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Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://anchor.fm/theluckyfewpod/support

the lucky few Podcast


    • Jun 3, 2025 LATEST EPISODE
    • every other week NEW EPISODES
    • 52m AVG DURATION
    • 336 EPISODES

    4.9 from 321 ratings Listeners of The Lucky Few that love the show mention: child with down syndrome, special education, dad's, special needs, inclusion, amazing community, newborn, shouting, abilities, lucky, heather, honest conversations, thank you ladies, mamas, raising, advocate, making this podcast, love you ladies, dads, moms.


    Ivy Insights

    The Lucky Few podcast is a truly remarkable and inspiring show. I stumbled upon it with little knowledge or connection to Down syndrome, but after listening, I realized that we all have a connection to it because we are human beings. The hosts, Heather, Mercedes, and Micha, share their personal experiences as mothers of children with Down syndrome and provide a wealth of information, resources, and encouragement for listeners. Each episode leaves me feeling uplifted, motivated, and less alone on this journey.

    One of the best aspects of this podcast is the diverse perspectives that each host brings to the table. They discuss a wide range of topics related to Down syndrome parenting, including advocacy, education, healthcare, inclusion, and more. With their unique backgrounds and experiences, they offer valuable insights and ideas for navigating the challenges and celebrating the joys of raising children with Down syndrome. The guests they bring on the show also provide additional perspectives and expertise in various fields.

    Another great aspect is the vulnerability and authenticity displayed by the hosts. They share their highs and lows without sugarcoating anything. Their honesty creates a safe space where listeners can relate to their struggles and triumphs. It's refreshing to listen to real moms who are doing their best in extraordinary circumstances.

    If there were any downsides to this podcast, it would be that sometimes certain topics may not resonate with all listeners or address specific concerns or issues they may have. However, considering the vast array of episodes available, there is likely something for everyone at some point.

    In conclusion, The Lucky Few podcast is a beautiful platform that shines a light on Down syndrome parenting while promoting inclusivity and spreading awareness. The hosts are like friends who offer support and guidance through their own experiences while fostering a sense of community among listeners. Whether you're a parent of a child with Down syndrome or simply seeking education and inspiration in your own life journey, this podcast is definitely worth tuning into.



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    Latest episodes from The Lucky Few

    BONUS: The Power of Saying "I Like You So Much" (Heather's New Book!)

    Play Episode Listen Later Jun 3, 2025 39:46


    It's 2025 and there are a few things we know are true… The world is chaotic. And we NEED more compliments. That's why our very own Heather Avis wrote her new children's book, “I Like You So Much: Celebrating What Makes You, You!” We're chatting all about the inspiration for this book and more today!What's the difference between saying “I like you” and “I love you?”When's the last time you gave a compliment that wasn't based on an accomplishment?How did Heather make sure that ALL children could see themselves in her new book?The reviews are in (literally!) and this book is a MUST-read. We hope you'll share it with a kiddo in your life who needs to hear just how very likeable they are.--SHOW NOTESOrder I LIKE YOU SO MUCH by Heather Avis on Amazon or anywhere books are sold.Get compliment cards, activity kits, and merchandise HERE.SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning.

    300. A Deep Dive Into the Last 300 Episodes!

    Play Episode Listen Later May 20, 2025 45:52


    Well friends, we're 300 episodes into the podcast and we finally figured out a way to keep track of just how long we've been doing this.. and no its not our neck wrinkles! Lets go behind the scenes today as we reflect on the last 7 years. We're chatting about:What has changed in our lives (and the world) since starting the podcast?What have we learned (and unlearned) along the way?What are our favorite memories? And what are YOUR favorite memories? (Lots of listener feedback in this one!)You've all been on quite the journey with us. We've experienced everything from childbirth, cross-country moving, moments of grief, new diagnoses, global pandemics, and so much more. A lot has changed for each of us but one thing will always be true.. Micha really is a great singer. And whether you've been here since the beginning, or you're just joining us now, we are SO grateful for you. We hope our vulnerability has encouraged you and reminded you that you are not alone on this journey. __SHOW NOTESListen to our episode with Sid Ghosh: 229. Poet, Author, “Levitator of Language”Listen to Non Linear Learning, an amazing podcast by Dr. Vaish SarathySHOUT OUTLearn more about the National Down Syndrome Adoption NetworkSPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning.

    299. Reasonable Risks for Our Kids with Down Syndrome

    Play Episode Listen Later May 13, 2025 39:25


    If you're a parent, you've likely wondered.. Should I let my child use this public restroom on their own? Is my child able to handle these kitchen tools? Can I let my child attend this sleepover? And if you're a parent to a child with a disability, you might have even more fears around these risky activities. It's time for a conversation about reasonable risks for our kids with Down syndrome. Here's what we're chatting about today:What does “dignity of risk” mean? Is the risky activity an opportunity for growth or an opportunity for trauma?What makes our kids with disabilities more vulnerable even in “safe risk” situations?How we do know when to let them take the risk? And when to step in?We know its dignifying to have the right to make a risky decision, but its also super scary when it comes to our children. Lets unpack this and problem-solve (or try to) together today. __SHOW NOTESRead ‘The Dignity of Risk' by Amy Julia BeckerSHOUT OUTLearn more about Project ECHO, a community of health care providers for individuals with DS.SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning.

    298. What's going on with the Department of Education? (Part 2 w/Ashley Barlow)

    Play Episode Listen Later May 6, 2025 47:25


    Overwhelmed by all the news lately? Us too. That's why Ashley Barlow (@thecollaborativeiep) is back on the show today to breakdown all of the changes to the Department of Education and the impact on students with disabilities. Here's what we're discussing today:​Budget cuts and the impact on early learning for students with disabilities (no more Head Start program in 2026?!)​Pros and cons of school choice and vouchers (What does “welfare for the rich” mean?)​Action steps to make sure your child's educational needs are metWe know that many of these changes have not happened yet, but the current political attitude towards disability has us a little worried. If you're feeling the same way, stay informed and know that we're all in this together.SHOW NOTES​Follow Ashley at @thecollaborativeiep and find her website here.SHOUT OUT​Learn more about The College of Adaptive Arts here and follow them on instagram!SPONSORS​Learn more about Jack's Basket.Learn more about Enable Special Needs Planning.

    297. Extracurricular Activities and Inclusion: How to Make it Work For Our Kids with DS

    Play Episode Listen Later Apr 29, 2025 41:35


    Picture this: your child with Down syndrome tells you they want to play a sport. You sign them up for the local team, drop them off at practice, and pick them up without any difficulties. Everything goes smoothly… But that's not always reality is it? Lets break down the complexities of extracurricular activities today:How to ask for accommodations that promote safety, respect, and inclusionSeparate programs designed for people with disabilities.. and what to do when they're not as inclusive as they seemHow to manage our own expectations of our children and their activitiesHere's what we've learned: the attitude of the people in charge really matters. And if we can find programs with inclusive-minded leaders who understand our kids with DS, then that's where we need to be. Join us today as we dive into our personal experiences (both positive and negative) with musical theater, gymnastics, and swim. And don't forget that any program is lucky to have your child! SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! HEATHER'S NEW BOOKPre-order Heather's newest children's book: I Like You So Much!DISCOUNT CODEFriends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

    296. Planes, Trains & Presuming Competence

    Play Episode Listen Later Apr 22, 2025 35:54


    The Avises are back from an 18-day European vacation with tips, tricks, and travel stories for all of us. So Heather and Josh are here today to answer all the questions: How do you “lean in” to surprising (and sometimes frustrating!) moments with your kids? What to do when your family vacation doesn't look like other families? What are your major tips for traveling with kids/teens who have Down syndrome? There are so many travel resources out there.. disability discounts, wheelchairs, free transportation, + more! We're excited to share with you just how we used them. So take some notes then start planning your next trip!--SHOW NOTESSHOUT OUT: Check out Cafe Joyeux on instagram and their websiteWatch 47, a short film produced by Cafe JoyeuxSPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

