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In honor of National Epilepsy Awareness Month, TSC Now host Dan Klein is joined by Steven Wolf, MD, Director at the TSC Clinic Without Walls serving NYC, Westchester, Hudson Valley & Connecticut. Dr. Wolf also serves as the Director of Pediatric Epilepsy at Boston Children's Health Physicians of New York and Connecticut. Dr. Wolf specializes … Continue reading Drug-Resistant and Undertreated Epilepsy (sponsored by LivaNova) →
As we continue to recognize November as National Epilepsy Awareness Month, Joyce welcomes Dr. James Valeriano, Director of the Comprehensive Epilepsy Program at Allegheny Health Network (AHN) in Pittsburgh, Pennsylvania. Dr. Valeriano is a sought-after speaker and expert on neurological issues and epilepsy. During the show he will discuss his career and the latest advances in the treatment of epilepsy.
November is National Epilepsy Awareness Month, Joyce welcomes Peggy Beem-Jelley, President and CEO of the Epilepsy Association of Western/Central PA (EAWCP), to the show. They will be discussing the latest accomplishments of the EAWCP, as well as the plans for the Mardi Gras Gala in March 2025.
Welcome to LUNA Listens! This is where we publish all our blog posts in audio form for you to listen to at your own pace. Content Warnings: mention of suicide and self harm and discussion of distress. Today, as part of National Epilepsy Awareness Month, we are sharing a Science Communication Blog Post. This blog post comes from Ally Lloyd's dissertation titled "I always think of my mind, my brain being like that - like it's out to get me”- A Qualitative Exploration into the Experience of People Living with Epilepsy and Mental Illness. You can read this post on our blog: Find us on: https://www.thelunaproject.org.uk/blog-1 Instagram - @thelunaprojectuk Twitter - @theLUNAprojectt Facebook - The LUNA Project
Real Life Runners I Tying Running and Health into a Family-Centered Life
What does it REALLY take to train for a 100-mile race, and how can such a feat contribute to a cause worth fighting for? Sponsor Kevin's 100 mile race by clicking here.Join us as we accompany our co-host, Kevin, on his vigorous journey to conquer the Daytona 100, a monumental 100-mile race in Florida. Not only does this episode offer a breathtaking exploration of stamina and benevolence, but it also illuminates how Kevin's ambitious venture raises awareness and support for those living with epilepsy during National Epilepsy Awareness Month. See endurance running in a new light as we dissect the process of preparing for ultra races, using Kevin's journey as our guide. We'll shed light on the significance of a robust base before embarking on ultra races, the mental and physical hurdles of racing against the clock at each aid station, and Kevin's goal of clocking 200 miles monthly for a year. You'll appreciate how his objectives have evolved throughout his training cycles and how he buckled down for the race in the last four months. From hydration to training at varied times of the day, from fueling strategies to weather prep, we've got you covered. We highlight the critical role strength training plays and discuss potential issues that might surface during a 100-mile race. Remember, it's not merely about crossing the finish line, but the journey and dedication that lead up to it, and the noble causes it underpins. As we wrap up, we tap into the mental fortitude required for a 100-mile race and how to manage the fears that come with it. Kevin's tale is not only about endurance but also about empathy, and that's a race worth running.Sponsor Kevin's 100 mile race by clicking here. Thanks for Listening!!Be sure to hit FOLLOW on Apple Podcasts, Spotify, or your favorite podcast player Leave a review on Apple Podcasts. Your ratings and reviews really help and we read each one! Grab your free Strength Guide for Runners here. Interested in our coaching program? Check out our coaching options here. Grab your free copy of the Running Snapshot by clicking here. Come find us on Instagram and say hi! Don't forget: The information on this website is not intended to treat or diagnose any medical condition or to provide medical advice. It is intended for general education in the areas of health and wellness. All information contained in this site is intended to be educational in nature. Nothing should be considered medical advice for your specific situation.
