Podcasts about Epilepsy Foundation

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Best podcasts about Epilepsy Foundation

Latest podcast episodes about Epilepsy Foundation

Inside The Senior Alliance
Inside The Senior Alliance – Epilepsy Foundation of Michigan (Ep 54)

Inside The Senior Alliance

Play Episode Listen Later Mar 24, 2025 21:30


In this episode, Emma Case, Planning and Advocacy Manager at The Senior Alliance, talks to Renee Roederer, Senior Director of Programs and Community Care at The Epilepsy Foundation of Michigan. They discuss how epilepsy affects those who have it, particularly among seniors, and many of the common misconceptions about epilepsy. For example, you can be diagnosed at any age with epilepsy, even if you have not had it before. They also talk about navigating the healthcare system, getting better accommodations for those living with epilepsy, and how to find support in Michigan for patients and their caregivers. Great information! www.thesenioralliance.org. Produced by The Senior Alliance and Blazing Kiss Media. The post Inside The Senior Alliance – Epilepsy Foundation of Michigan (Ep 54) appeared first on The Senior Alliance.

SynGAP10 weekly 10 minute updates on SYNGAP1 (video)
Save Medicaid: A Critical Moment for Our Loved Ones

SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

Play Episode Listen Later Mar 12, 2025 10:10


Please give my video a watch and SAVE MEDICAID!   Do it as if your child's life depends on it. I want to emphasize the importance of the current moment regarding Medicaid, not to alarm you, but to underscore the urgency of the situation. This is a critical time for the well-being of our loved ones, and the need to act has never been more pressing.   For over 30 years, I've been advocating at the state legislature level and with congressional members, but the potential cuts to Medicaid we are facing now are unlike anything we've encountered before. We must work together to protect this vital resource. Your support could make a significant difference.   To reach out to your Congressional Member consider these two resources: - Epilepsy Foundation: https://www.epilepsy.com/advocacy/advocate  - ARC of US: https://p2a.co/lRPDZ5C  What Medicaid means to your family: https://action.thearc.org/3jLx90b 

Epilepsy HELL to Epilepsy WELL... why not do something about it | Your Drug-Free Epilepsy Foundation

Depression sucks. This year I won't let it stop us from making it the best year we can. In this episode, I talk about a few subjects. I may get a bit aggressive and cry around the beginning.Religion was part of my child abuse. I try not to be mean about it but there are some things that were very wrong with the Mormon church when I was forced to go as a child.Ever have the cops give you a seizure? I have...It's a New Year and that means be kind to yourself and take care of yourself like you matter.​Read: Outwitting The Devil by Napoleon Hill ​Follow: @TheFoodBabe #standagainstkelloggs #CancelKellogs - the Epilepsy Foundation was endorsing Kellogg's last year even though research shows the dangers and neurological disorders from chemical colors and flavors. Even one of the heiresses of the Kellogg's company says to boycott them until they make food safe. Do YOUR research!​Join for FREE: My NEW webclass: '3 Secrets To Drastically Reduce or Completely Eliminate Seizures From Ruining The Rest of Your Life, in as Little as 6 Months' https://EpilepsySecrets.com

Abundant Vision Fundraising Podcast
Bernice Martin Lee Part 3: Recovering and Learning From a Rescinded Verbal Commitment

Abundant Vision Fundraising Podcast

Play Episode Listen Later Dec 7, 2024 20:03


In this episode Bernice Martin Lee, CEO of the Epilepsy Foundation, discusses how she salvaged a relationship with a donor, after they changed their mind regarding a verbal commitment. Lee also discusses the importance of building partnerships with corporations that lead to philanthropy and how a lapsed donor list played an important role in her strategic planning.For more information on epilepsy, visit https://www.epilepsy.com/Looking for fundraising coaching or help planning your next campaign?Check out www.abundantvision.net

Your Child's Brain
Unlocking the Stigma of Epilepsy

Your Child's Brain

Play Episode Listen Later Dec 5, 2024 38:41


Epilepsy is one of the most common serious neurologic disorders seen in children and adults, in fact, 1 in 26 people will develop epilepsy during their lifetime. It can occur on its own or alongside other health conditions of the brain. Despite it being relatively common, there are many myths, misunderstandings---as well as a great deal of stigma associated with epilepsy. Join Kennedy Krieger's CEO Dr. Brad Schlaggar and his colleagues from the Institute and Johns Hopkins as they address those topics, as well as approaches to diagnosis and treatment, and what research holds in store for pediatric patients with epilepsy. Resources Kennedy Krieger epilepsy resources https://www.kennedykrieger.org/epilepsy-services-at-kennedy-krieger-institute/epilepsy-resources Epilepsy Foundation https://www.epilepsy.com/See omnystudio.com/listener for privacy information.

mg par kilo - balado
Épisode 8 | Épilepsie (partie 2)

mg par kilo - balado

Play Episode Listen Later Nov 25, 2024 34:04


Avec Dr Philippe Major, neurologue pédiatrique, Stéphanie Benoit, nutritionniste de la clinique de neurologie, et Marianne Boulé, pharmacienne au CHU Sainte-Justine, nous allons:  Partie 1: définir l'épilepsie et l'impact qu'elle a sur la vie des patients ; distinguer les convulsions provoquées de celles non-provoquées ; discuter des principales lignes de traitements pharmacologiques ; Partie 2:  expliquer les principes de la diète cétogène chez les patients vivant avec une épilepsie réfractaire ; identifier les médicaments qui doivent être évités en diète cétogène ; résumer les traitements chirurgicaux et la neuromodulation.Références:Voir la description de l'épisode 7 | épilepsie (partie 1) pour toutes les autres références ;-Diète cétogène : Aliments sous ordonnance [Internet]. CHU Sainte-Justine. 2022. -Institut national d'excellence en santé et en services sociaux (INESSS). Le régime cétogène dans le traitement de l'épilepsie réfractaire. Juillet 2020.-Kossoff EH, Zupec-Kania BA, Auvin S et al. Practice Committee of the Child Neurology Society. Optimal clinical management of children receiving dietary therapies for epilepsy: Updated recommendations of the International Ketogenic Diet Study Group. Epilepsia Open. 2018 May 21;3(2):175-192. -VitaFlo. An introductory guide for the practical implementation of the ketogenic diet (KD) for the dietary management of epilepsy and neurometabolic disease. Mars 2020.-Neurochirurgie. [Internet]. CHU Sainte-Justine. 2022-Dallas J, Englot DJ, Naftel RP. Neurosurgical approaches to pediatric epilepsy: Indications, techniques, and outcomes of common surgical procedures. Seizure. 2020 Apr;77:76-85. -Stimulation du nerf vague. Dépliant produit par le CHU Sainte-Justine. Révisé en 2012.-Vagus Nerve Stimulation (VNS) Therapy. Epilepsy Foundation. 2024.-Unité de l'évaluation des technologies et des modes d'intervention en santé. Pertinence clinique de l'utilisation de la neurostimulation dans letraitement de troubles neurologiques (Dystonie ou épilepsie) pharmacorésistants. Rapport final version 2. Mars 2024.Merci pour l'écoute! Allez mettre une réaction sur vos épisodes préférés, partagez la bonne nouvelle sur Facebook/Instagram et abonnez-vous pour ne rien manquer

Abundant Vision Fundraising Podcast
The Journey from Major Gift Officer to CEO: Bernice Martin Lee

Abundant Vision Fundraising Podcast

Play Episode Listen Later Nov 11, 2024 22:38


In this episode Bernice Martin Lee, CEO of The Epilepsy Foundation, shares her personal experience as a fundraiser with epilepsy, along with her journey from frontline fundraiser to CEO.Want to learn more about the work of the Epilepsy Foundation?https://www.epilepsy.com/Looking for Fundraising Coaching?Check out www.abundantvision.net

WGY Mornings with Doug Goudie
Susan Kaczynski is Director of Donor Engagment for the Epilepsy Foundation of Northeastern New York Full Interview

WGY Mornings with Doug Goudie

Play Episode Listen Later Nov 1, 2024 5:41


Got an opinion? On the iHeartRadio app, tap the red microphone to record & send us your thoughts. Don't have the app? Get it free here ---> https://news.iheart.com/apps/ Follow us: Instagram - wgyradio X - WGYMornings Facebook - 810wgy & WGYMornings

WGY Mornings with Doug Goudie
Susan Kaczynski is Director of Donor Engagment for the Epilepsy Foundation of Northeastern New York Full Interview