    295. How can I help my child with a disability sleep better?

    Play Episode Listen Later Apr 15, 2025 41:27


    How many nights per week would you say your child (with or without a diagnosis) sleeps well? We asked our audience and discovered that sleep is a struggle for a LOT of us! So if you're feeling like you've already tried all the online hacks but your child still wakes you up at the same time each night, this episode might have a new tip for you! Here's what we're covering today: What's the biggest sleep challenge for our kids with Down syndrome? And our kids with a dual diagnosis of DS and autism?Micha's sleep journey with her son Ace... Does a gluten-free, dairy-free, additive-free diet actually work? What medications have or have not been effective? What is a sensory diet and does it really help? How has an ADHD diagnosis affected Ace and his sleep? Audience input! We've crowdsourced the best tips from all of you! Learn how other parents have changed their children's rooms and bedtime routines to promote better sleep.But before we dive into sleep, we're chatting briefly about the change from Autism Awareness Month to Autism Acceptance Month + the importance of centering Autistic voices in this conversation. For now, wherever you're at in your sleep journey, we hope this episode helps! You're not alone out there! --SHOW NOTESSHOUT OUT: Follow Nicole Adler (@nicole_for_love), a speaker and advocate for the disability and LGBTQ communities. SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

    294. Why Down Syndrome Isn't Something to "Cure"

    Play Episode Listen Later Apr 8, 2025 33:20


    When we saw this headline, “CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome Treatment,” we knew we had to discuss this article together. So that's what we're doing today. Here's what we're covering in this episode:The ethics of gene editing - What about other conditions with serious life-threatening effects? Why do some people assume that we need to “cure” Down syndrome? What would we do to alleviate some of the medical challenges in the DS community? The problem with not including disabled people in this conversationWe are really digging deep today! And we invite you to read the article (linked here) and join us for this important conversation.--SHOW NOTESRead CRISPR Snips Away Extra Chromosomes, Offering New Hope for Down Syndrome TreatmentKeep this convo going with these past episodes: 161. Let's Talk About Abortion & Disability; 117. Dignity Beyond Accomplishment; 99. The Last Children of Down SyndromeSHOUT OUT: Follow @amyjuliabecker for thoughtful discussions on hard topics in the DS community. SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

    293. Potty Training with a Dual Diagnosis

    Play Episode Listen Later Apr 1, 2025 38:20


    Raise your hand if the thought (or maybe even the memory) of potty training gives you anxiety! This parenting milestone sure brings up a lot of feelings, especially for those of us in the disability community. Here's what we're chatting about today:Micha's potty training journey (including some behind-the-scenes voice notes and training tips!)The impact of a dual diagnosis (Down syndrome and autism) on potty trainingDealing with internalized ableismPLUS: WHY do we actually want certain things for our child? Is it for their safety or for societal expectations? And also, happy Autism Acceptance Month! Lets celebrate that and remember: learning new things can take a long time. And that's okay.--SHOW NOTESVisit successfulpottytraining.net to learn more about Ashley Hickey and her potty training methodsListen to ep 62. Micha & Ace's Dual Diagnosis JourneySHOUT OUT: Follow @learnplaythrive on instagram for neurodiversity affirming therapy strategies!SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

    292. What's going on with the Department of Education? (w/guest host Ashley Barlow)

    Play Episode Listen Later Mar 25, 2025 36:34


    If you've watched the news recently, you know that there are some HUGE changes happening in our government, especially with the Department of Education. We're breaking it all down today with our guest host, Ashley Barlow! She's a mother to a son with Down syndrome, special education attorney advocate, IEP expert, former teacher, current speaker and podcaster. We are so grateful she's here to cover all these topics:Why did the administration take action so quickly?What exactly is the HR 899 bill and how will it affect students with disabilities? If the DOE gets dismantled and then redistributed, which other departments will be in control?What can parents do right now to protect their children in schools? There's a lot to unpack here, friends! Regardless of your political party, we hope you join us for this conversation so we can stand together in agreeance on what our kids deserve in their schools. Let's dive in.--SHOW NOTESFollow Ashley Barlow on instagram and visit her website!Shout out to Massachusetts Advocates for Children for the imporant work they're doing! Check out their website HERE.SPONSORSLearn more about Jack's Basket.Learn more about Enable Special Needs Planning. JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more! Become an essential part of The Lucky Few movement today! 

    291. New Season, Same Us: Life Updates & What's Coming!

    Play Episode Listen Later Mar 18, 2025 43:30


    Here we are with a NEW season of The Lucky Few Podcast! Join us for this first episode back for some big life updates!From Mercedes: mother-daughter bonding with Sunny, braces, medical thingsFrom Micha: potty training for Ace, communication device debates, new therapiesFrom Heather: her mother's health, extracurriculars.. dances, musical theater, basketballFrom the pod: BONUS episodes that you can access as a member of The Lucky Crew!Join THE LUCKY CREW for $4.99 a month for bonus episodes and MORE.Participate in the NDSS Racing for 3.21 challenge on World Down Syndrome Day. Sign up to participate from where ever you live, HERE.Some things haven't changed though.. you'll see that we still don't really know what year of the podcast this is and we still think there's room to grow in the education system (shocker!). But get excited friends! Because this season will be full of important topics + a GUEST HOST.. Ashley Barlow, a fellow lucky mama, podcaster, and IEP expert.SHOW NOTESJoin THE LUCKY CREW for $4.99 a month for bonus episodes and MORE.Participate in the NDSS Racing for 3.21 challenge on World Down Syndrome Day. Sign up to participate from where ever you live, HERE.JOIN THE LUCKY CREWJoin us in celebrating and supporting The Lucky Few Podcast! For just $4.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Enjoy bonus episodes where we dive deeper into the most controversial issues, shop discounts, and more!  Become an essential part of The Lucky Few movement today!HEATHER'S NEW BOOKPre-order Heather's newest children's book: I Like You So Much!

    Throwback: Is Inclusion A Privilege?

    Play Episode Listen Later Jan 21, 2025 55:49


    UPDATE for 2025: First, we want to say how much this podcast community means to us. Over the past seven years, we've released 290 episodes, reaching millions of listeners worldwide. You've been with us through laughter, tears, challenges, growth, and friendships. This podcast exists because of you, and we're deeply grateful for your support. To keep The Lucky Few Podcast thriving, we'll be making some changes early this year. While we focus on restructuring and exploring new ideas, we invite you to revisit past episodes or relisten to your favorites. Stay up-to-date by following us on social media ⁠@theluckyfewpod.⁠ We're excited for what's ahead! Until then, know we're cheering you on and love you so much. ... Friends, today we're diving deep into the heart of our favorite topic: inclusion! We chat about the barriers preventing true inclusion and we're challenging societal norms and asking the important questions about what defines human worth. What kind of person gets to be celebrated? What kind of person with Down syndrome gets to be celebrated? We explore the buzzword status of “inclusion,” the role of privilege in accessing support and services, and so much more. As we navigate this journey, we recognize the honor and burden of advocating for a more inclusive world. Progress in inclusion is happening, but are we truly championing the essence of every individual? Is the current system promoting equal access and opportunities? We're asking all the questions, you don't want to miss this thought-provoking episode! --- SHOW NOTES ⁠Learn more about regional assembly member Mar Galcerán's!⁠ Other episodes to check out: ⁠17. Self Advocacy - Down Syndrome in DC with Kayla McKeon!⁠ ⁠28. Owning Your Influence In ALL Your Spaces!⁠ ⁠40. Back to School & All Things Education, Inclusion, & Down Syndrome⁠ ⁠58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman⁠ ⁠64. Building Bridges Towards Inclusion w/Barbara Butler⁠ ⁠67. Unpacking Privilege & Understanding Intersectionality w/Jalondra Davis⁠ ⁠85. Is Inclusion Always The Best Option?⁠ ⁠92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing⁠ ⁠101. Jalondra Davis on Race, Disability, & Advocacy⁠ ⁠126. Creating Opportunities & Changing Perspectives Through Inclusive Employment ft. Wendy Lacey (Cornerstone Montclair)⁠ ⁠128. What To Expect From Inclusive Settings⁠ ⁠148. Diversity in the Down Syndrome Community⁠ ⁠149. The Only Black Mama In The Room - ft. Ashley Dirks (mother/advocate)⁠ ⁠172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani⁠ ⁠195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry)⁠ ⁠197. Exposing The Roots (Racism, Ableism, Microagressions, + More)⁠ ⁠198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools⁠ ⁠203. Beyond Checking A Box⁠ ⁠204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward⁠ ⁠205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko⁠ ⁠208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate)⁠ ⁠218. Creating Inclusion For All Learners (w/Tim Villegas) ⁠ ⁠223. Included, Seen, & Heard: The Impact of Successful Inclusion⁠ DISCOUNT CODE Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information! LET'S CHAT Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