November is National Epilepsy Awareness Month, therefore, Joyce welcomes Peggy Beem-Jelley, President and CEO, and Colleen Fulkerson, Special Events Coordinator, with the Epilepsy Association of Western/Central PA (EAWCP) to the show. They will be discussing the latest accomplishments of the EAWCP, as well as the plans for the Mardi Gras Gala in February 2024.
November is National Epilepsy Awareness Month, therefore, Joyce welcomes Peggy Beem-Jelley, President and CEO, and Colleen Fulkerson, Special Events Coordinator, with the Epilepsy Association of Western/Central PA (EAWCP) to the show. They will be discussing the latest accomplishments of the EAWCP, as well as the plans for the Mardi Gras Gala in February 2024.
As we continue to recognize November as National Epilepsy Awareness Month, Joyce welcomes back to the show, The Honorable Tony Coelho, author of the Americans with Disabilities Act. Mr. Coelho will share his story of living with epilepsy and discuss the mission of The Coelho Center for Disability Law, Policy, and Innovation at the Loyola Law School to collaborate with the disability community to cultivate leadership and advocate innovative approaches to advance the lives of people with disabilities.
As we continue to recognize November as National Epilepsy Awareness Month, Joyce welcomes back to the show, The Honorable Tony Coelho, author of the Americans with Disabilities Act. Mr. Coelho will share his story of living with epilepsy and discuss the mission of The Coelho Center for Disability Law, Policy, and Innovation at the Loyola Law School to collaborate with the disability community to cultivate leadership and advocate innovative approaches to advance the lives of people with disabilities.
TwoSistas and it's WealthWellnessWednesday, November 2, 2022. We were a little later coming on this morning but it's all good! In the midst of the workout, gloves still on, always show up authentically you. It's National Epilepsy Awareness Month and National Vegan Month. A discussion about the in's and out's of being Vegan and how reading the labels will clue you in. A lot of Vegan products for instance are not gluten free. Consuming a gluten free product does not mean it's Vegan. The importance of reading the product labels is the key! A little nothing about something: what's up with the tags on the pillows and mattresses? Janis wants to know! And what's all of the “jingling” noise in the background? Janis' Ring camera notifications! What WealthWellnessWednesday means to both of us and how a healthy mindset with money will lend you to give to others in such a meaningful way! What did you think about today's episode? How would you share the “wealth” and surprise an unsuspecting individual? Share it with us! Go to our website and leave us a voice message - we would love to hear from you: https://www.twosistas.online/
For the month of November, and National Epilepsy Awareness Month, Brian and his daughter, Megan, discuss treating her epilepsy with cannabis, as well as her global support network, Away with Epilepsy, and NFL quarterback Brett Hundley's connection with the Las Vegas epilepsy communities. --- Send in a voice message: https://anchor.fm/stonerbudeez/message
This week, Kayla and I are back reviewing 8 movies. Pray for us as we deal with this #MerryThanksgiving weekend extravaganza. Let's just say we will be breezing through these reviews. In this episode we review Nine Kittens of Christmas starring Kimberley Sustad and Brandon Routh, as well as Christmas CEO starring Paul Greene and Marisol Nichols. Nine Kittens is the long awaited sequel to the 2014 classic Nine Lives of Christmas. We lament about how none of the actors age, laugh at the Superman references, and squeal at the cuteness of the kittens. As animal advocates, we do throw in the cautionary tale of please don't give kittens or puppies as Christmas presents. It should be something everyone involved is certain of. Also love the ending and throw out ideas of what the title of the next sequel could be. Shout out to our main man Paul Campbell for his cameo. (This is literally the weekend of Paul Campbell lol.) Christmas CEO was an ok movie. We talk about Marisol's character's name, the Reindeer Games, how adorable his niece was, and how we feel about the rushed ending. To be honest, neither of these movies really stood out for us especially after eight movies in a three day weekend. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Support the podcast and buy me a coffee. For $1 a month, you get early access to interviews and podcasts. https://www.buymeacoffee.com/hmarkheartbeats
