Podcast appearances and mentions of ann campanella

This episode is our contribution to Podcasthon, a global collaboration of podcasters to raise awareness of their favorite charities. Our favorite charity is us. We are a 501 (c) (3) organization. Please be generous. Donate at AlzAuthors.com. In this deeply personal and informative episode, hosts Marianne and Christy are joined by panelists Jean Lee, Ann Campanella, Loretta Woodward Veney, and David Iverson, all caregivers for ten or more years, as they explore the five pillars of caregiving – emotional toll, physical strain, financial difficulties, social isolation, and coping strategies. Key Themes & Takeaways: Emotional Toll: Caregivers shared moving personal stories of grief, guilt, and anger while navigating their loved ones' dementia journeys. There is strength in allowing yourself to grieve, as highlighted by Ann Campanella, who stated, “Grieving clears the way to bring in joy and beauty.” Physical Strain: From exhaustion to disruption of sleep cycles, the taxing demands of caregiving impact physical health drastically. David emphasized practicing self-care through exercise and staying physically active as a necessary coping mechanism. Financial Difficulties: A significant challenge highlighted was the cost of care, with inputs from Jean, Loretta, and Dave emphasizing the overwhelming need for better elder care policies. Loretta noted how caregivers should proactively explore local programs like Medicaid waiver lists early on for financial support. Social Isolation: Many caregivers expressed feeling isolated, especially given the stigma surrounding dementia diagnoses. Loretta found joy in keeping her mother socially active, even organizing creative activities like Lego building to keep her mother engaged. Strategies for Coping: Incorporating joy into daily routines was a recurring theme, especially for Loretta, who promised her mom “a little bit of joy every day.” The authors shared reminders to stay connected with loved ones and leverage support groups for affirming connections and shared experiences. After the Podcast Learn more about the panelists Purchase their books Alzheimer's DaughterBeing My Mom's MomMotherhood: Lost and FoundWinter Stars: An elderly mother, an aging son, and life's final journey  Note: we are an Amazon Associate and may receive a small commission on book sales at no additional cost to you or the authors.  Learn more about the Moderators Marianne Sciucco Christy Byrne Yates About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

I'm again speaking with Ellen Bayens of theceliacscene.com to go over some of the articles she has brought to our attention over the past month and allow me to give my opinions and insight. Sometimes we come across a company that is doing their best to meet our gluten free needs, but may not have the foundational knowledge of the gluten free diet to do so. This was the case with a storefront that sold ice cream and offered their on-site made gluten free cones. Ellen was able to speak with the owner regarding the questionable safety of the cones and now the company is better informed and able to let their celiac customers know they cannot guarantee the cones to be gluten free. Their understanding and current transparency is a plus for us. Ellen also made us aware of a manufacturing change at Prana Foods to no longer offer gluten free oats in their products. There is somewhat of a disconnect between producers and consumers in getting this important information out there. We hear an update on story Ellen and I spoke about in August 2022 when I interviewed author Ann Campanella. Recently Ann has won an award for her book Celiac Mom. You can listen to the original conversation at - https://bit.ly/Ep233CeliacMom. Ellen has discovered a new cookie/dessert jar business that is gluten free and also vegan, so dairy and egg free as well. The special news here is that the products are very decadent and can be shipped across Canada – so if you want to send a tasty gift to someone this might be a good bet! CELIAC SCENE NEWS Ice Cream Vendor Dishes Up Transparency Reminder: Prana Organic Rescinds Gluten-Free Label on Oat Products Celiac Mom Memoir Readers' Favorite Silver Medalist Winner GLUTEN-FREE PRODUCTS & SERVICES Shop KR's Cookies & Desert Jars - Gluten-Free & Vegan! Sue's Websites and Social Media – Podcast https://acanadianceliacpodcast.libsyn.com Podcast Blog – https://www.acanadianceliacblog.com Email – acdnceliacpodcast@gmail.com Celiac Kid Stuff – https://www.celiackidstuff.com Baking Website – https://www.suesglutenfreebaking.com Instagram - @suesgfbaking YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL Email – sue@suesglutenfreebaking.com Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I'm again speaking with Ellen Bayens of theceliacscene.com to go over some of the articles she has brought to our attention over the past month and allow me to give my opinions and insight. Sometimes we come across a company that is doing their best to meet our gluten free needs, but may not have the foundational knowledge of the gluten free diet to do so. This was the case with a storefront that sold ice cream and offered their on-site made gluten free cones. Ellen was able to speak with the owner regarding the questionable safety of the cones and now the company is better informed and able to let their celiac customers know they cannot guarantee the cones to be gluten free. Their understanding and current transparency is a plus for us. Ellen also made us aware of a manufacturing change at Prana Foods to no longer offer gluten free oats in their products. There is somewhat of a disconnect between producers and consumers in getting this important information out there. We hear an update on story Ellen and I spoke about in August 2022 when I interviewed author Ann Campanella. Recently Ann has won an award for her book Celiac Mom. You can listen to the original conversation at - https://bit.ly/Ep233CeliacMom. Ellen has discovered a new cookie/dessert jar business that is gluten free and also vegan, so dairy and egg free as well. The special news here is that the products are very decadent and can be shipped across Canada – so if you want to send a tasty gift to someone this might be a good bet! CELIAC SCENE NEWS Ice Cream Vendor Dishes Up Transparency Reminder: Prana Organic Rescinds Gluten-Free Label on Oat Products Celiac Mom Memoir Readers' Favorite Silver Medalist Winner GLUTEN-FREE PRODUCTS & SERVICES Shop KR's Cookies & Desert Jars - Gluten-Free & Vegan! Sue's Websites and Social Media – Podcast https://acanadianceliacpodcast.libsyn.com Podcast Blog – https://www.acanadianceliacblog.com Email – acdnceliacpodcast@gmail.com Celiac Kid Stuff – https://www.celiackidstuff.com Baking Website – https://www.suesglutenfreebaking.com Instagram - @suesgfbaking YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL Email – sue@suesglutenfreebaking.com Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

North Carolina author Ann Campanella was awarded the 2024 Silver Medal for her memoir, Celiac Mom, in the Non-Fiction Health/Medical Category in the Readers' Favorite International Book Awards on September 1st.Campanella's memoir, a “go-to” resource in the gluten-free community, tells the story of her daughter's celiac diagnosis at the age of five and the family's subsequent transition to a gluten-free lifestyle. “I'm honored to receive this award and especially pleased to help raise awareness about the condition of celiac disease,” says Campanella.You can learn more about Ann Campanella on her website: https://anncampanella.com/ Hosted on Acast. See acast.com/privacy for more information.

In this podcast, host Marianne Sciucco is joined by an ensemble of talented poets to officially launch our anthology, Poetry for the Dementia Journey. This collection brings together caregivers who have personally navigated the complexities of caregiving, diagnosis, and emotional upheavals tied to Alzheimer's and dementia. They write about many of the situations common to caregivers: the impact of the initial diagnosis, moving into assisted living or memory care, saying goodbye. From touching moments with loved ones to the nuanced challenges of caregiving, these poems offer solace, understanding, and a break from the isolating silence often surrounding dementia. Whether you're a caregiver, a family member, or someone seeking to understand the impact of Alzheimer's, this anthology and today's episode provide a profound sense of connection and empathy. You'll experience a myriad of emotions, from sadness to joy, despair and hope. In the end, you will be comforted in knowing that you are not alone. Takeaways: · Gain insight into the profound impact of personal storytelling on Alzheimer's. · Understand the unique challenges and emotional impact of early onset Alzheimer's on families. · Explore the benefits of creative expression in providing holistic care for individuals with dementia. Purchase Poetry for the Dementia Journey Timestamps and page numbers: 2:30 Mariana Mcdonald, Diagnosis, p.30 5:06 Austin Alexis, Dementia Intrigue (not in book) 7:12 Sue Fagalde Lick, You Dance, p.80 8:42 Gail Thomas, A Daughter's Garland, p.114 10:28 Judith H. Montgomery, Mother's Day at Aspen Ridge Assisted Living, p.101 12:10 Ann Campanella, Child Mother, p.62 13:43 Margaret Stawowy, Mother Country, p.162 15:33 Eileen Kennedy, Ritual, p.59 16:41 Joy Johnston, At the Crossroads, p.167 17:47 Sherri Levine, Stealing Flowers from the Neighbors, p.147 20:37 Patricia McKernon Runkle, Given the Mother Word PURE, p.119 21:52 Alan Bern, Boxae, p.17 24:59 Kelly Dumar, Mrs. Bean's Snow, p.158 29:00 Renee Terry Mucci, Life, p.127 30:55 Eileen Kennedy, End of Day, p.60 31:59 Mariana Mcdonald, All the Books, p.31 34:10 Austin Alexis, The Patient, p.95 36:58 Gail Thomas, Alchemy, p.116 39:47 Alan Bern, Dream of Tangles, p.15 40:40 Judith Montgomery, Sometimes, p.103 43:56 Kelly Dumar, How He Asks, p.157 45:15 Ann Campanella, Beyond Words, p.63 47:01 Margaret Stawowy, Signs of Her Decline, p.163 About the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