    Throwback: Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman)

    Play Episode Listen Later Jan 8, 2025 57:53


    UPDATE for 2025: First, we want to say how much this podcast community means to us. Over the past seven years, we've released 290 episodes, reaching millions of listeners worldwide. You've been with us through laughter, tears, challenges, growth, and friendships. This podcast exists because of you, and we're deeply grateful for your support. To keep The Lucky Few Podcast thriving, we'll be making some changes early this year. While we focus on restructuring and exploring new ideas, we invite you to revisit past episodes or relisten to your favorites. Stay up-to-date by following us on social media @theluckyfewpod. We're excited for what's ahead! Until then, know we're cheering you on and love you so much. ... Throwback: Everything No One Tells You About Parenting A Disabled Child (w/Kelley Coleman) We're so excited to welcome feature film executive turned author and disability advocate, Kelley Coleman to the show! Her book Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support releases TODAY!! Friends, this book is like gold, it provides the kind of support and confidence we all need to navigate and understand the complex systems, services, and supports no matter what diagnosis our kids have. It's a resource we'll be looking to for years to come, providing us with helpful questions, checklists, and ways to access services based on your child's individual needs. We celebrate finding friendship and community throughout the disability community, and Kelley shares how the Down syndrome community has embraced her and her son. She even shares how disability rights activist Judy Heumann shared her enthusiasm for a resource like Kelley's book and emphasized the importance of sharing stories as self-advocates and nondisabled advocates in the disability space. This is a book and conversation we're so grateful for, this is an episode you don't want to miss! --- SHOW NOTES Order Kelley's new book⁠ Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Support⁠ To learn more, visit⁠ https://www.kelleycoleman.com/⁠  Follow Kelley on⁠ Instagram⁠ and⁠ Facebook⁠ ⁠Learn more about Judy Heumann's legacy⁠ THANK YOU TO OUR SPONSOR: Thank you,⁠ Enable SNP⁠ for sponsoring this episode! ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠ ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠ HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

    290: Redefining Resolutions For Growth, Not Perfection (w/Amy Julia & Penny Becker)

    Play Episode Listen Later Dec 31, 2024 54:43


    Happy New Year friends! Join us as we welcome back Amy Julia Becker and her daughter Penny for an inspiring conversation on redefining resolutions for growth instead of perfection. We're talking about the power of celebrating small wins, how caregivers and families can support loved ones with Down syndrome in setting and achieving goals, and the transformative lessons we've learned from goal-setting with our children. Penny also offers her perspective on staying motivated, what success looks like to her, and what she hopes to accomplish in the year ahead. Whether you're setting goals for yourself or alongside your loved one with Down syndrome, this conversation will leave you ready to embrace every step of the journey. This is an episode you don't want to miss! SHOW NOTES Instagram: @amyjuliabecker Facebook: @amyjuliabeckerwriter YouTube Channel Threads: @amyjuliabecker X: @amyjuliabecker amyjuliabecker.com  Our Previous Episodes with Amy Julia:  247. The Transition To Adulthood: Fostering Independence, Dignity Of Risk, & Supporting Decision-Making (w/ Amy Julia Becker) 158. Faith, Healing, & Disability, ft. Amy Julia Becker (Mother/Autho 26. Owning Your Influence By Using Your Words with Amy Julia Becker Thank you, NDSS for sponsoring this episode! Register today for the 2025 Down Syndrome Advocacy Conference! Early bird registration is now open! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    289. It's time for Good News! The Holiday Edition.

    Play Episode Listen Later Dec 24, 2024 51:08


    It's Christmas Eve, and whether you're wrapping up last-minute gifts, squeezing in a classic Christmas movie, or running errands around town, we're thrilled to be keeping you company! Today, we're diving into something extra special to celebrate the season—a deeper look at the good news in our lives. In the Christmas tradition, there's a powerful moment when the angel declares the arrival of Jesus as good news. Inspired by this, we're dedicating today's episode to celebrating all kinds of good news: the joy of Christmas, the incredible kids with Down syndrome who brighten our lives, and the beauty of shifting narratives. So, grab a cup of cocoa, take a deep breath, and join us as we spread some cheer and shout some worth. We're so glad you're here. SHOW NOTES Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources.⁠ Become an essential part of The Lucky Few movement today! ⁠ DISCOUNT CODE Friends, grab your narrative shifting gear over on⁠ The Lucky Few Merch Shop⁠ and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you,⁠ Enable SNP⁠ for sponsoring this episode! ⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠ ⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠ LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    288 A Christmas Movie for all: with Mia Armstrong and Julie Barnett

    Play Episode Listen Later Dec 17, 2024 32:01


    Today, we're bringing you some Holiday cheer as we head to the fictional and festive town of New Hope, TX. I have the honor and thrill of speaking with  Julia Barnett, the writer and director of the new holiday movie A Christmas in New Hope, and Mia Armstrong, one of the lead actors who plays Charlie, the daughter of a single mom fighting to save her home before Christmas. Mia, who has Down syndrome, shines in a role where her diagnosis takes a back seat, showcasing her as a fully realized character. Join us as we dive into the inspiration behind the movie, Mia's journey to the role, and the powerful representation of Down syndrome in storytelling. Watch this film on Apple TV, Amazon, Google Play, Spectrum, Fandango, Roku and Tubi  - - - - - - SHOW NOTES Learn more about the movie here Watch the trailer here Follow Mia on Instagram  Follow Julia on Instagram Follow A Christmas in New Hop on Instagram and Facebook JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    287. Embracing “Good Enough” Holidays

    Play Episode Listen Later Dec 10, 2024 53:41


    How do you handle the grief that comes with unmet holiday expectations? As we dive into the holiday season, many of us wrestle with the dream of a “perfect” celebration that doesn't match reality. In this episode, we're having an honest conversation about releasing those high expectations, navigating the challenges and grief that come with letting go of the idealized holiday image, and discovering joy in what is rather than what could have been. From coping with unplanned moments to redefining traditions and setting boundaries with family, we're exploring how to create a meaningful, authentic holiday season that works for you. Don't miss this heartfelt discussion! - - - - - - SHOW NOTES 236. Making Space For Grief (w/Claire Bidwell Smith) 235. All The “Big Feelings” 192. Tis' the Season! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, NDSS for sponsoring this episode! Register today for the 2025 Down Syndrome Advocacy Conference! Early bird registration is now open! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    286. Beyond The Gift: Celebrating Non-Profits This Giving Tuesday

    Play Episode Listen Later Dec 3, 2024 43:06


    Today is Giving Tuesday! This year we've decided to switch up our traditional gift guide and bring you some of our favorite non-profit organizations doing incredible things for our community. In the spirit of Giving Tuesday, we encourage you to consider supporting their work with your time, resources, or donations. From advocacy to education to direct support, these organizations are transforming lives, and Giving Tuesday is a powerful opportunity to join them in making a lasting change. We hope you enjoy hearing from Karmel Garcia from Zoe's Toolbox, Stephanie Thompson from the National Down Syndrome Adoption Network, and Crystal Lotterberry from Black Down Syndrome Association. Every bit of support counts, and today is the perfect day to give back meaningfully.  SHOW NOTES Zoe's Toolbox: Learn more about Zoe's Toolbox Donate to Zoe's Toolbox Follow Zoe's Toolbox on Instagram and Facebook National Down Syndrome Adoption Network: Learn more about the National Down Syndrome Adoption Network Follow NDSAN on Instagram and Facebook Listen to our previous episode with NDSAN: 45. Adoption & Down Syndrome w/Stephanie Thompson from the NDSAN  Black Down Syndrome Association: Learn more about Black Down Syndrome Association Follow Black Down Syndrome Association (BDSA) on Instagram and Facebook Join the Black Down Syndrome Association Facebook Family Group Listen to our previous episodes with BDSA: 195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry) 256. Celebrating Motherhood, Advocacy, & Community (w/Black Down Syndrome Association) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    BONUS. Dreaming Big and Showing Up From The NDSS Adult Summit