WGY Mornings with Doug Goudie

Play Episode Listen Later Nov 1, 2024 5:41


Got an opinion? On the iHeartRadio app, tap the red microphone to record & send us your thoughts. Don't have the app? Get it free here ---> https://news.iheart.com/apps/ Follow us: Instagram - wgyradio X - WGYMornings Facebook - 810wgy & WGYMornings

Good Banter with Tom Siegert and Evan Hocking

We're back at Good Banter HQ and the feller's are debriefing Evo's bro Heatho's 200km's on the treadmill for The Epilepsy Foundation. Tommy has got one of sister's kids to sign him up to TikTok and he's flying, Evo's been on TikTok for a few weeks and hasn't moved the needle. Evo sees something very interesting in Junee and visits "The Dart Cave" in Gladstone Park.  Sit back, relax and enjoy some "Good Banter" Grab tickets to the fellers Geelong show - https://www.trybooking.com/CVMDQ Support Heatho at - https://www.walkforepilepsy.org.au/fundraisers/heathhocking/vic-nsw Support Bretty at - https://www.walkforepilepsy.org.au/fundraisers/brettcampbell/vic-nsw  

Good Banter with Tom Siegert and Evan Hocking

We're coming at you a day early as Evo's nutcase brother is in the middle of his 250km run on a treadmill to raise money for the Epilepsy Foundation.  The fellers had a big Grand Final week as Tommy heads to Devon Meadows at sparrows fart to MC their Grand Final breakfast. Evo is into town early for the St. Kilda Grand Final Brunch and then off to the MCG to have his dreams shattered. Tommy has a big development at work. Sit back, relax and enjoy some "Good Banter" Jump on the Patreon - www.patreon.com/goodbanter Support Heatho at - https://www.walkforepilepsy.org.au/fundraisers/heathhocking/vic-nsw Support Bretty at - https://www.walkforepilepsy.org.au/fundraisers/brettcampbell/vic-nsw Get to the boys Geelong show - https://www.trybooking.com/CVMDQ  

For the People
Pride Month '24 w State Rep Dominique E. Johnson - Epilepsy Foundation of CT / BioHaven - Read to Grow

For the People

Play Episode Listen Later Jun 2, 2024 60:10


It's the first weekend of June and that means it's Pride Month, so listen in as we participate in an engaging and empowering conversation with Connecticut State Rep Dominique E. Johnson - proudly serving Norwalk and Westport. After being out for over three decades, hear how Rep. Johnson advocates for some of the youngest and most marginalized members of our LGBTQ+ communities, and her views on how we can do better. Then due to a technical issue, we're replaying last week's second and third segments starting one covering a health issue impacting over 30,000 individuals across the state - epilepsy - with reps from the Epilepsy Foundation of CT touting their upcoming golf tourney and this summer's Camp Courage. And - you'll meet a rep from BioHaven who will help see if you or someone you know are qualified for that company's two latest epilepsy studies. Then we're replaying last week's chat with Read to Grow. Over nearly the past quarter century, Read to Grow has helped promote and sustain healthy reading habits and literacy for tens of thousands of children and families. Stay tuned and learn how you can get involved.

Morning MAGIC with David, Sue, & Kendra
Susan Flynn CEO of Epilepsy Foundation New England on Morning MAGIC

Morning MAGIC with David, Sue, & Kendra

Play Episode Listen Later May 30, 2024 4:56


We talked with Susan Flynn, CEO of Epilepsy Foundation New England about David literally rappelling off the side of the Hyatt Regency for charity! Rappel Boston will take place Saturday, June 15 at the Hyatt Regency in Cambridge. Registration is open now at RappelBoston.org

For the People
Epilepsy Foundation of CT / BioHaven

For the People

Play Episode Listen Later May 28, 2024 21:51


Tune in and learn more about a health issue impacting over 30,000 individuals across the state - epilepsy - with two knowledgeable reps from the Epilepsy Foundation of CT touting their upcoming golf tourney and this summer's Camp Courage - and we'll meet a rep from BioHaven who will help see if you are qualified for that company's two latest epilepsy studies.

Exploring Different Brains
Understanding Epilepsy, with Anna Diaz & Luis Martinez of Epilepsy Alliance Florida | EDB 324

Exploring Different Brains

Play Episode Listen Later May 28, 2024 28:38


Epilepsy Alliance Florida's Anna Diaz & Luis Martinez share facts about seizure disorders, and how the Alliance is working to increase awareness and support. Anna Diaz is a Social Service Aide for the Epilepsy Alliance Florida (EAF), and is herself an epilepsy self-advocate. Luis Martinez is a Community Resource Specialist for EAF. Established in 1971 as a not-for-profit 501(c)(3), EAF is the principal agency for epilepsy programs and services sponsored by the State of Florida, servicing over half a million Floridians who live with the condition. For most of our history we were known as Epilepsy Foundation of Florida but in July 2018 we formally changed our name as we co –founded Epilepsy Alliance America, a nation-wide network of community-based epilepsy organizations. EAF also serves as the lead advocate for the rights and needs of people with epilepsy and seizures at the local, county, state and national level. For more about EAF: https://epilepsyalliancefl.org/ Follow Different Brains on social media: https://twitter.com/diffbrains https://www.facebook.com/different.brains/ https://www.instagram.com/diffbrains/ Check out more episodes of Exploring Different Brains! http://differentbrains.org/category/edb/

For the People
BHCare / A Chance to Shine - Epilepsy Foundation of CT / BioHaven - Read to Grow

For the People

Play Episode Listen Later May 26, 2024 55:20


Today we're going to open luring you out to Oxford on June 1 for one of the Naugatuck Valley and Shoreline's biggest celebrations benefiting BHCare - A Chance to Shine. The funds raised at this huge family event and the online auction happening now will help countless children, adults and families in your community as they strive to recover from mental illness, substance use, domestic violence and other health-risk behaviors. Then we'll pivot to learn more about a health issue impacting over 30,000 individuals across the state - epilepsy - with two knowledgeable reps from the Epilepsy Foundation of CT touting their upcoming golf tourney and this summer's Camp Courage - and we'll meet a rep from BioHaven who will help see if you are qualified for that company's two latest epilepsy studies. And we'll close with Read to Grow. Over nearly the past quarter century, Read to Grow has helped promote and sustain healthy reading habits and literacy for tens of thousands of children and families. Stay tuned and learn how you can get involved.

The Mark White Show
Make A Difference Minute: Sara Franklin with Epilepsy Foundation of America

The Mark White Show

Play Episode Listen Later May 4, 2024 2:16


On today's Make A Difference Minute, we are once again highlighting the work of the Epilepsy Foundation of America with regional director Sara Sanderson Franklin! Sponsor: Hydration Lounge HydrationL.com

Around H-Town
Around H-Town: Epilepsy Foundation of Texas - 02/18/24

Around H-Town

Play Episode Listen Later Feb 20, 2024 8:08


See omnystudio.com/listener for privacy information.

Penny Forward
Penny Forward Podcast Inclusion In Tune, The Shine Music Festival with Shawn Satterfield

Penny Forward

Play Episode Listen Later Feb 6, 2024 32:10


Date and Time 02/06/2024 Length24 hours Description In this episode of the Penny Forward podcast, Shawn Satterfield, founder of Shine Music, discusses the Shine Music Festival's mission to create a radically accessible live music event in Colorado. She shares her journey, the challenges faced, and the innovative accessibility features implemented at the festival. The discussion also covers Shawn's background, the importance of community feedback, and the festival's inclusive design. Additionally, Shawn talks about fundraising goals and her excitement about joining the Penny Forward team to contribute her web development skills. The Penny Forward Podcast releases a new episode to the public every other week. If you would like to listen one week early, become a member of our website and enjoy exclusive access. We offer a complimentary guest membership for you to get started. How to Access... Links go live at 6am on the day of release. Listen here and read the show notes Transcript available here   Show notes Shawn Satterfield/Shine Music Festival Org. Information: shinemusic.rocks This Year's Page: https://shinemusicfestival.com/ Epilepsy Foundation: https://epilepsycoloradowyoming.org/ Davis Phinney Foundation: https://davisphinneyfoundation.org/ Special Olympics: https://specialolympicsco.org/ Autism Community: https://autismcommunitystore.com/ Full Body Sound: https://www.fullbodysound.com/ Feel the Beat: https://www.feelthebeat.dance/ XRAI glasses: https://xrai.glass/ Autism Community Store: https://autismcommunitystore.com/ Goose: https://www.goosetheband.com/ So Ready For ADA.: https://www.facebook.com/groups/soreadyforada Felix Pastorius: https://www.felixpastorius.com/ Harry Waters: https://www.harrywaters.com/ SunSquabi: https://www.sunsquabi.com/ Neal Evans: https://www.dopapod.com/ Swallow Hill: https://swallowhillmusic.org/ CleanRobotics: https://cleanrobotics.com/ School of Rock: https://www.schoolofrock.com/locations/denver   Penny Forward pennyforward.com pennyforward@pennyforward.comClubhouse HouseFacebookYoutube Get our app, guest membership is free! IOS/AppleGooglePlay  Post Production Assistance Brynn Lee: Superblink.org   Transcription Anne Verduin   Listen Below...  

