The FND Podcast

Warning: this episode contains sensitive topics which can be triggering to some listeners. Please be advised.On this episode of the JJsegment Jess talks about how life has been this past year and about Mental Health. We are grateful that she has shared how she has been. Thankyou Jess for sharing. In the meantime she is an incredible author and you can support Jess also by reading her wonderful book!  Follow Jess on Instagram @functionallyjessWIDOWS FLAME: Jess is an author and she has received glowing reviews on her book. She is an amazing writer and you can purchase and read her book at most book stores.https://www.shawlinepublishing.com.au/our-titles/display/252-widowand%2339%3Bs-flameGoodreads:https://www.goodreads.com/en/book/show/63062237Booktopia:https://www.booktopia.com.au/widow-s-flame-jess-mcfarlane/ebook/9781922850126.htmlForeign Accent syndromehttps://pubmed.ncbi.nlm.nih.gov/27234850/#:~:text=Foreign%20accent%20syndrome%20(FAS)%20is,a%20video%20of%20her%20speech.https://youtu.be/x18AQT6yKGgNDIS:(available in Australia) https://www.ndis.gov.au/understanding/what-ndisThe NDIS Provides funding to eligible people with disability to gain more time with family and friends, greater independence, access to new skills, jobs , or volunteering in their community and an improved quality of life. The NDIS connects anyone with disability to services in their community. Is it still relevant the BMI index: it's questionablehttps://www.medicalnewstoday.com/articles/265215#Waist-to-height-ratio-better-than-BMIFood pyramid relevant still?https://www.houstonmethodist.org/blog/articles/2019/dec/is-the-food-pyramid-still-relevant/Introducing the myplate:https://www.uabmedicine.org/news/myplate-healthy-eating-chart-replaced-the-food-pyramid/#:~:text=In%202011%2C%20the%20U.S.%20Department,start%2C%20MyPlate%20is%20for%20you.A previous episode of medical cannibis:https://thefndpodcast.simplecast.com/episodes/conversations-with-chrissie-lets-talk-medical-cannibisThe game:Marrying Mr Darcyhttps://boardgamegeek.com/boardgame/145308/marrying-mr-darcyThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Winter at east darby by TAYMEEuropian Sunrise by Anthony CatacoliThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

Follow Jake on his podcast! Check it out!!!!!Itsmeitsmeitsfnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0LCheck out Jake on his youtube channel:  and as they say if you love what he does  : like follow and subscribe! @punkchef41https://youtube.com/shorts/JVoLO3Vtt8s?feature=shareForeign Accent Syndrome:https://pubmed.ncbi.nlm.nih.gov/30826739/Kelly Clarkson show : on youtube @thekellyclarksonshowhttps://www.youtube.com/watch?v=X20Spi7EOQYKelly Clarkson and Pink sing on this youtube video and they are crazy amazing The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode of the FND Podcast we are talking to Mr. Tom Plender who is a massive Campaigner for FND. We talk to him about FND and he brings up what we need to do to help FND Awareness and talk about FND. Thankyou so much for your time and for talking to us Tom it's been an amazing conversation with you, food for thought, inspiration and just so valuable. To follow Tom on instagram : @tplender. He has a website: www.tomplender.com and also FND ACTION: www.fndaction.org.uk FND ACTION UK : FND AWARENESS DAYhttps://www.fndaction.org.uk/fnd-awareness-day-uk/Click on the link to participateIncluding two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. Inform the doctor:https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/INTERVIEWS AND ARTICLES:Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqkoGB News https://youtu.be/8EMspXvKWd8I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655FND : Tiktokhttps://www.tiktok.com/tag/fnd?lang=enFNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5EauthorMusic: Sam Barsh Yellow LetterSam Bars Hope Springs InternalThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

An announcement for FND awareness day , especially for caregivers and Parents who are looking after child/children with FND there is an amazing even happening today. To check it out please look at the FND ACTION UK website. https://www.fndaction.org.uk/fnd-awareness-day-uk/The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode we are proud to talk to Dr. Katherine Gill president and founder of FND Australia Support Services. For those newly diagnosed in Australia we describe what FND Australia Services does and provides and hearing about a new FND  wellbeing course that is going to be available. We thankyou Katherine Gill for giving us the opportunity to talk to you again. Check out the website and the app. FND Australia Support Serviceshttps://fndaus.org.au/The FND AUS APPApplehttps://apps.apple.com/au/app/fnd-aus-app/id1635024300Andriod:https://play.google.com/store/apps/details?id=com.fndaustralia&pli=1 Walk and Wheel  Awareness day tshirt/jumpers are available here: https://www.etsy.com/au/shop/KraftyDesignsByKateGo for a walk : raise awareness , raise funds and do it within their community. Expressions of interest for Kokoro Mollitia a 12 week FND wellbeing program link is below:https://www.surveymonkey.com/r/KokoroMollitiaThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/FND TOGETHER:https://fndtogether.com/en/This is a FND charity/ in Canada run by volunteers.  "Our goal is to support individuals diagnosed with Functional Neurological Disorder (FND). FND Together provides a platform for individuals affected by FND to join together in support of one another as peers. We exist to help people living with FND experience better recognition and support, improved health and social services, and we strive to provide a strong common voice on behalf of people affected by FND. Our focus is to help patients with FND and to create a network of services with other organizations and institutions in Canada and beyond our borders.A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode of the Deb and Detty Show we are joined by a special guest Jess (as Deb said the famous author) I ask questions in relation  FND 1. Why is it so important to raise awareness for FND 2.What difference would it have made if you received proper treatment from the very beginning? 3. What message would you give to those who are newly diagnosed? 4.how do you deal with new symptoms?Hypohydrosishttps://www.mayoclinic.org/diseases-conditions/hyperhidrosis/diagnosis-treatment/drc-20367173The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://www.tiktok.com/@drbuttgastro/video/7020472244954549510https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ FND TOGETHER:https://fndtogether.com/en itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

In this episode of the FND podcast we are talking to chucky who unfortunately had an accident with his ankle. Or he was attacked by a ninja step! His experience with the emergency and how it all played out and what to do in an emergency. It's important to prepare for emergencies especially with FND.  here's some tools for when you do go to emergency: printable https://www.fndaction.org.uk/fnd-toolkit/The fnd australia support services App is now available to download and use for free to utilise please check it out and use !https://apps.apple.com/au/app/fnd-aus-app/id1635024300There is now patient advocacy case managers https://www.patientadvocates.com.au/index.htmlsos medical function on phone:https://support.apple.com/en-au/HT208076Here are two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

On this episode of Maggies corner we talk to Maggie on how she's been doing. We split this episode into two parts as there is so much to catch up on. Maggie has done amazing podcast episodes with @zoopnetwork @ the #9for9 real talk series.  Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creative we congratulate her also on finishing the challenge #9for9 29 days in cold water and for you guys raising money towards youth mental health. The zoop network:https://www.thezoopnetwork.com/ Maggie is part of this amazing community, check it out !The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

