Bladder Cancer Matters

In this powerful episode of Bladder Cancer Matters, host Rick Bangs talks with Deb Wells, a survivor of high-grade upper tract urothelial cancer (UTUC), who shares her emotional and eye-opening journey to diagnosis and treatment. After months of misdiagnoses and repeated ER visits, Deb finally learned the truth behind her symptoms—an experience that will resonate with many bladder cancer patients, especially women. She opens up about the importance of being an informed patient, finding the right medical team, and leaning on a support system when facing uncertainty. Deb's story is both inspiring and practical, filled with advice for navigating complex medical decisions, coping with treatment side effects, and embracing life during and after cancer. If you or someone you love has been impacted by bladder or upper tract urothelial cancer, this episode offers hope, clarity, and a powerful reminder that no one has to face this journey alone. Don't miss this honest and uplifting conversation.

Can you really just take out part of the bladder? It's one of the most common questions bladder cancer surgeons hear—and in this episode of Bladder Cancer Matters, host Rick Bangs sits down with renowned urologic oncologist Dr. John Gore to break it all down. From TURBTs to partial cystectomies, they explore when bladder-sparing approaches are appropriate, what the real risks and benefits are, and how treatment choices affect long-term outcomes. Whether you're a patient, caregiver, or advocate, this episode is packed with the kind of honest, expert insight that can help you make more informed decisions.

Can personalized exercise improve recovery after bladder cancer surgery? In our latest Bladder Cancer Matters podcast, host Rick Bangs talks with Dr. Sarah Psutka about her groundbreaking BCAN-funded clinical trial, Get Moving. This innovative study explores how tailored, app-based exercise programs can help patients undergoing major surgery for bladder or upper tract urothelial cancer recover faster and feel better. From reducing frailty to rebuilding strength at home using just a smartphone and a Fitbit, this episode dives deep into the science—and heart—behind helping patients thrive.

Bladder cancer survivor Fran Curtis shares her powerful journey on Bladder Cancer Matters, discussing her experience with ADSTILADRIN® (nadofaragene firadenovec-vncg), the impact of early detection, and her advocacy work with BCAN. Diagnosed with non-muscle invasive bladder cancer after subtle urinary changes, Fran highlights the importance of listening to your body, seeking the best care, and finding hope through community support. Released during International Women's History Month, this episode underscores the need for gender equity in healthcare. Tune in to hear Fran's inspiring story and insights! IMPORTANT SAFETY INFORMATION Who should not receive ADSTILADRIN? Do not receive ADSTILADRIN if you have a sensitivity to interferon alfa or any of its components. What is the most important information I should know about ADSTILADRIN? Individuals who are immunosuppressed or immune-deficient should not prepare, administer, receive, or come into contact with ADSTILADRIN. What should I tell my healthcare provider? Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. What are the possible side effects of ADSTILADRIN? The most common side effects of ADSTILADRIN include: Urinary discharge, fatigue, bladder spasm, urgency to urinate, and blood in your urine. These are not all the possible side effects of ADSTILADRIN. Call your doctor for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to FDA. Visit www.FDA.gov/medwatch or call 1-800-332-1088. You may also contact Ferring Pharmaceuticals at 1-888-FERRING. What other information should I know about using ADSTILADRIN? For 2 days following treatment, voided urine should be disinfected for 15 minutes with an equal volume of bleach before flushing. For more important information, call 1-888-337-7464. Please see full Prescribing Information.

Mental health is a critical yet often overlooked aspect of the cancer journey. In this compelling episode of Bladder Cancer Matters, host Rick Bangs sits down with nurse practitioner and long-time BCAN advocate Mary Dunn to tackle the emotional challenges faced by bladder cancer patients and their caregivers. From fear of recurrence and depression to the stigma surrounding urologic cancers, Mary shares eye-opening statistics, real-world experiences, and practical strategies for addressing these issues. She also discusses how BCAN's Survivorship Task Force is working to close the gaps in psychological support. Whether you're a patient, caregiver, or healthcare professional, this episode sheds light on the urgent need to normalize mental health discussions and create accessible resources for those navigating the complexities of bladder cancer. Don't miss this powerful conversation—listen now!

In this special Bladder Cancer Matters podcast, host Rick Bangs features BCAN's February 2025 Partner in Progress,  Photocure. Anders Neijber, Photocure's Chief Medical Officer, dives into the company's pioneering work in bladder cancer diagnosis and surveillance, including the groundbreaking use of Blue Light Cystoscopy. From how it enhances detection to its role in shaping future treatments, Anders shares expert insights on Photocure's patient-focused innovations and its impactful partnership with BCAN. Don't miss this inspiring conversation about how collaboration is driving progress and hope for the bladder cancer community. Listen now!

