Family, Whanau and Disability

Ursula Christel has 3 sons. In 1998 her middle son was diagnosed with Angelman Syndrome, a rare condition that affects 1:15,000 people. As life got busy, so did Ursula. She co-founded The Angelman Network, a NZ based registered charity that shares up-to-date information about Angelman Syndrome and offers support to families in New Zealand. She attended as many disability related workshops as she could to help support her family and to continue to grow her work with The Angelman Network.Just before her son turned 18, an opportunity presented itself for her to create a PATH plan for him, in preparation for transitioning from school. This process created a vision that she could focus on and base any major decisions on. It helped her decide where she should relocate to, in order to realise the vision. Now in 2021 her son has moved into a house with friends and is living independently from Ursula,  with support, to ensure he continues a good life.Programme Synopsis Jo talks to her guest Ursula about the Enabling Good Lives principle of beginning early. They talk about the process that Ursula undertook to create a vision for her son's future that would ultimately create a 7-year plan for her son that would result in him living independently in a house nearby, with friends. They discuss the fact that by planning early for her son's future meant that she was able to make decisions easily, as she had a clear goal that they were heading towards.LinksAngelman NetworkRodney Inclusive CommunitiesImagine Better - Developing a Vision for the futureJane Bawden former Parent to Parent CEO video on her journeyParent to Parent New Zealand IncEnabling Good Lives principlesAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Presenters: Jo Hannah Produced by Parent to Parent NZGuests: Jo Ellis  Jo Ellis is a single mum to Harvey, an enthusiastic, inquisitive teenage boy that was born with Cri Du Chat Syndrome. Prior to Harvey being born, Jo had lived overseas but returned to her hometown in New Zealand to set up a new life for her and Harvey not long after he was born. Jo has navigated the world of disabilities with her son for 15 years, and over this time she has purposely built relationships with those around her to help build support not only for Harvey but also herself. She is a strong believer in the importance of connection and building solid foundations to thrive. She knows it is not always easy to make connections and that it is something you need to work at. She understands first-hand what a difference it can be to surrounding yourself with people that are truly there for you and your child.Programme Synopsis  Jo talks to her guest Jo about relationship building and why it is important to build and maintain strong relationships and connections with the wider community, whanau and any providers that come into your life to offer support for your familyLinksCri du Chat Support Group NZAltogether Autism article on Circle of  SupportTalking about Surrounding Yourself with support - Care MattersParent to Parent's Support Parent ServiceParent to Parent's information on Support groupsParent to Parent New Zealand IncEnabling Good Lives principlesAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Presenters: Jo HannahProduced by Parent to Parent NZGuests: Frian WadiaFrian Wadia is a mother of  3 lovely boys 16yrs, 14yrs and 12yrs old, all with varying disabilities and learning needs.   Through her experiences within the education and health systems, she has become a passionate advocate for creating systemic change to ensure inclusion and enabling a meaningful dignified life for all individuals with disabilities. She is particularly interested in the creation of a truly inclusive education system.Her  constant endeavours are aimed at empowering families and disabled people; improving systems, policies and legislation to ensure disabled children's rights are upheld; and equity is ensured for all children irrespective of their abilities, socioeconomic status, neurodiversity and any other challenges. Programme SynopsisJo talks to Frian about what mainstream first has meant to her family and ways that other families can work with their child's school to ensure that they have an inclusive educational environment  for their child.LinksMinistry of Education: the team that will support your child - https://parents.education.govt.nz/learning-support/learning-support-needs/the-team-that-will-support-your-child/Parent to Parent New Zealand Inc VIPS Equity in Education Enabling Good Lives principlesAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Lisa PirihiPresenters: Louise RatcliffeProduced by: Parent to Parent Support and Information TeamGuestsMark SmithManaging Director of CareerMovesProgramme SynopsisLouise and Mark discuss how CareerMoves support people with disabilities and employers to work together to enable independent employment opportunities.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksCareer Moves NZParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise Ratcliffe and David TaylorProduced by Wintec Music and Performing ArtsGuestsPeter van VroonhovenPeter's connection to disability and para-sports is through his son who plays Powerchair Football.He coordinates the sport in the Waikato and is Vice President of New Zealand Powerchair Football's national body - https://parafedwaikato.co.nz/about-us/board/Programme SynopsisLouise and David talk to Peter about how he and his son Will got involved with powerchair football and how much of a positive impact it has had on their whole family's life.