowered. I recently had a personal experience that made me really stop and consider the best way to advocate for our needs without feeling like you're being difficult or rude. I have a way into this conversation that might sound like it's not theater related, but I encourage you to go with me on this. I promise I'll bring it back to theater quickly!Grab all the links and resources mentioned in this episode athttps://www.inclusivestages.com/post/why-everyone-pays-when-you-wait-to-self-advocateConnect with Kira:@kiratroilo @artandsoulconsulting @inclusivestages"'Black Hair'" Is Hair: An Entertainment Industry Guide WebsiteBecome a PatronJoin our mailing list - scroll to the bottom of the pageThanks for joining me on this episode of Inclusive Stages! If you enjoyed this episode, please leave a review on Apple or a rating on Spotify to help me reach more people ready to collectively shape the future of human-first theater, one stage at a time.Thanks to our music composer, Zachary McConnell, and our producer, Leah Bryant.

Friends, we're coming to you with a BONUS episode this week. Over the years we've worked hard to provide you with topics that are helpful resources, to be sources of encouragement, and never shy away from difficult conversations. Today, we're coming to you with a difficult, yet important conversation. This one is taken directly from comments by one of the Presidential candidates. We want to be clear we're not endorsing either candidate but as a platform that promises to shout worth and work to shift narratives for people with Down syndrome each week, we feel this is an important conversation we need to have with all of you. We hope you'll join us in this unfiltered and honest conversation. - - - SHOW NOTES No Pity: People With Disabilities Forging A New Civil Rights Movement by Joseph R. Shapiro Listen to Amy Julia Becker's podcast Reimagining The Good Life Listen to Amy Julia Becker's episode with Anthropologist Tom Pearson  Articles about the comments: New York Times article Disability Scoop article Some helpful links on this topic: National Center on Disability and Journalism Terms to Avoid When Talking About Disability Words Matter! Disability Language Etiquette by the National Education Association How Ableism Affects People With Disabilities National Institute of Health article: Implications of internalised ableism for the health and wellbeing of disabled young people   Previous Episodes Like This: 88. (Un)learning the Advocacy Language 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 197. Exposing The Roots (Racism, Ableism, Microagressions, + More) 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, you know we ask all the questions…even if we don't have all the answers! Today, we're diving into a topic that hits close to home for many of us—volunteering. We're asking some tough questions: What happens when volunteering becomes more about extra credit or resume-building? How does this culture impact our efforts to shift harmful narratives? How can we make sure we teach our kids that volunteering isn't just for show or awards? We're chatting about how to make sure our volunteering efforts are intentional and meaningful, and our personal experiences that have made a meaningful impact. We know it's not about being the hero—it's about building bridges, we hope you'll join us for this important conversation and share your thoughts and experiences with us!  - - - - SHOW NOTES Learn more about 99 Balloons. Learn more about Kids To Kids. Other Episodes Like This: 28. Owning Your Influence In ALL Your Spaces! 43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell 59. Finding Community at GiGi's Playhouse w/Nancy Gianni 151. Finding People That Don't Feel Sorry For You (ft. Jo Lopez) 169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 221. A Letter To The Parents Of Our Kid's Peers 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off ! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

We've had many candid conversations about friendship and inclusion over the years. Today we're excited to be joined by social worker, blogger, disability activist, and self-advocate, Kathleen Downes. Growing up in inclusive schools during the 90s, Kathleen shares her firsthand experiences, the struggles she faced in forming authentic friendships, and how involvement in disability-specific programs was pivotal in her life. We talk about the challenges that still persist in today's inclusive settings and the changes needed to support our kids in developing meaningful friendships. This conversation is packed with wisdom, practical advice, and heartfelt reflections, making it an essential listen for anyone committed to true inclusion. --- SHOW NOTES Follow Kathleen Downes on Instagram Check out Kathleen's blog The Squeaky Wheelchair Other episodes like this: 5. Friendship with GiGi's Playhouse and Just Like Me Foundation 6. Friendship Pt. 2 with Guest, Melynn Henry 10. Inclusion - An Educator's Perspective with Kristin Enriquez Pt. 1 11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2 32. The (Beautiful) Reality of Befriending Someone with Down Syndrome 85. Is Inclusion Always The Best Option? 128. What To Expect From Inclusive Settings 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 218. Creating Inclusion For All Learners (w/Tim Villegas)  221. A Letter To The Parents Of Our Kid's Peers 242. Is Inclusion A Privilege? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Nobody like a showoff? ( Really? ) Personally I've always admired people who could authentically self advocate. It's something most people ( me ) struggle with. LinkedIn reflects the wider business community in as much as, despite appearances, it's a world of wall flowers.It's like those humiliating school discos where there are a few noisy confident kids in the middle and the rest of us standing around the edge looking at our shoes and waiting to be *asked* to dance.( Well - Don't wait to be asked.. It didn't help in school and it's not helping now. )In this episode, Gus Bahndal, a marketing strategist and social media specialist, dives deep into the world of LinkedIn, sharing his insights and very actionable strategies to help you stand out and grow your business. Here are a few highlights from our conversation:

Friends, we had another hot topic in our group text that we knew we needed to bring on the pod to have with all of you! Today we're chatting about the February 25th episode of “Saturday Night Live” with a guest host who used his niece and her Down syndrome diagnosis as a punch line to his set. We're talking about our reactions and the larger conversation: who has the right to use Down syndrome and disability as a joke or punch line? Join us as we discuss the discomfort when jokes are made for an audience not connected to someone with Down syndrome and whether the laugh is at the expense of the person with the disability. Listen in as we unpack the complexities of comedy, connection, and the importance of shifting narratives. --- SHOW NOTES Comedian Shane Gillis opening the February 25, 2024 episode of “Saturday Night Live” One of the articles written about the backlash Learn more about Josh Blue More episodes to check out: 245. Can An Advocate Get It Wrong Sometimes? 234. Producing A Diverse, Authentic, & Honoring Netflix Series (w/Down For Love Producer Robyn Paterson) 217. The Things People Say 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 186. Our Response to the Ableist Comments on Netflix's "Love Is Blind" 169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  MICHA'S NEW BOOK Pre-order Micha's new book Blessed Are The Rest Of Us coming April 4, 2024! (All pre-order's purchased through Baker Book House receive a signed copy with a lucky few temporary tatoo!) THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Friends, today we're diving deep into the heart of our favorite topic: inclusion! We chat about the barriers preventing true inclusion and we're challenging societal norms and asking the important questions about what defines human worth. What kind of person gets to be celebrated? What kind of person with Down syndrome gets to be celebrated? We explore the buzzword status of “inclusion,” the role of privilege in accessing support and services, and so much more. As we navigate this journey, we recognize the honor and burden of advocating for a more inclusive world. Progress in inclusion is happening, but are we truly championing the essence of every individual? Is the current system promoting equal access and opportunities? We're asking all the questions, you don't want to miss this thought-provoking episode! --- SHOW NOTES Learn more about regional assembly member Mar Galcerán's! Other episodes to check out: 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon! 28. Owning Your Influence In ALL Your Spaces! 40. Back to School & All Things Education, Inclusion, & Down Syndrome 58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman 64. Building Bridges Towards Inclusion w/Barbara Butler 67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis 85. Is Inclusion Always The Best Option? 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing 101. Jalondra Davis on Race, Disability, & Advocacy 126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair) 128. What To Expect From Inclusive Settings 148. Diversity in the Down Syndrome Community 149. The Only Black Mama In The Room - ft. Ashley Dirks (mother/advocate) 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry) 197. Exposing The Roots (Racism, Ableism, Microagressions, + More) 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools 203. Beyond Checking A Box 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward 205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 218. Creating Inclusion For All Learners (w/Tim Villegas)  223. Included, Seen, & Heard: The Impact of Successful Inclusion JOIN US LIVE! After six incredible seasons, and nearly 250 episodes, we're excited to celebrate this one-in-a-million community! Over the last six years we've laughed, learned, and shared meaningful conversations, we're so grateful to every one of you! Whether you're a weekly listener or new to The Lucky Few fam, we hope to see you in San Diego or have you tuning in virtually! When: Friday, March 8th, 6:30 pm- 9:30pm Where: Haven by Communal, 3381 30th Street San Diego, CA 92104 What: Doors open at 6:30 pm for cocktail hour. Enjoy drinks, merchandise/books from self-advocates, connecting with local DS community partners, and more! The LIVE podcast recording begins at 7:30 pm! Note: This is an adult-focused event. We cannot wait to see you there!! Head to the luckyfewpodcast.com and click on the banner to get your tickets they're selling fast! DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support