Clube dos Detetives
#80 - Richard Ramirez, o Night Stalker | SERIAL KILLER

Clube dos Detetives

Play Episode Listen Later Feb 3, 2024 57:03


Em 1985, a população do condado de Los Angeles e de cidades adjacentes estavam com medo: um serial killer impiedoso invadia casas no meio da noite para cometer os mais atrozes atos contra vítimas inocentes. Esse é o podcast Clube dos Detetives e hoje nós vamos falar do caso do Richard Ramirez, que ficou conhecido como Night Stalker, e uma caçada surpreendente de dois detetives para pegá-lo. • VERSÃO ESCRITA: -  • FICHA TÉCNICA: - Roteiro: Rodolfo Brenner - Edição: André Gonçalves - Apresentação: Rodolfo Brenner • APOIE O PODCAST:  - Orelo: ⁠⁠https://orelo.cc/clubedosdetetives⁠⁠  - PIX: podcastcdd@gmail.com • APOIE A VAQUINHA DA DORINHA:  - ⁠https://www.vakinha.com.br/3697244 • REDES SOCIAIS: - Site:⁠ ⁠http://www.podcastcdd.com.br⁠⁠ - Instagram:⁠ ⁠https://www.instagram.com/podcastcdd/⁠⁠ - Twitter: https://twitter.com/podcastcdd - TikTok: https://www.tiktok.com/@podcastcdd - YouTube: https://www.youtube.com/@podcastcdd - E-mail: podcastcdd@gmail.com • NOSSAS REDES SOCIAIS: - Rodolfo: ⁠⁠⁠⁠https://www.instagram.com/rodolfobrenner/⁠⁠⁠⁠  - André: https://www.instagram.com/andrelbgon/ • FONTES: Night Stalker: The Hunt for a Serial Killer, The Independent, CBS News, Real Crime, Biography, NBC Los Angeles, CNN, Los Angeles Times, Epilepsy Foundation.

An Unexpected Fight: A pediatric cancer podcast
Interview with Dr. Takijah Heard

An Unexpected Fight: A pediatric cancer podcast

Play Episode Listen Later Jan 22, 2024 35:53


Dr Takijah Heard is a Chicago native, born on the south side of Chicago. Dr Heard received her doctorate of medicine from the University of Chicago Pritzker School of Medicine. She remained on the south side at UIC/Advocate Hope Children's Hospital for her pediatric residency. Dr Heard's pediatric neurology residency and epilepsy fellowship was completed at Harvard's Boston Children Hospital. After completing her fellowship in epilepsy, she attended the Harvard School of Public Health to learn more about how to conduct epilepsy research in order to impact the world on a broader level. She has travelled to various countries in Central America and Africa including Zambia and Tanzania teaching and spreading awareness about epilepsy. In 2018, Dr Heard continued these educational efforts by travelling to Kenya with a mentoring program called I Am Abel Foundation.Dr Heard's teaching skills have been honored as she was the recipient of the Dean's Excellence in Teaching Award during her first position as the Assistant Professor at the University of Texas at Houston. She has worked extensively with the Epilepsy Foundation of Texas and Greater Chicago and now functions as a board member and physician advisor. She currently serves on the Physician Advisory Board for the Epilepsy Foundation of Greater Chicago. Dr Heard's passion for epilepsy has been shared on National Public Radio (NPR), FOX News in Chicago and WGN local news in Chicago. She has been named as one of 2013's Top America Doctors. Dr Heard has authored chapters in books and articles focused on pediatric epilepsy. Additionally, she has been featured in an award winning book called Against All Odds Celebrating Black Women in Medicine that has recently turned into a documentary renamed Changing the Face of Medicine which was released in 2017.Dr Takijah Heard is currently working as pediatric neurologist and epileptologist at NorthShore University Health System as the Director of Pediatric Neurophysiology. She also works at Neurabilities Healthcare treat a more broad range of neurologic disease, behaviors and epilepsy. She cares for kids with any and all neurologic issues but has a special passion for children with seizures. She has helped with the creation of the MediKidz comic book series highlight her personal patients ability to conquer their epilepsy. She continues to teach medical students and residents about pediatric neurology and epilepsy in hopes of broadening the field. In 2022, she was awarded the Chicagoland Mentor of the Year Award by a medical mentoring group called the I Am Abe Foundation. She currently in on Instagram as the Baby Brain Doctor in an effort to increase education through the media avenues. She has pushed her passion for epilepsy awareness to the Mrs. America platform. She was crowned Mrs. Illinois on 6/17/23 and will be competing for Mrs. America on 8/26/23 in Las Vegas, Nevada. If crowned Mrs America, she will have a national platform to influence change in epilepsy education, care and awareness. In the meantime, she will use her 1 year of reign as Mrs. Illinois to increase epilepsy awareness through various speaking and appearances throughout Illinois.

Gavin Wood's Countdown Podcast
Philip Brady-Gavin Woods Podcast - Bonus

Gavin Wood's Countdown Podcast

Play Episode Listen Later Jan 18, 2024 35:35


On this episode, Gavin catches up with Australian media personality and radio broadcaster – Philip Brady OAM. Philip Brady OAM is one of the country's most experienced and familiar radio broadcasters, with a career spanning more than 6 decades. From Kennedy to Vizard, Newton to Hogan, Philip has collaborated with Australia's most iconic personalities. Philip's career started in tandem with the early beginnings of Australian television transmission in the late 1950s. Like many of Australia's media greats, he got his start providing voiceovers on Channel 9 and making appearances on Graham Kennedy's In Melbourne Tonight. Philip's most substantial work came from his nearly 30-year position as host of 3AW's Nightline program. Just last year, Philip celebrated 65 years in the media industry, and is still co-hosting Remember When on 3AW with Simon Owens. In 2018 Philip was awarded the Medal of the Order of Australia for service to the broadcast media industry Beyond broadcasting, Philip is a long-time supporter of The Epilepsy Foundation of Victoria and is one of the Australia Day Ambassador Program's longest-serving members. Listen to the podcast now to hear as Gavin catches up with one of Australia's most enduring media personalities – Philip Brady:

The Mark White Show
Make A Difference Minute: Sara Franklin with Epilepsy Foundation of America

The Mark White Show

Play Episode Listen Later Dec 12, 2023 2:31


On today's Make A Difference Minute, we are once again highlighting the work of the Epilepsy Foundation of America with regional director Sara Sanderson Franklin! Sponsor: Athens Bible School AthensBible.com

Dad to Dad  Podcast
SFN Dad To Dad 282 - Brad Serot of Winnetka, IL Vice-Chairman at CBRE, Father Of Four Including A Daughter With Cerebral Palsy