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksParafed WaikatoNZ Powerchair FootballWaikato Wasps FacebookIntro to Powerchair football from a UK playerDr Michael Jeffress research paper on “Opportunities and Benefits for Powerchair users through power soccer Arron “Wheelz” FotheringhamParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise Ratcliffe and David TaylorProduced by Louise Ratcliffe with help from Wintec Music and Performing ArtsGuestsSteve Brown – ex chef, therapist with expertise in disability and autismPhil Brown – mental health nurseProgramme SynopsisDavid and Louise talk to Steve and Phil about the work they do for families of children with autism, at the animal sanctuary in the WaikatoTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksTakiwatanga Sanctuary TrustAnimal Welfare Organisations & CharitiesOtorohanga Waikato 3975Parent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise RatcliffeProduced by Louise Ratcliffe with help from Wintec Music and Performing ArtsProgramme SynopsisLouise ask the Minister about what is in this new “Wellness Budget” that is going to benefit disabled people and the people who support them.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise RatcliffeProduced by Louise Ratcliffe with help from Wintec Music and Performing ArtsProgramme SynopsisLouise ask the Minister about what is in this new “Wellness Budget” that is going to benefit disabled people and the people who support them.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksOffice for Disability Issues budget informationParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise Ratcliffe and David TaylorProduced by Louise Ratcliffe with help from Wintec Music and Performing ArtsProgramme SynopsisLouise and David interview the Parent to Parent Volunteer Co-ordinator Carol Armstrong about the recent SafeSquares campaignTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise Ratcliffe and David TaylorProduced by Louise Ratcliffe with help from Wintec Music and Performing ArtsProgramme SynopsisLouise and David interview the Parent to Parent Volunteer Co-ordinator Carol Armstrong about the recent SafeSquares campaign.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise Ratcliffe and David TaylorProduced by Louise Ratcliffe with help from Wintec Music and Performing ArtsGuests: Tiffany WilkinsonTiffany lives in Tauranga and works for Enrich + as a community facilitator, helping people with disabilities integrate into the community. She has a Bachelor's degree in Early Childhood and a Masters in Disability and Inclusion studies, with experience working in mainstream and special education schools in both NZ and London. Tiffany has a brother with ASD and an intellectual disability, and so has been passionate about equality and inclusion from a young age.Tiffany has been involved with Parent to Parent's SibSupport programme since she was 18 and is a member of the SAMS board. She lives next door to her brother and helps care for him 2-3 times a week. In her spare time she works as an extra for TV and loves musical theatre, particularly singingProgramme SynopsisLouise and David discuss the issues of planning for the future when you have children with special needs and what you might need to considerLouise and David talk to Tiffany Wilkinson about what she and her family have done to plan for the future for her brother to have the best life he can.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise RatcliffeProduced by Wintec Music and Performing ArtsGuests: Barbara NelsonDirector, Kauri CentreBarbara Nelson spent the last 5 years as a Liaison Teacher at Westbridge Residential School. She worked with families in their homes, helping parents to support their children getting back into school. Prior to Westbridge Barbara was Day School Principal at Salisbury Girls in Nelson for 10 years where she and the Deputy Principal developed a support programme for the girls transitioning back home, into local school and into their local community.She is about to start a new role as Director at The Kauri Centre in Hamilton; an alternative education center where students are prepared and supported back into mainstream schooling.Programme SynopsisLouise asks Barbara for advice on helping children with special needs get ready to return to school after the long summer holidaysLinksMinistry of Education: the team that will support your child - https://parents.education.govt.nz/learning-support/learning-support-needs/the-team-that-will-support-your-child/Parent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise RatcliffeProduced by Louise Ratcliffe with Wintec Music and Performing ArtsProgramme SynopsisIn the run-up to Christmas Louise talks through some practical ideas for managing Christmas with special-needs children, and how to minimise stress and maximise fun this holiday seasonMusic“Christmas in the Summertime” by The Funky MonkeysTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Louise RatcliffePresenter: Louise RatcliffeProduced by Louise Ratcliffe and Wintec Music and Performing ArtsGuests: Matthew PeppercornTASK Mental WellnessMatthew has worked as a nurse for 25 years in mental health and intellectual disability. He has a IDCCR Act care manager diploma and has completed three post graduate papers. He has been integral into the planning of and restyling of both new and existing services in the care sector. He has done this both in England and NZ. He has lived in NZ for 15 years. When he isn't nursing he enjoys mountain biking, live music and gardening. He is also a free style rapper.Programme SynopsisLouise finds out how anxiety presents in people, and how it differs from day-to-day stressMatthew gives us some practical strategies for preventing and dealing with anxiety, withreference to Christmas and the holiday season being a particularly stressful time of year for parents.