Padmaja Kandula, M.D. discusses what patients should know about epilepsies. She shares the symptoms of seizures and what to do if you see someone experiencing different types. She also examines diet and its role in epilepsy treatment. Finally, she highlights the expectations patients should have if surgical options are discussed.To schedule an appointment with Padmaja Kandula, M.D
This is the first of five podcasts we are releasing this week. Pray for us. In this episode, we reviewed "A Kiss Before Christmas" starring James Denton and Teri Hatcher, as well as "Five More Minutes" starring Nikki DeLoach and David Haydn Jones. A Kiss before Christmas is the second Christmas movie this year where a main character goes back into an alternate reality and is tasked to find out why they were sent back to get back to their reality. Both of us liked this movie more than Next Stop Christmas. Better chemistry between the actors, and the reason why he had to go back was very clear from the beginning. There were some points of contention though, such as poor shaming. I mean Ethan had a loving wife, kids, and a big house and car, yet it still wasn't enough for him. I mean I get it that it's to keep appearances with the company, but his life was good. No one really needs a chauffeur or a Ferrari. Five More Minutes was a tear jerker, and a perfect movie. We talked to Nikki in depth about this movie. It is beautiful story and great premise. We gave A Kiss Before Christmas 3.5 stars and gave Five More Minutes 5 stars. Giving a shoutout to Lisa, our first buymeacoffee supporter. She is Americano level, $1 a month. For $1 a month, you get access to unedited interviews. If you want a shoutout on the podcast and get access to unedited interviews, it's only $1 a month. Click on the buymeacoffee link. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Support the podcast and buy me a coffee. For $1 a month, you get early access to interviews and podcasts. https://www.buymeacoffee.com/hmarkheartbeats
Happy Thanksgiving to our American Listeners. Hope you enjoy your time with your family today. This week we are reviewing Nantucket Noel starring Trevor Donovan and Sarah Powers as well as A Christmas Together with You starring Niall Matter, Laura Vandervoort and Harry Linux. Not going to lie, both movies were duds for us this week. Nantucket Noel was boring. It is the same story trope Hallmark has done a million times of evil developer comes to tear down a landmark, and local business owner fights them. I do have to say the ending was different. Unlike the other movies with the same trope, the developer still had to tear down the wharf. There were some points that had us cracking up though, like a topless mermaid on the mural of a children's toy store and grandpa was a Grinch. lol. A Christmas Together with You was only slightly better. The storyline of the older couple was much better and in our opinion, Steve and Megan was an afterthought. Come on Hallmark, just tell the love story of an older couple without the younger one as a lead. It's a surprise. I give Nantucket Noel 1 star, Kayla gives it 2.5 stars. A Christmas Together with you got 2 stars from me. 3 from Kayla November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Support the podcast and buy me a coffee. For $1 a month, you get early access to interviews and podcasts. https://www.buymeacoffee.com/hmarkheartbeats
5 years ago Kelly's teenage son was diagnosed with Epilepsy after having a grand mal seizure. She is passionate about educating people about Epilepsy and talks with Dr. Archana Pasupuleti a Pediatric Epileptologist at Children's National. We discuss what is epilepsy, signs of epilepsy, treatments, mental health implications, and what to do if you witness someone having a seizure. LINKS: Children's National Hospital https://childrensnational.org/visit/find-a-provider/archana-pasupuleti Epilepsy Awareness Month https://www.epilepsy.com/make-difference/public-awareness/national-epilepsy-awareness-month From Real.Fun.DC. “The Tommy and Kelly Show” is produced in Washington, DC providing news, culture, playful conversation, positive energy, and a dose of morning fun any time. Download the Real.Fun.DC. APP to check out our wide array of programming app.RealFunDC.com Follow Kelly Collis Twitter: https://twitter.com/cityshopgirl Instagram: https://www.instagram.com/cityshopgirl/ LinkedIN: https://www.linkedin.com/in/kellycollis/ Follow Tommy McFLY Twitter: https://twitter.com/tommymcfly Instagram: https://www.instagram.com/mrtommymcfly/ LinkedIN: https://www.linkedin.com/in/tommymcfly/