In this episode of Bladder Cancer Matters, host Rick Bangs is joined by the esteemed Dr. Ashish Kamat of MD Anderson Cancer Center to dive into the often-overlooked world of histologic subtypes, or variants, of bladder cancer. These rare subtypes can significantly alter how bladder cancer behaves and responds to treatment. Dr. Kamat breaks down the science behind these variants in a way that's both accessible and empowering for patients, offering crucial insights into why understanding your specific diagnosis matters. From the differences between common urothelial cancer and variants to the critical questions patients should ask their doctors, this conversation is packed with valuable information for anyone navigating a bladder cancer journey.

Join Bladder Cancer Matters host Rick Bangs as he sits down with BCAN CEO Andrea Maddox-Smith, who reflects on her remarkable tenure leading the Bladder Cancer Advocacy Network. From dramatically increasing research funding to building a powerhouse team and expanding programs, Andrea has transformed BCAN into a vital lifeline for bladder cancer patients and families. Hear her personal journey, her proudest moments, and the legacy she's leaving behind as she prepares for retirement in 2025. Andrea's passion for patient advocacy, her deep connections with the bladder cancer community, and her dedication to driving change shine through in every word. Whether you're a patient, caregiver, or advocate, this episode will leave you inspired by what's possible when a vision is fueled by heart and determination. Listen now on Bladder Cancer Matters!

Discover how groundbreaking advancements in bladder cancer care are transforming lives in our latest Bladder Cancer Matters podcast episode! Host Rick Bangs kicks off BCAN's 20th anniversary "Partners in Progress" series with Karishma Parikh of Ferring Pharmaceuticals. Learn about Adstiladrin, an innovative gene therapy offering hope and bladder preservation for some patients with high-risk, BCG-unresponsive bladder cancer. With a 96% success rate in preventing progression to muscle-invasive cancer and life-changing patient stories, this episode is packed with insights into how Ferring is driving innovation, supporting patient needs, and reshaping the future of bladder cancer care. Tune in now and be inspired! ===== About Adstiladrin: INDICATION ADSTILADRIN is a treatment for adults who have all the following: High-risk non–muscle-invasive bladder cancer (NMIBC) Cancer that is not responding to Bacillus Calmette-Guérin (BCG) therapy Carcinoma in situ (CIS) with or without other high-grade tumors IMPORTANT SAFETY INFORMATION Who should not receive ADSTILADRIN? Do not receive ADSTILADRIN if you have a sensitivity to interferon alfa or any of its components. What is the most important information I should know about ADSTILADRIN? Individuals who are immunosuppressed or immune-deficient should not prepare, administer, receive or come into contact with ADSTILADRIN. What should I tell my healthcare provider? Tell your doctor about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. What are the possible side effects of ADSTILADRIN? The most common side effects of ADSTILADRIN include: Urinary discharge, fatigue, bladder spasm, urgency to urinate, and blood in your urine. These are not all the possible side effects of ADSTILADRIN. Call your doctor for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.FDA.gov/medwatch or call 1-800-332-1088. You may also contact Ferring Pharmaceuticals at 1-888-FERRING. What other information should I know about using ADSTILADRIN? For two days following treatment, voided urine should be disinfected for 15 minutes with an equal volume of bleach before flushing. For more important information, call 1-888-337-7464. Please see full Prescribing Information.

What if bladder cancer treatment could spare your bladder and transform your life? In this must-listen episode of Bladder Cancer Matters, host Rick Bangs dives deep with Dr. Roger Li, a leading urologic oncologist, to explore revolutionary advancements in bladder-sparing therapies, the emotional journey of patients, and life-changing options that weren't available just a few years ago. Hear how personalized care is reshaping hope for bladder cancer patients everywhere.

Join host Rick Bangs and expert Dr. Kent Mouw, a radiation oncologist from Dana-Farber Cancer Institute and Harvard Medical School, as they dive deep into the transformative role of radiation therapy in treating bladder cancer. From debunking myths about radiation to exploring cutting-edge advancements like adaptive radiation and personalized treatment plans, this episode offers a comprehensive look at how modern techniques are improving outcomes and patient experiences. Whether you're a patient, caregiver, or medical professional, you won't want to miss this insightful conversation about the future of bladder cancer treatment.

In this insightful episode of Bladder Cancer Matters, host Rick Bangs engages with Dr. Marc Bjurlin, a leading urologic oncologist and smoking cessation advocate, to explore the profound link between smoking and bladder cancer. Timed with the Great American Smokeout 2024, the episode delves into how smoking increases cancer risks, the rise of e-cigarettes, and the challenges of quitting. Dr. Bjurlin also shares inspiring success stories from cessation programs, practical quitting strategies, and the importance of early detection for smokers. Whether you're a patient, caregiver, or health professional, this episode is packed with vital information to help you or your loved ones take charge of their health.