Dad to Dad Podcast

Play Episode Listen Later Dec 1, 2023 50:25


Our guest this week is Brad Serot, of Winnetka, IL who is Vice Chairman of CBRE, a global leader in commercial real estate.Brad and his x-wife, Lexis, were married for eight years and are the proud parents of four children: Billie (6), Jonas (8), and 10 year old twins Stella and Ava, who has Cerebral Palsy. Brad talks very authentically about his early denial about Ava's condition, the dissolution of his marriage, going through counseling as well as finding purpose in cycling and fundraising for charity. He also discusses the positive role Easterseals and the Epilepsy Foundation of Great Chicago have played in Ava's development. That's all on this episode of the SFN Dad to Dad Podcast.Show LinksEmail – Brad.Serot@cbre.comLinkedIn - https://www.linkedin.com/in/brad-serot-18ba271/Phone - (773) 837-7101Website - https://www.cbre.com/Website - https://epilepsychicago.org/Website - https://hpa.vc/about/Special Fathers Network - SFN is a dad to dad mentoring program for fathers raising children with special needs. Many of the 500+ SFN Mentor Fathers, who are raising kids with special needs, have said: "I wish there was something like this when we first received our child's diagnosis. I felt so isolated. There was no one within my family, at work, at church or within my friend group who understood or could relate to what I was going through."SFN Mentor Fathers share their experiences with younger dads closer to the beginning of their journey raising a child with the same or similar special needs. The SFN Mentor Fathers do NOT offer legal or medical advice, that is what lawyers and doctors do. They simply share their experiences and how they have made the most of challenging situations.Check out the 21CD YouTube Channel with dozens of videos on topics relevant to dads raising children with special needs - https://www.youtube.com/channe... Please support the SFN. Click here to donate: https://21stcenturydads.org/do...Special Fathers Network: https://21stcenturydads.org/SFN Dads Mastermind Group - https://21stcenturydads.org/sfn-mastermind-group/Discover more about the Dads Honor Ride 2023 - https://21stcenturydads.org/2023-dads-honor-ride/Find out about Horizon Therapeutics – Science and Compassion Working Together To Transform Lives. https://www.horizontherapeutics.com/

Interludes
R&B Resilience with A Talk About Epilepsy

Interludes

Play Episode Listen Later Nov 29, 2023 26:01


Val "The Voice" Johnson reviews the recent concert show called "R&B Groove Thing"  featuring Stephanie Mills, El Debarge, and After 7.  She gives insights on their performances and how the music takes many back to a wonderful time in R&B.  Plus, filmmaker and epilepsy advocate Karla Braithwaite joins us to share her epilepsy journey and how she continues to support the Epilepsy Foundation.  For more information about The Epilepsy Foundation and how you can support Karla, please visit the website: https://tinyurl.com/4r9u2w7r  

The ABMP Podcast | Speaking With the Massage & Bodywork Profession
Ep 399 – Todd's Paralysis: “I Have a Client Who . . .” Pathology Conversations with Ruth Werner

The ABMP Podcast | Speaking With the Massage & Bodywork Profession

Play Episode Listen Later Nov 17, 2023 15:00


A young adult who's been struggling with epilepsy wakes up after a seizure and is completely paralyzed on their left side. What does this mean? What happens next? And how can we best serve our clients who live with epilepsy? Join host Ruth Werner for those questions and more on this episode of “I Have a Client Who . . .”   Sponsors:     Books of Discovery: www.booksofdiscovery.com     Host Bio:                    Ruth Werner is a former massage therapist, a writer, and an NCBTMB-approved continuing education provider. She wrote A Massage Therapist's Guide to Pathology, now in its seventh edition, which is used in massage schools worldwide. Werner is also a long-time Massage & Bodywork columnist, most notably of the Pathology Perspectives column. Werner is also ABMP's partner on Pocket Pathology, a web-based app and quick reference program that puts key information for nearly 200 common pathologies at your fingertips. Werner's books are available at www.booksofdiscovery.com. And more information about her is available at www.ruthwerner.com.                                      Recent Articles by Ruth:          “Working with Invisible Pain,” Massage & Bodywork magazine, November/December 2022, page 36, http://www.massageandbodyworkdigital.com/i/1481961-november-december-2022/38 “Unpacking the Long Haul,” Massage & Bodywork magazine, January/February 2022, page 35, www.massageandbodyworkdigital.com/i/1439667-january-february-2022/36. “Chemotherapy-Induced Peripheral Neuropathy and Massage Therapy,” Massage & Bodywork magazine, September/October 2021, page 33, http://www.massageandbodyworkdigital.com/i/1402696-september-october-2021/34.           “Pharmacology Basics for Massage Therapists,” Massage & Bodywork magazine, July/August 2021, page 32, www.massageandbodyworkdigital.com/i/1384577-july-august-2021/34.           Resources:    Pocket Pathology: https://www.abmp.com/abmp-pocket-pathology-app   Ep 113 – Seizures and Action Plans: “I Have a Client Who . . .” Pathology Conversations with Ruth Werner (2021) Associated Bodywork & Massage Professionals. Available at: https://www.abmp.com/podcasts/ep-113-seizures-and-action-plans-i-have-client-who-pathology-conversations-ruth-werner (Accessed: 12 November 2023).   Todd's Paralysis (no date) Epilepsy Foundation. Available at: https://www.epilepsy.com/connect/forum-archive/living-epilepsy-adults/todds-paralysis (Accessed: 12 November 2023).   Todd's Paralysis | National Institute of Neurological Disorders and Stroke (no date). Available at: https://www.ninds.nih.gov/health-information/disorders/todds-paralysis (Accessed: 12 November 2023).   ‘Todd's paresis' (2023) Wikipedia. Available at: https://en.wikipedia.org/w/index.php?title=Todd%27s_paresis&oldid=1170991936 (Accessed: 12 November 2023).  

Real Life Runners I Tying Running and Health into a Family-Centered Life
332: Training During the Holidays

Real Life Runners I Tying Running and Health into a Family-Centered Life

Play Episode Listen Later Nov 9, 2023 41:45 Transcription Available


Tis the season to keep running! As the holidays approach, it's easy to let festivities throw us off our fitness track. But what if I told you that you could maintain your running schedule and still enjoy your favorite holiday traditions? This episode promises to guide you on how to prioritize your running routine without missing out on the holiday cheer.We kick off by sharing strategies on how to balance your training with holiday celebrations and juggle your fitness goals alongside festive obligations. We discuss common pitfalls and misconceptions, like assuming you don't have enough time to run or sticking to the same workout schedule despite the holiday rush. We offer practical solutions like learning to say no, setting boundaries, and adjusting your training program to accommodate holiday events. All while keeping your running shoes laced up and your holiday spirit high!As we navigate the festive season, we emphasize the importance of planning workouts around your holiday itinerary. Expect useful advice on how to be realistic and flexible with your workout plans, considering factors like travel, family time, and holiday activities. We stress the importance of being ready to adjust your plans, avoiding overcommitting, and seeking help when you need it. We conclude the episode with a celebration of overcoming limits, as we share the inspiring story of Kevin's race to raise money for the Epilepsy Foundation. Lace up, tune in, and let's dash through the holiday season together!To support Kevin's 100, click here. Thanks for Listening!!Be sure to hit FOLLOW on Apple Podcasts, Spotify, or your favorite podcast player Leave a review on Apple Podcasts. Your ratings and reviews really help and we read each one! Grab your free Strength Guide for Runners here. Interested in our coaching program? Check out our coaching options here. Grab your free copy of the Running Snapshot by clicking here. Come find us on Instagram and say hi! Don't forget: The information on this website is not intended to treat or diagnose any medical condition or to provide medical advice. It is intended for general education in the areas of health and wellness. All information contained in this site is intended to be educational in nature. Nothing should be considered medical advice for your specific situation.

Around H-Town
Around H-Town: Epilepsy Foundation of TX - 10/15/23

Around H-Town

Play Episode Listen Later Oct 16, 2023 8:19


See omnystudio.com/listener for privacy information.

Brave and Strong and True
Ilana Barzel

Brave and Strong and True

Play Episode Listen Later Sep 25, 2023 27:11


Alana Barzel's Summer Stage experience began in 2008 and lasted three summers. She appreciates her experience and praises the program for its inclusiveness. I hope you enjoy our conversation, so come along and have some fun. . .Alana's links:What is Shabbat? (Jewish Sabbath) https://www.myjewishlearning.com/srticle/shabbat-101/For more information about epilepsy, please visit the Epilepsy Foundation's website at https://www.efepe.orgWe all have stories to tell, and they can be heard here. Welcome to Brave and Strong and True, a podcast that engages Summer Stage alumni of all ages. I'm Bob Falkenstein. Our music is composed and performed by Neil McGettigan https://neilmcgettiganandtheeleventhhour.bandcamp.com/releasesPlease follow Brave and Strong and True on Apple Podcasts. While you're there, please rate the show and leave a comment. If you want to be a guest on Brave and Strong and True, please contact me at braveandstrongandtrue@gmail.com.You must have a desktop or laptop computer running the latest version of the Google Chrome browser. It helps if you have an external microphone and headphones, but Apple earbuds work too; however, BlueTooth ones are not 100% reliable, so see if you can borrow wired ones.Support the showUpper Darby Summer Stage is now part of the non-profit organization known as the Upper Darby Arts and Education Foundation. Harry Dietzler is the Executive Director of the UDAEF. If you are able to support Summer Stage financially, please visit udsummerstage.org to find out more.

