Podcasts about National Down Syndrome Society

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Best podcasts about National Down Syndrome Society

Latest podcast episodes about National Down Syndrome Society

The Retirement Wisdom Podcast
Turning the Page in Retirement – Stephen Riggio

The Retirement Wisdom Podcast

Play Episode Listen Later Nov 25, 2024 25:00


Is 2025 your year? Join our Design Your New Life in Retirement Program – two new groups start in January. Early registration discount ends November 30th | Only a few spots left. Learn more ______________________ When you're retiring, you think of what you're leaving. Your work. Your paycheck. Your office. Your colleagues. But what's next? There are many benefits to taking on something new. Something that's challenging, and maybe even out of the box. Stephen Riggio shares his experience. Stephen Riggio joins us from New York. _______________________ Bio Stephen Riggio is a visionary leader and former CEO of Barnes & Noble, where he played a crucial role in its transformation into the largest bookselling chain in the United States. His extensive career in the book industry, spanning over four decades, includes pioneering work in e-commerce and publishing. Beyond corporate endeavors, Riggio is deeply engaged in philanthropy, working with organizations like the National Book Foundation and the National Down Syndrome Society. In recent years, Riggio has turned his focus to translating and promoting classic Sicilian literature, especially the "Sicilian Avengers" series. _______________________ For More on Stephen Riggio Sicilian Avengers: Book One Sicilian Avengers: Book Two _______________________ Podcast Episodes You May Like Retiring: Creating a Life That Works for You – Teresa Amabile Passion and Purpose – Jim Ansara The Art of the Interesting – Lorraine Besser, PhD Unretired – Mark S. Walton _______________________ Wise Quotes On Turning the Page and Taking On Something New "I think what you can let go of is, fortunately, you let go of the stress. And you get all of the adrenaline of something that is new. When I refer to stress, I don't mean the type of stress that is debilitating. People would often ask me when I was in business, it's an age-old question, Steve, what keeps you up at night? And I would say a good book because business was an all consuming thing, but there's a point where you do have to let it go to take care of your personal life and your family, your wife and kids. But I think it is true that once you do turn that page, you can let go of that stress. And it's a type of freedom that is very uplifting. And then if you happen to be fortunate enough to find something that you can latch onto and dig into, then that adrenaline is something that is different than you experienced in work." On Taking On Something New Together "A tragic event was the cause of me learning and getting back into the language. All happy families who are alike, all grieving families, breathe in their own way. What I was looking for was a way for my wife, Laura and I to move forward. It was a year or two after that that I came up with the idea of both of us studying the Italian language together. It would be something to do together, to jump into, and we did it." On Opening New Doors "It does open up a new door to your life. In some respects, when you have a career, you're pointing in a direction. Usually people like to climb the career ladder. They want more responsibility and greater financial rewards. In this particular case, it was a door that I opened that I didn't know where it would lead. So with the idea of something that is a little bit uncertain and unexpected there's a serendipitous aspect of it that I think is very appealing. When I started taking lessons with my wife, we did it together, we didn't know that we would discover my ancestry going back 400 years, that we would meet distant relatives, they'd become very close to us that I would discover things about my family I never knew, and then that I would translate a book. So it's a door that was open and I don't know where it would lead." _______________________ About Retirement Wisdom I help people who are retiring, but aren't quite done yet, discover what's next and build their custom version o...

The Lucky Few
284. Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream?

The Lucky Few

Play Episode Listen Later Nov 19, 2024 77:02


We've talked about impactful PSAs that the Down syndrome community has put out over the years. Today we're talking about the most recent PSA from our friends over at the National Down Syndrome Society, if you haven't seen it already follow the link in our show notes and go watch their powerful, important, and impactful message and listen to some behind-the-scenes interviews on this weeks episode! We're chatting with the president of NDSS Kandi Pickard, an amazing couple Jeremy and Audrey featured in the wedding scene, and Jamie Weitzman whose kiddos Hannah and Jedidiah were featured in the crowd at the wedding! We're talking about every little detail, why it matters, and what we can do to help create this world that we all dream of for people with Down syndrome and that people with Down syndrome and disabilities deserve. This is an episode you don't want to miss!  - - - - - - SHOW NOTES Watch the new NDSS PSA Town 21 NDSS 2018 PSA Bridging the Gap Watch the NDSS 40th Anniversary PSA  Check out Jeremy & Audrey's Non-Profit Down Syndrome Rocks Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Our episode with Matthew & Lucia: 244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano) Our episode with Craig & Heather:  231. Love, Marriage, & Eqaulity w/ Craig & Heather (w/Moms Lisa & Pat) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

The Lucky Few
283. Navigating Tube Feeding With Down Syndrome (w/Dr. Lauren Fiechtner)

The Lucky Few

Play Episode Listen Later Nov 12, 2024 36:40


Nutrition is key to a child's development, but for some children with Down syndrome, feeding challenges make it difficult to get the nutrition they need. That's where tube feeding comes in. Today, we're chatting with Dr. Lauren Fiechtner, Director of Nutrition at Mass General for Children, to talk about the different types of feeding tubes, why they are sometimes necessary, and the unique feeding challenges that children with Down syndrome may face. We're chatting about when tube feeding is typically used, the emotional and physical challenges parents may experience, and how feeding therapies and supportive resources can make a difference. We hope Dr. Fiechtner's compassionate advice helps families feel empowered and reassured as they navigate tube feeding and nutrition. - - - - - SHOW NOTES Learn more about Feeding Matters Learn more about The Oley Foundation JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Check out episode 174 on The Down Syndrome Learning Profile Check out episode 181 with NDSS team member Dana Sciullo and her brother Anthony! Check out episode 262 with NDSS President Kandi Pickard celebrating their 45 years of advocacy! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

From The Green Notebook
Stephen Riggio- The Tale of the Beati Paoli

From The Green Notebook

Play Episode Listen Later Nov 8, 2024 54:29


Send us a textThe FTGN Merch Store is Live!! Help Support the site with official FTGN Gear!In this episode, Joe sits down with Stephen Riggio, former CEO of Barnes & Noble, to uncover the personal journey that led him to translate Sicilian Avengers, an epic historical novel set in 18th-century Sicily. But this is more than a conversation about a book—it's a story of deep roots, personal loss, and a quest to rediscover purpose.Stephen opens up about reconnecting with his Sicilian heritage alongside his wife, Laura, after the tragic loss of their daughter. What began as a healing journey to learn Italian grew into a remarkable project: translating Sicilian Avengers, a story that hadn't been told to English-speaking readers.  Emerging from the dark streets and subterranean caves of Palermo, the Beati Paoli—a shadowy, masked society of vigilantes—mete out their own brand of justice, countering the unchecked power of the aristocracy. For the oppressed and voiceless, they are defenders and heroes.Through Stephen's translation, this forgotten tale of justice and intrigue, reminiscent of a Dumas novel, has been brought back to life. As he shares his experience, Stephen reveals the challenges, the rewards, and the sense of purpose this work gave him in a new chapter of life. He also reflects on his tenure at Barnes & Noble, where he and his late brother, Len, transformed a single Manhattan bookstore into the largest bookstore chain in the United States. For anyone curious about the enduring impact of stories, this episode is an invitation to listen in and perhaps be inspired to seek out the narratives that connect us across time, place, and family.Stephen Riggio is the former chief executive officer of Barnes & Noble (2002-2012). For over forty years he was a key leader transforming the single flagship New York location into a national retailer that expanded into e-commerce and book publishing. Riggio has served on the boards of the National Book Foundation, the National Down Syndrome Society, and is a founding member of the AHRC New York City Foundation Board. He and his wife live in New York.A special thanks to this week's sponsors!Veteran-founded Adyton. Step into the next generation of equipment management with Log-E by Adyton. Whether you are doing monthly inventories or preparing for deployment, Log-E is your pocket property book, giving real-time visibility into equipment status and mission readiness. Learn more about how Log-E can revolutionize your property tracking process here!Exray a veteran-owned apparel brand elevating the custom gear experience. Exray provides free design services and creates dedicated web stores for unitsMy favorite coffee is veteran-owned Alpha Coffee and I've been drinking it every morning since 2020! They make 100% premium arabica coffee. Alpha has donated over 22k bags of coffee to deployed units and they offer a 10% discount for military veterans, first responders, nurses, and teachers! Try their coffee today. Once you taste the Alpha difference, you won't want to drink anything else!  Learn more here

Your Child's Brain
Down syndrome and the impact of a longer life span

Your Child's Brain

Play Episode Listen Later Nov 7, 2024 29:53


We humans, typically, have 23 pairs of chromosomes. Sometimes, for a variety of reasons, we have an extra chromosome or we are missing one. Down syndrome, also known as Trisomy 21, is a genetic disorder that occurs when an individual has a full or partial extra copy of their 21st chromosome. Down syndrome is the most frequent of the chromosomal disorders in humans, occurring in approximately 1 in 700 births in the US. With improved care of often life-threatening clinical challenges, individuals with Down syndrome are living much longer. In this month's podcast of Your Child's Brain we are going to talk about Down Syndrome and especially focus on how the increased lifespan of those with Down syndrome is impacting treatment and research for people living with this diagnosis.   Resources · Down Syndrome Association of Maryland (dsamd.org) · National Down Syndrome Society (ndss.org) · National Down Syndrome Congress (ndsccenter.org) · Global Down Syndrome Foundation (https://www.globaldownsyndrome.org) · LuMind IDSC Foundation (https://lumindidsc.org) · NIH – research plan across the LifeSpan - Project INCLUDE for co-occurring medical conditions (www.nih.gov/include-project) · Eunice Kennedy Shriver National Institute of Child Health and Human Development (nih.gov) · National Task Group on Intellectual Disabilities and Dementia Practices - Intellectual Disabilities and Dementia Resources | The NTG (the-ntg.org)See omnystudio.com/listener for privacy information.