In this compelling episode of Bladder Cancer Matters, host Rick Bangs speaks with Cindy McCreery, a screenwriter and professor, and Ryan Cooper, an actor and producer, about their powerful new film, I'll Be There. The movie tells the story of Cindy's brother's battle with muscle-invasive bladder cancer, inspired by her experience as his caregiver and his journey to survivorship with a neobladder. Cindy and Ryan share personal insights into bringing this deeply moving story to life, offering a unique portrayal of the resilience and challenges faced by those impacted by bladder cancer. Cindy reveals the personal significance of the film, from witnessing her brother's treatment to understanding the emotional weight of being a caregiver. Ryan shares his journey preparing for the role, highlighting the physical and emotional aspects he learned about bladder cancer. Their reflections provide a rare look into the strength and spirit of the bladder cancer community, with insights that will resonate with both patients and caregivers alike. Tune in to hear Cindy and Ryan discuss the film's journey to the screen, the significance of accurately depicting bladder cancer experiences, and their hopes for how I'll Be There will inspire awareness and empathy for those facing bladder cancer. This is an episode that celebrates courage, community, and the transformative power of storytelling.

In this episode of Bladder Cancer Matters, host Rick Bangs speaks with Dr. Armine Smith, Director of Urologic Oncology at Sibley Memorial Hospital and a leading expert in bladder cancer. They dive deep into the significant disparities in bladder cancer diagnosis and outcomes between men and women, exploring the biological, socioeconomic, and healthcare-related factors behind these differences. Dr. Smith highlights the urgent need for better awareness, timely diagnosis, and gender-sensitive treatment options, including exciting new research into the role of the microbiome and sex hormones in bladder cancer progression. With her passion and expertise, Dr. Smith offers actionable insights for both patients and healthcare providers. Tune in to learn about these critical issues and how we can collectively work to improve bladder cancer care for women.

In this informative episode of Bladder Cancer Matters, host Rick Bangs welcomes back Dr. Ashish Kamat, an expert in urology and bladder cancer research from MD Anderson Cancer Center. They dive into the latest updates on BCG (Bacillus Calmette-Guérin) and its crucial role in treating non-muscle invasive bladder cancer. Dr. Kamat provides an insightful overview of BCG's effectiveness, the current shortage, and emerging alternatives. He explains the factors behind the supply issues and how treatments such as reduced dosages and novel combinations like gemcitabine and docetaxel are helping to bridge the gap. Listeners will also hear about promising new therapies on the horizon, including gene therapy with Adstiladrin, Pembrolizumab, and ANKTIVA's combination with BCG. Dr. Kamat sheds light on how these advancements could change the landscape of bladder cancer treatment while emphasizing the importance of tailored care and shared decision-making for each patient. This episode is a must-listen for those affected by bladder cancer and anyone interested in the latest medical developments in this field.

In this compelling Bladder Cancer Matters episode, host Rick Bangs sits down with David McKenzie, a bladder cancer survivor, who shares his deeply personal and inspiring journey. From the initial shock of diagnosis to navigating multiple treatments, including the new, FDA-approved ANKTIVA, David opens up about the emotional and physical challenges he faced along the way. He offers invaluable advice, like the importance of seeking second opinions, not overlooking early warning signs like blood in the urine, and finding humor amidst the struggle. Tune in to hear David's powerful message on resilience, support, and why hope and laughter can be just as vital as treatment.

In this episode of Bladder Cancer Matters, host Rick Bangs sits down with Sarah Paul, Senior Director of Social Work at CancerCare, to discuss the vital support services offered through CancerCare's partnership with BCAN. Sarah explains how CancerCare provides free, professional assistance for bladder cancer patients, caregivers, and families, covering emotional, practical, and financial challenges. They dive into topics like navigating treatment, coping with a diagnosis, and the importance of emotional support. Tune in to learn more about the resources available to the bladder cancer community and how you can access these invaluable services. To access the support line, please call 833-ASK-4-BCA or 833-275-4222.

In this compelling episode of "Bladder Cancer Matters," host Rick Bangs revisits a vital conversation with Dr. Bernard Bochner from Memorial Sloan Kettering Cancer Center. They dive into the findings of a groundbreaking quality of life survey involving over 400 bladder cancer patients who underwent radical cystectomy. Dr. Bochner shares insights on how urinary diversions impact physical, sexual, and emotional health over time, revealing encouraging data that shows most patients return to their baseline quality of life within two years. This is a must-listen for anyone facing bladder removal surgery or supporting someone who is.  Never miss an episode by subscribing to Bladder Cancer Matters in your favorite podcasting platform.