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksTASK Mental WellnessDepression NZSparx online game for anxiety and depressionSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise RatcliffeProduced by Wintec Music and Performing Arts DepartmentGuestsJanine MorrahJanine is Parent to Parent's Manawatu Regional Coordinator. She is a Palmy local with strongconnections to the community through sports and teaching. Janine's prior work history has included teaching both domestic and international Studends. She has also spent time working as a caregiver in New Zeland and the UK.Lorna SullivanLorna is the Director of Mana Whaikaha, the Manawanui prototype for the development of Enabling Good Lives.Wendy O'MiraWendy is a Connector with Mana Whaikaha in the Mid Central region.Programme SynopsisLouise finds out all about the new pilot programme for Enabling Good Lives - Mana Whaikaha – being rolled out in the Mid Central RegionTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksMana WhaikahaSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa PirihiPresenters: Louise RatcliffeProduced by Wintec Music and Performing Arts DepartmentGuests Rebecca Armstrong - ResearcherRebecca is a researcher for Altogether Autism and Parent to Parent. Rebecca researches complex requests and consults with the Professional Expert Group (PEG). She also writes for the Altogether Autism Journal and is involved in the PRISM Professional Development Series. Rebecca completed a masters degree in Applied Psychology at the University of Waikato in 2015. Rebecca has worked with children with autism, in the school and home environment, since 2013.Programme SynopsisLouise and Rebecca discuss the meaning of the social vs the medical model of disability, and what that means for how we care for people in society.MusicBy Jason Long - Senior Academic Staff MemberProgramme Coordinator – Music Internship DirectorTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Ali BeasleyAli Beasley lives in Nelson with her husband Keith and their two teenage children, George and Emilia.Emilia was diagnosed with autism at the age of seven, which had a profound impact on the whole family. Ali has recently written a book, Emilia's Colours, which shares the highs and lows of living with a child with a major disability in words that are frank, touching and ultimately hopeful.Ali is an English graduate, with a background in residential social work with deaf adults in the UK, and has also worked as a Grant writer for Whenua Iti (an outward bound charity) in the Nelson region. She is a lover of the natural world (walking, yoga and Qigong) and also reading and poetry.Ali is a fierce advocate for disability issues, and in writing Emilia's Colours hopes to support other parents who may be struggling to cope with the unpredictable nature of life with an autistic child. She also aims to raise awareness and a better understanding of this ‘invisible' disability.Programme SynopsisAli tells Louise all about their family journey to Emilia's diagnosis and how it has impacted their livesMusicTrue Colours by Cyndi LauperRainbow Connection version by Gwen StefanieTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Ali BeasleyAli Beasley lives in Nelson with her husband Keith and their two teenage children, George and Emilia.Emilia was diagnosed with autism at the age of seven, which had a profound impact on the whole family.Ali has recently written a book, Emilia's Colours, which shares the highs and lows of living with a child with a major disability in words that are frank, touching and ultimately hopeful.Ali is an English graduate, with a background in residential social work with deaf adults in the UK, and has also worked as a Grant writer for Whenua Iti (an outward bound charity) in the Nelson region. She is a lover of the natural world (walking, yoga and Qigong) and also reading and poetry.Ali is a fierce advocate for disability issues, and in writing Emilia's Colours hopes to support other parents who may be struggling to cope with the unpredictable nature of life with an autistic child. She also aims to raise awareness and a better understanding of this ‘invisible' disability.Programme SynopsisAli tells Louise all about their family journey to Emilia's diagnosis and how it has impacted their livesMusicTrue Colours by Cyndi LauperRainbow Connection version by Gwen StefanieTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Rebecca ArmstrongMAppPsy, Researcher, Parent to Parent Rebecca researches complex requests and consults with the Professional Expert Group (PEG). She also writes for the Altogether Autism Journal and is involved in the PRISM Professional Development Series. Rebecca completed a masters degree in Applied Psychology at the University of Waikato in 2015. Rebecca has worked with children with autism, in the school and home environment, since 2013Programme SynopsisSelf-care and self-compassion for parentsUnderstanding and re-framing challenging behaviourMusic“Working for the children” KGBTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksRoss Greene – The Explosive Child:Livesinthebalance.orgSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Louise RatcliffePresenter: Louise RatcliffeProduced by Louise Ratcliffe and Wintec Music and Performing ArtsTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: David TaylorDad, Husband, Carer, Builder, Inventor David grew up on Waiheke Island the youngest of 4 siblings. In the 1970s, his older brother, Ken, had a motorbike accident which left him an amputee and with severe spinal injuries. Eventually, David and his wife decided to care for Ken in their own home as he needed round-the-clock care as his condition slowly deteriorated.David cared for his brother for over 10 years, both by himself, and as Lead Carer working alongside care support agencies.Over the years David has learned a lot about the rollercoaster of providing care for a loved one, and he has kindly agreed to share his story with us.Programme SynopsisBeing a carer, the support you needWorking with agencies and hiring care support workersDavid's story continues next weekMusic“No one's heros” Stiff Little FingersTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.Linkshttp://www.healthvision.co.nzhttp://www.lifeplus.co.nzPresbeterian Support NZSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Tyler BrummerOperations and Research Lad, MyCare Tyler co-founded WeVisit along with Sam Johnson which aimed to improve the lives of elderly and young people by matching them up in mutually beneficial relationships. In 2017, they merged WeVisit with Mycare to grow and scale what they started at WeVisit and help Mycare realise its ambition of creating a community & relationship based model of home care where choice and real human connections are at the core. At Mycare Tyler leads the operations and research teams, spending much of his time listening to people who use, or could benefit from Mycare, and improving what they do all the time.Programme SynopsisHow MyCare works for both support workers and people looking to hire support workersImproving community relationships in order to improve the worldMusic“I'll take care of you” Dixie ChicksTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.Linksmycare.co.nzenablinggoodlives.co.nzSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Tina LincolnFamily Member Facilitator (SAMS)Tina has 19 years' experience in the disability sector and has been with SAMS for 11 years. Tina believes everyone should be treated equally and have opportunities in the community. Tina has a wide range of experience – having a family member with a disability and Level 4 Certificate in Social Services. She is also a member of the National Co-design Transformation Team for Enabling Good Lives and a Co-facilitator for the mid-central Regional Leadership group. Tina lives in Fielding and enjoys her journey with her links to Te Atiawa whanau.Programme SynopsisHow people currently access support services and how this will change with the Disability TransformationCare Matters workshops and how people can get together to effect changes in theirlocal communityHow the transformation will enable the disability community to have greater say inwhat services and supports they want and how that may be a way to make mainstream businesses more accessibleMusic“Handle with Care” The Travelling Wilburys“Friends” Elton JohnTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.Linkshttp://www.sams.org.nzhttp://www.imaginebetter.co.nzhttp://www.enablinggoodlives.co.nzhttps://altogetherautism.org.nzSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenter: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Programme SynopsisLouise discussing teaching sex ed to her own children, and how that can include discussions on consent, sexuality and disabilityA short discussion on teaching non-disabled people how to become more inclusive andunderstanding of disability in the world around them.Music“If I had one wish” The Mutes (from Mars)“Teach your children” Crosby, Stills, Nash and YoungTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksScarleteen.comAll About S.E.X.: The Scarleteen Book!Touretteshero.comSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Sue PairaudeauDirector, MyKind MyKind director Sue Pairaudeau spent 23 years in the media as a newspaper journalist, sub-editor, and editor, and trained as a volunteer LifeLine counsellor.That was followed by head of communications for a nationwide natural health retailer, beforechoosing to work specifically for a non-profit, rather than in retail. She landed at Parent to Parent as Business Development & Communications Manager.Sue and her husband have adult family members with various disabilities, and are family oriented – married for 7 years they have a blended family of six children ranging in age from 17 to 37, and four grandchildren. They recently started MyKind – a social and dating space for people with/without disabilities.Programme SynopsisThe difficulties around dating while disabled and the new MyKind websiteAn excerpt from the book S.E.X. from the Scarleteen website (link below)Music“Take Your Mama” Scissor SistersTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksMyKindAll About S.E.X.: The Scarleteen Book!SafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Val Ockenden and Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Continued conversation with Julia Drury from last weekProgramme SynopsisExcerpts From One In Five December 2014Teaching children about the birds and the bees is often challenging. But it can be tougherstill for parents whose young people have learning difficulties. Katy Gosset from One in Five meets sexual health educator Annette Milligan who is helping those families to navigate puberty and all it brings.The end of last weeks discussion with Julia Drury from Family