This week we have the honor and the privilege to chat with the talented and beautiful queen of breaking our hearts but also giving us hope, Nikki DeLoach, star of many Hallmark classics such as Love Takes Flight, Reunited at Christmas and Two Turtle Doves. Her most recent Christmas movie is called Five More Minutes, also starring David Haydn Jones. Oh man, like there is no words to describe this honor. Several times throughout this podcast, there were tears and laughter. We had the honor to chat about the movie Five More Minutes, to talk about her dad, who recently passed from Pick's Disease, and working with David Haydn Jones. Also we briefly talked about her other movie of 2021 Taking the Reins and how both movies have helped Nikki with her grief. We also shared our own struggles with our faith, our link to alzheimers and so much more. This was nothing but an honor. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Support the podcast and buy me a coffee. For $1 a month, you get early access to interviews and podcasts. https://www.buymeacoffee.com/hmarkheartbeats
This week Kayla and I are back reviewing the last two movie premieres of the week: A Holiday in Harlem starring Olivia Washington, Will Adams and Tiffany Lifford, as well as One December Night starring Eloise Mumford, Brett Dalton, Bruce Campbell and Peter Gallagher. We praise the representation in A Holiday in Harlem. From an all black cast to a curvy beautiful lead. We also loved the neighborhood feel of this movie. The block party was the bomb and the fashion show was very much like a black fashion show. (That's how it was in my neighborhood growing up anyway. lol.) Also we are very critical of Hallmark's lack of advertising this movie, which in our opinion was a big contribution to its ratings. Kayla and I give this movie 4 out of 5 stars One December Night was heavy, touching upon subjects of alzheimer's, alcoholism, abandonment and cancer. But it was beautifully done. You cried and you laughed. The actors all had chemistry and was believable. Also this had the right amount of singing, which was a critic we had with Christmas in Harmony. We wanted more singing in the movie since it centered around a choir. This storyline, singing only in the end made sense since both men were reluctant to work together Kayla gives this one 5 stars. I give it 4.8. *My favorite is still Christmas in My Heart. Sunday, November 21, we will be releasing our interview with Nikki DeLoach about her newest movie, Five More Minutes. It was an honor to interview her. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Support the podcast and buy me a coffee. For $1 a month, you get early access to interviews and podcasts. https://www.buymeacoffee.com/hmarkheartbeats
In this podcast episode, Kayla and I review two of the newest releases from Hallmark Channel titled Open by Christmas starring Allison Sweeney, Brennan Elliot and Erica Durance. As well as My Family Christmas Tree starring Aimee Teagarden, Andrew Walker and James Tupper. Neither of us like Open by Christmas. We both feel that the storyline with the supporting characters was much better and should have been the lead storyline. I personally feel that Brennan and Allison were used in this movie for their "names". That's it. Their storyline was boring. My Family Christmas Tree was good. We both liked the movie. We just didn't like the DNA snafu and couldn't understand how that was solved. We both think it would have been better off if Vanessa wasn't a daughter and the family said "who cares. You're part of the family anyway." Or that the DNA snafu had never occurred in the first place. Kayla gives Open by Christmas 1.5/5 stars. I give it 2 stars. Kayla gives My Family Christmas Tree 3.5 stars. I give it 3. Podcast reviewing One December Night and A Holiday in Harlem will be out on Friday. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Support the podcast and buy me a coffee. For $1 a month, you get early access to interviews and podcasts. https://www.buymeacoffee.com/hmarkheartbeats
This week, we are joined by Keith Powell, director of newest Hallmark Christmas movie A Holiday in Harlem. We talk about the making of the film, turning Connecticut to Harlem, his passion for telling important black stories, and Denzel Washington's name was also dropped. We also talked a little bit about This is Us and the IATSE strikes, how crew of A Holiday in Harlem spoke up in support of how Mr. Powell ran his set and kept everyone safe. Don't forget to tune in on Sunday night at 8 PM ET on Hallmark Channel to watch A Holiday in Harlem. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433
Kayla is back and in this episode we review two more movies this week. Next Stop Christmas and A Christmas Treasure. We both appreciated the throwbacks to Polar Express, Back to the Future, The Terminator, Star Wars and The Lake House in Next Stop Christmas. In Camille's opinion though, the movie was just lacking. The chemistry between the leads were missing, the ending was rushed and Camille wasn't cheering for Ben and Angie by the end of the movie. We both loved Jordin singing, but again, in Camille's opinion, this movie wasn't memorable. Camille gives Next Stop Christmas 2.5 stars Kayla gives it 3 stars Camille gives A Christmas Treasure 2.5 stars Kayla gives it 4 stars. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433 Next week's movies: Friday 11/15 Open By Christmas Saturday 11/16 My Christmas Family Tree 11/16 One December Night Sunday 11/17 A Holiday in Harlem Next podcast out will be an interview with Keith Powell, director of A Holiday in Harlem
This week I am joined by Cally Younger, writer for the Hallmarks the Spot Blog and we talk about two of this week's newest Hallmark movies Gingerbread Miracle and Debbie MacComber's A Mrs. Miracle Christmas. We fall in love with Jon Ecker, lament over where he has been hiding. We also discuss pressures of first and second generation immigrants, expectations and wishes. We praise Hallmark for the steps it's taken towards inclusion and diversity, in particular presenting and explaining the symbolism behind the Las Posadas. As a former foster child, and Cally being a foster parent, we discuss A Mrs. Miracle Christmas from both perspectives. We share stories of being part of the system, the difficulties of finding homes for older children and more. We praise Hallmark for discussing this subject matter in the movie, also touching upon infertility and how it might affect marriages. Also we praise the comedic moments between Nana and Mrs. Merkel. Cally gives Gingerbread Miracle 3 stars. Camille gives it 3.5 stars. Cally and I both give Mrs. Miracle Christmas 5 stars. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433
As November is National Epilepsy Awareness Month, Joyce welcomes two members of the board of Epilepsy Alliance America, Allison DeBattista, founding member and serves as board member of the Epilepsy Alliance Louisiana Also Liza Gundell, Chief Executive Officer of Epilepsy Services of New Jersey. Epilepsy Alliance America is a nation-wide network of community-based epilepsy organizations who are dedicated to confronting the spectrum of challenges created by seizures through the promotion of independence and quality of life for people with epilepsy and their families. Among the topics discussed will be how the pandemic changed the advocacy landscape and what we learned from moving forward. With more people being comfortable with online platforms to communicate, it makes it easier for people living with epilepsy and disabilities to participate in meetings and have a voice in policymaking. Also discuss how Epilepsy Alliance America is committed to advocating for broader access to care, including telehealth in rural communities across the country.
As November is National Epilepsy Awareness Month, Joyce welcomes two members of the board of Epilepsy Alliance America, Allison DeBattista, founding member and serves as board member of the Epilepsy Alliance Louisiana Also Liza Gundell, Chief Executive Officer of Epilepsy Services of New Jersey. Epilepsy Alliance America is a nation-wide network of community-based epilepsy organizations who are dedicated to confronting the spectrum of challenges created by seizures through the promotion of independence and quality of life for people with epilepsy and their families. Among the topics discussed will be how the pandemic changed the advocacy landscape and what we learned from moving forward. With more people being comfortable with online platforms to communicate, it makes it easier for people living with epilepsy and disabilities to participate in meetings and have a voice in policymaking. Also discuss how Epilepsy Alliance America is committed to advocating for broader access to care, including telehealth in rural communities across the country.