Meet Tim Stanley, a retired educator and two-time cancer survivor who faced a shocking bladder cancer diagnosis after battling thyroid and neuroendocrine tumors. In this heartfelt episode of "Bladder Cancer Matters," Tim shares his journey from an unexpected diagnosis to the life-altering decision of a radical cystectomy. He talks about the emotional rollercoaster, finding the right doctor, and the incredible support from his family, community, and BCAN. Tim's story is a testament to resilience and the power of support—don't miss this inspiring conversation! Listen now and be moved by Tim's heartfelt story.

In a rerelease of a highly popular 2021 "Bladder Cancer Matters" podcast, Rick Bangs sits down with Dr. Ashish Kamat to dive deep into the critical aspects of managing bladder cancer risks. From understanding the stages and grades of tumors to discussing the potential for progression and the role of surgeries like TURBT and radical cystectomy, this conversation is a must-listen for anyone impacted by bladder cancer. Dr. Kamat also shares insights on emerging treatments and stresses the importance of a strong partnership between patients and their medical teams. Tune in now and get informed.

In this powerful episode of "Bladder Cancer Matters," Frank Boyer takes us on an unfiltered journey through his diagnosis of stage IV bladder cancer, revealing the raw reality of facing such a life-altering challenge. He shares how he navigated the overwhelming decisions about treatment and the critical importance of building an exceptional medical team that became his lifeline. Frank's candid discussion about his choice of an ileal conduit for urinary diversion and how he has refused to let cancer define his active lifestyle—biking, hiking, and more—will inspire anyone battling a similar fight. His story isn't just about survival; it's about resilience, determination, and the strength found in a supportive community, including the invaluable resources provided by the Bladder Cancer Advocacy Network (BCAN). Whether you're facing a cancer diagnosis, supporting a loved one, or simply looking for a story of hope, Frank's experience is a compelling reminder of the human spirit's ability to overcome even the darkest of days. 

In Part 3 of our three-part podcast about radical cystectomies, Dr. Sia Daneshmand, a leading bladder cancer specialist, shares vital insights on the radical cystectomy process. He covers pre-surgery preparations, including clinic visits, chemotherapy, meeting with a stoma nurse, nutrition, quitting smoking, and pelvic floor physical therapy. Dr. Daneshmand emphasizes the importance of pre-habilitation, catheter practice, and ERAS pathways to improve recovery. This episode is a must-listen for anyone navigating bladder cancer surgery, offering practical advice and expert guidance. Be sure to listen to Parts 1 and 2 of this fascinating podcast wherever you get your podcasts.  

Tune into Parts 2 of 3 part episode about what to expect with a radical cystectomy, where Rick Bangs interviews Dr. Sia Daneshmand on the intricate aspects of the surgery. Discover insights on surgery duration, hospital stays, pain management, and post-surgery activities. Dr. Daneshmand shares the significance of early mobilization and the various types of urinary diversions, highlighting that surgeon preference determines the choice without impacting cancer control outcomes. The episode wraps up with vital information on post-surgery care, including catheter use, irrigation techniques, and the timing of pathology reports, offering a comprehensive guide for patients and caregivers. Be sure to listen to Parts 1 and 3 of this fascinating podcast wherever you get your podcasts.

Join Dr. Sia Daneshmand, a renowned bladder cancer specialist, as he delves into the comprehensive process and expectations surrounding radical cystectomy in part 1 of this fascinating 3-part podcast episode. Dr. Daneshmand covers the critical steps from pre-surgery clinic visits, chemotherapy, and clinical trials, to essential preparations like meeting with a stoma nurse, nutrition and weight management, quitting smoking, and pelvic floor physical therapy. Learn about the significance of pre-habilitation, including physical and occupational therapy and sexual function, to enhance recovery. Discover the crucial roles of nutritionists, the benefits of enhanced recovery after surgery (ERAS) pathways, and post-surgery muscle activation. Tune in for an enlightening discussion that promises to provide invaluable insights and practical advice for patients and caregivers alike. Be sure to listen to Part 2 and 3 of this fascinating podcast wherever you get your podcasts.

Dive into the deeply personal and inspiring story of Liliana Martin, a bladder cancer survivor, on this episode of the Bladder Cancer Matters podcast. Join us as Liliana candidly shares her journey from the initial shock of her diagnosis to the tough decisions she faced, including surgery and chemotherapy. Discover how she navigated the emotional and physical challenges with resilience, using unique coping mechanisms like running, listening to empowering music, and her signature special socks. Liliana's story is a testament to the power of focusing on small victories and self-care during a cancer journey. Tune in to hear her valuable insights and connect with her personally for support and solidarity. This episode is a must-listen for anyone affected by bladder cancer, offering hope, strength, and practical advice.