In this podcast, host Marianne Sciucco is joined by an ensemble of talented poets to officially launch our anthology, Poetry for the Dementia Journey. This collection brings together caregivers who have personally navigated the complexities of caregiving, diagnosis, and emotional upheavals tied to Alzheimer's and dementia. They write about many of the situations common to caregivers: the impact of the initial diagnosis, moving into assisted living or memory care, saying goodbye. From touching moments with loved ones to the nuanced challenges of caregiving, these poems offer solace, understanding, and a break from the isolating silence often surrounding dementia. Whether you're a caregiver, a family member, or someone seeking to understand the impact of Alzheimer's, this anthology and today's episode provide a profound sense of connection and empathy. You'll experience a myriad of emotions, from sadness to joy, despair and hope. In the end, you will be comforted in knowing that you are not alone. Takeaways: ·      Gain insight into the profound impact of personal storytelling on Alzheimer's. ·      Understand the unique challenges and emotional impact of early onset Alzheimer's on families. ·      Explore the benefits of creative expression in providing holistic care for individuals with dementia. Purchase Poetry for the Dementia Journey Timestamps and page numbers: 2:30 Mariana Mcdonald, Diagnosis, p.30 5:06 Austin Alexis, Dementia Intrigue (not in book) 7:12 Sue Fagalde Lick, You Dance, p.80 8:42 Gail Thomas, A Daughter's Garland, p.114 10:28 Judith H. Montgomery, Mother's Day at Aspen Ridge Assisted Living, p.101 12:10 Ann Campanella, Child Mother, p.62 13:43 Margaret Stawowy, Mother Country, p.162 15:33 Eileen Kennedy, Ritual, p.59 16:41 Joy Johnston, At the Crossroads, p.167 17:47 Sherri Levine, Stealing Flowers from the Neighbors, p.147 20:37 Patricia McKernon Runkle, Given the Mother Word PURE, p.119 21:52 Alan Bern, Boxae, p.17 24:59 Kelly Dumar, Mrs. Bean's Snow, p.158 29:00 Renee Terry Mucci, Life, p.127 30:55 Eileen Kennedy, End of Day, p.60 31:59 Mariana Mcdonald, All the Books, p.31 34:10 Austin Alexis, The Patient, p.95 36:58 Gail Thomas, Alchemy, p.116 39:47 Alan Bern, Dream of Tangles, p.15 40:40 Judith Montgomery, Sometimes, p.103 43:56 Kelly Dumar, How He Asks, p.157 45:15 Ann Campanella, Beyond Words, p.63 47:01 Margaret Stawowy, Signs of Her Decline, p.163 About the Moderator Marianne Sciucco About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store  

In Episode 92, Don and I talked with three prolific writers who have made profound literary  contributions to the Dementia community and now pooled their talents and love of poetry to launch a beautiful anthology, “Poetry For the Dementia Journey”, that sprung from an online event featuring over 30 poets. (This just may be one of my favorite episodes!!) Marianne Sciucco is not a (dementia) nurse who writes but a writer who happens to be a nurse.  Her novel, Blue Hydrangeas, an Alzheimer's Love Story, is a testament to the power of love in the face of this heart wrenching disease.  She has since launched her own podcast “Untangling Alzheimer's and Dementia: An AlzAuthors Podcast” and is the Co-founder of the non-profit AlzAuthors.com, a global community of over 300 dementia-centered writers. Ann Campanella is the manager/director of AlzAuthors and is a former magazine and newspaper editor. She is the author of two award-winning memoirs and four collections of poetry. Her first memoir, Motherhood: Lost and Found, tells the story of her mother's descent into Alzheimer's and was named “One of the best Alzheimer's books of all time,” by Book Authority two years in a row. Sue Fagalde Lick has been nominated for the Pushcart Prize in both fiction and nonfiction and won first prize in Willamette Writers Kay Snow Awards for poetry.  Sue is co-founder of the Central Coast chapter of Willamette Writers  and former president of the Oregon Poetry Association.  Her latest release,  No Way Out of This, is a meSupport the Show.JOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME Follow us on Twitter, FB, IG, & TiK Tok

Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care. Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Potts's therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience. We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream. Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry. Three Key Takeaways 1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity. 2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating. 3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving. About the Authors Sherri Levine, Stealing Flowers from the Neighbors Sue Fagalde Lick, Gravel Road Ahead Daniel Potts, MD, Bringing Art to Life Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas About the Moderators Ann Campanella, What Flies Away and The Beach Poems Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Pre-order our new anthology, Poetry for the Dementia Journey. Register for our Poetry Reading June 3 at 4 pm EST. About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Welcome to another insightful episode of Untangling Alzheimer's and Dementia, and a replay of our recent book club with Aging and Amazing. In this episode, we bring together a panel of poets who share a common thread—each has navigated the challenges of caring for a loved one with dementia. Your hosts, Marianne Sciucco and Ann Campanella, along with guest authors Daniel Potts, MD, Sue Fagalde Lick, Sherri Levine, and Margaret Stawowy delve into the world of poetry as a powerful outlet for expressing the complex emotions tied to Alzheimer's and dementia care. Listen as these courageous caregivers discuss how poetry provides solace and a sense of connection amidst the trials of caregiving. From Sherri Levine's poignant reflections on taking flowers to her mother in hospice, to Margaret Stawowy's candid portrayal of medicating her mother, and Dan Potts's therapeutic use of art and poetry to connect with his father, each story shines a light on the personal battles and moments of tenderness that define the caregiving experience. We also have laughter amid the hardships as Sue Lick shares a day in the life at a nursing home through her evocative poetry. Don't miss her heartwarming tale of memory care residents joyously indulging in ice cream. Tune in to find inspiration, empathy, and perhaps a new way to process your own experiences through the beauty of poetry. Three Key Takeaways 1. Therapeutic Expression: Poetry serves as a potent form of therapy, helping caregivers process complex emotions and find joy amidst adversity. 2. Community and Support: Sharing stories and artistic expressions can cultivate a community of support, making the dementia journey less isolating. 3. Finding Humor: Embracing moments of joy and laughter is crucial, as highlighted by our lighthearted story, showing the importance of positivity in caregiving. About the Authors Sherri Levine, Stealing Flowers from the Neighbors Sue Fagalde Lick, Gravel Road Ahead Daniel Potts, MD, Bringing Art to Life Margaret Stawowy, co-editor of Storms of the Inland Sea, an anthology with Jim Cokas About the Moderators Ann Campanella, What Flies Away and The Beach Poems Marianne Sciucco, Blue Hydrangeas, an Alzheimer's love story Pre-order our new anthology, Poetry for the Dementia Journey. Register for our Poetry Reading June 3 at 4 pm EST. About the Podcast  AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here. Thanks for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Find us on The World Podcast Network and babyboomer.org Want to be on the podcast? Here's what you need to know We've got merch! Shop our Store

Navigating college life is no simple task, let alone dealing with the added challenges of living with celiac disease. Yet, Sydney, the daughter of my latest guest Anne Campanella, author of 'Celiac Mom' managed to do just that. Hear their powerful journey as Ann recounts the struggles and victories in managing celiac disease on a bustling college campus. From creating a makeshift cooking facility in a dorm room to grappling with food safety in the cafeteria, Sydney's story illustrates the resilience and strength of those with celiac disease.This episode delves deeper into the experiences of college students living with food restrictions. Through the support of Sydney's friends and her own determination, she has navigated her way to a more empathetic and supportive environment. Ann's openness not only educates but also provides a perspective that many can relate to and learn from.Many of the tips and advice shared in today's episode can also be transferred over into the workplace.Learn more about Ultimate Celiac System here www.belindawhelan.com/ultimateceliacsystem Join my free community and grab your copy of 11 Mistakes People Make Living Gluten Free here www.belindawhelan.myflodesk.com/11mistakesCheck out my Daily Health Tracker hereHEALTH TRACKER | The Healthy Celiac (belindawhelan.com)And I would love to connect with you on Instagram thehealthyceliacIf you have a spare moment, please pop over to Apple Podcasts and leave me a review. Thank you!Music Credit bensound.com 

And now, another installment in our occasional series, Midday in the Neighborhood, which we are producing in conjunction with our partners at the Baltimore Banner. Today, we turn our focus to Little Italy, a historic neighborhood filled with great places to eat, and families whose legacies extend back for generations. Joining Tom in Studio A is Baltimore Banner neighborhood reporter Clara Longo de Freitas, who covers communities on the east side of the city… Mary Ann Campanella joins us as well, via Zoom from her home in Little Italy. A lifelong resident and community activist in the enclave, she is featured in a recent Banner story that Clara and Jasmine Vaughn-Hall wrote about people who are living in their childhood homes…See omnystudio.com/listener for privacy information.

