Podcasts about epilepsy awareness

On this episode of Talk About It, we break out the Gold Jacket to chat with Alan Faneca, retired NFL offensive lineman and NFL Hall of Fame Inductee! Alan and Greg have become friends through advocacy for epilepsy awareness over the years, because Alan was diagnosed with epilepsy when he was a teenager and played at the highest levels of football with the condition. He also has a daughter with a rare form of epilepsy, so this cause is really close to his heart. Ironically, Nick also has a connection to Alan through his time with the Pittsburgh Steelers and hosting events together, so this is really a friend reunion show! They discuss his diagnosis, how his family helps him deal with the condition, going through the process again with his daughter, and - of course - his induction into the NFL Hall of Fame in Canton, OH. This is an episode that you are seriously not going to want to miss! The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About It podcast is excited to also be sponsored in part by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

In this powerful, deeply moving episode, we sit down with Licensed Marriage and Family Therapist Jane Johnson Wall who courageously shares her personal journIn this powerful, deeply moving episode, we sit down with a Licensed Marriage and Family Therapist (LMFT) who courageously shares her journey living with epilepsy —Together, we unravel the layers of grief, identity, and resilience that come with navigating a chronic neurological condition.

In V.E. Shwab's bestselling novel, A Conjuring of Light, she wrote, "Kings need not raise their voices to be heard." But on this episode of Talk About It, Greg talks to a King who is being heard not by raising his voice, but by writing a book of his own! That book is called Be There When I Return, and it is out NOW everywhere books are sold. Michael King seemed to have everything going his way as a young bartender in 1980's Los Angeles until his friends began to notice a bizarre quirk in his behavior, but he is not aware of it happening. After the closest people in his life convince him to see a doctor, he is hit with the reality of an epilepsy diagnosis and drags through years of not being able to control his seizures. He ends up becoming a candidate for an experimental surgery, but his family doesn't know if he will remember them when he wakes up. We'll let Michael fill in the rest of this story, but you don't want to miss this episode!  The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About It podcast is excited to also be sponsored in part by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

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Professor Tony Marson of the University of Liverpool talks to Beth and Sahir about Epilepsy, a neurological disorder characterized by recurrent seizures, which are sudden, abnormal electrical activity in the brain. We discuss the types of epilepsy, what are its causes and how it manifests across time, what the current treatments for epilepsy are and what the future of epilepsy research looks like. This episode is part of our ongoing collaboration with the British Neuroscience Association, Liverpool Neuroscience Group and The Brain Charity.https://www.liverpool.ac.uk/people/anthony-marsonPublic Events run by LNG: https://meetings.bna.org.uk/BYOBLiverpool/BNA Festival of Neuroscience: https://meetings.bna.org.uk/bna2025/ Support the showSupport us and reach out!https://smoothbrainsociety.comhttps://www.patreon.com/SmoothBrainSocietyInstagram: @thesmoothbrainsocietyTikTok: @thesmoothbrainsocietyTwitter/X: @SmoothBrainSocFacebook: @thesmoothbrainsocietyMerch and all other links: Linktreeemail: thesmoothbrainsociety@gmail.com

This major social media influencer is talking about it in a HUGE WAY! Jamie Simpson is not afraid of showing it all when it comes to her epilepsy -- and she is encouraging all of us to be bold when sharing our story. From dating, to having seizures in public places and showing us, to her incredible service dog Echo, Jamie lays it all on the line to help others understand the world of epilepsy, from the point of view of someone who has the condition. All in this episode of TALK ABOUT IT with Greg Grunberg. The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About It podcast is excited to also be sponsored in part by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

Epilepsy Awareness with Hattie Brant from Purple DayssIn this special episode of Conversations with a SEND Mum, Nicole Bateman is joined by Hattie Brant, founder of Purple Dayss, to raise awareness for Purple Day (March 26th)—a global movement dedicated to increasing understanding and reducing stigma around epilepsy.Hattie shares her personal journey of living with epilepsy and the misconceptions she's encountered. Together, Nicole and Hattie bust common myths, discuss essential seizure first aid, and highlight the unseen impacts of epilepsy that many people don't realize.Key Takeaways:Busting Epilepsy MythsDebunking common misconceptions, including the idea that epilepsy always involves convulsions and flashing lights.The reality of different seizure types and how epilepsy affects people beyond the physical symptoms.Seizure First Aid – What Everyone Should KnowThe do's and don'ts when helping someone experiencing a seizure.Why it's crucial to stay calm, time the seizure, and ensure safety rather than restraining or putting something in the person's mouth.The Hidden Impacts of EpilepsyFatigue, memory issues, mental health challenges, and how epilepsy affects daily life beyond seizures.The importance of inclusion, understanding, and accessibility for those living with epilepsy.Resources Mentioned:Purple Dayss – Hattie's platform raising epilepsy awareness: @PurpleDayssYoung Epilepsy: www.youngepilepsy.comSeizure First Aid Guidelines: Epilepsy SocietyFollow Nicole on www.instagram.com/conversationswithasendmum for exclusive peeks to weekly episodes. Please do send feedback and rate this podcast to help it reach those who would benefit.Check out our Season 3 sponsor Rachel's 3 R's Subscription Box: Dedicated to helping SEND mums feel calmer and more relaxed by providing a box of products and online support for self-care. Follow on www.instagram.com/rachelsthreerssubscriptionbox and use the code NICOLE10 for 10% off your first order at https://rachel-s-three-r-s.subbly.me/Check out our Season 1 and 2 sponsor The Super Sensory Squad who support kids in understanding the eight sensory systems and emotional regulation using their penguin squad at: www.thesupersensorysquad.com and www.instagram.com/thesupersensorysquad