The Lucky Few
282. Adoption, Purpose, and the Founding of RODS Heroes (w/Brady Murray)

The Lucky Few

Play Episode Listen Later Nov 5, 2024 53:20


Happy first week of November AND National Adoption Month! Today we're thrilled to welcome Brady Murray, the passionate founder of RODS Heroes. Brady's nonprofit has helped hundreds of children with Down syndrome find loving homes around the world. As a father of eleven—including two children with Down syndrome—Brady shares his personal journey with adoption, from being adopted himself to adopting seven of his children from around the globe. Hear the inspiring story behind how a triathlon became the seed for RODS Heroes, the miracles he's witnessed along the way, and why he believes that when we invest in causes greater than ourselves, we experience incredible transformation. This is an episode you don't want to miss! - - - SHOW NOTES Learn more about RODS Heroes Follow RODS Heroes on Instagram and Facebook Follow Brad Murray on Instagram Follow Cooper Murray on Instagram NBC Nightly News story of Cooper Murray throwing out MLB first pitches JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

What's Essential hosted by Greg McKeown
348. Family History and the Search for Meaning with Stephen Riggio

What's Essential hosted by Greg McKeown

Play Episode Listen Later Nov 4, 2024 50:57


About the Guest: Stephen Riggio is a visionary leader and former CEO of Barnes & Noble, where he played a crucial role in its transformation into the largest bookselling chain in the United States. His extensive career in the book industry, spanning over four decades, includes pioneering work in e-commerce and publishing. Beyond corporate endeavors, Riggio is deeply engaged in philanthropy, working with organizations like the National Book Foundation and the National Down Syndrome Society. In recent years, Riggio has turned his focus to translating and promoting classic Sicilian literature, especially the "Sicilian Avengers" series. Episode Summary: Greg hosts Stephen Riggio, former Barnes & Noble CEO, as they explore the transformative power of literature and the significance of connecting with one's heritage. Riggio shares his journey in translating "Sicilian Avengers," a historical epic rooted in his Sicilian ancestry, and how this project intertwined with personal tragedy and discovery. The conversation covers themes of intergenerational legacy, resilience, and finding purpose through challenging times. Key Takeaways: Legacy of Literature: Books are powerful portals that connect us to different cultures and eras, enriching our understanding and empathy. Intergenerational Connection: Exploring family history can provide insights into personal identity and resilience, bridging the past and future. Personal Healing: Transforming personal tragedy into purpose by engaging in meaningful projects like translating significant literary works. Cultural Appreciation: The translation of "Sicilian Avengers" unveils the diverse and multicultural history of Sicily, challenging common stereotypes. Future Endeavors: Taking on translation as an epic adventure, paralleling personal journeys of self-discovery and cultural preservation. Notable Quotes: "Books are more than paper and ink. They are a portal through which we can experience places and times and people we otherwise wouldn't." – Greg McKeown "Raising a child with a disability is a challenge... our deepest wish is that this book didn't exist. However, our daughter's presence in it is undeniable." – Stephen Riggio "It gives me a great deal of satisfaction to know that I've arrived here... It was my destiny." – Stephen Riggio "The best historical fiction... is that people would prefer to be given a compelling narrative that is rooted in history." – Stephen Riggio Resources: Stephen's book: "Sicilian Avengers" Affiliate links are used where appropriate. We earn from qualifying purchases, thank you for supporting Greg! Join my weekly newsletter. Learn more about my books and courses. Join The Essentialism Academy. Follow me on LinkedIn, Instagram, X, Facebook, and YouTube.

The Lucky Few
281. Can A Person With Down Syndrome Shift Narratives? (w/ Hilary Gauld & Kate Herron)

The Lucky Few

Play Episode Listen Later Oct 29, 2024 55:41


This month we've celebrated Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we're joined by award-winning photographer Hilary Gauld and advocate Kate Herron for this episode all about answering the question: Can a person with Down syndrome Shift Narratives? In 2014, Hilary and Kate collaborated on a fundraising calendar featuring Kate's 10-month-old son, Caleb, for the Waterloo Wellington Down Syndrome Society (WWDSS). What began as a local project quickly grew into a decade-long advocacy journey, evolving into an internationally recognized series that challenges stereotypes and represents the Down syndrome community in meaningful, thought-provoking ways. Hilary's sharing how her friend Kate's invitation sparked her dedication to authentically representing the Down syndrome community, the impact her work has had on families seeing themselves and their loved ones reflected in media, and the powerful role of storytelling in breaking down barriers. We're also chatting about their documentary Decade, which celebrates the ten years of this incredible project, the impact the last ten years have had on their advocacy, what they hope for the future, and so much more! Friends, this is an episode you don't want to miss! - - - SHOW NOTES Follow One For The Wall on Instagram and Facebook Follow Waterloo Wellington Down Syndrome Society on Instagram Learn more about Decade documentary Check out the ‘Here I Am' series  People Magazine article about the series ‘Believe in Me' Check out all the incredible series from One For The Wall  JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Keen On Democracy
Episode 2236: Stephen Riggio on the greatest Italian novel you've never heard of

Keen On Democracy

Play Episode Listen Later Oct 29, 2024 38:19


There are few more passionate bibliophiles than those who have dedicated their lives to the publishing business. Take, for example, Stephen Riggio, the former CEO of Barnes & Noble who, as he confessed to me, has been hooked on books his whole life. Riggio's latest book project is as the translator of Silician Avengers, the greatest Italian novel that you've probably never heard of. Written in the 19th century by Luigi Natoli, who is often compared with Alexander Dumas and Charles Dickens because he published his prodigious fiction in popular newspaper installments, Sicilian Avengers is the saga of a legendary secret sect purported to be forerunners of the Mafia. Considered now by many literary critics to be one of the most notable works of fiction in the Italian language, Riggio's translated version of the first two books of Sicilian Avengers comes with an afterword from Umberto Eco. Stephen Riggio is the former chief executive officer of Barnes & Noble. For over forty years he was a key leader transforming the single flagship New York location into a national retailer that expanded into e-commerce, book publishing and video games. Riggio has served on the boards of the National Book Foundation, the National Down Syndrome Society, and is a founding member of the AHRC New York City Foundation Board. He and his wife live in New York City.Named as one of the "100 most connected men" by GQ magazine, Andrew Keen is amongst the world's best known broadcasters and commentators. In addition to presenting KEEN ON, he is the host of the long-running How To Fix Democracy show. He is also the author of four prescient books about digital technology: CULT OF THE AMATEUR, DIGITAL VERTIGO, THE INTERNET IS NOT THE ANSWER and HOW TO FIX THE FUTURE. Andrew lives in San Francisco, is married to Cassandra Knight, Google's VP of Litigation & Discovery, and has two grown children.Keen On is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit keenon.substack.com/subscribe

The Lucky Few
279. Can A Person With Down Syndrome Live Independently? (w/Emily Kendall & Chad Mayer)

The Lucky Few

Play Episode Listen Later Oct 15, 2024 61:01


 This month we're celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we're joined by Emily Kendall & Chad Mayer from EmpowerMe Living for this episode all about answering the question: Can a person with Down syndrome live independently? Today, we're talking about the incredible work of EmpowerMe Living, a program designed to support individuals with disabilities in choosing the best living arrangement for their unique needs. We're with EmpowerMe Living founder, Emily and Chad, who lives independently through the program, as they share their insights on independent versus supported living, overcoming challenges, and how EmpowerMe Living helps families navigate these important decisions. This is an episode you don't want to miss! - - - - SHOW NOTES Check out EmpowerMe Living's website to learn more about our: Incredible team  Microhome concept  First property in Cincinnati  Our Cincinnati Housing Market Analysis    First Place Global Leadership Institute –Check out their groundbreaking research on housing, including “A Place in the World” and their housing market analyses. Organizations can partner with First Place to conduct a housing market analysis in their community to collect and analyze data about housing needs and preferences directly from adults with I/DD and their families which can then be used to drive effective solutions.   Learn more about Beyond Down Syndrome – a wonderful resource for people with Down syndrome and their families focused on independence  Blog Emily wrote for this summer about trusting intuition advocating for her son with Down syndrome   Emily wanted us to share her son, Luke Kendall on the news! It has been awesome for Luke's confidence and skill building, foundations for independence!  Learn more about Timothy M Freeman Center, MD, Center for Developmental Disabilities provides adults with I/DD interdisciplinary, patient-centered healthcare. It is one of the few centers in the country pioneering this approach within an academic healthcare system.  Learn more about Enable Special Needs Planning to create a plan that enables your child with disabilities to live a great life JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the Adult Summit in Orange County and reserve your spot today! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

The Lucky Few
277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson)

The Lucky Few

Play Episode Listen Later Oct 1, 2024 27:00


Happy Down Syndrome Awareness Month!! We're celebrating this month with episodes based on popular Google search topics about people with Down syndrome. Today we're kicking off the celebration with Alex Bolden and Genevieve Thompson from the National Down Syndrome Society as we answer one of the most searched questions: Can a person with Down syndrome vote? Alex shares his experience voting for the first time, tips for deciding who to vote for, and resources like NDSS's free checklist and values inventory to help voters prepare. We also discuss how parents and caregivers can support their loved ones in the voting process and the importance of using your voice to shape policies that impact the Down syndrome community. This is an episode you don't want to miss as we head to the polls next month! --- SHOW NOTES Check Out NDSS Voting Resources: Downloadable checklist Downloadable Values and Beliefs Inventory More Resources To Check Out: Self-Advocates Becoming Empowered (SABE) GoVoter campaign  National Disability Rights Network (NDRN) voting resources Voter Registration Deadlines for all states JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Jack's Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

The Lucky Few
276. What Can't People With Down Syndrome Do?

The Lucky Few

Play Episode Listen Later Sep 24, 2024 65:53


EP 276. What Can't People With Down Syndrome Do? Spotify Notes: We're a week away from the start of Down Syndrome Awareness Month! Today we're kicking off our celebration early with a conversation about common misconceptions people still have about Down syndrome. We'll be celebrating next month by talking to self-advocates, organizations, and parents who are breaking down the stereotypes of some of the most Googled misconceptions about Down syndrome. We're sharing our thoughts on the CoorsDown PSA ‘Assume That I Can' featuring Madison Tevlin and how campaigns like this work to shift narratives. We're chatting about how knowing and loving a person with Down syndrome has shifted how we value and see worth, no matter what someone can or can't do. Join us as we get this important conversation started! - - - - SHOW NOTES CoorDown's PSA Assume That I Can PSA with Madison Tevlin Read Heather's blog post What if my child with Down syndrome can't? CoorDown's Just The Two of Us PSA  Other episodes like this: 163. What does success mean to you? 185. What if my child with Down syndrome can't? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Cherokee Tribune-Ledger Podcast
Holly Springs Approves 70 Homes on Arthur Drive