Planning about talking to all young people about sex and relationships, and the resources available to support parents and schools to do that.Music“A kiss is not a contract” Flight of the ConchordsTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksOne In Five: Health Clickhttp://www.healthclick.co.nzhttp://www.healthclick.co.nz/sex-smart/http://www.familyplanning.org.nz/advice/parents-and-carersSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Val Ockenden and Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Julia DruryJulia Drury is a Health Promoter for Family Planning, based in the Hamilton Office, covering the Midland region.She supports schools, professionals, community groups and agencies with sexuality and relationships related education programmes, training and events.In this role she promotes a positive view of sexuality so that people are able to make informedchoices and have access to accurate information, quality sexual health services and relationship education.She has been with Family Planning for over 20 years and is passionate about all aspects of sexuality education.Programme SynopsisSupporting parents and educators teaching children about sex and relationships, especially children with additional needs.Family Planning resources and courses.Music“Lets talk about sex” by Salt and PepaTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksFamilyplanningSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenters: Val Ockenden & Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Denise IvesDenise Ives has a background in teaching adults to use computers and IT projectmanagement. She has a diploma in Breastfeeding Counselling and took a certificate in teacher aiding shortly after arriving in NZ, working as a teacher aide at a primary school. She is a full-time home-educating mum to Nash, and also has a 24 year old son and three year old granddaughter. Denise founded the charity The Breast Room in Dunedin, which provides free one-to-one counselling and support for breastfeeding Mums.Programme SynopsisTrans children and neurodiversity – Nash's storyGender Identity and AutismMusic“For today I am a boy” Antony and The JohnsonsTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksAlphabet Soup FacebookSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research and co-ordination: Lisa Pirihi and Carolyn JuryPresenters: Val Ockenden & Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Guests: Mike PulmanMike Pulman is a 26 year old advocate, public speaker and content creator based in Hamilton. He was a 2016 Youth with Disability Award winner and has been the Guest Speaker for several events, including the Enabling Good Lives Waikato Launch. Mike believes in the power of having a dream, and one of his core values includes advocating for the rights of people in marginalised communities. His mission in life is to provide a voice to the voiceless and inspire people to believe in their inner greatness. He believes in the uniqueness of people, and says that his disability and the wheelchair he sits in will never be his defining characteristic. Mike has Spinal Muscular Atrophy and is a power chair user.Programme SynopsisThe rights of disabled people to have romantic and sexual relationships and the stigma attached to disabled people wanting to do so.How parents need to be supported in discussing sex and relationships with their children - The Whole of Life approachMusic“Body was made” by Ezra FurmanTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.Linksrealmichaelpulman.comSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenters: Val Ockenden and Louise RatcliffeProduced by Louise Ratcliffe and FreeFM89.0Programme SynopsisEdited excerpt from One in Five programme (link below) with Wellington panel discussing disability and sexuality back in June 2008Introduction to Sexuality and Gender Identity discussion with Val and LouiseMusic“Sexuality” Billy BraggTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksOne in Five for June 15th 2008SafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Rachel WiltshireRachael Wiltshire found out she was an Aspie when she was 12, and graduated Dux of Samuel Marsden Collegiate School in 2012. Rachael has completed four years of study at university majoring in History and Earth Sciences, and is currently studying dance fulltime (or was, until she tore a ligament in her ankle- hopefully surgery will be able to fix that, and she'll head back to dancing next year). She hopes to become a dance teacher, a secondary school teacher, or ideally, both. Rachael currently works part-time tutoring high school students and teaching dance. She particularly enjoys being a dance tutor for StarJam, a charity that provides dance and music workshops for children and young people with disabilities. Rachael tour guides at the Great War Exhibition, combining her interests in history and performance. Education and autism are two of her special interests, and she enjoys sharing her own experiences as a student in the hope that this will help others successfully navigate the education system. Rachael has presented at the Altogether Autism conferences in Auckland in 2015 and 2017.Programme SynopsisGirls and women are not diagnosed with Autism as often as boys and menThe difference in how Autism presents in girls compared to boysHow we can support the families around these girls and women with AutismMusic“Who I am” by Jessica AndrewsTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.Girls vs boys brain development, impulse control