Purple Day Special – Parenting Kids with Epilepsy with Kelly NorfordIn this Purple Day special episode of Conversations with a SEND Mum, Nicole Bateman chats with Kelly Norford, a mum of three children with epilepsy. They discuss the unique and evolving challenges of epilepsy: from managing different seizure types to navigating the impact on mental health, learning, and daily life.In this episode, Nicole and Kelly explore: 

Ahhh, it's that time of the year! Pitchers and catchers report, spring training is underway, we buy hotdogs and beer from a guy yelling up the stairs, it's just perfection! Nobody loves the feeling of the start of baseball season more than Greg, maybe with the exception of this episode's guest. Greg sits down in studio with Joey Hanley, a former college player who has now devoted his life to coaching and training young-and-promising baseball players to achieve their dreams of playing in college and beyond. This success didn't come without struggle, however, but luckily Joey had the right mindset to take it head on. Joey was diagnosed with epilepsy after he hit his head in the bathroom following a seizure when he was younger, and he battled through this diagnosis to achieve success on and off the diamond. He isn't going to let epilepsy slow him down from anything that he wants to do, and neither should you. Don't miss this episode! The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About It podcast is excited to sponsored in part by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

Welcome to the NeurologyLive® Mind Moments® podcast. Tune in to hear leaders in neurology sound off on topics that impact your clinical practice. In this episode, Sonal Bhatia, MD, FACNS, epilepsy expert and director of the pediatric epilepsy monitoring unit (EMU) at the Medical University of South Carolina, discussed Purple Day, celebrated on March 25th, and the importance of raising awareness for patients with epilepsy, a common condition affecting one in 26 individuals. She discussed the stigma faced by patients with epilepsy, especially in parts of the world outside the United States. Bhatia also discussed some of the recent advances in epilepsy care in the past decade, highlighting areas like improved surgical approaches, dietary therapies, and the potential of gene therapy for various disorders. In addition, she discussed changes in elderly epilepsy care, as well as the importance of transitioning care from pediatrics to adults and the need for a longitudinal model of care. Furthermore, she spoke on epilepsy monitoring units, the challenges institutions face, and the critical need for EEG technology and for more EEG technologists and nursing school graduates.  Looking for more epilepsy discussion? Check out the NeurologyLive® Epilepsy clinical focus page. Episode Breakdown: 1:10 – Significance of Purple Day, raising awareness on epilepsy stigma 5:00 – Advances in epilepsy care, including availability of more anti-seizure medications and genetic insights 8:45 – Neurology News Minute 11:10 – Challenges in elderly epilepsy care and the need for more standardized transition models from pediatrics to adulthood 15:20 – Optimizing epilepsy monitoring units and dealing with staff and equipment shortages 20:50 – Closing thoughts The stories featured in this week's Neurology News Minute, which will give you quick updates on the following developments in neurology, are further detailed here: FDA Approves Medtronic's Adaptive Deep Brain Stimulation for Parkinson Disease FDA Approves Tenecteplase for Acute Ischemic Stroke FDA Approves Expanded Use of Eculizumab for Pediatric Myasthenia Gravis Thanks for listening to the NeurologyLive® Mind Moments® podcast. To support the show, be sure to rate, review, and subscribe wherever you listen to podcasts. For more neurology news and expert-driven content, visit neurologylive.com.

The Americans with Disabilities Act is unquestionably in the premiere class of landmark legislation in American History. On this episode, Greg sits down with the original author and co-sponsor of the ADA -- avid disability rights advocate, the Honourable Tony Coelho, former Representative from California. Tony first introduced the ADA alongside Senator Lowell Weicker in the 100th Congress in 1988 and battled the red tape, opposition and criticism to finally get the bill passed and signed into law by President George H.W. Bush in 1990.  Greg is joined by his Talk About It partner Ken Lowenberg to talk with Tony about his personal history with epilepsy, how the bill came into existence, the importance of enforcing the ADA by presidential administrations, and the dangers of stigma. This episode is so important to listen to, because it's easy to overlook how widespread the impact of the ADA is, touching every American in ways that might be subtle or even hidden. Don't miss it! The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About It podcast is excited to sponsored in part by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

Everybody needs a Jonathan Shapiro in their life. In this special season premiere of Talk About It, Greg sits down with his closest mensch and the other half of his party of two at the deli, Jonathan Shapiro. When life gets hard, Greg turns to him for sage advice and a nice bowl of matzoh ball soup. As you'll find out in this episode, Jonathan has quite a personal history, beginning his career as a federal prosecutor and eventually becoming... you guessed it... a television show writer and showrunner. (BOSTON LEGAL, THE PRACTICE, GOLIATH, THE BLACKLIST, among many others.)  Not only that, Jonathan has a deep personal connection to Greg because he is also the father of a son with epilepsy, the incredible Zeke Shapiro. The two mensches talk about Zeke's journey with his condition, and his abject bravery to perform stand up comedy and become a news anchor. They have always - and will continue to - lean on each other when times are really hard, or celebrate together when times are really great, and everything in between. All over a tuna melt on rye heels, of course. You don't want to miss this episode! The Talk About It podcast is excited to be sponsored in part by Neurelis. The Talk About It podcast is excited to sponsored in part by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.  