Cherokee Tribune-Ledger Podcast

Play Episode Listen Later Sep 10, 2024 12:17


CTL Script/ Top Stories of September 10th        Publish Date: September 10th   From the Ingles Studio Welcome to the Award-Winning Cherokee Tribune Ledger Podcast    Today is Tuesday, September 10th and Happy heavenly Birthday to outfielder Roger Maris. ***09.10.24 – BIRTHDAY – ROGER MARIS*** I'm Keith Ippolito and here are the stories Cherokee is talking about, presented by Credit Union of Georgia.  Holly Springs Approves 70 Homes on Arthur Drive Cherokee County to Have One Day of Sunday Early Voting Canton Seeking Funding for Proposed Etowah River Bridge Plus, Leah McGrath from Ingles Markets on plant-based items.   We'll have all this and more coming up on the Cherokee Tribune-Ledger Podcast, and if you're looking for Community news, we encourage you to listen and subscribe!    Commercial: CU of GA STORY 1:   Holly Springs Approves 70 Homes on Arthur Drive Holly Springs City Council approved a 70-home active adult community on Arthur Drive, despite local opposition. The development will convert 23.12 acres to a traditional neighborhood zone and will feature amenities like pickleball courts and a pool. Concerns from residents included the adequacy of the road entrance and potential traffic disruption. Some asked for reduced density and buffer zones, while others expressed worries about environmental impacts and construction access. The developer agreed to several concessions, including no access through Peardon Court and a 40-foot buffer around the property. The project is expected to generate significant traffic and will require additional county approvals. STORY 2:  Cherokee County to Have One Day of Sunday Early Voting Cherokee County voters will have an additional early voting opportunity on Sunday, October 20, from 1 to 5 p.m. at the Cherokee County Elections and Voter Registration Office. This extra day compensates for the missed voting day on October 14 due to the Columbus Day/Indigenous People's Day holiday. Early voting will also be available from October 15-19 and October 21-26, with extended hours from October 28 to November 1. Multiple locations will be open for early voting, including libraries and recreation centers. The voter registration deadline is October 7. For more details, visit cherokeegavotes.com. STORY 3:  Canton Seeking Funding For Proposed Etowah River Bridge Canton leaders are seeking funding for a $6.1 million River Mill Pedestrian Bridge project to connect The Mill on Etowah to the proposed River Mill Trail. The City Council is discussing a resolution to support a Georgia Outdoor Stewardship Program Grant application, which offers up to $3 million in matching funds. The bridge will span approximately 180 feet with access ramps and include a put-in/take-out area for non-motorized boating. Construction is expected to begin in mid to late 2025. The Council is also considering a $178,150 contract for designing the River Mill Trail, which will integrate with the bridge. A vote on the grant resolution and design contract is set for September 12.   We have opportunities for sponsors to get great engagement on these shows. Call 770.874.3200 for more info.    Back in a moment  Break: DRAKE STORY 4:  Cherokee County Launches 'Love Where You Live' Initiative Cherokee County has launched the "Love Where You Live" initiative to celebrate local residents and their stories. Starting Sept. 6, the initiative features biweekly stories on the county's YouTube, Facebook, and Instagram accounts, highlighting why people love living in Cherokee County. The project, suggested by Chairman Harry Johnston, also includes selling T-shirts designed by Amanda Brown, with proceeds benefiting local nonprofits. The first six featured stories include local figures like Jamie Foreman and Reyes Morales. New videos will premiere on the first and third Fridays of each month through November, with a webpage launching Oct. 1 for nominations. STORY 5: Creekview Student Honored by National Down Syndrome Society Cherokee County School District student Aniya Grace Symone Lott, a sophomore at Creekview High School, is being honored by the National Down Syndrome Society. Her photo, chosen from nearly 3,000 entries, will be featured in a video presentation at Times Square on Sept. 7. The photo shows Aniya celebrating her adoption day in Seaside, Fla. The presentation is part of the New York City Buddy Walk, which supports over 150 Buddy Walk events globally each year. For more details, visit www.ndss.org. Commercial:  INGLES 7 And now here is Leah McGrath from Ingles Markets on plant-based items.   ***LEAH MCGRATH INTERVIEW ON PLANT BASED ITEMS***   We'll have closing comments after this.   COMMERCIAL: Heller 3   SIGN OFF –   Thanks again for hanging out with us on today's Cherokee Tribune Ledger Podcast. If you enjoy these shows, we encourage you to check out our other offerings, like the Cherokee Tribune Ledger Podcast, the Marietta Daily Journal, or the Community Podcast for Rockdale Newton and Morgan Counties. Read more about all our stories and get other great content at www.tribuneledgernews.com Did you know over 50% of Americans listen to podcasts weekly? Giving you important news about our community and telling great stories are what we do. Make sure you join us for our next episode and be sure to share this podcast on social media with your friends and family. Add us to your Alexa Flash Briefing or your Google Home Briefing and be sure to like, follow, and subscribe wherever you get your podcasts. Produced by the BG Podcast Network   Show Sponsors: ingles-markets.com drakerealty.com cuofga.org jeffhellerlaw.com   #NewsPodcast #CurrentEvents #TopHeadlines #BreakingNews #PodcastDiscussion #PodcastNews #InDepthAnalysis #NewsAnalysis #PodcastTrending #WorldNews #LocalNews #GlobalNews #PodcastInsights #NewsBrief #PodcastUpdate #NewsRoundup #WeeklyNews #DailyNews #PodcastInterviews #HotTopics #PodcastOpinions #InvestigativeJournalism #BehindTheHeadlines #PodcastMedia #NewsStories #PodcastReports #JournalismMatters #PodcastPerspectives #NewsCommentary #PodcastListeners #NewsPodcastCommunity #NewsSource #PodcastCuration #WorldAffairs #PodcastUpdates #AudioNews #PodcastJournalism #EmergingStories #NewsFlash #PodcastConversationsSee omnystudio.com/listener for privacy information.

The Lucky Few
273. Breaking Down Barriers: The Parent's Role In IEP Success (w/Ashley Barlow)

The Lucky Few

Play Episode Listen Later Sep 3, 2024 64:38


We're excited to have Ashley Barlow back on the podcast today! We're discussing the power of parental involvement in IEPs and why it's so important for your child's educational success. Ashley breaks down her research and shares personal stories from her journey with her son Jack, who has Down syndrome. This episode is packed with practical advice on how you can take an active role in your child's education, navigate challenges, and become a stronger advocate. Whether you're facing challenges or just want to ensure your child's needs are met, this episode is full of advice you won't want to miss! --- SHOW NOTES Learn more about Ashley Barlow Co  Follow Ashley Barlow on Instagram Follow Ashley Barlow on Facebook Check out Ashley Barlow's Free and Affordable Resources Our previous episode with Ashley Barlow: 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow Learn more about the NDSS Advocacy Conference JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code BTS21 for 21% off (through August)! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Jack's Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

The Lucky Few
272. What Do We Wish We Knew Before Our First IEP Meeting?

The Lucky Few

Play Episode Listen Later Aug 27, 2024 63:56


Today, we're taking a trip down memory lane to revisit our very first IEP meetings! Let's be honest—those initial meetings can be a whirlwind of emotions: overwhelming, confusing, and sometimes even a bit intimidating. As we reflect on our experiences, we'll dive into the questions we wish we had asked, the support we didn't realize we needed, and the valuable lessons we've learned along the way. Whether you're preparing for your very first IEP meeting or you're a seasoned pro, we hope our stories bring you comfort, knowing you're not alone in this journey. And, of course, you might even share a few laughs with us as we look back on our IEP adventures! Friends, you're doing an amazing job, we got this!! --- SHOW NOTES More episodes like this: 39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie 78. Building Trust (Not Barriers) w/Your Child's IEP Team 94. IEPs during Covid-19, ft. IEP Lawyers Vickie Brett & Amanda Selogie 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow 270. IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig) Learn more about Ashley Barlow Downloadable Resources from Rise Educational Advocacy JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code BTS21 for 21% off (through August)! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

The Lucky Few
271. Can Our Kids Have Authentic Friendships In Inclusive Settings? (w/Kathleen Downes)

The Lucky Few

Play Episode Listen Later Aug 20, 2024 50:11


We've had many candid conversations about friendship and inclusion over the years. Today we're excited to be joined by social worker, blogger, disability activist, and self-advocate, Kathleen Downes. Growing up in inclusive schools during the 90s, Kathleen shares her firsthand experiences, the struggles she faced in forming authentic friendships, and how involvement in disability-specific programs was pivotal in her life. We talk about the challenges that still persist in today's inclusive settings and the changes needed to support our kids in developing meaningful friendships. This conversation is packed with wisdom, practical advice, and heartfelt reflections, making it an essential listen for anyone committed to true inclusion. --- SHOW NOTES Follow Kathleen Downes on Instagram Check out Kathleen's blog The Squeaky Wheelchair Other episodes like this: 5. Friendship with GiGi's Playhouse and Just Like Me Foundation 6. Friendship Pt. 2 with Guest, Melynn Henry 10. Inclusion - An Educator's Perspective with Kristin Enriquez Pt. 1 11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2 32. The (Beautiful) Reality of Befriending Someone with Down Syndrome 85. Is Inclusion Always The Best Option? 128. What To Expect From Inclusive Settings 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 218. Creating Inclusion For All Learners (w/Tim Villegas)  221. A Letter To The Parents Of Our Kid's Peers 242. Is Inclusion A Privilege? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

“What It’s Really Like to be an Entrepreneur”
#367: Autism Awareness Day with John's Crazy Socks Founders John and Mark Cronin

“What It’s Really Like to be an Entrepreneur”

Play Episode Listen Later May 23, 2024 21:31


It is time to celebrate Autism Awareness Day as we are recording. Get ready for inspiration from this amazing duo! Some areas of discussion with John and Mark include: -Time management techniques and the power of staying organized -Role and purpose-Being able to say no-Started at home and now grown to 34 employees: When each employee is asked what they do: “I Spread Happiness!”-How to find loyal employees -Don't micromanage! It shows distrust Welcome back to That Entrepreneur Show! If you enjoy the show, please subscribe for weekly episodes and rate the show 5 stars to help others join our conversations!Meet our Guests:John's Crazy Socks is a social enterprise inspired by John Lee Cronin, a young man with Down syndrome, and his love of colorful and fun socks—what he calls his “crazy socks.” John suggested to his father, Mark X. Cronin, that they start the business to spread happiness. They built the business on five pillars:Inspiration and Hope – Showing What People with Differing Abilities Can DoGiving BackFun Products You Can LoveMaking It PersonalMaking It a Great Place to WorkMore than half of their employees have a different ability, their Giving Back program has raised over $750,000 for charity partners like the Special Olympics, the National Down Syndrome Society, and the Autism Society of America. Most of all, they are Spreading Happiness™.Every Tuesday, John hosts an online dance party at 3 pm EST on Zoom! Have a question for the host or guest? Email Danica at PodcastsByLanci@gmail.com to get started.Stay connected with us on social media! You can find us at @ThatEntrepreneurShow on all platforms. For more information about our show and our guests, visit www.vincentalanci.com. We look forward to engaging with you!To learn more about podcasting coaching services, email Danica at PodcastsByLanci@gmail.com for more information. Music Credits:Adventure by MusicbyAden | https://soundcloud.comSupport the Show.If you enjoyed this week's show, click the subscribe button to stay current.Listen to A Mental Health Break Episodes hereTune into Writing with Authors here