    Play Episode Listen Later Nov 28, 2024 49:21


    That's right friends, we've got a BONUS episode for you this week! Today, we're bringing you our closing keynote from the NDSS Adult Summit, we're sharing our takeaways from the weekend, practical tips, and tools for building a future that people with Down syndrome deserve. From dreaming about employment and supporting Down syndrome-owned businesses to creating transition plans and embracing independence, this episode is packed with inspiration and actionable steps. You'll also hear from incredible advocates sharing their hopes and dreams for the next generation of people with Down syndrome. This is your reminder that your voice, your story, and your advocacy matter! - - - - SHOW NOTES Links from our Favorite Tips & Tools from the Adult Summit! Dream about employment. Sit down with a loved one and write down your future dreams and goals for employment. NDSS has resources and templates for future planning, entrepreneurship, starting a business with your family, and more! Check out their website to get started! Support businesses owned and run by people with Down syndrome. Follow them on social media, sign up for their newsletter, purchase their products, and share with family and friends. Friends, this holiday season, take a look at the NDSS interactive holiday gift guide to help you find businesses to support!  Apply for an ABLE account (tax advantaged saving account for individuals with disabilities) Sign up to be part of research. Stay up to date with research. Did you know NDSS even has a research studies page on their website where you can search by age and sign up for their newsletter where they send out new research opportunities from time to time! Look into the Alzheimer's research, if you are 35 or older talk to your doctor about Alzheimer's disease and prevention.  NDSS resources and Adult Down Syndrome center website has a resource gallery with videos and worksheets on dating, puberty, social boundaries, and more. Make a transition plan. Contact your department of rehabilitation. Pick up transition guide from NDSS table or download online. Take a step towards independence. Is there an area of life you dream of having more independence? Living alone? Making your lunch? Navigating your community? Initiating social fun with friends? Sit down with your loved ones and make a plan for the next steps to meeting that goal.  Sign up for the NDSS Advocacy conference. April 28-30. Watch the new NDSS PSA Town 21 Listen to EP 284 Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? Thank you to Camilynne Photography for capturing so many of our Adult Summit memories! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    285. The World We Deserve: LIVE From The NDSS Adult Summit

    Play Episode Listen Later Nov 26, 2024 66:27


    Friends, we had an epic time at the National Down Syndrome Adult Summit in Costa Mesa, CA! It's a weekend of connection and educational sessions on a variety of topics that address adulthood and aging for the disability community. We had the honor of helping to launch the NDSS Town 21 PSA and spoke with Town 21 news anchor Jessica Kishner about her role in the video, her passion for music, and her dreams. We also got the chance to talk with NDSS President Kandi Pickard and the creator of the NDSS Adult Summit, Jadene Ransdell, about the importance of dreaming big and creating opportunities. Together, we reflected on how we can take the energy and education from this weekend to better support adults with Down syndrome. This episode captures the inspiration, hope, and energy of the weekend and we're so excited to share it with all of you! This is an episode (and weekend) you don't want to miss! - - - - SHOW NOTES Watch the new NDSS PSA Town 21 Our episode with BTS of Town 21 on EP 284 Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream? Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Thank you to Camilynne Photography for capturing so many of our Adult Summit memories! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    284. Why Does Inclusion for People with Down Syndrome Have to be a Distant Dream?

    Play Episode Listen Later Nov 19, 2024 77:02


    We've talked about impactful PSAs that the Down syndrome community has put out over the years. Today we're talking about the most recent PSA from our friends over at the National Down Syndrome Society, if you haven't seen it already follow the link in our show notes and go watch their powerful, important, and impactful message and listen to some behind-the-scenes interviews on this weeks episode! We're chatting with the president of NDSS Kandi Pickard, an amazing couple Jeremy and Audrey featured in the wedding scene, and Jamie Weitzman whose kiddos Hannah and Jedidiah were featured in the crowd at the wedding! We're talking about every little detail, why it matters, and what we can do to help create this world that we all dream of for people with Down syndrome and that people with Down syndrome and disabilities deserve. This is an episode you don't want to miss!  - - - - - - SHOW NOTES Watch the new NDSS PSA Town 21 NDSS 2018 PSA Bridging the Gap Watch the NDSS 40th Anniversary PSA  Check out Jeremy & Audrey's Non-Profit Down Syndrome Rocks Our episode with Kandi Pickard celebrating their 45th anniversary: 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Our episode with Alex Bolden (who is in the closing scene): 277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson) Our episode with Matthew & Lucia: 244. Love, Advocacy, & A Viral Proposal (w/Matthew Schwab & Lucia Romano) Our episode with Craig & Heather:  231. Love, Marriage, & Eqaulity w/ Craig & Heather (w/Moms Lisa & Pat) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    283. Navigating Tube Feeding With Down Syndrome (w/Dr. Lauren Fiechtner)

    Play Episode Listen Later Nov 12, 2024 36:40


    Nutrition is key to a child's development, but for some children with Down syndrome, feeding challenges make it difficult to get the nutrition they need. That's where tube feeding comes in. Today, we're chatting with Dr. Lauren Fiechtner, Director of Nutrition at Mass General for Children, to talk about the different types of feeding tubes, why they are sometimes necessary, and the unique feeding challenges that children with Down syndrome may face. We're chatting about when tube feeding is typically used, the emotional and physical challenges parents may experience, and how feeding therapies and supportive resources can make a difference. We hope Dr. Fiechtner's compassionate advice helps families feel empowered and reassured as they navigate tube feeding and nutrition. - - - - - SHOW NOTES Learn more about Feeding Matters Learn more about The Oley Foundation JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Check out episode 174 on The Down Syndrome Learning Profile Check out episode 181 with NDSS team member Dana Sciullo and her brother Anthony! Check out episode 262 with NDSS President Kandi Pickard celebrating their 45 years of advocacy! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    282. Adoption, Purpose, and the Founding of RODS Heroes (w/Brady Murray)

    Play Episode Listen Later Nov 5, 2024 53:20


    Happy first week of November AND National Adoption Month! Today we're thrilled to welcome Brady Murray, the passionate founder of RODS Heroes. Brady's nonprofit has helped hundreds of children with Down syndrome find loving homes around the world. As a father of eleven—including two children with Down syndrome—Brady shares his personal journey with adoption, from being adopted himself to adopting seven of his children from around the globe. Hear the inspiring story behind how a triathlon became the seed for RODS Heroes, the miracles he's witnessed along the way, and why he believes that when we invest in causes greater than ourselves, we experience incredible transformation. This is an episode you don't want to miss! - - - SHOW NOTES Learn more about RODS Heroes Follow RODS Heroes on Instagram and Facebook Follow Brad Murray on Instagram Follow Cooper Murray on Instagram NBC Nightly News story of Cooper Murray throwing out MLB first pitches JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    281. Can A Person With Down Syndrome Shift Narratives? (w/ Hilary Gauld & Kate Herron)

    Play Episode Listen Later Oct 29, 2024 55:41


    This month we've celebrated Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we're joined by award-winning photographer Hilary Gauld and advocate Kate Herron for this episode all about answering the question: Can a person with Down syndrome Shift Narratives? In 2014, Hilary and Kate collaborated on a fundraising calendar featuring Kate's 10-month-old son, Caleb, for the Waterloo Wellington Down Syndrome Society (WWDSS). What began as a local project quickly grew into a decade-long advocacy journey, evolving into an internationally recognized series that challenges stereotypes and represents the Down syndrome community in meaningful, thought-provoking ways. Hilary's sharing how her friend Kate's invitation sparked her dedication to authentically representing the Down syndrome community, the impact her work has had on families seeing themselves and their loved ones reflected in media, and the powerful role of storytelling in breaking down barriers. We're also chatting about their documentary Decade, which celebrates the ten years of this incredible project, the impact the last ten years have had on their advocacy, what they hope for the future, and so much more! Friends, this is an episode you don't want to miss! - - - SHOW NOTES Follow One For The Wall on Instagram and Facebook Follow Waterloo Wellington Down Syndrome Society on Instagram Learn more about Decade documentary Check out the ‘Here I Am' series  People Magazine article about the series ‘Believe in Me' Check out all the incredible series from One For The Wall  JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! 174. Learning About the Down Syndrome Learning Profile! (ft. Jessica Kuss from the National DS Society) 181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) 262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    280. Can A Person With Down Syndrome Find Community & Belonging?