Achieving Success with Olivia Atkin Episode 120 "Achieving Understanding: The Science, Stigma, And Future Of Epilepsy Care with Dr. Tracey Milligan"Olivia talks personal and professional achievements with Dr. Tracey Milligan. Dr. Tracey A. Milligan, Chair of Neurology at New York Medical College and Director of Neurology at Westchester Medical Center Health Network. With over 20 years of experience, Dr. Milligan is a leading expert in epilepsy and a champion for medical education. Her impressive journey includes degrees in Communication Disorders and Speech-Language Pathology, a medical degree from Albert Einstein College of Medicine, and residency and fellowship training at Harvard. Dr. Milligan has been recognized for her leadership in diversity, her innovative Spanish Neurology Clinic, and her dedication to teaching, earning numerous awards for her contributions to healthcare and education. Today, we'll dive into her journey and insights on advancing neurology and fostering impactful change.Join Olivia every Tuesday as she brings on top notch guests to talk about how they are Achieving Success! Career Development Book and More at Achieving-success.comStay Connected With Us:Linkedin: https://www.linkedin.com/company/achieving-success-llcInstagram: @_achievingsuccessTwitter: @_achievesuccessFacebook: @Achieving SuccessBecome a supporter of this podcast: https://www.spreaker.com/podcast/achieving-success-with-olivia-atkin--5743662/support.

Karen & Janet have incredible guests that inform, relax & make everyone aware of the awesome events happening in Ventura!  The podcast starts out with The Reverse Mortgage Queen, Shelley Wells, who is the expert when it comes to a reverse mortgage, for folks who want to downsize, upgrade their homes, payoff debt or have some vacation fun, Shelley is the go-to person for a reverse mortgage. Andi Girl is next with tips to reduce stress & "Elevate The Vibe". Andi tells us about the 105 Day Elements Meditation classes along with Sound Baths and how practicing meditation improves your life.  Kristen Croll is in-studio to bring awareness when it comes to epilepsy, 1 in 10 people are affected in some way, the Tri County  Epilepsy Program holds many events to support people who suffer from epilepsy and their caregivers.  Karen & Janet's last guest is Bob Davis to talk about First Wednesday coming up February 4th at Rocks & Drams in Ventura.  Last year First Wednesday contributed over $40,000 to local charities.  It's local realtors doing good in Ventura County!

Happy Holidays from the Talk About It Family! Let's take a trip down memory lane... on the very first episode of Talk About It, Greg sat down with filmmaker and epilepsy advocate Miles Levin to talk about a short film that he created called Under The Lights. That's why we are so excited about this month's episode, where we check back up on that short film because it is now in the process of being a full-blown, big time FEATURE, with a full-blown, big time cast! Greg sits down with actor Pearce Joza who you would recognize as being the lead in the short film, and now is the lead of the upcoming feature alongside a deep bench of great actors including Nick Offerman, Tanzyn Crawford, Randall Park, and Lake Bell. They talk about how this project grew into what it is now, tell some stories from set, and tease an upcoming documentary that Pearce and Greg are producing together. You don't want to miss this episode! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

Dr. Ingo Helbig is a pediatric neurologist in the Division of Neurology and the Director of Genomic Science at Children's Hospital of Philadelphia where his area of expertise is epilepsy genetics. Tonight, Dr. Helbig is joining me on the show to discuss the signs and symptoms of epilepsy, treatment options, and the latest advancements in care. After my conversation concerning epilepsy with Dr. Ingo Helbig, I'll have The Toy Guy, Chris Byrne, to share about his top toy picks, the best sources for shopping online, & best tips for finding deals throughout the season.

On this MADM, Dr. Ingo Helbig with Children's of Philadelphia is sharing about epilepsy. Dr. Helbig specializes in epilepsy when it comes to children. Listen & share. Sponsor: Athens Bible School AthensBible.com

Wicked, Wicked, WICKED! Everyone is talking about Wicked! Well, do we here at Talk About It have news for you... there is a brand new musical playing in Los Angeles that is all the rage in the epilepsy community, and it will make you forget all about good witches or bad witches. That musical is "It's All Your Fault, Tyler Price" and it tells the story of a middle school boy whose younger sister has epilepsy and is being bullied, shining a light on the high and low moments of a family dealing with epilepsy, how it affects the parent, and the challenges they are forced to overcome. It's a fresh, honest perspective and a wonderful opportunity to highlight epilepsy awareness on the stage! Greg sits down with the show's creators, Emmy award-winning composer and songwriter Ben Decter and Tony-nominated director Kristin Hanggi, to tell the story of what inspired Ben to start writing this show, how he and Kristin developed the final iteration of the musical, and so, SO much more! Plus! You'll get a sneak peek of one of the numbers that they shot a music video for. This episode is so much fun, you do NOT want to miss it! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