This week we also get to interview actor Azriel Dalman, star of Hallmark movie "Coyote Creek Christmas" Can you believe he is almost seven years old and been acting more than half his life? We talk about what it was like working with Janel Parrish and Ryan Paevey, audition process and cookies. Lots of cookies. Lol November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433
This week Kayla and I discuss two Hallmark Christmas movies Christmas Sail and Christmas Promise. Christmas Sail has a new cast for Hallmark. We were both very impressed with the child actress who played Hannah and talked a little bit about high school boyfriends and WHO GIVES HOMEWORK DURING CHRISTMAS BREAK? In Christmas Promise, we rant about Susan, can't believe her friends were pushing her to move on so quickly and rant about the casting of Patrick Duffy as Torrey Devitto's grandfather. Like that makes zero sense. November is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433
This week we get to interview actress Tia Streaty, star of newest Hallmark Christmas movie Christmas in Harmony. She played the character of Felicia. We talk about what it was like working with the rest of the cast, being part of this historic film that not only has a mostly black cast, but also is set in an AME church. We also talk about the backlash this movie has received from some of the fans complaining about the diversity and not wanting to see black people on their screens, and our hopes in the future for more diverse casting and stories. Future podcasts: The Christmas Promise and Christmas Sail Review Interview with Azriel Dalman, star of Coyote Creek Christmas Today is National Epilepsy Awareness Month. Kayla has epilepsy. To donate to support the cause, click on the link https://www.epilepsy.com Join our newly minted Facebook group whose purpose is to highlight diversity and inclusion Hallmark Channel has taken. https://www.facebook.com/groups/421837762791433
I come from a family of 6, and you must have seen and heard from 4 of my family members - mom, dad, my older sister Leslie and younger brother Musaga. However, many of you have never heard about my other brother Bayong, who is the youngest sibling. Bayong was born just like any of us but had a seizure disorder, which changed the trajectory of his life, as well as the rest of our lives. Today, we sit down for the first time to share his story and also open up about our experience growing up with him and how that has impacted our lives. This is definitely a vulnerable moment like never before. If you think you knew me, well, you will get to really know me through this conversation. Heck, I also got to learn a lot about my family like never before. For the first time on this platform, I was the host and guest at the same time. It felt great to bare my emotions all out with my family and I hope that our story doesn't only inspire families going through a similar experience, but encourages us all to be sensitive to what these families with special needs children are going through. In honor of National Epilepsy Awareness Month, here is to Bayong and every other special needs child who has been impacted by epilepsy! We love you! Things you will learn in this episode: [00:01 – 04:42] Introduction Introducing the guests and sharing a brief background on the topic. [04:42 – 24:32] Mom & Dad Share The Story of How it All Began The troubling pregnancy Childbirth and issues afterward Pressure to look for a solution to Bayong's health Finding hope and faith in God Going through depression Finding support and peace [24:32 – 36:40] Sharing Our Experiences as Siblings Anyoh shares her experience Leslie shares her experience Musaga shares his experience [36:40 – 50:30] Dealing with Societal Pressure & Questions People advised that we abandon Bayong Dealing with the social pressure and family Mom shares an emotional story of a childhood talk between Bayong & Musaga The support system that positively impacted the situation [50:30 – 1:02:31] Our Fears & Hope Anyoh shares her fears and worries Leslie talks about keeping hope when Bayong is going through seizure episodes Musaga shares his fears, hope, and gratitude Mom & Dad share their fears, finding inspiration and giving back to others [1:01:31] – 1:07:44] Lessons Learnt & Final Discussions Mom and Dad share words of wisdom to other families Anyoh urges the society to be kind and supportive Last words and final thoughts from Anyoh Tweetable Quotes: “One of the [traditional] doctors told us that he was a snake and that if we are tough enough, just gather all his things and go and keep him by the riverside and I am going to transform him back into the snake so that he can go. At that point, we made that decision that we have had enough!” - Dr. Grace Fombad “Growing up and to this day, with [Bayong] being my only brother, I always felt that void. There was always that hope that one day he will even be able to say a word back, or play with me or just me wondering what life would have been like if things were different for his health.” - Musaga Fombad “A lot of times as I have grown up, there is also that feeling of guilt because that could have been me. I feel like I get to experience all of these things that he never got the opportunity to. It is tough just thinking about it and being helpless.” - Musaga Fombad “Sometimes you can't help but feel that he is just suffering too much and you mostly just pray but it has just been difficult and a bit rocky. One minute you think he is fine, and the next minute he is back to a stage where you really don't know what is going to happen to him.” - Dr. Leslie Fombad “[Bayong's story] changed our lives completely and we are better people as we can adjust to any condition in life. Most people will not accept that type of condition but we did and we are still going on strong, and we will encourage other families to emulate our example.” - Dr. Rudolf Fombad LEAVE A REVIEW and tell us what you think about the episode so we can continue putting out the best content just for you! You can connect with us on Facebook, Instagram, YouTube, Twitter, or send us an email at hello@livingafricanpodcast.com. Check out our website www.livingafricanpodcast.com for more resources and to learn more. You can connect with Anyoh on Facebook (@anyohf), Instagram (@anyohfombad), and Twitter (@anyohfombad).