On this episode Chrissie talks about two wonderful articles that she has found that leads to discussions on FND. They are amazing reads and are linked and will be included in the resources for future episodes of the podcast. Please check them out! Also a recent article on the MJA published this month on FND.  Follow Chrissie @chrissiejbutler.NotesHere re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.The Cadenza for fractured consciousness   From Medium.com on the fnd portal The Road to Functional Neurological Disorder by Gabriel Brownstein Also anything covid related and fnd here on neuro symptoms :https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/A recent article written June this year what do you think ? From MJA https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveI particularly agree with the conclusion.The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

Trigger warning : this episode has sensitive topics that may trigger some. It is in relation to a post made in the past which had emphasised and claimed that covid vaccinations causes fnd. This is our opinions  we encourage you to speak to your own gp and specialists seek medical advice in regards to this topic in regards to your own fnd and health in regards to this topic. At present the fnd society has a media statement in regards to this matter. We also talk about the awkwardness of FND especially when flares present themselves.  Follow Jess on Instagram @functionallyjess , her Instagram for her creative writing @jessmcfarlaneauthor and link to her new book for pre order link below. Shoutout to Michael ! Hello!NOTES:To preview Jess's new book release and pre order click here to check it out In regards to covid and fnd Professor Jon Stone has a great page outlining everything covid and fnd related especially in relation to FND and Covid vaccinations and explains it perfectly. Click the link below to read through.https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/From what we could understand the current stance from the FND Society still stands : here is their media release:https://www.fndsociety.org/UserFiles/file/FNDSSocietyPressReleaseCOVIDVaccines.pdf Helping the Public Understand Adverse Events associated with Covid 19 Vaccinations ; Lessons learned from functional neurological disorder article from the jama network: neurology https://jamanetwork.com/journals/jamaneurology/fullarticle/2778192The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode on Uniting FNd Therapy Sessions we talk about FND , from Flares, What Jake packs in his fnd bag parenting with FND and more. It's always an interesting conversation on life with FND and just life in general with Jake. . Follow Jake on Instagram on @punkchef41 and his podcast it's me it's me it's fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo Notes:Not all disabilities are visible stickerclick Here to viewwhen I mention the claw im referring to the dystonia in my hands :https://www.fndaction.org.uk/supporting-dystonia-awareness-week-29th-april-7th-may-2017-functional-dystonia/How to manage yourself in a flare , this was an interesting article that I found that I could relate to A Chronic illness flare kit https://thediscerningyou.com/chronic-illness-flare-kit/an article on how to survive a flare uphttps://www.psychologytoday.com/au/blog/turning-straw-gold/201901/7-ways-survive-flare-when-you-re-chronically-illIt's so true that some of us may criticise ourselves for being in a flare in the first place this was an interesting perspective : don't blame yourself for being in a flarehttps://www.bezzymigraine.com/discover/real-talk-mig/health-a-flare-does-not-mean-youve-done-something-wrong/Hidden disability sunflowers scheme lanyards fnd action uk:https://www.fndaction.org.uk/fnd-action-join-the-hidden-disabilities-sunflower-scheme/recommendation: black adderhttps://youtu.be/vDVxq76-qOwEmergency crisis kits for chronically  ill I'll admit there is some good ideas here!https://themighty.com/2017/10/chronic-illness-crisis-kit-products-emergencies-flare-ups/what's in jakes fnd bag? Flashlight, first aid kit phamplets , emergency, excercise book to write if can't communicate, text to speech and more. What do you have?https://www.medicalrecords.com/2021/09/02/blog/11-people-with-chronic-illness-show-us-whats-in-their-bagfnd treatments : including alternative therapies check out FND action https://www.fndaction.org.uk/treatment/recommendation from detty ;parenting with disability : we've got thishttps://www.booktopia.com.au/we-ve-got-this-eliza-hull/book/9781760642938.html?gclid=CjwKCAjwquWVBhBrEiwAt1KmwljkzlExyP3163f8_BtVm__wjtZGWticg29oc6XqEeJHRQ6IeQGwJxoCLBkQAvD_BwEa compilation of stories from disabled parents about parenting disabled. It is achievable. You can with fnd it is not easy. But we do the best we can. ”When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a physical disability, there were added complexities. She wondered- Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 per cent of Australian households have a parent with a disability, yet their stories are rarely shared, their experiences almost never reflected in parenting literature.In We've Got This, twenty-five parents who identify as Deaf, disabled or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people's attitudes. The result is a moving, revelatory and empowering anthology. As Rebekah Taussig writes, 'Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit - disabled parents exist.'Contributors include Jacinta Parsons, Kristy Forbes, Graeme Innes, Jessica Smith, Jax Jacki Brown, Nicole Lee, Elly May Barnes, Neangok Chair, Renay Barker-Mulholland, Micheline Lee and Shakira Hussein."Finding your passion or something to focus on can help with fnd .https://www.bezzyra.com/discover/living-well-ra/health-the-value-of-pursuing-hobbies-when-youre-living-with-a-chronic-illness/‘little puppy buddy getting acquainted with the vacuum The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

It's so lovely to go back and listen to recordings and find hidden gems or treasures. Here's a great catchup or conversation between Chrissie and Maggie on all things FND.  Chrissie @Chrissiejbutler  Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativeNotes: Diassociassion and fnd helping with fnd ; technique called Havening https://www.healthline.com/health/mental-health/havening#does-it-workToxic positivity:not only amoungst us within our family and friends but within our community and with chronic illness:https://themighty.com/2021/05/what-is-toxic-positivity-alternatives/helping others by holding space:https://www.gstherapycenter.com/blog/2020/1/16/what-holding-space-means-5-tips-to-practiceStepping away from current events:https://health.clevelandclinic.org/signs-you-need-to-take-a-break-from-social-media/The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/ 

On this episode We have two very special guests David Bond who has spoken on this podcast numerous times interviews an amazing Neurologist Dr. LaGrand also fellow research fellow about FND and what he has been doing over here in Australia. We wish you all the very best and we thank the both of you for coming on the FND podcast you both truly are amazing. Listening to both David and TJ was truly inspiring.  Episode notes:to listen to Davids my fnd reality click on the link below https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-talking-to-davidto watch the interview with Dr. Lagrand Neurologist and Fellow research with Katherine Gill on the Fnd Australia Support Services Channel click on the link below ( amazing interview to learn the fundamentals of FND and more)https://youtu.be/Fxb0zEvngugThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