The beginning of September means I have the opportunity to chat with my friend Ellen Bayens of theceliacscene.com.  On this episode we talk about strategies for parents and teachers to be on the same page about the celiac student and their needs during the school year.  Ellen has some great suggestions.  We also talk briefly about a student exchange program and the person in charge of the special diet requirements.  I hope to speak with her about this interesting topic on a separate podcast very soon.  In science news, researchers have come up with a tool to help doctors determine the risk of celiac disease to some of their youngest patients, and it turns out the gut microbiome has lots more to tell us, and this time it's about the very specific differences in the small intestine, depending on where the same of the microbiome was taken from.  These advances in science will hopefully mesh together to allow for a better diagnosis rate in the future. Ellen and I talk about some of my recent podcasts including the story telling author Ann Campanella in her book Celiac Mom (https://bit.ly/Ep233CeliacMom).  Ellen also comes clean about her interest in my co-host Arron's ongoing journey after bariatric surgery.  Seasons are changing and Ellen fills us in on where the food trucks go, as the weather gets colder. Here are the links to Ellen's articles – NEWS FROM THE CELIAC SCENE What to Tell the Teacher About Your Gluten-Free Child Are We Close to Predicting the Onset of Celiac Disease in Children?  Have You Thought About Hosting an International Exchange Student? Small Intestinal Microbiome: An Understudied Ecosystem in Celiac Disease Aaron's Recovery Hampered by Heat Sue's Websites and Social Media – Podcast https://acanadianceliacpodcast.libsyn.com Podcast Blog – https://www.acanadianceliacblog.com Email – acdnceliacpodcast@gmail.com Celiac Kid Stuff – https://www.celiackidstuff.com Baking Website – https://www.suesglutenfreebaking.com Instagram - @suesgfbaking YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL Email – sue@suesglutenfreebaking.com Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

The beginning of September means I have the opportunity to chat with my friend Ellen Bayens of theceliacscene.com.  On this episode we talk about strategies for parents and teachers to be on the same page about the celiac student and their needs during the school year.  Ellen has some great suggestions.  We also talk briefly about a student exchange program and the person in charge of the special diet requirements.  I hope to speak with her about this interesting topic on a separate podcast very soon.  In science news, researchers have come up with a tool to help doctors determine the risk of celiac disease to some of their youngest patients, and it turns out the gut microbiome has lots more to tell us, and this time it's about the very specific differences in the small intestine, depending on where the same of the microbiome was taken from.  These advances in science will hopefully mesh together to allow for a better diagnosis rate in the future. Ellen and I talk about some of my recent podcasts including the story telling author Ann Campanella in her book Celiac Mom (https://bit.ly/Ep233CeliacMom).  Ellen also comes clean about her interest in my co-host Arron's ongoing journey after bariatric surgery.  Seasons are changing and Ellen fills us in on where the food trucks go, as the weather gets colder. Here are the links to Ellen's articles – NEWS FROM THE CELIAC SCENE What to Tell the Teacher About Your Gluten-Free Child Are We Close to Predicting the Onset of Celiac Disease in Children?  Have You Thought About Hosting an International Exchange Student? Small Intestinal Microbiome: An Understudied Ecosystem in Celiac Disease Aaron's Recovery Hampered by Heat Sue's Websites and Social Media – Podcast https://acanadianceliacpodcast.libsyn.com Podcast Blog – https://www.acanadianceliacblog.com Email – acdnceliacpodcast@gmail.com Celiac Kid Stuff – https://www.celiackidstuff.com Baking Website – https://www.suesglutenfreebaking.com Instagram - @suesgfbaking YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL Email – sue@suesglutenfreebaking.com Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I'm thrilled to speak with Ann Campanella about her book Celiac Mom.  Ann's daughter was diagnosed at the age of 5 many years ago.  Ann reflects on her struggles as a parent of a celiac.  Her flair for story telling is often vivid and pulls at our heart strings.  Being a parent of a celiac child, we often find ourselves very protective.  This approach can take many forms, so each family's story is different.  Ann draws us in with the detail that I'm sure her daughter has long since forgotten, but stays with parents as they navigate these troubled waters.  Ann talks about dealing with schools, choices of friends, and the good and bad about family vacations.  You can find out more about Ann and order her book in either digital or paper form on her website or on Amazon.  Ann is an accomplished author and shares more about her other works on her website as well.  Links are also on her website to her various social media accounts. http://www.anncampanella.com/ Sue's Websites and Social Media – Podcast https://acanadianceliacpodcast.libsyn.com Podcast Blog – https://www.acanadianceliacblog.com Email – acdnceliacpodcast@gmail.com Celiac Kid Stuff – https://www.celiackidstuff.com Baking Website – https://www.suesglutenfreebaking.com Instagram - @suesgfbaking YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL Email – sue@suesglutenfreebaking.com Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

I'm thrilled to speak with Ann Campanella about her book Celiac Mom.  Ann's daughter was diagnosed at the age of 5 many years ago.  Ann reflects on her struggles as a parent of a celiac.  Her flair for story telling is often vivid and pulls at our heart strings.  Being a parent of a celiac child, we often find ourselves very protective.  This approach can take many forms, so each family's story is different.  Ann draws us in with the detail that I'm sure her daughter has long since forgotten, but stays with parents as they navigate these troubled waters.  Ann talks about dealing with schools, choices of friends, and the good and bad about family vacations.  You can find out more about Ann and order her book in either digital or paper form on her website or on Amazon.  Ann is an accomplished author and shares more about her other works on her website as well.  Links are also on her website to her various social media accounts. http://www.anncampanella.com/ Sue's Websites and Social Media – Podcast https://acanadianceliacpodcast.libsyn.com Podcast Blog – https://www.acanadianceliacblog.com Email – acdnceliacpodcast@gmail.com Celiac Kid Stuff – https://www.celiackidstuff.com Baking Website – https://www.suesglutenfreebaking.com Instagram - @suesgfbaking YouTube - https://www.youtube.com/playlist?list=PLUVGfpD4eJwwSc_YjkGagza06yYe3ApzL Email – sue@suesglutenfreebaking.com Other Podcast – Gluten Free Weigh In – https://glutenfreeweighin.libsyn.com

All Home Care Matters welcomes Author and Director of AlzAuthors, Ann Campanella to the show. Ann is the author of the book, "Motherhood: Lost and Found" and share her story of caring for her mother who was diagnosed with dementia. This remarkable story takes the reader through Ann and her mother's caregiving journey. Through Ann's journey and story she authored "Motherhood: Lost and Found" which would go on to be named one of the best Alzheimer's books ever.

Join the AlzAuthors team as we discuss the launch of our latest initiative, Custom Caregiver Collections. Managers Jean Lee, a co-founder, Ann Campanella, and Susan Landeis, and author Paulette Sharkey join host Marianne Sciucco to discuss the beautifully crafted table top wooden bookshelves holding a collection of approximately 15 to 18 books about Alzheimer's and dementia, to support our goal of providing real books to real people in real places. With more than 300 quality, carefully vetted books written from personal dementia experience in the AlzAuthors Bookstore, we are perfectly positioned to offer customized collections of memoirs, novels, caregiving guides, children's books and more.  Custom Caregiver Collections are suited for Senior Care Communities, doctors' offices, in-home care organizations, senior centers, memory cafes and professional or personal libraries. When placed together, these books take on a vibrant life of their own. Each book, each journey, represents years, if not decades, of shared vulnerability, revealed as a beautiful garden of healing for others. Our gratitude goes out to our generous donor, Paulette Sharkey, who covered the costs of creating our first ten Custom Caregiver Collections. These collections serve as the prototype available to communities across the country. We are so thankful! The first Custom Caregiver Collections have been presented to: ·      Four locations in Ohio ·      Two locations in North Carolina ·      Michigan ·      Minnesota ·      Alabama ·      Washington State ·      California  For more information visit https://alzauthors.com/ccc/ Meet the guests Ann Campanella, author of Motherhood: Lost and Found Jean Lee, author of Alzheimer's Daughter Susan Landeis, author of In Search of Rainbows and Optimal Caregiving Paulette Sharkey, author of A Doll for Grandma Marianne Sciucco, author of Blue Hydrangeas, an Alzheimer's love story *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Thanks for listening. AlzAuthors.com Shop our Store

Join the AlzAuthors team as we discuss the launch of our latest initiative, Custom Caregiver Collections. Managers Jean Lee, a co-founder, Ann Campanella, and Susan Landeis, and author Paulette Sharkey join host Marianne Sciucco to discuss the beautifully crafted table top wooden bookshelves holding a collection of approximately 15 to 18 books about Alzheimer's and dementia, to support our goal of providing real books to real people in real places. With more than 300 quality, carefully vetted books written from personal dementia experience in the AlzAuthors Bookstore, we are perfectly positioned to offer customized collections of memoirs, novels, caregiving guides, children's books and more.  Custom Caregiver Collections are suited for Senior Care Communities, doctors' offices, in-home care organizations, senior centers, memory cafes and professional or personal libraries. When placed together, these books take on a vibrant life of their own. Each book, each journey, represents years, if not decades, of shared vulnerability, revealed as a beautiful garden of healing for others. Our gratitude goes out to our generous donor, Paulette Sharkey, who covered the costs of creating our first ten Custom Caregiver Collections. These collections serve as the prototype available to communities across the country. We are so thankful! The first Custom Caregiver Collections have been presented to: ·      Four locations in Ohio ·      Two locations in North Carolina ·      Michigan ·      Minnesota ·      Alabama ·      Washington State ·      California  For more information visit https://alzauthors.com/ccc/ Meet the guests Ann Campanella, author of Motherhood: Lost and Found Jean Lee, author of Alzheimer's Daughter Susan Landeis, author of In Search of Rainbows and Optimal Caregiving Paulette Sharkey, author of A Doll for Grandma Marianne Sciucco, author of Blue Hydrangeas, an Alzheimer's love story *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you, please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here's what you need to know. Thanks for listening. AlzAuthors.com Shop our Store