etchttps://www.nature.com/articles/srep07272https://link.springer.com/article/10.1007/s40473-015-0031-8http://psycnet.apa.org/record/2011-00025-004Women on the Autism SpectrumLiane Holliday WileyTemple GrandinLinksSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Paula Jessop and Jason EdgecombePaula Jessop is an autistic woman who advocates for ‘radical acceptance' of autism as a valid type of neurological difference and supporting autistic people through strengths-based methods. She has been a member of a range of autism reference groups most recently including a Te Pou group aimed at formulating an autism skills framework for the disability workforce. Along with being a founding member of the Consumer Reference Group, Paula works with Altogether Autism in an advisory role as an autistic advocate.Paula has strong connections with Autistic communities and works as an independent autism mentor through her own business Autism Insights as well as working for Enrich+ co-facilitating an autistic youth group and supporting disabled people living in community. Paula also gives ‘lived experience' workshops for Altogether Autism or Autism Insights aimed at assisting parents and professionals to understand autism from ‘the inside'.Jason Edgecombe is an entrepreneur, speaker, mentor, gamer, martial artist, medieval reenactor, husband and father and has high-functioning autism. Jason is the founder and a mentor at One Unique Minds (formerly Breaking the Label), a Tauranga-based organisation that offers one-on-one and small group mentoring and personal development to people on the autism spectrum. The aim of Jason's peer mentoring service is not to help people manage or accept their ‘special needs' and its limitations, but to identify and develop the strengths and amazing talents that each person on the spectrum has to offer.Programme SynopsisThe language around neurodiversityAcceptance and celebration of neurodiversityMusic“Bird set free” by SiaTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksJason Edgecombe TedX talkPaula Jessop's BlogSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Catherine Trezona M.A. Psychology (1st Hons) National manager at Altogether AutismCatherine joined Altogether Autism as a researcher in 2014, and moved into a managerialrole in 2015. She is one of the programme developers and lead facilitators for PRISM.Catherine takes the principle of ‘nothing about us without us' seriously and highly values theinput of Altogether Autism's consumer reference group. In 2016, Catherine worked with herson Kieran, a software developer at Powershop, to offer a two-day employment skillsworkshop for autistic talent, and from this small seed, the relationship between AltogetherAutism and Specialisterne Australia has developed. Catherine is determined to establish theproven and successful Specialisterne programme into Aotearoa New Zealand and has thebacking of Life Unlimited charitable trust to achieve this.Timothy FolkemaTimothy currently works at Progress to Health. He is a Community Support Facilitator,specialising in advocacy, peer support and peer mentoring for autistic persons and generalsupport for anyone with a long-term disability. Timothy has been serving the people atProgress to Health for near-on five years. Timothy is a passionate advocate for the Autisticcommunity and the Vision-Impaired/Blind community. He chairs the Hamilton speakeasyJazz Club, is a keyboard/piano player in a Funk-Hip-Hop band called Funk Therapy, a keencollector, and is interested in Japanese culture. He is a graduate of Wintec, "A" studentMusic Producer and also holds a Graduate Certificate in Teaching English to Speakers ofOther Languages (TESOL). Timothy has previous experience with supporting Taekwon-Do forpersons with disabilities under the International Taekwon-Do Federation (HQ Austria).Programme SynopsisThe difficulties faced by Autistic people looking for employmentThey way companies can benefit from employing Autistic peopleSpecialisterneMusic“Just Us” by The Mutes (from Mars)“For The Funk” by Funk TherapyTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksAltogether AutismSpecialisterneProgress to HealthSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Joanne DacombeJoanne Dacombe has spent 21 years working at the Reserve Bank in the area of monetary policy. She was diagnosed with autism later in life and has a son on the Autism Spectrum. Joanne currently serves on the Board of Autism New Zealand as well as the Board of the ASK Trust, an autistic-led organisation for autistic adults.Cat Noakes-DuncanCat is the mother of three beautiful children, two with a diagnosis of autism spectrum disorder. Recently Cat founded 'Spectrum Playgroup' a community playgroup for children on the autism spectrum, their siblings and families. Cat is trained in Early Childhood Education and is currently undertaking a Postgraduate Diploma in Specialist Teaching: Autism SpectrumDisorders.Programme SynopsisThe difficulties parents have trying navigate the education system with an Autistic childParenting a child on the Autistic SpectrumInclusive EducationMusic“Same Page” Rich Austin, from Memories Forever albumTune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.LinksFurther information on Joanne Dacombe - https://altogetherautism.org.nz/autism-information/6433/6433/Autistic Burnout - https://boren.blog/2017/01/26/autistic-burnout-the-cost-ofcoping-and-passing/Further information on Spectrum Playgroup -https://altogetherautism.org.nz/autism-information/6390/playgroup-providescare-support/https://www.radionz.co.nz/national/programmes/ninetonoon/audio/2018617601/spectrum-playgroup-a-special-place-for-kids-with-autismhttps://www.richaustinmusic.com/index.htmlhttps://altogetherautism.org.nz/SafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Justine BrockAccredited Facilitator for Vision Education and parent of five boys on the Autism SpectrumFrom Vision Education website: I have been working as a literacy facilitator for Vision Education since the beginning of 2013 and as a team leader for Vision Education since 2014. I have experience working with a wide range of schools, who face a variety of complex challenges including low literacy achievement.As a literacy facilitator, an integral part of my role is to develop and strengthen effective literacy practice across schools. In order to do so, I hold strong content knowledge and experience in many aspects of literacy practice, including but not limited to the following:ReadingWritingOral languageInquiryCulturally Responsive PedagogyMentoring and leadershipBuilding leadership capacityAssessmentEnglish Language LearningInclusive educationDigital technologyI am an accredited facilitator available for centrally funded PLD. Click here to read a summary of practiceDr David Wales PhDNational Director of Learning Support, Ministry of EducationFrom Ministry of Education website: We are the Government's lead advisor on education. Our mission is to lift aspiration and raise educational achievement for every New Zealander. Achieving this means ensuring the education system:Enables every child, young person and student to succeedMaximises the contribution education makes to the New Zealand economyProgramme SynopsisAs part of the services Vision Education provides for schools, there is a focus on inclusive practice - particularly supporting schools to review and implement inclusive practices that meet the needs of all learners.Just over 25 years ago, a new vision for special education was written into law. TheEducation Act was changed so that schools were required to enrol all children who camethrough their doors, including those with disabilities. In 2010 the public were invited to participate in the Review of Special Education by responding to a discussion document featuring questions on special education and inclusiveness (see info below). This reviews approximately half of schools practiced inclusive education. A review in 2013 showed that 77 percent of schools identified as inclusive.Music“We are the same” by Mark GoffeneyLinksbigtoerocks.com/facebook.com/The-Real-Mark-Goffeney-500011805726/education.govt.nz/ministry-of-education/specific-initiatives/learning-support/visioneducation.co.nz/welcome/SafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0Guests: Paula Tesoriero, MNZM Disability Rights CommissionerDisability advocate, former Paralympian and Human Rights Commission's Disability Rights Commissioner. Working for the rights of disabled New Zealanders, she is an amputee and a mum to a five-year-old son. Paula Tesoriero took up her three-year appointment as the Human Rights Commission's Disability Rights Commissioner on July 31, 2017. “Ms Tesoriero has a significant record of working to increase awareness of disability issues,” Associate Justice Minister Mark Mitchell said at her appointment in June. “She is well informed on New Zealand's international human rights standing and her legal background and understanding of the machinery of government will be advantageous in the context of the Commission's work.” Since February 2016 Ms Tesoriero has been General Manager, Systems and Partnerships with Statistics New Zealand. From 2010-2016 she was General Manager Higher Courts with the Ministry of Justice. Ms Tesoriero created history with her world record-breaking time in thewomen's 500m cycling time trial at the Beijing Summer Paralympics in 2008, securing New Zealand's first gold medal at the Games.Hon Carmel Sepuloni Minister for Social Development and Disability issuesCarmel Sepuloni is our new Minister of Disability issues. Carmel is of Samoan, Tongan and NZ European descent. Born and raised in Waitara, she has lived in Auckland since 1996. Carmel has always been committed to improving social, health and educational outcomes for all New Zealanders, but has especially focused during her career on low socio-economic groups; Māori, Pacific, disabled people and sole parents. During her political career Carmel has brought to the fore the slashing of the training incentive allowance, made public the impact of cuts to ACC funding for survivors of sexual violence, campaigned for better legislation around social workers and fought for the right to privacy for social service users. As the Minister forSocial Development and Disability issues Carmel is looking forward to building a fairer welfare system that treats New Zealanders with the respect, upholds their dignity and supports them and their families to realise their potential.Outside of politics Carmel has worked broadly across the health and education sectors as a Literacy Educator with youth in West Auckland, teaching in Samoa, managing equity programmes at the University of Auckland, managing the Pacific nonregulated Pacific health research project, and acting as CEO of New Zealand's only National Pacific health provider, Vaka Tautua.Carmel is the mother of two boys aged four and 19.Programme SynopsisUnderstanding the role of the Disability Rights Commission, its relationship with government, its process in resolving issues and advocating for individuals and changeOverview of government policy and initiatives in the disability spaceMusic“Get up, stand up” Bob