Today's episode is a look into a condition that affects millions every day, epilepsy. While it's impact and triggers can be overwhelming, the latest advancements in medicine offer much hope for patients and their families alike. Host:Willard ShepardAward-Winning JournalistExperts:Dr. Pooja Patel, M.D.Neurologist Director of the epilepsy monitoring unit at Marcus Neuroscience InstituteDr. Luis Felipe Tornes, M.D.NeurologistDirector of the epilepsy program at Baptist Health Miami Neuroscience Institute

In this episode of Walk and Roll Live - Disability Stories, we sit down with Meghan Kennedy from Epilepsy Education Everywhere. Meghan shares her personal journey and the organization's mission to provide essential education and resources on epilepsy. From dispelling myths to teaching seizure first aid, Meghan discusses the impactful programs, advocacy efforts, and community outreach that make a difference for individuals with epilepsy. Join us as we explore the powerful ways this organization is fostering understanding, support, and change. Walk and Roll Live Epilepsy Education Everywhere 

On this month's episode, Talk About It co-founder Ken Lowenberg brings along one of his good friends Jake Didinsky to talk all about autism. Jake is a proud business manager, community organizer, DJ, is LGBTQIA+ and non-binary, and is an all-around powerhouse who uses their life on the spectrum as an advantage and is proud and unapologetic about all of it. They are an inspiration to Greg and Ken, and should also be an inspiration to you and anyone you know living with autism! They discuss having episodes of being nonverbal and what to do when that happens, the unique challenges of autism, the difficulty of being diagnosed as an adult, living with depression, the importance of allyship, and how Jake advocates for local, state, and national governments to push for legislation - not just for autism, but for causes to help all kinds of marginalized communities. No matter what your condition is, don't be afraid to be proud and get involved!  The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

In this episode, we welcome Melissa Miller, an experienced caregiver and entrepreneur with over 15 years as a Certified Nursing Assistant, primarily working in Long-Term Care facilities. Melissa's caregiving journey has included caring for her grandmother, father, and her husband following his epilepsy diagnosis in July 2020. When her husband's health prevented her from returning to traditional employment, Melissa decided to create her own business, finding the flexibility she needed as a spousal caregiver and stay-at-home partner.   What started as a blog has grown into her true passion: http://www.caregivingentrepreneurshipreimagined.com . Now, as the host of the Caregiver & Entrepreneurship Reimagined podcast, Melissa supports entrepreneurs who care for chronically ill loved ones, helping them balance their caregiving and business responsibilities by developing stress-free systems. Her belief is clear: you don't have to choose between caregiving and entrepreneurship—you can successfully do both.   Tune in as Melissa shares her story and offers practical advice for anyone balancing these two important roles. Episode Highlights   ·       Work-Life Balance ·       Remote Work for Caregivers ·       Mental Health Awareness ·       Chronic Illness Care ·       Women in Entrepreneurship ·       Self-Care for Caregivers ·       Technology and Caregiving ·       Epilepsy Awareness ·       Long-Term Care Insights ·       Resilience and Adaptability ·       Caregiving entrepreneurship ·       Spousal caregiver support ·       Managing caregiving and business ·       Caregiver podcast ·       Balancing caregiving and work ·       Caregiving systems and strategies ·       Chronic illness caregiving tips ·       Flexible work for caregivers ·       Entrepreneurship for caregivers ·       Stress-free caregiving solutions Know more About Melissa Miller Website: https://www.caregivingentrepreneurshipreimagined.com Email: melissamiller@tyrosupermom.com Podcast:  https://podcasts.apple.com/us/podcast/caregiving-entrepreneurship-reimagined-podcast/id1651861199   Did you enjoy today's episode?   Please subscribe and leave a review. If you have questions, comments, or possible show topics, email  susan@tendrilsofgrief.com   Don't forget to visit Tendrils Of Grief  website and join for upcoming Webinars, Podcasts Updates and Group Coaching.   Get involve and share your thoughts and experiences in our online community   Tendrils of Grief-Survivor of Loss   To subscribe and review use one links of the links below  Amazon Apple Spotify Audacy Deezer Podcast Addict Pandora Rephonic Tune In   Connect with me Instagram: @Sue_ways Facebook:@ susan.ways Email @susan@tendrilsofgrief.com   Let me hear your thoughts!