Around H-Town
Around H-Town: Epilepsy Foundation TX - 09/17/23

Around H-Town

Play Episode Listen Later Sep 18, 2023 7:32


See omnystudio.com/listener for privacy information.

How Yoga Changed My Life
31. Hannah's Stroke-a-versary + Intuition

How Yoga Changed My Life

Play Episode Listen Later Sep 4, 2023 58:55


In today's episode, Adrienne took a quick trip to Chicago to catch up with her Ommie, Hannah.  Hannah was 29 years old when she suffered a major stroke and subsequently was diagnosed with epilepsy. Her life shifted dramatically as she learned to cope with life after stroke. Follow Hannah on social media: @hannahpinteaSupport Hannah and the Epilepsy Foundation of Greater ChicagoClick here to learn more about the Comprehensive Stroke Center at Northwestern Memorial HospitalFollow us on TikTok:https://www.tiktok.com/@yogachangedFollow us on Instagram:https://instagram.com/yogachanged?igshid=YmMyMTA2M2Y=For more, go to https://howyogachangedmylife.com Wanna be on the show? Click here to fill out our guest info form or drop us a email at yogachanged@gmail.com

Native Roots Radio Presents: I'm Awake - AM950 The Progressive Voice of Minnesota

Ken talks with Eric Williams about the Epilepsy Foundation of MN.

Living Healthy and Aging Well - AM950 The Progressive Voice of Minnesota
Living Healthy and Aging Well – August 12, 2023

Living Healthy and Aging Well - AM950 The Progressive Voice of Minnesota

Play Episode Listen Later Aug 12, 2023 43:16


Erik Williams, Metro Regional Outreach Manager, joins host Ken Haglind on “Living Healthy and Aging Well” radio show to discuss how the Epilepsy Foundation of Minnesota (EFMN) provides education, connection and support to people who are living with epilepsy. EFMN leads the fight to overcome the challenges of living with epilepsy and to accelerate therapies…

FemCity Business for Your Soul Podcast
Services and Support You May Not Know You Need

FemCity Business for Your Soul Podcast

Play Episode Listen Later Jul 27, 2023 22:24


This week FemCity CEO, Violette de Ayala is joined by Michele Leahy, Founder at Leahy Life Plan. Join in the conversation as they dive into Services and Support You May Not Know You Need.  About Michelle Leahy  // Ms. Leahy is the founder and CEO of Leahy Life Plan, a firm dedicated to life planning for those with disabilities as well as their families. She understands disability challenges from both a professional and personal perspective. Her goal is to assist in developing strategies of funding special needs trusts and creating a roadmap to meaningful adult supports. She has her Certification in Work Incentive Planning through an approved Social Security Administration (SSA) program established through the SSA Ticket To Work Program. Ms. Leahy received her M.S. in Non-Profit Management from Eastern University and an B.A. in Communications, Division of Humanities, from Penn State. She has 15+ years of varied professional work experiences before she established her own company.  She was the first non-veteran Executive Board Member of the United Spinal Association, a national disability rights organization, where she served for over 8 years. In 2018, she spoke on disability issues at the Philadelphia Women's March on the steps of the Art Museum. She has been a key player in organizations such as AHEDD (a specialized human resource organization), the Epilepsy Foundation of Eastern PA, assisted in the establishment of the Bucks County Center for Independent Living and has served on many community advisory boards that advocate for individuals with disabilities. Ms. Leahy has spoken both nationally and locally on disability at PBI's Exceptional Children Conference, PaTTAN, Spina Bifida National Conference, VoiceAmerica and on the floor of the Pennsylvania Senate. Learn more at https://www.leahylifeplan.com/ About FemCity //  FemCity offers a Free 30-Day Trial Membership and Memberships start at only $15.99. You can also learn more about launching a FemCity Chapter in your community. FemCity has been seen in Gilt, Vogue, AP News, Entrepreneur, Forbes, and MarieClaire. Learn why FemCity is more than just a women's networking group at www.femcity.com and on all social platforms @FemCity. About Violette de Ayala // Violette is a Cuban-American serial and social Entrepreneur, Founder of FemCity®, and virtual mentor to over 20,000 women. Violette has been quoted in Success, Entrepreneur, CNBC, Yahoo Small Business, Business Insider News as a small business expert. You can connect with Violette on IG, FB, LinkedIn at Violette de Ayala. About Lynn Pelzer // Lynn is the COO of FemCity and has held a chair position on boards, currently part of a DEI board with FemCity, she has been awarded the Rising Star Award and Crystal Executive Award in her previous company. She has been a contributor on podcasts as well as blogs, and has been a speaker in women's groups on the topics of business. You can connect with Lynn on Facebook or Linkedin @lynnpelzer.

The Mark White Show
Make A Difference Minute: Sara Franklin with Epilepsy Foundation of America

The Mark White Show

Play Episode Listen Later Jul 24, 2023 2:38


On today's Make A Difference Minute, we are once again highlighting the work of the Epilepsy Foundation of America with regional director Sara Sanderson Franklin! Sponsor: Bankston Motor Homes BankstonMotorHomes.com

No Laying Up - Golf Podcast
NLU Podcast, Episode 717: Jane Park

No Laying Up - Golf Podcast

Play Episode Listen Later Jul 19, 2023 45:00


We have a very special bonus midweek episode as Randy speaks with Jane Park. Jane left the LPGA Tour in 2021 after her ten month old daughter, Grace, experienced a series of seizures which left her with permanent brain damage. This week Jane will return to the tour along with Paula Creamer at the Dow Great Lakes Invitational - the LPGA's team event - in Midland, Michigan. In addition to enjoying a proper send-off for her competitive career, Jane hopes to bring awareness and raise financial support for families of children who experience epileptic seizures. (You can follow Jane's week on Instagram @TheJanePark. If you'd like to contribute to the foundations mentioned, please visit: Epilepsy Foundation and Golf4Her Foundation) Jane walks us through her family's experiences through the last two years, her goals for the upcoming tournament, her favorite current players to watch on the LPGA Tour and a ton more. Learn more about your ad choices. Visit megaphone.fm/adchoices

My Morning Cup
E25 - Mickey McCamish's Morning Cup

My Morning Cup

Play Episode Listen Later Jul 3, 2023 35:59


This week I talk with a man who has dedicated his life to his country and to serving others, retired Navy Captain, Mickey McCamish. Mickey grew up in East Chattanooga, worked his way through college at the University of Chattanooga, then joined the Navy in the midst of the Vietnam War. He rose through the ranks and retired as a Captain after 27 years.    Since retiring from the Navy, Mickey has led the Senior PGA Tour Championship in Myrtle Beach as well as several non-profits such as The Epilepsy Foundation, Wreaths Across Chattanooga, and Friends of the Festival.    In this episode, Mickey shares his Navy story, what led him to each of those organizations, and why Riverbend has changed over the past few years.   Mickey is a retired U.S. Navy Captain, a former golf industry executive, and the current President and CEO for Friends of the Festival (Riverbend).   P.S. Be sure to check out episode E04 to hear more about Chip Baker!   My Morning Cup is hosted by Mike Costa of Costa Media Advisors and produced by Madison McCann.

The Public Health Millennial Career Stories Podcast
155: Full Circle in Public Health: Supporting The Passing of Seizure Smart School Act in Illinois with Ayesha Akhtar, MPH

The Public Health Millennial Career Stories Podcast

Play Episode Listen Later Jun 13, 2023 54:26


Ayesha Akhtar, MPH is the Director of Education at the Epilepsy Foundation of Greater Chicago. She is also a nationally-recognized public health educator and policy expert with a professional focus on epilepsy and a passion for improving maternal care inequities. She was part of the Illinois Seizure Smart School Act in Illinois. She conferred a Bachelor in Business Administration in Accounting at Loyola University Chicago before working a few positions before pursuing a Master of Public Health in Health Policy Administration at University of Illinois Chicago.Full Shownotes: https://www.thephmillennial.com/episode155Connect with guest: https://www.linkedin.com/in/ayeshaakhtar2Support Public Health Careers: https://ko-fi.com/thephmillennialChapters:@0:00 Teaser@1:13 Episode Intro@2:28 Ayesha Akhtar, MPH Intro@4:34 Authoring Illinois Seizure First Aid Act@7:00 What is Public Health?@8:07 Bachelors in Business Administration & Accounting at Loyola University@10:25 Undergrad takeaways@12:00 Benefit of working before Master of Public Health@13:36 Jobs between Bachelors and MPH@14:58 Co-founding HEART Women & Girls Project@18:18 Journey to Master of Public Health in Health Policy Administration at University of Illinois Chicago@22:00 MPH Takeaways and next steps@24:38 Education Coordinator at Epilepsy Foundation of Greater Chicago@28:10 Leadership growth to Director of Education at Epilepsy Foundation@31:10 How did you build policy skill & importance for partnerships@36:10 Cultivate a Wellness Practice@42:45 Raising awareness for maternal care with Every Mother Counts@48:15 Future predictions and Blueprint@51:08 The Furious FiveSupport the showThanks for tuning in. Let's all work together towards a culture of health, wellbeing, and equity for all. ⭐⭐ SUBSCRIBE & Leave a 5-STAR REVIEW! ⭐⭐ Follow & Support:- Contribute to the show (one-time or monthly)- The Public Health Millennial on IG - The Public Health Millennial on LinkedIn - The Public Health Millennial Website- Omari Richins, MPH on LinkedIn- Support on The Public Health Store