On this episode we backtrack all the way back to after FND awareness week.  We talk all things FND coping with the news events and fnd , mental health Spreading awareness not just on awareness day. Follow Jake on Instagram on @punkchef41 and his podcast it's me it's me it's fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo I was on Jakes podcast it's me it's me it's FND check it out!https://open.spotify.com/episode/3jMNFjLyFiYGeLzEtEVEh5?si=7bHG8xKlQF6ZxIcJYD2Gwwwe talk about Eurovision and it's awesome :https://www.sbs.com.au/programs/eurovisionKids show : get well soon cbeebieshttps://www.imdb.com/title/tt6249336/Recommendations:findyour passions/ hobbiescheck out Steph WB creative! Amazing Artwork check her out :https://www.etsy.com/uk/shop/WBcreativeStore?load_webview=1&bid=HfVb-IyWqFT12GtZgiBIltuyTuhDLittle Nicky Adam sandler Movie True crime podcast: FND Toolkit check it out!https://www.fndaction.org.uk/fnd-toolkit/FND australia Support services app:https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

On this episode Jess her experience with her iron transfusion which leads to other recalling of other experiences, also going through the motions and coping. Detty also talks about dealing with her mental health.Follow Jess on Instagram @functionallyjessRecommendations:Taking your meds on time annnndMunchme snacks healthy snacks and helping with Nauseahttps://www.munchmefood.com/Mindfulness and early education on mental health non for profit charity :https://www.smilingmind.com.au/Episode information:Iron Information treatment for anaemia https://www.healthline.com/health/iron-infusionWhat is VasoVagal Syncope?w.mayoclinic.org/diseases-conditions/vasovagal-syncope/symptoms-causes/syc-St. John's wort curious about it? heres some information:https://www.blackdoginstitute.org.au/wp-content/uploads/2020/04/10-stjohnswortastreatment.pdfPMDDhttps://www.mayoclinic.org/diseases-conditions/premenstrual-syndrome/expert-answers/pmdd/faq-20058315The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

Hey there it's detty leaving a little voicemail to everyone here on the podcast xo sending so much love your way xo The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

Fnd awareness day 2022 Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.We are privileged and honoured to be speaking with Sydney on this segment on the fnd podcast of My FND Reality. Her strength faith and strength is an inspiration and her sense of humour is wonderful real and relateable! Thankyou so much for speaking with us Sydney and I hope that you continue to inspire, be creative, and persue what you endeavour to do in the future. You're pretty amazing! Folllow Sydney on her Instagram @the.annegirlThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

FND awareness day 2022 #voices4fnd On this FND Awareness Day why don't we go on a trip down under? We catch up Maggie and she takes us on a journey to Australia K'gari (Fraser Island) road tripping with FND and travelling. Thankyou Maggie for sharing this experience and maybe one day it may be possible for some of us to road trip too. Travelling with a disabilityhttps://www.abc.net.au/news/2020-12-29/travelling-with-a-disability-and-wheelchair-tips/12910306Road tripping with a disabilityhttps://www.jennasworldview.com/2020/01/21/making-a-road-trip-easier-with-a-disability/travelling disabled Australia https://www.disabled-world.com/travel/australia/Fraser islandhttps://www.australia.com/en/places/brisbane-and-surrounds/guide-to-fraser-island.htmldangerous animals australiahttps://pvtistes.net/en/10-most-dangerous-animals-in-australia/for those in flood affected areas :https://www.abc.net.au/news/2022-03-10/floods-damage-compensation-payments-what-is-available/100895118The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

FND awareness day 2022 #voices4FND we talk on the Panel to discuss what we don't usually talk about amoungst ourselves. How does the hormones affect us? Peri menopause , Menopause in general? Chrissie Deb Jess and myself explore this topic in depth. Follow Jess @functionallyjess Chrissie @Chrissiejbutler Thankyou all of you for participating and Maggie hopefully you'll join in the next panel so we can hear your views too Articles/links to check out:Eostrogen levels and the Central Nervous System:https://academic.oup.com/edrv/article/20/3/279/2530824Shaping of the Female Human Brain by Sex HormonesnA Reviewhttps://www.karger.com/Article/FullText/507083Sec Hormones and the Brain https://www.dana.org/article/hormones/The Role of the Menstrul Cycle in Chronic disorders in the Central Nervous Systemhttps://link.springer.com/chapter/10.1007/978-1-4757-2576-6_4 What other FNDers have mentioned about this :“I have noticed I have more symptoms and seizures when I'm due on my period”“I actually mentioned to Chrissie the other day that I actually got diagnose with FND and Early Menopause at the same time during this year. I get fatigued easier and a lot of hot flushes.  For me. I have loss of periods and can affect my moods. I guess and definitely my sleeping patterns have gotten worse. Not much sleep. And I'm 33.”“Yes every month when my hormones fluctuate I have a flare just before or while I am on my period.  I want to chat to my doctor about options, but I don't know if a hysterectomy or I think it's called a Oblation? Would even help.  Would love to know if they would.”“My symptoms are worse during my period but I also am a lot more tired during that time and tiredness seems to be my main exacerbated”“I'm actually slated for a hysterectomy to help with this.  My cycle has always been awful but my FND occurred shortly after going through a few rounds of IVF.  Hormones are definitely linked.”“@thefndpodcast great topic! It's actually more complex than just hormones, due to the relationship and influences of these chemicals in our emotions mental processes and our bodies physiology.  Hormones can also be influences by our environment and our genetics.  I would be happy to discuss this in detail during our next community conversation or in your podcast: MD Functional Disorder healing ally”“This is a great post and interestingly I had this conversation in rehab.  I went into surgical menopause5 years ago.  Since I've had FND it's been hard to figure out if the increase in “hot flashes” is hormone related.  I only need oestrogen and after speaking with Gina Team it was suggested my HRT be increased.  I've had the increase for a few weeks now and have noticed a difference.  However, I have also had new medications started for some of my FND symptoms.  I would suggest if someone isn't sure to get a blood test done to check hormone levels - be interesting to see the outcome”“My FND symptoms increase 2-3 days before auntie flow visits.  My fatigue is the worst.  Usually the day is a bit of a write off.   Just can't concentrate on anything”“Since really young I've always had a drop attack (and seizures when older and experiencing more FNDy things) around my periods.  I knew it wasn't always just because of the pain ( From good ol Ends). I was in but the change in hormones affecting my nervous system.  Makes total sense and I'm really looking forward to this discussion.” “I was just talking to a fellow FNDer about how bad my symptoms were the other day.  The worst side I went in for treatment in May. I go my period later that day.  Usually I have a huge increase in fatigue as well so that usually tips me off but this time I didn't notice the fatigue as much” “Feel like I've been hit by a bus every period these past few months, they were bad enough before but I feel like exhausted with them now” “I unfortunately have a flare up every month. It usually starts around 3-5 days before my period begins and can sometimes last up to a week from then to calm down. It is very difficult to cope with it happening every month. If anyone has any suggestions to help, that would be great! I have considered an implant but haven't found enough information to know how helpful it would be. “ “I have the implant in.  I'll be honest I never put two and two together.  But now I have the implant in my periods are a hit and miss.  i've not had one since June when I had it put in but maybe this is something I can track and let you guys know” “I've noticed a massive difference when I”m due my monthly all my symptoms are so much worse.  I wasn't like talking about this yesterday it's like everything spikes x”