Charlotte's Web Thoughts
Five Things You Should Know

Charlotte's Web Thoughts

Play Episode Listen Later Mar 25, 2024 6:49


[This blog will always be free to read, but it's also how I pay my bills. If you have suggestions or feedback on how I can earn your paid subscription, shoot me an email: cmclymer@gmail.com. And yes, I am available for speaking engagements. And if all this is too big a commitment, I'm always thankful for a simple cup of coffee.]Happy Monday, folks!It's that time again. I'm sorry for missing last week; I was under the weather. Here are five positive/interesting/fun things that'll hopefully make you smile, make you laugh, and make you think. And in case you missed it, check out the previous iteration.1. The Mega Viral Ad for Down Syndrome AwarenessThis past Thursday (3/21) was World Down Syndrome Day, first celebrated in 2007 and observed by the United Nations since 2012. In advance of it, the folks at the National Down Syndrome Society released an absolutely fantastic ad about those proudly living with it. Starring actress and model Madison Tevlin, it humorously points out how ridiculous it is to have low standards for folks with Down Syndrome. The ad has been making enormous waves online, garnering praise and widespread discussion. And if this doesn't make you smile, I don't know what will.2. Historic World Championship Free Skate By Teenager Ilia MalininIf you don't yet know Ilia Malinin, you will soon. The 19 year-old American figure skating superstar captured the world title this past weekend with what's being called by many the greatest free skate performance of all-time. His name was already in the history books: two years ago, he became the first person to land a Quadruple Axel, almost 45 years after the first Triple Axel was landed in competition. All that is wildly impressive, sure, but what undeniably sets apart the performance aspect of his routine on Saturday was setting it to the theme of “Succession” — unexpected and totally right. I reached out to my pal Kaitlyn Weaver, three-time Canadian national champion and three-time world medalist, for her expert take: “Ilia is performing elements that have never been done before! He's giving the sport the BADASS reputation it deserves.” (By the way, you should absolutely follow her on Instagram; she's fantastic.)3. “Stranger Planet” by Nathan W. PyleHow do I even explain this comic? Imagine a completely wholesome world in which alien beings use overly complex language (yet adorably specific) to describe the minutiae of the day-to-day life of human beings. Part of the fun is deciphering what's being referenced in our real world (“Existence??” = LIFE cereal, for example). It's always witty, interesting, warm, and hilarious. Pyle's artistic and comedic approach is strikingly optimistic against a moment in our cultural landscape that leans heavily on cynicism and ironic detachment.4. University of Idaho Pep Band Fills in for Yale UniversityCollege basketball phenom Caitlin Clark is probably the biggest story in sports at the moment, so it's understandable that other narratives coming out of March Madness may get overlooked (“March Madness” is the nickname for the NCAA Division I basketball national championship tournament, for you non-sportsball folks). That's why I wanna draw some attention to this heartwarming nugget. Yale University's men's team—the Ivy League Champs—played their first round in Spokane this past week, but the university's pep band couldn't make the trip due to a travel conflict. So, naturally, the University of Idaho's pep band stepped up and said: “You know what? We got y'all covered.” With only one practice beforehand (to learn Yale's music, cues, etc.), the band dressed up in Yale garb and came out swinging. This is the same game in which Yale (#13 seed) delivered a huge upset against Auburn (#4 seed). How damn cool is that?5. I'm Speaking at the Texas Democratic Convention in JuneAs many of you know, I'm from Texas, and the folks down there on the ground are fighting tooth-and-nail for a better future for all people. From Rep. Colin Allred to Rep. Jasmine Crockett to Lauren Ashley Simmons, there are Democrats up and down the ballot who deserve our support because of how powerfully and relentlessly they're advocating for our collective future. So, when the Texas Democratic Party reached out and asked if I'd like to speak at their convention in El Paso this year, it was a very easy decision, to say the least. On a more personal note, this was something of a childhood dream for me, the kind of thing that, while growing up, I imagined would be pretty cool to do someday but never thought I'd actually do it. And yet, here I am. I wanna thank all of you for supporting my writing and advocacy. You made this possible. For those of you living in Texas, come to the convention!Charlotte's Web Thoughts is a reader-supported publication. To receive new posts and support my work, consider becoming a free or paid subscriber. Get full access to Charlotte's Web Thoughts at charlotteclymer.substack.com/subscribe

Rise and Run
128: Mickey and Muscles: A Conversation with The Tutu Guys

Rise and Run

Play Episode Listen Later Mar 7, 2024 111:08 Transcription Available


Every step tells a story, and in our lively chatter with The Tutu Guys,  Adam and Thomas, each stride is wrapped in whimsy and a burst of charity-driven energy. We unfold tales of tutus trotted out for good causes, gym intimidation that turned into triumphs, and the unforgettable embrace of the runDisney community. Our guests dazzle us with their race day sagas, from sporting playful outfits to their heartfelt encounters with fellow participants, painting a vibrant picture of the joy and unity found in these magical events.As we swap stories of fitness journeys and the evolution of our racing attire, the laughter is as palpable as the sweat on a marathon runner's brow. We take a nostalgic jog through the delightful themes of past RunDisney events, celebrating the infectious spirit and camaraderie that make these races far more than just finish line feats. The transformative power of the runDisney experience shines through, contrasting the solitary pursuit of weightlifting with the communal cheers that propel us towards our personal bests.Rounding out our run, we highlight the admirable strides of our running community in supporting charitable causes, demonstrating the profound impact of lacing up for something greater than a personal record. Our guests share their passion for organizations like Girls on the Run and the National Down Syndrome Society, truly embodying the heart-pumping philanthropy that makes each race an avenue for change. Join us as we cross the finish line of this episode, heartened by the stories of perseverance, celebration, and the runners who inspire us to go the distance for a cause.The Tutu Guys Instagram LinksThe Tutu Guys The Trooper DudeThe Muscle MouseRun ArnoRun LinksRun Arno Run WebsiteRun Arno Run on YouTubeRun Arno Run Instagram Rise and Run LinksRise and Run Podcast Facebook PageRise and Run Podcast InstagramRise and Run Podcast Website and ShopRise and Run PatreonPassport to RunRunningwithalysha Alysha's Run Coaching (Mention Rise And Run and get $10 off) Support the showRise and Run Podcast is supported by our audience. When you make a purchase through one of our affiliate links, we may earn a commission. As an Amazon Associate we earn from qualifying purchases.Sponsor LinksMagic Bound Travel Affiliate LinksRise and Run Amazon Affiliate Web Page Fluffy FizziesZenGroveKawaiian Pizza ApparelGoGuarded

321 GO!
The Tutu Guys: Friendship, Fitness, and Fun

321 GO!

Play Episode Listen Later Feb 22, 2024 74:30 Transcription Available


Embark on an enchanting run with us as we chat with the Tutu Guys, Thom and Adam, whose love for runDisney events and penchant for whimsical race attire have made them legends among the running community. This episode isn't just about the miles logged or the costumes donned; it's a heartfelt reflection on the transformative power of friendship, fitness, and, of course, a little Disney magic. From the history of the Princess Half Marathon weekend to the personal transformations fueled by sports nutrition and a commitment to better health, our conversation with these inspiring runners will leave you lacing up your sneakers with a new sense of purpose. They'll share how their 'Tutu Guys' brand came to be, born out of a chance encounter outside the Brown Derby, and how they've since evolved into ambassadors of joy, encouraging everyone from seasoned marathoners to first-timers to join in the fun.Finally, we reach the heart of why we run—community, charity, and personal challenges that inspire us to push beyond our limits. Hear about the profound impact of supporting causes like Girls on the Run and the National Down Syndrome Society, and how the simple act of donning a tutu can lift spirits and motivate fellow runners. We close with touching anecdotes of runners overcoming incredible odds and invite you to join the conversation, whether by sharing your own story or by embracing your inner "Tutu Guy" in your next race. And as a special treat, we delve into the delicious world of mushrooms, sharing recipes and nutrition facts that might just inspire your next post-race meal.Support the showLet Registered Dietitian Carissa Galloway lead you through a science-backed plan to transform the way you think about your diet.Visit www.GallowayCourse.com and use the code PODCAST at checkout for a great discount!Become a 321 Go! supporter. Help us continue to create! HEREFollow us!@321GoPodcast@carissa_gway@pelkman19Email us 321GoPodcast@gmail.comOrder Carissa's New Book - Run Walk EatImprove sleep, boost recovery and perform at your best with PILLAR's range of magnesium recovery supplements. Use code 321GO at www.theFeed.com to get 15% off your first purchase, for North American listeners, and if you are outside the states you can find it at www.pillarperformance.shop Let Sara Akers with RunsOnMagic plan your next runDisney weekend! IG @runsonmagic or you can go to www.RUNSONMAGIC.com or email her runsonmagictravel@gmail.com Use Promo Code 321GO when you request your vacation quote for a chance to win a $200 Disney Gift Card or booking credit!...

DSC: Project Inclusion
Episode 1: Welcome to DSC: Project Inclusion!

DSC: Project Inclusion

Play Episode Listen Later Dec 14, 2023 16:49


Welcome to DSC Project Inclusion! We are a podcast hosted by self advocates at the Down Syndrome Center of Puget Sound and the National Down Syndrome Society! We will be discussing important topics in the Down syndrome community and uploading every other month! Important Links: https://www.dscpugetsound.org/advocacy-board https://ndss.org/ If you have any questions about our podcast or services at DSC please feel free to email natalie@dscpugetsound.org! Thank you for listening (:

Not Black Not White American Podcast

Darius discusses the past week and the amazing things he experienced.

Exploring Different Brains
The Spectrum of Neurodiversity | EDB 300

Exploring Different Brains

Play Episode Listen Later Sep 4, 2023 19:19


In this special 300th episode, we revisit words of wisdom from self-advocates with varied traits and diagnoses that span the “spectrum of neurodiversity”. Featured are: TARA LERMAN - Tourette's self-advocate, ournalist (full interview: https://differentbrains.org/demystifying-tourette-syndrome-with-tara-lerman-edb-263/ ) To find out more about Tara's work, visit: https://www.taralerman.com/   MICHAEL TOLLEFSRUD - Misophonia self-advocate, Different Brains intern (full interview: https://differentbrains.org/life-with-misophonia-with-michael-tollefsrud-edb-226/ )   PRESTON FITZGERALD - Tuberous Sclerosis self-advocate, Different Brains intern (full interview: https://differentbrains.org/living-with-tuberous-sclerosis-with-preston-fitzgerald-edb-239/ )   SARAH GOLDMAN - Cerebral Palsy self-advocate and disability rights advocate (full interview: https://differentbrains.org/advocating-for-accessibility-accommodations-with-sarah-goldman-edb-225/ ) To find out more about Sarah's work, visit: https://www.linkedin.com/in/sarahegoldman/ JULIA FUTO - Developmental Coordination Disorder self-advocate, Different Brains intern (full interview: https://differentbrains.org/dcd-me-living-with-developmental-coordination-disorder-featuring-julia-futo-edb-237/ )   KAYLA MCKEON - Down syndrome self-advocate, Manager of Grassroots Advocacy for the National Down Syndrome Society (full interview: https://differentbrains.org/the-groundbreaking-lobbyist-with-down-syndrome-featuring-kayla-mckeon-edb-159/ ) To find out more about Kayla's work, visit: http://kaylamckeon.com/   RYAN LUNDY - Nonverbal Learning Disorder self-advocate, special ambassador for the NVLD Project (full interview: https://differentbrains.org/understanding-nvld-with-ryan-lundy-edb-272/ ) To find out more about the NVLD Project, visit: https://nvldproject.org/   MICHAEL ELLENBOGEN - Dementia self-advocate and author (full interview: https://differentbrains.org/living-with-dementia-with-michael-ellenbogen-edb-286/ )   SHAWN SMITH - ADHD and autism self-advocate, entrepreneur, innovator, counsellor, psychotherapist, and CEO of Don't dis-my-ability consultation services (full interview: https://differentbrains.org/thriving-with-adhd-with-shawn-smith-me-d-ccc-edb-244/ ) To find out more about Shawn's work, visit: http://www.ddmacs.ca/   PIERRE MARSH - Dyslexia self-advocate, Senior Mediator specialist in Employment and Discrimination (full interview: https://differentbrains.org/where-neurodiversity-meets-racial-diversity-with-pierre-marsh-edb-130/ ) To find out more about Pierre's work, visit: https://www.linkedin.com/in/pierre-marsh-10118b19/   JACKI EDRY - Complex brain surgery survivor/self-advocate, author (full interview:https://differentbrains.org/neurodiversity-in-israel-with-jacki-edry-edb-256/ ) To find out more about Jackie's work, visit: https://www.jackisbooks.com/   BEA MOISE - ADHD self-advocate, autism mom, cognitive specialist, and parenting coach (full interview: https://differentbrains.org/navigating-a-neurodiverse-household-with-bea-moise-ms-bccs-edb-282/ ) To find out more about Bea's work, visit: https://beatricemoise.com/   JUDE MORROW - Autism self-advocate, author, and speaker (full interview: https://differentbrains.org/loving-your-place-on-the-spectrum-with-jude-morrow-edb-258/ ) To find out more about Jude's work, visit: https://judemorrow.com/   JR REED - Autism self-advocate, speaker, ASD Consultant, Certified Cognitive Behavioral Therapist, and writer (full interview: https://differentbrains.org/not-weird-just-autistic-with-j-r-reed-edb-242/ ) To find out more about JR's work, visit: http://notweirdjustautistic.com/ Follow Different Brains on social media: https://twitter.com/diffbrains https://www.facebook.com/different.brains/ https://www.instagram.com/diffbrains/ Check out more episodes of Exploring Different Brains! http://differentbrains.org/category/edb/

If We Knew Then - Down Syndrome Podcast
151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams

If We Knew Then - Down Syndrome Podcast

Play Episode Listen Later Aug 7, 2023 54:44


This week we are joined by Abby Brandon-Livits and Misty Adams from the National Down Syndrome Society to talk about the 2023 NYC Buddy Walk and it's wonderful Times Square Video presentation that redefines the image of the Down syndrome community. NYC Buddy Walk website: https://give.ndss.org/event/2023-new-york-city-buddy-walk-r/e478474 National Down Syndrome Society: www.NDSS.org FaceBook: https://www.facebook.com/NDSS1979 Instagram: https://www.instagram.com/ndssorg/ Episode Transcript: https://ifweknewthen701833686.wordpress.com/2023/08/06/151-nyc-buddy-walk/2/ Please follow us on Twitter @ifweknewthenPOD you can drop us a line on our Facebook page @ifweknewthenPOD or visit our website https://www.IfWeKnewThen.com to send us an email with questions and comments. You can join our mailing list there and get alerts of future podcast episodes. Thank you again and we look forward to you joining us on the next episode of IF WE KNEW THEN.