This month on Talk About It, we are cooling off the summer heat with some refreshing and delicious lemonade! Greg hosts three different interviews with people who are taking the sourest of lemons that life hands them and squeezing out incredible creative initiatives that make the world a much, MUCH better place. Up first is Landis Wiedner who developed epilepsy after a traumatic brain surgery to remove a tumor. She was disrupted by this sudden change in her adult life and realized that there weren't enough resources to help her deal with the struggles of "adulting" with epilepsy, so she started a podcast! The What the EF Podcast she started has now been on for five seasons and aims to be an outlet for those everyday conversations that aren't as accessible for adults in her situation. Way to go Landis! Then, Greg has some very special guests to the studio - his son Jake's girlfriend Morgan, and her incredible mom Karen and brother Kyle! Kyle was born with cerebral palsy, but Karen never let his condition affect his ability to play sports and enjoy recreational activities. In fact, she came on board the AYSO VIP Program for kids and helped to expand it to now host hundreds of special needs participants, from 4-year-olds to 40-year-olds! From basketball to soccer, Karen is leading the way to establish communities and provide a safe environment for individuals like Kyle to learn and grow through playing sports. Greg and Nick headed out to watch the basketball program in action, and we get a full recap of how incredible that experience was that is sure to pull on your heart strings! Finally, Greg talks with Sue Seserman, a writer and new author that harnesses her conditions and turns them into superpowers! Sue has epilepsy and type 1 diabetes, and has such a brilliant creative vision on how to use them for good. She has now released her new graphic novel Epilectra that centers around a woman who becomes a superhero by converting the electricity in her brain that causes seizures and uses them for super electric abilities! She is joined by a cast of characters - Team SEEZ - who all have a disability, but use them as “superabilities” to change the circumstances of their adversaries and save the day. She is a visionary, and we are so excited that this novel is finally here! Plus, we recap Greg's trip to the Epilepsy Walk at the Rose Bowl with some familiar faces and some new friends! Don't miss this episode! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

Kelley Coleman is a mom to two amazing boys, one of whom has multiple disabilities (including a yet-undiagnosed genetic syndrome, cerebral palsy, autism, CVI, epilepsy, and more).  Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are.  Kelley's message resonates with everyone, even parents whose children are not disabled. We all know someone in this camp (whether it's a kid with ADHD or a rare disease). Kelley's tools and resources change lives for families who have a child with disabilities and all of those who interact with them. https://www.kelleycoleman.com/ https://www.instagram.com/hellokelleycoleman/ Get her Book: https://www.amazon.com/dp/0306831708/ref=cm_sw_r_as_gl_api_gl_i_DF8V5JNJ5HVZHY13K8HP?linkCode=ml2&tag=elizabethsand-20 Connect with Liz https://www.instagram.com/esandoz/?hl=en https://www.Elizabethjoy.co Get the First Trimester Survival Guide https://elizabethjoy.co/freebie Join the Waitlist https://elizabethjoy.co/join-waitlist

In this episode, Greg is joined by a fellow parent of a child with epilepsy, and that parent just so happens to be the incredibly talented and incredibly funny actress Lake Bell! Lake's daughter Nova was diagnosed with epilepsy at just five years old due to a genetic mutation commonly associated with Dravet Syndrome, a rare form of epilepsy. Greg and Lake talk about re-framing the condition to her daughter so that it is positive, taking away guilt or anxiety when she has a seizure. She has created a scenario in which after Nova has a seizure, she thinks of it as "sparkling" and is very brave and smart, like Joan of Arc who  is featured in the Frozen movie that her daughter loves and who also had epilepsy.   Lake is currently working on two projects that center around epilepsy - a book about the brain that she is announcing on this episode, and the feature film "Under the Lights" expanded from the short film written and directed by guest of the show Miles Levin and starring Greg, himself! What a small world it is in this community! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

In this very special and star-filled episode of Talk About It, Greg sits down with David Anders, Todd Stashwick and Jerry O'Connell to share their personal stories of how cancer has impacted their lives. It will have you laughing, crying, and finding ways to come together to end this horrible disease once-and-for-all. First up is David Anders, a delightfully eccentric and incredibly talented actor Greg worked with on Heroes and Alias. David opens up about his father's blood cancer diagnosis, and how his father dealt with his condition as a doctor who had massive impact on all of his patients. David still grapples with the major loss of his hero and friend. Next, you'll hear from Todd Stashwick - also a brilliant actor and a self-described nerd enthusiast! Todd starred as Captain Liam Shaw on the critically aclaimed award-winning third season of Star Trek: Picard. Off screen he is an avid Dungeons and Dragons player who uses the hobby to raise money for the Pablove Foundation for pediatric cancer initiatives (PabLove.org). Todd's very good friends experienced the unthinkable when they lost their teenage daughter to cancer, so Todd laced up his running shoes and participates in half marathons in her memory. He also runs a charity livestream of DnD with audience participation to raise both awareness and money for Pablove. Finally, after such heavy conversations, we lighten up a bit with the hilarious actor, gameshow and podcast host, and star of Star Trek: Lower Decks Jerry O'Connell. Jerry starts by lamenting about being the father of teenage daughters, but he ends up getting into how cancer has affected him through his dad's repeated battles. He inherited his family's tendency to only go to the doctor if you have to go, but after witnessing his father's multiple scares with skin cancer, he sees the importance of getting screened in advance to take a more preventative approach. The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

I rant about epilepsy.