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Fnd Awareness Day 2022 #voices4FND On this Episode of the FND Podcast we are honoured and privileged to talk to Dr Katherine Gill the Founder and President of FND Australia Support services dedicated and passionate about enriching the quality of lives of those with FND. Hear her story, what the organisation is all about and what is to come In the near future.https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.FND Australia Support Services also has a YouTube Channel https://youtube.com/channel/UCycQKrrP9TApdA3H5Gqge2AFND Australia Support services App:Androidhttps://apksos.com/app/fndaustralia.comApplehttps://apps.apple.com/au/app/fnd-australia-support-services/id1613121706FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!The Mindgardens Functional neurological symptom disorders clinic -evaluation of feasibility and effectiveness of a multidisciplinary tertiary FND clinic with a nestled brief psychobehavioural interventionhttps://ndarc.med.unsw.edu.au/mindgardens-functional-neurological-symptom-disorders-fnd-clinic-evaluation-feasibility-andManual Handling workshop for caregivers : https://youtu.be/QfD457lbTmQThe FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

FND Awareness week 2022 On this episode we catch up with Jess but she also answers a question on the podcast that many of us FNDers encounter. Follow Jess on Instagram @functionallyjessThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

FND Awareness week 2022 On this episode we talk with Jake we talk about coping with current events or stress with FND and how we deal. Follow Jake on Instagram on @punkchef41 and his podcast it's me it's me it's fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo recommendations:stress management and ways to cope with fnd by fnd action great information herehttps://www.fndaction.org.uk/stress-management/how to deal with stress caused by current eventshttps://magellanhealthinsights.com/2021/02/04/how-to-cope-with-stress-caused-by-current-events/How to handle war anxietyhttps://www.webmd.com/mental-health/how-to-handle-war-anxietyit's me it's me it's fnd :Jakes podcast https://open.spotify.com/episode/7oNAaMbF7GOqpKsHlDzF4v?si=vw3PxMFBR422C3uonLfgeAand also FND and US go check them out to go looking for support and connections and turning a negative mindset to a positive. The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

FND awareness week 2022 On this episode we talk about a taboo subject not really talked about ; reaching the O with FND. We're talking orgasms. Sexual dysfunction can happen with FND and this is what we talk about openly and honestly.  Follow Chrissie @chrissiejbutler.Sex and disability the better health channel https://www.betterhealth.vic.gov.au/health/servicesandsupport/disability-and-sexualitymyths about sex and disability https://www.aruma.com.au/about-us/blog/sex-and-disability-the-facts/disability and sexual dysfunction study https://www.sciencedirect.com/science/article/pii/B9780323625395000229sexual dysfunctionhttps://my.clevelandclinic.org/health/diseases/9121-sexual-dysfunctionThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

FND Awareness week 2022 On this episode we catch up follow up with Deb and see how she is especially with Rod being sick. She talks about the disability pension NDIS, monitoring your FND symptoms and gaging where you're at with your own FND , becoming aware of your own FND. What a great conversation with our Deb.The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

FND awareness week 2022 During Christmas New Years period it became apparent that all was not going to be well for Rod. He got Covid and he talks about his experience with covid. Thankyou for sharing Rod your experience. The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.What to do if you have a positive for covid:https://vm.tiktok.com/ZSeV7dJuH/Carers advice : looking after someone with covid https://www.carersaustralia.com.au/coronavirus-information/covid-19-advice-for-carers/Managing covid and government information australia:https://www.health.gov.au/health-topics/aged-care/advice-on-aged-care-during-covid-19/managing-home-careMy aged care : caring for the elderly with covidhttps://www.myagedcare.gov.au/caring-someoneThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

FND Awareness Week 2022 aQuestion from @smoollllbeans " How to deal with losing a hobby because of FND" Chucky chats on this and it's a great question as many of us do end up doing this. The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestA great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/

Fnd awareness week 2022 On this episode we congratulate Jake on the 1 year birthday anniversary of it's me it's me it's fnd! We truly believe I'm supporting one another and uplifting one another as we are all for spreading awareness with fnd and we are also great mates! If you've ever wondered what it's like to do a podcast let alone one for FND we discuss this and also encourage you to do so! Follow Jake on Instagram on @punkchef41 and his podcast it's me it's me it's fnd & Facebook page and Instagram FND & US. Fnd and Us is also run by Steph and Rach Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesigner they are also incredible xo Recommendations:Ted Lassohttps://www.imdb.com/title/tt10986410/if you want a laugh must check this out on Apple TV you can watch this series ! American college football coach Ted Lasso heads to London to manage AFC Richmond, a struggling English Premier League football team. Theyre expecting him to fail heck even you as a viewer think he will too but does he? Check out the trailer below available to watch on Apple TV.https://youtu.be/3u7EIiohs6U it's me it's me it's fnd :Jakes podcast https://open.spotify.com/episode/7oNAaMbF7GOqpKsHlDzF4v?si=vw3PxMFBR422C3uonLfgeAand also FND and US go check them out to go looking for support and connections and turning a negative mindset to a positive. The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

The first episode of Maggies corner for the year and we start off with catch ups followed by Recommendations galore and the first non recommendation . We talk FND we talk life with our lovely Maggie on Maggies Corner. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativeDuring this time ambulance shortage / delays can cause problems at this time NSW Ambulance investigates response to newborn baby as system faces 'unprecedented' demandhttps://www.abc.net.au/news/2022-01-11/nsw-ambulance-investigating-ethan-moir-response/100747956Melbourne code redhttps://www.9news.com.au/national/ambulance-victoria-warns-of-extreme-demand-tells-melbourne-patients-to-expect-delays/7cb96651-5366-4081-b743-eb29fb61a79cnon recommendation:Remembering what transpired in 2021 was a bit traumatising! Some of which was forgotten here on ‘the death of 2021' you remember everything againhttps://youtu.be/aGZQ5RK13LY Recommendations:The daily Aus:A great news platform for young Australians to get the news firsthand ; available internet podcast and app easily digestible and accessible check it outhttps://www.thedailyaus.com.au/Shortage of Panadol ;https://www.news.com.au/lifestyle/health/health-problems/painkiller-shortage-as-panic-buying-ramps-up/news-story/f00f9cf29c7654ca4773a24206822b82 Jackie the ripperThere's a serial killer out in London and it it's Jackie the ripper. If you're in for murder mystery a well thought out podcast that's really entertaining lots of comedy a bit rude and crude this is up your alley ! thanks Jake for this one https://stak.london/shows/jackie-the-ripper/Movie ;check out A promising young womanhttps://youtu.be/7i5kiFDunk8travelling locally : Mount Dandenonghttps://www.travelvictoria.com.au/mountdandenong/Writing a line a day ; gratitude / dot point https://www.booktopia.com.au/one-line-a-day-a-five-year-memory-book/book/9781922432469.html?source=pla&gclid=Cj0KCQiApL2QBhC8ARIsAGMm-KFbTFljVultezpG_vEMsatGK6Brk55lRjMxm8kLbb7gFTjroDaDW9QaAtGjEALw_wcBan exercise book can help aswell The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this very first episode of the year we catch up with Jess and Deb, from new year Christmas how FND affected us, omnicron , and also strange event that happened during a seizure for Jess.  Follow Jess on Instagram @functionallyjess The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Happy New year everyone on this episode we recap what happened in 2021 for the podcast and recapping where everyone was before the break. Here's to starting fresh for 2022. The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