Ann Campanella is a former magazine and newspaper journalist, the author of two memoirs and four collections of poetry, and an AlzAuthors manager and director. Her award-winning writing has appeared in literary journals, newspapers and magazines across the country and around the world, and she has discussed her work on numerous podcasts. Ann's first memoir, Motherhood: Lost and Found, was twice named “One of the best Alzheimer's books of all time” by Book Authority. In 2018, she was recognized by her hometown newspaper as one of the Most Influential Women in her community. She has a degree in English Literature from Davidson College and lives with her family and animals in North Carolina. In this episode, we discuss her heartbreaking journey to become a mother while losing her own mother to dementia at the same time, the healing power of horses, and the “season” of caregiving. Read Ann's AlzAuthors Posts: Motherhood: Lost and Found https://alzauthors.com/2017/01/18/meet-ann-campanella-author-of-motherhood-lost-and-found/ The Beach Poems https://alzauthors.com/2017/11/08/what-flies-away-poetry-byann-campanella/ What Flies Away https://alzauthors.com/2019/09/17/meet-ann-campanella-alzauthors-manager-and-author-of-what-flies-away/ Start reading Ann's work now! Motherhood Lost and Found: https://amzn.to/3eC5izw The Beach Poems: https://amzn.to/3lsFPu1 What Flies Away: https://amzn.to/3clNBSi Celiac Mom: https://amzn.to/38V Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Ann Campanella Website: http://anncampanella.com/ Blog: https://fieldsofgrace22.wordpress.com/author/awcamp/ Facebook: https://www.facebook.com/ann.campanella.7 Instagram: https://www.instagram.com/awcampanella/ Twitter: https://twitter.com/authorAnnC Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don't miss a word. If our authors' stories move you please leave a review. And don't forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer's and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.

In this episode of the Happy Healthy Caregiver podcast, meet family caregiver and author Ann Campanella. For almost fifteen years, Ann cared for her mom who had Alzheimer's and also cared for daughter who had Celiac disease. In this episode, we talk about Ann's takeaways from her caregiving years which were sadly also comprised of chronic miscarriages. Ann also shares about her horses being a huge part of her emotional and physical self care, her gluten-free household, keeping the romance in her marriage, the message from above to write her Alzheimer's memoir and her new book about caring for a daughter with Celiac, an autoimmune disease. Show notes with product and resource links: https://bit.ly/HHCPod107 Receive the podcast in your email here: http://bit.ly/2G4qvBv Request the Self Care Plan download: http://bit.ly/SELFCAREPLAN Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network. #AlzAuthors #Alzheimers #dementia #caregiver #eldercare #memoir #horselover #glutenfree #celiac

On today's episode I am excited to be interviewing Ann Campanella who is the author of an incredible Memoir, Celiac Mom. She chats with me about her daughter's journey and her book.You can find Ann on Instagram @glutenfreeforgoodand order her book online via Amazon hereIf you have a  spare moment, please pop over to Apple Podcasts and leave me a review. This helps the algorithm and more people with Celiac Disease will find the show. Thank you!Music Credit bensound.com 

Mike and Cam sit down for a fascinating conversation with the author of "Celiac Mom," Ann Campanella. Ann shares the challenges that she faced as a first time mother, suddenly thrust into learning the ins and outs of raising a child with celiac disease. These struggles were amplified by the fact that cooking did not come naturally to her. Ann illuminates Mike and Cam on some of her biggest takeaways from her celiac and gluten free journey.

On today's episode of the Celiac Project podcast, Mike and Cam sit down for a fascinating conversation with the author of "Celiac Mom," Ann Campanella. Ann shares the challenges that she faced as a first time mother, suddenly thrust into learning the ins and outs of raising a child with celiac disease. These struggles were amplified by the fact that cooking did not come naturally to her. Ann illuminates Mike and Cam on some of her biggest takeaways from her celiac and gluten free journey.Listen to the full episode here: https://celiacprojectpodcast.libsyn.com See acast.com/privacy for privacy and opt-out information.

Ann Campanella is a former magazine and newspaper journalist, the author of two memoirs and four collections of poetry, and an AlzAuthors manager and director. Her award-winning writing has appeared in literary journals, newspapers and magazines across the country and around the world, and she has discussed her work on numerous podcasts. Ann’s first memoir, Motherhood: Lost and Found, was twice named “One of the best Alzheimer’s books of all time” by Book Authority. In 2018, she was recognized by her hometown newspaper as one of the Most Influential Women in her community. She has a degree in English Literature from Davidson College and lives with her family and animals in North Carolina. In this episode, we discuss her heartbreaking journey to become a mother while losing her own mother to dementia at the same time, the healing power of horses, and the “season” of caregiving. Read Ann’s AlzAuthors Posts: Motherhood: Lost and Found https://alzauthors.com/2017/01/18/meet-ann-campanella-author-of-motherhood-lost-and-found/ The Beach Poems https://alzauthors.com/2017/11/08/what-flies-away-poetry-byann-campanella/  What Flies Away https://alzauthors.com/2019/09/17/meet-ann-campanella-alzauthors-manager-and-author-of-what-flies-away/ Start reading Ann’s work now!  Motherhood Lost and Found: https://amzn.to/3eC5izw  The Beach Poems: https://amzn.to/3lsFPu1  What Flies Away: https://amzn.to/3clNBSi Celiac Mom: https://amzn.to/38VsV Note: We are an Amazon Associate and may receive a small commission from book sales. Connect with Ann Campanella  Website: http://anncampanella.com/ Blog: https://fieldsofgrace22.wordpress.com/author/awcamp/ Facebook: https://www.facebook.com/ann.campanella.7 Instagram: https://www.instagram.com/awcampanella/ Twitter: https://twitter.com/authorAnnC Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening.      

Show notes with product and resource links: https://bit.ly/HHCPod107 Receive the podcast in your email here: http://bit.ly/2G4qvBv Request the Self Care Plan download: http://bit.ly/SELFCAREPLAN Order a copy of Elizabeth's book Just for You: a Daily Self Care Journal: http://bit.ly/HHCjournal For podcast sponsorship opportunities contact Elizabeth: https://happyhealthycaregiver.com/contact-us/ The Happy Healthy Caregiver podcast is part of the Whole Care Network.