In this episode of "Bladder Cancer Matters," host Rick Bangs interviews Dr. Khurshid Guru, Chair of the Department of Urology at Roswell Park Comprehensive Cancer Center and a pioneer in robotic-assisted bladder cancer surgery. Dr. Guru discusses his popular book, "A Patient's Guide to Bladder Cancer," which provides comprehensive information for patients and their families about the disease and its treatment. The book simplifies complex scientific concepts, follows the history of the disease, and includes contributions from experts across multiple disciplines, ensuring a holistic approach to bladder cancer care. Dr. Guru shares insights into the writing process, including the role of patients, the challenges faced, and the importance of including underrepresented groups like women in the bladder cancer narrative. The book is richly illustrated, making it accessible and informative for readers. Dr. Guru also touches on potential future updates, including topics like bladder preservation, upper tract issues, clinical trials, and new treatment approaches. Never miss an episode of "Bladder Cancer Matters" by subscribing in your favorite podcasting platform.

Tune in to the Bladder Cancer Matters podcast for an inspiring and heartfelt conversation with Frank Sadowski, a survivor of muscle-invasive bladder cancer and neobladder recipient.  Frank shares his gripping journey from diagnosis to recovery, revealing the raw challenges he faced, including enormous fatigue, digestive issues, and even hallucinations after his radical cystectomy. Discover the emotional and cathartic moments that shaped his path and hear about the unexpected blessings cancer brought into his life. Frank's story is a beacon of hope for fellow patients, underscoring the crucial role of support from caregivers and healthcare providers. Don't miss this powerful episode where resilience meets reality, and courage takes center stage.

In this captivating episode of the Bladder Cancer Matters podcast, host Rick Bangs delves into the intricacies of upper tract urothelial carcinoma with renowned experts Dr. Jeannie Hoffman-Censits and Dr. Phil Pierorazio. Together, they explore the complexities of diagnosing and treating this challenging disease, offering valuable insights into patient prognosis. The discussion highlights cutting-edge approaches, including the use of topical and systemic therapies, and sheds light on promising clinical trials. Dr. Hoffman-Censits and Dr. Pierorazio underscore the significance of personalized treatment plans and the urgent need for continued research. Don't miss this enlightening conversation that promises to deepen your understanding of upper tract urothelial carcinoma and its evolving landscape in medical care.

Tune in to Episode 70 of Bladder Cancer Matters podcast in which Howard L., a bladder cancer survivor and recovering alcoholic, candidly shares his inspiring journey. Howard discusses his battle with alcoholism, the pivotal role Alcoholics Anonymous (AA) played in his recovery, and his challenging path to a bladder cancer diagnosis, including the critical steps of misdiagnosis and the pursuit of a second opinion. He underscores the vital support provided by resources like the Bladder Cancer Advocacy Network (BCAN) and draws compelling parallels between AA and BCAN's supportive communities. Howard's story is a powerful reminder of the importance of reaching out for support and the difference it can make in overcoming life's toughest challenges. Join us to find encouragement and understanding through his profound insights and experiences.

Join us on the Bladder Cancer Matters podcast as host Rick Bangs interviews Dr. Bishoy Faltas, director of Bladder Cancer Research at the Englander Institute of Precision Medicine at Weill Cornell. Dive into the transformative role of artificial intelligence (AI) in diagnosing and treating bladder cancer. From automated technologies in everyday life to advanced applications in diagnostics and patient care, Dr. Faltas explores how AI is reshaping the landscape of cancer care. Discover AI's potential in prevention, early detection, and even in enhancing doctor-patient communication. Don't miss this deep dive into the exciting advancements and future possibilities of AI in improving bladder cancer outcomes.

Join us for an enlightening episode of Bladder Cancer Matters with Dr. Donald Lamm, a trailblazer in bladder cancer treatment and the driving force behind the groundbreaking Lamm Protocol. Discover the journey of BCG immunotherapy from its inception in the 1970s to becoming a the gold standard in non-muscle invasive bladder cancer care. Delve into Dr. Lamm's insights on the nuances of BCG therapy, including dosing, strain differences, and the critical challenges of supply shortages. With a career dedicated to advancing urologic oncology, Dr. Lamm shares his optimistic vision for the future of BCG treatments, promising enhanced outcomes through innovative approaches. Tune in to explore how Dr. Lamm's work has revolutionized the fight against bladder cancer, offering hope and improved survival for thousands. Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.