 On this episode of the Deb and Detty show we are talking about Christmas and surviving Christmas with FND. Stay Safe, be kind to yourself and have a great Christmas. XoSensory shopping in westfieldhttps://www.westfield.com.au/story/5wfhHMZU7Krj7vBpM646rt/sensory-friendly-servicesquiet hour in coleshttps://www.coles.com.au/about-coles/community/accessibility/quiet-hourSensory santahttps://www.hit.com.au/story/westfield-is-offering-sensitive-santa-photo-sessions-for-children-with-sensory-challenges-144809 The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we catch up with Maggie and life as well as life with FND and disability. But there is one issue that needs to be cleared up that has been circulating in the media: that TIK TOK has been causing tics especially functional tics. Others with tics also have been spreading misinformation about functional tics. Let's set the record straight : it's not behavioural or voluntary. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativeRecommendations:This is one of the best shows to watch ! Fall I love with these characters. When I flare up apparently I sound like Moria! Maggie you have to watch it you can watch the series on Netflix . Schitts Creek: click below to watch the previewhttps://youtu.be/W0uWS6CnC2oThe IT crowd is another great show to watch check it out! https://youtu.be/MwwTfkXk7U0it's a bit rude a bit funny but was mentioned : little britainhttps://youtu.be/9mACoKL2uoMWe talk about the TIK TOK articles around 25 minutes mark.Tik Tok articles mentioned:Australian doctors noticed a strange trend during the pandemic teen girls sufferhttps://www.facebook.com/127938220603/posts/australian-doctors-noticed-a-strange-trend-during-the-pandemic-teen-girls-suffer/10166307328635604/‘Why are teen girls in Australia developing Ticshttps://www.abc.net.au/triplej/programs/hack/why-are-teen-girls-in-australia-developing-tics/13618744Is TIkTok causing Tics in Teen Girls ? What parents need to knowhttps://www.google.com.au/amp/s/health.clevelandclinic.org/tiktok-causing-tics-in-teen-girls/amp/TikTok tics are a symptom of another bigger problem https://www.google.com.au/amp/s/www.theverge.com/platform/amp/2021/11/12/22772157/tiktok-tics-suggestible-distress-teensFunctional Tics on neurosymptoms https://www.neurosymptoms.org/en_GB/symptoms/fnd-symptoms/functional-tics/The diagram is there with functional tics and Tourette'sNdis issues at the moment :https://www.theguardian.com/australia-news/2021/dec/11/legal-challenges-against-ndia-decisions-more-than-triple-in-five-monthsive always loved this article on Tara Moss as she advocates ambulatory wheelchair using.https://au.news.yahoo.com/tara-moss-wheelchair-bound-halloween-costume-170107392.htmlif you want to catch up on Maggies sensory processing Series:Sensory processing episode 1: https://thefndpodcast.simplecast.com/episodes/maggies-corner-lets-talk-sensory-processing-and-fndSensory processing episode 2:https://thefndpodcast.simplecast.com/episodes/maggies-corner-sensory-processing-part-2The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we catch up with Deb and Maggie in regards to Life and FND in general.  It's lovely to talk to these lovely ladies together xo The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we talk Games , online games video games and a little about the brain! Not many people would know that Jess absolutely loves with a passion! It turns out though that playing games and video games could be beneficial and not just for entertainment. We also talk about anger management and yes there are break rooms in australia and more.. Follow Jess on Instagram @functionallyjess Information to check outWhat games should you play for better brain health?https://www.beingpatient.com/games-brain-health/The psychological benefits of video gameshttps://checkpointorg.com/games-for-health/Gaming the future of Neuro Rehab?https://klintneuro.com.au/gaming-the-future-of-neurological-rehab/Video games help treat neurological problems ; a pioneering example for combating lazy eyehttps://neuronup.us/neuroscience/video-games-help-treat-neurological-problems-a-pioneering-example-for-combating-lazy-eye/Video Gaming could stimulate six of the brains cognitive functionshttps://www.krysalisconsultancy.co.uk/resources/item/video-gaming-could-stimulate-six-of-the-brains-cognitive-functionsIf you can't play and you're interested in seeing some games you can watch along the rad brad on YouTube as he plays along https://youtu.be/BS5vuKx1cA8 check it out Not suggested if you want to start going into the gaming for the first time ever;Doom. Especially doom 7Zombie apocalypse gamesResident evilAnything that will shock your system too muchGame mentions :Brain games https://www.goodnewsnetwork.org/neurologists-release-online-brain-training-games-proven-to-work/Animal crossing https://www.animal-crossing.com/new-horizons/Soduko https://sudoku.com.auSpiritfarer https://youtu.be/mw5yXFmJDJUhttps://www.nintendo.com/games/detail/spiritfarer-switch/Minecraft: https://education.minecraft.net/en-us/homepageGone home https://gonehome.comZelda https://www.zelda.comFarming simulation https://farming-simulator.com/about.phpJess's all time favourite gameRed dead redemption https://youtu.be/Ou63yoJ52aghttps://reddead.fandom.com/wiki/Red_Dead_RedemptionReminiscing about the childhood gamesMario brothers https://youtu.be/rLl9XBg7wSsSonic the hedgehog https://youtu.be/MLfYa47XliMDuck hunt https://youtu.be/fQRtvktq_HgHalo https://youtu.be/iTR1VJoJZVQ Always talk to your gp or specialists if you have any concerns about playing video gamesHow to play safely : https://support.xbox.com/en-AU/help/games-apps/game-setup-and-play/windows-10-healthy-gaming-guideErgonomics and gamingPc https://www.pcgamer.com/au/a-guide-to-pc-gaming-ergonomics/ Oblivion  soundtrack : Jeremy soule check it outhttps://open.spotify.com/user/31ora455qfq4v7ax7s223bs2pd34/playlist/1fckwqd3KvTBdQvgOSrhkG?si=TV2HJuk2RsCXrLLY1LdksA Anger management10 tips on how to manage anger by SANEhttps://www.sane.org/information-stories/the-sane-blog/managing-symptoms/10-tips-to-manage-angerReachout is an Online resource used by parents and young adults alike for mental health ; 8 ways to deal with anger https://au.reachout.com/articles/8-ways-to-deal-with-anger Men's health anger management stratgies. https://mensline.org.au/how-to-deal-with-anger/understanding-anger-and-anger management-strategies/There are breakout rooms in Australia! Where you can alieviate Anger stress in a relatively safe environ consult advice first if you have any concerns before considering but there is break rooms !Break rooms in Melbournehttps://thebreakroom.com.auSydneySmash and splashhttps://www.smashsplash.com.auTHe rage cage in Brisbanehttps://www.ragecagesmashroom.com.aThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://www.tomplender.com/Tom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Happy birthday Maggie! On this episode we continue discussing Sensory Processing and sensory mapping how it can help identify triggers and essentially help you identify your own characteristics of your own unique FND. We talk FND we talk life with our lovely Maggie on Maggies Corner. Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativeRecommendations:Jimmy Rees Brighton ladies heck out these posh ladies but seriously this guy hilarious!https://youtu.be/oUN-9BhDPOsBarefoot investor with Scott pape he's a legend and has helped so many financially get back on their feethttps://www.barefootinvestor.com/The save spend give money box at big Whttps://www.bigw.com.au/product/home-interiors-spend-save-give-money-box/p/127874And sensory processing starts at 9 minutes Sensory ProcessingIf you missed the Sensory Processing Part 1 here is the link click below https://thefndpodcast.simplecast.com/episodes/maggies-corner-lets-talk-sensory-processing-and-fndWith permission from Katherine Gill I'm able to share the Sensory processing PDF Thankyou Katherine Gill and FND Australian Support serviceshttps://www.dropbox.com/s/3ykab0fiiaojd32/SPD-in-FND-Handout.pdf?dl=0checkout FND australia support services sensory processing  workshop https://youtu.be/FKXUWDlf-UE The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we go back in time where I've found this beautiful recording with Jake Rach and Steph we talk about Rach's walk , life with covid with a Steph , and FND, as well as life. It was really lovely though to listen to these brilliant FNDers and hear them talk, laugh, their points of views and just be themselves.follow him on Instagram on @punkchef41 and his podcast it's me it's me it's fnd & Facebook page and Instagram FND NEAD & US. Follow Steph on Instagram @_fnd_and_me follow Rach on @unwireddesignerRecommendations:Jackie the RipperAlmost 150 years after Jack the Ripper, there's a new serial killer terrorising East London. From the creators of hit mockumentary podcast, The Offensive, Jackie the Ripper is a laugh-out loud, timely comedy-drama retelling of the infamous Whitechapel killings of the 19th century.But in this modern twist, men are the victims of dark, sexually aggressive murders. The kind that leave them penis-less with their testicles left in the bins of the Costa Coffee next door.Behind all the bloodshed is a woman, Jackie. To be precise, a ruthless serial killer of a woman ready to strike again, and again, and again, and one more time after that, without a single ounce of remorse and ready to share it all on social media.And the task of finding her all rests on Lead Detective of Scotland Yard, esteemed veteran of Whitechapel, extremely paranoid, slightly clueless, and definitively over-caffeinated Frederick Abberline.Hold onto your bollocks.https://stak.london/shows/jackie-the-ripper/Brain Dumping; Jake did a podcast on this https://open.spotify.com/episode/58EyhahiBYKPlPQcEx5Aem?si=SPKDVyMjQ0utZ0Q7Nubd2AMatt Haig: his books are amazing highly recommendedhttp://www.matthaig.com/and also FND NEAD and US go check them out to go looking for support and connections and turning a negative mindset to a positive. Rach is continuing to do her walk for FND when she can with her friend Skye you can still support her on the go fund me account here :https://www.gofundme.com/f/5-miles-on-crutches?member=14473415&sharetype=teams&utm_campaign=p_na+share-sheet&utm_medium=social&utm_source=facebookshe will continue her walk https://www.instagram.com/reel/CVe6fBJNbmG/?utm_medium=copy_linkThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we catch up with Deb as she talks about her FND, and just talking to her I always come out with something. She is strong, full of wisdom and just all round wonderful and lovely to listen to Thankyou Deb xo The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. We are privileged and honoured to be speaking with Tom and we thank him for his time for talking with me on this FND reality. He is amazing and I'm so glad he shared his journey for giving hope to others and letting us know about Professor Edwards and what he's done for him. Follow this incredibly talented man on his website @ https://www.tomplender.com/ , for his music, his art and writing as well as his Instagram @tplender.Professor Mark Edwards one of the leading specialists in FNDhttps://www.stgeorges.nhs.uk/people/mark-edwards/Here he talks about Functional Dystonia https://youtu.be/ir2cQOjOZKUAnd here he talks about FNDhttps://youtu.be/IaPnxYnBiykIntroducing Professor Lorimer Moseley from university of South Australia he's a clinical neuro science research physiotherapistHis experience with painhttps://youtu.be/Sjes9CuN6KoPain explained  :https://youtu.be/jH_Ut2hhAfUand finally Toms own articles !putting FND on the Maphttp://nihealthcare.com/putting-it-on-the-map/to find out more articles that Tom has written check out his website! Trigger warning as promised I did mention in this my fnd reality I would link the episode where I was flaring with Maggie on this podcast this is the link below to explain what happens in a flare for me. It does feature me in a real flare with Maggies it may be distressing for listeners.https://thefndpodcast.simplecast.com/episodes/maggies-corner-trigger-warning-real-life-flaresThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! HTTPS://www.tomplender.comTom Plender : follow this amazing creative human his art, music and writing on fnd https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