YOUR NERD SIDE
#3 Fonseca talks Samantha Newark the voice of Jem and the Holograms, Indiana Jones , Barbie

YOUR NERD SIDE "THE SHOW"

Play Episode Listen Later May 7, 2023 31:29


Fonseca sits down with Samantha Newark is an English-born American musician, singer and actress. She is best known for her voice-over work as the speaking voice of Jem and Jerrica in the animated cartoon series Jem. As a teenager, Newark became a voice-over talent in mainstream television. Her work on "Jem" produced a serious cult following that persists to this day. She lent her voice to many radio and TV projects while writing and performing her original music as a solo recording artist in Los Angeles CA, Nashville TN and Dallas, Texas. In 2015 Newark appeared in the live action feature film adaptation on Jem and the Holograms directed by Jon Chu.new live-action Barbie movie. Ryan Gosling is also playing Ken while Margot Robbie plays Barbie. John's role had been kept a secret until it was revealed at Cinemacon. The website says John is playing a male mermaid named Merman Ken Mattel Creates Down Syndrome Barbie Doll: Raw Story says Mattel introduced a new Down Syndrome Barbie doll yesterday. The company worked with the National Down Syndrome Society to create the doll.Mattell says; "Barbie plays an important role in a child's early experiences, and we are dedicated to doing our part to counter social stigma through play. Our goal is to enable all children to see themselves in Barbie, while also encouraging children to play with dolls who do not look like themselves.''The National Down Syndrome Society says, "This Barbie serves as a reminder that we should never underestimate the power of representation. It is a huge step forward for inclusion and a moment that we are celebrating.” Retail Dive saysMattel and The Gap are teaming for a Barbie clothing collection. The new line will be available on the Gap's website starting on May 23rd. A clothing collection based on Mattel's Hot Wheel toys is also in development. The Barbie collection will feature t-shirts, skirts, hoodies, jeans, accessories and pet apparel. The two companies are teaming up to promote the release of the new live action Barbie movie -World of Reel says a sequel to ''Beetlejuice'' is in development in the UK. Tim Burton plans to direct the film. Michael Keaton and Winona Ryder are returning to reprise their roles from the original movie. InInterview with Samantha Newark voice Jem and Jerrica June 30th “Indiana Jones and the Dial of Destiny” director James Mangold tells Total Film magazine that he used technology to de-age Harrison Ford for a 25-minute scene in the film. He says Harrison pulled it off because he was able to pretend that he was 35 instead of 79. ''Ford is incredibly gifted and agile which made it easy to pretend that he was 35 when filming the scenes. We had hundreds of hours of footage of him in close-ups, in mediums, in wides, in every kind of lighting, night and day. I could shoot Harrison on a Monday as, you know, a 79-year-old playing a 35-year-old, and I could see dailies by Wednesday with his head already replaced.”Harrison Ford tells Total Film magazine that he is not going to appear in the new Indiana Jones TV series. He says “Indiana Jones and the Dial of Destiny” will be the last time he plays Indy. “This is the final film in the series, and this is the last time I'll play the character. I anticipate that it will be the last time that he appears in a film.” Chris Evans doesn't think he is going to return to the Marvel Cinematic Universe to play Captain America again. The International News quotes him as saying, "It's tough, because look, I love that role deeply. He means so much to me, and I really do. I think there's more Steve Rogers stories to tell, sure. But at the same time, I'm very, very precious with it. It's like this little shiny thing that I have that I love so much, and I just don't want to mess up in any way, and I was a part of something that was so special for the special period of time and in a way, it really landed so well. As much as I'm connected to that role and love telling those stories and working with those people. It doesn't quite feel right right now."

EWTN NEWS NIGHTLY
2023-05-04 - EWTN News Nightly | Thursday, May 4, 2023

EWTN NEWS NIGHTLY

Play Episode Listen Later May 4, 2023 30:00


On "EWTN News Nightly" tonight: New details have surfaced about the House Oversight Committee's investigation into the Biden family business and possible links to China. The GOP led committee, headed by Kentucky Congressman James Comer, has now released some of the financial evidence they have uncovered from the US Treasury Department. And with June 1st, 2023 moving in fast, President Joe Biden and top congressional leaders will meet in the coming days to try to forge an agreement on how to spend the nation's money moving forward. Meanwhile, Planned Parenthood received more taxpayer money last year than any time in its history. President of Pro-Life Human Coalition, Jeff Bradford, joins to take us through this annual report from Planned Parenthood and what stood out the most. It is less than 3 months until World Youth Day, and Pope Francis says he hopes participants use the event as a chance to become more hopeful. EWTN News Vatican Correspondent, Colm Flynn, joins to tell us what he has been hearing from the people of Lisbon all week. Finally this evening, toy company Mattel recently revealed its first Barbie doll representing a person with down syndrome. The toy company worked with the National Down Syndrome Society. Lejeune Fellow at the Word on Fire Institute, Mark Bradford, joins to share what his reaction was when he first heard that Mattel planned to make the Barbie doll. Don't miss out on the latest news and analysis from a Catholic perspective. Get EWTN News Nightly delivered to your email: https://ewtn.com/enn

TYC
4/26 - Embracing AI | 5 AI People To Follow | Barbie Gets Inclusive | Popcorn Explodes In The UK

TYC

Play Episode Listen Later Apr 26, 2023 14:38


In this episode of the Ad Nerds Podcast, Spanky Moskowitz shares stories about the latest news in the advertising industry. Listeners learn about how artificial intelligence (AI) can be used as a tool to enhance creativity and how AI educators and influencers can provide valuable insights into the field. The podcast also explores how companies like Barbie are becoming more inclusive and how some agencies like BBDO Worldwide are cautious about using generative AI tools. Additionally, the episode features a creative campaign by Indiana-based agency Young & Laramore that celebrates the satisfying appeal of watching microwave popcorn pop. Key moments: Story 1: Discussion of the benefits of working with AI instead of fearing it, and the importance of embracing human skills in creativity (1:03) Story 2: Introduction to AI educators and influencers to follow, including Sinead Bo Vell, Pete Huang HYUNG, Justin Fineberg, Karen X Cheng, and Lex Fridman (3:02) Ad for Ad Zombies' jingle creation service (5:11) Story 3: Overview of Barbie's partnership with the National Down Syndrome Society to create a doll representing a person with Down syndrome (5:44) Story 4: Discussion of BBDO Worldwide's internal memo advising employees not to use generative AI tools for client work (8:38) Ad for Ad Zombies' creative advertising services (11:42) Story 5: Overview of the creative campaign by Young & Laramore that celebrates the satisfying appeal of watching popcorn pop (12:32) Embracing AI Without Fear of Being Replaced: 5 Creative Mindset Shifts - https://adage.com/article/opinion/embracing-ai-without-fear-being-replaced-5-creative-mindset-shifts/2490536 5 AI-Focused Influencers for Brands to Follow - https://adage.com/article/digital-marketing-ad-tech-news/5-ai-focused-influencers-brands-follow/2490441 Barbie's Marketing Leader Lifts the Curtain on Its First Down Syndrome Doll - https://www.adweek.com/brand-marketing/barbies-marketing-leader-lifts-the-curtain-on-its-first-down-syndrome-doll/ BBDO Warns Against Generative AI for Client Work - https://adage.com/article/agency-news/bbdo-warns-against-generative-ai-client-work/2490551 These Supersized Outdoor Ads Totally Get the Weird Appeal of Watching Microwave Popcorn Cook - https://adage.com/creativity/work/these-supersized-outdoor-ads-totally-get-weird-appeal-watching-microwave-popcorn-cook/2490511 --- Send in a voice message: https://podcasters.spotify.com/pod/show/adnerds/message

Water Prairie Chronicles Podcast
Episode #58: From Hunger Games to Children's Books: The Unstoppable Sofia Sanchez!

Water Prairie Chronicles Podcast

Play Episode Listen Later Apr 26, 2023 32:50


Show Notes: In this inspiring and heartwarming episode of the Water Prairie Chronicles podcast, Tonya interviews Jennifer Varanini Sanchez and her daughter, Sofia Sanchez. Sofia, who has Down Syndrome, is a child model, actress, and voiceover actor. Sofia and Jennifer share about their experience filming the Hunger Games movie, The Ballad of Songbirds and Snakes, and some of Sofia's favorite memories of being on set. The conversation also touches on their experiences traveling to multiple countries and immersing themselves in the local cultures. Sofia's achievements in modeling and acting have inspired and given hope to many parents of children with disabilities who believe that their children can achieve their dreams. Jennifer and Sofia talk about how they began working with children's book author Margaret O'Hare to write four children's books that promote inclusion, acceptance, and love in families, regardless of what they look like. Jennifer and Sofia's story is one of resilience, passion, and hard work. Their experiences in modeling, acting, traveling, and writing have shown that anything is possible with determination and support. The episode is a must-listen for anyone looking for inspiration and motivation to pursue their dreams, no matter their circumstances. Connect with Jennifer and Sofia: Instagram: Jennifer: @thesanchezsix Sofia: @the.sofia.sanchez Sofia's website: www.Sofia-Sanchez.com The Iceland Project Information: justlikeyoumovement.org Donate to the Iceland project: https://bit.ly/SofiaIceland Purchase Sofia's Books: (* As an Amazon Associate I may earn a commission on sales made by using these links.) You Are Loved You Are Enough Ride the Wave Love Sofia and Haole the Surf Dog BeYOUtiful Love Sofia Resources for Down Syndrome Families: Global Down Syndrome Foundation - https://www.globaldownsyndrome.org/ National Down Syndrome Society - http://www.ndss.org/ National Down Syndrome Congress - https://www.ndsccenter.org/ Gigi's Playhouse - https://gigisplayhouse.org/ Down Syndrome Diagnosis Network - https://www.dsdiagnosisnetwork.org/ Connect with Us: https://linktr.ee/waterprairie Support this channel: https://www.buymeacoffee.com/waterprairie MOTHERS DAY BOOK BUNDLE GIVEAWAY! Grab your chance to win 2 signed books about Sofia Sanchez, a teen actress, model, and advocate for Down syndrome! Go to https://waterprairie.com/giveaway for details! Get a BONUS entry by answering some questions about this podcast episode: https://forms.gle/Lwo6B8cH1Drw8dyR8 Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