 Join Dr. Aditya Bagrodia, a urologic oncologist, on Episode 67 of the Bladder Cancer Matters podcast as he unveils the power of shared decision making in bladder cancer care. Learn why involving patients and caregivers in treatment choices, rooted in their values and informed by expert insight, is crucial across all stages of bladder cancer. Discover the goals of care from non-muscle invasive bladder cancer to advanced stages, and empower yourself to advocate for your health. Dive deep into a world where patient education and collaboration pave the way to personalized care. Don't forget to subscribe to Bladder Cancer Matters and never miss an episode.

Dive into Dean Karrel's powerful journey as a bladder cancer survivor, from his initial diagnosis to life after a radical cystectomy, in Episode 66 of Bladder Cancer Matters. Dean shares the symptoms that led to his life-changing diagnosis, the resilience he maintained through treatments that failed him like BCG and Gemcitabine, and his decision for life-saving surgery. His story is a unfiltered look at the challenges post-surgery, the crucial role of support from nurses and care teams, and his gratitude towards them. Dean highlights the importance of organizations like BCAN in supporting bladder cancer patients and calls on patients to advocate for themselves, ask questions, and live fully post-diagnosis. His journey isn't just about survival; it's an inspiring call to action, emphasizing strength, advocacy, and hope. Join us to be moved and motivated by Dean's indomitable spirit. Don't forget to subscribe to Bladder Cancer Matters and comment and share this podcast with family and friends.

In this episode of Bladder Cancer Matters, host Rick Bangs chats with Dr. Elizabeth Guancial, a medical oncologist at Florida Cancer Specialists in Sarasota, Florida. They discuss the differences between receiving bladder cancer care in academic medical centers and community hospitals. Dr. Guancial is an expert because she has practiced in both types of institutions. Dr. Guancial shares that in academic medical centers, the focus is on teaching, research, and patient care, while community settings prioritize patient care. Community settings can often provide quicker care and more personalized attention, but academic medical centers may offer specialized procedures and access to clinical trials. Patients should consider factors such as the urgency of their condition, the need for specialized procedures, and the availability of clinical trials when deciding whether to seek care in a community or academic setting. It is also important for patients to feel comfortable with their healthcare providers and to seek second opinions if desired.

In this riveting episode of the Bladder Cancer Matters podcast, Mark Story sits down with Rick Bangs, the podcast's host and a muscle-invasive bladder cancer survivor. Dive deep into Rick's personal battle with bladder cancer and uncover the critical role of patient advocacy in shaping research.  You'll also discover the behind-the-scenes magic of podcast production and get a glimpse into the future of bladder cancer diagnosis and treatments. Rick passionately advocates for the advancement of precision medicine, the development of less invasive diagnostic and treatment methods, expanded access to cutting-edge treatments and clinical trials, and the power of unity among cancer advocacy organizations.

In Part 3 of this Bladder Cancer Matters podcast, host Rick Bangs continues his conversation with Bill Robertson, a bladder cancer survivor, and Dr. Vikram Narayan, an assistant professor in the Department of Urology at Emory University School of Medicine. They discuss the challenges and adjustments that come with having an ileal conduit, a common diversion procedure for bladder cancer patients. Dr. Narayan emphasizes the importance of understanding the recovery process and finding the right stoma appliance. Bill shares his personal experience with daily life after the surgery, including the need for physical activity and the support he received from his wife and others. Both Dr. Narayan and Bill stress the importance of seeking support from organizations like the Bladder Cancer Advocacy Network (BCAN) and connecting with other patients who have gone through similar experiences. They also highlight the psychological impact of a bladder cancer diagnosis and the need for mental health support. The episode concludes with final thoughts from Bill and Dr. Narayan, who encourage patients to focus on their return to normalcy and to seek help and support throughout their journeys.

In Part 2 of 3 in this Bladder Cancer Matters podcast, host Rick Bangs continues his conversation with Bill Robertson, a bladder cancer survivor, and Dr. Vikram Narayan, an assistant professor in the Department of Urology at Emory University School of Medicine. They discuss the difficult decision of undergoing a radical cystectomy, the potential benefits of bladder removal, and the importance of understanding a patient's values and preferences when discussing treatment options. They also touch on the different types of urinary diversions and the challenges that come with them, such as learning how to change the bag and adjusting to a new lifestyle. The episode concludes with a discussion on the time it takes to change a bag and the frequency of bag changes.  

In Part 1 of a three part "Bladder Cancer Matters" podcast, join host Rick Bangs as he engages in an enlightening conversation with bladder cancer survivor, Bill Robertson, and Dr. Vikram Narayan of Emory University School of Medicine.  Dr. Narayan is Bill's urologist and helped him navigate the challenges of a bladder cancer diagnosis and resulting bladder removal. Dr. Narayan sheds light on the critical role of a comprehensive, multidisciplinary team in delivering exceptional care to bladder cancer patients. Bill Robertson shares his heartfelt appreciation for the outstanding support and expertise provided by the team at Emory. The discussion also explores the pivotal decision-making process behind opting for a radical cystectomy. The episode wraps up with an enticing preview of the upcoming parts two and three of this engaging conversation. Don't miss this compelling exploration of resilience, advanced care, and the innovative approaches to bladder cancer treatment.