This month on Talk About It, Greg is joined by the CEO of Vesalius Therapeutics and former director of the National Center for Advancing Translational Sciences (NCATS), along with Phil Gattone, co-founder of Talk About It! This episode is all about collaboration, and how it's possible to make giant strides in the world of medicine through various fields coming together. As Dr. Austin describes, there is often times resistance to share information across fields or specialties, but in the past decade and especially through Covid, the world of medical science, especially as it pertains to conditions like epilepsy, has seen developments that show the whole is truly greater than the sum of its parts. Plus, as a very special treat, don't miss Dr. Austin showcasing the other side of his expansive brain as he performs opera in front of a live audience! Greg is accompanying, of course! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

In this very special episode, we sit down with the founders of Talk About It to hear all about the past, present and future of this organization! Two of Greg's closest friends, Ken Lowenberg and Phil Gattone, are in the studio. The three co-founders tell the origin story of how Talk About It was born in a hotel ballroom. This organization is fueled by the passion for spreading awareness about epilepsy, but as we find out in this conversation, Talk About It is broadening its scope to include a variety of causes going into the future. Through the benefits of today's technology, Talk About It will now offer a mulititude of outreach channels to get people talking - talking about cancer awareness, talking about MS, talking about cerebral palsy, talking about depression, talking about the things in our lives that matter. No matter what you are going through, there is a community and an infrastructure of support ready to help, but the first step is to... you guessed it... Talk About It! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

On this episode of Free Thinking, Montel talks with the author of, A Petit Mal: A Mothers Healing Love Song, Ana Maria Caballero. Ana knows there are many parents who struggle daily to protect their children dealing with epilepsy and other illnesses and offers inspiration, knowledge and a protective friend to others on the same path. She is a first generation Columbian-American poet, artist and author who graduated magna cum laude from Harvard University and was a finalist for the Academy of American Poets Prize. In this memoir, she shares her families journey from dealing with the diagnosis of epilepsy of her young child, to the trials and tribulations of navigating the traditional healthcare system, to ultimately seeking guidance from alternative medicine practitioners.

Today we have a special episode of Group Chat News with Anand and his wife Amanda in honor of Infantile Spasms Awareness Week 2023 we have Dr. Hussain on the podcast who is a pediatric epilepsy specialist who focuses on severe childhood disorders including infantile spasms, Dr Hussain has also been the Dr helping take care of Anand and Amanda's son as well as leading the charge for research and helping other families all over the world.  UCLA Infantile Spasms Research  

Val "The Voice" Johnson reviews the recent concert show called "R&B Groove Thing"  featuring Stephanie Mills, El Debarge, and After 7.  She gives insights on their performances and how the music takes many back to a wonderful time in R&B.  Plus, filmmaker and epilepsy advocate Karla Braithwaite joins us to share her epilepsy journey and how she continues to support the Epilepsy Foundation.  For more information about The Epilepsy Foundation and how you can support Karla, please visit the website: https://tinyurl.com/4r9u2w7r  

To celebrate Epilepsy Awareness Month, Greg sits down with mother, caregiver and author Kelley Coleman to talk about navigating through scary and uncharted waters after a difficult diagnosis. Kelley is the mother of two boys, and her youngest, Aaron, developed an undiagnosed genetic syndrome in addition to epilepsy, autism, cerebral palsy, cortical vision impairment, microcephaly, and motor/ sensory disabilities. Over the years of her preparation, planning and persistence, she developed systems, lists and how-to's that she is now publishing as a practical guidebook for all parent caretakers to follow entitled Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services and Supports. They also discuss motherly instincts and persistence with medical professionals, how she manages her self-care as a caretaker of others, and of course… Venus fly traps! We also get a bonus visit from a few celebrity friends who have very special messages for all caretakers this month. The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

Welcome back to another impactful episode of Safety Shorts, where Libby welcomes Jason Epstein, NSSGA's Director of Membership, to delve into the significance of Epilepsy Awareness Month and explore Jason's own personal journey living with epilepsy. In this engaging conversation, they discuss the importance of dispelling myths about epilepsy, offer practical tips for assisting someone having a seizure, and highlight the broader impact of raising awareness about this neurological condition. As you listen in today, you are encouraged to remember that your knowledge can make a difference in someone's life, so stay informed, stay safe, and help raise awareness during Epilepsy Awareness Month. Episode Highlights: The significance of Epilepsy Awareness Month and its impact on millions of lives Jason's personal journey with epilepsy and his dedication to raising awareness Practical steps for assisting someone having a seizure Dispelling common myths about epilepsy The story behind the creation of the Epilepsy Alliance for Young Adults The importance of spreading knowledge about epilepsy for a safer world Toolbox Talk Discussion Questions: In this episode, Jason shares some things everyone can know about epilepsy as well as some common myths about the disorder. Have you ever heard any of these myths? After listening to this episode, do you feel like you have the information necessary to assist someone experiencing a seizure? Does anyone have a story about a time where they witnessed a seizure?   Quotes: "I was diagnosed with epilepsy when I was eight years old. I was bullied by other students, treated differently by school administrators and teachers. I felt compelled to educate others so kids today wouldn't go through what I did." "Everyone has a safety story; you don't have to be a safety health professional to have a safety story." "You never know when someone will have a seizure, and it's good to know what to do. The more people know, the safer we all are." "Dispelling myths about people swallowing their tongue or putting something between their teeth is crucial." "You took it into your hands to do something you are passionate about, to help other people, and make the world a safer place." "From 2010 until this year, I founded and ran the Epilepsy Alliance for Young Adults, a local support group in the DC area that held small local events for those with the disorder and promoted epilepsy education." "Never put anything in their mouth and never hold them down. Time the seizure and remain calm. Stay with this person until their seizure has ended and they've regained consciousness." Links: National Stone, Sand & Gravel Association website National Epilepsy Awareness Month Epilepsy Alliance for Young Adults  

Its Epilepsy Awareness Month.