There's a lot of overlap between type 1 diabetes & celiac disease, including how hard it can be to get a diagnosis. People with T1D are thought to have ten times the risk of developing celiac and even more have a sensitivity to gluten.  Ann Campanella went for years knowing something was wrong with her little girl and being brushed aside until she finally found a doctor who took her seriously. Ann shares her story in her new book ““Celiac Mom”” and takes some time to talk to us about her story Check out Stacey's new book: The World's Worst Diabetes Mom! In Tell Me Something Good, The Renegade Run is back and we share a bunch of diaversaries, with some interesting ways to celebrate. Join the Diabetes Connections Facebook Group! This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Sign up for our newsletter here Find out more about The Virtual Renegade Run ----- Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners! ----- Get the App and listen to Diabetes Connections wherever you go! Click here for iPhone      Click here for Android Episode transcription  Stacey Simms  0:00 Diabetes Connections is brought to you by One Drop created for people with diabetes by people who have diabetes and by Dexcom, take control of your diabetes and live life to the fullest with Dexcom.   Announcer  0:22 This is Diabetes Connections with Stacey Simms.   Stacey Simms  0:28 This week, if you live with Type One Diabetes, you have about a tenfold chance of developing celiac and there's a lot of overlap in the communities, including how hard it can be to get a diagnosis. Ann Campanella went for years knowing something was wrong with her daughter until she finally found a doctor who took her seriously.   Anne Campanella  0:47 I mean, he listened to me which was wonderful for the first time I was not nervous mom or you know somebody who was just like, she's always got some issue with her child but the child is fine. So it was just great. Have somebody listen and go Yes, you're right.   Stacey Simms  1:03 Ann shares the rest of her story in her new book “Celiac Mom” and take some time to talk to us and tell me something good. The Renegade run is back I'll explain. And a bunch of diaversaries with some interesting ways to celebrate. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider. Welcome to another week of the show. I am so glad to have you along. I'm your host Stacey Simms. We aim to educate and inspire about type 1 diabetes by sharing stories of connection. My son was diagnosed with type one, right before he turned two he is now 15 and a half my husband lives with type two diabetes. I don't have diabetes. I have a background in broadcasting and that is how you get the podcast. A little bit of a different focus of the show this week in that I'm talking about celiac, which does not affect everybody with type one, but I felt like Anne's story in particular really resonated and really reminded me frankly, about our own story, I think you'll hear a lot in and that perhaps you have gone through, even if you do not have celiac if you do not have a gluten sensitivity, and that's why I want her to come on the show. She's a terrific author as well. And we talked about some of the other books that she has written. Speaking of authors, I'm just gonna take a second, I have to tell you some news about my book, “The World’s Worst Diabetes Mom”, huge thank you, to those of you who have told a friend about this, who've purchased the book and then posted it somewhere on Facebook. Because you know, with the book tour being totally canceled this year, it really changed what we had expected. Although, gosh, I gotta say, I'm so grateful. I'm going to knock some wood here. It's just been going great. We already hit the year long sales goal a couple of months ago. I mean, it's very exciting stuff, but that's not why I'm bringing it up. I'm bringing it up because I just want to mention the book to clinic program. That is something new and different that I started earlier this year. I had a pediatric endocrinologist and CDE certified diabetes. Educators asked me about the book because a couple of groups purchased books and provided them to their local peace endo clinic, so that a newer diagnosed family would get a free copy of the book. I mean, how cool is that? I kind of wish I thought of it. I didn't. But once I saw it, I knew we could help. I have some wonderful sponsors who have signed on to make this work. Most recently, I want to give a big thank you to Glucose Revival. They make the Thrive necklace, a big thank you to Pump Peelz, our very latest sponsor. And of course, the people who started me on this Frio and T1D3DGear, I'm going to link up all of their stuff in the show notes, please visit these wonderful sponsors. I'm looking for groups like that people who are small businesses, let's say in the diabetes community, and this is a very affordable way to get your message out. And of course, I'm now in the position where we're looking for clinics as well.  So if you’re a health care provider listening, if you see families touched by type one, we want to give you some free books, so please Reach out and let me know you can find me on social media Of course, Stacey at Diabetes Connections.com. Okay, let's talk about celiac in just a moment. But first Diabetes Connections is brought to you by One Drop. And it is so nice to find a diabetes product that not only does what you need, but also fits in perfectly with your life. One Drop is that it is the slickest looking and most modern meter My family has ever used. And it's not just about their modern meter setup. You can also send your readings to the mobile app automatically and review your data at any time. Instantly share blood glucose reports with your healthcare team and also works with your Dexcom Fitbit or your Apple Watch. Not to mention their awesome test strips subscription plan, pick as many test strips as you need and they will deliver them to your door. One Drop diabetes care delivered, learn more, go to Diabetes Connections comm and click on the white drop logo.   My guest this week is the author of “Celiac Mom” and full disclosure She's a friend of mine, formerly a magazine and newspaper editor Ann Campanella is the author already of two memoirs and four collections of poetry. Her first memoir, motherhood Lost and Found has won numerous awards. And it was named one of the best Alzheimer's books of all time by book authority.  I've known Ann and her husband Joel and their daughter, Sydney since our kids were young. Of course, I knew Sidney had celiac, but I never knew the story behind her diagnosis. And it turns out, she was diagnosed the same year that we found out that Benny had type one diabetes. Now look, obviously everybody who listens to this show and lives with diabetes doesn't live with celiac, thankfully. But there is a lot of overlap here in terms of having to advocate for ourselves to trust our gut, no pun intended there and to transition to a new type of life after diagnosis. So real quick, just to make sure we're all on the same page here. If you don't know celiac disease is a genetic autoimmune disease. It's not a food allergy. It does cause damage to the small intestine. It interferes with the absorption of nutrients in is a serious deal. It's not a joke. I think that's another overlap that we have with diabetes and celiac that people just don't take it seriously. I was really happy to talk to. And so here's my chat with author Ann Campanella, and thank you so much for joining me. This is gonna be so much fun. It's nice to talk to a friend for the show.   Anne Campanella  6:19 Absolutely. I'm so excited.   Stacey Simms  6:22 You know, I was struck reading “Celiac Mom”, how difficult the beginnings of this story are. And I want to talk about that and how you got to where the great place where you are now. But let me start by asking what prompted you to write the book in the first place?   Anne Campanella  6:34 Well, you know, I think one of the reasons that this book just poured out of me was because, as you said, I don't think most people had any idea what I was living through. And, you know, you can talk about, oh, I wasn't getting sleep. Oh, my baby was not happy. She was crying, and people just sort of pat you on the head and go, Oh, you're a new mom. Everything will be fine, but writing that book was a way to go, you know, I want to get this whole story out, really for others who may be coming after me and experiencing this.   Stacey Simms  7:10 So let's talk about what happened early on, as I said, even having known you, and I know and I know Sydney as the healthy happy Sydney that she is now. Yes. What were those signs?   Anne Campanella  7:20 Oh, my goodness. Probably the first one was as a baby. She did not sleep. everybody around me who had new babies. They were like, Oh, my baby's sleeping 12 hours a night, 11 hours a night, 14 hours a night. Sydney would she would barely sleep six to eight hours, and then I could not get her to nap. And at the same time, I was caring for my mom who had Alzheimer's. So I was I didn't even know if I was coming or going. And in the beginning, she woke up like every hour on the hour. And again, people said Oh, she's teasing. thing or it's this or it's that. So that was one of the earliest signs, but I had no idea it was a sign right when she got a little bit older. Joel love to eat cereal, he pour a huge bowl of cereal so they would do the exact same thing. And five minutes later, she would be on the couch holding her stomach. In addition, I could see that she was bloated most of the time. And she just she had these teeny little arms and legs in this big stomach. And I thought, is she eating too much? You know, it was that big bowl of cereal more than she should eat. And as a new mom, I just had no clue. You know, was this normal was this not but then as she got even older, I knew that something was really wrong because she wasn't growing properly. She was basically head and shoulders shorter than all of her classmates and all of her friends would be growing in by inches and she was barely mean she was In the same clothes for like three years, so those were some real good signs.   Stacey Simms  9:05 You know, it's, it is obviously very different from type 1 diabetes. But we, so many people in different communities get these doctor's visits where they'll say, oh, it isn't that it's this or, you know, we don't need to check because this is just the flu or she just needs to grow into it. Or, you know, every kid grows differently. And I'm curious, I know, you heard that a lot. I did. What was the tipping point for you, though, where you finally got the answer?   Anne Campanella  9:33 You know, I guess I was, I was on alert constantly. And I did. I loved my family practice doctor. She was fantastic, with so many things, but she just didn't have the knowledge about celiac. And Sydney also had one of her symptoms was constipation, and that sort of the opposite of what a lot of kids have have diarrhea. So that didn't tip her off to it. Every single visit, I would ask I would talk about stuff. I was also searching on the internet. You know, day after day, when everybody went to bed for the short times that he was asleep, I'd be checking things out. But I actually had a friend who had, I think it was her niece had growing issues. She knew Sydney, she had known her as a baby, and she would hear me talk about my concerns. And she said, you know, and there is, you know, a doctor in Charlotte, who can deal with some of these things. He was an endocrinologist, and there were various factors that she felt like it might be worth seeing him. And as soon as I got that information, I was like, we are going to that doctor. And he is the one who very quickly I mean, he listened to me, which was one Wonderful for the first time I was not nervous mom or you know somebody who was just like, Oh, she's always got some issue with her child, but the child is fine. And so it was just great to have somebody listen and go, yes, you're right. If this isn't dealt with, she's going to be four foot eight. And thank goodness, he was able to rule things out. And then he sent me to a pediatric gastroenterologist who did an endoscopy. And that is what set us on the course to know for sure that she had celiac. We had blood tests done and the blood tests were so borderline that they did not show anything definitive. So that was something that was just dismissed. But when she had the endoscopy, the doctor said she had severe scarring. So even though the blood test, which everybody's like, Oh, just get a blood test, you know, you'll find out that did not give us the information we needed. The endoscopy, told us everything, and that they took samples of her small intestine. And the doctor knew from the moment he got in there and started looking. He didn't even have to wait for the test. He's like, she's got celiac,   Stacey Simms  12:15 obviously, look, you and I are not doctors, we can't give medical advice. Right? Every borderline blood test is not going to lead to a positive result from the endoscopy. But I think it's a great point to bring up that if you're still not certain if you know, this is something that, again, we don't have this experience. But if you get the blood tests back, even though it was borderline, did you have to push for it or did the doctor say you know, to be sure, you know, I'm curious how you still got the endoscopy.   