In this episode of Bladder Cancer Matters, host Rick Bangs talks with Dr. Philippe Spiess, a Genitourinary Oncologist and Assistant Chief of Surgical Services at the Moffitt Cancer Center as they discuss rare cancers. Dr. Spiess explains that rare cancers are defined as those with an incidence of 40,000 cases or less per year in the United States. However, he notes that the definition of rare cancers should also take into account factors such as expertise, patient advocacy, resources, support services, and clinical trials. Dr. Spiess emphasizes the importance of personalized medicine and precision oncology in the treatment of rare cancers. He also discusses the challenges and opportunities in studying and treating rare cancers, including the need for global collaboration, access to clinical trials, and the representation of patient voices. Dr. Spiess highlights the work of the Global Society of Rare Genitourinary Tumors (GSRGT) in advancing research, education, and patient advocacy in the field of rare cancers. He encourages individuals to visit the GSRGT website and reach out for more information or to provide feedback.

In Episode 61 of Bladder Cancer Matters, Dr. Brendan Guercio, a medical oncologist and assistant professor at the University of Rochester Medical Center, discusses the use of immunotherapy in the treatment of bladder cancer.  He explains that immunotherapy works by training the immune system to identify and fight cancer cells, unlike chemotherapy which directly kills cancer cells. Dr. Guercio focuses on immune checkpoint inhibitors, a type of immunotherapy that blocks proteins used by cancer cells to turn off the immune system. He discusses the effectiveness of checkpoint inhibitors, with about 25-30% of patients experiencing significant tumor shrinkage. Dr. Guercio also explores the potential impact of diet on immunotherapy response, specifically looking at probiotics, prebiotics, fiber, and antibiotics. While there is promising evidence that certain probiotics and higher fiber intake may be beneficial, larger studies are needed to confirm these findings. He emphasizes the importance of discussing these topics with a healthcare provider and highlights the role of organizations like the Bladder Cancer Advocacy Network (BCAN) in supporting research in this area.

In this episode of the Bladder Cancer Matters podcast, host Rick Bangs interviews Dr. Arlene Siefker-Radtke, a medical oncologist and professor at the University of Texas MD Anderson Cancer Center. They discuss metastatic bladder cancer and the importance of defining choosing the right targets and combinations for treatment.  Dr. Siefker-Radtke explains that metastatic cancer is the highest stage of cancer and typically refers to cancer that has spread to other areas of the body. She discusses the differences between metastatic and advanced cancer and the varying risks and treatment options for different metastatic diagnoses. Dr. Siefker-Radtke also highlights the exciting advancements in treatment options for metastatic bladder cancer, including the combination of enfortumab vedotin and pembrolizumab, which has shown significant improvement in overall survival. She also emphasizes the importance of seeking second opinions and considering clinical trials for metastatic bladder cancer treatment.  Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.  

In Episode 59 of Bladder Cancer Matters, host Rick Bangs talks with Alan Lifton, a survivor of muscle invasive bladder cancer. Alan shares his journey and experiences and discusses his diagnosis, treatment, and choice of urinary diversion (ileal conduit). He also highlights the importance of support from organizations like the Bladder Cancer Advocacy Network (BCAN) and its Survivor to Survivor program, which connects newly diagnosed bladder cancer survivors with survivors with similar diagnoses.  Alan also emphasizes the need for doctors to provide more information about the emotional and practical aspects of living with bladder cancer. He expresses gratitude for the medical professionals who treated him and the support he received from BCAN. Don't forget to subscribe to Bladder Cancer Matters in this platform and be sure to rate our podcast. 

In this episode of Bladder Cancer Matters, host Rick Bangs interviews Mary Dunn, MSN, NP-C, OCN, RN of the University of North Carolina.  Mary is a nurse practitioner and co-chair of the BCAN Survivorship Task Force. They discuss the definition of a cancer survivor, the concept of survivorship, and the unique aspects of bladder cancer survivorship. They also talk about the work of the BCAN Survivorship Task Force, including the development of survivorship care plans, the creation of a survivorship section on the BCAN website, and the importance of outreach to clinicians and patients. The goal of the task force is to improve survivorship care for bladder cancer patients and provide resources and support for both patients and healthcare providers. Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.