Brock and Bryson Thompson, brothers, began Helmets4Helmets.com at the ages of 8 and 6. They decided they wanted to start their own foundation to help kids around the world who have epilepsy, like Bryson does. In this episode of Talk About It, Greg Grunberg talks with Bryson's and Brock's parents - Sarah and Aristotle. They share their story as two loving parents who are raising a family all about making a difference and talking about it.  Also, in this episode, a SPECIAL LIMITED TIME OFFER from GuardianHelmets.com for our viewers: You can get 10 percent off of helmets for people living with epilepsy and other neurological conditions. (Offer good through November 9, 2023). The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

This episode is MEGA VIRAL! Tiktoker, Instagram star and actress Stanzi Potenza joins Greg in the studio to talk about her journey to millions of followers while dealing with unpredictable seizures. As a young star with epilepsy, she displays immense courage through her independence and self-reliance, however it doesn't come without a few scary moments that she shares on this episode. They discuss her growing up in theater and the similarities and differences with creating her own content, how she can sense a massive seizure before it happens and occasionally talk herself out of it, and the videos that broke her career to the masses on the internet during Covid. Enjoy this episode and, of course, like/ subscribe/ comment! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

This week the Lautners have the honor of sitting down with Victor and Libby Boyce, parents of child star Cameron Boyce, who passed away in 2019 from SUDEP (Sudden Unexpected Death in Epilepsy). They offer an inside look at the incredible life Cameron led and the legacy he left behind. They explain how and when epilepsy became part of their lives and how Cameron wasn't considered epileptic until his second seizure. This is one of their many frustrations with the medical system, which failed to arm them. Their main message in coming on the podcast today is to take an epilepsy diagnosis seriously. There is a lack of information about epilepsy, despite there being so many different types and it being one of the most common neurological conditions. They were never even informed of SUDEP, the complication that took their son's life. They talk about The Cameron Boyce Foundation, with the mission of raising awareness of epilepsy, discuss their grieving process, share what the outpouring of love has felt like, and offer advice on what to say to someone who has lost a loved one.   Cameron lives on through his sister, parents, friends, and The Cameron Boyce Foundation. We urge other people of influence to speak out if they suffer from epilepsy, and encourage you to check out the foundation to learn more about the disorder: www.thecameronboycefoundation.org  Thanks to our awesome sponsors for supporting this episode:  GreenChef — Go to GreenChef.com/60thesqueeze and use code 60thesqueeze to get 60% off plus free shipping  Earth Breeze — Subscribe to Earth Breeze and save 40%! Go to earthbreeze.com/thesqueeze   Jenni Kayne — Find your forever pieces @jennikayne and get 15% off with promo code THESQUEEZE at jennikayne.com/THESQUEEZE! #jennikaynepartner  Fast Growing Trees — Get 15% off your entire order when you go to FastGrowingTrees.com/THESQUEEZE, but only through OCTOBER 15TH  To email us your questions or share your story, you can reach out to lautner.thesqueezepodcast@gmail.com. Be sure to rate, review, and follow the podcast so you don't miss an episode! Plus, follow us on Instagram, @thesqueeze and personally @taylautner and @taylorlautner + on TikTok @thesqueezepodcast  To learn more from The Lemons Foundation, follow @lemonsbytay on Instagram and visit lemonsbytay.com  Learn more about your ad choices. Visit megaphone.fm/adchoices

In this very special mini-Felicity-reunion episode of Talk About It, actress Amanda Foreman (Felicity, Star Trek) joins Greg to reminisce about their time on the show together and to give help, hope and advice to those living with Multiple Sclerosis. Mandy opens up about the dispirited emotions she went through when she received her diagnosis, and the journey she has been on, physically, emotionally and mentally, to now be at peace while living her best life alongside her condition. Plus, Greg and Mandy get into their characters from Felicity to open the show with a classic Meghan-and-Sean bickering about his latest invention idea… but this one might just work! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

Land ho! On this nautical episode of Talk About It, Greg welcomes Dr. Philip Haydon to talk about how he merged his career in medicine with his passion for sailing to inspire people around the world. Dr. Haydon is an internationally recognized neuroscientist, and the Annetta and Gustav Grisard Professor and Chair of the Department of Neuroscience at Tufts University School of Medicine. Since his diagnosis of post-traumatic epilepsy as a teenager, Dr. Haydon has devoted his life to studying in medicine and researching neurological disorders. He channeled his love of sailing into starting Sail4Epilepsy, an organization aimed for raising awareness about epilepsy and helping people take One More Step towards living a fuller life by achieving goals, one step at a time. Greg is also joined by his friend and Heroes co-star, actor and sailing enthusiast Adrian Pasdar, to talk about the peace and tranquility that sailing brings. Batten down the hatches, this episode is quite a journey!  The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.      