Joyce welcomes Peggy Beem Jelley is the president & CEO of the Epilepsy Association of Western and Central PA. to the show. With November as National Epilepsy Awareness Month, Ms. Beem Jelley will talk about the programs and services of the organization to bring greater awareness to epilepsy and how to live with the condition.
Joyce welcomes Peggy Beem Jelley is the president & CEO of the Epilepsy Association of Western and Central PA. to the show. With November as National Epilepsy Awareness Month, Ms. Beem Jelley will talk about the programs and services of the organization to bring greater awareness to epilepsy and how to live with the condition.
On this podcast I wanted to thank everyone
Join the Epilepsy Foundation of Colorado in a week-long virtual symposium on epilepsy and how it affects our lives! Each session starts at 5:30pm, Mountain Time. Check out their website for all the information and to register for various presentations! I'll be attending a few of them, and hope to 'see' you in some of them! https://www.epilepsycolorado.org/
November is National Epilepsy Awareness Month in the U.S.! The Epilepsy Spectrum is celebrating by sharing your stories all month long! Mike Gurash is now seizure-free after his long journey with post traumatic epilepsy! Learn about his holistic, natural approach to improving his brain health!
November is National Epilepsy Awareness Month. Epilepsy is prevalent worldwide. Jade Elliott sits down with Margo Thurman, Executive Director, Epilepsy Foundation of Utah, on this episode of the Baby Your Baby Podcast to discuss epilepsy, when it begins and some of the causes. In the U. S., 3.4 million have epilepsy. In Utah, approximately 30,000. Worldwide … Continue reading Kids and epilepsy → See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
November is National Epilepsy Awareness Month. Epilepsy is prevalent worldwide. Jade Elliott sits down with Margo Thurman, Executive Director, Epilepsy Foundation of Utah, on this episode of the Baby Your Baby Podcast to discuss epilepsy, when it begins and some of the causes. In the U. S., 3.4 million have epilepsy. In Utah, approximately 30,000. Worldwide … Continue reading Kids and epilepsy →
Joyce welcomes Peggy Beem-Jelley, president and CEO of the Epilepsy Association of Western and Central PA to the show. In recognition of November as National Epilepsy Awareness Month, discussed on the show will be the programs and services of this local association for people living with epilepsy.
Joyce welcomes Bob Smith, chairman of the national board of directors of the Epilepsy Foundation. To close out of National Epilepsy Awareness Month, Mr. Smith will discuss the programs and services of this organization and what is being done nationally to improve the lives of people living with epilepsy.
During National Diabetes Awareness Month - and as we head into one of the biggest eating weeks of the year - host John Voket is talking prevention with the Diabetes Education Program Coordinator at Saint Francis Hospital and Medical Center. Then we'll be marking National Epilepsy Awareness Month with the CT Epilepsy Advocate before we head to Chicago to chat with the title star of the musical 'Hamilton' about a new national epilepsy awareness campaign that can put you in the spotlight. The we'll close with our consumer watchdog from Connecticut BBB with advice about a number of consumer issues you should be aware of during the holiday season and New Year.