The Lucky Few
204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, and Charlotte Woodward

The Lucky Few

Play Episode Listen Later Apr 25, 2023 49:53


Today we're catching up with three self-advocates from previous episodes! Advocating for the Down syndrome community from the steps of Capitol Hill we catch up with self-advocates Kayla McKeon, Matthew Schwab, and Charlotte Woodward! We were so excited to chat with them during the National Down Syndrome Society's Down Syndrome Advocacy Conference in Washington DC! From advocating equal rights in employment, healthcare, and education for people with Down syndrome these self-advocates are putting faces and names lobbying for these legislative priorities! They share the bills they're passionate about and we catch up on the fun and interesting things they've been up to. From bocce ball, to ballroom dancing, to graduating college these incredible self-advocates have been busy since we last talked to them! Friends, you're going to love this episode! --- SHOWNOTES: Learn more about the Legislative Priorities that NDSS  Book Matthew Schwab for your next speaking engagement! Kayla McKeon Episodes: 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!  92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing  Matthew Schwab Episodes: 66. Public Speaking & Self Advocacy w/Matthew Schwab 183. Following the Lead of Self-Advocates (ft. Matthew Schwab)   Charlotte Woodward Episodes: 160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)  Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off! LET'S CHAT: Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

Water Prairie Chronicles Podcast
Episode #57: Beyond the Diagnosis: The Realities and Myths of Down Syndrome

Water Prairie Chronicles Podcast

Play Episode Listen Later Apr 18, 2023 22:03


Show Notes: What if you were told that Down syndrome is not something to fear, but rather something to celebrate? In this inspiring episode of the Water Prairie Chronicles podcast, host Tonya Wollum welcomes Jennifer Varanini Sanchez and her daughter Sofia Sanchez, who reminds the world that Down syndrome is not scary. Jennifer and her husband have three sons, the youngest of whom also has Down syndrome. The family adopted Sofia when she was under two years old from an orphanage in Ukraine. Jennifer has since become a Down syndrome and adoption advocate. In this episode, Jennifer shares their experiences with early intervention services, individualized education programs, and inclusive education. Jennifer also provides recommendations for new parents of children with Down syndrome and shares valuable resources for families. Tune in to learn how Sofia is breaking down stereotypes and thriving as an eighth grader who attends school, plays sports, and is involved in a community theater production. Get ready to be inspired and uplifted by this heartwarming interview! Connect with Jennifer and Sofia: Instagram: Jennifer: @thesanchezsix Sofia: @the.sofia.sanchez Sofia's website: www.Sofia-Sanchez.com Purchase Sofia's Books: (* As an Amazon Associate I may earn a commission on sales made by using these links.) You Are Loved You Are Enough Resources Mentioned: Global Down Syndrome Foundation - https://www.globaldownsyndrome.org/ National Down Syndrome Society - http://www.ndss.org/ National Down Syndrome Congress - https://www.ndsccenter.org/ Gigi's Playhouse - https://gigisplayhouse.org/ Down Syndrome Diagnosis Network - https://www.dsdiagnosisnetwork.org/ Connect with Us: https://linktr.ee/waterprairie Support this channel: https://www.buymeacoffee.com/waterprairie MOTHERS DAY BOOK BUNDLE GIVEAWAY! Grab your chance to win 2 signed books about Sofia Sanchez, a teen actress, model, and advocate for Down syndrome! Go to https://waterprairie.com/giveaway for details! Music Used: “LazyDay” by Audionautix is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/ Artist: http://audionautix.com/

The Lucky Few
THROWBACK: Politics & Down Syndrome w/Kayla McKeon and Ashley Helsing

The Lucky Few

Play Episode Listen Later Apr 11, 2023 45:08


Friends, next week many of us are headed to DC for the NDSS Down Syndrome Advocacy Conference! Take a (re) listen to this fantastic episode! The last time we chatted with Kayla McKeon back in November 2018, she was lobbying for the ABLE to Work act that allows individuals with disabilities to save money without losing their benefits. Today, the act has passed, but Kayla (the first registered lobbyist with Down Syndrome) has certainly not stopped working hard! Her and Ashley Helsing are part of the National Down Syndrome Society's policy team that lobbies on Capitol Hill and advocates for Down Syndrome in DC! They're telling us all about what matters most for people with disabilities in the current political world: Covid-19 relief packages, marriage equality, meaningful employment, virtual school, and so much more. --- SHOW NOTES Follow Kayla McKeon on Instagram Listen to our first episode with Kayla: Self-Advocacy in DC w/Kayla McKeon Keep up with The National Down Syndrome Society Instagram Tik Tok #DSvotes movement Public policy and DS SHOP: Friends, grab your narrative shifting gear over on theluckyfew.co and use code PODCAST for 10% off! LET'S CHAT: Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

The Wellness Paradox
Improving Inclusivity for Exercisers with Disabilities w/Monica Forquer

The Wellness Paradox

Play Episode Listen Later Feb 22, 2023 41:41


Becoming a more inclusive and accessible industry is at the very heart of solving the Wellness Paradox. Indeed, it will be through serving ALL individuals, regardless of their abilities, that we can truly meet the needs of both healthcare and a variety of different fitness consumers. As our guest in episode 90, Monica Forquer, points out; one group that is significantly underserved are individuals with both physical and intellectual disabilities. Monica is a subject matter expert in this area, but particularly as it relates to the fitness industry. She has worn many hats throughout her career, but has found a great deal of fulfillment, and need, working in the inclusive exercise space focusing on individuals with disabilities. She has experience working with Special Olympics, as well as creating resources for industry professionals and facility owner/operators to create more inclusive environments to engage in physical activity and exercise. Monica provides a great understanding of the foundational concepts of diversity, equity, and inclusion in this conversation. More importantly, she explains in actionable detail steps fitness industry professionals and business owners can take to improve inclusivity in their environments. If we are truly going to become part of the healthcare delivery system, we must find ways to be inclusive to individuals of all ability levels. Monica provides a great path to do so in this engaging discussion.Show Notes Page: https://www.wellnessparadoxpod.com/podcast/episode/90  Our Guest: Monica Forquer, MSMonica Forquer is a fitness leader and physical activity advocate for 17 years with experience at the individual, community, national and international levels. Monica has dedicated her professional career to empowering underserved populations to take control over their health.  She spent the last eight years supporting people with intellectual disabilities by improving health literacy and increasing access to community physical activity opportunities.  Monica is the Founder of Active Health, LLC a consulting firm that supports strategic development, resource creation, program implementation, and evaluation of health promotion programs.  Through her work she has developed wellness programming for the National Down Syndrome Society and provided strategic guidance and evaluation support to the Special Olympics fitness team.Prior to her consulting position, Monica served as the Senior Manager of Fitness at Special Olympics where she led the development and implementation of the global physical activity and nutrition strategy.  Under Monica's leadership, programming grew from nearly zero participants in 2015 to an annual reach of over 600,000 people with and without intellectual disabilities in at least 108 countries in 2021.  Monica is currently pursuing a Doctor of Public Health (DrPH) degree at George Washington University, Milken Institute School of Public Health.  She has a master's degree in exercise science from George Washington University and a bachelor's degree in exercise science from Western Michigan University.  Monica is a proud certified ACE personal trainer and has previously worked as a personal trainer, group exercise instructor, strength and conditioning coach, and physical educator.  Follow us on social at the links below: https://www.facebook.com/wellnessparadox https://www.instagram.com/wellnessparadox/ https://www.linkedin.com/company/wellness-paradox-podcast https://twitter.com/WellnessParadox

Circle of Knowledge
On a Mission to Spread Happiness, John & Mark X Cronin, John's Crazy Socks With Jon Kovach Jr.

Circle of Knowledge

Play Episode Listen Later Feb 4, 2023 41:19


John and Mark X. Cronin are the father-son team that founded John's Crazy Socks, a social enterprise with a mission to spread happiness. John is an entrepreneur and Special Olympic athlete who just happens to have Down syndrome. John's Crazy Socks was inspired by John Lee Cronin, a young man with Down syndrome, and his love of colorful and fun socks—what he calls his “crazy socks.” He and his father, Mark X. Cronin, started the company as a social enterprise with the mission of Spreading Happiness™. They do this by offering socks people can love that allows an expression of one's true self. More than half of their employees have differing abilities, and their 'Giving Back' program has raised over $475,000 for charity partners like the Special Olympics, the National Down Syndrome Society, and the Autism Society of America. Most of all, they are Spreading Happiness™. What “Knowledge” or “golden nuggets of wisdom” do you want to share with our audience?: Some golden nuggets that we can offer for your audience are: 1.Know what you're about. Understand your purpose and values. 2.Be yourself. Who else are you going to be anyway? 3.Who you are should be made manifest in everything you do. 4.Take your process and turn it into content. 5.People, people, people. People matter. CALL TO ACTION: We are on a mission to spread happiness and show what people with differing abilities can do. How can our listeners find out more about you/your business/your book/etc.? (i.e. website, social media group, landing page, etc.) : Website: https://johnscrazysocks.com/ Facebook: https://www.facebook.com/johnscrazysocks Twitter: https://twitter.com/JohnsCrazySocks LinkedIn: MXC https://www.linkedin.com/in/mxcronin/ LinkedIn: JCS: https://www.linkedin.com/company/11171456/admin/ Do you have a gift you would like to share with our audience? (i.e., content, resources, free stuff, discounted stuff, invitations, etc.): We would like to offer a John's Crazy Socks discount of 10% to your listeners (Use CIRCLE22 at www.johnscrazysocks.com). The Circle of Knowledge podcast is brought to you by Champion Circle Networking Association, helping entrepreneurs and professionals achieve their goals by sharing a wealth of knowledge with you, our community of high performers. This podcast features best-selling authors, speakers, mentors, top industry resources, interviews, and professional discussions by Global Speaker & Mastermind Leader, Jon Kovach Jr. To learn more, visit www.MyChampionCircle.com Music Cred: Scouting, by Eveningland --- Send in a voice message: https://anchor.fm/circle-of-knowledge/message

The Lucky Few
THROWBACK: Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

The Lucky Few

Play Episode Listen Later Jan 3, 2023 54:47


Did you know that individuals with Down syndrome are frequently denied organ transplants? Just because they have a disability. We can't believe this is a thing that's still happening, but we are SO glad that there are people pushing back on this discrimination. Today in this episode, we are sharing two very important interviews with some extraordinary activists: Charlotte Woodward (NDSS employee + self-advocate w/DS), Bart Devon (senior director of public policy at NDSS), & Christy Sellers (lucky mama of 4 with DS + advocate). We're talking about the Charlotte Woodward Organ Transplant Discrimination Prevention Act, Glory's Law, the fear and ignorance that has caused this discrimination, and the recent tragedies in the DS community that have added momentum to this movement. It's time to call your senators and sign up for the NDSS action alerts! Listen to this episode to learn more and get involved. -- SHOW NOTES Visit ndss.org to learn more about all the wonderful things the National Down Syndrome Society is doing and follow them on Instagram. Take action on the Charlotte Woodward Organ Transplant Discrimination Prevention Act HERE! Keep up with Christy and her family on Facebook - Sellers Magnificent Seven Listen to our previous episodes about organ transplant discrimination prevention + politics in the DS community. 140. Heart Transplant Discrimination Against People with Down Syndrome (Trigger Warning: Infant Loss) 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

The Hire thru Retire Podcast
How Employees with Disabilities Can Help Solve the Labor Shortage with Kandi Pickard, President and CEO, National Down Syndrome Society

The Hire thru Retire Podcast

Play Episode Play 44 sec Highlight Listen Later Nov 29, 2022 15:13 Transcription Available


In this episode Bill is joined by Kandi Pickard, President, and CEO of the National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome. While the topic of disability inclusion has been discussed before on the podcast, this episode is centered on the labor market and more specifically a focus on the disability community, an important yet greatly underutilized resource in addressing the increased demand for talent many employers face today. Kandi joins Bill to talk further about opportunities for employers to ensure they're not only looking to the broad community when it comes to hiring practices, but also to ensure that the workplace itself becomes an area for all individuals to thrive. Bill Harmon is a registered representative of Voya Financial Partners, LLC (member SIPC).  NDSS is not a member of the Voya® family of companies. CN2606635_1124

Coaching Mind's Podcast: Mental training plans for athletes
#92 - OTS 2: Why is Zeek so positive? Why is building team unity in the weight room important?