As FND has hit me hard and flares have found me a lot nowadays I've been catching up on my editing and found this beautiful gem of an interview I did a while back with Kerri. It came at a great time as some of us have been struggling mentally and FND does this too. Whenever I've looked to inspirational people Kerri has definitely been one of them. So let's listen to Kerri and catch up with her. Here are some of her songs waiting on the other side https://open.spotify.com/track/6wtTinp4Q87xLtUduqwUQg?si=GARrlC4GRhSshtjKMluhWQOutrun the wind https://open.spotify.com/track/1OxCmvy1ORURbRskk0mclO?si=mNRGFmOdTra_elSxkp5ghAExactly how I feel https://open.spotify.com/track/0cucSoR9wdj7KgY7r9jb9d?si=UBQgTWRhSa6ui-amE-wJ9gwhat a voice !Kerri's music can be found on this website, you can view her videos and purchase her music too: https://www.kerimcinerney.com/our Spotify playlist has some of Kerris songs to listen to! Check it outps://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1Australian Women in music awards that Kerri is nominated in : Go Kerri we are so proud of you!https://womeninmusicawards.com.au/The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode of the JJsegment we catch up with Jess and see where she is on her journey. She comes to a juncture where some or most come in their chronic illness journey where after learning about the symptoms, diagnosis and learning to managage their condition on their own terms life continues, responsibilities , and the question where does the focus lie? Where is the balance?Follow Jess on Instagram @functionallyjessThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