    Play Episode Listen Later Oct 22, 2024 58:45


    This month we're celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! On today's episode, we're answering the question: Can a person with Down syndrome find community & belonging? Today's conversation is sparked by a recent blog post of Heather's on why her daughter Macy didn't attend homecoming this year, we're chatting about what it truly means for someone with Down syndrome to feel a sense of belonging in school and their wider community. What can we all do to ensure inclusion happens? How can we help build bridges where isolation exists? From clubs and activities to real friendships, we're chatting about inclusion, community, and what happens when we work together to make existing opportunities even better. Do we have all the answers…never! But we have hope having these tough conversations helps build and maintain those bridges toward community and belonging. - - - - SHOW NOTES Read Heather's blog post Why My Daughter with Down Syndrome Won't be Going to Her Homecoming Dance Learn more about Best Buddies Listen to our episode with Val Schleider: 43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    279. Can A Person With Down Syndrome Live Independently? (w/Emily Kendall & Chad Mayer)

    Play Episode Listen Later Oct 15, 2024 61:01


     This month we're celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we're joined by Emily Kendall & Chad Mayer from EmpowerMe Living for this episode all about answering the question: Can a person with Down syndrome live independently? Today, we're talking about the incredible work of EmpowerMe Living, a program designed to support individuals with disabilities in choosing the best living arrangement for their unique needs. We're with EmpowerMe Living founder, Emily and Chad, who lives independently through the program, as they share their insights on independent versus supported living, overcoming challenges, and how EmpowerMe Living helps families navigate these important decisions. This is an episode you don't want to miss! - - - - SHOW NOTES Check out EmpowerMe Living's website to learn more about our: Incredible team  Microhome concept  First property in Cincinnati  Our Cincinnati Housing Market Analysis    First Place Global Leadership Institute –Check out their groundbreaking research on housing, including “A Place in the World” and their housing market analyses. Organizations can partner with First Place to conduct a housing market analysis in their community to collect and analyze data about housing needs and preferences directly from adults with I/DD and their families which can then be used to drive effective solutions.   Learn more about Beyond Down Syndrome – a wonderful resource for people with Down syndrome and their families focused on independence  Blog Emily wrote for this summer about trusting intuition advocating for her son with Down syndrome   Emily wanted us to share her son, Luke Kendall on the news! It has been awesome for Luke's confidence and skill building, foundations for independence!  Learn more about Timothy M Freeman Center, MD, Center for Developmental Disabilities provides adults with I/DD interdisciplinary, patient-centered healthcare. It is one of the few centers in the country pioneering this approach within an academic healthcare system.  Learn more about Enable Special Needs Planning to create a plan that enables your child with disabilities to live a great life JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the Adult Summit in Orange County and reserve your spot today! Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    278. Can A Person With Down Syndrome Travel The World? (w/ Erik & Emily Orton)

    Play Episode Listen Later Oct 8, 2024 63:34


    This month we're celebrating Down Syndrome Awareness Month with episodes based on popular Google search topics! Today we're joined by Erik & Emily Orton for this episode all about answering the question: Can a person with Down syndrome travel the world?  They're sharing their incredible story of sailing the Caribbean, with their family of seven and how their daughter Lily, who has Down syndrome, has inspired them to break boundaries, live without limits, and travel the globe! We're chatting about caregiver fatigue, challenging conventional ideas of therapies, parenting our kids with and without Down syndrome, and so much more. This is an episode you don't want to miss! - - - SHOW NOTES Follow Erik & Emily on Instagram Get your copy of Erik and Emily's book Seven At Sea  Check out Erik & Emily's Podcast and listen to their episode with Lily! Check out Erik & Emily's YouTube channel Learn more about how to sail with Erik & Emily for a week! JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    BONUS: Why Is The Use Of Terms Like "Mentally Disabled" As An Insult So Harmful?

    Play Episode Listen Later Oct 3, 2024 27:27


    Friends, we're coming to you with a BONUS episode this week. Over the years we've worked hard to provide you with topics that are helpful resources, to be sources of encouragement, and never shy away from difficult conversations. Today, we're coming to you with a difficult, yet important conversation. This one is taken directly from comments by one of the Presidential candidates. We want to be clear we're not endorsing either candidate but as a platform that promises to shout worth and work to shift narratives for people with Down syndrome each week, we feel this is an important conversation we need to have with all of you. We hope you'll join us in this unfiltered and honest conversation. - - - SHOW NOTES No Pity: People With Disabilities Forging A New Civil Rights Movement by Joseph R. Shapiro Listen to Amy Julia Becker's podcast Reimagining The Good Life Listen to Amy Julia Becker's episode with Anthropologist Tom Pearson  Articles about the comments: New York Times article Disability Scoop article Some helpful links on this topic: National Center on Disability and Journalism Terms to Avoid When Talking About Disability Words Matter! Disability Language Etiquette by the National Education Association How Ableism Affects People With Disabilities National Institute of Health article: Implications of internalised ableism for the health and wellbeing of disabled young people   Previous Episodes Like This: 88. (Un)learning the Advocacy Language 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 197. Exposing The Roots (Racism, Ableism, Microagressions, + More) 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    277. Can A Person With Down Syndrome Vote? (w/Alex Bolden & Genevieve Thompson)

    Play Episode Listen Later Oct 1, 2024 27:00


    Happy Down Syndrome Awareness Month!! We're celebrating this month with episodes based on popular Google search topics about people with Down syndrome. Today we're kicking off the celebration with Alex Bolden and Genevieve Thompson from the National Down Syndrome Society as we answer one of the most searched questions: Can a person with Down syndrome vote? Alex shares his experience voting for the first time, tips for deciding who to vote for, and resources like NDSS's free checklist and values inventory to help voters prepare. We also discuss how parents and caregivers can support their loved ones in the voting process and the importance of using your voice to shape policies that impact the Down syndrome community. This is an episode you don't want to miss as we head to the polls next month! --- SHOW NOTES Check Out NDSS Voting Resources: Downloadable checklist Downloadable Values and Beliefs Inventory More Resources To Check Out: Self-Advocates Becoming Empowered (SABE) GoVoter campaign  National Disability Rights Network (NDRN) voting resources Voter Registration Deadlines for all states JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, Jack's Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    276. What Can't People With Down Syndrome Do?

    Play Episode Listen Later Sep 24, 2024 65:53


    EP 276. What Can't People With Down Syndrome Do? Spotify Notes: We're a week away from the start of Down Syndrome Awareness Month! Today we're kicking off our celebration early with a conversation about common misconceptions people still have about Down syndrome. We'll be celebrating next month by talking to self-advocates, organizations, and parents who are breaking down the stereotypes of some of the most Googled misconceptions about Down syndrome. We're sharing our thoughts on the CoorsDown PSA ‘Assume That I Can' featuring Madison Tevlin and how campaigns like this work to shift narratives. We're chatting about how knowing and loving a person with Down syndrome has shifted how we value and see worth, no matter what someone can or can't do. Join us as we get this important conversation started! - - - - SHOW NOTES CoorDown's PSA Assume That I Can PSA with Madison Tevlin Read Heather's blog post What if my child with Down syndrome can't? CoorDown's Just The Two of Us PSA  Other episodes like this: 163. What does success mean to you? 185. What if my child with Down syndrome can't? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    275. Advocacy In Action: Amanda Owen on Building a Strong Community

    Play Episode Listen Later Sep 17, 2024 66:05


    Today, we're excited to chat with Amanda Owen, the founder and executive director of Puzzle Pieces! Amanda has dedicated her life to supporting individuals with intellectual disabilities—a passion deeply rooted in her own family's experiences. She's sharing her experience growing up with a sibling with disabilities and how the dynamic has evolved as an adult that led to her journey of starting a non-profit. We're chatting about having conversations around disability with our kids, how to cultivate meaningful and impactful friendships with people with disabilities, employment for adults with disabilities, group homes, and so much more! Friends, this episode is packed with incredible advice, stories, and even a few tears, this is an episode you don't want to miss! - - - - SHOW NOTES Learn more about Puzzle Pieces Learn more about Amanda's books Pre-order Amanda's new book Rarely Different: A Sibling's Memoir Learn more about Amanda's story  Follow Amanda Owen on Instagram Listen to last week's episode on volunteering: 274. Are We Losing The True Meaning of Volunteering? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    274. Are We Losing the True Meaning of Volunteering?