Sharp Waves: ILAE's epilepsy podcast
How and why to address medication adherence: Dr. Avani Modi and Dr. Desiree Williford

Sharp Waves: ILAE's epilepsy podcast

Play Episode Play 32 sec Highlight Listen Later May 7, 2023 34:47 Transcription Available


Most people with epilepsy have difficulty always taking their medications as prescribed. How can clinicians and patients talk about the issue and find solutions? Sharp Waves spoke with Dr. Avani Modi and Dr. Desiree Williford, authors of a recent study on pediatric adherence in epilepsy.During the episode, Dr. Modi mentions online resources that can help individuals and families find ways to take medication as directed. These are available in English and Spanish on the Epilepsy Foundation website. The STAR trial (Supporting Treatment Adherence Regimens) was a randomized controlled trial. Results can be found at this link.  The International League Against Epilepsy invites you to explore the ILAE Academy: Interactive, practice based online courses for health care professionals who diagnose and treat epilepsy. Find more information at ilae-academy.org. Support the showSharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice.The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is limited by epilepsy. Visit us on Facebook, Twitter, and Instagram.

The Mark White Show
Make A Difference Minute: Sara Franklin with Epilepsy Foundation Of America

The Mark White Show

Play Episode Listen Later Mar 6, 2023 2:38


On today's Make A Difference Minute, we are once again highlighting the work of the Epilepsy Foundation of America with regional director Sara Sanderson Franklin! Sponsor: Bankston Motor Homes BankstonMotorHomes.com

The Mark White Show
Make A Difference Minute: Wings of Hope with Elaina Burt

The Mark White Show

Play Episode Listen Later Dec 29, 2022 2:40


On today's Make A Difference Minute, we're highlighting Elaina Burt's Wings of Hope effort that raised $32,000 for Epilepsy Foundation of Alabama! Sponsor: BamaEstatePlanning.com

ParentingU
Pediatric Neurology: Talking to Parents about Seizures, Convulsions, and Epilepsy

ParentingU

Play Episode Listen Later Dec 5, 2022 33:27


A seizure sounds like a scary event for any parent to witness in their child, but it's important to understand that a seizure doesn't necessarily mean there's a scary diagnosis in a child's future. Kenneth Habetz, MD of Our Lady of Lourdes is a pediatric neurologist and has a focus on childhood epilepsy. Dr. Habetz joins us on ParentingU to explain what a seizure is; how they are different to epilepsy; and what to do if your child has a seizure. Many parents have concerns about seizures in children—this episode has a lot of answers. Childhood Seizure Questions Answered on this Episode Does having a seizure mean a child has epilepsy? What should I do if my child has a seizure? What is a febrile seizure? What causes seizures? Do kids outgrow seizures? Is medication the only treatment for seizures? Does sugar cause seizures? Why should I video my child having a seizure? Seizure Resources for You Habetz likes some of the resources available on the Epilepsy Foundation website If your child is having a seizure, Dr. Habetz says to place the child on their side; DO NOT put anything in their mouth Habetz welcomes calls from primary care physicians to discuss pediatric seizures We hope you enjoy the new season of ParentingU! You can hear all episodes of ParentingU on our website or on your favorite podcast app including Apple Podcasts, Spotify, Stitcher, or Google Podcasts. New! Watch videos of our podcast on YouTube: ParentingU playlist.

Wisdom Shared with Carole Blueweiss
Lisa Greer: A Mother's Transparent Perspective

Wisdom Shared with Carole Blueweiss

Play Episode Listen Later Dec 4, 2022 43:08


EPISODE SUMMARYLisa Greer is a mother of five, a former executive and business owner, a convener of charitable events, and the author of Philanthropy Revolution.  We discuss her childrens' diagnoses with cancer and adolescent-onset epilepsy and how that affected the whole family. Lisa explains how transparency fosters trust, something that applies to the worlds of charitable giving, healthcare, and parenting.  There are so many impactful takeaways from this wide-ranging conversation with Lisa, as the wisdom she has gained in her variety of roles interconnect in sometimes surprising ways. For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/KE1KrICHEPMABOUT LISA GREERLisa's website: https://www.lisagreer.com/Lisa's book: Philanthropy Revolution: How to Inspire Donors, Build Relationships, and Make a DifferenceLisa's blog newsletter: https://philanthropy451.substack.com/FROM THIS EPISODEmyFace: https://www.myface.org/Epilepsy Foundation: https://www.epilepsy.com/Crohn's & Colitis Foundation: https://www.crohnscolitisfoundation.org/The Feldenkrais MethodStacy Barrows is a Doctor of Physical Therapy, Certified Feldenkrais Practitioner, PMA-National Pilates Certified Teacher, and creator of the Smartroller. Visit  https://www.smartroller.net/ and https://smartsomaticsolutions.com/Wonder by R.J. PalacioAdolescent Medicine is now a subspecialty but as Lisa has experienced with her kids, it's not available everywhere.Find and Follow Carole and Wisdom Shared:https://www.caroleblueweiss.com/Follow me and send me a message on Facebook: https://www.facebook.com/caroleblueweissFollow me and send me a message on LinkedIn: https://www.linkedin.com/in/carole-blueweiss-pt-dpt-23970279/Follow me on Instagram: https://www.instagram.com/carole_blueweiss/The Wisdom Shared TeamAudio Engineering by Steve Heatherington of Good Podcasting WorksSocial Media and Marketing Coordinator: Kayla Nelson

My So-Called Pop Culture Life
Episode 14: Thank You Kevin Conroy

My So-Called Pop Culture Life

Play Episode Listen Later Nov 29, 2022 39:09


I am back, hopefully for good this time. I promise I will dive into my longer than expected absence at some point but for now I want to talk about a recent loss the comic book, animation, video games, etc. community has had in the death of Kevin Conroy. As a kid, Batman: The Animated Series meant a lot to me and was my main cartoon to watch. It was a huge influence in the Batman fan I am today and is the reason I am as big of a Batman fan. Like many others, Kevin Conroy was my Batman and was the voice of Batman whenever I read a book. This episode is gonna be pretty raw, the only real edits I made were the ones where I had someone ring my doorbell so I do apologize for the occasional "umm's" and "uh's". Also please note, I am a huge Power Rangers fan as well and this episode was recorded before the tragic death of Jason David Frank, I just have not gotten around to uploading until now. As always, I appreciate all the support and hope to get back to creating this podcast as I find the experience to be incredibly therapeutic. Meanwhile, please check out other content creators I support (links below)! You can find me on Twitter at PopCultureRSS, on Twitch at jwick13, on Instagram at JWickyJr or reach out to me at popculturerss@gmail.com. If you do feel so inclined, please share, subscribe and follow this podcast. HavokRose (Miranda Sanchez) Havokiris (Sara Sanchez) Gryffindor64 Christian Hanna Horror The Lost River Drive-In If you would like more information or would like to donate to the Epilepsy Foundation, please check out their website at www.epilepsy.com. For those interested in finding more information about supporting the Asian-American community during these times, please visit stopaapihate.org. There you are free to donate or utilize their resources to report an incident or keep up to date with anything happening. #StopAsianHate #StopeAAPIHate --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app Support this podcast: https://anchor.fm/mscpclifepod/support