In Episode 57 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Leslie Ballas of Cedars-Sinai Medical Center about a topic on the minds of many patients with muscle-invasive bladder cancer:  keeping their bladders.  Even when the cancer has penetrated the bladder wall, can bladders still be saved?  Then answer (for some) is “yes,” and Rick and Dr. Ballas discuss: What bladder preservation is Different types of preservation like tri-modality therapy The role that radiation plays Options that patients with metastatic bladder cancer may have What oligometastatic bladder cancer is The increase in attend paid to bladder preservation as an alternative to a radical cystectomy Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.

In Episode 56 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Matthew Galsky, a medical oncologist who specializes in treating bladder cancer patients, about advancing new treatments for bladder cancer through clinical development and investigating the gap between the efficacy and real-world effectiveness of existing chemotherapies. Among other topics, they discuss:  The VESPER trial and its purpose related to bladder cancer Background on two chemotherapies, MVAC and GemCis, for muscle invasive bladder cancer The side effects of both chemotherapy regimens Identifying who requires treatment and who benefits from it Other promising developments occurring in the field of chemotherapy for the initial treatment of bladder cancer patients Never miss an episode by subscribing to our podcast. Simply search for “Bladder Cancer Matters” on your favorite podcast and click the “subscribe” button.

In Episode 55 of Bladder Cancer Matters, host Rick Bangs talks with Cathy Murphy about how she overcame multiple cancer diagnoses and faced them head-on. Their conversation will draw you in with its emotional depth and compelling insights. Among other topics, they discuss: Her journey with two forms of breast cancer prior to her bladder cancer diagnosis  Coping mechanisms she implemented during treatment Receiving the news of diagnosis during the height of COVID The difficulties in determining an effective treatment option Prioritizing her physical and mental health Her advice for those newly diagnosed with bladder cancer  Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform. 

In Episode 54 of Bladder Cancer Matters, host Rick Bangs talks with Shannon Murphy about her bladder cancer diagnosis at age 35. Their discussion is real, raw, and riveting. Among other topics, they discuss: Her experiences with a cystoscopy, TURBT, and BCG The difficulties in determining when and whom to inform about her diagnosis Her advice for managers and colleagues on how to navigate a direct report's cancer diagnosis Overcoming a bladder cancer diagnosis as a young woman Intimacy with a partner while undergoing bladder cancer treatment  Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform. 

In Episode 53 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Tom Powles about an interesting clinical trial he and others conducted studying the effectiveness of a drug to treat metastatic bladder cancer. Among other topics, they discuss:  The JAVELIN 100 trial that successfully studied the effectiveness of avelumab after chemotherapy in bladder cancer patients who have locally advanced metastatic disease What avelumab is and how it is used The questions that Dr. Powles hoped would be answered by the JAVELIN 100 trial How those conducting the trial assessed the quality of life of the patients receiving avelumab The role that wearable technology like a smartwatch can play in measuring patients' quality of life and health  Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform. 

Historically, many patients who have a radical cystectomy (bladder removal) also have an extended lymph node dissection, which means taking out several lymph nodes during the surgery. A new study led by Dr. Seth Lerner of Baylor College of Medicine (and also a BCAN Board Member) suggests that taking out a large number of lymph nodes does not improve both disease-free survival and overall survival. Rick and Dr. Lerner discuss: What lymph nodes and why are they important in bladder cancer Does a more extensive node dissection (END) improve both disease-free survival and overall survival? The side effects of removing several lymph nodes How, in Dr. Lerner's study, they found a higher risk of grade of moderate to life-threatening side effects at both 30 days and 90 days after a radical cystectomy and END How they also studied how radical cystectomy patients fared with and without chemotherapy after surgery Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.

*** This episode contains explicit language and candid conversations about bladder cancer and sexuality. We believe it's essential to have open, honest conversations about these matters, to provide support and guidance to those who may be facing similar experiences. Bladder cancer can bring about significant changes and challenges in the realm of intimacy and sexuality, and we want to address these topics head on.  Our guest, Dr. Daniela Wittmann shares her advice and insights in an unfiltered and uncensored manner. We understand that the explicit language used in this podcast may not be suitable for all audiences, and listener discretion is advised. *** In Episode 51 of Bladder Cancer Matters, host Rick Bangs talks with Dr. Wittman about a topic that is on the minds of many bladder cancer patients, particularly those who have their bladders removed: sexuality after their treatment. They discuss:    How doctors often remove not only the bladder but surrounding organs to that are important to sexual function How intravesical treatments like BCG can impact sexual function How sometimes these important changes are not addressed prior to surgery Available treatments for both men and women to regain some sexual function That women should understand that their sexual functioning may really change, like low desire, vaginal dryness and other issues When to have the critical conversations about sexuality with your medical team Never miss an episode of Bladder Cancer Matters by subscribing in your favorite podcasting platform.