On this episode we explore FND and memory and memory recall. It's one of the common symptoms that we may all experience alongside tiredness/fatigue. FND Merchandise to support FND Australia Support services by Chucky from @friendswithfndthings to checkout :Memory symptoms and concentration :https://www.neurosymptoms.org/en_US/symptoms/fnd-symptoms/functional-cognitive-disorder-functional-memory-and-concentration-symptoms/The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Today on Conversations with Chrissie we catch up, it's certainly been a while but with FND life, pacing and self care we have to take care of ourselves. For some of us Christmas can be traumatic for us so what we can do to help ourselves and also responses to Maggies podcast series on sensory processing.Follow Chrissie @chrissiejbutler.The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

In this episode Rod explains that he's now participating in Respite care as part of his services however it can be a good part in care for those caregiving. We also look into social life, support whilst caregiving as well as prevention of burn out. things to think about:Respite: part of self care and looking after yourself as a caregiver may sometimes and can mean taking a break completely and may very well be vice versa so that it prevents burnout .https://www.carergateway.gov.au/respite?utm_source=google&utm_medium=paid-search&utm_campaign=10626744453&utm_adgroup=102994882777&utm_term=%2Brespite%20%2Bcare%20%2Bservices&gclid=Cj0KCQiA4b2MBhD2ARIsAIrcB-QCVy9Pxd74Y5OVV7pl53J_pQT7Y79Qb50M1IzDyRjwh0gi2FTkJLUaAvCXEALw_wcB What uplifts you? What helps clear Rods mind and helps him get set for the day is this motivational speech/talk from Matthew McConoughey academy award winning actor, writer and philanthropist hi speeches and talks uplift and Inspire.https://youtu.be/UuuhZ9ViXKM-The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.To listen to Rods My FND Reality : his Caregiving story click belowhttps://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodneyCarer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gatewayFor more information on Carer Gateway https://www.carergateway.gov.au/their phone number is 1800 422 737also join their Facebook page to keep updated and their support groups.For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link belowhttps://www.facebook.com/groups/588224248292396For more information about NDIS checkout Carers Australia @ www.carers australia.com.auhttps://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1https://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fnd Information on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is:https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQOther podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndhttps://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDer https://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacksfollow on Instagram @ Meg.jacks_TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.auElle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: MegjacksJulian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippie Nina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapien Website: https://www.chloehayden.com.au/Youtube: Chloè HadenStyle like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

Trigger warning our lovely Deb is a survivor of Domestic abuse and has gone through traumatic events that are mentioned in this episode.Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to. we are so privileged and honoured to have Deb on board to share her experience and fnd with and grateful that she's part of the FND podcast team. This is her story and her reality. She is a warrior a fighter a survivor on so many levels. We love you Debrus and Thankyou so very much xo The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest

This episode we catch up with Steph. We talk about Andy's rock to recovery walking scaffell pike which he did quite successfully, and also asking for support for rachs walk on crutches for fnd which she is continuing to do updates on episode notes also conversations on fnd. follow him on Instagram on @punkchef41 and his podcast it's me it's me it's fnd & Facebook page FND NEAD & US. Follow Steph on Instagram @_fnd_and_meUPDATE:Andy was able to complete and do his walk up scaffell pike! Successfully with his team!https://www.instagram.com/p/CVdGjnPDiMC/?utm_medium=copy_linkcongratulations!Rach is continuing to do her walk for FND when she can with her friend Skye you can still support her on the go fund me account here :https://www.gofundme.com/f/5-miles-on-crutches?member=14473415&sharetype=teams&utm_campaign=p_na+share-sheet&utm_medium=social&utm_source=facebookshe will continue her walk https://www.instagram.com/reel/CVe6fBJNbmG/?utm_medium=copy_linkand will catch up with Rach on the next episode of uniting fnd The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him out 

Let's talk Sensory Processing with FNDWhat is your sensory sensitivities? Sensory sensitivities varies with FND and it's different from person to person. So identfying what you're sensitive to in relation to your 4 senses touch smell sight sound in relation to your central nervous system can help find out and identify what your triggers are and what doesn't help with your flares!Follow Maggie on Instagram @Maggie.Chapman and her creatively on @maggiesa.creativeRecommendations:Salad dressinghttps://vm.tiktok.com/ZSe6vrnbs/Salad fingers weird video/meme from youtubehttps://youtu.be/M3iOROuTuMAMatcha teahttps://vm.tiktok.com/ZSe6vhA9b/https://vm.tiktok.com/ZSe6vMyPM/Mochihttps://vm.tiktok.com/ZSe6vvKeK/Robert Gordon mugsThey do have hug mugs !https://www.robertgordonaustralia.com/products/hug-me-mug-set-4-pink-mediterraneanat 13 minutes we start talking about sensory processing :)With permission from Katherine Gill I'm able to share the Sensory processing PDF Thankyou Katherine Gill and FND Australian Support serviceshttps://www.dropbox.com/s/3ykab0fiiaojd32/SPD-in-FND-Handout.pdf?dl=0checkout FND australia support services sensory processing  workshop https://youtu.be/FKXUWDlf-UEWho are we amplifying ?Nicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the ForestThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him outNicole Parishshe is raising awareness on Autism, how she lives with autism, what tools she uses and her love for insects. Follow her on Tik Tok at Sound of the Forest 