Continuing with the recognition of November as National Epilepsy Awareness Month, Joyce welcomes The Honorable, Tony Coelho, author of the Americans with Disabilities Act (ADA) to the show. As a person living with epilepsy, Mr. Coelho will discuss his experiences and how he has overcome the stigma often associated with epilepsy.
Joyce welcomes The Honorable Tony Coelho, former California congressman and author of the Americans with Disabilities Act. He will discuss his personal journey with epilepsy and the importance of increasing understanding about epilepsy during National Epilepsy Awareness Month.
In recognition of November as National Epilepsy Awareness month, Joyce welcomes Donna Stahlhut, CEO of the Epilepsy Foundation of Texas, Houston/Dallas-Fort Worth/West Texas. Ms Stahlhut will discuss the mission of this organization and the programs and services it has in place to foster greater awareness of epilepsy.
As we celebrate National Epilepsy Awareness Month, Joyce welcomes Phil Gattone, president and CEO of the national Epilepsy Foundation to the show. He will discuss the mission of the organization, and the programs and services it offers, all to bring greater awareness of epilepsy and its effect on those living with the condition and their families.
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In recognition of November being National Epilepsy Awareness month, Joyce welcomes Peggy Beem-Jelly, CEO of the Epilepsy Foundation of Western/Central PA and Shannon Bursick, whose daughter died from SUDEP at the age of seven. Ms. Beem-Jelly and Ms. Bursick will discuss epilepsy and SUDEP (Sudden Unexpected Death of Someone with Epilepsy); now the leading cause of death in persons with chronic uncontrolled epilepsy.
Joyce welcomes Don Clayback executive director of the National Coalition for Assistive and Rehab Technology (NCART). NCART is national association of complex rehab technology (CRT) providers and manufacturers focused on ensuring individuals with disabilities have adequate access to specialized wheelchairs, seating and positioning systems, and other adaptive equipment such as standing devices and gait trainers. He has responsibility for monitoring, analyzing, and influencing regulatory policies and legislation at both the federal and state level. He will discuss the importance of supporting passage of The Ensuring Access to Quality Complex Rehabilitation Technology Act that would create a separate benefit category under Medicare for CRT.
In recognition of November as national Epilepsy Awareness month, Joyce welcomes Peggy Beem-Jelley, CEO of the Epilepsy Foundation of Western/Central PA. Ms. Beem-Jelley will discuss the mission of this organization and the programs and services it has in place to foster greater awareness of epilepsy.
In recognition of November as national Epilepsy Awareness month, Joyce welcomes Phil Gattone, CEO of the national Epilepsy Foundation. Mr. Gattone will discuss the mission of this organization and the programs and services it has in place to foster greater awareness of epilepsy.
Joyce welcomes Judy Painter, president and CEO of Epilepsy Foundation of Western/Central PA to the show. In recognition of National Epilepsy Awareness Month, Ms. Painter will share a wide range of information about epilepsy including what it is and the different types of seizures there are. Also Ms. Painter will discuss the programs and services her organization provides to support people living with epilepsy and their families.
As we continue with National Epilepsy Awareness Month, Joyce welcomes Sara Elizabeth Clark. Sarah will discuss her life with epilepsy and how she has developed her philosophy: “I will not let my epilepsy define me. It's what I have, not who I am.” Sara will describe her advocacy for epilepsy awareness with her site http://itsnotwhoiam.com and her work in Washington, DC to increase public awareness.
Epilepsy is a neurological disorder that affects the central nervous system and causes seizures. More than 3 million Americans and more than 65 million people worldwide have epilepsy - a key reason that November is recognized as National Epilepsy Awareness Month. Thankfully, treatment with medications or sometimes surgery can control seizures for most people with epilepsy. On the Mayo Clinic Q&A podcast, Dr. Joseph Sirven, a Mayo Clinic neurologist, discusses the importance of raising awareness of epilepsy to lessen the stigma, Dr. Sirven also highlights the latest in treatments and research. Advertising Inquiries: https://redcircle.com/brandsPrivacy & Opt-Out: https://redcircle.com/privacy