MarleyLinkshttp://www.labour.org.nz/carmelsepulonihttps://www.odi.govt.nz/nz-disability-strategy/SafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0GuestsCarolyn JurySupport and Information Co-ordinatorI have been involved with Parent to Parent for 10 years, first as a requester looking for support and information, then as a volunteer support parent and now as the Support and Information Coordinator at National Office in Hamilton. I have previously worked as a medical professional, but in recent years I retrained as a counsellor, graduating in 2015 with a Bachelor of Applied Social Science from Wintec in Hamilton.Ruth TaylorExecutive Co-ordinatorRuth has been connected with Parent to Parent since 2008 as a programme coordinator and trainer. She is currently responsible for coordinating a range of workshops, seminars and support events, including the unique SibSupportNZ programme.Jo EastwoodExecutive ManagerJo is passionate about providing the right tools to help people with disabilities and healthimpairments live the lives they choose. With a Diploma in Comprehensive Nursing (1989) and working as a Registered Nurse in Australia and New Zealand, Jo met her desire to help people.Programme SynopsisConnecting parents - Parent to Parent operates a parent support network for families raising a child with a disability in New Zealand. We have a network of more than 600 speciallytrained volunteer support parents. We connect families with support parents who have a family member with the same/similar disability or issue. The role of the support parent is to be the ‘listening ear' who can empathise and understand the challenges and joys of raising a child who is different.Sibling Support –The longest relationship a person with a disability has is with their brother and/or sister. Living with a brother or sister who has a disability can be a blessing and a challenge. The SibSupportNZ programme offers young people support to thrive in their own unique family environment through SibCamps, SibShops and SibDays. Our SibSupport programmes are run by facilitators who are assisted by leaders who have also grown up with a sibling with a disability, again sharing that ‘lived experience' level of understanding.Information Service - Our dedicated research team provides free, researched, evidencebased information to families, and those involved in a family's care, on nearly 4,000 conditions each year, from the very rare to the more common. The information is designed to be easy to understand, written in plain English (also available in different languages) and is tailor-made for your child's individual condition or issue.There is no limit to the number of requests a parent can make for medical conditionsthemselves and related-issues, from diagnosis to adulthood. Parent to Parent can provide information for early childcare learning centres, schools, workplaces and any organisation that works with, and for, people with disabilities and health impairments.Music“Retail Blues” by The Mutes (from Mars)Linksthemutes.bandcamp.comfacebook.com/themutesfrommarsenablinggoodlives.co.nzSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only

Research: Rebecca ArmstrongPresenter: Val OckendenProduced by Louise Ratcliffe and FreeFM89.0GuestsAnne Wilkinson ONZMEnabling Good Lives (EGL)Anne's involvement in the sector began over 30 years ago as a parent. She has a background of working with families and for 25 years worked for and held a number of roles within Parent to Parent New Zealand. In early 2016 she resigned after 12 years as Chief Executive, but continues to be a volunteer Support Parent and member of the organisation. Anne has been involved with EGL since 2011, currently serving on the National Leadership Group and the Waikato Leadership Group. She believes disabled people have the same rights as others to have control over their lives, and that families are an integral part in achieving this.Jacqui StokesWaikato Support Parent“I found out about Parent to Parent when my son was diagnosed at two years old. It supported me by helping getting assessed for respite care and putting me in touch with another parent whose child had the same diagnosis. “When I moved to Hamilton I started going to coffee mornings. It was nice to chat with other mums who were going through the same things. From there I was asked to join the committee and become a Support Parent.“Since becoming a Support Parent I have talked and listened, and even met with otherparents who have the same diagnosis as my son. I have been on and off the committee overthe years and have always been willing to support the group that help support me especiallythrough my son's younger years.”Programme SynopsisIntroduction to Connect, Inform, Support podcast.A history of Parent to Parent from Anne Wilkinson who has been with the organisation for almost 30 years.Lived experience from Jacqui Stokes who has been actively involved as a volunteer Support Parent for 15 years.Tune in to Parent to Parent's podcast Connect, Inform, SupportConnect, Inform, Support features interviews with professionals and specialists on disability-related topics, and is a source of information and resources for families and whānau caring for people with disabilities.Discussion topics cover a range of subjects related to disability and special needs, such as inclusive education, supporting someone with special needs, and the challenges and triumphs of living with disability.Linksenablinggoodlives.co.nzSafesquaresParent to Parent New Zealand IncAltogether AutismCare Matters or 0508 236 236 freephone service for carersMana Whaikaha – MidCentral only