Anne Campanella  12:41 I definitely had to push for it. Now, the doctor that the endocrinologist he was happy to do it. But in order to get to see him through the medical system, I definitely had to push because they were ready to just dismiss it. Which I guess you know, maybe that's the For a lot of people, but it did make me think, goodness for all this moms who know intuitively that something is not right. It's so important to just keep pushing and you know, to go for what you know, will help your child.   Stacey Simms  13:15 So tell me about the transition. Obviously, when you get a diagnosis, we want to help our kids, we want to do what's best for them. But I laughed out loud when I read in your book, and here's a quote from it. She says, I have never been a cook. In fact, Joelle or husband and I survived for years on a diet of microwave dinners and take out food. So a woman after my own heart, I was the exact same way for many years before I had children. I didn't cook at all really, how do you make the transition from going out for Italian food bringing home big bready subs to what I imagine was a lot of food prep and cooking after this diagnosis.   Anne Campanella  13:56 You know, it was horrendous. To be honest, it was so hard and I love hearing that you are not a cook either. Because you get this. And I feel like it's sort of like, God has a sense of humor. You know, I went in thinking went into motherhood thinking, well, I don't have to cook, I can get through this. And then he just turns things on. It's his head or my head. And it's like, no, you're gonna have to cook every single meal for the rest of your life and just see how that is. But how did I do it? I will tell you Stacey. It took me a good year before I felt comfortable at all. And I think I started the transition with just going oh my gosh, I have got to find something to feed my daughter. You know, I literally thought she was going to starve because I didn't know what to put on our plate. I figured out five meals. Okay, what are five meals that I can Give her that she will eat. And she actually she was starving. That was another symptom that she had. She was always starving, she would eat one meal. Five minutes later, she'd be asking for a second meal. And I'd be thinking, what is the deal? You know, am I creating a child who's going to have eating disorders because she, she wants all these meals. So we went from, I tried to find the meals that I used to pick up. Like, if it was Italian, like spaghetti, okay, spaghetti can't be too hard. And I found rice pasta and had to go searching the labels on spaghetti sauce to make sure that there was no gluten in them.   Stacey Simms  15:46 So we should also jump in and say this is 2007 Yeah, while it was probably better than 1987 Yeah, certainly isn't what we have now. Oh my gosh,   Anne Campanella  15:56 no, it's it's so much better now. You can actually go to regular stores and find gluten free food. Back then I went to the one health food store. And, and it was funny because it's health food. But basically the thing that they had most that was gluten free was cookies and brownies and cake and still defined actual meals. That was a challenge. I mean, you really had the search. And like one of the things I learned was, chicken is not always safe. It's often processed with gluten. And so for a couple of months, I was feeding Sidney chicken for several meals thinking, Oh, I'm doing so well. But she still was bloated. And as I was reading and researching, somewhere I ran across Oh yeah, chicken and there's a couple of brands that are safe, but most are not. So once I got her off of chicken, she actually sprouted that summer like three years. Four inches.   Unknown Speaker  17:01 Wait, I did I miss something?   Anne Campanella  17:02 Why would chicken have gluten? fresh chicken has a processing and it's processed with some kind of wheat flour or something that's in it. And if you read real carefully and it might be modified food starch or some other name that denotes wheat or gluten. Chicken is dangerous for people with celiac.   Stacey Simms  17:24 I mean, I have to ask even closer you're talking about plain old naked chicken, not chicken nuggets, right?   Anne Campanella  17:31 What? Chicken out like Purdue chicken is safe. But I don't even know what other brands but basically brands of chicken that you find wrapped up in the supermarket, and they haven't been cooked yet. Most of them are not safe. So if you go to a restaurant, and you order chicken, and some restaurants, they don't even know and they'll say oh yeah, things are gluten free and they're not And again, it's not a huge amount. And I should back up and say, people with celiac, it varies how allergic allergic is not really the right word, but how sensitive they are to gluten. But for Sydney and most other people with celiac, the tiniest crumb will set off an allergic reaction or the reaction that causes the immune system response. That's amazing. Who would think   Stacey Simms  18:27 so what were your five meals? Do you remember? I can imagine you'd ever forget.   Anne Campanella  18:32 Oh my gosh. Well, it's funny because we branched out since Oh, yeah. But spaghetti. Spaghetti was probably three of them. is sad to say. And when Sydney started going to school, because I'm not a cook, I would just make a huge pot of spaghetti and feed her meals of spaghetti like for lunch and it was so sad, poor child. That spaghetti was one chicken pox. pie that was like my big thing but I would make two of them at once and I could find gluten free pot pie crust for the bottom. And then I would just dump chicken and broth and vegetables into the pot pie. So it's it was not like this fantastically tasting, good tasting potpie but it was decent and Sidney loved it because she didn't know any better. And then I would roll out a crust made from like rice flour. So that was one and what else hamburgers. I could get Joel to cook hamburgers on the grill and I would just steam up some vegetables. I did have a chicken and rice meal. That was my mom's and I just changed a few of the ingredients that that's probably that about covers it maybe scrambled eggs. That was another really easy one.   Stacey Simms  19:54 What happened to her once she started eating gluten free you had to have sort of a big physical   Anne Campanella  20:00 Oh my gosh, the change was incredible. And it just, it made me feel like no matter what I had gone through, it was worth it. She went from being this child. And I didn't even know that this was not normal. But she went from this child who would hang out on the couch, reading all the time doing puzzles, being very sort of quiet to somebody who like would run around the house. She couldn't wait to get to the park. She had so much energy, her face went from this pale expression where her eyes look bruised to this sort of just a constant joyful quality in her face and in her skin. And then her growth was just incredible. She went from being so tiny to just being normal sized. She's not super tall now, but Within the normal range is five, three. And she started playing basketball. She had energy to do things. We used to take her to the park before this and like we bring her bike and she ride for a little bit and be like, I'm tired. I want to stop. She just was irritable. Oh, the other thing, the biggest thing she slept on the first day that I was able to eliminate all the wheat from her diet. She slept through the night, for the first time. I knew that. I will actually I didn't because I was so used to waking out. And I went and checked on her like, Is everything okay? But I was gradually able to sleep which was just like, oh my goodness, this was amazing. So that was that was probably the most wonderful other than it I mean, everything else was wonderful too, but to have her sleeping and just thinking oh my gosh body is working normally now. And it was incredible how quickly that happened   Stacey Simms  22:04 during this time and your wonderful writer and you've written about your experience with your mother and all timers disease, this was all pretty much going on at the same time was it How were you handling all of this?   Anne Campanella  22:17 It was, oh Stacey, I was a mess. I was truly mean I was caretaking both ends of life. And oddly, my mom and Sydney had the same sort of needs. Like I remember having to bave Sydney having to wash my mom, having to feed Sydney, having to feed my mom trimming their fingernails at the same time. And I was going back and forth. Part of the time my mom lived at the coast near my sister, and then eventually we brought her here and I was bringing Sydney with me to visit my mom. And that was a sweet time because Sydney would like To push her wheelchair around, and my mom would, you know, Pat her on the head and they could play ball and do little things like that. But it was so tough. And I think maybe that was part of what made the story hard for me because I, I was so concerned about my mom, because she was close to death for a long time. She had Alzheimer's for 14 years. And the last, gosh, seven years of her life, we kept thinking we were about to lose her, and then she would hang in there, but I feel like I wasn't really thinking straight, wasn't sleeping. Well, I was just existing. But at the same time, when Sydney came, there was this incredible joy and, you know, this new light a new life. And so it really helped balance the two I guess.   Stacey Simms  23:52 Your book about Alzheimer's disease is very well received. You know, you've won awards. It's a beautiful book. I know you've been kind of in that world for a while. I'm curious. When you're writing a book about your child, it's a different experience altogether. Were you nervous about sharing that story? I mean, you've shared such personal things already. I guess that's what I'm trying to get to. But when it comes to your child, it's a little bit different. I'm curious what your reaction to your own writing and sharing it about Sydney has been.   Anne Campanella  24:22 You are so right Stacey and I'm sure you have had the same experience. It is so different and as I was writing this, Sydney was she's now 18 but as I was writing this, she was 15 1617 and not as mature and not really wanting me to share very much so I just felt like I had to be so careful not to share things that she wouldn't be comfortable with my dash n even the book became “Celiac Mom”. Because I wanted it to be about my experience of parenting her, rather than me trying to say everything that she went through, even though I included that, and we have a place up at Lake George New York. And last summer, when I had the whole manuscript written, I read it to her out loud out loud. She's a busy teenager. And the last thing she wants to do is sit and listen to mom's writing. So she was a captive audience when we were driving up to Lake George and I thought, okay, I'm just gonna read this and this will also give Joel a chance because he's in the book to, to hear it. And it was a great time to do it because we were having sweet family time, but I was able, wherever there were any places that she was uncomfortable with, I could take them and edit them a little bit and, you know, just askers Are you comfortable with this? And amazingly, now that she's a teenager She is fine with it. And she's excited that the story is getting out and she wants it to help people. So I'm just so relieved about that. That's wonderful.   Stacey Simms  26:10 How is she doing? I mean, she must be very independent. I know that college doesn't look like it's supposed to for anybody. So instead of going to school, she will be virtually learning at home this year. But I imagine that no knocks on your current cooking. I don't know what's going on. I imagine that she can pretty much take care of herself.   Anne Campanella  26:28 Yes, she's actually learned where she can go get take out and she's sort of led the way for the family. And it's wonderful because I've been hanging up my apron and just not having to make, you know, meals that she didn't really care about. But she is doing great. And interestingly, when we were looking at colleges, in my mind, a place that was going to offer great gluten free food was like top on the list, but that was very far down the list for her. She cared about it, but it just wasn't the top thing. She had other sort of normal things that were important to her know like, what kind of programs the college offered where it was, was it a city or was it a country setting? You know how the size of it, it was really interesting going through the process of looking at schools with her and me being it's funny you call yourself “The World’s Worst Diabetes Mom”. I'm probably the most obsessive “Celiac Mom”. So I'm just watching every little thing and telling her Oh, did you see this? Or, oh, this, they didn't have any gluten free food here? And she'd be like, Mom, it's fine. You know, don't worry about it. I can handle it. And eventually I just had to believe it and trust that she could and she has really shown that she can. That's fantastic.   