The Health Design Podcast
Sarita Edwards, Patient Advocate

The Health Design Podcast

Play Episode Listen Later Nov 13, 2022 35:13


Sarita Edwards is CEO & President at the E.WE Foundation, a nonprofit healthcare advocacy organization. She began her efforts of advocacy and public policy after her 5th child was diagnosed in utero with rare disease Edwards Syndrome or Full Trisomy 18. Sarita is recognized as a world's top patient expert and social health ambassador. She is an award winning advocate and host of the Being Rare Podcast, a digital resource hub and community conversations platform popular for its 60 second episodes. Sarita serves on executive boards and advisory councils within her home state and across the country. She is a rare disease legislative advocate, a member of multiple coalitions, and an active participant in DEIA workgroups. Sarita also serves as a Community Congress member providing advice and insight on urgent policy initiatives. Sarita has a Bachelor of Science is Health Science and is a candidate for her Masters in Healthcare Administration. She has professional experience in Healthcare Operations & Patient Access. Sarita has certifications in Seizure Recognition & First Aid from the Epilepsy Foundation and Mental Health First Aid from the National Council for Behavioral Health & Mental Wellbeing. Additionally, Sarita has continuing education studies in effective parenting, understanding childhood behavior, and child abuse & neglect prevention. Sarita lives in North Alabama with her husband and their five children.

imPERFECTly emPOWERed
EP84: How To Improve COVID Smelling Loss & Taste

imPERFECTly emPOWERed

Play Episode Listen Later Oct 11, 2022 57:45


Get access to higher-level medical knowledge as Dr. Omar Danoun shares his insights on epilepsy and post-Covid neurological disorders to help you understand and treat them efficiently. So tune in!IN THIS EPISODE YOU WILL LEARN:American vs. Palestinian medical systemsWhy it's better to explain medical terms to patients in a simple mannerEpilepsy: Diagnosis, symptoms, and treatmentsCovid19-related neurological complications and how to treat themPost-Covid brain fog vs. memory disordersWhat is Parosmia and how is it treatedRESOURCES/LINKS MENTIONED:NEW Laser treatment for Epilepsy and Seizures, LITT: https://www.youtube.com/watch?v=wjOp-IuIZ-gCognitive Therapy: https://www.eehealth.org/services/rehabilitation/specialties/cognitive-therapy/ABOUT: DR. OMAR DANOUNDr. Omar Danoun is a leading expert on epilepsy and neurology. He has worked with multiple epilepsy and neurology societies and organizations, like the Epilepsy Foundation and the American Epilepsy Society, to raise awareness for epilepsy and related conditions. His insights are widely regarded by people with epilepsy and their families.CONNECT WITH: DR. OMARWebsite: Dr. Omar Danoun: https://www.dromardanoun.com/YouTube: Dr. Omar Danoun: https://www.youtube.com/channel/UCUpOvIIWABhYKqxrls-vcVgInstagram: @dromardanoun: https://www.instagram.com/dromardanoun/TikTok: @dromardanoun: https://www.tiktok.com/@dromardanounTwitter: @omar_danoun: https://twitter.com/omar_danounFacebook: Dr. Omar Danoun د. عمر دنون: https://www.facebook.com/DanounNeurologyCONNECT WITH US:Website: http://www.hammersnhugs.comYouTube: https://www.youtube.com/c/AhnaFulmerHammersNHugsInstagram: https://www.instagram.com/ahna_hammersnhugs/]Facebook: https://www.facebook.com/hammersnhugs

Your Lot and Parcel
How to Heal Naturally and Maintain Optimum Health Using Alternative Medicine, Herbals, Vitamins, and Food

Your Lot and Parcel

Play Episode Listen Later Aug 29, 2022 48:55


My guest is the founder of The Complete Herbal Guide, and she has empowered hundreds of thousands of people from countries worldwide through her books, websites, e-courses, educational videos, and live events.For more than two decades, hundreds of thousands of people have enjoyed the warmth, humor, and transformational power of Stacey's health and personal development events, articles, and books.People from around the world have tapped her for personal coaching. She is a health, lifestyle, and epilepsy coach. In addition, she has changed people's lives through numerous speaking events.She speaks at small, medium, and large events. Although, size does not matter. What matters is that she is helping people positively transform their lives.Stacey has spent the last 25 years using her abilities to give back. She is on Epilepsy Patient Advisory Council sponsored by Sunovion Pharmaceutical and Eisai Pharmaceutical. She does community volunteer work for H.O.P.E. Mentor for the Epilepsy Foundation, Volunteers and Advocates for the Family Resource Network: A leading provider of family support services to individuals with intellect, a Board Member for the Monmouth Ocean Community Impact Board, and Volunteer, advocate, and service provider for getting FIT. https://staceychillemi.comhttp://www.yourlotandparcel.org