    Play Episode Listen Later Sep 10, 2024 52:25


    Friends, you know we ask all the questions…even if we don't have all the answers! Today, we're diving into a topic that hits close to home for many of us—volunteering. We're asking some tough questions: What happens when volunteering becomes more about extra credit or resume-building? How does this culture impact our efforts to shift harmful narratives? How can we make sure we teach our kids that volunteering isn't just for show or awards? We're chatting about how to make sure our volunteering efforts are intentional and meaningful, and our personal experiences that have made a meaningful impact. We know it's not about being the hero—it's about building bridges, we hope you'll join us for this important conversation and share your thoughts and experiences with us!  - - - - SHOW NOTES Learn more about 99 Balloons. Learn more about Kids To Kids. Other Episodes Like This: 28. Owning Your Influence In ALL Your Spaces! 43. Back to School & All Things Best Buddies w/Val Schlieder & Allison Covell 59. Finding Community at GiGi's Playhouse w/Nancy Gianni 151. Finding People That Don't Feel Sorry For You (ft. Jo Lopez) 169. The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 217. The Things People Say 221. A Letter To The Parents Of Our Kid's Peers 250. Who Has The Right To Use Down Syndrome Or Disability As A Punch Line? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off ! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSOR: Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    273. Breaking Down Barriers: The Parent's Role In IEP Success (w/Ashley Barlow)

    Play Episode Listen Later Sep 3, 2024 64:38


    We're excited to have Ashley Barlow back on the podcast today! We're discussing the power of parental involvement in IEPs and why it's so important for your child's educational success. Ashley breaks down her research and shares personal stories from her journey with her son Jack, who has Down syndrome. This episode is packed with practical advice on how you can take an active role in your child's education, navigate challenges, and become a stronger advocate. Whether you're facing challenges or just want to ensure your child's needs are met, this episode is full of advice you won't want to miss! --- SHOW NOTES Learn more about Ashley Barlow Co  Follow Ashley Barlow on Instagram Follow Ashley Barlow on Facebook Check out Ashley Barlow's Free and Affordable Resources Our previous episode with Ashley Barlow: 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow Learn more about the NDSS Advocacy Conference JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code BTS21 for 21% off (through August)! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Jack's Basket for sponsoring this episode! EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket EP 180 "You Make Me Better" (An Interview with Carissa Carroll, Founder of Jack's Basket) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    272. What Do We Wish We Knew Before Our First IEP Meeting?

    Play Episode Listen Later Aug 27, 2024 63:56


    Today, we're taking a trip down memory lane to revisit our very first IEP meetings! Let's be honest—those initial meetings can be a whirlwind of emotions: overwhelming, confusing, and sometimes even a bit intimidating. As we reflect on our experiences, we'll dive into the questions we wish we had asked, the support we didn't realize we needed, and the valuable lessons we've learned along the way. Whether you're preparing for your very first IEP meeting or you're a seasoned pro, we hope our stories bring you comfort, knowing you're not alone in this journey. And, of course, you might even share a few laughs with us as we look back on our IEP adventures! Friends, you're doing an amazing job, we got this!! --- SHOW NOTES More episodes like this: 39. Back to School w/IEP Experts Vickie Brett & Amanda Selogie 78. Building Trust (Not Barriers) w/Your Child's IEP Team 94. IEPs during Covid-19, ft. IEP Lawyers Vickie Brett & Amanda Selogie 131. BTS Pt 2 - Preparing for the School Year.. IEPS + Special Education w/Ashley Barlow 270. IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig) Learn more about Ashley Barlow Downloadable Resources from Rise Educational Advocacy JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code BTS21 for 21% off (through August)! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, ABLEnow for sponsoring this episode! 115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck) LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    271. Can Our Kids Have Authentic Friendships In Inclusive Settings? (w/Kathleen Downes)

    Play Episode Listen Later Aug 20, 2024 50:11


    We've had many candid conversations about friendship and inclusion over the years. Today we're excited to be joined by social worker, blogger, disability activist, and self-advocate, Kathleen Downes. Growing up in inclusive schools during the 90s, Kathleen shares her firsthand experiences, the struggles she faced in forming authentic friendships, and how involvement in disability-specific programs was pivotal in her life. We talk about the challenges that still persist in today's inclusive settings and the changes needed to support our kids in developing meaningful friendships. This conversation is packed with wisdom, practical advice, and heartfelt reflections, making it an essential listen for anyone committed to true inclusion. --- SHOW NOTES Follow Kathleen Downes on Instagram Check out Kathleen's blog The Squeaky Wheelchair Other episodes like this: 5. Friendship with GiGi's Playhouse and Just Like Me Foundation 6. Friendship Pt. 2 with Guest, Melynn Henry 10. Inclusion - An Educator's Perspective with Kristin Enriquez Pt. 1 11. Inclusion - A Parents Perspective with Kristin Enriquez Pt. 2 32. The (Beautiful) Reality of Befriending Someone with Down Syndrome 85. Is Inclusion Always The Best Option? 128. What To Expect From Inclusive Settings 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani 198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) 218. Creating Inclusion For All Learners (w/Tim Villegas)  221. A Letter To The Parents Of Our Kid's Peers 242. Is Inclusion A Privilege? JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! THANK YOU TO OUR SPONSORS: Thank you, National Down Syndrome Society for sponsoring this episode! Learn more about the NDSS Buddy Walk! Listen to Heather & Micha talk about their experience at last year's NYC Buddy Walk on 225. NYC Buddy Walk Highlights Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    270. IEP Success: How to Plan, Communicate, and Collaborate (w/April Rehrig)

    Play Episode Listen Later Aug 13, 2024 63:07


    We're excited to have April Rehrig, founder of Rise Educational Advocacy and Consulting, on this week! With over 20 years of experience as an elementary school teacher and school psychologist, April has spent her career empowering parents and students to achieve the best educational outcomes. From understanding the IEP's purpose to advocating for your child's unique strengths, April provides actionable tips on communicating effectively, collaborating with school teams, and resolving conflicts. Whether it's your first IEP or your fifth, April's advice will help you navigate the process confidently and clearly. Friends, we were taking notes this entire interview! Tune in to learn how to make your voice heard and ensure your child's strengths and interests are front and center this school year. - - - SHOW NOTES Follow Rise Educational Advocacy on Instagram Learn more about Rise Educational Advocacy  Check out these resources from April Rehrig: Template and Toolkit Store  Do it Yourself IEP Workshops  Learn more about the Individuals with Disabilities Education Act (IDEA) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    269. What Are We Really Measuring?: Redefining Worth & The IQ Test (w/Pepper Stetler)

    Play Episode Listen Later Aug 6, 2024 52:55


    Today we're excited to talk to Pepper Stetler about her new book A Measure of Intelligence: One Mother's Reckoning with the IQ Test. She's sharing her journey of questioning the authority and relevance of the IQ test after learning that her daughter, Louisa, who has Down syndrome, would be required to take it regularly to receive support in school. We're chatting about the unsettling history of the IQ test and how its contributed to everything from ableism to terms used by schoolyard bullies. Join us as we dive deep into this important conversation about how we define (and assume) intelligence, the impact of these tests on our education system, and what it truly means to understand an individual's potential. This is a conversation (and book!) you don't want to miss! --- SHOW NOTES Get your copy of A Measure of Intelligence: One Mother's Reckoning with the IQ Test Learn more about Pepper Stetler  More conversations like this: 80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy 163. What does success mean to you? 172. Defining Ableism, Allyship & Advocacy + Redefining "Inclusion" - ft. Dr. Priya Lalvani JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    268. First Responders and Teacher of Patience: A Lesson in Understanding

    Play Episode Listen Later Jul 30, 2024 58:09


    We're thrilled to have Carmen Vincent and Tom and Tina Felter join us to discuss their powerful Emmy award-winning documentary, Teacher of Patience. This film showcases the incredible journey of the Felter family and their daughter, Emily (who makes a surprise appearance!), who has Down syndrome. Tom shares the story behind developing The Emily Talk, a crucial presentation aimed at educating first responders about disabilities to prevent unnecessary tragedies, and how it led to meeting Carmen. We're chatting about the process of making a documentary, their hopes for the film, and how it can impact the broader conversation of disability and inclusion. Stay tuned as we explore how this inspiring story is making an impact. This is another episode you don't want to miss, friends! - - - - SHOW NOTES Learn more about ‘Teacher of Patience' Watch the trailer for ‘Teacher of Patience' Stream the film at home (including bonus videos) Screen the film for a group Learn more about The Emily Talk Learn more about the Ethan Saylor Alliance JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    267. What Is It Like To Have A Sibling With Down Syndrome? (Featuring Our Kids!)