On this episode ofChucky Chat we've been actually holding this episode for a very long time. Simply because for a while in Australia since the pandemic we closed the borders interstate and internationally so no one could travel that is until recently. Since then though I'm happy to broadcast this beautiful episode where Chucky not only gives tips on how to travel with FND but also recounts and shares his experience travelling and his time with his family. Thankyou for sharing Chucky it is so valuable. Information on travelling during the pandemic times within australia and internationally outside of Australia is also linked here too. FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd Information to check out:Good news we can fly again !https://www.abc.net.au/triplej/programs/hack/what-to-consider-before-booking-your-overseas-trip/13613334https://www.abc.net.au/news/2021-11-21/international-travel-flights-covid-latest-rules-explained/100628836All the information regarding travelling in and out of Australia is here it is more complicated than before flying internationally here's what you need to know https://apple.news/AUmkf142LRvCvHdUaP5AUkAinformation from the Australian governmenthttps://www.health.gov.au/news/health-alerts/novel-coronavirus-2019-ncov-health-alert/coronavirus-covid-19-travel-and-restrictions/international-travel-and-covid-19https://www.smartraveller.gov.au/Travelling during this time :https://www.smartraveller.gov.au/COVID-19/planning-travel-during-covid-19If you are looking to travel here are some links to consider but please do your research on what each of your airlines offer for example heres what Qantas offers https://www.qantas.com/au/en/travel-info/specific-needs.html Here's some other Links on travelling with disabilities https://www.smartraveller.gov.au/before-you-go/health/disabilityhttps://www.flightcentre.com.au/flights/planning-your-flight/disabilitieshttps://www.scopeaust.org.au/blog/disability-advice/tips-for-travelling-with-a-disability/Would you like to travel after the pandemic but have no ideas where to start? Travability might give you some ideas.  Travability's mission is to be agents of change; to inspire people who have never traveled before to do so, and to inspire others to do more. To encourage all cultures of the world to see disability as an integral part of life, and to provide the motivation and tools to the tourism industry to allow them to create accessible environments that enable inclusion in an economically sustainable way.http://travability.travel/toursThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanationhttps://vm.tiktok.com/ZSeYtCw7W/https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him out 

Join me as we talk to others with FND in the community as they share their time, their lived experiences and invaluable and priceless insights with FND. Each person brings to the table their own unique truth of what it is to genuinely live with FND. For that I am absolutely humbled, grateful and show great respect to each person that I have talked to.  Thank you Chrissie for joining and sharing your time and energy with the FND podcast and we can't wait to see what you do with your endeavours with your podcast. It's a unique journey each and every one of ours with FND and we Thankyou for sharing yours. How did Chrissie Journey begin? This is her My FND Reality. The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him out

Earlier on this month we catch up with Jess. We find out what's happened and also how she's been going since then. We hope she continues to recover! Follow Jess on Instagram @functionallyjessRecommendation from Jess : Netflix: BlindspotJane doe is found at Times Square covered in tattoos each one connected to a case a mystery that leads to another all connected. https://www.imdb.com/title/tt4474344/Information to check out discussed on this episode:glandular fever ; caused by the epsteinbar virushttps://www.betterhealth.vic.gov.au/health/conditionsandtreatments/glandular-feverLiver failure https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/liverCan you drive with a disability? Yes you can;https://www.vicroads.vic.gov.au/licences/health-and-driving/driving-with-a-disabilityThe Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FNDThe FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.The FND Podcast with detty : song resonating at the moment maybe our song :The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.https://youtu.be/o3sXlxg4d5cWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOWhttps://imprintmerch.com.au/collections/lets-have-the-chatfrom masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!HELPFUL RESOURCES:A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.https://www.neurosymptoms.org/Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!https://www.neurokid.co.uk/A website for young people and families living with NEAD and neurological symptomhttps://fndportal.org/Amazing website with information and links to fndInformation on Non Epileptic Seizures or NEADhttps://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdfFND ORGANISATIONS:https://www.fndaus.org.au/FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.Click below to hear more about FND Australia Support services and who Dr. Katherine Gill ishttps://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-servicesFND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.https://www.fndaction.org.uk/FND Dimensions aims to develop a network of ‘peer support groups' across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.http://fnddimensions.org/A really helpful article and explanation of what FND is: 'https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ Other podcasts/ blogs / vlogs to follow:itsmeitsmeitsfndby none other than our Jake! https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1Bed Life and Beyond by Rach also a lovely FNDerhttps://pandoralocksmith.wordpress.com/about/John McLeans Fnd Journeyhttps://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0Lmtd Life with FNDhttps://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videosFNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacksInstagram follow Emma's journey :@emmas_fnd_funPeople Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check outDylan AlcottAthelete , paraolympics , podcaster , raising awareness and voices of the disabledInstagram :@ listenable_podcast @dylanalcottWebsite: www.abilityfest.com.au Elle StellaBusiness Success Coach , Paraolympian & intuitive healerInstagram: @iamellesteeleWebsite: www.iamellesteele.comCarly FindlayActivist, writer, Blogger with a condition called ichtchyosis.Instagram: @carlyfindlayWebsite: www.carlyfindlay.com.auSophie ButlerShes empowering women, disabled after a spinal cord injury , she inspirational and has an amazing attitudeInstagram: @sophjbutlerYouTube: https://youtu.be/wgfAYDlXXvMMeg JacksShe is a fellow FNDer who is very open about her journey with FND and has helped raised awareness with FNDInstagram: @Meg.Jacks_TicTok: Megjacks Julian Gavino(he/him) is a trans-masculine model, writer, coach, and sex-positive disability influencer living with Ehlers-Danlos syndrome and comorbidities. ... In his work, Julian aims to normalize and destigmatize trans and disabled bodies in media — by facing discrimination down and creating space for representationInstagram:  @thedisabledhippieNina Tame aka the Lunch LadyShe's a single mum who's disabled and a disability advocate. Parenting with disabilityWebsite: https://hellolunchlady.com.au/parenting/parenting-around-the-world-nina/Chloè Hadenshe is an Australian actor YouTuber singer dancer and she's autistic. She beings awareness about Autism and talks openly about life with Autism.Instagram: @princesssapienWebsite: https://www.chloehayden.com.au/Youtube: Chloè Haden Style like UFounded by mother-daughter duo, Elisa Goodkind & Lily Mandelbaum, StyleLikeU is a multimedia platform for radically honest docu-style content that gives voice to diverse role models who stand proudly outside of norms and are comfortable in their skin.Website: https://stylelikeu.com/about-us/Lucy Dawsonwho unfortunately became Disabled during a medical situation. Click this link to find out more https://www.theguardian.com/society/2021/aug/25/lucy-dawson-the-model-who-got-a-mystery-headache-a-misdiagnosis-and-a-new-mission-in-life However despite this all she continues now to advocate and model and be bloody amazing.Instagram : @luuudawWebsite: https://lucyintheskywithencephalitis.wordpress.com/2021/03/16/all-my-links/Cripple MediaCripple media is a disability led media which represents the voice of the youth. As they have mentioned that the youth especially disabled have been represented by those who aren't the youth primarily the teachers or parents , those in the medical fields so they are raising their voices and speaking up and being heard. It's really important for their voices their oppinions to be heard and what a great idea and platform. A way to educate aswell as raise awarenessInstagram: @cripple mediaWebsite: https://cripplemedia.com/about/ Aaron Rose Philip For more information check out this wonderful article herehttps://www.uncrazed.com/aaron-rose-philip-makes-runway-debut-says-disabled-talents-matter/32893Instagram:aaron_phillip transgendered disabled fabulous Model check him out