Coaching Mind's Podcast: Mental training plans for athletes

Play Episode Listen Later Nov 21, 2022 38:01


This is the second installment of On The Spot, where Ben and Zeek ask questions on the spot, with no planned-out content ahead of time, just honest conversation.  At the 1:35 mark, Ben asks Zeek why he is so positive and where that comes from. At the 22:30 mark, Zeek asks Ben why building unity (in the weight room, for example) is so important.If you are interested in helping Zeek support the National Down Syndrome Society, here is the link: https://give.ndss.org/fundraiser/4239969As always, if you are interested in talking with Ben about how he can help you with the mental side of your game, go to mentaltrainingplan.com and click on free consultation

Beyond 6 Seconds
Down Syndrome advocacy, competitive swimming, modeling and more – with Mary Borman

Beyond 6 Seconds

Play Episode Listen Later Oct 31, 2022 14:06


October is Down Syndrome Awareness Month, and I'm excited to host my first podcast guest who is talking about Down syndrome! Mary Borman is an ambassador for Down syndrome and 2018 Self-Advocate of the Year for the National Down Syndrome Society. We recorded this episode a few weeks ago, while Mary was preparing to compete at the Down Syndrome World Swimming Championships in Portugal this month. We talk about several of Mary's accomplishments, which include: Swimming competitively and winning medals at the Special Olympics National Games and Down Syndrome World Swimming Championships Modeling in Northwest Arkansas Fashion Week Lobbying for disability rights and legislation Speaking to organizations across the U.S. about Down syndrome Learn more about Mary and her work at MaryBorman.com and follow her on Instagram and TikTok. Watch the video of this interview on YouTube! Subscribe to the FREE Beyond 6 Seconds newsletter for early access to new episodes! Support this podcast at BuyMeACoffee.com/Beyond6Seconds and get a shout-out on a future episode! Read the episode transcript. *Disclaimer: The views, guidance, opinions, and thoughts expressed in Beyond 6 Seconds episodes are solely mine and/or those of my guests, and do not necessarily represent those of my employer or other organizations.*

Drinks with Johnny Podcast
Come Fly with Mark Tremonti

Drinks with Johnny Podcast

Play Episode Listen Later Oct 24, 2022 70:43


Let's fly away with this week's guest, the multi-talented guitar shredding & Frank Sinatra singing Mark Tremonti!Right off the bat we jump into Mark & Johnny's shared passion for big band music, most notably Frank Sinatra. Mark explains how he was able to assemble Frank's original band to record the Mark Tremonti Sings Frank Sinatra album, and what that experience was like. Mark also reveals how he was able to get the Sinatra family on-board for this project and how it supports resources and advocacy for the Down syndrome community. We touch on Alter Bridge's latest release, Pawns & Kings, and the upcoming tour cycle to support the record. Mark shares some of his favorite (and least favorite) past performances, including a stint on Saturday Night Live complete with a Will Ferrell interaction. With recent rumblings from Scott Stapp about a possible Creed reunion, Johnny gets down to the facts with Mark - is a Creed reunion on the books?We also learn on this episode: How Mark began singing like Sinatra  If Mark is able to remember every guitar solo he's written Why one-off reunion shows aren't easy Where you can catch Mark's next Sinatra shows To support Mark Tremonti Sings Frank Sinatra and the National Down Syndrome Society please visit: www.TremontiSingsSinatra.comBecome a FILTHY ANIMAL and get access to exclusive content:https://www.youtube.com/channel/UC2qKyxOwoa_Uz5d5xCZEUPw/joinExplore More Drinks With Johnny:YouTube: https://www.youtube.com/drinkswithjohnnyInstagram: https://www.instagram.com/drinkswithjohnnyFacebook: https://www.facebook.com/drinkswithjohnnyTwitter: https://twitter.com/drinkswjohnny​​​​Shop: https://www.drinkswithjohnny.com

Pebbles of Light
029 The Joy of Sam || Natalie Hobbs

Pebbles of Light

Play Episode Listen Later Oct 20, 2022 40:44


Natalie Hobbs shares her story of learning that her new baby, Sam, had been diagnosed with Down Syndrome. She talks about how she personally worked through the diagnosis and what it would mean for their family and their new son as well as the joy and happiness that Sam has brought to their family.  THIS EPISODE'S PEBBLE: The pebble for this week is to check out one of the following organizations to learn a bit more about Down Syndrome. National Down Syndrome Society - https://ndss.org/aboutNational Down Syndrome Congress - https://www.ndsccenter.org/Down Syndrom Diagnosis Network - https://www.dsdiagnosisnetwork.org/ Jack's Basket - https://www.jacksbasket.org/ Down Syndrome Association of Minnesota - https://dsamn.org/Zion's Army - https://www.zionsarmy.netZoe's Toolbox - https://www.zoes-toolbox.com/who-we-areRESOURCESAffiliate Disclaimer - As an Amazon Associate and member of other affiliate programs, we may earn advertising or referral fees from qualifying purchases. Thank you for supporting Pebbles of Light!Follow Anne:Website: https://annemaxson.com/Facebook: https://www.facebook.com/pebblesoflight  Instagram: @PebblesOfLightSupport Pebbles of Light by visiting our sponsors:This is an affiliate link for Betterhelp Counseling Services. I receive a commission when people use this link. Go to https://www.betterhelp.com/pebbles for 10% off your first month of convenient, affordable, and accessible counseling services.Shine Cosmetics: https://www.shinecosmetics.com/?afmc=AnneM10   (**Always get 10% off with code AnneM10)See Good Days Shop: https://see-good-days.myteespring.co/  (**Always get 10% off with code AnneM10 at checkout.)Wholist - Wellness Comes Full Circle: https://whol.me/PebblesofLight

Down Syndrome Center of Western Pennsylvania Podcast
#141 - National Down Syndrome Society (NDSS)

Down Syndrome Center of Western Pennsylvania Podcast

Play Episode Listen Later Sep 29, 2022 14:52


Kandi Pickard, President and CEO of the National Down Syndrome Society, joined the podcast as part of our series on the national organizations who serve people with Down syndrome.  You can find more information about NDSS here (https://www.ndss.org).   If you have a podcast topic you would like us to address, please email DownSyndromeCenter@chp.edu. If you would like to partner with us in the work of the Down Syndrome Center, including this podcast, please visit https://givetochildrens.org/downsyndromecenter.   Thank you to “Caring for Kids” The Carrie Martin Fund for its support of the Down Syndrome Center Podcast. 

Quillo Pod
Seek First to Understand : A conversation with Ryan Rotundo

Quillo Pod

Play Episode Listen Later Sep 1, 2022 26:03


In this weeks episode we have a special guest Ryan Rotundo , director of Employment Initiative at National Down Syndrome Society. For this episode Cynthia and John talk to Ryan about his two passions - engaging siblings of people with I/DD and employment of people with I/DD. Episode Transcript  To learn more about Quillo Connect, visit MyQuillo.com

Equal Time with Mary C. Curtis
Progress? Certainly. But has the Americans with Disabilities Act changed the country enough?

Equal Time with Mary C. Curtis

Play Episode Listen Later Aug 30, 2022 38:40


Marking its 32nd anniversary this year, the Americans with Disabilities Act has inspired the world to see disability through the lens of equity, opening opportunities for persons with disabilities to contribute to our global progress. But, from creating more consistency for academic accommodations to providing additional employment opportunities, what needs to be done in the next 32 years and beyond? “Equal Time” host Mary C. Curtis talks with Nicole Patton, the Manager of State Government Relations at the National Down Syndrome Society, and Charlotte Woodward, the Education Program Associate for NDSS. Charlotte, who was born with Down syndrome, as well as a heart condition, is one of the few people born with Down syndrome to receive a life-saving heart transplant. She went on to graduate Summa Cum Laude from George Mason University with a bachelor's degree in sociology, with a concentration in inequality and social change.

CQ on Congress
Equal Time with Mary C. Curtis: Progress? Certainly. But has the Americans with Disabilities Act changed the country enough?

CQ on Congress

Play Episode Listen Later Aug 30, 2022 39:25


Marking its 32nd anniversary this year, the Americans with Disabilities Act has inspired the world to see disability through the lens of equity, opening opportunities for persons with disabilities to contribute to our global progress. But, from creating more consistency for academic accommodations to providing additional employment opportunities, what needs to be done in the next 32 years and beyond? “Equal Time” host Mary C. Curtis talks with Nicole Patton, the Manager of State Government Relations at the National Down Syndrome Society, and Charlotte Woodward, the Education Program Associate for NDSS. Charlotte, who was born with Down syndrome, as well as a heart condition, is one of the few people born with Down syndrome to receive a life-saving heart transplant. She went on to graduate Summa Cum Laude from George Mason University with a bachelor's degree in sociology, with a concentration in inequality and social change. Learn more about your ad choices. Visit megaphone.fm/adchoices

The Lucky Few
174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society)

The Lucky Few

Play Episode Listen Later Aug 16, 2022 43:02


We know that going #BackToSchool isn't always easy.. so we're here to support you! We have Jessica Kuss (the Senior Manager of Education Programs for the National Down Syndrome Society - no big deal right!) on today's episode. She is a mother of 2 (including a son with DS) + a former special educator! Jessica was even part of the team at NDSS who just released the Inclusive Education Guidelines, a document FULL of relevant info for parents and educators. Today, we're chatting all about what's inside this document.. everything from the Down syndrome learning profile (knowing about this is a game changer) to the gaps in our IDEA laws, and what on earth we should do with all this info! Who's ready to rock this #BackToSchool season with us?? (You will be after this episode!) (Special thank you to the team at NDSS for sharing their resources and lovely staff members with us! Be on the look out for more collaboration episodes with them coming very soon!) SHOW NOTES Learn more about the National Down Syndrome Society at ndss.org Download the Inclusive Education Guidelines HERE Follow @ndssorg on Instagram! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

The Lucky Few
160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!)