Discover Dayton
Episode 58 -15 July 2022 News Roundup

Discover Dayton

Play Episode Listen Later Jul 15, 2022 12:08


It's Friday, July 15, 2022, and this week your news roundup episode is coming to you from Sarajevo, Bosnia & Herzegovina! Your news and events, however, are from Dayton. As always, there's a lot happening tonight, so be sure to listen soon so you can hear about all of the cool thing happening this weekend and beyond! Show transcript: Hello and welcome to the Discover Dayton Podcast, the show that's all about the Gem City's past, present, and future. My name is Arch Grieve and I'm your host, and today I'm actually recording this episode six hours ahead of you in Sarajevo, one of Dayton's sister cities, where I'll be through almost the end of the month, so you might hear unfamiliar sounds, like the water running next to me. It's a beautiful city and you should visit! But today of course is Friday, which means it's time for your news roundup episode, where I read the news so you don't have to, so stay tuned for that as well as upcoming events in just a moment. And now for last week's news: Early voting for Ohio's August primary started this week and election security is a bigger concern than ever. Montgomery County Board of Elections infrastructure engineer Adam Lawson says security is an every-day concern, not just on election days. According to Lawson, Dayton's election cyber-security is strong, but attackers are always changing and evolving, so security measures also have to continue to grow. Ransomware is of particular concern lately. More traditional security measures are in place as well, such as keeping voting machines under lock and key, video cameras all around voting and counting areas, and ensuring that members of both major parties are present at all times. When auditing the results of the May 3rd primary, Montgomery County found the results to be 100% accurate. The county is also participating in a pilot program with the state of Ohio to further upgrade their security measures.  Premier Health's Barbershop Health Clinics will be running through August for anyone interested. These clinics aim to raise awareness of chronic illnesses and promote healthy living in Black communities in the Miami Valley. There will be food compliments of Sugarcreek Food Truck, various health screenings, and free fresh produce. To see when and where the clinics will be, visit premierhealth.com.  The City of Dayton is seeking grants to construct a footbridge across the intersection of U.S. 35 and Abbey Avenue. Many pedestrians, including children, have to cross 8 lanes of interstate traffic to get to the West Branch library, which has area leaders worried. Dayton City Commissioner Shenise Turner-Sloss in particular spoke about the danger recently on social media. There are some short-term safety measures in place, but city officials say a permanent solution would be much better. Though there is no record of pedestrian crashes at the Abbey-35 intersection, other accidents are fairly common. Many motorists drive much faster than the 50 mph speed limit and the Dayton Daily News observed many running red lights. Further development in the area will likely only increase pedestrian traffic. Public works is seeking $3.5 million for a bridge over the interstate.    The Comprehensive Economic Development Strategy, a plan over one year in the making, has been approved and already secured about $13 million in federal funding for the Dayton region. The CEDS was developed with input from business owners, government leaders, and community members in partnership with the federal Economic Development Administration. The new five-year plan includes equity and inclusiveness as core values, a first for the plan which was last updated in 2012. Greater West Dayton Incubator director Whitney Barkley believes the program will help small businesses most with sustainability by making certain resources more readily available. The CEDS laid out five priorities for the area: workforce development, infrastructure, diverse communities, small business support, and a resilient, diversified economy.  The Dayton Metro Library Main Branch is running art workshops through the month of July as part of the Ocean of Possibilities summer challenge theme. Artist in residence Delora Buford-Buchanan will be transforming the Opportunity Space windows into a 3D aquarium, and you can help her fill it up with creatures of all sorts. There are five remaining workshop days and registration is not required. For more information, check out dayton-metrolibrary.org/programs.  Crime is down a bit overall in the Dayton area, but Dayton Police Chief Kamran Afzal says it's no time to celebrate. While crime overall is down 1% and Part 1 violent crime is down 10%, other offenses are on the rise, and Dayton remains high in crime in Ohio. Homicides and aggravated robberies are up from last year, though aggravated assaults and non-aggravated robberies are down. Dayton Police noted that violence most often occurs between people who know each other, like family or romantic partners, and rarely happens between strangers. There have been a number of fairly successful gun reduction initiatives in the Miami Valley, bringing firearm-related incidents down by quite a bit. The most common and rising crimes are burglaries, both in homes and of automobile parts. Police encourage locking of doors and installation of security cameras and extra outdoor lighting if possible to deter would-be thieves.  The House of Bread is looking for volunteers to help serve warm meals to the Dayton community every day between 11:30 a.m. and 1:30 p.m. Anyone over the age of 16 who is fully vaccinated is welcome to help out, and you can e-mail JudithMoore-HOB@gmail.com to sign up. They are also always accepting food and money donations, for more information about that visit houseofbread.org.  Link: Dayton Bike Share recently received a shipment of 140 new electric bikes that are expected to be rolled out in the Miami Valley within the next week or so. This more than doubles the ride-share's bike supply which can be found at 37 Link hubs across the Miami Valley. The electronically-assisted vehicles make riding easier, especially up hills, and are checked out about twice as often as Link's non-electric models. Also, every Wednesday in July, the unlocking fee will be waived and you can ride for one hour for free.   The Dayton Police Department's plans to implement automated license plate readers in the city may have hit a few roadblocks as a community coalition raises concerns over the department's transparency. There is a public hearing scheduled for July 20th regarding the technology, but the Coalition on Public Protection is asking that it be delayed, saying Dayton PD has not yet shared crucial and impartial information proving that plate readers will have an impact on reducing crime and furthering other law enforcement goals. Other members of the community have pointed out the negative impact the implementation could have on minority communities and privacy in general. Last year the Dayton City Commission passed a resolution requiring Dayton police to publish impact reports on proposed surveillance initiatives before they are considered for acquisition. Opponents of the technology say they have not yet done that for automated plate readers, pointing out that the published reports contain more opinions and unchecked claims than data, and what data there is was not provided by independent, non-law enforcement sources.   The Dayton planning board has approved the plan put forward for the old Good Samaritan hospital site. Construction will now go forward on the facility including a YMCA, various health clinics, nonprofits, and an athletic field. Many have praised the plan and the benefits it will bring to the community, but some believe it doesn't quite reach the vision many in the community had for the space. Planning board member Matt Sauer called the plan “unambitious,” and he's not alone in wishing that the facility had, for example, a full-service medical center. Others have raised concerns about parking and pedestrian safety, pointing out that the plan includes a large parking lot even though the site contains an unused parking garage. The YMCA of Greater Dayton will occupy about half the space, with the rest taken up by Premier Health, Wright State, United Way, Care-Source, County Corp, and Goodwill Easter Seals. More tenants may also be planned for the future.  The Dayton Foundation awarded over $1.2 million in charitable grants last year to 43 Miami Valley organizations. Large grant recipients included the YMCA of Greater Dayton for the Good Sam site, the Dayton Art institute, Girl Scouts of Western Ohio, Greater Dayton Union Cooperative Initiative, WYSO Public Radio, and St. Anne's Hill Historic Society. They also provided smaller grants to 23 organizations for quicker, more immediate projects and improvements. To learn more about the Dayton Foundation and its grant programs, visit daytonfoundation.org.  Dayton Birria Fest is happening tonight from 4 to 8 p.m. at the Yellow Cab Tavern. Entry is free and there will be a wide variety of food vendors selling tacos and other birria-inspired dishes for you to enjoy. There will also be a live DJ spinning party music from the 80s and 90s.  Rock and roll musician Will Hoge will be at the Levitt Pavilion from 7 to 9 p.m. tonight, bringing his unique mix of blue-collar sound and rootsy stomp. As always, admission is free.  For a more classic rock feel, head to the Little York Tavern at 8 p.m. to see Dayton locals Counting Skeletons playing rock covers from the 70s, 80s, and 90s.  If you're in the mood for comedy tonight then head over to Wiley's Comedy Club to see Vince Morris perform standup at 8pm. Tickets are $15 and can be found at wileyscomedy.com.  On Saturday, the Epilepsy Foundation is holding a mud volleyball tournament to benefit people with epilepsy in Ohio. The event is from 8 a.m. to 5 p.m. at Wegerzyn Gardens. For registration information, go to ohiomud.com.  Also on Saturday, you can visit the Dayton Metro Library at 11am for their Q+ommunity Day of Support from 11am to 3pm, a free event for individuals who support the LGBTQ+ community and want to have connection-affirming conversations and good food.  At 11am on Saturday the 16th Bock Family Brewing will be hosting a 5k beer run to support local non-profits. The run starts and ends at the Bock taproom, and all participants will receive a free craft brew and a commemorative pint glass or seasonal swag item, and there will be door prizes, games, and giveaways all day. Participants don't need to be 21 to run but of course do to drink, but underage participants will get a voucher for a free non-alcoholic drink instead. You can find more information at mailchi.mp/breweryrunningseries/faq or by e-mailing sara@breweryrunningseries.com.   If visual art is more your speed, Wholly Grounds is hosting an art and wine show Saturday night from 6 to 9 p.m. For $30 you can taste four wines and see displays from local artists, with food available and a silent auction to take home one of your favorite pieces. There will also be a live jazz band. Call 937-367-1344 for more information.  The Dayton Metro Library is holding a Q+ommunity Day of Support and celebration event for LGBTQ+ people and aspiring allies in the Dayton area at the Bassani Theater on Saturday at 11am. There will be on-site yoga, roundtable discussions, and lunch provided. The event is free but RSVP is required, and you can find a link to their eventbrite registration page at dayton937.com. Neo-soul artist Sarob is performing at the Levitt Pavilion from 7 to 9 p.m. on Saturday. His music blends hip-hop with earnest self-reflection and rap inspirations, and you can, of course, enjoy it for free.  Well on Monday, the 18th, the Flying Ghillies Scottish Country Dancers invite you to learn the jigs, reels, and strathspeys of Scotland in a comfortable and laid-back atmosphere every Monday afternoon from 3-5pm at the Michael Solomon Pavilion on Berkley St. in Dayton. The first class is FREE and after that classes are $5.00. For more information visit their Facebook page: “Flying Ghillies Scottish Country Dancers.” On Thursday, the 21st, Lily's in Dayton will be celebrating their 9-year anniversary with Fat Head Brewing Company. Tickets are $65 for five courses with five beer pairings, with seatings at 5:30 and 8 p.m. There are two menus, one omnivore menu with meat and seafood and one vegetarian menu. Visit exploretock.com/lilys to see the menu and make a reservation.  All right well that about does it for your news roundup episode. I do want to apologize for not being able to get out Wednesday's episode on time, but I will get it out ASAP, I promise! I also look forward to hopefully getting at least one episode recorded with a special guest here in Sarajevo, so stay tuned for more on that. If you enjoyed this episode, please be sure to subscribe, leave a review, and share it with a friend. Thanks so much for listening, and stay funky, Dayton.

The Dude Therapist
Are You a Narcissist or Just a Jerk? w/ Dr. Jaime Zuckerman

The Dude Therapist

Play Episode Listen Later Mar 27, 2022 38:28


Dr. Jaime Zuckerman is a Philadelphia-based licensed clinical psychologist in private practice. She focuses on the treatment of adults with mood disorders, anxiety, and adjustment to medical illness. In addition, Dr. Zuckerman specializes in the relationship difficulties of those involved with narcissistic partners. She is a media contributor to several online publications including Vogue, Elle, Shape, Women's Health, and The Washington Post. Dr. Zuckerman has been a guest expert on various TV news stations including CBS3 Philly, PHL17, FOX29, and Daily Mail TV.  She is also a board member of the Epilepsy Foundation of Eastern PA and is a frequent presenter for both the EFEPA the Dravet Syndrome Foundation. Insta: @dr.z_psychologistTwitter: https://twitter.com/drzpsychologistwww.drjaimezuckerman.com Email: info@drjaimezuckerman.comPodcast: It's Me, Dr. Z with JB  https://podcasts.apple.com/us/podcast/its-me-dr-z-with-jb/id1569014947Order her book below:https://www.amazon.com/Find-Your-Calm-Workbook-Conquer/dp/1577152999/ref=mp_s_a_1_1?crid=1MX938BNZY9LC&dchild=1&keywords=jaime+zuckerman&qid=1633356195&s=books&sprefix=jaime+zuc&sr=1-1-catcorrSupport the show (https://pod.fan/the-dude-therapist)