Stacey Simms  27:51 Before I let you go, any advice for families who are newer diagnosed with celiac and listening because I've got to imagine like, just like you You have already said it's a devastating diagnosis. You're so happy to know what's going on. But you really do have to change everything about how you eat and even, you know, down to household appliances, things like that. I assume, right. You have to get rid of yesterday   Anne Campanella  28:14 that yes, new toaster oven. Yes. I mean, we went through our cabinets took everything out and had to replace, I would basically say to take it in steps and stages because it is overwhelming. I mean, we were basically wedded to wheat, my husband and I, and to suddenly step back from that was huge, and it's really a grief process. Because, you know, every single thing in life seems like it's connected to food, and to suddenly think, oh, we can't eat our favorite stuff. We can't do this. You know if you can find support, you can find even one other person who is Going through this. For me, as a writer, I always love to read books. And I love memoirs, because they do take people through, you know, the real experience of somebody's life. So there's that. But finding a real person, a friend, once Sidney had one friend who didn't eat gluten, it just made a world of difference because she was no longer alone in it. So those are some steps as far as the cooking. There are, there are websites and there are so many more resources than there used to be. So many restaurants do offer gluten free menus, and some are safe and some are not. And I would suggest reading the reviews to make sure that people who have celiac feel safe with them. But Gosh, find somebody who can kind of hold your hand as you take those steps.   Stacey Simms  29:55 Well, and thank you so much for sharing your story. I really you I knew some of it having known you. But you know to hear the whole thing is just remarkable. I'm so glad you wrote it. I know it's getting a great reception. So thanks for talking to me today.   Anne Campanella  30:09 It is totally My pleasure, Stacey just enjoyed it so much.   Unknown Speaker  30:18 You're listening to Diabetes Connections with Stacey Simms.   Stacey Simms  30:24 More information about “Celiac Mom” and about celiac in general over at Diabetes Connections.com. And I know as you listen, you probably have more resources to so if you're in a good celiac Facebook group, if you've got good supportive resources for us, please let me know you can post it in Diabetes Connections of the group or just message me and I'll pass it along. But I think just like there's a really great diabetes community. I know there's a wonderful celiac community as well, that can help. So I'd love to get the word out about that as well. Tell me something good coming up in just a moment, but first Diabetes Connections is brought to you by Dexcom. And we have been Using the Dexcom g six since it came out points more than two years ago now, it's amazing the Dexcom g six is now FDA permitted for no finger sticks for calibration and diabetes treatment decisions. If like us, you have used Dexcom for many years that when you do the two hour warm up, and there's no finger stick, you know the number just pops up on your phone. It's amazing. I mean, it really is a big difference. We've been using Dexcom since he was nine years old, so it's six it's almost seven years now for the seven years in December. It just keeps getting better. The G six has longer sensor we're now 10 days and the new sensor applicator is so easy to use. Benny does it himself. He says it doesn't hurt. Of course we love the alerts and alarms and we can set them how we want. If your glucose alerts and readings from the G six do not match symptoms or expectations use a blood glucose meter to make diabetes treatment decisions. To learn more, go to Diabetes Connections.com and click on the Dexcom logo.   Tell me something good. This week I want to let you know about an event. We talked to these folks a couple of years ago about the renegade run obstacle course race. This year. It's a little different on what isn't different this year. It's the renegade virtual run. This is happening in mid September the 12th to the 27th of September from anywhere in the world. You just complete the different obstacles the different run, jog, walk back in I think series of exercises, and you can complete them anytime you share your photos, your videos, it's a really neat idea. Very creative. I've seen some other things that have switched to online this year. And if people just get so creative with this stuff, you can find out more very easily. I'm linking it all up on the episode homepage Diabetes Connections.com. And when you register, or you donate or you know, whatever you want to do, they will send you all of the information including the list of exercises, so they're trying to make it super simple for everyone. This is a fundraiser as well. They raise funds to support the research that's going on for diabetes at Massachusetts General Hospital. So again, just find out more at the episode homepage. We have a lot of diaversaries to talk about. We had a woman I'll get her in just a second, Christina posted about her diaversary earlier this month in the Facebook group, and then a bunch of other people chimed in. But the funny part about this post that Christina started, it's all about soda and or pop or whatever you call it coke. It's actually about Pepsi for her. So Christina celebrates her diaversary every year by drinking a Pepsi Diet Pepsi, a real Pepsi. It was her 14th diversity, 14 years with type one and her blog post which I will link up as well. And you can read it if you're in the Facebook group was really great because she talks about how hard it was to make lifestyle changes. And the key was really well it was her but it was sparked by an endocrinologist who didn't scold her or make her feel bad for her lack of compliance. He just urged her to make a few small changes. And he didn't expect her to be perfect. So she talked about how she made these small changes over time. But the thought of never having regular soda again was really hard. So she decided to try to do it once a year. That's what she does every year on her diaversary, she drinks a regular soda. I think it's just an amazing way of looking at things. So I'll link up her blog. You know, when we think about all of the big stuff that we have to do to stay healthy, it can be overwhelming, I mean, whether without diabetes, but if you take it one little thing at a time and try to make that change, that's really the way to do it, and the only way to last, okay, so within the group, other people started chiming in with I want to try to do this or I think this is a great idea or here's my diaversary Beverly says she's going to do it with a root beer float once a year, and she is marking 55 years with diabetes. Tamara is talking about her three years with type two and she also had to give up diets. Soda her kidney specialist said No way. So they talked about that for a little while. Janice, who I've talked to many times before, has had type one for 65 years and Bonnie with 54 years. 37 years for Robert, I gotta tell you as a parent of a child who's lived with type one for now, 14 years, in just a couple of months, it is incredibly heartening to see all the amazing hard work perseverance and resilience, not perfection of the people who chime in when they talk about living a long life with diabetes. So thank you all so much for sharing that. And I'll share a quick story about soda for me. I used to love Diet Coke, big time. I never kept it in the house. It was my going out. We're going out to dinner, going out to lunch at work, that kind of thing. I would drink Diet Coke. I never wanted my kids to drink soda so I'd never kept it in the house. A couple of years ago. Vinnie noticed this was probably four maybe five years ago. Gosh, it's been so long, and he noticed how much Diet Coke I was drinking and he knew that it wasn't good for me. And he challenged me to give it up for a month. Could I give up Diet Coke for a month? And I challenge I don't remember what I challenged him, but I gave him something back. And so we agreed we would do it. And I easily gave up Diet Coke for a month I switched to unsweet tea, which is what I still drink, which is hard. I mean, it’s the south everybody always drinks sweet tea and I’m like no unsweet unsweetened tea, please. I can't say I haven't had a diet coke since but it is rare. It is few and far between because you know why? I don't like the taste that much anymore. It's weird how things change, right? It was hard at first. And I really kind of felt that craving. But after a month, it was totally gone. And I know if you're a longtime listener, you know me and Benny, I wasn't gonna let him win that bet. No way. So I thank him for it now because I really don't remember the last time I've ordered one in a restaurant. And certainly the last time I had one, it's got to be months and months. And just another real quick story. Don't get long here but about sweet tea. So my husband used to own a restaurant he owned and operated a restaurant for many years and He once told me if I ever saw how they make the sweet tea, I would not that I ever drank it, but I would never let anyone I knew drink it again. Because the amount of sugar that goes in there, it's not like oh, a little teaspoon of sugar per glass. I mean, it's bonkers how much sugar goes in sweet tea. I'll try to actually get a measurement of it and ask him about it. Maybe I can post that in the group too. I mean, I know that you're not drinking a lot of sweet tea. I mean, let's face it. This is diabetes podcast, but I don't know about you. I'm always fascinated by that stuff. Okay, back to the diversity. Sorry, I got off on a different tangent there. But if you've got a way that you mark a diaversary or a milestone or something like that, please let me know. You can always email me Stacey at Diabetes Connections.com or post in the group and tell me something good. Okay before I let you go quick school check in for our family because oh my gosh this year, so so far Tulane is doing pretty well as I am taping this. It's been just a week for my daughter on campus classes did start they have switched to weekly testing. They as I had said in previous episodes, everybody had to be tested before they could step foot on campus. Then it was going to be random daily testing then mandatory monthly testing. They have switched that daily testing continues but mandatory weekly testing They haven't really put out too much about why they said it was in, you know, in consultation with health officials locally. My thinking is also that they saw all of the schools that have already sent kids home, so they decided to step it up. So I'm grateful for that. My daughter seems to be holding up just fine. Of course, everybody's nervous. But you know, fingers crossed. What a bananas year. This is in terms of online school. Benny's ginormous school district with 150,000 kids is a virtual, and he is doing just fine. He just as I'm taping, he knocked on the door and said, I'm going to take a walk. He has a half hour lunch period. And he's decided to get out of the house for a little while and get off the screen. And I'm grateful for that. But he seems to be doing as well as can be expected. He's a sophomore in high school. He's got some really hard classes this year. He's got an AP class. I am optimistic, but he's a self starting kid. And I think that he'll do fine. But gosh, there's so many kids to worry about this year. And you know, my local district is doing a fundraiser for hotspots and computer access and it's really hard this year. So my heart does go out and We're to do what we can to help out has been a really hard time. But you know, I'm proud of him. And diabetes wise, I think we're seeing the numbers go up a little bit. It's not for the reason you think he's not stressed out about school, but it is because he was sleeping through breakfast and often sleeping through lunch. And so we're in that nice steady range. You know, he'd wake up at 90, but he was 90 all night and until noon, because he wasn't eating anything. And now he's getting up in school starts at 755. So he's eating breakfast, and he's drinking coffee now and he's eating a little bit of lunch. So I'm just laughing all as well, and I'm really trying not to hover Haha, but I really am in control, like you helps an awful lot too. So I think he's going to do just fine. But it was really funny to see that. You know, if you sleep through your meals, and you don't have to vote this for him, there's a lot less room for error And supposedly we will have a 504 meeting with the counselor at some point. That should be interesting. I will let you know what the heck that entails when we have virtual at home school, but I understand there's still needs to be accommodations. I'm not joking about that, but I am fascinated to see how it goes. Alright, thank you to my editor john Kenneth from audio editing solutions. Thank you so much for listening. I'm Stacey Simms. I'll see you back here next week. Until then be kind to yourself.   Benny  41:19 Diabetes Connections is a production of Stacey Simms Media. All rights reserved. All wrongs avenged   Transcribed by https://otter.ai