The Lucky Few

Play Episode Listen Later May 10, 2022 59:09


Did you know that individuals with Down syndrome are frequently denied organ transplants? Just because they have a disability. We can't believe this is a thing that's still happening, but we are SO glad that there are people pushing back on this discrimination. Today in this episode, we are sharing two very important interviews with some extraordinary activists: Charlotte Woodward (NDSS employee + self-advocate w/DS), Bart Devon (senior director of public policy at NDSS), & Christy Sellers (lucky mama of 4 with DS + advocate). We're talking about the Charlotte Woodward Organ Transplant Discrimination Prevention Act, Glory's Law, the fear and ignorance that has caused this discrimination, and the recent tragedies in the DS community that have added momentum to this movement. It's time to call your senators and sign up for the NDSS action alerts! Listen to this episode to learn more and get involved. -- SHOW NOTES Visit ndss.org to learn more about all the wonderful things the National Down Syndrome Society is doing and follow them on Instagram. Take action on the Charlotte Woodward Organ Transplant Discrimination Prevention Act HERE! Keep up with Christy and her family on Facebook - Sellers Magnificent Seven Listen to our previous episodes about organ transplant discrimination prevention + politics in the DS community. 140. Heart Transplant Discrimination Against People with Down Syndrome (Trigger Warning: Infant Loss) 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Send in a voice message: https://anchor.fm/theluckyfewpod/message Support this podcast: https://anchor.fm/theluckyfewpod/support

The Enabled Disabled Podcast

Visit the Enabled Disabled website to share your thoughts and stories: https://www.enableddisabled.com/share Superheroes come in all shapes and sizes. For professional motorcycle rider Gene Buonomo, it's in the form of his 14 year-old son, Decklan. While Gene can impressively guide a 150mph motorcycle on the country's top tracks, his strength doesn't compare to Decklan's, who lives with down syndrome. Life has presented challenges for Decklan from the get-go, as he was born with duodenal atresia, a condition affecting only 1 out of every 7,500 babies. Surviving surgery was one thing, but managing Decklan's down syndrome is a daily challenge for not only Decklan but Gene, who is a single parent to three sons, juggles two jobs and races professionally on the weekends. The National Down Syndrome Society, or NDSS, was Gene and Decklan's saving grace, providing them with resources, programs and a community to connect with others fighting the same fight to give children with down syndrome a normal life, helping them land jobs and providing health information to parents. That is why in his rookie season on the MotoAmerica circuit, Gene will sport the NDSS logo on his leathers, giving thanks, showing support and raising awareness for the society that has saved his family. Decklan will be alongside his dad each weekend of competition, cheering him on as his unofficial racing manager and pit master. --- Send in a voice message: https://anchor.fm/enableddisabled/message Support this podcast: https://anchor.fm/enableddisabled/support

The Spreading Happiness Podcast
National Down Syndrome Society, Rambling on for 18 Pages and Scratching Our Butts

The Spreading Happiness Podcast

Play Episode Listen Later Mar 29, 2022 37:26


When last we left the dynamic duo (insert suspenseful music), they told us about the impending boys-only weekend where they planned to walk around the house in the underwear. Find out the exciting conclusion to the story (spoiler alert - they also scratched their butts). John quotes Ross Geller's “18 pages, front and back” speech from Friends and then chats with mark about attending the NDSS Gala. They boys discuss their Autism Can-Do scholarship before jumping into their weight loss journey, John's love life (spoiler alert - it's getting rocky), some bad jokes and some good news. Mark wraps the show up with a heart-warming memory of John's heart surgery as a baby (get the tissues). Hosted by John & Mark Cronin, co-founders of John's Crazy Socks. Visit John's Crazy Socks here: https://johnscrazysocks.com Follow @johnscrazysocks on Facebook, Twitter, Instagram and TikTok. The Spreading Happiness Podcast is produced by Launchpad 516 Studios. For show ideas, guest inquiries, general feedback, sponsorships and media inquiries, drop an email: thespreadinghapinesspodcast@lp516.com Subscribe to The Spreading Happiness Podcast on Apple Podcasts and get notified of new episodes, every Tuesday! https://podcasts.apple.com/us/podcast/the-spreading-happiness-podcast/id1611218712 

DNA Today: A Genetics Podcast
#176 Glee's Lauren Potter on Down Syndrome Awareness

DNA Today: A Genetics Podcast

Play Episode Listen Later Mar 18, 2022


We are ecstatic to introduce this week's guest, Lauren Potter! You might know Lauren as Becky Jackson from the TV show Glee. She was in all six seasons playing a character who, like her, has Down Syndrome! After graduating high school and attending college in California, Lauren began acting, starring in her first film at the age of 16. In 2012 she was nominated for a SAG award in the Ensemble in a Comedy Series category for her work in Glee, and she also received the SAG/AFTRA Harold Russell Award at the 2012 Media Access AwardsOn top of being a fabulous and successful actress, Lauren is also a fierce advocate. President Obama appointed her to the President's Committee for People with Intellectual Disabilities. She has advocated with AbilityPath, Best Buddies International, the National Down Syndrome Society, The American Association of People with Disabilities, and Special Olympics. We are honored to have Lauren on the show, and the timing couldn't be more perfect with World Down Syndrome Awareness Day coming up on March 21st! This day was chosen because people with Down Syndrome have three copies of chromosome 21, so the 21st day of the 3rd month.On This Episode We Discuss:What it is like growing up with Down SyndromeLauren's experience auditioning for the role of Becky on GleeWhat Lauren wants people to know about how the R word can affect peopleLauren's advocacy work with Best Buddies and the President's Committee for people with Intellectual Disabilities“A Guest Room” a short film where Lauren was the lead actress and executive producerInspirational advice for people with Down SyndromeAdvice for parents who may have just found out their baby has Down SyndromeBe sure to follow Lauren on Twitter, Facebook, and Instagram to stay up to date on her advocacy work and latest acting roles!Stay tuned for the next new episode of DNA Today on March 25, 2022 where we'll be discussing whole genome sequencing with world-renowned geneticist Dr. Madhuri Hegde, Senior Vice President and Chief Scientific Officer of Global Lab Services at PerkinElmer Genomics. New episodes are released on Fridays. In the meantime, you can binge over 175 other episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Today”. Episodes since 2021 are also recorded with video which you can watch on our YouTube channel. DNA Today is hosted and produced by Kira Dineen. Our social media lead is Corinne Merlino. Our video lead is Amanda Andreoli. See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, DNApodcast.com. Questions/inquiries can be sent to info@DNApodcast.com. Every pregnancy has a chance to have a genetic abnormality or complication. Mitera empowers you to make the most informed reproductive decisions through their at-home genetic tests, without needing your doctor's order. These tests include non-invasive prenatal screening (Mitera's Peaches&Me) and carrier screening (Mitera's 23pears). Request your own kit at miteragenetics.com and use code “DNATODAY” for 10% off. Mitera. Predict. Prevent. Prepare. (SPONSORED)Vizgen is dedicated to pioneering the next generation of genomics, providing tools that demonstrate the possibilities of in situ single cell spatial genomics. These tools are enabling researchers to gain insight into the biological systems that govern human health and disease. Stay tuned for our full episode with Vizgen where we explore single-cell spatial genomics. Get a sneak peak by visiting their website at vizgen.com. Vizgen, leaders in spatially resolved, single-cell transcriptomics. (SPONSORED)PerkinElmer Genomics is a global leader in genetic testing focusing on rare diseases, inherited disorders, newborn screening, and hereditary cancer. Testing services support the full continuum of care from preconception and prenatal to neonatal, pediatric, and adult. Testing options include sequencing for targeted genes, multiple genes, the whole exome or genome, and copy number variations. Using a simple saliva or blood sample, PerkinElmer Genomics answers complex genetic questions that can proactively inform patient care and end the diagnostic odyssey for families. Learn more at PerkinElmerGenomics.com. (SPONSORED)Did you know there is a genetic counselor that specializes in offering care to those in the adoptee community? Brianne Kirkpatrick co-wrote “The DNA Guide for Adoptees” to provide a resource for those in the adoptee community who are utilizing DNA testing to find biological relatives or to seek out medical information. She also started Watershed DNA to offer personalized genetic counseling to directly support people in the aftermath of a surprise DNA discovery. You can hear Brianne share her insight from her book in Episode 103 of DNA Today! Learn more atWatershedDNA.com where you can also book your consult today with Brianne. (SPONSORED)

A Cup of Confidence with Erin Rector
Can't Stop These Crazy Socks with John and Mark Cronin

A Cup of Confidence with Erin Rector

Play Episode Play 25 sec Highlight Listen Later Feb 10, 2022 36:13


Episode Summary:In today's episode of A Cup of Confidence, we are joined by special guests John and Mark Cronin, Founders of Johns Crazy Socks. Mark shares how he and his son, John, started their company and the journey they had to go through to become a successful business. John and Mark also share the importance of never giving up on yourself, moving forward, and helping others! This episode is inspirational and heartwarming! You don't want to miss this - stay tuned!Thanks for Listening:Thanks so much for listening to my podcast! If you enjoyed this episode and think that others could benefit from listening, please share it using the social media buttons on this page. Do you have some feedback or questions about this episode? Leave a comment in the section below!Subscribing to The Podcast:If you would like to get automatic updates of new podcast episodes, you can follow the podcast on Apple Podcasts or Stitcher. You can also give Cup of Confidence a follow on your favorite podcast app.Leave Us an Apple Podcasts Review:Ratings and reviews from our listeners are extremely valuable to us and greatly appreciated. They help our podcast rank higher on Apple Podcasts, which exposes our show to more awesome listeners like you.Guest Bios:John Cronin:John Cronin is the Co-Founder of “Johns Crazy Socks.” John is very passionate about his crazy socks and spreading the love by creating smiles and happiness in his company. Every day John gives back and donates 5% of his earnings to Special Olympics as they've played a vital role in John's development. They also continue to expand their charity partners by offering and creating socks with specific “awareness themes,” such as Autism Awareness Socks and Down Syndrome Socks. John makes socks that let you express your passion and personality. Also, he goes the extra mile to provide same-day shipping, handwritten thank you notes, and candy!Mark Cronin:Mark Cronin is the Co-Founder of "Johns Crazy Socks." Mark works behind the scenes while John is upfront as the face of the business. Mark received his undergraduate degree from Holy Cross and a Masters's of Public Policy at the Kennedy School of Government at Harvard University. He has also studied literature at the Graduate Center for the City of New York and studied at Trinity College in Dublin. Earlier in his career, he served as the Director of Medicaid Health Services in New York City.  He worked with hospitals and health centers to create some of the best-known managed care organizations in New York State. Along with John in their business, Mark advocates for the rights of differing abled people. He works with the National Down Syndrome Society to support their #DSWORKS and End Law Syndrome campaigns. Links:For 10% off, use code “CONFIDENCE”Website:https://johnscrazysocks.com/Pinterest:  https://www.pinterest.com/johnscrazysocks/_shop/Facebook: https://www.facebook.com/johnscrazysocks/Linkedin: https://www.linkedin.com/in/mxcronin/Instagram: https://www.instagram.com/johnscrazysocks/Twitter: https://twitter.com/JohnsCrazySocksYoutube: https://www.youtube.com/channel/UChQzvQju2SQiW9rIf5JNsVQ