    Play Episode Listen Later Jul 23, 2024 59:08


    Friends, the last two weeks we got to hear from some amazing siblings. Today we hope you'll join us for a very special episode, we're sitting down with our kids to talk about what it's like to have a sibling with Down syndrome. Micha chats with Ace's older brother Brooks (13), Mercedes sits down with Sunny's younger brothers Rhodes (9) and Shepard (7), and Heather with Macy & August's sister Truly (13)! They're sharing the things they love to do with their siblings, the advice they'd give other kids who have a brother or sister with Down syndrome, and so much more! From the everyday moments to the life lessons learned, we're sharing it all in these candid conversations with our kids. Listening to the way they describe their relationship with their siblings and the beautiful connections they each have makes us all appreciate the unique bonds that define our families even more. This is an episode you don't want to miss! - - - - SHOW NOTES Our July episodes with siblings Matthew & Thomas Von Der Ahe and Taylor Gardner Chaney: 265. Brotherly Love: From Childhood Adventures to Adult Dreams (w/Matthew & Thomas Von Der Ahe) 266. From Sibling Love to Community Change (w/Taylor Gardner Chaney) More episodes with the sibling perspective: 2. Siblings and Special Guests 93. The (Older) Sibling Perspective, ft. Pat Ramirez 157. Sibling Dynamics & Down Syndrome  181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    266. From Sibling Love to Community Change (w/Taylor Gardner Chaney)

    Play Episode Listen Later Jul 16, 2024 65:00


    Today we're chatting with another amazing sibling! Taylor Gardner Chaney is a passionate entrepreneur whose younger sister with Down syndrome has influenced her understanding of disabilities and guided her career choices. Taylor discusses viewing life as a series of seasons and how focusing on the "why" behind her work helps her push through challenging times. We explore the realization that siblings with disabilities often don't have the same choices and opportunities as those without, and how this awareness has shaped Taylor's perspective. She's sharing her journey advocating and her “why” behind starting The Garden Foundation LV, which provides resources and opportunities for individuals with disabilities. Friends, this is an episode packed with advice on sibling relationships, entrepreneurship, inclusion, and the power of community. This is another episode you don't want to miss! - - - - SHOW NOTES Follow Taylor on Instagram Follow Dig it! Coffee Co on Instagram and check out their website Follow The Garden Foundation LV on Instagram and check out their website More episodes like this! Listen to last week's episode with brothers Matthew & Thomas Von Der Ahe for another sibling perspective! 2. Siblings and Special Guests 93. The (Older) Sibling Perspective, ft. Pat Ramirez 157. Sibling Dynamics & Down Syndrome  181. How has your sibling changed your life? (ft. Dana & Anthony Sciullo from the NDSS team) More information and register for DSDN's Rockin Mom's Retreat in Las Vegas September 27-28!  JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    265. Brotherly Love: From Childhood Adventures to Adult Dreams (w/Matthew & Thomas Von Der Ahe)

    Play Episode Listen Later Jul 9, 2024 49:03


    Today, we're thrilled to chat with Matthew Von Der Ahe, known for his roles in 'Champions' and other films. Joined by his brother Tommy, they reminisce about childhood, explore their evolving adult relationship, and discuss maintaining their strong bond despite living apart. Matthew, an actor recognized for his work in 'The Secret Lives of Dorks' and 'Code Black,' is also active in the arts community and charity initiatives. Meanwhile, Tommy, a robotics enthusiast and former Loyola High School rower, now lives in Dallas, staying close with Matthew through FaceTime and visits. Their supportive dynamic shines as they share stories of family (18 cousins), pulling pranks, funny viral posts, sibling love, and mutual encouragement - they are each other's HYPE MAN. This episode celebrates their unique sibling bond and shared understanding of what it means to shift the narrative through enduring family ties. It's a good one, friends.   SHOW NOTES Listen to Episode 210 with Matt and Madison Tevlin celebrating the release of their film ‘Champions'  210. Champions On & Off Screen: Madison Tevlin & Matthew Von Der Ahe Follow Matthew on Instagram: https://www.instagram.com/mondays_with_matt/ Matthews IMDB: https://www.imdb.com/name/nm4204271/ Go Watch Champions today: https://www.focusfeatures.com/champions JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources.⁠ Become an essential part of The Lucky Few movement today! ⁠ DISCOUNT CODE Friends, grab your narrative shifting gear over on⁠ The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    264. Healing and Hope: Navigating Down Syndrome Regression Disorder (w/ Dr. Santoro & Dr. Quinn)

    Play Episode Listen Later Jul 2, 2024 59:52


    Today, we're chatting about the mysterious and challenging world of Down Syndrome Regression Disorder (DSRD). This condition has left many parents searching for answers as they witness profound changes in their children. Joining us are two leading experts, Dr. Jonathan Santoro and Dr. Eileen Quinn, who will share their insights and experiences from the frontlines of diagnosing and treating DSRD. Dr. Santoro serves as the Director of Neuroimmunology and Demyelinating Disorders Program and Director of Research for the Neurologic Institute at Children's Hospital Los Angeles. He also has clinical research expertise in DSRD. Dr. Quinn serves as the Medical Director of the Down Syndrome Clinic at ProMedica Ebeid Children's Hospital in Toledo. Dr. Quinn is also the mother of four perfect daughters, the youngest of whom, Sara, has Down syndrome. They're helping us understand the symptoms, treatment options, and the ongoing fight to understand this perplexing disorder. Friends, we're glad to bring this important conversation to everyone's attention. --- SHOW NOTES Read The Washington Post article featuring Dr. Santoro and Dr. Quinn Regression in Down Syndrome Facebook group Information on Down Syndrome Regression Disorder Facebook Group Additional resources from the National Down Syndrome Society (NDSS) Learn more about DSRD JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    263. Designs that Dance: A Tale of Friendship and Creativity (w/Dance Happy Designs)

    Play Episode Listen Later Jun 25, 2024 55:59


    Today, we're chatting with the creative minds behind Dance Happy Designs! Emily Scott is here to chat with us about the power of inclusive entrepreneurship, friendship, and creativity and share some of co-founder Julia's thoughts on their friendship and partnership, plus what her favorite design is! Emily shares their experiences creating high-quality, amazing designs and fostering an inclusive movement that centers and honors people with disabilities. Hear about their achievements, including being named a Tory Burch Foundation fellow, securing deals with Nordstrom and Aerie, and their commitment to collaborating with the Down Syndrome community. Plus, we hear about some new products AND they share an exclusive discount with our listeners! --- SHOW NOTES Exclusive 21% off Dance Happy Designs for our listeners if you use THELUCKYFEW Shop Dance Happy Designs Shop the Dance Happy Designs and NDSS collab  Shop Julia's Favorite Design Incana Follow Dance Happy Designs on Instagram and Facebook Learn more about The Tory Burch Foundation Fellowship  JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    262. 45 Years of Advocacy: A Conversation w/ NDSS President Kandi Pickard

    Play Episode Listen Later Jun 18, 2024 57:31


    We've been so grateful to have had the opportunity to collaborate with National Down Syndrome Society (NDSS) over the last few years. Today, we're chatting with Kandi Pickard, the President & CEO of NDSS, and celebrating their 45th Anniversary coming up on June 20th! Kandi is sharing the organization's journey from a support group that has grown into a major policy and advocacy organization, she shares her experience from becoming a volunteer to taking over as President & CEO, and what the future holds for NDSS! We chat about the honor of learning from and advocating alongside self-advocates, and the commitment NDSS has to representing the beauty and diversity of the Down syndrome community. We're so grateful for the vital work they do to support and create opportunities for the community, tune in and be inspired by Kandi's dedication and vision for the future of NDSS! --- SHOW NOTES Learn more about the National Down Syndrome Society (NDSS) Find NDSS on Facebook, Instagram, X, Tik Tok, YouTube, and LinkedIn Learn more about the history of NDSS Learn more about this year's 30th NYC Buddy Walk Learn more about the NDSS Policy Program Learn more about ABLE Accounts Learn more about this year's Adult Summit Learn more about the first Barbie with Down syndrome Download the New And Expectant Parent's Guide Check out our past episodes with Kayla McKeon & Charlotte Woodward: 17. Self Advocacy - Down Syndrome in DC with Kayla McKeon! 92. Politics & Down Syndrome w/Kayla McKeon & Ashley Helsing 160. Organ Transplant Discrimination Against People with Disabilities (ft. incredible advocates!) 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward Check out our episode from last year's Buddy Walk: 225. NYC Buddy Walk Highlights Learn more about the National Down Syndrome Congress (NDSC) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    261. Fearless Together: Lessons In Bravery, Hope, & Resilience (w/David and Andrew Olshine)

    Play Episode Listen Later Jun 11, 2024 47:45


    Join us for a special Father's Day episode featuring the dynamic father-son duo, David and Andrew Olshine! They share their inspiring journey of writing and publishing the book Fearless As A Honey Badger, Brave Like A Wolverine. Learn about the lessons they've learned, the message of hope and resilience they aim to share with the world, and how Andrew's remarkable recovery from Guillain-Barré syndrome inspired him to write the book. They also discuss the inspiration behind the powerful quotes included in the book, drawn from movies, Eleanor Roosevelt, Nelson Mandela, and Bible verses. Enjoy an excerpt read by Andrew himself and hear about his plans for his next book. This is a fun and heartfelt episode you don't want to miss! ---- SHOW NOTES Get your copy of Fearless As A Honey Badger, Brave Like A Wolverine Follow David & Andrew on Instagram Get your copy of David's book Mystery Of Silence Check out Mercedes' recommendation: All Creation Waits JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    260. What Did We Learn From This School Year?