Welcome podcats to Episode 18! .... and today I have for you a memoir, yes a memoir! Not a genre I delve into much. So in today's broadcast I tell you all about the trails and tribulations that the author, Ann Campanella and her family have gone through. Sit right down, listen up as there is more in this book as I reveal a few other details. Thank you for stopping by and listening ..... until next time .... bye!

Ann Campanella is a horsewoman and author of "Motherhood, Lost and Found". Ann moved back to North Carolina after being away from her family for several years. Ready to start a family, Ann’s experienced multiple miscarriages at the same time her mother, who lives on the opposite side of the state, began showing signs of Alzheimer’s. Her book chronicles this complicated time in her life, and highlights the importance of the healing power of animals. Find out more here: AnnCampanella.com and Alzauthors.com. Find out more about the Zestful Aging Podcast at ZestfulAging.com.

  Lori La Bey host of Alzheimer's Speaks Radio talks with representatives from AlzAuthors: Jean Lee, Kathryn Harrison, Ann Campanella, Vicki Tapia, Marianne Sciucco and Irene Frances Olson. We will learn about a variety of this groups work which includes 200 plus authors.  They are doing amazing things to  improve life for families and professionals. Website: https://alzauthors.com Contact Information Jean Lee: Alzheimer’s Daughter blog: http://jeanllee.blogspot.com Kathryn Harrison:  Website:weedsinnanasgarden.com Ann Campanella:  Website:  www.anncampanella.com Marianne Sciucco:  Email:  mariannesciucco@gmail.com Vicki Tapia:  Facebook:  facebook.com/SomebodyStoleMyIron Irene Frances Olson:  Website: www.irenefrancesolson.com   Find Additional Resources for Dementia and Caregiving on Alzheimer's Speaks Keynotes/Consulting/Training

Conversation with author Ann Campanella. Join me in my conversation with Ann Campanella, author of the book Motherhood: Lost and Found. Ann’s’ book is an autobiography tracing her life after marriage, through several miscarriages, aging parents, and her mother’s decline with Alzheimer's disease. Ready to start a family, Ann was used to setting goals and accomplishing them. After being plunged into an emotional journey Ann finds herself with a challenge to tackle. Reading her book allows us to follow her on this journey; a journey that leads to a deeper understanding of her and what it means to love. During our conversation Ann and I share our collective advice, our bond as dementia daughters and our shared journey. Hearing this conversation will certainly help any caregiver dealing with dementia. Both of us have found that conversations can have positive effects on those who are participating or listening. Ann is a firm believer that good conversations can change the world. What better way to change a caregiver’s world than to share a good conversation with them? I hope you enjoy this episode and that it changes your world in some positive way. If you are raising children while caring for a parent you will love reading about Ann’s journey. You can also listen to the audiobook if you lack the time for meaningful reading. About AlzAuthors Following the publication of her book Ann found the group AlzAuthors. AlzAuthors.comis a community of bestselling, award-winning authors who have never shaken hands or shared a cup of coffee. These authors come together because Alzheimer’s and dementia have impacted their lives.  Together, all AlzAuthors strive to eliminate the stigma surrounding the most important disease of our generation, estimated to affect 47 million people worldwide. The AlzAuthors collection of books includes memoirs, novels, nonfiction, children’s books, and blogs – and the poignant real-life stories behind these works. They hope to make your life a bit easier. AlzAuthors is an excellent resource put together by people who have walked in your shoes. Link to Ann's book (favorite things page)

Writer Ann Campanella was 33 years old and hoping to become a mother when her own mother began showing signs of Alzheimer's disease. As her mother declined, Ann suffered a series of miscarriages that compounded her feelings of grief for the mother who was slipping away from her. On the show Ann talks about her experience, captured in her memoir “Motherhood: Lost and Found.” She tells us how she got through the long stretch of grey days caring for her mother at a time when her friends were caring for their own kids, about the painful experience of taking her mom to Duke University Medical Center and why she's reaching out to people in similar circumstances. Ann is actively involved with AlzAuthors, which works to raise awareness, reduce stigma and lend support to people whose lives have been touched by dementia. Explore Ann's website: http://anncampanella.com Amazon page, “Motherhood: Lost and Found”: https://amzn.to/2NClNQ2 Learn more about AlzAuthors: https://alzauthors.com Music: “Growing Silence” by Ketsa | CC BY NC ND | Free Music Archive

Today we are lucky to have five women; Jean Lee, Ann Campanella, Kathryn Harrison, Marianne Sciucco and Vicki Tapia; who are part of the Alz Authors, each will share their unique story with us and why they decided to join forces to assist others dealing with dementia. Contact Information For: Jean Lee Email: jean@alzheimersdaughter.com Twitter: @JeanLee18 Blog - Alzheimer’s Daughter: http://jeanllee.blogspot.com Facebook: https://www.facebook.com/AlzheimersDaughter Ann Campanella Blog: www.anncampanella.com, https://fieldsofgrace22.wordpress.com/   Facebook: https://www.facebook.com/anncampanella.author/, Twitter: @authorAnnC   Instagram: @horses_2nd_time_around Kathryn Harrison Website: weedsinnanasgarden.com Email: kharrison@flipturnpublishing.com Twitter: KathHarrisonArt Marianne Sciucco Email: mariannesciucco@gmail.com Vicki Tapia Email: vicki.tapia@gmail.com Facebook: facebook.com/SomebodyStoleMyIron Twitter: @vicleetap Additional Resource Information: Alzheimer’s Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Dementia Conference & Cruise: https://alzheimersspeaks.com/cruise-with-us Become Dementia Friendly Business or Community: https://www.alzheimersspeaks.com/become-dementia-friendly

Caring for our aging parents is not something that any of us are ever really prepared for, and Ann Campanella was no exception. While dealing with her own struggles with a series of miscarriages Ann found herself confronted with her father's sudden death and her mother's rapidly progressing Alzheimer's, which Ann refers to as "the end of everything I knew." In her memoir, Motherhood: Lost and Found, Ann weaves a heartwarming story of struggle, hope, and her friendship with one very special horse that helped her throughout it all. See more pics and links to Ann's website on our website: elinbarton.com/podcast Thanks for listening!

My guest is Ann Campanella author of Motherhood Lost and Found. In this award-winning memoir, author and poet Ann Campanella returns to her home state of North Carolina ready to build a farm and start a family. Her foundation is shaken when she experiences multiple miscarriages at the same time her mother spirals into Alzheimer's. Ann’s connection to horses sustains her as her window of motherhood begins to close. As her mother’s memory fades, Ann receives a final miracle. Listen to Ann as she shares her emotional journey.  

Today we are lucky to have Ann Campanella who is the author of the memoir, Motherhood: Lost and Found. This Former magazine and newspaper editor, writings have appeared in local and national publications from literary journals to the bestselling A Cup of Comfort series. We look forward to hearing Ann's favorite memories with her Mother as they journeyed down the dementia path. Contact Information For http://www.AnnCampanella.com Additional Resource Information: Alzheimer's Speaks Resource Website: https://www.alzheimersspeaks.com/ Keynote Speaker: https://www.alzheimersspeaks.com/event-planners Dementia Chats™: https://www.alzheimersspeaks.com/dementia-chats-webinar Conscious Caring Resources: https://www.alzheimersspeaks.com/conscious-caring-resources Join The Purple Angel Project: https://www.alzheimersspeaks.com/purple-angel-projectSupport this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.

We had technical difficulties the first hour due our connection with India. You may want to skip minutes 38-58, by sliding the bar over. Our first guest will be a film maker from India, Vishaal Nityanand, who is the Chairman at Cinematic Arts Productions.  His new film about Dementia, "Life Flows On," will soon be released.  Find out how you can see this film and what drove Vishaal to do this project.  Website            Skype            Email  Our second guest will be Ann Campanella, Author of the memoir "Motherhood - Lost and Found," which can be purchased on Amazon. Ann's story is an interesting one.  It is the story of her mother's descent into Alzheimer's at the same time Ann was longing to become a mother herself. Ann's Website   Check out Alzheimer's Speaks Website for all of our free resources - blog, webinars, resource directory, videos and more.Support this Show: https://alzheimersspeaks.com/donate-now/See omnystudio.com/listener for privacy information.