For the second in a series of interviews with innovators in advocacy and business, Greg sits down with two powerful women from TSC Alliance - Kari Luther Rosbeck, President and CEO, and Lisa Moss, Vice President of Donor Relations. Kari and Lisa have dedicated their lives to helping individuals and families living with TSC, and they have become heroes within the epilepsy community. In 2002, Kari founded the annual Comedy for a Cure in Los Angeles, providing much needed laughter to help raise money for TSC research. The event has grown to a highly-anticipated tradition that now raises over $500,000 each year with major comedians performing, and even Greg takes part on stage! This episode discusses the importance of caregivers, the need to sometimes laugh to get through difficult times, how they raised major funding through charity events, the medical breakthroughs that TSC Alliance is funding and facilitating, and so much more! The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals.

I just rant about what we can do to elevate epilepsy awareness.

Legendary jazz saxophonist Wayne Shorter once said, "The word 'jazz' means to me 'I dare you. Let's jump into the unknown!'" On this episode, Greg sits down with chairperson and CEO of Jazz Pharmaceuticals, Bruce C. Cozadd as the first in a series of conversations with epilepsy innovators, including heads of pharmaceutical companies and charity organizations. Bruce, having a musical background as a master pianist, relates the improvisation, structure, and cooperation of jazz performance to the corporate development of new medication and therapies for patients in need. They discuss taking risks, the transparency that is needed for a company in pharmaceuticals, and the importance of community and advocacy. Whether you have epilepsy or another condition, or you are a caregiver of somebody who does, it might feel like jumping into the unknown, but companies like Jazz will be there along the way. The Talk About It podcast is sponsored by Seizures Are Signs — dedicated to educating families on the importance of early and specific diagnosis by providing an assessment to help get the conversation started, educational information, stories from families who have found a diagnosis, links to advocacy groups, and more. For more information, go to SeizuresAreSigns.com. Seizures are Signs is made available by Jazz Pharmaceuticals

Each year on December 1-7, a coalition of organizations (including CURE Epilepsy) recognize Infantile Spasms Awareness Week, a critical opportunity to raise awareness and educate the public about infantile spasms.  Kelly Cervantes is on this episode sharing a mother's journey through epilepsy.  Kelly has a deeply touching personal story to share after loosing her daughter, Adeline to infantile spasms.  Since this life altering moment, Kelly has dedicated her time to helping other parents navigate having a child with Epilepsy as well as bringing more research, awareness and support.  Together with Cure Epilespy, they can not emphasize enough the importance to bring awareness to the incurable disease that impacts 1 out of 26 people at some point during their lifetime. https://www.cureepilepsy.org/ https://www.instagram.com/kellygc411/?hl=en https://www.kellycervantes.com/blog Connect with Elizabeth: https://www.instagram.com/esandoz/?hl=en https://miraculousmamas.com/blog  

November is Epilepsy Awareness Month. Val 'the Voice' Johnson speaks with digital compositor and entertainment consultant Karla Braithwaite about her challenges and breakthroughs with the neurological disorder, epilepsy. Karla shares why she started a daily fundraising walk on her Instagram account to help increase epilepsy awareness.

My wife, Vicki DeLuzio, joins the podcast to discuss how epilepsy and how it affects those who, like her, have developed it later in life.

What do you do when your five-month-old child has seizures that are only happening at night? For writer Marc Palmieri, it was hard to know whether the strained movements and odd facial expressions were a problem for his young daughter Anna, when she had been a healthy, happy baby otherwise. Ultimately, Anna was diagnosed with complex partial seizures, frontal lobe Epilepsy and was able to live a fairly normal life despite having severe epilepsy until age 11.  Join host Annette Hines in hearing the adrenaline rush of a nerve-racking, mystery pursuit for Palmieri's family to save Anna when epilepsy completely took control of her body resulting in a serious brain surgery. Palmieri shares how much he learned from Anna about pursuing dreams and overcoming the impossible. You can read about Anna's fight to live on Palmieri's website: www.marcpalmieri.com and his newly released book, SHE DANCED WITH LIGHTNING, My Daughter's Struggle with Epilepsy and Her Boundless Will To Live We would love to hear what you think about this episode. Please leave a review or post a comment on our website: specialneedscompanies.com/podcasts

Aug. 16, 2022 - Assemblymember Harvey Epstein, a Manhattan Democrat, discusses legislation designed to educate New Yorkers with epilepsy about the acute risk of death from the condition and identify ways to prevent this tragic outcome.

Say hello to our friend Elijah!Elijah is a brave, intelligent and loving almost six-year-old from Santa Fe, New Mexico where he lives with his parents, Marissa and Stevan. Elijah loves learning, the ocean, and nature documentaries.Throughout the month of May we'll be shouting love for Elijah and raising awareness about his journey with Lennox Gastaut Syndrome, Cortical Vision Impairment, and a genetic mutation on the CACNA1E gene.