    Play Episode Listen Later Jun 4, 2024 70:46


    Cheers to making it through another school year! Join us as we share our experiences, celebrate the successes, and learn from the challenges of the 2023-2024 school year. Discussing everything from what types of supports and settings worked for our kids, to the injustices in our education system and the reality of our kids still leading the way in 2024. We hope you'll join us as we reflect on the good and the hard another school year has brought. Remember friends, we're cheering you on every step of the way! SHOW NOTES Listen to our 2022 reflections: 209. End of School Year Reflections  Listen to our episodes with Dr. Vaish Sarathy: 80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy 220. Back To School Jumpstart w/Dr. Vaish Sarathy Hear more about Macy's journey this year: 243. Still, The Best We Can (w/Heather & Josh Avis) Listen to Micha's Podcast The Slow Way JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LuckyDad for 21% off (through 6/16)! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    259. Home Is Our Classroom: Homeschooling A Child With Down Syndrome

    Play Episode Listen Later May 28, 2024 60:38


    Friends, we know there are so many ways to learn, join us today as Mercedes chats with fellow homeschool mama Rachel Prescott about what it's like to homeschool kiddos with (and without!)  Down syndrome. Mercedes has homeschooled her daughter Sunflower who has Down syndrome and her three boys for over five years now, Rachel who has twin six-year-old daughters Nettie and Lottie who have Down syndrome, and two boys ages 8 and 10. They share what an average homeschool day looks like for them, the benefits they've seen for their families, resources they've found helpful, and so much more! Learn how co-ops, standardized testing, and therapies have played a role in their journeys so far, and what kinds of activities their kids have participated in. Whether you're considering homeschooling or are just curious about what a day in the life of a homeschool mama looks like, this episode is one you don't want to miss! --- SHOW NOTES Follow Rachel on Instagram Learn more about Handwriting Without Tears Learn more about The Dog Man Series JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off (through 5/31)! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    258. Unlocking Potential: Strategies For Every Learner With Down Syndrome (w/Mrs. Brown)

    Play Episode Listen Later May 21, 2024 62:28


    Friends, we're so excited to be joined by Mrs. Brown today, you've heard us mention her many times over the years! She has developed a successful and innovative program that teaches reading and other academic skills to learners ages three to adult. We learned about her passion and gift for teaching individuals with Down syndrome in 2018 and had her on the show during our first season. Today, she's back to talk about her program, “So Happy To Learn,” to share memorable teaching moments, give us tips and strategies for every learner, and so much more! We know we're headed into summer breaks and vacations, today our episode is packed with tips for summer learning and lifelong learners. As Mrs. Brown says, “Learning is continual!” --- SHOW NOTES Learn more about Mrs. Brown's So Happy To Learn At Home program Check out our last episode with Mrs. Brown in 2018!: 12. Education - So Happy to Learn with Mrs. Terry Brown JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code LUCKY for 21% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    257. Brother Do You Love Me?: A Journey of Resilience and Repair (w/Manni & Reuben Coe)

    Play Episode Listen Later May 14, 2024 74:03


    Friends, today we have Manni and Reuben Coe, two remarkable brothers from the UK, who are here to share their deeply moving journey and new book, brother. do. you. love. me. Their story is one of extraordinary resilience, heartwarming repair, and the profound rediscovery of brotherly love. These magical brothers remind us of the power of love and resilience. Their story is not just about overcoming obstacles; it's about finding strength in vulnerability, embracing hope in the face of adversity, and discovering the true meaning of brotherhood. This book and interview truly filled our hearts to the brim, grab a few tissues, this is an episode you don't want to miss! --- SHOW NOTES Learn more about brother. do. you. love. me. Order your copy now available in the US on Amazon, Barnes & Noble, find a local retailer JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    256. Celebrating Motherhood, Advocacy, & Community (w/Black Down Syndrome Association)

    Play Episode Listen Later May 7, 2024 67:28


    Friends, we put, “I'm A Really Good Mom” on a t-shirt because we know moms doubt this truth about themselves daily. Today in honor of Mother's Day we're celebrating the importance of community, friendship, and advocacy with our friends Kelli Caughman and Crystal Lotterberry! Kelli & Crystal are the founders of the Black Down Syndrome Association and they're here to have an unfiltered conversation about the messy and beautiful parts of being a mama! We're chatting about how Down syndrome has influenced our perspective on life and motherhood, our advice for those feeling overwhelmed, what we shouldn't have worried about (or if we ever worried), and so much more! Being a mama is the hardest and best, we want you to know you're doing a good job. Now say it with us, “I'm a really good Mom!” --- SHOW NOTES Follow Black Down Syndrome Association (BDSA) on Instagram and Facebook Learn more about the Black Down Syndrome Association  Join the Black Down Syndrome Association Facebook Family Group More episodes with our friends from BDSA!: 58. A Conversation About Race & Down Syndrome w/Mercedes Lara & Kelli Caughman  195. Connecting with the Black Down Syndrome Association (ft. Kelli Caughman & Crystal Lotterberry) JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  MICHA'S NEW BOOK Pre-order Micha's new book Blessed Are The Rest Of Us coming April 9, 2024! (All pre-order's purchased through Baker Book House receive a signed copy with a lucky few temporary tattoo!) DISCOUNT CODE Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off! HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

    255. A Haircut Beyond The Chair w/Vernon Jackson

    Play Episode Listen Later Apr 30, 2024 57:21


    Friends, we're so excited to have barber Vernon Jackson on the show today! In his barbershop and salon in Ohio, haircuts are more than just a service—they're an act of love and understanding. Through his viral program, The Gifted Event, Vernon provides free haircuts to children with disabilities, offering them patience, empathy, and a sense of belonging. A lifelong creative with a passion for serving others, he's committed to seeing The Gifted Event continue to expand across the country and world, making barbershops and salons a safe and inclusive space for everyone. More than just a barber, Vernon is shaping a future where everyone feels embraced and accepted, one haircut at a time. NOTE: This interview contains some adult language. --- SHOW NOTES Follow Vernon Jackson on Instagram Follow Vernon Jackson on TikTok Follow Vernon Jackson on Facebook Follow Vernon Jackson on Youtube Learn more about The Gifted Event JOIN THE MOVEMENT Join us in celebrating and supporting The Lucky Few Podcast! For just $0.99, $4.99, or $9.99 a month, you can help us continue shouting worth and shifting narratives for people with Down syndrome. Your support makes a difference in our ability to create meaningful content, enable us to cover production costs, and explore additional opportunities to expand our resources. Become an essential part of The Lucky Few movement today!  THANK YOU TO OUR SPONSOR: Thank you, Enable SNP for sponsoring this episode! 47. Planning for the Future w/Phillip Clark from Enable SNP 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP DISCOUNT CODE Mother's Day is coming! You know this. But did you know we have a “I am really good mom shirt”?! Just for Mother's Day, we are offering a 21% discount on all orders until Mother's Day. Head over to theluckyfew.co and use code: LUCKYMAMA  HELP US SHIFT THE NARRATIVE Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information! LET'S CHAT Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes. --- Send in a voice message: https://podcasters.spotify.com/pod/show/theluckyfewpod/message Support this podcast: https://podcasters.spotify.com/pod/show/theluckyfewpod/support

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